3 years after blood clots - recovery update from pulmonary embolism

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  • เผยแพร่เมื่อ 27 ต.ค. 2024

ความคิดเห็น • 66

  • @bettystouffer6012
    @bettystouffer6012 9 หลายเดือนก่อน +2

    Sooooo much detail to recovery!!!! I appreciate the peek into the possible blueprint of what to look forward to! 🙏
    It really helps as a patient in order to be more proactive and prepared, to know what some of these tests are about and how to work as a partner with your doctors in being knowledgeable enough and fluent with this information. These are are OUR bodies!! We must be the Captain in navigating through care to partner with our doctors . It's a matter of life and death sometimes...keep that fire lit under our bottoms to keep the sense of urgency going during our path to wellness ❤

  • @sarahsalsa2461
    @sarahsalsa2461 ปีที่แล้ว +7

    Hi Mel! Just discovered your channel.
    Back in July this year, I woke up in extreme pain in my ribs area.
    It was so severe I couldn't get up. I was stubborn (and perhaps stupid lol) to not go to the hospital. I lasted around 6 hours with this intense pain, before I asked my mum to call the ambulance. When she did, I went to the hospital. After awhile they diagnosed me with bilateral PE's. I stayed in hospital about a week, was released and 2 weeks later was discovered to have fluid on my lungs and chest. Woke up with severe chest pain, right side. Admitted to hospital upon arrival, had to have the fluid removed/drained (worst pain I've ever felt) the procedure caused lung damage, which didn't help things.
    I stayed in hospital for just under 2 weeks. Haven't been back yet so far!
    I was put on Clexane while in there the first time and have been taking it for almost 4 months now.
    I still experience sharp pain in my lungs/rib area on both sides and right side chest. The pain feels like being punched or a consistent stabbing/sharpness.
    Next month I see my specialist, to see if I have to be on Clexane for the rest of my life.
    Sorry for the long comment, or a random strangers story you could do without learning lol.
    I just wanted to thank you for putting this information out there and sharing your journey on this matter, and what it's like/your experience all these years on.
    Sending good vibes and may you have a most wonderful day! ✨

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      Thank you for sharing your story! The more people see that everyone has different experiences it helps with anyone going through something similar. I appreciate information people put out there as you never know when it may come in useful in your own case.
      I have my appointment with the respiratory specialist soon so will hopefully provide an update in the near future.
      I wish you all the best for your recovery! ❤️‍🩹

    • @sarahsalsa2461
      @sarahsalsa2461 ปีที่แล้ว

      @@MelsHealth Thank you so very much for readingmy story/replying to my comment!
      I agree. Hopefully all the information out there will help others with their journies. 🙏
      I hope your appointment goes well!
      I wish you the best with it and with your continued recovery.
      Thank you kindly! I appreciate that ❤🤗

  • @robertnairn5099
    @robertnairn5099 หลายเดือนก่อน

    Thanks for sharing. I had a bilateral pulmonary embolism at the start of this year (28M). I was on Xarelto/Rivoroxaban 30mg to 20 mg 3 month schedule. 3 Days after coming off Xarelto I had no ‘symptoms’ but had on odd feeling, more in my head than leg and was eventually convinced to go to A and E… Boom - it had happened again and within 24 hrs my right leg was un-usable. I had no risk factors or family history of clotting. I hope everyone reading this is well and please please trust your gut. ❤ I’m also on warfarin for life and get bad chest pains 😢

  • @hoangal
    @hoangal 9 หลายเดือนก่อน +2

    I'm the middle of binging all your content as fast as i can possibly can. I'm 38 and just discharged yesterday from the hospital after suffering a sudden unexpected large saddle pe (cause likely being the c-pill). My journey is just beginning, but you've at least given me some a foundation and hope that i may be able to return to some semblance of a normal life. Thank you for putting these out to the world and sharing your experience.

    • @MelsHealth
      @MelsHealth  9 หลายเดือนก่อน

      Thanks for watching and I hope the info helps. There’s a lot of Facebook groups to utilise as well. I hope you have a speedy recovery.

  • @tonytrevor9779
    @tonytrevor9779 10 หลายเดือนก่อน +2

    I was just diagnosed with pulminary embolism. Your video reminds me to keep advocating for yourself. Even in this stage of my journey this can't be understated. Good luck to you in yours.

  • @phoebekwete
    @phoebekwete ปีที่แล้ว +6

    Been following your videos. Thank you so much for sharing your experience! I’m 31, diagnosed with multiple bilateral embolisms as well about 2 months ago. Dr’s are querying oral contraceptives (which I only started taking less than a year before I got diagnosed) and a lap-scope surgery I had 2 months ago. I’m on Xaralto daily. It isn’t an easy journey. Watching your videos and reading people’s comments is very encouraging to me ❤

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว

      I’m glad the info has helped. I too found it helpful to see others in the same boat and what their experiences have led to. I hope you have a good recovery and start feeling yourself again soon.

  • @maryreinhardt8661
    @maryreinhardt8661 4 หลายเดือนก่อน +2

    Thank you! This helped me understand some aspects of my brand new diagnosis! I am glad to hear that you are still doing lots in life. Thank you!

  • @TOTO_209
    @TOTO_209 ปีที่แล้ว +4

    I had bilateral pulmonary embolism 8 months ago and still get aches like the ones you described here and there. Thanks for this information. Wishing you the best.

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      Sorry to hear that, hope you see some improvement soon!

    • @marjn1030
      @marjn1030 10 หลายเดือนก่อน +1

      ​​​@@MelsHealthI'm so glad to see you. I had a dvt that turn to a p/e. In the beginning I had the little shortness of breath but with plant base foods God and prayer definitely helped. I really focused on helping my blood deficiency by getting blood test for vitamin b12, 6, folate, vitamin c, d, magnesium, iron, omega 3, and deep breathing, avoid dehydration and coq10 helped too. There is a clinical study done on greens and blood thinners and they found out leafy greens help with anticoagulation 50% and I found out high cholesterol, fatty foods, high sugary foods and calcium not good to the bones which comes from not eating leafy greens (vitamin k) can be the cause of a blood clot. I'm trying to talk to doctors too and It's just so difficult because all they want to do is talk about the drugs not vitamin and mineral deficiencies which is the root cause of most diseases but I'm going to keep knocking until I get a answer.🙏🏼

  • @gillianjohnston2168
    @gillianjohnston2168 หลายเดือนก่อน

    Thank you for the information. New to all of this. This is my second week home from hospital with blood clots in both lungs.

    • @MelsHealth
      @MelsHealth  หลายเดือนก่อน

      @@gillianjohnston2168 sorry to hear you’re going through this. There is light at the end of the tunnel and I hope you see improvement soon. It’s a long journey and everyone’s recovery is unique. There’s plenty of info online and there are also very active groups on facebook which can help you get other people’s perspectives too. It also helps to see that you’re not alone in this and there are many others who can empathise with what you’re experiencing.

  • @richardstever3242
    @richardstever3242 10 หลายเดือนก่อน +1

    I really respect and appreciate what you are doing here with your channel Mel. Welcome to Canada and I wish you a Merry Christmas from Ontario.
    P.S. - thank you for the inspiration

    • @richardstever3242
      @richardstever3242 10 หลายเดือนก่อน

      I will be back in the new year to share my take from your videos and comments section.

  • @Bearleaux
    @Bearleaux ปีที่แล้ว +2

    I'm a month post submassive PE, and I'm starting to ramp up my workouts again. I have the same pain in the chest and lungs. The Dr has also ordered a ton of blood tests to see if it's genetics or if it was a triggered event. 2 specialists are leaning towards hormone replacement. I've thought about starting a channel with all of my experiences as your channel is one of the only ones that really dives in to the specifics.

  • @joannesaltfleet2071
    @joannesaltfleet2071 ปีที่แล้ว +4

    I had blood clots in both lungs back in 2017 and thankfully I managed to make a full recovery and I am on Xarelto indefinitely which I don't mind as its one tablet a day and I take that daily and go out and live my life as I see fit!

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      I feel the same about being on Warfarin. It's a slight inconvenience but that's all. I still live my life haha

    • @maurogarcia3277
      @maurogarcia3277 5 หลายเดือนก่อน

      ​@MelsHealth I just had one a couple of months ago. Is there anyway I can get in touch with you.

  • @Ankithgarg
    @Ankithgarg ปีที่แล้ว +2

    Went through PE a few months back after a accident, broke my knee which led to dvt followed by PE. Thanks for the video. Still suffering from sob inspite of all results coming in as negative. Waiting for more videos thanks

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว

      Sorry to hear you’re going through this and hope recovery isn’t too long for you. I’ll try and get an update done in the next couple of weeks.

    • @Ankithgarg
      @Ankithgarg ปีที่แล้ว

      @@MelsHealth thanks 🙏

  • @hboss7039
    @hboss7039 9 หลายเดือนก่อน +2

    All the best to you everyone suffering 🙏, I’m 24 and got it 3 months ago after my acl surgery, but I’m on blood thinners which will be reviewed at the 6 month point. I would like to know how long have people been kept on blood thinners and how life is now.

  • @rodneyadamson8270
    @rodneyadamson8270 7 หลายเดือนก่อน

    Thank you for this information after 2 years I am still not 100%. I still get winded easy, and I have had one micro clot a year ago.. all your symptoms are exactly the same as mine ❤

  • @biggirlmentalworld
    @biggirlmentalworld ปีที่แล้ว +3

    Hi i am 3 months post pe. Im on oxygen therapy this video is interesting. Keep going

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว

      Oh wow really? I thinks that’s where I’ll be going but I’m waiting on the appointment with the respiratory specialist at the end of the month. How are you finding the oxygen therapy?

    • @biggirlmentalworld
      @biggirlmentalworld 11 หลายเดือนก่อน

      ​@@MelsHealthit's strange really being reliant on oxygen and not knowing how long for or really even understanding why as not much has been explained to me. How are you doing now

    • @biggirlmentalworld
      @biggirlmentalworld 11 หลายเดือนก่อน

      ​@@MelsHealthby the way I also get the dizziness that comes and goes the breathlessness too. Horrid. My oxygen dips to 75-85 on walking around I'm on 6 litres of oxygen now when walking around to keep it normal.

  • @pauldevery6173
    @pauldevery6173 ปีที่แล้ว +1

    Fall 2021, my acid reflux got way worse, developed gout in my knees. Also came close to walking outside into an F3 tornado. Started psychotherapy.
    May 2022 got a hiatal hernia repair and a Nissen Fundoplication stomach wrap surgery. 3 days in hospital. In ER after discharge due crazy high liver enzymes causing heart palpitations. Psychiatrist later put me on low dose valium due to pains in 3 locations, upper right chest, stomach from surgery, and knee gout.
    Recently found out my Ferritin Iron dropped in half in 3 years

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      Well you've not been having a great time by the sounds of it. I hope you're getting answers and treatment where needed.

  • @Pleasurechest985
    @Pleasurechest985 ปีที่แล้ว

    Thank you for the update. It's been one year recovery for me. On Eliquis 2.5 twice a day. The doctor wanted 5 twice a day, but I convinced him otherwise. I feel ok but not super. Pulse opp is usually 95. Certainly can tell I almost croaked one year ago.

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว

      Sorry to hear you had to go through that. I hope things get better for you over time.

  • @pauldevery6173
    @pauldevery6173 ปีที่แล้ว +2

    I've been chasing mystery upper right chest pain for the last 3 years. Recently found my ferritin iron has fallen in half also in the last 3 years.

  • @allickproductions3848
    @allickproductions3848 ปีที่แล้ว +1

    Last month had p.e that lead to a cardiac arrest. Was shocked back to life. Thanks for the information

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      Sorry to hear that, what a horrible experience! Hope you’re recovering well.

  • @pauldevery6173
    @pauldevery6173 ปีที่แล้ว

    Wow this have been interesting. Gallbladder Removed March 2021. PTSD flashbacks in the hospital and poor pain management followed by finding a clot in a superficial varicose leg vein. Had to get an urgent ultrasound. The whole ordeal shattered my mental health.

  • @theuglytruth4303
    @theuglytruth4303 ปีที่แล้ว

    Dont scare us like that i had one in April and am wondering how long we can live after glad to know you are pressing forward

  • @nataliediaz306
    @nataliediaz306 5 หลายเดือนก่อน

    Feb 2023 i had multiple blood clots in my right lung. Took xerelto for 6 months then doctors took me off. 21st January 2024 i suffered 2nd pulmonary embolism . Bilaterally this time. I was put back on xerelto 20mg for life this time.

    • @MelsHealth
      @MelsHealth  5 หลายเดือนก่อน +2

      I hope your recovery is going as best it can.

  • @SimonTurner-s6i
    @SimonTurner-s6i ปีที่แล้ว

    Hi Mel , been watching you videos and can connect with you , I had two clots on lungs hit me like ton of bricks at the time , i could never work it out because I always kept fit ? It does take a long time to recover but you have to be positive , you’re here ? could never get my head round staying on medication and all the tests also thinking constantly will it happen again !

  • @nkratochvil122
    @nkratochvil122 ปีที่แล้ว

    Theres 5 types of pulmonary hypertension, you have to fit type 1. Do you have autoimmune? disease? I think I have the same issue. Also have quite a few lung nodules and plural effusion. Mine they thinks from RA. But I feel a lot like what your describing. Pulmonary function test was normal and so he just was like ur good. Hopefully I can get the test you got! Hope you feel better!

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +2

      My doctor is testing me for CTEPH and as far as I’m aware it comes under type 4 on the list of hypertensions as it’s caused by prolonged clots that cause a more permanent blockage of blood flow. My VQ scan showed I have no blood flow in quite a few sections of both lungs even after 3.5years. I’m hoping I don’t have this but until I work through all the tests and get to the ‘good standard’ test where they can measure the pressure in the lungs via a catheter procedure in the leg I won’t really know.
      I don’t have any autoimmune diseases. They did test me 3 years ago but I’ve had no further tests.
      I hope you get further testing. I’ve had to continually pester all the doctors I deal with otherwise I would’ve got lost in the system. So it’s definitely good to always self present and continually ask for help. My first rounds of tests all came back fine so doctors said the same to me but then they realised there was a typo on a report and decided to test again so if I hadn’t pestered this wouldn’t have been the case.
      I will work on an update soon.
      Good luck for the future!

  • @SteveRoberson-t1x
    @SteveRoberson-t1x หลายเดือนก่อน

    Im 2 weeks out from my PE diagnosis & this is truely aweful I guess my life as I once knew it is over

    • @MelsHealth
      @MelsHealth  หลายเดือนก่อน +1

      @@SteveRoberson-t1x sorry to hear you’re struggling. Things definitely do improve and each recovery journey is unique. You can’t expect results in such a short space of time, it is said that it takes up to 1-2years to recover from PE so just be aware that it’s not a fast process. Be mindful of how the next few months go and make sure you have regular contact with health professionals in case anything changes.

  • @jkp2712
    @jkp2712 ปีที่แล้ว +2

    Has anyone had balance issues after? Going on 3 weeks from my PE and I am having a hard time with balance.

    • @nolanmckain2061
      @nolanmckain2061 10 หลายเดือนก่อน +2

      I had it 3 weeks ago, the balance issue comes and goes but it lasts about 1/2 second. It happens mostly 2 hours after taking medication on empty stomach. I think am fully recovered, no pain or any discomfort. But Apixaban makes me crave carbohydrates

  • @MatMatMat199
    @MatMatMat199 3 หลายเดือนก่อน +1

    I am a very healthy person play badminton almost every week for 15 years but my health detiorate due to Pulmonary Embolism now its been 5 months I still cannot get my stamina back if I walk fast I feel tired and shortness of breath

    • @MelsHealth
      @MelsHealth  3 หลายเดือนก่อน

      Sorry to hear this. They say as standard that recovery from PE takes 1-2years minimum so 5 months is not far in to it. Hopefully you’ll see improvement as time goes on.

  • @svenhuber6533
    @svenhuber6533 2 หลายเดือนก่อน +1

    I am wondering whether you have fibrosis. I do have some fibrosis, which causes from time to time little pain and ultimately shortness of breath. That can be permanent (I am now 10 month in recovery). However, it still getting less and less pain.

    • @MelsHealth
      @MelsHealth  2 หลายเดือนก่อน

      @@svenhuber6533 I have chronic clots that aren’t going anywhere. The hypertension specialist said the only way to remove them would be surgery so other than that they will be there forever. I also have infarction due to the lack of blood supply for such a long time too.

    • @svenhuber6533
      @svenhuber6533 2 หลายเดือนก่อน

      @@MelsHealth Oha, I am sorry for that, and a removal by operation is not feasible for you?

    • @MelsHealth
      @MelsHealth  2 หลายเดือนก่อน

      @@svenhuber6533 no worries haha. The surgery is a potential option but it’s not a light procedure. I am planning on making a video about what it entails as it is full open heart surgery including being put on a bypass machine. It’s something that takes a lot of consideration and the recovery would be very long. Kind of a last option if I feel like I can’t just continue in the state I am.

  • @pauldevery6173
    @pauldevery6173 ปีที่แล้ว +1

    Have doctors considered vertigo?

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +2

      Hi Paul, hope you’re doing well.
      Yes they did consider vertigo and vestibular issues. I have been referred to ENT but the wait in Canada for that is almost 2years. I was referred last April 2022 and my appointment has been scheduled for the end of November this year… They will look to rule out any inner ear issues I assume.

  • @lovethijtv5356
    @lovethijtv5356 ปีที่แล้ว

    Hi, my husband had pulmonary embolism 2 year ago and was on eliquis for almost a year but now he spits out blood especially in the morning. What can be the cause?

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว

      Sorry to hear that. I can’t really comment on that as I’m not a doctor so I would recommend getting advice from your doctor. Only thing that I thought of for mornings is in relation to brushing teeth and if the gums are bleeding but as I said definitely get medical advice.

  • @pauldevery6173
    @pauldevery6173 ปีที่แล้ว

    Do hospitals near you have hyperbaric oxygen chambers?

    • @MelsHealth
      @MelsHealth  ปีที่แล้ว +1

      I believe there is one in Vancouver so not too far but I'm still waiting to hear from the respirologist.