Ep. 141: Late-Stage Dementia versus End-of-Life
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- เผยแพร่เมื่อ 31 มี.ค. 2022
- Believe it or not, end-of-life and late-stage dementia do not always mean the same thing. In fact, about 50% of people who live with a form or type of dementia will actually reach the later-stages. How can we cope during these incredibly difficult times? Join us this week as Teepa discusses a few helpful strategies.
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"I'm dying, not because of hunger and thirst, I'm dying, therefore I'm not eating and drinking. My body is shutting down and cannot process the food and drink." That is a very important thing to remember at the end.
Can not thank you enough for all you share. Recently assisted my wonderful dad in his last few days of life. Not really knowing what to expect i used my pac skills, shared with my sister as it is not a one person job and we were able to give him the only thing he ever ask for, to die at home. In some ways it felt more like a gift and less of a loss, to finally watch him be at peace on his terms. God bless you all for what you share.
Man! I wish I had found this information 5 yrs ago. My father had Alzheimer's and went through this. I blamed the assisted living for doing a bad job and trying to force him on meds to manage agressive behavior. Now my husband has Lewy Body. All these resources help Bunches!
Thank you so much Teepa. My mother is in end stage Alzheimer's and she is 95 years old. It is very sad to see her bed bound, incontinent and having hallucinations etc. I am comforted by your Talks and Videos.
experiencing the wasting away process in a loved one seems merciless to the caregiver😢.thanks so much for the down to earth explainations ❤!
I’d like to hear something on the lack of professionalism in the Assisted Living-Memory care facilities. Not sure if this is a new thing. Seems like a lot of places are in the business of Dementia care but have no training or ability to care for such people properly or with understanding and compassion. Either that or it’s a lack of staffing or both. They certainly brag about it, but don’t follow through. Maybe I’ve just had bad experiences so far, but the hunt for a good place is like hunting for a diamond in an ocean.
That was beautiful. Gracias dear Teepa
Extremely helpful information! Thank you!
Best episode!
Once you replace negative thoughts with positive ones, you'll start having positive results.
This was very informative. My husband has recenty been dagnosef with late dtsge demrntia whch is different than end of life which is very uplifting for us. Thank you for explainng tje difference.
My Father just had a major change in his level of functioning. He is not able to walk with a walker. He can not feed his self even with his hands. I’ve noticed that his arms are bent at the elbow . The muscles in his arms are tensed up. This is new for about 2 weeks. I think he is moving into end stage Alzheimer’s.
I useed to work in care sector but had to stop due to health osteoarthritis and back injury, now waiting for result mri head gp and mental health think I may have dementia/ parkinsons , my daughter raised concerns, I feel like had sails knocked out of me. I also have angina etc
Taking care of mom, LBD. I feel she's between stage 5 and 6. 86 years old, history of dementia in family. Her sister just turn 82 and also has LBD, I feel her sister is in stage 6 heading to 7 faster than mom.
Teepa, I have Parkinsonism and recently had a scan to rule in or out Lewy body
My husband's death certificate said death caused by dementia but he had pneumonia and his heart had stopped several times during 15 hours prior to death.
ALL COMMENTS/VIDEOS are regarding caring for ONE parent with dementia. I'm the ONLY CAREGIVER (& I AM 100% DISABLED!) who has cared for TWO PARENTS WHO BOTH HAVE DIFFERENT DEMENTIAS for 6+ YEARS! I have NO children, NO siblings, NOTHING, it has just been ME! My parents are in Stage 7 now, but have DIFFERENT symptoms, DIFFERENT health issues, DIFFERENT Sundowners probs, & on & on & on. The 1st 2-3 yrs (again me 100% disabled! And all they have had! Tho' there were others who did NOTHING!), I worked 90+ hours a wk, eating maybe 2 REAL meals/week, driving n2 my driveway & falling asleep immediately til my husband came out to get me, being so exhausted I'd fall asleep in the morning @ the drop of a pin, spilling my coffee all over my lap! There were nights I BARELY made it home-I was SO exhausted! AGAIN, I'M 100% DISABLED! There was a 6 month period I almost, or did, get n2 car wrecks from sheer exhaustion! No one in my husband's LARGE family undestood, nor TRIED to understand(!), nor helped in ANY way! Tho' I (we) have helped ALL of them in EVERY WAY, 10 adult grandkids, 3 50+ "adult children", & great-grandkids. Gave cars, pd 4 private schools, bought furniture for, sent $ to each month while they bought new cars & we (living without ANY, debt, driving used but nice cars pd w/cash, paying our mortgage off early, & ALWAYS, EVERY MONTH GIVING TO TRULY NEEDY PEOPLE!). We did without wants, buying ONLY needs, while all drove new, fanc.y cars, or had Nike shoe collections, yet they all had zero savings, til we finally woke up & said "NO MORE!"). But NO ONE EVER SPEAKS ABOUT A SOLE CHILD, USUALLY A DAUGHTER, CARING FOR TWO ELDERLY PARENTS WHO BOTH HAVE DIFFERENT DEMENTIAS! I've listened to & read all books, looked online, & found NOTHING! NO HELP FOR US CAREGIVERS OF 2!! I am in the last stage, Stage 7 w/my parents, BOTH parents-who both have VERY different problems, symptoms, issues, Sundowners, & on & on! I am 100% disabled & have lost ALL my health, joy, ability to do ANYTHING that brought me joy, since this hit me (like planting flowers, playing the piano, helping with our personal business, cleaning our home & we haven't had a vacation in 12 yrs - as b4 my parents we cared for another elderly family member who was a piece if cake & peacefully died @ home taking a nap, she had ALL her cognition til the end! But I have been utterly ALONE caring for my parents! Both w/different dementias! Today was HORRIFIC! But there is ZERO HELP FOR THOSE OF US DOING THIS! IT WAS 1 OF 10, NOW PROBABLY MORE! YET NO1 OFFERS HELP TO US?! I'm close to suicide as this is BEYOND the WORST of caring for just one! YET NO BOOKS, NO VIDEOS, NO HELP! Why! WHY!? I have chronic pain, Fybromyalgia, C-PTSD, Severe DEPRESSION, ADD, & MORE! Yet STILL, ALWAYS, ALONE, I've done EVERYTHING FOR MY PARENTS! And let my health go! I feel like I've been living in HELL for 6 years STRAIGHT & no one helps or cares! I know the stress causes my chance of dementia to go up (multiply THAT by 2!!), & I swear that I WILL NOT go down the road I've watched BOTH OF MY PARENTS go down!! Why, why, does no1 help those of use caring for 2 w/dementia? Do you not care, or see the DEVASTATION it does to ENTIRE FAMILIES, but ESP
"...Suck, swallow, breath..." valuable info BUT, very annoying little "test" pausing for us to answer.
This is stupid. I've come accept that if this happens or begins to happen, then I'll "tip on outta here." These people are suffering and with no quality of life. Why hang on to that?