I did a presentation on this actor. First Deaf superhero in the MCU, and in an interview she said that her deafness wasn't a challenge, but the ignorance of those around her is. Fucking legend
@@kaylizzie7890 The actress is really Deaf though so that part wouldn't be acting. It would be normal life. Anyway, she could have shut of the receiver any time she liked but somehow nobody in the writing crew thought of that....
@@aliceramdom.s Guess you didn't realise many events and things shown in reality TV shows are very possible in the real world, many are even BASED on real world events that have already happened. Like Chicago Fire for example, even doctor house with it's zebra's rather than horses mentality, all the diseases are real. It is why they are called REALITY TV shows, they might have unrealistic elements, but still have plenty of real elements.
its understandable, if the implant was 9 months ago shes still getting use to sound, she was born deaf and went through her entire life without hearing a sound. this is unfortunate problem most adults go though when they get their hearing, they feel like they are a completely different person and everything is completely turned around. this is actually why most people get implants or hearing devices when they are babies or toddlers, not only for language and sound to develop but also to avoid this
She really should have given it longer, it takes all babies years to adjust to their senses so it's going to take longer than 9 months. Also most implants can be adjusted or switched of temporarily, that seems safer than removing it. Especially as she said there were things she loved about it. More therapy first, to help her realize she is still the same person she was and help her cope with the new sense would have been better, then if she still hates it after say 2 years, then remove it. Regret at having given up on something too quickly can be hard to live with too, I know that from experience.
@@masonc8140 it was her decision the doctor didn’t sit there and try and tell her to try them for a little longer. Being deaf isn’t something that you need to change about yourself, if she accepts herself as a deaf individual then she isn’t hurting anyone. Why do y’all care so much about someone being able to hear?
@@LuvMePeople sadly there are people that think deafness is a disease that needs to be cured. I have two Cochlear implants, one I had since I was a toddler and another I chose for myself. There are different kinds of doctors, some that say deafness is bad, and others that will present your condition and give you options, one of those is to not do anything about it. It is a choice, sadly the mindset of people is negative. However it is the same for some deaf people, I've encountered some that think that implanted people are the scum of the earth and they shouldn't be regarded friends of their own. I have been bullied because of that, and sadly, it wasn't the same for hearing people as I have not met one that hated me for my implants, deaf kids turned out to be hateful in my encounters. Overall, it should be a choice, and the mindset that implants cure deafness is wrong because people with no hearing for over 20 years of their life actually get very little or never gain any hearing back at all. Only 5% of people have done that in Australia alone.
My partner's brother became deaf soon after birth (genetic defect) and he got implants as a toddler. For him it was terrifying hearing people talk, for the longest time he hated wearing them because voices sounded like robotic screeching. This show is fiction but not far from reality.
I am hearing impaired. 80% Nerve loss since birth. I wear hearing aids. I truly understand and relate to this lady. Many times the silence speaks loud volumes!!! True in the heart and actions
I get it. I lost a good portion of my hearing my right ear. From years of earaches as a child. The infections caused by the earaches ate away at the bone in my right ear. I think the doctors said I lost around 40% to 50% of my hearing. I tried a hearing aid. But sadly it proved to block my ability to hear rather than helper it. Making it much harder to hear anything around me. While I still struggle with hearing everything. (It's the high pitched noises I struggle to hear.) I found that its better for me without the hearing aid.
For a potential comparison for people who can't understand why she'd want to remain deaf, I can only imagine it would be something like this: Suddenly colors and light are always blindingly bright, everything you hear sounds like the volume is at max, touching a warm mug of coffee feels like grabbing molten rock, going in a swimming pool feels like being in the coldest part of the Arctic Ocean, a mildly sweet snack tastes like eating literally sickeningly sweet icing straight from the tube, smelling some just expired milk is like being in the middle of a dump. And you can't turn any of it off.
Thank you for speaking up about this. So many people have no idea why anyone wouldn't want to be "fixed," and all they see is people malingering or wanting to be ill or any number of extremely damaging perceptions. The reality is so far from that, and it's not at all unreasonable for someone adjusting to a new sense to be entirely overwhelmed and to want to go back to living the way they were comfortable living before.
My wife is an ASL interpreter. Cohclear implants are actually a taboo topic in the deaf community. When an adult gets one, they're often disconnected from their deaf friends as they're looked at as not being true to themselves and who they really are. When parents get the implants for the child, the parents are looked at as forcing a permanent life decision on their child. The implants do not make a deaf person hear clearly. That's a myth. Most of the time, it's like your ears being under the surface of a pool and somebody trying to talk to you. This becomes a struggle for a deaf person. The deaf community steps back from them because they have the implant, but the person also is disconnectd from the rest of the world as they cannot hear clearly and is still seen as a deaf person. It can be a very lonely world when you're a piece of the puzzle with rough edges.
I'm not surprised, but at the same time it doesn't justify it. Communities, even completely benign ones with the best of intentions, often try to insert themselves into the identities of their members as "who they really are", and its members will often be open to that in their own search for personal meaning, right until the point where they are presented with options to leave. We see similar things with close-knit religious communities. With these transitions I bet people who get implants find out who their true friends are and who only stayed around because it validated themselves in their own social circles, and not liking the answer. It's a very human flaw, and I sympathise with those having to make those difficult choices.
I don’t have a problem with people getting cochlear implants if they have a choice. Parents getting them for their kids tend to be different, especially when they don’t even try to learn sign. Deaf culture is real and beautiful and it’s frustrating to see parents ignore part of their child’s identity.
@Rex The Legend, unfortunately, that beautiful community also ostracizes those with the implants. A friend of mine has a daughter who is deaf. She got the implant as a child and both hearing and nonhearing communities railed against them both. Hearing, because she still relied on lip reading and ASL. Deaf, because they accused them both of denying her deafness. For a long time, she never felt part of either world. Now, she's an advocate and powerful voice for both and still gets hate from both. Yes there is beauty in both worlds, but there is also ugliness.
I've heard of blind people getting surgeries to see and just freaking out because they aren't used to it. I guess it would be like an alien coming down and giving you the ability to sense electromagnetic waves like a shark.
@@shadowrobot7708 Yes you have. This device is called headphones. The testing centers have them so prevent noise distraction. I have used them, and they work wonders. So simple and effective.
Honestly being able to hear when you weren’t capable of it, sound so overwhelming, like she said she understands the world in a different perspective. And it dosent have to be bad to gain this ability, but the thing is, we can hear and imagine a world without sound horrible because we are loosing something, but she never “lost” something, she just never have it. And gaining something new doesn’t mean you are gonna like it.
I think the problem with this episode is that you can turn off a coclear implant, she can get the so desired silence, and she can "train" herself to "endure" the noise by turning the implant on for 5 minutes at a time and slowly extending the periods of sound until she no longer needs to turning it off. And it's something that is usually done, with all implants, exactly because is not easy to get used to the new normalcy
This is kinda why I'm all about this kind of tech being used for restoration rather than endowment. If you've never seen or heard your entire life, adjusting to an entire new sense might be more of a problem than a benefit. Some people might dig it, others not so much, so it should be a case-by-case thing. And the ability to turn it off at will would definitely be a must for overstimulation.
So you shouldn’t heal if someone was born with a defect that effects their everyday life. I know what you mean but I don’t think there’s more cons then pros
@@myacole1272 there's been people who developed severe mental illness after having their sight restored. A guy who had been blind most of his life became suicidal and depressed after getting surgery. He even wrote a book about it.
@@myacole1272 Again, it depends on the individual case. Added to which, I also advocate an on/off switch just to give the person the option. After all, if the woman in this episode could turn her implants off at will, she might not have been so distressed.
As a hearing person I may not be able to understand fully but I understand to a degree. As with sensory issues I wear headphones to limit or block sound. And suddenly taking them off and being able to ear clearly makes a sense of panic arise in me. Yes I can't hear well or at all with them all but I enjoy life through different means like feeling music through beats and vibration. You don't have to hear to communicate or enjoy life.
@@harriet2114 appreciate your words. It's not so much as autism being the main problem, but the anxiety, adhd and ptsd combined with that, as you said, can hold you back. Sometimes so much so, that it can feel impossible to escape. Of course, there's always hope for coping and thriving better, just takes time and learning more about yourself. I just feel like a weird imploding neurotic creature sometimes and feel like id thrive a lot better without that feeling personally. 😅
when I finally got my hearing aids 6 years ago after struggling for a long time, I felt like a different person so happy and my confidence grew, an implant is an option for me but to be honest I'm terrified! ....as long as my hearing aids let me hear I'm happy sometimes I feel overwhelmed by sounds especially outside....retiring to bed removing ha's reading a book, can be bliss 😏
I saw a TH-cam video from the Swiss channel rts "signes" in which they interviewed deaf people which decided to stop using their implant (not removing them ) it can be very difficult too get used of the sound arround when you have been living with no sound at all for so long
I used to have one hearing aid on my left side with an implant on my right, I'm so glad for you that you're happy with what I got. Unfortunately my left side became completely deaf, which meant that my hearing aid couldn't help me anymore, it only works on hearing you may have left so if there was nothing to pick up on, it was useless. I was scared at first, but I got implanted shortly, it works on an app just like my other implant. I gained back my hearing up to 86% in six months, I was estatic. You never know what results you'll get but it all depends on the person. However there is nothing wrong with sticking with what you are happy with :)
There was a Medieval physician whom, when he lost his eyesight, declined an ocular surgery: “I have seen enough of this world and do not need to endure a surgery to see any more of it.” I can imagine how the deaf women with the implant must have similarly felt about being able to hear for the first time.
Yeah, he was just smart. I'm pretty confident that not many ocular surgeries in Medieval times were successful and he likely saw patients who suffered the rest of their lives afterwards so said "no thanks to that"
I like that they covered this very realistic topic, there are a lot of deaf people who have gotten CI's that have really struggled with it, and even hated it. But it really doesnt seem like they did any research on deaf culture or cochlear implants for this episode outside of knowing that this is an issue.
exactly. They got too many things wrong with this episode including the fact that she simply didn't need to put the processor/receiver on in the morning to experience silence. After all, she didn't sleep with them on and would have known that every night she was hearing blissful silence.
The conversation in the therapist's office (there are moments when it focuses on the doctor so things get missed) Tori: Why won't you tell me what's wrong?! Margot: You don't want to hear it! Camera loses focus Tori: But what? Margot: I get angry. Tori: I support you! Margot: You like to remind me... Camera again Tori: I'm trying, but I'm tired Margot: When you do something for me, you act like I'm weighing you down. I'm not a burden! "Why do you want the implant?" Margot: I wanted it for you.
I'm blind, couldn't see the dialog between them. thanks for translating :) It's so relatable, I think most disabled people feel like this. We're fine, until the rest of the world's pity makes us feel simultaneously guilty and degraded. Feeling less and mistaking certain limitations begot of ableism as personal incapability and incompetence, and guilty because others 'have' to do things for us because of it while we forget that, much of the time, we don't even ask. We don't ask because we're fine, we can do much of the things that's done for us. "But they're just trying to help, of course." We need to learn that confidence doesn't show itself when we take on the world. Living life is a normal thing to do. Confidence rises when we face off with other people. When we say, "I am fine. I can do this. Let me show you what I am capable of. Let me be me, with my own way. Let me live."
I totally get this. I'm deaf in my left ear due to decades of horrible migraines. It happened so slowly that I didn't fully understand what was happening. It just felt like the music in bars was louder and my friends spoke more softly. I'd scream, "what?" and we'd move on. I started seeing a neurologist because I developed nerve damage in my thigh.she ordered a brain MRI scan as part of standard care. The amount of gray matter in my brain was epic. I do have c-PTSD but she said this was excessive for even the most engaged case of PTSD. She sent me off for a hearing test and I found out that I was deaf in my left ear. We all assumed that this deafness must be holding me back in various ways. I was about to defend my PhD dissertation and finish my final case studies and medical rounds for my ND, DO. But, I found it impossible to study, read, focus or fully connect with my patients because of the hearing aid I was issued. During the middle of facilitating a therapy session, I yanked the hearing aid out because not being present and connected with a therapy patient is simply not okay. I've tried putting it in a few times since then and it sounds like the world is crashing around me. It literally makes me anxious and so frustrated. Depeche Mode was correct: Enjoy the Silence.
This makes sense if you think about it. I was born with the ability to hear and it's scary to imagine a life without that ability. Someone who is born deaf or been deaf for many years would face many struggles in adapting to hearing for the first time. Also, the therapy session was well written and it scared me lol. The therapist was basically warping into my therapist in front of my eyes with those questions
Yes it was like the therapist in a situation where his patients didn’t speak English he was overwhelmed - so for a moment it was like roles were switched and he could see the world through her eyes.
So weird seeing Lauren on TV, me and her share a cousin, I haven’t seen her since 2015 at our cousin’s wedding, but I remember hanging out with her two adorable sons. I wonder if we’ll ever see each other again.
@@Courtneybenson907Wait your cousin's with Lauren? That's cool I guess I'm just a bit skeptical because alot of people like to lie about being related to a famous person just to get attention or likes. But I think you're genuine and I hope you guys see eachother again.❤🎉
@@Your_fav_unbothered_diva She is not my cousin, me and her share a cousin through marriage, allow me to explain. My grandmother has a brother, Mark, he has a wife, Jayne, they are my great uncle and aunt by marriage. Jayne has a sister named Shelly, Shelly has a son, Douglas, who is married to Lauren.
I worked with the coolest guy ever. He was born deaf and his parents forced him to get the implants. He absolutely hated them and the noise. According to him they just didn’t want to learn how to sign. As an adult when the doctors told him he would need another surgery or the implants wouldn’t work anymore he chose not to it. Still think he’s awesome.
As someone who is on the spectrum, even I still get overwhelmed when there is too much sound. So I can definitely understand how she is feeling. Even after 9 months, her being overwhelmed after living her whole life deaf is still going to be difficult.
I’m on the spectrum, too, and there have been times I’ve wished I could temporarily make myself deaf. I don’t think I’d ever be able to adapt to hearing as an adult if I’d been deaf my whole life. I’m sure the sounds through the implants sound a bit unnatural, too, which can’t help matters.
@@aliceramdom.s what does that have to do with anything? Why would you reply that way to someone who opened up about their own real experiences? Also, there are real people with experiences like the ones in the episode.
That was beautifully and sensitively done. In my opinion, it goes to show, once again, that there's no standard, cookie-cutter decision that fits everyone. What sounds right and natural to a hearing person may not work well with how a deaf person chooses to experience their world. Very well done indeed.
Well I guess for someone who has lived in silence for most of their life and suddenly able to hear sounds they never had before, it would be scary, uncomfortable and an awful experience to have. Probably why they always try to install those implants when they are children. I don't blame this character for not liking the ability to hear. It's the same for anyone who has have hearing all their life and suddenly unable to. It's not for everyone. Deafness is an identity, not a disability.
Deafness can be part of one's identity but it is still a disability. (Im hard of hearing) By saying it isn't a disability, it's denying the fact that deaf and hard of hearing people need help sometimes in order to function in the world. Deafness is already treated like a disability that isn't "as important" as other disabilities.
i feel like they didn't try to introduce sounds slowly move to a quieter place and let the patient heal. being throw into a concert when you were in a quiet room is very disorienting.
@@user-gk7dn3ts1q I was born hearing impaired in 1969. Being deaf is an identity in many ways. The loss of hearing defines how we interact with others and how the world see us. Growing up in the 70s and 80s was filled with discrimination, ridicule and hate. Because I am deaf! Our experiences whether hearing impaired or totally deaf does identify ourselves. It is an impairment/disability but it is also who we are as people. Except for my family and close friends, the most comfortable I am is with other deaf folks.
When my son was little, he couldn’t hear a thing because he had fluid in his ear. He had to put drains in in order for him to hear. I remember the first time he heard a sonic boom he was amazed now more than 25 years later he’s lost his hearing because of I don’t wanna go into it most of the time he can’t hear people the one ear he can hear from he has headphones on full blast so he can hear the music. He says he doesn’t wanna live if he can’t hear the music so he knows what it’s like not to be able to hear in contrast myself what she was experiencing in the park and how I experienced the world it often is very overwhelming for me because I hear every single noise, including the ones people don’t hear well most people don’t hear I was tested for it because the teacher thought I was deaf and it turns out I have hearing that is abnormally imagine everything around you being on high volume all the time you can hear the buzzing sound from the electricity going through wires above your head or around him you can hear the sound of somebody going to the bathroom whether it’s in the building or even four houses away. It doesn’t make any difference. I like my new headphones because they cut out the sound almost altogether, which kind of makes me deaf while they are on me. But sometimes they give me a tremendous relief so I know both sides of this coin and I don’t blame her for liking the silence.
Cochlear implant’s are a great invention, device to help people hear. But it is up to the individuals, obviously all of the noise of the world would be frightening for someone who has never heard anything before. We always hear the happy stories of implants, and this storyline obviously shows the opposite. Brave to subject yourself to surgery to get the implants, then to a second to have them removed.
As an ASL Medical Interpreter, physically, this is far more common than one might think. Many times when an adult gets a cochlear implant it doesn't work as well because they have already finished growing. You will find far better results with children. Also, in general, it is a LOT more difficult to have cochlear implants removed. In fact, a lot of people who want them gone have to just take the outer piece off, so the implant is "disconnected", but they will have to live the rest of their lives with it. Many times the only way they can get the surgery approved by insurance is if they are in danger medically because having it put in is considered a "quality of life" sort of deal - like an amputee getting a prosthetic, but taking it out is considered an "elective" surgery. It's ridiculous, I know, but sadly that's the way it is. As for emotionally/mentally, this is also far more common with adults. By now, this woman has already integrated into the Deaf Community where there is a huge stigma about cochlear implants. Many people in the Deaf Community take pride in being Deaf - as they should - so seeing one of their own getting an implant is sort of like getting stabbed in the back. You chose to join their world and leave ours, the one you were born and raised in. In serious cases, some people have literally been shunned from the community all together. Now, this isn't true for the entire Community, of course, but this is New York we are talking about. They are very close to one of the largest and strongest Deaf Communities in all of America: Rochester, NY. That is an old and strong community where Deafness is a *huge* thing. It is *so* important. The Deaf Community has gone through hell and back, and they still have to deal with so much discrimination, especially in the work force, so they are very tightly knit. Everybody knows everybody, or at least know mutuals of everybody. I can understand the shock this woman must feel, the anxiety and overstimulation, all of it, but as Dr. Frome briefly mentioned, there is that sudden disconnect from her entire culture and by extension her identity. This show actually represented this situation incredibly well and I am even more surprised that they got the ASL down pat! It was incredibly accurate and in the correct grammatical structure and everything! Also, I just recently read that they are bringing an actual Deaf Actress into the permanent cast! She is incredible and will be a surgeon. Sandra Mae Frank was in the Deaf West Theater group, too - think Broadway, but Deaf. I am so excited for the Season 4 premier this September!
I’m not surprised they got the ASL right. The Deaf actress they used, Lauren Ridloff, is a well known professional. If they hired her they would’ve also hired an ASL dialogue coach and consultant. She’s definitely famous enough to make that a requirement of her participation (if the production team wasn’t already planning to get one.)
There were still many problems with the episode that was glaring to many. A few things I noted, She was showing visible signs of pain during the Audiologist testing yet nobody noticed? Ummm No. She had the implants for 9 months yet didn't attempt to voice yet, even to her wife? (I know the actress is really Deaf but it takes away from the authenticity of what WOULD have been happening in real life had she really had CI surgery. The fact that she would have shut them off and put them on their charger every single night yet was so overwhelmed by the sound that she wanted surgery to remove the internal portion without even considered just not wearing them when she was overwhelmed or didn't want to hear her wife speak or listen to music etc... nope, immediate invasive surgery needs to be scheduled that day...... Being a hearing person in the Deaf community I am amazed see "Deaf Proud" people belittling their Hard of Hearing brethren (who ARE Deaf once they shut off their aids). With profound Deafness being only about 5% of the population you'd think they'd want a stronger inclusive community but some don't.....
The irony of the point that that "old" deaf community that you mention has dealt with discrimination, only for them to discriminate against over deaf people all because they want to try to be able to fucking hear. Only genuinely disgusting individuals try to criticize and ostracize another person for wanting to do everything they can to overcome their condition, mentally OR physically.
She doesn't need to remove the implant. She can remove the external microphone. Without it, the sound processor can't stimulate the auditory nerve in the cochlea.
I'm really sensitive to sounds for other reasons. That one scene on the bench was way too relatable. Sometimes noise just presses on you and silence is a relief.
I totally get why she made the decision she made but I’m wondering are there options to gradually ease into it? maybe it would have been helpful to use noise canceling ear muffs and gradually go down from hearing nothing to hearing some sounds until she adjusts. This has got to be so jarring for someone who can’t hear anything to hearing it all at once.
There are also all kinds of special earplufa filtrating the most annoying/distressing sounds out or lowering the volume without the weird feeling of noise-canceling headphones. Shame they didn't show any of that there. Plenty of people would use it if they knew it exists.
You'll have to look up what a Cochlear Implant looks like. It doesn't go in the ear, it goes behind the ear. 1/2 of it is surgically implanted inside the skull behind the ear, there are electrodes surgically implanted into your Cochlea behind your eardrum THEN there is a microphone receiver the goes on the outside of your skull and is held in place by a strong magnet (and a clip around your ear. Headphones wont work with this device. But you know what will? Simply turning (taking) it off. She would ALWAYS take them off every single night to recharge anyway and would have known she didn't need the dangerous surgery to experience silence again. she simply need to choose not to put them on in the morning and she'd be exactly as she was before she received the implants the first time.
I found this quite easy to understand. I experienced sensory overload the first time I visited Bangkok, Thailand. It was the kind of discomfort you could live with for a while, but with time it became maddening. Not "angry" mad, but "insane" mad. I had to get away.
I'm pretty sure there are implants that can be turned on and off somehow similar to a hearing aid, which the doctor was about to bring up, then the show conveniently ignored it. Then she could just use it when she needs or wants it, such as approaching a railroad tracks. It would be absurd to reject the option altogether.
She is accustomed to living without hearing. She'd be able to feel the vibrations of a train approaching easily. It only seems absurd to those of us who have only known how to rely on our hearing for such things.
It’s not ‘absurd’ to reject cochlear implants. I have friends who turn their implants on and off. They do that because it’s the best option for them, but it can be difficult sensorily. It isn’t as simple as you’ve made it out to be. Going from being able to hear almost nothing to being able to hear a great deal - all the background noises, all the annoying sounds of everyday life, many voices all at once, loud noises - isn’t a trivial thing. It can be overwhelming. But disregarding that, Deaf culture and community is deeply important to many deaf people, and hearing people don’t often understand that. Choosing to reject cochlear implants really isn’t absurd. It’s just a medical and personal choice, and a neutral one at that. Not good or bad. Really recommend reading about deaf people’s experiences and their culture.
@@im7680 It's still somewhat selfish. Sensory disabilities make a person more dependent on others. Disabled people today take for granted that modern society at least in first world countries has all sorts of amenities that make being deaf more manageable. Even a hundred years ago a deaf person would be unable to enjoy most of the entertainment industry, or even speeches, because it would be live performances without any captioning or interpreters. A blind person would be even more selfish, since still outside of cities being blind pretty much keeps a person homebound without assistance in many cases; they might be able to use a seeing eye dog, but that's still dependent on others training those dogs, and it's a limited supply.
I think if you've never heard sound before, it'd be better to stay in a rural area for a couple weeks. You could adjust more slowly, you'd have to have the vacation days from work to do it so that's a downside, but it'd be better than going from nothing to city noise.
you know i can understand a bit. I get so overwhelmed when there is -to me- too much noise, even if for people it's normal amount and they don't notice it. this is why i hate being near place where there is lots of people. sound hypersensitivity sucks can only imagine how much worse it must be for someone who only ever heard silence then be forced to hear everything at once, it would drive anyone nuts
I have been able to hear my entire life and I flinched at what Margot was hearing from her implant. Each individual deserves the right to determine how they live their life, including how they handle their disabilities.
This is how I feel about my eyesight. My fiance keeps trying to push me to get corrective surgery, but I completely refuse. I was born nearly completely blind in my left eye. I grew up with it called a "lazy eye," and only recently discovered that was incorrect. My left eye is a copy of my right in every way. They both look the same outside and inside, and both are healthy. The issue is my brain. My brain never developed in the womb for sight in my left eye. From birth, I have only ever been able to see from a small sliver in the very left corner. My sight there is blurry, so I can't discern the shape of objects, people, etc. It's enough for me to still be safe on my left side, to not be completely "blind sided" by danger, so where's the harm of not having sight? My right eye sees perfectly. I do have a stigma, as does literally everyone in the world anyway, but I'm able to easily function with my sight and glasses. There's no pain or lack of health based on the mythological "strength" of your eye that's been proven false. So why would I need to change something about myself that I don't feel is an issue? If it doesn't impact my life in a negative way, why change? There is no benefit to seeing with both eyes, anyway. You'll still see the same amount, which is only what's in front of you. I don't magically gain eyeballs in the back of my head to gain full sight around me, so why care? You should never feel like you have to change something about yourself just because some people claim it's an "advantage."
“You’d still see the same amount” what? Are you joking? Even if you somehow didn’t know what depth perception is, logically you’d realize you’d be able to see more with another working eye. You said you can’t discern shapes, now you’d be able to. Biggest thing tho is the depth perception. And you aren’t going from nothing to a new sense like in the show, just improving your existing eyesight, and yes, seeing more. Ask you’re wife to close one eye and ask her about how much less she sees.
Cities are loud places it must be strange going from quiet and nothingness to loud banging children screaming, and cars and people yelling whether good or bad.
This reminds me of my developmental psychology class. Going through the critical period in your development (birth til around 23-25) without being able to hear makes it very hard to adapt to being able to hear for the first time.
I thought that if you had one of these, all you would have to do is take off the external unit. The Miss America winner who was deaf, who got one of these after having children joked that if they were being noisy, rambunctious, or irritating, she could just turn the bloody thing off and poof, instant silence.
The problem is she lives in a busy city area and probably constantly bombarded with noise. Even regular people go through this, I can’t imagine for someone who was deaf
Cochlear implants don't cure being Deaf. They don't make Deaf people hear sounds like hearing people hear sounds. It all sounds very robotic and is hard to learn how to tune, especially if you've never experienced much sound before(not all Deaf people have total hearing loss, but getting the implant actually takes away all your hearing completely). The part of your brain that is meant for sound isn't active for interpreting sounds, usually it will take up the job of another one of your senses. So its no wonder why a Deaf woman who has been Deaf her whole life hates the implants because she's getting bombarded with robotic, scary, loud, and unintelligible sounds. It probably would cause lots of migraines too from the brain being forced to experience stimuli that isn't isn't wired to handle. Also, as others have said, you can just remove the outer device (its a magnet that attaches to the metal plate in your head)to disable the implant, you don't have to have the implant surgically removed.
This is correct. I have grown up with my right implant, my left was implanted 20 years later. It takes patience, training and alot of work to get to that point. I have encountered many people in their 30s get their implant and get nothing from it because their brain was never stimulated with sounds.
Same with hearing aids right? Tell me if this is correct please? It doesn't amplify sound or make it clear? Asking because I had a deaf friend in high school he couldn't hear very much even with his hearing aids so I was wondering why everyone thinks of hearing aids or cochlear implants as miracle tools it pissed me off so much I just wished the coach would have listened to him even with his hearing aids he was still very confused I explained the science of hearing aids to the coach and he was not having it he just looked at me weird I was trying to advocate for my friend who is being told by someone who obviously has not experienced what he has that he can still hear even if he didn't have his hearing aids on it was complete BS I think about him till this day and I hope he is doing all right that coach should seriously do more research I'm sorry this is long I'm trying to learn all I can and I needed to rant a little the coach was talking over a loudspeaker by the way he kept calling his name and saying stuff like I know you don't have your hearing aids but I know you can hear me like what the hell was he on?! So because the coach was being an ignorant butthole I had to get my friends attention and let him know that the coach was asking for him after that I called the coach over and just went off on him I was so angry at how my friend was being treated hearing aids and cochlear implants are not miracles there needs to be more education on stuff like this
@@cuteizombi6946 how hearing aids work is for example, if someone has 20% of hearing, the hearing aids only make that 20% louder, it cannot replace the 80% he is missing so he will continue to have trouble hearing. The hearing aids are only to help him with the hearing he still has, it doesn't recover full 100% hearing that Cochlear implants allow. For example, when I was little, I could hear low frequencies but not high frequencies, so when I had hearing aids, I could hear my dad clearly but not my mother so I would have to put in extra effort and it was very frustrating. Cochlear implants are not hearing aids, they are implants that have microphones to take all 100% sound and take it straight to your working hearing nerve or have an electrode replace the Cochlear inside your head responsible for your hearing, if it's broken, the electrodes replace it and do the job for it, so when the processor (worn on the outside of the head) picks up sounds, it sends it to the electrodes instead and they allow you to hear. So if a person only recently lost their hearing completely they will get 100% sound back, but if someone has never heard voices or sounds in their life, unfortunetly their brain will have no idea what to do with the sound it's getting and an implant may have very little or no effect at all. Every single person is different, and it all entirely comes down to wether the brain is going to recognise some or all hearing signals that the Cochlear will give it. I was extrememy lucky, I had 5% of hearing in my left hear for 20 years, when I got implanted they told me not to expect anything at all, but I achieved 86% in six months only because my right ear went through the entire experience when I was young and it taught everything to my left side as if the left side of the brain was cooperating with the right, it shocked my doctor's, this is only a 2% chance and I was put in of 5% of people who have had achieved this. It's not easy work. People with hearing aids or Cochlear implants, whether they are struggling or not should not be ignored or put down for what hearing and abilities they have. There are aids, note takers, even if you want, you can share notes with your friend, that's one of the best help you can do. I've had aids growing up and I'm forever grateful to them.
@@KazukiMatsuoka thanks I didn't see my friend again after I graduated from high school I miss him so much and I still think about this particular incident a lot he was running laps I remember hearing the coach's voice trying to get his attention but of course he couldn't respond I was sitting on the bleachers watching this unfold after what seems like the 10th time of me saying that's not how this works he can't hear you I lost it everything that I was trying to say went ignored I had tried to be polite before then but after I kept being ignored I saw red I called my friend over asked if he was okay burst into tears and went off on the track coach remembering how it felt to not be listened to and to not be taken seriously having gone through a form of discrimination myself that stuff really eats at you and he seemed like a really sweet guy I wanted to let him know that someone was listening someone did take him seriously and I guess this was my way of doing so? Maybe I could have handled it better but it all happened so fast and I just couldn't stand seeing him being treated like that this had been going on for a while at first I was afraid to say anything because I was scared of making a fool of myself but he appreciated it more than anything and he understood that I was going through something myself
Sensory overload! Nobody knows it until they know it... and for Co hlear you can't wear noise canceling anything. You can only take the magnet off and deal with the beeping.
You're the only comment I have come across that has stated that she had a sensory overload. I put in mine that it seemed to be a mix of sensory overload and panic/anxiety attack. No one else has brought that point up. From what I see, they didn't slowly introduce her to sounds which caused the sensory overloads.
I read the comments, I understand the point of view of the deaf woman in the video, but I still find her strange. With some effors and concentration she wouldn't think of other people's thoughts as "distractions". This love of silence is at a whole new level.
On a much smaller scale, this reaction comes with new hearing aides. When I take them out it feels like someone put a heavy blanket over me. And I have always been able to hear; I can’t imagine having never heard at all and suddenly being thrown into the cacophony of city sounds.
I am not as profoundly deaf as this lady but, I am often happy to have days where I can shut off and not have to where my hearing aids. The brain needs to calm down from sensory overkill.
It surprises a lot of regular hearing people, but most people that are deaf don't want to be able to hear. Most of the time, they're fine with being deaf because that's the only thing they've known. Its normal for them.
I'm not saying I want to be deaf. But, if my entire world had been silent for most of my life and then suddenly it wasn't anymore, I think I might feel the same way.
most deaf ppl don’t really see deafness as a disability it’s understandable that she’s uncomfortable and doesn’t want to keep the implant anymore she realized that it’s more of burden and isn’t rlly helping
So I just watched a video about Cochlear Implants after watching this (link at the end). As it turns out, they aren't perfect at replicating the sounds of the real world. They aren't good at replicating pitch and timbre, so all it's really good for is interpreting what someone is saying in a 1 on 1 conversation. They aren't very useful when multiple people are talking in a crowd either. So her experience with environmental sounds and her complaints about singing and music among other things totally makes sense. They work very differently from hearing aids. Link to the video by SciShow: th-cam.com/video/lzgQrHFDNLE/w-d-xo.html
if you wanna know what it's like to have an auditory and/or sensory processing disorder, the scene with her in the park hearing every single sound at once is very accurate. cochlear implants aren't just internal though, they have an external piece that attaches to a magnet placed under the scalp that transmits the sound to the internal receiver. if you've ever seen someone, especially an adult, wearing headphones in public, or if you've ever wondered why noise cancelling headphones are so important for autistic people, it's because unlike with a cochlear implant, we can't take our ears off or turn the volume down on the world. when I was a kid, I used to wish I had been born deaf because all I knew was that the world was too loud, it made too many sounds. now I know it's both an auditory and a sensory processing disorder, I can't filter out "unimportant" sounds like the sounds of traffic or the fridge being on or the person texting in the seat next to me. seeing someone else experience the same thing I do, however temporary, would've been HUGE for 8 year old me to see
Ok. I would like to say, I am a hearing person. I have always been a hearing person. To me it seems like a mix of sensory overload and a panic/anxiety attack. (I have had all three so I understand those feelings) It doesn't seem like the other can understand what she feels in those moments. It seems like it becomes too much and she can't take it. I feel bad for her in those moments.
My great grandma got hearing aids after her hearing became week. She hated them. I tried them to find out the issue. And goddamn it everything was so loud and overwhelming no wonder she hated them. Her brain got so tired separating the sounds.
I have a vision impairment and I can tell you this much the sounds I hear drives me nuts. I had eye surgery and I one person say that I should not hear as much as I do. I told the person it helped my eyes not ears. Sigh I understand how she feels because the sound is an overload to her system
This is me, even tho I was born hearing I wish I was often deaf. This world is too noisy for me and I live in one of the biggest cities in the world. 24/7 stimulation
I was born with almost 72% hearing loss. I was eight or nine when I finally received hearing aids after a test at school sent me home with a note that said, and I quote, "Why doesn't she have hearing aids?" It's because at the time, they didn't do hearing tests. They thought I had anything from autism to mentally ill markers. I wasn't progressing the way I should. I didn't speak other than mumbled and inaudible sounds. When I finally had them, an airplane passed over my house and I was on the floor in fear with some thought that maybe we were under attack. I had anxiety leaving my house and going to school. I'm 29 now and wear hearing aids, and can speak clear sentences. Some days are still hard. There are some sounds that make it feel like there's a bomb going off in my head -- but I love being able to hear my nieces and nephew's voices; and hear my cats purring. It's different for everyone.
I was born without a eardrum and i went through seven surgeries when i was 19 one after another. I have a piece of metal in my ear so when things are on i hear them higher than a normal person would hear. But when it's noisy it drives my crazy. I don't like to be around noisy places or people 😊
I couldn't imagine not even being able to hear myself breathe and then all of a sudden that nerve ending turns on. You know your body. I know being pregnant ever is not safe for me, she knew that living with the implant let on intrusive thoughts she couldn't get rid of.
If your born deaf, I can fully understand why someone would be against having an implant. This just shows how different experiences give a different perspective.
Im not deaf but when i was 16 i got diagnosed with Chronic Bilateral Uveitis (Uveitis in both eyes), I only noticed it when the sclera of my eyes was was as bloodshot and red as a stop sign, i could barely see a hand in front of my face and it felt like my eyeballs were on fire and about to fall out of my head, stepped out into the sunlight and i was closing my eyes so hard it felt like my eyes were going to be pushed into the back of my skull and my eyelids were going to curl in on themselves.. The symptoms got brought under control but usually if you get it once, you WILL get it again. In my case I already have a compromised immune system so there is nothing that can be done but treat the symptoms. Because of the light sensativity I effectively changed my circadian rhythm, Slept during the day and was awake at night. I am 100% blind during the day, cant even open my eyes if the sun is out but at night time? I can see everything. When i was 20 i got the opportunity to get laser surgery to get my pupils off of my lenses i thought i would go back to normal but everything seemed so dull and lifeless, it was like i couldnt see color anymore, i couldn't see shadows or contrast (Which is pretty big when you really enjoy painting and drawing) when i was 22 i had another flare up and I instantly knew that because when i woke up i could suddenly "See" again and my dad said he knew something changed because it was the first time he had seen me wake up with a smile on my face in a long time. going on 12 years and i refuse to have surgery again. To me the best way i can explain it is to take a bowl of fruit and shine 30 lights on it from every angle, thats how i saw things with corrective surgery, almost colorless, no shadows to speak of. now take away 29 of those lights so there is 1 light shining on it, all the sudden you can see the color in all of its vibrance, you can see the imperfections on the surface of the fruit, the shadows, and the shapes. Don't do what you think you should do for other people. Do what you think is right for you.
So happy she was able to go back to her herself and her life ❤❤️❤️ Kind of a medical question: but would there be a way to turn off the implant or disconnect it without going back under the knife? To get her relief ASAP and to minimize risk? Or at least a minimally invasive option?
I know this is nowhere near the same but my grandmother went through this when she got her hearing aids. She's a very nervous person by nature and I think that, as frustrating as not being able to hear as well is, it was overwhelming when she was able to hear better again. She usually only wears them at family gatherings or meetings now because just being able to hear everything around her stresses her out and gives her even more anxiety at this point.
serious question. Do they not make implants that can be turned off? like when my mommom gets tired of noise she just turns her hearing aids off. Then she would be able to choose when to hear. in the comfort and quiet of her home and not the overwhelming outdoors.
Honestly some days I wish I were deaf. 6 children under 12yo, and all the yelling of competition. They allnwant to be heard over eachother. It's very overwhelming some days...
CIs only work along with an external microphone and processor. You just turn that external device off or don't use it at all. You don't need a second surgery to remove the implant.
The show is trying to present a sympathetic view of someone who reacts badly to the ability that the implant provides her. The implant has not changed who she is, but she is unable to express it in another way. As an adult, she is entitled to conclude that she does not want the implants. I had a patient in my practice who is deaf and received implants as a young teen - and did just fine with them after an adjustment period. The implants are not perfect - they let her hear sounds but she still had to lip read or use American Sign Language. She communicates in ways that make her feel comfortable; it is my hope that others in personal and professional settings will accept her. A colleague of mine was tortured, ridiculed and driven out of a pediatric residency program in the 1990s because the residency director, an amoral and arrogant jerk, decided that people with disabilities should not be physicians.
I’m not deaf but I have an ex boyfriend who was born deaf. His parents got him the implant and he would cry a lot because as he explained “ the sounds are too much for me to take in, it makes me have anxiety attacks “ 😕
Im hard of hearing. My school offered hearing aids when I was a kid. I hated it. It made it harder to focus on what the teacher was saying because it made EVERYTHING louder, indiscriminately and you cant filter it the way you can with natural hearing. Its hard to explain but its not the same as hearing regularly.
My stepdad lost most of his hearing dye to and infection absolutely never used his hearing aid....he says it's the worst and not the same as hearing naturally.
I did a presentation on this actor. First Deaf superhero in the MCU, and in an interview she said that her deafness wasn't a challenge, but the ignorance of those around her is. Fucking legend
You mean she’s the Eternal with superspeed? 😯
@@stephenking5852Makari
I’m doing a presentation on her as well!
Oh my, I didn’t recognize her! I loved her in eternals.
That look on her face, one of complete relaxation and joy, when she realized her world was silent again spoke more than words ever could.
its a tv show
@@aliceramdom.s it’s good acting
@@kaylizzie7890 The actress is really Deaf though so that part wouldn't be acting. It would be normal life.
Anyway, she could have shut of the receiver any time she liked but somehow nobody in the writing crew thought of that....
@@aliceramdom.s Guess you didn't realise many events and things shown in reality TV shows are very possible in the real world, many are even BASED on real world events that have already happened. Like Chicago Fire for example, even doctor house with it's zebra's rather than horses mentality, all the diseases are real. It is why they are called REALITY TV shows, they might have unrealistic elements, but still have plenty of real elements.
@@aliceramdom.s OMG!!!!!! REALLY?!?!?!?1/!?!?!??!?!?!? WOWOOWOWO!!!
we get it
its understandable, if the implant was 9 months ago shes still getting use to sound, she was born deaf and went through her entire life without hearing a sound. this is unfortunate problem most adults go though when they get their hearing, they feel like they are a completely different person and everything is completely turned around. this is actually why most people get implants or hearing devices when they are babies or toddlers, not only for language and sound to develop but also to avoid this
Look at the relief on her face after the implants were removed. That's what she needed.
On top of hearing for the first time in NYC! That's even overwhelming to the hearing.
She really should have given it longer, it takes all babies years to adjust to their senses so it's going to take longer than 9 months. Also most implants can be adjusted or switched of temporarily, that seems safer than removing it. Especially as she said there were things she loved about it. More therapy first, to help her realize she is still the same person she was and help her cope with the new sense would have been better, then if she still hates it after say 2 years, then remove it. Regret at having given up on something too quickly can be hard to live with too, I know that from experience.
@@masonc8140 it was her decision the doctor didn’t sit there and try and tell her to try them for a little longer. Being deaf isn’t something that you need to change about yourself, if she accepts herself as a deaf individual then she isn’t hurting anyone. Why do y’all care so much about someone being able to hear?
@@LuvMePeople sadly there are people that think deafness is a disease that needs to be cured. I have two Cochlear implants, one I had since I was a toddler and another I chose for myself. There are different kinds of doctors, some that say deafness is bad, and others that will present your condition and give you options, one of those is to not do anything about it. It is a choice, sadly the mindset of people is negative. However it is the same for some deaf people, I've encountered some that think that implanted people are the scum of the earth and they shouldn't be regarded friends of their own. I have been bullied because of that, and sadly, it wasn't the same for hearing people as I have not met one that hated me for my implants, deaf kids turned out to be hateful in my encounters. Overall, it should be a choice, and the mindset that implants cure deafness is wrong because people with no hearing for over 20 years of their life actually get very little or never gain any hearing back at all. Only 5% of people have done that in Australia alone.
My partner's brother became deaf soon after birth (genetic defect) and he got implants as a toddler. For him it was terrifying hearing people talk, for the longest time he hated wearing them because voices sounded like robotic screeching. This show is fiction but not far from reality.
Now we have implants with many more channels so speech sounds very normal. The more channels a cochlear implant has the more expensive it is.
its a tv show and maybe to your partner's brother but everyone is different so not one deaf person isn't the same then the next
@@aliceramdom.s which no was trying to claim, don’t know why you felt the need to state the obvious
@@joshdeveaux6936 Because there are a lot of stupid people in this world and "stating the obvious" is quite helpful to the stupid.... ;-)
I am hearing impaired. 80% Nerve loss since birth. I wear hearing aids. I truly understand and relate to this lady. Many times the silence speaks loud volumes!!! True in the heart and actions
its a tv show
I get it. I lost a good portion of my hearing my right ear. From years of earaches as a child. The infections caused by the earaches ate away at the bone in my right ear. I think the doctors said I lost around 40% to 50% of my hearing. I tried a hearing aid. But sadly it proved to block my ability to hear rather than helper it. Making it much harder to hear anything around me. While I still struggle with hearing everything. (It's the high pitched noises I struggle to hear.) I found that its better for me without the hearing aid.
For a potential comparison for people who can't understand why she'd want to remain deaf, I can only imagine it would be something like this:
Suddenly colors and light are always blindingly bright, everything you hear sounds like the volume is at max, touching a warm mug of coffee feels like grabbing molten rock, going in a swimming pool feels like being in the coldest part of the Arctic Ocean, a mildly sweet snack tastes like eating literally sickeningly sweet icing straight from the tube, smelling some just expired milk is like being in the middle of a dump.
And you can't turn any of it off.
Thank you for speaking up about this. So many people have no idea why anyone wouldn't want to be "fixed," and all they see is people malingering or wanting to be ill or any number of extremely damaging perceptions. The reality is so far from that, and it's not at all unreasonable for someone adjusting to a new sense to be entirely overwhelmed and to want to go back to living the way they were comfortable living before.
@@yayman2538 are you trying to be smart? its a comparision
You can turn a cochlear implant off though. At any time.
As someone who wears hearing aids, I can attest to how the world is just TOO MUCH when you can hear but didn't used to hear.
except you can... just take off the receiver
My wife is an ASL interpreter. Cohclear implants are actually a taboo topic in the deaf community. When an adult gets one, they're often disconnected from their deaf friends as they're looked at as not being true to themselves and who they really are. When parents get the implants for the child, the parents are looked at as forcing a permanent life decision on their child.
The implants do not make a deaf person hear clearly. That's a myth. Most of the time, it's like your ears being under the surface of a pool and somebody trying to talk to you. This becomes a struggle for a deaf person. The deaf community steps back from them because they have the implant, but the person also is disconnectd from the rest of the world as they cannot hear clearly and is still seen as a deaf person. It can be a very lonely world when you're a piece of the puzzle with rough edges.
I'm not surprised, but at the same time it doesn't justify it. Communities, even completely benign ones with the best of intentions, often try to insert themselves into the identities of their members as "who they really are", and its members will often be open to that in their own search for personal meaning, right until the point where they are presented with options to leave. We see similar things with close-knit religious communities. With these transitions I bet people who get implants find out who their true friends are and who only stayed around because it validated themselves in their own social circles, and not liking the answer. It's a very human flaw, and I sympathise with those having to make those difficult choices.
I think that’s very sad. I hate it that people are rejected for making choices about their own bodies.
I don’t have a problem with people getting cochlear implants if they have a choice. Parents getting them for their kids tend to be different, especially when they don’t even try to learn sign. Deaf culture is real and beautiful and it’s frustrating to see parents ignore part of their child’s identity.
@Rex The Legend, unfortunately, that beautiful community also ostracizes those with the implants. A friend of mine has a daughter who is deaf. She got the implant as a child and both hearing and nonhearing communities railed against them both. Hearing, because she still relied on lip reading and ASL. Deaf, because they accused them both of denying her deafness. For a long time, she never felt part of either world. Now, she's an advocate and powerful voice for both and still gets hate from both. Yes there is beauty in both worlds, but there is also ugliness.
She should be admitted. She's cray for not wanting to hear.
I've heard of blind people getting surgeries to see and just freaking out because they aren't used to it. I guess it would be like an alien coming down and giving you the ability to sense electromagnetic waves like a shark.
Except you have the option to turn it off and on whenever you want.
@@shadowrobot7708 Yes you have. This device is called headphones. The testing centers have them so prevent noise distraction. I have used them, and they work wonders. So simple and effective.
@@lubystkaolamonola529 I was more referring to how cochlear implants can be turned off and on at will without removing them through surgery.
She should be admitted. She's cray for not wanting to hear.
Lauren Ridloff is an INCREDIBLE actress.
Honestly being able to hear when you weren’t capable of it, sound so overwhelming, like she said she understands the world in a different perspective. And it dosent have to be bad to gain this ability, but the thing is, we can hear and imagine a world without sound horrible because we are loosing something, but she never “lost” something, she just never have it. And gaining something new doesn’t mean you are gonna like it.
I think the problem with this episode is that you can turn off a coclear implant, she can get the so desired silence, and she can "train" herself to "endure" the noise by turning the implant on for 5 minutes at a time and slowly extending the periods of sound until she no longer needs to turning it off.
And it's something that is usually done, with all implants, exactly because is not easy to get used to the new normalcy
its a tv show
@@aliceramdom.s Ok, after you spamming "it's a tv show" dozens of times it really is getting irritating.....
This is kinda why I'm all about this kind of tech being used for restoration rather than endowment. If you've never seen or heard your entire life, adjusting to an entire new sense might be more of a problem than a benefit. Some people might dig it, others not so much, so it should be a case-by-case thing. And the ability to turn it off at will would definitely be a must for overstimulation.
I like the way you worded that. "Restoration vs Endowment"
just adding a comment to put yours into the spotlight- TH-cam's algorithm can jump into a very deep lake. Thanks for the clarification :)
So you shouldn’t heal if someone was born with a defect that effects their everyday life.
I know what you mean but I don’t think there’s more cons then pros
@@myacole1272 there's been people who developed severe mental illness after having their sight restored. A guy who had been blind most of his life became suicidal and depressed after getting surgery. He even wrote a book about it.
@@myacole1272 Again, it depends on the individual case. Added to which, I also advocate an on/off switch just to give the person the option. After all, if the woman in this episode could turn her implants off at will, she might not have been so distressed.
As a hearing person I may not be able to understand fully but I understand to a degree. As with sensory issues I wear headphones to limit or block sound. And suddenly taking them off and being able to ear clearly makes a sense of panic arise in me. Yes I can't hear well or at all with them all but I enjoy life through different means like feeling music through beats and vibration. You don't have to hear to communicate or enjoy life.
It's like culture shock. I would feel very thrown off if my autism and mental illnesses suddenly disappeared.
Again disability is not a culture. You need to get rid of your autism and mental illnesses. That is the goal of mental health.
I dont think I'd feel that with my mental illnesses BUT I would probably feel that with my autism
I'd feel like wanting to live if mine suddenly disappeared
@@sporks3256 sorry you're struggling. I am ok with my autism, it gives me joy as well as difficulties but I feel held back by my mental health issues.
@@harriet2114 appreciate your words. It's not so much as autism being the main problem, but the anxiety, adhd and ptsd combined with that, as you said, can hold you back. Sometimes so much so, that it can feel impossible to escape. Of course, there's always hope for coping and thriving better, just takes time and learning more about yourself. I just feel like a weird imploding neurotic creature sometimes and feel like id thrive a lot better without that feeling personally. 😅
when I finally got my hearing aids 6 years ago after struggling for a long time, I felt like a different person so happy and my confidence grew, an implant is an option for me but to be honest I'm terrified! ....as long as my hearing aids let me hear I'm happy
sometimes I feel overwhelmed by sounds especially outside....retiring to bed removing ha's reading a book, can be bliss 😏
Are you able to turn the volume or sensitivity down with hearing aids? Im not too sure on how they work
I saw a TH-cam video from the Swiss channel rts "signes" in which they interviewed deaf people which decided to stop using their implant (not removing them ) it can be very difficult too get used of the sound arround when you have been living with no sound at all for so long
@@bonD6002 yes you can i have an app on my phone for mine 🙂
I used to have one hearing aid on my left side with an implant on my right, I'm so glad for you that you're happy with what I got. Unfortunately my left side became completely deaf, which meant that my hearing aid couldn't help me anymore, it only works on hearing you may have left so if there was nothing to pick up on, it was useless. I was scared at first, but I got implanted shortly, it works on an app just like my other implant. I gained back my hearing up to 86% in six months, I was estatic. You never know what results you'll get but it all depends on the person. However there is nothing wrong with sticking with what you are happy with :)
@@KazukiMatsuoka that is fantastic! very happy for you! 👍🙂
There was a Medieval physician whom, when he lost his eyesight, declined an ocular surgery: “I have seen enough of this world and do not need to endure a surgery to see any more of it.”
I can imagine how the deaf women with the implant must have similarly felt about being able to hear for the first time.
What type of ocular surgeries were they performing back then
@@rdgloveshouse, probably cataract surgery.
Yeah, he was just smart. I'm pretty confident that not many ocular surgeries in Medieval times were successful and he likely saw patients who suffered the rest of their lives afterwards so said "no thanks to that"
Beautiful moment at the end when she wakes up and there is no sound 💗
I like that they covered this very realistic topic, there are a lot of deaf people who have gotten CI's that have really struggled with it, and even hated it. But it really doesnt seem like they did any research on deaf culture or cochlear implants for this episode outside of knowing that this is an issue.
exactly. They got too many things wrong with this episode including the fact that she simply didn't need to put the processor/receiver on in the morning to experience silence. After all, she didn't sleep with them on and would have known that every night she was hearing blissful silence.
The conversation in the therapist's office (there are moments when it focuses on the doctor so things get missed)
Tori: Why won't you tell me what's wrong?!
Margot: You don't want to hear it!
Camera loses focus
Tori: But what?
Margot: I get angry.
Tori: I support you!
Margot: You like to remind me...
Camera again
Tori: I'm trying, but I'm tired
Margot: When you do something for me, you act like I'm weighing you down. I'm not a burden!
"Why do you want the implant?"
Margot: I wanted it for you.
I'm blind, couldn't see the dialog between them. thanks for translating :)
It's so relatable, I think most disabled people feel like this. We're fine, until the rest of the world's pity makes us feel simultaneously guilty and degraded. Feeling less and mistaking certain limitations begot of ableism as personal incapability and incompetence, and guilty because others 'have' to do things for us because of it while we forget that, much of the time, we don't even ask. We don't ask because we're fine, we can do much of the things that's done for us. "But they're just trying to help, of course." We need to learn that confidence doesn't show itself when we take on the world. Living life is a normal thing to do. Confidence rises when we face off with other people. When we say, "I am fine. I can do this. Let me show you what I am capable of. Let me be me, with my own way. Let me live."
Tyler Labine has come so far since BREAKER HIGH as Jimmy!! (1998) 😅😅😅
I totally get this. I'm deaf in my left ear due to decades of horrible migraines. It happened so slowly that I didn't fully understand what was happening. It just felt like the music in bars was louder and my friends spoke more softly. I'd scream, "what?" and we'd move on. I started seeing a neurologist because I developed nerve damage in my thigh.she ordered a brain MRI scan as part of standard care. The amount of gray matter in my brain was epic. I do have c-PTSD but she said this was excessive for even the most engaged case of PTSD. She sent me off for a hearing test and I found out that I was deaf in my left ear. We all assumed that this deafness must be holding me back in various ways. I was about to defend my PhD dissertation and finish my final case studies and medical rounds for my ND, DO. But, I found it impossible to study, read, focus or fully connect with my patients because of the hearing aid I was issued. During the middle of facilitating a therapy session, I yanked the hearing aid out because not being present and connected with a therapy patient is simply not okay. I've tried putting it in a few times since then and it sounds like the world is crashing around me. It literally makes me anxious and so frustrated. Depeche Mode was correct: Enjoy the Silence.
This makes sense if you think about it. I was born with the ability to hear and it's scary to imagine a life without that ability. Someone who is born deaf or been deaf for many years would face many struggles in adapting to hearing for the first time.
Also, the therapy session was well written and it scared me lol. The therapist was basically warping into my therapist in front of my eyes with those questions
Yes it was like the therapist in a situation where his patients didn’t speak English he was overwhelmed - so for a moment it was like roles were switched and he could see the world through her eyes.
I hate hearing everyone's crap too.
So weird seeing Lauren on TV, me and her share a cousin, I haven’t seen her since 2015 at our cousin’s wedding, but I remember hanging out with her two adorable sons. I wonder if we’ll ever see each other again.
You will
Don’t you worry
🥹🥰🤗
@@nloubriel2336 The only thing I could think of is at funerals.
@@Courtneybenson907Wait your cousin's with Lauren? That's cool I guess I'm just a bit skeptical because alot of people like to lie about being related to a famous person just to get attention or likes. But I think you're genuine and I hope you guys see eachother again.❤🎉
@@Your_fav_unbothered_diva She is not my cousin, me and her share a cousin through marriage, allow me to explain. My grandmother has a brother, Mark, he has a wife, Jayne, they are my great uncle and aunt by marriage. Jayne has a sister named Shelly, Shelly has a son, Douglas, who is married to Lauren.
@@Courtneybenson907 Oh cool. Family trees are soo cool. I hope you guys do see eachother more often in the future.
gotta love the kid just banging the rock against the tree for no reason xD
🤣
I worked with the coolest guy ever. He was born deaf and his parents forced him to get the implants. He absolutely hated them and the noise. According to him they just didn’t want to learn how to sign. As an adult when the doctors told him he would need another surgery or the implants wouldn’t work anymore he chose not to it. Still think he’s awesome.
As someone who is on the spectrum, even I still get overwhelmed when there is too much sound. So I can definitely understand how she is feeling. Even after 9 months, her being overwhelmed after living her whole life deaf is still going to be difficult.
Sound can be incredibly painful when it's unwanted and you can't make it stop.
its a tv show
@@aliceramdom.s woah really! Did you also know that the sun is hot?
I’m on the spectrum, too, and there have been times I’ve wished I could temporarily make myself deaf. I don’t think I’d ever be able to adapt to hearing as an adult if I’d been deaf my whole life. I’m sure the sounds through the implants sound a bit unnatural, too, which can’t help matters.
@@aliceramdom.s what does that have to do with anything? Why would you reply that way to someone who opened up about their own real experiences? Also, there are real people with experiences like the ones in the episode.
That was beautifully and sensitively done. In my opinion, it goes to show, once again, that there's no standard, cookie-cutter decision that fits everyone. What sounds right and natural to a hearing person may not work well with how a deaf person chooses to experience their world. Very well done indeed.
Well I guess for someone who has lived in silence for most of their life and suddenly able to hear sounds they never had before, it would be scary, uncomfortable and an awful experience to have. Probably why they always try to install those implants when they are children. I don't blame this character for not liking the ability to hear. It's the same for anyone who has have hearing all their life and suddenly unable to. It's not for everyone. Deafness is an identity, not a disability.
deafness is not an identity no condition is
Deafness can be part of one's identity but it is still a disability. (Im hard of hearing) By saying it isn't a disability, it's denying the fact that deaf and hard of hearing people need help sometimes in order to function in the world. Deafness is already treated like a disability that isn't "as important" as other disabilities.
i feel like they didn't try to introduce sounds slowly move to a quieter place and let the patient heal. being throw into a concert when you were in a quiet room is very disorienting.
@@user-gk7dn3ts1q tell that to the deaf community. It's an identity, even if we, who can hear, cannot undersstand that concept.
@@user-gk7dn3ts1q I was born hearing impaired in 1969. Being deaf is an identity in many ways. The loss of hearing defines how we interact with others and how the world see us. Growing up in the 70s and 80s was filled with discrimination, ridicule and hate. Because I am deaf! Our experiences whether hearing impaired or totally deaf does identify ourselves. It is an impairment/disability but it is also who we are as people. Except for my family and close friends, the most comfortable I am is with other deaf folks.
When my son was little, he couldn’t hear a thing because he had fluid in his ear. He had to put drains in in order for him to hear. I remember the first time he heard a sonic boom he was amazed now more than 25 years later he’s lost his hearing because of I don’t wanna go into it most of the time he can’t hear people the one ear he can hear from he has headphones on full blast so he can hear the music. He says he doesn’t wanna live if he can’t hear the music so he knows what it’s like not to be able to hear in contrast myself what she was experiencing in the park and how I experienced the world it often is very overwhelming for me because I hear every single noise, including the ones people don’t hear well most people don’t hear I was tested for it because the teacher thought I was deaf and it turns out I have hearing that is abnormally imagine everything around you being on high volume all the time you can hear the buzzing sound from the electricity going through wires above your head or around him you can hear the sound of somebody going to the bathroom whether it’s in the building or even four houses away. It doesn’t make any difference. I like my new headphones because they cut out the sound almost altogether, which kind of makes me deaf while they are on me. But sometimes they give me a tremendous relief so I know both sides of this coin and I don’t blame her for liking the silence.
The silence at the end was amazing
Cochlear implant’s are a great invention, device to help people hear. But it is up to the individuals, obviously all of the noise of the world would be frightening for someone who has never heard anything before. We always hear the happy stories of implants, and this storyline obviously shows the opposite. Brave to subject yourself to surgery to get the implants, then to a second to have them removed.
As an ASL Medical Interpreter, physically, this is far more common than one might think. Many times when an adult gets a cochlear implant it doesn't work as well because they have already finished growing. You will find far better results with children.
Also, in general, it is a LOT more difficult to have cochlear implants removed. In fact, a lot of people who want them gone have to just take the outer piece off, so the implant is "disconnected", but they will have to live the rest of their lives with it. Many times the only way they can get the surgery approved by insurance is if they are in danger medically because having it put in is considered a "quality of life" sort of deal - like an amputee getting a prosthetic, but taking it out is considered an "elective" surgery. It's ridiculous, I know, but sadly that's the way it is.
As for emotionally/mentally, this is also far more common with adults. By now, this woman has already integrated into the Deaf Community where there is a huge stigma about cochlear implants. Many people in the Deaf Community take pride in being Deaf - as they should - so seeing one of their own getting an implant is sort of like getting stabbed in the back. You chose to join their world and leave ours, the one you were born and raised in. In serious cases, some people have literally been shunned from the community all together.
Now, this isn't true for the entire Community, of course, but this is New York we are talking about. They are very close to one of the largest and strongest Deaf Communities in all of America: Rochester, NY.
That is an old and strong community where Deafness is a *huge* thing. It is *so* important. The Deaf Community has gone through hell and back, and they still have to deal with so much discrimination, especially in the work force, so they are very tightly knit. Everybody knows everybody, or at least know mutuals of everybody.
I can understand the shock this woman must feel, the anxiety and overstimulation, all of it, but as Dr. Frome briefly mentioned, there is that sudden disconnect from her entire culture and by extension her identity.
This show actually represented this situation incredibly well and I am even more surprised that they got the ASL down pat! It was incredibly accurate and in the correct grammatical structure and everything!
Also, I just recently read that they are bringing an actual Deaf Actress into the permanent cast! She is incredible and will be a surgeon. Sandra Mae Frank was in the Deaf West Theater group, too - think Broadway, but Deaf. I am so excited for the Season 4 premier this September!
I’m not surprised they got the ASL right. The Deaf actress they used, Lauren Ridloff, is a well known professional. If they hired her they would’ve also hired an ASL dialogue coach and consultant. She’s definitely famous enough to make that a requirement of her participation (if the production team wasn’t already planning to get one.)
There were still many problems with the episode that was glaring to many.
A few things I noted, She was showing visible signs of pain during the Audiologist testing yet nobody noticed? Ummm No.
She had the implants for 9 months yet didn't attempt to voice yet, even to her wife? (I know the actress is really Deaf but it takes away from the authenticity of what WOULD have been happening in real life had she really had CI surgery.
The fact that she would have shut them off and put them on their charger every single night yet was so overwhelmed by the sound that she wanted surgery to remove the internal portion without even considered just not wearing them when she was overwhelmed or didn't want to hear her wife speak or listen to music etc... nope, immediate invasive surgery needs to be scheduled that day......
Being a hearing person in the Deaf community I am amazed see "Deaf Proud" people belittling their Hard of Hearing brethren (who ARE Deaf once they shut off their aids). With profound Deafness being only about 5% of the population you'd think they'd want a stronger inclusive community but some don't.....
What I couldn’t understand is why she didn’t just disable the implants
The irony of the point that that "old" deaf community that you mention has dealt with discrimination, only for them to discriminate against over deaf people all because they want to try to be able to fucking hear. Only genuinely disgusting individuals try to criticize and ostracize another person for wanting to do everything they can to overcome their condition, mentally OR physically.
She doesn't need to remove the implant. She can remove the external microphone. Without it, the sound processor can't stimulate the auditory nerve in the cochlea.
This is why you consult an audiologist for an episode about this too, lmao.
That’s what i was thinking the whole time, and ive only taken one major-related course in my audiology degree 😂
Yeah I've only seen deaf people on tv shows and even I know she just needed to remove the ear piece..
I suppose we should be grateful that this isn't as bad as the kid who managed to dig out and rip out his electrode array from his skull on House.
Lets pretend they removed it do she could feel that shes entirely without it 😅
I'm really sensitive to sounds for other reasons. That one scene on the bench was way too relatable. Sometimes noise just presses on you and silence is a relief.
I really love that this series checks so many of the correct boxes ❤
I totally get why she made the decision she made but I’m wondering are there options to gradually ease into it? maybe it would have been helpful to use noise canceling ear muffs and gradually go down from hearing nothing to hearing some sounds until she adjusts. This has got to be so jarring for someone who can’t hear anything to hearing it all at once.
There are also all kinds of special earplufa filtrating the most annoying/distressing sounds out or lowering the volume without the weird feeling of noise-canceling headphones. Shame they didn't show any of that there. Plenty of people would use it if they knew it exists.
You'll have to look up what a Cochlear Implant looks like. It doesn't go in the ear, it goes behind the ear. 1/2 of it is surgically implanted inside the skull behind the ear, there are electrodes surgically implanted into your Cochlea behind your eardrum THEN there is a microphone receiver the goes on the outside of your skull and is held in place by a strong magnet (and a clip around your ear. Headphones wont work with this device.
But you know what will? Simply turning (taking) it off. She would ALWAYS take them off every single night to recharge anyway and would have known she didn't need the dangerous surgery to experience silence again. she simply need to choose not to put them on in the morning and she'd be exactly as she was before she received the implants the first time.
I found this quite easy to understand.
I experienced sensory overload the first time I visited Bangkok, Thailand. It was the kind of discomfort you could live with for a while, but with time it became maddening. Not "angry" mad, but "insane" mad. I had to get away.
Can we just give credit to the amazing acting in this! Wow, bravo!
she's actually deaf irl. but yeah she's an AMAZING actress, i love her role in The Walking Dead and Eternals
I'm pretty sure there are implants that can be turned on and off somehow similar to a hearing aid, which the doctor was about to bring up, then the show conveniently ignored it. Then she could just use it when she needs or wants it, such as approaching a railroad tracks. It would be absurd to reject the option altogether.
She is accustomed to living without hearing. She'd be able to feel the vibrations of a train approaching easily. It only seems absurd to those of us who have only known how to rely on our hearing for such things.
People who can't hear have their other since hightened just like blind people
I'm pretty sure at some point in her life she had managed to use trains or be around train tracks with no issues thus far....
It’s not ‘absurd’ to reject cochlear implants.
I have friends who turn their implants on and off. They do that because it’s the best option for them, but it can be difficult sensorily. It isn’t as simple as you’ve made it out to be. Going from being able to hear almost nothing to being able to hear a great deal - all the background noises, all the annoying sounds of everyday life, many voices all at once, loud noises - isn’t a trivial thing. It can be overwhelming.
But disregarding that, Deaf culture and community is deeply important to many deaf people, and hearing people don’t often understand that. Choosing to reject cochlear implants really isn’t absurd. It’s just a medical and personal choice, and a neutral one at that. Not good or bad.
Really recommend reading about deaf people’s experiences and their culture.
@@im7680 It's still somewhat selfish. Sensory disabilities make a person more dependent on others. Disabled people today take for granted that modern society at least in first world countries has all sorts of amenities that make being deaf more manageable. Even a hundred years ago a deaf person would be unable to enjoy most of the entertainment industry, or even speeches, because it would be live performances without any captioning or interpreters. A blind person would be even more selfish, since still outside of cities being blind pretty much keeps a person homebound without assistance in many cases; they might be able to use a seeing eye dog, but that's still dependent on others training those dogs, and it's a limited supply.
I like this perspective!
I think if you've never heard sound before, it'd be better to stay in a rural area for a couple weeks. You could adjust more slowly, you'd have to have the vacation days from work to do it so that's a downside, but it'd be better than going from nothing to city noise.
you know i can understand a bit. I get so overwhelmed when there is -to me- too much noise, even if for people it's normal amount and they don't notice it. this is why i hate being near place where there is lots of people.
sound hypersensitivity sucks
can only imagine how much worse it must be for someone who only ever heard silence then be forced to hear everything at once, it would drive anyone nuts
Sound hypersensitivity sucks. Headphones work.
I love the ending how everything was silent
Can we just agree what a gorgeous, gorgeous actress she is. I wish we could see her in many more productions.
She’s in the walking dead and is one of my favourite characters and I love the deaf representation in it
It would be great to see a show with these characters and Dr. house
I have been able to hear my entire life and I flinched at what Margot was hearing from her implant. Each individual deserves the right to determine how they live their life, including how they handle their disabilities.
This is how I feel about my eyesight. My fiance keeps trying to push me to get corrective surgery, but I completely refuse. I was born nearly completely blind in my left eye. I grew up with it called a "lazy eye," and only recently discovered that was incorrect. My left eye is a copy of my right in every way. They both look the same outside and inside, and both are healthy. The issue is my brain. My brain never developed in the womb for sight in my left eye. From birth, I have only ever been able to see from a small sliver in the very left corner. My sight there is blurry, so I can't discern the shape of objects, people, etc. It's enough for me to still be safe on my left side, to not be completely "blind sided" by danger, so where's the harm of not having sight? My right eye sees perfectly. I do have a stigma, as does literally everyone in the world anyway, but I'm able to easily function with my sight and glasses. There's no pain or lack of health based on the mythological "strength" of your eye that's been proven false. So why would I need to change something about myself that I don't feel is an issue? If it doesn't impact my life in a negative way, why change? There is no benefit to seeing with both eyes, anyway. You'll still see the same amount, which is only what's in front of you. I don't magically gain eyeballs in the back of my head to gain full sight around me, so why care? You should never feel like you have to change something about yourself just because some people claim it's an "advantage."
What aboit tye perceptionof depth? Not that I'm arguing with your decision (far from it), just asking.
“You’d still see the same amount” what? Are you joking? Even if you somehow didn’t know what depth perception is, logically you’d realize you’d be able to see more with another working eye. You said you can’t discern shapes, now you’d be able to. Biggest thing tho is the depth perception. And you aren’t going from nothing to a new sense like in the show, just improving your existing eyesight, and yes, seeing more. Ask you’re wife to close one eye and ask her about how much less she sees.
I like the choice of keeping it completly silent near the end- to show how she (doesnt) hear.
cochlear implants can be disabled without having to be removed. You can just turn it off. Why get rid of the option?
Because she doesn't like it and never will.
Cities are loud places it must be strange going from quiet and nothingness to loud banging children screaming, and cars and people yelling whether good or bad.
This reminds me of my own experiences, although I am not deaf. Was diagnosed with panic disorder, general anxiety, ADHD
she plays the deaf character in twd too, she’s such a good actress
The actress really is deaf
@@hollyroosendaal1033 LMAO this comment sent me
This reminds me of my developmental psychology class. Going through the critical period in your development (birth til around 23-25) without being able to hear makes it very hard to adapt to being able to hear for the first time.
I thought that if you had one of these, all you would have to do is take off the external unit. The Miss America winner who was deaf, who got one of these after having children joked that if they were being noisy, rambunctious, or irritating, she could just turn the bloody thing off and poof, instant silence.
The problem is she lives in a busy city area and probably constantly bombarded with noise. Even regular people go through this, I can’t imagine for someone who was deaf
Cochlear implants don't cure being Deaf. They don't make Deaf people hear sounds like hearing people hear sounds. It all sounds very robotic and is hard to learn how to tune, especially if you've never experienced much sound before(not all Deaf people have total hearing loss, but getting the implant actually takes away all your hearing completely). The part of your brain that is meant for sound isn't active for interpreting sounds, usually it will take up the job of another one of your senses. So its no wonder why a Deaf woman who has been Deaf her whole life hates the implants because she's getting bombarded with robotic, scary, loud, and unintelligible sounds. It probably would cause lots of migraines too from the brain being forced to experience stimuli that isn't isn't wired to handle. Also, as others have said, you can just remove the outer device (its a magnet that attaches to the metal plate in your head)to disable the implant, you don't have to have the implant surgically removed.
This is correct. I have grown up with my right implant, my left was implanted 20 years later. It takes patience, training and alot of work to get to that point. I have encountered many people in their 30s get their implant and get nothing from it because their brain was never stimulated with sounds.
Same with hearing aids right? Tell me if this is correct please? It doesn't amplify sound or make it clear? Asking because I had a deaf friend in high school he couldn't hear very much even with his hearing aids so I was wondering why everyone thinks of hearing aids or cochlear implants as miracle tools it pissed me off so much I just wished the coach would have listened to him even with his hearing aids he was still very confused I explained the science of hearing aids to the coach and he was not having it he just looked at me weird I was trying to advocate for my friend who is being told by someone who obviously has not experienced what he has that he can still hear even if he didn't have his hearing aids on it was complete BS I think about him till this day and I hope he is doing all right that coach should seriously do more research I'm sorry this is long I'm trying to learn all I can and I needed to rant a little the coach was talking over a loudspeaker by the way he kept calling his name and saying stuff like I know you don't have your hearing aids but I know you can hear me like what the hell was he on?! So because the coach was being an ignorant butthole I had to get my friends attention and let him know that the coach was asking for him after that I called the coach over and just went off on him I was so angry at how my friend was being treated hearing aids and cochlear implants are not miracles there needs to be more education on stuff like this
@@cuteizombi6946 how hearing aids work is for example, if someone has 20% of hearing, the hearing aids only make that 20% louder, it cannot replace the 80% he is missing so he will continue to have trouble hearing. The hearing aids are only to help him with the hearing he still has, it doesn't recover full 100% hearing that Cochlear implants allow. For example, when I was little, I could hear low frequencies but not high frequencies, so when I had hearing aids, I could hear my dad clearly but not my mother so I would have to put in extra effort and it was very frustrating. Cochlear implants are not hearing aids, they are implants that have microphones to take all 100% sound and take it straight to your working hearing nerve or have an electrode replace the Cochlear inside your head responsible for your hearing, if it's broken, the electrodes replace it and do the job for it, so when the processor (worn on the outside of the head) picks up sounds, it sends it to the electrodes instead and they allow you to hear. So if a person only recently lost their hearing completely they will get 100% sound back, but if someone has never heard voices or sounds in their life, unfortunetly their brain will have no idea what to do with the sound it's getting and an implant may have very little or no effect at all. Every single person is different, and it all entirely comes down to wether the brain is going to recognise some or all hearing signals that the Cochlear will give it. I was extrememy lucky, I had 5% of hearing in my left hear for 20 years, when I got implanted they told me not to expect anything at all, but I achieved 86% in six months only because my right ear went through the entire experience when I was young and it taught everything to my left side as if the left side of the brain was cooperating with the right, it shocked my doctor's, this is only a 2% chance and I was put in of 5% of people who have had achieved this. It's not easy work. People with hearing aids or Cochlear implants, whether they are struggling or not should not be ignored or put down for what hearing and abilities they have. There are aids, note takers, even if you want, you can share notes with your friend, that's one of the best help you can do. I've had aids growing up and I'm forever grateful to them.
@@KazukiMatsuoka This is beautifully said!
@@KazukiMatsuoka thanks I didn't see my friend again after I graduated from high school I miss him so much and I still think about this particular incident a lot he was running laps I remember hearing the coach's voice trying to get his attention but of course he couldn't respond I was sitting on the bleachers watching this unfold after what seems like the 10th time of me saying that's not how this works he can't hear you I lost it everything that I was trying to say went ignored I had tried to be polite before then but after I kept being ignored I saw red I called my friend over asked if he was okay burst into tears and went off on the track coach remembering how it felt to not be listened to and to not be taken seriously having gone through a form of discrimination myself that stuff really eats at you and he seemed like a really sweet guy I wanted to let him know that someone was listening someone did take him seriously and I guess this was my way of doing so? Maybe I could have handled it better but it all happened so fast and I just couldn't stand seeing him being treated like that this had been going on for a while at first I was afraid to say anything because I was scared of making a fool of myself but he appreciated it more than anything and he understood that I was going through something myself
LAUREN IS SO AMAZING
Sensory overload! Nobody knows it until they know it... and for Co hlear you can't wear noise canceling anything. You can only take the magnet off and deal with the beeping.
You're the only comment I have come across that has stated that she had a sensory overload. I put in mine that it seemed to be a mix of sensory overload and panic/anxiety attack. No one else has brought that point up. From what I see, they didn't slowly introduce her to sounds which caused the sensory overloads.
she also HATES being in a zombie apocalypse with her sister.
I never thought of this from this perspective before.Very in lighting.
the sound of silence
I read the comments, I understand the point of view of the deaf woman in the video, but I still find her strange. With some effors and concentration she wouldn't think of other people's thoughts as "distractions". This love of silence is at a whole new level.
On a much smaller scale, this reaction comes with new hearing aides. When I take them out it feels like someone put a heavy blanket over me. And I have always been able to hear; I can’t imagine having never heard at all and suddenly being thrown into the cacophony of city sounds.
I am not as profoundly deaf as this lady but, I am often happy to have days where I can shut off and not have to where my hearing aids. The brain needs to calm down from sensory overkill.
I loved her in the eternal movie
It surprises a lot of regular hearing people, but most people that are deaf don't want to be able to hear. Most of the time, they're fine with being deaf because that's the only thing they've known. Its normal for them.
I'm not saying I want to be deaf. But, if my entire world had been silent for most of my life and then suddenly it wasn't anymore, I think I might feel the same way.
Liar.
i’m crying violently
most deaf ppl don’t really see deafness as a disability it’s understandable that she’s uncomfortable and doesn’t want to keep the implant anymore she realized that it’s more of burden and isn’t rlly helping
So I just watched a video about Cochlear Implants after watching this (link at the end). As it turns out, they aren't perfect at replicating the sounds of the real world. They aren't good at replicating pitch and timbre, so all it's really good for is interpreting what someone is saying in a 1 on 1 conversation. They aren't very useful when multiple people are talking in a crowd either. So her experience with environmental sounds and her complaints about singing and music among other things totally makes sense. They work very differently from hearing aids.
Link to the video by SciShow: th-cam.com/video/lzgQrHFDNLE/w-d-xo.html
Gaining a sense can be as shocking and world-spinning as losing it.
if you wanna know what it's like to have an auditory and/or sensory processing disorder, the scene with her in the park hearing every single sound at once is very accurate. cochlear implants aren't just internal though, they have an external piece that attaches to a magnet placed under the scalp that transmits the sound to the internal receiver. if you've ever seen someone, especially an adult, wearing headphones in public, or if you've ever wondered why noise cancelling headphones are so important for autistic people, it's because unlike with a cochlear implant, we can't take our ears off or turn the volume down on the world. when I was a kid, I used to wish I had been born deaf because all I knew was that the world was too loud, it made too many sounds. now I know it's both an auditory and a sensory processing disorder, I can't filter out "unimportant" sounds like the sounds of traffic or the fridge being on or the person texting in the seat next to me. seeing someone else experience the same thing I do, however temporary, would've been HUGE for 8 year old me to see
It's like suddenly getting a sensory processing disorder.
DAAAH
I KNOW THAT ETERNAL SPEEDSTER
😀🤣
*1:22**-**1:46*
Im autistic and some ADHD
But at times I can relate to this here
😯
*1:22**-**1:46*
Im autistic and some ADHD
But at times I can relate to this here
😯
Ok. I would like to say, I am a hearing person. I have always been a hearing person. To me it seems like a mix of sensory overload and a panic/anxiety attack. (I have had all three so I understand those feelings) It doesn't seem like the other can understand what she feels in those moments. It seems like it becomes too much and she can't take it. I feel bad for her in those moments.
My great grandma got hearing aids after her hearing became week. She hated them. I tried them to find out the issue. And goddamn it everything was so loud and overwhelming no wonder she hated them. Her brain got so tired separating the sounds.
Hey it’s connie, last time I saw her, she saved a baby from the whisperers and walkers
I have a vision impairment and I can tell you this much the sounds I hear drives me nuts. I had eye surgery and I one person say that I should not hear as much as I do. I told the person it helped my eyes not ears. Sigh I understand how she feels because the sound is an overload to her system
As some one who deals with loud noise causing panic attacks I get this
This is me, even tho I was born hearing I wish I was often deaf. This world is too noisy for me and I live in one of the biggest cities in the world. 24/7 stimulation
I was born with almost 72% hearing loss. I was eight or nine when I finally received hearing aids after a test at school sent me home with a note that said, and I quote, "Why doesn't she have hearing aids?" It's because at the time, they didn't do hearing tests. They thought I had anything from autism to mentally ill markers. I wasn't progressing the way I should. I didn't speak other than mumbled and inaudible sounds. When I finally had them, an airplane passed over my house and I was on the floor in fear with some thought that maybe we were under attack. I had anxiety leaving my house and going to school. I'm 29 now and wear hearing aids, and can speak clear sentences. Some days are still hard. There are some sounds that make it feel like there's a bomb going off in my head -- but I love being able to hear my nieces and nephew's voices; and hear my cats purring. It's different for everyone.
I remember her from The movie Eternals and The Walking Dead
I was born without a eardrum and i went through seven surgeries when i was 19 one after another. I have a piece of metal in my ear so when things are on i hear them higher than a normal person would hear. But when it's noisy it drives my crazy. I don't like to be around noisy places or people 😊
I couldn't imagine not even being able to hear myself breathe and then all of a sudden that nerve ending turns on. You know your body. I know being pregnant ever is not safe for me, she knew that living with the implant let on intrusive thoughts she couldn't get rid of.
Patient: ugh I’m hearing everything
Me towards the end: Omg did my speaker blow out I’m hearing nothing !
If your born deaf, I can fully understand why someone would be against having an implant. This just shows how different experiences give a different perspective.
Im not deaf but when i was 16 i got diagnosed with Chronic Bilateral Uveitis (Uveitis in both eyes), I only noticed it when the sclera of my eyes was was as bloodshot and red as a stop sign, i could barely see a hand in front of my face and it felt like my eyeballs were on fire and about to fall out of my head, stepped out into the sunlight and i was closing my eyes so hard it felt like my eyes were going to be pushed into the back of my skull and my eyelids were going to curl in on themselves..
The symptoms got brought under control but usually if you get it once, you WILL get it again. In my case I already have a compromised immune system so there is nothing that can be done but treat the symptoms.
Because of the light sensativity I effectively changed my circadian rhythm, Slept during the day and was awake at night. I am 100% blind during the day, cant even open my eyes if the sun is out but at night time? I can see everything.
When i was 20 i got the opportunity to get laser surgery to get my pupils off of my lenses i thought i would go back to normal but everything seemed so dull and lifeless, it was like i couldnt see color anymore, i couldn't see shadows or contrast (Which is pretty big when you really enjoy painting and drawing) when i was 22 i had another flare up and I instantly knew that because when i woke up i could suddenly "See" again and my dad said he knew something changed because it was the first time he had seen me wake up with a smile on my face in a long time. going on 12 years and i refuse to have surgery again.
To me the best way i can explain it is to take a bowl of fruit and shine 30 lights on it from every angle, thats how i saw things with corrective surgery, almost colorless, no shadows to speak of. now take away 29 of those lights so there is 1 light shining on it, all the sudden you can see the color in all of its vibrance, you can see the imperfections on the surface of the fruit, the shadows, and the shapes.
Don't do what you think you should do for other people. Do what you think is right for you.
So happy she was able to go back to her herself and her life ❤❤️❤️
Kind of a medical question: but would there be a way to turn off the implant or disconnect it without going back under the knife? To get her relief ASAP and to minimize risk? Or at least a minimally invasive option?
I know this is nowhere near the same but my grandmother went through this when she got her hearing aids. She's a very nervous person by nature and I think that, as frustrating as not being able to hear as well is, it was overwhelming when she was able to hear better again. She usually only wears them at family gatherings or meetings now because just being able to hear everything around her stresses her out and gives her even more anxiety at this point.
serious question. Do they not make implants that can be turned off? like when my mommom gets tired of noise she just turns her hearing aids off. Then she would be able to choose when to hear. in the comfort and quiet of her home and not the overwhelming outdoors.
BLISTFUL SILENCE!! AHHHH
Honestly some days I wish I were deaf. 6 children under 12yo, and all the yelling of competition. They allnwant to be heard over eachother. It's very overwhelming some days...
CIs only work along with an external microphone and processor. You just turn that external device off or don't use it at all. You don't need a second surgery to remove the implant.
I know nothing about the implants, but it seems like a volume setting would be usefull so they dont need to be removed when they are too much
The show is trying to present a sympathetic view of someone who reacts badly to the ability that the implant provides her. The implant has not changed who she is, but she is unable to express it in another way. As an adult, she is entitled to conclude that she does not want the implants. I had a patient in my practice who is deaf and received implants as a young teen - and did just fine with them after an adjustment period. The implants are not perfect - they let her hear sounds but she still had to lip read or use American Sign Language. She communicates in ways that make her feel comfortable; it is my hope that others in personal and professional settings will accept her. A colleague of mine was tortured, ridiculed and driven out of a pediatric residency program in the 1990s because the residency director, an amoral and arrogant jerk, decided that people with disabilities should not be physicians.
I’m not deaf but I have an ex boyfriend who was born deaf. His parents got him the implant and he would cry a lot because as he explained “ the sounds are too much for me to take in, it makes me have anxiety attacks “ 😕
weird how the sound is cut out at the end
Im hard of hearing. My school offered hearing aids when I was a kid. I hated it. It made it harder to focus on what the teacher was saying because it made EVERYTHING louder, indiscriminately and you cant filter it the way you can with natural hearing. Its hard to explain but its not the same as hearing regularly.
I was feeling discomfort at the end when the sound cut out.
My stepdad lost most of his hearing dye to and infection absolutely never used his hearing aid....he says it's the worst and not the same as hearing naturally.