My father has locked in syndrome. It's the absolute hardest thing any of our family has ever been through. Going on 3 years now, as hard as it is to see, I can only imagine how hard it is for him especially at only 53. I love you Dad
T W I'm very sorry for your father and everyone in your family. You have a understanding and sympathetic mind, that focus on his suffering more then yours in this terribly sad situation, many find that very difficult, but you have your priorities straight. Your father can be very proud to have a child who works like that, who have that mental maturity. I sincerely hope your father will be more functioning and healthier as time goes by. Even more so I hope you all will find (or keep on if you already have) ways to be as happy and satisfied as you can in your current situation. Do take care.
I know it won’t help because it’s impossible to know how you feel, and it’s harder watching the sufferer. but I was in a medical coma for about 10 days. I know I don’t remember much if anything, but I’m pretty sure I can remember people being there and moving or holding my body although I supposedly wasn’t. If you go hold his hand and talk to him for awhile he’s semi aware of what’s going on. I don’t know how cognitively aware he would be with his condition. Tell him doctor says he’s getting better and he might be able to move around soon. I think that helped me the most. Sorry that was long
Lord Tachanka. You might feel useless, but you may very well feel alive, maybe even more alive then you ever felt, which may, or may not, be a problem for you. We are all locked in our brains, that's the essence of what we are, however when we loose the ability to communicate with the surrounding world, the isolation can become maddening.
I agree 100%! Ive forced my close ones to take an vow to put me out of my misery in cases like that. It took time and a lot of tears but i got a promise that if i cant heal and want to die, they help me. One or two might get cold feet but not my mother. She doesnt commit to anything unless its 100%.
This is a real life nightmare, imagine never being able to move, and unable to talk with people. And forced to sit through it all and denied your right to die.
I’ve never suffered from Locked in Syndrome but I did and still do suffer from a Cervical Spinal Injury. I remember waking up in the hospital completely paralyzed and unable to move anything besides my eyes. I couldn’t even speak or make audible sounds because of the tubes down my throat and nose.I can tell you living life like that is worse than death and I only spent 2 weeks in that state before I was able to breathe on my own and talk a little. I’m still stuck using a crutch to walk 7 years later but I would rather die than experience that full paralysis again.
@@justintodd5145 how is he trying to get in the center of attention? He posted a comment related to the topic of the video. It's not like he goes on a music video and then just starts talking about how he was paralysed etc. This video is the place where ppl can share similar experiences.
Every time I watch these, I get scared of getting the disease. a few days later, I'm over it. Except a few mortifying ones. If I dealt with this, I would remember this video.
This is not a disease, but a consequence of a heart attack, cerebral infarction or any other damages to the brain stem (which could all happen in a horrible accident, car crash or something).
Darkness imprisoning me All that I see Absolute horror I cannot live I cannot die Trapped in myself Body my holding cell Landmine has taken my sight Taken my speech Taken my hearing Taken my arms Taken my legs Taken my soul Left me with life in hell
This video reminds me of a song by Metallica call "one" and is base on a book that's about a soldier who was blown up and lost all motor functions. Then when the soldier woke up he couldn't really move but he had full brain function. The book/movie is very sad because the guy just wants to die but the doctors were having some sort of moral debate if they should let him live or die.
The book was "Johnny Got His Gun" by Dalton Trumbo. The soldier has lost all his limbs, his face and any means to see, hear, or talk. He's just a head stuck on a torso. He figures out that he can communicate by nodding his head in morse code.
my best friend has lock in syndrome and hes only 27 he can't move at all but he can smile now so maybe he will get some more control over his body one day in the future I hope.
I had a patient with this condition 2 years ago. It was heartbreaking seeing my patient like that. She used to be funny, talkative and just full of energy. All I can do as a physiotherapist was to maintain joint integrity and electrical stimulation of her muscles. They can't afford better health care because their family is poor. Unfortunately, she died and I couldn't help but be sad about it to this day.
I have a young woman under my care who is in a similar situation. She's only been on my service for two weeks and I almost want to cry everytime I reposition her, hang a new TPN bag, etc. She gets wicked contractures and I can't imagine how painful they must. I wish the other staff would do better with her ROM.
I’m crying. My aunt had this since she was 11. She got into an accident and fell into a coma. She was in a coma for around 3-4 days. I was in the room with her holding her hand saying that she needs to give me a sign that’s she’s still in there. I looked at her eyes and her eyelids seemed to be moving. I told the doctor and he came in and looked. He also saw her eyelids move and he opened up her eyelids to see her eyes moving. He said she had locked-in syndrome and she wouldn’t be able to talk or move ever again. At this point my hands were in my face and I was balling my eyes out. She wouldn’t be able to see again either...
@@c.t.1498 they might've meant their cousin, or the story could've taken place years after they got the coma. But the story might be fake But then again, it says "My aunt had this since she was 11." So she could've had it for decades.
As a newly fully paralyzed teenager this is very hard to watch, however it does help by knowing there is even worse conditions than mine. I just wanna leave this here for everyone in the comments: Life is a blessing and at any time of the day things could change for you.. like you would never imagine. So please everyone make the most of your life and live each day like its your last.
Exactly what I was thinking. I'd just lie there blinking "CQ" until someone noticed. Even if they don't know Morse, they should recognize there's a pattern. My ex knows I'm a ham radio operator. She should pick up on it pretty quickly. That said, I hope and pray this never happens to me. Brrrr.
This is aweful. I would rather die, than too have this happen to me. Atleast you can come back from it. Your life is pretty much taken away for a time.
I couldn't think of anything worse than seeing your family walk in the room around you (you'll hear them before you see them) peering over the bed crying and whispering your name, saying I love you and they don't know you can see it all, hear it all and feel it all. You'll wanna cry, you will want to just make a rapid movement out of anger at times or even move a finger but you can't and the feeling you'll be left with I think would be the stuff of nightmares. You will have so much emotion for so many reasons but not a millimetre of movement to show it. I never type TH-cam comments but this one got to me.
I was locked-in for 4 months, it’s was so bad the french call it buried alive syndrome. It took me 2 years to learn to walk/talk again and 10 years later still have a lot of problems with memory, anger, pain and signals not getting through to different parts of my body, granted that is from the brain damage. The NHS were brilliant in the rehabilitation centre and a big thank you for the continued support from the UK government, the NHS and Liverpool council!
Righteous Honour man that’s sad Ima religious person but in no way would I hate a person because he doesn’t believe in god They have their beliefs and we have ours
Righteous Honour oh look an extremist, there is no evidence of a god of any nature, however the majority of atheists would convert if it was proven or god came over and said hi.
Imagine if you had this syndrome, and u had a lady friend u loved very much, or even a loved one. But yet, you still can’t be capable of saying the simple words of “I love you,”, and never able to say that. Or even if you didn’t have this syndrome before, and you acted mean to family and friends. But when you have it you can’t say that you love them. What I’m really trying to say is that you should always appreciate family, and the people you have in your life.
This is gonna sound off-topic, but why did you had to put lady-friend as if this was only for men? Other than that, it does feel horrifying to have locked-in syndrome...
Ugh, of course you had to make a video about locked in syndrome. This is literally one of my greatest fears, just thinking about it gives me the chills. Years of suffering sleep paralyses have only fuelled this fear (although not the same at all, but the feeling is horrible - even leaving hypnagogic hallucinations aside). If I ever end up in a situation similar to this, and you find this comment: please let me die! I don’t fear death, but being kept alive to live through my worst nightmare is torture!
My grandfather suffered from this. Unfortunately, he didn’t make it but I’m glad he isn’t suffering anymore. I wasn’t completely aware of what was happening but now I know fully. Thank you infographics.
wow, this is such a cruel syndrome. It's things like this that make you question God's existence. And the image of Stephen Hawking walking away from his wheelchair into the distance or, the afterlife, is really sweet
Same, that sounds great. To be honest the concept of what's after death is really interesting to me, like if we become ghosts or something how awesome would that be. I definitely don't believe there is nothing, I can't even understand that idea of there being nothing, but these other ideas also seem like fantasy, as much as I'd love for them to be real Also wow my comment got a lot of attention thanks
In a strange twist.. This was one of my biggest fears.. But you only know what you've been through.. No matter how assured you'd think you are of yourself. With that being said; my answer is a sad, but definite yes.. I would want to be taken off life support or assisted suicide or euthanasia aka mercy killing.. I learned that after being in an induced coma in 5 separate cases in my life, 4 due to my illness, asthmaticus, because of my poor health choices at the time. I too was in a cognitive state and could not move nor respond.. I would fall back to sleep, then awaken, only to not be able to move. This happened over and over (little did I know I was in those separate states for a full week, it felt like a couple of days tho). I even at times could open my eyes but only slightly, to see no one in the room, and in some cases people interacting with one another. I remembered seeing my late aunt putting Chapstick on my lips and gently forcing my eyes shut with her other hand. With me thinking I was only dreaming. I would finally be taken out of the induced coma with the intubation being removed (it would feel as if you're being reborn as you choke from the tubes removal and gasping for air). I would eventually speak about the conversations that they were having with each other and the nurses. They were shocked. They would say things like; I was "unresponsive" and "not even moving my hands when it was squeezed". I'm fortunate that it was medically induced. Because if it was any other way, it could have turned out much different. But it still takes a toll on ones mind and body.. My doctor said my heart can't take another trauma like that.. I'm grateful, but, go through bouts of depression because of it.
But wait. If you are in that condition, is your mind awake all the time without sleeping (you hear everything 24h a day), or do you fade out for some time?
Like the video said, the body is the only thing that's disturbed, not the brain. And all circadian rhythms are regulated in the brain so, yes, people can still sleep and dream and such while locked in.
We take life so much for granted. Most of us are able to walk, run, laugh enjoy our time with our peers and be happy. It’s so sad to see that some of us are not able to do that. Hopefully science and medicine one day be able to release us on these potential tragedies.
I laughed hard but then I started thinking about how frustrating it must be to not be able to do anything but be in your thoughts all day and you can never communicate them to anyone.
I'm a home health physical therapist and I have a patient with this case. What amazes me is that we can communicate through an alphabet board. He seems to be happy despite what happened to him. He spends most of his day watching tv and talking to his caregivers.
Coming from former locked in patient...yep talk about scared. That's an understatement... Told I was gonna die, then gonna be a vegetable... After 5 yrs of therapy. Im about 75%. Can speak if its quiet enough, can move every limb, and sense everything. Can walk but its laborious and crazy slow. I use a chair 99% of the time...100% independent tho. And thats the most important thing to me.
TakoCat No the machine Stephen Hawking used was controlled by his cheek. I think he had to look at the letters with his eyes. The machine was developed by two Indians.
Prakhar Mishra Ok, but The cheeks are a part of part of your face. But technology nowadays you do pretty much a lot so my statement still stands even though I may be able to only use my eyes I would still like Hawking’s computer because I could have small motion sensors on my eyes like the ones Hawking had, to communicate.
Katia Azizi I'm not sure you can fully communicate only with your eyes. Maybe it could involve blinking or something, but for Stephen Hawking he had to press a button with his cheek to type the word. I doubt you can do it with your eyes. Btw, I wasn't replying to you🙃😂
Ok you know what? After seeing this, I realized that I have ZERO problems. My life is wonderful! I have so much freedom. I can move. I can walk. I can communicate. I can’t complain because THIS has to be the worst illness EVER
I get it now gradma. I'm sorry for not speaking to you and not beliving that you were still there. Rest in peace and I hope you are happy whereever you are.❤
My best friend's mom (whom is also a mother figure to me) has this. While she has made a partial recovery, she has the brain of a 5 yr old and can't really move any of her extremities aside from her fingers. She also has a stutter. My best friend, her siblings, and I do our best to take care of her. Some days are more difficult than others, but that's my family and we all take care of each other 💓
One of my patients had Locked In Syndrome and it really is as devastating as you imagine. He could only move his eyes to communicate, it’s absolutely horrific.
This is genuinely terrifying. Its kinda hard to grasp how it feels to literaly be trapped inside your own body. The only thing i can really say now is rest in peace, Hawkings. Your impact on the earth will not be forgotten. We will all miss you.
The closest thing i've experienced is sleep paralysis. Although i was seeing my room or wherever i went in to sleep, but i knew it was part of a dream after looking it up.
This happened to my sister a few years ago when she was forty (and in excellent physical shape). She was having a procedure done to remove a small tumor from under her brain. Surgery went well, but within 48 hours her brain began to bleed, and she had a massive stroke. After about a couple of weeks she was able to use her eyes (opened wider for “yes”, narrower for “no”) to somewhat communicate. This was all she could move. For the next year plus she was on feeding and breathing tubes. She could not speak at all, but she had very small movement in a few of her fingers. Now several years later, she has regained a good bit of movement in her arms and legs. Her “recovery” is still on going, but she has progressed slowly but surely. Still has a long way to go. It is hard to imagine how this really affects anyone that this has happened to.
The most I can relate is sleep paralysis, where you can think but you can't move or even open your eyes. It's absolutely terrifying. The way I break out of it is focus on my toes and try to move it
I really hope we will someone be able to connect the brain to computers or speak decoders. Not to play computer games, but to make "live" more bearable for these people. Nobody can imagine how being locked in feels like, but just thinking of being in that situation is a terrible feeling.
Harry Thompson no, my dad came out of locked in syndrome in a few months. He regained limited use of his left hand and learned to sign the alphabet in only one day. It took us a bit longer. It still was hard as he couldn’t walk,talk or eat ever again for 7 years. He was amazing and my hero. I pray no one reading this ever suffers a brain stem hemorrhage.
Harry Thompson thank you so much. It was a horrible time but, like what they say “what does kill you,makes you stronger”. He was an incredible father and truly a gentleman.
Harry Thompson I’m so sad that you never got to have the kind of dad you deserved. I can never understand how some parents can just walk away. It’s their own loss because you sound like a lovely person. My own son-in-law, nephew and nieces have had the same kind of father’s,too. It really messed them up for ages. Hopefully, you will or have already been able to do things differently for your own children. You have a good heart, anyone can see. Your Mum must be wonderful.
This makes me so depressed. I feel that there is hope if you can blink, but its horrifying if you cannot even open your eyes. I wish I could help everyone in this state, I so wish.
As a person who struggled with sleep paralysis many times, being unable to move and make people realize you need help is frightening. Even when you are trying your hardest from deep within. I can’t imagine having to go through that my whole life...
My grandmother just had this. She died on 14 March, the same day as Stefen. She couldn't move but whenever someone would hold her hand a tear would drop down her check. We just saw her closing her eyes to sleep, nothing else moved. She stayed like this for 2 months and ultimately died from brain damage. May she rest in peace. I can't imagine what she was going through
Ive had sleep paralysis for as long as i can remember,and they sound kinda similar. Sleep paralysis is being woken up (like when a nightmare wakes you up) but can only control your eyes. Being helpless like that for a few minutes is torture. only difference is my concious world turns into a dream scape where i see and hear things that aren't there. I usually see a dark tall hooded figure with no features looming over me.. Also if i try to move any sound gets amplified intensely.
When I had my operation a few years back and I woke up after it was over, I could hear doctors and nurses talking to me, but couldn't respond or move even a finger, just blink. I remember trying so hard to say something and nothing come out. It was like you're underwater and they're above you. It still freaks me out, so to be in such a state for a long time terrifies me.
If I can't even write what I want to say, if I can't even touch a dog or horse, or touch someone else's hand...shoot me. Put me out of my misery. I fear death, but I fear that more. I need to be able to move, to see places, be entertained. Boredom, and not being able to do anything about it, is a type of pain to me. And shame on people who outlaw mercy killing. Keeping people alive, against their will, in such horrible conditions is not humane. How is it that we are more humane with our pets than family? It's selfish - only the living care that they are dead - the dead do not care.
I don’t know what I would want. But I am blessed to have my moment on this planet, and I am ready for the challenges the universe is presenting me. 🙏🏾🌍
My sister had a brainstem stroke plus hydrocephalus almost two years ago and was in intensive care and unconscious for over 6 months. She is now minimally conscious, she is not fully locked in but can speak a little, struggles cognitively and has very limited movement. She has poor short term memory but can remember songs and people from before the stroke. She has very little dignity, no quality of life and all care tasks have to be done for her. She is fed mainly through a tube but can now breathe on her own. If anyone else out there has experienced this type of brain trauma I'd love to hear your experience and if there is much hope for improvement after two years.
I knew some one who suffered from this locked in syndrome when I was in the hospital after my spinal injury. She suffered a brain stem stroke and could only move her eyes
I've had patients with this horrific condition. I feel a profound sense of guilt when I interact with them because they can't tell me how they're feeling. I just examine them, talk to them and leave the room. It seems like a form of "living death". Most of them eventually succumb to complications like pneumonia, infected bed-sores, or, sepsis. 😔
This is probably the saddest video I've ever done.
The Infographics Show yes it is 😐
torch Plays you’ve not even watched the whole thing yet 🤦🏾♂️😂
not the first but oh well. first to say that youtube is drunk.
well sad
The Infographics Show I feel you
My father has locked in syndrome. It's the absolute hardest thing any of our family has ever been through. Going on 3 years now, as hard as it is to see, I can only imagine how hard it is for him especially at only 53. I love you Dad
T W hopefully one day a miracle somehow happens
T W dont lose hope, my cousins grandpa lost alheizmers and lived another 14 years
T W I'm very sorry for your father and everyone in your family. You have a understanding and sympathetic mind, that focus on his suffering more then yours in this terribly sad situation, many find that very difficult, but you have your priorities straight. Your father can be very proud to have a child who works like that, who have that mental maturity. I sincerely hope your father will be more functioning and healthier as time goes by. Even more so I hope you all will find (or keep on if you already have) ways to be as happy and satisfied as you can in your current situation. Do take care.
T W i really hope things get better. im so sorry
I know it won’t help because it’s impossible to know how you feel, and it’s harder watching the sufferer. but I was in a medical coma for about 10 days. I know I don’t remember much if anything, but I’m pretty sure I can remember people being there and moving or holding my body although I supposedly wasn’t.
If you go hold his hand and talk to him for awhile he’s semi aware of what’s going on. I don’t know how cognitively aware he would be with his condition.
Tell him doctor says he’s getting better and he might be able to move around soon. I think that helped me the most.
Sorry that was long
The worst part of all this is that you feel completely usless.
You can't move.
You can't comunicate.
*You can't feel alive.*
Lord Tachanka. people with depression would feel the same.
sad chigga right exactly
Lord Tachanka. And you'd know how?
Lord Tachanka. You might feel useless, but you may very well feel alive, maybe even more alive then you ever felt, which may, or may not, be a problem for you. We are all locked in our brains, that's the essence of what we are, however when we loose the ability to communicate with the surrounding world, the isolation can become maddening.
Jisung Park is my Actual Baby Depression have more chance of recovering though
No one has the right to deny a person of their right to die, especially when something this tragic occurs.
vary soft kitter eating sppagoni That would be so heartless though.
@@Staffa23 fr
@@Kandro I feel the same
@@Staffa23 trudat
I agree 100%! Ive forced my close ones to take an vow to put me out of my misery in cases like that. It took time and a lot of tears but i got a promise that if i cant heal and want to die, they help me. One or two might get cold feet but not my mother. She doesnt commit to anything unless its 100%.
Conditions like this make me appreciate my life and what I have we should live ours lives to the fullest always 😔
Yeah
Deep
This is a real life nightmare, imagine never being able to move, and unable to talk with people. And forced to sit through it all and denied your right to die.
36th like AYO
Right??
I'll just accept my fate then
So it's a self aware coma?
Amir F I love TH-cam! And every comment makes the video more popular
That’s actually the most simple yet accurate description of the disease I have heard.
ziljin False, comments don't contribute to search results
Fića Games Im pretty sure they do, nearly everything does.
Fića Games they do
I’ve never suffered from Locked in Syndrome but I did and still do suffer from a Cervical Spinal Injury. I remember waking up in the hospital completely paralyzed and unable to move anything besides my eyes. I couldn’t even speak or make audible sounds because of the tubes down my throat and nose.I can tell you living life like that is worse than death and I only spent 2 weeks in that state before I was able to breathe on my own and talk a little. I’m still stuck using a crutch to walk 7 years later but I would rather die than experience that full paralysis again.
sorry for that,
but you know
how that feels.
I hope your life will return to normal a day.
How did u recover enough to type
Dude why do u do that? Have to be the center of attention all the time.
@@justintodd5145 how is he trying to get in the center of attention? He posted a comment related to the topic of the video. It's not like he goes on a music video and then just starts talking about how he was paralysed etc. This video is the place where ppl can share similar experiences.
Wtf the government will actually force you to live in that condition and they know you don't want to to FTW
You do know that ftw means for the win, right?
+Lunaarii and in this case, it means "Fuck The World".
I don't ever curse, but I had to, to clarify what it means.
Government healthcare sucks
Couldn't they have gone to Switzerland to get euthanized?
They don't want to take the chances y know
Every time I watch these, I get scared of getting the disease. a few days later, I'm over it. Except a few mortifying ones. If I dealt with this, I would remember this video.
I'm the same way. I'm a hypochondriac
Canonically not too intelligent what does that mean
@@innocentbeancreature2370 it means you constantly think about getting a serious disease but like, you can get a literal panic attack from it
This is not a disease, but a consequence of a heart attack, cerebral infarction or any other damages to the brain stem (which could all happen in a horrible accident, car crash or something).
Darkness imprisoning me
All that I see
Absolute horror
I cannot live
I cannot die
Trapped in myself
Body my holding cell
Landmine has taken my sight
Taken my speech
Taken my hearing
Taken my arms
Taken my legs
Taken my soul
Left me with life in hell
MC Runde was looking for it
You are an amazing poet!
thats a metallica song, emerald beacon.
Lol, I guess I don't listen to very much music 😂
Oh look a metallica song
This video reminds me of a song by Metallica call "one" and is base on a book that's about a soldier who was blown up and lost all motor functions. Then when the soldier woke up he couldn't really move but he had full brain function. The book/movie is very sad because the guy just wants to die but the doctors were having some sort of moral debate if they should let him live or die.
The book was "Johnny Got His Gun" by Dalton Trumbo. The soldier has lost all his limbs, his face and any means to see, hear, or talk. He's just a head stuck on a torso. He figures out that he can communicate by nodding his head in morse code.
Rudy Flores Shit I was just listening to metallica
Pretty much
Anonymous5253 i think it is this condition
Lenard Segnitz yes you are right! Very heartbroken book.
my best friend has lock in syndrome and hes only 27 he can't move at all but he can smile now so maybe he will get some more control over his body one day in the future I hope.
How’s he doing now? I hope he is on the road to recovery!
if he can smile that means he will recover.
did he make any progress?
how is he now?
I wish your friend lots of luck, is there any progress in his recovery?
I had a patient with this condition 2 years ago. It was heartbreaking seeing my patient like that. She used to be funny, talkative and just full of energy. All I can do as a physiotherapist was to maintain joint integrity and electrical stimulation of her muscles. They can't afford better health care because their family is poor. Unfortunately, she died and I couldn't help but be sad about it to this day.
R.I.P, Patient with Locked In Syndrome
I have a young woman under my care who is in a similar situation. She's only been on my service for two weeks and I almost want to cry everytime I reposition her, hang a new TPN bag, etc. She gets wicked contractures and I can't imagine how painful they must. I wish the other staff would do better with her ROM.
Her condition worsened with time?
@@islam_will_Dominate Would if they did not find the root cause.
What if they thought you were dead and burried you.....😰😰😰
Avocado Sauce Omg yeah!!
Guys this can't happen 😊 you have to be declared braindead.
If that happened that would be the worst hospital ever if they didn't even check your pulse.
They have to check your pulse smartass
Why would they think you are dead ? You would still have pulse and brain activity.....
This is horrifying
This is why euthanasia in humans should exsist. Who wpuld want to live with this?
Mathias Kanuck I agree, human euthanasia does exist in places like Switzerland but it’s illegal in the very vast majority of the world
I’m crying. My aunt had this since she was 11. She got into an accident and fell into a coma. She was in a coma for around 3-4 days. I was in the room with her holding her hand saying that she needs to give me a sign that’s she’s still in there. I looked at her eyes and her eyelids seemed to be moving. I told the doctor and he came in and looked. He also saw her eyelids move and he opened up her eyelids to see her eyes moving. He said she had locked-in syndrome and she wouldn’t be able to talk or move ever again. At this point my hands were in my face and I was balling my eyes out. She wouldn’t be able to see again either...
C.T. Good eye
@@c.t.1498 they might've meant their cousin, or the story could've taken place years after they got the coma. But the story might be fake
But then again, it says "My aunt had this since she was 11." So she could've had it for decades.
It can happen if your grandparents have another kid just a few years before your parent have you
[Insert Funny Joke Here] guys they meant “since I was 11”
C.T. She means her aunt was 11 when it happened, so, maybe 20 years ago or something
As a newly fully paralyzed teenager this is very hard to watch, however it does help by knowing there is even worse conditions than mine. I just wanna leave this here for everyone in the comments: Life is a blessing and at any time of the day things could change for you.. like you would never imagine. So please everyone make the most of your life and live each day like its your last.
I’d go insane after the first hour being trapped in my head with my own thoughts not being able to talk
Wait... they could use their eyes to use Morse code.
What if they don't know Morse code
Then they will tell them how
ChazFilms They mentioned that in the video
Answer: yes. by blinking, you can communicate as mores code like how they do it with sound except only using blinking.
Exactly what I was thinking. I'd just lie there blinking "CQ" until someone noticed. Even if they don't know Morse, they should recognize there's a pattern. My ex knows I'm a ham radio operator. She should pick up on it pretty quickly.
That said, I hope and pray this never happens to me. Brrrr.
my eyes got wet..... nd i used to think i m a tough dude
You aren’t alone. 😭
crying doesn't make you less tough, just human
Zeayo yes
vishal pal think something is wrong with my I had zero emotional response🤭
Its ok
This is aweful. I would rather die, than too have this happen to me. Atleast you can come back from it. Your life is pretty much taken away for a time.
I couldn't think of anything worse than seeing your family walk in the room around you (you'll hear them before you see them) peering over the bed crying and whispering your name, saying I love you and they don't know you can see it all, hear it all and feel it all. You'll wanna cry, you will want to just make a rapid movement out of anger at times or even move a finger but you can't and the feeling you'll be left with I think would be the stuff of nightmares. You will have so much emotion for so many reasons but not a millimetre of movement to show it.
I never type TH-cam comments but this one got to me.
Imagine having a government so evil they deny you your basic right to end such a torturous existence. wow.
“We will not put you out of your missery but will make you waste resourcess that other people could use”
I was locked-in for 4 months, it’s was so bad the french call it buried alive syndrome. It took me 2 years to learn to walk/talk again and 10 years later still have a lot of problems with memory, anger, pain and signals not getting through to different parts of my body, granted that is from the brain damage. The NHS were brilliant in the rehabilitation centre and a big thank you for the continued support from the UK government, the NHS and Liverpool council!
oof
My dad experienced Locked-In syndrome but died 1 week later because of cardiac failure...
Rip
Noob 9 Very sorry... RIP
I’m so sorry noob 9
Noob 9 Im so terribly sorry. I didnt know this existed. My grandpops had a stroke, he was lucky that he lived.
Sorry for the precious lost of yours🥀
Rest in peace Steven Hawking
Explosive Rift he had ALS
Explosive Rift but still rest in peace
Righteous Honour man that’s sad
Ima religious person but in no way would I hate a person because he doesn’t believe in god
They have their beliefs and we have ours
Righteous Honour oh look an extremist, there is no evidence of a god of any nature, however the majority of atheists would convert if it was proven or god came over and said hi.
Righteous Honour the universe was made by the big bang
I'm Catholic but people have their beliefs.
Imagine if you had this syndrome, and u had a lady friend u loved very much, or even a loved one. But yet, you still can’t be capable of saying the simple words of “I love you,”, and never able to say that. Or even if you didn’t have this syndrome before, and you acted mean to family and friends. But when you have it you can’t say that you love them. What I’m really trying to say is that you should always appreciate family, and the people you have in your life.
DrOp The Win We need more people like you...Seriously
deep
Worse, what if they said "I don't want to make him go through this... Pull the plug, please..."
@@seaunicorn.3.888 I'd be happy
This is gonna sound off-topic, but why did you had to put lady-friend as if this was only for men?
Other than that, it does feel horrifying to have locked-in syndrome...
Ugh, of course you had to make a video about locked in syndrome. This is literally one of my greatest fears, just thinking about it gives me the chills. Years of suffering sleep paralyses have only fuelled this fear (although not the same at all, but the feeling is horrible - even leaving hypnagogic hallucinations aside).
If I ever end up in a situation similar to this, and you find this comment: please let me die! I don’t fear death, but being kept alive to live through my worst nightmare is torture!
Oh, so locked in syndrome exists?
Name every disease.
My grandfather suffered from this. Unfortunately, he didn’t make it but I’m glad he isn’t suffering anymore. I wasn’t completely aware of what was happening but now I know fully. Thank you infographics.
wow, this is such a cruel syndrome. It's things like this that make you question God's existence. And the image of Stephen Hawking walking away from his wheelchair into the distance or, the afterlife, is really sweet
I wonder.. If heaven DOES exist, did Stephen Hawking get in it?
He definitely did.
Stephen hawking-2011 : there is no God
God-2018 : there is no Stephen hawking
doki doki literature club he didnt. How could he when he denounced god throughout his life lol
Same, that sounds great. To be honest the concept of what's after death is really interesting to me, like if we become ghosts or something how awesome would that be. I definitely don't believe there is nothing, I can't even understand that idea of there being nothing, but these other ideas also seem like fantasy, as much as I'd love for them to be real
Also wow my comment got a lot of attention thanks
Personally, if I had SOME form of speech I wouldn't want to die. Otherwise, bring it on sissies, unplug the cord
True, lets go *hang* out.
what a meme
😢😢😢 emotional voice of infographics show's narrator
Techie Planet how is his voice emotional?
i dont know
Kits Ck I guess the music makes his voice sound emotional
Techie Planet not sure but Whoooooosh
Sarcasm 😂
In a strange twist.. This was one of my biggest fears..
But you only know what you've been through..
No matter how assured you'd think you are of yourself.
With that being said; my answer is a sad, but definite yes..
I would want to be taken off life support or assisted suicide or euthanasia aka mercy killing..
I learned that after being in an induced coma in 5 separate cases in my life, 4 due to my illness, asthmaticus, because of my poor health choices at the time.
I too was in a cognitive state and could not move nor respond..
I would fall back to sleep, then awaken, only to not be able to move. This happened over and over (little did I know I was in those separate states for a full week, it felt like a couple of days tho). I even at times could open my eyes but only slightly, to see no one in the room, and in some cases people interacting with one another. I remembered seeing my late aunt putting Chapstick on my lips and gently forcing my eyes shut with her other hand. With me thinking I was only dreaming.
I would finally be taken out of the induced coma with the intubation being removed (it would feel as if you're being reborn as you choke from the tubes removal and gasping for air).
I would eventually speak about the conversations that they were having with each other and the nurses. They were shocked. They would say things like; I was "unresponsive" and "not even moving my hands when it was squeezed".
I'm fortunate that it was medically induced. Because if it was any other way, it could have turned out much different.
But it still takes a toll on ones mind and body..
My doctor said my heart can't take another trauma like that..
I'm grateful, but, go through bouts of depression because of it.
This is so emotional. I feel sorry for whoever had it, still have it right now, or managed to cope with it until they were cured.
God bless you all.
You truly deserve an Oscar for this video. Keep up with the excellent work.
Thank you!
Reminds me of sleep paralysis
Was about to comment the same. Happened to me once... truly frightening feeling.
Icantremember92 Happened to me maybe about 10 times the first few times i was terrified but after that I just fell asleep again lol
I have never experienced it before and I hope not to. Is it true you can see someone standing at the foot of your bed?
i had gone through it 2 times. first i was terrified and thought i had gone to hell. the second time still scared but knew what was happening
I would blink for them to kill me oh lord I would not wanna live like that for the rest of my life
But wait. If you are in that condition, is your mind awake all the time without sleeping (you hear everything 24h a day), or do you fade out for some time?
You can sleep and be awake just not move
I assume they fall asleep and have regular sleep cycles.
The mind would go insane if awake 24/7.
I wonder if they can move in their dreams
Like the video said, the body is the only thing that's disturbed, not the brain. And all circadian rhythms are regulated in the brain so, yes, people can still sleep and dream and such while locked in.
@@jakehart762 of course. Our souls are out off our body when sleeping.
This is horrible... I can't imagine being able to think but not being able to express how I feel to others.
I've never been much of a fan of Steven Hawking but im emotionally hurt.
R.I.P
We take life so much for granted. Most of us are able to walk, run, laugh enjoy our time with our peers and be happy. It’s so sad to see that some of us are not able to do that. Hopefully science and medicine one day be able to release us on these potential tragedies.
When you start up your pc but your mouse and keyboard dont respond
Fu Jian He Me for the past 3 months.. Broken CPU
I laughed hard but then I started thinking about how frustrating it must be to not be able to do anything but be in your thoughts all day and you can never communicate them to anyone.
alexandra xx that’s called sleep paralysis
@alexandra xx It might be that you were already awake, but still dazed so it felt like a dream?
@@tommyphillips5850 it's called a lucid dream
My dad had similar condition after a stroke for 4 months. Passed away and suffered a lot. He cried sometimes, hard times for the family.
I used to work in a nursing home caring for people with this syndrome. It is heartbreaking.
*nether portal noise plays*
Creepy.
I'm a home health physical therapist and I have a patient with this case. What amazes me is that we can communicate through an alphabet board. He seems to be happy despite what happened to him. He spends most of his day watching tv and talking to his caregivers.
Coming from former locked in patient...yep talk about scared. That's an understatement... Told I was gonna die, then gonna be a vegetable... After 5 yrs of therapy. Im about 75%. Can speak if its quiet enough, can move every limb, and sense everything. Can walk but its laborious and crazy slow. I use a chair 99% of the time...100% independent tho. And thats the most important thing to me.
The sun is a deadly laser.
Squidsword XD
Squidsword *not anymore there's a blanket*
Squidsword that is brilliant.
Heyy said the Roman Empire.
It's evil yellow ball
If I had locked in syndrome I would want a computer like the one Stephen Hawking had if I couldn’t speak.
Fox Mulder I know he had ALS but I’m saying if I could blink my eyes I would want that computer anyway because it will help me speak.
TakoCat No the machine Stephen Hawking used was controlled by his cheek. I think he had to look at the letters with his eyes. The machine was developed by two Indians.
TakoCat not really because Stephen Hawking control he’s with his eyes as well and his face muscles not just his tongue.
Prakhar Mishra Ok, but The cheeks are a part of part of your face. But technology nowadays you do pretty much a lot so my statement still stands even though I may be able to only use my eyes I would still like Hawking’s computer because I could have small motion sensors on my eyes like the ones Hawking had, to communicate.
Katia Azizi I'm not sure you can fully communicate only with your eyes. Maybe it could involve blinking or something, but for Stephen Hawking he had to press a button with his cheek to type the word. I doubt you can do it with your eyes.
Btw, I wasn't replying to you🙃😂
darkness imprisioning me
all that i see absolute horror i cannot live i cannot die trapped in myself body my holding cell
hillary's pantsuit stolen reported.
@@azathoth6575 * METALLICA
Ok you know what? After seeing this, I realized that I have ZERO problems. My life is wonderful! I have so much freedom. I can move. I can walk. I can communicate. I can’t complain because THIS has to be the worst illness EVER
4:39 "actually [slight chuckles] wanted to die"
I get it now gradma.
I'm sorry for not speaking to you and not beliving that you were still there.
Rest in peace and I hope you are happy whereever you are.❤
She is ❤
@@brlxnnx thank you. It means a lot to me..❤😓
Im soooo lucky to have a mega strong immune system, i dont remember ever staying in the hospital because an illness
ok imagine being born 3 1/2 months early and having 16 surgeries in a single year, and being in the hospital for 5 months straight
Are you awake?
>well yes but actually no
this should be the top commenta
My best friend's mom (whom is also a mother figure to me) has this. While she has made a partial recovery, she has the brain of a 5 yr old and can't really move any of her extremities aside from her fingers. She also has a stutter. My best friend, her siblings, and I do our best to take care of her. Some days are more difficult than others, but that's my family and we all take care of each other 💓
I love your videos ❤️
#ShowUsYourFace
where is our shoe reveal!?!?
But why not both?
Game slayer404 dont let us see your face
but why not?
Juju tf lol
This makes me sad hope this never happens to anyone here
Rest In Peace Steven Hawking you will be remembered
I hope this never happens to you as well :)
It's not mainly sad it's actually amazing how people can recover and how interesting the world is and how we can learn to get through barriers.
One of my patients had Locked In Syndrome and it really is as devastating as you imagine. He could only move his eyes to communicate, it’s absolutely horrific.
This is genuinely terrifying. Its kinda hard to grasp how it feels to literaly be trapped inside your own body. The only thing i can really say now is rest in peace, Hawkings. Your impact on the earth will not be forgotten. We will all miss you.
The closest thing i've experienced is sleep paralysis. Although i was seeing my room or wherever i went in to sleep, but i knew it was part of a dream after looking it up.
Saddest Video EVER
Currently my grandmother has had this for 6 years thank you for the video
This sounds terrifying. Just thinking about this happening to me causes mild panic.
Lewis Capaldi’s song someone you loved
“I’m going under and this time there is someone to save me”
Some can not even blink only move their eyes when someone open them.
This made me cry its so sad
This happened to my sister a few years ago when she was forty (and in excellent physical shape). She was having a procedure done to remove a small tumor from under her brain. Surgery went well, but within 48 hours her brain began to bleed, and she had a massive stroke. After about a couple of weeks she was able to use her eyes (opened wider for “yes”, narrower for “no”) to somewhat communicate. This was all she could move. For the next year plus she was on feeding and breathing tubes. She could not speak at all, but she had very small movement in a few of her fingers. Now several years later, she has regained a good bit of movement in her arms and legs. Her “recovery” is still on going, but she has progressed slowly but surely. Still has a long way to go. It is hard to imagine how this really affects anyone that this has happened to.
The most I can relate is sleep paralysis, where you can think but you can't move or even open your eyes. It's absolutely terrifying. The way I break out of it is focus on my toes and try to move it
You can only blink... and think -The Infographics Show
I really hope we will someone be able to connect the brain to computers or speak decoders. Not to play computer games, but to make "live" more bearable for these people. Nobody can imagine how being locked in feels like, but just thinking of being in that situation is a terrible feeling.
The only people who got out of the lock syndrome are British wow
Harry Thompson no, my dad came out of locked in syndrome in a few months. He regained limited use of his left hand and learned to sign the alphabet in only one day. It took us a bit longer. It still was hard as he couldn’t walk,talk or eat ever again for 7 years. He was amazing and my hero. I pray no one reading this ever suffers a brain stem hemorrhage.
7 years so he made a full recovery or he died?
Leslie Khanna damn sorry to hear that but I’m glad he made some what of a recovery compared to some unfortunate people
Harry Thompson thank you so much. It was a horrible time but, like what they say “what does kill you,makes you stronger”. He was an incredible father and truly a gentleman.
Harry Thompson I’m so sad that you never got to have the kind of dad you deserved. I can never understand how some parents can just walk away. It’s their own loss because you sound like a lovely person. My own son-in-law, nephew and nieces have had the same kind of father’s,too. It really messed them up for ages. Hopefully, you will or have already been able to do things differently for your own children. You have a good heart, anyone can see. Your Mum must be wonderful.
This makes me so depressed. I feel that there is hope if you can blink, but its horrifying if you cannot even open your eyes. I wish I could help everyone in this state, I so wish.
As a person who struggled with sleep paralysis many times, being unable to move and make people realize you need help is frightening. Even when you are trying your hardest from deep within. I can’t imagine having to go through that my whole life...
🎵 *_NOW THE WORLD IS GONE IM JUST ONE_*
*_OH GOD HELP ME_*
*_HOLD MY BREATH AS I WISH FOR DEATH_*
*_OH GOD WAKE ME PLEASE_* 🎵
spicyramen i was waiting for this
My grandmother just had this. She died on 14 March, the same day as Stefen. She couldn't move but whenever someone would hold her hand a tear would drop down her check. We just saw her closing her eyes to sleep, nothing else moved. She stayed like this for 2 months and ultimately died from brain damage. May she rest in peace. I can't imagine what she was going through
I'm so sorry to hear this.
Ive had sleep paralysis for as long as i can remember,and they sound kinda similar. Sleep paralysis is being woken up (like when a nightmare wakes you up) but can only control your eyes. Being helpless like that for a few minutes is torture. only difference is my concious world turns into a dream scape where i see and hear things that aren't there. I usually see a dark tall hooded figure with no features looming over me.. Also if i try to move any sound gets amplified intensely.
Appreciate what you have till it's gone, for good.
When I had my operation a few years back and I woke up after it was over, I could hear doctors and nurses talking to me, but couldn't respond or move even a finger, just blink. I remember trying so hard to say something and nothing come out. It was like you're underwater and they're above you. It still freaks me out, so to be in such a state for a long time terrifies me.
My God the Brits are funny the cop when he said no....... I LoL his determination is very admirable and he inspired me.
If I can't even write what I want to say, if I can't even touch a dog or horse, or touch someone else's hand...shoot me. Put me out of my misery. I fear death, but I fear that more. I need to be able to move, to see places, be entertained. Boredom, and not being able to do anything about it, is a type of pain to me. And shame on people who outlaw mercy killing. Keeping people alive, against their will, in such horrible conditions is not humane. How is it that we are more humane with our pets than family? It's selfish - only the living care that they are dead - the dead do not care.
I don’t know what I would want. But I am blessed to have my moment on this planet, and I am ready for the challenges the universe is presenting me. 🙏🏾🌍
Cor0navirus
I've been through it and there was a sense of utter dread and terror.
This video made me cry but also inspired me!
My friend got locked in.. I just found out 3 hours ago and it’s really hard
Hope he is doing better now
TALK ABOUT IRON LUNGS
"Pipe down over there, iron lung!" -Squidward #5
Big Oof in ur body
Murmaxy Nice Weiner
Pat Patriot wtf
Lmfao
Murmaxy OOF
Damn it b like that
This kind of reminds me of when my mom told me about a patient that forgot how to speak but learned to and got happy after learning how to say hay
My sister had a brainstem stroke plus hydrocephalus almost two years ago and was in intensive care and unconscious for over 6 months. She is now minimally conscious, she is not fully locked in but can speak a little, struggles cognitively and has very limited movement. She has poor short term memory but can remember songs and people from before the stroke. She has very little dignity, no quality of life and all care tasks have to be done for her. She is fed mainly through a tube but can now breathe on her own. If anyone else out there has experienced this type of brain trauma I'd love to hear your experience and if there is much hope for improvement after two years.
I knew some one who suffered from this locked in syndrome when I was in the hospital after my spinal injury. She suffered a brain stem stroke and could only move her eyes
What my sister suffered December 5, 2022. She's still in coma but now moves her head. Her eyes still closed.
"I don't want to live like vegetable!"
Wait so I'm _not_ the only one who noticed that...
I’m surprised they didn’t talk about “ghost boy”
Wasn’t he forced to watch Barney reruns for years?
Conditions like this remind me that some things are truly worse than death, and consciousness is not something I want forever
I love how they have this pleasant stock music playing this over one of the most horrific things ever imaginable.
It would be horrifying if you were tickling lmao.
😥
I know right
RIP Stephen hawking one of the greatest minds in human history
I know this is 2 years later, but Stephen Hawking had ALS, not locked in syndrome I believe.
What about Jason Becker?
wow that’s freaking scary
I've had patients with this horrific condition. I feel a profound sense of guilt when I interact with them because they can't tell me how they're feeling. I just examine them, talk to them and leave the room. It seems like a form of "living death". Most of them eventually succumb to complications like pneumonia, infected bed-sores, or, sepsis. 😔