Thank you for making this video. As you predicted, I ended up at this one having started at your pacing video. Looks like it’ll probably be an ongoing process for both of us!
Been watching your videos for years, I have CFS too and recently got the visible app which measures heart rate variability, I'm finding the connection between the heart and CFS very interesting. I'm glad to hear you are moving towards feeling better.
it feels so inspiring you're able to pursue your creative passions and record and talk us through what you have been battling chronically ! i have two autoimmune disorders and it just feels like my life has to stop bc of it sometimes but the feeling of being on "pause" doesn't have to be forever! excited for your barcelona life and sending healing energy your way 🤍
"I know that this isn't a satisfying video..maybe" - on the contrary. It's so good to hear from you again and this video is ideal! From everything I have been learning about recovery & improvement stories, all of the things you have mentioned align perfectly. And it is messy and never a straight line, so to hear what you did over the past while is invaluable and confidence boosting, hopeful, and inspiring!
omg thank you so so much for this comment ! it means the world, recovery really is so nuanced and I find it so hard to articulate how it's going and all of the different factors so I'm so glad that it was helpful to you and that it aligns with other things you're hearing. I wish you all the luck in your recovery
So great to watch you again after a few years. Both of us are in different places. My me/cfs was very bad at the time. And now I'm starting to do a lot better and going out socialising again, walking further, as well as doing other more normal stuff too with greater ease. Go us 👏👏, and long may it continue. And funny you say about your family link, my mum has it too and she has never got completely rid of it either but manages it
@@mattrobinson3947 It's Veg EPA and i took two capsules three times a day at first [so sex daily in total] but obviously different dosages work for different bodies.
I have wondered how you are doing, I subscribed to you a few years ago after searching here for others with me/cfs. I have had me/cfs for over a decade and I am recovering well using nervous system techniques and some other things! Congratulations on your progress, wishing you continued success with health and all other endeavors too.
Living alone is good for my health because there’s less stimulation and I sleep significantly better. Thankfully we have a big place so we spend a lot of time quietly or in different rooms - I will always need to have as many bedrooms as people I live with or more so I can always manage to be alone and quiet
Have been watching your channel for a few years, I remember your very helpful ME/CFS pacing video at the time. The phrase seeking 'small dreams' stuck with me. I have ME/CFS well. You might be interested in my channel which talks about the research. Hope you can continue to improve.
![i want to have more beautiful thoughts [on thinking like a writer]](http://i.ytimg.com/vi/r3X3op0Ae48/mqdefault.jpg)
![A Day in My Life in Barcelona 🌅 [new routines, autumn vibes, writing, + Tibidabo sunset hike]](http://i.ytimg.com/vi/rKp2tQUKQxk/mqdefault.jpg)
Thank you for making this video. As you predicted, I ended up at this one having started at your pacing video. Looks like it’ll probably be an ongoing process for both of us!
Been watching your videos for years, I have CFS too and recently got the visible app which measures heart rate variability, I'm finding the connection between the heart and CFS very interesting. I'm glad to hear you are moving towards feeling better.
ooh intersting I might look into that app. Thank you for your comment !
it feels so inspiring you're able to pursue your creative passions and record and talk us through what you have been battling chronically ! i have two autoimmune disorders and it just feels like my life has to stop bc of it sometimes but the feeling of being on "pause" doesn't have to be forever! excited for your barcelona life and sending healing energy your way 🤍
thank you so so much it is so lovely to hear this
"I know that this isn't a satisfying video..maybe" - on the contrary. It's so good to hear from you again and this video is ideal! From everything I have been learning about recovery & improvement stories, all of the things you have mentioned align perfectly. And it is messy and never a straight line, so to hear what you did over the past while is invaluable and confidence boosting, hopeful, and inspiring!
omg thank you so so much for this comment ! it means the world, recovery really is so nuanced and I find it so hard to articulate how it's going and all of the different factors so I'm so glad that it was helpful to you and that it aligns with other things you're hearing. I wish you all the luck in your recovery
So great to watch you again after a few years. Both of us are in different places. My me/cfs was very bad at the time. And now I'm starting to do a lot better and going out socialising again, walking further, as well as doing other more normal stuff too with greater ease. Go us 👏👏, and long may it continue. And funny you say about your family link, my mum has it too and she has never got completely rid of it either but manages it
You look amazing btw!
Also, is there any chance that you could put a link for this veggie PA stuff and some more info about the dosage you were initially on etc
@@mattrobinson3947 thank you
thank you for your comment
@@mattrobinson3947 It's Veg EPA and i took two capsules three times a day at first [so sex daily in total] but obviously different dosages work for different bodies.
I have wondered how you are doing, I subscribed to you a few years ago after searching here for others with me/cfs. I have had me/cfs for over a decade and I am recovering well using nervous system techniques and some other things! Congratulations on your progress, wishing you continued success with health and all other endeavors too.
thank you for your comment [also I love your username? obsessed with witches]. thank you for your congratulations, I hope you continue to heal too
Super interesting video, am grateful for the update. Recovery is /so/ nuanced but stories like this give me hope. ty and well wishes
yay I'm so happy this video was helpful for you
This update video was reallly great to hear by the way- thank you for the video
More £££/$$$ Needs raising for CFS/ME/FMA Cures!!... :)
Couldn’t agree more 💕
Living alone is good for my health because there’s less stimulation and I sleep significantly better. Thankfully we have a big place so we spend a lot of time quietly or in different rooms - I will always need to have as many bedrooms as people I live with or more so I can always manage to be alone and quiet
yessss this makes so much sense glad I'm not alone in this
Have been watching your channel for a few years, I remember your very helpful ME/CFS pacing video at the time. The phrase seeking 'small dreams' stuck with me. I have ME/CFS well. You might be interested in my channel which talks about the research. Hope you can continue to improve.