Children bring out the good that's already inside of you. There are too many parents in the world who abuse their children. Nothing good comes out of them.
PLEASE LIKE THIS COMMENT SO THAT COLIN CAN SEE THIS: Someone needs to tell Colin about Spellers Therapy! Although people can be non-speaking that doesn't always mean they are non-verbal! Please look up The Spellers Therapy Documentary! @SpellersFreedomFoundation
that part where he called it "outbreaks of laughter" and then said how they generally refer to it as "inappropriate outbreaks of laughter" but he doesnt think there is such a thing as inappropriate outbreaks of laughter when it comes from a genuine place and lacks malice was beautiful
I've spent a few months hanging out with a dude with Angleman's Syndrome when I was younger. The girl I was dating helped take care of him. Totally changed how I viewed humanity. He was like, It was like his emotions were plugged into the power of the universe. He felt EVERYTHING. Saw EVERYTHING. Heard, smelled. EVERYTHING. He ignored me at first. Until I had an argument with my mom before going to meet the both of them at the park one day. Dude saw me walking up. He was sitting on a blanket. He pounded the ground next to him and made sounds like he wanted me to sit there. So I sat down and he just grabbed ahold of me and held me, stroked my hair and pulled me into his chest. Then he gave me his favorite pen. He knew I was hurt even though I didn't even realize I was showing it. I was trying not to but he knew somehow and wanted me to be ok.
For a notoriously private person, I give kudos to Colin for speaking out about this very personal issue. As a grandparent of a child diagnosed with Rett's Syndrome I totally feel his comment about getting the correct diagnosis, it really means everything.
Agreed, people think of the children--and that's wonderful. But children grow up, and some of those grown ups will need care the rest of their lives. And people don't think of them as often.
Tessherbert - so sorry to hear about all the annxiety and stress you have which robs you of your precious sleep. You sound like an amazing & loving mum to your beautiful kids. Hope you find a way to help alleviate your worries for the future. Sending you all loving thoughts and strength. Wish there was more I could do to support you. Huge hugs and Hod bless xxx 😘
@JudithBisson my youngest son, was enrolled in a ton of programs at our local Children's Hospital. They knew something was wrong, but didn't have a diagnosis. Then, the pencil pushers demanded to be given a diagnosis - or else they would deny his enrollment. 10's of thousands of dollars later - in DNA tests and scans, etc. His doctors told the higher ups, "HERE, here is his diagnosis" SO then he was able to continue with his therapies and clinics etc. Sometimes, getting a diagnosis isn't always about peace of mind, it can also be about a care plan and getting the appropriate help. I THANK God we live I Canada. His medical bills probably are over $2 MILLION, easy.
Colin is laying out every single massive problem facing families with disabled children. It's rare that people with influence speak about it so openly and without holding back. I hope he succeeds on this mission
My bf works at an assisted living home for people who have physical and mental disabilities... the number of children there from NFL and NBA players is mind-blowing. I am not too huge into sports but I cannot really recall a time where they have spoken about having disabled kids.
@@l.plantagenetI doubt there is a higher rate of disability among athletes. More likely, it is an expensive assisted living facility, so the people there come from wealthy families.
@@shieh.4743 yes!!!!! Because unless insurance is able to pay for it, which WAY TOO OFTEN they are not, then parents are unable to have their child (minor or adult) in a nice facility. Because they are generally thousands of dollars a month. Most people are unable to afford it. I know from personal experience. (currently fighting tooth and nail for my son to get into a much needed facility.... But insurance is denying)
I am disabled and still live at home at 27 because I'm dependent on my parents' care. I'd be nothing without them and it's scary to think about what will happen to me once they're gone. What Colin is doing is so meaningful.
These are conversations you can have with them. Don't be afraid to discuss the inevitable with each other. I think it's the best you can give each other to have a plan. It's love that'll be shown even if they are not physically around. That's what I told my parents.
As the 83 year old Mom who has cared for my wonderful son with many challenges for 60 years, my simple wish has always been to outlive him by 30 seconds. That's all I need to be finally happy in this life.
I don't know if to be happy or sad for your wish either way it touches my heart, happy for you that you have got this far god bless ❤️ love to you and your son ❤️
Yeah that is so true and the fact that he tells it from such a down to earth angle. He's not claiming to be perfect or have the perfect family. He seems like such an approachable nice guy
Nurse here, 40 years in clinical. I am astonished at the level of dedication this gentleman must have had to become THIS skilled at explaining his precious boy's journey with Angelman syndrome. He understands this condition better than most general practioners I know. Collins ease with technical medical jargon tells me he's told this story many, many times. It's clear his son could have no better advocate and that is matched equally with his phenomenal 'Dad' skills. Well done for having the courage to tell this story so well, and reaching out to help others.
That was my thought throughout this documentary. It’s so important to advocate in the manner he shows, and I hope that someone will needed to hear/ see this will walk in his footsteps as best as their able to (as I know money is a big factor in Collins success to advocate in this way).
Previously working for a non-profit who provided care and a safe space for disabled individuals, I’m so pleased that syndromes that are not commonly discuss is not starting to become a serious topic of discussion ~ slowly but surely. Just like Autism! Every human needs and wants love. 🤍
I think you will find this to be more common of parents of children with special needs. I can rattle off medical terminology (specific to my child’s experience). Or at least I hope it to be the case.
That is a Christian teaching. Sadly Christianity has dropped and people have been taught love is a feeling, which easily leads to divorce once you ‘fall out of love’.
My daughter had Dandy Walker syndrome ,and microcephaly. She lived 10 yrs. I kept her alive so long. I was selfish and didn't want to let her go, i was holding her back but i never gave up on her until her body gave out. She died in my arms in 2017. I will never understand why she will born that way, but i loved her. GOD I LOVED HER. I MISS YOU MCKENZIE❤ 😢.
Every human life and soul is precious to God. Giving your all to provide and sustain the gift of life and the experience of it for your daughter was not selfish. May Our Lady keep you
My uncle was his limo driver for like 15 years. They’re close friends and went to my cousins wedding (uncles daughter). And he didn’t just show up and leave. He stayed, had dinner, danced, and made sure everyone got a picture. Dude is awesome
So irish of him ! i'm not exactly surprised he cares about employees. especially after 15 years!!! Whatever took your uncle, you had to be there and pay him respect and say Goodbye. unless he was untoward, same thing with anger.. You may have it backward and your wake :dinner, dance, No song ? are celtic ways..like Scandinavians, we believe anything is possible.
As an occupational therapist, I just want to say i feel Colin is doing a wonderful job as a parent and advocate for his son. This is what every child deserves!
"proud" ? Weird choice of words. A bit condescending, sweetheart, don't you think? who are you to Mr. Farrell, lol. This misplaced overfamiliarity nowadays, to connect oneself with a virtue in a theatrical way, has become an epidemic. And oh man, how I love sentences that start with "As a...." also a real plague, to wave competency. lol
I got a happy pang in my chest seeing how emotional that made him. My dad was not a good dad, he never cried a tear for me whether happy or sad. Seeing good dads react how they should in situations makes me happy for them/the child.
I wish my “dad” loved me like he loves his children. Seeing how proud he was describing James taking his first steps just makes my heart melt. ❤❤ He has a beautiful family. I like him as an actor.
People don’t realise that many parents of children with disabilities think daily of the end game. They often wonder who will be there for their child if and when they pass. It’s such a traumatising reality but creates a vacuum of profound love.
@@kktommYeah. Never heard a word about his son until acceptance of illnesses and conditions became an in your face, every day, mainstream thing. Where was he before this is what I'm wondering... just sayin
@@GameChanger597 He's been talking about him his whole life, I'm Irish, so maybe he's been more open about it here or maybe it just hasn't been on your radar. What an odd statement, you make it sound like its LA trendy now so he just popped into his sons life and is acting caring Dad all of a sudden, this is his life, not an acting role.
I'm in tears...My autistic son is 32 now and I'm his sole caregiver. Yes, I shave his face and all of those things "we take for granted that we are able to do" and yes, I do find it hard to take time for my own self-care. His father bailed, married someone else and had two more children...my biggest fear is what will become of him when I'm gone. I hate that I'm leaving it on his siblings (two; 34 and 27) someday. The thought of a group home keeps me awake at night. Colin is 100% correct that once they turn 21, it ends...my son is a beautiful soul, and he deserves so much more than that. I'm still trying to work it all out, it's all-consuming...but I will continue until my last breath to see that he's well loved, and well looked after. My heart goes out to all families and parents that live this, and especially to our special children. Well done, Colin, and your son is beautiful. May God bless you and him and all who aim to make this often cruel and dismissive world a better place for our angels.
There are some good care homes out there and some bad ones. I'm not sure what his functional level is, but there are a lot of community resources for adults with disabilities. I urge you to get that dialed in before your health starts to decline. Then you can be a part of his transition to a different lifestyle. It will go so much better for him. If you wait until you cannot take care of yourself, much less another person, then you are doubling the burden on your other kids. So get that sorted out so it isn't a source of distress for you. I worked with a woman who was in the same boat, but there were no other children and no husband either. She was very concerned about what was going to happen to her son. He wound up having a severe seizure and passing away. So all of that worry she had never materialized. She has since retired and adjusting to the reality of being alone. Positive thoughts and well wishes your way. It's going to be ok.
SLP here. I am so honored that my brother has asked me to be my nephew’s caregiver should he and his wife pass. I have always wondered if the Lord would want me to care for someone else’s child, should the need arise. Keep us in mind! If one of my students needed me, I’d be there!!
BIG RESPECT to Colin for his wanting to not only help his own child of special needs, but for his wanting to help other families in the same situation. God bless him for that...
@@TheRealCHIMShady Yes and no, there are still cruel and careless people in societies with high trust, who may often be enabled by an environment that fosters the benefit of the doubt regarding others. On the whole, a high trust society leads to generally happier and more caring people, though it may result in extra leeway and unearned forgiveness for those who wish to do ill. There are many hidden dangers of societies composed of trusting people, especially as conditions evolve over time. A people who are disarmed and welcoming, trusting of media, and open to the influence of public speakers makes for a ripe, low hanging fruit to be plucked by sociopathic leaders as well. Care and compassion for other people, and other lifeforms around a person, is not innate to human existence.
@@TheRealCHIMShadyhumans are humans…. There are genuinely kind and generous people in all areas of this world and there and also selfish, evil people all over the world. Some people are naturally more aware and motivated to help others. I wish more people were this kind
@@TheRealCHIMShadykk😮oooookl o plpppopk L lol ill lll pool lol l ill il lolll I’ll m ok lllll l l lol mk ill lol kklll o l lol l lol o o lllllllll l l lol l😊p pop
Yeah - I was totally able bodied but injury from accident. Thfn got really sick recently abd I’m prettt disabled hoping I can regain but realizing how the world is not set up for me at all is scary.
The stupid thing is you see people getting help and support from their parents and carers but Colin said about what happens when he or his wife goes. That’s the bit you don’t think about and so totally agree with you.
Prime example of how media should be used, to be inclusive, for a good cause and to bridge the gap between humans without segregation. Well done colin well done Hey guys thanks for all the likes, my heart is grateful so many of us see eye to eye Also mom I'm famous
I was blessed to work with this family over a decade and a half ago. I am so glad that James is grown and living life. God bless you, James. You got this, man.
I don't think you should be breaking patient confidentiality in that way. What his Dad chooses to share is one thing, what medical and social service workers can and should share is totally different. Is this Rea worth your 10 seconds of fame by association in the TH-cam comments section??
@@LMCEK I am legitimately asking, how is it this comment breaking patient confidentiality? All she said is she worked for them. Didn't disclose any information pertaining to the patient, nothing at all specific. I'm just curious.
It's true, my friend was an alcoholic, black out drunk, middle of the day, sitting downtown with a bottle etc. Then she had her daughter and she's completely clean living, all health food, makes all her own food, lives at home full time to take care of her daughter, just changed her life
At least that's what he is presenting as, don't be a sheep and believe everything on the internet. He is an actor who probably just read his lines here.
I had a boy with Angelman Syndrome when I was a teacher in Dublin.Every time he sees me, he would laugh and point at me, and just get to me as fast as possible! ❤
I had no idea Colin Farrell was such a model dad. Hearing him contemplate about not being there for the tail end of James' life made me tear up. A lot of people talk about building a future for their kids, Colin actually did that by making his foundation. The guy made sure that James' and other people like him never have to be alone. What a truly admirable dad.
It was about 2004 and Colin was in Cape Town for a movie. I was his typing tutor on an old Underwood typewriter. Colin was so proud of James and he showed me some pictures of his beautiful baby boy (I think James was about 7 months old then). Colin's eyes would just light up and sparkle when he spoke about his son. What a wonderful and devoted father.
- They call it "inappropriate outbreaks of laughter", but I don't know if there is such a thing as "inappropriate outbreaks of laughter" if it comes from a sincere place and it lacks malice. I've just, obviously, qualified it greatly so maybe there is. - The guy is so well spoken, I never knew this.
The facts that he called Paul Newman beautiful, and that he wants to be sure his son can garden as he ages -- these show an emotional depth & thoughtful kindness I imagine rare in 'Hollywood' types!
@@nataliaalfonso2662 So true. My son has epilepsy and he has the granmal seizures(tonic clonic),staring seizures(absence),and when he was younger he had the laughing seizures which I believe are called glastic but can't remember. He would just randomly burst out laughing and EEG determined it was seizure activity.
My son is now 38. We are in our sixties. Life is hard. All any parent wants is to see their kids well and happy. We will never get the ‘well’ part and trying to get equipment for my son is so expensive. His is quadriplegic and the special wheelchairs cost more than my car! They wear out every 7 years or so because he’s in it 17 hours a day. We found that after 16, the charities and services just aren’t interested anymore when you haven’t got a ‘cute kid’ Life is hard. Thank you for trying to help over 16,s disabled people. ❤
That is tough! So sorry to hear that it is so burdensome for something that could be solved. Lots of love from Denmark ❤ May God provide the help you need
My son is autistic couldn’t speak , my husband and I got with speech, occupational and physical therapy to help him. At 6 years old he started talking saying two word sentences and now graduated from high school main streamed with a 3.8 gpa . We are so proud. My heart goes out to you Colin.
Great respect for you sir. My son passed away in 2021 and he was 13yrs, he was living cerebral palsy. I'm a better person because of him, miss every moment with him. Strength to you Mr Farrell .
Then you know that managing the needs of an adult with this level of disability usually requires a strong back and accessibility. Which doesn't always exist.
He's my old neighbour. Super normal guy. Had a rough few years like us all. Love seeing him so happy! I can't believe how much James has grown. Colin is one of the good ones. ❤
He seems like a great guy. It's difficult to remain down to earth with the temptations surrounding his profession. A good looking guy like him will have no problem finding roles in the industry. He's obviously breaking in at an older age than most at the age of 34-I'd guess-he's got at least a good 25 to 30 years to make it big and become an A-lister. That's going to help his children more than he ever thought he'd be able to when he had them in high school.
My son has special needs. He was diagnosed at the age of 2 years old. He will be 12 years old this year and I’ve kept myself closed off to communities that are available for comfort, support and anything else that is available. My son is the love of my life, he is the best thing that has ever happened to me yet I feel like I’ve kept my feelings locked inside for 12 years because I have to be “strong”. He receives the connection and the support he needs yet I haven’t. It’s as if I’ve been wearing a superhero mask this entire time. I never wanted anyone to feel badly for me or say “I’m so sorry” which I’ve heard regardless due to uneducated people in society. I also have the fear of leaving this earth and my son being alone. Thanks to this video I now see trying to be “strong” isn’t doing myself or my son any justice and will join a community who can support me. Thank you so much for making this video, from the bottom of my heart thank you.❤
I´m Mexican and have a daughter with special needs. She is 53 and listening to Colin Farrell I felt that someone is living a life like mine. His words were like listening my own words and feelings. Thank you Colin for being there with your voice for people like us.
@@fairchild1737 Please stop spreading conspiracy theories. Angelman has existed before vaccines. Also really horrible of you to speak that way of your own granddaughter.
I did too! I’m still waiting for my son’s first word. I dream abut how it will feel to hear him say something to me. I cry even imagining it. Seeing it felt so deep…
@sammesmiles ive had the honor of being present when kids have taken their first steps. Collin Ferrall is a really, really attentive, really good dad, parent! I hope he's successful. With his hope for more intervention for people over 21! It's needed everywhere!
You can see how much he cares, not only for his own child, but also for people dealing with the same situation. Still, the unconditional love of a parent... it's always amazing to see.
Colin hits the nail on the head when it comes to a parent’s biggest fear: that we won’t be there to love and protect our disabled children when we’re gone. We need society to care and to show compassion and provide support for our most precious beings. I worry too what will happen to my autistic son when I’m gone. Thank you Colin for sharing your beautiful son with us.
My goodness. I can’t even imagine. I have a mental illness that makes me extremely dependable on my pet for emotion regulation. Recently I thought to myself “at some point I will need to stop having animals because I refuse to leave them to a world where anything can happen to them if I cannot watch over them”. And the mere thought of that was too much to bear. Switch that pet for a child with a disability and I can’t even fathom the fear parents must feel. ❤
My daughter has Down Syndrome & was born healthy & strong. When she was 21mos old, she got meningitis due to an immunodeficiency we didn’t know about at the time. I took her to the ER on the 2nd day, & even with quick care, she still lost her hearing & suffered from brain damage & has many sensory issues. That was way more difficult to deal with than her having DS. I feel like I’m still grieving 3yrs later. But she is a fighter & the cutest kid you’ve ever met & we’re getting thru it. Thank you, Colin, for sharing your story & starting your foundation. It means so much to us, special parents. ❤
I love the fact that he spoke about James’ team and the fact that he’s crying about his first steps years later. As a teacher of students with disabilities, those milestones are HUGE. I’m so happy he’s doing this!
Thank you for making a difference in the lives of those that need it most! My son had the most amazing teacher when he was in elementary and she stayed active in his life all the way through graduation day. He’s 28 and we still text back and forth a few times each year. You are amazing and the work you do is so inspiring and special. Thank you for being a hero!! 🙏👏🫶❤
My son was tested for Angelman Syndrome when we were trying to figure out what he had. It took us 10 years to get a diagnosis of Dravet Syndrome, a severe genetic seizure disorder. He is now 26 and I have advocated for him all his life. I have always said it is so sad that once he turned 21, he no longer qualified for PT, OT, and speech. I am glad Colin is doing this and speaking out about this. We continue to fight for our son's needs. We just had to hire an attorney to fight for his nursing hours in the state of Colorado when they were cut in half. People making decisions at the state and federal level have no idea what we deal with on a daily basis!
Tbh I never felt strongly for Colin Farrell one way or another, but hearing he's the father of a child with such a condition and seeing how gracefully he's dealt with it is extremely endearing
Honestly, the majority of what I remembered of him was that he was a bit of a playboy back in the day, and I still had that image if him in my mind. Always thought he was an amazing actor, but I had a bit of a distaste for him as a person for all of these years. And yet I've clearly misjudged him this entire time. It sounds like he's grown a lot, especially since becoming a father and getting sober. Seeing him become emotional talking about his children and how much he loves and respects them was incredibly endearing. What a wonderful, caring father and what an amazing advocate. Wishing him every happiness in life.
I am in tears. As the mother of a disabled child I truly felt this in my soul. The fear of not being there as my daughter ages is what I loose sleep over. I didn't think i could love Colin more than I did, but seeing this side of him is so refreshing. Sometimes it feels so isolating being a parent of a disabled child. Thank you for sharing your beautiful family, and reminding us we aren't alone in our struggles.
I met Colin Farrell in my obstetrician's office when I was 13 weeks pregnant with my son James, who was born, about a month before his son James. My son was diagnosed with high-functioning autism at age 3. Little did we know that day in the waiting room that we would both have sons named James and also with a developmental disability. My son James has a sister and they are BFFs. James teaches her just as much as she teaches him. Like Colin's son, James is a beautiful boy, inside and out. I wouldn't change a thing about him. I believe these kids were given to us as gifts to help us on our journey in life, to love in completely new ways, and to see life through a completely unique lens. I am also just so grateful. I am the luckiest mom alive.
@@NikkiBornRight We actually rode the elevator up together at Cedar's Sinai and the elevator wreaked of alcohol. He was not with her at the time. I was so pregnant and the smell almost did me in! In the office he beelined to the water dispenser and downed like 10 cones of water! lol Then he sheepishly offered me one. He was super friendly and sweet. My partner came in and they chatted until they called me in to see dr. So, I never saw her but Colin was adorable, even super hungover! He has always been a celebrity crush of mine so it was quite a day for me!
As a parent of a child with Angelman Syndrome so happy that he is starting this foundation. When he told the story about his son's first steps it brought back that wonderful memory of my daughter's first steps. She's 26 now.
This was lovely to watch, and your same experience lovely to read. I teared up knowing where his heart was explaining his Son’s first steps. Blessings to your family. ❤
God bless you and your sweet strong daughter! This video made me bawl my eyes out. Parents of kids with challenges, and often the children themselves too, are among the most selfless and loving, wise and brave, most badass souls on this planet. You all and your children renew my faith in God and in the meaning of life 😘😘😘
I started crying before he did just at the thought and memories. Whenever I see walking babies in public I still marvel at their abilities! My child was a late walker like Colin’s.
@@sarahhummel4255 the grammar the OP used was informal; “LOVE that” was shorthand for “I LOVE that expression.” And then quoted the expression. It was understood to be about the son’s laughter.
My grandma cared for my disabled uncle for over 40 years. He had mental retardation, cerebral palsey, and autism, making him both non-verbal and eventually wheelchair bound. She gladly gave up her career and basically her entire life to care for him. It makes me so happy to see someone like Colin, who has a huge fan-base, use that following to give these people a voice of their own.
as a medical doctor who trained in neurosciences, Colin is doing a masterful job at communicating so many of the nuances regarding having a child with a neurological condition: he's articulating so well the social and relational support required not just the physical and financial support needed for each family and each person.
Not only is Colin Farrell a terrific actor, he is a terrific father and all around person. It's disgraceful that we can't take care of our most vulnerable adults.
Exactly, and he is not a bad guy. What it takes to be an actor in hollywood is that it takes the most vain and devoid of human decency, at least Colin was pushed to be a better man due to his son, and he manned up. This is not typical for humans, and never happens in the hollywood scene.
Well we could. I found out that my state spent 1 million dollars last year repainting highway signs to match.... as if it matters. That money could have been spent on these children's needs and to help their families.
“ I don’t think there is such a thing of inappropriate outbursts of laughter if it comes from a sincere place” Well said. This just makes me love Colin that much more.
New-found respect for Colin. Not because of his sons condition, but more because of his intellect and eloquence in finding the words to discuss it in such depth and accuracy. Brutally honest, yet he manages to avoid it being painted as a negative or indeed making himself out to be the hero dad. Life can be brutal, but it can also be beautiful. Great interview 👏👏👏
15:34 My 25 yr old son has nonverbal autism so this truly touched my heart. Collin’s description of a future life for James sounds like perfection to me 🙏🏻
Every full time single father I have known....that are totally devoted to their kids...were the bad boy rabble rousers other parents warned their kids about....I have known many and I am one. Maybe wild boys make loving protective fathers.
Don't be surprised men are capable of care, stop being so amused there are lots of fathers out there doing a great job and they can look like a lump of sh*t to look like a god.
Hi Colin. I am Ray, and I am a retired Pediatric Nurse. Your story so desperately needs to be told and heard! Thank you to your entire family for giving us this important lesson so beautifully presented. RM
Hi I’m really glad you mentioned the T shirt removal, I have carers that I am consistently asking to let him take it off and put it back on, they do it for a while then stop. It used to take me an hour to get him this far and yes we are now older (in our 70’s) with health problems. I depend on them to continue with this activity. It gives him the realisation that he Can, to some it’s not a big deal, to him it’s his future and how he feels about himself! Long road but has just finished his Masters in AI! We have the same thoughts at the future! That’s an amazing idea you have and best wishes to you and your wonderful family! Thank you, with this was in Australia for the others who need something to help with their progress! Muriel and Dean!
I have an older brother who is developmentally disabled due to being born breach in 1962 and oxygen being cut off to his brain. I was born 22 months after him and we are two peas in a pod. He has taught me to be patient, be silly, laugh uncontrollably, love unconditionally and all the other good qualities I have. I am so blessed to have him in my life.
My son, Jordan, has Angelman Syndrome. He is the light of my life. Thank you for being such a wonderful spokesperson for us. God bless you and you your family. 💙
@@fairchild1737. I have a great granddaughter with Angelman Syndrome. I do not believe vaccines are the cause. She was in the womb when the faulty gene came into being. She had not had vaccines in vitro.
I recall hearing a lot of negative things about Colin Ferrell's personal life in the past. This man has completely turned his life around. He's a great Dad. Not everyone would be there for their special needs child, especially if you have the money to pay someone to care for the child. Good story.
As a former paraprofessional, I deeply appreciate Colin and his family sharing this. The awareness around what happens when children with special needs become adults is a piece that needs so much more attention and I am thrilled to see it mentioned here. ❤
I’m hoping Colin can help make a change in our county. We need facilities/homes for these individuals when they age out of services or their caregivers pass away. There are so many people who need services
I don't understand it. The concept that the child will hit 21 and will suddenly not have any further need for the care support available. I feel so awful for the parents that receive services and then suddenly find themselves without them. Colin Farrell is an amazing man and I hope he's successful with his camp venture.
I have a 12 y.o. who will need lifelong care. My husband and I are preparing for one of us to quit our full time job when she's an adult since the daycare options are limited and expensive... And she can't be on her own. In addition to that we need to be stacking up money to support her life after us too. We have been saving since she was a baby but the prospect and the actual dollar value needed (esp after going part time) is incredibly daunting.
@@Westernkoalayou should be able to get some help for your child. I know it’s limited but depending on the state you should be able to get ssid assistance.
@@Westernkoala I think Colin Farell being European is more concerned than most, care is a given for us, the quality of it, not so much.. The sense of community, solidarity he wants to create (it takes a village to raise a kid) centered on people helping makes sense. I'm socialist, my president is "just centrist", but still, under him people like you get a part-time salary at long last instead of paying a nurse our house help, which they still pay, on occasions to live a little. By creating communities, one person can easily take care of four and share the burden and relax a bit. Nice project, especiallly in the light of lack of humanity in the USA.
ME too! Having an autistic grandson this just hit me so close to home. He was a preemie and he abd his Mom and 2 siblings lived with me for years. I worry for him to be an adult. What will happen when we are not here fir him? This is HUGE for SO very many families. Thank God for Colin and family for doing what he can to help us all.... ❤😊
@Mrs.Currie you laugh like an entitled loser who's never had a struggle. You aren't as important as you think you are. When other people relate to each other and you laugh at them for it, it shows how shallow you are. Congrats.
My daughter has "Septo optic dysplasia" and autism. She is 5 and I am a single father with full custody. My heart is broken, but hearing stories like yours, is sincerely a huge help and makes me feel so much better. I really do appreciate this more than you could know. Thank you
I believe Colin's love and contentment with and for his family are all we need in life. James' syndrome almost feels secondary in comparison to the rich inner lives of all the family. You and your daughter sound such a lovely and loving family also.❤
There are agencies out there, that employ great people to work with the disabled population. Community specialists, and home care providers. I hope you consider, and have great luck with services like that. I happen to work for one. And they are an excellent organization, that is funded by my state. Not every place has an organization like this however. And it takes a lot of work and deliberation to get that help. But it can be a boon to the parents of children and adult children, who are able to relieve a lot of the stress that comes with caring for someone with a disability.
His patience and love is so commendable. His love is obvious in his eyes. The tears he had just speaking of James' first steps. Wanting to know James' live expectancy and if he was in pain was a wonderful question to be in the thick of the diagnosis. Love this man even more. Respect always ❤️
As a school psychologist, I was so happy to see this and hear Colin talk about the end of special services at age 21 and how he wants to change that. It’s incredibly inspiring. I originally watched the video because I’m a huge fan of Colin as a movie star, but now I’m even more amazed by seeing this caring dad side of him.
I've taken time to see every interview that Colin has done. He's genuinely a good and decent man. I'm thankful that you had an opportunity to see and appreciate the quality man and father that he truly is! ❤
What an incredible gift Colin is giving to families and people living with Angelman's Syndrome. If only others with the financial means could do the same for all those in need. We live in a very messed up world...
My son is 8 years old non verbal & autistic but just started talking🤗His first speech therapist at 5 yrs said he’d never talk! NEVER say Never to children on a spectrum of disabilities!!! It’s not fair on these amazingly strong kiddos or us knowing parents🙏🏼❤️🙏🏼
They say money can't by happiness, but the fact that Colin has established a career with the financial stability that allows him to provide for his son through his full adult life, does indeed, provide happiness. Imagine managing such an ailment on a low-class wage.
This. It only makes me think of the fate people with similar disabilities must have when they aren't lucky enough to be born into financial stability. It's just depressing
Great that he’s recognising the uncertainty of the lives of young people with disabilities and is thinking of ways to support these people and their families with the foundation that he is talking about.
I'm not sure any wise adult describes his life as "happy". Happy is an emotion, so intrinsically empheral. Life is full of blessings and challenges. What Farrell's money has provided is help. Poor people have to find help in other ways, but it doesn't mean they don't find help. Community exists. And hard work is not the same as a life of unhappiness.
Im so glad to see this video. My older brother has Angelman's syndrome. The level of struggle growing up in a family trying to provide care with limited resources was astronomical. I hope that there are better support networks and resources that develop as a result of this video.
This guy must have had a spiritual awakening when he got sober because he has matured and grown into not only one of the most nuanced and professional actors working today, but one of the most well spoken and down to earth public figures around. Had no idea he had a son with this condition and the way he talks about him and other children with disorders so tenderly and with so much compassion is truly beautiful.
He used to get high on drugs before his mandatory visitations to his son to make the time go faster. He dreaded visiting him, he didn't do the bulk of raising. He did a lot of growing up, as a young man he was not coping with being a father never mind, one with a diagnosis. He's come a long way himself and he plays that down because he isn't proud of his past.
I definitely agree with you 💯 such a amazing positive post🙏💙🙏 I really made me cry 😢very inspirational to see the understanding and unconditional love💙🫶that he has for his son💙 It takes a lot of courage, patience and love💙 to talk about his feelings and personal experiences with her son that has been a blessing in his life 🫶I admire hem for trying to help others families that are going through same situation🙏 I only wish him well and I hope all his dreams come through soon to be fulfilled doing something special for him and others💙
As a Geneticist who works in a lab diagnosing genetic disorders such as Angelman syndrome, it's good to hear the family's side of the story. This was so heartwarming. ❤
He articulates so clearly the challenges and joys of parenting a child with developmental disabilities. It is wonderful to hear a father’s voice come through so powerfully!
He went from being a heart throb in the 90’s to someone who takes their parenting seriously. I have a whole new respect for him. Where are all these men?
Your dates are off by a bit, hun. His Hollywood rise and prime didn't start until the year 2000 or 2002+ aka just before the messy Lilo (Lindsay Lohan) + Paris Hilton + Britney era. Colin was even on LiLo's infamous sex list of former hook ups. Unless you mean he was already a (very young) heart throb in the UK 90s
"This is how the world gets better. One person has a personal experience they want to help others with. Beautiful." I guess we can all do some nice thing every day, no matter how small, no matter how we think insignificant we are on a grander scale. That would certainly make the world a better place.
....and other people turned and offered their hands too. It only works if we all care just a little. As a mum with a child with special needs I feel like a voice in the wilderness and am very greatful for the people who turn and help my son. This is such a beautiful interview and Colin has voiced a few things I didn't even have words for. Brava.
My daughter was born as a special needs child, and gradually became deaf and nearly blind from one eye. She is amazing. I always tell her she's a strong woman. She is with me on the weekends. She's 45 now. This brought tears to my eyes for Collin. I recognise the strength in parents and their dear children. I pray, I laugh, and I cry.
My youngest has additional needs and is functioning at baby age at nearly 5 years old. They are amazing aren’t they and how Colin describes his lovely son as magic is just spot on. You never knew how special your life could become until these beautiful humans come into it and as a parent it’s just an other worldly gift I feel ❤ your daughter sounds wonderful and so do you as her parent 😊
Olga, can we talk? Please send me a way to contact you. I have a child with special needs, and one of the things that keeps me up at night is what's going to happen when she's an adult, and I am no longer here to protect her.
This has been amazing for the Angelman community. Thank you so much to Colin Farrell for opening up about AS and James! My daughter Maddie has Angelman Syndrome, and the number of people that texted me after Colin Farrell opened up was amazing!
Colin Farrell is a great person with a big heart. It is a sign of strength when a man can express his emotions. When he mentioned Debra, I wept. She's my late wife. She died suddenly and unexpectedly. Debra was a kind and caring person. She worked as a nurse when she was only 18 helping the elderly. She meant the world to me. She changed me for the better. I cradled her in my arms until she took her last breath in the hospital. The doctor informed me that there was nothing further they could do. I still tried desperately to save her with CPR, but ultimately I gave her her last breath.
“Everyone you meet is fighting a battle you know nothing about. Be kind. Always.”
So very true
Robin Williams was fighting his own battle.
Always.
Yoru comment is the most sincere one here.
I wish more people were this open minded...
My son had Angelman Syndrome. He passed away at age 19 because of complications with the syndrome. I am just bawling watching this.
So sorry for your loss
So sorry, sending you gentle hugs 🙏
I bet he grounded and taught you and those around you so much.
So sorry for your loss but respect for commenting.
I’m so very sorry for your loss.x
This is a prime example of how children can bring out the best in parents.
So agree
Children bring out the good that's already inside of you. There are too many parents in the world who abuse their children. Nothing good comes out of them.
PLEASE LIKE THIS COMMENT SO THAT COLIN CAN SEE THIS: Someone needs to tell Colin about Spellers Therapy! Although people can be non-speaking that doesn't always mean they are non-verbal! Please look up The Spellers Therapy Documentary! @SpellersFreedomFoundation
Totally ❤
Or worst
that part where he called it "outbreaks of laughter" and then said how they generally refer to it as "inappropriate outbreaks of laughter" but he doesnt think there is such a thing as inappropriate outbreaks of laughter when it comes from a genuine place and lacks malice was beautiful
I agree!
Yes. That perspective is really refreshing.
It's funny I was thinking the very same thing. I found it so sweet.
Very articulate man ❤
Agreed! I was like just instantly reacting with the idea that no expression of joy should be considered inappropriate.
I've spent a few months hanging out with a dude with Angleman's Syndrome when I was younger. The girl I was dating helped take care of him. Totally changed how I viewed humanity. He was like, It was like his emotions were plugged into the power of the universe. He felt EVERYTHING. Saw EVERYTHING. Heard, smelled. EVERYTHING. He ignored me at first. Until I had an argument with my mom before going to meet the both of them at the park one day. Dude saw me walking up. He was sitting on a blanket. He pounded the ground next to him and made sounds like he wanted me to sit there. So I sat down and he just grabbed ahold of me and held me, stroked my hair and pulled me into his chest. Then he gave me his favorite pen. He knew I was hurt even though I didn't even realize I was showing it. I was trying not to but he knew somehow and wanted me to be ok.
thanks for sharing.This is so beautiful to read!
This brought a tear to my eye..
Thanks for sharing!!
That's beautiful man
What a beautiful story!!!
That’s a beautiful story, thank you for sharing ❤
I love the fact that Colin is talking about his personal life bc he wants to help disabled older adults find a secure future.
Agreed! I know the unsure future of my own two children with special needs haunts me to the point I don’t sleep at night anymore.
... And to give a "we can do it" to everyone involved with everyone who needs an extra hand
For a notoriously private person, I give kudos to Colin for speaking out about this very personal issue. As a grandparent of a child diagnosed with Rett's Syndrome I totally feel his comment about getting the correct diagnosis, it really means everything.
Agreed, people think of the children--and that's wonderful. But children grow up, and some of those grown ups will need care the rest of their lives. And people don't think of them as often.
Tessherbert - so sorry to hear about all the annxiety and stress you have which robs you of your precious sleep. You sound like an amazing & loving mum to your beautiful kids. Hope you find a way to help alleviate your worries for the future. Sending you all loving thoughts and strength. Wish there was more I could do to support you. Huge hugs and Hod bless xxx 😘
As a parent of a disabled child, getting a diagnosis is EVERYTHING. You finally feel like you're being heard and validated.
💯% truth. Ppl have no idea.
100% Cause the worry of what it could be is gone and you know what it is it is easier to approach it, Advocate for what they need.
100% anything afterwards can be dealt with, it’s the uncertainty that is the worse.
Absolutely... as a parent of a disabled child, I agree.
@JudithBisson my youngest son, was enrolled in a ton of programs at our local Children's Hospital. They knew something was wrong, but didn't have a diagnosis. Then, the pencil pushers demanded to be given a diagnosis - or else they would deny his enrollment. 10's of thousands of dollars later - in DNA tests and scans, etc. His doctors told the higher ups, "HERE, here is his diagnosis" SO then he was able to continue with his therapies and clinics etc. Sometimes, getting a diagnosis isn't always about peace of mind, it can also be about a care plan and getting the appropriate help. I THANK God we live I Canada. His medical bills probably are over $2 MILLION, easy.
This is what a real Father looks like. ❤
It’s how a real man behaves.
@@barbarjinx3802 True
I was thinking the same ❤
My dad could not have been less interested in his kids. This is heartwarming.💖
This is how a film star Father behaves.
Colin is laying out every single massive problem facing families with disabled children. It's rare that people with influence speak about it so openly and without holding back. I hope he succeeds on this mission
My bf works at an assisted living home for people who have physical and mental disabilities... the number of children there from NFL and NBA players is mind-blowing. I am not too huge into sports but I cannot really recall a time where they have spoken about having disabled kids.
@@krista8920that's really interesting. I wonder why so many athletes' children have those problems.
@@krista8920 I doubt that .
@@l.plantagenetI doubt there is a higher rate of disability among athletes. More likely, it is an expensive assisted living facility, so the people there come from wealthy families.
@@shieh.4743 yes!!!!! Because unless insurance is able to pay for it, which WAY TOO OFTEN they are not, then parents are unable to have their child (minor or adult) in a nice facility. Because they are generally thousands of dollars a month. Most people are unable to afford it. I know from personal experience. (currently fighting tooth and nail for my son to get into a much needed facility.... But insurance is denying)
I am disabled and still live at home at 27 because I'm dependent on my parents' care. I'd be nothing without them and it's scary to think about what will happen to me once they're gone. What Colin is doing is so meaningful.
These are conversations you can have with them. Don't be afraid to discuss the inevitable with each other. I think it's the best you can give each other to have a plan. It's love that'll be shown even if they are not physically around. That's what I told my parents.
❤❤❤
My prayers are with you all ❤✝️
❤❤❤
❤
As the 83 year old Mom who has cared for my wonderful son with many challenges for 60 years, my simple wish has always been to outlive him by 30 seconds. That's all I need to be finally happy in this life.
❤❤❤
I hope you get your wish sweetie x
God bless x
I don't know if to be happy or sad for your wish either way it touches my heart, happy for you that you have got this far god bless ❤️ love to you and your son ❤️
this just broke me!
This man is one of the best disability advocates I've ever seen. Everyone deserves to have someone like this in their corner.
Yeah that is so true and the fact that he tells it from such a down to earth angle. He's not claiming to be perfect or have the perfect family. He seems like such an approachable nice guy
Nurse here, 40 years in clinical. I am astonished at the level of dedication this gentleman must have had to become THIS skilled at explaining his precious boy's journey with Angelman syndrome. He understands this condition better than most general practioners I know. Collins ease with technical medical jargon tells me he's told this story many, many times. It's clear his son could have no better advocate and that is matched equally with his phenomenal 'Dad' skills. Well done for having the courage to tell this story so well, and reaching out to help others.
Couldn’t have said it better myself! Awesome Dad, Amazing Advocate, Excellent Actor 🍀
That was my thought throughout this documentary. It’s so important to advocate in the manner he shows, and I hope that someone will needed to hear/ see this will walk in his footsteps as best as their able to (as I know money is a big factor in Collins success to advocate in this way).
Previously working for a non-profit who provided care and a safe space for disabled individuals, I’m so pleased that syndromes that are not commonly discuss is not starting to become a serious topic of discussion ~ slowly but surely. Just like Autism! Every human needs and wants love. 🤍
❤❤❤
I think you will find this to be more common of parents of children with special needs. I can rattle off medical terminology (specific to my child’s experience). Or at least I hope it to be the case.
"Love" isn't just a feeling. "Love" is an ACTION word. These parents are beautiful examples.
💯
Bib
love is feeling and action
What a beautiful way to put it. ❤
That is a Christian teaching. Sadly Christianity has dropped and people have been taught love is a feeling, which easily leads to divorce once you ‘fall out of love’.
New level of respect for Colin Farrell here. What a wonderful dad, man, human. Truly.
Indeed! I never knew about his son, may God bless them both! 🙏
Same here!😊❤
You supported many families by speaking of your sons challenges. Thank you
Me too.
Me too. Incredibly moving.
My daughter had Dandy Walker syndrome ,and microcephaly. She lived 10 yrs. I kept her alive so long. I was selfish and didn't want to let her go, i was holding her back but i never gave up on her until her body gave out. She died in my arms in 2017. I will never understand why she will born that way, but i loved her. GOD I LOVED HER. I MISS YOU MCKENZIE❤ 😢.
I'm so sorry for your loss.
Mine is severely Autistic, with some speech.
Bless you and your family. Your baby was so lucky to have a mom LIKE YOU.
You were her Mother, you loved her, you weren't selfish. She had you. Internet Hug
Every human life and soul is precious to God. Giving your all to provide and sustain the gift of life and the experience of it for your daughter was not selfish. May Our Lady keep you
My daughter has both of these conditions. God bless you ❤️
My uncle was his limo driver for like 15 years. They’re close friends and went to my cousins wedding (uncles daughter). And he didn’t just show up and leave. He stayed, had dinner, danced, and made sure everyone got a picture. Dude is awesome
So irish of him ! i'm not exactly surprised he cares about employees. especially after 15 years!!!
Whatever took your uncle, you had to be there and pay him respect and say Goodbye. unless he was untoward, same thing with anger..
You may have it backward and your wake :dinner, dance, No song ? are celtic ways..like Scandinavians, we believe anything is possible.
Cool story!! I've always loved him since he first came on the scene.
@@auntisthenes2754yes weddings and funerals are easily confused 😂
@@darakinsey7775 I saw him "good" but common until he shone in "In Bruges" with Gleeson.
your uncle sounds famous
As an occupational therapist, I just want to say i feel Colin is doing a wonderful job as a parent and advocate for his son. This is what every child deserves!
nice to see other OTs :)
OT here as well!
"proud" ? Weird choice of words. A bit condescending, sweetheart, don't you think? who are you to Mr. Farrell, lol. This misplaced overfamiliarity nowadays, to connect oneself with a virtue in a theatrical way, has become an epidemic.
And oh man, how I love sentences that start with "As a...." also a real plague, to wave competency. lol
I'm an OT as well.
@@JoE_Songs you're weird
Hearing him describe the moment he first saw his son walk for the first time was beautiful
I'm not crying, you're crying 😢
I got a happy pang in my chest seeing how emotional that made him. My dad was not a good dad, he never cried a tear for me whether happy or sad. Seeing good dads react how they should in situations makes me happy for them/the child.
I wish my “dad” loved me like he loves his children. Seeing how proud he was describing James taking his first steps just makes my heart melt. ❤❤ He has a beautiful family. I like him as an actor.
I know the cure it's a psychedelic drug called dmt... Colin if ur reading this. Let's take the trip all together I'll be your guide.
Every little step forward for a child with a physical and or learning disability is so valued.
People don’t realise that many parents of children with disabilities think daily of the end game. They often wonder who will be there for their child if and when they pass. It’s such a traumatising reality but creates a vacuum of profound love.
No one deserves more RESPECT than parents devoting their lives to their children with disabilities. RESPECT.
And making a film about it of course.
@@kktommtalking about your experience in an interview isnt “making a movie” its not exploitive, its to bring awareness
@@kktommYeah. Never heard a word about his son until acceptance of illnesses and conditions became an in your face, every day, mainstream thing. Where was he before this is what I'm wondering... just sayin
@@kktomm never heard about AWARENESS? I guess you're lucky you're not touched by anything like this
@@GameChanger597 He's been talking about him his whole life, I'm Irish, so maybe he's been more open about it here or maybe it just hasn't been on your radar. What an odd statement, you make it sound like its LA trendy now so he just popped into his sons life and is acting caring Dad all of a sudden, this is his life, not an acting role.
I'm in tears...My autistic son is 32 now and I'm his sole caregiver. Yes, I shave his face and all of those things "we take for granted that we are able to do" and yes, I do find it hard to take time for my own self-care. His father bailed, married someone else and had two more children...my biggest fear is what will become of him when I'm gone. I hate that I'm leaving it on his siblings (two; 34 and 27) someday. The thought of a group home keeps me awake at night. Colin is 100% correct that once they turn 21, it ends...my son is a beautiful soul, and he deserves so much more than that. I'm still trying to work it all out, it's all-consuming...but I will continue until my last breath to see that he's well loved, and well looked after. My heart goes out to all families and parents that live this, and especially to our special children. Well done, Colin, and your son is beautiful. May God bless you and him and all who aim to make this often cruel and dismissive world a better place for our angels.
😢 I'm in the same boat. God bless
👏👏👏👏👏
There are some good care homes out there and some bad ones. I'm not sure what his functional level is, but there are a lot of community resources for adults with disabilities. I urge you to get that dialed in before your health starts to decline. Then you can be a part of his transition to a different lifestyle. It will go so much better for him. If you wait until you cannot take care of yourself, much less another person, then you are doubling the burden on your other kids. So get that sorted out so it isn't a source of distress for you. I worked with a woman who was in the same boat, but there were no other children and no husband either. She was very concerned about what was going to happen to her son. He wound up having a severe seizure and passing away. So all of that worry she had never materialized. She has since retired and adjusting to the reality of being alone. Positive thoughts and well wishes your way. It's going to be ok.
I don’t even believe in god but if there is one may he bless you. You are a hero
SLP here. I am so honored that my brother has asked me to be my nephew’s caregiver should he and his wife pass. I have always wondered if the Lord would want me to care for someone else’s child, should the need arise. Keep us in mind! If one of my students needed me, I’d be there!!
BIG RESPECT to Colin for his wanting to not only help his own child of special needs, but for his wanting to help other families in the same situation. God bless him for that...
Shows how cruel the world generally is, that this behaviour is not seen as normal but special. Everyone should be this nice
@@howardmonument6093 Not the world, low trust societies.
@@TheRealCHIMShady Yes and no, there are still cruel and careless people in societies with high trust, who may often be enabled by an environment that fosters the benefit of the doubt regarding others. On the whole, a high trust society leads to generally happier and more caring people, though it may result in extra leeway and unearned forgiveness for those who wish to do ill. There are many hidden dangers of societies composed of trusting people, especially as conditions evolve over time. A people who are disarmed and welcoming, trusting of media, and open to the influence of public speakers makes for a ripe, low hanging fruit to be plucked by sociopathic leaders as well. Care and compassion for other people, and other lifeforms around a person, is not innate to human existence.
@@TheRealCHIMShadyhumans are humans…. There are genuinely kind and generous people in all areas of this world and there and also selfish, evil people all over the world. Some people are naturally more aware and motivated to help others. I wish more people were this kind
@@TheRealCHIMShadykk😮oooookl o plpppopk
L lol ill lll pool lol l ill il lolll I’ll m ok lllll l l lol mk ill lol kklll o l lol l lol o o lllllllll l l lol l😊p pop
MAD RESPECT for this loving father!
“He’s just magic, my boys are just magic”. The best statement!
Yeah that got me good 😭👍👍
Thank you to Colin Farrell for talking about the lack of support people with disabilities.
Absolutely
Yeah - I was totally able bodied but injury from accident. Thfn got really sick recently abd I’m prettt disabled hoping I can regain but realizing how the world is not set up for me at all is scary.
E olha que ele mora em um país chamado primeiro mundo, imaginem um deficiente que mora em um país que não tem essa nomenclatura????
The stupid thing is you see people getting help and support from their parents and carers but Colin said about what happens when he or his wife goes. That’s the bit you don’t think about and so totally agree with you.
😘
Prime example of how media should be used, to be inclusive, for a good cause and to bridge the gap between humans without segregation.
Well done colin well done
Hey guys thanks for all the likes, my heart is grateful so many of us see eye to eye
Also mom I'm famous
Agreed
Perfectly said & applicable to so many
Yes, I love this side of him and make him so relatable
I was blessed to work with this family over a decade and a half ago. I am so glad that James is grown and living life. God bless you, James. You got this, man.
I don't think you should be breaking patient confidentiality in that way. What his Dad chooses to share is one thing, what medical and social service workers can and should share is totally different. Is this Rea worth your 10 seconds of fame by association in the TH-cam comments section??
@@LMCEKvery true.
@@LMCEK I am legitimately asking, how is it this comment breaking patient confidentiality? All she said is she worked for them. Didn't disclose any information pertaining to the patient, nothing at all specific. I'm just curious.
@@LMCEK - Thw poster revealed no personal information.
@@LMCEKwas this comment really worth your "outrage". I'm sick of your type and so is everyone else.
This man was a partier. Then he had children. And he turned his life around to be present for his kids. He's a good man.
Incredibly good ❤
He was a heavy drug taker
It's true, my friend was an alcoholic, black out drunk, middle of the day, sitting downtown with a bottle etc. Then she had her daughter and she's completely clean living, all health food, makes all her own food, lives at home full time to take care of her daughter, just changed her life
Colin looks like he has 6 caterpillars attached to his face.
At least that's what he is presenting as, don't be a sheep and believe everything on the internet. He is an actor who probably just read his lines here.
I had a boy with Angelman Syndrome when I was a teacher in Dublin.Every time he sees me, he would laugh and point at me, and just get to me as fast as possible! ❤
SO FULL OF LOVE & LIGHT!
I taught a girl who liked to go really fast in her wheelchair, I would run down the hallway with her and she would laugh so hard 😂❤
You were the chosen one❤❤❤
This illness also exists in Africa!!
I can tell you have a good heart. Children with additional needs know who is pure ❤
I had no idea Colin Farrell was such a model dad. Hearing him contemplate about not being there for the tail end of James' life made me tear up. A lot of people talk about building a future for their kids, Colin actually did that by making his foundation. The guy made sure that James' and other people like him never have to be alone. What a truly admirable dad.
This. All of this.
Beautiful human
New level of respect for this man. What a beautiful human and devoted dad
I'm so sorry for all ur loses! It breaks my heart!
Going sober for his children is so admirable. Love it, way to be!
Just a dad, being a great dad. Much respect.
The fact that his care team has been with them for most of his life… that shows the amazing family they have
And rich!
Money helps. I think most parents would want the best for their baby.
adequate and affordable healthcare for all would be great.
Amazing family? Not amazing but well-off financially. Only the wealthy can afford a "care team". What a ridiculous statement.
Shows how RICH the family is, you mean. Every parent of a kid like that would do it if they could.
It was about 2004 and Colin was in Cape Town for a movie. I was his typing tutor on an old Underwood typewriter. Colin was so proud of James and he showed me some pictures of his beautiful baby boy (I think James was about 7 months old then). Colin's eyes would just light up and sparkle when he spoke about his son. What a wonderful and devoted father.
proof that abortion should not be a thing !
❤
- They call it "inappropriate outbreaks of laughter", but I don't know if there is such a thing as "inappropriate outbreaks of laughter" if it comes from a sincere place and it lacks malice. I've just, obviously, qualified it greatly so maybe there is. -
The guy is so well spoken, I never knew this.
The facts that he called Paul Newman beautiful, and that he wants to be sure his son can garden as he ages -- these show an emotional depth & thoughtful kindness I imagine rare in 'Hollywood' types!
Ah those Irish lads, they don't shy away from poetic language!
Extreme uncontrollable bouts of laughter can be seizure activity. It’s actually terrifying
@@nataliaalfonso2662 So true. My son has epilepsy and he has the granmal seizures(tonic clonic),staring seizures(absence),and when he was younger he had the laughing seizures which I believe are called glastic but can't remember. He would just randomly burst out laughing and EEG determined it was seizure activity.
@@raregem84 hope he’s doing okay.
I went to the foundation website and donated $25 for me. That’s a big donation and I wish I could give more. This is just so beautiful.
My son is now 38. We are in our sixties. Life is hard. All any parent wants is to see their kids well and happy.
We will never get the ‘well’ part and trying to get equipment for my son is so expensive. His is quadriplegic and the special wheelchairs cost more than my car! They wear out every 7 years or so because he’s in it 17 hours a day.
We found that after 16, the charities and services just aren’t interested anymore when you haven’t got a ‘cute kid’
Life is hard.
Thank you for trying to help over 16,s disabled people. ❤
sending you strength and love Xx
Sending so much love to you and your family. I hope you get the help your family needs 🤞❤
That is tough! So sorry to hear that it is so burdensome for something that could be solved. Lots of love from Denmark ❤ May God provide the help you need
God bless you and fill you up with new hope and enthusiasm. I pray a benefactor comes alongside you to pay for his expenses and encourage you.
That has always made me mad. All the charities are set up for children (basically going to the CEO pay). People don't stop existing when they turn 18.
Colin needed James in his life as much as James needed him . God Bless the Farrell family .
What a dumb comment. No-one needs that in their life.
My son is autistic couldn’t speak , my husband and I got with speech, occupational and physical therapy to help him. At 6 years old he started talking saying two word sentences and now graduated from high school main streamed with a 3.8 gpa . We are so proud. My heart goes out to you Colin.
Amazing!!
❤❤❤❤ blessings to you and your son!
❤
As a mom of a non verbal 2 year old with autism this gives me so much hope. Thank you for sharing 🙏🏻💕
Hi. Great inspiration for us. Is he able to be independent for certain life skills? I'm genuinely curious. Just looking for hope.
Great respect for you sir. My son passed away in 2021 and he was 13yrs, he was living cerebral palsy. I'm a better person because of him, miss every moment with him. Strength to you Mr Farrell .
I’m so sorry for the loss of your dear son. Sending love ❤
So sorry for your loss 🥲 😘🙏 until you meet again! ❤️💜❤️🙏
My condolences for your loss sending you love and hugs! I had a client with CP absolutely adored them and learned a great deal.❤
@@blueibabygirl07 👏🙏
@@sue7621 👏🙏
I work in disability services and the way he talks about community/inclusivity makes me cry!!! This is what I am fighting for every day!
Any suggestions??
@BlueDoes93 me too. Its very sad some days but the good days are so amazing. 🥰
Then you know that managing the needs of an adult with this level of disability usually requires a strong back and accessibility. Which doesn't always exist.
thanks for your services
My grand daughter had some 25 vaccines. Angelman!
Her brother also had many vaxxines. Also disabled. None can talk.
Colin was drifting down a very bad path until his son came along. His children saved him. It's great to see him so healthy and together.
I think we are all saved by our children ❤
They are the ones we are accountable to, and it's wonderful 🥰
We are.
I agreed completely.
His angel saved him. God bless them both.
Wtf no , why would your kid save you , save yourself weirdo
James is fortunate to have Collin as his dad. What a wonderful man. Thank you Collin.
I th😢 so too. He 😢 such a good father. I'm so happy to see him addressing this issue and showing it with love
Yes, so many famous dads go absent.
Colin, not Collin.
He's my old neighbour. Super normal guy. Had a rough few years like us all. Love seeing him so happy!
I can't believe how much James has grown.
Colin is one of the good ones. ❤
He seems like a great guy. It's difficult to remain down to earth with the temptations surrounding his profession. A good looking guy like him will have no problem finding roles in the industry. He's obviously breaking in at an older age than most at the age of 34-I'd guess-he's got at least a good 25 to 30 years to make it big and become an A-lister. That's going to help his children more than he ever thought he'd be able to when he had them in high school.
My son has special needs. He was diagnosed at the age of 2 years old. He will be 12 years old this year and I’ve kept myself closed off to communities that are available for comfort, support and anything else that is available. My son is the love of my life, he is the best thing that has ever happened to me yet I feel like I’ve kept my feelings locked inside for 12 years because I have to be “strong”. He receives the connection and the support he needs yet I haven’t. It’s as if I’ve been wearing a superhero mask this entire time. I never wanted anyone to feel badly for me or say “I’m so sorry” which I’ve heard regardless due to uneducated people in society. I also have the fear of leaving this earth and my son being alone. Thanks to this video I now see trying to be “strong” isn’t doing myself or my son any justice and will join a community who can support me. Thank you so much for making this video, from the bottom of my heart thank you.❤
Maybe now is the time to drop your guard a little, Megan, and reach out to those communities for support for yourself. Sending love ❤
@@standup2982 thank you. I truly appreciate your comment and I couldn’t agree more.💗
@@meganstott266 you’ve so got this. Close your eyes and feel me holding your hand, as one Mother to another 🫂❤️
I´m Mexican and have a daughter with special needs. She is 53 and listening to Colin Farrell I felt that someone is living a life like mine. His words were like listening my own words and feelings. Thank you Colin for being there with your voice for people like us.
Bless you both, Mama! ❤
My grand daughter had some 25 vaccines. Angelman!
I feel the same way and have the same concerns about my daughter.
@@fairchild1737 Please stop spreading conspiracy theories. Angelman has existed before vaccines. Also really horrible of you to speak that way of your own granddaughter.
53 years 🎉!
James is a doll. He and Colin saved each other. I love the love Colin has for his boys.
Sames, James is a doll! Both boys are good looking, but James is a beautiful boy! Colin is great dad! x
Yes so true ❤
When this dad started tearing up talking about his son walking I felt that!!!!
I did too! I’m still waiting for my son’s first word. I dream abut how it will feel to hear him say something to me. I cry even imagining it. Seeing it felt so deep…
Me too!
@@ewaboyle2310I hear you! It has been 13 years now but still hoping to hear my son talk.
@sammesmiles ive had the honor of being present when kids have taken their first steps. Collin Ferrall is a really, really attentive, really good dad, parent! I hope he's successful. With his hope for more intervention for people over 21! It's needed everywhere!
Yes I cried a bit too
You can see how much he cares, not only for his own child, but also for people dealing with the same situation.
Still, the unconditional love of a parent... it's always amazing to see.
Colin hits the nail on the head when it comes to a parent’s biggest fear: that we won’t be there to love and protect our disabled children when we’re gone. We need society to care and to show compassion and provide support for our most precious beings. I worry too what will happen to my autistic son when I’m gone. Thank you Colin for sharing your beautiful son with us.
I hope that we, as your community/society will make you proud of how we look after and care for your son when you can't anymore. ❤🙏❤
That is my fear also. My son is my best friend. And I'm worried when the time does come I leave him.
I have a 19 yr old autistic son…I totally understand 🥺
My autistic son is 12 and I understand this feeling all too well❤️🩹
My goodness. I can’t even imagine. I have a mental illness that makes me extremely dependable on my pet for emotion regulation. Recently I thought to myself “at some point I will need to stop having animals because I refuse to leave them to a world where anything can happen to them if I cannot watch over them”. And the mere thought of that was too much to bear. Switch that pet for a child with a disability and I can’t even fathom the fear parents must feel. ❤
First, a ton of respect for opening up about this, but also for becoming sober, and being there for his kids.
James was blessed to be born to a supportive, loving father like you.
Especially with plenty of money
And especially a father with more money than the average middle class income
If you're going to "bless", bless with health. The rest is bs people with no problems make up to avoid getting mad at God 😒.
Agreed his smile is justso beautiful❤
@@ann3412 who earned it all
My daughter has Down Syndrome & was born healthy & strong. When she was 21mos old, she got meningitis due to an immunodeficiency we didn’t know about at the time. I took her to the ER on the 2nd day, & even with quick care, she still lost her hearing & suffered from brain damage & has many sensory issues. That was way more difficult to deal with than her having DS. I feel like I’m still grieving 3yrs later. But she is a fighter & the cutest kid you’ve ever met & we’re getting thru it. Thank you, Colin, for sharing your story & starting your foundation. It means so much to us, special parents. ❤
I love the fact that he spoke about James’ team and the fact that he’s crying about his first steps years later. As a teacher of students with disabilities, those milestones are HUGE. I’m so happy he’s doing this!
Father's love is an amazing ive and take!!!❤
Thank you for making a difference in the lives of those that need it most! My son had the most amazing teacher when he was in elementary and she stayed active in his life all the way through graduation day. He’s 28 and we still text back and forth a few times each year. You are amazing and the work you do is so inspiring and special. Thank you for being a hero!! 🙏👏🫶❤
This man is not a typical ‘celebrity’ father, he is so awesome and the love for his children shines through!
My son was tested for Angelman Syndrome when we were trying to figure out what he had. It took us 10 years to get a diagnosis of Dravet Syndrome, a severe genetic seizure disorder. He is now 26 and I have advocated for him all his life. I have always said it is so sad that once he turned 21, he no longer qualified for PT, OT, and speech. I am glad Colin is doing this and speaking out about this. We continue to fight for our son's needs. We just had to hire an attorney to fight for his nursing hours in the state of Colorado when they were cut in half. People making decisions at the state and federal level have no idea what we deal with on a daily basis!
Sad to hear this , maybe if USA government stops weapon attacks on 3rd world countries and save that money use it instead to their citizens....
❤❤❤❤❤❤❤❤❤
Bless you, him and your family ❤
@@mennamehmmed3131exactly 💯❤
@@cynthiawheeler1907 thank you!
Tbh I never felt strongly for Colin Farrell one way or another, but hearing he's the father of a child with such a condition and seeing how gracefully he's dealt with it is extremely endearing
Honestly, the majority of what I remembered of him was that he was a bit of a playboy back in the day, and I still had that image if him in my mind. Always thought he was an amazing actor, but I had a bit of a distaste for him as a person for all of these years. And yet I've clearly misjudged him this entire time. It sounds like he's grown a lot, especially since becoming a father and getting sober. Seeing him become emotional talking about his children and how much he loves and respects them was incredibly endearing. What a wonderful, caring father and what an amazing advocate. Wishing him every happiness in life.
I am in tears. As the mother of a disabled child I truly felt this in my soul. The fear of not being there as my daughter ages is what I loose sleep over. I didn't think i could love Colin more than I did, but seeing this side of him is so refreshing. Sometimes it feels so isolating being a parent of a disabled child. Thank you for sharing your beautiful family, and reminding us we aren't alone in our struggles.
I'm 51 and my disabled son is 31. I'm terrified for him when I won't be able to be here for him. He's a blessing.
Though I don't know you....I too have a disabled son and your worries are mine too. Peace from a friend named Joanie in Ct
I feel you. I fear when I am not here for my son. My life now consist of saving money and confirming a family caregiver when I am gone.
It’s a debilitating fear isn’t it. U aren’t alone mama I feel u.
Gods blessings in you and your beautiful child. 😔💕
I met Colin Farrell in my obstetrician's office when I was 13 weeks pregnant with my son James, who was born, about a month before his son James. My son was diagnosed with high-functioning autism at age 3.
Little did we know that day in the waiting room that we would both have sons named James and also with a developmental disability. My son James has a sister and they are BFFs. James teaches her just as much as she teaches him. Like Colin's son, James is a beautiful boy, inside and out. I wouldn't change a thing about him.
I believe these kids were given to us as gifts to help us on our journey in life, to love in completely new ways, and to see life through a completely unique lens. I am also just so grateful. I am the luckiest mom alive.
Was he there with the woman who gave birth? Just curious
Thank you so much for sharing. You are so beautiful 😊.
@@NikkiBornRight We actually rode the elevator up together at Cedar's Sinai and the elevator wreaked of alcohol. He was not with her at the time. I was so pregnant and the smell almost did me in! In the office he beelined to the water dispenser and downed like 10 cones of water! lol Then he sheepishly offered me one. He was super friendly and sweet. My partner came in and they chatted until they called me in to see dr. So, I never saw her but Colin was adorable, even super hungover! He has always been a celebrity crush of mine so it was quite a day for me!
@@louisegiordano5665 Thank you. 😊
Wellsaid
The way he is presenting thw issue and how kind and honest he is blows me away. Good job DAD!
As a parent of a child with Angelman Syndrome so happy that he is starting this foundation. When he told the story about his son's first steps it brought back that wonderful memory of my daughter's first steps. She's 26 now.
Bless you & your daughter. ♥
This was lovely to watch, and your same experience lovely to read. I teared up knowing where his heart was explaining his Son’s first steps. Blessings to your family. ❤
God bless you and your sweet strong daughter! This video made me bawl my eyes out. Parents of kids with challenges, and often the children themselves too, are among the most selfless and loving, wise and brave, most badass souls on this planet. You all and your children renew my faith in God and in the meaning of life 😘😘😘
I started crying before he did just at the thought and memories. Whenever I see walking babies in public I still marvel at their abilities! My child was a late walker like Colin’s.
@@violetgc6049 Thank you!!
1:53 LOVE that, "comes from a sincere place and lacks malice," how beautiful
Exactly this 👌
No . He said that about laughter.. not love. Go back and listen to it.
@@sarahhummel4255 the grammar the OP used was informal; “LOVE that” was shorthand for “I LOVE that expression.” And then quoted the expression. It was understood to be about the son’s laughter.
My grandma cared for my disabled uncle for over 40 years. He had mental retardation, cerebral palsey, and autism, making him both non-verbal and eventually wheelchair bound. She gladly gave up her career and basically her entire life to care for him. It makes me so happy to see someone like Colin, who has a huge fan-base, use that following to give these people a voice of their own.
Where was grandpa? Siblings? Too bad your grandma gave up everything.
Your grandma was an incredible mother but I hope she had help and got breaks because being a 24/7 caretaker must be absolutely exhausting
That’s love. We all throw the word around but few exibit love like your grandma. What a strong beautiful human being. What a great kindness.
As a mom of a 14 year old special need daughter who look after my child 24/7 I have respect for ur grandparents God bless them.
no offense but that isn't a sacrifice anyone should have to make
You can always tell the measure of a man by how much he loves and stands by his family. We love and respect you & yours, Colin.
as a medical doctor who trained in neurosciences, Colin is doing a masterful job at communicating so many of the nuances regarding having a child with a neurological condition: he's articulating so well the social and relational support required not just the physical and financial support needed for each family and each person.
My thoughts exactly!! I love him even more.
Not only is Colin Farrell a terrific actor, he is a terrific father and all around person. It's disgraceful that we can't take care of our most vulnerable adults.
Exactly, and he is not a bad guy. What it takes to be an actor in hollywood is that it takes the most vain and devoid of human decency, at least Colin was pushed to be a better man due to his son, and he manned up. This is not typical for humans, and never happens in the hollywood scene.
Well we could. I found out that my state spent 1 million dollars last year repainting highway signs to match.... as if it matters. That money could have been spent on these children's needs and to help their families.
@@thedivinefeminine1821
Absolutely disgusting, 100 % agree
@@eewilson9835 I mean he isn't American......
@@nickb8897 You mean from Canada, Mexico, or the USA? There are Central and South American countries too, just sayin...
“ I don’t think there is such a thing of inappropriate outbursts of laughter if it comes from a sincere place” Well said. This just makes me love Colin that much more.
He's really encapsulated the struggles of parents that have children with severe disabilities. Thank you Colin.
New-found respect for Colin. Not because of his sons condition, but more because of his intellect and eloquence in finding the words to discuss it in such depth and accuracy. Brutally honest, yet he manages to avoid it being painted as a negative or indeed making himself out to be the hero dad.
Life can be brutal, but it can also be beautiful. Great interview 👏👏👏
Yes! Well said!
15:34 My 25 yr old son has nonverbal autism so this truly touched my heart. Collin’s description of a future life for James sounds like perfection to me 🙏🏻
Same. My boy is 31. The last minute of this REALLY hits hard.
@@timprescott4634God bless him for you and may you be blessed forever ❤
My brother also.. sending you lots of love ❤
My niece is a 16 year old non-verbal teen with autism and I agree, this sounds so wonderful for these young adults and their families.
JB Handley's book Underestimated is life changing
".. I've f'd up all over the place as a parent, but you have to be present to do that, so I'm also present..." Absolute gold!
im in tears brother
it took me years to even talk about my specail needs daughter
good bless you
I’m overwhelmed that a “bad boy rabble rouser”from the 90’s is a devoted father and speaking out for people differently abled. Beautiful 💙
Every full time single father I have known....that are totally devoted to their kids...were the bad boy rabble rousers other parents warned their kids about....I have known many and I am one. Maybe wild boys make loving protective fathers.
💙💙
Don't be surprised men are capable of care, stop being so amused there are lots of fathers out there doing a great job and they can look like a lump of sh*t to look like a god.
Differently abled….i shall use from here in out!!!❤
"Differently abled". Yes, yes, yes.
Hi Colin. I am Ray, and I am a retired Pediatric Nurse. Your story so desperately needs to be told and heard! Thank you to your entire family for giving us this important lesson so beautifully presented. RM
I hope he gets back to you.
Hi I’m really glad you mentioned the T shirt removal, I have carers that I am consistently asking to let him take it off and put it back on, they do it for a while then stop. It used to take me an hour to get him this far and yes we are now older (in our 70’s) with health problems. I depend on them to continue with this activity. It gives him the realisation that he Can, to some it’s not a big deal, to him it’s his future and how he feels about himself! Long road but has just finished his Masters in AI! We have the same thoughts at the future!
That’s an amazing idea you have and best wishes to you and your wonderful family! Thank you, with this was in Australia for the others who need something to help with their progress! Muriel and Dean!
Lmao you think he will say hi , so weird
Hi Ray! It's Colin. Please accept my invitation to dinner at my home this Sunday evening at 6pm. We're having meatloaf.
@@bridawg24can I come please
He doesn't demand respect..he's a man that's truly earned it
I have an older brother who is developmentally disabled due to being born breach in 1962 and oxygen being cut off to his brain. I was born 22 months after him and we are two peas in a pod. He has taught me to be patient, be silly, laugh uncontrollably, love unconditionally and all the other good qualities I have. I am so blessed to have him in my life.
My son, Jordan, has Angelman Syndrome. He is the light of my life. Thank you for being such a wonderful spokesperson for us. God bless you and you your family. 💙
You have beautiful eyes god bless your heart
Bless yall❤😊
My grand daughter had some 25 vaccines. Angelman!
@@fairchild1737. I have a great granddaughter with Angelman Syndrome. I do not believe vaccines are the cause. She was in the womb when the faulty gene came into being. She had not had vaccines in vitro.
I recall hearing a lot of negative things about Colin Ferrell's personal life in the past. This man has completely turned his life around. He's a great Dad. Not everyone would be there for their special needs child, especially if you have the money to pay someone to care for the child. Good story.
Dwight York comes to mind.
Yeah that is true. He is a presence in his son's life and wishes to continue that
As a former paraprofessional, I deeply appreciate Colin and his family sharing this. The awareness around what happens when children with special needs become adults is a piece that needs so much more attention and I am thrilled to see it mentioned here. ❤
As a counselor, i second this. ❤
I’m hoping Colin can help make a change in our county. We need facilities/homes for these individuals when they age out of services or their caregivers pass away. There are so many people who need services
Sibiling of a special needs brother. It’s been a journey on my mom.
I will respect anyone that steps up and deals with something as difficult as this. Well played Colin. You’re the man.
Never thought this magnificent actor was so profound. Respect
I don't understand it. The concept that the child will hit 21 and will suddenly not have any further need for the care support available. I feel so awful for the parents that receive services and then suddenly find themselves without them. Colin Farrell is an amazing man and I hope he's successful with his camp venture.
anglo capitalist society doesn't care about human life, the worse part is that u.s. imperialists are trying to force this culture onto the world
I have a 12 y.o. who will need lifelong care. My husband and I are preparing for one of us to quit our full time job when she's an adult since the daycare options are limited and expensive... And she can't be on her own. In addition to that we need to be stacking up money to support her life after us too. We have been saving since she was a baby but the prospect and the actual dollar value needed (esp after going part time) is incredibly daunting.
@@Westernkoalayou should be able to get some help for your child. I know it’s limited but depending on the state you should be able to get ssid assistance.
@@Westernkoala I think Colin Farell being European is more concerned than most, care is a given for us, the quality of it, not so much.. The sense of community, solidarity he wants to create (it takes a village to raise a kid) centered on people helping makes sense.
I'm socialist, my president is "just centrist", but still, under him people like you get a part-time salary at long last instead of paying a nurse our house help, which they still pay, on occasions to live a little. By creating communities, one person can easily take care of four and share the burden and relax a bit. Nice project, especiallly in the light of lack of humanity in the USA.
Especially when there are physical and cognitive delays, meaning they are still catching up!
I have always respected this man’s work as an actor, now I have the upmost respect for him as a man, father, and human being.
😂
ME too! Having an autistic grandson this just hit me so close to home. He was a preemie and he abd his Mom and 2 siblings lived with me for years. I worry for him to be an adult. What will happen when we are not here fir him? This is HUGE for SO very many families. Thank God for Colin and family for doing what he can to help us all.... ❤😊
Absolutely
@deanwatkins5204
Same... 💚✌🏻💚
@Mrs.Currie you laugh like an entitled loser who's never had a struggle. You aren't as important as you think you are. When other people relate to each other and you laugh at them for it, it shows how shallow you are. Congrats.
thank you for an eloquent description of your son's special journey. Your love shines through.
My daughter has "Septo optic dysplasia" and autism. She is 5 and I am a single father with full custody. My heart is broken, but hearing stories like yours, is sincerely a huge help and makes me feel so much better. I really do appreciate this more than you could know. Thank you
Make sure to take all supports you can get, day by day
I believe Colin's love and contentment with and for his family are all we need in life. James' syndrome almost feels secondary in comparison to the rich inner lives of all the family. You and your daughter sound such a lovely and loving family also.❤
There are agencies out there, that employ great people to work with the disabled population. Community specialists, and home care providers. I hope you consider, and have great luck with services like that.
I happen to work for one. And they are an excellent organization, that is funded by my state. Not every place has an organization like this however. And it takes a lot of work and deliberation to get that help.
But it can be a boon to the parents of children and adult children, who are able to relieve a lot of the stress that comes with caring for someone with a disability.
You’re doing great ❤ she’s lucky to have you
The fact that she's got you is the best start in the world. You will do great dad. It's all for her. ❤🎉 We're all proud of you! Bless yall so much!
His patience and love is so commendable. His love is obvious in his eyes. The tears he had just speaking of James' first steps. Wanting to know James' live expectancy and if he was in pain was a wonderful question to be in the thick of the diagnosis. Love this man even more. Respect always ❤️
Marry Asians women to avoid any genetic diseases
As a school psychologist, I was so happy to see this and hear Colin talk about the end of special services at age 21 and how he wants to change that. It’s incredibly inspiring. I originally watched the video because I’m a huge fan of Colin as a movie star, but now I’m even more amazed by seeing this caring dad side of him.
Ditto!
I've taken time to see every interview that Colin has done. He's genuinely a good and decent man. I'm thankful that you had an opportunity to see and appreciate the quality man and father that he truly is! ❤
What an incredible gift Colin is giving to families and people living with Angelman's Syndrome. If only others with the financial means could do the same for all those in need. We live in a very messed up world...
My son is 8 years old non verbal & autistic but just started talking🤗His first speech therapist at 5 yrs said he’d never talk!
NEVER say Never to children on a spectrum of disabilities!!! It’s not fair on these amazingly strong kiddos or us knowing parents🙏🏼❤️🙏🏼
Yup resilient young buds... they surprise us
That is just so exciting! The words were in there and now he can say them! I am so happy for you all!
My youngest didn't utter a word until he was 4, hasn't stopped since.... the words were there but he spoke when he wanted to. He's autistic too.
Celebrate every moment, mama.
🎉🎉🎉
14 years after recalling his son's first steps still tearing up makes you just appreciate what we often take for granted.
They say money can't by happiness, but the fact that Colin has established a career with the financial stability that allows him to provide for his son through his full adult life, does indeed, provide happiness. Imagine managing such an ailment on a low-class wage.
Money can't buy happiness - but it sure can buy off unhappiness.
This. It only makes me think of the fate people with similar disabilities must have when they aren't lucky enough to be born into financial stability. It's just depressing
Great that he’s recognising the uncertainty of the lives of young people with disabilities and is thinking of ways to support these people and their families with the foundation that he is talking about.
I'm not sure any wise adult describes his life as "happy". Happy is an emotion, so intrinsically empheral. Life is full of blessings and challenges. What Farrell's money has provided is help. Poor people have to find help in other ways, but it doesn't mean they don't find help. Community exists. And hard work is not the same as a life of unhappiness.
I don't have to imagine. This is my reality.
Im so glad to see this video. My older brother has Angelman's syndrome. The level of struggle growing up in a family trying to provide care with limited resources was astronomical. I hope that there are better support networks and resources that develop as a result of this video.
This guy must have had a spiritual awakening when he got sober because he has matured and grown into not only one of the most nuanced and professional actors working today, but one of the most well spoken and down to earth public figures around. Had no idea he had a son with this condition and the way he talks about him and other children with disorders so tenderly and with so much compassion is truly beautiful.
He used to get high on drugs before his mandatory visitations to his son to make the time go faster. He dreaded visiting him, he didn't do the bulk of raising. He did a lot of growing up, as a young man he was not coping with being a father never mind, one with a diagnosis. He's come a long way himself and he plays that down because he isn't proud of his past.
I definitely agree with you 💯 such a amazing positive post🙏💙🙏
I really made me cry 😢very inspirational to see the understanding and unconditional love💙🫶that he has for his son💙
It takes a lot of courage, patience and love💙 to talk about his feelings and personal experiences with her son that has been a blessing in his life 🫶I admire hem for trying to help others families that are going through same situation🙏
I only wish him well and I hope all his dreams come through soon to be fulfilled doing something special for him and others💙
@@sarahharris2729 I'm curious why you felt the need to bring this up.
@@sarahharris2729 his son has a disability because of his drug and alcohol use
@@sarahharris2729Russian bot alert
I see Colin completely differently now. Thanks for letting us see a softer, realer, vulnerable side of you and your life. God Bless, Colin. Niamh 💜
Me too.
As a Geneticist who works in a lab diagnosing genetic disorders such as Angelman syndrome, it's good to hear the family's side of the story. This was so heartwarming. ❤
He articulates so clearly the challenges and joys of parenting a child with developmental disabilities. It is wonderful to hear a father’s voice come through so powerfully!
He went from being a heart throb in the 90’s to someone who takes their parenting seriously. I have a whole new respect for him. Where are all these men?
Colin was one of the coolest actors of 2000’s decade
Ireland
Still a heartthrob to me! 😍Being a great parent and a serious actor make him even more attractive.
Your dates are off by a bit, hun. His Hollywood rise and prime didn't start until the year 2000 or 2002+ aka just before the messy Lilo (Lindsay Lohan) + Paris Hilton + Britney era. Colin was even on LiLo's infamous sex list of former hook ups. Unless you mean he was already a (very young) heart throb in the UK 90s
He’s still a heart throb
This is how the world gets better. One person has a personal experience they want to help others with. Beautiful.
"This is how the world gets better. One person has a personal experience they want to help others with. Beautiful."
I guess we can all do some nice thing every day, no matter how small, no matter how we think insignificant we are on a grander scale.
That would certainly make the world a better place.
....and other people turned and offered their hands too. It only works if we all care just a little. As a mum with a child with special needs I feel like a voice in the wilderness and am very greatful for the people who turn and help my son. This is such a beautiful interview and Colin has voiced a few things I didn't even have words for. Brava.
My daughter was born as a special needs child, and gradually became deaf and nearly blind from one eye. She is amazing. I always tell her she's a strong woman. She is with me on the weekends. She's 45 now.
This brought tears to my eyes for Collin. I recognise the strength in parents and their dear children. I pray, I laugh, and I cry.
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My youngest has additional needs and is functioning at baby age at nearly 5 years old. They are amazing aren’t they and how Colin describes his lovely son as magic is just spot on. You never knew how special your life could become until these beautiful humans come into it and as a parent it’s just an other worldly gift I feel ❤ your daughter sounds wonderful and so do you as her parent 😊
Wow! Tears to my eye. Your daughter is absolutely amazing.
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Olga, can we talk? Please send me a way to contact you. I have a child with special needs, and one of the things that keeps me up at night is what's going to happen when she's an adult, and I am no longer here to protect her.
This has been amazing for the Angelman community. Thank you so much to Colin Farrell for opening up about AS and James! My daughter Maddie has Angelman Syndrome, and the number of people that texted me after Colin Farrell opened up was amazing!
Colin Farrell is a great person with a big heart. It is a sign of strength when a man can express his emotions. When he mentioned Debra, I wept. She's my late wife. She died suddenly and unexpectedly. Debra was a kind and caring person. She worked as a nurse when she was only 18 helping the elderly. She meant the world to me. She changed me for the better. I cradled her in my arms until she took her last breath in the hospital. The doctor informed me that there was nothing further they could do. I still tried desperately to save her with CPR, but ultimately I gave her her last breath.
I’m sorry for your loss and I am also very touched by your story, it is sweet
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I know it was a great comfort to her to have you there❤❤❤
So deeply sorry for your loss. It sounds like she was a remarkable woman.
She must have been an incredible human with the huge heart-- so very very sorry about this painful loss. ❤