How Does Bartonella Cause Symptoms? Foot pain, small blood vessel disease, neuropsychiatric symptoms
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- เผยแพร่เมื่อ 8 ก.ค. 2024
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Videos/playlists referenced:
→ host response: • Why are Bartonella sym...
→ Understanding Bartonella Webinar with Dr. Mozayeni and Dr. Breitschwerdt: • Understanding Bartonel...
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References:
1. www.rheumatology.org/I-Am-A/P...
2. Kreutz, R. P., Tantry, U. S., Bliden, K. P., & Gurbel, P. A. (2007). Inflammatory changes during the ‘common cold’are associated with platelet activation and increased reactivity of platelets to agonists. Blood coagulation & fibrinolysis, 18(8), 713-718.
3. Gaertner, F., & Massberg, S. (2016, December). Blood coagulation in immunothrombosis-At the frontline of intravascular immunity. In Seminars in immunology (Vol. 28, No. 6, pp. 561-569). Academic Press.
4. Cowled, P., & Fitridge, R. (2011). Pathophysiology of reperfusion injury. Mechanisms of Vascular Disease: A Reference Book for Vascular Specialists [Internet].
5. www.ncbi.nlm.nih.gov/books/NB...
6. stickycell.com.au/sticky-cell....
7. stickycell.com.au/sticky-cell...
8. Gaertner, F., & Massberg, S. (2016, December). Blood coagulation in immunothrombosis-At the frontline of intravascular immunity. In Seminars in immunology (Vol. 28, No. 6, pp. 561-569). Academic Press.
9. www.sciencefocus.com/the-huma....
10. www.shorelinevision.com/corne....
11. Muzio, M. R., & Cascella, M. (2020). Histology, Axon. www.ncbi.nlm.nih.gov/books/NB...
12. Manson, P. N., Jesudass, R., Marzella, L., Bulkley, G. B., Im, M. J., & Narayan, K. K. (1991). Evidence for an early free radical-mediated reperfusion injury in frostbite. Free Radical Biology and Medicine, 10(1), 7-11.
pubmed.ncbi.nlm.nih.gov/20502....
13. Kubes, P., & Granger, D. N. (1996). Leukocyte-endothelial cell interactions evoked by mast cells. Cardiovascular research, 32(4), 699-708.
14. He, Z., Ma, C., Yu, T., Song, J., Leng, J., Gu, X., & Li, J. (2019). Activation mechanisms and multifaceted effects of mast cells in ischemia reperfusion injury. Experimental cell research, 376(2), 227-235.
15. Carden, D. L., & Granger, D. N. (2000). Pathophysiology of ischaemia-reperfusion injury. The Journal of pathology, 190(3), 255-266.
onlinelibrary.wiley.com/doi/1...
Other resources used to make this video: Lyme Savvy: Treatment Insights for Lyme Patients and Practitioners by Sharon Rainey and B. Robert Mozayeni, MD
Time stamps:
0:00 Intro to small vessel disease
3:03 blood viscosity
3:38 thrombus (blood clot formation) and blood flow
6:30 foot pain
7:53 ischemia-reperfusion injury, oxidative stress, and mast cells
12:27 neurocognitive symptoms
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
Blog Post on Bartonella and the Eyes from Galaxy Diagnostics
www.galaxydx.com/bartonella-a...
Mast Cell Activation Resources:
tmsforacure.org/
www.mastattack.org/
/ mcas
Mast Cell Activation Facebook Support Groups:
/ mastcell
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#bartonella #bartonellababe #bartonellosis #bartonellasymptoms
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Very sad to hear pf Jake's passing. Incredible young woman who has made a legacy that will go on to help millions. Thank you Jake and sincere condolences to her family. The laughter you shared with your mum Jake, brightened everyone's day. Never to be forgotten.
What happened to her
That is awful, she was so young.
Jake was such a wealth of information, I learned the most about my Bartonella Henselae from her , she will b sorely missed, shine on Bartonella Babe!❤️❤️❤️❤️
Thank you so much. I have Lyme disease and it's co-infections. My feet have hurt on and off for years. I didn't realize there was a logical answer. Thank you ❤️
Look into bee venom therapy, check out the “healhive” my son and daughter have Lyme and using bees to treat, they are getting better
OMG!! I am so 💔 to lose Jake. It makes me fearful of my own situation and those suffering this agonizing illness. I will miss Jake's warming light.😢
This particular video was especially helpful when my foot swelled up. Because of this video, I was able to treat the swelling and now I’m back on my feet. Thanks, Jake.
So glad to hear that Paul! How did you treat the swelling?
@@BartonellaBabe Cefuroxime for Lyme and probable bartonella, dexamethasone for inflammation, Cialis for blood flow. My foot is now almost fully recovered. I could not walk or even lower my foot below my waist last week. Magic.
It was your discussion about reperfusion that caught my attention. I won’t forget that information any time soon.
Great video even if my brain fog kept me from comprehending most of it.
Thank you! And I know that feeling. At least the beauty of TH-cam is that can go back and watch as many times as you need
Binge watching your videos right now, learning so much!!
Thanks!
Reminds me of long-covid patients, as well.
Definitely. Lots of similarities in pathology and hopefully research from long Covid can be translated to bartonellosis!
Danke!
This was the best connection I have Bartonella my ankles swell else have I think be one deficiency but I didn't know and no Bart person I've talked to explain how Bart causes circulation and nerve pain the way you have and I like your comedy
Awesome explanation! Thank you for the detail.
Thank you!
vasculitis is also a post-covid issue... I think people will talk more about it soon
Yes definitely! Also, right when COVID hit and fefore anyone even understood anything about it Dr. M was talking about hypercoagulability and looking back I'm very impressed
Thank you so much Jake, greatly appreciated and very informative 🙏❤️
Thanks Tara ❤️
She was a bright light in the darkness of her challenges!
Great job! Love it. Your amazing
So much work for you!! 🤗 Thank you for breaking this down for everyone!! Great job!! I agree, everytime I watched the Understanding Bartonella webinar, I always gleaned new information. I think some of its the learning curve- the more you understand, the more you can learn, LOL!
Agree with everything you just said!!! Hopefully my channel is a place where people can start that learning curve and use it to understand that webinar a bit better. Thanks for watching ❤️
This was spot on!!! Extremely well done & explained. I can relate to all those symptoms.
Thank you! I worked hard on this video! I don’t want to ever read about thrombosis again 😂
You are magical, thank you for getting this information out. I finally have a clearer picture of what is happening to my body.
You are so welcome! I work hard on these videos so that future patients don't have to be as lost as I was in the beginning of my journey ❤️
The best video yet! Post-bartonella career in broadcasting for sure or at least post-production magician
Thank you!! And I want to continue to be a TH-camr when I’m well so I need subs like you to make that happen ❤️
Dziękuję 🤗
you're welcome! ❤️
Thanks Jake for another fantastic TH-cam video! I’m old now but had horrific pain in my feet and legs since age 3. Yup. Definitely entering enough! ❤️
Thank you Gillian ❤️the foot pain is atrocious!
@@BartonellaBabe Sure in hell is. I can’t believe how much pain I’ve lived with. Horrific. I was in a wheelchair for about a year. Glad I’ve been able to get all my physical pain down by about 85%. Still have my days though. You’ve taught me a lot. Thank you... ❤️
Thanks for making this information available, Jake! I can't wait for my Bartonella test . . . Two more weeks until I can get the Galaxy. I'm nervous that the results won't be accurate but fingers crossed it'll show up if I have it. I really feel like I could have it. I have blood flow issues and got severe vasculitis as a child. If this ends up being Bartonella, I'll be so relieved to have a new answer but also angry at all the docs who never investigated this further at all. All my docs have focused on Lyme and mold for years and years, which has barely made a dent in my symptoms. I, too, am nearly bed bound but look very functional from the outside like you do in videos. I completed the Trio Breath test about an hour ago and gonna go to FedEx later to ship that off. Thanks for telling us about that test!!
You're welcome and gah I hope you get some answers soon. Of course, if your Galaxy comes back negative that doesn't mean you don't have it. Ultimately, it's a clinical diagnosis. If Lyme and mold have barely made a dent, then it sounds like Bartonella is a strong possibility. Keep me updated on those two tests! ❤️
@@BartonellaBabe Thank you! I will! Do you remember how long it took to get your SIBO test results?
@@avivapeltin they come back pretty fast from that lab. 5 business days or less has been my experience
What u use for blood circulation in the legs?
Thanks for the info and the entertainment - good combo :))
thank you so much!
@@BartonellaBabe Thank you for all the fun and info. It pains me to see you suffer, not right for such a beautiful and clever girl like you. Do check out the beef cure :)) P.S. Thank you for making the vid even with your wings a bit down - very honest and much appreciated :))
I feel seen. Thank you for making these videos. Educational and entertaining as always! My question is how to you treat the foot pain? I know it’s different for everyone but maybe you’ve heard of something I haven’t? My pain has recently gotten worse and the treatments or medications haven’t done shit
Thank you! The foot pain resolves best with proper treatment. Symptoms might get worse while on treatment because you’re driving up inflammation but once things start to calm down, the symptoms fall away. I think ibuprofen could help foot pain or anything else that helps inflammation could but I wish there was something better since I basically haven’t been on my feet in 2 1/2 years!
Brilliant job and very well explained. Thank you. Do one on herbs for bart some time
I don't have any experience with herbs for Bartonella. I think it would be a good video but I feel like it would just be me regurgitating what is in Buhner's book lol. I guess I could go over what Bartonella doctors have found successful clinically like the stuff that's on Marty Ross' website or I know that some people are having really good success with allicin and and liposomal oil of oregano with Dr. M
@@BartonellaBabe yes do this!!!!!
@@BartonellaBabe Yes a video going over the basics of Burners Bartonella protocol would be great along with going over Marty statements.
Dr. Ross, what’s your thoughts on the new enhanced PCR test that Igenex rolled out fairly recently? Great Channel you have. Thanks a lot!
Do you know if car wrecks and head trauma can worsen tick illness or bartonella
thanks so much for this. how do you find all your research and memorize it all? does it take hours of planning and organizing? I want to have a platform like this one day
Thank you for watching!!! It means a lot because it’s a LOT of work! I have a masters degree so I have good research skills from my years in school. It’s easy to sit in front of the camera and just regurgitate what others have said but I fact check everything other people say to the best of my ability. So I research for many hours, write a script, and then sit in front of the camera and memorize a line or two at a time, film that clip and repeat. And throw in jokes (good or bad lol) when I think of them while filming. Then I edit, put in the pics and words, make the thumbnail, edit a trailer or two, and then spend a few hours promoting on social media. It takes a lot of time! If I was in some other genre like beauty, then those women can crank out 3-5 videos a week but that’s because there is a lot less prep for them
have you found something that makes your foot pain better? What therapies have you tried and which ones helped the most? I have neuropathy (SFN), probably caused by Bartonella and would be grateful for any help :)
and how is this specific symptom treated? I've been struggling with horrible nerve pain and numbness in my hands for a year now from Bartonella. can't even type or write a paragraph anymore and I'm desperate
Hey Jake!
My main issue to this day are daily fasciculations, all over. I remember you saying in the Facebook group that it is lack oxygen/ impaired blood flow (or at least Dr M’s guess) that likely causes muscle twitching.
Crazy… after my cat attack, my heart palpitations were insane and EKGs all came back normal… after learning that there is a nerve that leads to the heart that regulates the blood flow/ heartbeat… it all clicked!
Do you have a video on the central nervous system? I hear you talk about nerves in this video and I’m sure you have others. But am fascinated by this topic!
Hi Oliver! I don't have a video on the central nervous system but Dr. M thinks the blood flow issue is part of what causes POTS in many bartonellosis patients. So your heart palpitations could be due to that same mechanism! Of course, it's a hypothesis and I am not a practitioner of any kind
Brilliant video ! Very informative. This explains why the more I wear on my feet, the worse the pain in my feet gets. With shoes on, I can barely walk as the neuropathy type pain builds up really quickly. Wearing socks does this but a lot slower and doesn’t get to the same pain levels. And bare feet being the best for this symptom.
Just to ask a question. With your own feet/leg pain. Do you feel the pain progressively “creeps” or climbs further up the legs the longer you are on them ? I get this myself.
Thank you!! I think this happened right before I became disabled. So I've had the foot pain slowly get worse from ages 22-25. Then at 25, within a month, I went from functioning to disabled. During that month, it would creep up my legs. Now I just don't go on my feet so it doesn't creep up. But it is quite normal for foot pain to present a bit differently in each patient that has it
@@BartonellaBabe Thanks for the help. I’ve had a similar quick onset over the last 6-8 weeks. So from walking to disabled in that time frame. Had other symptoms leading up to this too. Interesting. 🤔
Thanks again. 🙂
@@BartonellaBabe how are you now girl? Still not walking due to pain? :( have u ever had that feeling like ur floating as well? What do u do to imrpove blood circulation especially when u are not moving much?
so, wondering if my Raynaud-like symptoms could be caused my this impaired blood flow due to bartonella? (weve already ruled out autoimmune stuff, i have a positive borrelia test and maaaany other symptoms that align with bartonella)
Also, you are joyous to watch, crazy smart, thank you for sharing all your knowledge with us
I mean I have read and white feet and similar symptoms to raynauds and I have bartonella
Do you have a detailed description of all the symptoms of bartonella? I need something to send to my 19 year old daughter
Hi! I would suggest she watch this video: th-cam.com/video/yBnmG5jGvEc/w-d-xo.html
But this is an even better place to start because it's a playlist for those that are new to bartonellosis: th-cam.com/play/PL_iPqirRA83YjZpfuKHNZ5LcAc2uIGiqf.html
My foot pain used to only be bad in the morning as well, it is bad all day now, I can't even believe this video! I do however, feel very humanized! ;) Oh wait I have Babesia (Babesiosis) do you think the same can apply?
ROS would mean high IRON? and low copper and coming from what source?
What if I have all of these symptoms but Bartonella and Lyme tests both came back negative (but Rocky Mtn Spotted Fever and Mycoplasma Pneumonia positive) ?
haha had a good chuckle at 'dont fall asleep'. thanks jake this was really helpful!
haha I'm glad it was helpful! I just filmed a video on my symptoms over time because after researching this video I finally understand a bunch of stuff (like why heating pads would relieve pain and then hurt --> ischemia-reperfusion!!)
@@BartonellaBabe this also makes sense in relation to my baths!
@@catashtrophe0 ooh what happens with your baths?
@@BartonellaBabe if I have a hot bath, afterwards the foot pain and neuropathy in my feet is WAY worse compared to my normal. The pain feels way worse during the bath/ towards the end/ especially when I get out and stand it’s not nice at all! Feels very inflamed, stiff and almost arthritic
My feet are also usually cold all the time since being ill so definitely the lack of perfusion going on like you were saying!
Hi, would you happen to know if Bartonella could be the cause of developing lipedema & it’s part with the lymphatic system? Also, have you ever heard of bart destroying the mandible, or maybe Lyme or another co-infection?
Would this make drawing blood more difficult? I used to never have problems getting my labs taken (hooray good veins!) but as of the last year, when my Bart symptoms first wreaked havoc, it seems like my veins have collapsed and my blood looks thicker making it such a pain to be stuck with a needle. 😫
That's a good question and I don't know the answer to that. It certainly sounds plausible to my layperson's ears!
This is jake from State Farm
I don’t have foot pain symptoms but I’ve always had neck and head pain along with burning eyes. Have you had that? Is it possible to be bart without foot pain like you describe?
I’ve had neck and shoulder pain but I don’t have burning eyes. Yes it’s very possible to have bartonellosis without foot pain!
I don’t usually have foot pain but I do get numb feet, which I’m sure is due to Bart.
@@Peakaboo304 yes very possibly
Sooooooooooooooooooooo...your feet would get really cold and then swell up as the blood returns?????
Are both of those illnesses considered autoimmune disease?
I'm sorry. Which illnesses are you referring to?
How can i deal with this awful thing 😩
Will u please become a podiatrist and save people’s lives my life has been ruined since 2019 because my bartonella test through lab Corp was normal but babesia was not
I have foot pain but I’ve only ever been diagnosed with Lyme. They gave me 10 days worth of doxycycline which is the bare minimum the CDC recommended and at this point I’m hoping wasn’t enough which sounds fucking nuts but I’ve been having near constant twitching in my calves and random twitches elsewhere and if it isn’t Lyme, what is it?
It could be Bartonella, which is not Lyme. Lyme is caused by Borrelia burgdorferi. Perhaps you would like to be tested and evaluated by a Bartonella literate medical doctor (BLMD)?
@@BartonellaBabe Right and I’d love to be tested for bartonella. I’ve asked my primary care twice about bartonella but deaf ears and all. She also won’t hear anything about Lyme even with a confirmed positive blood test. “You were treated for Lyme” she says and that’s the end of that conversation. The bare minimum the CDC recommends and she won’t even consider Lyme or bartonella for these symptoms. I shouldn’t complain about her though I guess and I can’t lay any blame, I should have looked for someone else the first time she was dismissive. I’ve got a list of Lyme literate doctors to call tomorrow though.
@@BartonellaBabe I mean I was treated though and maybe 10 days was enough and this is something else. That’s a more disturbing thought to me than anything.
Sounds like your plan to call some BLMDs/LLMDs tomorrow is a good one for proper evaluation. Good luck! ❤️
I hope you were able to find an LLMD or BLMD and get a second opinion. Are you currently taking magnesium supplements? I also had bad muscle twitching, and it moved up my legs and then my arms before my test results returned positive for Lyme. As I have learned, those with positive Lyme are said to be a group of people with the lowest levels of magnesium. At the time my symptoms started, I had run out of magnesium two weeks prior (had been taking it for a few years). But when adding it back in (I only took 150 mg vs the recommended 400 mg/day which always worked for me before), the twitching did not reside until I upped the dosage to 400 mg. I had to learn the hard way years ago that Magnesium Oxide is poorly absorbed and may cause loose stools. More absorbable forms are Mag Citr and Mag Glycin (look for magnesium supplements that end in -ate). If you aren't already on magnesium, you may want to do some research and try that to start for your twitching, but of course it isn't a cure for stealth bacteria that reside within. Also, consider researching videos that explain B1/TTFD (EONutrition) and NIR light therapy (Light as Medicine by Seheult, MD). I got a set of RubyLux lights on Amazon (her website/blog is very informative about NIR Do's and Dont's for those with Lyme as she suffers with it herself, such as don't use the lights if on certain antibiotics such as Doxycycline, which I was on at first). Hoping you can find the answers and treatment you are looking for.
I thought my feet pain was caused Bartonella but then I found it's caused by severe small fiber neuropathy. And it's just getting worse...
I am so sorry to hear about the small fiber neuropathy. Bartonella and Lyme literate doctors do see an association between chronic infections (like Bartonella) and the development of small fiber neuropathy and many treat with IVIG for the SFN
I love U
As always highly informative AND funny 😁 x.
Thank you I’m flattered
Do your hands and feet feel like they are cooking from the inside out. ❤ Just curious .Hope you feel better . I had them symptoms and I actually figured out how to make them pretty much disappear . Geez ,a lot of big words .I think I know what's wrong with your Dr . You might be smarter 😂.❤❤❤.
little too cutesy but thanks you
She's got me laughing finally.
So what symptoms does this coagulation cause???????
I have a video on symptoms and another video on neuropsychiatric symptoms on my channel that you may find helpful: th-cam.com/video/yBnmG5jGvEc/w-d-xo.html
Neuropsych: th-cam.com/video/wROXT5s-xe8/w-d-xo.html
@@BartonellaBabe Yes...thank you for the vids!!!!
@@BartonellaBabe I look at you and I don't see a person with Bart...were your eyes ever red/sleepy looking/teary/itchy?????
@@imaxfli well I'm 89 pounds (got down to 86 from 103 and I'm 5'2") and at one point could only tolerate five vegetables and I can only be on my feet 15 minutes total a day for 2.5 years now. That's why it's called an invisible illness/disability ❤️. Many people have eye problems with bartonellosis. Here is a good blog post: www.galaxydx.com/bartonella-and-the-eyes/
@@imaxfli do you have microscopic eye balls that can see pathogens through a computer screen??? I think not!
Does Bart cause COLD FEET???????? Is this stuff just off the top of your head??
Bartonella could cause cold feet but many symptoms have many different possible causes. I do hours of research for these videos and then I write it out, film it, and spend hours editing so no, not really off the top of my head lol