I’m going through this with you! I started at 30mg and am down to 3mg now. It’s been almost 2 years and I’m extremely nervous about these final months and post medication. But you can do this! I understand all of the feelings you are going through and you are not alone. I know freedom seems a long way off, but the good days are worth the fight. Your benzo-free future is worth it 💗
@@beautifullybroken1591 You’re absolutely right! It’s really important to look back at any progress you’ve made and be proud💙. If you ever need someone to talk to about all of this, feel free to reach out. I know how terrifying this can be.
September 18 is my birthday! I hope the next taper is better then the last hun. Thankyou for sharing your journey as much as it gives me anxiety to watch it’s helped me understand what’s wrong with me. I may be off Valium now but the struggle doesn’t stop. I have bladder spasms at the moment going on 5 days. Last week it was severe headaches. It’s like one this passes and another thing starts. I know the stress in my life is causing these symptoms to be more severe too. I really wish I knew to taper before I stoped. I don’t feel like myself anymore, I don’t know who I am. I barely leave the house and I can’t put makeup on. I’ve lost a lot of hair too. Absolutely hate looking in the mirror. I pray every night to make it stop, I understand the feeling of not being there for your kids, just to get up and make breakfast some days is hard. I feel so guilty! Sending my love and support to you and your family ❤️ also the people that are misunderstanding your journey don’t belong in it. I have cut almost everyone off but I haven’t told many what I’m going through yet, those that care will come to me when the time is right. It’s lonely but it’s what I need for my mental health. X
same here. it’s total and complete hell. i remember the bladder spasms too. it’s unfathomable this shit.i have also cut everyone off too. i have blocked all my phone contacts so they don’t contact me. stress me out. and the anxiety is too big i can’t even handle the phone ringing or vibrating. it is too over stimulating.
You have done so well to get down to 18mg. You should be so proud of yourself. It sounds like Your at the point that you have to slow down a little to help your brain heal and catch up. I understand you want to get off this for your daughter, I get that totally. But please don't torture yourself. I told you I am going very slow but I'd rather taper for 3 years than suffer like I did on my fast taper. You have done brilliantly. Can you ask your doctor for liquid Valium to reduce each week rather than one cut and go through the suffering untill the next cut. Keep stong. You will do this. Xxx
Yes my kids are my everything ❤ Thank you. I will have to see how long I can bare it before I go down that route. Not all my drops have been this hard so hoping I will get some decent ones in. But its always an option in the cards for me especially when I hit the lower doses to cut less x
You can do this! My friend became extremely addicted to Valium, he was taking way over 75mg a day, I think he said 120mg+ at one point. The doctor said from the amount he was taking he should have died. He has been off for two years and he is thriving for his two young daughters and fiancée. His mental health and life has never been better. The way you’re feeling won’t last forever. We believe in you! I’m going through withdrawal from a strong antidepressant myself and have experienced Akathisia as well, it’s awful, the lower I’m getting the faster my body is improving and the fog is lifting💖 Small drops then stabilise, then repeat. Good luck x
@@shawnconnolly5296 I’ve heard from benzos that 10 months after coming off you have a hard wave that comes! It’s really common!! But it passes after a few weeks and then some people get another at the 24 month mark. My friend did a rapid taper (which I would not recommend!) but i would say he felt awful for several months but each month he would feel a little better and better. It’s not a linear process but depends on how long you was on the drug, dosage, then how you tapered or came off!
You are doing amazing. You really are. I feel so alone in my withdrawal too. No one from the outside understands but we do. There is more and more evidence showing that there is a benzo crisis going on. You are doing amazing dont give up ❤ what mg of benzos were you on initially?
Hate to see your suffering. Benzo withdrawal is inhumane. I am going through withdrawal and have akathisia (among so much else). Hang in there. We can’t give up.
It’s been 2 years and 7 months since I had to rapidly come off of Xanax. I hit tolerance and tapering was making me so ill I almost died. I was losing a pound a day due to inability to digest food or hold it down. I was starting to lose my ability to swallow water. At one point the akisthasia was so bad I paced day and night without eating or sleeping for over a month. I checked myself into the hospital and they put me on Remeron which helped me eat and sleep a few hours a night. Then I was taken off of Xanax and switched to Ativan without a proper crossover and tapered off in 6 weeks. It was BRUTAL. I have brutally microtapered the Remeron for about 2 years now and take my last microdose next week. I am just about healed. I have gotten my life back. All of it. I still have some minor symptoms but they are so minor they don’t even matter and I think they will be gone soon. I remember being so sick I could not get at of bed at one point. It sucked because I had been pacing for weeks and weeks straight and I still had the internal need to move but no longer had the physical strength to stand. Life is more meaningful now than before. I am stronger now than before. Cancer patients have it easier than us in a way because at least they get acknowledgement and sympathy. No one makes a cancer patient feel guilty for not getting out of bed. No one tells someone who is weak from chemo that it is all in their head. No one tries to convince a cancer patient that they have psychosomatic syndrome and that if they would just have change their thinking they would magically heal. But unlike them we do get better. This is not a death sentence. You will heal. Screw all those people who don’t believe you. I lived it and if you feel like I felt and I can tell you do from your videos then you are tougher than all of them anyway. You are a great mother because you have not given up. My son is why I checked myself into the hospital for help when I was going through it. The alternative was to do something must more drastic and I am really glad today that I did not. I spent this past weekend with my 4 year old son swimming and riding bikes and boogie boarding at the beach. I have almost completely recovered. What I was thinking of doing did would have been a mistake. The struggle is worth it. I don’t know how long your journey will be but having lost my other child a few years ago I can say with complete certainty that if you got to enjoy even 10 minutes as a mother at the end of this it would be worth years of suffering to get there. It is not fair but just keep thinking about how great it will be to be back. Try not to think about what you lost. It is justified but toxic. Thanks for taking the time to make these videos. It is so helpful for the people who come after us to know that their doctors are wrong and that they are not crazy. Benzo withdrawal is real and it’s years not days or weeks.
I am so sorry you suffered so horribly. You truly are a hero! It sounds like a nightmare. I know its a nightmare. I always try remind myself when I think of doing something drastic just to hold on, things will get better even if it takes years. But you are SO right about cancer patients getting the sympathy and us getting told its all in our heads. Not that cancer is better but people understand the torture and how hard it is. Some people still work while having cancer. What we have is so debilitating we can barely move. That feing of inner restlessness but your body being so heavy is just the worst. Your body has nothing left to give. Im so happy you are in this space now. You should be so proud of yourself. I cant wait to get there too
I completely understand what you’re saying about not being the same after this and being traumatized, but I think you’ll be surprised on how well you will be doing afterwards ,BUT You absolutely have to be careful on what you ingest (antibiotics steroids etc) , and the amount of stress and stimulation you allow your body and mind to receive. In other words, once you feel better do not think you can “charge” your CNS the way you did before WD. IT WILL GIVE YOU A MAJOR SETBACK. Please understand that healing isn’t finished when you start feeling better. I’m speaking 100% from experience.
Yes I know, I have spoken about that subject in other videos. Unfortunately alot of us take time to keep healing but as long as I am still healing thats the best outcome.
It is nice to see you; i think of you often and wonder how you are doing when i do not see a video for awhile. I am not so brave to be able to make videos; maybe some day i will make one when i am healed. You are always in my prayers. Keep going; you are doing great. Your daughter will have her mom back 100% soon. Her mom is a bad ass warrior and she will be proud.
Im not brave either, I just want to try save people from this horror. Ypu can do it, just start with one about your story. People just want to hear others stories to know they are not alone. Thank you for keeping me in your prayers 🙏
Imagine if some drs went into specialising coming off benzos, I think its impossible for them bc of the drug companies. I wish the alternative naturo ones could help us.
Have you researched NAD infusions? I’m not sure if anyone is doing it where you are. I did it for 10 days straight, it was very tough but at the end I have a lot of relief in some ways. It definitely helped akathisia. The loneliness is brutal and I’m in it with you. Try kava kava too if you can tolerate it and look into homeopathy. I’m doing that now. It’s complicated but it could be a miracle. I don’t understand how it works and you should find a good homeopathic doctor who will understand how sensitive we are. I’m sending you big hugs and lots of love❤️
3 weeks is fast to be dropping on average..... not sure what you were dropping every 3 weeks though ? but it sounds like you hit a wall a 17mg and your taper caught up to you... my advice is to ride out the 17mg till you stabilize then wait for a month and a half or ever 2 months before cutting again .... always listen to your body and remember its a very long drawn out process to taper not a race..... i know people who have taper for 3 to 4 years or longer just to ease the sxs while coming off
I have always listened to my body, sometimes its been ready at 3 weeks, sometimes a month and this time it told me to take a break so I did. I took 2 months. Im ready now. I'll keep cutting the 1mg and keep listening to my body. Sometimes I'll get lucky and sometimes I'll have to wait longer. That's okay with me. Im not dropping more than the recommended dosage by the Ashton Manual but as I get to the low stages, about 5mg and under I will be cutting by half a mg. 👍
@@beautifullybroken1591 i guess to each there own. The ashton Manuel is 40 years old and she admitted to making mistakes and should have taper patient longer and slower. Wish you the best and good luck to you my friend
I feel for you as I was a wife and mother in the late 80s dealing with a anxiety disorder! I always felt guilty needing to take benzos and then you have a anxiety disorder and all your doing is treating that. I personally was glad there wasn't such pressure to get off benzos back then. But you're not on a high dose so you should feel ok about that. I always wished there was another option other than benzos. I hope you can be patient with yourself!
The usual dose a day is 2mg, I have been on 30mg of Vallium a day. Nobody should be given that much of a Benzodiazepine. Nobody should be given benzos at all. The people that do are usually large middle aged men who are detoxing off of alcohol. The amount Im on is ridiculous. Im sad that there wasn't pressure for you to get off then. Its a poison that eats at your brain, causes dementia etc. I hope you are off it now! X
Exactly! I was put on a cowboy dose myself I should have never been on! Same as you. In 2013 I was taken off but reinstated to a way smaller dose. I am still on 3mg ativan from 8 mg!
Btw I am all for a quality of life and I believe being on a small dose made it possible for me to have a great life! My problem was being put on too high a dose at one time. A lot of people are all or nothing. I just speak for myself when I say all in moderation!
Be well and go down on dose only when you feel comfortable doing so. Don’t force it. The taper is patient-centered and if it takes 12 or 18 months, then that’s what it takes. Each individual’s nervous system is unique to them. Was valium the original Benzo you were prescribed? I think these drugs are poisons and should be made illegal or those that prescribe them must experience the drug for 3 weeks and then get off it. Then I think some prescribers would say, no thanks, and others after they experience the benzodiazepine withdrawal syndrome will have second thoughts about putting their patients through it. It’s all in how benzos bind to GABA receptors and there are books on the subject that give information on supplements that might help with the w/drawal process. I especially like the book Akathisia and Restless Leg Syndrome, though it is a bit outdated, but if you search benzodiazepines and Akathisia on Amazon, you will find some books on the topic. Also a lot of good research on PubMed. I have a bibliography that I put together on these topics and if you are interested, I can send it to you. It includes links to the latest research and videos by great researchers like Richard Wright, M.D., and users who describe the withdrawal process which is diverse with many symptoms, some of which are hallmarks of the process, e.g. insomnia, anxiety, rage, sensitivity, pain, and stomach upset.
Thankyou, yes I have done all of that research and that's what I have been trying to tell people through this channel. To just listen to their bodies. My body said to slow down so I did. I took Ativan for just 4 months until I got interdose withdrawal. So switched slowly to Valium and started tapering. I take gaba, magnesium, L theanine, B vitamins and other supplements from my natropath. Thanks though 😊
@@beautifullybroken1591 Yes, I have heard of GABA and I think magnesium and B vitamins being used. I believe there was some research on vitamin B1 and also the prescription beta-blockers like Metoporol being of some use. But so far no one universal effective agent. I think another was the prescription drug flumezil, I think that is how it is spelt. The book I picked up is Akathisia and Restless Leg Syndrome by Perminder Sachdev. Here is a link for Akathisia info: en.wikipedia.org/wiki/Akathisia. It also gives info on agents to help with the treatment of Akathisia. There is a need for more information about these movement disorders and also benzo withdrawal syndrome to get out to the public and to Drs.
@@pj0000007 I have all the books thank you 😊 Yes I take the beta blocker Propranolol, it helps with some types of Aka but not Dystonia type Aka. But it helps with anxiety too by slowing down your heart rate. That's mostly what I use it for
@@beautifullybroken1591 looks like you are on top of things & a good resource for others. I would like to see more clinical research on akathisia & specifically Akathisia caused by Benzodiazepine withdrawal, as well as ways to treat the other symptoms, including Catatonia. All these appear to be from GABA down regulation. Get the GABA receptors to regenerate to their pre-benzo levels & i think it would be the ultimate solution to this withdrawal syndrome. Thank you for sharing your insights. I want to learn as much as possible on this.
Your not alone God bless you I understand fully xoxo I'm down 2 3mg lorazepam. A day I'm also a mother and I long to just be whole again I'm going thu awful just depression anxiety and intrusive thoughts worries and constantly worried about bad things happening... I was paralyzed with this disturbing Us in my brain and body what was and everything else. I was taking 40 mg Lorazepam 4 months ago when I dropped it and 1/2 to 21 mg a week... It was a huge jump but I was eating them like candy 5 years now and please know we will heal one day at a time one second at a time God Ipray ask and beg you that my self and this beautiful woman make a full recovery mentally physically emotionally whole energized healthy safe and okay mentally physically and emotionally well and alive for good permanently thank you Heavenly Father sweet Jesus Christ God I'm unconditionally grateful permanently in for eternity because of you and for you I know this is all good and true, so it's all thank you we love you and we follow Jesus Christ. Amen ❤️🙏❤️🙏
You are so courageous and brave and you WILL get through this. Have you thought about switching to a longer acting benzo like Vallium to help you taper off more easily? It also comes in smaller doses which is especially helpful for tapering and will help with any interdose withdrawals and the shock of each dose drop. We are comforted knowing there is a place in Heaven being prepared for us after our time here is done and there will be no more suffering and hurt and pain. For now we can pray and thank God every step of the way that we are still here 🙏❤
I’m going through this with you! I started at 30mg and am down to 3mg now. It’s been almost 2 years and I’m extremely nervous about these final months and post medication. But you can do this! I understand all of the feelings you are going through and you are not alone. I know freedom seems a long way off, but the good days are worth the fight. Your benzo-free future is worth it 💗
Wow! That's amazing you should be proud. So close to the end. Keep fighting the good fight ❤
@@beautifullybroken1591 You’re absolutely right! It’s really important to look back at any progress you’ve made and be proud💙. If you ever need someone to talk to about all of this, feel free to reach out. I know how terrifying this can be.
September 18 is my birthday! I hope the next taper is better then the last hun. Thankyou for sharing your journey as much as it gives me anxiety to watch it’s helped me understand what’s wrong with me. I may be off Valium now but the struggle doesn’t stop. I have bladder spasms at the moment going on 5 days. Last week it was severe headaches. It’s like one this passes and another thing starts. I know the stress in my life is causing these symptoms to be more severe too.
I really wish I knew to taper before I stoped. I don’t feel like myself anymore, I don’t know who I am. I barely leave the house and I can’t put makeup on. I’ve lost a lot of hair too. Absolutely hate looking in the mirror.
I pray every night to make it stop, I understand the feeling of not being there for your kids, just to get up and make breakfast some days is hard. I feel so guilty! Sending my love and support to you and your family ❤️ also the people that are misunderstanding your journey don’t belong in it. I have cut almost everyone off but I haven’t told many what I’m going through yet, those that care will come to me when the time is right. It’s lonely but it’s what I need for my mental health. X
same here. it’s total and complete hell. i remember the bladder spasms too. it’s unfathomable this shit.i have also cut everyone off too. i have blocked all my phone contacts so they don’t contact me. stress me out. and the anxiety is too big i can’t even handle the phone ringing or vibrating. it is too over stimulating.
You have done so well to get down to 18mg. You should be so proud of yourself. It sounds like Your at the point that you have to slow down a little to help your brain heal and catch up. I understand you want to get off this for your daughter, I get that totally. But please don't torture yourself. I told you I am going very slow but I'd rather taper for 3 years than suffer like I did on my fast taper.
You have done brilliantly. Can you ask your doctor for liquid Valium to reduce each week rather than one cut and go through the suffering untill the next cut.
Keep stong. You will do this.
Xxx
Yes my kids are my everything ❤ Thank you. I will have to see how long I can bare it before I go down that route. Not all my drops have been this hard so hoping I will get some decent ones in. But its always an option in the cards for me especially when I hit the lower doses to cut less x
Keep going !!!! I m off now for 19 months. I know how you feel. I know ,I feel you ! Your not alone
Thats amazing! I will always keep going :)
You can do this! My friend became extremely addicted to Valium, he was taking way over 75mg a day, I think he said 120mg+ at one point. The doctor said from the amount he was taking he should have died. He has been off for two years and he is thriving for his two young daughters and fiancée. His mental health and life has never been better. The way you’re feeling won’t last forever. We believe in you! I’m going through withdrawal from a strong antidepressant myself and have experienced Akathisia as well, it’s awful, the lower I’m getting the faster my body is improving and the fog is lifting💖 Small drops then stabilise, then repeat. Good luck x
How long did it take for your friend to start thriving? Just curious I am in it bad and 10 months off.
@@shawnconnolly5296 I’ve heard from benzos that 10 months after coming off you have a hard wave that comes! It’s really common!! But it passes after a few weeks and then some people get another at the 24 month mark. My friend did a rapid taper (which I would not recommend!) but i would say he felt awful for several months but each month he would feel a little better and better. It’s not a linear process but depends on how long you was on the drug, dosage, then how you tapered or came off!
You are doing amazing. You really are. I feel so alone in my withdrawal too. No one from the outside understands but we do. There is more and more evidence showing that there is a benzo crisis going on. You are doing amazing dont give up ❤ what mg of benzos were you on initially?
Thank you, sorry you are going through it too :( I was on 30 mg Vallium
Keep on keepin' on.........I know exactly how it all feels (been thru it).......it can be conquered !!
I dont know how you do it love x
Warrior 💪❤
I do it with you ❤
Hate to see your suffering. Benzo withdrawal is inhumane. I am going through withdrawal and have akathisia (among so much else). Hang in there. We can’t give up.
It’s been 2 years and 7 months since I had to rapidly come off of Xanax. I hit tolerance and tapering was making me so ill I almost died. I was losing a pound a day due to inability to digest food or hold it down. I was starting to lose my ability to swallow water. At one point the akisthasia was so bad I paced day and night without eating or sleeping for over a month. I checked myself into the hospital and they put me on Remeron which helped me eat and sleep a few hours a night. Then I was taken off of Xanax and switched to Ativan without a proper crossover and tapered off in 6 weeks. It was BRUTAL. I have brutally microtapered the Remeron for about 2 years now and take my last microdose next week. I am just about healed. I have gotten my life back. All of it. I still have some minor symptoms but they are so minor they don’t even matter and I think they will be gone soon. I remember being so sick I could not get at of bed at one point. It sucked because I had been pacing for weeks and weeks straight and I still had the internal need to move but no longer had the physical strength to stand. Life is more meaningful now than before. I am stronger now than before. Cancer patients have it easier than us in a way because at least they get acknowledgement and sympathy. No one makes a cancer patient feel guilty for not getting out of bed. No one tells someone who is weak from chemo that it is all in their head. No one tries to convince a cancer patient that they have psychosomatic syndrome and that if they would just have change their thinking they would magically heal. But unlike them we do get better. This is not a death sentence. You will heal. Screw all those people who don’t believe you. I lived it and if you feel like I felt and I can tell you
do from your videos then you are tougher than all of them anyway. You are a great mother because you have not given up. My son is why I checked myself into the hospital for help when I was going through it. The alternative was to do something must more drastic and I am really glad today that I did not. I spent this past weekend with my 4 year old son swimming and riding bikes and boogie boarding at the beach. I have almost completely recovered. What I was thinking of doing did would have been a mistake. The struggle is worth it. I don’t know how long your journey will be but having lost my other child a few years ago I can say with complete certainty that if you got to enjoy even 10 minutes as a mother at the end of this it would be worth years of suffering to get there. It is not fair but just keep thinking about how great it will be to be back. Try not to think about what you lost. It is justified but toxic. Thanks for taking the time to make these videos. It is so helpful for the people who come after us to know that their doctors are wrong and that they are not crazy. Benzo withdrawal is real and it’s years not days or weeks.
I am so sorry you suffered so horribly. You truly are a hero! It sounds like a nightmare. I know its a nightmare. I always try remind myself when I think of doing something drastic just to hold on, things will get better even if it takes years. But you are SO right about cancer patients getting the sympathy and us getting told its all in our heads. Not that cancer is better but people understand the torture and how hard it is. Some people still work while having cancer. What we have is so debilitating we can barely move. That feing of inner restlessness but your body being so heavy is just the worst. Your body has nothing left to give. Im so happy you are in this space now. You should be so proud of yourself. I cant wait to get there too
It’s not an easy journey getting off of benzos. You are indeed a warrior . xx
You will be there for your daughter, you may not be able to do everything right now but it gets easier
I completely understand what you’re saying about not being the same after this and being traumatized, but I think you’ll be surprised on how well you will be doing afterwards ,BUT You absolutely have to be careful on what you ingest (antibiotics steroids etc) , and the amount of stress and stimulation you allow your body and mind to receive. In other words, once you feel better do not think you can “charge” your CNS the way you did before WD. IT WILL GIVE YOU A MAJOR SETBACK. Please understand that healing isn’t finished when you start feeling better. I’m speaking 100% from experience.
Yes I know, I have spoken about that subject in other videos. Unfortunately alot of us take time to keep healing but as long as I am still healing thats the best outcome.
@@beautifullybroken1591 I thought I was going to have ptsd or some kind of after effects from the trauma from my CT but it just didn’t happen.
You are not alone in this, keep strong! 💪
It is nice to see you; i think of you often and wonder how you are doing when i do not see a video for awhile. I am not so brave to be able to make videos; maybe some day i will make one when i am healed. You are always in my prayers. Keep going; you are doing great. Your daughter will have her mom back 100% soon. Her mom is a bad ass warrior and she will be proud.
Im not brave either, I just want to try save people from this horror. Ypu can do it, just start with one about your story. People just want to hear others stories to know they are not alone. Thank you for keeping me in your prayers 🙏
Imagine if some drs went into specialising coming off benzos, I think its impossible for them bc of the drug companies. I wish the alternative naturo ones could help us.
Have you researched NAD infusions? I’m not sure if anyone is doing it where you are. I did it for 10 days straight, it was very tough but at the end I have a lot of relief in some ways. It definitely helped akathisia. The loneliness is brutal and I’m in it with you. Try kava kava too if you can tolerate it and look into homeopathy. I’m doing that now. It’s complicated but it could be a miracle. I don’t understand how it works and you should find a good homeopathic doctor who will understand how sensitive we are. I’m sending you big hugs and lots of love❤️
3 weeks is fast to be dropping on average..... not sure what you were dropping every 3 weeks though ? but it sounds like you hit a wall a 17mg and your taper caught up to you... my advice is to ride out the 17mg till you stabilize then wait for a month and a half or ever 2 months before cutting again .... always listen to your body and remember its a very long drawn out process to taper not a race..... i know people who have taper for 3 to 4 years or longer just to ease the sxs while coming off
1mg cuts that is to high try to do 0.5mg cut or even 0.25mg
I have always listened to my body, sometimes its been ready at 3 weeks, sometimes a month and this time it told me to take a break so I did. I took 2 months. Im ready now. I'll keep cutting the 1mg and keep listening to my body. Sometimes I'll get lucky and sometimes I'll have to wait longer. That's okay with me. Im not dropping more than the recommended dosage by the Ashton Manual but as I get to the low stages, about 5mg and under I will be cutting by half a mg. 👍
@@beautifullybroken1591 i guess to each there own. The ashton Manuel is 40 years old and she admitted to making mistakes and should have taper patient longer and slower. Wish you the best and good luck to you my friend
@@johndutton4860 She says its a rough guideline and needs to be altered depending on the person is all. Thank you!
I feel for you as I was a wife and mother in the late 80s dealing with a anxiety disorder! I always felt guilty needing to take benzos and then you have a anxiety disorder and all your doing is treating that. I personally was glad there wasn't such pressure to get off benzos back then. But you're not on a high dose so you should feel ok about that. I always wished there was another option other than benzos. I hope you can be patient with yourself!
The usual dose a day is 2mg, I have been on 30mg of Vallium a day. Nobody should be given that much of a Benzodiazepine. Nobody should be given benzos at all. The people that do are usually large middle aged men who are detoxing off of alcohol. The amount Im on is ridiculous. Im sad that there wasn't pressure for you to get off then. Its a poison that eats at your brain, causes dementia etc. I hope you are off it now! X
Exactly! I was put on a cowboy dose myself I should have never been on! Same as you. In 2013 I was taken off but reinstated to a way smaller dose. I am still on 3mg ativan from 8 mg!
Btw I am all for a quality of life and I believe being on a small dose made it possible for me to have a great life! My problem was being put on too high a dose at one time. A lot of people are all or nothing. I just speak for myself when I say all in moderation!
@@sharon8121 your comment is denial .. once we all been there till shit got real
Beautyfully broken how r u
Soldiering through as best as I can
I wish you all the best
🙏🏻💞
Be well and go down on dose only when you feel comfortable doing so. Don’t force it. The taper is patient-centered and if it takes 12 or 18 months, then that’s what it takes. Each individual’s nervous system is unique to them. Was valium the original Benzo you were prescribed? I think these drugs are poisons and should be made illegal or those that prescribe them must experience the drug for 3 weeks and then get off it. Then I think some prescribers would say, no thanks, and others after they experience the benzodiazepine withdrawal syndrome will have second thoughts about putting their patients through it. It’s all in how benzos bind to GABA receptors and there are books on the subject that give information on supplements that might help with the w/drawal process. I especially like the book Akathisia and Restless Leg Syndrome, though it is a bit outdated, but if you search benzodiazepines and Akathisia on Amazon, you will find some books on the topic. Also a lot of good research on PubMed. I have a bibliography that I put together on these topics and if you are interested, I can send it to you. It includes links to the latest research and videos by great researchers like Richard Wright, M.D., and users who describe the withdrawal process which is diverse with many symptoms, some of which are hallmarks of the process, e.g. insomnia, anxiety, rage, sensitivity, pain, and stomach upset.
Thankyou, yes I have done all of that research and that's what I have been trying to tell people through this channel. To just listen to their bodies. My body said to slow down so I did. I took Ativan for just 4 months until I got interdose withdrawal. So switched slowly to Valium and started tapering. I take gaba, magnesium, L theanine, B vitamins and other supplements from my natropath. Thanks though 😊
@@beautifullybroken1591 Yes, I have heard of GABA and I think magnesium and B vitamins being used. I believe there was some research on vitamin B1 and also the prescription beta-blockers like Metoporol being of some use. But so far no one universal effective agent. I think another was the prescription drug flumezil, I think that is how it is spelt. The book I picked up is Akathisia and Restless Leg Syndrome by Perminder Sachdev. Here is a link for Akathisia info: en.wikipedia.org/wiki/Akathisia. It also gives info on agents to help with the treatment of Akathisia. There is a need for more information about these movement disorders and also benzo withdrawal syndrome to get out to the public and to Drs.
@@pj0000007 I have all the books thank you 😊 Yes I take the beta blocker Propranolol, it helps with some types of Aka but not Dystonia type Aka. But it helps with anxiety too by slowing down your heart rate. That's mostly what I use it for
@@beautifullybroken1591 looks like you are on top of things & a good resource for others. I would like to see more clinical research on akathisia & specifically Akathisia caused by Benzodiazepine withdrawal, as well as ways to treat the other symptoms, including Catatonia. All these appear to be from GABA down regulation. Get the GABA receptors to regenerate to their pre-benzo levels & i think it would be the ultimate solution to this withdrawal syndrome. Thank you for sharing your insights. I want to learn as much as possible on this.
Wish also the doctors would inform us better before we take it .... I wish also i could sometimes switch body
One day at the time.... Same here
Your not alone God bless you I understand fully xoxo I'm down 2 3mg lorazepam. A day I'm also a mother and I long to just be whole again I'm going thu awful just depression anxiety and intrusive thoughts worries and constantly worried about bad things happening... I was paralyzed with this disturbing Us in my brain and body what was and everything else. I was taking 40 mg Lorazepam 4 months ago when I dropped it and 1/2 to 21 mg a week... It was a huge jump but I was eating them like candy 5 years now and please know we will heal one day at a time one second at a time God Ipray ask and beg you that my self and this beautiful woman make a full recovery mentally physically emotionally whole energized healthy safe and okay mentally physically and emotionally well and alive for good permanently thank you Heavenly Father sweet Jesus Christ God I'm unconditionally grateful permanently in for eternity because of you and for you I know this is all good and true, so it's all thank you we love you and we follow Jesus Christ. Amen ❤️🙏❤️🙏
I apologize for all the incorrect spelling I used my voice talk and text ❤️🙏❤️🙏
You are so courageous and brave and you WILL get through this. Have you thought about switching to a longer acting benzo like Vallium to help you taper off more easily? It also comes in smaller doses which is especially helpful for tapering and will help with any interdose withdrawals and the shock of each dose drop. We are comforted knowing there is a place in Heaven being prepared for us after our time here is done and there will be no more suffering and hurt and pain. For now we can pray and thank God every step of the way that we are still here 🙏❤
No one cares to understand us
I'm brave enough to drive and the cops follow me home.
There s a lot of misperception
I feel sometime so alone in this.... So afraid it Will never pass
Don't feed into the fear! Don't give it power. You have GOT THIS x
💕💕💕💕💕😔😥