If my CKD had been brought to my attention before I reached stage 3 I could have taken steps to halt its progression! I am now desperately playing catchup trying to reverse it.
Beyond not letting patients know, they Don't Give Valuable Information About How To Prevent Decline! I had to do all my research about diet, seek out a renal dietitian and Tell My Dr. I Wanted Closer Blood Testing! I have one kidney, due to cancer, 2014 and have avoided dialysis by diet...it's been as low as 8% gfr/5.85 creatine May 2023 and high of 43 when I first got my kidney removed. Currently I know for sure my weight, food intake, fluid intake are bringing me back. Currently I'm at 24%gfr 2.35 creatine. I'm 70 years old female
I am really ticked at my doctor, He never told me what to eat or what to drink, just drink water. I told him I am and that was that.Now I have stage 3b kidney failure. I have gotten more info from doctors on here than from him.
My primary care resident told me not to worry about an eGFR of 60 since I’m 62 years old…. My A1c is 5.7and creatinine was slightly high. One time my eGFR was 54…. My 3 deceased brothers and both parents had kidney disease. My mother died from ESRD and septic multi organ failure. So, hell yeah, I’m concerned and I want to be followed more closely!
Didn’t hear about CKD until second Dr. sent me for kidney test already stage 3 had to catch up on Kidney Disease real fast. Some Dr’s. Need to up their game when it comes to kidney disease. Rheumatologist should monitor this so much closer than they do.
My husband (73)was just admitted 3 days ago for acute kidney failure. We don’t know what’s happening. Anyway, I found your channel and I want to thank you so much. You helped me to understand this more and I feel so much better. Again Thank you so much, you have no idea how much you help people. God bless you
Thank you so much for your channel. I am considering donating my kidney (if I qualify) to my brother who has ESRD. I really respect your videos and look to it as a reliable resource. Thank you again.
My husband's numbers in Oct 2022 was stage3b, by December,kidneys failed! He was on one kind of high blood pressure as young as 40 ,he was 72 when kidneys failed.
Thank you for this information,Its very stressful at first i was going to go vegan but im doing vegetarian no red meat i have several risk factors hoping i never need dialysis ❤
Thanks Doc… thanks for your brief but very informative and impactful videos re CKD. I intend to send this video to my birthday club, a group of elderly ladies, because I think that they depend on getting good and timely information from their doctors. I know I used to think this until I was diagnosed at stage 3a CKD. I believe like (maybe) you do, that people need to know the direction their kidney function is heading asap, long before stage 3a for sure. I feel sorry that the doctors I’ve seen since my late 40s/early 50s were not able to give me a brief explanation of CKD. Nevertheless, thank goodness for google and my ability to do research. I’ve found your channel and you’ve given me a plausible explanation. My GFR is still between 44 and 46 and I’m struggling to raise the number to 50. Any suggestions for protein substitute? I’m trying to maintain my current weight. Thanks
Eat plant based protein and cut out carbs to 20 to 30g a day and no sugar. I did that and in 2 months my GFR went from 43 to 58 but it’s a lifestyle change
I have one book out, and others on the way (10 Things Your Doctor Won't Tell You About CKD) that addresses just this issue. In her memoir, “The Hiding Place,” Holocaust survivor Corrie ten Boom tells the story of a conversation she and her father had when she was a young girl. Corrie visited my high school giving a talk about her experiences, and sharing her wisdom. She told us a story about she and her father on a train ride when she was a young girl. She had asked him a question about sex. Rather than answering her directly, Corrie’s father sat quietly, contemplating his next move. He then reached over his head and hoisted down a heavy suitcase. “Will you carry it off the train, Corrie?” her father finally asked. After a brief struggle to lift the suitcase, Corrie confessed her inability to heft it off the ground: “It’s too heavy.” “Yes,” he said. “And it would be a pretty poor father who would ask his little girl to carry such a load. It’s the same way, Corrie, with knowledge. Some knowledge is too heavy for children. When you are older and stronger you can bear it. For now you must trust me to carry it for you.” Depending on the PATIENT'S ability to handle information and desire to change, you can give them more information. By NOT telling us about Stage One, and explaining the numbers doctors HURT us. I have AKI, and only ONE doctor (Conrad Deel, MD, nephrologist) has explained everything in detail. He puts other doctors to shame. Doctors SHOULD TELL US the instant our blood work shows a problem. Right now there is new research about using ACE Inhibitors to slow/stop declining kidney function.
The blood tests for kidney health are pathetic. eGFR > 60 and you are okay, and then below 60 you at Stage 3a kidney disease and everybody starts panicking!
I was diagnosed with stage 2 CKD and the doctor didn't even tell me. I had to find out through my patient portal. The nurses do a terrible job of explaining what the doctor has said about my visits and blood work when they call to give me results from my labs. All the nurse said was the doctor said you have damage to your kidneys, drink more water. They didn't say "You have stage 2 CKD. 😩😫 I don't know if the water is gonna help treat the issue because it's never clear on what I'm supposed to be doing. It angers me to even think of what else I may not know that they are not telling me. Please forgive me if this sounds like my frustration is aimed at you. It's not. Do you have any advice as to how I go about getting answers so that I can get a clear understanding on what needs to be done. I am getting fed up and I am also thinking of finding another Doctor.
The arrogance and patronizing from doctors is beyond belief. Let's keep the idiots in the dark about their health... I found out through a work related health check that I have stage 2 ckd. Checking back with my gp turns out I have had this condition since at least 2018. I'm so pissed. Doctors are literally useless, only good for prescription of drugs. Na, don't talk to the patient about diet, lifestyle and habits that could ruin his life. Patients are too dumb to understand anyways. Let's not bother the patient with his own health, he doesn't wanna know anyway... I don't have the words to express how mad I am...
I only found out by looking at my boyfriend’s paperwork they left him with when being discharged from a hospital stay for heart failure. I was looking over it before we left so I could ask any questions I had before we left. I asked the nurse what’s this CKD kidney stage 3b? she repeated what I said and then said as she took her cellphone from her pocket “oh lets ask the (something like the almighty) google says. I was shocked that she didn’t know it maybe she was being a b- and was making a point I could had googled it. Crazy that no one told him or me about it and if it wasn’t for me asking them we wouldn’t had known. I’m so lost I see the medication they put him on are actually things that can make is kidneys worse. It’s like the egg or the chicken which caused what? Also wanted to add can’t believe the doctor who did a lithoscropy or whatever didn’t check his kidney function after to make sure they still worked and also didn’t become a diabetic Still don’t know
Lets go Geminis🎉 So Doc, my primary found my gfr was is what he said was stage 2 but acted like it was no big deal. Kidney problems run in my family. What are my next steps to be sure I am keeping tabs on things?
Outstanding as always thanks for the explainer. This gives me some more info in the fight to prevent my family from suffering from ESRD. I love the hair but isn't your neck hot? Just asking lol. I remember years before my ESRD diagnosis my doc told me I had protein in my urine, then said nothing else about it. Then I got ill, went for blood tests and I was told I had full blown ESRD! Totally blindsided, I am not sure how that happened but here we are.
Thanks for your support as always! This comment answers my question to your other one. Your story sounds a lot like my husband’s. 😢 And yes the hair is hot. 🤣 Shot this video on one of our rare days with temps in the 80s. If you look closely you’ll see the sweat beading on my lower lip for the 1st half of the video!
Yes stories like your husband's and mine are regrettable and challenging. However, I have found strength in surviving and purpose beyond just living I am sure your husband has too. As for the hair if you can get it into an "up-do" you may get some relief. Your passion for our health, your assessment of medicine in the U.S., your hair and smile are all stunning Dr Grubbs. You are respected and appreciated greatly!
Hello Dr., being stage 3 CKD, do you make any modifications to your diet? Like high Phosphorus foods? I maintained stage 3 for 11 years by drastically reducing or eliminating lentils, legumes and multigrain breads. Hadn’t eaten white bread since I was a kid but I made that change (although I rarely ate bread in order to watch my carb intake).😊
I am a 78 year old white male with diagnosed with stage 3A I weigh 170 pounds 510 height I have a very low energy they say my kidneys are on 58% function. What do you think about this and what’s the timeline please thank you. I do not have high blood pressure but I do have pre-diabetes.
Gfr of 13.. Does not want dialysis. High creatine.. Doing renal diet. Husband had quadrupled by pass.. Not a diabetic. Only has one kidney.. What is the prognosis...
I searched all videos for the term "lithium" and came up empty. Would it be possible to do a video on long term lithium use and CKD? I have CKD due to lithium nephropathy. Thanks!
Hi Doctor. I am desperate! Please help me understand my stage 3A ckd. Creat- 1.32 GFR- 47 Htn controlled with meds hctz Glucose 122 fasting creeping up. I am 80 lbs overweight. Stroke in 2018 Severe IBS causes chronic dehydration. Drinking 100 cc water daily Starting new diet tomorrow. Starting walking 30 mins daily tomorrow Am I too late to fix this kidney disease? Is a carnivore or keto diet okay for me with this condition? I am afraid to die early. I am also afraid of dialysis. HELP ME PLEASE! I need direction. I’ve been told I’m stage 3A ckd. I have not been told how to fix it.
Google kidney failure risk equation. You input your gfr and other labs and it tells you your risk. I’ve been in ckd 3a for 15+ years. I’ve been told I will most likely never need dialysis. I’m also type 1 diabetes for 41 years. I wish the best for you
@@karentrombetta3820 Good point, seems like I have been in stage 3a for years. Looking back at my GFR was way low at 60, but has been stable over the last 15 years. Everyone is different
"Create anxiety"? No, let's wait until stage 3B and then create anxiety. What the hell?!
If my CKD had been brought to my attention before I reached stage 3 I could have taken steps to halt its progression! I am now desperately playing catchup trying to reverse it.
I agree.
Look up acacia fiber. And take calcium carbonate to bind to the phosphorus.
@@thewordsmith5440
Thank you!🌻
Beyond not letting patients know, they Don't Give Valuable Information About How To Prevent Decline! I had to do all my research about diet, seek out a renal dietitian and Tell My Dr. I Wanted Closer Blood Testing! I have one kidney, due to cancer, 2014 and have avoided dialysis by diet...it's been as low as 8% gfr/5.85 creatine May 2023 and high of 43 when I first got my kidney removed. Currently I know for sure my weight, food intake, fluid intake are bringing me back. Currently I'm at 24%gfr 2.35 creatine. I'm 70 years old female
I am really ticked at my doctor, He never told me what to eat or what to drink, just drink water. I told him I am and that was that.Now I have stage 3b kidney failure. I have gotten more info from doctors on here than from him.
You must be doing a lot right to last so long as you are. I wish blessings and peace for you. I was just diagnosed myself. 🙄🙃
I agree, we should be sent before gfr reach 30 and ckd stage 3. Teaching should start around 60 or 50
My primary care resident told me not to worry about an eGFR of 60 since I’m 62 years old…. My A1c is 5.7and creatinine was slightly high. One time my eGFR was 54…. My 3 deceased brothers and both parents had kidney disease. My mother died from ESRD and septic multi organ failure. So, hell yeah, I’m concerned and I want to be followed more closely!
Didn’t hear about CKD until second Dr. sent me for kidney test already stage 3 had to catch up on Kidney Disease real fast. Some Dr’s. Need to up their game when it comes to kidney disease. Rheumatologist should monitor this so much closer than they do.
I appreciate your easy informative manner - clear, honest, vulnerable, open
My husband (73)was just admitted 3 days ago for acute kidney failure. We don’t know what’s happening. Anyway, I found your channel and I want to thank you so much. You helped me to understand this more and I feel so much better. Again Thank you so much, you have no idea how much you help people. God bless you
I pray he is ok now. Can I ask if he had any prior health issues? Heart Covid etc?
Thank you so much for your channel. I am considering donating my kidney (if I qualify) to my brother who has ESRD. I really respect your videos and look to it as a reliable resource. Thank you again.
Your hair is beautiful 👸🏿 much love.
My husband's numbers in Oct 2022 was stage3b, by December,kidneys failed! He was on one kind of high blood pressure as young as 40 ,he was 72 when kidneys failed.
Thank you for this information,Its very stressful at first i was going to go vegan but im doing vegetarian no red meat i have several risk factors hoping i never need dialysis ❤
love wat u have 2 say pls upload more
Thank you for the positivity! And your hair looks gorgeous!
Thanks Doc… thanks for your brief but very informative and impactful videos re CKD. I intend to send this video to my birthday club, a group of elderly ladies, because I think that they depend on getting good and timely information from their doctors. I know I used to think this until I was diagnosed at stage 3a CKD. I believe like (maybe) you do, that people need to know the direction their kidney function is heading asap, long before stage 3a for sure. I feel sorry that the doctors I’ve seen since my late 40s/early 50s were not able to give me a brief explanation of CKD. Nevertheless, thank goodness for google and my ability to do research. I’ve found your channel and you’ve given me a plausible explanation. My GFR is still between 44 and 46 and I’m struggling to raise the number to 50. Any suggestions for protein substitute? I’m trying to maintain my current weight. Thanks
Eat plant based protein and cut out carbs to 20 to 30g a day and no sugar. I did that and in 2 months my GFR went from 43 to 58 but it’s a lifestyle change
Thanks for giving us the truth! I need facts and truth, not knowing is very stressful for me. I need information. Please Keep giving us information.
I have one book out, and others on the way (10 Things Your Doctor Won't Tell You About CKD) that addresses just this issue. In her memoir, “The Hiding Place,” Holocaust survivor Corrie ten Boom tells the story of a conversation she and her father had when she was a young girl. Corrie visited my high school giving a talk about her experiences, and sharing her wisdom. She told us a story about she and her father on a train ride when she was a young girl. She had asked him a question about sex.
Rather than answering her directly, Corrie’s father sat quietly, contemplating his next move. He then reached over his head and hoisted down a heavy suitcase.
“Will you carry it off the train, Corrie?” her father finally asked.
After a brief struggle to lift the suitcase, Corrie confessed her inability to heft it off the ground: “It’s too heavy.”
“Yes,” he said. “And it would be a pretty poor father who would ask his little girl to carry such a load. It’s the same way, Corrie, with knowledge. Some knowledge is too heavy for children. When you are older and stronger you can bear it. For now you must trust me to carry it for you.”
Depending on the PATIENT'S ability to handle information and desire to change, you can give them more information. By NOT telling us about Stage One, and explaining the numbers doctors HURT us. I have AKI, and only ONE doctor (Conrad Deel, MD, nephrologist) has explained everything in detail. He puts other doctors to shame. Doctors SHOULD TELL US the instant our blood work shows a problem. Right now there is new research about using ACE Inhibitors to slow/stop declining kidney function.
where can I find the book
@@txmom1122 Amazon
The blood tests for kidney health are pathetic. eGFR > 60 and you are okay, and then below 60 you at Stage 3a kidney disease and everybody starts panicking!
loving the hairstyle...you are so pretty...and give great info thanks
I was diagnosed with stage 2 CKD and the doctor didn't even tell me. I had to find out through my patient portal. The nurses do a terrible job of explaining what the doctor has said about my visits and blood work when they call to give me results from my labs. All the nurse said was the doctor said you have damage to your kidneys, drink more water. They didn't say "You have stage 2 CKD. 😩😫 I don't know if the water is gonna help treat the issue because it's never clear on what I'm supposed to be doing. It angers me to even think of what else I may not know that they are not telling me. Please forgive me if this sounds like my frustration is aimed at you. It's not. Do you have any advice as to how I go about getting answers so that I can get a clear understanding on what needs to be done. I am getting fed up and I am also thinking of finding another Doctor.
Thank you for this information, and like your hair, and the colour
The arrogance and patronizing from doctors is beyond belief. Let's keep the idiots in the dark about their health... I found out through a work related health check that I have stage 2 ckd. Checking back with my gp turns out I have had this condition since at least 2018. I'm so pissed. Doctors are literally useless, only good for prescription of drugs. Na, don't talk to the patient about diet, lifestyle and habits that could ruin his life. Patients are too dumb to understand anyways. Let's not bother the patient with his own health, he doesn't wanna know anyway... I don't have the words to express how mad I am...
Thanks Take good care also
I only found out by looking at my boyfriend’s paperwork they left him with when being discharged from a hospital stay for heart failure. I was looking over it before we left so I could ask any questions I had before we left. I asked the nurse what’s this CKD kidney stage 3b? she repeated what I said and then said as she took her cellphone from her pocket “oh lets ask the (something like the almighty) google says. I was shocked that she didn’t know it maybe she was being a b- and was making a point I could had googled it. Crazy that no one told him or me about it and if it wasn’t for me asking them we wouldn’t had known. I’m so lost I see the medication they put him on are actually things that can make is kidneys worse. It’s like the egg or the chicken which caused what? Also wanted to add can’t believe the doctor who did a lithoscropy or whatever didn’t check his kidney function after to make sure they still worked and also didn’t become a diabetic Still don’t know
Lets go Geminis🎉 So Doc, my primary found my gfr was is what he said was stage 2 but acted like it was no big deal. Kidney problems run in my family. What are my next steps to be sure I am keeping tabs on things?
God Bless....
Outstanding as always thanks for the explainer. This gives me some more info in the fight to prevent my family from suffering from ESRD.
I love the hair but isn't your neck hot? Just asking lol.
I remember years before my ESRD diagnosis my doc told me I had protein in my urine, then said nothing else about it. Then I got ill, went for blood tests and I was told I had full blown ESRD! Totally blindsided, I am not sure how that happened but here we are.
Thanks for your support as always! This comment answers my question to your other one. Your story sounds a lot like my husband’s. 😢 And yes the hair is hot. 🤣 Shot this video on one of our rare days with temps in the 80s. If you look closely you’ll see the sweat beading on my lower lip for the 1st half of the video!
Yes stories like your husband's and mine are regrettable and challenging. However, I have found strength in surviving and purpose beyond just living I am sure your husband has too.
As for the hair if you can get it into an "up-do" you may get some relief. Your passion for our health, your assessment of medicine in the U.S., your hair and smile are all stunning Dr Grubbs. You are respected and appreciated greatly!
@@mikerossgup Not you giving me hair tips! 🤣🤣 I’m so glad you’ve come so far.
Hello Dr., being stage 3 CKD, do you make any modifications to your diet? Like high Phosphorus foods? I maintained stage 3 for 11 years by drastically reducing or eliminating lentils, legumes and multigrain breads. Hadn’t eaten white bread since I was a kid but I made that change (although I rarely ate bread in order to watch my carb intake).😊
I eat sprouted bread
I’am 74 my primary care says it’s part of getting older!!!! Check blood again in 6 months.
I am a 78 year old white male with diagnosed with stage 3A I weigh 170 pounds 510 height I have a very low energy they say my kidneys are on 58% function. What do you think about this and what’s the timeline please thank you. I do not have high blood pressure but I do have pre-diabetes.
Gfr of 13.. Does not want dialysis. High creatine.. Doing renal diet. Husband had quadrupled by pass.. Not a diabetic. Only has one kidney.. What is the prognosis...
I searched all videos for the term "lithium" and came up empty. Would it be possible to do a video on long term lithium use and CKD? I have CKD due to lithium nephropathy. Thanks!
May I ask what your eGFR was prior to donating a kidney to your husband?
What if u have a cyst on ur kid ey
Are you able to work a full time job while on dialysis
If u go on peritoneal dialysis yes
Hi Doctor. I am desperate! Please help me understand my stage 3A ckd.
Creat- 1.32
GFR- 47
Htn controlled with meds hctz
Glucose 122 fasting creeping up.
I am 80 lbs overweight.
Stroke in 2018
Severe IBS causes chronic dehydration.
Drinking 100 cc water daily
Starting new diet
tomorrow.
Starting walking 30 mins daily tomorrow
Am I too late to fix this kidney disease?
Is a carnivore or keto diet okay for me with this condition?
I am afraid to die early.
I am also afraid of dialysis.
HELP ME PLEASE!
I need direction. I’ve been told I’m stage 3A ckd. I have not been told how to fix it.
Google kidney failure risk equation. You input your gfr and other labs and it tells you your risk. I’ve been in ckd 3a for 15+ years. I’ve been told I will most likely never need dialysis. I’m also type 1 diabetes for 41 years. I wish the best for you
@@karentrombetta3820 Good point, seems like I have been in stage 3a for years. Looking back at my GFR was way low at 60, but has been stable over the last 15 years. Everyone is different
They want to make $$$$