Latest Treatment Options for Pituitary Tumors, Marvin Bergsneider, MD | UCLAMDChat
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- เผยแพร่เมื่อ 9 เม.ย. 2014
- UCLA neurosurgeon, Marvin Bergsneider, MD, director of the UCLA Pituitary Tumor Program, discusses advancements in diagnosing, imaging and treating pituitary tumors. He will address the latest in minimally invasive surgery options, non-invasive stereotactic radiosurgery and the importance of a multidisciplinary team approach to care.
Learn more at pituitary.ucla.edu
View more webinars at uclahealth.org/uclamdchat - วิทยาศาสตร์และเทคโนโลยี
This dr saved my son's life. Thank you dr bersnaider
Thank You for your dedicated expertise and sharing this helpful info!
I'll bet the Dr. is a great teacher. Thank you for so much relevant information in a short period of time.
Thank you very much ..! God bless doctor for your time and give us your knowledge.
Great video. So helpful. Thank you for doing this.
Patrick...that was 20 years ago dude!!! Now things have changed keep positive..give it a try. All the best
Great video, well explained. Awaiting my mri for more details of what i have
Very well explained - thank you! To have a Dr. explain something so complicated in a calm manner is such an asset I wished I had 16 yrs ago when I had Cushing’s syndrome due to a pituitary tumor . Wow ! Looking back I can see I was blessed to have found out the cause of all those crazy symptoms- weight gain/ deep reddish purple stretch marks on the belly/ unusual bruising/ big round face/ whites of the eyes became yellowish/ loss of hair on top of my head but facial hair growth( not becoming if you’re a woman) muscle weakness to the point of needing a cane for support/ high blood pressure / carpal tunnel / padded neck like a hunch back !!! Good news is the surgery worked !!!! So grateful. This Dr . has a very good and calming way of explaining the diseases of the pituitary. Take his advice and see a specialist in endocrinology. The best to you.
How much cost surrjary
Thank you very much Doctor. well educative session and i can confess you are a great teacher. I am suffering from this problem and it was diagnosed by my unexplained blur vision and what you used the white house to explained also set in lately. now i have hope of the treatment options.
thank you so much i have an oncology exam tomorrow and before this video i was struggling to get to grips with pituitary tumours
Hope it all went ok.
*Kiitos, kiinnostava video. Bangkok-Jomppa CarSanook Media Thaimaa*
Well explain to the layman. Calming and direct. Husband has macroadonoma, seeing neurosurgeon in two weeks at Shands. Sent all info to him before follow up with Endocrine after MRI, to get appointment ASAP. After much research, we see that a surgical consult will most likely be needed. Got to be your own advocate, PCP was at loss, stated I had multiple organ failure. We made the appointment with Endo once LH and testosterone ( very low) was
done by PCP. Endo was on top of things, ordered a hormone panel, then MRI (stat), after blood results. Now we have MRI results, and set up to see Endo next week, then neurosurgeon the following. Hoping all will go smoothly. More information, better understanding of the situation.
you guys are lucky. The rest of us get ignored.
An excellent and informative presentation. As a health care professional, I appreciate the details and clear explanation that helped expand my knowledge. Mds need to be aware that low testosterone in young men should prompt further testing rather than ordering testosterone replacement alone. A family member has missed 5 years of appropriate medical therapy to help reduce a macroprolactinoma and suffered years of homornal insufficiency.
thank you do much doctor my prolactin level was 123 and now it 28 I been taking cabergoline for 3 yrs now and my trauma is not shrinking.
God bless u
Trauma is not shrinking?
@@brain189 why correct them? This thing is difficult. Don't pick on people.
@@brain189 tumor
I appreciate this video so much. Thank you for posting this. I have been to hell and back dealing with doctors that would brush me off.... Finally got diagnosed with prolactinoma... But I am unable to lose any weight. I am short 5'2 and weigh 161 lbs. I have gained over 50 lbs... Because of my prolactinoma & it's very frustrating. I'm taking cabergoline 3 times a week, and I thankfully got my period back, but still struggling with my weight. This has been amazing to watch and educate myself since all the DRs I've seen have been horrible.
My horrible symptoms hit me when I turned 20 & my whole young adult life I have been thin. I weighed 110 lbs before getting this & it's completely changed my body. It's been such a frustrating thing to deal with, I just want my life back!
omg i feel your pain. my symptoms started at 19 😢 are you better now? i as well used to be smaller, but now 5’1 at 154. it’s sooo hard!
This is great and really informative! But - the volume is so soft. No matter that I have it turned all the way up. If you could increase the volume, I'd appreciate it.
I was thinking the same thing. And, we have the same name.
Wish you were in Canada to operate on my pitutary tumor..took out my tumor fifteen years ago and I recently found out another tumor is growing and I am so sad about it,will be seeing a Surgeon in the morning.
genevieve archer how are things now, getting my 1st and hopefully last one out soon.
absolutely the best team of doctors, they did my surgery and did a very good job. I would recommend people who have a pituitary tumor to go and see them.
Asuri Liberato mam... My father lost his total vision due to pituitary macroadenoma .. Can vision will recover or not. Please clarify
How much they charge
just a questin.. how does life change after this surgery if needed
What is macrodimonia please explain my sis also suffering this desies
@@sreekanthmallemoni I'm so sorry for the late reply, after my surgery my right eye was pulled inward and stuck, I had to wear corrective lenses to fix it. I hope your father's site returned.
What treatment is given after medication wise!!
i appreciate your teaching session, indeed you make everything clear to the non scientific fellows.
i started on bromocriptine, to normalize my plolactin levels of 143.
advice if the medicine is appropriate.
I have refused to take the bromocriptine because of the side effects of heart attack and stroke...how is your prolactin levels now Ritah after taking it? Do you have iron deficiency too?
I have been diagnosed with acromegaly and will need brain surgery. If you are an adult and your feet are growing sizes, your ring size is getting bigger, your head is growing (can no longer fit your hat) your voice is getting deeper, and your tongue is growing these can be signs of Acromegaly and you will need to see an Endocrinologist. #LivingRare #AcroRare
I hope England has this treatments
They don't. Trust me, come to the U.S. Studied there for Neuro postgraduate and the education is weak at best
Let the conservatives have it first
I had a crazy intense benzodiazepine taper that lasted 8 months. I had all the signs of low dopamine and an MRI showed an enlarged pituitary gland which now makes a lot of sense if dopamine is directly related
Did you have a pituitary tumor
The best neurosurgeon in the country saved my life
M Smith what did he do?
:)))))))))))))))))
Like to know why MRI's and doctors don't find them? the symptoms also.. my mother had a grapefruit size tumor.. and didn't find it till it was too late.. Like to add a symptom of craving ice that's not on any site. The symptoms are very similar to headaches, migraines.. exp if the patient has had them all her life.. or menopause.
Unfortunately, they let the "Residents" read the MRI (Residents = students who think they know everything because they just got their M.D. behind their name). Speaking from personal experience, the Residents misread my son's MRI and made mistakes. I caught the mistake (because the Residents didn't even see the tumor on the images that he read while I already knew that it's there), so his supervisor had to go back in to issue a REVISED MRI report.
I have a Pituitary adenoma and my daughter has a deviation of the Pituitary stalk....
Can you come to Jamaica? I have a tumor
If I reach premature menopause due to pituitary gland
Can this be reversed with a pituitary gland surgery?
Very nice presentation. I read that the pituitary tumor can originate from pathogens. Also from chronic stress. I had covid twice and I live with chronic stress. I also had an ear fungus, and although far from the pituitary gland, I wondered if that fungus could cause the adenoma. ???? I have way too much ACTH stimulating “cortisol” pumping out via adrenal glands.
after operation remove pituitary tumor , need take any meds for how long and is the tumor will grow back ?
hello doctor i had macroadenoma after surgery(2018) i get headache and my igf1 test report is quite high 583ng/ml so doctor suggest me for radiotherapy
..i took radiotherapy but after that i am suffering from headache, weakness and daziness..presently i took hesoni 5mg twice a day and cabergolin -week once ..our doctor said that radiatherapy needs 6 months to year to start recovery work .is it rite
Hi this was very informative! Please, how can I make contact with this doctor directly?
hello,thanks for sharing this video,my husband father has had the pituitary tumor and it has been removed.
does it comes again?
Roberta Sillato yes sometimes (rarely) it comes again that’s why u should monitor it by doing mri scans once a year :-)
sir i get surgery and after a year radiotherapy ..how long days radiotherapy to start it work
I just found out today that i have a small one in my pituitary gland.
Thank you, sir you are so smart. I understand. I have this too.
i wish Canada was as developped in Pituitary tjmors as places such as UCLA health, Harvard, etc
They never will be. They are 30 years behind the times in most medical subjects.
I have made it to Terri tumor removed after they remove it I know have double vision blurry vision and my vision always looks dark I had normal vision before what happened
Hi, my name is Yassir and I'm a Sudanese patient I was diagnosed with Pituitary macroadenoma and I did an operation in Cairo and they resectioned the tumor than again in 2018 I did MRI CT scan they showed that the tumor still exists and it grows even larger. can you help me or advice me, appreciate it.
I found out I have a tumor exactly 2 years ago. At the time I did not show any type of hormone dysfunction and it’s not too big. I hope it doesn’t grow in size... I don’t wanna have surgery or ever have to live taking hormone medication.
Hi yoga by nanda... I have a tumour too ... craniopharyngioma ... been two years and haven’t consented to surgery for same reasons. What have you decided to do?
Yes, what treatments are you doing aside from surgery?
Can cure pituitary disorders of infertility woman?any possibility?
Is it life threatening?? I might have it.!!
So its not true it can be in families?
I’m still trying to decide whether I want surgery or not. Either I’m going to be taking cabergoline for the rest of my life. Definitely looking at ceders tho. They have a better program there.
Dear u can go for surgry ,only way to get right quickly and come back to ur life.i had pituatry tumor 30 years before , tough time took 3 years to diagnosed,after operation i become ok in one year,got job and done good worked,led normal with little defecencies which were overcome by medicines, gotmarriage after 7 years of operation,having kids , good life ,so dont affraid just contact to good Dr and take treatment early as possible.God bless you.agha from pakistan.
How big was your tumor?
@@florence1979 ummmm i believe its 2 cm rn. not completely sure. I haven't gotten an MRI in 1 year
@@aghaazhar2267 am happy for u,won't carbergoline work for it?
Thank you doctor. little over a month ago, I was informed that I had a tumor. Size of tumor is 3 times bigger than normal. Other hormons are normal. They strongly suggest a surgery. I am in search of doctor.
Hi, did you get this removed?
What is considered to be a large pituitary tumor
That’s what I have but they say is a cyst. 😢
Can pituitary tumors shrinkon its own.
I was diagnosed with a prolactinoma 20 years ago. I have doubled my weight and the dostinex makes me agry and violent so I don't take it. I'm really frustrated! I get angry and suicidal about it at times. For those of you who have one I'm sorry for you because my experience with it is hopeless! Good luck and thank you for the video.
oh yea and after my surgery my prolactin level never normalized. my doctor said I will need another surgery but when is unknown.
Update went to the surgeon and my 11 mm x 17 mm tumor is inoperable. Sucks to be me.
at least you have medical insurance.no one will hire someone that cant stand for long periods.lol,i was just told i was too young for medicaid and no kids at home under 18 so, guess i have to except my destiny.im so tierd,i just wanna give up.
Should I marry a girl who has this problem she is my friend
@@patrickprince5734 sir plzz help me out should I marry a girl who diagnosed prolactima 8 year ago now she is taking cabgolin
cant hear anything
My husband has a brain tumour like you mention and takes Dostinex medicine which has shrunk the tumour. Can it cause alot of stress having a tumour?
How's your husband doing now? Because a cousin of mine has recently been diagnosed with a pituitary tumour that's impacting the optic nerve. I'm doing some research on naturopathic and conventional medical procedures, and would be interested to know how your husband's health has been on Dostinex.
@@misst.e.a.187 we are no longer together but I think he is doing ok
How is IRON affected when prolactin is in excess--Prolactenemia? I have iron deficiency, high ferritin and prolactinemia---My docs are at a loss at how I have iron deficiency with no menstrual period for 9 months---{since my total knee replacement surgery 9 months ago}--please help me understand...Should I be taking this cabergaline? This lack of dopamine--I'm worried about this.
I have iron deficiency and a prolactinoma and did you get your answer? I’m very curious to know if they’re linked! And how big was your tumor?
@@florence1979 They never found a tumor...but I have plenty symptoms---My docs never said whether or not the iron was connected to the prolactinemia...and I don't think I ever heard back from Dr. B. Sorry friend...let me know if you get an answer on it---My situation is still the same even after a whole year. I couldn't take the prolactin meds---sensitivity to medication--it sucks!
@@florence1979 ironically, after taking lysine for a few weeks the menstrual came back...--but the prolactin level is still high--strange right
could be genetic.
if a pituitary tumor regrows and is causing pressure on the brain stem what treatment is available?
if the tumor regrows, is it resectable or not?(the size of the tumor will determine the next treatment modality).so,microtumors(less than 10 mm) can be easily removed surgically(trans-sphenoidal approach). if it is macrotumor(more than 10 mm),we aim to debulk the tumor;especially with the presence of mass effects over the optic chiasm. surgery followed by gamma knife radiosurgery is an option. medical treatment depends on the type of the tumor
Manar Ahmed very good response !
Manar Ahmed
The problem is only half solved. It needs to be removed but the genes in the somatic cell line are defective causing the problem to begin with. Upon surgery a sample would already be available for sequencing. Cross referencing particular expressions of interest to a control database the proper sequence could be determined. Then we can generate a suitable knockin edit as long as size allows. The delivery vector would at this point be hypothetical perhaps hsv1 or a modified mononegavirus like rabies which would be efficient for attachment to neurons by proxy. I would say at some point we could determine the correct edit for each type case providing a pre manufactured treatment protocol. However at first requiring a case by case collection of data and follow up pcr with gene markers. I feel the patient should determine whether or not to take the risk. Extending beyond the compassionate use into a formal availability and acceptance. How many people were lobatomized to achieve the current techniques of a neurosurgeon...? It's really no different less with each gen of biological controls engineered into the vector proven daily in labs worldwide. Perhaps for some they may have off target results limiting in approach would make these short lived. Unfortunately bioethics committee's would prevent such things at this point in history.
Do they always cause hormone in-balances? My mom's doctor said her's were normal?
Heather Baszynski I’m having thickening of my stalk but no labs show nothing but I have blurred vision and fatigue
Did you see the results on paper? It’s possible the doctor didn’t check all her levels or if they were off a little the doctor didn’t take it seriously. There are a lot of hormones that can be affected. It’s rare for a single doctor especially a primary doctor to test all the hormones most only check tsh. I’m sorry your mom had a bad situation.
Not all are tumors secrete hormones some are just non functional growths. It depends on which type and how much of the mutated cells normal function is kept after mutagenesis. Which can be caused by an infinite variety of causes. Any tumor is cancer benign and malignant is just a fancy term for functionality of it's disruptive anatomical structure.
If you are an adult and your feet are growing sizes, your ring size is getting bigger, your head is growing (can no longer fit your hat) your voice is getting deeper, blurry vision, and your tongue is growing these can be signs of Acromegaly and you will need to see an Endocrinologist. #LivingRare #AcroRare
glas to hear rarely cancer
Dear all readers Can anybody help me to get the best doctor in Riyadh for treatment of pituitary gland tumorThanks
Mansoor Ali
My mom has a pituary tumor 3.5 cm and hydrocephalus. She has difficulty walking and memory lapse.
You can ask every surgeon on this planet and they will tell you that it's surgery 101 NOT to go back to the same surgical site twice. This man might have been a great surgeon at one point in time, but when he developed his own technique that he would go up your nose to reach your brain (instead of reaching your brain through the top of your head), he was so clouded by the ambition to make a name for himself. He experimented on my son. He went so far as to conceal the fact that his technique had a 60% failure rate (based on ONE patient). My son was the second patient (very first pediatric case) he experimented on. He also purposely concealed the fact that radiation option was available (that had a 98% success rate). He scheduled the surgery within TWO days pretending that it was so urgent so we would not have time to seek a 2nd opinion and MORE IMPORTANTLY, he was able to bypass the tumor board meeting on Monday where he had to present my son's case to all of his colleagues for evaluation. In short, he found a guinea pig and he didn't want to lose the opportunity to experiment his "new" technique. To meet the standard of care, one must have competently performed the procedure over 200 times. Alternatively, he must have another surgeon in the operating room to assist him with the new technique. Here, my son was the first pediatric case and he is NOT even a pediatric surgeon. He had no other surgeon assisting him in OR. And during the surgery, his own words (contemporaneous dictation/notes) revealed that he couldn't see what he was cutting, but he "presumed" and he cut any way. Any surgeon would tell you that when you don't know what you are cutting, you would immediately STOP and back out. You don't "presume". This man did, and he was wrong! A bright future loss and many more lives ruined.
So what happened to your son after the surgery? How is he doing now?
My father lost total vision due to pituitary macroadenoma ... Can anyone know how to recover the vision.. Please response friends.......
Anonymous_ DarkHorse both eyes
Sreekanth Mallemoni like complete vision or some part of the eye?
Cardarine perhaps if the blood flow is inhibited. It has been reported in users to promote new vessel growth particularly behind the eyes. Causing people with normal vision and optic circulation to experience unwanted pressure and in extremes vision skewing due to macular adema or the non connection of the new blood vessels. Hypothetically It could potentially restore some vision to someone without proper blood flow over time. If I remember correctly it was an experimental drug ppar agonist affecting cellular metabolism. And I believe discontinued as a research drug for giving rats cancer in large doses over extended time and now sold as a research chemical. Although I don't believe anyone has ever reported to have gotten cancer from its use. Rats and humans are often more different in metabolism then most assume so low dose probably wouldn't be a problem. Vitamin A wouldn't be a bad idea retinoids play a huge role in optic differentiation upkeep and development. If the optic nerve is damaged unfortunately not much can be done... yet. And depending on how much atrophy the eyes have suffered it may never return since other structural deterioration may have occurred since. Surgery might be risky do to arterial bleeding but I'm not a neurosurgeon so I have no idea. I will tell you do your own research on these things as it's not something to (forgive the pun) walk blindly into.