Living with ALS: Ryan and Martha Tofteland's Story
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- เผยแพร่เมื่อ 17 พ.ค. 2024
- Ryan and Martha Tofteland share their experience of living with ALS in hopes of raising awareness and motivating others to get involved in the fight against the disease. The ALS Association is a leader in supporting global, milestone-based research. Visit alsmn.org for more information and to find resources near you.
Lost my 47 year old daughter from this disease. She died 6 years ago and left behind 3 great children. My strength has come from seeing how they have continued to make her a proud Mom by continuing and graduating from college and/or working. They were teenagers when they lost her but persevered through their loss. I only wish I could see a cure for ALS before I myself pass away.
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rest in peace to your daughter :(
congratulations on your three successful grandchildren
I am so sorry for your loss. Know she is in a peaceful place with no more suffering. Prayers and thoughts to you. ❤️🙏
much love xxxx
I'm so sorry to read Ryan passed away.. R.I.P. Ryan..
I wish the family a lot of strength.. 😢
so sorry.
RIP Ryan!😢
Rest in peace Ryan ❤
Oh no! what happened?
We desperately need more focus and $$ on research on this devastating disease.
Lost my Father from ALS with a fast Progress. 8 weeks later I got my MS Diagnosis. Stay strong and full of Love, a wonderful family and wonderful Friends! ♥
Sending much 💖 & Many 🙏🙏's...
Wish you strength brother
Prayers...hope you get better.
Ryan passed away on February 28, 2020. RIP 😥
"When are going to get better", the statement gets to me everytime. I too have ALS.
I'm sending hugs and best wishes to you. Stay strong and brave. Trust in God. I pray for a cure.
God loves you and offers hope beyond disease and death. Accept Jesus Christ today if you have not already, and he will give you a new body, one that will be pain free and disease free FOREVER!
Annette Cuke if god was real, why is he even giving people ALS?
jacob v exactly
@@rp1agufan he's not
The ALS patients I help take care of are the most courageous people I have ever met. The family members are also the most unselfish, caring, and helpful people in the world.
My mother passed away from ALS, figured she had it 3 years. I was 40 at the time. I have had cancer but after mom having ALS and dad having cancer same time and passing....it was nothing to handle myself being I'll. We don't always go out with dignity and grace.
prayers...hope you beat the cancer.
May God Bless You and Keep You ❤
I wish you well Ryan. From a miracle survivor in Ireland. 43 years since diagnosis. Never give up until it's over. "No surrender". Andy ~
Remarkable story, Andy. Watched your Nationwide interview on RTE. th-cam.com/video/cZkWrlX___M/w-d-xo.html
I am 42 and was just diagnosed last week. We are still reeling with receiving the diagnosis. I’m interested in your story and what you’re doing to be a miracle survivor. I’d love to be able to chat with you, please reach out to me at carriedomerchie@yahoo.com
Please share what you did.. 😊
You have lived with ALS for over 40 years?! The average ALS patient dies between 2 to 5 years after diagnosis. What type of ALS do you have?
I know someone who lived with ALS for 26 years
My sister was diagnosed 1 1/2 years ago. She has already lost her voice and very close to losing her ability to chew (eat). It’s SO heartbreaking. Thank you for sharing your story. Blessings to all of you.
My cousin has only been two years and has rapidly progressed as well.
I truly empathize with You. Having a brother struggling with Als as well, I know just how it feels. Worst is, in Nigeria here, there's very little we can do for Als patients as we have no community supports or ongoing research for them. It hurts to see my brother struggling with this disease.
We pray for a cure to come speedily, all we can do now is pray.
I pray everyday for a cure, my niece has lived with ALS for 6 yrs, she fights so hard everyday, and faces new challenges . Hate to hear she has pain and suffering, so hard on her family. Please God hear our pprayers
Prayers for yall 💔🙏🏼
She's a fighter and has beat the odds. Prayers and much love sent. What is her first name if I may ask?
Very often in the ALS etc videos like this the illness brings families together which is one of the most beautiful things in the world. When the opposite happens, it's one of the saddest things in the world in my opinion.
Rest in peace Ryan.
Such a lovely family. My deepest condolences to Martha and the rest of his family. In this cruel world, terrible things sometimes happen to the best people😔
God punishes only good people but bad people live very happily
"god" isn't real. wake up. @@muggz73
im afraid of this disease, i cant imagine having ALS poor and with family members that wouldn’t be able to care for me . i would seriously be a huge burden for them .
I lost my father to ALS, this is such devistating disease. my prayer to anyone who has this disease and my heart goes out to them and their famalies.
My friends mom passed away from this horrible disease , I pray that they find a treatment or a cure soon, God bless your beautiful family .
My cousin was diagnosed and passed away 6 months later. It shocked everyone. Praying for a cure.
Ryan is very brave and he has a great supportive family.
We lost my brother in law to ALS!My heart goes out to you,and your family!This is a terrible disease,and I will keep you all in my thoughts,and prayers,always! 🙏💙🙏💙🙏💙
God bless this beautiful family
Tragic and touching. It does not get much worse than a diagnosis of ALS. Such bravery and dignity these afflicted families show.
My cousin is going through it right now he’s only 46. He’s to the point where he’s wondering how bad the end is going to be. and he’s scared.
it's crazy to think about how the USA spends 754 BILLION dollars on their military when a fraction of that money could make a huge difference in research and many families lives. Even on cancer research (much more well known) they only spend 7 billion. Why isn't this a bigger priority?
Such a Beautiful Family .. We need a Cure - i´m praying for a cure
there are 5 different meds now in third phase trials the trials will be finished in 2021. nurown is already completed with pretty good results best so far by far. it is a stemcell treatment.
My grandad was diagnosed and 1 year later he was gone. He lived with us and it was hard to watch someone you love deteriorate then pass away 💕
At least he was old, better that than to be young with this. Some people get a horrible ending, others get a horrible life. Your grandad had the former, young PALS the latter. May he rest in peace.
An ALS diagnosis most definitely rocks the whole family. My mom was diagnosed January 11, 2013. Devastating diagnosis. She died 8 months later on August 12th.
My Mom. died from ALS. It was also 8 months from symptoms to death. We were estranged. She was 78. Docs don't know where it came from. I worked for the federal government and refused the jab, I do not need to discuss family med history with management. Retired 6 months earlier than planned. No regrets.
So sorry such a beautiful family has to deal with ALS ...my father had this prayers for your family
God Bless you all Ryan and Martha Tofteland
My father last July 2018 was given the horrific news at 80 years old. As you say it so well...our family has been totally shaken up! God bless you and your beautiful family Ryan and Martha.
Bonjour moi je ne connais pas l,aglais mais j,spere que quelqun traduis se j,ecrais moi j,ais la maladis de sla et je conais un gueressement se luis qui s,eteresse voici mon telephone mais je vaudrais qu,on maide aacheter ce medecaments si si poussible jais la meme maladis se luis qui veut mois je ne parle pas selements ecrire a watssapp 0668842677 watssapp
Maroc je mappelle maryam
Better at 80, than at 20. It is all about perspective. I am sorry though.
@@maryamkaramkhel6353 no need to comment that on every person post that has an old family member with als
my husband has this 2 years and 6 months its hell on earth my prayers going to u all xxxxx
I want to share with you a great source about ALS cure as usual the only research that the ’scientists’ will do involves increasing big pharma profits. They will never cure anything as they can make more money by keeping people reliant on drugs, and they will do everything possible to discourage others from trying other medications like herbal medicine but thank God i never listen to them despite all they did to convince me that my mom ALS has no cure when she was diagnosed 2 year ago. Am happy to inform you all that my mom is free and completely cured of ALS b after using Dr James herbal formula, the formula works like magic .
Always learn to follow your heart refuse to be discouraged there is no problem without a solution. My mom is back on her feet stronger than before thanks allot Dr. James Ehimare contact James for his herbal formula via jamesherbalformula@gmail.com you can call him or chat live with him on whatsapp via +2349057856543
Hey Go To The TH-cam Channel Global Stem Cells, hopefully get treatment there. All the information is there on the channel.
This is wonderful but there are so many people facing this disease alone. He is lucky in that regard.
I face it alone. Do you too?
I am being worked up for ALS, I’m single and very scared. Right now just my arms and hands are affected. Praying for a cure 🙏🙏💕💕💕
This broke my heart. What a wonderful family. I can just feel the goodness.
I was diagnosed with ALS, December 31, 2019 at 34 years old. Mine is progressing pretty rapidly, and I'm already using a chair quite a bit.
Ohh Audrey ........May god bless you and give you more.health 🤗🤗
awww i’m sorry
God loves you so much that he sent his son Jesus Christ to die for your sins. If you believe in Jesus, you will get a new body when he comes back again.😊
Father, help Audrey to keep her focus on you when the pain and hurt are overwhelming. Help her to be faithful and to see the good and blessings that surround her. Please strengthen her mind, heart, and body and heal Audrey today. May the Holy Spirit guide Audrey in peace and comfort today. Amen."
Audrey Webb From Europe I send you lots of love, bless you & stay as strong as you can! 🌹
Sending you all so much love and strength from England . Thank you all for sharing your story.❤
My physical therapist mentioned a recent article about nerve damage injuries are possibly linked to this awful disease. I broke my collar bone in 2005
I was diagnosed in November 2018 having symptoms for 2 years noticeably..
So far only in my upper limbs
Man....My mom has been diagnosed ALS 5 months ago and the wheelchair is waiting us behind the corner. If you want to have a confrontation, text me on facebook if you want to.
God bless you and I pray for you and your family. I also pray for a cure from this terrible disease. Stay strong. 🕯️✝️
Isn't it genetic?
@@missdaydreamss only 10-12% of ALS cases are hereditary. The rest are sporadic.
Sweet family. Breaks my heart. They are coping so beautifully. We need treatment & a cure.
God bless you , from what I have seen on Vice News....you are blessed! The outcome for thousands, is scary!
Lost my husband when he was 45 and I was 33. Four children together. Not that it would have mattered but it was familiar. Most of his family was older when they were diagnosed. Mike wasn't so lucky
A lot if these films show couples and how the other helps. I am single, it scares me to think I'll just have some elderly parents to help me. I have children but they will want to live their lives.
Charlotte Bruce love n strength from the uk. Xx
Best wishes to Ryan and Martha. You are both so strong and inspiring. I hope there is a cure for this disease soon.
Isn't it amazing that these people with these horrible diseases all seem to have loving spouses and wonderful families. I guess God is just kind to them so they don't have to go through it alone. Imagine what it would be like going through this if you are a divorced guy or a single woman?
You are so brave! Please never give up. How wonderful to have an incredible support group. God bless you and your family.❤️❤️❤️🙏🏻🙏🏻🙏🏻
Ryan you're awesome person. I'm out of words just to see all the love and support around you.
There seems to be a theme of those affected with this cruel disease...Truly exceptional, strong, intelligent people. I pray for a cure and will fight for a cure. RIP Dad.
I'm sure it affects the less intelligent, less supported etc equally. . .but those are the ones we are less likely to see/hear about.
I’m so sorry for your pain...praying for you and sending love and hope💜
What a beautiful and moving video. And a great tribute to the strength of Ryan and Martha.
The ALS Association is amazing. Much love to your family.
Thinking of you and your family! Your love and strength are inspiring!
I lost my beautiful Sister to this awful disease and my Prayers are with others going through this devastating illness!😭🙏🤗❤️
My sister diagnosed in April. Just had a feeding tube on Friday. I hate this disease
Wow a feeding tube so soon? I am so sorry. I don't think I am strong enough to go through this myself. I dread ever getting it. I think my only option without having any family with me would be to go through assisted suicide or as they are calling it now, death with dignity. @@Libbertyone
@@LibbertyoneI'm praying for you 🙏
@@ShelbyFarrow 🙏🙏🙏
I'm so sorry you had to deal with this. I'm sorry to hear that Ryan passed away. I hope this terrible disease gets eradicated someday once and for all. I'm so glad he had the support he had while he fought this horrible illness.
May God bless Ryan & all of his family. So heartbreaking. I pray for peace for all of you.❤️🙏🌹
RIP Ryan....to the family sorry for your loss...
Blessing when you have family and friends.
This is a terrible disease may you find a cure is this man still alive today god bless you mate from Australia 🌹🙏🐥
I lost my brother to this cruel disease. My mother's sister died from ALS, along with my uncle recently. A cure in my lifetime is needed so desperately
do u think it's a genetic disease even it's happening in my mom's sister and brother....
@@almassanaulla1105 Studies show that 17% of ALS cases are caused by a gene mutation .
😑saddest truth
@@almassanaulla1105 it's both a random disease or in some cases familiar ALS which can ravage an entire family. The familiar ALS is supposedly rare, but seems to be a lot of stories like yours that contradict that. take with a grain of salt but my opinion is that it has to do with either chronic fatigue where you're exerting your body a lot in a stressful situation, or a contaminant that breaks the blood brain barrier like nanoparticle aluminum which is an adjuvant in vaccinations and used in cloud seeding and weather modification.
@@allaboutroofing2 thank you for information
My grandmother died from this horrible disease. She was definitely a fighter!!
Ryan and Martha are two of my heroes, along with Steve and Michel Gleason. I wish Ryan the same longevity that Steve has had. Jeff is a very good friend, and I am sure the rest of the rat pack is.
Ryan, you and your family are beautiful people with deep sorrows but strong spirits and are helping so many people with your positive actions and influence. I just want to tell you that I believe with all my heart that families can be forever, and that regardless of what the future brings, and whether in the flesh or in spirit, you will not miss any of your family's special events. May your faith always be stronger than your fears. You and Martha have a beautiful bond and a lovely family! I add my prayers and hope to that of the RAT Pack! God bless you all!
Shirley is a special mom with an exceptional son. God will unite them in heaven.
Whew....this is too sad. Such a wonderful family...wish I could buy a miracle for them....or something. Just tough to see people, in their prime, struck with something like this.
Prayers. ✝️🕯️ We all need to pray for him. Or if you aren't religious, but rather spiritual, send him good positive healing energy.
Your a fighter! Keep positive, and fight! Hoping for a cure for you.
Hello fellow Minnesotan! SKOL! GO VIKES! You are a fighter, stay strong, and you are in my prayers. God bless you and your beautiful family. ❤️🕯️✝️
My grandpa has it... it’s really taken so much from him
My mother was diagnosed with ALS at the age of 63 in 1986 and lived one year before she passed. Fortunately my father was able to do most of the caregiving she required with equipment provided by the ALS Association.
Such a supporting family
Im.just full of sadness doctors we need to.find a cured to stop this disease from taking any more lives is just heartbreaking...best of luck to his family.
Go to www.healingals.com
If man stops sinning and goes repenting he shall be saved and not even one of the plagues of Egypt will be brought upon him.
Man is totally in control of the situation by choosing to serve God or Satan.
Prayers and love to your family.
🙏🏾🙏🏾🙏🏾😢😢😢god bless you and your family
My sweet 85 year old Mother has it. Praying for a cure.
Praying for her
@@keelinmorris2115 God is the cure...
so sorry for what your going through tofteland family (
You are in my thoughts and prayers.
Thanks for sharing, stay strong and positive ♥️
WOOOOW SUCH AWESOME FAMILY AND FRIENDS GOD BLESS YOU AND KEEP YOU MUCH LOVE SHAUN SOUTH AFRICA CAPE TOWN XXX
An absolutely devastating, heartbreaking disease. Hopefully research will find treatments and a cure.
I was diagnosed with ALS in 2016 and this video was so real
I am not formally diagnosed but my neurologist is sending me to a clinic and doctor who specializes in als..I have a second nerve conduction test day after xmas..my tongue points to the right and I have been slurry for over a year..no stroke..also can't grip things well in right hand..how r u doing?
Let me know if you can see my comment at this link. This is the cure for ALS and all other autoimmune diseases: th-cam.com/video/jEFzVt1Plss/w-d-xo.html
@@badcarma69 Dude go run into traffic.
@@lisabowden1679 have you twiching all over your body
so are you dead yet?
I pray that they will find a cure soon . #stopALS
Vaccines can cause ALS.
I remember when my best friend called me and said he was diagnosed with AlS . He suffered for 4 years & now has been diseased for 31/2 years.
So sad
Lovely family!
RIP Ryan😢
Best of Luck Ryan.
God bless you all
tough to watch ... beautiful family ... i ask why him with children and the answer is an unequivocal who knows ... RIP good man
RIP Ryan...
@katy bourassa February. I didn't know them personally. I had a friend who's mom passed from it. It's just awful.
No doubt.
Hello Ryan and martha, can you provide me a valid link to contribute for the cure? Thank you for sharing your beautiful family and your story..... OK, I found it. Bless you guys...I pray you are able to feel every joy and warm feelings of love that are sent your way.
My heart ❤️ breaks I lost me dad to this
Als is horrible seeing someone you love go through this is horrible my great Grandmother my Grand Mama and my aunt have passed away from Als😭💔 i pray for a cure every day and I pray for everyone that's going through als one thing its taught me the most important things in life is God and family
I pray for you. My dad had it and I worry about familial ALS, so I can't imagine the stress of so many in your family effected and the stress of your own future. My dad was vaccinated for shingles just prior to symptoms and the military has a full service connection for anyone that served 2 months or more, so there is evidence that nano partical aluminum that is an adjuvent in could trigger the immune response that effects motor neurons. Take that for what it's worth, I'm no MD, but it's worth consideration if you are at high risk to begin with.
He passed away. Very sad.
Almost people is getting ALS want to see their children ground up. I got conclution 1 month ago and also want the same. So sad.
I have lost a uncle to mnd but sadly it took his mind as well before it took his life and I have another uncle living with it now
:( an awful deseas and not talked about enough!!
Hey! I Please read into chlorine dioxide with ALS. ALL the best to everyone of you!
God bless u and ur family Ryan conract if u would like.. My Moms second opinion was positive on ALS..December 18 2018 will be a day i will never forget. I will be on ur side mom every moment and do my best to help u with anything i love u Mom
My mom was diagnosed ALS december 6 2018...
Have they found a cure or pathway to one yet or getting close
Beautiful family you have and sorry for your loss. My Stepdad was diagnosed about 3 months ago and is mostly respiratory. They gave him 1-4 years but Hospice has already been called in. It is a cruel disease and along with soo many other people im sure I just find myself asking why is this happening to such a good person?! It is very difficult for me to see him struggle to talk and breathe. I've just had to keep my faith in the good lord and trust what his plan is as hard as that is to understand right now. Prayers for anybody going through this disease 🙏 Hope there can be a cure someday
RIP Ryan
Sadly we can find a vaccine for Covid in months and we cannot find anything form ALS, this disease is horrible and deserves all of our attention!
1st appointment is tomorrow...I'm fearing the known more than the unknown. 1st time I can remember it being that way.
I hope everything is ok?
🙏
We need a cure for ALS and MSA. 😳
Agreed
watch mic the vegan ALS in you-tube.
@@joannadee3565 yeah vegans will cure ALS, totally dumn
@@tims8693 Well it's worth to try and see what happens???????? It would be totally dumn not to try!!!!!!!! At least in the beginning stages of ALS.
@@joannadee3565 tried it,didnt work. I Think its combination of a lot of things,toxics,maybe Sports,Stress and what ever. Interesting is that is more male till 50 years,After that it equals and that its getting younger people. Is it cause its more in the news,better diagnosis,more Population,more documentation? I sometimes think its maybe cause of all wireless devices,changing of activate certain gens
Allah yardımcısı olsun,ufak çocuğu olan için daha zor,bir baba olarak onlarla vakit geçirememek çok kötü bi durum,bide neden hep genç erkeklerde çıkıyor acaba ağırlıklı olarak,dostum senin için duva edicem,umarım en kötüsü olmaz senin ve ailen için ......🖐
How is Ryan doing?
I'm nervous. I'm an active 26 year old 9 months ago I've been dealing with chronic pain, fatigue, i was 130 lbs now i dropped to 102 lbs. I started being depressed because of my pain. I found out through a CT scan a Rheumatologist diagnosed me with Degenerative joint disease aka osteoarthritis. Joint damage on the ct scan. I've also had numbness/tingling in both sides of my body. My bones hurt. My primary said he refer me over to neurology because my neurological exam is "a bit off." my legs feel like cements attatched to them. Achy. I hope this is arthritic related. I am scared
Hope you’re ok…sorry to hear of your symptoms. Hope it’s not ALS.
Hope you are ok I have a similar situation