ALS (Lou Gehrig's Disease) - Health Matters

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  • เผยแพร่เมื่อ 15 ส.ค. 2012
  • Dr. David Granet welcomes Dr. Geoffrey Sheean, UC San Diego neurologist, to explore ALS - amyotrophic lateral sclerosis (also known as Lou Gehrig’s Disease) - and ways patients can manage the symptoms to help maintain as much independence as possible and prolong survival. [9/2012] [Show ID: 23547]
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ความคิดเห็น • 219

  • @robinl.5444
    @robinl.5444 5 ปีที่แล้ว +34

    my grandfather died of als around 4 years ago... he was always a very cheerful man, despite being almost completely paralyzed and unable to speak. when i was a baby, he could still walk and talk. I'm 14 now so when he died i was around 10. His progression was pretty slow until the last few years. He was so strong. R.I.P Pop

  • @raiderfan71269
    @raiderfan71269 3 ปีที่แล้ว +34

    My 85 yr old mother just got diagnosed yesterday. I love her so much. Praying for her.

    • @ernestk522
      @ernestk522 2 ปีที่แล้ว +1

      i pray for her to hope you guys are doing ok

    • @raiderfan71269
      @raiderfan71269 2 ปีที่แล้ว

      @@ernestk522 thanks man. She passed away on the 8th of this month.

    • @ernestk522
      @ernestk522 2 ปีที่แล้ว +1

      sorry for your loss rip to your mother

    • @raiderfan71269
      @raiderfan71269 2 ปีที่แล้ว +1

      @@ernestk522 again I appreciate it bro.

    • @LordStanley94
      @LordStanley94 2 ปีที่แล้ว +1

      @@raiderfan71269 My sincere condolences.

  • @emilytarter7014
    @emilytarter7014 3 ปีที่แล้ว +20

    I miss u nana. i miss ur smile. i miss your hugs. i miss ur dancing to hip hop with me and slilding across the floor. i went through way more then i needed to as a 9 year old. i held ur hand as i screamed for you to come back. one minute u were in my arms, the next u were gone. i miss u nana. i love u nana.
    love em

  • @elizabethstallard4414
    @elizabethstallard4414 9 ปีที่แล้ว +53

    I have a older brother that has ALS, just found out in January of 2015. This is heart breaking. He was always a strong person and now to see him go down hill has really took a toll on me. No one else in the family would believe him. I seen it first hand and how he is now. He doesn't have but a few people who go and visit him and that is the worst part for me. He has made GOD his first priority in his life. I am the one that gets put down if I do anything for him and it's not right nor is it fair to me. His wife is the main one who has to take care of him and make sure he is bathed good. I no it is also very hard on her. I thank God for him being here today and my sister in law for being there with him. Pray for them and also the others with this disease it is very hard on the families. Thank you.

    • @DN2512
      @DN2512 8 ปีที่แล้ว +1

      +Elizabeth Stallard
      SO HOW IS HE NOW ELIZ
      TKS

    • @teamemeraldriwayinternatio9985
      @teamemeraldriwayinternatio9985 4 ปีที่แล้ว

      God is awesome that He made us stemcells and so the only hope to get cured is also stemcells. Now there is oral livecells therapy rhat has been provem for 11yrs now. Get yours today +639175110518

    • @teamemeraldriwayinternatio9985
      @teamemeraldriwayinternatio9985 4 ปีที่แล้ว

      @@DN2512 God is awesome that He made us stemcells and so the only hope to get cured is also stemcells. Now there is oral livecells therapy rhat has been provem for 11yrs now. Get yours today +639175110518

    • @bms77
      @bms77 4 ปีที่แล้ว +3

      Aubrey livecellstherapy oh yes give praise and credit to “god” for stem cells and forget the fact that the fuckin disease exists n the first place and there’s no cure 🤦‍♂️🤦‍♂️

    • @francesegan8344
      @francesegan8344 2 ปีที่แล้ว +2

      My husband has it 4 years hell on earth 😢

  • @michaelschoel8852
    @michaelschoel8852 8 หลายเดือนก่อน +5

    My wife was diagnosed with ALS from the doctor here in Yakima from her upper and lower body muscular weakness. We went over to Seattle medical Center to get a second opinion and they confirmed it but what shocked me was the doctor over At the UW Medical Center that University of Washington Medical Center told her step-by-step how she was gonna die. Unbelievable.

  • @mh.1568
    @mh.1568 3 ปีที่แล้ว +10

    My beautiful brave mom died of this horrible disease. Taking away my best friend.

  • @jannethatehortua8854
    @jannethatehortua8854 10 ปีที่แล้ว +31

    R.I.P. Lou Gehrig

  • @MyREDTAIL
    @MyREDTAIL 6 ปีที่แล้ว +69

    We just Pray, That soon they will find a cure for ALS Among other Illness also.

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว +2

      Many prayed , Many Dead !

    • @tracywalker9616
      @tracywalker9616 3 ปีที่แล้ว +1

      I think if someone with ALS took Redox Signaling Molecules (ASEA) they would have some great results because the molecules go in to your body and WAKE UP your cells to repair or replace themselves. If you have ALS or know someone that does, please check out the science on PubMed (not Google, as that is full of whatever) but PubMed has the published medical science on it. I'm taking it and I've seen miracles. One day, the world will catch up and I hope everyone will know about it, but it's only been around 10 years.

    • @youradhere1217
      @youradhere1217 3 ปีที่แล้ว +5

      Tracy Walker my neighbor is dying from this. He can’t move or talk his lungs have also gave up he needs to have his air machine now. Maybe I can help him. He has 2 boys and 2 girls I knew him before this happened. I can’t believe how much ALS can affect someone it’s no joke.

    • @Damnto
      @Damnto 2 ปีที่แล้ว

      According to covid survivors....they say ALS is a walk in the park compared to covid
      Bullshitters tbh

    • @johnkimball5872
      @johnkimball5872 2 ปีที่แล้ว

      @@Damnto please delete this.

  • @eaccristo
    @eaccristo 2 ปีที่แล้ว +6

    When my father was told….he was told to look for a different career….he was a sheet metal …so he decided to go to school to learn to do my mother’s books since she’d be the breadwinner…..she was told he was chronic. To hide weapons and to divorce him.. she went to beauty school. And opened her own salon..he kept her books and when he couldn’t hold a pencil he taught her..we kept him home…his mind was sharp the entire time..he was diagnosed at 44… died at 64. We included him…picked him up and took him to weddings…put a flower on his pajamas…we adored him and regardless of him not getting enough air to be able speak. We played the guessing game till we got it..

    • @patriciahancock1966
      @patriciahancock1966 3 หลายเดือนก่อน

      Thank you 😊 I have ALS and you paint a beautiful picture to inspire and help families like mine find more joy in the midst of hard times.

  • @richardhincemon9423
    @richardhincemon9423 2 ปีที่แล้ว +5

    🙏 pray for the suffering of all incurable illnesses!

    • @scoreybts9628
      @scoreybts9628 2 ปีที่แล้ว

      U pray for the suffering?

  • @tedmichaels1951
    @tedmichaels1951 2 ปีที่แล้ว +7

    I remember reading about when Lou Gehrig went to the Mayo Clinic. The doctor that he originally saw recognized Gehrig had ALS immediately, although he put him through a battery of tests to confirm his suspicions. It turned out that the doctor’s mother had died from that very same disease.

  • @HellFireKane
    @HellFireKane 10 ปีที่แล้ว +15

    Thank you. I'm doing better now. Just have to look at it like this : I miss him but he's not suffering anymore. Can't think of the whole thing in terms of how I feel. My mom is doing a lot worse than I am. They were married for 41 years. She'll never get over it but our family is close so that helps her get through each day.

  • @nazie1448
    @nazie1448 10 ปีที่แล้ว +50

    There is NOTHING you can take for ALS. My dad lost his battle of 4 1/2 years. When he for out he went to a clinic for 3 weeks and they did a cleansing program to get toxins out of his body, when he went home he was on IV vitamins. Then he took out all the mercury filling out of his mouth. Took lots of vitamins etc... I don't know if any of this worked for him, what I do know is they gave him 5 years and he lived almost 5 years. I think what made the most difference for him was the AMAZING care he had, he stayed at home with family and friends. "Food for the soul" is what I call it. At the end he finally allowed us to give him morphine so he wasn't in a TON of pain. ( he was convinced the meds would kill him sooner, so he limited his use) I miss him SO bad.

    • @TheChildfreeCurlyGirl
      @TheChildfreeCurlyGirl 9 ปีที่แล้ว +4

      I'm very sorry t hear about your dad. Just remember the good times you had and remember him fondly. Live a fun-filled and loving life and make your dad proud.

    • @belladonna411
      @belladonna411 7 ปีที่แล้ว +11

      ALS is a death sentence so screw being addicted while having ALS. The less pain the better.

    • @lidyalu5371
      @lidyalu5371 7 ปีที่แล้ว +1

      Nazi my dad died from als to at only 56 yrs old in one year
      He suffocated in hospital after nurses took his breathing machine away n gave it to another patient
      They thought he was breathing ok on his own n he was neglected
      He wasn't obviously n was found on floor
      He was paralyzed so that means he bobbed his head back and forth gasping for air not trying to get air n help
      He would hv lived another 6 months w help
      It's a horrible desease
      N they suffocate
      They need to come up with a way to put them in coma so they don't die struggling for air and aware of it

    • @lidyalu5371
      @lidyalu5371 7 ปีที่แล้ว +1

      Jahseh Onfroy it don't matter when u are dying n in agony
      N morphine works differently

    • @lidyalu5371
      @lidyalu5371 7 ปีที่แล้ว +1

      Lola Heatherton exactly

  • @naomelembro421
    @naomelembro421 2 ปีที่แล้ว +2

    I am flying home for the funeral of my childhood friend who fought this cruelest of diseases for four years before finally succumbing to it. We must not give up until a cure is finally discovered.

  • @KoshyKoshyIPS
    @KoshyKoshyIPS 11 ปีที่แล้ว +18

    My brother in law has just been diaginsed with ALS. This video is one of the best source of information on the illness. Dr. Sheean has so lucidly and frankly explained the various aspects of the disease like symptoms, progression, treatment and support. He ends with a hope, at least for future patients through research in stem cell therapy. Thank you UC SD for the great help.

    • @tenminutetokyo2643
      @tenminutetokyo2643 3 ปีที่แล้ว +1

      Stop all carbs and sugar. Exercise. See Cuehelo’s video who lives in Portugal. He stopped his progression with diet.

    • @coreyharvey9103
      @coreyharvey9103 3 ปีที่แล้ว

      @@tenminutetokyo2643 no he didn't...

  • @HellFireKane
    @HellFireKane 11 ปีที่แล้ว +18

    My dad passed away from ALS 2 years ago today. RIP

    • @texastea5686
      @texastea5686 3 ปีที่แล้ว +3

      My condolences. My father passed away at 58 in 2007. My mom is still grieving him and has not remarried. We miss him so much. I wish he could still be here =(

    • @yumindev
      @yumindev 2 ปีที่แล้ว

      How old was he diagnosed ?

  • @desertwomantucson
    @desertwomantucson 10 ปีที่แล้ว +25

    I have been diagnosed with ALS and have a baclofen pump which I want removed since my spasticity has been dramatically reduced.
    Thank you for your help by sharing this important information.
    Karen Storek

    • @DN2512
      @DN2512 8 ปีที่แล้ว

      +Karen Storek
      hI KAREN dID U GO FOR ANY TREATMENT TKS DON NG

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว +1

      karen how are you now ?

    • @tinazivk
      @tinazivk 4 ปีที่แล้ว +1

      I hope you are doing better !!! ! So much positivity your way ;)
      DOn't stop fighting ;)

  • @obamanation423
    @obamanation423 6 ปีที่แล้ว +8

    It can be slow it can be fast. I wouldn't consider it lucky or unfortunate to have either. My dad died from ALS 18 years ago im 29 now I'm afraid to have children, we really don't know if it's genetic or not. My dad though was 6,1 200lbs and after diagnosis died 11 months later at around 120 lbs. I wouldn't wish this disease on my worst enemy. I'm working right now to save money go to a decent university and learn more and have myself, my DNA/genetics tested to help the world understand ALS. I really wouldn't wish it on my worst anyway people that have mentally and physically harmed me, I would never wish advanced als on. My dad was diagnosed at 49 and died at 50. In his last few months of age 47 muscle spasms and loss strength and balance was when he searched for a diagnosis it took months and multiple doctors to diagnose it. He assumed he had it before he was even diagnosed the doctors in our area east tennessee USA don't know much at all about it. Especially as on set and aggressive as his was. I'm not going to be some go fund me type person, but I would hate to know that anyone I do or don't know go through that, to the point I'm afraid to procreate. I'm going to post this on multiple videos on YT and enet in general, if someone or a lab anywhere wouof like to sample my genetics please contact me. I'd do anything to atleast try to help prevent someone go through advanced muscular sclerosis.

    • @texastea5686
      @texastea5686 3 ปีที่แล้ว +1

      Sounds a bit like my dad. He died aged 58 in Aug 2007. He was a Vietnam vet, supervisor of our small town ambulance, strong and in the National Guard and just a very very kind man/father/husband. He had it for at least 7 years from the day of diagnosis. But he may have had symptoms for a while before that. It was very shocking and sometimes I feel it's a dream I'm living in that I dont have my father and my kids dont have a grandfather 😔
      Anytime I get muscle twitches or feel tired I think I may get it later on in the future. I'm 44 now so who knows?

  • @wda8806
    @wda8806 10 ปีที่แล้ว +8

    I needed to learn about ALS for a grad school project, this was the best source of information so far. I finally feel like I've got a handle on what this illness is. Greatly appreciated!!

  • @Lisa_BisaRN
    @Lisa_BisaRN 3 ปีที่แล้ว +3

    Dr Sheean is amazing.

  • @zarrow50
    @zarrow50 4 ปีที่แล้ว +10

    We call it Motor Neurone Disease here in the UK

  • @RikWCrlsn
    @RikWCrlsn 5 ปีที่แล้ว +7

    Was diagnosed November 26th 2018

    • @angc1456
      @angc1456 4 ปีที่แล้ว

      i´m so sorry ... can i ask how u notice "it" symptoms?

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว

      how are you doing ?

    • @dannythomas417
      @dannythomas417 4 ปีที่แล้ว +1

      @Thomas Vanderberg 11/26/18 was also the day Stephen Hillenburg died.

    • @salfromoregon4369
      @salfromoregon4369 2 ปีที่แล้ว

      My best regards to you and your family. Horrible, cruel disease. I lost a dear friend to this bugger.

  • @jackchorn
    @jackchorn 9 ปีที่แล้ว +12

    I've been dealing with mystery illness for 4 years now. The part that got me on this talk was when the doc said the leg spasms are not priority of the patients symptoms. I have those spasms in my leg and never did it come up with my doctor.
    I'm slowly getting worse and since I can't work like I use to I have no insurance.
    The worst part is society- like this guy said ' sounds like getting old" I'm so tired of people saying " welcome to getting old".
    I've been diagnosed with chronic fatique- but I think its either MS- Lyme or hopefully not ALS.

    • @DN2512
      @DN2512 8 ปีที่แล้ว +1

      +jackchorn
      hI JACK SO FAR HOW I YR SO CALLED ALS OR WHAT
      i AM A SUFFERER TOO
      TAKE CARE FRIEND
      DON NG

    • @lidyalu5371
      @lidyalu5371 7 ปีที่แล้ว +2

      jackchorn remember there's many things that can cause twitching even discs n other desease s even medications
      But not all start w muscles twitching my dad did
      Some start w not swollow if or talking well or like u said tired fatigue like I hv
      N my legs upper twitches to so I am Lil nervous to

    • @MimiJoys
      @MimiJoys 3 ปีที่แล้ว

      @@lidyalu5371
      Me too!

    • @crabbygramma5553
      @crabbygramma5553 ปีที่แล้ว

      I don’t know if you are on Blood Pressure meds, but I can tell you first hand, the side effects can be horrible: fatigue, depression, dizziness, aches and pains that become unbearable. Just an FYI.

    • @lisalove272
      @lisalove272 5 หลายเดือนก่อน

      This is a old post so not sure if the message will get to you and hopefully it will because I just lost my brother to ALS , if you able to still walk, talk, type, eat, it's definitely not ALS as it works quickly!! Yes it started off with the nerve twitching but not random twitching I'm talking about turn on a machine and let it run twitching as my brother's arms never stopped, then it moved to his chest, later legs and I believe his starter with his upper body because his speech was slurred pretty early on and we all thought he was drinking or maybe started drug's 😢 I think back to all the times I argued with him screaming WTF are you on and why would you start now when you never did this your whole life!?? He just use to say, I didn't take nothing and I'm not drinking! Sadly the speech went from slurred to a heavy raspy voice that was hard to make out any words and he was so stubborn refusing to go to the doctor until his wife got so mad she packed his suitcase and told him, LEAVE! I won't watch you die in front of me!! By this time maybe a year and a half had passed and he was dragging one leg his hands wasn't working well he was having problems swallowing choking alot especially on water getting skinny, his wife would have to shave his face help him shower tie his shoes, we thought he had a stroke but it didn't make sense to us because stroke is usually one side of the body when he was obviously having issues all over. sadly with ALS once it starts if your lucky maybe 5 years but by year 4 trust me you wouldn't even be able to hold your phone to type ! My brother lived not even the 5 years they give once it started every day he woke up something else in his body stopped working I remember one side of his throat was paralyzed but he was still able to eat because his wife would smash the food like you would for a baby and feed him little bites with her fingers he couldn't open his mouth wide for a spoon but she made sure he ate 3 times a day and forced the protein shakes and ensure she would sit in front of his face and wouldn't leave him in peace until he drank it all. She was devastated they had only been married 4 year's just bought a beautiful house out in the country spent a year fixing the inside how they liked and then all of a sudden to be told he will die in maybe another 6 months? My brother was young, he died Christmas night 2023 maybe 7:00pm we had him on a morphine drip so he wasn't in pain or struggling he just took a last breath and was gone😢 he lived 2 years after the first signs of the twitching started. At the end he was 82 lbs from 225lbs he could no longer eat, or drink, the last thing to go is the lungs as it takes the brain to send the signals to breath.

  • @bernadettesison5979
    @bernadettesison5979 2 หลายเดือนก่อน

    For reference, thank you for sharing.

  • @TheAHaloGamer
    @TheAHaloGamer 10 ปีที่แล้ว +2

    sorry for your loss

  • @happyluv1651
    @happyluv1651 3 ปีที่แล้ว +2

    As soon as he named the first symptom my hypochondria flared up.🤦🏽‍♀️

  • @thewatchcollector007
    @thewatchcollector007 2 ปีที่แล้ว +2

    my dad has been taking statins from 2017 and got diagnosed with ALS in 2020, and passed away this year

  • @pollystamper9660
    @pollystamper9660 ปีที่แล้ว

    17 years later and I finally learn about what took my mom

  • @detroitbluesguy
    @detroitbluesguy 9 ปีที่แล้ว +2

    These are wonderful folks..Thank you.

    • @vishveshtadsare3160
      @vishveshtadsare3160 5 ปีที่แล้ว +1

      And still no cure??

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว

      +@@vishveshtadsare3160
      Your god has been unable to cure for THOUSANDS of years.

  • @minnietorres8570
    @minnietorres8570 10 ปีที่แล้ว +4

    I will never understand this disease I was caregiver for my uncle who was diagnose in may2013 and passaway in aug.27,2013 how long did have this and no doctor in Puerto Rico couldn't find this until I bought him to n.j. Rip uncle luie luv u always

  • @sativaair
    @sativaair 10 ปีที่แล้ว +8

    I have heard the same thing about Stephen Hawking. This is because scientific studies present more information on the familial form than the sporadic form. You could have ALS for a decade before it becomes diagnosed or noticeable.

  • @stacyhaynes4006
    @stacyhaynes4006 2 ปีที่แล้ว +1

    Heart spasms are the worse scariest part for my brother.

  • @savicprvoslav
    @savicprvoslav 11 ปีที่แล้ว +3

    Great video.

  • @belladonna411
    @belladonna411 7 ปีที่แล้ว +9

    My mother died from ALS and in the small country region we live in there have been 8-10 deaths from ALS. They call them clusters. I wish there were more info into clusters.

    • @applejellypucci
      @applejellypucci 5 ปีที่แล้ว +3

      on the island of Guam ALS was linked to exposure to blue algae. Those people were 15 times more exposed to ALS than the rest of the world.

    • @texastea5686
      @texastea5686 3 ปีที่แล้ว

      Oh wow. Very interesting! Sad too =(

    • @FirstLast-hj2qx
      @FirstLast-hj2qx 3 ปีที่แล้ว +1

      @@applejellypucci this is a serious question. Like a antivenom for snake or spider bites is it possible that maybe more research on blue algae might hold the answer to a cure? Has there been any research on blue algae that says how its causing ALS in Guam? Thank you I'd appreciate a reply

    • @j.hattiebrewer5355
      @j.hattiebrewer5355 3 ปีที่แล้ว

      My 43 year old daughter has a friend her age was just diagnosed a couple months ago and it’s fairly advanced. Praying for a cure 🙏🙏🙏

    • @jennalee5967
      @jennalee5967 2 ปีที่แล้ว

      In what greater region was this?

  • @moosebrandon8665
    @moosebrandon8665 6 หลายเดือนก่อน

    Thank u for the info

  • @bella1433
    @bella1433 3 ปีที่แล้ว +5

    My aunt died from ALS (Lou Gehrig's Disease). She had the disease for approximately 40 to 50 years. It started in her feet and worked its way up the body until it cut off her respiratory system. My uncle was her caregiver and it was excruciating on him physically and sleep-deprived. Unfortunately, it took a toll on him and after she died, he died from cancer a few years later. Sad

  • @sugarbaby685
    @sugarbaby685 ปีที่แล้ว +1

    I was just diagnosed on November 4th 2022....I am scared to death!!!!!

  • @HellFireKane
    @HellFireKane 10 ปีที่แล้ว +2

    Stay strong. Sorry about your bro. in law.

  • @applejellypucci
    @applejellypucci 5 ปีที่แล้ว +8

    I just had genetic testing done yesterday, so nervous. I don't have ALS but been having a lot of twitching lately and weak hand. Scary.

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว +2

      how are you now ?

    • @applejellypucci
      @applejellypucci 4 ปีที่แล้ว +3

      @@thomasvanderberg6435 I'm doing okay! I have rheumatoid arthritis but not ALS. Thank you for asking, Thomas.

    • @texastea5686
      @texastea5686 3 ปีที่แล้ว +2

      @@applejellypucci Hi April I also have a lot of twitching or "pulsing" of my thigh muscle. Im glad you don't have ALS. Im always thinking I may get it later on...my father died of ALS in 2007 aged 58 =(

    • @coreyharvey9103
      @coreyharvey9103 3 ปีที่แล้ว

      @@texastea5686 🤯🙁🙁

    • @mh.1568
      @mh.1568 3 ปีที่แล้ว

      Nerve damage is what I was diagnosed with in neck area and back. I had weakness on my left side off and on. MRI and EMG were run and canceled out my fear of ALS and multiple sclerosis.

  • @Nazareth7591
    @Nazareth7591 7 ปีที่แล้ว +7

    This video from 2012, five years later, anything new?It is so tiring ! Give us something new!

    • @MichelleB2b
      @MichelleB2b 6 ปีที่แล้ว +3

      Ever heard the saying, "You get what you pay for" or about, "Beggars cant be choosers" ? Yet time and time again its people just like yourself (Marina Melnik) who aren't paying for anything who whine and complain the most.

    • @tenminutetokyo2643
      @tenminutetokyo2643 3 ปีที่แล้ว

      See Cuehlo’s video from Portugal. It’s all diet. It’s the sugar.

  • @valeriegriner5644
    @valeriegriner5644 2 ปีที่แล้ว +1

    Depressing video. In summary, it says there is no cure (and no hope). They knock all "alternative therapies," BUT...what would a person have to lose by trying something besides what THEY offer??? I had a cousin who died a slow, grueling death from this disease (in his 40's) and it was so heartbreaking.

  • @lmb4876
    @lmb4876 2 ปีที่แล้ว +5

    I know of two men who had ALS.. both of them were VERY competitive athletes (as was Lou Gehrig).. pushing their bodies to extreme fatigue..Could this be a contributing cause to this disease?

    • @redmimii__x
      @redmimii__x 8 หลายเดือนก่อน +1

      i'm currently researching ALS for my own self, and found a lot of connections between exercise and ALS, whether that be athlete standard or a lover of weight lifting and active lifestyle. *gulps looking over at stack of gym clothes cleaned ready for a new week*

  • @aghaagha-et3if
    @aghaagha-et3if หลายเดือนก่อน

    What a new treatment please tell me als mnd

  • @lisalove272
    @lisalove272 5 หลายเดือนก่อน

    The beginning signs with my brother was twitching all his nerves in his arms and chest would constant twitch. He is at end stage now in a bed on a morphine drip as everything in his body stopped working now.😢 We are so devastated my brother is young and was so healthy had his own construction business use to freaking run huge machines, now he is 90 lbs and just a skeleton that looks 80 years old instead of his 44 years. At least he's nice the Emergency room told my brother and then told us, sorry he had ALS he's going to die in a few months didn't offer any resources or information just sent us on our way. Then we took him to a neurologist who said I think it just had a stroke. Yeah, sorry when you have ALS they can't do anything so they don't even try...

  • @michaelschoel8852
    @michaelschoel8852 4 ปีที่แล้ว +3

    My heart goes out to all those people with ALS I have to say that from the complexity of the disease there will never be a cure People with the disease need to be educated on the options they have in dealing with the disease as it progresses

  • @SeriousSchitt
    @SeriousSchitt 5 ปีที่แล้ว +3

    Thanks for the good in depth discussion guys.
    I've had trouble swallowing for around the last 30 years, I've been medically checked out (with endoscope etc) and there's no obvious cause. I'm now in my early 50's. I've been physically active, virtually all my life, and I've now developed fasciculations, mostly in my left rear upper thigh muscle now, for the last 7 months. When can I expect it to develop into the next stage and start to experience muscle weakness, slurred speech, clumsiness, atrophy etc, or, if it isn't going to progress any further, when can I safely assume that I haven't got ALS? Thanks.

    • @angc1456
      @angc1456 4 ปีที่แล้ว +2

      Check your b12 levels?

    • @keithhutchins8803
      @keithhutchins8803 2 ปีที่แล้ว

      You don’t have ALS. There now you know.

  • @ruthie2222
    @ruthie2222 5 ปีที่แล้ว +2

    Have we had any positive outcome with the stem cell trials since this video has been made please?

    • @incognetoo
      @incognetoo 4 ปีที่แล้ว

      Yes, for sure. Check Nurown and others. It might be available in a year or two.

  • @creeperking525
    @creeperking525 2 ปีที่แล้ว +2

    That disease scares me😫

  • @michaelschoel8852
    @michaelschoel8852 2 ปีที่แล้ว

    Who are these guys usually starts with upper and lowerBody muscular weakness

  • @fourshore502
    @fourshore502 3 ปีที่แล้ว +2

    so its been 8 years since this interview, any progress?

    • @deltaqueen5704
      @deltaqueen5704 3 ปีที่แล้ว +5

      Pharma has become even richer than it was eight years earlier.

  • @chrisbagidney152
    @chrisbagidney152 3 ปีที่แล้ว +2

    Its called fast twitch muscle fibers that is missing and why muscle atrophy

  • @stephanieolsen8148
    @stephanieolsen8148 2 ปีที่แล้ว

    Then why did it take so long for my cousin to be diagnosed?

  • @jennalee5967
    @jennalee5967 3 ปีที่แล้ว

    Anyone know someone with the ultra-rare respitory onset?

  • @Rainydayzjmb
    @Rainydayzjmb 9 ปีที่แล้ว +3

    ice bucket challenges are to raise awareness and if you dont do it you are supposed donate money it has raised lots of money so far

  • @wendylable
    @wendylable 8 ปีที่แล้ว +10

    medical doctors will most likely not make any headway with the disease. So they should not put down what others are doing.

  • @shinnsekai3534
    @shinnsekai3534 9 ปีที่แล้ว +1

    what does this have to do whit ice buket challanges?? can someone explain

    • @rsmaczny9694
      @rsmaczny9694 9 ปีที่แล้ว +3

      It shouldn't have anything to do with a damn Ice Bucket Challenge. That's just a damn gimmick for people without diseases who are craving attention. Things like that piss me off. "Oh it brings awareness" excuse me but fuck you! You know what else brings awareness? This video brings awareness, if people were to post facts on their walls and share info about the disease, that would spread awareness and having a link everywhere would spread a way to donate money to the cause. I can't stand watching douche bags douse themselves in cold water and act like they're doing it for a cause. Good deeds should be done of freewill and not for your own glory.
      Very informative video.

    • @leetamakloe4875
      @leetamakloe4875 9 ปีที่แล้ว +2

      Radoslaw Smaczny Being that the ALS Ice Bucket Challenge was started by an Individual with ALS, you can go fuck yourrself.

    • @rsmaczny9694
      @rsmaczny9694 9 ปีที่แล้ว

      Lee Tamakloe And to you I say fuck you as well ;)

    • @paulakebere7394
      @paulakebere7394 9 ปีที่แล้ว +1

      It simulates the feeling of paralisys when you dump the ice water on you.

    • @chriscope7292
      @chriscope7292 9 ปีที่แล้ว +3

      Radoslaw Smaczny my father has ALS maybe if you had a member of the family that suffers from this sick disease you might appreciate the need for a cure, it does create awareness and although there is people who did it for attention it still creates awareness and has raised millions. Personally the handful of people making a big deal out of this are the ones seeking attention, if you dont wanna do it fine, but its rather pathetic to sit their and moan about one of the only good things that can come from social networking

  • @mellxtea5310
    @mellxtea5310 9 ปีที่แล้ว +7

    Als ice challenge is too make u feel how it feels for a second

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว +2

      So much money raised and the ALS patients keep dying !

  • @444Relaxing
    @444Relaxing 3 ปีที่แล้ว

    I feel I may have this and the Veterans Administration isn’t helping. Is there anyone that can help me with this?

    • @bobbyhart8797
      @bobbyhart8797 2 ปีที่แล้ว

      You need to go to a neurologist. Not sure what part of the world your in. Als sucks!

  • @ayatrollahali8014
    @ayatrollahali8014 10 ปีที่แล้ว +2

    Any medicine that they say "we really don't know it might help but we can't tell" is nonsense. Like what he said about the one drug available. And right after that he bags on the other stuff out there that also does not work.

  • @sativaair
    @sativaair 10 ปีที่แล้ว +1

    the dr. answering the questions is purposefully withholding information.

  • @drummer7557
    @drummer7557 2 ปีที่แล้ว

    That doctor was GREAT in Jurassic Park. ha! All joking aside I have a bad degenerative nerve disease, though I don't know what it is yet. Started as Tourettes.

  • @lidiaquincy5339
    @lidiaquincy5339 2 ปีที่แล้ว

    My husband is being tested for that disease, any advise?

    • @karlmia9421
      @karlmia9421 ปีที่แล้ว

      This is so unbelievable!! How can I ever explain to the world that Dr ALUDA on TH-cam cured my (ALS) with his herbal medication. i feel so happy and excited..

  • @neohero97
    @neohero97 7 ปีที่แล้ว +3

    holy shit i have alot of fasciculations all over my body

  • @KennethV2000
    @KennethV2000 2 ปีที่แล้ว

    If this disease didn't existed, Stephen Hillemburg wouldv'e fix SpongeBob and make the best movie ever :(

  • @mikaelthomas6377
    @mikaelthomas6377 9 ปีที่แล้ว +5

    I bet you that if you put the person in a pitch black room with sound proof headphones on, and put the person in a childs cradled position or slightly upside down (anything with sharp grade), that this will help fix it. The shit moves slow but it should help. Its like some wires that got crossed or are too close to each other. Im getting crosstalk so I move groups of muscles that have dominance over their partner. Hand connected to wrist to elbow etc. But your hand is lower than the rest of you at rest, however it is owned by your shoulder. Commonly dominant. Cant find where my muscles are now but I know that the amount of pull I have over certain muscles is much greater and I've lost the ability to deflate them and relax. I reach through now in long paths that hurt my head and hand. The more I try to escape the more I am trapped, but technically, if you disrupt that crosstalk for a magical set period of time the rest of the persons muscles will give up, as long as this happens in the correct order the person will not progress. Also, anything anti gravity, swimming, even imagining any of these things help. I all of a sudden get a huge rush of blood and can actually feel some individual parts of my limbs as of current.

    • @tinazivk
      @tinazivk 4 ปีที่แล้ว

      This is really insightful !!! ! Thank You
      Much good vibes I am sending to You from CroatIA !!! ! ;)

  • @fourshore502
    @fourshore502 3 ปีที่แล้ว +1

    12.5% of the 48 reversals, in other words 6 of them, involved curcumin. food for thought.

    • @tenminutetokyo2643
      @tenminutetokyo2643 3 ปีที่แล้ว

      It’s sugar that is the cause. See Cuehluo’s video from Portugal. He stopped the progression with diet.

    • @fourshore502
      @fourshore502 3 ปีที่แล้ว +2

      apparently 7 of the reversals used curcumin and it may have to do with changes that occur in the microbiome. and it cant be sugar that is the cause, people eat loads of sugar most of them never develop anything even remotely similar to ALS.

  • @andre81002
    @andre81002 9 ปีที่แล้ว +2

    Trying to undo what is, ice buckets challenge just stupidity fun game until someone die.

    • @thomasvanderberg6435
      @thomasvanderberg6435 4 ปีที่แล้ว +1

      well as usual the Doctor's got Richer and the People keep dying .... ice bucket ?

  • @RaymonJordan2323
    @RaymonJordan2323 5 ปีที่แล้ว +2

    Soccer players have. Developed CTE. Heading the Ball.make more. Films

  • @captainkirk9691
    @captainkirk9691 2 ปีที่แล้ว

    The cause of this disease is super confusing.

  • @buckrogers2568
    @buckrogers2568 4 ปีที่แล้ว

    Amalgam

  • @emga6456
    @emga6456 2 ปีที่แล้ว

    Ps fu too

  • @tvd9015
    @tvd9015 2 ปีที่แล้ว

    I did some research and ALS is caused by mitochondrial dysfunction that is caused by exposure to certain pesticides in gardening and agriculture, formaldehyde in diesel/jet fumes, formaldehyde in corpse preservation, pathegons in algal blooms in dirty water. As a result the following professions are higher risk for developping ALS: Professional outdoor sport players, professional gardners, professional pilots and truck drivers professional water skiers, militairy personal; and funeral directors

  • @lidyalu5371
    @lidyalu5371 7 ปีที่แล้ว +12

    At least Jesus will wake them in resurrection john 5:28,29
    Jehovah God exodus 6:3 made that possible through His Son,s sacrifice
    N thy will be back on new earth coming soon psalms 37:29-34 including my father who passed from als
    Thank you drs and researchers for all you are doing in way of advancements, in medicine and quality of life
    We need to help these patients who literally cannot move n then know they will die horribly suffocating
    I feel they need to have choice of going into a coma or something so they are not aware of it in the very end
    My dad died gasping for air n fell off hospital bed he was suffering

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว +2

      + Lidya Lu
      If your Jesus or your Jehovah, or your so-called holy spirit cared so much, he/they/it would not allow such a horrible disease to afflict any one in the first place. Take your empty, meaningless, god-related garbage elsewhere.

    • @arthurmunoz1715
      @arthurmunoz1715 5 ปีที่แล้ว +4

      @@yevodee4024 Ignorance is bless and you know not what you say, it is written in the HOLY BIBLE that they will be deaf and blind, so from a deaf and blind prospective how can you see or hear,. Such profound meaning...

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว +2

      + Pamela
      The REALLY HEINOUS MONSTERS are people who peddle *false hopes and false promises in the name of some god or the other,* but offer not a shred VERIFIABLE evidence whatsoever.
      It is THEY, and their *supporters like you* who are so utterly shameless, that I can't even ask you to be really ashamed of yourselves.
      *Genuine medical benefits are the result of hard work done by sincere scientists and doctors (using the principles of science), and NOT the handiwork of any god of any religion.*
      I have a very close and deeply beloved family-member who is afflicted with ALS. Whatever succour is provided to this person, comes from science, and *NOT from any god of any religion.* So take your self-righteous pontification elsewhere.

    • @-Jay-Jay-
      @-Jay-Jay- 5 ปีที่แล้ว +2

      @@yevodee4024 @yevodee:
      Didn't you not read where Lidya wrote that she thanks the *doctors* and the *researchers* for all that they are doing??!!
      Therefore, it was unnecessary you writing in bold letters, that medical benefits are the result of hard working scientists and doctors.
      That was already made clear by Lidya.
      To say you're going through the same thing as Lidya, with a dear family member suffering with ALS, we'd expect you to write words of sympathy and be supportive and understanding - instead, you come on here to pull Lidya down, cause offence and attack them for their personal way of coping, beliefs and hopes for the future.
      Do you honestly think it's right to treat another person in a similar situation to yourself this way.🤔

    • @vishveshtadsare3160
      @vishveshtadsare3160 5 ปีที่แล้ว

      @@yevodee4024 Sinners deserve such horrible diseases. Only those who are in Christ Jesus are sinless.

  • @bouncebitsh
    @bouncebitsh 8 ปีที่แล้ว

    Let me get this right...Buddy at the beginning is an MD and doesn't know what ALS stands for?

    • @kmeccat
      @kmeccat 7 ปีที่แล้ว +10

      He's asking the questions not for himself--he already knows...he's asking the questions to inform the viewers.

    • @jodicool9787
      @jodicool9787 3 ปีที่แล้ว

      And has difficulty in the pronouncing of a disease??? Condescending, perhaps??

  • @whynot5206
    @whynot5206 8 ปีที่แล้ว +2

    but i thought disease was curable and disorders werent.

    • @Ms3queen
      @Ms3queen 7 ปีที่แล้ว +3

      That's, uh, not how the world works.
      I once got cured of generalized anxiety disorder. I mean, it came back, but I had gotten cured and stayed that way for a few years. There are some types of epilepsy that can be cured and some that can't. One of my friends has one of the ones that can't be cured. My mom has three autoimmune diseases, none of which can be cured. Sometimes, people use the words "disease" and "disorder" incorrectly to describe something that is really more of a disability. But "disease" and "disorder" can usually be used interchangeably.

  • @arscheerio
    @arscheerio 5 ปีที่แล้ว +2

    this was all just a big commercial for UCSD lollll

  • @tenminutetokyo2643
    @tenminutetokyo2643 3 ปีที่แล้ว

    It’s the sugar people. Stop eating sugar and carbs.

  • @pgoody
    @pgoody 10 ปีที่แล้ว +12

    Dont thank Jesus! THank your doctors and medicine and treatment and family and the real things in your life that will actually help you...

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว +1

      + pgoody
      I agree. These pathetic god-advocates and their empty, meaningless, so-called assurances are utterly disgusting.

    • @TheKeetkeet66
      @TheKeetkeet66 5 ปีที่แล้ว +2

      @@yevodee4024 you're disgusting for saying that!

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว +1

      + @@TheKeetkeet66
      And you are a self-deluding, self-righteous *MORONIC SCOUNDREL* if you put your faith in some imaginary being (who, if he/she/it exists, does not care about the world).

    • @luluirizar7281
      @luluirizar7281 5 ปีที่แล้ว +4

      pgoody thank Jesus for create doctors..nurses..therapists...and family....because without Jesus nothing would be possible.

    • @yevodee4024
      @yevodee4024 5 ปีที่แล้ว +2

      +@@luluirizar7281
      You said, "without Jesus nothing would be possible".
      That means ALS is possible only *BECAUSE* of Jesus. A very kind-hearted god you have there, I must say!