Infantile Spasms, Causes And Treatment
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- เผยแพร่เมื่อ 14 พ.ย. 2022
- Did you know that infantile spasms can be a sign of something serious? In this video, we'll discuss the symptoms of infantile spasms and how to best treat them.
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#DrOmarDanoun #Epilepsy #InfantileSpasms #EPilepticSpasms
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Salaam Dr Omar,
Can you make a video about NBEA gene related epilepsy please?
How can it be cured?
JazakAllah
🤮
www.ncbi.nlm.nih.gov/pmc/articles/PMC6951394/ it's B12 also B1 and B6 possibly from bad diets.
Eating ketogenic may not solve it quickly enough
Thank you very much for your excellent video.
I have epilepsy and my daughter had west syndrome, I thought nothing of it for 4 weeks and 1 day I realised it was serious, later that day she started having multiple spasms so luckily I was already at the hospital. Vigabatrin worked well but she now has a development delay and autism.
Hello, we have a son with IS. Can you give us an advice, where to find a possible counselling? We have already started treatmnet with vigabatrine, but haven't reached the full dose yet.
You are absolutely right doctor, my daughter was first diagonised with Infantile spasms and we avoided ACTH due to side effects and was not guided correctly in the earlier days, ( ACTH later didn't help) today she still suffers from epileptic seizures, however viganext is now given to her. Her Seizures were very severe due to hormonal changes, now in control as with age also seizure frequency reduces to a great extent. I must say now we are lucky to have you and many more sources for awareness which can help us to discuss it further with our neurologist. Thank you doctor
Hi, can I ask - at what age was ypur child diagnosed with infantile spasms? Is the developement normal now? Many thanks for answer
@@stratenamatka 5months old , now seizures are under control though still a long way to go on the overall development as she had delayed milestones due to these spasms.
I am here today coz I noticed my 3months baby showing those symptoms 😢😢😢😢
@@panhasethavy5202 ohhhh, early intervention is critical, follow and visit a good neurologist asap
@@parrvatisureshkurup6795IS Child is completely normal after treatment in all the cases of infantile spasm
Salaam Dr Omar,
Can you make a video about NBEA gene related epilepsy please?
How can it be cured?
JazakAllah
Our youngest has epilepsy...after getting serious help we knew he has the West - syndrome because he has another sickness...so beside the west-syndrome he has neurofybromatose type 1 (nf1)... Thank you for saying this to the world
Are the two linked. I'm just looking today... my baby did these fuss startle moves repetedly and recently I was googling his pigment marks and nf1 came up...
@@elis4993 take your child to go see a pediatric neurologist asap
My daughter did this from infancy. She has seen multiple specialists for years with no diagnosis other than severe development delays. She is now 20 and you're telling me I think I just found out the cause from a you tube video?? She was never treated for anything. 😢
So sad! Incredible how diagnosis can be missed.
my son too, i didnt bring him to doctor as i dont know how to call that siezure , but he is fine now he is 23 by Gods grace now.
Hi! I know you don’t know me but my son is 19 months. He has seizures like this. Poor weight gain. Severe developmental delays. And a few other problems. We were diagnosed with Foxg1. It’s a rare genetic mutation that most doctors don’t know. Please get genetic testing done on your precious baby and it could give you the answers you are looking for. 💜💜
@jasminedavis8256 thank you! I googled foxg1 and it describes my daughter exactly.
@@jasminedavis8256 my son just had his EEG today and confirmed he’s now 2 1/2 years old with all that you listed. Will look up your diagnosis. Coincidentally my son’s name is Fox.
My daughter was diagnosed with IS at 9 months age. We don't really know when does it started but probably around 4-5 months age. It was rare as she would get this only after waking up from a deep sleep so we would just ignore it as if she is just getting out of deep sleep.
We are still worried because we think we have delayed the treatment for 4-5 months.
She has global developmental delays.
We started with prednisolone for a month and then tapered off next month, the spasms were reduced in frequency and severity but didn't stop completely.
Now we have started vigabatrin initially on 500mg but she was still getting episodes of spasms, now on 750mg and I still noticed it.
Don't know what to do next.
We have a similar situation, we also have a dose of 750 mg, how is your child doing?
Same, also tried keto diet and it didn't work for us. Lamotrigine has helped with development but not stopped the seizures. Now trying Clonazepam which seems to be helping how often the clusters appears and softening them
Excellent type of explanation,that’s very helpful
I’m thankful for ur effort doctor 🫡 that helped me to memoirs the disease easily ❤️
Doc my son this may experience jerking hand ang leg muscle move it self then we ho to neuro pedia . Advise ro eeg the eeg is claer then the neu give a medince almost month from now somet still jerking an some is he jerking fast
My baby suffering developmental and epileptic encephalopathy reason of dnm gene mutation and nsf gene mutation ,any drug available these disease?
🆘 pls does IS happen while baby is asleep?.. my baby jerks sometimes only while sleeping.. he's 5 months. Should I be worried??
Would need your advice to understand sudden giggles and cries in epileptic cases. Since last 2 months she has been constantly giggling, crying, ( quite for sometime) wakes up giggling restless and sleeplessness too. What can be the reason for this sudden emotional outburst. Please advice
Can't provide medical advice without evaluating the patient... But in general there are some types of Seizures that are associated with emotions like laughing or giggling called gelastic seizures and crying called dycrastic seizures. Some have specific cause. Ask your neurologist
@@DrOmarDanoun thank you so much.
@@DrOmarDanoun can gelastic seizures develop in adulthood/ teens
Pl respond
Thanks for this explanation
My daughter has millers diekers syndrome type I lissencephally she is 5 months and I have noticed she maybe starting with some signs of these infantile spasms, what would be the best treatment modality in her case
The treatments are mentioned in the video. Please discuss with your neurologist
Please can it happen within 2 days post delivery?
Thank you for the video. Does the baby need to be asleep during the EEG for the doctors to be able to tell if the baby has infantile spasms or can the baby be awake?
Your baby does not need to be asleep. My son has had 3 video eeg. They range from 4 hours to 24 hours it just depends on what your doctor orders.
Can baby have IS without developmental delays?
My baby has the case, pls what do I do
Mine doesn't do this that when my 9-month-old is on the floor he kicks his feet real hard in his hands and yells I hope this is normal behavior if not I'm taking him to the doctor
My son had infantile spasms at the age of 7 months old...caught it within days of it beginning, he had to be hospitalized for a week for a for testing...he did get cured with adrenocorticotropin hormone high dose and tapered down for 9 weeks of treatment in order for his own brain to produce this hormone naturally, however, it caused a global developmental delay especially with speech and sensory input and output
😊
Doc is it to a baby who have infantile spasm have a BCG?
What is the cure/treatment for infantile epileptic spasm?
Infantile spasam is curerable or taking medicine life long.........plz tell in Hindi
Do you know much about IED, intermitent explosive disorder. I am just wondering if this is what is going on in sleep.
Yes but that is different from epilepsy
@@DrOmarDanoun yes but I have been doing some research to try and get to the bottom of what's going on in sleep and it seems IED and temporal lobe epielpsy is closely linked to amygdala. When I was on tegretol I never had any 'seizures' and then neurologist changed my meds 5 years ago saying ot was pseudo epilepsy and put me on lamptrigine and since then I have had thus sleep issues every single night. Tegretol is used for IED. When I was 12 I am sure I was diagnosed with temporal lobe epielpsy and not frontal lobe epilepsy.
So mabie this is the answer? It will be nice to sort this stuff out now. What are your thoughts please?
It’s sad I’m facing the same issue with my 17 months old daughter. @dr usman
I have a one-year-old daughter, and a month ago I noticed that she suddenly grabs her hand, often before and after sleeping..I want to know its cause and diagnosis..
How is your child now
My baby just got such an itch doc I'm watching from Bangladesh My baby is 1 month 5 days old
my daughter get tuberous schelosis since born, now one years later, in indonesia my daughter medicine out of stock, sibital or phenobarbital. i am very sad. please help me doc
Sorry to hear that.. Please discuss with your neurologist for alternatives
هل هناك فيديو باللغة العربية
نعم اسمه صرع الرضيع.. هناك قناة كاملة فقط بالعربية. د عمر دنون اسمها
Hello my son is be having like that I don't know what to do please sir can you help me sir
Go to the ER ASAP....record his movements to show the nurses and dr.
Thank you. Ask me in a NEW COMMENT any questions you may have about epilepsy and seizures
Hello Doctor,
I am a mom. My daughter sometimes just open her arms wide but she never lost eye contact with me during that and it only happen if she is alone laying on her back and we are not having contact with her.
Also, I soon as I touch her it stops ! It doesn’t come in cluster. She does that one time then can make it again a few days/weeks away.
What do you think ?
My doctor thinks that she does that as a response to stress.
Hello Doctor, please I need your help and insight I think my daughter may be having seizures. Can I send you a video?
@@camilleclemenceau5398 what the pediatric have tell you about it?
@@julissaaguilera9158 Hi Julissa,
We have been to a pediatric neurologist and did an EEG. She had 1 or 2 back to back crisis every week or two weeks since she was born. One day she has had 4 crisis the same week that’s when I started worrying and contacted a doctor. Results came back from the EEG and there is nothing to worry about ! She hasn’t done ANY crisis since ! (0 crisis in 5 or 6 weeks). The doctor said that sometimes infant do those scary things for a reason that they still ignore but those have no impact on their development or life. 1 out of 3 kids who does these scary movements is having benign crisis.
So, do not freak out ! Go to your doctor, try to take videos, do an EEG and hopefully you will be just fine !
@@camilleclemenceau5398 thank you😪
my 3 months old baby was diagnosed with neonatal seizure and was taking keppra.i noticed abnormal movement nd see a doctor.he done an egg ze result was normal.the Doctor told me to stop the medication.but he has this spams now,what i can do?the doc always told not to worry&he is to careless.shall a see another doctor.i am too afraid as i'm a first mom.
Please discuss with your neurologist
My baby is 3 months old and I have noticed her trying to sit up. She’ll arch her back and pick up her legs, with a little grunt sound, but I haven’t noticed her eyes or arms go up. I check her to make sure she doesn’t have any gases or needs to be burped. Im a first time mom and everything worries me 😅 I just do think it’s weird that it looks like she’s trying to sit up or is crunching up her body. Should I have her get checked? I’ve been reading so much about this and I’m worried 😢
If you are concerned then ask the doctor why not
Your.daughter.is.epileptic.my.daughter.was..infantial.spasm.epilepcy.and.have.fit.which.called.salam.fits..pless.concern.docter.and..make.a.test..EEG...
How’s your daughter now
How's your daughter now?
@@VS-me4re she.is.no.more..at.the.age.of.nine.month.she.passed.away..her.epilipesy.was.not.cure.able.i.have.concern.many.doct.but.siezers.were.not.being.control.by..miedcien...she.went.on.vantilater.for.15.days.and.then...whith.in..twenty.days.she.passed.away...at.the.age.of.one.and.half.month..first.epiliptic..attack..was.occour...nine.month.she.alive......
My son suffering from hydrocephalus
Vp shunt done
Now suffering from lS almost 7 Times a day for àbout 8 min
Taking levtricetam 2ml valprin 3ml
Sir please suggest me what to do
Does levtricetam stop seizure?
My daughter used to have those signs on the first weeks after birth but nowadays I rarely sees those signs
And I have never seek any medical attention cause I thought it's normal
Should I be worried?
Keep eye on her and notice her movements.... Main sign is development delay.. MAY Allah protect ur child.
Hard to tell without evaluating the patient. Please discuss with your doctor. Reassuring things if the development is normal
@@DrOmarDanoun Okay .... Thank you
How old is ur son when the symptoms stop pls?
should ask this "dr." About what his thoughts on the safe and effective since birth.
My baby was diagnosed she's been having them for 12 to 16 weeks is she too late? Will she have irreversible damage??
How is your baby now
@@cherry2423 unfortunately is been very hard to contain them. She still gets anywhere between 1 to 3 spasms daily. She's on a decent dose of Keppra and Onfi and on a 4:1 keto diet but nothing seems to fully work. She's going on 30 months but only weighs 20lbs😔😔
God bless 🙏. Hope she will recover soon , Could you please let me know how you have identified this AND if movement is totally different from the normal movement
@@cherry2423 her spasms look like she's about to faint and lose consciousness but only last for a split second. (1 or 2 seconds max) but lately she freaks out and cries right after they occur. They scare her because her body shuts down for that split second.
@@ThaChazo oh god , hope she recover soon
Thank You For The Video. my newborn son Is On Levitracitam At a Dose Of 0•33ml for the past two months and will continue for the third month. After That I Will Have Cheack Up With The Pediatrician, what should be the next procedure i should expect when i visit the pediatrician and what questions can i raise so that nothing is missed early on.
Thanks
I can't expect.. This is case by case
مسا الخير دكتور عمر. شكرا مقدماُ على هذا الشرح المفصل. منذ تقريباً ٢٠ يوم تم تشخيص إبنتي عمرها ٥ أشهر بمتلازمة وست ، بدأنا العلاج بالكورتيزون و Vigabatrin الى الان تم عمل EGG خمس مرات خلال ٣ أسابيع والحمدلله هناك تطور ايجابي يوم عن يوم. تم عمل ايضاً رنين مغناطيسي للدماغ والحمدلله الدماغ سليم. العلاج استطاع ايقاف النوبات بشكل كامل، نحن مازلنا بأنتظار تحليل الوراثة لمعرفة اذا كان السبب وراثي. بسبب النوبات بعد اول اسبوع من العلاج فقدت إبنتي إمكانية البلع واصبحت تتناول الحليب عن طريق خرطوم من الأنف الى المعدة، بفضل الله منذ اسبوع استعادة خاصية البلع وأصبحت تستطيع الرضاعة بشكل طبيعي. الأطباء في النمسا بدأو هذا الأسبوع تقليل كميات الدواء بشكل تدريجي ليرو هل تعود النوبات في حال تقليل الدواء. سؤالي لحضرتك، هل يمكن ان تعيش ابنتي حياة طبيعي مع الاستمرار بالعلاج والمعالجة الفيزيائية؟ انا متفائل لأنها تتطور يوم عن يوم بشكل إيجابي. شكراً مقدماً وآسف على الاطاله
My son have infantile spasms the pediatric neurologist provide
Dilantin phenytion
Phenobarbital
And ivitra leveratecam
It is helpful? Its been 5mos but my son still has headrops can you give any suggestions
I can't provide medical advice online. But I put in the video the right treatment
My nephew is 2 years old, infantile spasms detected on him at 3 months the treatment is going on, but not much improved, the neck bone is still weak we need to hold the head and head feels heavy. Any advice you can give me?
I can't provide medical advice online. I mentioned the treatments and the way they are given but the final decision is to the treating pediatric neurologist
My son have infantile spasms the pediatric neurologist provide
Dilantin phenytion
Phenobarbital
And ivitra leveratecam
It is helpful? Its been 5mos but my son still has headrops can you give any suggestions?
My son have infantile spasms the pediatric neurologist provide
Dilantin phenytion
Phenobarbital
And ivitra leveratecam
It is helpful? Its been 5mos but my son still has headrops can you give any suggestions?
My son makes them when he wake-up, Should I see a Dr ?
Yes right away
My 2 month old just started having the epileptic spasms . They were noticed when she was five weeks but the mother thought nothing of it as it occurred 2-3 times.
However, today she has had over 40 of them. I’m not sure if this is considered catching it early or not. Nonetheless, what’s your best advice other than going straight to the neurologist.
Yes straight to the neurologist for evaluation and based on the findings the treatment will be decided. The best treatment is mentioned in the video
@@DrOmarDanoun interesting. Have you ever heard of vitamin b6 being responsible in infants from over diluted formula? After being given sufficient formula, she had absolutely no spasms
are you saying that B6 helped or hurt?@@Devoneakapimp
How was the spasms
My baby is 14 days old.sometimes suddenly she acts like she is choking and can't breath..she doesn't make any sound n jst feels like choking nd her hand goes wide.its really scary
Mbase e lexoj mbas nje viti , si eshte fmija juaj tash ??
My son was diagnosed with IPC he is taking steroids but still having apposite...How can they completely go away today it lasted longer then usual please 🙏 😢 let me know which medicine will work better
Treatments are mentioned.. Please discuss with your neurologist
They went away now ty
My one month old baby girl is having this kind of shaking her hands and leg while bathing or laying down playing like something scares her, should I be worry about it 🙏
Best to discuss this with your pediatrician for evaluation
How about those seizure like movements when the baby is breastfeeding?
Best to record them with video and discuss with your neurologist
Dr my baba 1 year old fut hend kapapta h sota h to ab jagta h to bhi hota h EEg karwya tha wo thek h Kuch Nahi sys delay milestone h please Dr reply please 🙏 help
Sorry can't understand the language
Aapka baby kisa hey
@@itsseemashaikh5561 wesa hi h sis ABI bhi hota h kuvh kehty h kamzori ki waja SE Kuch Dr kehty h masla h koi
@@DrOmarDanounEnglish language nothing
@@AbdulRehman-ts4vv aapke baby ke problem batao details
My baby is having an unusual movements like this one seizure movement straighten her arms and legs but when i distract her or when you carry her she is not doing it shes doing it when shes playing and excited is it possible that its just her own movement
Can't judge. Please see a pediatric neurologist for evaluation and treatment thank you
How is your daughter pls reply pls .my daughter does the same
How is your child pls reply pls. My daughter does the same
🗣️so basically if I have epilepsy my kids👨👧👦 🥺 will have epilepsy cause of genetic 🧬 😓I wish I could figure a way my kids wouldn't have it cause I'm only 24 and hard to deal with my epilepsy sezuire I don't want my kids going through the same things I'm going through it's very depressing 🥺💯
Not necessarily. Please review the video on epilepsy and genetics
My baby cannot move it arm I need help
Yes please see a neurologist for evaluation and treatment
Go to the doctor. TH-cam can't help
আমি বাংলা দেশ থেকে দেখতেছি স্যার আমার ৬ মাসের বাচচা ও হঠাট করে এই রকম করে বোঝে পাচিনা কি করবো আর আপনার কথা বোঝতে পারছি না বাংলা হলে বোঝতে পারতাম
বাংলা অনুবাদ আছে। শুধু cc লাগান এবং বাংলা নির্বাচন করুন
@@DrOmarDanoun cc
এই সমাই বাচচাকে কি সুজি খাওয়াানো যাবে
ভাই কোথাই গিয়ে লিখবো cc
Doctor my baby is 3 months old .sometimes his right arm looks shivers .Why is thus happen
I can't tell without evaluating the patient. Please discuss with your neurologist
🤮
My baby just got such an itch doc I'm watching from Bangladesh My baby is a month 5 days old