How Humor Helps ALS Patient With Diagnosis

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  • เผยแพร่เมื่อ 8 มิ.ย. 2024
  • Thirty-four-year-old Brooke Eby from Bethesda, Maryland, has ALS, also known as Lou Gehrig’s disease. She began feeling symptoms at 29 years old and was diagnosed four years later. Although the journey has been difficult, Brooke says keeping a positive attitude and having a good sense of humor has helped along the way. “Honestly, it's been therapeutic,” Brooke said. She shared her story with Inside Edition Digital’s Andrea Swindall.

ความคิดเห็น • 91

  • @2nww3r
    @2nww3r 5 หลายเดือนก่อน +65

    My dad died from ALS, and his life was similar to hers, almost "unrelatably perfect" and had great friends during his life

    • @Arkensius1157
      @Arkensius1157 5 หลายเดือนก่อน +8

      Sorry for your loss
      May he Rest In Peace

    • @penelopephelange
      @penelopephelange 5 หลายเดือนก่อน +2

      @@Arkensius1157 lmao he’s in 🔥 😂

  • @shortyklee
    @shortyklee 5 หลายเดือนก่อน +23

    So proud she made a humor out of it.. just live your life

    • @Charlotte-on6wz
      @Charlotte-on6wz 2 หลายเดือนก่อน +1

      I’m humbled by your life🎉 15:03

  • @kandydewey1286
    @kandydewey1286 หลายเดือนก่อน +5

    It would be a game changer if all her gadgets were affordable to all ALS patients. Prayers for all suffering

  • @charlesgerety1403
    @charlesgerety1403 5 หลายเดือนก่อน +14

    I would be freaking out big time. Shes incredibly brave.

  • @celestephelps5897
    @celestephelps5897 5 หลายเดือนก่อน +12

    Well, Brooke, I don't have ALS but I do have a spinal cord injury and traumatic brain injury. I admire you for finding humor in your diagnosis; it's good medicine for your soul! I also agree about the issue of being "wheelchair bound":we're not bound to our wheelchairs!
    I play wheelchair sports. If you haven't, check it out!

  • @JustAGirlWhoLovesCats
    @JustAGirlWhoLovesCats 5 หลายเดือนก่อน +8

    What an inspiration! I have a chronic illness that's not terminal, and I am guilty of frequently feeling sorry for myself. She will now be my role remodel! I love to be funny, so why not use this negative to laugh?! Thank you for this story about such a remarkable young lady!❤️

  • @toeholt
    @toeholt 5 หลายเดือนก่อน +22

    God Bless this sweet lady..I pray ALS will be cured...

  • @richardbertea1264
    @richardbertea1264 5 หลายเดือนก่อน +10

    God bless this lady. God is with you keep fighting. Your amazing

  • @ediekoller1144
    @ediekoller1144 5 หลายเดือนก่อน +18

    I am not naive but I did not realize that so many young women have ALS. I kept thinking of the old movie with Gary Cooper playing Lou Gehrig the NY Yankee baseball player and getting sick. Brooke is lucky to have great support from friends and family and is rolling with the punches with this horrible disease.

  • @mnmssss21
    @mnmssss21 5 หลายเดือนก่อน +11

    I’ve lost the ability to stand and walk over 15 I’ve been bedridden they don’t know what I have I just looked drunk walking and I fall down use lose my balance I don’t have any muscle mass in my legs. Then I had a stroke that also time out my left arm. But I’m happy And I don’t take one day for granted I’m trying everyday to be here. Till they figure out what I have. You go girl keep fighting. 🎉god bless you all

    • @mriyke4719
      @mriyke4719 2 หลายเดือนก่อน +1

      Do you have breathing problems

    • @bethanygriggs2669
      @bethanygriggs2669 12 วันที่ผ่านมา +1

      God bless you!

  • @rebeccapollack2398
    @rebeccapollack2398 5 หลายเดือนก่อน +5

    My grandmother had ALS and my aunt has it. My dad carries the gene. It’s something I am constantly worried about.

  • @natassiarodriguez7420
    @natassiarodriguez7420 5 หลายเดือนก่อน +4

    Praying for her and her family 🙏

  • @misslady2121
    @misslady2121 5 หลายเดือนก่อน +2

    Wow what an inspiration!

  • @vinamarie_
    @vinamarie_ 5 หลายเดือนก่อน +6

    God bless her and everyone suffering.

  • @jessedavid4271
    @jessedavid4271 24 วันที่ผ่านมา

    5/14/24 - Thank you for sharing your story
    A friend was diagnosed Oct 2022 with ALS
    Your description of daily meds / physicians / various therapies
    Describes his live-life routines
    In his case he has to fight tooth and nail his medical insurance for coverage
    He is experiencing rapid lost of basic bodily functions
    Feeding tube / loss of speech / energy and strength degraded
    He is grateful for the amazing support of family / friends / medical professionals
    He has no family history of ALS
    As you stated there is no current explanation for what cause ALS nor is there a known cure
    Navigating this profound change in his daily living continues to take its toll

  • @debbiecooper1677
    @debbiecooper1677 5 หลายเดือนก่อน +12

    best of luck young lady

  • @tomhennessy7276
    @tomhennessy7276 3 หลายเดือนก่อน +2

    "Our observation leads to the hypothesis that moderate iron chelation regimen that avoids changes in systemic iron levels may constitute a novel therapeutic modality of neuroprotection for ALS"

  • @leasullivan788
    @leasullivan788 7 วันที่ผ่านมา

    bless your heart

  • @WyntersFrost
    @WyntersFrost 5 หลายเดือนก่อน +3

    My daughter has ALS she is in her 40's , she takes infusions or (sp) Ratacava and it seems to be helping her!! somewhat !!

  • @randymoran67
    @randymoran67 28 วันที่ผ่านมา

    Jason becker used to play with David lee roth he has ALS since his 20s hes amazing still composes music in his situation and hes had it for some time ! Hes an amazing guy

  • @aghaagha-et3if
    @aghaagha-et3if หลายเดือนก่อน

    What a new treatment

  • @nannerz1994
    @nannerz1994 5 หลายเดือนก่อน +8

    Good reporting!

  • @blazecat111
    @blazecat111 5 หลายเดือนก่อน +4

    You got this beautiful, keep fighting❤️

  • @Charlotte-on6wz
    @Charlotte-on6wz 2 หลายเดือนก่อน +1

    Also thank your caregivers 🎉we all need then🎉 8:26

  • @hoodi5009
    @hoodi5009 5 หลายเดือนก่อน +3

    u r truly amazing... God bless you..

  • @jasondavidstapleton8337
    @jasondavidstapleton8337 3 หลายเดือนก่อน +1

    Steve MC Micheal has it i cried

  • @colinbutts252
    @colinbutts252 5 หลายเดือนก่อน +3

    This neurodegenerative disease has some hope for a breakthrough by A. I. combined with CRISPR and cas9.
    Keep hoping for the day someone comes up with a cure.

    • @mriyke4719
      @mriyke4719 2 หลายเดือนก่อน

      How does it work

  • @GimpBarbie
    @GimpBarbie 5 หลายเดือนก่อน +1

    I am not “bound” to my wheelchair. I am “bound” to my faulty body.

  • @nvysealz3598
    @nvysealz3598 5 หลายเดือนก่อน +10

    So sad😢😢

  • @Prophet_be_her_name.
    @Prophet_be_her_name. 5 หลายเดือนก่อน +6

    Has the ALS community looked into the medicinal properties of mushrooms (medicinal & magical)? Also, this lady is wonderful!!

  • @mandybradley3079
    @mandybradley3079 4 วันที่ผ่านมา

    Is she still around?

  • @Venividivici55555
    @Venividivici55555 5 หลายเดือนก่อน +3

    Umm what kind of humor is that of what she said there on stage about a Kardashian if they got ALS we would all be saved? That's not humor, that's crazy talk.

    • @Maxmartin12355
      @Maxmartin12355 5 หลายเดือนก่อน +2

      Probably because people love them so much they would find a cure to keep them alive i don't care for celebrities.

  • @eto323
    @eto323 5 หลายเดือนก่อน +4

    3 year in wheelchair ...its our mobility

  • @strugglegamer999
    @strugglegamer999 5 หลายเดือนก่อน +8

    ❤❤❤

  • @AgainstNeWorldOrder
    @AgainstNeWorldOrder 5 หลายเดือนก่อน +1

    Zam zam water

  • @aghaagha-et3if
    @aghaagha-et3if หลายเดือนก่อน

    IAM young please help me

  • @KittyMcd
    @KittyMcd 3 หลายเดือนก่อน

    My dad died from ALS and he got diagnosed in 2021 and he died later that year but i knew he had it for a few years i feel sorry for her but she will die before theres no cure for als my dad died at 60 to 62 years old

    • @mriyke4719
      @mriyke4719 2 หลายเดือนก่อน

      Did he have breathing problems those few years or later what about limb weakness so sorry about your dad

    • @eurekamreum5458
      @eurekamreum5458 หลายเดือนก่อน

      She knows she's gonna die, she's just trying to make light of her situation. What else can she do?

    • @iykegideon8199
      @iykegideon8199 หลายเดือนก่อน

      I can't say I have als symptoms but I have not been diagnosed

  • @journeymansmitty8283
    @journeymansmitty8283 5 หลายเดือนก่อน +1

    Will humor does relieve stress🤔

  • @tabathastaples7884
    @tabathastaples7884 5 หลายเดือนก่อน +2

    Do you have eyes to see / ears to hear ??????? Shepherd's Chapel Network !!!!!!!

    • @CharleysMom2
      @CharleysMom2 2 หลายเดือนก่อน

      Great TV channel 👍💯

  • @darryldrax606
    @darryldrax606 5 หลายเดือนก่อน +1

    ✌️🙏👍

  • @Itsmehi456
    @Itsmehi456 5 หลายเดือนก่อน +18

    This girl has it WAY better than so so many people. Look at her with all her gear, private planes, top notch doctors that people could only dream of. She is able to live this way and have this (condescending perspective) bc she’s filthy rich. Her view belittles how so many people suffer with this disease.

    • @MichelleSK6
      @MichelleSK6 5 หลายเดือนก่อน +9

      Well, this is HER story 🤦🏻‍♀️

    • @MichelleSK6
      @MichelleSK6 5 หลายเดือนก่อน +6

      Also everything she has is usually covered by any decent insurance. I'm a caregiver for the disabled.

    • @Trund27
      @Trund27 5 หลายเดือนก่อน +5

      This unfortunately is true, because poor people cannot access these tools to help them.

    • @h.b16
      @h.b16 5 หลายเดือนก่อน +13

      Her view does not belittle anyone. It could help others. The fact that she’s still so positive even though she knows she’s going to die is empowering. Because she has ALS you want her to be miserable and have a poor quality of life for the rest of her time with her loved ones? That’s unbelievably cruel. Terrible diseases happen to people all the time. We need to change our thoughts on this and instead of expecting or letting those people be miserable for their remaining time on earth, we need to help them and allow them to find the best way for them to live their lives comfortably and happily. So stop thinking that she should be miserable like most people because of her disease. That’s so negative.

    • @pattym6875
      @pattym6875 5 หลายเดือนก่อน +4

      Condescending perspective???? Give me a break! She inspires me to be positive in whatever life throws at me… and I am 54 and healthy! You do you…. Let her do her! I love her!!!!!!

  • @NoWeyJose
    @NoWeyJose 5 หลายเดือนก่อน +7

    ❤❤️‍🩹

  • @katherinepaulson9158
    @katherinepaulson9158 5 หลายเดือนก่อน +5

    First

    • @rosettasweitzer5900
      @rosettasweitzer5900 5 หลายเดือนก่อน +1

      No one cares

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 5 หลายเดือนก่อน

      Just because you say your comment first, doesn't necessarily mean that Inside Edition is gonna like your comment as you think they would, on other channels you be watching. 😂
      And also you weren't the first one to be there, there was another comment that you just didn't see before you lol.

  • @lucassupports3234
    @lucassupports3234 5 หลายเดือนก่อน +2

    That is bad and immature 😒

  • @200555280
    @200555280 5 หลายเดือนก่อน +7

    It’s horrible to say you wish ALS to a Kardashian even as a joke?? You dislike them but to say that to someone didn’t harm you. She wouldn’t be cool if someone said to her you deserve it.

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 5 หลายเดือนก่อน

      What the hell? Please tell me where you heard that? Or is this a thing where you're just trolling? 🤨

    • @MichelleSK6
      @MichelleSK6 5 หลายเดือนก่อน +9

      She means people will actually care!!!

    • @kokipoki7
      @kokipoki7 5 หลายเดือนก่อน

      @@SpecialNeedsChamp9995:18

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 5 หลายเดือนก่อน

      @@MichelleSK6 Well people should at least care for the sick, and be respectful. Maybe this is a truly horrible world I have no faith in humanity anymore. :(

    • @kitten1207
      @kitten1207 5 หลายเดือนก่อน +15

      It kind of sounded like she mainly meant that they would find the cure if someone that famous got it

  • @maggie9312
    @maggie9312 5 หลายเดือนก่อน +5

    She’s a rich privileged girl unfortunately with all that money in her life can’t fix her health

  • @bornwithoutconsentobviously
    @bornwithoutconsentobviously 5 หลายเดือนก่อน +2

    What was that joke about the Kardashians about?
    That was horrible, no matter what you think about these people, and no, it has nothing to do with “finding a cure” if someone famous has it as I have read someone say here, but reading these comments here apparently someone with ALS with a pretty bad sense of humor isn’t that bad at all, because poor her.
    I personally wouldn’t wish this disease on anyone, but I guess its okay if you have it, and you can say anything you want?
    Although her “I’m better at dying sooner than you” joke was funnier.
    Just because you’re dying, doesn’t make you a comedian though.
    But all the best to her, just take up a new hobby please, dancing with your cane or something.

    • @ticklemebreathless1394
      @ticklemebreathless1394 5 หลายเดือนก่อน +6

      Or just don't listen to her jokes. Not hard.

    • @bornwithoutconsentobviously
      @bornwithoutconsentobviously 5 หลายเดือนก่อน

      @@ticklemebreathless1394 thank heavens I can do what I want and complain about everything I want without your permission ❤️

  • @wendig0ss
    @wendig0ss 5 หลายเดือนก่อน +7

    I genuinely don’t care show me a band

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 5 หลายเดือนก่อน +8

      Did you really just come to this channel to hate or what's ur deal?

    • @saraswinerton7202
      @saraswinerton7202 5 หลายเดือนก่อน +3

      Too bad so sad they don’t make this just for you. What is your deal and what is your problem? Why can’t you look things up?

    • @bornwithoutconsentobviously
      @bornwithoutconsentobviously 5 หลายเดือนก่อน

      @@SpecialNeedsChamp999oh come on, this woman with ALS would laugh about it too.

    • @SpecialNeedsChamp999
      @SpecialNeedsChamp999 5 หลายเดือนก่อน

      @@bornwithoutconsentobviously Well we all don't know that. So I wouldn't assume she laugh about it.

  • @UCONN_HUSKIES
    @UCONN_HUSKIES 5 หลายเดือนก่อน +3

    This is the punishment. We pay for our sins 😢

    • @julieannemichelle
      @julieannemichelle 5 หลายเดือนก่อน +10

      What you say is beyond wrong, full of judgement, and very cold.

    • @joannekirk8851
      @joannekirk8851 5 หลายเดือนก่อน

      What do you mean by that?

    • @TranswealthyTrillionaire
      @TranswealthyTrillionaire 5 หลายเดือนก่อน +4

      What could she have possibly done to have something as horrible as ALS as a punishment while narcissists and abusers run around healthy?

  • @IneptAsp78073
    @IneptAsp78073 5 หลายเดือนก่อน

    Big belly man