What is FIBROMYALGIA? Symptoms, Triggers, & TREATMENTS
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- เผยแพร่เมื่อ 29 ม.ค. 2023
- In this video I describe the 5 main characteristics of Fibromyalgia, as well as its common symptoms, triggers, and treatments.
Fibromyalgia is a difficult disease to diagnose because of the many, and often seemingly unrelated, symptoms.
Fibromyalgia affects each person differently, so each persons treatment may be different as well.
Therefore, I suggest different natural remedies and therapies one can do to help combat Fibromyalgia symptoms and further identify and alleviate some of the root causes.
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#fibromyalgia #wellness #health - วิทยาศาสตร์และเทคโนโลยี
Fibromyalgia is what doctors say you have when they cant explain the reason for all these symptoms/pains you have. I was diagnosed with fibro and Chronic fatigue when I was 47 years old after suffering pains in my body, extreme fatigue etc. I was non functional. had to leave a govt job. exhausted. In actual fact, what I suffered from was, wait for it...low thyroid and low hormones. once I got on thyroid meds and HRT I got better. 16 years later, age 62, back to working full time and no pains no stiffness no problems, perfect bloodwork, strong body strong bones.
I have low thyroid as well, but and was diagnosed with fibromyalgia at age 22. But so many things can trigger it. I also have had RA since childhood. So fibromyalgia most of my life. So many things can affect and create fibromyalgia in my belief. When I was treated for hypothyroidism I did feel better until other disease popped up. I also think Lyme disease can cause fibromyalgia.
We are all doomed! 😂 How can one figure it all out without going into great debt?
I got a diagnosis of primary hyperparathyroidism in 2004 but endo did watch and wait.. 1 year later.. Lost my job, my marriage in fact my whole life, I'd been going back and forth to my gp within that year.
He kept telling me I did not have a parathyroid problem, I moved to another surgery and after seeing a gp they sent me to a specialist who diagnosed fibromyalgia chronic fatigue, fast forward to 2017 when I became worse again I went to gp nothing done, I eventually saw a completely different gp new one who immediately diagnosed hyperthyroidism 🤦♀️ I eventually lost my thyroid to graves thyrotoxicosis in 2019, then on a thyroid blood test my calcium and parathyroid hormone were abnormal again.. got the diagnosis of primary hyperparathyroidism again!! .... Still waiting for the NHS to do anything even though a private parathyroid surgeon as identified a nodule in my neck... Gp "you have chronic fatigue and fibromyalgia" ... You just can't make it up.. 🤦♀️🤦♀️🤦♀️
That's your experience. Many of us find no cure and fibro is just one of many chronic illnesses.
@@patriciaward6960
Do you know fibromyalgia and chronic fatigue have been miss diagnosed when in actual fact it was primary hyperparathyroidism or normocalcemic hyperparathyroidism this condition is hard for endocrinologists to understand and if they can't get a definitive answer to your symptoms you get the fibro/chronic fatigue lable, I found a lot of high calciums in my records which I requested.. at no point did my gp look into why my calcium was very over range.
I was amazed how many people who managed to get the parathyroidectmy were cured of there fibro and chronic symptoms.
OBVIOUSLY this doesn't always mean everyone will react in this way to the op, and if I manage to get it there is a chance my pain and fatigue will remain but I'm willing to take that chance as a nodule as been identified in my neck by a parathyroid surgeon, I hate the way I feel, no energy in pain 24/7 no life 😢 I'm really hoping it is a parathyroid problem so I at least may have a cure🤞
Fibro is a curse !!! 😭 it ruined my life …
SAME here!!🙄👎🤬
Mine too from 50 yrs of age
Mine too😢
Awwwww, 😢🫂
Mine too, had it 50 years 😢
It took 17 years to get a diagnosis of fibromyalgia. I've had it 43 years. Prozac helped the pain greatly but I am one of those who gain weight on it. God bless all with it. My skin feels burned at 76° or less. God bless everyone with it.
Hi Linda! Gtsy! I was reading your comment & thought long time like me! Looked at name and "hey its Linda!" Lol! Hope your doing well! Took me 20 yrs to get diagnosed and still no direction from Dr's for me to try to heal. I get my ACDF soon hoping it helps more than it probably will. Anyway take care and God bless!
Stop eating Glyphosate !
Duloxetine is an antidepressant/anti-anxiety med that is helpful for fibromyalgia.
With Duloxetine if you don't originally have those problems, depression & anxiety, it can affect mental health negatively. As well as lyrica.
There are so many videos on fibromyalgia out there, and I tend to disagree with so much that the experts say. But this video was so spot on. For me what the most effective change was 1. Radical elimination of stress in my life, 2. Sleep systematically a minimum of 5 hours per night (this is good for me) and do whatever is needed to get there while trying not to use hypnotics as the go-to, 3. Pacing - less chores, actual less activity, less hours at desk at work, rest, listening to body, and 4 - Moving well, stretching, but exhersion only when I feel like it. Too many doctors put moving first, as far as lifestyle changes go, but for me moving was a small (albeit needed) part. I just spent 30 days without pain and I am very happy.
I think your pain masculer no
Right so how did you radically remove stress? I have two small children and I’d rather not remove them 😅
@letsstartahomestead I kept my three very young children 😅😅but I ditched the husband. I actually got full custody and still have less stress. At work, I quit being head of my department and quite literally demoted myself from all responsabilities except those most relevant for my job. But I would say that the trick is to tackle whatever is causing you most stress and be a bit radical if need be.
@@jamesmcconnell2473 pain has been back and there has been a terrible period over summer. but overall, life has been more manageable. What about you?
100%! This is the ticket. Effexor at a high dose was the biggest game changer. I have 1mg of zanax to sleep 7 hours a night. I stretch, epson soak, use supplements, acupressure pads, heat, red light, tens, and most importantly I pace. I nap. I don't do extra or I plan a day off. I'm 47. Had symptoms start about 28. Up till 35 I was 115, 5'4, gym everyday and boundless energy. ADD and fearless. Thats over. I'm ebv positive, mono, shingles... and CFS as a result. I taught in moldy classrooms too. Almost died having twins at 37. I treat symptoms naturally as possible and managed to make a horrible immune panel go to normal numbers. I will say I had family trauma, car crash trauma to neck...I've tested for metals, thyroid and everything autoimmune. I don't show anything. I just have to go one day at a time.
Great video Dr. The only thing I would say as far as treatment goes to reduce inflammation, is to get better sleep and e exercise. With Fibromyalgia, you automatically wake up right after Rem sleep no matter what. If it was easy to get more sleep we would. Also exercise is near impossible with this much pain and fatigue. I was always thin and active, so sedentary lifestyle was not the cause, but rather the other way around; fibro causing need to rest and sit around more. Of course then there is weight gain associated with that, which makes pain worse. It seems to me that fibro causes a domino affect that Fibromyalgia patients can't simply cure or improve by sleeping more and exercising, since Fibromyalgia takes away these things to begin with. Very calm, informative and helpful video Dr. Reid.
Excellent point @Tracey Tansley…May I add that I have learned each case are different in severity. Which reflects what works for 20 people May not for 12 other people w/Fibromyalgia.
Well said.
Yes this is true, I was a gym bunny before my diagnosis although I think my symptoms are more primary hyperparathyroidism than fibro, but fatigue and pain is a killer for exercise.. Also opioids are the worst drug to take my gp had me on them for years, I was like a zombie, I was rushed into hospital the specialist asked how long I'd been on opioids years I said... He immediately got me off them slowly, they made the fatigue worse🤦♀️
Very true. I am living this.
Absolutely agree with you here, I was always, fit , slim and energetic, couldn't put weight on as I was always active, not in a manic way but just as way of life, working mother running all over the place with child care and part time work. Then hit 50, had to come off contraceptive pill then my life went down hill, rapid, 55 now and it's been a hellish 5 yrs diagnosed with fibromyalgia and all sorts because docs can't agree on anything. I know for sure it's all the menopause as I've monitored every symptom over the last 5 yrs, docs keep saying, don't know and try to label me with stupid stuff because they just don't get it that the menopause can cause so much trouble for some women and not for others, anyways all of the debilitating symptoms which go on and on yr after yr makes you want to give up on life especially since docs haven't got a clue, tell you all the pain is in your head then tell you that you need talking therapy, honestly I don't know why I'm still here,!!
Fibromyalgia has took my life away, ive had this for 18yrs, ive all these things that you have explained, God bless to all fybro sufferes this is a cruel debilitating diease i hate it, all the way from Northern Ireland thank you Dr 🙏🌹☘️🇮🇪
It's plant neurotoxins. Go on the carnivore diet minus eggs, pork and chicken. It works on al.ost all diseases including this one. th-cam.com/video/B0rwpnA7TWc/w-d-xo.htmlsi=NTVhTNIdGdtvg0ia
It is very disabling and very painful!!! And I had so many doctors tell me “it’s all in your head” but I’m so glad that they (doctors) now understand that it’s not in our head nor because of the age (young or old). And it’s more than just arthritis or rheumatoid arthritis!!! I’ve been suffering from this ever since they didn’t even know nor had a name for it!!! 😩
The pain you feel is real, it's not in your head, I think doctors say that to take your mind off the pain or something which is not possible, It hurts that my family and now my doctor don't take me serious when I try to explain these symptoms to them. It's all talks and no medication.
@@wilsonjennings323my wife was diagnosed with fibro, always in pain and feeling exhausted, I had to discuss this with a colleague who suggested we use cbd oil, suprisingly it did stop the inflammation and helped lessen the symptoms,I suggest you try that out.
@@teddcraycraft5297 Thank you for sharing, Any way I can get a cbd product locally or through an online store ? I live in the UK?
@@wilsonjennings323 Look up albovegateway
...On Instagram, I get mine from them.
I was 8 when I first experienced body pain. I'm now 60, the only thing which really helps me is fasting and almost zero carbs or sugars, the inflammation just melts away after 2 days.
Same here
good for you to make that link to stop some pain
Great to know! Thank you!
Happiness made 6-year-old common sense simple 1-2-3
1. Breast-feeding Family work for the happiness of children.
2. Females work for the happiness of children.
3. Males work for the happiness of children.
That's it?!
When females work for their own happiness they will suffer the consequences of inflicting insurmountable PAIN on little ones parents assassinating innocent newborns must end today so children can pursue happiness today! Get off the bottom of the food chain today!
#Fibromyalgia has been around Millions of year since mothers, grandmothers, great-grandmothers and grandfathers parents acquired free will not to breast-feed crying newborn babies; the Genesis of war, incest, inbreeding, hate rape procreate sodomy prostitution pornography homicides suicides infanticidal behaviors all blessed by mothers females Egg donors to be the godly behaviors to subjugate little children into chattel property livestock a food source that's cannibalism. That's food you blessing the dinner table is not technically chicken its baby meat our own species! Females have a choice whether to procreate properly or by rape. Procreating has been by rape for over a million years it's about time we females decide to properly procreate thus getting children at the bottom of the food chain.
#Fibromyalgia has been maximized by Americanism thanks to the American Medical Association in the 1800s stealing midwifery began delivering babies in slaughterhouses.
#Fibromyalgia has been optimized thanks to Facebook social media TH-cam TV radio females behaving like males must leave their children vulnerable to kidnapping. How can a mother lose a baby like her keys are missing. What happened to my keys there missing. Whatever to my baby there missing? Who took my baby? And we know who took were taking babies that us there's only 2 of us. Walls, dogs, alligators, crocodiles, bear, T Rex, velociraptor's do not still babies only us it's only us we are our worst enemies and children are on the bottom of the food chain. Let's get children off the bottom of the food chain today!
Same here phubble.
I have Fribromyalgia and trigimanal nuralagia. So I hurt all the time. I had 3 children natural and put all 3 labor pains together and it can't touch the pain of the FM and TN . I wouldn't wish this on anyone.
I have tried everything to get better over the 20 yrs i've had Fibro and nothing has helped. Only someone who has it
can really understand what it's like to live with it. Doctors cannot seem to agree on what it is. My sister is one year
younger and she has Lupus, i feel this is some sort of Auto Immune disorder. I'm just so over getting treated like
it's not a real illness by some doctors and people in general. It's stressful enough living in a body that's making me
suffer 24/7...it's horrible. Alot more research and studies on Fibro need to be done with hundreds of patients, instead
of the guessing games docs have settled on. Asking the right Q's and monitoring is a start.
So true. I watched my daughter go from being an active little girl always with her horses to a little girl curled up in the recliner watching old black and white Andy Griffeth reruns.
@@icecreamladydriver1606 What came first?
@@MegKampen It is hard to say. I think she had something even when she was little because she would get tired trying to keep up with me. I used to go shopping a lot when the kids were little and she would get so dragged out. I didn't think too much of it at the time but years later I can put the pieces together. She is twenty eight now and married with three little boys. Every day is a hard day for her but she is one who does not want people to know she is a very sick person so on the days that she can fake it she will try to appear normal.
@@icecreamladydriver1606 Looks like she always had it and it just got worse,
@@MegKampen Yes, that is what I think also. The heartbreak now is that her 5 year old is extremely tender to touch. We both think he has it as well.
I was diagnosed with Fibro for over 25 years. I had the test in the Doctors office with the pressure points etc. Since I went Carnivore and got rid of all the carbs, sugar, frankenfoods, it is gone. No more pain, nor more fatigue, no more brain fog, memory etc. No more Gerd. No more high BP or BS. I sleep so good now I am even off my cpap.
And if I had any doubts, all I have to do is fall off my Strict ketovore diet (mushrooms, avocado, garlic and onions are ok) and eat potatoes or veggies or chips and I am hurting all over again. So this is not just a one time thing. The last 8 months I have cured my fibromyalgia with a carnivore diet. Thank you Dr. Ken Berry. Thank you PHD community. Thank you Dr. Chaffee. Thank you Dr. Baker.
Yep! th-cam.com/video/B0rwpnA7TWc/w-d-xo.htmlsi=NTVhTNIdGdtvg0ia
I was diagnosed with Fibro in 1990 after 2 years of devastating pain, night sweats, etc. In 1996. I was put on Tramadol and it made a huge difference. I was able to go back to work part time and my mental health improved. I have been on Tramadol for 27 years. The same dose. 2 four times a day. I also take 3 Excederin Migraine per day. To date I have no damage to my organs and blood work is good. What most doctors don't understand is that, yes exercise and sleep help, but First you must dull the pain. My dr. says that Tramadol has also been found to have antidepressant properties.
I’ve been on codeine for 13 years, 50mg four times a day.
It's plant eurotoxins. Go carnivore. th-cam.com/video/B0rwpnA7TWc/w-d-xo.htmlsi=NTVhTNIdGdtvg0ia
@@julievan-dungey5161just stop eating plant neurotoxins and problem solved. th-cam.com/video/B0rwpnA7TWc/w-d-xo.htmlsi=NTVhTNIdGdtvg0ia
I have lived with my curse for 17+ years. My whole body skin feels like it is burning and tingling. Muscle pain, muscle cramps in legs feet and hands, headaches, back pain, lower back pain, sleep disorder, brain fog, memory loss and so much more. This disease has taken everything from me.
Agreed MJ. I can't rest arms or legs on any surface because of the extreme skin and muscle BURNING . Ice packs on elbows to try to get to sleep for even an hour. Hang in there.
Every time I go to the chiropractor, even though if feels better at the moment, within a few hours I feel like the areas that popped hurt 10x worse.
Me too!
Try getting a massage before the adjustment.
Often times the pain your experiencing is because the muscles are very tight and the adjustment exacerbates the pain.
I know because I am a now a 30 year massage therapist who worked with Three Drs of Chiropractic for many years and saw the huge difference in the patients who got massage along with their adjustment.
Plus the massage helps with so many other things.....
@@colleenc236 I get a massage before every treatment.
I truly believe in this disease I disagree on the causes. I really believe it comes from years of trauma childhood or otherwise. Our bodies react to trauma and over a period of time create some serious issues. I’m still treated for my pain but I have to say the most important thing was healing from severe childhood abuse and a rape at age 32. I’ve been able to reduce my pain by 50% by addressing mental health issues. I can’t use a chiropractor bc I have MS I would try it tho.
I agree 💯
I think that pesticides could also be a suspicious contributor
I agree it is to do with trauma mine was caused by an ex.
Many of us have it with no childhood abuse .
I’m glad it helped you!! 🤗 After a lifetime of this-resolving & truly forgiving- this was not the answer for me. Nor was antidepressants of all kinds, seizure meds, change in diet, muscle relaxers, intensive all day PT, and a long list of other things.
This is one of the better videos- I was a little disappointed he didn’t explain fatigue-chronic fatigue as not the kind of “tired” that is helped by a nap or more sleeping.
For me, it feels a bit like my body can’t process/create/conserve energy no matter what I do. I think this interferes with my immune system, circulatory system and brain function that causes this cluster of symptoms that is just disabling. As it predominantly affects females, I doubt any real research will be done- it’ll be a continuum of re-purposing both old & new pharmaceuticals. Except Rx pain meds. Apparently after their 20 +/- years of effectiveness, somehow I’m the only one they work for (sure!! 🙄) AND my use of them somehow causes street drug overdoses. So I’m stuck cursing the pharma commercials where patients refuse sub-par treatment as they’re entitled to get their lives back. (As would I be- if there was some pharma product that actually worked for me.). Sorry for the whining… 🤗🤗. Here’s hoping 2024 is your best year yet!?
Try vitamin supplements like vitamin B1. Alfalfa by Shaklee. Constipation and the wrong gut microflora. Drinking enough water. There may be a virus involved.
Does anyone else ever experience FM flareups lasting as long as a month or more? Seems to be happening to me once or twice a year. It starts out kinda slow, then I get worn down. end up with other illness such as strep throat and sinus infection due to be being worn out and lowered immune system. Then all of that seems to snowball, back and forth to doctors, blood work, respiratory panels etc. to see if something else is going on. More frequent migraines then FM symptoms get much, much worse. My employer does not understand as I end up missing work. Then they lecture and punish me, write me up for absences, chastise me, shame me, bitch at me. That of course causes even more stress, more anxiety etc. etc.
GET an FMLA for your issues, from one of your doctor's who're familiar WITH your issues/diagnosis!! An FMLA WILL cover you for missed work days and they CANNOT penalize YOU FOR the missed work nor fire you!!!🙌 I DID one when my mother was dying from ovarian cancer. Worked as a Nurse in big city hospital. Although they understood and totally loved me?? I just did that TO cover my own ass from being written up, just in case it did get ugly!!!🙌👌 LOOK into it as mine was 23 YEARS ago but I know they STILL have it. Think Clinton put it into affect way back as a national law!!!🙌 Shit ain't right to punish and penalize YOU FOR the things that ARE totally OUTTA your control!! 🤬 Please investigate and cover YOUR ass!!! This job or any other!!🙌❤️👌
Yes I'm going through it now
@@christylaugen5226What is an FMLA?
I absolutely have flare-ups for months at a time. I live in a state with 4 seasons but winter starts early and seems to last forever. That is my worst time of the year. I have listened to so many TH-cam videos of doctors that claim this or that diet or lifestyle change will cure us. I call BS. I've got a wonderful doctor, the only one I'll see until he retires. He's in Internal Medicine so does believe Fibromyalgia is real, and treats me accordingly. The problem is I often don't follow up with his advice, mainly because I'm just too freaking sick. So I take my pain meds, TRY and eat the right foods and hope for the best. I've been dealing with symptoms that have definitely increased over the years, limiting a once active lifestyle. At this point I can only do what seems to help ME, which includes diet and SOME form of exercise. Even if that just means sitting on the deck with my dogs on a sunny day, rather than hiding in a dark room.
Question: how many of you find eating more lean meats helpful? My partner grew up with lots of chocolate, ice cream, and other sweets in his life. So if those foods are in the house I cannot avoid having a bit of all. But lately I'm drinking kombucha and Remedy, sometimes as my main diet, for days at a time.
Fibromyalgia is a condition of the brain and central nervous system.
How it is diagnosed??
@@educationalhub9521 th-cam.com/video/iL4pMWa351M/w-d-xo.html
Sure is! Just like tinnitus is a condition of the brain!!... Doctors do not tell you that tho.
@@educationalhub9521 usually after years of back in forth with GP then to Specialist back and forth with Shrinks, Rheumatoid Dr, I have GI issues so Gastro and then hopefully you find a DR that is understanding and Gives you the Diagnosis but usually after a lot trials and tribulations
My long term flare up, started with the Pfizer vax and a third shot of M.
That's why I refused to get it. My sister got it and has had nothing but problems and massive flairs with her Fibro.
I've had severe Fibro/CFS/MPS for years. I was covid vaxed and boosted and wound up getting all three brands. There was no issue with any of them.
@@Irishyankee2010 that’s shite! I have fibromyalgia and other Chronic diseases, but when I caught Covid it was one of the worst things I’ve ever experienced. The temporary symptoms after Covid vaccination is a small discomfort to pay not to get Covid. Now I’m left with no taste and even worse exhaustion. Because I was vaccinated x 4 I avoided Hospital. Don’t underestimate Covid. It’s horrible, horrible, horrible
I felt bad a couple days the first one the second one I had a flare-up for three weeks that was so bad I was pretty much on the couch. But I have bad lungs and Covid would have killed me. So for me it was worth it.
@countesscable after I had covid (before the vaccine) I never fully recovered and I think it triggered my Fibro.
I literally have all of those issues/symptoms. It’s living hell, trapped in this body and mind
Since I went to new dr u gives me shots in mainly my shoulders--my knees and coming soon my back has tremendously helped my fibromyalgia pain😊I have really caring doctors ❤
@Cindy Newvine, can you please tell me the name of the medicine you had injected into you? Was it a simple steroid injection or something else? God bless you and all those you love.
It is helpful to realise that Myalgic Encephalitis can be somewhat involved with the fibromyalgia syndrome. I went down with ME not long after glandular fever and the fibro. has only developed now in my latter years but i suspect is the result of a great deal of psychological stress! thank you for such a clear explanation.
I appreciate your dedication to Fibromyalgia. Many of us cannot bear to be touched. I have days where showering feels like a billion needles. The thought of a chiropractor touching me fills me with dread & anxiety.
I was diagnosed with RA and fibromyalgia. When I went on Humera, the fibromyalgia became much less! I still have it at times, but much less. I am also taking etodolac and low dose naltrexone. All three helped so much!
Tried all these and more. Nothing helped
Good video. I've had Fibromyalgia for about twenty seven years now. I had already inherited chronic migraines, but when I was in my late twenties, I got the EBV . It took months to recover. Soon after I was diagnosed with chronic fatigue, then Fibromyalgia. I then started having panic attacks. I still have an anxiety disorder. Meds never work. I just get exaggerated side effects from the brain sensory amplification. I take supplements that help some, but it's a daily struggle.
@@charliehere9666 Thank you. I wouldn't want to try that med, and I doubt my drs would advise it, but I appreciate the suggestion. I've always preferred natural solutions anyway.
My Panic attacks were greatly reduced by supplementing Benfotiamine." It is a type of vitamine B1 that crosses the blood/brain barrier. Also, extra magnesium .
@@helgabruin2261 I take a B complex, Mg glycinate/malate, and Ashwagandha. They all help.
you just need hormones and thyroid.
Omg I mirror all those symptoms myself. And I also looking out for natural solutions. I follow Medical Medium. I thought he was a quack but turned out really good. I do celery juice, avoid sugars for ebv and I'm about to start the metal smoothie diet too
Hi protein, no sugar or flour , I have had this for more than fifty years. and doctors say can not help you. also my twin sister also got it... trauma cause ours...
Thank God for people with better understanding of this condition who give holistic approach.
It’s no wonder so many people have fibromyalgia, so many contributors
You are a really good doctor, I wish that I lived in the Phoenix area so I could see you.
Great Video!!
Thankyou for your very clear explanation about symptoms and triggers.
In Italy fibromyalgia is not recognised as an illness by the national health service.
I must pay for most medications.
Avoiding carbohydrates certainly helps.
Meditation and breathing exercises too.
Trying to seek the positive side of things also.
You know a lot about it 😊 thanks
Ty so much for sharing ur knowledge with us. God bless you.
Yes have it all, starting 50 years. Ate healthy. Exercise with Dance. Stress, severe injuries spine neck.
Best therapy light touch over all massage with warm oil or lotion. But at this point that is impossible.
The most comprehensive summary I have come across , thank you
When I was injured on the job,the doctors kept telling me the pain was in my head. And I have pelvic malialignment as well. So that makes it worse 😔
Hit the nail on the head
I had pain on the top of both my feet and with tine i was in so much pain walking was a problem. The gp diagnosed it as a disc bulge that was pressing the nerves. I was sent to a spine specialist who recommended sugery. However after the surgery i didnt get better instead i had pain in my lower back and walking became a nightmare. Then started havijg joint pains on my limps, which intesfied over time. By now i was wheelchair bound and moving around i had to use a walking frame. Different doctors have baptised it different names. One said its RA even though the lab results indicated negative. I was tested for all autoimmune conditions and they all came back negative thus the doctor came up with the conclusion that i have fibromyiagia. But apart from the pain, i have no lther relatable symptoms. Whatever it is, it has affected my life so much. I cant work, i am completely grounded. The pain is excruciatimg and my quality of life largely affected
. I feel lost and completely frustrated. Nothing seems to work. I am at crossroads.
Thank you so much with regards.
🙏❤️ Keto with fasting
Magnesium malate" 3 × day (MALATE) with EPA-GLA+ 2 X pr. day and
b12 methylcobalamin 1 x day
Magnesium helps you with restless legs and fatigue.
What is EPA-GLA
I'm doing keto with fasting and my pain is still the same. I've done keto before last year and didn't have this pain so I know it's another condition brewing. I'm trying to get tested for fibro when I see a Rheumatologist next month but my neurologist said I tested ANA positive titer 1:320 homeogeneous in my blood test. So I may have an autoimmune disease or both fibro and an autoimmune disease. All I know is I feel so bad like a sack of potatoes in pain soon as I get off work and throughout work and all day everyday. Can't wait to find out what's wrong with me so I can get treatment 😢
@@kendregab7328 I tried Keto. 5 months and didn't lose an ounce. The inflammation from all the meat was awful.
@@alexiswinter6948 I've heard about inflammation coming from meat. I went vegetarian for about a year and a half during college but had to stop as my parents were telling me I was become weak and getting more sick from not eating meat. I went back to eating meat and I was much stronger and not going to the doctor's as much. I tried going vegetarian again during Easter weekend this year for a spiritual cleanse and I was becoming weak again and so fatigued with other issues. I'm eating meat still but choosing grass-fed meat when I can find it at the store seems like it may help with inflammation. But all I know is vegetarian life is not for me 🤷♀️
Great Presentation. Thank you. 😊
Sir you are the first Doctor to pinpoint what my fibromyalgia is, I have had it under control for a few years now, but as of a month ago its back with a vengeance. can I continue my workouts at the gym.. What I have noticed the stress brings on my fibromyalgia worst, SIR what can I do to make my life better 68 years old trying to enjoy myself but this fibromyalgia ROBS you of any enjoyment. THANK YOU KINDLY
Ditto it took over my life and I was very athletic
It took me 20 yrs to find out. I have Sickle Anemia and also, i hit my leg, also have RA, in my spine!
MEDICAL PROFESSIONALS NEED TO ADDRESS PPL WHO HAVE ACKNOWLEDGED THEIR ACES. And have been dealing with all of it on a conscious and researched level. Many ppl will not even reveal that they have been abused and neglected in childhood. This has to be addressed proactively in one’s life. It can help immensely and prevent the somatic adverse effects in one’s health.
Why am I still on this earth in so much pain, I've had enough
It falls back on digestion . If it is not functioning properly then side effects occur .
Another thing that helps me is floats/sensory deprivation. Worth checking out if you have fibro :)
what are floats/sensory deprivation?
I’m going for neurofeedback. My pain has been extreme after going for these sessions. Thoughts on this
I was diagnosed with Fibromyalgia, SLE Lupus, RA, interstitial cystitis, Neuropathies etc Sometimes Im not sure if the symptoms are from one or the other auto-immune diseases.
I have what I suspect to be this, though it hasn't yet been diagnosed. A month ago I was able to life 20 kg all day, now the pain and weakness in my arms and chest. I had carpal tunnel release surgery 18 months ago, and COVID for the first time recently. One doctor told me he thinks I pulled a muscle.... I'm getting and MRI today, had and x-ray on chest and arm, ultrasound on wrist and elbow. Sleeping a lot now, history of anxiety and leg muscle twitching and muscle cramps. Thought it was RSI, doctors are yet to diagnose any problems.
I take LDN b 12 shots for deficiency and trigger point injections into my trapezius knots and low inflammatory diet and pacing are my tools and magnesium d3k2 and multivitamin and melatonin for sleep help. I’ve done everything else known to do with no long term help. This is what keeps me from being debilitated and. Bed bound. Chiro and massage helped but even mild became a trigger to flare up but that’s my personal case. I had gut issues and endometriosis for 30 years then developed fibromyalgia and cars and chronic migraines
I’m 38 and just finally after 15 years was testing positive for some autoimmune markers but not all. I was just diagnosed with fibromyalgia and rheumatoid arthritis my life literally sucks. I’m in constant pain all throughout my body plus the horrible pain in my joints. My hips, my elbows, my ankles I now have to get injections in them just to move those joints it hurts so much.
I take so many ibuprofen and Tylenol my stomach hurts I just can’t live. I get tons of walking it’s my job so I know I’m not sedentary. I’ve lost weight like they said I’ve done everything. I still don’t sleep and I’m still in pain every single day.
Sounds like lyme disease. Ask your dr for plaquenil....it cured me of all joint pain. I was originally diagnosed with a rheumatoid illness.
I have had pain mostly in my back and fascia but it can be all over. Feels like stiff or burning and when I rub it it feels like something sharp under the skin, like a thousand splinters under the skin. I have wondered if it’s gout or auto- immune disease like ankylosing spondylitis. But it might be fibromyalgia. I am not sure. Still trying to figure it out. I know that a concoction of Calm, EmergenC, and ACV seems to help. I also put clove oil and Frankincense on it topical to ease the pain. I did get bit by a tick in Colorado. I could have Lyme disease. I have thyroid issues and gluten intolerance and methylation issues. Good luck to anyone suffering with this, it’s tough.
The nerves in my lower back are screaming today. I don't want anybody touching today, exhaustion, and major brain fog.
I had Covid 3 to 4 weeks ago, then I had acupuncture and a wood, Asian treatment on my neck and back then I had a massage, and I wonder if any of these three brought on my fibromyalgia. I do have many of the symptoms, even IBS I wish it was easier to treat.
I had Covid at the end of 2021. That’s when my Fibro kicked-in. Deep tissue massage can aggravate fibromyalgia pain. Acupuncture is one of the few treatments that is supposed to help with Fibro pain. I guess that might depend on where the needles are placed. Good luck!
This is what happened to me. I honestly believe it was mild and somewhat dormat. I got covid in 2020 and I have never been the same. Was just diagnosed yesterday. I am in a lot of pain.
I was diagnosed with ankolosing spondylitis in my 30s.Im 61 now.I started having pain in my mid 20s.So much pain to get in or out of a car.Get in or out of bed because my back feels like a hot knife in it and pain in my hips running down my legs.8 yrs ago i had to go on disability. Went to more drs and said i had fibromyalgia. Some of the same symptoms overlap so i dont which is which.Pain is pain.Has anyone had any problems with their eyes.I have flare ups to sensitivity to sunlight.Cant even open your eyes outside even on a bright cloudy day.Ive had double vision a couple times and once it stayed that way for about 15 min.Also at times my voice will wear out when im talking to the point of not being able to hesr me and feel exhausted trying to talk afterwords.
I can feel the beat of my heart, feeling heart beat is also fibromyalgia's symptom ?
I struggle to get my doctor to diagnose it. I have all the symptoms… some days I have to just go to bed and do nothing.
I've been asking the question, what is fibromyalgia? I believe you are saying fibromyalgia is a break down between brain and nervous system.
It interprets the nervous system in a unnatural way.
Is this what you are saying?
I've heard and experienced the symptoms but that doesn't explain the illness.
So is fibromyalgia a misunderstanding state between brain and nervous system?
I take zomorph 10mg twice a day and it really helps.
This is not the answer, smashing your body with toxic pain killers provides relief but does nothing to fix what’s causing it and actually makes it worse. I was on and off opioids for years and they do nothing but harm the body, however I understand the need for relief. I have found hypnotherapy to be far more effective, using a sauna and trying to clean up my diet to reduce inflammation, but will keep searching to see what else helps!
I'm on 15mg zomorph twice a day sometimes we just need some pain relief don't we x
No need to be critical / Opioids taken properly can bring relief to debilitating pain issues / They helped me and yes I have struggled with addiction @@traciefromSunderlanduk
I took ozempic a few months for weight loss…. Lost 35 lbs and got to goal weight. During those few months I did not hurt at all. My insurance stopped covering it Jan 1 and I’m in horrible pain again. Does ozempic help with pain???
That's very interesting??
Wow… that is interesting
Seems to me that they REALLY don't know what it is,
I was diagnosed with Fibromyalgia in 2009,had to sell my small business. It can be a devastating disease. So many problems I can’t even list them all. Pain,fatigue,gut problems,sleep problems,cramps,spasms,drop foot,are some symptoms I have. Been to many doctors over the years with no help. Doctors don’t know how to treat fibromyalgia.
They don't know, nor do they care!!!
I have full body nerves pain.
Is this fibromyalgia?
no one will be able to tell you that here, you should see a rheumatologist for help.
You should see a rheumatologist and be diagnosed. Nerve pain is one of the symptoms, but there are many other trigger points that go along with it.
I agree with the responses and also keep in mind that many other diseases are associated with nerve pain; it takes a lot to get a diagnosis because there is no one test that can tell you. A rheumatologist is definitely your first step to figuring out what you have.
FM is a multi systematic condition. Getting to why it developed is critically. Stop treating the name FM/CFM and treat the causes. Trauma and a sleep disorder are major players. Please get an overnight sleep study.
Get rid of processed food eat real whole food. Eliminating detergents especially dish, laundry and hand soap are all hormone disruptors.
Really
What do you substitute all of these with???
Theresa, what kind of soaps should one use that won't disrupt hormones.
I have caught this or a 2nd time . the 1st lasted 2 months then dissappeared , this time its very similar except that I am losing weight, 2kg of Fat have gone from all parts of my body/
I know sometimes weather changes.
If you don't have fribromygia don't understand what it feels like.
I hear what feels like neurotransmitters pinging in my brain, which affects my Tinnitus.
Similar to MS
Hello everyone.
I just want to add that Intermittent Fasting really helps me.
Best wishes to yoy all.
SO VERY PAINFU.👿
40 hz frequency therapy
I have now got stiff person syndrome aswell as fibromyalgia. If this is some sort of my karma I truely must have been a really evil person in past lives 😭
I can so much relate to you
Anyone out there have major flare-ups following Covid19 and or the jabs?
Yes it is not easy to live with fibromyalgia
Hello,Doctor
Thank you for all this great information
Why do you think some medical Professionals still feel Fibromyalgia to be a made up disease
Would you agree that there is some exaggeration on the part of certain Patients
No exaggeration
I'll answer that. They can't help us and then they feel stupid so they just label us as hypochondriacs to make themselves look good. And no Elizabeth, none of it is exaggerated.... here's my favorite quote: "You don't get it, until YOU get it." ....And p.s., there is no such thing as a hypochondriac for the most part, again it's a label given to us when the DOCTOR'S have no clue what the real cause it. They're taught to treat the symptom and not the cause.
LONE RANGER…YOU ARE SO WRONG🫣
Adhesions, thats the cause, remove the adhesions and your pain is gone virtually instantly, Your nerves are adhesing to the muscles and even at rest the nerve is being pulled on causing phantom pain from the nerve, Deep tissue message and locating the nerves is all it takes to be pain free, the nerve will feel like a noodle when its located, message the surrounding tissue agressively freeing the nerve from the muscle, it is just amazing because even though it makes your muscle tender for a day, the nerve pain is gone instantly, you will be amazed, I was diagnosed with carpal tunnel 10 years ago, i refused surgery, i fixed it in 10 minutes by literally digging into my forearm and wrist, the relief was immediate and lasted for weeks, more message and it lasted longer, doctors are the biggest liars on earth.
During the last 3 years I have lost weight not on purpose (from 126 to 95 lbs. height is 5'5"). I have had osteoarthritis since my 30s (I am now 77) & constipation (although I had been highly active until a year ago) now I go 1-2 times a day or every other day. Also sinus problems since my 30s. Stopped fast foods, potato chips, junk foods, etc. Eating more veggies, fruits, red Salmon, Sardines (not a fan of bread). Will eat red meats, pork & chicken (but not much) & spaghetti w/meat sauce. During the last 5-6 months my hands especially the fingers are numb, also the skin on my back & now the skin on my stomach have gotten numb (what causes that??). Pain on my left side (which for the most part has subsided) & some pain both right & left in my back. I do take multivitamins, Vit. B12 along with multi B vitamins, Vit. C along with D3, Magnesium & every other day Zinc, Omega 3s & glucosamine & chondroitin. I do have an annual Doctor's appointment May 16, 2023. Any suggestions?? Judi
Try avoiding gluten as well..
Maybe up your niacin. It sounds like you maybe developing cardiovascular symptoms. Do your hands turn purple
LENS neurofeedback cured both my girlfriend and mothers fibro. Sounds crazy I know but it did!!!
?
Neurofeedback therapy? I’ve looked into this before. Insurance doesn’t cover.
I’m trying neurofeedback now. Hoping it helps me. Very expensive.
The pain is after being exposed to perfumes. Why dont you know that?
Hi Sarit, I recently told my GP that I think the main cause of migraines are all the filthy harmful chemicals in perfumes, makeup, lotions, shampoos, laundry soap, etc. Also it makes sense as to why fibro is more common in women. He was pretty taken back by that. I w/out a doubt, speaking for myself, that the filthy harmful chemicals in all of the above mentioned products, are major trigger factors to migraines, all over body pains, etc.
hi
Sacral Tarlov cyst disease in 42% of women with fibromyalgia NIH
What about CBD GUMMIES???
Mcas
Diagnosed with Fibro first then R/A, O/A , obliterated spine-cervical to sacral!! At the hands of my darling husband!🙄👎🤬 Also have HS with chronic infections so I can't take any of the biologics. ONLY chemo to suppress my immune system from attacking my own body!! Lax doctors who don't bother to investigate any other syndromes or diseases!! Medical train wreck!!🙋🏼♀️👎🙄🤬 Depression, diabetes - uncontrolled due TO chronic infections, obesity and several other medical issues make it rough, every day!!👎🤬 9 tumors that they know of right now at the ripe old age of just 53!!🙋🏼♀️🙄 WTF??!? EVERY time I go to the doctor they find something else new, rare and bizarre, ALWAYS!!🤬 I give up!!👎🥺
This should be called you don’t have fibromyalgia
They don’t know what fibro is .
Itchy skin
Wow, so "everything" causes Fibromyalgia. lol I give up.
Please speak louder next time,.I couldn't watch this because I can't hear it!!!!!
Put on the SUB TITLES - I did and could then hear him clearly!!!
culprit: microwaves, so eliminate microwave-ovens
Oh this is from getting the crap beat out of you emotionally .