I’m back! Clinical Trial and what’s been happening

แชร์
ฝัง
  • เผยแพร่เมื่อ 4 มิ.ย. 2024
  • It’s been way too long since my last video, so I wanted to get out this update even though the video quality is terrible and I don’t look great. But the saga continues, and now we’re on our second clinical trial.

ความคิดเห็น • 66

  • @darlenegarcia7198
    @darlenegarcia7198 ปีที่แล้ว +29

    So glad you posted today. I to am struggling with stage 4 terminal colon cancer, given 6 to 12 months. I am now in month 10. I wanted to let you know how much your words of encouragement mean to me. I so look forward to your videos. You are such an inspiration. Wishing you well and sending love and prayers.

    • @sadie4me2
      @sadie4me2 ปีที่แล้ว +8

      🙏

    • @terminalyetpurposeful517
      @terminalyetpurposeful517  ปีที่แล้ว +10

      Thank you Darlene! I’m so glad that you’re here! My heart goes out to you as someone who has also been in your shoes. Hopefully we’re both proving our numbers wrong. I’ll be thinking about you and rooting for you 🙏🏻

    • @darlenegarcia7198
      @darlenegarcia7198 ปีที่แล้ว +7

      @@terminalyetpurposeful517 Yes, lets beat our numbers together. Thank you so much for your thoughts and support, it means the world to me.

    • @lisawhite3648
      @lisawhite3648 ปีที่แล้ว +1

      Darlene Garcia you will be in my prayers also🙏🙏🙏🙏

    • @darlenegarcia7198
      @darlenegarcia7198 ปีที่แล้ว +1

      @@lisawhite3648 Thank you so much Lisa!

  • @shirleyluckhurst1189
    @shirleyluckhurst1189 ปีที่แล้ว +8

    It’s obvious you are struggling healthwise but you are amazing to come and do video stay strong xx

  • @suemoo22
    @suemoo22 ปีที่แล้ว +4

    I watch another girl with cancer, Jenny Apple. She did clinical trials also, and also made her break out. Sending hugs and prayers.

  • @DJ-bj8ku
    @DJ-bj8ku 4 หลายเดือนก่อน +1

    Love the name Nacho for the cat. You have a wonderful disposition. I hope there’s a miracle.

  • @denisepaulsenful
    @denisepaulsenful ปีที่แล้ว +4

    I am so angry 😠 at your employers! Ugh … why don’t you take some kind of leave - on your own terms - or work on your own terms - no more pushing yourself to the brink. This is ridiculous! They should be showering you with praise that you haven’t already resigned. Please don’t worry about replying to us. We will always be here. We appreciate it more than you know when you do say hello! We worry when we don’t hear from you but please don’t push yourself. We will always be here. And we love you so very much ❤❤ snd realize you put all your heart into everything you do. But your employers need to step it up - or you will have to take a step back for your own sake. ❤ ❤❤

  • @sadie4me2
    @sadie4me2 ปีที่แล้ว +6

    Continued success with your treatment

  • @lucindabutler1100
    @lucindabutler1100 ปีที่แล้ว +5

    Hello, thanks for the update, I am so glad you can be put on this trial. Really great news, sending hugs and prayers, be strong x 🙏🤗💖

  • @lanebashford3982
    @lanebashford3982 ปีที่แล้ว +1

    I'm so sorry you are going thru this. I'm 66 and have stage 4 metastatic breast cancer (long bones, ribs, spine, lung and lymph mets). I'm just at the two year mark for my "cancerversary" when I was diagnosed, and doing ok so far. I'm not in pain yet. I'm still walking and able to eat. I lost 80 lbs total from before diagnosis to after my IV chemo. I'm now on targeted therapy (hormone blockers) and blood and tumor markers are all ok for now. All of this is like being in a holding pattern. The strangest thing of all for me is that my lifelong depression actually went away. I don't feel joyous every day but I don't feel bad. I feel...content, accepting. There's nothing much I can do but push forward and hope for the best.
    I also have some sort of bizarre rash but mine seems to be atopic dermatitis (eczema) which suddenly appeared out of nowhere. I'm using cortisone ointment and refused big steroids. The rash is limited to a few places and is actually starting to heal and stop itching in the past week. I think for most of us with stage 4 cancers, we have lots of annoying things that keep cropping up for treatment. I've had rashes, severe diarrhea, pleural effusions, breathing problems, fatigue beyond anything imaginable, and weird side effects from my oral meds. I can totally empathize with you, TYP.
    I'm not afraid of what's ahead. Maybe I should be, but I'm not I believe in the power of prayer and have a strong faith in God. I'm praying for you, TYP, stay strong. Just know that you're not alone. Hugs!

  • @Itbmurr1
    @Itbmurr1 ปีที่แล้ว +3

    Great news! Good to hear from you. Praying for you!

  • @sharoncresenzi3016
    @sharoncresenzi3016 ปีที่แล้ว +2

    So good to hear from you, praying for you.

  • @heatherb6797
    @heatherb6797 ปีที่แล้ว +2

    So good to hear from you. Continued prayers! 🙏💚

  • @sarahtamura4993
    @sarahtamura4993 ปีที่แล้ว +2

    Nice to see you again. Love going your way.

  • @kristimartinez7528
    @kristimartinez7528 ปีที่แล้ว +3

    So happy to hear from you 🥰. That is wonderful!

  • @joycehedberg36
    @joycehedberg36 ปีที่แล้ว +3

    Keep on keeping on. Bless you 🙏

  • @rival121
    @rival121 ปีที่แล้ว +3

    I’m hearing great things about this new immunotherapy drug. Sending positive vibes to you!!

  • @trinamartinez4669
    @trinamartinez4669 ปีที่แล้ว +3

    So happy to see you❤wishing you all the love and healing prayers❤

  • @annefor1691
    @annefor1691 ปีที่แล้ว +1

    Great to hear from you. Hoping your treatment programme is successful.

  • @lorikean3405
    @lorikean3405 ปีที่แล้ว +1

    It’s so good to see you! Continued prayers coming your way! Cancer just plain sucks!

  • @kccolby7562
    @kccolby7562 ปีที่แล้ว +3

    Great to hear from you! It’s been a rough patch for sure. Your an amazing woman, and your right-put your mental and physical health first. Positive thoughts your way! ❤

  • @jilldavis3030
    @jilldavis3030 ปีที่แล้ว +1

    So good to hear from you! You are so right about proper diet. Please take care of yourself, we need you!

  • @myheartisinjapan3184
    @myheartisinjapan3184 ปีที่แล้ว +2

    I was just thinking of you recently. Thank you fir the update. I pray your scans go well. 🙏❤️

  • @wanyatelborn
    @wanyatelborn ปีที่แล้ว +2

    So so good to hear from you ❤😊

  • @lynnmoreno6878
    @lynnmoreno6878 ปีที่แล้ว +2

    I’m really happy for the update but I’m sorry you’re suffering. Thank you for the great advice. Food and rest are medicine. I’ll continuing to think about you in California.❤❤❤ And you take care of yourself too!❤❤❤

  • @jenniferthompson6280
    @jenniferthompson6280 ปีที่แล้ว +2

    love light and healing vibes to you..btw your hair looks awesome.

  • @kathyzager9426
    @kathyzager9426 ปีที่แล้ว +5

    Wonderful news!

  • @cbone5999
    @cbone5999 ปีที่แล้ว +1

    I'm praying for you girl.

  • @lindylouwilliams8331
    @lindylouwilliams8331 ปีที่แล้ว +1

    Hi. I came across your vlogs today, I really hope and pray that the treatment works for you, I cannot ever understand what you're going through. God bless you xx ❤

  • @eileen9874
    @eileen9874 ปีที่แล้ว

    Hey Megan! Great to see you! Glad to hear you have been able to be in those trials. So sorry that those side effects are so rotten. You're a trooper and it's hard to be a trooper. It's ok to rest and as you say, be good to yourself. And sometimes, that means cake. Will be thinking of you, honey.

  • @Alwayslearnimg
    @Alwayslearnimg ปีที่แล้ว +1

    They look great! I’m one of the ones who had been so worried about you. So glad to see you here. I know you actually probably have a lot more to do than just TH-cam lol. But let us know how you’re doing when you get a chance. Much love.

  • @jollyroad18750
    @jollyroad18750 ปีที่แล้ว

    My prayers are with you ! To keep her safe and heal her body from this cancer ! In a breast cancer survivor hold you tight .. huge hugs

  • @sylviarogier1
    @sylviarogier1 ปีที่แล้ว +1

    I am happy to hear from you.

  • @cindyhorst8316
    @cindyhorst8316 ปีที่แล้ว +1

    Hang in there, you're dealing with so much right now. Covid takes it's toll on the body I had it over a year ago and I'm not convinced I'm back to normal yet.

  • @jamiepowell3036
    @jamiepowell3036 ปีที่แล้ว +2

    Great to see you!

  • @oldvinezen9857
    @oldvinezen9857 ปีที่แล้ว +1

    Hi. Just found your channel. I teach meditation for a wellness non profit cancer organization. I have seen wonderful success stories so please don't lose your determination. If you can, practice calming the mind because all of your thoughts affect every cell in your body. Take care of your mind health. Its the one area most people ignore, or they think there is nothing they can do about their thoughts. All of your power lies within your thoughts. You can make this trek ( I dont call it a journey, which sounds enjoyable), i see it as putting on your hiking boots, grab your walking stick and start the climb. The view at the top is stunning!. Love You and be good to yourself!!!

  • @gingergreen5986
    @gingergreen5986 ปีที่แล้ว

    Prayers for you ❤❤

  • @denisepaulsenful
    @denisepaulsenful ปีที่แล้ว +2

    So wonderful to see you looking so well ❤ … if you don’t mind my asking what shade of green is on your wall? I just love it 😍

  • @Lisa_BisaRN
    @Lisa_BisaRN ปีที่แล้ว +5

    I've missed you!

  • @elenaandrew8414
    @elenaandrew8414 ปีที่แล้ว +1

    Praying for you

  • @paigelawrence5451
    @paigelawrence5451 2 หลายเดือนก่อน

    What a brave woman ❤

  • @shirleyluckhurst1189
    @shirleyluckhurst1189 ปีที่แล้ว +2

    Stay strong xx

  • @Alwayslearnimg
    @Alwayslearnimg ปีที่แล้ว

    Also, I understand about the carbs. I can do really well without carbs for a while, but then I end up binging. Not to, but it’s so difficult. Anyway, my prayers are all set with you. Like I said in an earlier post, if you can, please let us know how you’re doing so many of us care about you.

  • @smallbeginning2
    @smallbeginning2 ปีที่แล้ว +1

    I feel like your boss should see this. Best wishes.

  • @TRoseTheArtist
    @TRoseTheArtist ปีที่แล้ว

    💜 HUGS 💜

  • @beckymellon8135
    @beckymellon8135 ปีที่แล้ว +4

    ❤ so happy to see you doing ok🤞 do you think the trial meds are making you sicker? I hope your side effects get better soon🤞🤞🤞 good luck with your treatment and I sure hope we see you again soon!!! Xoxo

  • @johnjarvis2168
    @johnjarvis2168 ปีที่แล้ว +2

    Please research Rick Simpson oil. It is an amazing treatment. We have been successful in 41 of 44 cases. We are in Michigan and would love to help you.

  • @jamiepowell3036
    @jamiepowell3036 ปีที่แล้ว +2

    I wish you didn’t have to work and could just focus on you but I know that’s not possible for most people. It’s not possible for me even but I wish it were possible for you.

  • @kristinarnesen3152
    @kristinarnesen3152 ปีที่แล้ว

    Hope your OK ❤

  • @simonsmom100
    @simonsmom100 11 หลายเดือนก่อน

    🙏🙏🙏

  • @user-mf7rx7lt9t
    @user-mf7rx7lt9t 6 หลายเดือนก่อน

    🙏❤️

  • @susanzucker7674
    @susanzucker7674 ปีที่แล้ว +1

  • @jenniferthompson6280
    @jenniferthompson6280 ปีที่แล้ว

    sorry you sound like you are struggling today? are you dealing with anxiety as well? or maybe the fluid in your stomach is causing breathlessness?

  • @overit.4013
    @overit.4013 ปีที่แล้ว +1

    Vaxxed... I hope you make it!! 🙏

  • @DustyEngli
    @DustyEngli ปีที่แล้ว +2

    🥰💚💚💚🙏

  • @beckyzonunmawii4707
    @beckyzonunmawii4707 ปีที่แล้ว

    🙏😘

  • @leaveittolefty
    @leaveittolefty ปีที่แล้ว +3

    do you think you picked up covid at the hospital/med facility? i am taking an informal survey. i take surveys for fun lol.
    ps i am slicked up with aquaphor too🤩
    i am not able to walk my dog either😞he stays right next to me.
    pss i wondered where all the water i was drinking was going and kidney dr said sweat since i am having night sweats🤔
    pssss: i have little packets of Liquid IV Hydration (i think thats what its called) but *make sure* you ck with care team before messing with electrolytes on your own

    • @terminalyetpurposeful517
      @terminalyetpurposeful517  ปีที่แล้ว +2

      I’m not 100% sure but I think I picked it up from a family member. I saw them the week before and he had a cough, but told me, “don’t worry it’s not COVID.” 🙃

  • @nashrinhossain9267
    @nashrinhossain9267 11 หลายเดือนก่อน

    Live tescon

  • @user-vi6ut7cm8s
    @user-vi6ut7cm8s 3 หลายเดือนก่อน

    She died October 2023. 😢