What to Expect: My Experience with Pain Management

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  • เผยแพร่เมื่อ 23 เม.ย. 2022
  • In part 3 of our "What To Expect" series, I share my experiences in managing pain while fighting intrahepatic bile duct cancer (cholangiocarcinoma). For me, a mixture of traditional medications and alternative solutions has helped out so much. But, as always, this is just my own experience as a cancer fighter-please consult your doctor to see what treatment(s) will work best for you.
    Want to join our new community for younger people with terminal illnesses and their loved ones? Email Megan at terminalyetpurposeful@gmail.com

ความคิดเห็น • 18

  • @elizabethconroy7665
    @elizabethconroy7665 2 ปีที่แล้ว +10

    What I can’t understand is if someone is terminal and in constant severe pain is why Doctors are so hesitant to prescribe Medications that are potentially addictive are withheld,when the Patient has a limited lifespan already

  • @Legittoquit1
    @Legittoquit1 2 ปีที่แล้ว +2

    I hope you feeling better .

  • @irish2979
    @irish2979 2 ปีที่แล้ว +2

    Love ur voice it's soothing 😌

  • @Mariehuneault
    @Mariehuneault 2 ปีที่แล้ว +4

    You are such a great speaker, knowledgeable and eloquent , I was wondering how you’ve been. Thanks for sharing ❤️. I am a healthcare worker who also worked in hospice for several years. and am still interested in palliative care and all it entails. Much love to you.

  • @aeko5274
    @aeko5274 2 ปีที่แล้ว +4

    Good to see you looking so well. Thought about you just yesterday, wondered how you were. Sorry about pain management issues, seems to have become quite the issue to obtain treatment for pain. Dealing with this myself. Take care and keep in touch.

  • @kccolly8459
    @kccolly8459 2 ปีที่แล้ว +3

    Hey Meghan! Glad to see you, and your beautiful smile!
    I’m still flabbergasted with the pain management issue. Why haven’t we come much further? I hv gone through many surgeries, and have had terrible experiences. I can’t imagine your predicament and having to deal with it. Like, no fee for medical marijuana for ppl with chronic serious illnesses? So ridiculous to had to wait the time to see a specialist when it should take a trip to the pharmacy! Keep keeping on my friend. Your an amazing woman! Love your highlights!!!! ❤️

  • @CholangiocarcinomaFoundation
    @CholangiocarcinomaFoundation 2 ปีที่แล้ว +3

    Thank you so much for sharing your journey! You are an inspiration to many. Sending our love to you!💚

  • @beckymellon8135
    @beckymellon8135 2 ปีที่แล้ว +5

    That’s absolutely horrific to imagine is that a Pa thing because I hear that a lot in other states from cancer patients but I thought pa, my state was better 😞thanks for that🤞🌹

  • @eileen9874
    @eileen9874 ปีที่แล้ว

    Thinking of you.

  • @canadian-girl
    @canadian-girl ปีที่แล้ว

    awww what a sweet lady ❤

  • @elizabethconroy7665
    @elizabethconroy7665 2 ปีที่แล้ว +3

    It’s been a while since I saw a Video
    Pain management must be a tough one
    I’m lucky to be in good health but my neighbour suffers from Fibromyalgia
    She does have lots of pain
    It makes me feel sad for her
    Warm Hugs 🤗

  • @dianasmith725
    @dianasmith725 2 ปีที่แล้ว +1

    There is a new drug or med for people who take opioids and get constipation. It’s supposed to really work. There’s also another med for constipation called Linzess which works really well

  • @Legittoquit1
    @Legittoquit1 2 ปีที่แล้ว +2

    Your beautiful

  • @Angela-zp2gy
    @Angela-zp2gy 2 ปีที่แล้ว

    What abt nerve blockers

  • @SR-pb8id
    @SR-pb8id 2 ปีที่แล้ว +3

    Hello- thanks for sharing and making this video. I took Tramadol which worked for a little while but eventually required something stronger to manage pain. I actually felt happy when I would take Tramadol it made my mood more elevated. Definitely side effects aren’t ideal - Oxy makes me very drowsy but I use for breakthrough pain. I also use a fentanyl patch for pain and also Tylenol and Aleve as needed. It’s a lot. Medical marijuana helps with nausea and helps relieve the “generally ill” feeling (which I can’t quite explain it’s a combo of fatigue and pain). Fentanyl patch has helped me with pain. Also- a low dose steroid has helped for inflammation from radiation.
    Medical marijuana can also cause more visceral (internal/organ) pain for me for some reason. Ice packs help too.
    If I may ask- Why didn’t your oncologist prescribe your medicine for pain? Or were your referred to an in house pain management specialist with the cancer center?

    • @terminalyetpurposeful517
      @terminalyetpurposeful517  2 ปีที่แล้ว +1

      My current Oncologist does prescribe pain medication for me when needed, but my previous one did not. It was that hospital’s policy that all narcotic pain medications had to go through their Pain Management Center if they prescribed more than a certain amount of narcotic/opioid medications. It was not an ideal situation for cancer patients for sure.