The Story of My Bile Duct Cancer Diagnosis
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- เผยแพร่เมื่อ 1 ม.ค. 2022
- In the spring of 2020, as the world began to adjust to life in the early days of a global pandemic, I began my battle with cancer-specifically, stage four cholangiocarcinoma, which eventually inspired me to start this channel and online community. In this video, I share my story, from my earliest symptons to eventual diagnosis and treatment.
Are you a young person living with a terminal illness, who'd like to share your story? I'd love to hear from you! Email Megan at terminalyetpurposeful@gmail.com
I have a friend who was diagnosed with bile duct cancer 9 years ago, and it returned again this past September. He finished all his of his treatment and was told his scans look great. He turns 54 this year.
Need to take fenbendazol to keep it away like tippins does
Can you give us more of the specific treatment(s) your friend has gone through? I would love your feedback on this! Prayers that your friend is doing well! Thank you!
He was blessed! 🙌
Hi, I was born with messed up ducts. I have chronic pancreatitis, liver problems, diabetes, 2 years thos June I had cancer in my colon. And I had my appendix turning to cancer and surgery for that last August. I've had 6 groshong catheters in my chest and was fed IV TPN for 5 years i couldn't eat or drink anything. I wasn't suppose to live past 10 years but I've made it for 26 years. It isn't easy and I'm in pain and sick alot. But I live like I'm alive and not already gone. The doctors the tests the bills the insurance....youre right people don't understand how hard and consuming it is. Keep you're focus on dealing with yourself. Accept love and help and kindness when you need it. There's alot of us who care. Blessings to you. By the way I was 35 when I was diagnosed and I'm almost 62. Hang in there, there is a plan💛🌻💛
Wow...I admire your outlook. That alone will prolong your life. I'm so sorry you have to go through this at such a young age. My prayers are with you.
I used to drive my girlfriend to her chemo appointments every Thursday other friends di other days during the week she also had bile duct cancer. I hope you're feeling better and I will keep you in my prayers🙏❤
You did a fantastic job of telling your story! Please always have hope and faith. My neighbor was diagnosed with cancer when she was 2 years old. It had spread everywhere. They had to remove her reproductive organs and her bladder. They told her parents to let her do what she wants. The doctors gave her a 5 % chance of surviving. On Sept 17 she will turn 24. Stay strong 💙
You are a beautiful, intelligent, incredible person ❤ ♥ 💖 inspirational.
Yes, I completely agree
So sorry you’re dealing with this. I have stage 4 cancer neuroendocrine cancer in pancreas, liver & lymph nodes and I’m also 35. Scary but I hope your treatment will continue to help you. I agree it’s a very traumatic experience. Just subscribed to your channel. I was initially at a hospital in Central NJ with a GI onc who did not have a good bedside manner (wonder if it’s the same doc) and have since switched to a different hospital. I was also diagnosed during the pandemic. Thank you for sharing your story. This is inspirational I am in so much pain. I really needed to hear the part at the end. Thank you so much.
I’m really happy to hear that this helped you in some small way. I’m really sorry about your diagnosis. I hope you’re doing better at the new hospital. If you ever need to vent or talk about anything please know you can always reach out to me. No one really knows what it’s like unless they’re going through it themselves, but just know you’re never alone in this. You’re in my thoughts ❤️
Wow,thank you for sharing your story,I don’t know what to say,I want to say I’m sorry,but is that the right thing to say?My heart hurts for you,and I wish you health definitely,I really look forward to hearing what the world is going through,I have been taught we really only have today,yesterday is gone and tomorrow is only a vision,all that matters is today,and know I’m with you
@@terminalyetpurposeful517 thank you so much would love to connect
@@sonnysnavarro6860 thank you so much. I try to focus on today and the present just very hard. I know I have to try a stronger treatment that will likely help me feel better in the long run- I Just have to push through
@@SR-pb8id ,I’m here for you if you need a friend,please know your never alone ,continue messaging me and I will message you,please please know I care about you and what your going through ❤️
My oldest sister had the same cancer. I’m sure she had it for at least a year + before diagnose. I noticed she had lost a lot of weight. I’m like, you have lost a lot of weight, are you doing some crazy diet…she’d stuff me off. She’s a big girl so she must’ve lost a good amount of weight pretty fast for me to notice it. By the time she was diagnosed she was stage 4. You keep fighting! I’m 🙏🏻🙏🏻🙏🏻 for you. You can beat it. You’re young and strong. My sister was 71. At that time I couldn’t find much info at all. So, very thankful you’re posting this.
Thank you for sharing your story. My sis just got diagnosed with bile duct cancer 3 weeks ago. It's so scary
Hello ,Meghan
Nice to meet you
New Subscriber here from Amman Jordan 🇯🇴 The Middle East
Warm Hugs
Wish you all the best
Thanks for sharing, you have a great attitude! You are doing a wonderful thing by sharing your story
Your video really moved me, I'm wading through unknown waters myself right now with my health and hoping against all odds that I don't have any form of cancer. I've been dealing with appointments non stop for almost 2 years now and still no diagnosis. I admire your ability to still smile and laugh through your reality. Truly an inspiration 💙
you're doing a great job ... thanks for sharing your experience ... I'm going thru a similar situation and trying to figure it out on my own!
You are so inspirational and encouraging,and an amazing speaker,fighter,I love hearing you ,you give us hope ,together we stand ❤️
My Dad passed from Cholangiocarcinoma. This was 17 years ago. He unfortunately found it very very late. I can only imagine because he was a tough guy and was shrugging off the symptoms. I wish I had someone like you to explain it from a first person. My father refused to tell us anything. He didn’t want to upset us. We were floored. We had little to now information. Thank you for your story.
❤ I’m so sorry
Lost my mom to cholangiocarcinoma. Happened so fast. She chose not to fight just lay there and die. It hurt my heart. I am so proud of you for fighting. You show that cancer who is boss!
I’m sorry to hear about your mom Pam. It’s such a terrible disease. Thank you for finding us and giving us this encouragement.
Wowwww I thank you so much for sharing your diagnosis with us . This is very educational, thank you is an understatement ❤️ 🙏🏾
when you have never dealt with health issues before you just trust your dr a lot of the time and don't realise just how hard you have to push for the answers you need. i found this out the hard way, was in a coma and on life support before i got my diagnosis and i'm now permanently disabled. i am still fighting for answers to health problems that aren't yet diagnosed. its exhausting just being poorly, we shouldn't have to fight this hart to stay alive.
wisshing you all the best, hope you stay stable for as long as possible. thank you for sharing your story.
God bless you praying for God to place his healing hands on you
Thank you for sharing I'm a new subscriber now gonna binge watch your videos rooting for you hoping things turn around for you
Hope you are doing well. Very honest and insightful.
Thank you for sharing your story. Sending you positive thoughts, a giant virtual hug and prayers.
Thank you ! I needed your story…..
You touched my heart.....
Mine too.
Mine too 💞
Sending love, healing, and prayers
Your story moves me very much. Being ill around Covid time many people couldn’t see doctors and get proper diagnosis. But the way you were treated was very wrong. You have a wonderful attitude and that alone prolongs life I believe. I send you loving and healing vibes from hawaii.Aloha
Thank you so much for sharing. I hope things are better for you today ❤
Such a warrior!! New subscriber here. Thanks for sharing 🙌🏻
I pray you push through this. It's obvious your strong and the world needs people like you.
Keep fighting, you got this girl!!!!
new subscriber from England sending you blessings.
it's so good you are getting this message out there it may help others. well done stay strong.
You speak so well. It’s like a friend talking to me. I am so sorry you are going through this.
My heart is physically hurting and I'm only halfway through your video. I don't want to imagine getting this news.
Ma'am, you are power. Thank you.
my thoughts are with you and thank you for sharing sharing helps others survive mentally life is so hard and we are promised nothing, its hard to deal with wishing you all the best and love
Bless your heart! Not an easy journey but all pain is simply an inconvenience. You’re still here learning, serving a purpose. Enjoy your good days and do what makes u happy. Sending positive vibes~
Thank you for doing this video. Their is very little out there about bike duct cancer. My sister passed aged 42 from it . It was so far gone by the time it was found she only had 8weeks from diagnosis. We did so much research about it as hadn't heard if it. And hadn't heard of anyone with it. We were told it's mostly an older person disease.
I will you well and success with your treatment x
Hi, I get frustrated when people are told it's a older person disease. Because myself and the majority of people I hear have it are under 50 years old. Actually I've not met a person on their 70s who has had bile duct cancer..So...I kinda this that statement isn't true .
Plus it's aggressive...one of the top 10 most aggressive cancers.
I live in a ski resort town of 10,000 people. They say about 8,000 people yr are diagnosed with this cancer. So I travel hr and half away to get treatment.
Also when I looked up celebrities who have passed away...they were all under 50.
I think Paul Newman's son was under 55.
I'm sad to hear u lost yr sister. It's a sickening condition. I'm sure she appreciated u by her side. Good sister. 👍🏾
@@jennacornwall5243yes, my buddy was just 58
You are remarkable and so well spoken!! What a beautiful human you are, such a great message!!💕🥰🇨🇦
You are a blessing. You my dear are someone's hope and that is the biggest thing a human can reach to be. Blessings to your beautiful soul. ❤
hope you're doing well, you seem young and as you said you can keep going and fight it, something that helps me when i get anxious about death is that everyone has to do it, no one escapes, and, although is a bit heavy we all come from a hot dense spot that started the universe and is awesome to know that we may die but our remains and consciusness still are mass and energy that will move throughout the universe. A bit phylosophical but quite beautiful to actually know we can't cease to exist even when our human time is done. Wishing bliss and health your way ❤️
Wise woman, enjoy your life
Thank you for getting the word out about this type of cancer. Thinking positive thoughts for you.Wishing you the best.
My mother (66) was diagnosed 53 days ago because she all of a sudden turned yellow, like Simpsons yellow. First they suspected Hepatitis, the gall bladder stones and then two days later they said it’s cancer because they also found shadows in the lungs.
A week later it got the name stage 4 bile duct cancer with metastasis in the liver, abdominal area and lungs. She’s been in three hospitals since then, got Covid in one, almost died of a sepsis, but right now she’s home. She had her first chemo two days ago with no symptoms, just very red skin. She has to get a stent put in every three month to get the blockage repaired. I just hope that the chemo will make the tumor smaller and the metastasis shrink or go away. This type of cancer is the worst. So evil with showing itself way too late.
After watching your video I have hope now that she can live a bit longer with the right treatment, that she will have quality of life, that we can soak up the time we have with her.
I also hope that you will get through this and live as long and as healthy as you can. You are a trooper and very inspirational. Thank you for sharing your story. I will tell my mom about you tomorrow.
PS: We also hate to have to explain this type of cancer…”can’t you just take the gallbladder out?” A penny for every time we’ve heard that…
How is your mom now? Hope she is better.
My brother is in the same situation( except metastasis). He is expecting chemotherapy,but he still has jaundice which makes it longer to take it. The cancer is growing.
@@magorzatag8131 she passed away yesterday 😭😭
🖤my thoughts are with you and your family🖤
I had breast cancer 5 years ago now I have Mathematic breast cancer it in my liver.and T11 in my back iam on Kisqali and like you it to gave me more time .with my faith in God i will live my life to the fullness. I will kept you in my prayers
I relate completely with you. You are a solid, critical thinker and I understand your thought process and thank you. Everyone says to be your own advocate for yourself. Speak up even when you feel very sick and weak.
I was diagnosed with non alcohol cerosiss of the liver stage 3, it was found on my 63rd birthday. I would like to find some people who share the same thing I have to be friends with. We can encourage each other on our journey. God is good and is always there for us.
Wow, thank you for posting this! You are truly an inspiration. I have been dealing with tummy issues for basically my entire life. So I use that as a reason why I been feeling so so sick lately. So since 11/2021 I have been feeling beyond fatigue. It’s an indescribable fatigue. I have had all blood tests, ultrasound, CT and everything comes back normal. I most recently went to my loc Ed for this RUQ pain. The RUQ pain has been there since 2017. All test keep coming back normal 😢. This past year I randomly vomit … I have such bad nausea . No weight loss. In fact I gained 😢. How do I persist to doctors???
Hi, thanks for sharing your story and I hope you keep us up to date in how you are doing. My heart hurts for you but that said, you can still strive for a long time.
I am with you in spirit. You are doing great in my opinion. Thanks again. ❤️ Just one final thought, it never hurts to get a second opinion.
How are you doing today? Sadly. My dad has just been diagnosed with stage four bowel duct cancer. Thank you so much for this video. This just gave me hope.
What a pretty smile you have
We are here to listen.. I just we viewers can help in a way...
hey....I got diagnosed with this cancer too. it is HORRIBLE. I live in a town of maybe 10,000...and I read about 8,000 people a year are diagnosed with cholangiocarcinoma. wish I could talk to u. I feel so alone.
oh my gosh, this video from a year ago showed on my page and am so happy to see you are still thriving! Sending you ❤❤❤ and continued well being!
One of my best friends for life was diagnosed with bdc and was treated for 2 yrs…finally got a new liver donor and was in transplant surgery. When he was opened up they found too many tumors and so didn’t put the organ in. He died 5 months later..the liver saved another life. 😢 cancer is evil. RIP Jeff P. ❤
We, our stories are so similar. I’m awaiting for the oncologist to suggest the best course of action. I’m wondering if you found any supplements that helped? Right now my biggest complaint is the awful nausea I am experiencing. I’ve lost 45 lbs in 60 days and could so identify with what you said about not eating, not wanting to eat, not finding anything even tempting in the way of food. As a large girl, this too is something I’ve never experienced before. I just ordered the essential enzymes you suggested. I find myself crossing my fingers and toes on a regular basis a lot these days. Much love and healing vibes to you❣️
My husband was just diagnosed with this.
What tumor markers did they check for in your blood? Also are they following these levels over time?
I haven't seen you posting for a while. Sure hope you're doing ok. 🙏🙏🙏
You are a precious jewel in the eyes of our heavenly Father and Jesus Christ.
All disease, cancer, illnesses, hurt, misery and death etc are from Satan that serpent of old the devil.
This earthly life is a test those whom keep the commandments of God and love Him with all their hearts will receive their reward at Jesus Second Coming.
God's love for fallen, sinful man is very great.
I sincerely wish you well on your cancer journey.
Are you doing okay? It's been months since a video from you & feeling a bit worried ❤
I can’t believe it took a month for the doctor to call you because doctors always say if we don’t phone everything’s okay that’s so bad
A port goes in a vein; veins feed the heart, arteries empty the heart.
Wish you would update
She passed on october 4th 😢
@@Heidi-uo5xp I’m so sorry for the loss thank You for sharing
Terrible bed side manner.
Your doctor telling you that news soooo late and not asking you what you was doing before telling you that news is disgusting.
The global response to a crisis being a million times worse than the crisis itself will come to fruition in the future.
Millions of people probably died more because of the response to covid than covid itself.
So sorry that you have been a victim and are suffered repercussions of global wide response.
I send you my prayers and hugs and hope you beat this .
Did you get many Stones in your bile duct?
dr waited a MONTH to give you results??!!🙀
Malpractice much?!? My first question would have been, why did you wait an effin month to tell me this?!,
Hi
Try fenbendazol if interested let me know I'll send you the information on how to order it there is a group of nurses also helping how to take it