How My Symptoms Progressed Over Time | bartonellosis, MCAS, SIBO, and IC from WOMB to DOOM lol
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- เผยแพร่เมื่อ 28 เม.ย. 2021
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I believe that everyone should have access to affordable, high-quality healthcare and I also believe that people should be compensated for their hard work. I would love to be able to make helping others navigate their chronic illnesses my job and if you appreciate my hard work, research, advocacy, and my contribution to the health space you can support me via PayPal and Venmo. You can find me on PayPal with my username @bartonellababe or by searching Jake Picker. My username on Venmo is Jake-Picker. This would be considered a gift and not a donation to a non-profit. No one needs to support me in this way and please do not gift me if you are not in a position to do so! Gifts will go towards my ongoing medical costs. Thank you for any support you can give!
✩Instagram: @bartonella_babe / bartonella_babe
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Videos/playlists referenced:
→ how Bartonella causes symptoms: • How Does Bartonella Ca...
→ interstitial cystitis and MCAS: • Treatment Of Interstit...
JOIN our NEW bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
/ 1104493829902071
Understanding Bartonella Webinar with Dr. Mozayeni and Dr. Breitschwerdt: • Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
Blog Post on Bartonella and the Eyes from Galaxy Diagnostics
www.galaxydx.com/bartonella-a...
Mast Cell Activation Resources:
tmsforacure.org/
www.mastattack.org/
/ mcas
Mast Cell Activation Facebook Support Groups:
/ mastcell
/ 207077049364043
/ 688215441273764
High quality journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
4. Breitschwerdt, E. B., Maggi, R. G., Mozayeni, B. R., Hegarty, B. C., Bradley, J. M., & Mascarelli, P. E. (2010). PCR amplification of Bartonella koehlerae from human blood and enrichment blood cultures. Parasites & vectors, 3(1), 76.
5. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
6. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
7. Breitschwerdt, E. B., Maggi, R. G., Nicholson, W. L., Cherry, N. A., & Woods, C. W. (2008). Bartonella sp. bacteremia in patients with neurological and neurocognitive dysfunction. Journal of clinical microbiology, 46(9), 2856-2861.
8. Breitschwerdt, E. B., Mascarelli, P. E., Schweickert, L. A., Maggi, R. G., Hegarty, B. C., Bradley, J. M., & Woods, C. W. (2011). Hallucinations, sensory neuropathy, and peripheral visual deficits in a young woman infected with Bartonella koehlerae. Journal of clinical microbiology, 49(9), 3415-3417.
9. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
#bartonellababe #bartonella #bartonellosis #mcas #sibo
Dear Jake,
I'm so sorry to hear that you passed. It's crazy because I resulted positive for Lyme a year ago and I'm still waiting for bartonella's PCR blood test results. I'm not scared. I'm a little scared of course but I know that life is wise and terrible things happen but also precious things happen to, like your amazing contributions. And or people that recover!
I'm so sorry Jake's mom, but thank you for having Jake, who lit the path for other people affected by these pathogen.
Rest in peace Jake
So sad to hear she passed away 😢
RIP 🕊️
I just heard. So sad.
I am heartbroken 😢
Oh my God!!!!!
What how?!!!!!!!
so sad to hear that 😢 RIP
Your a beautiful smart young lady Jake. Praying for your healing. Blessings hon.
YOU WILL BE MISSED. THANK YOU FOR YOUR UPLOADS!!!!!!!!!!!!
Oh Jake soooo loved. ♥️
So true!! I 've been trying to attack this thing too linearly- I was classifying my symptoms of Bartonella and Lupus- to see whether my immune system is under or over reacting- but .....the sad truth is it is doing both at the same time- focusing on bart first and hoping my lupus will chill out.
Yup the sad truth is it can be doing both at the same time! We also tend to think of the immune system as only depressed or overreactive. I think it's more accurate to call it screwed up! Lol but actually not 🥴 one of my BLMDs sees a lot of Lupus with bartonellosis so hopefully treating the Bartonella will help your Lupus go into remission ❤️
Love your mom. You guys are great!
Thank you! And I love her too ❤️
First of all thank you so much for sharing. My own story has so many parallels with yours. I was on doxycycline for acne for 2 years before getting sick from lyme and co infections. I noticed you said the pain got significantly worse after going home, I know this may sound far out, but has your home ever been tested for mold? MCAS has such a tie in to mold and if this is still aggravating your already sensitive system you may need to get out of there. I could be totally off or maybe you already looked into this. Anyway sending love and prayers to you, this video was super helpful. :)
Mold is definitely not my issue. My mom and I have been down that path but thank you for thinking of me and hoping for both of our healing soon!
First of all, you are one smart cookie! Secondly, I'm so grateful I came across your channel. I'm 62 yo and have had Fibromyalgia/CFS, hypothyroidism, IC along with several other "maladies" now since I'm young. I'm currently seeing a 2nd Neurologist (getting appointments is like pulling teeth) and I think he is on the right yrack. He will be doing a Small fiber Nerve biopsy next month. Hopefully, it might show some Mast cell stuff if that's an issue. EVERYTHING points to me having Histamine intolerance. I have already started a low histamine diet and taking Quercetin. I'm weaning myself off years of Tramadol. Trying to get off meds that will trigger histamine.
Do you have a set low histamine diet that you use? Im having trouble being creative. Seems I ate a lot of histamine foods!
I like the low histamine diet list from Anita Tee from factvsfitness.com. It’s a great place to start and then you can add foods back in if tolerated. Punch biopsies are not standard tests for MCAS but I do have a video on my channel called “MCAS testing! Everything you need to know” and that will tell you, well, everything you need to know about MCAS testing lol
Omg. I have every symptom you are talking about. And same results with all the stuff you tried
Thank you Jake! Great channel and videos you are so talented. Can you recommend a few water filters that you use? thank you!
Thank you so so much Gina. My mom put a reverse osmosis apparatus on her kitchen sink. That takes out all of the minerals (I’m not an expert on this) so you can had those back in in various ways but I have not yet researched that. I know people love their Berkey filters but I don’t know much about those either
@@BartonellaBabe Thank you!
You’re a beautiful smart young lady Jake. Praying for your healing. Im taking Rifampin n clarithromycin at the moment but have had some awful reactions in the past. Little by little.
Love the jewelry. Ordered on Etsy. Beautiful
Thank you so much Denise! Your order made my crappy day better. And thank you for your sweet note. I wrote a little one back on the earring card. I hope you enjoy them. Glad to hear you're on rifampin and clarith, despite the reactions. That's a great combo for healing ❤️
I had seasonal allergies, eczema and contact dermatitis as a child and my dad has psoriasis so last october when my mcas blew up as a severe rash (hives, blisters, and bleeding, oh my!) the dermatologist thought that I was just having a really bad recurrence even though I had been symptom free for a decade. I had a sneaking suspicion the whole time that it was mast cell related but I was in denial (even though my seasonal allergies had been getting more severe as my bartonellosis got more severe) so I ended up covering myself in triamcinolone ointment 3 times a day until january when I had a reaction that was causing my throat to swell (not quite anaphylaxis but if I hadn't gone in it probably would've gotten there). ended up starting 2021 off on two courses of oral steroids and just recently got my mcas diagnosis confirmed with bloodwork. it's a wild time
Congrats on your MCAS diagnosis! Well ya know what I mean. And makes total sense that you with your history of allergic symptoms eventually manifests as MCAS. Now if only MCAS researchers would be a little more open to infections CAUSING MCAS, we might get somewhere. They know who they are lol
@@BartonellaBabe haha thank you!
Hi Jake, could you look into INPT Bacterio Phages from Biologix. Please go to their website and look at the paper written by Dr. Jernigan
Hey! I really enjoy your vids. I believe i have IC. Not sure about what else but this is controlling my life. I really hope we can get some answers
Hey! I’m sorry to hear about the IC. I’m sure you’ve seen my video on IC and MCAS? A lot of overlapping treatment there so maybe you can at least find some symptomatic relief ❤️
For sure that was the first vid i saw! I followed you on insta too. Hopefully we can get to the bottom of all this crap one day soon
So is bartonellosis permanent? It seems it can be killed off. I read it can be caused by fleas and my dogs did have fleas at one point
Im only curious because i used to get that nerve pain when i’d jump off things in my feet too
I would recommend you watch my videos on treatment of chronic bartonellosis and my interview with Jack and Amy. Not everyone who is infected with Bartonella develops the chronic disease called bartonellosis but Jack and I did and so have many others
StillJake...nicely done. Not sure what your deal is with the jewelry, but you might consider a shop on Etsy? Along the same line, many people are making additional fundage via TH-cam reaction videos, (music, comedy etc.), and I've thought a few times with your sparkling personality, verbose verbiage, loquacious lovely visage, it would be something you'd rock at, might enjoy, and supplementary remuneration is...what it is. Or I could be totally wrong. I usually am. Or maybe "Piperoshush Cujosis" would do it, running canine commentary (Woof!) while watching some doggie videos. :)
The Etsy link is in my video description box! Because of my illness I can’t really time the launching of some stuff. That’s just a step too advanced lol. So I didn’t know when I filmed or edited that video my Etsy would be up and running but it is!
What kind of videos do you envision me doing reaction videos to? I’m only used to reacting to food and medicine 😂
@@BartonellaBabe For example th-cam.com/users/results?search_query=bill+burr+reaction or search for music reactions, sports etc, a plethora of hits will come up. I'd post a variety of favorites & examples, but don't want to inundate your feed with that. Short version, attractive people with charming personalities, animated faces, good sense of humor etc. post video of them watching "whatever" and others enjoy watching them, watching the videos, plus their commentaries, get enough hits, TH-cam pays you for the ads and traffic. If that makes sense. :)
Dia-Riri, is next in a T shirt
Bahahah this got my mom and me good. Real lols
Where did she go ?
she passed away recently assisted by Death by Dignity. Incredibly heartbreaking. I think there was a missed diagnosis of mold illness, these toxins can trigger parasitic co-infections such as Bartonella. I believe treating that with SIBO would have provided relief for her 💚
One time i had to run into a bakery, because my explosive D was so bad. When I flushed the toilet my brand new sunglasses fell in the toilet. 😭😭 Safe to say I'm never eating pinto beans ever again.
bahahah oh noooo that's terrible! but also kind of funny, not gonna lie and sounds like a great way to clog the toilet 😂
I can’t believe she’s gone. I just wish it were not true.So hard to believe my heart truly aches and is in pain. I’ve been Weeping almost all day .I’m 45 and this beautiful soul is probably one of the most amazing and beautiful person I’ve ever known on the internet. I hope to God she was saved and accepted Jesus Christ as her savior. So so sad, love you so much Jake. You’ll never be forgotten