living with liver disease, more symptoms I had before and after my cirrhosis diagnosis
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- เผยแพร่เมื่อ 4 ต.ค. 2024
- more symptoms I had before and after my cirrhosis diagnosis
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#alcholic #aa #alcohol #alcoholfree #alcoholism #cirrhosis #liver #liverdisease #pancreatitis
I’ve been drinking very heavy for years, I stumbled on your videos and it’s been over a month since I quit. I can say I quit because your story really scared me don’t know if I’m sick I hope not. Glad I saw your video no one can believe it I’m on a diet, quit drinking, spending time with the family. Thank you from the bottom of my heart. I’ve tried quitting many times and this is what worked for me. Keep your head up you are doing gods work.
❤❤❤
Same
Great video. Those of us who quit before getting cirrhosis know that we could have easily been in your exact situation. Thanks for your honesty and your openness. You’re helping many people with these videos. Well done❣️
Thank you so much!!! God bless😊😊❤❤
And there are different levels of alcoholism. For me I am a binge drinker. Just because our liver did not fail does not mean you are not a alcoholic. You our friend saw what you were becoming, you stopped and now uou are a cheerleader as you recover❤
We need to be seeing these symptoms on the cans of alcohol containers like we see with cigarette cartons, truly frightening!
Completely agree!
The right wing would call that Big Government.
@@DJ-bj8ku They call saving lives big government? I'm confused
@@ThatdudefreshAlthough yours is a good idea, I can’t imagine a liquor company voluntarily putting warning labels on their product nor can I envision them acquiescing to government labeling their products a hazard.
You are not kidding!!!! They put them on cigarettes, why not booze??? You ate on to something here! Thank you! God bless😊😊
Have you heard about the first approved medication for fibrous liver as of last month. Resmetirom (to be sold under the brand name Rezdiffra), received FDA approval on March 14, 2024. It is the first medication approved for treating metabolic dysfunction-associated steatohepatitis (MASH), a more advanced stage of MASLD characterized by liver inflammation and scarring known as fibrosis.
My friend! It’s so heartbreaking to hear this. I can’t fathom you having been so ill 🤧 😢 We have our regular cirrhosis patients/ liver/ alcoholics that come and go on my Unit I work. Sometimes we have more than 50 % of our census is liver disease patients. When their NH4 goes high, we have to get a sitter for them to prevent falls, help with bowel accidents, pulling out IV’s and catheters. And lots of times they don’t want to drink their Lactulose so we have to insert NG tube to administer the meds. It’s very hard to take care of them and their acuity is so high that the Nurse will have less patients bc of that cirrhosis, hepatic encephalopathy, so many meds being administered and have to be cleaned and fed. Bedside Paracentesis sometimes , usually in IR , we have to measure the abdominal girth, daily weights, etc It’s very hard and I have regulars in their 30’s that won’t stop drinking until they are literally on the floor til a family member calls 911. Pancreatitis patients commonly go to ICU then come to us and they require lots of nursing care too. Constant monitoring, procedures, lab draws meds, IV narcotics, no food, they try to sneak food. They are miserable!!! It seems the numbers are going up and yes you are correct with the theory of The Pandemic , alcohol consumption went through the roof. Ppl are more stressed now, the economy and everything going on in the world. Gah!!! I’m glad you haven’t had ascites again or the other stuff 🫶🏻🙏🏼 I pray you remain stable ! Good night LD. PLEASE TAKE CARE ! Blessings ❤💚
So many people affected by alcohol in so many heartbreaking ways. Thank you for sharing!
For anyone wondering, he is talking about ondansetron for nausea. (I worked in the medical field)
Brand name is zofran
You're the best and most educational channel on this subject. I really appreciate it. I have this illness too and it's so painful and terrifying. Keep taking good care of yourself.
LD it’s odd how things for some work out. Middle of my life at 36yo I was shook! New start to a new life. Scared to death.
My body as well has completely undergone drastic changes. No muscle, less stamina, unable to regulate body temperature in the Houston heat.
you’re brutal honesty❤
LD hey broh! What a comprehensive constellation of symptoms you described in both videos,the like of which I haven't seen in any other video ,medical or other,about liver disease....plus they are personalized with your individual experiences. So painful to imagine!!
I'm so glad,in my own case ,that i might not have to face the like,due to stopping in time. (Some things i alteady was,and characteristically i mostly ignored).
Glad this made it on!! It's 1:30 am EST and just finished the video. Thanks man!!!😅
Hey craig!!! Thank you so much!!! It's been a lot. I'm glad that you stopped in time that you won't have to go through any of this!!! Hope you are having a great day! Hopefully you can make it to the live today! It's at noon. God bless😊😊😊😊😊
Made it to LIVE, and it was 😁 FUN!!! GREAT moderation, time flew by!! Such a super supportive friendly bunch!! So encouraging!!😂
Nice day in Michigan!...not at work (you know what happened) Blessed though 🙏 because I could be live with you and your loving 'FLOCK!' WONDERFUL 🌳 🍄 🐎 🌞 🌙 💚 🐢 🐐 🪴 🌱 🌿 🌾 🌵 🏵 🪴 🥒 🥕 beans 🫘 🍅 wife 👩 kids 👦 daughter 👨👩👧 mom 👩 brother 👨 Bible 📖 !!! So MUCH!!
I know a lot of emoji, 😢,but ENJOY LIFE and keep GIVING broh!!!
@CraigFox-lt6lt thank you so much Craig!!!! It was a ton of fun!!!! Thank you so much for being there!!! God bless
Thank you for your message bro I got fatty liver only drink 2 20nz can of beer only since new years. Everytime I want drink more I watched your videos
Happy to see that you are OK. Got a little worried when I didn't see you post your video earlier today.
Thank you for your concern!!! I really appreciate you! It didn't get up until midnight or so. It was just my internet or TH-cam wasn't letting me get it up. God bless😊😊😊❤❤
You’ve been through so much 💗
It's been a journey for sure! Thank you so much for watching! God bless😊😊
I just love and admire you so much LD. God bless you and your beautiful family 🫂🙏❤️
You are so nice!!! I love you too!❤❤❤❤❤ thank you! Hope to see you in the live today! God bless😊😊😊
Hey Lovely humans who want to live a better life tomorrow by learning from yesterday, living #today one moment at time.
Shoot us good vibes and prayers. Reminder I am working w a client and we had a huge 911..he stopped breathing..not alcohol related HOWEVER he has been without alcohol for 35 days!!!!!! YayayayMatthew🎉🎉🎉
I love you LD.
Keep em coming, you can do this. You have the strength of mind some of us can't imagine because of what you have and are going through. We are here for you ❤
I hang my grocery bags on my left arm , try to carry them all at once . My left arm bruises all the time , just from that little weight! I build my muscles with either 14 oz cans or just squeeze . I do Tai Chi and Qi Gong to build my legs . And fir some cardio. I have almost all them systems you do.
Zofran (Odanestron, same thing) works for me... that would be the under the tongue stuff. There's also an 8mg.
"Ginger Beer" from the grocery store often doesn't contain alcohol and helps a lot with some types of nausea. Definitely check the labels!!! (As with everything!)
What I wouldn't give to have some Zofran rn, not to mention a follow-up sooner with a cardiologist, pulmonologist, and better pain control. This is about unbearable.
I certainly understand why some people simply stop treatment and go on paliative care.
My last ALT was still high after the episode with Tamiflu toxicity.
My arms still hurt from the IVs and venipunctures in the hospital almost a month ago.
At what point do we go to the ER? (And the local hospital gave me the Tamiflu that the doctors at the transplant hospital said caused this acute liver injury, so would they even know how to treat me right? Would they? Or would they do a CYA? Which from looking at my chart, they've already started (I'm changing doctors/ healthcare systems atm, but it takes time.)
Like they say, don't ask questions you don't want answers to, and these ppl don't do necessary tests for treatment that might show their negligence... it's not a healthy relationship.)
Oh my gosh. I am so sorry. I did not know that Tamiflu was toxic to the liver. My Dr put me on it back in January or February, I can't remember. I know how you feel. It's a lot to deal with. The pain is real. I have spoken to my Dr about that multiple times and you can't take anything for it. It's just so much! I hope that you get better care, very soon! Thank you for watching! God blesz😊
You are helping so many people by sharing your symptoms! Many many prayers for you! The body is a healing machine. You will get through this! I had a person that i was close to. They were found in their 40's, in their own feces, very thin, bleeding ulcer. This person stopped drinking and lived to be 80.
Ps..reminder LD that why we need and have each other here it's not just all on you my friend okay don't stress so much I understand you want to get back to each other but in the meantime while you're doing what you need to do we can cheer for each other and cheer for you XoXoX
Dag G ! You are a true gangster to still be sitting here talking and helping others! I can't imagine the state of mind I would be in for the rest of my life if I had all that going on😮. Love your stories. You have saved me for sure 😊. Beautiful sky behind you. Love ya ❤❤❤
Hey jersey girl!!!! It's been a lot, but my mission is true and I have to stay on course, no matter what! I can't thank you enough for everything you do!!! You are really such a cornerstone to this channel! Thank you! God bless. Hope to see you today in the live!❤❤❤😊😊😊😊
Haahahah Jersey girl I wanna call him #G for some reason 😂 how are YOU?!❤
Oh the wind I can hear it in the trees
Hello There LD👋
Try pouring some witch hazel on a cotton ball and rub it on your bruise at least twice a day until the bruising begins to lighten.
A senior recommended this to me many years ago for my bruises and it actually worked.😃
Hope this helps🤗
There is also a gel called arnica that you can get at the grocery or drug store that helps with bruises. My South African friend said they used it there all the time and I have used it and it works
Thank you so much for sharing.
I'm definitely going to give Arnica Gel a try👌
Thanks Again 😃
Thank you so much for the advice! I will try that out! Hope you are having a great day! God bless😊😊😊❤❤❤
Still got gastristis also .Can't quit coffee and acidy foods . Lot of veggies are acidy. Almost every one with liver disease has reflux.
Hey LD thanks for the video on all you noticed, I had alot of the same things as well and just brushed it off. See ya in tomorrow's life. Love ya! ❤
You are so very welcome!!!! Thank you so much for watching!!!! I am so sorry that you have had the same things happen. See you later! God bless😊😊😊❤❤❤❤
I went on a date with an alcoholic. He had drunk 3 pints of beer before I arrived to meet him at lunchtime in London.
He took me straight to a bar where he drank another 4 pints.
He looked like he'd lost a lot of muscle and he looked skinny fat.
He barely ate lunch, just picked at his food. But was able to drink another 4 pints.
At this point he started talking about the past and then cried. Sobbing about his ex girlfriend and his parents.
It was very sad.
He crashed at mine and in the morning I could hear him violently throwing up in the bathroom (he'd slept on the couch)
Before he left, he opened my cupboard and found a bottle of rum that was a quarter full and he finished it off in about 5mins.
Then he got a cab.
There wasn't another date. He was very ill and shouldn't have been dating.
He became abusive over the phone and threatened me. I said I'd call the police and blocked he left me alone
This story is so horribly sad 💔😖
Thank you so much for turning your personal pain into helping others. Must be tough to revisit the past. ❤❤❤
You are so welcome! It can be at times, but I feel like it's so important to talk about this to make people aware. Thank you! God bless😊😊❤❤
THIS IS why, HuMANS, BECAME INTERVENTIONIST OR like JD he is holding a ONLINE RECOVERY LEADER with life experience. No book can teach you say the Bible of recovery in AA.
I never had anyone no one cheer me ,educated me, support #Sponsor
I became WHAT I needed and now I am blessed I can help. I hear and read testimonials ❤
So happy to see your ok
Thank you so much Kristen!!!! I don't think this uploaded until midnight. I was sleeping when it finally got up. God bless😊😊❤❤
@@liverdisease-qb6rk phew
I was asleep too lol
For the breast part it’s called gynecomastia, I had it too and was in pain for around a month, I got myself a scan because the pain was 5 out of 10 and was scared if it was a tumour or not, please get the scan done because it can happen while rare but it is one thing out of your mind
I am so sorry. I hope you are doing well now. Thank you for sharing this! I will talk with my Dr about it. God bless😊
Hey LD great to see you outside today the trees are awesome background watching you is like seeing great artwork! Stay strong and positive and focused my brother, smile and laugh and love in your family and thanks for sharing your miracle. I’m looking forward to reading your books 😊
Thank you so much brother!!! I can't thank you enough for your continued support!!! Hope you are having a great day and hope to see you in the live today! God bless😊😊😊
I agree. I hate living in a big city! I want the country left fe so badly.
Life **
Another good video, thank you so much for your effort in helping others understand what alcohol causes. Big hugs!
Thank you so much chickensdontsurf!!!! Big hugs back to you!!!! God bless😊😊❤😊😊
Hi mate. I don't blame you must be exhausting replying to all the comments! sounds like you've had the whole thing but keep going I am impressed. I have been a heavy drinker over 10 years recently cut down. Have had liver pain for years. Blood tests are normal but I still think it is Cirrhosis. I also think I have diabetes. Did you get the cirrhosis before the diabetes. Just wondered. Keep the videos up. Dave.
In another video he said the diabetes occurred after the cirrhosis.
I found out I had diabetes before I knew I had cirrhosis. Sorry that you are having that pain. It's very scary. I hope that you are doing well! Thank you! God bless😊😊😊
Keep ‘em comin!
I sure will! Thank you for watching!!! God bless😊😊❤❤
Blenheim Ginger Ale. Last place I found some was in Sumter, SC.
Another Excellent Video!❤ Liked and shared.👍
That is so awesome!!! Thank you so much! ❤❤❤😊😊😊 God bless
I asked you for this topic, thank you so much for your honesty. I know someone who has all the symptoms and has delayed medical care. It’s heartbreaking 💔
They can't do anything anyways.
@@xyz12345457 thank you
Hey LD: I am allergic to ondranistran, but find the ginger-lemon tea help my nausea, those "liver headaches" are a pain to deal with. The fatigue-napping 2-3 hrs a day is UGh! Once again, thank you! Stage 4 cirrhosis is lonely, and you surely help me. ❤❤😊😊
Prayers for you!
@@Mmoose712:)
I know that feeling of itchiness..
I have phantom itch
It literally drives me insane.
I’ll smack myself trying to stop the itch. Nothing helps
I'm trying to find answers to my own health struggles; and you've been shedding light on a lot for me. Thank you so much for your time and sharing your wisdom, and the lessons in between. Keep going strong and God bless your path in all ways.
I hear a cardinal in the background. Love nature.
Hi Ld I'm glad to see youre doing pretty good. I took the onerdsteran to and it seemed to help me too. Take Care of yourself.Exercise for at least #0 minutes a day.
Hey there! Thank you! I'm glad to hear that helps you too! It's a life saver for me! You so the same! God bless😊😊😊❤❤❤
I have fatty liver disease my fatigue is getting worse. No energy. Losing muscles. Strength. I don't feel like myself anymore. I haven't drank in years. I get the shortness of breath. Head aches all the time. I'm almost positive my fatty liver has progressed to cirrhosis haven't had an ultrasound in 2 years.
Oh my gosh! Without drinking? What could cause such a thing?
Food @@KristiLEvans1
Great vid. I didn’t realise you were diagnosed same time as me roughly. Apr ‘22 for me.
I didn’t have as many of the symptoms I was just very sick and I never vomit so I was taken to A&E. They ran some tests and made the diagnosis.
I had the oedema, slightly darker urine and auditory hallucinations though (which was the worst-as I thought I could hear music).
No other complications though which I am still regularly checked for. Oh and I was 41 at the time too.
The last video symptoms was Scary. WOW
Thanks LD great two part video and such a good topic thank you for sharing your life and struggles with us .
❤LD❤
❤❤❤❤❤❤❤ love you too!! God bless😊😊😊😊
I have to work, but I am sure I'll pop in on the live and see who's around. I've taken both forms of Ondansetron and the sublingual tablets don't really work at all.
I have one question: What are you going to do to overcome this now? You’re a very smart man and yes you’ve been through a Lot but you can do this.💞🙏
He has cirrhosis. Short of a liver transplant, all he can do is take his medication, eat right and do the best he can to live in the moment.
@@DJ-bj8ku I understand that. All I’m saying is a person needs to keep a positive mindset.
@@CMoore8539And what will a positive mindset do for him? Serious question.
I just hang In here and try my best to stay positive and stay busy so I don't think about it too much. Thank you! God bless😊
Thank you for your videos man I watch every single one, much love from RI ✌️
More since covid because everyone overeating and covid causes diabeties .Dr.Cambell said. Both my sisters got it after covid.
Chef I am so sorry that you had to go through all of this? And it continues with nausea.. you are helping so many people out. Thanks again for your continued support and for your channel . I thought you had said you were going to post the video of your old cooking add? The one you played a bit of your voice sounded so raspy.
LD are your ALT and AST levels high when you get blood work done?
Hi LD. Hope you had a great day. Great video!
How long ago was it they said you had a year to live?
Is your disease progressing or is it stabilized?
It was 1.5 years ago! So.... they were wrong!!!! I am not sure right now on that. I will know at the end of this month how I am doing and will.let you all know. Thank u so much! God bless😊😊😊❤❤❤
Not sure if you are on Ozempic for blood sugar issues? That seems to cause nausea in a lot of people. Your physician may be able to modify the dosage.
so no neuropathy? That's great.. I deal with it everyday
Did you have any bladder symptoms? i've been having bladder spasms.
Hey there. I am so sorry to hear that. I did not. I hope that helps. Thank you! God bless😊
I know you speak a lot about your pancreas but is there a plan to transplant your liver at some point? I hope you don’t mind my asking.
Hello. No, I am not on the transplant list. They will not do one for multiple reasons. The biggest one is the blood clots in my portal vein and spleenic vein. Hope this helps. Thank you! God bless😊
Did you work while drinking at your peak for years? Prior to diagnosis.
Are you able to work now with your symptoms? I think that’s an important question as it shows how it impacts your life outside of the body but also your mode of income, source of support for possibly children and family, paying for a house, etc.
Have u ever tried the little puff melt in your mouth peppermint?
No, I have not. What is that?? I'm not sure what that is.
@@liverdisease-qb6rk I’ll look it up for ya.
Peppermint puffs
Sold at Wal Mart & Amazon.. so good
@@liverdisease-qb6rk I’d grab a handful after therapy lol
@@Kristen10-22 sweet!!!
Would a carnivore diet help at all?😮
Will the liver rejuvenate somewhat when you quit drinking? Do people look down on you for causing your own illness? I used to drink lots of beer but quit due to old age.
Could you please tell me what your Mail scores were last time you had them checked my son is at 27
Do you mean MELD score?
Hi.... You must have hit it really hard To get liver disease so young..
I think their is a predisposition..this is SO rare.❤
He probably was vulnerable.
How high would your heart rate go?
l never drank, l could never stand the taste of it, l’m here to learn what to look for in my 22yr old alcoholic son.🤦🏼♂️
Can you take testosterone?
I don't know. My Dr didn't seem very keen on doing it. I asked him and he told.me to give it time. Thank you for watching! God bless😊
Are you on a liver transplant list??? Have doctor's given you a life expectancy?
I am not. I was told I had 1 year..... 1.5 years ago, so.... I'm past that! Thank you! God bless
Hey did you smoke bro?
Yes he did smoke but He quit.👍
I sure did. My whole life until 2 years ago. Thank you! God blesz😊
They call them gin blossoms.