SURVIVING A FRIBROMYALGIA FLARE - what fibromyalgia feels like - VLOG
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- เผยแพร่เมื่อ 30 พ.ค. 2024
- Have you ever wondered what fibromyalgia feels like? In this video, you will find out what's like for me. I have been going through a very difficult Fibromyalgia Flare for the last three weeks. It feels like I am just surviving each day. I decided that I want to show you what it's like to be in a Fibromyalgia flare so that if you are going through this challenging time as well, you can feel not alone.
#Fibromyalgiaflare #Chronicillness #Fibromyalgia
00:00 Introduction to the length of the flare
01:38 Pushing through the day, keeping busy and making plans
05:23 Paying the price of overdoing in the evening
06:02 Next morning and coping with high pain levels
07:20 Weather change as a flare trigger and setting goals for the day
08:32 Taking it easy and reflecting on the day
09:51The day and the pain got harder
10:42 Next da, setting priority goals
11:54 Having a shower finally and doing it in stages
14:32 Reflections on chronic illness and achievement
14:56 Storms don't last forever
INSTAGRAM / tt_looking_glas. .
@tt_looking_glass
Check out those other videos related to Fibromyalgia
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Mayo Clinic definitions of fibromyalgia:
Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting how your brain and spinal cord process painful and nonpainful signals.
Symptoms often begin after an event, such as physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.
Women are more likely to develop fibromyalgia than men. Many people with fibromyalgia also have tension headaches, temporomandibular joint (TMJ) disorders, irritable bowel syndrome, anxiety and depression.
Resourses:
✤ Mayo Clinic
www.mayoclinic.org/diseases-c...
✤ International Pain Foundations
internationalpain.org/fibromy...
✤ Fibromyalgia Association Canada
fibrocanada.ca/en/
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People without fibro can’t understand how exhausting showers are 😢
Absolutely, it's a reality that many don't realize. Something as simple as taking a shower can become a daunting task when you're dealing with fibromyalgia. It's those everyday activities that others take for granted, which can sometimes feel like climbing a mountain for us.
I have reached a point in which am having burning sensation and pain throughout my body whenever i share and it drains me to zerooo and cause me headaches 🫠🫠🫠
Most of the new things am facing have been caused by antidepressants…
I relate to the burning pain from the bones and core. It spreads through the muscles to the skin.
I have lived with Fibro at least 10 years now.
Bless you all ❤
Thank you for sharing your experience with fibromyalgia. I’m truly sorry to hear about the intense burning pain you endure. It shows how relentless fibro flares are. Living with this for over a decade requires incredible resilience. If you have any strategies or tips that have helped you manage these symptoms, please feel free to share them. Your insights could be incredibly helpful to others in our community who are navigating similar challenges. Stay strong, and thank you again for reaching out and relating your journey.
@@tt_looking_glass
Balance is key.
Not restrain my body, mind or emotional state.
Soft excercise such as walks and yinyoga which works on faschia. Try to get min 8 hrs sleep at night.
I rest many timrs during the day.
Filter my water, fruits/berries and greens in lots and make sure stomach functions well.
Trippel magnesium in high dose at night and other essential minerals.
Liver cleansing herbs.
CBD oil. Antiinflammatory such as turmeric and ginger.
Unfortubatley I am still having to use pharmacetical painkillers and other meds when the pain is out of control. But with a healthier lifestyle I manage daily life better.
Bless you all ❤️
Thanks for sharing your approach to maintaining balance. It sounds like you’ve really honed in on what works for you. Those are all powerful tools for managing health holistically.
I hear you on still needing pharmaceutical help at times, despite our best efforts with lifestyle changes, medication is necessary to manage pain and other symptoms. It’s all about finding that right mix that works for you personally.
Keep doing what feels right for your body and mind, and thanks for blessing us with your wisdom! Wishing you continued strength and wellness. ❤️
It’s so validating to see someone else go through what I’m going through. My pain feels like it’s in my bones also. It’s heartbreaking that the medical community has not been able to help us. Thank you for sharing. Stacy
Stacy, I couldn't agree more! It's incredibly validating to see someone else going through what you're experiencing. Fibromyalgia is a condition that can make you feel isolated, so finding that connection in someone else's story can be truly comforting.
It's disheartening that the medical community hasn't been able to provide more answers or solutions for Fibromyalgia yet. But in sharing our experiences and supporting each other, we can find a sense of empowerment and understanding.
Thank you for your heartfelt comment and for being a part of this community. 💕
Dear Stacy, Please can I let you know about how my local doctors help me. They are brilliant! I am on tramadol and I can take it with paracetamol at same time. Rest. No bad emotions. No upset. 9 hours sleep every night. Healthy food. Lots of healthy quality water-the tap water here is OK. Multi vits and mins. Vit D3. B Complex. Restless legs syndrome I take 2 pram...something. I am tired today and I am resting 50 percent today. BUT...my GPs DO UNDERSTAND and they inform me about fibromyalgia. It causes severe chronic functional constipation so I am on 5 docusate a day too. And my understanding husband, Mr Furry Bear, is so beautiful! I stand up for what I need and want! I am getting better at it. I am autistic ADHD as well as fibromyalgia. I hope this is helpful in some way for you. God bless. Bess in UK x
Going through all you described. I thought it was just me about my bones hurting. 😢
Exactly the same thing and m only 20🙂 its feel like pain in each and every bone
@@elizabethdarley8646I have adhd autism, Fibromyalgia to. Jesus helps alot❤❤ Jessy typing
I'm literally in tears - nobody understands and most people don't want to.
You just showed everyone what they need to know about this, this is why I'm in tears, YOU GOT IT! You absolutely showed why this is SO hard - and why others should care and try to understand.
THANK YOU SO MUCH 🩵💞
Extra soft hugs to you and sending you warm blessings - I'm a loyal sister in pain. ✌🏻🩵
Your comment made me emotional too. It means so much to hear that my video resonated with you on such a deep level. We know how hard it is to make others understand what we go through, and I'm glad I could help shine a light on it.
Thank you for your kind words and for being a loyal sister in pain. Your support and empathy mean the world to me. Extra soft hugs back to you. Let's keep lifting each other up and pushing through together. ♥️
I’m an Australian, and I’ve been diagnosed with Fibromyalgia back in 2016/2017. I totally get you, I’ve been suffering flares lately as the weather is all up& down as we’re in Spring 2023 here. So yes I always know when the weather is going to change, from nice warm sunny to cold, cloudy stormy raining I hate it and I just want to achieve something but I can’t I just want to curl up in a ball & sleep 😩😭😫😣😖🥺
I completely understand what you're going through. It's like our bodies have their own built-in barometers, right? When the weather starts shifting, it's as if our symptoms become more pronounced, and it can be incredibly disheartening.
I know that feeling of wanting to accomplish things but feeling trapped by the unpredictable nature of the condition. There are days when all you want to do is curl up in a ball and disappear.
Just remember, you're not alone in this. Many of us in the fibromyalgia community share these weather-related struggles. Sharing our experiences can help us feel more connected and understood. On those tough days, take things one step at a time, and know that there are others who genuinely understand what you're going through. Stay strong, and take good care of yourself. 🌦️💙😔
I love that you had gotten excited about accomplishing your hair. I felt like this a few days ago, and I am so happy that I could finally do my hair. Most days can be so challenging with our illness.
Dealing with my hair is the hardest aspect of personal hygiene for me, and sometimes it gets neglected. It always makes me happy to have a nice and clean hare. So if I'm in a flare when I get my hair washed is a reason to celebrate.
Just subbed. I am a human barometer with fibro. I feel your pain.
Thank you so much for the subscription! ❤️Welcome to this wonderful community. I hope you enjoy the channel. I try to post twice a week (Mondays and Fridays) but sometimes my body just doesn’t cooperate. Im sure you know how it is. When that happens I usually make a community post and let you guys know. I hope the weather where you live is kind to you.
@@tt_looking_glass Oh, I understand completely! I live in Michigan where the weather is a rollercoaster. Allergy season, then snow. I don't know what's worse. But we're in the same boat. I know I'll enjoy everything you're able to film. Maybe enjoy is the wrong word, but commiserate with you!
@@klb374money oh man! Yeah, that is tough weather. Pretty much what we have here in Ontario. My content goes from “cry with me, I’m having a really hard time” to “look at me, I’m living the life!” and everything in between. Lol! I try to be as honest and real as possible so people don’t feel so alone in their journeys but also trying to inspire at the same time. It’s a hard balance but I do my best.
Honest account, Daniela. God's grace in this moment 💝
Thank you. I know other people go through similar experiences and we often feel so alone. I want people to know, though it’s hard, we can get through this. Hopefully someone will find comfort in knowing they are not alone in their struggles.
Oh the weather changes, high pressure,low pressure. Thank you for sharing. We are not alone.
I used to think that it was just when the weather turned bad that affected me but actually it’s like you said any change is a problem. It’s kind of funny because I as a person love change but my body doesn’t. lol!
Thanks for your comment.
I am so happy I found your channel. This is real. X
Ahhh. Thank you so much. 😍
Hope your flare ends soon, thanks for vlogging how a flare affects you. Im being tested atm and looking likely i have fibro also 🥺
Hopefully, this vlog will help people going through similar experiences to not feel so alone. All the best with your journey. I hope you will find my videos helpful. Next week I will be posting a "How to get stuff done when you have a chronic illness" video. Don't miss it. Make sure to subscribe.
Thank you for this vlog. I’m going through a bad flare at the moment and it really helped watching this.
I do also feel pain when the weather and air pressure is changing.
Hope your flare ends soon x
It makes me so happy to know that this video has helped someone. I am feeling much better. It did seem like it was never going to end but somehow I just keep pushing through. I guess you could say I have no choice, but the power lies in not losing hope. The weather has been very unstable this spring and I think it has definitely contributed to it. Im hoping that as summer approaches it will get better. Thanks for watching.
Wow 😮 that was so real. I hope I’m not an interloper (I have severe COPD).nobody I know gets it. Showers are the hardest for me too. I almost feel like crying when I get out. Not only the fatigue, but I get breathless with little movement. I worry I’ll pass out n the shower. I live alone and that is so scary. All my life I’ve showered every day (sometimes twice) now I put it off as long as possible. Thanks for letting me butt in, I really enjoy your channel. That rain and rainbow at the end was beautiful.
You're definitely not an interloper here; this is a space for everyone who's battling their own challenges, and severe COPD is a tough journey. It's hard when those around you can't fully grasp the extent of what you're going through. The struggle with showers, something so many take for granted, speaks tones about the daily hurdles we face. It's understandable to feel scared about the possibility of passing out, especially when you're living alone.
Thank you for sharing your story and for being a part of this community. Your voice adds to the diverse experiences here, and it's valuable. Keep reaching out, keep sharing, and know that you're not alone in this. Take care and stay safe. ♥️🌈
I also have crushing fatigue. My skin burning all over my body.
Chronic fatigue syndrome often accompanies Fibromyalgia. It’s like one is not bad enough. We often deal with multiple chronic illnesses.
I needed this tonight, thank you 😊
I am so happy that this video provided what you needed. If it brings a little bit of comfort for someone, it was worth sharing. I hope you improve soon. Take care.
My heart brakes for you. My wife has had fibromyalgia for over 20yrs. Every thing you covered on this video is what she deals with. She knows when the weather is going to change she tells me that it’s hurts in her core in her bones. She deals with migraines and CFS. In 2019 we went to Panama to get stem cells and it helped her a lot.
I’m really moved by your empathy and support for your wife. It sounds like she has a strong ally in you, and I appreciate you sharing a bit about her journey with us. The trip to Panama for stem cell treatment is quite intriguing. I haven't heard of stem cell therapy for fibromyalgia before. Could you share more about how it works and how it helped her? It’s incredible how deeply fibromyalgia affects those living with it, from predicting weather changes to managing migraines and chronic fatigue. Thank you for watching the video and connecting here. I hope you both continue to find ways that ease her symptoms and improve her quality of life.
This is probably my most rewatched videos of yours. Going through hell at the moment, but like you say “We got this”. I know it’ll end but this is a real comfort video for me. Thanks once again for somehow finding the energy to make this. ((Big Hugs To You)) xxx
I'm so sorry you are going through such a hard time at the moment. It is so hard while we are in the midst of it. It feels like it will never end. It is interesting how the videos that I get the most views are the ones I had no idea how I was going to make a video that week. I just grabbed the camera without any plan and started filming in the hopes that maybe later when I was feeling a bit better I could turn what I had captured into a video. I'm glad it brings people some comfort or hope because it is really hard to pick up the camera when I'm not well. Thank you for telling me that. It is definitely a big boost of confidence in continuing this channel. Feel better soon. 😍
I love this. ❤️ I feel the exact same way!
I'm so glad to hear the video spoke to you. It's so important to have spaces where we can share our stories and feel understood. Your message is a reminder of why creating content that resonates with others' experiences is so valuable. ❤️
Lord Jesus Bless you!!! Sister I’m feeling your pain! I have it too. You had me laughing so hard because I can so relate. Another human being who understands. Thank you for being real and open. The Lord understands our pain and mental state. Praying that by God’s grace He will give some strength and relief. Keep believing and praying. ❤️
Thank you so much for your comment! It's truly uplifting to connect with someone who understands the challenges of living with fibromyalgia. I'm glad I could bring some laughter to your day and let you know that you're not alone in this journey.
You're absolutely right, the Lord understands our pain, and it's through His grace that we find strength and relief. Keeping the faith and continuing to pray is essential, as we trust in God's plan for our lives.
Sending you love and prayers as we navigate this fibromyalgia journey. Stay strong! ❤️
I'm so happy to see a real account of someone with chronic illness and has a home, family etc. I agree with you about trying to help our mental health by trying 5/10 minutes of just doing something that's going to help and for me it's my surroundings being clean, not tidy as I can't do that now but clean is good and for my own self cleaning etc. This is a good video. Thank you and I hope your flare is easing up for you. Xxxx
Hi Irene, thank you for your kind comment. It means a lot to me. That flare has passed and I have been able to go camping and visit my daughter since. However, I have acquired COVID last week and I’m struggling to recover. I will make a video about how I got it and how it has been to recover from it as soon as I have the energy to pick up a camera.
@@tt_looking_glass I'm so sorry, you must feel absolutely awful. I had Covid back in December and it's not nice at all. Take good care and I'm thinking of you. Look after you! Xxxxxx
This is an excellent description. I also have oily hair. I find doing things hard too. LOve to you from Bess in Yorkshire UK x
It's always reassuring to hear from someone else who gets the struggle, even down to the oily hair bit. 😅 It's funny how those small details can make us feel more connected. And yeah, finding the motivation to do things can be a real challenge. Sending lots of love back to you from across miles.
❤❤❤❤❤
My dear sister,
I 100% understand...
It is like you made this video to explain my life. I will use it to send to some friends and family.
Hopefully it will help to give them further understanding with this peek into yours and my life.
Thank you so much for making this video. The energy it would have taken you even to do this is very appreciated.
God bless you. indeed!
Heaven is coming soon 🙏🏼💐
Thank you so much for your beautiful message. It means a lot to know that the video resonated with you and that you’re sharing it to help others understand what life with fibromyalgia is like. It’s always my hope that these videos can foster greater empathy and support. I really appreciate your recognition of the energy that goes into creating these pieces, it truly keeps me motivated.
God bless you too, and take care! ♥️
thank you so much for sharing im in a flare right now with a lot of family stress of parents getting old and having to try care for them as well as our selfs and make time for the grandkids i dont like them seeing me in pain so its hard but like you i try to stay positive to help get me through so thank you that yoga sling looks amazing going to have to get one for my back ans shoulders as well thank you x
Hi Amanda, It sounds like you’re really going through a tough time right now, managing your own flare-ups while also caring for your aging parents and spending time with your grandkids. It’s a lot to handle, and your effort to stay positive and strong for your family is incredible
I’m glad you found the yoga sling interesting. I absolutely love mine. it could definitely be a helpful tool for your back and shoulders, providing some relief and support. Taking care of yourself is just as important as the care you provide to others, so I hope the sling brings you some comfort.
Thank you for sharing what you are going through and for your kind words. It’s okay to have tough days and not always feel positive. You’re doing your best, and that’s more than enough. Sending you strength and hoping you find some peaceful moments amidst the challenges.
Glad I found your channel. I'm about to get diagnosed with fibromyalgia after many years of suffering from it. Been going to the orthopedic doctor for 4 to 5 years on and off mostly in spring which is when my flares are excruciating.
So the doc finally introduced me to the a rheumatologist. I did extensive blood work (uric acid etc) and he came to the conclusion that what I suffer from is fibromyalgia. Now I'm waiting his letter of recommendation to a neurologist. Can't wait to be diagnosed and get the proper meds cause I hate doing so little in a day and feeling like I climbed a mountain just from cooking and doing the dishes.
I'm glad you found my channel too and shared your story. Welcome to the community. I understand how frustrating it is to feel so limited by your symptoms, and it's understandable why you're eagerly awaiting a formal diagnosis and proper medication. Proper treatment can make a huge difference. I don't know if you saw some of my more recent videos with the title "Diagnosed with Fibromyalgia? - What I wish I knew." th-cam.com/video/WhGiJtNqmHw/w-d-xo.html and "STOP doing this if you have Fibromyalgia" th-cam.com/video/-3PbyAaeFb8/w-d-xo.html . I believe those videos can be very helpful if you have just been diagnosed. I hope they bring you some guidance in your Fibromyalgia journey. Take care. ♥️
Wow that was such a raw and great insight into what fibro looks like. I believe I have it also. Waiting to see a Rheumatologist in July for a diagnosis. Thank you for being so strong and brave to share your story. I hope there's more studies in the future that will come out to show what causes fibromyalgia and cures for this illness. Praying for all who have it and those waiting for a diagnosis 🙏
Thank you so much for your comment! I'm glad this video resonated with you. It can be a challenging and often misunderstood condition, so sharing personal experiences can help raise awareness and provide support to others who may be going through something similar. I truly hope your upcoming appointment with the Rheumatologist goes well and provides you with the clarity you seek.
You're absolutely right that more research and studies are needed to better understand the causes of fibromyalgia and find effective treatments or even a cure. It's an area that still requires further exploration, but advancements are being made and I hope with time answers will be found. In the meantime, it's important to stay hopeful and positive and keep advocating for yourself.
Sending you positive thoughts and well wishes as you navigate your journey toward a diagnosis. ❤️
What did the results say?
Thank you for this video.im having a bad fair, so i watch youre video, it helps to se other fibro people, then you dont feel so alone.This is me everyday just like you.❤high five fibro warrior❤😊
Really glad to hear that the video helped you out. It's tough dealing with a flare-up, but it's good to know that seeing others going through the same thing can make you feel less alone. It's a daily battle, for sure. Sending a big high five right back at you, fellow fibro warrior! 😊
So glad I found your channel it is helping me a lot. I am really sick atm and I have chronic pelvic pain as well as fibro and many other issues. So my body is in extreme pain and I’m sick from the pain most night and fibro is relatively new to me so still learning to deal with it. I’m struggling so much at the moment though this flare and struggling to keep my head up and fight. I’m in pain everyday but because I have a flu it’s amplified I know that. Any advice to try get thru this or could you do a video dealing with fibro when you are sick?
But your channel has helped me alot to have some faith. Thank you for doing what you are you keep me inspired and I’m sure so many others.
I’m glad this video gave you hope. There is no other way to put it. Flares as hard! The two biggest advice I have is, you need to have patience and they will not last forever. Make sure to get rid of all the guilt of not doing anything but surviving. Find ways to distract yourself and use medications to help with symptoms if they are safe for you to do so. There are two videos that I will be making soon, one is things that help me deal with pain and the other is what to do during a flare. I also have to navigate flares all the time. I have all those video ideas but then I get a flare, or Covid, or migraines… it’s always something. It’s hard to keep a consistent life. For me life with Fibromyalgia is all about constantly adapting, changing plans… at the beginning I used to get angry but now I actually take pride on how resilient I have become. I’m still practicing the patience part, I have always been very impatient but I’m slowly learning that I don’t have to be in control all the time. Because Fibromyalgia is new to you, you are still developing skills to deal with it. You will learn what works for you over time. It makes a lot easier to be surrounded by understanding, loving and supportive people. I hope you start to feel better soon. Remember, you are not alone. Many people are going through a flare right this moment.
Thank you so much for replying to me. Yeh I get cluster migraines and they are horrible. I just trying to adapt to all this pain and my body feels like it is deteriorating. You are a very strong lady and thank you for your advice and videos they are helping me. It’s hard to deal with multiple chronic illnesses that are invisible. I have amazing support around me, just find it hard to explain fibro to them, I have showed them some of your videos and they have slightly better understanding. I have pain killers but sometimes they just don’t do enough. Some nights I think of going to hospital but really not sure what they can even do and I don’t like hospitals. I hope you are doing better and thank you again for helping me and many others.
Thank you sharing this video of a flare up. 💕🛐
I'm coming out of a two week fibro/fatigue flare.
Adding your video to my "FIBROMYALGIA & CFS HELP" playlist :) Love and God bless You😇
Rachel in Nashville:)
Claiming Healing from Psalm 103💕😇
Hi Rachel, thank you so much for your kind comment! I'm sorry to hear that you've been experiencing a fibro/fatigue flare-up for the past two weeks. I can understand how challenging and draining that can be. I truly appreciate you taking the time to watch and share this video. It means a lot to me that you've added it to your "FIBROMYALGIA & CFS HELP" playlist. Sending you lots of love and blessings as you navigate your journey. Stay strong and take care! ♥️
@@tt_looking_glass Hi Daniela! 🐱🌞 Hope I'm spelling your name right 😉
You are SO WELCOME for watching and for adding your vids to my playlist :) I just added more!🤗🎦 Your videos are very interesting and informative! :) Also your video shorts are cute and creative, and some made me laugh! Thank You for the laughter today! "Laughter does good like a medicine" - Psalms 📙📖🐱 Also your videos just greatly encouraged me today that I'm not alone 🦜🦩🐠 And your tips for how to live with fibromyalgia really helped as well! I have some of those tips and protocols in place already...but I may need to find a doctor who is more supportive and helpful about this issue. Also I'm working on moving my body more🚶♀️🏄♀️ Lol on surfing, yeah right!! 😉 But I do love walking, and that helps. I know the Lord heals our bodies and sometimes it's over time and not instantly, and He gives us natural things too, like herbs and vitamins, which helps our bodies 🌞 My vitamin array is similar to yours...it's pretty grand!! Anyways love and blessings to you too, and I'm so glad you have a loving husband to support you! What a HUGE BLESSING!! Have a wonderful week:) Rachel in Nashville:)
P.S.... Your videos have inspired me even more to go ahead and make a new video. Tomorrow is my birthday and I HOPE to make a video tonight or tomorrow. 🎦🎦😉💕🛐
Hi Rachel! 🐱🌞 Thank you so much for your lovely and heartfelt comment! You spelled my name perfectly, and I truly appreciate your kind words and support. I'm thrilled to hear that you find my videos interesting, informative, and even funny! Laughter is indeed a wonderful medicine for the soul, and I'm glad I could bring some joy to your day.
I'm touched to know that my videos have encouraged you and made you feel less alone. Dealing with fibromyalgia can be challenging, but finding supportive healthcare professionals and implementing helpful tips and protocols can make a significant difference. I'm glad to hear that you already have some of those in place and that you're working on moving your body more through walking. It's all about finding what works best for you.
You're absolutely right that the Lord heals our bodies.
Happy early birthday! 🎉🎂 I'm excited to hear that my videos have inspired you to create a new video of your own. What a wonderful way to celebrate your birthday! I wish you all the best with your video creation, and may it bring you joy and fulfillment. I will check out your channel.
Thank you for your kind wishes, love, and blessings. Having a supportive husband is indeed a tremendous blessing in my life. I hope you have a fantastic week as well, filled with love, joy, and memorable moments. Take care, Rachel, and once again, happy birthday! 🎉💕
@@tt_looking_glass AWWWW THANK YOU, Daniela!! What a beautiful, sweet reply! You are a very kind person 💗 It's interesting how kind and compassionate people find each other so many times in this big world! You are a blessing to me as well! Thank you for all your kind words and your sweet thoughts! I don't even know you and you made me feel so much BETTER!! 🤗🤗🐹🧡😃 Thank you so very much for your words of encouragement and your kind thought! I actually had another bad flare-up and have been having to rest for like 2 days and had a really disappointing birthday! I did exactly what you warned about, not to overdo it when you have a good day! I'm so bad about that! So I was trying to learn the shuffle dance you know which is the latest trend, and I just tried it very gently in my apartment for like 30 minutes and that was it! Bam I've had to rest for two days straight! I've been in pain but you know what the Lord is here with me and I can tell he's with you too! You live and learn and I'm still learning so much at 53! Many times people think I'm in my thirties which is a blessing :-) I've asked the Lord for years to preserve me, and it works! I had a friend from Jamaica who look way younger than her age whom I met at church, and I asked her how she looks so young, and she said I've been asking the Lord to preserve me! So I started crying that back in 2005 :) now I just need to get this fibromyalgia and lipedema under control... I'm praying and hoping to get surgery for the lipedema and I know that will help a lot 🙏
I hope that you have a beautiful week and I hope that you have really really good days and that you feel blessed and peaceful, my fibro friend! Love and blessings and joy and hugs to you today! Rachel in Nashville:))🐹😺😺😺🐠🧡☕🍨
Oh, wow! Thank you so much for your incredibly kind and heartfelt response! Sorry for the late reply. Sometimes comments get lost in my channel and it can be hard to keep up. It's true how kind and compassionate people often find each other in this vast world. I feel blessed to have connected with you and to be a source of comfort and encouragement.
I'm sorry to hear about your recent flare-up and the disappointing birthday. It can be tough when our bodies remind us to take it easy, but rest is essential for our well-being. Learning to listen to our bodies is a continuous journey, and we all have those moments where we push ourselves a little too far. But hey, we live and learn, right?
I'm glad you feel the presence of the Lord with you. He's always there, providing strength and support. And it's wonderful that you've been blessed with looking younger than your age. Sending you all my love and prayers as you navigate your fibromyalgia and lipedema journey. May you find relief and healing, and may your surgery bring you much-needed improvement. Know that you're never alone, fibro friend! Love and blessings.
Sending you Light Love and God's Healing Prayers 💜 I am in the middle of a cycle myself.. days of severe fatigue and pain. Love you ❤
Hey Samantha, thank you so much for all the positivity. 💜 I’m really sorry to hear that you’re going through so much fatigue and pain. I hope you get relief soon and that you have support to get through this. Love you too! Stay strong, and we’ll get through this together. It means a lot to have your support.
@tt_looking_glass Muchly appreciated! Yes we will. Love and Light 💜
You have terrific printing skills…Good for you😊🙏😊. KCMary. .
Thanks so much 😊
I use shower oil when showering, that helps me a lot! You are a trooper well done!
Me too.... that is all I can say.
Yes I can totally relate! the weather changes kick my butt. Where did you get that silk ariel? need to get one of those. my thoughts and prayers are with you..
Thanks for the comment. The silk hammock is from Amazon. I have an Amazon store both Canadian and American that have links to all my favorite products. It costs you exactly the same, it just tells Amazon that I am recommending it and they give me a small percentage. So if you decide to buy it, I would appreciate if you could use my link. 😉
I have fibromyalgia. Also, chronic migraines as well as other issues. Lately my migraines have been very bad and are not responding to my meds. I'm tired all the time (but can't sleep at night well). & today/yesterday I am in the biggest flare up. I'm in so much pain & trying to explain the pain to people as "very bad" but also that it's "normal" is so hard. Like it's terrible pain, it's uncomfortable, there's tons of symptoms, but it's a thing that happens when you have fibromyalgia. I am very stressed and anxious lately and am wondering if the stress is what caused the flare up. I'm currently trying to just rest and hope for the best. Thank you for this channel! ❤
I'm really sorry to hear about the tough time you're having with your fibromyalgia and chronic migraines. I know how challenging it is when the pain is intense and the usual medications aren't providing relief. Stress and anxiety often contribute to flare-ups in conditions like fibromyalgia. While it's hard to pinpoint the exact cause, managing stress can sometimes help in managing the symptoms. It's okay to take the time you need to rest and recover. It's important to listen to your body. I'm glad you find the channel helpful - that's exactly why I'm here. Know that you're not alone in this, and there's a whole community here who understands and supports you. Take care, and I hope you find some relief soon. ❤
I’m a human weather vane! Definitely can relate to you! It sucks so much!
Isn’t that crazy!! 😜
Thank you for making this channel, sometimes it’s easy to feel like your all alone or people don’t get this fibromyalgia disease.. it’s so nice to be able to see and share actually.. how very difficult it is to live with this… thank you, thank you! 🥰♥️
@@mindydifilippo5516 thank you for the encouragement ❤️
This is such a true reflection on life with fibro......had a bad night last night followed by a bad day...I hate the feeling of being useless .....how can showering become such a task? I sometimes get into despair as t feelsnlike it will last forever ......I always say....t can't rain all the time. X ❤️
When you are going through a flare it feels like you will never feel better again. It is so hard. I need people to remind me that I have survived other flares. I hope this one improves for you soon, and meanwhile, I hope my videos keep you company.
@@tt_looking_glass thank you for helping. Only been doing diagnosed a year have lost my career and friends and everything to it. You give me hope.
Ooo my hat, looking at you seeing myself, been in a flare for a couple of months now.... arggghhhh. Mentally it screws me up.... but doing the same as you.... good luck!!!
I’m so sorry you are going through this too. I hope you have good support and that we get some relief soon. Remember, we are strong and we can do this.
Thank you for the reply, yes I have awesome support diagnosed 2017, recieved permanent disability from , Neurologist, Occupational therapist, psychiatrist and Rheumatologist. Hahhaha, that's South Africa for you. Studied massages therapy unable to practice, but it's been helping a lot with understanding what's happening in my body to help manage my fibro and all the comorbidities so I am just normal crazy now. Sorry but have to keep the sence of humor. Some years are good some are just behond comprehension in full flare. Mental health is so important, physically I am so screwed full body pain, but this to will pass at some point.
@@D.K8637 You are very right about keeping a sense of humour. Thanks for sharing a bit more about your story. It's good to know how other people deal with this condition and how their health care system works.
I am definitely making myself that hammock you are using for those can't sit stand or lay down days. Thank you for that!!!!
@@D.K8637 it is the best!! You can make it yourself or you can buy them at Amazon as a Yoga Hammock.
I get you. Had varicose leg vein surgery last month and it kind of stirred a fibro flare. So after so much bed rest (three weeks), a week without pain, even started doing exercise (it helps me), went to my doc Tuesday, all labs within range, Wednesday cooked, cleaned, washed the dog, etc., but started coughing alot on Thursday, Friday more intensive cough, had asma and sore throat. I did a home Covid test that day, came out negative. But by Monday "symptoms" continued (i.e. no smell, no taste, like a metallic like flavor in my mouth, etc.) and two Covid home tests later and the lab one came out positive. Been on respiratory therapy for two weeks and my chest still bothers, still coughing and feel like I've been run over by a truck. I do have my four Covid shots, take multi vitamins and finished the five-day treatment. Need to see my neumologist. Yesterday was my birthday, didn't go anywhere... Hang on there, we can do this.
Firstly, I'm so sorry to hear about your recent experiences, especially dealing with both post-surgery recovery and then catching Covid. It sounds like you've been through a lot, and yet you're still holding on with such a positive outlook. I truly admire your strength. Remember to always prioritize your health and give your body the rest it needs. I hope you see your pneumologist soon and get all the care and support you need. Belated happy birthday to you 🎉. Even though you couldn't celebrate the way you might have wanted, remember that each day you push through is a testament to your resilience. Sending healing vibes your way 💪❤️. Hang in there, brighter days are ahead.
I love your videos I have Fibromyalgia & RA you're bless to have a husband to help you I think I have POTS too, but I haven't been diagnosed yet. I live with pain everyday, but I just came out of a flare that lasted 2-3 weeks I had severe headaches but with rest & I started taking my supplements everyday I been horrible with taking them. I do the same things you do with trying to pace myself and I normally over exert myself & boy do I suffer from over doing things. It hard for me because I live at home with my mother & daughter and my mother seems to think I am lazy I don't understand why because I have been a hard worker & overachiever all my life . However, I am the only person in my family on my mother side who have these chronic illness I keep trying to get disability, but I keep getting denied I think the hardest part is the chronic fatigue I have especially after doing one daily routine. I just want to say thank you for sharing your story it helps me to know I am not alone.
Thank you for watching my videos. Welcome to the channel. You are definitely not alone. ❤️Flares are the worst! I am very blessed to have such an understanding and helpful husband. I can’t even imagine what it would be like to do this journey on my own. I have also been slacking quite a bit with my vitamins, specially since I had a reaction to them and almost went into anaphylaxis. I’ve been scared to take them ever since but I know they make a difference on my energy levels and immune system. It’s horrible when people think we are lazy. We are anything but lazy. If people had half of our symptoms they wouldn’t get half done of what we accomplish. Everything we do is through pain and pushing our bodies, even when it keeps telling us to stop. It’s heartbreaking. I hope you enjoy my other videos as well. Feel free to comment anytime. I love engaging with my subscribers. Thanks for watching and supporting my channel. I hope you get a bit of a break through the holiday.
Yes I feel when weather gonna change
We are like a walking barometer.
Love your videos. I'm just getting over a flare, but I'm terrified. We're going on vacation to a theme park next week. You would think I would be excited, but my anxiety is sky high. I'm worried about catching a virus and over doing it back into a flare. This is my first vacation since my diagnosis. Any tips would be greatly appreciated. Thank you❤. I hope you heal from this flare soon.
Thank you so much for your compliment. I know the feeling, I only started feeling better from that flare two days before a camping trip I was really looking forward to. I also vlogged the camping trip (it will be uploaded in two weeks). I didn't know if I was going to be able to go but in the end, it worked out. The advice I would give is to not leave any packing or getting ready for the last minute. The few days before your trip you want to do as little as possible. Start taking Vit D, Zinc and Vit C if you already don't take them (unless there is a contraindication from your doctor) this will support your immune system. Try to get as much sleep the week before your trip and try not to stress (I know... easier said than done). But stress greatly suppressed your immune system. Make sure you keep hydrated at the amusement park (add electrolytes to your water to maximize hydration) and bring a small collapsable stool so you can use it whenever you need to sit down (search for "Portable Folding Tripod Stool" on Amazon) Especially if you will need to lineup. You may even want to consider getting a wheelchair there (parks have them available but you may need to reserve them ahead of time) so you are not exhausting yourself too much with the long walks. I know it's hard at the beginning to accept that we may need help but it's better to use one and have fun than to not use it and be miserable and in bed the next day. Ultimately, accept that you may end up in a flare but you need to decide if having some fun now and again is worth it. For me it is. If you haven't watched my "my baby girl is going to be a pilot" vlog, that is an example where I totally overdid it but it was worth every minute of it. Good luck with your trip, I hope you have a really great time. Ohh and don't forget to bring pain killers, anti-nausea medication etc... They exist for a reason.
Thank you, SO MUCH for the advice!! I was taking these supplements but I've kinda forgot about them. I'm writing this all down. I'm going to watch the vlog you suggested. Thank you so much for all you do!!
You are very welcome. Comments like yours is what keeps me motivated to makes those videos, because let me tell you it’s not easy when you have several chronic illnesses. Also, I will be I interviewed in a Podcast that will be aired on Jun 27 on Aimee Esther TH-cam channel. She also posts content on chronic illnesses. Check her out and don’t miss the podcast on the 27th. You can watch it on her TH-cam channel. The topic is “How to live your best life in spite of chronic illnesses”.
One in the Morning?
Sorry that you are going through so much discomfort
I appreciate your honesty,seriously
It’s time some more research is done to help those with Fibromyalgia
Warm,gentle Hugs 🤗
Thank you so much. I think because Fibromyalgia won’t kill you, it’s not progressive and affects women primarily, there isn’t a big drive for research.
@@tt_looking_glass I understand but many have very poor quality of life and that is sad
@@elizabethconroy7665 I 100% agree and I’m living proof of that declining quality of life. I think Fibromyalgia, or chronic illness in general as a matter of fact, is so complex that unless doctors and scientists start to address the body as whole, completely interconnected, and not as individual organ systems,we will not find a way to recover.
Your eyes show the flare. My mom and me have the same eyes when in flares
It’s quite something, isn’t it, how our bodies can show what we’re going through, even in ways as subtle as the look in our eyes? You are very perceptive. It sounds like you and your mom share a deep understanding of each other's experiences during those flare-ups. That kind of connection can be really powerful, knowing someone so close can truly see and understand the pain without needing a word.
If you ever feel like sharing more about what you and your mom go through, or if you need a place to find support during those tough times, this community and I are here. Take care, and give my best to your mom.
When I at my worse flare I screaming out as pain to much
I’m so sorry to hear you too suffer from this awful condition. Sending you love and strength.
Can anyone tell me does fibromyalgia flare up with day to day activities and working? I am currently waiting to see a rhuematologist, my symptoms include, sore feet, sore Achilles and calf's, my knees ache. Got a lot of pain in my buttocks and my hip/pelvis and lower back, my shoulders are sore when lifting my arms, forearms at the elbow are sore with limited movement, hands and fingers ache with less grip. Had x-rays in most places everything clear apart from my neck which been told I have cervical spondylosis. Got a vitamin D defiency but been taking vit d for 5 months no change in how I feel if anything feel worse. I am always in pain but when I finish my job everyday I am extremely stiff and my whole body is crying in pain. My mental health is suffering. I'm only 44 and male. P it's hard to describe how I feel to people because on the outside I look fine
I totally hear you about our symptoms it showing to the outside world. Fibromyalgia is a diagnosis of exclusion, meaning they will diagnose you if you meet certain criteria but also when they can’t find anything else to blame for your symptoms. It could very well be that you have it but it is wise to have doctors rule out other conditions that could potentially be treated differently. I hope you find some answers and ways to make it more manageable. Definitely having support and people around you who understand you is extremely important for our mental health. I’m glad you found this community. I try to share as much as possible of my health journey to inspire others and help them not feel so alone.
I cant even get on the floor. Showering is like going to war. But im still trucking ❤
Some days, even the simplest tasks feel like climbing a mountain. Showering can be such a battle, but the fact that you're still pushing through is incredible. Keep trucking, you've got a lot of strength and heart! ❤️💪
Yes I feel it in my bones too, and my feet stay cold when the weather changes
Yes! The cold feet and hands!!
@@tt_looking_glass thank you for your video I have been recently diagnosed before that I didn't know what was happening with my life I'm a very fit person and I was always tired I thought I was going through the menopause or I was imagining things
good to hear I'm not alone
@@lovil6375 we all go through this “are we imagining things” or “am I crazy” fase because the symptoms feel so real but nothing shows up on tests. It’s very frustrating. Welcome to our little channel community. I’m glad my video was helpful to you. It makes my heart smile.
I am new here. Diagnosed with migraines, dysautonomia, fibromyalgia, EDS. Some things that have helped me...two words Shower. Chair. You can sit and wash at the same time, or I will just sit in the tub while showering. I will also alternate what I wash, like if my hair is greasy but I didn't sweat or anything, I will just wash my hair. Or if I washed my hair the day before, then I will just wash my body that day. Also my physical therapist recommends magnesium citrate/ threonate to help with muscles. I have prescriptions for inflammation, nerve pain, muscle relaxants, and low BP. During a flare-up, I will alternate between heat and ice. Also, I have a packet of steroids that I keep if the flare is going on for more than a few days. And I have an urgent care nearby that carries Toradol, an injectable NSAID. With my dysautonomia, my digestive system doesn't always move things along if I am idle for too long. Milk of magnesia is definitely a must for those days (a little goes a long way!) Hope this helps somebody out there!! 🤗
Hey, welcome to the community! Thanks for sharing your coping strategies and what's been helping you manage your conditions. The shower chair tip is a game-changer for sure-such a simple thing but so impactful for energy conservation and safety. Your approach to personal hygiene, focusing on what needs the most attention, is super practical too. Plus, the advice on magnesium supplements for muscle support is really insightful. It sounds like you’ve got a solid routine with your medications and the heat/ice during flare-ups. Keeping steroids on hand for extended flares and knowing the quick relief options shows how much you’ve navigated through to find what works for you. The milk of magnesia tip for those tougher dysautonomia days is interesting, I had never heard of it. Your post is definitely going to help many out here feeling a bit lost or looking for new strategies to try. Big hugs and thanks for spreading the positivity and support! 🌟
Thanks i found your channel..from Philippines..
suffering chronic pain,,neuralgia,,neurophaty, or i think this is fibromyalgia coz i feel same symptoms..
I’m so glad you found the channel and that it resonates with your experiences. Dealing with chronic pain, neuralgia, and neuropathy is incredibly challenging, and it's has lots of similarities with fibromyalgia symptoms. You're not alone in this journey, and I hope the content here can offer some comfort and useful information as you navigate your symptoms. Stay connected with us here, and don’t hesitate to share more of your story whenever you feel comfortable. Take care and hang in there! 🌟
Three week flares happen twice a year on August 29th and January 4th. Know what can turn off the pain? Have neurologist ident 5:22 ify a Tarlov cyst. Magically treatment turns pain off. Not about the surgical option either. Does take needle epidural steroid injections. Not the usual ones though. This is magic. Women with fibromyalgia have a prevalence of a perineural cyst according to the NIH. Just ask how.
Thanks for sharing your experience! I'm glad you've found something that works for you, especially during those tough flares.
@@tt_looking_glass thanks for your response. Treatment for Tarlov cyst is treating radiculopothy in the sacrum and the brachial plexus as #1 center of sensory nerve activity. My flares were vivid however haven't had one in almost 4 years. Every person on earth has more pain than me. Different types of injections therapist. Mine was bilateral (trigger point). The diagnosing neurologist should be board certified. Just because imaging has never indicated Tarlov doesn't mean it's not there. Usually located in the sacrum. MRI technique apparently rarely known by doctors.
Oh my goodness, that's why showers knock me down.....
Everyone around me has said I have fibro and it's been since having covid that it's thrown everything upside down.
Gp said it was the menopause and then it was chronic pain.
Then, it was both menopause and chronic. Pain with fatigue.
I just need to know what is going on and how to deal with it.
As for the weather, yes. Oh yes, I can feel that 100%. Even the pressure changes.
I have long gone through the menopause and even though I have arthritis I know the difference between the two pains.
I just wish someone medical would see me and confirm and not make me feel that I am making this up.
Thank you
From a very tired lady in pain from England xx
You've been through quite a challenging journey trying to get a clear understanding of what's happening with your health. It is incredibly frustrating to not be heard or understood by doctors.
It’s important to continue advocating for yourself and seeking a doctor who will take the time to thoroughly evaluate your symptoms and consider all possible explanations. It might be helpful to document your symptoms, noting their frequency, severity, and any triggers you've noticed, like weather changes. This can provide useful insights during medical appointments.
The overlap of symptoms from different conditions can definitely complicate diagnosis and treatment. It’s understandable to feel exhausted and overwhelmed by this process.
Thank you for sharing your story, and I truly hope you find some relief soon. Take care and keep pushing for the answers and support you deserve.
@tt_looking_glass thank you for replying. I think I will do as you have suggested and do a diary.
I'm just watching more of your videos for helpful information.
Thank you 😊
I’m so glad you are finding the videos helpful. I hope you find the answers you are looking for.
Does your upoer back hurt when you walk too much, mine does, i have been diagnosed with fibro also . My back hurts so much when i walk too much I have to sit down. I also have psoriatic arthritis. I can also feel more pain when the weather changes. Does your body jerk when you are trying to sleep, mine does. Do you know if this is a part of fibro? What is pot's?
Hey there, it sounds like you're really going through a tough time with fibro and psoriatic arthritis. Yeah, I totally get how challenging it can be, especially with all those aches and pains. I get a lot of upper back pain when I walk. It's hard to understand why, but it is a thing. And that jerky feeling when trying to sleep? I hear you, it's not easy. Remember, you're not alone in this, and it's always a good idea to talk with your doctor about what you're experiencing. And about POTS (postural orthostatic tachycardia syndrome) , it's basically when your heart rate shoots up after standing up, causing dizziness or even fainting. It's another one of those tricky conditions. Take care and stay strong.
My god I love your hammock please let me know how you do this
Here is a link to the exact one I have. It's from Amazon. amzn.to/3VH3P0E
You are spot on really appreciated this vid coz we do feel alone
Thank you so much for your kind words. They really mean a lot to me. I love that this channel is helping people feel validated and less alone. Thank you so much for the comment. Let’s keep supporting each other. ❤️
Dear TTLG, Are those your originals on the wall please?
Are you referring to art?
Yes I know when the weather is going to change...
It's crazy, isn't it? We should all work at the weather network!! We would probably have a more accurate prediction than the weather people who often get it wrong. 🤣
the.. barometric pressure affects me. when it is going to rain I always wondeer why I hurt so much more. Then i realize oh, rain. you sound like me. too tired and in too much pain to fix something healthy to eat. what did you take?
Do you mean for pain?
Dr won’t prescribe me oxycodene or painkiller💔💔💔💔💔and it’s debilitating workin g😢 what do you guys take for these pains ?
I'm so sorry to hear about your struggle with pain management and the difficulty in finding a treatment that works for you. It's really hard when the options for relief are limited, especially when pain makes everyday activities, including work, so challenging. I personally take a combination of muscle relaxants, anti-inflammatory and opioids. I'm lucky that my doctor is so understanding. don't give up hope. Keep trying different options and sometimes even getting a second opinion from a different doctor may help. I hope you find a way to get some relief.
How do yall get along with working with fibromyalgia?
Some of us somehow power through, some of us work part time and crash on the days off and some of us are on disability because we can’t hold a job and some of us don’t t qualify for disability but also can’t hold a job are supported by family and loved ones.
I’ve had a migraine for the past 3 weeks it won’t go away, and taking a shower is exhausting. My fatigue is so overwhelming, does anyone have a good fibro diet I need to find some relief.
I’m really sorry to hear you’re going through this. Migraines and fatigue are so draining. When it comes to diet, some people with fibro find that focusing on anti-inflammatory foods helps. Staying hydrated and avoiding processed foods might make a difference too. But honestly, everyone’s body is different, so it’s worth trying a few things to see what works for you. Maybe others here can share what’s helped them? Hang in there; you’re not alone in this. 🌸💜
What supliment you take please reply
I don’t think I mentioned any supplements in the video but if you are just curious I usually take vit D and magnesium. Occasionally I will take zinc or iron if advised by a health care professional.
I struggle everyday to go downstairs to eat with my kids. Even brushing my teeth or peeing.
It sounds like you're facing tough challenges with even the most basic daily activities, and I really admire your courage in sharing that with us. It must be so hard to manage those everyday tasks while also wanting to be there for your kids in the way that you’d like. You're doing an incredible job under such difficult circumstances.
Remember, every small step you take is a victory, no matter how small it may seem. Please know that this community is here for you, to support you and to remind you that you're not alone in this struggle. Keep reaching out, keep sharing, and keep taking it one day at a time. You're doing better than you think, and we're all here cheering you on.
I’m having a major flare right now
Oh no, I'm really sorry to hear you're going through a major flare-up right now. They are so tough. Remember to take things easy and give yourself the time and space to rest. It's okay to put your health and well-being first.
Is there anything in particular that helps you manage the symptoms?
Sending you lots of positive thoughts and hope for a speedy easing of the flare. Hang in there, and take care of yourself. 💜
@@tt_looking_glass thank you for your kind words
I have read that taking a bath is better for fibromyalgia than a shower because we can lay down in a bath.
It makes sense when you think about it, being able to lay down can really help ease the discomfort and distribute the body's weight more evenly, reducing strain. Plus, the warmth of the water can be super soothing for muscle pain. Definitely worth considering for anyone trying to manage fibro symptoms. Thanks for bringing that up!
I can't get up out of my bath now. I have to stand in my bath to show. I picked a 2 year old child on Sunday and now I am in agony as if I ripped a muscle as well as the usual pain
I'm so sorry to hear that you're in so much pain. It sounds like a really tough situation. I hope you feel better soon. 😥
@@margaretsofocleous1999 Hi. I have a bath lift. It isssupplied by local council. It is brilliant. It lifts me down and brings me up.
Must of been soo great to wash hair. 😢❤❤❤😅Yes you just want to sleep after warm water
Washing your hair can feel like such a luxury sometimes, right? And yeah, after that warm water, all you want to do is sleep.
Girl, what’s Mr. Big?! Candy?😅
Yes!!!! The most decadent candy ever! Just a million calories and a million grams of sugar. Perfect to raise dopamine when you are feeling down. Terrible for your health and immune system. 😂 nobody is perfect and we cope the way we cope, right?
@@tt_looking_glass Lol! You gotta do what you gotta do!😆 We don't hv it here in the states, that I've ever seen.
I feel my doctor does not recognize my pain or thinks aleve is enough to restore my life to some peace!? I feel so depressed too...😢😂
I'm really sorry to hear that you're feeling unheard and unsupported by your doctor. It is incredibly frustrating and disheartening when it feels like your pain isn't being taken seriously or adequately managed. Aleve and other over-the-counter medications can help, but they're not always enough, especially when dealing with chronic conditions.
It's also completely understandable that this situation is affecting your mental health. Chronic pain and the feeling of not being listened to can certainly contribute to feelings of depression. It's okay to seek a second opinion or talk to a different healthcare provider who might offer a fresh perspective on your pain management.
Please take care of yourself, sending you strength and hoping you find the relief and support you need. 😢
P.S
You never look awful
So don’t say this
Thank you ❤️ I guess it’s how I was feeling.
The shower is the only thing that helps me ...
I love the shower, it really helps with the pain but it makes my fatigue so much worse. It's like I can never win. I make something worse to make something else better. It's a matter of choosing what I want to deal with at the time.
Omg this is me … what the butterscotch is wrong with us?
I know right? Someone, please solve this mystery!!!!
I have M.E. and fibro..pace yourself. Do something g as you are doing for 5 or 10 minutes max. Then stop. So hard to NOT push but it just makes it worse!
Yes, pacing really is the key. I do have a hard time doing that and often push myself into a flare.
Yes I feel the weather before it changes and my allergies…
We are human barometers!! 🤣