I’m 17 with fibromyalgia and it took so long of doctors not believing me before I was diagnosed. It REALLY sucks. It really is the invisible illness. Trying to explain to people why I fall asleep all the time is frustrating and embarrassing. My heart goes out to anyone who may be dealing with the symptoms. It gets better when you find out what works for YOU.
I am 42 at the end of this year. I’ve had fibromyalgia and chronic fatigue syndrome for more than half my life. I want to encourage you younger people who are experiencing pain: you can live a fulfilling, joyful life in spite of, and because of, your pain. Your pain can have meaning. Pain control is essential; find a doctor who listens to you. There may not be a cure, but there is always hope for a beautiful life. ❤
@@VirtualHolocaustwtf are you even saying? You have NO idea the way fibromyalgia patients have to suffer! My Daughter has goals & big dreams. She is only 15!! She has not only been diagnosed with Fibromyalgia but knee issues with Amplified pain! It’s insane! Please don’t judge something you know nothing about.
@@mrsg.9273 Yeah and you dont either. You are thinking emotionally because it "affects" someone you care about. You have just as much evidence that it exists as medical science and me that it doesnt. Also even notice how often this happens in women and not men? You know why? Cause no one cares about men. No man is going to get taken care of because they wanna stay in bed. "amplified pain"? What does that even mean? That her knees hurt more than a normal persons knees would? If shes 15 and has knee pain you probably wanna feed her less.
It was the 1 year anniversary of my fibro diagnosis last month. I was finally diagnosed at 21 after years of suffering from chronic pain and associated symptoms. I honestly cannot remember a conscious moment in my life that was completely pain-free. I think I became truly aware of my anxiety, depression and chronic pain at age 9, I have a specific memory of looking out a window and being hit with all of those realizations of how something was definitely wrong, I can still remember that memory pretty vividly. I'm seeing more and more young people suffering from chronic pain, getting diagnoses of fibromyalgia and its really concerning to see so many other young people suffering. It was such a relief to finally have my pain recognized and validated after a year of constant medical exams, x-rays, mris, blood tests. It just took one doctor to take my concerns seriously, look at all the tests I'd had done and consult my medical history to confirm my diagnosis. She also did the pressure point test but my diagnosis was pretty clear at that point already. It was really emotionally painful having gone undiagnosed, my pain dismissed since childhood and going through tons of doctors who didn't even suggest fibromyalgia. I had to do so much medical research by myself, advocate for myself when I was having the worst flare up I've ever experienced. I hope people in the process of getting diagnosed are able to go through it faster than I did and find pain management solutions that help them cope better ❤
You are sooo lucky that you are able to work still. Of everything that Fibromyalgia has taken away from my life, I have to say the going to work is the one that I miss the most. 😢 I get really annoyed when I hear people bitching about having to go to work. They have no idea how fortunate they are to still be able to work.
@@andrewhopkins8137 I am still pretty new to having and being diagnosed with Fibromyalgia. I've had it for about a year now. I work for UPS. It is a very physically hard job but I want to keep working as long as I can because the insurance benefits are extremely good. However someday's I'm in so much pain that it is really hard to make it to work. Since you've had it for 10 years and said you cannot work, I am curious if you were able to successfully get disability? I asking because lately I've been missing a lot of work and at my job they love me but they have a very stick policy on attendance. I try my best to go to work but sometimes I have bad Fibromyalgia flare up's that make it almost impossible to even walk. I'm going to try to keep going as long as I can but I hope that if the time comes that I just can't take it anymore that hopefully going on disability is an option.
I'm 43, have had the symptoms for 25 years but only got diagnosed at age 35. For years, doctors dismissed it as 'growing pains', 'female pains' (yes, you read that right!), 'its depression/anxiety/stress' ... was told to 'just relax', 'just go on holiday', 'just go to a spa'. There is nothing JUST in living with fibro; everything is an effort.
My daughter was diagnosed 3 years ago and she 14 now ,I cried so much to the doctors to help her and they couldn't understand how someone so young was feeling like this she went through so much and she has learn to deal with ,yesterday I was diagnosed with fibromylagia and its been horrible ,I wish there was more awareness i had to see different doctors they didn't take me seriously, guys don't give up if one doctor won't listen go to the next I know its exhausting, God bless you all
As a massage therapist, I have seen very specific causes. Can you tell me what type of exercise you were doing prior to your symptoms starting. Were you a swimmer by chance?
I'm praying for you both. Thank God your daughter has such a wonderful mom. She is going to fare better than most because she has you to walk beside her.
I feel for both you and your daughter. I developed FM/CFS after 7 years of ongoing pain at age 9 from Osgood Schlaters disease. FM was diagnosed when I was 23. CSF is undiagnosed as doc refused to send me to a specialist... I doubt the treatment would have been much different than the ineffective treatment I received for FM. I am now 59. Severe exhaustion is contant. Only through my own personal self work have I improved. There is no magic pill, exercise, or cure. You must treat the body, mind, and spirit together.... a holistic treatment involving many aspects. Take responsibility for your own healing. Learn a positive mindset, reset reasonable boundaries, check your core belief systems to make sure that they are what your body really needs right now. Clean eating, non processed foods, no sugar or wheat, no chemicals or hormones...made a real difference for me. Check out YT videos from Toby Morrison of CSF Health in Australia. Lots of common sense, and guidelines. Sending you both lots of love.💞
Hi I feel really bad for her bcz I have same problem even most of the days I spent on bed n couldn’t walk properly, couldn’t able to do my chores but now I taking Homeopathic medicine from India n it’s really helping me lot. Now I can walk properly n do my most of the chores. 5th day after started this med I was surprised when I woke up I didn’t have stiffness n less pain so I am getting better now before I couldn’t able to sleep bcz of chronic pains n now my sleep is getting better. I will pray for her
I’m 20 and I am a man with fibromyalgia. Just want to say I know a lot of women get prescribe this illness or whatever you wanna call it diagnosed. But men also suffer and it’s very disheartening that I can’t find other men with the same issue. I hope everybody has a good night love everybody
Im also a man with fibromyalgia. I also wish i had men to talk to about it. Most of my friends dont take it seriously, and even the “understanding” ones seem to always forget so you constantly have to explain over and over.
men are much less likely to have it which in your case is unfortunate with not having men to relate to. just wanna say that you can still talk and relate to women with fibro, we’re all in this struggle together.
You may also be suffering from depression. Nearly all fibromyalgia patients become depressed. Treatment for the depression is just as important and treating the fibromyalgia. They create a viscious cycle otherwise as the depression increases the pain and can exacerbate a myriad of other symptoms such as skin eruptions or hives, shortness of breath, brain fog, mood swings, etc.
@@glynnisthomas9165 I have long covid this past two and a half years,the covid triggered fibromyalgia,I have no let up with the extreme pain, I have brain fog, confusion, intermittent brain inflammation it's affected my eye sight and hearing,I have tinnitus,I have a stammer if I over do it, I have lung damage and now use an inhaler,I have horrific nightmares, I have what feels like frostbite on my toes and fingers,every joint screams 24/7. I've had to take early retirement due to illness from work,which amounts to practically nothing as I have been a phlebotomist for seven years,we are going to have to move home without my salary. I've just weaned myself off my antidepressants,this is my second no meds day and I feel like I have my tongue on a battery. And who gives a rat's arse,??? Yip, no one. Solidarity to you Glynnis 🙏🏼
@@Lordknowswhere oh my Gosh Shona... I feel for you! The one place you thought you would probably get some understanding... you didn't. The health care system where you worked. I was a medical laboratory technologist... and after 2 LOA's, had to go on permanent disability. My boss said I was faking, that he would prove it and would make me pay back all the disability benefits. In the end... I lost my job, lost a secure income, my husband divorced me, lost my home, lost the chance to have children, many friends left, family thought I was crazy, and I lost myself for a long while. Check out the YT videos from Toby Morrison at CSF Health (Australia).... I found a lot of very helpful information there. Unfortunately there is no cure... but we can learn to live fulfilling lives within our own personal boundaries and limitations. My best wishes to you... that you find peace and hope along the way.💞
@@Lordknowswhere sounds exactly like what im facing.... its probably the exact same thing.... except i dont know if the brain inflamation part is like mine i never got a diagnosis of that or did that test... who diagnoses that? And i dont know if i had long covid because i made a full recovery and 10 months after these things just start happening
GIRL I'm also a 22 year old with fibromyalgia and i understand how frustrating and stressful it is that people think that just because we're young we can't have any illness STAY STRONG WE'LL GET TROUGH IT 💖💖💖
And i'm a guy. still pushing foward BUT it's a new life. It sucks but seeing this kinda makes me feel normal because i'm not alone in this. I'm Brazilian, sorry for my English. = )
Just turned 19 and here I am. This is so complex and really awful a lot of times but we have to embrace our pain and with baby steps we’ll see light again!
i’m 24 and was diagnosed with fibromyalgia when i was 17. i haven’t been able to work or study. i’ve been struggling with anxiety too. i don’t have any close friends but my partner is very supportive. best of luck to you💕✨
Hi, why u don’t try Homeopathy meds. I have depression n axiety attacks from last 5 years n I diagnosed with fibromyalgia last year. I was suffering with chronic pains every day, most of the days I couldn’t even move from bed, couldn’t walked properly but I started this meds from Indian n on 5th day after started this med I was surprised, I woke up without stiffness n less pain. Now I am walking properly n no axiety
You may want to test for insulin resistance which has been connected to fibromyalgia. Getting a HOMA-IR score as well as a Glucose tollerance test over 5 hours with insulin could also be beneficial. Reguardless taking insulin resistance supplements like Benfotiamine (with sucrosomial magnesium cofactor), nicotinimide riboside (with TMG 1:1 ratio as cofactor) and Myo-inositol and d-chiro inositol, and NAC all help improve insulin sensitivity. The underlying cause may be immune mediated, which is more complicated.
My poor Daughter is only 15 and was just diagnosed after many years of pain! She was diagnosed with Amplified pain also knee issues. Please pray for her. 🙏
@@dadafish1 a chronic illness is part of us. Doesn’t mean it’s the only peace of us and in no way does acknowledging the syptoms we have cause us to “have more pain”
I'm 23 right now and was diagnosed at my 15th. They researched me for a hole year before diagnosing me with fibromyalgia. It is an enormous challenge to live a normal life with this. In my teenage years it was the darkest time of my life. Emotionally and fysically. My fibro triggers are: bad emotions, the weather and random. I had moments where I would cry and scream because of the pain during a thunderstorm. Right now Im doing better. My mental health is a lot better and I have a strong kind a healthy body. I noticed that when my body is strong that the fibro got less. So I have had a few good ish years, sadly right now my mental health is bringing me down. Mostly because of the stress of living an adult life. Money, jobs, housing, covid and all of those shizzels. I wish for all of you that your pain eases
I had fibromyalgia all my life since I remember. It was "stress", "depression", even attention seeker at first. They' ve diagnosed me with fibro when it becames so bad that disabled me 9 years ago. So, in fact, they diagnose it at woman in middle age, but that doesn't means you are having this since you were a child. But a middle age woman has not the same energy as in her 20's, and she usually can't continue working or became disabled. Until then you do not get your diagnose. And as I have this since I can remember, I thought it was normal having pain all day. I thougth I was only more weak than others. Sorry my english, I am writing this in a flare.
I finally got diagnosed with fibromyalgia at 39 and it has negatively impacted my life. However, I’m trying to stay positive and motivated to continue to enjoy life despite this terrible disease. I know it’s hard being in your 20’s with fibromyalgia, but stay strong and make sure you engage in self-care because it can enhance your psychological well being💕💕💕
Im 43 years old started feeling the chronic pain at the age of 11 years old. Took over 20 years to get the right diagnosis. I thought had cancer my entire life crazy. I wake up each day of my life to help the VOICELESS and hungry it help me tremendously keeping myself busy not complaining while others are starving to death
I was diagnosed 3 years ago at 20 with Fibromyalgia. So far I've been managing with Celebrex (really strong advil). It's not just an ache, it's joint pains to the point I can hardly stand up or step up to a bus. I had chronic pain since age 8, but everyone thought it was growing pains. I'm glad to have a diagnosis, but there's not a lot of treatment options.
I’m 24 and just got diagnosed last June! I’ve evidently have had Fibromyalgia and possibly adhd since childhood. It’s so relieving to know I’m not making stuff up and that I’m not alone . . .
I think I have fibromyalgia that is getting progressively worse. It started off as regular pain in my right leg and back but now I'm almost always in pain all over my body. Heck, sometimes my scalp hurts. On top of that, I have extreme fatigue to the point that I struggle to function, sensitivity to noise (too much or too loud is painful) and now allergens (I have chronic sinusitis because of this), and I've been diagnosed with depression for almost 10 years. I'm only 23 years old but I feel like a 60-year-old woman. I don't understand how I'm supposed to live an adult life and do adult things like this, considering that doctors do not take me seriously! I have an appointment in three hours for what seems like the hundredth time and I swear I'm going to put my foot down. I'm currently in my first year of a biomedical degree which has been challenging for reasons mentioned above, but if I manage to make it through I might dedicate my life to finding a cure for chronic conditions like this. It's no way to live.
Fibro Warrior here!!! Stay strong. I was also disfavor you young (23) and have been dealing with it for 21 years now. Find a partner who supports you and understands fibromyalgia. It is the best advice I can give 💜🙏
I was diagnosed with CFS in 1989, but worked out it had started in 1970! Then in 1990, I was also diagnosed with Fibromyalgia, which must have been there all along. In the 80’s, I was able to walk off my weight, and gained a small reduction in fatigue. In 1998, I walked off the weight again, but pain and fatigue always creep back. I am now 71, and the pain and fatigue has been unimaginative. Pain is my daily companion, and my mobility is highly compromised. I am on a whole swag of medications, just to keep me up and moving around. With pain, always.
I was diagnosed as a teen 10 years ago. I’m mid twenties too and it really has obliterated my life - I can’t be out of the house for more than a couple hours without more and more pain building up to unbearable levels. And afterwards I need two or three days in bed. Sleep is often unpleasant and I wake up from vivid nightmares each morning (caused by pain while subconscious) it almost seems like the pain is worse when unconscious, I read that it may be because immune function is more active when asleep and fibro (some say) is autoimmune. Most of my female family members developed fibro at puberty, and we think it has to do with estrogen because that hormone is linked to amplified pain. That said after a decade and an entire family with this diagnosis, I am not a single step closer to an answer or solid science on this diagnosis. It is a syndrome with many possible causes. I notice many young women are getting diagnosed like me and I wanted to say that you have legitimate medical issues, the fibromyalgia is not the correct answer. It is another illness or something that hasn’t been discovered yet. On one hand it helps to have a diagnosis but this one is the most useless. It gets zero recognized and there are barely any resources or studies being done for us. It feels like not one cares. I sometimes wish I had a worse illness so I could get seen and treated, have a chance at a cure. But I don’t. Simply put I feel like life is passing me by, and instead of a faster or more sure death from a terminal illness I am alive and will stay that way for a long time but it utter agony, and on top of that expected to live a normal life because I am young and don’t look normal. I know someone with MS and she is more functional right now than me… that’s how useless my body is. And not a single thing has changed since I was diagnosed 10 years ago. I can take painkillers, exercise, eat better - it helps but not for long, then I am back to a steady feeling of nothing changing and it just feels horrible.
I have fibro since my 20 years, along with depression and anxiety. If anyone read this, don't give up. Gym and yoga actually makes the pain go away after some time and consistency, it is like magic. Also, therapy, doing things to relieve the pressur eon my mind, like walking and writing.
Hi I’m 32 I have had pains in my body for 2 years, and I have finally been diagnosed with this. I have extremely bad lower back ache, it’s a killer the pain. I cry with pain, I can just about walk up the stairs then I have to crash out on my bed. It really does get me down. I also have two children so housework can be hard. All I want to do is sleep 💤 x
I totally relate to what you said. It really is crippling. I have been in sever pain in a little over a year now and somedays it makes me feel so depressed. I just want my life back before when I was carefree and pain free. What I find the hardest to deal with is it in an invisible disability. Nothing is broken, so we don't wear cruches. It isn't anything anyone can see that is visibly wrong with us. Only we can feel the severe pain that we are going through. So I think its easy for people to not understand. Hell, I don't understand it. But nevertheless it is really hard to have a life, or someday's even go to work. I am struggling with that one a lot lately.
Hi Trace, I know it’s very hard bcz I was in the same situation but now I am taking homeopathy medicine n it’s helping me lot, it doesn’t have any side effects. I was not able to walk properly before n couldn’t do any chores, it was hard for me to dress up bcz of bad pains n I cried lot but now I am so happy I have very less pains n walk properly n do my most of the chore n very energetic after taking this meds. I order this medicine from India n after starting this meds 4th or 5th day u will feel the difference.
@@JeannetteSantos-l9k hi it’s Homeopathic clinic in India ( Punjab) I talked with them on the phone about all my medical conditions and the courier me all the meds.
I second this, been taking Duloxetine (cymbalta) + codoliprane (paracetamol and codeine) and I've seen about 40% of pain reduction after a month, although it does come and go unfortunately and it varies with huge flare ups some days. Anxiety and depression makes it worse easily. But it's at least better. Side effects were typical of antidepressants and codeine (decreased libido, brain fog, difficulty urinating) but they all went away completely after max of a month. Unfortunately you'll always get constipated after taking codeine but that's chill. PS: Antiinflammatory meds were horrible for my stomach and didn't help with the pain and felt it was just worse (took them just for a week or 2)
Thank you for sharing your story! No one else I know has the random stabs of pain (like being stabbed with a needle repeatedly) so it's good to hear another fibro-folk understand it too.
@@tammielee3476 hi yes I have been diagnosed with fybromyalgia. There has also been an update I found out that my iron levels were really low so my anxiety and depression have subsided however I am going into my second month of taking my iron pills and I am still feeling off balanced especially when i don't sleep well but i have been keeping a very detailed record since 2018 and i haven't had any new symptoms. I hope this helps plz check for any vitamin deficiency.
After dealing with whole body aches that gradually got worst every day. I had to return back to nyc to be seen by parents’ physician. She worked efficiently with her staff in her clinic to check for any big disease and got me a neurologist walk-in that same day. I’ve been ignored and not taken seriously at all by UHS in Binghamton for 3 months. I finally caved and came back to the city. I’m so thankful that at least I have a trusted doctor who sees me as a person and not just business. Going outside and being active definitely helped with my symptoms during the day, but at night and when I’m lying down it’s the worst. The Loneliness and feeling of isolation from my friends and family was one of the hardest things. I try to remind myself that everyone is going through life and it’s tuff, but ultimately no one around me really understand the pain and that’s normal. To anyone who’s going through chronic pain, I have so much respect for ya’ll. It’s only been a couple months for me and it feel like a fight every single day. Thanks for reading and stay positive guys ❤️
Got diagnosed with fibromyalgia back in 2017. Diagnostic took like almost a year. And four years later I'm still struggling with pain lile the first day. But I managed to reduce my pain medication, which is great. Thank you for the vid.
I am a person with about a dozen symptoms of fibro.. heavily suspecting that I have it after years of fighting with doctors for a rheumatologist or diagnosis. I see a lot of comments about distressed people who are young like me thinking that this will be a burden for the rest of their lives.. I just want to say that you are seen. I know how scary it seems, big lifestyle changes can be daunting, but you will grow and learn how to take care of yourself and cope with these ailments. It will be tough, but you still deserve to live a normal life in anyway that looks like for you. It will get better. Be kind and gentle with yourself and recognize your needs. It will be okay, trust me. We got this. ❤
For me, the way that it feels is like if the feeling of anxiety became a physical pain you could feel radiating throughout your entire nervous system and sometimes it even clusters in very specific spots more than others. It becomes so overwhelming it almost feels like if someone wet a thick blanket of that feeling and threw it over your neck and told you to now go walk. It’s like all your body knew was trauma, stress, and pain to the point that it is now permanently scarred into your mind and you can’t get out of it. That’s why 5HTP I hear is good because it can improve serotonin function. You need to find ways to feel good so that you can rebrand your brain with better patterns of feeling. That is the only way I have been able to improve slightly. It’s hard to feel good. It’s hard to cure your depression. You need to not be in pain to get out and solve problems so it’s hard to make changes. But one step at a time I think there’s hope through diet and lifestyle changes.
I don’t like the misconception that it only affects middle aged women. I was suffering with it at aged 16 and many doctors did not want to diagnose me because of my age.
I’m 23 and I’m not sure what I’m dealing with but hearing this story gives me much needed hope to keep finding out what’s wrong, I’m not crazy, I’m not weak, I’m not making it up, I just have no idea what is going on lol but I know I’m not alone
I've had this since I was quite young! Doctors kept saying it was 'growing pains'!Yea,after 21 years of age I don't think it's growing pains any longer! I am now in my early 70's and only about 5 years ago I was finally diagnosed with this!Not that that was a relief bc I still hurt,I just wanted relief! The doctor put me on Cymbalta -all it did for me was given me palpitations! That was four months ago-I quit it!
It's really refreshing to read these comments and see that I am not alone. At age 18, I was diagnosed with Fibro. Amongst other disorders that come along with fibro. That was 21 yrs ago. I was told i may never walk or work again. No sports ever. And 0 quality of life... that being said.. I've been a chef my whole life, played sports, lived hard and played hard. I live every day, every minute in some kind of pain. Ppl do not understand why, because they can't see anything physically. That is the hard part of this condition along with the mental aspect of it all. I am an MMJ advocate and that has truly made my life bearable and functional. To anyone out there struggling, know you are not alone. Some days are better than others... but try and appreciate the little things. It goes a very long way. Love from this NY'r turned Texan
i'm 42, was just diagnosed with this after having covid..... sadly i may have to quit my job that i love (cooking) because my legs have such pain at times they stop working and i almost fall or drop things.... thank you for sharing, nice to know we aren't crazy or alone
I freakin hate when they try to treat pain and everything else with antidepressants. It's bull. Zoloft sent me to the hospital. It's awful. I had to take down all my symptoms and help diagnose myself. I'm glad you got diagnosed young.
@@abriayates4189 I am so absolutely sorry to hear that. I empathize and I feel you. Hugs!!💖💖💖💖 I hope things are a bit better for you now!! It's a hard road.
I have had fibromyalgia since I was in 4th grade (which I had to repeat due to attendance) and I am almost 42 now. It gets lonely, depressing and almost impossible to have a life due to constant pains almost daily, anxiety and other crap that comes along with it. Anti-depressants don't work and now I have a medical marijuana card from my doctors (never smoked until now... not the best form of choice but, it helps a great deal when needed). hope you all can get through your symptoms the best way you can to get the relief you so deserve. God bless.
Watched this video a couple weeks ago and it resonated with my pain so much. Yesterday I was told I may have fibromyalgia, it all makes sense now. Tomorrow I get my results. We'll see!
It's been almost ten years since my diagnosis I had almost the exact same experience as her.I was having the pain and exhaustion and my doctor said do you have fibromyalgia and I was like I don't know I've never been checked and she said I don't want to scare you but I suspect you do she checked my trigger points and I had every one.After years of being called crazy I was helped by someone who listened and just did a simple test.To anyone struggling whether its pain or mental health or something else chronic with the body don't give up and don't stop advocating for yourself YOU KNOW YOUR BODY BEST remember that!
i'm 23 and was diagnosed with fibromyalgia and cfs when i was 20. still after 3 years of having it people around me act like they dont believe me even when i'm crying from the pain just because i dont have an open wound or a broken leg. its isolating seeing so many people my age live their lives while im constantly stuck at home and in pain. the doctors do nothing at all to help
To begin with, you also need to help yourself, having this mindset will bring you down even more. I hope you find a way up. For me, exercising, health eating and mindfulness have really help me. Good luck! YOu're not alone!
I've been diagnosed by the end of June. My symptoms started 6 weeks after C-section. I was not expecting that at all.. I'm 26 years old and my legs are constantly burning. Some days I can't stand more than 5 minutes to wash the dishes. I used to do 10.000 steps a day and now I can't take my baby for 10 minute walk in pushchair.
@@greenrainbows11 Because I'm breastfeeding the only option for me was Amitriptyline. I take 30 mg each evening and it helps with sleep,I don't have fatigue and brain fog anymore. I still get daily aches and neuropathic pain I think 30 mg might not be enough to control all of my symptoms. I take it since June and some people say it takes at least 6 months to start working.
My mom didn't have fibromyalgia until she got me. I've read somewhere that a big change of hormones can cause the fibromyalgia to show itself. I got fibro in the middel of my puberty, so there is defenately a link between fibro and hormones. I hope your pain eases!
Im 20 years old and i just got diagnosed TODAY ive been dealing with it for 3-4 years about i have chronic back pain and neck pain the most im constantly fatigued, anxious, depressed etc. i feel you and i really wish i can get my story out there ive had a very hard life and i just wanna share it!
I’m 22 and have recently been diagnosed! I’ve been called a hypochondriac my whole life and I’m in agony constantly. I have crippling pain in my lower legs and I struggle to do daily things. How isn’t this recognised as a disability? X
I’ve been “lucky” enough to get granted disability benefits for fibromyalgia in the UK. I got it in the first try, but it takes some people half a dozen attempts. Just keep at it, you need to get somebody who is understanding...
thank you for creating this video and saying that loudly. I spent more than 7 yrs now since I was 21 or 20 yrs old if I remember that right. and Drs didn't understand what I am going through and all what they were saying that I am stressed because I am in Engineering college and it's hard study and faculty but I got difficulty nearly in everything. for every stage in my life I feel pain in different organ I always thought that I just have bad luck for feeling all this in my life although not all in my age feel the same. I recently I went to psychiatrist and he identifies it but just by experience without any test. so thank you for affirming that loud, I have all the symptoms you've mentioned since long. REALLY BIG THANK YOU!
Hi I’ve been living with fibromyalgia😢 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
I'm 28 and was diagnosed about 23-24, I've had it my whole life but it was until I had a sort major event where it caused chronic fatigue syndrome was I finally able to get diagnosed. Its frustrating because I can't function hardly at all but because it's invisible and I'm so young getting disability is a struggle. Most of the people I encounter with fibro aren't even "old" there are so many people my age and younger who have it and its time that the idea fibro is an "old womans" issue be laid to rest along with most supposed age related disabilities.
It’s not just that but many doctors refuse to believe the science and statistics of young people getting it more frequently and in many cases more severely. Many doctors believe fibromyalgia to not even be real which is sickening and ignorant on their part. Also if you are getting tested and believe yourself to have fibromyalgia you need to focus on finding doctors who not only specialize in Neuropathic pain and remedies but also a doctor who specializes in nervous system disorders (some doctors are adept at understanding both) because fibromyalgia has many trigger points and reasons for causing you pain
I am 14 and suspect I have fibro. I have seen every doctor for my headaches, but didn't suspect fibro until 1 month ago. I have been feeling ankle, hip, knee, and random other pain for more than 2 years but didn't suspect anything of it. No one really believes me.
@@syd417 I’m now 16 and got a diagnosis for fibromyalgia last year- after years of struggling, I started physical therapy and have never felt this amazing for years. Obviously the pain is not completely gone, (it never will be) but if you have fibro I strongly recommend physical therapy
i have a very similar story. started experiencing the pain when i was just turning 16. i got diagnosed when i was 17 (after seeing tons of doctors and doing a million blood tests). im 23 now. i've learned a lot about my body and medicine and healing and whatnot. i still struggle with accepting my limitations though. people dont realize how much grieving one must do when theyre diagnosed with a chronic illness so young. shout out to everyone out there fighting their own invisible battle. i see you
I have had fibromyalgia since 2018 and I'm 43 now. I also take same meds as you, sometimes it works sometimes it doesn't. I have aches and pains that jump in different parts of my body. We can get through this. Just keep going.
I’m 23 and have had chronic pain and other fibro symptoms for 4 years now. Cutting out gluten has helped tremendously but I’m still in great pain. Hoping my doctor will diagnose me when I ask about this disease.
My GP didn’t understand it & told me it was “growing pains” at 12 but it just progressed from there. I actually googled my symptoms after not getting answers for so long. At 27 I found the word for my condition & it was Fibromyalgia. So from there I went to a rheumatologist & he took down a medical history & tested my tender points. Prescribed me medications. It’s a lot of medication. Good luck to people who have this because it’s not really understood. I feel like either the medical community don’t really understand it or they are also participating in gaslighting these (majority) female patients about their condition. Cause I felt crazy. Until I got the diagnosis confirmed.
I’ve had pain since I was 14. I have menstrual pain beyond the severe point. Same way with joint back shoulder neck and stomach pains. Headaches and severe fatigue every single day. I’m 22 now. And researching this because. My dad and boyfriends mom has suspicion. My scans and test results were CLEAR. there’s nothing just pain with no reasoning.
I'm 28 now, but I was officially diagnosed with fibro at 18. In retrospect, I'd been suffering from small symptoms here and there for my entire life- it just took stress to bring it out more and more. Every stressful event in my life was followed by more symptoms, and an increase in the severity of what I already had. Like so many other people diagnosed with fibro, I didn't know what "normal" was supposed to be, so I didn't realize how abnormal it was to experience as much pain as I did as a young person. I was always a bit rough and tumble as a kid. When I got hurt, I assessed how severe the wound was, got up, and walked it off. When I played baseball and softball growing up, I didn't know that my teammates weren't experiencing the same severity of muscle soreness that I was. As I got older, symptoms grew stronger. My pediatrician began to consider whether I might have an autoimmune disorder, but fibro was never considered because I was waaay out of the age range the medical establishment had dictated as the norm for fibro. I had walking pneumonia for most of 9th grade before we finally figured out what was going on with me. While the pneumonia itself wasn't directly connected to the fibro (as far as I'm aware), it was a physical stressor that caused a decline in my health generally. In 10th and 11th grade, I was severely bullied by an older kid in my band class. The kid had problems, and while I can understand why those issues lead him to act out, it still wasn't acceptable behavior. Sadly, the school administration felt too sorry for his situation to ever really discipline him. He bullied everyone he thought he could break. I had a position of leadership in the band- in 10th grade I was 1st chair clarinet so I felt responsible for my section, and in 11th grade I was a student conductor, responsible for *everyone* in the band. I've always been rather maternal. They were my little ducklings, and I couldn't bear to see them bullied. So I interfered, putting myself between him and them. That made him angry, of course. He directed the bulk of his bullying towards me, hoping he could push me past my limits. He couldn't break me. It did, however, contribute to my unseen illness. At 15, I had to go to the ER with anaphylactic shock. My allergist still isn't sure what caused it, or whether it's at all connected with the fibro, but the working theory is that I'd just had an overload of physical and emotional stress, and my nerves freaked out, so I reacted allergically. (We're looking into the possibility that I have an eosinophilic disorder, now.) For 11th and 12th grade, my band director was...somewhat emotionally abusive. Once again, being in a leadership position, I took a lot of flack from him. While most of my teachers were very understanding, this one thought that I was a spoiled kid who wasn't actually sick but just looking for attention. I think he's the only person I've met who thought I was faking it. Anyone who was paying attention could see how pale and gaunt I had become (I was too nauseous to eat very much, all the time). Anyone who was paying attention could see that I was in pain a lot of the time, even though I tried not to let it show too much. I even nearly passed out during marching practice one evening. "Nearly" equals collapsing onto the grass, not being able to see for a few seconds because black spots were impairing my vision, and feeling intensely weak and nauseous. A nearby trumpet player very gallantly helped me up and supported me while walking to a nearby bench. He even got me a bottle of water. I'm pretty sure I saw the band director roll his eyes, but I can't be positive. Eventually, I'd had enough. I quit band about a month into senior year. That's probably what salvaged the remainder of my high school career. At 16, as a senior in high school, I missed at least %40 of school days because I wasn't well enough to go to school. Thankfully, I had understanding teachers who were very accommodating with telling me what we'd be working on ahead of time- so I could work on my school even while at home- and always allowed me to take tests or quizzes I had missed (though this was partially because I made a point to come to school early as soon as I was doing better, so that I could take those tests ASAP). I was able to graduate with a great GPA. Unfortunately, I was only able to attend college for a few months before a massive increase in the severity of my symptoms caused me to have a significant physical and mental breakdown, and I had to take a medical withdrawal. Things have gone steadily downhill from there. I've even been diagnosed with centralized sleep apnea (ie: sometimes my autonomic functions- like breathing- just don't work like they ought to. I've been struggling with the breathing thing since junior high- I just didn't think it was that significant. I'm hoping now that with the combined efforts of my allergist, neurologist, hematologist, and psychiatrist, we'll find a workable solution to my symptoms. In spite of all that crap, though, I'm now pretty happy overall! My family are very supportive, for one, and I've found ways to be useful. That seems to help a lot with my mood. I was depressed for a long time after leaving college, and as the therapy and medication helped me to break through the fog of despair, I found I wasn't as helpless as I thought. I sometimes work on small projects to donate to people in need. It takes a little longer for me than someone healthy, because it make my hands sore, but it's worth it. More recently, I've been helping my sister-in-law homeschool my nephew and nieces. While my sister-in-law focuses more on math and history, I'm more focused on ELA, science, and helping the littles develop their fine motor skills (Asperger's runs in the family, and fine motor skills are often difficult to master for Aspies). It's so fulfilling to teach something to kids, and later see that they have actually digested and understand the information given to them! Right now I've been working on growing plants (while making an effort not to overdo it and cause a flare-up), and while I've done a lot of reading, there were also a few things I want to try for myself- y'know, set up my own experiments. I can teach this to the kiddos, too! :) Sorry that was so long :P I just felt compelled to share my story here. I just scrolled back up, and wow that was essay-length :\ P.S. For anyone who has migraines as one of their symptoms, my neurologist recommended Aimovig, a once a month injectable medication. I had gotten to the point where I had migraines more often than not, but the Aimovig wiped out about 90% of those. It's now comparatively rare for me to have a migraine! It's soooooo refreshing, so I want everyone else who suffers from migraines to know about Aimovig!
I'm 14 and I got diagnosed at 13 I didn't read the whole thing bc I have to go do something but do you have any tips. It's all so exhausting so anything helps.
For anyone reading this now (2023). I ll be 45 in couple of days, had first symptoms around 10/12. I was dancing then like lot of little girls/teens, and they thought I was growing up too fast and my joints were too fragile so I had to stop. Then it s been a slew of everything you can all imagine and know like it was in my head, or I was not reacting normally and should see a psychiatrist who would teach me how I must react (as if everyone react the same way, needless to say it had then an awful impact on my mental health to hear that). I ve been diagnosed at 25. Had just separated from my husband (can ruin your life this much, yes… and well, I m pretty unlucky on that side). My mum has been very supportive when I ve had my huge drawbacks as she helped walk again from 100m to 3/5km walks (was exhausted after 100m at one point). I ve lived on my own, with an abusive bf (told you I was unlucky *lol*) and also back to my parents. I ve always had them at least to go back too. I m here to tell you my story because we are all different. I ve had months of living quite normally (maybe one or two takes of painkillers a month), small drawbacks (couple of days unwell, from 3 to 5), medium (a week or two) and severe drawbacks (couple of months to almost a year under heavy medication). I m currently in the last one. I work part time (i m on sick leave though right now). You might experience through time an increase of sensitivity to light, heat etc. I have curtains that make the light a little dimmer on bright days, but I can still enjoy a sunny day (it just makes my eyes less tired), I have plaids etc. Whatever helps graduate my environment one way or another. My advice will seem weird, but might help some, and it ll be useful when aging for everyone anyway: always consider what s the more practical for you when you have a crisis. I mean how your kitchen is organized, how your room (how your clothes, your books etc are stored) is organized. If there is something that feels harder to reach when in crisis, if you can, change it or find a way around. Think of the weight of things: plates, pans, dishes. Plates especially. You can find light and resistant, I promise (I am very careful of this since I m 21 and had my 1st flat). Take glasses, mugs, cups in shapes that will hurt you less when in crisis, same goes for cutlery and everything basically. It ll help a little with the pains, and it ll tire you less. Now, I know it ll sound very hard, but take it from someone who is currently learning to use a wheel chair because I am that tired (I do my best for it not to last) : you have a superpower… you are well aware that life is complicated and that you must enjoy the good moments even more. Millions of people are not aware of this and take life etc for granted, but you don t. You know the value of good people around you, of a good quiet day, of a good night. YOU KNOW. And it makes you a beautiful soul. And the whole community of people with fibromyalgia is with you every step of the way. Lots of ❤. (Was veeeery long, but if it helps one person, just one, I m glad).
I am a 43yo living with fibromyalgia. A lot of the medications ai tried gave me bad side effects but the worse for me was Cymbalta. I manage a lot of my symptoms like the joint pain and the burning sensation by avoiding gluten. I also stay off of sugar and liquor and that helps with the insomnia and headaches. What I can't find a solution to is the fatigue.
I’m 24 right now but was diagnosed when I was 16 (have probably had it before then.) I remember being told because on my minor age they were going to call I t’ hyper pain syndrome’ and it was fibromyalgia in reality. I hate going to the doctors but I’m glad I went then and got the proof in that time because I need it as much as the world does sometimes. She is right because the condition is really just constantly managing it :”) good luck everyone fighting it day by day too ❤️
Fibro sucks, definitely messed up my TH-cam career because it was just too difficult to maintain with trying to meet the algorithm and daily uploads and stuff. Good luck for anyone who’s dealing with it x
I am 20, and was only diagnosed a few years back, but I've been showing symptoms since I was a child. The running theory is that it was brought on by the extreme trauma I suffered in early childhood.
Greetings to you dear young beautiful girl, i loved your voice and your smile. I'm 36 diagnosed with fibromylgia. I want you to know that someone feels you and prays for you to stay strong and stay stress-free and optimistic. Remember you are a fighter and you must be around people who cherish who you really are and believe in your strength and compassionate nature. Sending love to you and all my fellow fighters around the globe xoxo
@@lemuelwilliams1205 fibromyalgia has no specific lab tests. It is diagnosed by exclusion of other tests for rheumatic conditions like lupus erythematosis and rheumatoid arthritis. Added to signs detection like tender points complaining of sleep disorders, colonic spasms and irritable bowel syndrome, mood disorders like anxiety or depression, stressful life conditions for long time or recent infection or trauma or operation.
@@lemuelwilliams1205 never heard of that, sorry. If you have any information about it plz tell me. The only test performed is "ANA test" and this is non specific and is positive in many other rheumatic conditions
There are moments of less pain & fatigue, but NEVER no pain or discomfort. So this seems very strange. Plus the illness causes stress in your life because of not being able to keep up with things. Stress & emotions don't create the pain! Added stress can take away from the extra energy required to get tasks done. Pain takes a lot of energy.
Hi, I have fibromyalgia n I tried homeopathy medication from India. After started this med 5th day I was so surprised bcz I woke up with no stiffness n very less pain before it was very hard for me to get up from my bed n go to the washroom, I couldn’t even walk properly bcz of chronic pains n stiffness n now I am walking easily. Before most of the days I spend on the bed. I feel so bad for everyone who is suffering from fibromyalgia, I want to help u bcz I suffers lot. If any questions u can ask me
Thank you for your story. I'm almost 24. I was told I had fibro a few years ago and then when gabapentin didn't work the doctor told me that since that didn't work, I didn't have it (yeah, that's not how it works). I also have Psoriatic Arthritis and my new rheumatologist touched my pressure points like you're describing, and he said he thinks I have it too. So I guess I'm "officially" diagnosed? He said fibro is extremely common in people with PsA as well. We're hoping my biologic will manage both conditions. I'm right there with you, it's really hard when you think people don't believe you because you're "too young" or it's "just stress". It took 5 years of telling my neurologist, my rheumatologists, and my PCP to get someone to really listen.
I stopped consuming Sugar and carbs like rice pasta and potatoes and it helps with 80% of the pain. Stopping sugar is not easy but it gets easier with time. My doc says its related to diabetes.
ive had fibromyalgia probably my whole life, but i didnt notice really until i was 14. ten years later i was diagnosed at 24. i also have many other 'invisible' disabilities combating my fibromyalgia. i have ptsd and a neurological disorder caused from trauma and just its hard not to be stressed sometimes but im being treated currently for mostly everything and i have mainly good and ok days.
Hey! Seems we're in similar situations. I've had it my whole life too, and also have PSTD among other things. Nice to see someone who's had it for as long as me.
Great video. You have good friends, it is important that they understand how fibromyalga has impact on your life. (i have been hurt many times by reactions of disbelieve of blamed of "you make this up, to avoid things"....really awfull). I am 54 years and have this condition for 34 years. Wish you the best!
I've had fibro 32 yrs. The one thing I hate beside pain/fatigue is Drs saying it's related to stress. Back in the day, they used that excuse for menopause, PMS, and a variety of "female conditions". I was told I was under severe stress for 18 months by several drs until they found a necrotic tumor malignancy that had burst inside me (ovary)....so, I really question the BS. I wish for your fibro to never get worse, and that a cure is found so you can live the life you want. You're young and it hurts me to see young females suffer so. Hugs to you and anyone else suffering this ❣
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help or via reach to him WhatsApp+2=3=4=8=1=4=3=1=4=2=1=6=3
@@kerrazee there isss a way to fight this.... dont give up and dont give in... the mind works strangely but amazingly... put in your mind there is a cure.... and start watching positive youtube vids about self care and those who beat disease... try and absorb as much as i can ... the mind will do the rest
I can fully agree that it is sn 'invisible disease'. I was diagnosed with Bi polar disorder when i was in my 30th's. That was a hard enough blow. Then these crawling, aching pains, not like arthritis - in my joints. As i see with all the comments - the same, it wasn't known of. It eventually took a seasoned specialist who confirmed i had fibromyalgia - he checked all the pressure points. Its pain in the fibres of the joints - I thought i was 'losing it', feeling down because I'm sore. He stated clearly that severe depression can 'mask' fibromyalgia, that's why doctors just seem to brush it off and say depression. I felt helpless at first - first BP disorder, then this. It's debilitating, dont want to lie down, then the depression hits ---- prayers for all of those who suffer, its just sad - in my case i have - well - an old friend, who said it cant be that bad, her husband has arthritis, I don't say anything
the more i learn about fybromyalgia the more i think i might have it... i mean the way she (and others ive seen online) talks about it, with stabs of pain in the joints and a general ache in her body, plus being reaaly tired even after a full night, that has been my life for the past 4 years. I see a physiotherapist so i think im going to talk to him about it (i also know fybromyalgia is linked to hypermobility and i know i might have that as weel, given the way my knees and elbows behave, so that might be another clue)
Look up Ehlers Danlos Syndrome. Its commonly mistaken for fibro. The more common type has to do with hypermobility in joints. Please see a doctor and try and figure out whats wrong. Dont just suffer in silence please
I'm 32. I was diagnosed at 20. Because of my illness I had to stop going to college full time. I'm slowly taking classes although I know I won't be able to follow my dreams because my my illness. I work part time but can only work 4 hours 3 days a week. I hate this illness.
You have no idea how much of a blessing your video truly is!!! And I am SO, SO sorry! (And not in that patronizing way I’m sure you’ve encountered. Along with garbage like “but you look fine!” . Those condescending idiots might read a half-page article and suddenly they become an expert?!?!?). I’m not one of those people. In fact I’ve had fibromyalgia since age 3-4, begging my mom to cut my legs off. It was triggered when my estranged father visited, (WWII active combatant Marine veteran and industrial construction worker: he was strong and trained to kill). I’d just met him, he was beating the snot out of my mom and sister. I screamed at him to stop. He didn’t like that. Charged at me and last I remember was both his hands around my throat, crushing me. Fun story (sorry, I felt my “trigger” was important to mention). At such a young age, I’ve no memories before that day. No memories of ever being “normal”. I wasn’t properly diagnosed until I was 22, too! I had been misdiagnosed with Muscular Dystrophy before that and put in a wheelchair until I got (early) Internet access and researched countless hours, fitting no Muscular Dystrophy symptoms. Back to the doctors for 4 years at square one. I won’t bore you with more, but my pain is everywhere, especially a crushing sensation usually in my legs like someone parked a tank on me (then a building fell on the tank). Several other super fun things like IBS, fatigue, spasms, raging headaches… you understand what I mean instead of just telling someone “I understand!” When they clearly don’t! Also Zoloft was torment!!! I actually just weened myself off it o er the past few months. I went from having *zero emotions* (up or down or to the sides), and that’s NOT “ME”. I knew it was the Zoloft. Getting off is harder than people realize, but after a few months I have *emotions* again! It started with crying, but I loved it! Because I couldn’t before even when appropriate! It’s so much better to feel *something* instead of zombie-nothing-dude. And positive emotions have been returning too: anticipation, excitement, joy, fun, smiling and laughing without faking! And I can connect to people again! When you mentioned Zoloft I knew I had to write you and thank you and ask how you’re doing and tell you I’ll be praying for you, like it or not! 😇✝️. If you ever need anything, I’ve got your back!!!
Hi I’m 47 and was diagnosed with fibromyalgia 4 years ago. I also made really bad anxiety which plays off my fibromyalgia I also have been diagnosed with Bipolar, ADHD, OCD and PTSD. I changed my diet to only whole natural foods. No sugar or breads or pasta. I feel a tiny bit better but if I could just control my anxiety maybe it wouldn’t be so bad. I’m currently dealing with extreme fatigue, brain fog and cognitive dis function as well has stupid pain in my back neck and shoulders today it moved to my lower back as well. I’m always stressed. I do water aerobics and it helps take the edge off as well as smoke weed with my meds. All my doctors know and they are totally cool with that since they won’t give me anything for the pain except Lyrica and Ibuprofen. To be honest I think the Lyrica has stopped working. I need to try something else. I’m already on Paxil so another antidepressant is not in the cards for me since June I started Caplyta and it has worked wonders for my mental well-being but the anxiety is still there and that’s why I think I get so many flares. I can’t relax no matter what. I stretch everyday and I try to walk it off the best I can but I’m just can’t take another steroid because it always makes me gain weight and I just lost 30 pounds. Then last week I gave in to the steroids but like I said made me gain 5 or 6 pounds in a matter of days of being on it. I just want to know if there is some western medicine to help me. I’m seriously at a loss. I can’t work because more then half the time I’m in pain and just fricken can’t move. Any suggestions out there?
Yes I do Dr. Has check my heart 3 times loving at the hospital for 3 days and find nothing g wrong with my heart also get all those symptoms plus limiting , nausea , fever ,pain on ears the electric shock are as bad as the pain, I had this sense I was 17 years old but discovered at 45 years old now I am 59 and it's bad I believe that it get worse with time may God bless us all
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help or via reach to him WhatsApp+2=3=4=8=1=4=3=1=4=2=1=6=3
![PASULOL รามเกียรติ์ ตอนที่ 4 นนทกพบรัก [Ramakien Ep.4: Nonthok in love]](http://i.ytimg.com/vi/tMUQgmZzf_A/mqdefault.jpg)
I'm 21 with fibro and I can't imagine not being in agony every second of every day. Being pain free for even a second seems impossible.
What do u take for fibro?
It’s horrible. I’m on oxycodone and tramadol and as much as they help in short bursts, the pain always returns. Hang in there. Stay strong.
same situation here. its awful
I'm getting fibro symptoms after having Covid and I'm so scared that I have it.
Have a thyroid panel done asap. Not just a tsh.
I’m 17 with fibromyalgia and it took so long of doctors not believing me before I was diagnosed. It REALLY sucks. It really is the invisible illness. Trying to explain to people why I fall asleep all the time is frustrating and embarrassing. My heart goes out to anyone who may be dealing with the symptoms. It gets better when you find out what works for YOU.
I am 16 and my docs suspects me having iy , hearing thsi will be with me for the rest of my life is really sad
If your in the us. Modafinil helps the can't stay awake feeling.
I'm 19, and I was just diagnosed
Same child. So invisible .no one believe. Ppl will you mentally ill .i m in flare up since last 3 yrs ,orelse since 25 yrs suffering fibro.
My doctor says I have it but won’t give me the official diagonses because of my ages I’m struggling so much
I am 42 at the end of this year. I’ve had fibromyalgia and chronic fatigue syndrome for more than half my life. I want to encourage you younger people who are experiencing pain: you can live a fulfilling, joyful life in spite of, and because of, your pain. Your pain can have meaning. Pain control is essential; find a doctor who listens to you. There may not be a cure, but there is always hope for a beautiful life. ❤
ur just lazy. hey man i get it but only women can get by with this stuff. Yeah im lazy too but no one is going to pay my bills.
Thank you for this🫶🏽
@@VirtualHolocaustwtf are you even saying? You have NO idea the way fibromyalgia patients have to suffer! My Daughter has goals & big dreams. She is only 15!! She has not only been diagnosed with Fibromyalgia but knee issues with Amplified pain! It’s insane! Please don’t judge something you know nothing about.
@@mrsg.9273 Yeah and you dont either. You are thinking emotionally because it "affects" someone you care about. You have just as much evidence that it exists as medical science and me that it doesnt. Also even notice how often this happens in women and not men? You know why? Cause no one cares about men. No man is going to get taken care of because they wanna stay in bed. "amplified pain"? What does that even mean? That her knees hurt more than a normal persons knees would? If shes 15 and has knee pain you probably wanna feed her less.
❤❤❤
It was the 1 year anniversary of my fibro diagnosis last month. I was finally diagnosed at 21 after years of suffering from chronic pain and associated symptoms. I honestly cannot remember a conscious moment in my life that was completely pain-free. I think I became truly aware of my anxiety, depression and chronic pain at age 9, I have a specific memory of looking out a window and being hit with all of those realizations of how something was definitely wrong, I can still remember that memory pretty vividly. I'm seeing more and more young people suffering from chronic pain, getting diagnoses of fibromyalgia and its really concerning to see so many other young people suffering.
It was such a relief to finally have my pain recognized and validated after a year of constant medical exams, x-rays, mris, blood tests. It just took one doctor to take my concerns seriously, look at all the tests I'd had done and consult my medical history to confirm my diagnosis. She also did the pressure point test but my diagnosis was pretty clear at that point already. It was really emotionally painful having gone undiagnosed, my pain dismissed since childhood and going through tons of doctors who didn't even suggest fibromyalgia. I had to do so much medical research by myself, advocate for myself when I was having the worst flare up I've ever experienced. I hope people in the process of getting diagnosed are able to go through it faster than I did and find pain management solutions that help them cope better ❤
You are sooo lucky that you are able to work still. Of everything that Fibromyalgia has taken away from my life, I have to say the going to work is the one that I miss the most. 😢 I get really annoyed when I hear people bitching about having to go to work. They have no idea how fortunate they are to still be able to work.
I’m 24 and I was diagnosed with fibromyalgia at 23. So glad that I’m not alone.
You can be completely healed but that's needs a lot of inner hard work and healing traumas of past
One of the rare men with it. Lazy fuck lmao.
@@chakadoo Not everybody wins the lottery, but some people still do. Getting fibromyalgia as a man is the opposite of this. Don’t be a jackass.
i have it also at 58 had it for10 yrs,cant work as in pain and acheing all the time
@@andrewhopkins8137 I am still pretty new to having and being diagnosed with Fibromyalgia. I've had it for about a year now. I work for UPS. It is a very physically hard job but I want to keep working as long as I can because the insurance benefits are extremely good. However someday's I'm in so much pain that it is really hard to make it to work. Since you've had it for 10 years and said you cannot work, I am curious if you were able to successfully get disability? I asking because lately I've been missing a lot of work and at my job they love me but they have a very stick policy on attendance. I try my best to go to work but sometimes I have bad Fibromyalgia flare up's that make it almost impossible to even walk. I'm going to try to keep going as long as I can but I hope that if the time comes that I just can't take it anymore that hopefully going on disability is an option.
I'm 43, have had the symptoms for 25 years but only got diagnosed at age 35. For years, doctors dismissed it as 'growing pains', 'female pains' (yes, you read that right!), 'its depression/anxiety/stress' ... was told to 'just relax', 'just go on holiday', 'just go to a spa'. There is nothing JUST in living with fibro; everything is an effort.
Well said!!! It’s so frustrating when doctors attribute everything to stress😡
Does your pain feel like electric charges?
35 y of fibro here
Since depression and anxiety are NOT real, fibromyalgia can not be real, wake up stop feeling sorry for yourself, everybody has aches and pains
@@swolfe9668 fibromalgia is a type of arthritis.
My daughter was diagnosed 3 years ago and she 14 now ,I cried so much to the doctors to help her and they couldn't understand how someone so young was feeling like this she went through so much and she has learn to deal with ,yesterday I was diagnosed with fibromylagia and its been horrible ,I wish there was more awareness i had to see different doctors they didn't take me seriously, guys don't give up if one doctor won't listen go to the next I know its exhausting, God bless you all
As a massage therapist, I have seen very specific causes. Can you tell me what type of exercise you were doing prior to your symptoms starting. Were you a swimmer by chance?
@@treecek I used to swim before having fibromyalgia and dance and bike ride, now I’m tierd after a short walk
I'm praying for you both. Thank God your daughter has such a wonderful mom. She is going to fare better than most because she has you to walk beside her.
I feel for both you and your daughter. I developed FM/CFS after 7 years of ongoing pain at age 9 from Osgood Schlaters disease. FM was diagnosed when I was 23. CSF is undiagnosed as doc refused to send me to a specialist... I doubt the treatment would have been much different than the ineffective treatment I received for FM. I am now 59. Severe exhaustion is contant. Only through my own personal self work have I improved. There is no magic pill, exercise, or cure. You must treat the body, mind, and spirit together.... a holistic treatment involving many aspects. Take responsibility for your own healing. Learn a positive mindset, reset reasonable boundaries, check your core belief systems to make sure that they are what your body really needs right now. Clean eating, non processed foods, no sugar or wheat, no chemicals or hormones...made a real difference for me. Check out YT videos from Toby Morrison of CSF Health in Australia. Lots of common sense, and guidelines. Sending you both lots of love.💞
Hi I feel really bad for her bcz I have same problem even most of the days I spent on bed n couldn’t walk properly, couldn’t able to do my chores but now I taking Homeopathic medicine from India n it’s really helping me lot. Now I can walk properly n do my most of the chores. 5th day after started this med I was surprised when I woke up I didn’t have stiffness n less pain so I am getting better now before I couldn’t able to sleep bcz of chronic pains n now my sleep is getting better. I will pray for her
I’m 20 and I am a man with fibromyalgia. Just want to say I know a lot of women get prescribe this illness or whatever you wanna call it diagnosed. But men also suffer and it’s very disheartening that I can’t find other men with the same issue. I hope everybody has a good night love everybody
Im also a man with fibromyalgia. I also wish i had men to talk to about it. Most of my friends dont take it seriously, and even the “understanding” ones seem to always forget so you constantly have to explain over and over.
men are much less likely to have it which in your case is unfortunate with not having men to relate to. just wanna say that you can still talk and relate to women with fibro, we’re all in this struggle together.
I am a man too
I'm also. Can we chat?
@@rocky9037 sure
The nerve pain is the part of fibro that is so bad it can actually make me cry. That and the loneliness.
I understand that completely. The pain drowns you. ❤️
You may also be suffering from depression. Nearly all fibromyalgia patients become depressed. Treatment for the depression is just as important and treating the fibromyalgia. They create a viscious cycle otherwise as the depression increases the pain and can exacerbate a myriad of other symptoms such as skin eruptions or hives, shortness of breath, brain fog, mood swings, etc.
@@glynnisthomas9165 I have long covid this past two and a half years,the covid triggered fibromyalgia,I have no let up with the extreme pain, I have brain fog, confusion, intermittent brain inflammation it's affected my eye sight and hearing,I have tinnitus,I have a stammer if I over do it, I have lung damage and now use an inhaler,I have horrific nightmares, I have what feels like frostbite on my toes and fingers,every joint screams 24/7.
I've had to take early retirement due to illness from work,which amounts to practically nothing as I have been a phlebotomist for seven years,we are going to have to move home without my salary.
I've just weaned myself off my antidepressants,this is my second no meds day and I feel like I have my tongue on a battery. And who gives a rat's arse,??? Yip, no one. Solidarity to you Glynnis 🙏🏼
@@Lordknowswhere oh my Gosh Shona... I feel for you! The one place you thought you would probably get some understanding... you didn't. The health care system where you worked. I was a medical laboratory technologist... and after 2 LOA's, had to go on permanent disability. My boss said I was faking, that he would prove it and would make me pay back all the disability benefits. In the end... I lost my job, lost a secure income, my husband divorced me, lost my home, lost the chance to have children, many friends left, family thought I was crazy, and I lost myself for a long while. Check out the YT videos from Toby Morrison at CSF Health (Australia).... I found a lot of very helpful information there. Unfortunately there is no cure... but we can learn to live fulfilling lives within our own personal boundaries and limitations. My best wishes to you... that you find peace and hope along the way.💞
@@Lordknowswhere sounds exactly like what im facing.... its probably the exact same thing.... except i dont know if the brain inflamation part is like mine i never got a diagnosis of that or did that test... who diagnoses that? And i dont know if i had long covid because i made a full recovery and 10 months after these things just start happening
GIRL
I'm also a 22 year old with fibromyalgia and i understand how frustrating and stressful it is that people think that just because we're young we can't have any illness
STAY STRONG WE'LL GET TROUGH IT 💖💖💖
And i'm a guy. still pushing foward BUT it's a new life. It sucks but seeing this kinda makes me feel normal because i'm not alone in this. I'm Brazilian, sorry for my English. = )
Just turned 19 and here I am. This is so complex and really awful a lot of times but we have to embrace our pain and with baby steps we’ll see light again!
thecerezar Im 25 and diagnosed about 8 months ago!
I'm 14 so same 😵
I have fibromyalgia and I’m only 11 years old
i’m 24 and was diagnosed with fibromyalgia when i was 17. i haven’t been able to work or study. i’ve been struggling with anxiety too. i don’t have any close friends but my partner is very supportive. best of luck to you💕✨
We understand how dilapidating fibromyalgia can be, we hope that you can attain medical advice that will help you in the long term.
Hey I hope you can find a treatment that works for you. I will keep you in my prayers.
Hi, why u don’t try Homeopathy meds. I have depression n axiety attacks from last 5 years n I diagnosed with fibromyalgia last year. I was suffering with chronic pains every day, most of the days I couldn’t even move from bed, couldn’t walked properly but I started this meds from Indian n on 5th day after started this med I was surprised, I woke up without stiffness n less pain. Now I am walking properly n no axiety
@@rachelmagarrell9056 what did they do to get your diagnosis
You may want to test for insulin resistance which has been connected to fibromyalgia. Getting a HOMA-IR score as well as a Glucose tollerance test over 5 hours with insulin could also be beneficial. Reguardless taking insulin resistance supplements like Benfotiamine (with sucrosomial magnesium cofactor), nicotinimide riboside (with TMG 1:1 ratio as cofactor) and Myo-inositol and d-chiro inositol, and NAC all help improve insulin sensitivity. The underlying cause may be immune mediated, which is more complicated.
My poor Daughter is only 15 and was just diagnosed after many years of pain! She was diagnosed with Amplified pain also knee issues. Please pray for her. 🙏
Fellow fibro warrior here!
Me too
I like that, Fibro warriors and Light warriors! Hoooooo.
Meh.. When your whole identity is rapped up in weather or not you are in pain, you are going to be in pain more often. There are no heroes here.
Me too
@@dadafish1 a chronic illness is part of us. Doesn’t mean it’s the only peace of us and in no way does acknowledging the syptoms we have cause us to “have more pain”
I'm 23 right now and was diagnosed at my 15th. They researched me for a hole year before diagnosing me with fibromyalgia. It is an enormous challenge to live a normal life with this.
In my teenage years it was the darkest time of my life. Emotionally and fysically. My fibro triggers are: bad emotions, the weather and random.
I had moments where I would cry and scream because of the pain during a thunderstorm.
Right now Im doing better. My mental health is a lot better and I have a strong kind a healthy body. I noticed that when my body is strong that the fibro got less. So I have had a few good ish years, sadly right now my mental health is bringing me down. Mostly because of the stress of living an adult life. Money, jobs, housing, covid and all of those shizzels.
I wish for all of you that your pain eases
I had fibromyalgia all my life since I remember. It was "stress", "depression", even attention seeker at first. They' ve diagnosed me with fibro when it becames so bad that disabled me 9 years ago.
So, in fact, they diagnose it at woman in middle age, but that doesn't means you are having this since you were a child.
But a middle age woman has not the same energy as in her 20's, and she usually can't continue working or became disabled. Until then you do not get your diagnose.
And as I have this since I can remember, I thought it was normal having pain all day. I thougth I was only more weak than others.
Sorry my english, I am writing this in a flare.
I finally got diagnosed with fibromyalgia at 39 and it has negatively impacted my life. However, I’m trying to stay positive and motivated to continue to enjoy life despite this terrible disease. I know it’s hard being in your 20’s with fibromyalgia, but stay strong and make sure you engage in self-care because it can enhance your psychological well being💕💕💕
Im 43 years old started feeling the chronic pain at the age of 11 years old. Took over 20 years to get the right diagnosis. I thought had cancer my entire life crazy. I wake up each day of my life to help the VOICELESS and hungry it help me tremendously keeping myself busy not complaining while others are starving to death
I was diagnosed 3 years ago at 20 with Fibromyalgia. So far I've been managing with Celebrex (really strong advil). It's not just an ache, it's joint pains to the point I can hardly stand up or step up to a bus. I had chronic pain since age 8, but everyone thought it was growing pains. I'm glad to have a diagnosis, but there's not a lot of treatment options.
I’m 24 and just got diagnosed last June! I’ve evidently have had Fibromyalgia and possibly adhd since childhood. It’s so relieving to know I’m not making stuff up and that I’m not alone . . .
Me to
I think I have fibromyalgia that is getting progressively worse. It started off as regular pain in my right leg and back but now I'm almost always in pain all over my body. Heck, sometimes my scalp hurts. On top of that, I have extreme fatigue to the point that I struggle to function, sensitivity to noise (too much or too loud is painful) and now allergens (I have chronic sinusitis because of this), and I've been diagnosed with depression for almost 10 years. I'm only 23 years old but I feel like a 60-year-old woman. I don't understand how I'm supposed to live an adult life and do adult things like this, considering that doctors do not take me seriously! I have an appointment in three hours for what seems like the hundredth time and I swear I'm going to put my foot down.
I'm currently in my first year of a biomedical degree which has been challenging for reasons mentioned above, but if I manage to make it through I might dedicate my life to finding a cure for chronic conditions like this. It's no way to live.
Why u don’t try what I try homeopathy meds. It will work sure.
Have you tried meds
You are an amazing person! Keep up the good work. People like you help find cures! ❤
Fibro Warrior here!!! Stay strong. I was also disfavor you young (23) and have been dealing with it for 21 years now. Find a partner who supports you and understands fibromyalgia. It is the best advice I can give 💜🙏
How did u get your diagnosis? And did u get any solution that works for you
I was diagnosed with CFS in 1989, but worked out it had started in 1970! Then in 1990, I was also diagnosed with Fibromyalgia, which must have been there all along. In the 80’s, I was able to walk off my weight, and gained a small reduction in fatigue. In 1998, I walked off the weight again, but pain and fatigue always creep back. I am now 71, and the pain and fatigue has been unimaginative. Pain is my daily companion, and my mobility is highly compromised. I am on a whole swag of medications, just to keep me up and moving around. With pain, always.
I was diagnosed as a teen 10 years ago. I’m mid twenties too and it really has obliterated my life - I can’t be out of the house for more than a couple hours without more and more pain building up to unbearable levels. And afterwards I need two or three days in bed. Sleep is often unpleasant and I wake up from vivid nightmares each morning (caused by pain while subconscious) it almost seems like the pain is worse when unconscious, I read that it may be because immune function is more active when asleep and fibro (some say) is autoimmune.
Most of my female family members developed fibro at puberty, and we think it has to do with estrogen because that hormone is linked to amplified pain.
That said after a decade and an entire family with this diagnosis, I am not a single step closer to an answer or solid science on this diagnosis. It is a syndrome with many possible causes. I notice many young women are getting diagnosed like me and I wanted to say that you have legitimate medical issues, the fibromyalgia is not the correct answer. It is another illness or something that hasn’t been discovered yet. On one hand it helps to have a diagnosis but this one is the most useless. It gets zero recognized and there are barely any resources or studies being done for us. It feels like not one cares. I sometimes wish I had a worse illness so I could get seen and treated, have a chance at a cure. But I don’t.
Simply put I feel like life is passing me by, and instead of a faster or more sure death from a terminal illness I am alive and will stay that way for a long time but it utter agony, and on top of that expected to live a normal life because I am young and don’t look normal. I know someone with MS and she is more functional right now than me… that’s how useless my body is.
And not a single thing has changed since I was diagnosed 10 years ago. I can take painkillers, exercise, eat better - it helps but not for long, then I am back to a steady feeling of nothing changing and it just feels horrible.
I just diagnosed fibromyalgia. I'm 26 yrs age. Keep fighting and much love y'all
I have fibro since my 20 years, along with depression and anxiety. If anyone read this, don't give up. Gym and yoga actually makes the pain go away after some time and consistency, it is like magic. Also, therapy, doing things to relieve the pressur eon my mind, like walking and writing.
Thank you for the tips!
Hi I’m 32 I have had pains in my body for 2 years, and I have finally been diagnosed with this. I have extremely bad lower back ache, it’s a killer the pain. I cry with pain, I can just about walk up the stairs then I have to crash out on my bed. It really does get me down. I also have two children so housework can be hard. All I want to do is sleep 💤 x
I totally relate to what you said. It really is crippling. I have been in sever pain in a little over a year now and somedays it makes me feel so depressed. I just want my life back before when I was carefree and pain free. What I find the hardest to deal with is it in an invisible disability. Nothing is broken, so we don't wear cruches. It isn't anything anyone can see that is visibly wrong with us. Only we can feel the severe pain that we are going through. So I think its easy for people to not understand. Hell, I don't understand it. But nevertheless it is really hard to have a life, or someday's even go to work. I am struggling with that one a lot lately.
Hi Trace, I know it’s very hard bcz I was in the same situation but now I am taking homeopathy medicine n it’s helping me lot, it doesn’t have any side effects. I was not able to walk properly before n couldn’t do any chores, it was hard for me to dress up bcz of bad pains n I cried lot but now I am so happy I have very less pains n walk properly n do my most of the chore n very energetic after taking this meds. I order this medicine from India n after starting this meds 4th or 5th day u will feel the difference.
@@harpreetbains7033 what meds for fibromyalgia help you?
@@JeannetteSantos-l9k hi it’s Homeopathic clinic in India ( Punjab) I talked with them on the phone about all my medical conditions and the courier me all the meds.
Same to you dear
I was diagnosed with fibro at 18. I take duloxetine and flunarizinum and 90% of the symptoms went away. Recommend this treatment.
Do those meds have any symptoms? ( I was diagnosed at 16.)
@@rachelmagarrell9056 sometimes they made me sleepy but overall no side effects. I stopped taking them after 6 months and no longer suffer from fibro.
I second this, been taking Duloxetine (cymbalta) + codoliprane (paracetamol and codeine) and I've seen about 40% of pain reduction after a month, although it does come and go unfortunately and it varies with huge flare ups some days. Anxiety and depression makes it worse easily. But it's at least better. Side effects were typical of antidepressants and codeine (decreased libido, brain fog, difficulty urinating) but they all went away completely after max of a month. Unfortunately you'll always get constipated after taking codeine but that's chill. PS: Antiinflammatory meds were horrible for my stomach and didn't help with the pain and felt it was just worse (took them just for a week or 2)
Thank you for sharing your story! No one else I know has the random stabs of pain (like being stabbed with a needle repeatedly) so it's good to hear another fibro-folk understand it too.
I've been diagnosed with fybromyalgia I get the random stabbing pain I also feel off balanced at times. I also suffer from anxiety and depression sigh
Yea i friggin hate it!! I haven’t been diagnosed yet. Have you?
kristal Alexander every week I get a new weird symptom. Does that happen to you?
@@tammielee3476 hi yes I have been diagnosed with fybromyalgia. There has also been an update I found out that my iron levels were really low so my anxiety and depression have subsided however I am going into my second month of taking my iron pills and I am still feeling off balanced especially when i don't sleep well but i have been keeping a very detailed record since 2018 and i haven't had any new symptoms. I hope this helps plz check for any vitamin deficiency.
@@tammielee3476 I almost forgot I also excersise, my diet is clean I do yoga and try to meditate also this all helps
After dealing with whole body aches that gradually got worst every day. I had to return back to nyc to be seen by parents’ physician. She worked efficiently with her staff in her clinic to check for any big disease and got me a neurologist walk-in that same day. I’ve been ignored and not taken seriously at all by UHS in Binghamton for 3 months. I finally caved and came back to the city. I’m so thankful that at least I have a trusted doctor who sees me as a person and not just business. Going outside and being active definitely helped with my symptoms during the day, but at night and when I’m lying down it’s the worst. The Loneliness and feeling of isolation from my friends and family was one of the hardest things. I try to remind myself that everyone is going through life and it’s tuff, but ultimately no one around me really understand the pain and that’s normal. To anyone who’s going through chronic pain, I have so much respect for ya’ll. It’s only been a couple months for me and it feel like a fight every single day. Thanks for reading and stay positive guys ❤️
Keep fighting girl! You’re doing great! This fellow Fibro warrior is cheering you on!! 💜
Got diagnosed with fibromyalgia back in 2017. Diagnostic took like almost a year. And four years later I'm still struggling with pain lile the first day. But I managed to reduce my pain medication, which is great. Thank you for the vid.
I am a person with about a dozen symptoms of fibro.. heavily suspecting that I have it after years of fighting with doctors for a rheumatologist or diagnosis. I see a lot of comments about distressed people who are young like me thinking that this will be a burden for the rest of their lives.. I just want to say that you are seen. I know how scary it seems, big lifestyle changes can be daunting, but you will grow and learn how to take care of yourself and cope with these ailments. It will be tough, but you still deserve to live a normal life in anyway that looks like for you. It will get better. Be kind and gentle with yourself and recognize your needs. It will be okay, trust me. We got this. ❤
For me, the way that it feels is like if the feeling of anxiety became a physical pain you could feel radiating throughout your entire nervous system and sometimes it even clusters in very specific spots more than others. It becomes so overwhelming it almost feels like if someone wet a thick blanket of that feeling and threw it over your neck and told you to now go walk. It’s like all your body knew was trauma, stress, and pain to the point that it is now permanently scarred into your mind and you can’t get out of it. That’s why 5HTP I hear is good because it can improve serotonin function. You need to find ways to feel good so that you can rebrand your brain with better patterns of feeling. That is the only way I have been able to improve slightly. It’s hard to feel good. It’s hard to cure your depression. You need to not be in pain to get out and solve problems so it’s hard to make changes. But one step at a time I think there’s hope through diet and lifestyle changes.
I don’t like the misconception that it only affects middle aged women. I was suffering with it at aged 16 and many doctors did not want to diagnose me because of my age.
its called depression
@@dadafish1 don't talk about things you know nothing about
I’m 23 and I’m not sure what I’m dealing with but hearing this story gives me much needed hope to keep finding out what’s wrong, I’m not crazy, I’m not weak, I’m not making it up, I just have no idea what is going on lol but I know I’m not alone
I've had this since I was quite young! Doctors kept saying it was 'growing pains'!Yea,after 21 years of age I don't think it's growing pains any longer!
I am now in my early 70's and only about 5 years ago I was finally diagnosed with this!Not that that was a relief bc I still hurt,I just wanted relief!
The doctor put me on Cymbalta -all it did for me was given me palpitations!
That was four months ago-I quit it!
I am a Fibromyalgia warrior too.RELATABLE AF!!! sending a gentle hug ❤️❤️
It's really refreshing to read these comments and see that I am not alone. At age 18, I was diagnosed with Fibro. Amongst other disorders that come along with fibro. That was 21 yrs ago. I was told i may never walk or work again. No sports ever. And 0 quality of life... that being said.. I've been a chef my whole life, played sports, lived hard and played hard. I live every day, every minute in some kind of pain. Ppl do not understand why, because they can't see anything physically. That is the hard part of this condition along with the mental aspect of it all. I am an MMJ advocate and that has truly made my life bearable and functional. To anyone out there struggling, know you are not alone. Some days are better than others... but try and appreciate the little things. It goes a very long way. Love from this NY'r turned Texan
i'm 42, was just diagnosed with this after having covid..... sadly i may have to quit my job that i love (cooking) because my legs have such pain at times they stop working and i almost fall or drop things.... thank you for sharing, nice to know we aren't crazy or alone
I freakin hate when they try to treat pain and everything else with antidepressants. It's bull. Zoloft sent me to the hospital. It's awful. I had to take down all my symptoms and help diagnose myself. I'm glad you got diagnosed young.
Zoloft sent me to the hospital too..
@@abriayates4189 I am so absolutely sorry to hear that. I empathize and I feel you. Hugs!!💖💖💖💖 I hope things are a bit better for you now!! It's a hard road.
I have had fibromyalgia since I was in 4th grade (which I had to repeat due to attendance) and I am almost 42 now. It gets lonely, depressing and almost impossible to have a life due to constant pains almost daily, anxiety and other crap that comes along with it. Anti-depressants don't work and now I have a medical marijuana card from my doctors (never smoked until now... not the best form of choice but, it helps a great deal when needed). hope you all can get through your symptoms the best way you can to get the relief you so deserve. God bless.
Watched this video a couple weeks ago and it resonated with my pain so much. Yesterday I was told I may have fibromyalgia, it all makes sense now. Tomorrow I get my results. We'll see!
Did u do the FM/a test?
It's been almost ten years since my diagnosis I had almost the exact same experience as her.I was having the pain and exhaustion and my doctor said do you have fibromyalgia and I was like I don't know I've never been checked and she said I don't want to scare you but I suspect you do she checked my trigger points and I had every one.After years of being called crazy I was helped by someone who listened and just did a simple test.To anyone struggling whether its pain or mental health or something else chronic with the body don't give up and don't stop advocating for yourself YOU KNOW YOUR BODY BEST remember that!
i'm 23 and was diagnosed with fibromyalgia and cfs when i was 20. still after 3 years of having it people around me act like they dont believe me even when i'm crying from the pain just because i dont have an open wound or a broken leg. its isolating seeing so many people my age live their lives while im constantly stuck at home and in pain. the doctors do nothing at all to help
To begin with, you also need to help yourself, having this mindset will bring you down even more. I hope you find a way up. For me, exercising, health eating and mindfulness have really help me. Good luck! YOu're not alone!
I've been diagnosed by the end of June. My symptoms started 6 weeks after C-section. I was not expecting that at all.. I'm 26 years old and my legs are constantly burning. Some days I can't stand more than 5 minutes to wash the dishes. I used to do 10.000 steps a day and now I can't take my baby for 10 minute walk in pushchair.
I also have burning pain in my legs, knees and ribs. It’s the worst! Have you taken any meds yet?
@@greenrainbows11 Because I'm breastfeeding the only option for me was Amitriptyline. I take 30 mg each evening and it helps with sleep,I don't have fatigue and brain fog anymore. I still get daily aches and neuropathic pain I think 30 mg might not be enough to control all of my symptoms. I take it since June and some people say it takes at least 6 months to start working.
😔
My mom didn't have fibromyalgia until she got me. I've read somewhere that a big change of hormones can cause the fibromyalgia to show itself.
I got fibro in the middel of my puberty, so there is defenately a link between fibro and hormones.
I hope your pain eases!
Im 20 years old and i just got diagnosed TODAY ive been dealing with it for 3-4 years about i have chronic back pain and neck pain the most im constantly fatigued, anxious, depressed etc. i feel you and i really wish i can get my story out there ive had a very hard life and i just wanna share it!
I’m 22 and have recently been diagnosed! I’ve been called a hypochondriac my whole life and I’m in agony constantly. I have crippling pain in my lower legs and I struggle to do daily things. How isn’t this recognised as a disability? X
I’ve been “lucky” enough to get granted disability benefits for fibromyalgia in the UK. I got it in the first try, but it takes some people half a dozen attempts. Just keep at it, you need to get somebody who is understanding...
thank you for creating this video and saying that loudly. I spent more than 7 yrs now since I was 21 or 20 yrs old if I remember that right. and Drs didn't understand what I am going through and all what they were saying that I am stressed because I am in Engineering college and it's hard study and faculty but I got difficulty nearly in everything. for every stage in my life I feel pain in different organ I always thought that I just have bad luck for feeling all this in my life although not all in my age feel the same. I recently I went to psychiatrist and he identifies it but just by experience without any test. so thank you for affirming that loud, I have all the symptoms you've mentioned since long. REALLY BIG THANK YOU!
Hi I’ve been living with fibromyalgia😢 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
I'm 28 and was diagnosed about 23-24, I've had it my whole life but it was until I had a sort major event where it caused chronic fatigue syndrome was I finally able to get diagnosed. Its frustrating because I can't function hardly at all but because it's invisible and I'm so young getting disability is a struggle. Most of the people I encounter with fibro aren't even "old" there are so many people my age and younger who have it and its time that the idea fibro is an "old womans" issue be laid to rest along with most supposed age related disabilities.
It’s not just that but many doctors refuse to believe the science and statistics of young people getting it more frequently and in many cases more severely. Many doctors believe fibromyalgia to not even be real which is sickening and ignorant on their part. Also if you are getting tested and believe yourself to have fibromyalgia you need to focus on finding doctors who not only specialize in Neuropathic pain and remedies but also a doctor who specializes in nervous system disorders (some doctors are adept at understanding both) because fibromyalgia has many trigger points and reasons for causing you pain
Another fibro warrior here! Thank you for this video and hope you're doing ok.❤
I am 14 and suspect I have fibro. I have seen every doctor for my headaches, but didn't suspect fibro until 1 month ago. I have been feeling ankle, hip, knee, and random other pain for more than 2 years but didn't suspect anything of it. No one really believes me.
@jared, 19 if it hurts enough it isnt growing pains. everyone always told me it was growing pains but it just got worse
@jared, 19 damn dude I'm sorry, glad you at least found a diagnosis though
I know that I am a year late to your post, but if you are still having pain, I would recommend seeing a rheumatologist. I hope you are doing well ❤
@@syd417 I’m now 16 and got a diagnosis for fibromyalgia last year- after years of struggling, I started physical therapy and have never felt this amazing for years. Obviously the pain is not completely gone, (it never will be) but if you have fibro I strongly recommend physical therapy
i have a very similar story. started experiencing the pain when i was just turning 16. i got diagnosed when i was 17 (after seeing tons of doctors and doing a million blood tests). im 23 now. i've learned a lot about my body and medicine and healing and whatnot. i still struggle with accepting my limitations though. people dont realize how much grieving one must do when theyre diagnosed with a chronic illness so young. shout out to everyone out there fighting their own invisible battle. i see you
I'm 25, and was diagnosed with fibro in 2017 as well. Trying out a healthier lifestyle definitely has helped me out a lot.
So interesting in the present who are 25 years old they have been diagnosed in 2017 so do i soo interesting whats problem with our generation
I have had fibromyalgia since 2018 and I'm 43 now. I also take same meds as you, sometimes it works sometimes it doesn't. I have aches and pains that jump in different parts of my body. We can get through this. Just keep going.
I've been I'll for 39 yrs started when I was only 20 yrs old. I feel your suffering it has taken my entire quality of life away.
I’m 23 and have had chronic pain and other fibro symptoms for 4 years now. Cutting out gluten has helped tremendously but I’m still in great pain. Hoping my doctor will diagnose me when I ask about this disease.
I'm 17 I've been diagnosed with fibromyalgia with fibromyalgia few months back. The symptoms started when I was 12.
My GP didn’t understand it & told me it was “growing pains” at 12 but it just progressed from there. I actually googled my symptoms after not getting answers for so long. At 27 I found the word for my condition & it was Fibromyalgia. So from there I went to a rheumatologist & he took down a medical history & tested my tender points. Prescribed me medications. It’s a lot of medication. Good luck to people who have this because it’s not really understood. I feel like either the medical community don’t really understand it or they are also participating in gaslighting these (majority) female patients about their condition. Cause I felt crazy. Until I got the diagnosis confirmed.
Hi I was diagnosed with Fibromyalgia & ME at age 20 in 1980. I've had it now for 42 years
My pain gets me bad and nobody of my neighbors believe or understand me
me too!! I don’t think my family realizes how much pain I’m really in daily
@@evelynalvarado5066 i hear and feel u there everyone says suck it up but like I'd love to see them live a day in my life on my highest pain days
I’ve had pain since I was 14. I have menstrual pain beyond the severe point. Same way with joint back shoulder neck and stomach pains. Headaches and severe fatigue every single day. I’m 22 now. And researching this because. My dad and boyfriends mom has suspicion. My scans and test results were CLEAR. there’s nothing just pain with no reasoning.
that sounds similar to fibromyalgia though there is no official testing for fibromyalgia which is hard
They use the FM/a method
I'm 28 now, but I was officially diagnosed with fibro at 18. In retrospect, I'd been suffering from small symptoms here and there for my entire life- it just took stress to bring it out more and more. Every stressful event in my life was followed by more symptoms, and an increase in the severity of what I already had. Like so many other people diagnosed with fibro, I didn't know what "normal" was supposed to be, so I didn't realize how abnormal it was to experience as much pain as I did as a young person. I was always a bit rough and tumble as a kid. When I got hurt, I assessed how severe the wound was, got up, and walked it off. When I played baseball and softball growing up, I didn't know that my teammates weren't experiencing the same severity of muscle soreness that I was.
As I got older, symptoms grew stronger. My pediatrician began to consider whether I might have an autoimmune disorder, but fibro was never considered because I was waaay out of the age range the medical establishment had dictated as the norm for fibro. I had walking pneumonia for most of 9th grade before we finally figured out what was going on with me. While the pneumonia itself wasn't directly connected to the fibro (as far as I'm aware), it was a physical stressor that caused a decline in my health generally. In 10th and 11th grade, I was severely bullied by an older kid in my band class. The kid had problems, and while I can understand why those issues lead him to act out, it still wasn't acceptable behavior. Sadly, the school administration felt too sorry for his situation to ever really discipline him. He bullied everyone he thought he could break. I had a position of leadership in the band- in 10th grade I was 1st chair clarinet so I felt responsible for my section, and in 11th grade I was a student conductor, responsible for *everyone* in the band. I've always been rather maternal. They were my little ducklings, and I couldn't bear to see them bullied. So I interfered, putting myself between him and them. That made him angry, of course. He directed the bulk of his bullying towards me, hoping he could push me past my limits. He couldn't break me. It did, however, contribute to my unseen illness.
At 15, I had to go to the ER with anaphylactic shock. My allergist still isn't sure what caused it, or whether it's at all connected with the fibro, but the working theory is that I'd just had an overload of physical and emotional stress, and my nerves freaked out, so I reacted allergically. (We're looking into the possibility that I have an eosinophilic disorder, now.) For 11th and 12th grade, my band director was...somewhat emotionally abusive. Once again, being in a leadership position, I took a lot of flack from him. While most of my teachers were very understanding, this one thought that I was a spoiled kid who wasn't actually sick but just looking for attention. I think he's the only person I've met who thought I was faking it. Anyone who was paying attention could see how pale and gaunt I had become (I was too nauseous to eat very much, all the time). Anyone who was paying attention could see that I was in pain a lot of the time, even though I tried not to let it show too much. I even nearly passed out during marching practice one evening. "Nearly" equals collapsing onto the grass, not being able to see for a few seconds because black spots were impairing my vision, and feeling intensely weak and nauseous. A nearby trumpet player very gallantly helped me up and supported me while walking to a nearby bench. He even got me a bottle of water. I'm pretty sure I saw the band director roll his eyes, but I can't be positive. Eventually, I'd had enough. I quit band about a month into senior year. That's probably what salvaged the remainder of my high school career.
At 16, as a senior in high school, I missed at least %40 of school days because I wasn't well enough to go to school. Thankfully, I had understanding teachers who were very accommodating with telling me what we'd be working on ahead of time- so I could work on my school even while at home- and always allowed me to take tests or quizzes I had missed (though this was partially because I made a point to come to school early as soon as I was doing better, so that I could take those tests ASAP). I was able to graduate with a great GPA.
Unfortunately, I was only able to attend college for a few months before a massive increase in the severity of my symptoms caused me to have a significant physical and mental breakdown, and I had to take a medical withdrawal.
Things have gone steadily downhill from there. I've even been diagnosed with centralized sleep apnea (ie: sometimes my autonomic functions- like breathing- just don't work like they ought to. I've been struggling with the breathing thing since junior high- I just didn't think it was that significant. I'm hoping now that with the combined efforts of my allergist, neurologist, hematologist, and psychiatrist, we'll find a workable solution to my symptoms.
In spite of all that crap, though, I'm now pretty happy overall! My family are very supportive, for one, and I've found ways to be useful. That seems to help a lot with my mood. I was depressed for a long time after leaving college, and as the therapy and medication helped me to break through the fog of despair, I found I wasn't as helpless as I thought. I sometimes work on small projects to donate to people in need. It takes a little longer for me than someone healthy, because it make my hands sore, but it's worth it. More recently, I've been helping my sister-in-law homeschool my nephew and nieces. While my sister-in-law focuses more on math and history, I'm more focused on ELA, science, and helping the littles develop their fine motor skills (Asperger's runs in the family, and fine motor skills are often difficult to master for Aspies). It's so fulfilling to teach something to kids, and later see that they have actually digested and understand the information given to them! Right now I've been working on growing plants (while making an effort not to overdo it and cause a flare-up), and while I've done a lot of reading, there were also a few things I want to try for myself- y'know, set up my own experiments. I can teach this to the kiddos, too! :)
Sorry that was so long :P I just felt compelled to share my story here. I just scrolled back up, and wow that was essay-length :\
P.S. For anyone who has migraines as one of their symptoms, my neurologist recommended Aimovig, a once a month injectable medication. I had gotten to the point where I had migraines more often than not, but the Aimovig wiped out about 90% of those. It's now comparatively rare for me to have a migraine! It's soooooo refreshing, so I want everyone else who suffers from migraines to know about Aimovig!
I'm 14 and I got diagnosed at 13 I didn't read the whole thing bc I have to go do something but do you have any tips. It's all so exhausting so anything helps.
Hope all is well!! Thank you for sharing your story.
It is never easy going through this… I just cried out knowing what to do about it. The toughest part of the day is waking up.
For anyone reading this now (2023). I ll be 45 in couple of days, had first symptoms around 10/12. I was dancing then like lot of little girls/teens, and they thought I was growing up too fast and my joints were too fragile so I had to stop. Then it s been a slew of everything you can all imagine and know like it was in my head, or I was not reacting normally and should see a psychiatrist who would teach me how I must react (as if everyone react the same way, needless to say it had then an awful impact on my mental health to hear that).
I ve been diagnosed at 25. Had just separated from my husband (can ruin your life this much, yes… and well, I m pretty unlucky on that side). My mum has been very supportive when I ve had my huge drawbacks as she helped walk again from 100m to 3/5km walks (was exhausted after 100m at one point). I ve lived on my own, with an abusive bf (told you I was unlucky *lol*) and also back to my parents. I ve always had them at least to go back too.
I m here to tell you my story because we are all different.
I ve had months of living quite normally (maybe one or two takes of painkillers a month), small drawbacks (couple of days unwell, from 3 to 5), medium (a week or two) and severe drawbacks (couple of months to almost a year under heavy medication). I m currently in the last one. I work part time (i m on sick leave though right now).
You might experience through time an increase of sensitivity to light, heat etc. I have curtains that make the light a little dimmer on bright days, but I can still enjoy a sunny day (it just makes my eyes less tired), I have plaids etc. Whatever helps graduate my environment one way or another.
My advice will seem weird, but might help some, and it ll be useful when aging for everyone anyway: always consider what s the more practical for you when you have a crisis. I mean how your kitchen is organized, how your room (how your clothes, your books etc are stored) is organized. If there is something that feels harder to reach when in crisis, if you can, change it or find a way around. Think of the weight of things: plates, pans, dishes. Plates especially. You can find light and resistant, I promise (I am very careful of this since I m 21 and had my 1st flat). Take glasses, mugs, cups in shapes that will hurt you less when in crisis, same goes for cutlery and everything basically. It ll help a little with the pains, and it ll tire you less.
Now, I know it ll sound very hard, but take it from someone who is currently learning to use a wheel chair because I am that tired (I do my best for it not to last) : you have a superpower… you are well aware that life is complicated and that you must enjoy the good moments even more. Millions of people are not aware of this and take life etc for granted, but you don t. You know the value of good people around you, of a good quiet day, of a good night. YOU KNOW. And it makes you a beautiful soul.
And the whole community of people with fibromyalgia is with you every step of the way.
Lots of ❤.
(Was veeeery long, but if it helps one person, just one, I m glad).
My mother has just been diagnosed with this and now I can try and understand what she was and still is going through :)
I am a 43yo living with fibromyalgia. A lot of the medications ai tried gave me bad side effects but the worse for me was Cymbalta. I manage a lot of my symptoms like the joint pain and the burning sensation by avoiding gluten. I also stay off of sugar and liquor and that helps with the insomnia and headaches. What I can't find a solution to is the fatigue.
I’m 24 right now but was diagnosed when I was 16 (have probably had it before then.) I remember being told because on my minor age they were going to call I t’ hyper pain syndrome’ and it was fibromyalgia in reality. I hate going to the doctors but I’m glad I went then and got the proof in that time because I need it as much as the world does sometimes. She is right because the condition is really just constantly managing it :”) good luck everyone fighting it day by day too ❤️
Fibro sucks, definitely messed up my TH-cam career because it was just too difficult to maintain with trying to meet the algorithm and daily uploads and stuff. Good luck for anyone who’s dealing with it x
I am 20, and was only diagnosed a few years back, but I've been showing symptoms since I was a child.
The running theory is that it was brought on by the extreme trauma I suffered in early childhood.
I had fibromyalgia since I was 20 years
I had it when I was 11. I’m 12 years old now😔
Greetings to you dear young beautiful girl, i loved your voice and your smile. I'm 36 diagnosed with fibromylgia. I want you to know that someone feels you and prays for you to stay strong and stay stress-free and optimistic. Remember you are a fighter and you must be around people who cherish who you really are and believe in your strength and compassionate nature. Sending love to you and all my fellow fighters around the globe xoxo
What test confirmed your diagnosis?
@@lemuelwilliams1205 fibromyalgia has no specific lab tests. It is diagnosed by exclusion of other tests for rheumatic conditions like lupus erythematosis and rheumatoid arthritis. Added to signs detection like tender points complaining of sleep disorders, colonic spasms and irritable bowel syndrome, mood disorders like anxiety or depression, stressful life conditions for long time or recent infection or trauma or operation.
@@raghdaashraf2481 with about the FM/a lab test for chemokines and cytokines? Thats the most objective test ive heard ... so i wanted to ask
@@lemuelwilliams1205 never heard of that, sorry. If you have any information about it plz tell me. The only test performed is "ANA test" and this is non specific and is positive in many other rheumatic conditions
Im 52 with fibromyalgia and joint hypermobility. I relate to everything you are saying.
There are moments of less pain & fatigue, but NEVER no pain or discomfort. So this seems very strange. Plus the illness causes stress in your life because of not being able to keep up with things. Stress & emotions don't create the pain! Added stress can take away from the extra energy required to get tasks done. Pain takes a lot of energy.
Got diagnosed last year and am on amitriptyline for it. I have good days and bad days.
Thank you for sharing...O really appreciate you getting the word out.
i just got a prelim diagnosis of fibromyalgia and starting a new drug regime im so excited to see what helps
Thank you so much for sharing your experience. I hope you're doing well!
Hi, I have fibromyalgia n I tried homeopathy medication from India. After started this med 5th day I was so surprised bcz I woke up with no stiffness n very less pain before it was very hard for me to get up from my bed n go to the washroom, I couldn’t even walk properly bcz of chronic pains n stiffness n now I am walking easily. Before most of the days I spend on the bed. I feel so bad for everyone who is suffering from fibromyalgia, I want to help u bcz I suffers lot. If any questions u can ask me
Thank you for your story. I'm almost 24. I was told I had fibro a few years ago and then when gabapentin didn't work the doctor told me that since that didn't work, I didn't have it (yeah, that's not how it works).
I also have Psoriatic Arthritis and my new rheumatologist touched my pressure points like you're describing, and he said he thinks I have it too. So I guess I'm "officially" diagnosed? He said fibro is extremely common in people with PsA as well.
We're hoping my biologic will manage both conditions. I'm right there with you, it's really hard when you think people don't believe you because you're "too young" or it's "just stress". It took 5 years of telling my neurologist, my rheumatologists, and my PCP to get someone to really listen.
I stopped consuming Sugar and carbs like rice pasta and potatoes and it helps with 80% of the pain. Stopping sugar is not easy but it gets easier with time. My doc says its related to diabetes.
FELLOW warrior #support. I have had symptoms since 15 but doctor said it was exam stress. Make sure you get more than one doctors opinion
ive had fibromyalgia probably my whole life, but i didnt notice really until i was 14. ten years later i was diagnosed at 24. i also have many other 'invisible' disabilities combating my fibromyalgia. i have ptsd and a neurological disorder caused from trauma and just its hard not to be stressed sometimes but im being treated currently for mostly everything and i have mainly good and ok days.
Hey! Seems we're in similar situations. I've had it my whole life too, and also have PSTD among other things. Nice to see someone who's had it for as long as me.
Great video.
You have good friends, it is important that they understand how fibromyalga has impact on your life. (i have been hurt many times by reactions of disbelieve of blamed of "you make this up, to avoid things"....really awfull). I am 54 years and have this condition for 34 years.
Wish you the best!
I've had fibro 32 yrs. The one thing I hate beside pain/fatigue is Drs saying it's related to stress. Back in the day, they used that excuse for menopause, PMS, and a variety of "female conditions". I was told I was under severe stress for 18 months by several drs until they found a necrotic tumor malignancy that had burst inside me (ovary)....so, I really question the BS. I wish for your fibro to never get worse, and that a cure is found so you can live the life you want. You're young and it hurts me to see young females suffer so. Hugs to you and anyone else suffering this ❣
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help or via reach to him WhatsApp+2=3=4=8=1=4=3=1=4=2=1=6=3
Did it eliminate your fibro?
@@lemuelwilliams1205 no, unfortunately not.
@@kerrazee there isss a way to fight this.... dont give up and dont give in... the mind works strangely but amazingly... put in your mind there is a cure.... and start watching positive youtube vids about self care and those who beat disease... try and absorb as much as i can ... the mind will do the rest
I can fully agree that it is sn 'invisible disease'. I was diagnosed with Bi polar disorder when i was in my 30th's. That was a hard enough blow. Then these crawling, aching pains, not like arthritis - in my joints. As i see with all the comments - the same, it wasn't known of. It eventually took a seasoned specialist who confirmed i had fibromyalgia - he checked all the pressure points. Its pain in the fibres of the joints - I thought i was 'losing it', feeling down because I'm sore. He stated clearly that severe depression can 'mask' fibromyalgia, that's why doctors just seem to brush it off and say depression. I felt helpless at first - first BP disorder, then this. It's debilitating, dont want to lie down, then the depression hits ---- prayers for all of those who suffer, its just sad - in my case i have - well - an old friend, who said it cant be that bad, her husband has arthritis, I don't say anything
the more i learn about fybromyalgia the more i think i might have it... i mean the way she (and others ive seen online) talks about it, with stabs of pain in the joints and a general ache in her body, plus being reaaly tired even after a full night, that has been my life for the past 4 years. I see a physiotherapist so i think im going to talk to him about it (i also know fybromyalgia is linked to hypermobility and i know i might have that as weel, given the way my knees and elbows behave, so that might be another clue)
Look up Ehlers Danlos Syndrome. Its commonly mistaken for fibro. The more common type has to do with hypermobility in joints. Please see a doctor and try and figure out whats wrong. Dont just suffer in silence please
I'm 32. I was diagnosed at 20. Because of my illness I had to stop going to college full time. I'm slowly taking classes although I know I won't be able to follow my dreams because my my illness. I work part time but can only work 4 hours 3 days a week. I hate this illness.
I’ve had it since 24. I’m sorry you’re going thru this. 😌
Good on you girl!!! Keep up the good work! 💪💪💪🧘♀️
It does suck! 18+ years with it! Stay fit and mentally strong and keep your head up! 👍🏾
This makes me feel strong knowing im not alone
My body is full of aches. Have you checked your thyroid hormones? Thank you for sharing your story.
You have no idea how much of a blessing your video truly is!!! And I am SO, SO sorry! (And not in that patronizing way I’m sure you’ve encountered. Along with garbage like “but you look fine!” . Those condescending idiots might read a half-page article and suddenly they become an expert?!?!?). I’m not one of those people. In fact I’ve had fibromyalgia since age 3-4, begging my mom to cut my legs off. It was triggered when my estranged father visited, (WWII active combatant Marine veteran and industrial construction worker: he was strong and trained to kill). I’d just met him, he was beating the snot out of my mom and sister. I screamed at him to stop. He didn’t like that. Charged at me and last I remember was both his hands around my throat, crushing me. Fun story (sorry, I felt my “trigger” was important to mention). At such a young age, I’ve no memories before that day. No memories of ever being “normal”. I wasn’t properly diagnosed until I was 22, too! I had been misdiagnosed with Muscular Dystrophy before that and put in a wheelchair until I got (early) Internet access and researched countless hours, fitting no Muscular Dystrophy symptoms. Back to the doctors for 4 years at square one.
I won’t bore you with more, but my pain is everywhere, especially a crushing sensation usually in my legs like someone parked a tank on me (then a building fell on the tank). Several other super fun things like IBS, fatigue, spasms, raging headaches… you understand what I mean instead of just telling someone “I understand!” When they clearly don’t! Also Zoloft was torment!!! I actually just weened myself off it o er the past few months. I went from having *zero emotions* (up or down or to the sides), and that’s NOT “ME”. I knew it was the Zoloft. Getting off is harder than people realize, but after a few months I have *emotions* again! It started with crying, but I loved it! Because I couldn’t before even when appropriate! It’s so much better to feel *something* instead of zombie-nothing-dude. And positive emotions have been returning too: anticipation, excitement, joy, fun, smiling and laughing without faking! And I can connect to people again! When you mentioned Zoloft I knew I had to write you and thank you and ask how you’re doing and tell you I’ll be praying for you, like it or not! 😇✝️. If you ever need anything, I’ve got your back!!!
Hi I’m 47 and was diagnosed with fibromyalgia 4 years ago. I also made really bad anxiety which plays off my fibromyalgia I also have been diagnosed with Bipolar, ADHD, OCD and PTSD. I changed my diet to only whole natural foods. No sugar or breads or pasta. I feel a tiny bit better but if I could just control my anxiety maybe it wouldn’t be so bad. I’m currently dealing with extreme fatigue, brain fog and cognitive dis function as well has stupid pain in my back neck and shoulders today it moved to my lower back as well. I’m always stressed. I do water aerobics and it helps take the edge off as well as smoke weed with my meds. All my doctors know and they are totally cool with that since they won’t give me anything for the pain except Lyrica and Ibuprofen. To be honest I think the Lyrica has stopped working. I need to try something else. I’m already on Paxil so another antidepressant is not in the cards for me since June I started Caplyta and it has worked wonders for my mental well-being but the anxiety is still there and that’s why I think I get so many flares. I can’t relax no matter what. I stretch everyday and I try to walk it off the best I can but I’m just can’t take another steroid because it always makes me gain weight and I just lost 30 pounds. Then last week I gave in to the steroids but like I said made me gain 5 or 6 pounds in a matter of days of being on it. I just want to know if there is some western medicine to help me. I’m seriously at a loss. I can’t work because more then half the time I’m in pain and just fricken can’t move. Any suggestions out there?
You re american ?
Thank you for sharing!
Yes I do Dr. Has check my heart 3 times loving at the hospital for 3 days and find nothing g wrong with my heart also get all those symptoms plus limiting , nausea , fever ,pain on ears the electric shock are as bad as the pain, I had this sense I was 17 years old but discovered at 45 years old now I am 59 and it's bad I believe that it get worse with time may God bless us all
I am Abdel Rahim, a Moroccan national. I am 29 years old and have been suffering from fibromyalgia since 2016
i started taking cymbalta dur to Fybro (duolexitene) and i hate the side effects! i experience severe mood swings :( so i am trying to get off of it
Me too. Mine was misdiagnosed and I suffered many years on an antipsychotic which makes fibro worse
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help or via reach to him WhatsApp+2=3=4=8=1=4=3=1=4=2=1=6=3