The most important ME/CFS study EVER? And Taking Part in Decode ME Research!

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  • เผยแพร่เมื่อ 14 ต.ค. 2024

ความคิดเห็น • 25

  • @manic_or_jack2333
    @manic_or_jack2333 ปีที่แล้ว +11

    Thank you elinor. I had no idea this was happening and had almost resigned myself to the fact this would never change.

    • @ElinorBrown
      @ElinorBrown  ปีที่แล้ว +1

      we are getting there!

  • @echognomecal6742
    @echognomecal6742 8 หลายเดือนก่อน +1

    Looked up "Decode ME" & watched a video called "The most important ME/CFS study EVER? And Taking Part in Decode ME Research!"
    Flippin awesome, yay!

  • @sarahh5988
    @sarahh5988 ปีที่แล้ว +6

    So excited for this study, thank you to all the DecodeME team

  • @jacks2222
    @jacks2222 ปีที่แล้ว +7

    Thank you for doing this Elinor. I didn't know about it but now I've signed up and completed the questionnaire.. You're an absolute star🌟and your vids have helped me so much xx

    • @ElinorBrown
      @ElinorBrown  ปีที่แล้ว +1

      I’m so pleased! Glad it was helpful!

  • @AlexClaire86
    @AlexClaire86 ปีที่แล้ว +8

    I've also taken part, so grateful it's happening

  • @beknight9399
    @beknight9399 11 หลายเดือนก่อน +7

    I sadly cannot participate (wrong country), but I hope a lot of patients will do so. The project is hope. Thank you for your work and sharing this topic 🌻.

  • @WaterDay936
    @WaterDay936 ปีที่แล้ว +4

    Thanks so much for raising awareness of this vital study! I'm unfortunately not able to take part as I'm still waiting for a diagnosis but it's so amazing to see the community coming together to start solving this nightmarish condition.

  • @larenafiandes8057
    @larenafiandes8057 ปีที่แล้ว +5

    Ive taken part in this, its a wonderful study

    • @ElinorBrown
      @ElinorBrown  ปีที่แล้ว

      I know! I’m super excited!

  • @kaybrown3162
    @kaybrown3162 ปีที่แล้ว +4

    It great to think that eventually the scientific community are taking this seriously. 😁👏

  • @Spoonietherapist
    @Spoonietherapist 7 หลายเดือนก่อน

    Great video. I took part in the spit and 2 questionnaires, I’m so excited to see the results

  • @PhillipaHolly
    @PhillipaHolly ปีที่แล้ว +3

    I hadn't heard about this study, signing up now!

  • @SanjaySingh-n8q7g
    @SanjaySingh-n8q7g ปีที่แล้ว +2

    you are doing amazing work🎉🎉🎉

    • @ElinorBrown
      @ElinorBrown  ปีที่แล้ว

      Thank you so much 😀

  • @MusicMatters_SC
    @MusicMatters_SC ปีที่แล้ว +1

    Great interview! And cool earbuds!
    Fab to see the octopus taking part too 😁

    • @ElinorBrown
      @ElinorBrown  ปีที่แล้ว

      Glad you enjoyed it! 😂

  • @seansteckley
    @seansteckley ปีที่แล้ว

    Is it worldwide?

    • @beknight9399
      @beknight9399 11 หลายเดือนก่อน +1

      No, it's England, Wales, Ireland etc. In the future eventually worldwide (see FAQ on their homepage).

  • @SanjaySingh-n8q7g
    @SanjaySingh-n8q7g ปีที่แล้ว

    I am from India which test I do for diagonise cfs

    • @christafranken9170
      @christafranken9170 7 หลายเดือนก่อน

      I would recommend finding a local support group for patients with me/CFS. They probably know how to find a doctor near you who can help. I got my diagnosis from an internal medicine specialist, but that may be different in a different country