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Do you have hypomobility

My Me/Cfs is ? 31 years of my Me. Now. All love to you. Suffering. ❤ You are amazing! Love watching TH-cam. 😊❤ You are amazing! Love you!❤

Enjoyed your Mobility car story.. I feel sorry your health is such especially your age.. Myself I have had various issues in my life.. Mainly my feet which effects my legs and Finally I ended up with blood clotting.. But not to worry... Listening to your verbal conversation I like the way you put it across it opened my eyes to how my life has changed in the last 25 years. My Mum had poor legs and feet and I suffered similar I had my fair share of health issues. I am 60 at present and I sadly had to sell my family home partly because I couldn't trust my health.. It was the house our parents brought us up in so I only had to give my sister half the value of the house.(owned house February 2000 -March 2003) Anyway getting back to your car choice I agree with Reliability 100% But I feel very sad that this country gives everything out on a loan basis and take a percentage of your PIP.. Years back in 2000 I saw my dream car it was brand new and lovely car Mercedes CLK 320 Convertible..£42.000 brand new and despite in 2000 my mum passed a house was very important to me.. I have never really owned much in my life.. I was taught If I didn't have the cash I went without. In my eyes brand new cars depreciate in value.. but I feel £2500 can buy a really nice car.. And changing your car every 3 years.. you get a better car.£16 a week over 3 years and if you buy well your old car has to be worth around £1500 - £1800 private sale over garage part exchange. You keep more of your PIP you still get free car tax and insurance is same whatever.. I do own a Mercedes CLK 320 I paid just £1200 and it has my initials I still own it today OU52 TJX and I believe I can get most of my cash back if I sell it.. But I have varied collection of cars and £22.500 is the cost of purchasing all my collection. Over 9 years.. My actual favorite car Is my Range Rover Vogue I love how easy it is getting out of it especially when my legs are bad.. I prefer Automatic cars to 5 and 6 speed manuals especially with 20 mph restrictions.. I've learned a lot in 60 years no one tells you how to get our lives in order. I flipped my lid with my sister when I found out my beautiful niece bought a possible brand new Mini ONE Convertible That could have been her deposit on her first house or flat.. I don't get families as my sister only had my ambition status at a one bedroom maisonette.. My actual dream property 4 bedroom house in its own grounds with driveway and big garage.. My downfall is cars.. My collection came under budget at £21.695.. Looking forward to watching more videos shortly..TJ

To have patience with oneself is to have self-love 🌹

Chronic Fatigue is the worst :(

Im 25 and I've started bringing my cane to work because I know that it was going to be very beneficial. Every other customer that comes in asks "what'd you do to yourself" like I had an accident or a sports injury and the easiest response I have found is "i am chronily ill, nothing new" and it makes them either shut up or feel really bad for asking. At first I felt so dramatic and like everyone was going to judge me but there's been so much love and support so far ♡

I’ve been looking at different ones and it’s nice that this is more chair than just seat. Does it provide any support for your back though if your exhausted?

PIP is ridiculous. They've just underscored me and taken my payments and car :( They also won't talk to me directly because I use an appointee for a very specific difficulty which has nothing to do with my ability to advocate for myself!

4:00 This is why I'm getting a chair. The less I have to walk means the more I can walk. Thanks to PIP and all their infinite wisdom we have just lost our car and so without a chair I would lose all my independence. Add to that having a 2yr old and we definitely need to be able to leave the house xx

I'm so happy for you!!!❤

We're in the same page. I really wanna recover asap. I want to live life to the fullest but I get tired easily. Let the Lord heal us.

they changeing pip too vouchers no money

Shes so pretty

God bless 😊

I was so terrified to start using my cane because of all the shit you see online. I did get a few too young “jokes”, mostly from family and work, but that was it. Everyone has adapted to it quickly, my friends didn’t bat an eye aside from of course being worried about my health and I never had to explain why I don’t need my cane every day. From strangers I’ve gotten nothing but positive interactions. Had an amusement park worker comment on how cool it was that it could fold when I folded it down for a kiddie coaster. An old lady at a convention mentioned how she’d tried one like mine and asked how I liked it, ended up laughing about how I also used mine backwards sometimes in the beginning (the reason that she hadn’t been using hers) and that yeah I’m sure that would make it very uncomfortable. Also ended up being corrected by my totally able bodied friend when I fucked up my wrist using it at too high of a setting (cause I like having my arms up damnit!) and man do I hate it when he’s right lol. Haven’t even had parents shush their kids, which I definitely thought would be more prevalent; in fact I made some kids laugh explaining to my baby niece that she shouldn’t put her mouth on the foot cause that’s like eating a shoe (my cane’s been her favorite toy since the day I started using it, idk why)

Hello and thank you for this interesting and exciting insight. I am currently writing my Master's thesis on the topic of the representation of disability in contemporary horror film. Perhaps you have some suitable literature or some interesting tips. What is your personal opinion on this genre and the representation of disability?

thats taekwondo not karate

I just got diagnosed with pots, Ive never related to a video more. It means alot ❤

Hello, thanks your motability videos are very informative.

No thanks to the mental health in Buckinghamshire completely corrupt and incompetent and haven't got a clue what they're doing and with it because the government do not want to acknowledge people with mental health illnesses or disablement because the lack of support and help from the Mental Health Service because they don't truly understand the borderline personality disorder mental illness so they free branded it as emotional personal disorder two light in the illness to lie to you that's the same as you may Keir starmer saying illegal migration is now called irregular migration it still legal no thanks to that due to my mental health of long periods of isolation because due to my paranoia and my men will help I have now got vascular dementia which means blood cells are dying in the brain because the mental health professionals apparently like to tell me years ago give up caffeine an nicotine and all your mental health will disappear and when I asked to speak to a manager they ignored me and push me back into the void and now they finally grown up and admitted it that I am on treatable too late and now they've wrecked my life the Professionals of reckon within a year I'll be lucky if I can remember myself or my children vile scum

Love your cane! I am 48 and need a walker/rollator and cane for walking for the past 4 years and I am still struggling to accept my disability. Your video made me smile and remind me I am not alone with my feelings and struggles. 💕

If no one turns up, you hit the emergancy button that keeps the door open, or you stick your arm or leg out if u can, which stops the doors closing. You might piss a few people off, but honestly, the services need to be much better.

I have HEDS and I decorate all of my mobility aids with stickers and paint!! If people are going to stare anyway, might as well give them something to stare at!! Doesn't help that I'm only 28 and have gauged ears and an undercut, just being a small disabled alternative nerd, decorating my mobility aids so they make me happy 😊

You remind me of Luna Lovegood 🤍

"Must be nice to lay in bed all day and have people take care of you. I wish I had that kind of free time." I have a family member who says these things about me, and occasionally to my face. And she's a nurse. I've learned to ignore the comments and just focus on the positive interactions with her. It's a reflection of her frustrations in her own life, more than an attack against me.

I’m a 24 year old momma, I have knee pain from an injury during lockdown and I’ve been using a forarm crutch if I feel pain. I feel awkward when I use my crutch. 😑I always feel scared when I use it around out at work or going out. But I know my kids will understand that others need help with getting around.

I have learnt that nobody will understand even if they have knowledge and you educate. Once 💩hits the fan you will see how those individuals will use every reason to not believe you and use any illness related issues that you have had and twist that as if you’re manipulative. I disagree don’t badger anyone, there’s no point in fighting for people to believe you when you are fighting every single day to survive.

I have personally found that when people fake a disability it's because they have a different, invisible disability and they're tired of being ignored or belittled. I don't think it's helpful but I do understand and honestly have considered it. It's pretty telling that some disabilities are more socially acceptable

Very good advice, it is hard to have a balance in what we do. I have been doing a little more each day in keeping up my house. I find my limit and what I can do.

I love that the rollator and stick are both pink

You can keep 4 5 years

I love the dress you are wearing so much, I know this video is 3 years old now but where did you get it from? I can see if I can get secondhand or maybe sew one if I know what to search for 😅 ✌🏾+ 💜

Great video! I can highly recommend erin lessers videos for more ideas and inspiration

Ppl unbelievable

You are quite brave and positive. Your day in the video is like a typical day for me now. Sending love and hugs.

She is so pretty!

I love how you're so honest about the internal dilemmas surrounding ambulatory wheelchair use, but still exude so much confidence and positivity. It shows great personal strength <3 I've been living with long covid for about 2.5 years and got a wheelchair about 6 months ago. I haven't used it much as I still feel anxious about how I'm perceived in it and would sometimes rather stay home than go out and be pushed around. I want to come to a place of acceptance with it. Thanks for sharing your experience!

Such a lovely makeover! As a relatively new CFS patient, it’s great to watch you get things done yourself but also asking for help when you need it. (I still struggle with the latter.) Also, your dress is very pretty, all your outfits are! You inspired me to wear more than tracksuits again if I have the energy. 🫶🏻

What an excellent video with great advice on how to take care of ourselves while living with ME/CFS. Thank you so very much for sharing. ❤

I have fibromyalgia and I’m gonna have to quit working soon. I feel so guilty but I didn’t ask to be chronically ill

Oooh Boggle is a great analogy. Ive been saying its like a mischievous tolder messing up a sound mixing board. The old settings have randomly changed.

Who ever is making the dun dun da dun noises is awesome 🤍

Hi what do you think will happen with pip next month iv been so worried since April:(

When I read "I can't afford a wheelchair at the moment", and similar statements, I feel very sad for people. Here in Sweden they're free for those who need them. My wife had polio as a child, and when it came back when she was around 60 she got free ellbow crutches, and a wheelcheir after 70. These are on loan, and have to be returned when they are no longer needed.

I have hyperglycaemia vs hypo … I went to Poland to pay for some private Dr’s being desperate to do something about my lack of progress with my health, the Rheumatologist I saw (I have psoriatic arthritis as well as either ME/CFS or Fibro, Dr’s kind of undecided) she had me do the glucose test that some women who are pregnant get (you drink that awfully sweet drink and you get your blood tested several times) Turns out I’m not diabetic (pre though I guess) but my body just doesn’t handle the glucose properly as even after 3 hours of drinking the syrupy drink, my glucose is high. They don’t test that here in Canada unless you come up having a bad insulin blood test on empty stomach (which I’m always passing btw!) So yeah, my cocktail of meds includes a nightly metformin. If I hadn’t caught it though, it could have lead to diabetes, so it’s worth pushing Dr’s to check 👍

Hello, everyone. Umm, I don't know how to say this, but I'm not in the worst condition like you. I have been suffering from dystonia since 2020, and it's been very difficult for me to write and grasp anything, like a cup or a glass. I couldn't even grab the PC mouse, and I can't even hold my phone. It's very difficult to live like this. I used to play guitar, but my dystonia doesn't allow me to play it. Every hobby I loved has been taken away from me by dystonia. I failed my exam because it's very difficult to write on paper; I can't grip a pen like other people do. I'm feeling depressed and sad. After all of this, I just want to accept my condition. Please, everyone, guide me and help me. It's very difficult to ask for help. (Apologies for my bad English.)

MOBILITY SCHEME IS A SCAM COMPANY!!! THEY USE YOUR PIP AND CAN'T BUY CAR AT END AND LOSE 10K OF PIP AND THEY SELL CAR AT AUCTION.

My fatigue makes me feel heavy, and i can't be on the run all day, no matter how much there is to do.

I'd love to pack in advance but our apartment is so small there is nowhere to put the boxes! My solution to this is, go through everything in your house, declutter and dust the items and furniture, so thay when you can start actually packing, you can literally just put items in boxes as is. So prep your stuff for packing beforehand! I've declutter over 20 mid size cardboard boxes and over 35 regular trash bags' worth of stuff! When I was much healthier I didn't do this, I just decluttered and cleaned as I packed. Now I could definitely not do that.

This was very validating cause mornings are so difficult to me. It takes sometimes 6 hours for me to feel normal. I have depression, anxiety, dysautonomia and I suspect CFS too.