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- เผยแพร่เมื่อ 20 มี.ค. 2018
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A young boy faces a daily battle with a rare condition which causes him to severely injure himself. Davey Wicklund, 11, from Renton, Washington, has a rare inherited disorder that affects his muscle control called Lesch Nyhan syndrome. Davey’s mother, Jaren explained: "Lesch Nyhan syndrome is basically cerebral palsy with self injury. Davey has got the extreme. He cannot stand, walk, he cannot pull his head up for long time, independently. He has got the muscle strength, but not the ability to control.” The parents have to take special measures daily to ensure that Davey doesn’t hurt himself; including arm braces, kangaroo-type pouches to tuck his legs in and a rubber mouth contraception to stop him biting his lip.
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the fact she made the things to avoid him hurting himself makes me feel like she deserves more recognition for it
Right
I agree she deserves more love and care but she already has that....
Ps: keep going😊😊😊
Thx for liking
@@wigglegirl30 your welcome
It means a lot
"1 year 4 months" why is this the only parent ive ever heard not say their childs age in months, why do i feel the need to thank her lmao
Forreal
anyone in my country count the age of their babies like her with years ans months, I think it's because of the same culture we have.
Coz she's Filipino
I think it depends on the country you live, remember that not all countries count using the same method
Becauee she's asian
Nobody is talking about the caretaker. I admire the parents for their love in Davey, but the caretaker is also very loyal, so good job Cynthia! (And the parents)
Like his teacher said he is sensitive to emotions, he can probably sense his caretaker has a kind soul and the way they were interacting with one another was so heartwarming 😭😭
Well Said You
Guys !
Agreed 👏🙌
♥️
Well yeah, the child's parents are probably throwing a lot of money at her, so no wonder she's doing a good job. What a waste. At least somebody is benefiting from that child...
@@oversecus833 Damn bro you're miserable. Ever felt to loosen up a bit in your life?
i love how at 2:38 she said "do your best"...she wasn't yelling at him to calm down or blaming him for anything, she just told him to do his best. they are wonderful and loving parents.
I wish my parents and close ones were like that
@@Dark_Side_Productions Yep
There's a point where love becomes costly. A point where kindness is no longer worth it. A point where the time, money and effort put into something is just not worth it. That child is not worth it, it will never contribute to to anything, it will never even reach full adulthood. That child is nothing more than a burden, something that should be put down just like a sick old dog. What a waste...
@@souslept ooh sorry I feel bad for you
Take care of yourself!
@@tianaantonie10 You Don’t Say “ Oof “ To that?! That is a serious situation.
They include him. They love him. They take care of him. THIS is love. They LOVE Davie. They don't consider him a burden at all. (Yes he can be difficult to work with, but they don't consider it a burden.) It's sweet.
yes
@MALACHAI SHASHU what?
@MALACHAI SHASHU You shouldnt have kids then.
@MALACHAI SHASHU Welp, i hope your a good parent to them.
I would not be his friend
I'm glad he was born atleast into a seemingly wealthy and economically stable family,which can afford all his needs.
ohh no wonder why someone in my grade R kept pushing and hurting others lol
I'm glad he was born with those parents. The mother is so smart and practical. I would have no idea what to do with someone with this condition.
Repent to Jesus Christ
“You will seek me and find me when you seek me with all your heart.”
Jeremiah 29:13 NIV
J
as a muslim, Allah (god) has gifted him, the parents are blessed with such wonderful child.
@@peppermeat8059 Bro 😅😅😅😂
Seeing him just be a normal, regular boy even with his disability- that brought me so much joy for no specific reason. I'm able bodied, I don't have to deal with that, and I'm thankful that I don't, but look at him-
You get to see him being so happy and kind and caring, and everyone around him is so caring as well- that feels like it's important.
Below all of that, he's just a boy
@@esterbun9356 oh thank you so much for letting me know!!!! I'm gonna follow them immediately, that sounds lovely :]
I started crying because seeing him so happy and being so loved and supported by everyone in their family and outside the family just made me so happy. I'm sad he won't get to live a long life, but I'm so super overjoyed that they can all enjoy their lives right now, together.
@@esterbun9356 that’s so sweet 🥺
Jesus loves you so much that's why he died for you, by putting your faith in him as lord and saviour you will be saved! God bless you!
It’s such a blessing for him that he could be born into such a loving family with a perfect school and caretaker for him. It’s wonderful seeing him be able to live his life to the fullest even with his disability.
I don't know what kind of paranoid caring is about keeping people with disabilities and depression alive in this way when they see the world ahead when they can't do anything. They must be given a path of mercy, a mother who loves her suffering children must support the decision to assist suicide.
idk how his gonna go to school
@@intelligentsia9493 agreed
@@intelligentsia9493 he is a human being just like us, dont chosse his future for him
@@intelligentsia9493 he is happy, he is helathy and he has a life.
Use me as a “I’ll stop taking my parents for granted and I will respect them”
😔😭
-If they respect me.
I get your point but not everyone has good parents
My parents treat me like an accessory.
if people actually did this
Damn the mom is so intelligent, I swear she needs to be recognized for how far she’s gone to stop her child from hurting himself
And the dad too
@@mrixzz8127 ye
Anything for family!
Dang* Jesus loves you turn to him before it’s too late
yeaa i agree! also i like ur username lol
I love how the pictures she takes were showing him disabled but happy. Like how she said usually disabilities are pictures in a negative light , hers really captured the fact he was both happy and proud to be himself.
I know, that was my favorite part😊
Jesus loves you so much that's why he died for you, by putting your faith in him as lord and saviour you will be saved! God bless you!
I tried googling him to see how he’s doing, but couldn’t find any updates. I hope everything is going great for Davey, his family, his caregiver(s) and his teachers.
@『 Strawberri 』 Oh that’s good!
@『 Strawberri 』 link?
@『 Strawberri 』 can I have the name of the channel please ?? Ty
@My Twelve Little Buttons ty!!!
@@rsolaris6929 what was the name of the channel? the person you thanked deleted their reply
The fact that he's gonna live until his 20's just makes me wanna tear up cuz he just doesn't deserve to live that short and in a such a condition
ikr
Marki show his life span is short ???
@@reemalanazi3184 Yah.they also have mentioned it on the video somewhere:(
Marki show ohhh that’s so sad💔💔💔
@@reemalanazi3184 yah ik :v :(
That mom looks like she’s aging twice as fast as she should. I feel bad for her she just looks so tired :(
mothers of kids with disabilities have the stress level comparable to those people in the military unfortunately
She looks like a filipina.
Jessie Blancaver what does that have to do with anything
None! SKL hahaha
probably because of the stress
I really like how his mom understands her other children’s combination of love and frustration with Davey’s condition. She seems to accept and appreciate all her children, which is a challenge in any family with a severely disabled family member.
Jesus loves you so much that's why he died for you, by putting your faith in him as lord and saviour you will be saved! God bless you!
it must be hard emotionally to never be able to stay close or hug/kiss your own son bc he might injure you. she seems like an absolutely amazing mom, i hope she and the rest of the family is doing well
It's okay! After a while of being around Davey, you can memorize how he moves and understand how to dodge/position yourself. He gets *at minimum* 50 hugs per day.
@@gracewicklund that’s so sweet suhfiwhdn I hope he can have a long and happy life :)
Yea
@@childeofepickness you're hoping too much 🗣️
the fact that she says "yeah, my other kids love him but they dont like having to take care of him sometimes" so openly is just. so lovely. sometimes i see kids like this and their siblings are being interviewed and you can see how tired they are and how fake theyre being bc their parents probably drill a servitude mindset into their heads
i agree.
These siblings aren’t fake. What’s wrong with them sometimes wanting to have a normal life
@@ivetacosta2870 they didn't say that. they say they like how the siblings are honest instead of faking positivity all the time.
@@clodu2433 yeah I realized that
I see he is a seahawks fan
The mom must really be trying hard to protect her youngest child. This must be so depressing as a mom.
@@jermathy from what?
EDM FUNNY from himself, didn't you pay attention to the video?
Alice Wonder 𝗱𝗲𝗽𝗿𝗲𝘀𝘀𝗶𝗻𝗴? 𝘁𝗵𝗶𝘀 𝗶𝘀 𝗮 𝗴𝗶𝗳𝘁. 𝗶 𝘄𝗼𝘂𝗹𝗱 𝗴𝗶𝘃𝗲 𝗮𝗻𝘆𝘁𝗵𝗶𝗻𝗴 𝘁𝗼 𝗵𝗲𝗹𝗽 𝘁𝗵𝗶𝘀 𝗹𝗶𝘁𝘁𝗹𝗲 𝗯𝗼𝘆 𝗴𝗲𝘁 𝘄𝗲𝗹𝗹 𝗮𝗻𝗱 𝗴𝗲𝘁 𝘁𝗵𝗲 𝗹𝗶𝗳𝗲 𝗵𝗲 𝗱𝗲𝘀𝗲𝗿𝘃𝗲𝘀❤️
black jesus
Yeah but deep down it’s probably not a gift for the parents and they wish he could be able-bodied/minded like other children his age
actually*
I actually went to elementary school with this kid! Didn’t know anything about him, but I definitely saw him around the school sometimes. It’s interesting to learn about this disability since I was always curious
Same. I was a few years younger than him though so I didn’t really know him.
@ UKBA Beanie Society Offical bro you make no sense why r u so dedicated to find out whether we actually went to school with him it’s not a that deep
@UKBA Beanie Society Offical
why would I even lie tho 💀 it literally makes no sense I don’t understand dude
@ UKBA Beanie Society Offical
I’m not gonna go out of my way to prove to some guy on the internet that I went to school with a kid in video. And why do you care anyways?
@ UKBA Beanie Society Offical first of all I’m literally a thirteen year old kid, so chill, second of all, he isn’t “very famous” he’s just in a video so why would I lie if he’s just some kid in a video. Also I just don’t want to post anything, even if it’s to prove to some adult guy that I went to school with a disabled kid in a video on TH-cam
I really respect his parents trying their best to give their son a happy childhood
Ok, use me as a “Wow This Mom Is Insanely Incredible”. Finally a good mother included in one of these videos.
Edit: for everybody telling me that there are plenty of great mothers in this series, that’s great- I’m sure there are!! In the episodes I saw, a lot of the mothers were not being who their child needed. All I was saying was that I’m happy this child is getting the kind of parent he requires. Have a great day, stay safe, and wear a mask (so weird to imagine this comment was written before COVID 😓😓)
shut up
beyondios have a good day :)
And everyone who takes care of him
All the moms I have seen in these were pretty good moms
I’ve never seen a bad mom in this series
No I rather use the actual video
Amazing how she tries to give him freedom of movement yet tries to protect him! She is an amazing mother and she ensures that he doesn't hurt himself when possible! She is awesome! She deserves recognition for how amazing she is!
I agree :)
oi 88 fans 🗽
Dont forget about the dad. He takes care of him as well.
dont forget the dad too!
Chelsea Jennings when
This woman is legitimately so intelligent. I feel so bad for David. That would honestly be so incredibly hard. She's a damn godsend. Amazing parents that she has. I actually wonder if he's on medication to calm him. This would take so much work. She's absolutely an amazing Mother
God
You both are fantastic parents, and you have a wonderful family. It is so heart lifting you see a family that works together, and is happy in their skin. More people should be as caring towards their children, disabled or not.
off topic but their kids are all so beautiful
Welp, ur right
Yep, they have good genes
Ari O. Ramirez god people are so superficial I would be more happy to have ugly but healthy and happy kids
@@samojako9268 I never even said I cared about looks. I too would want my children to be healthy. Plus I was just stating that it's genetic to get similar looks from parents. Tho I do agree with you
yeah they are so good looking. the girl is so pretty and the two boys are so handsome!
"He's really sensitive. He'll even notice if I'm having a bad day or if I got frustated with the student"
That's sweet...
Amachin true
Amachin super sweet
Wonder if he is sweet too since he keeps biting himself.
Hana Song dude, OP was apologising for any offense taken by anyone if they thought comparing someone to a dog was offensive. You don't have to type out an entire paragraph which was totally unrelated, albeit informative
Bluemakespurple Yeah I have no idea why I honestly typed that out. I always tend to do stuff like that. Yeah I'm sorry to everyone. In fact I'm going to delete that.
His mom is really incredible, his caretakers, the school making the adjustments to fit him in, his family and Davey's happy disposition despite the difficulties. This is heartwarming
My brother too has Lesch Nyhan. His name is Simon and just turned 17. We are from Denmark so we are very lucky the Danish healthcare system pays for sugerys and helps with stuff as wheelchairs, home helpers all day and our own van with a lift. Even lifts in our roof so we don't have to carry him around and hurt our backs. Hes a big boy around 6'2 (190 cm).
Simon loves driving in the van and when he is most in peace its in the van in his wheelchair, its like all his symptoms disappear and he can just chill.
We have 3 caretakers right now so they have don't have to go fulltime but 2 shifts a week. We gone through ALOT of caretakers some very good some very bad :D.
1 of the caretakers have been in Simos life in 10+ years so she is a big part of our family and even have a relationship with her parents and siblings.
I loved this video and totally love Davey. Big ups to you guys for letting Davey have as great a life a lesch nyhan kid can have
Have you ever read in the Bible that Jesus Christ has the power to heal your brother? I encourage you to read the New Testament and some stories there describe this condition. Please, look into it! Jesus Christ is alive and He hears us when we call upon Him!
What's sad is that he's perfectly intelligent, but is limited by his body. He can't have a speech board, because of his illness. I wouldn't have the strength to still ne happy. Proud of the siblings for helping him and understanding. 😚
PrismaticError he doesn’t need a speech board. He can talk perfectly fine.
@@gabrielle5718 Not true, obviously. It's hard to understand and choppy.
@@evanhenderson5889 But for those who know him, they can understand him perfectly fine. A speech board is used for people who cannot speak and he can. Speech boards are used for people who are nonverbal. He is verbal.
He is not perfectly intelligent. That is the manifestation of Cp. it’s brain damage
@@gabrielle5718 not true
His mother is so smart with the pillows and tools she makes for him.
@Yousef Jamal that's feels very threatening lol
@Yousef Jamal Still doesent feel right, aha- lol...
😐
Tooth extraction or removing all teeth would prevent bite related injuries.
@@haleypierce82793 it would also mean he cannot eat anything
@whale I think that his food is mostly liquid or it doesn't go through his mouth.
Davey seems like an amazing kid and I know that he will be able to live a long life because with such loving family and friends he will be able to be guided through life and he will be able to have a lot of fun while he’s doing it!😊❤
can you really call this living? If this is how is life will be until the end of his life, that is hella sad.
@@EarthshakerOnamazu yeah but is so weird kind of like a suicidal wild animal u get too close he will bite u or try to harm u but when he is with himelsf he will try ending his life it's weird and sad
The mother looked like she's got tears on the verge tryna hold em back the entire video. God bless her and her family.🙌🏼
She does not. Projecting lunatic.
I worked with a man named David who had Lesch Nyahn syndrome.He was incredibly intelligent but had to wear special braces on his arms and his arms were under a tray on his wheelchair. David had to have his teeth pulled because of the severity of his self mutilation/abuse.David was very frail and passed away in his mid 30s. He taught us so much.
Rest In Peace im sorry for that loss.
So sorry. RIP.
I hope I don’t sound inconsiderate but how exactly did he die. Was it related to the Lesch-Nyahn syndrome? Also he sounded like an amazing person , I would’ve loved to meet him :]
@@sammercer4546 ,I believe he passed from pneumonia. He was very frail. He lived beyond what he was expected to. I believe he actually was a patient of the doctor for which his syndrome was named when he was younger.
@@andrealee33 It’s unfortunate he died but amazing he exceeded people’s predictions. May he rest in piece.
Wow, the mom and dad sacrificed so much for him it makes me want to cry....😢😭😢
children like these are the reason many parents give up on life
@@mrssanchez3652 that sounds so wrong
I’m a banananana
For real that is so wrong
@@1farin it's extremely wrong but unfortunately, it's true.
I have epilepsy and I see my mother and the effort she puts into making me feel confident, capable and also safe. It terrifies me to think of the day without her.
I feel like it’s easy to imagine what a chronic illness is like and how it affects the people around someone with it, but there is so much that someone can never understand.
When Davey smiles, my heart melt :"(
hong joongie hello atiny🥰
Davey looks like a member of wanna one
atiny omg
Same
His actually cute
I’m not seeing a lot of comments about the care taker she works hard to. she’s taking her time out to make him happy and I think she’s an amazing person.
yes!!
We can really see the have a joyful bond. It's lovely.
Caretakers are special people to be honest. People don’t have to deal with people with special conditions unless they’re in their family, yet care workers choose to do it, even when it is unbelievably difficult work. Truly amazing.
Bruh that’s the whole entire comment section
I mean like the top comments are about that, not to be rude
I can't imagine what it must have been like for a mother to know she can lose her kid anytime soon, watching him hurt himself must have been extremely sorrowful for her. Hats off to her for being so strong.
Perhaps Davey is reading this by himself - of not, please tell hin: you are a wonderful boy. I wish you all the best! ☺️
do you know someones iq with it
The title makes it sound like he is purposefully self-harming. It's a condition. He doesn't actually want to hurt himself or other people.
WorldReligion I mean... not really he is a boy that can’t stop hurting himself. It’s not insinuating that he does it out of pure free will or anything, it just states the facts; that he literally can’t stop hurting himself
@Eagles Extra Rare Footage uh thats not how depression works,at all
Just saying, depression is also a condition, a lot of people with depression also don’t actually want to hurt themselves but the illness makes them that way
Thanks for clarifying
@@kerrybonicel158 not everyone with depression self harms or wants to die
Use Me As A "I'll Stop Complaining To My Parents Everyday And Realize These Parents Work" Button.
@@kelsideup Welcome
Stop using them for likes.
No I will not
like beggar
@@mwah2312 imagine begging for likes
It warmed my heart when in PE he “tagged” someone from the safe zone and she said “Thanks Davey!”
?
The family is being praised in the comments as they should but I am floored by the support system he has outside of just his family. The way they make sure that he’s not just taken care of but intentional about his happiness and making sure that he still feels joyful is so important. The caregiver and the teachers show so much patience that many in their field lack. God bless them all
DAVEY’s PARENTS ARE SO WONDERFUL AND INSPIRING! THE DESERVE MORE RECOGNITION! I WISH THEM THE BEST LIFE! (Mother indefinitely with her sweet and calm manner. The fact that she is patience, will make her son calm even though it’s hard for her I’m sure) she’s an angel.
I agree
I also wish the kid a good life
And the dad, and the whole fam!
Omg it is soooo sad that people are going through this
No she doesn’t....
She deserves the whole universe 🤍🤍🤍🤍
A normal person is inside of there, you can tell. He’s just influenced by his mind, which is sad
Stijn S. A beautiful soul under it
That makes this even more sad because he's hurting
It's not even his mind that's controlling him, it's his inner demons telling him that he doesn't have control.
J McFrenchie it is in fact his mind that is diseased/ improperly developed so, yes it is his mind controlling him. The mind is the ONLY thing that controls everyone
Yep. I can see he's a lovely kid, his condition just screws with his body 🙁
Look at his bright smile 🥺 he's such an angel! And I'm so proud of his mom, his dad and all his family members, also that patient woman who stayed with him and played with him. You guys have a kind heart. May God protect you all!
As someone having done social work for years with a ton of people and kids with disabilities I can attest that most of them are very joyful. I always loved going in to work. Even when I had a bad day, seeing their faces light up and their relentless pure enthusiasm always made my day tons better. Their happiness is so contagious and wholesome. I cannot even imagine the hard work it takes to look after a child with disabilities 24/7 but I can definitely see how much it is worth it. It's so rewarding. This boy and his family are amazing. I love them. ❤
I have a brother like this and no matter what we’re always gonna love him
Really? It a rare condition but anyways its good to know you love him and you and your family is amazing people! 💕
God will bless him don't worry dear 🙏❤️😇💞
Hope he's okay
I would surely pray for him to Jesus Christ , dear Madelyn. Don't worry ! 🤗☺️♥️❤️
GOD wil bless him ameen
He’s literally the cutest little boy. Hopefully they will be able to make a medicine that could help him.
@@kanenanda3300 no not even therapy can help its an recessive inherited disorder in which there is deficiency of HGPRT gene
I do absolutely agree with you and I really hope so too
Ziam Mayne he’s probably missing a chromosome or something not to be rude but nothing will cure it maybe one day when technology gets better
@@dannyboyrefugioct2627 down syndrome is chromosomes
If there ever is a cure, it won't be in his lifetime, unfortunately.
seems like such a smart and caring kid. hearing these stories and knowing how much some families truly care is so moving.
I'm glad this mom was proud and brave enough to do this for her son, and I hope he continues to live well
This is not living well.
@@brianfuller757 he's happy though
@@brianfuller757 maybe not by your standards. Some of us have to make do with what we have.
@@brianfuller757 The kid is happy
@@brianfuller757 He is living well and he’s happy
i hope this boy has friends. I would love being his friend.
Same, he deserves the best😭
@@Wildtooth-mg9sl Bruh
@@Wildtooth-mg9sl lol
Same 🥺
@@Wildtooth-mg9sl 😂
These parents are the real heroes...going through all this stuff...and we complain on why we didn't get the iphone we wanted or the clothes we want...no words for their strength and love for this beautiful boy!!!
You complain about getting an iPhone?
@@vorname_6856 of course no bro... The WE is general... For kids and people who have everything!! Get my vibe
@@mrkg27_ vbucks
KG27 this true
KG27 no more complaining about the school grades or crazy things that children sometimes do
His mother is getting a lot of love in the comments (as she absolutely should) but can we also take a moment to appreciate his carer? She is amazing and you can tell she cares about Davey!
I have so much respect for parents like these, who refuse to give up on their child and give them everything they need. Honestly, I couldn't do it.
God, how does she handle this. My mum gets angry even if I forget to do the homework.
And she's a legend.
Trust me your mom would do the same if u were in this condition
She just wants the best for u
those two things are in no way comparable
She probably does get really mad sometimes cuz I know from experience because my brother has a really similar disability to this dude. I think that the mother is great but there’s no way that she doesn’t have moments of frustration lol
@@omni8568 Yes anyone would but she doesn't stop doing it she cares alot about him she is a great mom
because doing your homework or not is your choice. that poor boy cant control his condition, dude.
His parents are by far some of the best parents. Although he does have a disability, his parents don’t let that define him and they ensure he lives life to the fullest.
All parents are best every parents care for their children
What’s your snap
Db 365 why
Robi Borah not all I'm afraid... not all
Emma You are gorgeous..Seize the day..thank you
So much love in the family!
He’s got the best people including the nurse/aid whom helps keep him occupied and also doing for Davey throughout…
Y’all are grEAAT!
He’s one of a kind.
Much love to y’all!
💜
Damn I didn’t expect to cry 😢. That’s a beautiful boy with some wonder parents .
when i was in the hospital the guy next to me had the same thing as davey. he was one of the funniest, kindest kids i have ever met yet he couldn't. i will never forget him
ella rosenberg he died?
Omg
@@kron3406 no, it's just she/he might never meet him ever again bc it's hard to find the same person again
Couldn’t what?
ella rosenberg did he bite you?
God that kid is so cute. I just want to protect him. He looks so happy with his loving family. :)
Oh my god, thank you! I'll get right on it!
Wow
What? xD
calling him cute lol
I just meant he looked cute in a bubbly or happy kid way...
Nothing but huge respects that the parents can take care of a child with such conditions. Heartbreaking reality but very rewarding.
Unfortunately I bet most parents would not be able to do it.
He’s such a beautiful young boy and to see him suffer is awful. I’m so glad that his parents and family are making him feel joy and happiness like he needs. The elementary school are so great to him and It such a joy to watch
Im pretty sure this is the smartest mom and dad I've ever seen ...like ever !!!
Anykka_Estrella Tapia Howard they are blessed with finances to help their child. They are giving him a good life.
Jim26D yes im aware im just adding on to the fact..they have ways to keep their son safe and support him while giving him a god loving environment
But i kinda feel bad for the kid because he has to stay on wheel chair the whole day
@@furiousbreak5074 cause if he don't sit like that, he will hurt himself uncontrollably
Anykka_Estrella Tapia
My heart breaks for her I can only imagine her anxiety level (which is probably through the roof) worrying about her son and trying her hardest to prevent him from injuring himself. She is a strong woman.
This sort of thing is exactly why I chose to not have kids. If my child turned out to have a disorder like this, I couldn't deal.
@@thekittybeans the Problem is that many healthy kids arent getting Adopted so i cant even Imagin how rare a Adoption of a child with such an extreme disability is.... if you wanna have kids you probably need to be ok with taking care of a disabled child too 😶
Some of y’all are just irresponsible and heartless.
Either don’t have kids or if you do take care of them no matter what! They’re yours regardles. Smh
They’re not vegetables to look and chose a good ones and get rid of the “bad”
Shame on you
@@RandomGuy-ol4pv exactly, I hope the person from that comment is really young and so naive, cus thinking that if you have a child like that you'll look up for a good parent for them it's just ridiculous, don't have a child at all if you can't raise a child -.-
@@h.b9047 no we aren't, some people just dont see the point in them suffering. We start when you cant live it to the fullest.
I love how he can atleast still talk and he’s so sweet when they talk to each other ❤ I feel like he’s really trying his best 😊
It’s so sweet how their parents are doing this for him!
2:43 BUT... SUCH A CUTIE ಥ╭╮ಥ
Ikr(༎ຶ ෴ ༎ຶ)
He do be lookin like a girl tho
@CS_ Icey YT
Okay??
┭┮﹏┭┮
ok,people with illnesses are supposed to look ugly or something?
i hope they find a cure. just imagine him as an adult when nobody can stop him from hurting himself
Unfortunately they will never find one because it’s neurological, same thing was said by scientists who said they were going to ‘cure autism’...
@@zealwarriorgaming5315 the only thing now we can hope for is a Miracle...
@@merbeeduck9256, there won’t be a miracle for a cure, the best the parents can do is make the kids life as comfortable as possible.
I am a medical student, so sad to after watched this video😭, hope I could find drugs to cure people w/ Lesh Nyhan Syndrome / Purin metabolism abnormalities, soon. Hopefully.
bold of you to assume he'll even grow to an adult
Wow. All the measures she has to go thru to help her child. No measure on a mother’s love❤️ he’s a beautiful boy. God Bless Them🙏🏽 and his caretaker is AMAZING!
Yes 😇✝
God bless you. I just spent the last two-and-a-half years taking care of my mom and dad and I'm exhausted. You do this all day everyday. I prayed for strength for you and your family
He has the most beautiful smile. I’m glad I clicked on this video.
Angelina Baliton I'm not
Bored
eggrolls your opinion wasn’t necessary
Yeah. He really does. His smile made me watch this vid
Your just saying this because you feel bad for him
Omg what a lucky kid to have been born into a family with so much love, compassion and support. So many parents would just put him in a group home. Davey and his family are truly a inspiration
I agree
What a dedicated mom
Yeah men , i wish I had that mom!
@@cactucilio2096 create your own
A-DUB Amir create is own mom???
@@crunchydash8962 lol no I mean create his own loving family...
I misread his message. I thought he alluded to having a loving family
These parents (and siblings) deserve an award!!! They know they'll have limited time with Davey, and thus do their utmost to not only care for him, keep him from harming himself or others, but also to give him as much joy as possible!
The caretaker and teacher as well! Taking care of a disabled child and involving them in activities isn't easy. Qnd yet, they are willing to go through the effort!
I've watched quite a few of these videos in the past few days, but this one actually made me cry. It is both heartbreaking and wholesome at the same time! I wish Davey and his family & friends the best!!!
what an awesome set of parents. I have a high needs kiddo too, feeding tube etc, but just the level that mom goes to sew for her little boy's needs is so touching. What a hard disorder to live with.
He is so handsome and sweet. I hope that he will live a long and happy life.
He died. Probably of organ failure. Cerebral palsy affects how the brain works and it probably had a sort of biological glitch and stopped powering an essential organ or two.
HoustinToxic good I’m glad no one should live like that
@Rocker Baby yeah it was plus people with this syndrome only boys can be born with usually die early
@@nnekapat6889 girls are born with it to
Mushroom King123457890 what is wrong with you? Don’t say that, it makes you look like a terrible person ☹️
Seeing him smile makes me cry...
He's a very strong, handsome kid!
I agree
😊
@이미래 Same(っ˘̩╭╮˘̩)っ
Handsome - I’m sorry what!??
@@sananuha8069 I mean as in cute...
He is very cute looking:-D
I mean who wouldn't love him!♥♥
(And not in that type of way idiot)
It must be tough to have a child with such a rare disease, this just shows how much his parents love him
This is one of the most touching videos I have seen. As a mother of a child with a disability, I felt when she talked about images of sad disabled kids. The enviroment that this entire family, including those unrelated family and friends, has created for him is God and true love in action.
"I first thought he might die at a young age, so I bought a big camera because I wanted the memories...in case he did pass away early."
This mom is stronger than I could ever be. Bless her, her son, and her family. I wish them happiness and the best. They deserve it.
Bob Sponge Do you have any proof?
@@iceteanightcore2755 yeah his grave
he's got a beautiful face and smile he does not deserve this.
And I dont mean that if he's "ugly" then he deserve this. Y'all are thinking that, not me.
No one deserves it
Kimberly evi well apparently she's not a guy
Would someone with an unattractive face deserve this more? I don't think so.
dan Halo did I say anything like that? I see you're one of those who always finds fault in everything. Just stating the obvious, im not blind.
He really doesn't deserve it no one does through but he really doesn't deserve it
That family, care giver, and school community around him are truly amazing. God bless their hearts.
He has such wonderful understanding parents and siblings and they are there for him 24/7. He's knows how much he is loved.
Wow, that's sad. So many nannies left because they couldn't handle his disabilities. Cynthia is an angel!!!
The Cinema Cynic takes a special persoon to work with dd.
"His friends are good human beings, with a good heart"
Ehh they are ok
@@jack_marston768 what the
These people/parents are heroes everyday. I’m so happy that he is playing with other kids and everyone is happy.
The fact the mum makes the braces herself is amazing.
He's surrounded by nice people
・--・ amalia not me tho
OMG i never thought I'd see a carat here, hi!
What a caring mother
I know right
Beerus - Sama
Is that sarcasm?
Emily Dalton no😑😑
Emily Dalton
Why do you even ask such a hurtful question?! What makes you think that this is one of those sarcastic remarks? Maybe you're not aware what sarcasm is.
@@JuditaHoffman. hey, relax, your going ham on everyone
I am in tears seeing how kind everyone is to him esp. the mum and family.
It's so beautiful.
this is so heart warming! may these family continue to be blessed! They are all selfless & very loving not only towards david but to themselves! 🥺
The dedication is unreal
It's not cerebral palsy but it is similar. The self-harm is a lot less like in depression, and alot more like in tourettes. (Though note he doesn't have either, these are comparisons)
An example of self-harm in depressions would be:
(feeling utterly empty and needing to feel some pain to feel alive) or etc.
In tourettes it might be:
(Trying to stay calm and not move, but a *pressure* keeps building until they must let it out, and they hit their arm against something or yell obscenities, or any other thing specific to each person.) Note that I don't know anyone with tourettes personally so this could be incorrect.
For Lesch Nyhan, in Davey's words:
("It's like my brain sends a message, but it gets lost on the way and my body does something else.") It also seems similar to hiccups, in that you can still talk and be normal, but when the hiccup comes, it overpowers your usual control of your lungs and muscles involved.
(Edit: fixed spelling)
Your comment fit with your profile pic.
@Eagles Extra Rare Footage r/woosh
Your 1k like
Anais you have my sisters name
I like how everybody at school understands him and he’s just a normal kid and btw thank u to the parents and the family for their hard work they’ve been to all these years
Ur a cute kitty
@@clickhereidareyou5950 they look like a sweet kitty
.
He is a VERY VERY special and unique and FRAGILE little boy
His parents have the most courageous heart 💖 what I like about this channel is that it teaches me on how to love myself even more. I might not be perfect but these person with thousands kind of disabilities, making me doubt myself why I hate my life when they are the ones with deficiency but still can be grateful with their lives. I may suffer mentally, but they suffered from both physically and mentally and that's not easy.
No one is talking about how INTELLIGENT Davey is!!! He answered every question asked ❣️& his smile/ energy is so beautiful. He's a special gift from god, chosen for this family 🙏🏼❣️ I hope he lives a long happy life
My sister has the same thing but she left us at the age of 12 and I miss her so much and I would do everything to get my funny,smiling,happy sister back
Brianna Sowden I’m sorry for your loss...
I’m sorry for your loss 😪
R.I.P I'm so sorry ☹️
Oof
I'm so sorry R.I.P I'm crying bcs of your comment
Omg i dont know why I'm watching this makes me cry his parents are great
Brianda G he's just emo
Brianda G yeah :)
DankTart stop kink shaming him😂😂
@@ifuhereuprollymad5938 emo is not a kink
N_H he likes pain thats a kink
i hope he lives his best life. such a special child
This is an extraordinary family, a super mom and the level of care given to this child is just incredible ❤❤❤bless you angels 👼🏼