A Day in the Life of Fibro Fog | Fibromyalgia/Chronic Fatigue

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  • เผยแพร่เมื่อ 15 ธ.ค. 2024

ความคิดเห็น • 90

  • @frentbow
    @frentbow ปีที่แล้ว +6

    I've never seen anyone portray real cfs life similar to mine, like how putting flowers in a vase is a huge effort. It's very comforting to be able to relate. I appreciate all the extra work in creating and uploading your vids. Thank you 💜

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Wow, thank you for your lovely comment. I felt I had no one around me to relate to, hence starting this channel. So even though I wish it wasn't happening to you/others.. It's comforting for me too 💜 Creating videos is a lot harder than people would think, but I love it! It's helped from day one of diagnosis to have something to put my pain into, if that makes sense lol x

  • @melissahope4133
    @melissahope4133 ปีที่แล้ว +10

    You aren’t alone my friend. Your nail supplies had me tearing up. I do one hand at a time and it takes me 8 hours. Don’t give up on your passions. ❤

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      It’s not just me then! I have so many nail supplies, as well as makeup. I love doing nails but I’m more drawn to makeup these days as I can do that with less bending of my neck. I tested myself last week, did a set of basic Gel X nails in two hours (prep to complete). Was well proud of myself.. Had a flare for 3 days after! 😩 It’s important we keep doing what we love though ❤️

  • @samkcatladyaks
    @samkcatladyaks ปีที่แล้ว +14

    Holy shit I’ve never related more to everything. My therapist thinks I have fibromyalgia and I’m scared to ask my doc bc of all the gaslighting I’ve experienced over the past 7 years over my pain and symptoms but this was so eye opening bc I live like this and ppl still think I’m supposed to act like my body is fine but I really struggle just like you were in this vid. This was so validating. Thank you for sharing your life with us. I hope you’re making it through okay❤️ you’ve got a new sub from me

    • @ellochaos
      @ellochaos  ปีที่แล้ว +2

      Hi Sam 👋🏽 The Gaslighting is unreal isn’t it, and from those that are meant to be trained to look at things differently/openly makes it even more of a kick in the teeth. That being said, as scary as it is you have to keep pushing through & fighting for yourself as sadly no one is gonna do it for you. It is very real & nobody understands yourself better than you so go in with a ‘Take no shit attitude’ and make them listen. I’m glad you can relate but sad at the same time because I wouldn’t wish this on anyone. I am however feeling some improvement since being on Pregabalin & I have also had my first Lidocaine Infusion - So there is hope for us yet! You can do it ❤️ Thank you for your lovely comments too 😊 xx

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Thank you for the sub too 😘

    • @Angel-qf6if
      @Angel-qf6if ปีที่แล้ว +3

      I went through that with my Dr. , I changed to a different dr in the practice that I heard great things about. She listened, examined did blood work to rule out lupus etc, and after all of that she gave me the diagnosis of fibro… in 3 visits I finally had an answer, one I was trying to get for almost 4 years with my old dr. Don’t be afraid to change drs, you may be better off💜

    • @frentbow
      @frentbow ปีที่แล้ว

      Same here

  • @soniagracescott9888
    @soniagracescott9888 ปีที่แล้ว +4

    Thank you for posting this - it certainly takes a lot of energy just to exist in those moments, but to actually put a camera in front of it all and mange gracefully - that is amazing. I too manage fibromyalgia. More than 20 years now. I don't experience the pain as often as I have in the past - good trauma therapy has helped - but the amount of fibro fog is enough to frustrate me to the point of not talking. It's horrible not being able to articulate thoughts. My worst is losing vocabulary and completely forgetting what something is - "that thing in the driveway" when I am looking right at it. I wish you the best. I'll be watching for more human moments. Thanks!

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Awww thank you! ☺️
      I have so many ideas of vlogs I want to do but the brain fog like you say makes it so hard to articulate. I know I need to just grab the camera & go with it but I overthink it and put too much pressure on myself. I’m hoping to film something very soon though! 20 years sounds impossible, but you’re proof it isn’t 💜

    • @kathybikadi9854
      @kathybikadi9854 ปีที่แล้ว +1

      I also find it frustrating not to be able to articulate my thoughts!

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      It’s so annoying to constantly have that word or sentence at the tip of your tongue!!

  • @dard4833
    @dard4833 11 หลายเดือนก่อน +2

    Daly, You absolutely make total sense to me!! It’s such a whirlwind, loss of words, feeling nauseous during pain, eating, non eating, clothes, no clothes, oh I get it! 😢😢🤗🤗

    • @ellochaos
      @ellochaos  11 หลายเดือนก่อน

      It’s literally mind boggling isn’t it! Only those that know can ever REALLY know what a nightmare it can be! I hope your week is treating you well 💜 xx

  • @JennySussex
    @JennySussex ปีที่แล้ว +3

    Hi. I was diagnosed with fibromyalgia a year ago, but I knew I had it for at least 2 years before they finally agreed that was what it was! I totally understand the brain fog, utter exhaustion, pain, nausea and lack of appetite. I get very tearful and can’t hold myself back from crying 😢. I’m 56yrs old next month and my 82yr old dad is fitter and more active than me!! I’m glad for him. Nice to meet you. I have subscribed. 😊

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Hi Jenny 👋🏽 Nice to meet you!
      I’m glad you finally got heard & the right diagnosis. It can be very tearful days with all we have going on, yet none of it visible to an onlooker. Overwhelm is an understatement 💜 Awww I’m glad your Dad is doing well 😊 What a trooper!
      I was diagnosed 2 years ago in May but I was definitely poorly before then. No idea how long it had been going on for really as I had so much going on and I’d started making changes to my life that could have “triggered” Fibromyalgia out of hiding so to speak 🤷🏽‍♀️
      Thank you so much for subscribing ❤️

    • @Truerealism747
      @Truerealism747 ปีที่แล้ว

      @@ellochaos diagnosed 1998 neurosthenia just found out this year which is CFS fybromyalgia 6 years and pits in the middle sure there all same thing all started after a fall now diagnosed Asperger's hsd link to all these thing brain spinal chord are diffarant had SPD as a child drs didn't no then is fybromyalgia austistic burnout with spd

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Wow sounds a lot! Bless you. I guess it makes sense that they would all be interlinked. I’m currently in burnout and it’s just annoying!! I hope you’re being kind to yourself 💜

    • @Truerealism747
      @Truerealism747 ปีที่แล้ว

      @@ellochaos doing best to thankyou always have one area the body pain constant upper body.does yours move over time? Albeit years.do you have different pain with your burnout ime told it's also linked to OCD subconscious fear.

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      @@Truerealism747 Again I believe it makes sense that it would all be linked. In my experience I’m always on high alert, basically in fight or flight, I think due to having ADHD, OCD Bipolar & Fibro. I think it’s a never ending loop of exasperation! Especially if diagnosed later in life too as you’ve spent your life doing your best to “fit in” not realising that you aren’t supposed to.. Quite sad really 🤔
      I do have all over body pain, lower back, hips, knees but I am in constant pain with my upper body, especially my shoulders, neck & base of my head and my jaw! It varies in intensity. Depending on how much I’ve done or how little actually. I find my pain is worse for keeping still, yet I can’t be on the move too much either. There is no middle ground 😩 I also have awful Restless Leg Syndrome, it was a lot better for a while but at the moment it’s interrupting my sleep and I wake up in pain and nausea from it.
      For me burnout is basically all systems shutting down to a standstill pretty much. I’m fatigued, exhausted, body feels heavy, light sensitivity and all around feeling weak. I can’t really eat because I haven’t got the energy to cook nor hold myself up long enough to eat much. I had rice cakes with a slice of cheese for dinner last night lol. I can’t really be around people because words are hard to find, I think I just grunt at them 😂 So apologies for this long post.. I know what I’m trying to say so I hope what I’ve written makes sense 🤦🏽‍♀️

  • @CRISTAVILLALEVER-wt6mv
    @CRISTAVILLALEVER-wt6mv ปีที่แล้ว +1

    Sending you thanks and a hug, typing this with tingling finger tips at the time and feeling soooo tired. Not alone, my friend. Keep on sharing, please.

  • @Gewelg
    @Gewelg ปีที่แล้ว +5

    Thank you! This is how I feel daily.

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Sending hugs 💜

  • @stevegage6650
    @stevegage6650 ปีที่แล้ว +1

    Bless ya girl 🙏 ,Got fibromyalgia / Fms ( f***ing mad syndrome) well thats what it feels like myself , had it following an accident at work in 2002 so I know what it's like , feeling sick is part of it ,feeling tired and can't sleep and suddenly can't remember what to say and having to write everything down otherwise it won't get done, staying in PJ'S or trackees because its comfy and you can't be assed. Takes ages to get a diagnosis then it's NHS ( No Help Service) just subscribed to your channel .Big UP 😊

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Lol I'll be using that one.. "Fucking Mad Syndrome!." Definitely makes you feel as though you are at times! Sorry to hear of your accident 💜
      The thing is I'll write things down but then I forget that I've written it down, or where I've written it! (Phone Notes, Sticky Notes, one of my 10 paper pads lying around 😂). I live in Pj's or hoodies, I wanna dress more like a grown up but it's so uncomfortable!
      Thank you for subscribing 😃 I hope you're enjoying your weekend 🥰

  • @Mama_D79
    @Mama_D79 ปีที่แล้ว +1

    Thank you for posting this. I was diagnosed with fibromyalgia 2 years ago and have fibro fog just as you. Some days are good and some days are bad. I also get nauseous but I"m hungry, but I just can't eat. I know I have to eat, so when I feel that way I usually have soup or something. Low FODMAP seems to be helpful plus gluten free. I feel like I'm in purgatory some days, but you have to keep on going.

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Thank you for watching & subscribing 😊
      Yes it does feel as though your being punished at times, especially when it’s all new and have no real understanding of what’s going on yourself. I was living on smoothies & rice, if I ate at all. Tried FODMAP, tried it all. I now eat pretty much what I want but keep it simple. Still have that hunger feeling but can’t eat though. Nothing ever feels all that appetising 🤷🏽‍♀️
      I’ve been doing a lot better since changing some things up, medications etc. I need to do a sit down video on it.
      I hope today is treating you well 💜 xx

  • @too_tired_for_this
    @too_tired_for_this 11 หลายเดือนก่อน +1

    Brain fog messes with me so much. Some days I can barely get a full sentence out, and spend most of the day starting something and forgetting literally 2 seconds later. It’s so hard for people to understand.its maddening, especially when I’m at work and people just stare at me.

    • @ellochaos
      @ellochaos  11 หลายเดือนก่อน

      Yeah some days the best I can do is grunt lol. This illness brings a lot of frustration! It's hard for people to understand because they can't "see" the pain.. Those that don't have it will never understand. Lucky buggers 💜

  • @ruckes13
    @ruckes13 ปีที่แล้ว +1

    I was told after an on job injury in 2006, I had this,and now a doctor told me a year ago it was gone. But I still have had all of the symptoms you are having,and more. So how can it be gone? Stay strong 💪 ❤️

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Did they say it was gone, or maybe in remission? From what I’ve researched you can have periods of time where you feel so much better that you question if you even had it.. Until it returns with it’s not so subtle reminder! 💜

    • @sharonshearouse5611
      @sharonshearouse5611 ปีที่แล้ว +2

      You don't just get over fibro
      It can hide, then when the stress comes out...BOOM...Hello, fibro!😢

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Yes! Exactly that!!! 😤😫

    • @ruckes13
      @ruckes13 ปีที่แล้ว +2

      @@sharonshearouse5611 exactly. It never went away. My symptoms have never gone away. It's worse when it rains. And during the winter.

  • @Angel-qf6if
    @Angel-qf6if ปีที่แล้ว +3

    The brain fog is so fkn real… mine is so bad I thought I had early onset dementia… has fibro affected your appetite? Mine is non existent, I was never this way.

    • @nancyhaley7296
      @nancyhaley7296 ปีที่แล้ว +1

      Notice no appetite, even when make something I like.. usually end up giving to dogs, chickens...11 years. Pain in body especially legs is the hard part. Just realized it's brain fog and not earlly set dementia! Smile yaaay!! Be 59 next month. Passed California State Bar at 58.. so at least something is working.. wishing and praying for everyone with Fibro blessings and pain free days!

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Is actually quite scary isn’t it! It’s hard to say about my appetite because I have other disabilities that really ply a part in that. As well as other medications. But I guess it does because when your in overwhelming pain, it makes me nauseous causing me to not want to eat. I tend to do a lot of snacking rather than full meals 💜

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Congratulations on passing the Bar! 👏🏽💜

  • @AH-hu8fh
    @AH-hu8fh ปีที่แล้ว +1

    Omg. It’s like watching myself. I haven’t officially been diagnosed - I keep canceling doctors appts due to the symptoms- but, man if this isn’t me. Thank you for sharing 💜💜💜

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      I know it’s hard but try and get to your appointment. You deserve to be heard!
      💜 Thank you for watching ❤️

    • @AH-hu8fh
      @AH-hu8fh ปีที่แล้ว +1

      I def will! Taking a couple of weeks off this month to do all of the testing.
      Thank you for sharing! Sending you light, love, and healing energy 💜

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      That’s great! 😊 I hope all goes well for you ❤️💫🦋 xx

  • @wisdombeauty8496
    @wisdombeauty8496 ปีที่แล้ว +1

    Prayers for you ❤️🙏😢 Your not alone ❤

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      ❤️🙏🏽

  • @kendregab7328
    @kendregab7328 ปีที่แล้ว

    I have many the symptoms but one of the most bothersome symptoms are skin sensitivity to touch. Anything that touches my skin causes widespread body pain with burning, prickling, dull, shocks and warmth to my joints , body aches like I'm sick and the fatigue. Wind from outside hits my skin and I'm whimpering in pain, same with a fan. A sheet of my bed hurts me too. Even the clothes I'm wearing bother me so badly with pain. Laying on my soft bed still hurts me because the pain touch triggers. I'm not diagnosed with fibro yet. I have an appointment with a Rheumatologist on July 11 but I am confident I have it. I tested ANA positive 1:320 titer honeogenous which is pretty high according to my doctor. So that's why I'm being referred but will also ask for fibro testing as well. Any tips to reduce this pain would be greatly appreciated as Tylenol PM doesn't work much 😄

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      I clearly missed that you’d left a comment.. I’m so sorry!! I hope all goes well with the Rheumatologist, you’ll have to let me know how you get on 💜
      It’s hard for me to say what works and what doesn’t in regards to the pain from touch & sensory, because some days I can’t bare anything loose on my skin because every movement of the clothing hurts, so I wear tighter fitting clothes like leggings for the pressure which relieves the pain somewhat. Other times I can’t bare anything tight on my skin so I wear baggy clothes. I understand what you’re saying about bedding etc, same applies. Sometimes I need a weighted blanket, other times I need as little cover as possible. I live in gym wear and tracksuits or nothing but my underwear (as little as possible). I always feel like I have sunburn from face to toes and my skin itches to the bone!! It’s fecking awful. Cool showers, antihistamines, Lycra materials & fleecy style bedsheet is what I do too.
      Sorry I’m not much help, it really is the guessing game and figuring out how you are on the day and what works for you 💕

    • @tamiwigginton7137
      @tamiwigginton7137 6 หลายเดือนก่อน

      Check for tick bourn illness

  • @lorizolofra3970
    @lorizolofra3970 10 หลายเดือนก่อน +2

    Rain makes my body ache more. Brain fog with it

    • @ellochaos
      @ellochaos  10 หลายเดือนก่อน +1

      I tend to have more flares in the summer. I can’t handle the heat anymore 😩

    • @shadetreader
      @shadetreader 7 หลายเดือนก่อน

      Heat wrecks me as well-- and I'm stuck in Texas 😣

    • @yellowtulips0427
      @yellowtulips0427 3 หลายเดือนก่อน

      Same here. Rainy days make me feel worse too. I know we need the rain so I try not to complain about it

  • @stevenleabon8032
    @stevenleabon8032 7 หลายเดือนก่อน

    Glad you ate. ❤❤

  • @Angel-qf6if
    @Angel-qf6if ปีที่แล้ว

    When I’m dragging ass I paint, I’m no Monet but it calms my mind and keeps me focused on something other than fibro…. I just sit and watch a Tutorial on here and pass the time… it’s so easy to stay in your head with this stupid condition… 💕

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      So easy to stay in your head! Especially when your less mobile & bed bound, be in your head is all there is. I watch a lot of TH-cam (too much 😂). My go to is makeup at the moment. Or a set of nails depending on how “well” I am & how much neck bending I can do that day 💜

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      I can draw on my face but anything on paper I’m hopeless 😂 (unless it’s poetry). I’m glad you’ve found something that works for you 😊

    • @Angel-qf6if
      @Angel-qf6if ปีที่แล้ว

      @@ellochaos make up makes everything better!!🤣💕

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      @@Angel-qf6if If only! 😩😂 It is like therapy though 🙌🏽 xx

  • @Truerealism747
    @Truerealism747 ปีที่แล้ว

    Me fybromyalgia are same ime sure just symptoms change over decades for myself

  • @louisamingay430
    @louisamingay430 ปีที่แล้ว

    I have felt like this this week, i feel your pain, fibro is the pits 😢😢😢

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      It really is. Are you feeling any better today? 💜

    • @louisamingay430
      @louisamingay430 ปีที่แล้ว

      @@ellochaos yes thank you for asking x

  • @chris_autumn1550
    @chris_autumn1550 ปีที่แล้ว

    Just found your channel, I know exactly what you mean , you are not alone .

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      I'm sorry to hear that you know exactly what I mean 👎🏽
      I hope today is treating you well 💜

    • @chris_autumn1550
      @chris_autumn1550 ปีที่แล้ว +1

      @@ellochaos Thank you, hope your doing good. Yes unfortunately I know what you're going through, was diagnosed about 15 years ago . I know I used to annoy my daughters 😂 forgetting what I'm doing or going half way there to do it, or putting things in places they don't belong , like milk in cupboard, and keys in fridge 😒the brain fog gets horrible.

    • @ellochaos
      @ellochaos  ปีที่แล้ว +1

      Wow 15 years! What things have you learnt over that time to help with it? 😂 yes to all of the above! Except I only have fury kids so they only get annoyed when I forget to give them their treats! 🤣

    • @chris_autumn1550
      @chris_autumn1550 ปีที่แล้ว +1

      @@ellochaos When I was first diagnosed I was told to take NyQuil at night that will help my pain and also help me sleep. During the day I take CBD gummies, as well as Kratom teas . Not sure how long Kratom will be around anything natural or homeopathic they try to get rid of . I also use salonpas pain patches. I have polyneuropathy as well so I can't do anything cold .

    • @chris_autumn1550
      @chris_autumn1550 ปีที่แล้ว +1

      @@ellochaos Forgot to mention for brain fog I take vitamin B 12 , doesn't always work . Also iron and magnesium, magnesium works the best for it as well as it helps anxiety.

  • @kyr4231
    @kyr4231 ปีที่แล้ว +1

    Like watching ur fibro vlog, relate myself suffer too gentle hugs from Australia

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Gentle hugs to Australia 💜 Thank you for watching 😊

  • @stevenleabon8032
    @stevenleabon8032 7 หลายเดือนก่อน

    Love yourself my dear. The challenges you face are real and seen. Iam praying you have peace, Jesus will help you ❤ it's difficult I understand with fibromyalgia, it's fog, fatigue adhd brings thoughts, and brings hyperactivity ❤❤❤😂😊😊you made me laugh few times, I have compassion for this kind difficult ❤❤jessy typing.

  • @ilaemi936
    @ilaemi936 5 หลายเดือนก่อน

    I can't accepted this pain🥹🥹🥹 please 🙏 God take me

    • @ellochaos
      @ellochaos  2 หลายเดือนก่อน

      💜❤️

  • @tinagustavsson182
    @tinagustavsson182 ปีที่แล้ว

    Jag vet hur det är att ha fibromyalgi ❤

    • @ellochaos
      @ellochaos  ปีที่แล้ว

      Sending ❤️

  • @BVArmstrong
    @BVArmstrong 2 ปีที่แล้ว

    #same friend

    • @ellochaos
      @ellochaos  2 ปีที่แล้ว

      I’m sorry to hear that. Better days are on their way! 💜