I want to again give a big thank you to Dr. Mark Pimentel for his time and everyone at the MAST program at Cedars-Sinai for their tireless, methodical, and unparalleled work to give patients a better quality of life. I credit their research for quite literally saving my life. Let me know what info from this interview you found most interesting or helpful in the comments below!
Hello there, i hope you're well. just wanted to ask what you know about copper dis-regulation or copper deficiency, i read it might play a huge role on leaky gut, candida, viruses, and different bacteria in the body. molybdenum and zinc also detoxing copper from the body.
I learnt a lot - thank you. I especially valued the clarification that there can be mixed symptoms across SIBO subtypes on a graduating range. Also that rifaximin may benefit rather than annihilate the gut microbiome.
@BartonellaBabe Hi Jake, I hope you see this! I also had a lot of bladder pain with H2S sibo, and very limited sulfur food in my diet as it would cause pain, and it was TOTALLY relieved with lemongrass! Yes really, I’m working with an amazing practitioner who has an MSc in nutrition and has treated hundreds of patients, and he told me to take it for my bladder pain (which was hell) I get organic powdered lemongrass and take one big teaspoon (in sauces/drinks/smoothies) morning and evening and it totally took the pain away. We are working on other stuff on a deeper level now, but I wanted to tell anyone who is in pain to try it as it WORKS. I also took UVA Ursi at first as I read about it here, and that helped but only halved the pain, lemongrass got it down to nothing.
It's devastating how many of us get taken too soon because of this hellish disease. I have MCAS from Bartonella as well. It's a nightmare. Jake's TH-cam channel was incredible--always informational, interesting and entertaining. I was a fulltime filmmaker with a burgeoning career before all this. I will beat this insidious disease so I can make a film that honors the contributions of people like Jake. RIP Jake. We will NEVER forget. The world will know your story.
How did you get bartonella?I have tested positive but it was adult female black legged deer tick bite with bullseye that passed it along with anaplasmosis and berrelia good luck brother I hope you beat it.
I am really totally sad to read that Jake has chosen to go away and put an end to her suffering, but I understand her choice. I listened to her vids on sibo and mcas each vid several times. Very very helpful. I am very sad. I special thought to her mom and family. Force et courage
To discover Jake's channel now, all her work , efforts..... And to see that she just left this world is having me very sad. How much courage does someone has to suffer like this and still do all this research, videos.... She may be gone, but thousands of people will find help in all her videos and honor her memory.
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
Rest in peace. I hope the transition was relieving. Peace and love to her family and friends and everyone in this community. I hope we get more studies and answers. I personally have been dealing with bart and Lyme for over ten years and recently lost thirty pounds and 8 teeth from malnutrition even though I eat a lot every day. I pray we get help
I am incredibly sad and in shock to hear that Jake has passed away. She was such a bright, vibrant light despite her illness and her personality and dedication were unmatched. I really will miss you. Deepest condolences to her mom and family.
I thought you had to be actively dying to qualify for death with dignity? I wonder if she became terminal at some point ❤️🌹I thought she was so lovely 😞
@@Ruktiet she kept losing weight due to food intolerances and became anorexic. She got down to 79 pounds. So she decided to end her own life through medical aid in dying (MAID).
Jake, you were an absolutely amazing person and helped so many people. A true light on earth. I loved your videos and they helped me during really rough times and still do. The amount of dedication and energy you put into them despite being so ill to help all of us is so inspiring. You will be forever missed and may you be at peace.
Its been a while since you posted- sending you lots of healing light and love- your videos have helped so much- you are an inspiration. Whatever youre going through, you have fans and supporters!!
Is there a benefit from having something distressing like SIBO? I think so. It is how much you learn about biology and your body from researching the disease. Before I started trying to learn about what was going on, because doctors and others could not or would not help, I was completely ignorant about the body. I have learnt much and am still learning all the time. I even find the subject fascinating-who would have thought it is all so complicated? In that respect I found this talk fascinating. Hugely informative. I can console myself a bit for having suffered for forty years by the fact that I am learning so much. I was much impressed by Doctor Pimentel who came across as committed and sincere and not harbouring an inflated ego or sense of his own importance. That IMO is not a given among doctors. Thanks to Bartonella Babe for setting this up and thanks to Doctor Pimentel who is working hard to alleviate the suffering of millions!
@@eternity.in.a.m0m3nt I make the occasional attempt with horrible results as stopping eating gives me violent diorrhea but I am trying to do without food for 14 now 16 hours and slowly going that way. Reminds me that a lot of healthy plans diets etc often need to be approached very slowly and a lot of health gurus tend to forget to mention that. Apples very much to physical exercise too.
I can see that She was devastated by some of the answers that didn’t give much hope to sooner resolve her illness. I’m sorry dear Jake, and thank you for your honesty and courage…😢Thank you Dr. Mark Pimetel.
Wow! I’ve heard Dr. Silver Fox mention your channel in interviews, and now it’s clear he appreciates your contribution and genuinely cares about helping people get better. Bravo, great interview.
He has mentioned it interviews before?! Where? I've never heard him mention it so you got to tell me. I thought it was just me mentioning his research lol
This video is SO great! I would love and appreciate if you could continue to keep tabs on his team’s research as it comes out (as I’m sure you already do) to keep us informed! I’m still struggling with my own unique case of dysbiosis and he’s really the only one offering hope with his clinical trials. Thank you Jake for your sleuthing and for getting the interview!!
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
Wow! You got the SIBO star on your channel, awesome!!!! Great info newbie here. I have watched so many videos on Cibo I doctors and holistic practitioners, and I have to say yours is one of the best! You explain everything, so well, you were so detailed in an excellent speaker. Documentary on your sense of humor is awesome and in a time of great pain in distress, you crack me up, which I desperately need. Thank you.❤
Thank you! This truly was an honor although I have to be honest if I had to choose between Dr. Mark Pimentel and meeting Dominic Fike, no disrespect to the doc but I’m going with the Dom lol
I think of Jake when I am struggling with lyme each day because she was strong. I cry knowing how this world treats us but none of it is in vain. We can still make it through this one day at a time together ❤
Ever thought about you also simply having an anxiety/stress disorder sustaining this endless loop? Anxiety seems to be a very common denominator in all these chronically ill people, and the nervous system is known to affect immune function (INCLUDING MAST CELLS!!! via corticotrophin releasing hormone), digestive capacity, and much much more. Even if you actually have chronic infections, these might lead to symptoms in susceptible people which trigger health OCD/anxiety and an everlasting hypersympathetic state, disabling any attempts of your body to heal and overcome tisue damage, fight off the pathogens, etc. There are plenty of people online who claimed to have MCAS or related conditions, who swear that they got completely healed once they started to focus on this hypervigilant state and calmed their nervous system down.
@@Ruktiet Totally insensitive and you clearly haven't lived through lyme or seen people like me go through a decade of therapists and medications. It is people like you that allow lyme research to remain taboo in the pharmaceutical eye, never getting enough publicity to cure thousands of people, to this day remaining on prozac or benzodiazepines
Great podcast StillJake. I learned a great deal, and was impressed (as was Dr. Pimentel) with your knowledge on this whole topic. And...Happy Birthday. :)
Hello friend! Thank you for the birthday wish although we are nearly two months late. Chronic illness delayed the time between filming and posting. But I prefer the two month delay in the birthday wish because now I'm used to this age and no longer in denial
Had what my dentist thought was a tooth abscess (really a sinus infection) & prescribed me clindamycin. She didn’t tell me the risk of getting c diff. Well I got it. Tested positive for cytotoxin & did a 10 day course of Dificid. Did another test bc my loose stool symptom didn’t get better but I tested negative for c diff, shigella, different E. coli bacteria, campylobacter, etc, didn’t see klebsiella being tested though. I also didn’t have stomach cramps, bloody stool, having to go 10 times a day like c diff has, just loose stool that wasn’t formed. Took pepto & it took a long time for the stool to turn a dark color so my motility was slow. I was diagnosed last week with PI IBS/SIBO & I’m taking xifaxan, am on day 6 out of 14. Still no change & still have the loose stool. I’m also paralyzed with a spinal cord injury (happened 24 years ago) and can’t tell when I have to go so it’s been hell these last few months. The paralysis could also account for the slow gut motility but it’s never been a problem before taking clindamycin. Dr. Pimentel, have you ever treated a patient with a spinal cord injury/paralysis who has SIBO? Just curious if there’s any literature; I can’t find anything so far.
@@tubeverse911 seeing what I typed 9 months ago is like looking back in time. I went into remission by firing my GI doctor and reading TH-cam and Reddit comments. Here’s what finally worked for me and I hope it works for you: Align immune defense probiotic capsule (has to be immune defense), florastor probiotic, L-glutamine, zinc carnosine, and I was iron deficient so added that too. Took those, didn’t go for 5 days. Thought I had a blockage! But once I finally went, it was formed. I sobbed with joy and relief. Had to take Cipro at the beginning of this month for a UTI and my stool was loose again. So even though I still took all those supplements even after I went into remission, I doubled up on Align, florastor, and the glutamine and that worked! I hope you feel better soon and supplements do help with this, my GI doc said they don’t but that’s the only reason I’m alive today. Thanks TH-cam and Reddit!
This is one of the most informative videos I have watched! Answers to a lot of the questions I had but couldn’t find answers to! Thank you! One thing that caught me off guard.. “lactobacillus does not belong in the small intestine.”!?!?!! What!?!? Everything I’ve read has stated otherwise. I need more info on this.
So exciting! What great interview! Jake, on the topic of the bidirectional relationship: in my n=1 experience with both SIBO (methane and hydrogen) and systemic mastocytosis, if I avoid triggers I really don't have a lot of motility issues. But if I'm exposed to a trigger, not just food but for instance smoke in the air, my whole GI tract stops and I have regurgitation, no peristalsis, constipation. And then a couple days later everything can be just fine again. On the other hand, like you, I've had signifacant-but-modest improvements in my hypersensitivities after SIBO treatment.
Helo baffled waffle! Yes my n of 1 leads me to believe there is a bidirectional relationship there as well. I didn't get to ask about SIBO and dysautonomia but maybe if there is a next time
I remember watching some of her first videos three years ago. I’m completely devastated by this news. I listened to a few videos tonight and I’m wondering, does anyone know - with all of these gastrointestinal issues, inability to walk or stand, and the leg pain, did she ever have a work-up for structural issues such as Tethered Cord?
Well done on the interview Jake. Bet Piper’s sorry she missed it🥰. A couple of things I’d love to know…dr Pimental’s often talked about the safety of rafaxamin but we need a second antibiotic to treat methane. Could you ask him next time to comment on the abx he suggests for methane and talk about the safety of those also please? Also since the new research hes mentioned the low fermentation diet for methane and said no gums. It wasn’t clear whether he also meant no PHGG as this has often been used to successfully treat methane sibo. How does he feel about PHGG since the new research?
I’m amazed by your channel, backed with scientific research, your unique humor and Dr Pimentel accepting this interview! Have you ever considered treating Bartonella, SIBO etc with herbs/Chinese medecine? Stephen Buhner wrote a couple Lyme books, all with scientific ref.
I finally figured that out!! No mystery anymore. I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw *garlic, & taking 3 *Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal. *natural antibiotics
I have been diagnosed with SIBO I took the breath test twice in past 3yrs Cedar Sinai My dr gastronoligist Put me on 3weeks regimen Metronomzile3x 500 mg Plus ciprofloxin 2x day 500 mg I’m still. Bloated Struggling with my issues I took religiously Would like to hear from you please
Hi there! I just wanted to check in about your current protocol and how you're doing. I'm currently dealing with EXTREME food intolerances, MCAS, and a host of other issues due to hydrogen sulfide SIBO (tested negative on breath test but doctors highly suspect this is it). Thinking about what treatments I could do and how to optimize treatment with a prokinetic like Motegrity since I need something strong probably. I didn't know the best way to reach you (Reddit was considered haha) but I thought to ask here and see! Thank you so much in advance. Hope you're doing better or at least managing and still learning!! Sending love
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
@@Userxyz-z2d Thanks for sharing. Did you suffer from histamine/mast cell activation type symptoms as well (itching, flushing, insomnia, brain fog, dizziness, all sorts of systemic symptoms)?
9 days dry fasting have removed my IMO, after trying unsuccessfully oregano berberine allicine… Several Dry fasting regenerates nerves, lining et microbiome It also works on SIFO, Lyme … Only dry fasting is able to promote stem cells
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
This is how I cured myself. I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
My biomesight test says my Klebsiella and E-coli are low / normal, and my diversity is good, but I get spikes into high hydrogen on my AIRE 2 at times, sometimes prolonged. Methane always low which correlates with the Biomesight findings.
Can we not donate to research somehow? I’m sure anyone who’s had gut issues would want to. I know i would! Not sure how this would work or ethics and all that but just came to me.
According to Dr PImentel, he says you want to treat the IBS quickly before the bacteria does more damage at 51:10, so does that mean to start taking xifaxan before getting the results of a SIBO breath test?
It’s possible if you still have sulfur sensitivity, you have the CBS mutation which in short is impaired sulfur metabolism, high sulfur foods and supplements will affect you negatively. How do I know this because I have CBS myself - it sucks.
I cannot tell you how devastated I am to learn of Jake’s passing❣️What an inspirational person she was! I could not believe the smiles that exuded from her as she talked about the most horrendous of diseases that I and my adult son have! I know she had a purpose in this life, although cut short. Maybe people, including DOCTORS, will finally take these persistent infections seriously! RIP❣️🙏🩷🥲
Hi, thanks for bringing informative videos on the topic to us all. I know u have done extensive research on this and wanted to take ur opinion on this - i had been given bartonella diagnosis based on antibody titers from galaxy labs some years back. Symptoms mainly anxiety, random fatigue, some numbing on hands etc. but lately i did blood work and find low levels of both CRP and sedimentation rate (earlier used to be high). Also dod cytokine panel with dr bruce patterson and everthing except IL6 was normal. So could i still have bartonella? Its one of those thing that remains as a doubt though i doubt how i cud have an infection with all inflammatory markers being normal. Any insight from ur research would help.
I know this is now an old video, and the last one, I have not watched all of the videos, but I have a question. Did they ever test you for heavy metals in the body? Maybe you have amalgam fillings and have mercury in your body?
Interesting....I've always assumed I had methane cause I've always had the C side of things. But I am definitely someone who is sensitive to sulfur. So I was suprised to hear that you were both sulfur sensitive and had hydrogen sulfide. Were you on D side, C side of mixed? And then even odder that you had methane and then hydrogen sulfide after. In my story, there was only the hydrogen test a few years ago. I tested negative. The doc was willing to give me rifaximin anyways to try it and did not do a thing. I asked for fluconazole because I had heard of sifo. He wouldn't rx but I asked my primary care and she decided she would try it. The fluconazole wiped out my symptoms for two years. I cooked some bad mushrooms and my symptoms came back. I tried fluconazole again and it didn't work Not sure what to do now. I'm gonna try taking higher doses of molybdenum, considering manganese, and ornithine I realize some of my health issues is that my protein intake/digestion. Are you able to consume a higher sulfur/protein diet now?
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
@@Userxyz-z2d you're my hero just for giving me hope to get closer to normalcy. Honestly I felt oregano oil work on it but it was so harsh. I learned from an herbalist that getting oil leaf instead of the oil is much more tolerable. Thank you.
Will they one day use injections with different types of bacteria in different parts of the intestine so that they can reach the correct part where they are beneficial? i'm from brazil, very interesting content
Sounds like you are Biotin deficient. Propynol CoA Carboxylase is a key enzyme in the transsulfuration pathway and it requires Biotin. Acetyl CoA Carboxylase is a key enzyme in Fatty Acid Oxidation. It requires Biotin as well and can explain your fat intolerance. Biotin deficiency also manifests itself in poor hair and nail health. Take your Biotin the first thing in the morning, without taking any food. Biotin competes with Patothenic Acid, Iodine and Alpha Lipoic Acid for the Sodium Dependent Mutlivitamin Transporter (SMVT).
Don't do antibiotics! those "lyme literate" drs don't know what their doing! The human body will never recover with the killing medications. Seek holistic treatments. Do brain retraining. Hundreds of programs out there to pick from. Follow Dr. Joe Dispensza.
I hope the reason you stopped making videos is because you got better and got off the internet and doing what you really want to, theres not much info about these type of diseases online and I respect anyone that manages to survive or cure their disease.
I want to again give a big thank you to Dr. Mark Pimentel for his time and everyone at the MAST program at Cedars-Sinai for their tireless, methodical, and unparalleled work to give patients a better quality of life. I credit their research for quite literally saving my life. Let me know what info from this interview you found most interesting or helpful in the comments below!
Sorry but I had no idea Jake was a girl's name. Is that your full first name or is it Jacqueline.?
Hi how are you! wow, this is the best SIBO video I have seen. I have a question for you, how did you do your appointment with Dr. Pimentel´s team?
Hello there, i hope you're well. just wanted to ask what you know about copper dis-regulation or copper deficiency, i read it might play a huge role on leaky gut, candida, viruses, and different bacteria in the body. molybdenum and zinc also detoxing copper from the body.
I learnt a lot - thank you. I especially valued the clarification that there can be mixed symptoms across SIBO subtypes on a graduating range. Also that rifaximin may benefit rather than annihilate the gut microbiome.
@BartonellaBabe Hi Jake, I hope you see this! I also had a lot of bladder pain with H2S sibo, and very limited sulfur food in my diet as it would cause pain, and it was TOTALLY relieved with lemongrass! Yes really, I’m working with an amazing practitioner who has an MSc in nutrition and has treated hundreds of patients, and he told me to take it for my bladder pain (which was hell) I get organic powdered lemongrass and take one big teaspoon (in sauces/drinks/smoothies) morning and evening and it totally took the pain away. We are working on other stuff on a deeper level now, but I wanted to tell anyone who is in pain to try it as it WORKS. I also took UVA Ursi at first as I read about it here, and that helped but only halved the pain, lemongrass got it down to nothing.
It's devastating how many of us get taken too soon because of this hellish disease. I have MCAS from Bartonella as well. It's a nightmare. Jake's TH-cam channel was incredible--always informational, interesting and entertaining. I was a fulltime filmmaker with a burgeoning career before all this. I will beat this insidious disease so I can make a film that honors the contributions of people like Jake. RIP Jake. We will NEVER forget. The world will know your story.
How did you get bartonella?I have tested positive but it was adult female black legged deer tick bite with bullseye that passed it along with anaplasmosis and berrelia good luck brother I hope you beat it.
RIP Jake. You have been an inspiration to many.
So sad...what happened?
Who is Jake?
@@landrychamberlain5037the beautiful young woman who produced and filmed and starred in these videos
@@landrychamberlain5037looks like Jake is the TH-camr here. And that she died. Very sad
I am really totally sad to read that Jake has chosen to go away and put an end to her suffering, but I understand her choice.
I listened to her vids on sibo and mcas each vid several times. Very very helpful.
I am very sad.
I special thought to her mom and family.
Force et courage
To discover Jake's channel now, all her work , efforts..... And to see that she just left this world is having me very sad. How much courage does someone has to suffer like this and still do all this research, videos.... She may be gone, but thousands of people will find help in all her videos and honor her memory.
RIP Jake. My daughter has "regressive autism". I have been in the fight for several years. You will be missed. Thank you for your work.
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
اني نحفت جدا جدا ..كيف هو صيام الماء وهل يومين كافيه للقضاء ع سيبو؟؟ كيف ممكن ازيد وزني
@PROUD GRANDMA - pls share sequence of day re your treatment. I’ve fasted but not with those add ons, great idea, thanks for sharing! ❤
@@عليحسين-ث2ذ5د I read often that weight gain will happen after you get well.
@@DeeElle2 شكرا جزيلا.لكن اتمنى معرفه كيف يكون صيام الماء.؟؟وماهو الاكل المناسب والمسموح؟؟
@@عليحسين-ث2ذ5دI may be wrong but I think a reduced weight and stomach issues may be related to parasites, check it out online
Rest in peace. I hope the transition was relieving. Peace and love to her family and friends and everyone in this community. I hope we get more studies and answers. I personally have been dealing with bart and Lyme for over ten years and recently lost thirty pounds and 8 teeth from malnutrition even though I eat a lot every day. I pray we get help
Understand 100%
I am incredibly sad and in shock to hear that Jake has passed away. She was such a bright, vibrant light despite her illness and her personality and dedication were unmatched. I really will miss you. Deepest condolences to her mom and family.
What?!?! How do you know? That is so incredibly sad. What was her cause of death?
@@Ruktiet After many months of intense struggle, Jake decided to end her torment through medical aid in dying (MAID).
I thought you had to be actively dying to qualify for death with dignity? I wonder if she became terminal at some point ❤️🌹I thought she was so lovely 😞
I’m shocked. She was such a bright shinning light. A courageous health Warrior. She will be back :)
@@Ruktiet she kept losing weight due to food intolerances and became anorexic. She got down to 79 pounds. So she decided to end her own life through medical aid in dying (MAID).
OMG, didn’t expect Jake interviewing dr.Pimentel himself 🎉 🎉🎉
That makes two of us! I'm a big dog now 😂
Jake, you were an absolutely amazing person and helped so many people. A true light on earth. I loved your videos and they helped me during really rough times and still do. The amount of dedication and energy you put into them despite being so ill to help all of us is so inspiring. You will be forever missed and may you be at peace.
Your videos will continue to help people like me who are struggling. God Bless You. Thanks for burning so brightly…🙏🙏🙏
So, so, so sorry for Jake, her Mom and family.
Omg Jesus!!!! She’s gone!!!!!! Oh no!!!!!!!! Please people accept Christ get baptized and serve the Lord!!!!! We love you Jake!!!!!’ Forever!!!
She was beautiful.
Sad 😢
And God bless you..the Lord is God.
The way the truth the life
As a spanish speaker, your videos and the info in those are excelent. I was shoked when I realized you were gone.
Its been a while since you posted- sending you lots of healing light and love- your videos have helped so much- you are an inspiration. Whatever youre going through, you have fans and supporters!!
She just passed away.
RIP little lady! Thank you for all you have done.
You will always be in my heart and you will continue to inspire me .
What happened to her 😮
Is there a benefit from having something distressing like SIBO? I think so. It is how much you learn about biology and your body from researching the disease. Before I started trying to learn about what was going on, because doctors and others could not or would not help, I was completely ignorant about the body. I have learnt much and am still learning all the time. I even find the subject fascinating-who would have thought it is all so complicated? In that respect I found this talk fascinating. Hugely informative. I can console myself a bit for having suffered for forty years by the fact that I am learning so much. I was much impressed by Doctor Pimentel who came across as committed and sincere and not harbouring an inflated ego or sense of his own importance. That IMO is not a given among doctors. Thanks to Bartonella Babe for setting this up and thanks to Doctor Pimentel who is working hard to alleviate the suffering of millions!
Have you tried stopping medication and just do water fasting for 3 days?
@@eternity.in.a.m0m3nt I make the occasional attempt with horrible results as stopping eating gives me violent diorrhea but I am trying to do without food for 14 now 16 hours and slowly going that way. Reminds me that a lot of healthy plans diets etc often need to be approached very slowly and a lot of health gurus tend to forget to mention that. Apples very much to physical exercise too.
I can see that She was devastated by some of the answers that didn’t give much hope to sooner resolve her illness. I’m sorry dear Jake, and thank you for your honesty and courage…😢Thank you Dr. Mark Pimetel.
Wow! I’ve heard Dr. Silver Fox mention your channel in interviews, and now it’s clear he appreciates your contribution and genuinely cares about helping people get better. Bravo, great interview.
He has mentioned it interviews before?! Where? I've never heard him mention it so you got to tell me. I thought it was just me mentioning his research lol
The idea that eating simple carbs somehow starves the “bad bacteria” is insane
This video is SO great! I would love and appreciate if you could continue to keep tabs on his team’s research as it comes out (as I’m sure you already do) to keep us informed! I’m still struggling with my own unique case of dysbiosis and he’s really the only one offering hope with his clinical trials.
Thank you Jake for your sleuthing and for getting the interview!!
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
That is AWESOME!! I am writing down every word you wrote and will follow it. Wish me luck.@@Userxyz-z2d
Wow! You got the SIBO star on your channel, awesome!!!! Great info newbie here. I have watched so many videos on Cibo I doctors and holistic practitioners, and I have to say yours is one of the best! You explain everything, so well, you were so detailed in an excellent speaker. Documentary on your sense of humor is awesome and in a time of great pain in distress, you crack me up, which I desperately need. Thank you.❤
OMG!!!
This is awesome; thanks for sharing. I feel this would be like interviewing your fave artist... Super Congrats!!!
Thank you! This truly was an honor although I have to be honest if I had to choose between Dr. Mark Pimentel and meeting Dominic Fike, no disrespect to the doc but I’m going with the Dom lol
I think of Jake when I am struggling with lyme each day because she was strong. I cry knowing how this world treats us but none of it is in vain. We can still make it through this one day at a time together ❤
Ever thought about you also simply having an anxiety/stress disorder sustaining this endless loop? Anxiety seems to be a very common denominator in all these chronically ill people, and the nervous system is known to affect immune function (INCLUDING MAST CELLS!!! via corticotrophin releasing hormone), digestive capacity, and much much more. Even if you actually have chronic infections, these might lead to symptoms in susceptible people which trigger health OCD/anxiety and an everlasting hypersympathetic state, disabling any attempts of your body to heal and overcome tisue damage, fight off the pathogens, etc. There are plenty of people online who claimed to have MCAS or related conditions, who swear that they got completely healed once they started to focus on this hypervigilant state and calmed their nervous system down.
@@Ruktiet Totally insensitive and you clearly haven't lived through lyme or seen people like me go through a decade of therapists and medications. It is people like you that allow lyme research to remain taboo in the pharmaceutical eye, never getting enough publicity to cure thousands of people, to this day remaining on prozac or benzodiazepines
@@Ruktiet Let me guess: CBT is your answer. Right?
Well done Jake and I’m glad you asked the question about elevated vinculin
So glad you're back I thought I lost you. This is awesome. Hope you're feeling better❤️
She did sadly pass away
Great podcast StillJake. I learned a great deal, and was impressed (as was Dr. Pimentel) with your knowledge on this whole topic. And...Happy Birthday. :)
Hello friend! Thank you for the birthday wish although we are nearly two months late. Chronic illness delayed the time between filming and posting. But I prefer the two month delay in the birthday wish because now I'm used to this age and no longer in denial
thanks to ALL working on this problem.
agree!!
Have you ever considered checking your house for mold? The mast cell thing is a big clue. Sibo can be triggered by mold.
Source required for such big and confident statement. Sounds like you’re just parroting back naturopath quackery
It's true. I took Diflucan and Nystatin for 2 weeks and it worked better than xifaxian and Neomyacin together.
Had what my dentist thought was a tooth abscess (really a sinus infection) & prescribed me clindamycin. She didn’t tell me the risk of getting c diff. Well I got it. Tested positive for cytotoxin & did a 10 day course of Dificid. Did another test bc my loose stool symptom didn’t get better but I tested negative for c diff, shigella, different E. coli bacteria, campylobacter, etc, didn’t see klebsiella being tested though. I also didn’t have stomach cramps, bloody stool, having to go 10 times a day like c diff has, just loose stool that wasn’t formed. Took pepto & it took a long time for the stool to turn a dark color so my motility was slow. I was diagnosed last week with PI IBS/SIBO & I’m taking xifaxan, am on day 6 out of 14. Still no change & still have the loose stool.
I’m also paralyzed with a spinal cord injury (happened 24 years ago) and can’t tell when I have to go so it’s been hell these last few months. The paralysis could also account for the slow gut motility but it’s never been a problem before taking clindamycin.
Dr. Pimentel, have you ever treated a patient with a spinal cord injury/paralysis who has SIBO? Just curious if there’s any literature; I can’t find anything so far.
I have same symptoms 😭😭
@@tubeverse911 seeing what I typed 9 months ago is like looking back in time. I went into remission by firing my GI doctor and reading TH-cam and Reddit comments. Here’s what finally worked for me and I hope it works for you: Align immune defense probiotic capsule (has to be immune defense), florastor probiotic, L-glutamine, zinc carnosine, and I was iron deficient so added that too. Took those, didn’t go for 5 days. Thought I had a blockage! But once I finally went, it was formed. I sobbed with joy and relief. Had to take Cipro at the beginning of this month for a UTI and my stool was loose again. So even though I still took all those supplements even after I went into remission, I doubled up on Align, florastor, and the glutamine and that worked! I hope you feel better soon and supplements do help with this, my GI doc said they don’t but that’s the only reason I’m alive today. Thanks TH-cam and Reddit!
Hope you are feeling better
This is one of the most informative videos I have watched! Answers to a lot of the questions I had but couldn’t find answers to! Thank you!
One thing that caught me off guard.. “lactobacillus does not belong in the small intestine.”!?!?!! What!?!? Everything I’ve read has stated otherwise. I need more info on this.
We need microbiote in LARGE intestine. When you have in small you have SIBO.
@@emild.6739 yes we need it in the large intestine. But lactobacillus is a natural and healthy inhabitant of the small intestine as well.
@@Jessiejess710 Do you have source for that? Maybe in small amount... when you have a lot of lacto in small intestine you will have lactic acidosis.
@@Jessiejess710 but just in small quantity, when you have high quantity you have sibo (d-lactate)
Amazing get Jake.
Glad you are posting.
Your content is so helpful.
So exciting! What great interview!
Jake, on the topic of the bidirectional relationship: in my n=1 experience with both SIBO (methane and hydrogen) and systemic mastocytosis, if I avoid triggers I really don't have a lot of motility issues. But if I'm exposed to a trigger, not just food but for instance smoke in the air, my whole GI tract stops and I have regurgitation, no peristalsis, constipation. And then a couple days later everything can be just fine again.
On the other hand, like you, I've had signifacant-but-modest improvements in my hypersensitivities after SIBO treatment.
Helo baffled waffle! Yes my n of 1 leads me to believe there is a bidirectional relationship there as well. I didn't get to ask about SIBO and dysautonomia but maybe if there is a next time
Bringing Mark Pimentel... wow! Great interview. Congratulations BartonellaBabe, wish you all the best ^-^
Thank you! I have been hoping for this for a long time and I can’t believe it finally happened
RIP Jake 🤍
❤❤❤RIP JAKE PICKER❤❤❤
❤❤AKA BARTONELLA BABE❤❤
I remember watching some of her first videos three years ago. I’m completely devastated by this news. I listened to a few videos tonight and I’m wondering, does anyone know - with all of these gastrointestinal issues, inability to walk or stand, and the leg pain, did she ever have a work-up for structural issues such as Tethered Cord?
Well done on the interview Jake. Bet Piper’s sorry she missed it🥰. A couple of things I’d love to know…dr Pimental’s often talked about the safety of rafaxamin but we need a second antibiotic to treat methane. Could you ask him next time to comment on the abx he suggests for methane and talk about the safety of those also please? Also since the new research hes mentioned the low fermentation diet for methane and said no gums. It wasn’t clear whether he also meant no PHGG as this has often been used to successfully treat methane sibo. How does he feel about PHGG since the new research?
Currently he recommends metronidazole as neomycin isn't produced in the US anymore
You can use Alimed instead (3 tabs / day)
RIP, dear Jake❣️
I’m amazed by your channel, backed with scientific research, your unique humor and Dr Pimentel accepting this interview!
Have you ever considered treating Bartonella, SIBO etc with herbs/Chinese medecine?
Stephen Buhner wrote a couple Lyme books, all with scientific ref.
I finally figured that out!! No mystery anymore. I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw *garlic, & taking 3 *Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal. *natural antibiotics
@@Userxyz-z2dare you still cured? How do you tolerate garlic with sibo.
I have been diagnosed with SIBO
I took the breath test twice in past 3yrs
Cedar Sinai
My dr gastronoligist
Put me on 3weeks regimen
Metronomzile3x 500 mg
Plus ciprofloxin 2x day 500 mg
I’m still. Bloated
Struggling with my issues
I took religiously
Would like to hear from you please
This information is helpful. Thank you Jake and Dr. Pimentel.
RIP
I use clindamicyn for tooth infection and 3 month later i have had IBS diarrea very bad
R.I.P Jake Picker
O no what happened? 😢
@@Zero-Cool_assisted suicide. She was 2 sick
Hi there! I just wanted to check in about your current protocol and how you're doing. I'm currently dealing with EXTREME food intolerances, MCAS, and a host of other issues due to hydrogen sulfide SIBO (tested negative on breath test but doctors highly suspect this is it). Thinking about what treatments I could do and how to optimize treatment with a prokinetic like Motegrity since I need something strong probably. I didn't know the best way to reach you (Reddit was considered haha) but I thought to ask here and see! Thank you so much in advance. Hope you're doing better or at least managing and still learning!! Sending love
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
Proud Grandma please can you say how much garlic per day and what brand of oregano oil you used?
@@Userxyz-z2d Thanks for sharing. Did you suffer from histamine/mast cell activation type symptoms as well (itching, flushing, insomnia, brain fog, dizziness, all sorts of systemic symptoms)?
hey! I'm literally in the same boat except being not quite positive for hydrogen sulfide SIBO. Did you try Motegrity? And have you tried Xifaxan?
Amazing!
RIP Jake ❤️
What happened to her
Hi! Thanks for doing this interview. I'm wondering if you know what dosage of bismuth is usually used for H2S SIBO clinically?
Hi Jake, how are you doing these days? Please make a video, I miss you!
9 days dry fasting have removed my IMO, after trying unsuccessfully oregano berberine allicine…
Several Dry fasting regenerates nerves, lining et microbiome
It also works on SIFO, Lyme …
Only dry fasting is able to promote stem cells
Dangerous.
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
@@Userxyz-z2d did you take capsule oil of oregano?
@@Userxyz-z2d how much garlic did you take? when during the day? how strong were the oregano pills?
Hope you are well Jake!
Hopefully you're doing okay, Jake!
Please help me sibo problem lot of bloating and Hydrogen Sibo totally destroyed my happy life
This is how I cured myself. I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
We are in the 7th month! Help!
Rifaximin did absolutely nothing for me three rounds of it
Im going to try artichoke and ginger extract capsules
@@denisemartin3603that’s only good for bowel movements
Are you ever coming back?
Unfortunately she passed away
@@Zero-Cool_ What!?!?
@@Zero-Cool_ How/Why? Do you know? That's terrible!
@@zephyrhills8070 I don't know how or why it says she unfortunately passed unexpectedly
@@Zero-Cool_ :(
My biomesight test says my Klebsiella and E-coli are low / normal, and my diversity is good, but I get spikes into high hydrogen on my AIRE 2 at times, sometimes prolonged. Methane always low which correlates with the Biomesight findings.
Hope you are doing ok 💕
Can we not donate to research somehow? I’m sure anyone who’s had gut issues would want to. I know i would! Not sure how this would work or ethics and all that but just came to me.
According to Dr PImentel, he says you want to treat the IBS quickly before the bacteria does more damage at 51:10, so does that mean to start taking xifaxan before getting the results of a SIBO breath test?
tnx
Why is Jake gone? What happened?
Excellent.. ty
Jake are you better now or sicker then ever? Haven't heard from.
How does one get in the study group. Negitive SIBO but cronic diarrhea for 5 years
I've 4 colonoscopy and 3 times there's polyps. Is there any remedies or herbs I can take or should do to prevent colon polyps
I know some people who had them but no longer do since going vegan and drinking green tea daily (no sugar, stevia or monk fruit okay).
They can remove the polyp during colonoscopy.
nice video thank you, how are you feeling ?
It’s possible if you still have sulfur sensitivity, you have the CBS mutation which in short is impaired sulfur metabolism, high sulfur foods and supplements will affect you negatively. How do I know this because I have CBS myself - it sucks.
I cannot tell you how devastated I am to learn of Jake’s passing❣️What an inspirational person she was! I could not believe the smiles that exuded from her as she talked about the most horrendous of diseases that I and my adult son have!
I know she had a purpose in this life, although cut short. Maybe people, including DOCTORS, will finally take these persistent infections seriously! RIP❣️🙏🩷🥲
How are you doing now Jake?
does rifaxamin allow the microbiome in the colon to flourish or both or only in the small intestine where its supposedly to work ?
Hello Jake. I hope all is well. Do you know if Rifaxan kill your good bacteria also. ?
Hi, thanks for bringing informative videos on the topic to us all. I know u have done extensive research on this and wanted to take ur opinion on this - i had been given bartonella diagnosis based on antibody titers from galaxy labs some years back. Symptoms mainly anxiety, random fatigue, some numbing on hands etc. but lately i did blood work and find low levels of both CRP and sedimentation rate (earlier used to be high). Also dod cytokine panel with dr bruce patterson and everthing except IL6 was normal. So could i still have bartonella? Its one of those thing that remains as a doubt though i doubt how i cud have an infection with all inflammatory markers being normal. Any insight from ur research would help.
Omg it is a small world indeed! I see u refer to dr shikman of ifsmed in your video. He was the one who gave me the bartonella diagnosis! :)
Did you treat your bacteria ?! Is it Drug resistance bacteria and fatal ! First time i hear about but I know other bacteria which fatal infections 😔
Stool mikrobiom Its a mirror of gut mikrobiom
I dont agree with idea
Deep stool analysis show which spieces and generes is in the gut
have you tested your homocysteine level? if it is low, it could lead to sulfur issue.
I know this is now an old video, and the last one, I have not watched all of the videos, but I have a question. Did they ever test you for heavy metals in the body? Maybe you have amalgam fillings and have mercury in your body?
She is no longer with us. 😢
How do you fix an immune problem?
Take manuka honey
Interesting....I've always assumed I had methane cause I've always had the C side of things. But I am definitely someone who is sensitive to sulfur. So I was suprised to hear that you were both sulfur sensitive and had hydrogen sulfide. Were you on D side, C side of mixed? And then even odder that you had methane and then hydrogen sulfide after.
In my story, there was only the hydrogen test a few years ago. I tested negative. The doc was willing to give me rifaximin anyways to try it and did not do a thing. I asked for fluconazole because I had heard of sifo. He wouldn't rx but I asked my primary care and she decided she would try it. The fluconazole wiped out my symptoms for two years. I cooked some bad mushrooms and my symptoms came back. I tried fluconazole again and it didn't work
Not sure what to do now. I'm gonna try taking higher doses of molybdenum, considering manganese, and ornithine I realize some of my health issues is that my protein intake/digestion. Are you able to consume a higher sulfur/protein diet now?
I cured my SIBO, Mold and Yeast intestinal probs by water fasting for 2 days using LMNT (electrolytes), Ginger for die off symptoms, eating raw garlic, & taking 3 Oil of Oregano morning & night. Diarrhea for both days. Lost 10 lbs that has stayed off and no longer have ANY GI or intestinal symptoms or sensitivities to ANY foods. After 7 years Im finally back to Normal.
@@Userxyz-z2d you're my hero just for giving me hope to get closer to normalcy. Honestly I felt oregano oil work on it but it was so harsh. I learned from an herbalist that getting oil leaf instead of the oil is much more tolerable. Thank you.
I was fasting today but give in at night. I have slept 8 hours in past 3 nights which is very odd.
@@Userxyz-z2d raw garlic bothers me. I think I have methane too. I can only handle very cooked garlic.
Will they one day use injections with different types of bacteria in different parts of the intestine so that they can reach the correct part where they are beneficial?
i'm from brazil, very interesting content
Can u have imo but not sibo? Just dysbiosis on large bowel?
Sounds like you are Biotin deficient. Propynol CoA Carboxylase is a key enzyme in the transsulfuration pathway and it requires Biotin. Acetyl CoA Carboxylase is a key enzyme in Fatty Acid Oxidation. It requires Biotin as well and can explain your fat intolerance. Biotin deficiency also manifests itself in poor hair and nail health. Take your Biotin the first thing in the morning, without taking any food. Biotin competes with Patothenic Acid, Iodine and Alpha Lipoic Acid for the Sodium Dependent Mutlivitamin Transporter (SMVT).
Good observation and suggestions. Thank you.
Will try biotin in the am for my kid.
🙏🏻
So very sorry. Truly...😢
Can your motility be damaged by eating huge meals late at night and then sleeping?
Yes that’s what happened to me, this and food poisoning
BOLO for Jake!
👏🏼👏🏼👏🏼👏🏼👏🏼
R.i.R Bartonella Babe now I know there's no hope
Don't do antibiotics! those "lyme literate" drs don't know what their doing! The human body will never recover with the killing medications. Seek holistic treatments. Do brain retraining. Hundreds of programs out there to pick from. Follow Dr. Joe Dispensza.
@sallyb871 I went to 3 of them they said I was two sensitive
@sallyb871I've been to three of them they say I'm too sensitive to treat
@sallyb871 just like this poor woman that ended her life not everyone can be saved I guess
@@seanhunt2365what happened to her
Disappointing he doesn’t know more about sulfur sensitivity.
I hope the reason you stopped making videos is because you got better and got off the internet and doing what you really want to, theres not much info about these type of diseases online and I respect anyone that manages to survive or cure their disease.
She passed away. Euthanized.
I have high methane and hydrogen SIBO in equal amounts. Never know what is going to happen in the morning lol!