I got diagnosed with als 4 months ago. My biggest lesson is learning to accept help. Als is by far the hardest thing I've ever had to deal with. Thankfully, I have a wife with infinite patience and is willing to help me every step of the way.
One that most common mistakes for families or individuals is to hire a home health aid later on when the disease has worsened so bad. Hire an aid earlier while you’re still able to walk and talk because relationship takes time to develop.
I’d see myself « out » with dignity and in my own terms if I got this diagnosis, long before I couldn’t do anything about it myself, and so not to be a burden on my loved ones. That’s a raw deal.
Everyone talking about his neck, ever thought it might be the only way he can breath and it's what he wants? All people with ALS are different, it might look painful to us but to him it may not be
Glad to see he is able to still smile. Is there a brace to keep his head up?. I am taking care of my girlfriend who has early stages. I dress, bath and feed her. You are a great caretaker. God bless.
Yes! My recently diagnosed patient pays $20,000 a month for 24/7 private home care for 3 home care aides. Thankfully he has the money to be able to do this. I cant help to think about the people that don’t have the money to pay for this most needed help .
I find it hard to believe that there isn't some type of device to help support his neck. He just looks so uncomfortable. Can you imagine the discomfort he must have?
Alex johnson I was a real doctor but then I died when I fell down a elevator shaft only to be brought back to life with a brain transplant. Stop watching videos of ALS. You probably don't have it.
kityumcashco I’ve been a caregiver for over 40 yrs but have never seen so much anger from any other client like her. Just wondering if anyone has any ideas?
Jon Jordan its too bad cannabis is illegal in many countries. my fiance is suffering from als and its saddening. i just hope to find a legal cure for this
Amna HT But it seems to be pretty useless. I tried it for anxiety and pain and it left both untouched. It is legal where I live but disappointing results. Saw it as a cure all. I think they are now looking into the roots instead of the seeds for making the oil but could be pointless too. So sad to read about your fiance.
If I measure your kindness Dr ogie ,it’ll be a 100% because you firstly made me believe in myself, my family,and your medicine I then had the courage to use it, you permanently cured my loving husband from ALS 🙏
some device's don't work or fit well on every client. As I work with Bert an ALS client whom from day to day you can see something else he's unable to do. I will love Bert forever. This SUCKS!!!! :(
His, head should be upright.....what is wrong with his caregivers??? His neck muscles are weakened....He shouldn't be slouched over like that! These people don't know, what their doing.
ALS aka Lou Gehrigs Disease is a terrible disease. What it does to the body is terrifying....I actually had no idea it was still around until I started looking online and discovering many people have it....I couldn't believe it. I really wish it never existed along with all other diseases. I wish scientists would really focus on its cause and come up with a way to cure it...God bless and be with those who have it.
swampmammytheone I know about ALS and what it does to the muscles in the body. For your information, this man should have his head placed upright with a brace cradling his head. I have seen many who are in a correct position. I know plenty about this horrific disease so you can keep your snide remarks and attitude to yourself. I bet you're a real peach to live with! Ugh!!!!!
If I measure your kindness Dr ogie ,it’ll be a 100% because you firstly made me believe in myself, my family,and your medicine I then had the courage to use it, you permanently cured my loving husband from ALS 🙏
I got diagnosed with als 4 months ago. My biggest lesson is learning to accept help. Als is by far the hardest thing I've ever had to deal with. Thankfully, I have a wife with infinite patience and is willing to help me every step of the way.
How are you doing now
I hope your still fighting to live ❤
One that most common mistakes for families or individuals is to hire a home health aid later on when the disease has worsened so bad. Hire an aid earlier while you’re still able to walk and talk because relationship takes time to develop.
The most common mistake is not getting ethanasia
This
His caregiver is awesome. I would want him as my caregiver too.
SykoSwimmer Hinduism needs to support euthanasia for als
I lost my mother to ALS seven months ago. I’m 15 and it has been the hardest seven months of my life.
So very sorry 💔
I'm sorry for your loss.
Hang in there homie. If you can't have a good day, it's okay to just have a day
so sorry to hear that, I'm in the midst of a similar experience, you are not alone
I’d see myself « out » with dignity and in my own terms if I got this diagnosis, long before I couldn’t do anything about it myself, and so not to be a burden on my loved ones. That’s a raw deal.
What if you die and go to a worst place forever? I could hardly put my old, sick dog to sleep, much less to put myself or a love one to sleep.
Such a cute man! To have this AND a great sense of humor.
Unfortunately Neil Alexander passed away in 2015. Prayers go out to your family! It sucks he had to die like that.
Everyone talking about his neck, ever thought it might be the only way he can breath and it's what he wants? All people with ALS are different, it might look painful to us but to him it may not be
spot on thank you
Glad to see he is able to still smile. Is there a brace to keep his head up?. I am taking care of my girlfriend who has early stages. I dress, bath and feed her. You are a great caretaker. God bless.
Ken Donnelly I believe the neck brace prevents saliva running out of the mouth so head down is actually better because they can choke in a brace.
This cost a lot of money, usually my ALS PATIENTS RUN OUT OF MONEY FOR PRIVATE HOME CARE.
Yes! My recently diagnosed patient pays $20,000 a month for 24/7 private home care for 3 home care aides.
Thankfully he has the money to be able to do this.
I cant help to think about the people that don’t have the money to pay for this most needed help .
What an amazing carer!
I find it hard to believe that there isn't some type of device to help support his neck. He just looks so uncomfortable. Can you imagine the discomfort he must have?
+salvation Yeah seriously. It looks like his neck is broken.
+Dr. Drake Ramoray hi sir, are you a neurologist? can we talk? I'm so scared of some awkward twitching all over my body. so need your advice. plz?
+Alex johnson Go see a real doctor.
+Dr. Drake Ramoray what are you nonsense and unreal doctor?
Alex johnson
I was a real doctor but then I died when I fell down a elevator shaft only to be brought back to life with a brain transplant. Stop watching videos of ALS. You probably don't have it.
As a caregiver, I wonder about the anger and lashing out. How do we address that? I love what I do but the verbal lashing can be hard!
meyers1001 one of the hardest things to deal with is caregiver abuse...you have to be a very strong person to be able to deal with that.
kityumcashco I’ve been a caregiver for over 40 yrs but have never seen so much anger from any other client like her. Just wondering if anyone has any ideas?
my mother has survived Lou Gehrig's for over 30 years Google Cathy Jordan in Florida or search on TH-cam Cathy Jordan surviving ALS
Jon Jordan its too bad cannabis is illegal in many countries. my fiance is suffering from als and its saddening. i just hope to find a legal cure for this
Amna HT But it seems to be pretty useless. I tried it for anxiety and pain and it left both untouched. It is legal where I live but disappointing results. Saw it as a cure all. I think they are now looking into the roots instead of the seeds for making the oil but could be pointless too. So sad to read about your fiance.
Thank you
Thank you
We need to figure out and fix ALS, lest many more folks be doomed.
Nicholas-amazing ❤
If I measure your kindness Dr ogie ,it’ll be a 100% because you firstly made me believe in myself, my family,and your medicine I then had the courage to use it, you permanently cured my loving husband from ALS 🙏
some device's don't work or fit well on every client. As I work with Bert an ALS client whom from day to day you can see something else he's unable to do. I will love Bert forever. This SUCKS!!!! :(
What is the new treatment
Nick =hero!
Thank you for sharing i too have als
my biggest issue an itch and there is no way to do anything about.
this is one of the most sad diseases
It sure it. My mom has it.
I hate this disease. These poor people how they suffer.
Truly awful disease.
Stephen hawking Permobil wheelchair
🙏🙏🙏
How big is his underpad?
Bob Dillan WTF!
Why is his neck so distorted? I have never seen this in any other ALS patient.
My Grandmother had ALS. The neck muscles have died and can't hold his head up.
I understand that but my friend has neck straps to keep this from happening while in a sitting position.
Maybe he's not wearing them. Looked like all he had on was a neck brace. I'm so sorry your friend has this disease.
Can’t someone put a collar around his neck
His, head should be upright.....what is wrong with his caregivers??? His neck muscles are weakened....He shouldn't be slouched over like that! These people don't know, what their doing.
I don't know much about it, but yeah his head shouldn't be like that. looks uncomfortable.
ALS aka Lou Gehrigs Disease is a terrible disease. What it does to the body is terrifying....I actually had no idea it was still around until I started looking online and discovering many people have it....I couldn't believe it. I really wish it never existed along with all other diseases. I wish scientists would really focus on its cause and come up with a way to cure it...God bless and be with those who have it.
Because he has no neck muscles, learn about the disease before posting stupid commits each person is different
swampmammytheone I know about ALS and what it does to the muscles in the body. For your information, this man should have his head placed upright with a brace cradling his head. I have seen many who are in a correct position. I know plenty about this horrific disease so you can keep your snide remarks and attitude to yourself. I bet you're a real peach to live with! Ugh!!!!!
Jane Wood Not all people are the same so STHU
Night.Mare.
als consumer? WTF?
Consumer is a word caregivers use instead of client
*WTF*
is just me or was I the only one dying of laughter in this video?
Legendary Memester what's funny?
@@mstubeornottube they don't call him legendary memester* for nothing
Let's hope you get it too moron!
You suck.
Yup, you're the only one.
If I measure your kindness Dr ogie ,it’ll be a 100% because you firstly made me believe in myself, my family,and your medicine I then had the courage to use it, you permanently cured my loving husband from ALS 🙏