How I Treated My Hydrogen Sulfide SIBO | Are mucolytics key? Xifaxan/rifaximin & diatomaceous earth
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- เผยแพร่เมื่อ 7 มี.ค. 2021
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Videos/playlists referenced:
→ Start here! SIBO playlist: • Hydrogen Sulfide SIBO!...
→ Exosomes playlist: • Exosomes Experiences w...
→ Pimentel's clinical trial on IBS-D: www.clinicaltrials.gov/ct2/sh...
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JOIN our NEW bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
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Understanding Bartonella Webinar:
• Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
High quality journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
4. Breitschwerdt, E. B., Maggi, R. G., Mozayeni, B. R., Hegarty, B. C., Bradley, J. M., & Mascarelli, P. E. (2010). PCR amplification of Bartonella koehlerae from human blood and enrichment blood cultures. Parasites & vectors, 3(1), 76.
5. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
6. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
7. Breitschwerdt, E. B., Maggi, R. G., Nicholson, W. L., Cherry, N. A., & Woods, C. W. (2008). Bartonella sp. bacteremia in patients with neurological and neurocognitive dysfunction. Journal of clinical microbiology, 46(9), 2856-2861.
8. Breitschwerdt, E. B., Mascarelli, P. E., Schweickert, L. A., Maggi, R. G., Hegarty, B. C., Bradley, J. M., & Woods, C. W. (2011). Hallucinations, sensory neuropathy, and peripheral visual deficits in a young woman infected with Bartonella koehlerae. Journal of clinical microbiology, 49(9), 3415-3417.
9. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
Blog Post on Bartonella and the Eyes from Galaxy Diagnostics
www.galaxydx.com/bartonella-a...
Mast Cell Activation Resources:
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www.mastattack.org/
/ mcas
Mast Cell Activation Facebook Support Groups:
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#hydrogensulfideSIBO #hydrogensulfideSIBOtreatment #H2SSIBO #SIBOandMCAS #SIBOandBartonella
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Very impressed by your attitude and approach to your chronic conditions! You inspire many who are suffering and provide a truly great gift....laughter!
Wow thank you so much for your sweet comment. I don't always have a good attitude over here but that's okay and I'm definitely trying to make lemonade out of lemons and help people along the way ❤️
Yesss, I need that test! Thanks for sharing! And love when Piper makes an appearance.
❤️ It’s a great test with a lot of research behind it! And Piper is in every video (I think except for one or two?!)
I've been waiting for this...🎊
thanks for the update!
Thanks for the amazing video, Jake. Thanks a lot
My pleasure! Thank you for your comment 😊
Wow just discovered your channel and I’m obsessed with you! So smart and so funny. I haven’t been tested yet but inferred my h2s after taking the Viome test (which tells you what foods to eat and not eat but provides limited explanation) and all of my major avoid foods were cruciferous vegetables. I am one of the apparently rare cases that has absolutely room clearing sulfur gas after about 70% of my meals. I was working with a nutritionist who also was guessing h2s. Interestingly on my Viome all the meats and cheeses were on my enjoy list 🤔. Maybe it’s not sibo? Will you be my new doctor lol. I am also a major pimentel Stan. I also was cried laughing after your snoring video. Anyways I’m waiting with baited sulphuric breath for your next update on the pimentel study. I feel like I should also say this is my first TH-cam comment and my first time hitting subscribe ever (!!)
Oh wowwww thank you so much for your sweet comment! It made my (and my mom's!) day. And bahahah waiting with "baited sulphuric breath" made me laugh out loud for real! Have you pursued the trio smart breath test yet? I know as of now it's only avail in the U.S.
I got the same result on my Viome test lol it showed i have excessive bile acid and excess of sulfide gas. Not sure if it’s sibo
Taking NAC this morning led me to a TH-cam dark hole
Sooo . I have a CBS gene mutation , which I suspect makes me sensitive to sulfur
NAC as you mentioned --> may NOT be recommended for those with a sulfur sensitivity
I have Molybdenum supplement but will do more research before testing it for detox / methylation
The NAC today after 1 dose gave me weird psychosis feelings . freaked me the hell out
Thanks for all your research . It’s helping me
You are so interesting! Thank you so much for your channel! 😁
oh why thank you!!! Thanks for watching
your version of one whole day > dixie's
also diatomaceous is one of my favorite words
Oh my dear god I was waiting for someone to comment on either the snoring or the one day and you’re the first! I knew I could count on you!!!!
@@BartonellaBabe the snoring was a feat of human nasal passages honestly
@@nintando bahahah my mom cackled at this
I'm considering whether I have this problem, I have had chronic fatigue syndrome since 2015 but something changed in 2020 when I lived in a difficult, dirty environment and I got new symptoms, eventually culminating in MCS, mold hypersensitivity, leaky gut and food allergies / intolerance / sensitivity, itching, red eyes, coughing, strange reactions to traffic fumes, face flushing, extreme fatigue and sore muscles. Many more problems. I've been trying to figure out the cause and my first test with AIRE 2 was flatline, I have done a biomesight bacteria analysis and it shows HS2 associated bacteria are 5x higher than the average sample, one of these bactera, desulphovibrio ( ? ) was completely off the scale.
This was great, and very helpful to me. :) tks
So glad to hear it was helpful! ❤️
Any thoughts on ADP oregano oil?
Bismuth subsalycilate?
Can Prokinetics slow down motility for those that suffer from overactive motility or are they more to ensure that the food moves through to avoid constipation?
Prokinetics will not slow down motility unless one has a very strange, contradictory reaction. They are more likely to induce diarrhea, if anything, and that is dose and individual dependent. Each prokinetic has a different mechanism of action. Prucalopride is used for chronic consultation but for SIBO it is prescribed at low doses to help motility in the small intestine only because at low doses it only works from the small intestine and up in the GI tract. And low dose prucalopride is still indicated in those with diarrhea from sibo because it shouldn’t induce diarrhea at the right dose
If I order trio smart breath test. Is it 1 time use only?
I dig your vids.
Homerun again!
thanks Lloyd!
do you know if your anti vinculin antibodies affect nerves in the rest of your body, or just the gut? you mentioned nerve pain and mcas, i have muscle loss in limbs and hands, and pins needles/burning/numbness since sibo for 2 years, wondering if you have any of the same.
That's a good question that I do not know the exact answer to. I would imagine it is localized to the gut but I don't know for sure. You may be able to call IBS Smart and ask. Nerve pain can be from many different things including MCAS, Bartonella, and maybe even SIBO. If you have systemic symptoms, it's worth looking into other conditions outside of the GI tract (in addition to the GI tract)
Just saw a xifaxan commercial, was that your voice? Congrats
How did you take DE? At the same time as Xifaxan? Or separately?
Also, maybe you should check DNRS, which is a course about neuroplasticity and I know people who healed themselves from SIBO and other diseases just retraining and reprogramming the brain with the course. I took it but I still need time to put everything into practice.
I took the DE 30-90 min before the Xifaxan. There is no research to guide this, so I just switched it up and went with my best guess 🙂
@@BartonellaBabe thank you! Let’s see if it also works for me :)
Thanks for all your videos so far which helped a lot. Especially here in Europe where bartonella and Lyme are just some imagined diseases for many practitioners.... Concerning sulfur intolerance, I was wondering if you ever tried taking molybdenum? My Mcas got worse when eating foods high in sulfur. For me one point was running out of molybdenum because it is part of the Enzyme sulfitoxidase which breaks down sulfit (toxic) to sulfat. It is also discussed to help with disbyosis in general.Additionally you need the Enzyme for breaking down all exhaust from cars or heating. I had severe breathing problems during the heating season which got better with molybdenum.
Thank you!! I have tried taking molybdenum and I reacted even at minute doses. It's definitely something worth trying and I may try it again after I get through my current crisis I am in. So glad to hear molybdenum worked for you
Quintron has a kit too
I was told that any antibiotic could or should work for healing sibo because they are killing anything....I know rifaximin is especially for the small intestine. Do I understand that correctly: healing sibo means probably lower mcas reactions and better tolerance of other antibiotics for bartonella?
What's nice about rifaximin is that it pretty much stays in the small intestine, making it a safe antibiotic. Treating SIBO definitely has the potential to calm down MCAS, which then may help one tolerate treatment for bartonellosis better. It has calmed mine down significantly. I still have a severe case but I was heading towards TPN and now I'm slowly adding foods in. I wish I treated SIBO much earlier in my health journey. Would have saved a lot of money and anguish but everyone's path is different
That sounds really logical. Adding some foods is a great progress! 🙂! Are you taking any probiotics to build up the microflora again after the antibiotics?
@@kathrink.8903 Great question. My GI doc and naturopath both have not recommended probiotics for me yet. I'm still too reactive and they are of the opinion that my food will act as pre-biotics for the good bacteria. Also, Dr. Pimentel has said that we just don't have good scientific data to guide us on probiotics. That doesn't mean they're not useful. It just means the science needs to get better in that area. He also makes the point that SIBO is an overgrowth and a motility problem so adding in more bacteria could in some instances be harmful. So yeah probiotics are a tricky thing for *some* patients
Hi, where did you get your H2S test?
Trio smart breath test. It’s the only one available and currently is only available in the US
Have you looked into serrapeptase?
Yes I am familiar with serrapeptase 🙂. I haven't tried it yet for a whole slew of reasons but many in the bartonellosis community (and other chronic health communities) use it for biofilms
Mucus layer = biofilm? NAC breaks down the biofilm too?
NAC does break down biofilm! And I’m pretty sure can think of the mucus layer in your GI tract as a biofilm. It protects your GI tract but also microbes/pathogens can “hide” there
@@BartonellaBabe thank you, your awesome
I have crohns disease, how to detox hydrogen sulfide?
Crohn’s disease is different than hydrogen sulfide SIBO as you probably know. I’m sorry I don’t know that much about Crohn’s disease other than hydrogen sulfide is implicated. There is probably a lot to read about it in the scientific literature
I think I read Crohn’s is actually associated with H2S SIBO, so they’re not off-base there. I remember reading ulcerative colitis is linked with H2S SIBO as well.
I did a 1 hour mini crash-course on H2S SIBO that Dr. Nirala Jacobi offers on her website because I couldn’t find any ‘gut specialists’ or even ‘microbiome specialists’ who knew want that about it and I’ve been to a bunch of them that all failed to get me any improvement at all.
I’m worried I’ll never get any better cause as soon as I eat anything I get so much bloat and I’ve read H2S makes H2S producing bacteria 1,000X more antibiotic resistant… and I get even slower motility and more constipation and bloat that takes a whole week at least to go back down again with aggressive Pepto Bismol etc. and not diarrhea, but the symptoms don’t improve after years of trying to treat this 😔
shit, I'm I just found out I have hydrogen sulfide Sibo. Man, it is gonna suck going on being on such an extremely restricted diet for months and losing all my gains. There are always trade-offs to everything.
NAC contains figh sulfur
Nice job doctoring! When you get well, are you going to medical school?
haha neverrrrrrrr!! Far too squeamish! As embarrassing as this sounds, I want to be an "edutainer" on TH-cam. I think I can do it! Once I am well, of course
@@BartonellaBabe I can see that! It’s a née, advanced form of medical journalism. I was premed, for real, and got dizzy and queasy cutting into animals. I was so disappointed in myself, but thems the breaks!
@@debbiekimberg3882 Ooooh "advanced form of medical journalism" I like that description. Well don't be disappointed in yourself. I think many people get too queasy to cut into animals or people. Except for doctors and butchers! lol
@@BartonellaBabe you’re a natural. Plus it the medical field there’s all that studying required. UGH. 👎
I actually do a LOT of studying on this channel. Def at my own pace and not at a med school pace because I’m sick but I do read a lot of the scientific literature! That takes the most time in making these videos
You're laughing but if I was your Mom I'd be scared too (snoring) The only other time I heard something like that was my airline captain boyfriend who, it eventually turned out, had severe sleep apnea and ended up with a CPAP. Yes, you want your pilots to be well rested and able to breathe.
Truer words were never spoken about an airline pilot! That’s quite the story 😂 Luckily those noises were just due to some nasty virus that I recovered from
Celery water cured the acne on my back and my rash of unknown origin. Another super vid.
Dang...you sound possessed
One day I felt a rubble down low
I didnt know what was happening
I look to the sky....said o lord why...
Then it happened in the blind of an eye....
One day....one day....
Well that’s amazing celery water did that for you! No joke. And bahahaha I was waiting for someone to comment on that 😂 you’re right I do sound possessed. What I don’t understand is it sounds like I’m making inhaling and exhaling noises at the same time and that seems physiologically impossible lol
That snoring is typical of obstructive sleep apnea (OSA).
Sadly rifaximin is about $2400 a round...😏🙂
Our healthcare system has so so many problems, prescription drugs being one of them. You can get it covered though for IBS-D and hepatic encephalopathy
You can also order it from a pharmacy in Canada that gets it from India for less than $100. My naturopath did this for me and it took less than 4 weeks to arrive. We started with herbs while waiting. Hope this helps!
@@heartsoulholisticservices Did you start taking it, and was it helpful?
@@anjoliaisenbrey6456 Thank you for the response. I've ordered myself a TrioSmart kit yesterday. I hope to get some answers for myself.
That sounds like sleep apnea.....
It was actually a virus with a thick coating down my tongue! Thank goodness it went away lol
Never heard a song celebrating farts.
😂😂😂😂😂😂😂❤❤❤❤❤
Unsure why you felt SIBO people will be interested in listening to the recording of you snoring and why you felt it needs to be included. I am sorry you have a chronic illness but the snore mucus sounds were extremely disturbing and the sounds induced nausua in me. I feel it was unnecessary considering the scope of the video and that many solely SIBO suffers without mucus illnesses are also you recipients.
Stop being melodramatic and rude for literally no reason.
so informative but your voice is so annoying...but I still love ya