What to Expect After Parathyroid Surgery | Masha Livhits, MD and Michael Yeh, MD | UCLAMDChat
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- เผยแพร่เมื่อ 20 พ.ย. 2017
- UCLA endocrine surgeons Masha Livhits, MD and Michael Yeh, MD, talk about short- and long-term expectations after parathyroid surgery. Learn more at www.uclahealth.org/endocrine-...
- วิทยาศาสตร์และเทคโนโลยี
I had 1 gland removed 3 days ago. I feel 100% better already. My symptoms of bone pain, brain fog, insomnia, frequent nausea and urination has all dissipated. I only had to take 2 pain pills and am now at zero pain. I was hypercalcemia for 12 years, stones 15 surgeries lithotripsy and stents. I am so happy I am healing and feeling so much better.
Same the way affected
Kk dist in India
Viecing is there how to solved?
im so sorry it took doctors so long to figure it out
More people should be tested for pth .I'm so happy if gone for surgery its day 3 and what a difference
Dr yeh did my surgery. My health was transformed in 24 hours after surgery. What a thrill to feel good again !!! Do it!! Life changing. I had 2 glands removed 👍🏻👍🏻. What a great kind and fun Dr. !!
Sounds great! I can't wait to get my surgery
I’m next Jaja next month I believe they are going to removed 2
I appreciate that you talk about the quality or rigor of information out there. That isnt mentioned often enough when people talk about science and health especially. Thank you for admitting that not all aspects if health are fully understood. Especially conditions like parathyroid malfunction.
I have all of those symptoms, but what promped us to ask our doctor about it was when we realized that these problems were getting worse no matter what we tried. We had tried so many things that normally work for most people and had tried them long enough that the doctors who had prescribed the treatments said that they were at a loss and didnt know why it wasnt helping. So we were at our wits end when we asked our new family doctor (our old one retired). He scheduled a full blood test that found really high calcium, PTH, and low vitamin D. He recommended us to an endocrinologist.
Took four years of him testing me in every way to figure out what my condition was and what was causing it. Tested to see if it was secondary hyperpara or primary and had me try dietary changes and vitamin D supplements. That didnt workbafter really giving it a try for two years.
Once he decided it was primary hyperpara, he recommended the most experienced surgeon in our region. Took three months to get the surgery.
The surgery went well. Surgeon said he removed a nearly 3 CM long adenoma that was oressing on my vocal chords. Didnt damage my vocal chords nor any other if the many things in my throat.
Maybe my situation is unusual, but after the medicines they gave me during my surgery and overnight stay in the hospital wore off, my throat is now very sore. I took the hydrocodone they prescribed for three days but switched to tylenol with codene after that because I was getting constipated. That fixed the constipation, but now my neck is much more sore. I took all of my antibiotics as directed and have tried to keep up the breathing exercises they had me start in the hospital, but Im still coughing. Nine days after surgery Im still coughing but at least the phlegm isnt as thick, yellow or plentiful anymore. I hope the coughing quits soon. It really hurts to cough.
I am 50, but Ive never smoked anything and rarely drink. I did have farmers lung 17 years ago when I lived in a very humid place and my apartment had moldy ceilings and walls that leaked. Maybe thats part of it. I live in the desert now and its a nice hot dry summer that Im recovering in and our current house tested negative for molds.
I still have aches, sore muscles and joints, insomnia, mental fog and anxiety but they are gradually getting less severe. My itchiness isnt as bad. It was starting to be as bad as chickenpox but without the sores before surgery.
Four days after surgery, I had numbing in my hands, feet and face, so I took the calcium supplements they prescribed. It seemed to help. My fingers till feel numb and tingly at times asxthey did before surgery, but not as bad now.
The biggest issue is trying to keep the stitches dry and clean without touching them. Its very hard, especially when I get sweaty.
I am getting better gradually. Im not finding recovery as easy as some say it was for them. When I get discouraged, I remind myself that Im having an easier time of it than people did back when they had to cut a much bigger inscision, or even before that when they didnt know how to do surgery for solving this illness.
As a patient education professional (and someone with hyperparathyroidism), I am impressed with the outstanding communication skills of these physicians. Thank you!
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I'm 38, I have had strange symptoms for years now (I estimate 15 years) and today I finally got a diagnosis. Depression, high blood pressure, frequent urination, kidney stones, extreme fatigue, I figured I'd be dead by the time I'm 50. After all these years of wondering what the #$%^ is wrong with me, this diagnosis and knowing that I am not a hypochondriac (which my [soon to be former] psychiatrist and my family was convinced of) is like winning the lottery. I'm looking forward to getting rid of the @#$%ing tumor and starting a new chapter. Sorry doc, I don't need anti-depressants, it was a tumor. The endocrinologist even said "you have had this tumor for a loooong time". He also said that if someone with normal calcium levels were to suddenly have my levels, they'd either be in a coma or drop dead.
Weird (and nice) to hear someone that is in the exact same situation as me. I thought i was crazy. Finally im getting surgery soon. Hope you are ok
Glad you finally got right treatment. How are you feeling now?
Yes I thought I just had severe anxiety
Wow, thank you so very much for sharing your story!
Yes this! Been feeling like I been going crazy for years. When they finally told me they found something in my CT results, I said finally getting some answers and I’m not crazy.
I'm an 83 year old post-operative parathyroid patient. My pre-operative calcium levels never exceeded 11.0 but were consistently between 10.2 and 10.5 (normal?). Mypost-operative calcium levels were 9.6 to 9.8 for about five years. Years six and seven have seen rather more fluctuations in calcium level and recently 11.3 was recorded. I visited a endocrinologist/surgeon this week and was told that I DO NOT have parathyroidism; that opinion based exclusively on calcium and PTH numbers. Four of my last six blood tests recorded levels of 10.0 + and some endocronolists suggest that for a person my age the numbers should be much lower with the inference that parathyroism cannot be ruled out simple because some test levels are below 10.5. This video was excellent and I commend Drs. Livhits and Yeh for their outstanding presentation! I would like to read more about the variations of calcium levels within different age groups and the relationship between calcium levels and symtoms.
Find another Endocrinologist. Have a new ultrasound and urine calcium, may even want to contact the surgeon, who did your first sugery.
I am in my 3rd day after surgery and I feel alot beter I went in on Thursday its Saturday today its like being lucid for the firsttime in years
I had mine yesterday, all of my muscles hurt. Otherwise, high spirits.
I just watched this presentation . I am having parathyroid surgery at UCLA by Dr. Sercarz in 2 weeks. This video is so informative . I am so happy I found this .. Thank you for. doing this presentation.
Thank you. I have a parathyroid removal coming up, and this puts me at greater ease.
Was diagnosed with primary hyperparathyroidism and had surgery to remove the rt parathyroidectectomy done on thursday the 9th.was home on 10th feeling better. Pain is not that much. Thanks for your teachings.
Thank you! I had exactly the scenario of surgery last Thursday and went to ER Saturday morning with “symptoms” resembling low calcium. My calcium measured normal in ER. Too many videos saying I felt “great instantly”. Adjusting to normal calcium levels after years of high is not instant for me. I feel so reassured after this video because I have been regretting surgery so far, but now I am confident that it will just take time.
How do you feel now?
I just had a parathyroidectomy surgery last Friday by Dr. John Kairys at Thomas Jefferson Hospital in Philadelphia, PA. I can say I had a wonderful doctor and I didn't notice the signs and symptoms of the disease until my primary doctor looked at my lab results for high calcium. I've been recovering now for a week and the fogginess and forgetfulness aren't as prevalent. According to my doctor, it looks as though I had this condition for about 4 years and because I am 50 years old I actually thought my symptoms were signs of aging. I am grateful to my doctors for catching this disease. I still feel like my body is trying to adjust to the changes, but otherwise than that, I feel pretty good :)
I live in Delaware County. I just had routine blood tests showing elevated calcium and have been referred to an endocrinologist. The doctor is booked until September. I might check out Jefferson now.
I recently had parathyroid surgery. When I was researching my calcium level pre op I read that over 40 years of age a calcium of 10 or above is considered elevated. I wish you had addressed that on the video because a lot of doctors don't know that.
Yes! My two doctors blew off my 10.7 calcium level in 2020 and then 10.4 in 2023. I turned 60 so they just assume it’s post menopause These doctors know I was feeling awful and had osteoporosis/hypertension and is why I asked for bloodwork.
Then I showed my recent 2023 calcium level to my son who is in his first year of residency. He advised I get a PTH level. Sure enough it was high. So it’s pretty obvious I have a parathyroid tumor that the “seasoned” doctors missed. I asked one to include “all the thyroid bloodwork.” He did all the thyroid ones BUT the parathyroid level. I assumed all were done. Testing scans is tomorrow. Yes, I’m anxious.
Fast forward to 31:44 and they discuss calcium levels (8.5-10.5 is normal, but he prefers a level that is in the middle of those two numbers)
Right! Mine didn't and so I walked around for 2 years or more with a tumor. When I asked her after my surgery why she didn't notice the high calcium levels she said "it didn't raise a red flag for me." Yet my phosphorus was low and a particular enzyme was off. I did the research and took myself to Dr. PRITBITKIN at Jefferson in PA. Wonderful man and surgeon. Tested me and performed the surgery. I advise anyone to look at your own bloodwork. Don't wait for the doctor.
Had my parathyroidectomy today. I'm so glad it's over. I was terrified of the anesthesia & why!?! Lol I was out like a light!! May God bless Dr Anthony D Yang at Northwestern Memorial hospital in Chgo Il all surgeons especially the good ones are a blessing.
Thank you for your great informative video. I had a minimally invasive parathyroid surgery 3 years ago. Two very large parathyroids were removed and a large thyroid nodule as well. This was done in Tampa by Dr Norman and his surgery is same as yours. I had hyperparathyroidism for at least 10 or 13 years before it was diagnosed and I suffered terribly..had something like 18 out of 20 symptoms. I noticed improvement almost immediately after surgery especially in brain fog, confusion, crabbiness, and forgetfulness. My muscles still ache more than they should and I have a bad hip that hasn't gotten much, if any, better. But my numbers are great and I feel so much better after the surgery than I did for years and years before. I lost so much of my life to this disease not knowing what was wrong with me. I urge everyone with high calcium, low vitamin D, and high PTH to go to an endocrinologist and if you have, or even think you have, hyperparathyroidism DO NOT wait for years. One year of waiting to see if your numbers change is almost too long. Go, go now. Thanks for spreading the good word about hyperparathyroid surgery.
Mar L
Thank U for sharing! You are correct in stressing the importance of early and accurate diagnosis
Now u have hapertairod or hypotairod
UCLA Health where r u located and if some patient want to undergo surgery how to reach
I had a parathyroid gland removed about 3 weeks ago and have muscle and joint pain really painful.what can i do?
My doctor never put me on any vitamins.
I can't thank enough for both of you. Very detailed and clear presentation. Thanks for doing that.
Just had parathyroidectomy Friday and I'm feeling great !!
GWEN WILSON , was the surgery long ? I’m so scared to get mine done .
@@melissamincer7448 I was under 3 hours and to be honest it wasn't bad at all. Just a sore throat and went home! 3 days ago surgery and today I feel like a complete new person!
GWEN is it hormone surgery
😘
@@melissamincer7448 get it done. very little pain. feel so much better, From cripple to Crip Walking (google, smile)
I am 78 and was diagnosed a month ago with hyper parathyroid. My doctor is keeping a close watch. So far😢 calcium levels have been good.
Unfortunately I consulted with these Docs and was extremely disappointed. They considered 1 lab they drew and dismissed me with, “Sorry you feel so bad, but we do not see you need surgical intervention, and it’s best not to look up all your symptoms on the internet and feel you Have Hyperparathyroidism “. In other words suggested I was trolling for symptoms. When you are as sick as you are with this disease, the LAST thing you need is to be accused of making up symptoms. I have 13 years of intermittent high calcium, but my PTH remains in the normal range. I had a vertebrae compression fracture for no reason last year, have developed a kidney stone, high blood pressure, increasing osteopenia, then ALL the other symptoms to the point of nearly being bedridden. So when they only considered one blood test and not my long history, insinuated my symptoms were in my head...............consulting them was beyond disappointing.
I'm so sorry to hear that😦I hope that you feel better now . I'm 18 and I went through pretty much the same thing because the doctor I went to see didn't listen to me and told me that my symptoms: bone pain,heart palpitations,HAIR fall,loss of appetite... we're caused by stress even without giving me any exams and she got so mad for some reason when I went to do a blood test by myself for some reason😐 but this blood test pretty much saved me and I'm so glad that I found an awesome doctor that diagnosed me and I did a parathyroidectomy a month ago and everything is fine now for the moment 😊I have a check up soon but I'm so thankful when I think that a month ago I wasn't able to do the simplest things like:walk, swallow,wash my hair by myself so I'm positive that I won't need to do the surgery again🙏
@@ouizatoubal9938 How are you doing now??
This is not a good doctor. It is not " all in your head" my doctor saw levels of increased levels of calcium in my blood and sent me for a special ultrasound of parathyroid gland and a dexa scan for my bones. Go to another doctor please. My surgery is in a few weeks to remove the tumors. U will feel so much better being in the hands of a good doctor. Let me know when u go for surgery! My thoughts are with you.
I am so happy you had your parathyroid fixed i have my operation in 2 weeks .im truly over feeling awful day and night.my whole body hurts all the time .horrible cramps.sore ribs tired all the time bless you regards kerry.
I had a bad parathyroid removed last October, was the size of an almond. It's been almost 6 months & finally about a month ago the EXTREME fatigue is gone. My calcium was so high before surgery...12.2. Surgery was a breeze. Was back to work in 2 weeks.
You guys were amazing. I value so much the educational videos! Thank you!
Went to ER after second parathyroid surgery. I had ALL the symptoms of low calcium and test said 4.8 level and they did NOTHING for me. No calcium, no food, no drink. Laid on a hard bed for 8 hrs, checked me for drugs and stroke and billed me $8,000. I still have a surgical clip left in my throat years later and so start pain in my throat. It has calcified over, but Vanderbilt was a nightmare.
This was very informative and helpful. Thank you so much!!!
Thank you for your presentation! It was very detailed and easy to follow and understand.
I had surgery done 4 weeks ago and I don't feel better yet. I'm happy to hear some people felt better right away, I wish that was the case for me 😢
If you are not feeling better, I would ask your doctor if the surgeon inspected ALL FOUR of your parathyroid glands for tumors and did not just remove the adenoma/tumor that showed up on the scan. PT scans are notorious for failing to show all tumors and experienced surgeons know to check all PT glands for signs of disease.
I pray for your betterment. Get well soon. Get rest. My mother also is going to take this surgery. Currently been looking at this comment to ease my mine. Hope it will help.
@@pattyclark5492 They did not check all 4 ☹
I've requested for them to keep checking my blood and the numbers keep increasing but since they're still falling in the normal range it doesn't seem like they want to do anything about it.
I tried to explain to them that with them removing a 4 cm tumor off the one the other 3 were dormant and it's going to take a little bit for them to overact but they don't listen to me . I've been trying to find another doctor but because my levels are still considered in the normal range it doesn't seem like anyone wants to do anything.
I feel worse now than I did before my surgery 😭
I highly recommend everyone to make sure your surgeon checks all 4 parathyroid glands and I requested my surgeon to do that but she didn't listen to me because she felt as though as long as they check my blood during my surgery and it drops at least 50% then they know they got everything which I don't think is the case.
If your surgeon says they only check your blood and not all 4 find another surgeon that will check all 4 glands.
@@user-gs1sh7tz1g thank you so much ❤ make sure your mom has an agreement with the surgeon to check all four parathyroid glands and not just go by testing the blood during a surgery. It seems like if a surgeon does that it will be a successful surgery
Kim go back to your doctor
This presentation was incredibly helpful and useful to me. Thank you!
Kind Regards
Thank you for all informative matter pertaining to the outcome of post surgery.
Just watched your video. Had my surgery yesterday and I'm pretty sore. It was good to be reassured at this point that there are "bones and stones" long term benefits from parathyroidectomy. Also hoping that my fatigue gets reduced as well as my frequent urination and other symptoms. Your presentation was very clear. Thank You both!
I’m glad that you got the right treatment. Any update about your quality of life right now?!
Can I ask you a question?
I was told to shower with a special soap , no lotions or makeup, don’t shave legs or anywhere on my body
before surgery. 😳. Huh?
Do they put a catheter in place? Why all the precautions? This seems extreme.
Any advice you can give would be appreciated. 😅
Thank you for this information.
Great discussion
Great webinar!!!!!!
I had hyperpathroidism with hypercalcema.. over 11 calcium and up to 177 pth. It took 3 ultrasounds and 3 scans.. last one laser to find the adoema.. which was encased inside my thymus in the upper chest area. They never did find the other 3. I didn't like that I have the large incision surgery instead of the inch or inch and a half incision. I'd heard that even when a parathyroid migrates downward behind the clavicle that it can still be retreived using the inch or inch and a half surgical incision. The incision I got was from the typical large incision from clear back to 1925. What I read said it was imparitive to make sure you've got a great surgeon who specializes in hyperparathyroidism. I was lucky to have a great general surgeon, but had assumed I was getting a specialist by going clear to Mayo Rochester Clinic instead of local surgeons.
Must have a specialist for this operation.
Very helpful. Thanks.
Excellent presentation doctors! Thank you for taking the time to clearly explain this condition. I wish I had found your video five years ago.... My quality of life has significantly declined to the point that I have Osteoporosis, bone pain, depression and anxiety, which my doctors never were able to find the cause, even though I was so proactive in asking questions, etc., especially because my osteoporosis was so advanced when I was 55. Recently, My endocrinologist prescribed Timlos and that’s when my high calcium levels were addressed., as well as my parathyroid hormone levels. I will be having a ct scan to determine if I have an adenoma and if surgery is needed. Your video is making me so hopeful and optimistic that I can get my life back!
On3 question, do you think that I should take Timlos injections after surgery to improve bone density? I’d prefer not to take it because these are daily injections for two years. Perhaps the osteoporosis will be reversed after surgery.... I pray for a miracle. Thank you so much!
I will get parathyroidectomy for the next 3 day because I have already osteoporosis and broken femur. I experience hypercalcemia, hyperphosphatemia, hyperparathyroid hormone (1900), low vitamin D, because I have been long in dialysis (for about 12 years). Wish me luck..
How are you now?
Great information and presentation. I thank you! Off to surgery😳😊😊
Thxs for the informative presentation.
Great video. I wish you could do my parathyroid surgery.
mquevedo515@aol.com
My mother, may G_D rest her soul, was a RN and I recall she told me that a hip fracture was the most painful type of fracture, and the hardest to treat.
I’m having surgery soon for this so these are calming me quite a bit haha
howd it go?!
Jee Lee I get surgery in December. They’ve been bickering over what to do lol
@@dovaqueen6221 Yes, I am also confused as whether to go for the removal or Reclast procedure. The calcium level is 10.8
I had surgery and only mild pain, glad I had it..
Hi, are there any potential side affects after the surgery? Immediate side affects or long term side affects?
Thx you very good info..How long should I stay home? Whn can I go back to work? thx you
Very helpful!
Most. Patients like me, wait years for right diagnosis. Finally. Parathyroid surgery next month. Get the right blood draws. From an endo specialist, not yr family dr. I learned. Blessed
I had parathyroid surgery a year ago. I started having kidney stones (calcium) before surgery & have passed 1 more stone about a month ago. Should I start taking the calcium supplement again? Also, my doctor wants me to take the shots for osteoporosis since I do have some bone loss in my femur and forearm. The shots have side affects of stroke & heart attack. My mom died of heart disease & my sister has had several strokes (she is a diabetic) I am not. I do exercise with weights & walk every other day. I have no other health problems. Thank you
I just had a removed of 2 abnormal parathyroid glands. And with 12 hrs of that surgery. I had to be rushed to er for bleeding from clots around thyroid under my skin. And bleeding from busted blood vessel on my thyroid. Second surgery to stop bleeding
THANK YOU!
I had this surgury over a year ago and have been suffering with achilles tendonitis Since Sept. Would the removal of 3.5 of my parthyroid glands and taking 2 calcium supplements per day have anything to do with that? Thanks!
Why aren’t people told that along with the various symptoms that your vision impairment can see things not there or the same as others see?
Great job!
Can you make the screen larger in the presentation?
I'd love if you did a webinar about how to improve your bone health naturally. It would be very helpful if you could compare all of the different medications and natural remedies for improving bone strength and reducing the likeliness of fracture.
To give you background I'm a 45 year old female who has had elevated blood calcium for years in the 10 sometimes 11s and doctor after doctor has said we'll watch it (until I wasn't having any more of that nonsense). My mother had a genetic test that showed a gene that "could possibly have a link to elevated blood calcium" the doctors were not definitive on this. My mother also had blood calcium that was sometimes high. My pth is on the lower side of normal. I have a history of smoking, I'm in perimenopause. After insisting on a bone density test I was told I have osteoporosis in my spine and osteopenia in my hips. I've always had a healthy diet. For the most part I have maintained a healthy weight (5'.2" 92- 148 lb (105-112 lb was my norm)). Occasionally being underweight and once being slightly overweight due to undiagnosed bacterial overgrowth of candida, sibo and leaky gut.
I feel like my doctors have hastily jumped to the conclusion that I have fhh. It would not explain my osteoporosis/ osteopenia which seems odd in a woman of my age and with my dietary history. No one in my family has ever had osteoporosis to the best of my knowledge.
I'm reluctant to take medications, because though they help with bone density, they also make your bones more brittle. I have found no research that shows that the medication produces a positive outcome meaning that it reduces fracture rate.
I think I may have misdiagnosed parathyroid tumors and would appreciate your thoughts on this.
Get the surgery.
Very helpful as I'm to have the surgery in 3 weeks time. I look forward to better quality of life.
Tell me about how u did post op?
I’d like to know how elevated parathyroid hormone affects other endocrine hormones, i.e. cortisol and aldosterone. I have all three elevated plus a growing pituitary adenoma (9mm currently) and I have been stuck trying to prove to my endocrinologists that something isn’t right. They don’t take me seriously and end up referring me to nutrition and weight management (I gained 30 lbs in two months two times a total of 100lbs in less than a year while exercising and eating great. Actually I gained more weight while exercising due to an additional increase in cortisol levels. Since my internal medicine specialist told me to stop exercising I have been able to maintain my weight within a certain range) I have read (NIH studies) that elevated PTH levels can cause elevated cortisol and aldosterone but any professional thoughts would be great. Just as an aside: when you mentioned thirst as a symptom of this I immediately went to aldosterone because elevated aldosterone causes extreme thirst, which is exactly one of the symptoms I experience. Interesting.
What if you have a hip replacement and kidney issues...Is there an issue with calcium intake with kidney disease
Is there a reason why someone might not want to get the surgery?
My neighbor, a thin, fragile elderly woman, had a fall in the hallway of her apartment on the way to her bathroom. Sadly, died 3 days later in hospital.
I did not hear anything about post-surgery symptoms. i had one parathyroid removed 8 days ago and i guess i felt slightly better for the first 3 days but then i started feeling worse like buzzing ringing in head/ear, slightly disoriented and just out of it. Is that normal? i know the body is trying to balance itself but my general well being feels worse thtn before the surgery
Is it normal to have jaw pain after a parathyroidectomy
What Food will you recommend for fast recovery of patients after Thyroidectomy?
Thank you!
My ipth level is 563 and ca is 12.2 with nephrocalcinosis .it just raised in few days..
Just found out my oth is very elevated not sure why. I only found out because I had planned bariatric surgery in couple months and had my basic ore surgery bloodwork. For the last few months I’ve had array of the stamp tins. Got so bad I was losing weight pretty quickly but because I’m obese doctors weren’t concerned. I’ve been checked for several times for things mainly stomach pain in my right upper side that’s unexplained severe bloat and appetite loss. Calcium and kidney function normal. However only with in last two month have I been excessively sleeping foggy minded very forgetful and just don’t feel right
What kind of calcium should one take post-op?
I have hyperparathyroidism and very weak bones,I fractured my spine at L5 and have scoliosis and kyphosis and nerve pain,will my bones grow stronger if I have surgery,also can my bones replace the bone loss after surgery
My sister have pth 1700 un luckily she have amputation on her right leg and she taking dailaisis she continue a horrible life pls give advise.
I am from india....having men1 issue trio gland involved(pitutary...pancreas...parathyroid)...i hv first surgery done by head & neck surgeon.. but doesnt helps me much ....as the doctor has stated to excised single adenoma...doctor here dont have any experience in Men 1 Pth surgical management...they are saying bilateral neck surgery & autotransplant..but no previous such surgery record.i need a expertise surgeon for my rareest problem... norman parathyroid centre is suggesting a 20 mnt reoperative surgery ... but i am not sure that can it be done ... as i most likely have MEN 1 ...plzzz help me
I had 3 and a half parathyroids removed and when they checked my blood levels, my calcium shot up again. I'm at my wits end. Anyone know what I can do? Doctors don't even seem to know
Just learning I have elevated PTH. I was diagnosed with Sjogrens syndrome 10 yrs ago. Unfortunately my VA hospital has ignored my symptoms. Had R hip full replacement 2 months ago due to bone deterioration. What is association of SS to PTH?
I also have pituitary adenoma.
I've had a routine blood test showing elevated calcium last month. A second test 4 weeks later showed the same. I was referred to an endocrinologist. I wonder if my a-fibrillation diagnosis in 2018 is a possible symptom of ongoing high calcium. I was a-symptomatic otherwise I believe. All normal cardiac tests were done, imaging, stress test, etc., but no cause was ever identified.
I was vising problem is there how to controlled? Pls any suggtion
I was told to take Fosamax before my parathyroidectomy. Should I hold off until I see my endocrinologist? I think you're saying Fosamax will actually increase my chances of fracture. With all the side effects should I take the chance?
recently just had parathyroidectomy x 2. im feeling close to normal 2 weeks later. after surgery i was instructed to take 1000mg and do so for the next 3 mos. on day 2, I experienced the numbness and tingling, lightheaded, disoriented, palpitations. this peaked on day 5, and was enough to seek emergency care ended up being admitted over night becuase my hr reached 110 -130, with unstrady gait due to weakness and they put me on beta blockers. i have never experienced this before. should i have been supplememted an increased dose of calcium over 1000mg? im afraid i was not given the appropriate post surgical care and im wondering if i could have avoided the visit to the ed and the extra dosage of calcium supplementation could have prevented my current state. thanks.
i just had mine(parathyroid surgery) on Thursday, May 9th and I have to take extra dose of calcium today which is Sat to help me with the numbness, I hope that is it and I don't have to take extra just 3 times a day and I will have my blood test again on Monday and see the doctor on Wednesday I feel ok no pain or anything, a little sore throat but not too bad.
I just had parathyroid surgery yesterday and am literally watching this from my hospital bed. This is very informative. Thank you!
Going in tomorrow morning and I'm freaking out
@@mmabathomakhura2715 Don't freak out. They put you out? You sleep soundly, you wake up, and it's over.
I just had surgery yesterday. Went in thinking it only one. A little over 3 hours later they had removed 3 of mine. My PTH level was 491 at the start of the operation.
@@tanyas.9688 You made that sound wonderful as I am terrified but I'm trusting God my physician & going in to have my surgery.
@@brianingham9569 How are you feeling now?
I had no pain from the operation but i could not talk or swallow because of the anaesthetic procedure
Thank you
How much it cost for the surgery please let me know.
Thank you. You answered all my post surgery questions. My expectations were off. I now know stones may continue to taper for years. How about Insomnia? Post surgery insomnia 3 months out is relentless. Female age 55 menopause years. I understand the hormones are complex in playing a role with Insomnia.
i am one month out and finally sleeping.... still taking calcium and added magnesium. Are you sure they checked all four of your parathyroids?
consider melatonin supplement for insomnia
Yeah if only doctors listen to their patients more and not judge them on age. ( not all )
I had it now for 11 years. The doctors labeled me hyperkondric (imagine the pain), even put me for some time in a mental hospital, cause they said i lied about my experience about pain, loss of energy, muscle and stomic pain. Until i went to a private hospital for examination. Who found it out. Unlucky i live in socialist denmark, and there is no money to make my operation. The doctors say, cause ive had it for so long, i will die with a couple of years. Im 48 now
I have high calcium, low vit D, and normal PTH... should be low if tumor wasn't present. The doctor keeps testing and retesting. Making me get an FHH test even tho I now have osteoporosis from the high calcium and FHH doesn't go with osteoporosis. They are wasting my time. My insurance isn't taken by any of these top doctors. It's awful when my doctor acknowledges that she's confident that I have a tumor but inorder to satisfy health insurance company, they just keep testing over and over. I have ALL the symptoms. Our health system is pretty horrible. I'm having to FIGHT to get this surgery.
When will the pain in the feet and have neurological issues?
I also enjoyed your informative video.
I had a successful parathyroidectomy at the Normand Center two months ago. I feel like Mar L below who feels strongly about encouraging people to act now. They surmised I had had hyperparathyroidism for 5 years. I had 3 tumors removed (one that was producing 1034 pth by itself). What if they had only checked one gland?
How can you get out the word to surgeons that it is NOT okay to not check all four glands? (Especially when your data shows no differences in prevention of fractures later on when all the tumors are not removed)
How can you get general practitioners to recognize calcium levels over 9.5 are NOT something they should watch for a while. Blood test reports do not raise a red flag to a calcium level that high. My rheumatologist was the one who discovered my problem. I had the psychological issues and yet my psychiatrist did not suggest getting a blood test that could have caught this.
How many people are suffering from hyperparathyroidism symptoms and will suffer from long term results of non diagnosis because doctors don't recognize the disease?
I have forgiven the various doctors through the years who never caught the disease since the emotional symptoms can be attributable to a wide variety of illnesses. I sure do wish though that some doctor could have picked up on it sooner. The quality of life after surgery improves SO dramatically!!
I told her I was starting to feel unmotivated brain fog, forgetful. She checked my thyroid...subclinical, take Synthyroid,, Told her I was constipated all the time, well, its not the medication, that should make you better...eat more fiber,,, My back pain had reached epic proportions,,, xray,,arthritis...not that bad, do some physical therapy and do a bone scan... osteoporosis,,well you are small but we will check calcium,,,, 10.7...I asked, what do you think of the calcium being high? Well, its not that high, still in the normal range,, Take calcium pills and vitamin D...finally I did my own research and learned I have parathyroid disease when I never even heard of parathyroids! I replied to you Jan because you went to Dr Norman. I am now starting the process with them and its good to hear from real people with real testimonies. 2 weeks ago I would have never thought I would need surgery for something I didnt know I had. Now I am looking forward to hopefully a new lease on life!
My rheumatoid dr discovered my parathyroid problem too. I, also was told its not that high but at the same time my poor body was aching miserably/could barely walk at times. Even my endocrinoligist said it wasn't that high...it was over 10. I had the surgery done which was very simple... NOW I FEEL LIKE A NEW PERSON, even though some damage was already done with my bones, its much better.
Jan how long after surgery did you feel better. I had 3 tumors. Norman Parathyroid Center removed them with the Parathyroid glands. I'm 8 weeks out and still not feeling any better.
UCLA SCHOOL OF MEDICINE GOT A 20 MINUTE SOLUTION TO REMOVE A THYROID GOITER DURING THYROIDECTOMY SURGERY. IS EVERY THYROID DISORDER THE SAME?
I have a parathyroid surgery year and a half ago and I gain 15 pounds I don’t understand why I eat normal and healthy what can I do for this
Thank you for this. It was very helpful. It's difficult to find information about post parathyroid surgery. I would like more information about how to take care of ourselves after when we are still having symptoms of fatigue, weakness, etc. We cannot find much if any information about this. Many thanks.
I think it's a waiting game and everyone is different. Age is an issue too plus how long she has had it. Three weeks is a little early to be feeling zippy. Some of us also find that we have hypothyroidism which then needs treated. My surgery was 9/18/17. Your sister may benefit from this Facebook group: facebook.com/groups/863158753764566/ Best wishes!
PS: She should also check with her doctor if the fatigue and weakness are severe.
bjhunt01 check out the Coimbra Protocol 😉
I had the surgery done 2 weeks ago and still not feeling well at all
My surgeon removed ALL FOUR a of my parathyroid glands in 2010.
He was not an endocrinologist surgeon.
Two endocrinologist did not believe that he had removed ALL FOUR.
After CT scans, it was confirmed that he removed ALL FOUR GLANDS.
I cannot find one other person who has no parathyroid glands.
I also cannot find an endocrinologist who has knowledge of my condition.
I wish I could talk with someone who understands my condition and answer questions.
Wow that's crazy, you can be good with half of one. But all 4 should not be removed, there's nothing else that controls the calcium levels
Will parathyroid comes again after the surgery is there any chance
My calcium is 10 . 5 I've bone loss docters won't treat thyroid also I've TMJ syndrome
Anyone else feel like this talked them out of getting this surgery? I had already opted to monitor my hyperparathyroidism, and the information given here reaffirms my decision.
Sifu don't! If you have HPT, elevated PTH levels and or Calcium levels -even if they're high/ 'normal', get the procedure from the best, most experienced surgeon you can find. This video sucks. Trust me man. My imaging didn't show which one was bad, I was hesitant, but they 'have' to check all 4 if it's a good surgeon. That told me right away these guys lack knowledge and experience, afraid to step on toes at cost of people watching to have failed surgery?
Have had it for years and the symptoms get worse. Even switched surgeons prolonging the operation but it was for the best. There's good & bad surgeons out there for any procedure and this one needs someone with lots of experience. A ton of research on this prompted me to change surgeons. Covid delayed it more and I just had it this morning. That's only reason why I watched this... and after all the previous research, videos etc.. this video is NOT one to base any judgement on. Sifu teaches mind/body.. they both suffer loss with this condition. Your call
The video emphasized the importance of surgical treatment of hyperparathyroidism. It will not get better by itself. It will get worse, your osteopenia will turn to osteoporosis, etc. There is no reason to monitor.
Wayne-O I appreciate the information. I consulted an endocrinologist in Seattle and even he said that it could lead to osteoporosis in my 80s. Not many people in my family even make it to their 80s. My doctor told me that some people with high calcium levels (my PTH level is normal - calcium is at the high end of normal) are completely asymptomatic, and so far (knocks on wood), I am one of those. I will get it checked every year and may reevaluate if things change. It looks like it’s been a few months since your surgery, might I ask for a quick review of your experience and recovery?
@@LastSifu Look up FHH. Familial hypocalciuric hypercalcemia. Did your endocrinologist exclude that? Also, Calcium and phosphate are very tightly regulated electrolytes. 10.3 is normal Ca, 10.6 is already hypercalcemia.
Was just told today that my parathyroid is low, waiting to hear from a consultant now,, I also had my thyroid gland removed 10 years ago, anyone else like this thanks😱
Hi James...thank you for sharing. So, you are saying that you are still having problems AFTER having your thyroid removed?
What would happen if i 21:39 don't remove the tumor I have in one of my parathyroid gland
I ve had a hyperparathyroidectomy Sept 24th, I still don't feel well, still swollen around the incision site, sore throat, mouth irritation, headaches, brain frog and pain.😩
🙏🏾🙏🏾🙏🏾
How do you feel now?
@@nrltime5820 I m feeling better. I feel like my throat had gotten sensitive since. I get sore throat every time the weather changes
I've had a course of prednisone which made me feel terrible, especially forgetful, grouchy, short of breath and weak. Two months later, I still have a high heart rate, short of breath, but overall feel better, but my Calcium is 10.3 (lab normal) and PTH 87 (lab high). My Dr. was not concerned. I am 71, female. Should I be concerned?
At 71 years of age, your calcium levels should be in the 9's, not the 10's. You do not need to have an elevated serum calcium to have hyperparathyroidism. I would consider that number, 10.3 mg/dL, elevated for your age. I'm not a doctor, but I plan to be. I'm not offering you medical advice, but I have relevant information for you. It's very likely you have hyperparathyroidism. Both your serum calcium and PTH markers are indicative of this. If we entertained the thought that you might have normocalcemic primary hyperparathyroidism, meaning your serum calcium levels are within a normal range, a physician who knows what they're doing would order a blood test to check your ionized calcium, which is typically elevated, even in individuals with normal serum calcium markers. UCLA Health is a great place to receive medical care for this. However, I really recommend the Norman Parathyroid Center in Tampa, FL. This is a rather difficult disease to diagnose, and the most difficult part is receiving the diagnosis. The treatment, fortunately, is curative. I highly recommend you follow up with the proper* surgical endocrinologists. Physician experience is very important in these cases. I hope this helps you and I wish you the very best.
@@aubreyearnest8107 you go future MD! Can I ask you some questions?
I had my thyroid removed, how much harder is it to find my parathyroid glands?
check with endocrine doctor
How much bruising is normal?
So informative!! Thanks. I wish I would have seen this an 2017. I have now, in 2019, been diagnosed with hyperparathyroidism and am nervous as hell! It's been 3 months since a referral to an Endocrinologist, and not a peep from them.
So many questions...so few answers. Maybe youtube can alleviate a few my night-terrors! (What a screwed-up medical system we have in the USA!!!!!).
Is a Parathyroidectomy done on general anesthesia or local anesthesia ?
Rick Owens general
Thank you, Jonathan. I hope you don't know that from personal experience.😉
I'm the same 3 months waiting to hear and still notin,, bad system hear in Ireland too😡
Always remember we are our own best advocate. If you haven’t heard from them pick up the phone and make some noise. Keep making noise. Join a Facebook group that is made of people who have hyperparathyroidism. They will give you tons of tips and hints and lots of good-to-know information. Knowledge will help with your fears. All the best to you. 👍
Hair loss massive hair loss I am experiencing after 3.5 glands removed:( I feel pretty worse. I'm wonky and crampy
This is new for me but, after many MRI's looking for the parathyroids and never found I feel like I may never get treated. Cinacalcet is being prescribed to help alleviate the calcium being sucked from my bones. I feel lost, depressed, chronic insomnia and fogginess. Not sure if I should change Endocrinologist or where to go from here.
Sandy I take the same meds for my pth too my pth is high in the 2 thousands but I have a kidney disease called polyester kidney disease its heredity in my family but it keeps generations my mom got the kidney disease and I do and my sister I had just got a kidney transplant on January 2,2022 I was since 2018 and on the kidney transplant list since 2016