Supporting Someone In the Late Stage (Pearl State) of Dementia
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- เผยแพร่เมื่อ 21 มิ.ย. 2018
- © Positive Approach, LLC
This video was created as an additional resource to an article from the Online Dementia Journal - a FREE monthly resource for people living with dementia, families, friends, and professional care partners.
Purchase the full-length webinar "Coping with Pearl Distress and Creating Pleasure with Pearls":
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This video is going to change my next interaction with my husband with Alzheimer's. I'm going to talk less, more slowly, and maybe hum some of the songs we both like. I'm going to see how he responds and if he seems more comfortable with me.
Thank you for sharing. We are always glad to know that these videos are helpful for folks. Please let us know how it goes!
I work as a Constant Observation. The people I deal with are a danger to themselves or to others so I work mainly in Mental Health and Addictions. Basically with dementia patients and suicidal patients who need 24/7 constant observation. I went into this job with almost no experience with dealing with dementia patients and was unsure of what I could do to help 'ease' the minds of my patients. I started doing some research on my own about how to deal with dementia patients and came across Teepa's videos.
Since watching her videos, I have come to understand and have learned *essential* skills when dealing with these amazing people. I, personally, would like to thank Teepa for everything she has to offer and have recommended her videos to so many families who are living with dementia patients. Her teachings have given me an entirely new perspective on how to approach and deal with people living with dementia. Thanks to Teepa, I feel I have made a difference in the lives of the people who come into my care. Each and every patient has different needs and we, as the sound minded, have to adjust ourselves to how each person is effected. With time, patients and experience, I can give the best care I know how to each of those who enter my life.
Thank you Teepa.
I want to confirm this is exactly how you communicate my mother-in-law just died with dementia and I was her caregiver for the last 10 months I had to learn to communicate the way she wanted to communicate people said I was babying her I told him I am communicating and her way the only way she knows how they even in her latest days was still a person not just an object there so you had to learn the calm not the annoying way of communicating thank you very much if I had not watched your videos I would have been a mental mess but after I watched all your videos it made it so much easier I hate my mother-in-law died but it was the most awful hardest thing that I've ever done and went through but I know she's at peace now and I thank you for helping me get through it
I am sure even though she might not have been able to communicate this, your mother in law's soul was thankful to have someone like you in her life.
Teepa’s such a good actor. All the mannerisms of an old lady losing her mind are on point.
Thank you...Teepa has been working with folks living with dementia most of her life so she's had a lot of time and experience understanding who people are.
She's superb, and also a very good actress!!
Virginia Fry her mannerisms as a dementia patient made me cry... Just brought back memories... I just love her.
These videos are exceptionally well done. Teepa’s abundance of knowledge is quite impressive along with her teaching approaches. As a nursing student, I am genuinely grateful for the resources of these videos.
Thank you! We're happy to hear you found this helpful.
I talk to my brother as I always did. He will think that I'm a stranger if I don't.
I don’t think people should suffer like this.
My mom is in the early stages of this horrible disease.
Shout out to all the caregivers, god bless these people.
@Robin Alexander, this is Paula. You are correct a huge shout out to all of the caregivers and many blessings for them. Please check out our website teepasnow.com we have a lot of resources and information that may prove to be helpful if you have any questions.
Teepa I stumbled upon your channel as one of your lectures popped up as I was searching for dementia and it's symptoms. You we're so brilliant and informative that I headed to your channel to see more of your videos. I live in Australia and worked the aged care sector (only temporarily as i quit because of my moral upheaval at the way the elderly we're being cared for and the general disrespect culture in care we have here) I couldn't get through to nurses who would constantly tell me to toughen up or hurry up on my rounds because we didn't have time to chat or befriend patients even if it made their experience for the day just a little easier. I eventually left the aged care sector because of my weak temperament and over sensitivity to things I saw.
Seeing your channel and your videos not only gives me hope but i think all of your videos should be an essential part of studying and receiving your aged care certificate included in a syllabus. Your methods are not only empathetic but effective and essential to proper care. In an industry rampant with people who don't care about people your videos could be the difference between life and quality of life. You truly are a great human being with an apathy blessed to you by God. I hope when I grow old I will be as blessed to have a carer who has learnt your methods. You honestly are not given enough exposure and or credit and i hope your videos truly do become a staple of all aged care staff. Much gracious love all the way from Australia.
We are coming to Australia towards the middle of the year - perhaps we will see you there!
This is so well done. You can see that the caregiver is well meaning, but so off. Thank you for showing the mistakes. It's a wonderful way to learn how to correct ourselves.
Thank you too Rohana! If you are looking to be perfect, dementia is NOT for you:) We hope that all people who are out there, trying to do the best they can, will let go of how it should be, and embrace the mistakes as a place to try something differently!
🥰🐦
My husband is in Memory Care now and can still feed himself. But I am sad to see what might be coming and appreciate this training for those caregivers who are with people with advanced dementia all day. What patience, and intuition and kindness. God Bless!!
Hi, jeannemccloskey9146, glad to know that you husband can still feed himself. Thanks for watching, learning, and commenting. As I said in an earlier response, please reach out to our team to talk about things 1-877-877-1671 or consult@teepasnow.com. We are here to assist as we can.
I think Abbys problem is she approaches the resident as a handicapped person or child, condescending-like, whereas the other caretaker had a friend in need approach. Top down vs equal or bottom up approach. Greetings from Poland. You are real treasure, girls. I do appreciate your gift for me🎁, ie. The videos. May good God bless your work 💕
So grateful to have found your work, Teepa. My dear mother-in-law and step father-in-law are in the mid-stages of this disease. We have just now convinced them to move to assisted living closer to us - it was incredibly hard to gain their consent, which legally they still had. Your videos are helping my husband and me adjust to the reality of their condition, and hopefully to interact in ways that help and comfort them in the days to come.
Thank you SO much for sharing. Going through this with my husband now and I am grateful to hear your experience. 🙏🙏🙏
Hi, @RobinWarr, you are very welcome. I'm sorry that you are going through this right now, but I hope that you are staying connected with others to help you through it. Please reach out to us if you need to talk (consult@teepasnow.com or 1-877-877-1671)
as usual, thank you teepa, this is incredibly helpful iv been using these techniques at work with great results
Lord have Mercy...Thank you for this!
Teepa you are so believable! You certainly know the part. That is experience. Thankyou.
The lady is a genius love u Teepa u are so informative brilliant stuff
I'm so glad to have found your videos. My husband is in the early stages of dementia and I am doing all I can to learn how to care for him and interact with him as the disease progresses. I can't thank you enough.
Hi, @Sue Burdett, we are so glad that you found us as well. If you'd like to learn even more, you might want to check out our family section on our website (teepasnow.com/resources/for-families-and-friends/) or if you'd like to learn some skills, consider joining on of our champion courses (teepasnow.com/services/one-day-public-skills-champion-course/). Please know that you are not alone and we are here to help you.
Oh my goodness this was so helpful!
Thank You, Teepa😍😍✌👍👍👍👍👍👍👍🎶🎶👍👍👍👍
This entire channel is such a wonderful treasure trove of information! I volunteer at nursing homes and such, and I've really rethought how I've interacted with the residents. Not only that, Teepa should be awarded an Oscar for her acting skills; absolutely phenomenal in all aspects.
Hi, @Andriu HEE! So glad that you have watched, learned, and decided to rethink how you interact. That's all we can ask is that a care partner be curious and willing to think about things instead of judging a person and forgetting that they are still a person. As a member of Teepa's team, I totally agree about her ability to convey a message. If you'd like to know evern more, please check out our website www.teepasnow.com as well.
Teepa you are amazing actress . Your techniques have taught me so much and yielded positive happy results 🥰
Thanks so much 😊
As someone who has been a caregiver, what I sense is that Abby's biggest limitation (once she learns some specific techniques) is that she too clearly shows her own stress in achieving her goals (which of course is understandable!), whereas the more experienced caregiver takes a more relaxed, even humorous, confident approach.
Thank you for your awesome videos
Glad you like them!
I am caring for my wife age 58 with FTD. She can't speak and needs help with most everything including going to the bathroom, but she can still feed herself and has good mobility. It scares me to picture her unable to feed herself or to walk, but I suppose it is coming in the next few years. Scared sums it up.
@Dinngg0, this journey doesn't have to be so scary! We are here for you so that you can learn what to expect rather than fearing the unknown.
Care Partner Support Series: (great knowledge about the journey) teepasnow.com/services/consulting/care-partner-support-series/
Champion Courses: (working on your skills to support) teepasnow.com/services/one-day-public-skills-champion-course/
GEMS: (Teepa's model of progression that focuses on what remains) teepasnow.com/about/about-teepa-snow/the-gems-brain-change-model/
Thankyou so much
How can i purchase your video.. My father has vascular dementia his just been diagnosed with it.. He remembers things later on the day. He has anger issues... His worked in his shop for 40 years he knows everything about the shop money. His really happy there.yet he gets tired very quickly.. does one job leaves it half then waddles to the other one. Mum rip use to do alot for him. Without her his lost. His failed his test for power of attorney. He didnt go to work today he was depressed went outside to have air at 10pm then decided to go to bed. Yes his got dementia however its his first stages... He has psccological issues too. But the family wont listen to me. I worked in nursing homes i have never dealt with someone like dad.
Is there anything you can tell me that can help me..
He responds to orders more than love and affection. Soon he will be my patient... yes i take alot of deep breaths..
His not accepting his ill. He does work outside uses an axe caught him in time. His just realizing he can't be old and helpless and sitting down watching Television.. he cant walk far he gets tired very quickly. He has good conversations with others and he doesnt talk much with me as i care for him and notice alot of things...he tells me to leave him alone he can manage... he has fallen twice...and had a car accident he cannot drive..he cannot even work...
Any help word of advice will be appreciated.. thank you so much
I love Teepa, she has so much knowledge, can you help as to how I can engage my residents with dementia in group activities?
We do have some resources available that might be helpful. Connect with us via teepasnow.com and we'll get started.
This makes me want to cry. Seeing someone robbed of their abilities and awareness, and reduced to such a fragile state, just breaks my heart.
Hey there, thank you for reaching out. You are right, it can be difficult to watch. This is Dan from Teepa's team and I'm sorry it has taken us so long to reply. Maybe the biggest thing to remember is that the person is still there. We may only see glimpses of it from time to time which is why Teepa refers to this state as Pearl. Like an oyster shell opens from time to time to show the pearl, our person will be able to look out and show themselves for brief moments. It's important to try to do our grieving elsewhere, however, and be present with them as much as we can. If you haven't already, we'd love it if you were to subscribe to our channel to learn more or visit our website, teepasnow.com.
Teepa, what were you saying at 5:55? Were you saying, "Go away, go away, go away", to Melony?
Thank you Teepa! How can I join your team
connect with us via email and we can provide more info.
The first lady, I think she was a bit aggressive and in a rush the way she handled Teepa😅 The other lady she is very sweet and calm👍
Nice noticing, @Simply Chariez!
And what did you saying at 6:13? I was trying to figure out.
Jordan Shepetofsky She started copying what her carer was sing-saying:
“down, down, down....up, up, up” and something similar to “good morning” in response to when her carer said good morning.
My honest reaction? Wow, I'm just not going to be able to do this.
Hi, @Chair Dewealth, I'm glad to know that you know that this stage is not something you will be able to handle. It's important to recognize where your strengths lie and where they don't. I hope that you are working to put together a team to help you throughout any dementia journey or if you need to talk it through with someone, please contact consult@teepasnow.com.
You're NOT supposed to say things like "Do you remember how much you like ---?" That's reminding them that they can't remember things??!!
also not really applying DIIPPS with that question.. talking to her like that >.
Hi, @Pleochroic Rainfall, you are right. Great for noticing that she wasn't doing it right the first time. We hope that you watched the rest of the video where we showed another way to help the person.
Too quick, response time never given adequate time to adjust, shoving cloth or and food without adequate visual que eyes still shut. Task oriented not focused on patient acclimatizing and cognitive interaction.
Hi, @sylvie bigger - great noticing of the differences between the two care partners!
I think it's upsetting l don't like seeing teepa like that l know she's acting, but l don't like lt.😦
Hi, @Gabrie'l Salvador, thanks for caring! Teepa was ok and we know that this kind of thing can be upsetting, but we also know that people can change when they are made aware of how things could be different.
I thought the woman in green was very annoying and not very good with giving care. she shouldn't do that job..
So, the woman in the green was really unaware of how her attempts to give Teepa some support were not good! You're right! But hopefully you kept watching so that you could see how, with some coaching, she could build some new or better skills to provide better care for Teepa.
I think it was more that she didn't understand that the woman she was caring for didn't understand her talking and that she needed to find different ways to communicate. Sometimes things seem obvious once you know them.
I don't have anything nice to say leave it at that. Keeping it respectful Due to your So called community guidelines.
Hmm...Michael, sounds like we've offended you. I'm so sorry. Please let us know if you would be interested in a phone call or a chat...even an email. We welcome feedback and are willing to explore this with you in whatever way you feel comfortable. You can connect with us directly at teepasnow.com.
Thank you for your reply. Now I have some Time Reflect. I should apologize For jumping to a Conclusion. Without watching The video to the end. I was put off by the way to the person was being Feed. And that's when I wrote that comment. I am truly sorry.
@@michaelwatson1326 It's a difficult topic! and you have every right to feel whatever way you feel. Just know that we are more than willing to talk. We all have different perspectives and they are all important!
May I cry a little bit? 🥲 Gracias