@antoinettepheiffer, Thank you so much for sharing! I love hearing where everyone's from ❤️ So glad you are finding my videos helpful and please take care!
I'm still recovering from a stroke two years ago. I think I LOVE YOU!!! You have made things so much more comfortable and added so much hope that I can make a 100% recovery. Thank You BEAUTIFUL!!! 😘❤
Amazing! I’m an occupational therapy student, and I’m learning a lot from your channel! I’d like to know what are your book recommendations for OTs. Thank you!
Mine went the opposite way. My affected palm is overly sensitive to hot, cold and any sensation and it feels really pinprickly. It hurts to reach into my jeans pocket and grab my keys. I hope these sensation therapy works for that too.
I had a craniotomy and have similar problems that a stroke patient does. I couldn't find post-craniotomy workouts advertised online -- so i have been following a post-stroke routine online. Do you think this is a suitable substitution?
Thank you for this video! After doing the sensory reeducation daily for a couple months with a stroke survivor, he no longer has numbness and tingling in his affected arm! The affected arm feels the same as his unaffected side now. Should we continue to do the exercise regularly even after normal sensation has returned? Or is it ok to stop?
@@ValerieJupe I was asking about whether or not to continue the sensory reeducation exercises from the video after normal sensation returns, but I never got an answer.
@@wendibat yes I saw that you didn't get a reply. I'm sorry to see that. Did he really get feeling back after a couple months? May I ask what you did exactly? Right not I'm brushing my arm with a doctor's bright and a soft cloth and sometimes something rough. Did you use vibration at all or hot and cold as well? I'm desperate to get sensation back. Mines numb no tingling. I'm e 3months after mine.
@@ValerieJupe his was numb too, but mostly tingling. We did not do anything with temperature or vibration. A few times a week we had him find objects in rice without looking and try to describe, though we stopped this after a few weeks because he wasn't interested in doing it. But the main thing we did most consistenly was to take a variety of different fabrics from soft to more rough. He wouldn't let us do anything much rougher than that, but we gently rubbed his arm and hand for about 20 minutes a day every day. We asked him to rate the tingling every morning when he woke up, and slowly over several months it went down until he didn't have tingling or numbness anymore.
Thanks for the video on sensation change, i have tried desensitize my affected arm with stuff such as wash cloth and things , however, is there a way to desensitize myself from the sun, wind and rain, i have thalamic pain , am extremely sensitive to cold . like in your video above i believe my thalamus was badly damaged due to stroke. i was wondering if you have had someone with my condition that recovered from it
I'm sorry to hear about your dad. I hope you both are doing well! You may want to ask his doctor about something called orthostatic hypotension which is when blood pressure drops with position changes (sitting up, standing, etc). It can cause dizziness when standing and walking. But best to consult with the doctor to see what the best plan of action is for treatment!
@stevekierstead, Almost 70% of survivors deal with post stroke pain. That's a huge number and I don't think it's talked about enough! I hope that it's gotten better!
Hii have similar issues after my hammoragic stoke in the gangliothelamic area of the brain on the left side which has left my right side paralysed it's been 11 months now and it's really frustrating sometimes
@@PostStrokeOrg ya lot of recovery took place in first 6 months time now it's slown down say out of 100 have been recovered 80% I am struggling with spasticity on both up and lower limb and sensory issues
@@PostStrokeOrg i have been practicing some of your excercise shown in the video but sometimes I get frustrated of spasticity which is trubling me as the stiffness increases after i excercise or do some activities.
I had two strokes a few weeks ago. I don’t really have anything on the outside of my body wrong. I have numbness in my hand face and thigh and foot. It’s annoying yes. I can move my hand a foot normal. However when I touch something with my hand. It burns. It doesn’t make sense why it burns. My hand and feel swollen. I’m lucky every works right. It just doesn’t make sense to me.
@bigd, Thank you for your comment. I'm sorry to hear about your strokes and hope that you are doing okay. Numbness, burning, and tingling are often a sign of nerve issues. That may be due to your strokes and difficulty with nerve communication between brain and body. My recommendation would be to follow up with a neurologist about your symptoms if you have access to one!
Hi I’m 54 and I had three strokes in one night so anyway I couldn’t move my arm at all it just hangs down but after the first month I tried and moved it sorry about my speech. Anyway Now I can move my arm, but I couldn’t feel my arm now I can feel it I can feel hot and cold and I can feel pressure all the way down my arm it seems like it’s coming from the top all the way down I can feel pressure on my fingers it’s been six months, I know you can’t tell me if I’m going to get any better but what do you think because it’s just getting better and better but a lot of the time when I read about it they said it’s slows down after 3 to 6 months. What do you think and thank you so much😁
Hey there! You're right that I can't tell if someone get back to 100%, but I actually recently made a video on this issue: th-cam.com/video/PUfW-CySHas/w-d-xo.html Stroke recovery often does slow down after the first 3-6 months, BUT it doesn't stop! Check out that video and let me know if you have other questions 🙂
@carmelrajkumar, They don't have to necessarily do this to themselves. If this person has someone who can help go through these strategies, that's fine!
Rude! I was unable to move or straiten my fingers after a stroke and thanks to most of these exercises I am able to give you the middle finger... I do not expect to recover fully but at least I am able to do better and create for myself a "new normal" life..
Thank you for addressing this topic. Water hurts my affected side when it fist touches it. Makes showering stressful. I appreciate the video :)
hello its always so imilar with me can you tell that is your issue okay now or hows your recovery is going
I'm watching your videos in Sout Africa after my stroke and I'm doing all your exercises,, thank you for your help,, May God bless you 🛐🙏
@antoinettepheiffer, Thank you so much for sharing! I love hearing where everyone's from ❤️ So glad you are finding my videos helpful and please take care!
I have recently had a stroke and these videos are amazing and really help understand the next stages so thank you x❤
Thx so much for explaining the sensory issues. For me, it is also affecting my walk and balancing ability. U been really helpful. God bless!!
I'm watching your videos regularly they are informative and topics that are not endeavoured and somewhat very encouraging for stroke survivors like me
The information you gave its really interesting as an occupational therapy assistant
I'm still recovering from a stroke two years ago. I think I LOVE YOU!!! You have made things so much more comfortable and added so much hope that I can make a 100% recovery. Thank You BEAUTIFUL!!! 😘❤
Thank you for the kind words! i'm glad you're finding my videos helpful! ❤️
I was thinking today " I'm falling in love with this girl. Just love her voice and she's so kind helpful and knowledgeable
Amazing! I’m an occupational therapy student, and I’m learning a lot from your channel! I’d like to know what are your book recommendations for OTs. Thank you!
@Nuha, Thanks so much for your comment. I'm so glad ❤️ There are lots of books out there haha. Are you looking for a specific topic?
@@PostStrokeOrg actually I don't have a specific diagnosis in mind, I'm interested in neurorehabilitation in general 💕
Thank you for your sharing Kellyann!
I enjoy watching your videos. Thank you!
@winnielin, I’m so glad!! Thank you for watching them :)
so correct ans understated my senses drive me wild especiallly cold!
Cold, especially , can flare up sensory issues and spasticity!
Elyse you are amazing. Thank you
That is so kind! Thank you so much ❤️
Great video. Thank you.
Mine went the opposite way. My affected palm is overly sensitive to hot, cold and any sensation and it feels really pinprickly. It hurts to reach into my jeans pocket and grab my keys. I hope these sensation therapy works for that too.
The stroke patient has a problem, sensation Absent of upper extremity and hand , how to practice? Thank you
Thank you!
So welcome!! ❤️
I had a craniotomy and have similar problems that a stroke patient does. I couldn't find post-craniotomy workouts advertised online -- so i have been following a post-stroke routine online. Do you think this is a suitable substitution?
Do you have a video for neck 🤔
Im able to recognize something is in my hand, but there are times I can't feel. What are your suggestions?
Thank you for this video! After doing the sensory reeducation daily for a couple months with a stroke survivor, he no longer has numbness and tingling in his affected arm! The affected arm feels the same as his unaffected side now. Should we continue to do the exercise regularly even after normal sensation has returned? Or is it ok to stop?
Can this be true?
Is this really true?
What exactly did you do
@@ValerieJupe I was asking about whether or not to continue the sensory reeducation exercises from the video after normal sensation returns, but I never got an answer.
@@wendibat yes I saw that you didn't get a reply. I'm sorry to see that.
Did he really get feeling back after a couple months? May I ask what you did exactly? Right not I'm brushing my arm with a doctor's bright and a soft cloth and sometimes something rough. Did you use vibration at all or hot and cold as well?
I'm desperate to get sensation back. Mines numb no tingling.
I'm e 3months after mine.
@@ValerieJupe his was numb too, but mostly tingling. We did not do anything with temperature or vibration. A few times a week we had him find objects in rice without looking and try to describe, though we stopped this after a few weeks because he wasn't interested in doing it. But the main thing we did most consistenly was to take a variety of different fabrics from soft to more rough. He wouldn't let us do anything much rougher than that, but we gently rubbed his arm and hand for about 20 minutes a day every day. We asked him to rate the tingling every morning when he woke up, and slowly over several months it went down until he didn't have tingling or numbness anymore.
Thank you so much for your video
Thanks for the video on sensation change, i have tried desensitize my affected arm with stuff such as wash cloth and things , however, is there a way to desensitize myself from the sun, wind and rain, i have thalamic pain , am extremely sensitive to cold . like in your video above i believe my thalamus was badly damaged due to stroke. i was wondering if you have had someone with my condition that recovered from it
I had stroke in pons. 4 years passed. Im not sure where Im at in this
My right leg used to go much higher but has gone back. I want to talk to you. What should I do to contact you. Thanks
My dad had a stroke last month.
He couldn’t stand and walk properly because of dizziness.But dizziness goes away while lying down.
I'm sorry to hear about your dad. I hope you both are doing well! You may want to ask his doctor about something called orthostatic hypotension which is when blood pressure drops with position changes (sitting up, standing, etc). It can cause dizziness when standing and walking. But best to consult with the doctor to see what the best plan of action is for treatment!
tq for sharing
After my stroke I associated touch as pain. If someone touched my arm I thought it hurt
@stevekierstead, Almost 70% of survivors deal with post stroke pain. That's a huge number and I don't think it's talked about enough! I hope that it's gotten better!
Water and cold hands hurt my affected side. Why and what can I do about it?
Have you ever had a patient or known of one who got sensation back?
My hand cannot move, its dropping
Still can’t move my hand so the hand game wouldn’t work for ne 😭😭
@vicky, If you haven't already, check out this video on improving hand movement:
th-cam.com/video/uBi4z1hbbAQ/w-d-xo.html
Anyone have success curbing tingling?
Hii have similar issues after my hammoragic stoke in the gangliothelamic area of the brain on the left side which has left my right side paralysed it's been 11 months now and it's really frustrating sometimes
@layardfurtado, I'm sorry to hear this! Has it gotten any better since you initially had your stroke?
@@PostStrokeOrg ya lot of recovery took place in first 6 months time now it's slown down say out of 100 have been recovered 80% I am struggling with spasticity on both up and lower limb and sensory issues
Thank you so much for sharing your experience❤️
@@PostStrokeOrg i have been practicing some of your excercise shown in the video but sometimes I get frustrated of spasticity which is trubling me as the stiffness increases after i excercise or do some activities.
@@Great652hey are you still struggling withsensation?
Stoke, yeah.
I had two strokes a few weeks ago. I don’t really have anything on the outside of my body wrong. I have numbness in my hand face and thigh and foot. It’s annoying yes. I can move my hand a foot normal.
However when I touch something with my hand. It burns.
It doesn’t make sense why it burns. My hand and feel swollen.
I’m lucky every works right. It just doesn’t make sense to me.
@bigd, Thank you for your comment. I'm sorry to hear about your strokes and hope that you are doing okay. Numbness, burning, and tingling are often a sign of nerve issues. That may be due to your strokes and difficulty with nerve communication between brain and body. My recommendation would be to follow up with a neurologist about your symptoms if you have access to one!
@@PostStrokeOrg Thank you!! Got appointment Monday 🙂
Hi mam I am chetan Jaiswal physiotherapy students from india
@chetanjaiswal, Hi and thanks for watching!
Hi I’m 54 and I had three strokes in one night so anyway I couldn’t move my arm at all it just hangs down but after the first month I
tried and moved it sorry about my speech. Anyway Now I can move my arm, but I couldn’t feel my arm now I can feel it I can feel hot and cold and I can feel pressure all the way down my arm it seems like it’s coming from the top all the way down I can feel pressure on my fingers it’s been six months, I know you can’t tell me if I’m going to get any better but what do you think because it’s just getting better and better but a lot of the time when I read about it they said it’s slows down after 3 to 6 months. What do you think and thank you so much😁
Hey there! You're right that I can't tell if someone get back to 100%, but I actually recently made a video on this issue: th-cam.com/video/PUfW-CySHas/w-d-xo.html
Stroke recovery often does slow down after the first 3-6 months, BUT it doesn't stop! Check out that video and let me know if you have other questions 🙂
@@PostStrokeOrg thank you and I’m gonna check it out right away! 😁
❤❤❤❤🎉
What if the person is not able to use. His hand or leg
@carmelrajkumar, They don't have to necessarily do this to themselves. If this person has someone who can help go through these strategies, that's fine!
good 2 know.... im getter
I do not agree but then again I actually had a stroke. It is like you want to sell people a lie. No you may not recover fully no matter what you do..
Rude! I was unable to move or straiten my fingers after a stroke and thanks to most of these exercises I am able to give you the middle finger... I do not expect to recover fully but at least I am able to do better and create for myself a "new normal" life..
@@smutshercules 🤣that was epic 'I am able to give u middle finger 😁
Well damn you over here destroying dreams. How sad, keep up the good work
You are talking too much, please be more briefly
Thank you!!