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I am 6 years into the BIND (Benzodiazepine Induced Neurological Disorder). All caused by prescribed Klonopin (Clonazepam) from my trusted neurologist that I had been seeing for well over 20 years. He prescribed them to me for sleep issues caused by chronic migraine. 😢 I have been through all the devastating issues you mentioned here and so many more. I have been left with debilitating nerve pain that multiple specialists and thousands of dollars cannot help with.

I have no idea how u are even alive 30mg ativan....how long were you on that dose.....holy krap I got a chemical brain Injury from 1.25mg 1mg 5 month daily use. Ct. Ended up er on 7th day given valium to taper 10mg 3 months 5mg 2months on 3.4mg now....tapering ....been in hospital last month dropping the valium with stroke breathing and akasthia I have no idea how u are even alive.....seriously.....holy krap...I can't imagine, my acute was hell on fire......I I only 60% at 5.5 months. I had aka for 3 months straight no windows.....I wanted to die

This is the best message to caregivers that I have ever listened. It covers all about the reality of medical industry and pharmaceuticals, and how the ignorent people are severely harmed without giving them proper information and taking their consent about it. I am now a year off xanax, ( prescribed to me for sleep ) but still suffering badly , every day is a real hell. I don't know myself, my surroundings, I feel like I don't exist anymore, I doubt about my own mind....So many physical and intense mental symptoms. Thanks Tessa, for sharing this video. We are all together. ❤

Did you find going through the injury 2023 you were able to rebound better than 3 years ago

I read some find help with Gaps or Paleo. I wondered if you eat a special diet? ❤

I've had really bad akathisia and am now very slowly tapering valium. I have most of these same symptoms. Thankfully i dont currently have the akathishia which I'm sure I don't have to explain to you was the most unimaginable torture... but I do have most of these other symptoms you listed despite tapering ultra slowly.

The worst part for me was that no one believed me. I know you believe me. That is all that matters. I know what you are going through. I pray you turn the corner on this nightmare soon. May God bless you for this video.

Xcellent, spot on , you put so much thought into it

Hey there🙋🏻‍♀️🇨🇦 I am wondering are you doing a bit better or the same ? With warm love, Shanda 🙋🏻‍♀️🇨🇦

Sorry for what you’re experiencing but stay positive. Keep open lines of communication to someone. Remember, things could always be worse.

Dang you’re always beautiful. I know you don’t feel good though. Thank you. My family didn’t believe or understand what I went through and they still believed what the doctors told them. They just think I’ve got mental illness with personality disorder. I’ve had akathisia for years now. Thank you for making this. I know you probably felt extremely bad but things are gonna get better. You will heal really quick once you’re off all that crap. Thank you for taking the time to make this.

I remember watching you in the past . I’ve been all the things that you said. Crazy stuff I was thinking yesterday what you have become? Really good video. Cheers

You inspire me with your courage and strength. Thanks you so much, God bless you!

He has me thinking about you. You and your suffering, the pain that you go through, the trauma, being disabled as a mother and a wife. I see your sleepless nights, I see your tears as you cry out in pain and confusion, the loneliness that you feel, i see it as you lay in bed or on the couch, the thoughts that go through your mind as your body is twitching and doing its own thing against your will. I don't know what to tell you to help you, for you to feel better, except to say if I can see it, He sees it too. He is angry at us, at the system that caused this. I see His wrath and He is tired, sick and tired of us being abused. What you are experiencing and going through is a reminder, it only reminds Him. You and your suffering compels Him to action, He is constantly reminded of you

Over 6 yrs here B.I.N.D. every day is a struggle the ups and downs are so frustrating. Hope is all we have.

It is said the eyes are windows to the soul....your eyes tell a story of pain and sadness that still prevail. But in those eyes one can also see as well as hear in your voice the look and sound of hope. From someone that has no care givers I am grateful for the effort you go through to bring words of encouragement to those who may otherwise never hear. We will heal! God Bless!🙏

Thank you for this. You're young and beautiful and what you're doing is amazing. You're articulating what survivors like ourselves have gone through and are going through. I was damaged decades ago, thinking eventually that it was for my own good. It wasn't, and I awoke to something indescribable, and have spent years and a small fortune in my recovery of detox, neurofeedback, supplementation, and dietary restrictions, all of which I had to find on the Internet. The symptoms you're describing in your videos were also mine as well, brain and CNS damage from drugs specifically designed as "bullets to the brain" (Dr. Peter Breggin). Keep up the good work, things will improve and you will recover.

Thank you for your courage.

Doom, terror and nausea are the absolute worst!

I am with you....its destroyed my life on 1.25mg 1mg for 5 months....lorazapam is a demon, still in withdrawal 4 months 3 weeks.

My family would never watch this or not care….😢 Thank you for speaking so eloquently about this and God bless you❤❤❤❤

Fe is power is god king is king one love❤.

You live one god not pain not cry You son god Haven You face sexy 🌹 angel

YAAY ANOTHER VIDEO! <3

Thank you 🌹

Great and very well thought out video. I have been going through Akathisia for over 5 years now and videos like this do help so thank you.

I am from malta hear, you helped me so much thanks

Thank you so much

remove immunity from pharmaceutical companies, make them liable for their products

you are my voice

Thank you 🙏♥️. As you say, we need an army and we appreciate all of the support, love and understanding and advocacy we kan get ❤ even though it is incredible difficult for many to understand, what is going on. So many lives and families are destroyed by this, because of the believe that doctors can not harm anyone, - until you experience it yourself. Even though we can seem as if we fight the surroundings, it is a sign of trauma, ptsd and all the gaslighting that is going on in the healthcare system (and the injury from these drugs), which naturally has lead us to completely mis trust in "normal treatments", which others would be as well, if they experienced an life threatening treatment by the doctors/healtcare system. We appreciate other people so so much, that have the capacity to stand up for us in this unusual situation.

Appreciate you so much

may suicides, should they be put in safe isolaton or something so unable to do it or safe restraints or room or for months and walks in safe place with guide guard. and helmet.

My head tension and feeling of swollen brain just won’t subside. I am losing hope. How can this possibly go away? My whole head and face are so tense.

I really can feel your pain.. We often feel so lost but we have to stay strong and confident for better times in our life.. Otherwise the pain and the stress of the trauma is just overwhelming and paralyzing.. Sad but true.. The only way out is the way through.. Much love for you❤❤❤😘

Remain hopeful and close to Our Lord Jesus. God bless you and keep you.🙏🏻❤️✝️🌹📖

gnocca

Did anyone loose there taste buds

Your a child of God, he will see us through this. I know everyday how painful this injury is, just no words for it. Some days all I say over and over is There is Power in the name of Jesus. He will deliver you, it’s His promise. 🙏🙏🙏❤️‍🩹❤️‍🩹

Yep…❤

The algorithm brought me to your video. I am so sorry you are going through this. I have been there. I want you to know that you will come out the other side, stronger than you have ever been. I know it’s hard to believe given where you are now, but please, believe me. You will heal. My story is long and similar to yours in many respects. Back in 2010, I was thrown into full blown akathisia, flight fight mode 24/7. I believe now it was due to long term prescribed Ativan use. They switched me to Xanax . A lot of Xanax. When I could eventually sleep, I would wake up in a state of terror. Over time, that terror state would resolve some earlier and earlier each day. Years of this. Eventually I realized that Xanax was keeping me a state of tolerance withdrawal and I needed to get off it. At that point I was on a relatively small dose, but it still took me 18 months to taper. It took a long time, but eventually I healed for the most part. This is just a very short story of my journey. There were times I spoke with God, and I told him it was OK if he took me back to him. I was OK if for some reason I died. I would never harm myself. But I was ready to go. I watched a couple of your videos, you are very good at describing what it’s like having akastisia. You will get better. Please believe that. I’ve spoken with so many people who were just as bad as me, some even worse and their brains normalized. Keep going forward, and Never, Ever, Give up. I look forward to watching your videos as you start feeling better.. Take care.

I also developed it after an operation to remove my thyroid a couple years ago. I don’t know what they gave me, but I developed akastisia shortly after it woke up. I was pacing the hallway s all night long. I’m sure the nurses thought I was a nutter. I tried to sit down, but I just could not. I refused any medication they wanted to give me. Luckily for me it settled down later the next day and I was ok in a couple days. BTW, your description of it is spot on.

I had a couple months of that 15 years ago. When I say a living hell, I mean living hell. Physical and mental torture beyond anything that could be adequately described.

Tessa, I was rewatching your videos and I wanted to know how are you doing now? 🦢🦋💖🙋🏻‍♀️🇨🇦

Jesus is the way 🌟

Can I ask, do you sleep? If you can sleep, you will make this.

"Cut off from everyone is your own hellish existence" I totally get. You are on the exit from these drugs while I am on the way in. I need all these sedatives to knock me out to sleep at night. I feel totally cut off from God and that he has sent this upon me.

This is aweful, how life can take such a horrible turn. I am the same but story is different. I had a beautiful blessed life but it all got wrecked when 100% Insomnia hit me 5 months ago. I require so many sedatives to knock me out and now I am learning that they are destroying my nervous system. You are still able to drive?

Have you heard of or tried brain spotting. It has helped me heal from traumas❤praying for healing and continued hope for you ❤

This sounds like full blown benzo withdrawals. It can take a long time but you will recover from it. You will then be able to come off the other drug. You must just be patient and let your mind heal from the Benzos.