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Hello Doc.. my 8yr old son have focal epilepsy, in his 1st yr taking medicine i though he was aeizure but but last april his seizures back and its almost everyday.. sometime its start with his face like i though he was auffer a atroke.. it happen 4 tims, then this august we back to his doc because there are many time till this daymy son fall.. even the doctor gave another med .. what should we so.. hoping u can help.. We are from Philippines
I have diagnosed hydrocephalus in the back horns and empty sella. Recently I go down neurologically fast. Including partial reversible paralysis and now I more often have things like...l all of a sudden start sreing weirdcolors, my head drops,eyes tend to close and then I notice waking up suddenly after maybe seconds. Feeling weird, not knowing what really happened,just remember seeing that colors. Could it be related to the back head hydrocephalus
@DrOmarDanoun please make a video on pseudoseizure as well as epilepsy transformation into other types. Like i was diagnosed with partial epilepsy 22 years ago which is now transformed into pseudoseizure. None of my neurologist explain this.
Oh yeah I would get huge episodes of de-ja-vu mainly relating to dreams I could have SWORN I had they feel so insanely real at the time and then when I wake up in the hospital a few hours later. I'm getting pretty close to the max dose of keppra I can be on. I'm pretty sure the weed and vaporizers are to blame. I'm running out of any other ideas.
Call st.louis barns and ask for a appt and go to them the big barns near the children's hospital if you call the children's hospital you can get in there and see a nurosurgeon
They saved me I had second stage glioblastoma and they saved me so it'll be best if you do that and if he's got Medicaid they can get Uber drivers and stuff to drive you guys there and back just set up the appt then tell them and they can support you
@@danielterry681by chance were you misdiagnosed with PNES prior to the diagnosis 😬my niece is having seizures outta NO Where and the neurologist says it's PNES we feel something is really WRONG 😢
I'm 84 - dob Nov 1940. Just diagnosed in Jul 2024 in the ER at Hospital - he is a young Doctor - 37 yrs. young and due to my previous 3 'mini stroke' diagnosed at hospital stays, and him witnessing a 2nd episode I had in the ER in Jul 2024 - his diagnoses made absolute sense to me. Very few Neurologists in Colorado Springs. Only had initial appointment so watching all of your informative videos - and now knowing family research is very important. It is a gene is so many. I think. This field of study, and continuing study is vital and necessary for all. Thank you, thank you, thank you and Blessings for your work to and on behalf of for the greater good.
I hope you receive continued help with seizures. His videos are so helpful. Due to just being diagnosed I want to share with you that my Neurologist's didn't have the knowledge Dr. Danoun has. I've shown my Mother this video because he explains the seizures I have and had so she can understand.
I was diagnosed with temporal lobe refractory epilepsy, just had 5 seizures 2 days ago. I just got out of the hospital, they had to give me adivan to stop the seizures in the ambulance. Luckily I can go for a temporal lobe resection to hopefully stop the seizures, I honestly wouldn't wish this on my worst enemy
I wish you the best with that. I had a left temporal lobectomy 25yrs ago and it was a successful surgery. I was on the maximum dosage of meds to control the seizures, but it wasn't working so surgery became the only option & I'm glad that it worked.
I started having Grand Mal seizures in my early 20's and the doctors could not determine what was causing them. I even ended up having brain surgery to remove a large cyst they had found on my temporal lobe, however, the seizures returned shortly after the surgery. Now I was in complete desperation mode, losing hope and tired of feeling like a zombie with all the sedative drugs I was being prescribed. I then realized that God was the only one who could help me and after praying for about 8 months or so, his answer came to me at a 711 convenience store early in morning. I had purchased a coffee and added a non-dairy creamer to it and after only a couple of sips it started to give me my usual pre-seizure warning signal, which was a weird deja vu feeling. I then realized that it had to be something in that creamer since coffee itself had never given me any problems. It was the preservatives in the creamer(since it was non-dairy it required something to preserve it). So, long story short, I no longer eat anything with food preservatives, take no medication of any kind and 30 years later I am still seizure free! I thank God every day for giving me this insight because when I told my medical doctors about my discovery all of them ridiculed me and said that the acids in my stomach would destroy the preservatives. This was apparently not the case and later through my research on food preservatives I also found out that most of them are even carcinogenic. I hope this can possibly help at least one person out there as I know the horrible situation it is to have seizures.
I took ballet in my 20's to try to keep my friends from calling me "Grace"! Haha! I've always been clumsy, but I don't fall. I was a pro soccer player for years without incident. I have Myoclonus Epilepsy w Red Ragged Fibers (MERRF). I'm now in my 60's and am FINALLY getting some answers to what has been going on! I wasn't diagnosed until a car wreck triggered full blown Gran Mal seizures. It took many years and a muscle biopsy to get to the root of the problems. Thank you Dr Danoun.
I have multiple types. Medication quit controlling them so now they just kind of exist. I wish I would have a good neurologist like you I’m glad you make educational videos to help spread awareness.
I have so many of these! People need to be more aware of seizures and what they look like. For example, an absent seizure My eyes used to roll back. Now, I just stare. I was diagnosed in 1996 with juvenile myoclonic epilepsy. But, as a 5-year-old in school, I would stare out the window a lot. My doctor (an ADD/ADHD specialist in the 80s) was quick to diagnose me as having ADHD. My mother said all the doctor did was have me raise and shake my hands. Right away, he diagnosed me. Put me on Ritalin. which my parents said I acted like a zombie while taking. They took me off.But what if, the whole time, I had JME? And was I misdiagnosed!? I think that all the time.When I first was diagnosed with generalized epilepsy, I had bad Myoclonic jerks, staring spells, and times where I would just fall to the ground. I would not have a tonic clonic but loose muscle control if I were in a store or holding something. Things would fly across the room. As I got older, I just had jerks. Very rare, too. I gave birth to two healthy children. My first all while taking name-brand medications She was perfect! My second, in 2010, I used generic medications, and she was born full term. But she had so many birth defects. I did everything by the book with both pregnancies,too.My seizures were under control until about 2010. Then they got worse. I was having Deja Vue; anxiety would contribute to my seizures. Since then, I can’t look at bright lights or blinking lights. I have to meditate daily and avoid any kind of conflict or confrontation because they make my anxiety level shoot through the roof. I also take depression and anxiety medications. I really wish schools would teach seizure first aid! As well as the general public! This is something that needs to change!
Getting diagnosed after 30 has been so hard for me 😭😭 I always knew there was something wrong and used to describe it as electricity in my brain… for years my complaints was just attributed to panic attacks till the myoclonic seizures became more intense and uncontrollable..
Hi, I'm going through something similar on my end. I'm 26 1/2 and definitely feel like my symptoms are seizure-based and not panic attacks, "electricity in my brain" is a good way of articulating the sensation. Are there things you did to speed up getting a diagnosis (or just getting tested, etc.), and were there particular tests that were important in getting that? Any info would mean a whole lot to me, but in any case my heart goes out to you!
Dr. Danoun, this is eye opening information the doctors I’ve seen brushed off several of these symptoms I have. I thought I was going crazy. I greatly appreciate the information. God bless you.
Have you ever experiences seizure cause by digestion? My seizures are only the night ones, but always following after not fully digested food in the stomach and I could not find any specialist so far to have a consultation about this. Thank you!
I started having gran mal seizures in 2020. Before or after my cycle is when they come . Some months I am seizure free and some months I can have several seizures a month … I’m still learning my triggers but I definitely have them during my monthly cycle
I too would have gran mal seizures that started 3 days before menstruation. I might have 1 in that cycle or ten. When my last child was born 12 years ago I had a blood/sepsis infection in my uterus and had a huge procedure done which rectified my endo at the same time. After that I went nearly 12 yrs without a real period (1/2 day spotting only). 6 months ago after a catastrophic blood clotting event my periods started up again and I am now feeling the dreaded tickle behind my eyes that indicates a seizure for me so I fear they will start up soon. I have always had absent seizures still which I call micro blackouts
How do you cope? My brother was taken to hospital on Thursday after he had a seizure for the very first time at least the first time I saw it and broke his ankle , he has been having these little attacks for quite awhile now but Thursday was the worst I am finding it hard to cope right now, his is still in hospital at the moment.
Thanks for the video. I personally know tonic-clonic seizures very well, but only since I was 35 years old. Before that I had intermittent deja vu + goose bumps moments for years, but this was never investigated. I now know focal seizures that are accompanied by smacking. Since switching to the drug Vimpat, tears have often come to my eyes several times a day for no understandable reason, alternating with goosebumps. Unfortunately, it is currently very difficult to find a decent doctor here. Nothing was found during an MRI in 2019 and the only EEG so far also remained without findings. Thank you from the bottom of my heart for this helpful information. ❤️
Thank u for the vedio. I have absence seizures it affects my eyesight , flashing lights, dizziness , bubbles , also lip smacking and goosbumps on my left hand . Im on lamitrogine and keppra medications . What is ur advice for me doctor?
It started with anxiety then it worked it’s way to seizure. Tried everything Nothing worked for me until I was prescribed depakote. Which was working But according to the doc it was damaging my liver so I was switched to Vimpat and I’m fine but I suffer from anxiety from time to time. I reduced my caffeine intake and drink more water and I feel better no seizures. But anxiety comes to visit from time to time
Have been diagnosed with 3 different types of epilepsy by my neurologist. Have had seizure in Walmart where I thought I was home getting ready for bed. Well turned out I was arrested for indecent exposure.
This kind of information needs to be more common knowledge. I had no idea what a temporal lobe seizure was until I had one at work and found out the “episodes” I had been experiencing were seizures.
For over 35 years now with types of seizures changing the doctors just said it's epilepsy, not a certain type of seizure as your videos so it's not epilepsy. Now I know I have Deja vu causing my seizures as your video shows. I was told by a non-medical person to massage my neck to stop the seizure from happening but if I don't massage it on time the seizure does occur.
I have de ja vu before all my seizures too and I'm pretty sure massaging the neck isn't going to help stop the brain from firing off too much electricity. A few of mine happen at 3am.
I have Myochlonic seizures - word for word cereal spill and clumsy teenager. 2 years I was described as a clumsy teenager, before a Myochlonic seizure dropped me to my knees and I was taken to a neurologist and diagnosed.
I've been in the hospital for 3 days. I missed my methadone appointment and my cab driver called the fire department on me to check up on me. I thought it was regular sick just the stomach bug or something but over the course of the last 3 days I realized that I've been having seizures for the last 3 days I thought today was Wednesday and it's Saturday I've been getting those Goosebumps I've been getting those crying spells I keep going from super hot to super cold I sweat through all my clothes and I peed myself in my sleep. And my muscles are so sore but they said my kidneys were severely dehydrated from the seizures and when I drink water or soda milk or whatever I have a hard time controlling how fast I drink. The tip of my tongue is all numb so I know I was chewing on it when I was unconscious and there's blood all around my mouth and I keep pooping out blood. I don't know if I was having all these types of seizures at the same time or what but my memory is finally starting to come back to me after day 3 of seizures. That's a long f****** time to have seizures. I had all the types of seizures that he described in the video from the seizing up seizures to the emotional seizures Etc. I'm so thankful they're starting a subside I couldn't take it much longer..
I'm so sorry that sounds horrible. I hope they can help u with ur seizures. I gotta wait 2 months to see a dr about mine but I'm probably going to call 911 the next time I have a really big one (fall, flop around, lose control of everything including my bladder, even gnashing my teeth). I'm so tired of not getting answers. This video was so helpful to me in understanding what is happening to me.
There's a video that basically says that low minerals and eating high amounts of sugar cause seizures. I can send it if you want. Keto diet is very very effective at treating seizures
There's a video that basically says that low minerals and eating high amounts of sugar cause seizures. I can send it if you want. Keto diet is very very effective at treating seizures
I know a guy who has these weird ones where he'll just pause for 10-20 seconds. Didn't seem to have any ill effects the one I witnessed, though the fact he just stopped mid-word like someone hit the pause button on him was really disconcerting. He said the only way he even knows he had one is because from his perspective suddenly everyone in the room changes position in a snap.
Not letting it stop me my seizure conditions, I have stopped having the major ones with doctors help like yourself around the world and places that I have spent long studies doing testing like the MRI and EEG. My epilepsy has been contained to a lower standard and I am able to spend my life doing things I thought I couldn’t dowith my family
Im going to a neurologist in a couple of days. I had a grand mal back in August in class and scared my classmates so bad. My family has been trying to get an appointment since then, we finally got it
Great video, I wish I had found it sooner I’m 62 and didn’t have any symptoms untill I was 54. I started to get strange sensations, and would get a bit nervous and confused. Doc said it was depression and put me on SSRIs. Didn’t make any improvement, then after 18 months I hit the office floor with a grand mal. Ambulance case / neurologist diagnosed left temporal lobe epilepsy. I have been taking Keppra ever since, and haven’t had another grand mal, but I still get occasional weird feelings of confusion, say every 3 or 4 weeks. The neurologist is not concerned about these “absences”, but I would like them gone Any advice anybody?
Hard to tell without evaluating the patient If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org
I have questions that my neuro doesn't address: Having been disgnosed with epilepsy at age of 57, after 2 tonic clonics in 2019 & another 2 t&cs last year. Before each one, I would have a sudden feeling of unwarranted terror that made me cry out uncontrollably, quickly ensued by the big TCs. My neurologist has never asked about, or even addressed these focal seizures. Also, I have become so photosensitive that I can hardly even go in the garden if it's sunny because it fllckers through the trees, & that's with dark polarised sunglasses, because the light comes through the sides of them-I get an instant feeling of rising nausea & feel awful disorientation. My neuro has me on 200mg of lamotrigine twice daily, which has had a great affect on the TCs & the screaming terrors- after trying keppra & epilim. My main question is, is it common for photosensitivity to develop alonsgside other seizures in late- onset epilepsy? Although, thankfully, my other seizures have been well controlled with meds, the photophobia persists & my neuro acknowledges it, but shows no interest or concern, & offers no advice.
I’m curious too- did you find any info? I think I had an atonic one the other day- when I laugh or have strong emotions i lose my balance- atonic I believe, I’m book appt today- I’m freaked out
Hi I’m from VRA and seeing your videos for the 1st time. This video is very informative but lots of information. Can I suggest you make a video in each one of these types of seizures? Go more in depth on each and how to know if you have them? The list on right that pops up goes away so fast that maybe you can explain each one on the one specific seizure topic video. That would give you many videos to branch off on. Good job overall! I’m subscribing since my dad is a diabetic and sounds like he may have experienced some of these ( hopefully not) but I want to be informed to help him. Thank you!
Thank you for sharing your experience... This is a great idea.. I think I have so many ideas for epilepsy to talk about... I am currently trying to cover all the basics of epilepsy diagnosis and treatment then I will branch in details once this database is done... I hope your father feels better soon... #VRAFam
I had a seizure 8 days ago and had my eyes shut for the 2-3 minutes, and once I had my face wiped with cold water, my eyes opened wide and from that point I remembered slights and bits of everything. Hospital doctors tried to just say it was epilepsy since I did have one 5 years prior. But after reading online it seems closer to PNES, anyone agree ? Both seizures I had . The one I had 5 years ago, and 8 days ago, I had them at most 10 minutes after waking up
I was diagnosed in 1988. I started with impaired awareness and absence. After 13 years of control, medication stopped working. I developed focal awareness as well. Over the next 17 years, I developed myoclonic and secondary generalized tonic clonic. A VNS was implemented in 2018 and has really helped me. I had one year of controlled seizures until a medication that was affecting my liver was reduced. Since then, my seizures came back, but are less active. Focal awareness, impaired awareness and a new type of clonic seizure developed on the right side of my face (it always clusters). I also have Non epileptic seizures (NES or PNES). My epileptologist is considering adding an RNS.
I started having seizures when I caught meningitis B in 2021. My doctor didn't know what type of seizures I have but I'm on Keppra. I think it's unknown conic type seizures. I wish 🥺 I knew?
My son had abscent seizures when he was 4-5 years old but thankfully went away. Unfortunately, he started with myoclonic seizures when he was 10. He had them really bad at 11 and now at 13 still has them but much more mildly.
I have complex partial seizures with generalization, and recently, my doctor has linked it back to a possible caused by Hemiplegic migraines. Once my migraines started to be treated, I found that I started having fewer and fewer seizures.... mine normally starts out with a headache as my arua for days I would headache and then eventually I would have a Seizure. My seizures start off with me sometimes blank stares and picking at my clothing. Sometimes I recover from that sometimes i dont, and that's when it moves to another level where I be picking at my clothing, then shaking on one side of my body, then I would block out, and it goes into full generalization seizure where I will not remember anything that happen before or after and normally has to be told has to what happen. I don't bite my tongue nor wet myself, and this had been my burden for 16 years now... I used to hate it as doctors here never treated patients well with this condition, which made me feel bad... the medications did not help and it took years for me to find the right medication that really help me even though I am a non compliant patient for a reason due to my work which I explained to them. But the doctor I am now working with, she was able to find and pinpoint a possible trigger for the seizures and medication that helps.
something happened last year, that i keep thinking about and i dont know what it was. so ill ask here. i was going to a first aid course meant for just one day, the room was quite stuffy as the windows were small and there where a lot of people. i had started feeling very dizzy for a while ut too anxious to ask to go outside. as soon as there was a break, i went to the balcony and sat down, i could recognize that i was very close to fainting, i started tearing up slightly. the instructor came to call everyone back into class and asked if i was ok, i could only nod no. and started shivering all over and crying. the shivering felt almost like there was an electrical feeling in my body?? it started on my legs and arms and went to my hands and face (specifically my cheeks and arounds my eyes) i was very scared. nothing like that had ever happened to me before, i was crying out of fear of what was happening. the instructor was very nice and was telling and asking me things so i didnt feel alone, she told me to call my dad to come fetch me and maybe take me to the hospital if needed.. i never faited or lost consiousness, or if i did it was for such a short time that it went unnoticed eventually it started slowing down and i started feeling a bit better and stopped shivering. and shortly after i just went home and lay on the sofa. my mother simply said it was because of my low blood pressure.. but i dont know about that. i wanted to go to the doctors about it but i ended up not getting the chance to. i still wonder what that was.
can you have different types, like focal and emotional? When I was first diagnosed I was diagnose with focal epilepsy but I was also having panic attacks that got better as my body got use to the treatment.
I have a little brother who has seizures mainly focusing on the head (the part of the body that jerks the most). His eyes sort of rolls back and the body kind of gets loosen up as the head jerks, it’s very random but sometimes happen rapidly(occurring every 5 mins back to back). He tends to lose grasp of the situation and needs time to regain what just happen at that specific moment.
I'm sorry to hear about your brother. Please be aware of status epilepticus. If seizures continue back to back and the person does not recover in between, this can be a very dangerous situation. I don't think youtube allows me to post links, but if you google "Status epilepticus" you can learn about this. I will bet Dr. Danoun probably has a video about it as well. I wish your brother the best! By the way, there are different classifications of Status epilepticus - there is convulsive status epilepticus (such as with tonic-clonic seizures) and non-convulsive status epilepticus (such as focal aware seizures). They have different metrics on how long the seizure activity goes on before it's considered status epilepticus. I do not know the most current guidelines, please best check with a epilepsy specialist to know. It is very dangerous and a medical emergency.
Don't jump to conclusions. It could be seizure clusters and in either case u need seizure rescue meds and how I know this is because I have epilepsy and i have focal to bilateral tonic clonic seizures and frontal lobe seizures and if his loved one was really having seizures with no recovery in-between his doctor would give them rescue meds because of how dangerous they are and anytime u have multiple seizures in a 24 hour period they require hospitalization
The seizure i can describe is the one of my hb's, which i observe daily (unfortunately). He freezes on the spot for 5-to10 sec, is completely irresponsive, can't talk, blink, or anything- like a human statue. He always loses bladder control, (even if he did't drink any water) and at the end sometimes picks on his clothes, (as you say in the video), but he retains conciseness he says-he sees everything, but can't react. After that sometimes (not always) he is angry for about 15min-to half an hour. Is it common? I don't find it nowhere described, we still don't have a name for it, so we call it a "startle", bcs in the beginning it happened from some loud noises or moving objects...now just without any reason. Doctors say its "petit mall" and dat isn't a lot of info... My second question is: why many ppl have dejavues, goosebumps from hearing some music, ...or hearing some story, trembling eyelids too, visual disturbances (could happen also from so many things like blood sugar, blood pressure etc..) does it mean that all of them have epilepsy?! TNX! 💟
What seizure starts in early childhood that can be misdiagnosed in childhood for night terrors. Then eventually starts with a few minor almost unnoticeable seizures during the day. Now constant at night and day massive memory loss or trouble walking from leg "pain" gait. Carnivals, light on water, car rides in sunny days, fireworks, and staying up late all bring on.
Hi doctor I’ve been having seizures since I was 13.. since than I’ve been having it one every 3 years but growing up I would get them more frequent like 1 at year , now I’m 28 yrs… I did a lot of test (EEG, MRI with contrast) but everything it would show normal… I would like to describe you what it happens to me when I have the seizures, and I would like to know from you what kind of seizures, epilepsy do you think I have! Thank you
I just got out of hospital. I had 4 seizures and all I remember is one night having to urinate multiple times and having this feeling like I was having a panic attack. Well, I woke up in the hospital puking and apparently I was thiiiiissss 🤏🏼 close to being sent to the psych ward. I was not in my right state of mind for over a week. Don’t remember any of the seizures, don’t remember talking to imaginary people or screaming randomly things like “he’s gonna shoot me!” I do remember feeling like I was stuck in a nightmare though. And then there are memories of waking up and being completely sick, but because I wasn’t eating, I wasn’t throwing anything up. Just dry heaving. Horrible experience. And the more that I think about it, the more things come to me and I have to right it all down for my next neurologist appointment. I am on Keppra, Neurontin and Trileptal. Up jext, a 3 day long EEG monitoring. I’m nervous but glad to still be alive.
I have sensory: wave like sensations going through my head. Tingling in arms and legs and rollercoaster feeling in stomach Nocturnal: wake up and scream and lay back down. Usually see some hallucinations Emotional: agitation, extreme fear Motor: jerking of left arm, trembling of face on left side. I also get a spacey feeling and my brain slows down. It feels like walking in jell-o and I forget how to say words .
I had a grand mal seizure last year, the doc at the hospital said I dont have epilepsy, but Ive had several (short 2-3) min seizures since then. Sometimes I get that weird aura feeling and stay conscious. Whats wrong with me?
My son is 18 just diagnosed with Lennox gastaut syndrome its been devastating hes had tonic clonic, absence, myoclonic and now atonic where he drops to the floor. He's desperate to keep working at his job in IT support but i really fear for his future 😢
I have absent generalized seizures. I have had seizures ever since I was 17 years old. I am 56 years now. I take Keppra valproare 7.5ml. Does Keppra cause you to be violent? I was told I get violent at times. My seizures very. I will have a seizure then I'm able to stop them. When I have a aura my hands shake, my heart beats fast. My legs start jumping. I will feel like I'm looking at myself outside of my body. I will have a seizure one day then I will be able to stop them. I will go a few days without having one. I have had epilepsy surgery. I have a vegal nerve stimulator. They didn't help me stop my seizures. Do you think vitamins vitamin D 500-2000iu vitamin D6, ( pyridoxine) Folic Acid(1-4mg) Omega 3 (fish oil) cbd oil would help? Magnesium deficiency 300-310 for women? Do you think me looking at my phone or me looking at a computer screen will trigger a seizure? I watch from Fayetteville N.C.
We need to bring awareness towards seizures/epilepsy so others can know how serious it is. I have generalized tonic-clonic seizures, absence seizures, and Atonic seizures wrapped in a box. When i was 8 it was absence but then tonic-clonic developed. Then it stopped for about 3 years but it came back even worser than before. I developed atonic seizures after l had a tonic-clonic which caused bad bleeding head injury on the concrete hitting above or in the right eyebrow. 12 stitches.
Thanks for the video. It's very educational .can we have seizure but conscious we can talk? I know some one who had numbness.but he can talk and he was aware of surrounding
Hi Dr. Danoun, I've had several eegs, but had my first (i guess positive) reaction to one last week. It's still really scaring me. I haven't seen my doctor yet, or spoken to a doctor about it at all, so I also haven't received any insight on what might have happened to me. One thing I have to mention is that I didn't arrive to the appointment very tired. I've had a hard time sleeping lately, so when I can grab sleep I take it, and had about 7 hours of sleep instead of 4. So I was well-rested. I also wasn't anxious. As I said before, I've had eegs numerous times before. The tech did ask if I was anxious because my heartbeat was fast, but that's very typical for me, so it wasn't anything unusual. The start of the test was pretty unremarkable. I had some twitching in my body, but that's also not unusual for me. I have a lot of sleep-related movement issues, like periodic limb movement disorder and restless leg syndrome. Myoclonic jerks are kind of normal for me. I also have hypnopompic hallucinations, although these happen infrequently. The issues didn't start until the flashes. At first it was just twitching, but I didn't think anything of that because my face twitches a LOT. The twitching started to get dramatic around the third or fourth flash. It was out of control and starting to freak me out. It wasn't long after that when the top of my face completely locked up. It was like I was being forced into an angry face, except I could still speak. All my upper facial muscles INVOLUNTARILY stiffened up to the point where it should have been painful, but I don't remember feeling any pain. I also don't remember losing awareness. Since then I've just felt strange. I'm having a lot of localized scalp tenderness, but it seems to be in the back of my head. I was given the eeg after ongoing temporal/orbital pressure/pain, tinnitus, and an unusual burning smell. I've also had major hearing loss in my opposite ear. Is what happened during the eeg a seizure-like response, or is there another condition that would make your facial muscles involuntarily stiffen?
Definitely have tonic seizures, where it feels like I'm about to yawn but my body almost stretches or all my muscles tense up automatically or involuntarily. The seizures which made me go get help were myoclonic. They started out as full body shocks with muscle contractions.
@@Ricky-k5h I've tried to explain my symptoms to my neurologist and he just shrugs - epilepsy is a heterogeneous syndrome that can appear very different from case to case. FWIW, there is a difference between tonic-clonic seizures, tonic seizures, and clonic seizures. Given that I have been formally diagnosed, take the medication as prescribed, and even see how it reduces the frequency of seizures, I think it would be fair to say that I'm trying to understand my condition better rather than seeking attention or self-diagnosing.
My first seizure was at 17 and it was grandma and I was Put on depoka then from there I started having focal seizures was put on different meds didn't work now I'm zonimade and xcopi and they both are working gabapentin for nerve pain
Many thanks Dr. Omar...My daughter of 4 yrs has these general seizures she holds her hands towards the chest and strains to be free for just 1 or 2 seconds. It has happened 3 times in month...Kindly advice please. I can send you a video of the seizures.. thanks
Uh I have the worst I just had one this morning. My tounge is so bit up I can't speak and I have no memory since yesterday. Epilepsy is a horrible awful disease. I wouldn't wish it on anyone....
@OmegalInstacom omg yes I for the most part have nocturnal seizures. So I'm afraid to go to sleep at night a lot. I mean I have full on grandmal so sometimes I'm afraid I won't wake up. It's scary and causes so so much anxiety it really sucks. I really don't think most people understand how hard it is to live with epilepsy like I can't drive but I still work so I have to depend on rides and I hate feeling like a burden
@@scarasaraLol it's like we're the same person. I can still talk but my tongue was bit to hell from my seizures last night. Weed vaporizers are the last thing I can remove from my life until I have no idea what can be causing them. I'm taking almost the maximum dose of Keppra you can have now. I need my license back. Fingers crossed these next 6 months.
Thank you for this video! I have been experiencing "deja vu" seizures my entire life. I did not know they were a type of seizure. My surroundings begin to look EXACTLY like it did previously, I cannot move, my eyes move and my lips "smack" oddly, I am aware of what is happening and know that it is not really deja vu. Afterwards, I get a headache and massive brain fog. Is it a seizure? Maybe a petite mal seizure? Is there anything I can or should do?
I think I may have PNES, however I'm unsure how to get treatment for it, or have anyone believe me. I've only had two gran mal seizures, the rest of the ones I've had are more, like panic attacks, but I shake, I can't move, I'm aware, Can't breathe, Can't speak, and they last anywhere from five to thirty minutes. I saw a neurologist for years and they couldn't figure out what was wrong.. This has put my entire life on hold and I'm not sure what to do. I have no insurance anymore and I can't really afford to go to a doctor regularly. If you have any resources that you could recommend I would greatly appreciate it.
Story of my life this is exactly what I’m dealing with. I currently am seeing a different neurologist going under some test so I’m going to see what they say but I do believe that I have PNES but I am seizing.
Dr Oman Would you please look into two videos for me? 1) On unusual seizure types... I struggle to find information on tonic, clonic or atonic seizures... I think I may have myoclonic ones but the descriptions I can find don't line up exactly... I have automatisms during what I suspect are tonic seizures... Where my muscles tense or my body stretches and I may tap my feet to the ground or tap my body with my hand Involuntarily but remain conscious... Sometimes even hold my breathe or call out Involuntarily... I almost never lose consciousness. 2) My mother has had early-onset Alzheimer's for a long time. This was only found out shortly before I was diagnosed due to what sounds like myoclonic or clonic seizures - I get electrical zaps throughout my entire body which have lessened since the stress from her diagnosis has reduced (stress seems to trigger these - even exertional stress - when I make it to the gym - I have many of these but now usually my upper torso contracts Involuntarily, almost like a hiccup but both my arms twitch) but more so since being on medication. I found a bunch of articles linking getting diagnosed with temporal lobe epilepsy in adulthood (I was diagnosed with this at the age of 30, shortly after an ADHD diagnosis) and links with familial Alzheimer's, which I know is almost always early-onset in nature. Her father probably had it too, and I know my mother has had it for over 15 years, despite only being diagnosed at 62. 3) Can you do one last video on epilepsy and ADHD medicine. I know as a side effect and contraindication for many ADHD medicine, triggered seizures, a lower seizure threshold, and a history of epilepsy with respect to SUDEP are all mentioned. The studies I skimmed through (I couldn't read them properly) which indicated that ADHD medicines increases the frequency of seizures were not well-powered - i.e. The sample sizes were small. I have seen some anecdotes where in specific cases, ADHD meds were clearly a trigger on the r/epilepsy sub-reddit but have seen better designed studies with larger sample sizes showing no significant increase in the frequency of seizures.
🗣️I have a question and I hope I get an reply but first I have to describe it; just walking around and for a quick second just blank out but come right back to in that same second but don't know why it happens a lot is there a word for that or is it called something? Thanks I hope I get a reply
Hi Doc. According to my dr.base in my MRI results i have mild left messial hippocampal atrophy which cause seizure for myself... Is it my situation can heal through neurological surgery???? Thanks for your reply... God bless and more followers to your channel!!
I have general type of seizure . It happens once in 2 years or more. And I faint with shaking the body. When I wake up I have a severe body ache. I get tegretol 400 for more than 20 years.
I am 39 years old and have myoclonic seizures, and they end up causing me to have tonic clonic seizures afterwards if it's too extreme. So yes, this is mostly in children but I was diagnosed when I was 34.
What when your body seems to stay in the phase of the “aura”-you stay in this feeling of fear in the top of your stomach? The actural seizure need not accrue every time, but this intense warning is always there? The feeling is in the “solar plexus” as I have been told and it is much worse than the seizure itself because it makes you so afraid? It’s like it’s “teasing you”! What exactly is this fear and what can be done to eliminate it? I would give anything to be free of this “fear” once and for all! Is this still “Deja vu”?
My son has focal seizures and generalised and are drugs resistance. He is on 4 different anti seizures but no help so far. He has slow development not able to sit or crawl he his one year now.
First time seizure 41year old, while 2hours, no drug, no smoke, no alcohol, every test CT, EEG, MRI. They can’t find doctor said everything fine. Let me know any advice please.
I think I have more focal as I have more frontal symtomes. But they say I have genetic generalised epilepsy. And myoclonics. Like I can feel depersonalization staring blank. I can talk but it's hard to and I can move. My arms usually tenses up. That's my common one
I have partial seizures tonic clonic. I lose consciousness and start smacking my lips and moving my fingers. Then I come right back. I started with fear then anxiety then extreme anxiety. Which developed into seizures
At 28 i started having absentee seizure symptoms and my doctor immediatly sent me to cardiologist and spent 2 years unmedicated being tested every way but correct and was until had a very bad absentee in front of cardiologist and he got pissed and screamed at the neurologist i had seen. The neurologist told me absentee doesnt happen in adults at all, so im wondering if i had it my whole life and never knew.
Optic Nerve Glioma without Neurofibromatosis Type 2 since birth. Now 29 year old female has seizures, legally blind lots of migraine headaches. No life only pain and suffering. Help.
Ive had one clonic tonic, but before that I had small focal seizures... but now the small focal seizures i have are emotional, memory and sanity type. Feeling high, tired or jolts, heat flashes and eye rolling..., mine starts in the right frontotemporal region...fun
My daughter has focal unaware seizure, She's been on Clonazepam, carbamazepin and phenobabitol as well as DHA emulsion for over 2yrs now but her progress is very slow. My concern is are we on the right medications?
Thank you so much.. I am from South Africa my boy is 12 yrs . Seizures stops since he was 5yrs. Now the problem is he does not cope at all at school. Must i be worried
Thanks Dr. Omar very much. I am Palestinian too. So proud of you. My seizures are nocturnal. I was diagnosed when I was a child 37 years ago. Never had a seizure during the day. So what type of seizure is mine? I am so lucky I will be admitted to EMV in March because I started to have lots of seizures sometimes 9 in one night especially when the Dr stopped Tegretol and put me on Lamotrigine with the Keppra. I will let you know what will happen with me. Thanks Salam
Asalamu alaikum brother I have had seizure only during sleep too but I get them after every 3 4 months not daily of weekly, I hope you are doing well now 🤗
Showed my doctor several videos of the seizures that happened out of nowhere at 34 years old. Deja vu and numbness, feeling of terror. Lost consciousness. Video we caught it showed both eyes fixed in one location (upper right) and drooling profusely. My doctor saw this video and said “nah, looks like a panic attack.” ARE YOU SERIOUS. Told me to see a counselor.. Then she saw the one that we caught that was tonic clonic. Then she said “oh yeah! That looks like a seizure.” I am floored. This is what I’ve been telling her for a year! So crazy..
My husband had a TBI due to a fall, not sure if when he lost consciousness was due to a seizure but he hit his head really hard and he had a full body seizure. His brain moved for a total of 14mm the oposite direction. This past week nuero said he was ok since no incident since his first seizure, and had one a few days later while driving.
He doesn’t remember anything obviously. While he sleeps he jerks a lot, even before he had his first accident. We just took as restlessness. Now not so sure
I am from the Wesport in Ireland you are excellent I have a question as a person starts to get older can seizures move into a different area of the brain ...with thanks .
Very informative video. My 2-year-old kid jerks in sleep a lot, especially after 3 am in the morning. This happens every 15-30 mins. Paediatric neurologists said that this is "benign sleep myoclonus". How to differentiate between a seizure and myoclonic jerks?
Thank you keep posting videos very much enjoy knowing there is hope . I have sensitivity to flsentent lights its like flashes light on off or sunlight seeing a puddle I think I'm moving numness staring but can talk.I find brazing glasses helps I work with strobe lights all day. but unsure if has to do with mild cp. my neck hands numb legs stiff muckles .
My seizures were all at about 9 am and I just have sudden loss of tone and bumped my head and my shoulder and also had a big seizure and fractured my Vertebrae in two places. It's very strange as I was healthy till a few months into 50 years old!
I have recently had several episodes of dizziness/fainting/loss of muscle control, and after going to the doctor, they mentioned some thing about the cerebellum? is it possible to have a seizure in that area of the brain and if so, what does that look like?
He could of meant that you have a an issue with your cerebellum which is causing your symptoms, I recently found out from a Neurodevelopmental Optometrist that I may have a cerebellum dysfunction and I have the similar symptoms to you except for the dizziness.
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Hello Doc.. my 8yr old son have focal epilepsy, in his 1st yr taking medicine i though he was aeizure but but last april his seizures back and its almost everyday.. sometime its start with his face like i though he was auffer a atroke.. it happen 4 tims, then this august we back to his doc because there are many time till this daymy son fall.. even the doctor gave another med .. what should we so.. hoping u can help..
We are from Philippines
I have diagnosed hydrocephalus in the back horns and empty sella. Recently I go down neurologically fast. Including partial reversible paralysis and now I more often have things like...l all of a sudden start sreing weirdcolors, my head drops,eyes tend to close and then I notice waking up suddenly after maybe seconds. Feeling weird, not knowing what really happened,just remember seeing that colors. Could it be related to the back head hydrocephalus
@DrOmarDanoun please make a video on pseudoseizure as well as epilepsy transformation into other types. Like i was diagnosed with partial epilepsy 22 years ago which is now transformed into pseudoseizure. None of my neurologist explain this.
Thank you!!
Oh yeah I would get huge episodes of de-ja-vu mainly relating to dreams I could have SWORN I had they feel so insanely real at the time and then when I wake up in the hospital a few hours later. I'm getting pretty close to the max dose of keppra I can be on. I'm pretty sure the weed and vaporizers are to blame. I'm running out of any other ideas.
why can’t all neurologist be this knowledgeable! my poor son has been dismissed over and over by neurologists & ER MD. i don’t know what else to do 💔
Call st.louis barns and ask for a appt and go to them the big barns near the children's hospital if you call the children's hospital you can get in there and see a nurosurgeon
They saved me I had second stage glioblastoma and they saved me so it'll be best if you do that and if he's got Medicaid they can get Uber drivers and stuff to drive you guys there and back just set up the appt then tell them and they can support you
@@danielterry681by chance were you misdiagnosed with PNES prior to the diagnosis 😬my niece is having seizures outta NO Where and the neurologist says it's PNES we feel something is really WRONG 😢
I'm 84 - dob Nov 1940. Just diagnosed in Jul 2024 in the ER at Hospital - he is a young Doctor - 37 yrs. young and due to my previous 3 'mini stroke' diagnosed at hospital stays, and him witnessing a 2nd episode I had in the ER in Jul 2024 - his diagnoses made absolute sense to me. Very few Neurologists in Colorado Springs. Only had initial appointment so watching all of your informative videos - and now knowing family research is very important. It is a gene is so many. I think. This field of study, and continuing study is vital and necessary for all. Thank you, thank you, thank you and Blessings for your work to and on behalf of for the greater good.
I hope you receive continued help with seizures. His videos are so helpful. Due to just being diagnosed I want to share with you that my Neurologist's didn't have the knowledge Dr. Danoun has. I've shown my Mother this video because he explains the seizures I have and had so she can understand.
I was diagnosed with temporal lobe refractory epilepsy, just had 5 seizures 2 days ago. I just got out of the hospital, they had to give me adivan to stop the seizures in the ambulance. Luckily I can go for a temporal lobe resection to hopefully stop the seizures, I honestly wouldn't wish this on my worst enemy
Same here I know the feeling
@dazmindleon stay strong brother
I wish you the best with that. I had a left temporal lobectomy 25yrs ago and it was a successful surgery. I was on the maximum dosage of meds to control the seizures, but it wasn't working so surgery became the only option & I'm glad that it worked.
@rickeymiller8998 2 weeks after my surgery I'm absolutely blown away at the difference it has made in my life. I'm so glad it worked for you also
I started having Grand Mal seizures in my early 20's and the doctors could not determine what was causing them. I even ended up having brain surgery to remove a large cyst they had found on my temporal lobe, however, the seizures returned shortly after the surgery. Now I was in complete desperation mode, losing hope and tired of feeling like a zombie with all the sedative drugs I was being prescribed. I then realized that God was the only one who could help me and after praying for about 8 months or so, his answer came to me at a 711 convenience store early in morning. I had purchased a coffee and added a non-dairy creamer to it and after only a couple of sips it started to give me my usual pre-seizure warning signal, which was a weird deja vu feeling. I then realized that it had to be something in that creamer since coffee itself had never given me any problems. It was the preservatives in the creamer(since it was non-dairy it required something to preserve it). So, long story short, I no longer eat anything with food preservatives, take no medication of any kind and 30 years later I am still seizure free! I thank God every day for giving me this insight because when I told my medical doctors about my discovery all of them ridiculed me and said that the acids in my stomach would destroy the preservatives. This was apparently not the case and later through my research on food preservatives I also found out that most of them are even carcinogenic. I hope this can possibly help at least one person out there as I know the horrible situation it is to have seizures.
I took ballet in my 20's to try to keep my friends from calling me "Grace"! Haha! I've always been clumsy, but I don't fall. I was a pro soccer player for years without incident. I have Myoclonus Epilepsy w Red Ragged Fibers (MERRF). I'm now in my 60's and am FINALLY getting some answers to what has been going on! I wasn't diagnosed until a car wreck triggered full blown Gran Mal seizures. It took many years and a muscle biopsy to get to the root of the problems. Thank you Dr Danoun.
I have multiple types. Medication quit controlling them so now they just kind of exist. I wish I would have a good neurologist like you I’m glad you make educational videos to help spread awareness.
Have you tried Keppra
I’m so sorry . Hugs
I have so many of these! People need to be more aware of seizures and what they look like. For example, an absent seizure My eyes used to roll back. Now, I just stare. I was diagnosed in 1996 with juvenile myoclonic epilepsy. But, as a 5-year-old in school, I would stare out the window a lot. My doctor (an ADD/ADHD specialist in the 80s) was quick to diagnose me as having ADHD. My mother said all the doctor did was have me raise and shake my hands. Right away, he diagnosed me. Put me on Ritalin. which my parents said I acted like a zombie while taking. They took me off.But what if, the whole time, I had JME? And was I misdiagnosed!? I think that all the time.When I first was diagnosed with generalized epilepsy, I had bad Myoclonic jerks, staring spells, and times where I would just fall to the ground. I would not have a tonic clonic but loose muscle control if I were in a store or holding something. Things would fly across the room. As I got older, I just had jerks. Very rare, too. I gave birth to two healthy children. My first all while taking name-brand medications She was perfect! My second, in 2010, I used generic medications, and she was born full term. But she had so many birth defects. I did everything by the book with both pregnancies,too.My seizures were under control until about 2010. Then they got worse. I was having Deja Vue; anxiety would contribute to my seizures. Since then, I can’t look at bright lights or blinking lights. I have to meditate daily and avoid any kind of conflict or confrontation because they make my anxiety level shoot through the roof. I also take depression and anxiety medications. I really wish schools would teach seizure first aid! As well as the general public! This is something that needs to change!
Getting diagnosed after 30 has been so hard for me 😭😭 I always knew there was something wrong and used to describe it as electricity in my brain… for years my complaints was just attributed to panic attacks till the myoclonic seizures became more intense and uncontrollable..
Hi, I'm going through something similar on my end. I'm 26 1/2 and definitely feel like my symptoms are seizure-based and not panic attacks, "electricity in my brain" is a good way of articulating the sensation. Are there things you did to speed up getting a diagnosis (or just getting tested, etc.), and were there particular tests that were important in getting that? Any info would mean a whole lot to me, but in any case my heart goes out to you!
Dr. Danoun, this is eye opening information the doctors I’ve seen brushed off several of these symptoms I have. I thought I was going crazy. I greatly appreciate the information. God bless you.
I am very glad that you had this video of about epilepsy and sezisure (. different type of sezisures.
Have you ever experiences seizure cause by digestion? My seizures are only the night ones, but always following after not fully digested food in the stomach and I could not find any specialist so far to have a consultation about this. Thank you!
I get panic attacks and this info is full of THESE NONE EXISTING FEELING BUT I MUST LEAFN FOR MY SON’S HEALTH 😢😢😢
Traurig....wir haben es auch. In der familie😢
I started having gran mal seizures in 2020. Before or after my cycle is when they come . Some months I am seizure free and some months I can have several seizures a month … I’m still learning my triggers but I definitely have them during my monthly cycle
I too would have gran mal seizures that started 3 days before menstruation. I might have 1 in that cycle or ten. When my last child was born 12 years ago I had a blood/sepsis infection in my uterus and had a huge procedure done which rectified my endo at the same time. After that I went nearly 12 yrs without a real period (1/2 day spotting only). 6 months ago after a catastrophic blood clotting event my periods started up again and I am now feeling the dreaded tickle behind my eyes that indicates a seizure for me so I fear they will start up soon. I have always had absent seizures still which I call micro blackouts
Cut out sugar… it helped me alot.
Hmm interesting. Do you think there’s some correlation with Covid maybe?
That’s why I’m on the pill and have the implant, I still get fits but not as oftern
How do you cope?
My brother was taken to hospital on Thursday after he had a seizure for the very first time at least the first time I saw it and broke his ankle , he has been having these little attacks for quite awhile now but Thursday was the worst I am finding it hard to cope right now, his is still in hospital at the moment.
Thanks for the video. I personally know tonic-clonic seizures very well, but only since I was 35 years old. Before that I had intermittent deja vu + goose bumps moments for years, but this was never investigated. I now know focal seizures that are accompanied by smacking. Since switching to the drug Vimpat, tears have often come to my eyes several times a day for no understandable reason, alternating with goosebumps. Unfortunately, it is currently very difficult to find a decent doctor here. Nothing was found during an MRI in 2019 and the only EEG so far also remained without findings. Thank you from the bottom of my heart for this helpful information. ❤️
My pleasure... I am so glad to hear that the purpose of the videos is finally done and reached you
Thank u for the vedio. I have absence seizures it affects my eyesight , flashing lights, dizziness , bubbles , also lip smacking and goosbumps on my left hand . Im on lamitrogine and keppra medications . What is ur advice for me doctor?
I have dejavu a few seconds before my seizures
It started with anxiety then it worked it’s way to seizure. Tried everything Nothing worked for me until I was prescribed depakote. Which was working But according to the doc it was damaging my liver so I was switched to Vimpat and I’m fine but I suffer from anxiety from time to time. I reduced my caffeine intake and drink more water and I feel better no seizures. But anxiety comes to visit from time to time
@danielroccisano9476 me too and I didn't start having seizures until I was 24. I and the doctors have no clue why.
Have been diagnosed with 3 different types of epilepsy by my neurologist. Have had seizure in Walmart where I thought I was home getting ready for bed. Well turned out I was arrested for indecent exposure.
So sorry
Wow, I didn't know there were more seizures than the shaking one. My co-worker had that type.
Hey Mr
Yeah, there are several types of seizures. Please spread the word.
Even the photo-sensitive/flashing-light triggered epilepsy is very rare.
Absolutely!
This kind of information needs to be more common knowledge. I had no idea what a temporal lobe seizure was until I had one at work and found out the “episodes” I had been experiencing were seizures.
Your content has helped me a lot. Thank you.
For over 35 years now with types of seizures changing the doctors just said it's epilepsy, not a certain type of seizure as your videos so it's not epilepsy. Now I know I have Deja vu causing my seizures as your video shows. I was told by a non-medical person to massage my neck to stop the seizure from happening but if I don't massage it on time the seizure does occur.
Massaging your neck is not going to stop a seizure that's the dumbest s*** I've ever heard
I have de ja vu before all my seizures too and I'm pretty sure massaging the neck isn't going to help stop the brain from firing off too much electricity. A few of mine happen at 3am.
I have Myochlonic seizures - word for word cereal spill and clumsy teenager. 2 years I was described as a clumsy teenager, before a Myochlonic seizure dropped me to my knees and I was taken to a neurologist and diagnosed.
I think what I have are mild myoclonic or clonic seizures but yours sound so severe!
It's good you got diagnosed!
I've been in the hospital for 3 days. I missed my methadone appointment and my cab driver called the fire department on me to check up on me. I thought it was regular sick just the stomach bug or something but over the course of the last 3 days I realized that I've been having seizures for the last 3 days I thought today was Wednesday and it's Saturday I've been getting those Goosebumps I've been getting those crying spells I keep going from super hot to super cold I sweat through all my clothes and I peed myself in my sleep. And my muscles are so sore but they said my kidneys were severely dehydrated from the seizures and when I drink water or soda milk or whatever I have a hard time controlling how fast I drink. The tip of my tongue is all numb so I know I was chewing on it when I was unconscious and there's blood all around my mouth and I keep pooping out blood. I don't know if I was having all these types of seizures at the same time or what but my memory is finally starting to come back to me after day 3 of seizures. That's a long f****** time to have seizures. I had all the types of seizures that he described in the video from the seizing up seizures to the emotional seizures Etc. I'm so thankful they're starting a subside I couldn't take it much longer..
Hope you get better soon ❤
I'm so sorry that sounds horrible. I hope they can help u with ur seizures. I gotta wait 2 months to see a dr about mine but I'm probably going to call 911 the next time I have a really big one (fall, flop around, lose control of everything including my bladder, even gnashing my teeth). I'm so tired of not getting answers. This video was so helpful to me in understanding what is happening to me.
Thank you doctor
If we can't do eeg how can we diagnose patients with simple partial seizure from complex partial?
I wish i would meet Dr. Omar in person. My boy would heal from seizures 😢. Having seizures for 9yrs is too much for us😢
There's a video that basically says that low minerals and eating high amounts of sugar cause seizures. I can send it if you want. Keto diet is very very effective at treating seizures
There's a video that basically says that low minerals and eating high amounts of sugar cause seizures. I can send it if you want. Keto diet is very very effective at treating seizures
Me too.
@@Abcie3483where is this video? My son has tonic clonic seizures
I know a guy who has these weird ones where he'll just pause for 10-20 seconds. Didn't seem to have any ill effects the one I witnessed, though the fact he just stopped mid-word like someone hit the pause button on him was really disconcerting. He said the only way he even knows he had one is because from his perspective suddenly everyone in the room changes position in a snap.
It’s like someone cut that part of the movie out. It’s really scary because you have no idea what just happened. -In my personal experience.
I’m
Not sure if I’m having a seizure but I feel off in my head it comes and goes but doctors says I’m ok but I know I’m not ok.
Not letting it stop me my seizure conditions, I have stopped having the major ones with doctors help like yourself around the world and places that I have spent long studies doing testing like the MRI and EEG. My epilepsy has been contained to a lower standard and I am able to spend my life doing things I thought I couldn’t dowith my family
Im going to a neurologist in a couple of days. I had a grand mal back in August in class and scared my classmates so bad. My family has been trying to get an appointment since then, we finally got it
I have many different types of seizures, including the ones that you have mentioned.
Great video, I wish I had found it sooner
I’m 62 and didn’t have any symptoms untill I was 54. I started to get strange sensations, and would get a bit nervous and confused. Doc said it was depression and put me on SSRIs. Didn’t make any improvement, then after 18 months I hit the office floor with a grand mal. Ambulance case / neurologist diagnosed left temporal lobe epilepsy.
I have been taking Keppra ever since, and haven’t had another grand mal, but I still get occasional weird feelings of confusion, say every 3 or 4 weeks. The neurologist is not concerned about these “absences”, but I would like them gone
Any advice anybody?
Hard to tell without evaluating the patient
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
I take levetiracetam 500 mg against absence attack and it works and i take lamotrigin against my other attacks
If you are smoking weed, I would stop. Took 2 years to figure out that was causing mine even with almost the maximum dose of Keppra.
I have questions that my neuro doesn't address: Having been disgnosed with epilepsy at age of 57, after 2 tonic clonics in 2019 & another 2 t&cs last year.
Before each one, I would have a sudden feeling of unwarranted terror that made me cry out uncontrollably, quickly ensued by the big TCs.
My neurologist has never asked about, or even addressed these focal seizures.
Also, I have become so photosensitive that I can hardly even go in the garden if it's sunny because it fllckers through the trees, & that's with dark polarised sunglasses, because the light comes through the sides of them-I get an instant feeling of rising nausea & feel awful disorientation.
My neuro has me on 200mg of lamotrigine twice daily, which has had a great affect on the TCs & the screaming terrors- after trying keppra & epilim.
My main question is, is it common for photosensitivity to develop alonsgside other seizures in late- onset epilepsy?
Although, thankfully, my other seizures have been well controlled with meds, the photophobia persists & my neuro acknowledges it, but shows no interest or concern, & offers no advice.
how about the one that occurs during menopause, due to lack of hormones?
I’m curious too- did you find any info? I think I had an atonic one the other day- when I laugh or have strong emotions i lose my balance- atonic I believe, I’m book appt today- I’m freaked out
Hi I’m from VRA and seeing your videos for the 1st time. This video is very informative but lots of information. Can I suggest you make a video in each one of these types of seizures? Go more in depth on each and how to know if you have them? The list on right that pops up goes away so fast that maybe you can explain each one on the one specific seizure topic video. That would give you many videos to branch off on. Good job overall! I’m subscribing since my dad is a diabetic and sounds like he may have experienced some of these ( hopefully not) but I want to be informed to help him. Thank you!
Thank you for sharing your experience... This is a great idea.. I think I have so many ideas for epilepsy to talk about... I am currently trying to cover all the basics of epilepsy diagnosis and treatment then I will branch in details once this database is done... I hope your father feels better soon... #VRAFam
@@DrOmarDanoun Thank you so much.
Can you do a video on seizures specifically related to encephalitis or affecting the basal ganglia?
I had a seizure 8 days ago and had my eyes shut for the 2-3 minutes, and once I had my face wiped with cold water, my eyes opened wide and from that point I remembered slights and bits of everything.
Hospital doctors tried to just say it was epilepsy since I did have one 5 years prior.
But after reading online it seems closer to PNES, anyone agree ?
Both seizures I had . The one I had 5 years ago, and 8 days ago, I had them at most 10 minutes after waking up
Your videos have been so helpful. Thank you.
I was diagnosed in 1988. I started with impaired awareness and absence.
After 13 years of control, medication stopped working. I developed focal awareness as well.
Over the next 17 years, I developed myoclonic and secondary generalized tonic clonic.
A VNS was implemented in 2018 and has really helped me. I had one year of controlled seizures until a medication that was affecting my liver was reduced. Since then, my seizures came back, but are less active. Focal awareness, impaired awareness and a new type of clonic seizure developed on the right side of my face (it always clusters).
I also have Non epileptic seizures (NES or PNES).
My epileptologist is considering adding an RNS.
I started having seizures when I caught meningitis B in 2021. My doctor didn't know what type of seizures I have but I'm on Keppra. I think it's unknown conic type seizures. I wish 🥺 I knew?
My son had abscent seizures when he was 4-5 years old but thankfully went away.
Unfortunately, he started with myoclonic seizures when he was 10. He had them really bad at 11 and now at 13 still has them but much more mildly.
I have complex partial seizures with generalization, and recently, my doctor has linked it back to a possible caused by Hemiplegic migraines. Once my migraines started to be treated, I found that I started having fewer and fewer seizures.... mine normally starts out with a headache as my arua for days I would headache and then eventually I would have a Seizure. My seizures start off with me sometimes blank stares and picking at my clothing. Sometimes I recover from that sometimes i dont, and that's when it moves to another level where I be picking at my clothing, then shaking on one side of my body, then I would block out, and it goes into full generalization seizure where I will not remember anything that happen before or after and normally has to be told has to what happen. I don't bite my tongue nor wet myself, and this had been my burden for 16 years now... I used to hate it as doctors here never treated patients well with this condition, which made me feel bad... the medications did not help and it took years for me to find the right medication that really help me even though I am a non compliant patient for a reason due to my work which I explained to them. But the doctor I am now working with, she was able to find and pinpoint a possible trigger for the seizures and medication that helps.
something happened last year, that i keep thinking about and i dont know what it was. so ill ask here. i was going to a first aid course meant for just one day, the room was quite stuffy as the windows were small and there where a lot of people. i had started feeling very dizzy for a while ut too anxious to ask to go outside. as soon as there was a break, i went to the balcony and sat down, i could recognize that i was very close to fainting, i started tearing up slightly. the instructor came to call everyone back into class and asked if i was ok, i could only nod no. and started shivering all over and crying. the shivering felt almost like there was an electrical feeling in my body?? it started on my legs and arms and went to my hands and face (specifically my cheeks and arounds my eyes) i was very scared. nothing like that had ever happened to me before, i was crying out of fear of what was happening. the instructor was very nice and was telling and asking me things so i didnt feel alone, she told me to call my dad to come fetch me and maybe take me to the hospital if needed..
i never faited or lost consiousness, or if i did it was for such a short time that it went unnoticed
eventually it started slowing down and i started feeling a bit better and stopped shivering. and shortly after i just went home and lay on the sofa. my mother simply said it was because of my low blood pressure.. but i dont know about that. i wanted to go to the doctors about it but i ended up not getting the chance to. i still wonder what that was.
can you have different types, like focal and emotional? When I was first diagnosed I was diagnose with focal epilepsy but I was also having panic attacks that got better as my body got use to the treatment.
Yes possible
I have a little brother who has seizures mainly focusing on the head (the part of the body that jerks the most). His eyes sort of rolls back and the body kind of gets loosen up as the head jerks, it’s very random but sometimes happen rapidly(occurring every 5 mins back to back). He tends to lose grasp of the situation and needs time to regain what just happen at that specific moment.
I'm sorry to hear about your brother. Please be aware of status epilepticus. If seizures continue back to back and the person does not recover in between, this can be a very dangerous situation. I don't think youtube allows me to post links, but if you google "Status epilepticus" you can learn about this. I will bet Dr. Danoun probably has a video about it as well. I wish your brother the best! By the way, there are different classifications of Status epilepticus - there is convulsive status epilepticus (such as with tonic-clonic seizures) and non-convulsive status epilepticus (such as focal aware seizures). They have different metrics on how long the seizure activity goes on before it's considered status epilepticus. I do not know the most current guidelines, please best check with a epilepsy specialist to know. It is very dangerous and a medical emergency.
Don't jump to conclusions. It could be seizure clusters and in either case u need seizure rescue meds and how I know this is because I have epilepsy and i have focal to bilateral tonic clonic seizures and frontal lobe seizures and if his loved one was really having seizures with no recovery in-between his doctor would give them rescue meds because of how dangerous they are and anytime u have multiple seizures in a 24 hour period they require hospitalization
Please let me know what types of seizures you know. Or any other questions about epilepsy
My three child are died from fits please contact me now i have just 1 baby girl and she have tolerate one episode of fits
The seizure i can describe is the one of my hb's, which i observe daily (unfortunately). He freezes on the spot for 5-to10 sec, is completely irresponsive, can't talk, blink, or anything- like a human statue. He always loses bladder control, (even if he did't drink any water) and at the end sometimes picks on his clothes, (as you say in the video), but he retains conciseness he says-he sees everything, but can't react. After that sometimes (not always) he is angry for about 15min-to half an hour. Is it common? I don't find it nowhere described, we still don't have a name for it, so we call it a "startle", bcs in the beginning it happened from some loud noises or moving objects...now just without any reason. Doctors say its "petit mall" and dat isn't a lot of info... My second question is: why many ppl have dejavues, goosebumps from hearing some music, ...or hearing some story, trembling eyelids too, visual disturbances (could happen also from so many things like blood sugar, blood pressure etc..) does it mean that all of them have epilepsy?! TNX! 💟
What seizure starts in early childhood that can be misdiagnosed in childhood for night terrors. Then eventually starts with a few minor almost unnoticeable seizures during the day. Now constant at night and day massive memory loss or trouble walking from leg "pain" gait. Carnivals, light on water, car rides in sunny days, fireworks, and staying up late all bring on.
My epilepsy is made worse by catamenial epilepsy. Makes my seizures cluster and be more intense and more frequent.
Thank you for educating others!! 🤗🙏🕊️💙🕯️
Hi doctor I’ve been having seizures since I was 13.. since than I’ve been having it one every 3 years but growing up I would get them more frequent like 1 at year , now I’m 28 yrs… I did a lot of test (EEG, MRI with contrast) but everything it would show normal… I would like to describe you what it happens to me when I have the seizures, and I would like to know from you what kind of seizures, epilepsy do you think I have! Thank you
Smoking weed was causing mine. Even while on almost the maximum dose of Keppra.
@ i thought that smoking weed would help
I just got out of hospital. I had 4 seizures and all I remember is one night having to urinate multiple times and having this feeling like I was having a panic attack. Well, I woke up in the hospital puking and apparently I was thiiiiissss 🤏🏼 close to being sent to the psych ward. I was not in my right state of mind for over a week. Don’t remember any of the seizures, don’t remember talking to imaginary people or screaming randomly things like “he’s gonna shoot me!” I do remember feeling like I was stuck in a nightmare though. And then there are memories of waking up and being completely sick, but because I wasn’t eating, I wasn’t throwing anything up. Just dry heaving. Horrible experience. And the more that I think about it, the more things come to me and I have to right it all down for my next neurologist appointment. I am on Keppra, Neurontin and Trileptal. Up jext, a 3 day long EEG monitoring. I’m nervous but glad to still be alive.
Hope your doing better
Brilliant video, extremely informative. Thank you doc
Glad it was helpful!
@@DrOmarDanoun your videos are informative, gives us the confidence to meet our neurologist and discuss
I have sensory: wave like sensations going through my head. Tingling in arms and legs and rollercoaster feeling in stomach
Nocturnal: wake up and scream and lay back down. Usually see some hallucinations
Emotional: agitation, extreme fear
Motor: jerking of left arm, trembling of face on left side.
I also get a spacey feeling and my brain slows down. It feels like walking in jell-o and I forget how to say words .
Have you had a proper CT scan?
@ Yes, tons of tests. Still a mystery.
Can a generalised seizure cause jerking movements in one hand? Or is this presentation more compatible with partial seizures?
How to win over seizures and what are medicines available to control it?
I had a grand mal seizure last year, the doc at the hospital said I dont have epilepsy, but Ive had several (short 2-3) min seizures since then. Sometimes I get that weird aura feeling and stay conscious. Whats wrong with me?
My son is 18 just diagnosed with Lennox gastaut syndrome its been devastating hes had tonic clonic, absence, myoclonic and now atonic where he drops to the floor. He's desperate to keep working at his job in IT support but i really fear for his future 😢
I have absent generalized seizures. I have had seizures ever since I was 17 years old. I am 56 years now. I take Keppra valproare 7.5ml. Does Keppra cause you to be violent? I was told I get violent at times. My seizures very. I will have a seizure then I'm able to stop them. When I have a aura my hands shake, my heart beats fast. My legs start jumping. I will feel like I'm looking at myself outside of my body. I will have a seizure one day then I will be able to stop them. I will go a few days without having one. I have had epilepsy surgery. I have a vegal nerve stimulator. They didn't help me stop my seizures. Do you think vitamins vitamin D 500-2000iu vitamin D6, ( pyridoxine) Folic Acid(1-4mg) Omega 3 (fish oil) cbd oil would help? Magnesium deficiency 300-310 for women? Do you think me looking at my phone or me looking at a computer screen will trigger a seizure? I watch from Fayetteville N.C.
We need to bring awareness towards seizures/epilepsy so others can know how serious it is. I have generalized tonic-clonic seizures, absence seizures, and Atonic seizures wrapped in a box. When i was 8 it was absence but then tonic-clonic developed. Then it stopped for about 3 years but it came back even worser than before. I developed atonic seizures after l had a tonic-clonic which caused bad bleeding head injury on the concrete hitting above or in the right eyebrow. 12 stitches.
Hi Doc.. thanks for your video!
Excellent summary. Dr. Omar so handsome too!
Thanks for the video. It's very educational .can we have seizure but conscious we can talk? I know some one who had numbness.but he can talk and he was aware of surrounding
Hi Dr. Danoun,
I've had several eegs, but had my first (i guess positive) reaction to one last week. It's still really scaring me. I haven't seen my doctor yet, or spoken to a doctor about it at all, so I also haven't received any insight on what might have happened to me.
One thing I have to mention is that I didn't arrive to the appointment very tired. I've had a hard time sleeping lately, so when I can grab sleep I take it, and had about 7 hours of sleep instead of 4. So I was well-rested. I also wasn't anxious. As I said before, I've had eegs numerous times before. The tech did ask if I was anxious because my heartbeat was fast, but that's very typical for me, so it wasn't anything unusual.
The start of the test was pretty unremarkable. I had some twitching in my body, but that's also not unusual for me. I have a lot of sleep-related movement issues, like periodic limb movement disorder and restless leg syndrome. Myoclonic jerks are kind of normal for me. I also have hypnopompic hallucinations, although these happen infrequently.
The issues didn't start until the flashes. At first it was just twitching, but I didn't think anything of that because my face twitches a LOT. The twitching started to get dramatic around the third or fourth flash. It was out of control and starting to freak me out. It wasn't long after that when the top of my face completely locked up. It was like I was being forced into an angry face, except I could still speak. All my upper facial muscles INVOLUNTARILY stiffened up to the point where it should have been painful, but I don't remember feeling any pain. I also don't remember losing awareness.
Since then I've just felt strange. I'm having a lot of localized scalp tenderness, but it seems to be in the back of my head. I was given the eeg after ongoing temporal/orbital pressure/pain, tinnitus, and an unusual burning smell. I've also had major hearing loss in my opposite ear.
Is what happened during the eeg a seizure-like response, or is there another condition that would make your facial muscles involuntarily stiffen?
Definitely have tonic seizures, where it feels like I'm about to yawn but my body almost stretches or all my muscles tense up automatically or involuntarily.
The seizures which made me go get help were myoclonic. They started out as full body shocks with muscle contractions.
So you are On here diagnosing yourself lmao if you really have tonic clonic seizures ur doctor would know so u sound like u searching for attention
@@Ricky-k5h I've tried to explain my symptoms to my neurologist and he just shrugs - epilepsy is a heterogeneous syndrome that can appear very different from case to case. FWIW, there is a difference between tonic-clonic seizures, tonic seizures, and clonic seizures.
Given that I have been formally diagnosed, take the medication as prescribed, and even see how it reduces the frequency of seizures, I think it would be fair to say that I'm trying to understand my condition better rather than seeking attention or self-diagnosing.
My first seizure was at 17 and it was grandma and I was Put on depoka then from there I started having focal seizures was put on different meds didn't work now I'm zonimade and xcopi and they both are working gabapentin for nerve pain
Many thanks Dr. Omar...My daughter of 4 yrs has these general seizures she holds her hands towards the chest and strains to be free for just 1 or 2 seconds. It has happened 3 times in month...Kindly advice please. I can send you a video of the seizures.. thanks
Uh I have the worst I just had one this morning. My tounge is so bit up I can't speak and I have no memory since yesterday. Epilepsy is a horrible awful disease. I wouldn't wish it on anyone....
The fear that comes with it
@OmegalInstacom omg yes I for the most part have nocturnal seizures. So I'm afraid to go to sleep at night a lot. I mean I have full on grandmal so sometimes I'm afraid I won't wake up. It's scary and causes so so much anxiety it really sucks. I really don't think most people understand how hard it is to live with epilepsy like I can't drive but I still work so I have to depend on rides and I hate feeling like a burden
@@scarasaraLol it's like we're the same person. I can still talk but my tongue was bit to hell from my seizures last night. Weed vaporizers are the last thing I can remove from my life until I have no idea what can be causing them. I'm taking almost the maximum dose of Keppra you can have now. I need my license back. Fingers crossed these next 6 months.
I was diagnosed in 2018 with tonic-clonic seizure im freezing, cutting my tongue when i having seizures
Thank you for this video! I have been experiencing "deja vu" seizures my entire life. I did not know they were a type of seizure. My surroundings begin to look EXACTLY like it did previously, I cannot move, my eyes move and my lips "smack" oddly, I am aware of what is happening and know that it is not really deja vu. Afterwards, I get a headache and massive brain fog. Is it a seizure? Maybe a petite mal seizure? Is there anything I can or should do?
Looks like a seizure...I recommend you see a neurologist to get proper evaluation and treatment
I have mixed seizures, complex partial and tonic clonic nocturnally.
I'm epilepsy patient and fits happened night time when I'm sleeping which type of epilepsy is that?
Both types can happen at night. Please review the video on night time seizures and discuss with your neurologist. Thanks
@@DrOmarDanoun I want to contact with u and send u my all reports.
It's called nocturnal epilepsy
@@walkhardlm reason of it?
I think I may have PNES, however I'm unsure how to get treatment for it, or have anyone believe me. I've only had two gran mal seizures, the rest of the ones I've had are more, like panic attacks, but I shake, I can't move, I'm aware, Can't breathe, Can't speak, and they last anywhere from five to thirty minutes. I saw a neurologist for years and they couldn't figure out what was wrong.. This has put my entire life on hold and I'm not sure what to do. I have no insurance anymore and I can't really afford to go to a doctor regularly. If you have any resources that you could recommend I would greatly appreciate it.
Yes. Please review the series on PNES
Story of my life this is exactly what I’m dealing with. I currently am seeing a different neurologist going under some test so I’m going to see what they say but I do believe that I have PNES but I am seizing.
Dr Oman
Would you please look into two videos for me?
1) On unusual seizure types... I struggle to find information on tonic, clonic or atonic seizures... I think I may have myoclonic ones but the descriptions I can find don't line up exactly... I have automatisms during what I suspect are tonic seizures... Where my muscles tense or my body stretches and I may tap my feet to the ground or tap my body with my hand Involuntarily but remain conscious... Sometimes even hold my breathe or call out Involuntarily... I almost never lose consciousness.
2) My mother has had early-onset Alzheimer's for a long time. This was only found out shortly before I was diagnosed due to what sounds like myoclonic or clonic seizures - I get electrical zaps throughout my entire body which have lessened since the stress from her diagnosis has reduced (stress seems to trigger these - even exertional stress - when I make it to the gym - I have many of these but now usually my upper torso contracts Involuntarily, almost like a hiccup but both my arms twitch) but more so since being on medication.
I found a bunch of articles linking getting diagnosed with temporal lobe epilepsy in adulthood (I was diagnosed with this at the age of 30, shortly after an ADHD diagnosis) and links with familial Alzheimer's, which I know is almost always early-onset in nature.
Her father probably had it too, and I know my mother has had it for over 15 years, despite only being diagnosed at 62.
3) Can you do one last video on epilepsy and ADHD medicine. I know as a side effect and contraindication for many ADHD medicine, triggered seizures, a lower seizure threshold, and a history of epilepsy with respect to SUDEP are all mentioned.
The studies I skimmed through (I couldn't read them properly) which indicated that ADHD medicines increases the frequency of seizures were not well-powered - i.e. The sample sizes were small.
I have seen some anecdotes where in specific cases, ADHD meds were clearly a trigger on the r/epilepsy sub-reddit but have seen better designed studies with larger sample sizes showing no significant increase in the frequency of seizures.
🗣️I have a question and I hope I get an reply but first I have to describe it; just walking around and for a quick second just blank out but come right back to in that same second but don't know why it happens a lot is there a word for that or is it called something? Thanks I hope I get a reply
Hi Doc.
According to my dr.base in my MRI results i have mild left messial hippocampal atrophy which cause seizure for myself...
Is it my situation can heal through neurological surgery????
Thanks for your reply...
God bless and more followers to your channel!!
I had 4 gran mal seizures since 2020 the last one more than a year ago. I’ve heard that stress and light sensitivity can contribute to this
I have general type of seizure . It happens once in 2 years or more. And I faint with shaking the body. When I wake up I have a severe body ache. I get tegretol 400 for more than 20 years.
I am 39 years old and have myoclonic seizures, and they end up causing me to have tonic clonic seizures afterwards if it's too extreme. So yes, this is mostly in children but I was diagnosed when I was 34.
What when your body seems to stay in the phase of the “aura”-you stay in this feeling of fear in the top of your stomach? The actural seizure need not accrue every time, but this intense warning is always there? The feeling is in the “solar plexus” as I have been told and it is much worse than the seizure itself because it makes you so afraid? It’s like it’s “teasing you”! What exactly is this fear and what can be done to eliminate it? I would give anything to be free of this “fear” once and for all! Is this still “Deja vu”?
My son has focal seizures and generalised and are drugs resistance. He is on 4 different anti seizures but no help so far. He has slow development not able to sit or crawl he his one year now.
First time seizure 41year old, while 2hours, no drug, no smoke, no alcohol, every test CT, EEG, MRI. They can’t find doctor said everything fine. Let me know any advice please.
I think I have more focal as I have more frontal symtomes.
But they say I have genetic generalised epilepsy.
And myoclonics.
Like I can feel depersonalization staring blank.
I can talk but it's hard to and I can move. My arms usually tenses up.
That's my common one
I have partial seizures tonic clonic. I lose consciousness and start smacking my lips and moving my fingers. Then I come right back. I started with fear then anxiety then extreme anxiety. Which developed into seizures
I love that-"dirty rug syndrome" it helps to have humour amidst the crazy brain baloney 😅
Thank you Dr Omar-great info..❤
Glad you enjoyed it
i was diagnosed with focal seizures and it usually happens during my sleeping hours kindly what enlighten me more.
Thanks.
At 28 i started having absentee seizure symptoms and my doctor immediatly sent me to cardiologist and spent 2 years unmedicated being tested every way but correct and was until had a very bad absentee in front of cardiologist and he got pissed and screamed at the neurologist i had seen.
The neurologist told me absentee doesnt happen in adults at all, so im wondering if i had it my whole life and never knew.
You think Tuorette will be a zeizure?
Optic Nerve Glioma without Neurofibromatosis Type 2 since birth. Now 29 year old female has seizures, legally blind lots of migraine headaches. No life only pain and suffering. Help.
Ive had one clonic tonic, but before that I had small focal seizures... but now the small focal seizures i have are emotional, memory and sanity type. Feeling high, tired or jolts, heat flashes and eye rolling..., mine starts in the right frontotemporal region...fun
My daughter has focal unaware seizure, She's been on Clonazepam, carbamazepin and phenobabitol as well as DHA emulsion for over 2yrs now but her progress is very slow. My concern is are we on the right medications?
I have been disappearing l don't no why failing over leg arm pin needles and hand can't remember things feeling sick after and confused
Thank you so much.. I am from South Africa my boy is 12 yrs . Seizures stops since he was 5yrs. Now the problem is he does not cope at all at school. Must i be worried
Thanks Dr. Omar very much. I am Palestinian too. So proud of you. My seizures are nocturnal. I was diagnosed when I was a child 37 years ago. Never had a seizure during the day. So what type of seizure is mine? I am so lucky I will be admitted to EMV in March because I started to have lots of seizures sometimes 9 in one night especially when the Dr stopped Tegretol and put me on Lamotrigine with the Keppra. I will let you know what will happen with me. Thanks Salam
Asalamu alaikum brother I have had seizure only during sleep too but I get them after every 3 4 months not daily of weekly, I hope you are doing well now 🤗
Hello dr, kindly can I ask you a question about epilepsy
I have nocturnal, tonic clonic, absence & generalised focal seizures
Showed my doctor several videos of the seizures that happened out of nowhere at 34 years old. Deja vu and numbness, feeling of terror. Lost consciousness. Video we caught it showed both eyes fixed in one location (upper right) and drooling profusely. My doctor saw this video and said “nah, looks like a panic attack.” ARE YOU SERIOUS. Told me to see a counselor..
Then she saw the one that we caught that was tonic clonic. Then she said “oh yeah! That looks like a seizure.” I am floored. This is what I’ve been telling her for a year! So crazy..
Thank you so much for this information
I do have focal seizure. How can i control it or how to know if it's going to attack?
My husband had a TBI due to a fall, not sure if when he lost consciousness was due to a seizure but he hit his head really hard and he had a full body seizure. His brain moved for a total of 14mm the oposite direction. This past week nuero said he was ok since no incident since his first seizure, and had one a few days later while driving.
He doesn’t remember anything obviously.
While he sleeps he jerks a lot, even before he had his first accident. We just took as restlessness. Now not so sure
I am from the
Wesport in Ireland you are excellent I have a question as a person starts to get older can seizures move into a different area of the brain ...with thanks .
Hi doctor.my 5 years old daughter is shaking the whole body especially when she is having a fever once in every year.what is the cause?
Very informative video. My 2-year-old kid jerks in sleep a lot, especially after 3 am in the morning. This happens every 15-30 mins. Paediatric neurologists said that this is "benign sleep myoclonus". How to differentiate between a seizure and myoclonic jerks?
My three year son also doing that mam. In night time only. How to cure this pls reply
Thank you keep posting videos very much enjoy knowing there is hope
. I have sensitivity to flsentent lights its like flashes light on off or sunlight seeing a puddle I think I'm moving numness staring but can talk.I find brazing glasses helps I work with strobe lights all day. but unsure if has to do with mild cp. my neck hands numb legs stiff muckles .
Thanks for sharing
I was diagnosed with epilepsy in 2011, when I was 34 after having my first ever seizure.
My seizures were all at about 9 am and I just have sudden loss of tone and bumped my head and my shoulder and also had a big seizure and fractured my Vertebrae in two places. It's very strange as I was healthy till a few months into 50 years old!
Sorry to hear that.. I hope you feel better soon
I have recently had several episodes of dizziness/fainting/loss of muscle control, and after going to the doctor, they mentioned some thing about the cerebellum? is it possible to have a seizure in that area of the brain and if so, what does that look like?
No. Seizures come from the brain not the cerebellum
He could of meant that you have a an issue with your cerebellum which is causing your symptoms, I recently found out from a Neurodevelopmental Optometrist that I may have a cerebellum dysfunction and I have the similar symptoms to you except for the dizziness.