Hi Katie, I came across your video whilst researching liver resection surgery.. Thank you for taking the time to post it, it was really helpful. I am so sorry that you have had to go through this awful and traumatic experience. You are a very brave young woman. I see that this is over a year old, so god willing you remain and will continue to remain in remission. My thoughts are with you and your family for a bright and prosperous future.
You are the bravest and most open patient I have ever seen…..thank you for sharing such incredible information….I’m sure your journey will be helpful to so many….again you are beautiful and so strong…..God Bless…I am praying for you and your husband and hope to keep up on your journey 🙏🙏🙏
Thank you for taking the time and being willing to share your experiences. It is reassuring to know someone's personal experience since, as you know, being hit with a cancer diagnosis is scary and unlike anything one has had to deal with before. Thanks again!
Great information! I am going through just about the same thing you have gone through. I will also have the surgery on my liver in the next 3 weeks and I am terrified. Your story has helped me somewhat get through it all. It's not easy. So are you now cancer free?
This video was very informative, and I know it will help many. Congratulations on your successful surgery. It’s wonderful that you were able to find a doctor willing to do the surgery. Will you require any further treatment, or are you considered cancer free and in remission?
Thank you so very much for your thorough and detailed video. I am just at the beginning of my journey, so lots of questions, concerns, and yes, fear of the unknown. Your videos give me hope. For me it’s a nephrectomy of my left kidney. No observable metastases, but additional scans of chest and bones have been scheduled. I’m in late stage 1, almost 2. I am 68 years old and otherwise in great health. All of this is a bit overwhelming but your videos are helping me cope, plan, and prepare. God Bless you!
@Boho Chic I had surgery to remove my left kidney in early October. The procedure took two and a half hours. Pathology revealed a stage 1 tumor with no metastasis. Yay! Recovery at home: the first few days were understandably rough but I was walking every day and did my breathing exercises with the incentive spirometer. By the 2nd week, I was feeling much better, still had pain but my step count was improving. It was important to me to see daily progress in my step count. By week three I was almost back ti normal and by week four all restrictions were lifted. My post op labs showed creatinine above my normal and lower GFR, but overall I feel great, except for some mild dizziness when I stand up after sitting a while. I had my first post-op chest CT this week and it came back “normal”. Yay! Results of an abdomen MRI are still pending. If both tests are normal, I will see the doctor in 12 months! I go in for lab work today to see how the creatinine and GFR levels look. I have been learning a lot about which foods are kidney friendly so I can give the one I have the best chance of optimal function. My physical activities are pretty much back to normal. I have been hiking near home - yesterday was 6 miles! Last week I rode my bike 12 miles on a paved trail, and two weeks ago I paddled my kayak about 4 miles. I feel like I need to push myself to see where my limitations are. Not knowing if cancer is gone completely or if it will return can be haunting, so all this activity provides a good distraction. Need to keep moving so I can keep moving! The next follow up with my urologist is in 3 weeks at which point we will discuss my recent CT, MRI and lab work. My faith is strong and I give much thanks to God for creating a sense of urgency, aligning me with the medical care I needed, and for the care and support of friends and family, especially those who have shared similar experiences. Thank you for allowing me to share mine! 💕
Sending all the best your way for surgery! You're going to do great. Take recovery at your own pace, listen to your body and if you can get one for recovery at home, a wedge pillow will become your new best friend!
I'm so happy to hear you're doing well and almost completely recovered! Has anyone ever told you that you look like a younger version of Tati the beauty TH-camr? So gorgeous! ❤️❤️❤️
I have liver lesions and a rare cancer I am thinking of NIH how did you feel about them and how are you today?.. Thank you for all the information!, Marie 💜
Thank you for sharing your experience. I’m so happy to hear of your continued health success. You’re very articulate. And your sharing your story has helped me tremendously. I had a liver resection at the University of Virginia medical center to remove a tumor (11 x 10 x 18cm) attached to it. The surgery was very successful but I was not prepared for this surgery , nor it’s recovery. I’ve looked all over for information, but not in TH-cam. I’m so relieved to hear your story. It’s been 11 weeks now and I have pain. Mostly muscle spasms. I’m wondering if you or anyone have had spasms … and what did you do? Did they eventually stop?
Hi Kate, thanks for sharing. I just had liver surgery a few weeks ago to remove some abnormal growth in the upper-rear area of the liver. Won't know what it is until pathology responds with some information. I'm still in recovery at home and it has just passed the 3 week mark. Very tired still.
Week three was one of the most difficult weeks for me. I felt like I made a lot of progress in weeks one and two, then it felt like it slowed down in week three. I started feeling more like myself around week 6 or 7. Sending you the best for a speedy recovery!
@@katiekickscancer_kidney I can agree with that six to seven week mark. I just started the sixth week a couple of days ago and started getting out of the house to visit family, so yes, I'm at an almost normal state. The progress in weeks one and two is what you and doctors want to see. I was out of the hospital on day 8, but could have left on day 5 or 6, but doctors wanted to be sure. Good to hear your better!
Great info! Interesting to hear you have POTS. That's gonna be what my next science channel. Would be curious to hear if POTS influenced the Docs treatment in anyway, or if your symptoms changed at all before/after surgery.
Perfect timing I actually am uploading a video as we speaking talking about my diagnostic process and touching on that. My symptoms greatly improved after surgery
Thank you for sharing your story. I had a kidney operation (not cancer) a few years ago and was fortunate to get the epidural the first 3 days. I also didn't want pain killers because they make me extremely nauseous. However, it's important to manage pain as part of the recovery process. I'm having issues with my kidney again and was wondering what your labs looked like before you were diagnosed?
As it turned out, the liver resection was taken off the table! My last mri showed the cancer has spread into my lymphnodes, so I don't qualify for resection or transplant! I have no idea what's in store for me! They're going to try immunotherapy!
So with the surgery are you no evidence of cancer or did it cure? I don't know of any stage 4 that has been completely cured. Most of the time it just goes into remission for short times. Sending prayers
How many stage 4 patients do you know? I know 7 people (3men4 woman). To date all 7 are recovered and all were stage 4 before the op. Medicine has move on at a phenomenal rate. Please try and be positive. Cancer patients don’t need comments (even well meaning)from non qualified medical staff and the general public.
Hi Katie, I came across your video whilst researching liver resection surgery.. Thank you for taking the time to post it, it was really helpful. I am so sorry that you have had to go through this awful and traumatic experience. You are a very brave young woman. I see that this is over a year old, so god willing you remain and will continue to remain in remission. My thoughts are with you and your family for a bright and prosperous future.
You are the bravest and most open patient I have ever seen…..thank you for sharing such incredible information….I’m sure your journey will be helpful to so many….again you are beautiful and so strong…..God Bless…I am praying for you and your husband and hope to keep up on your journey 🙏🙏🙏
You are amazing!
You’re too kind!
Thank you for taking the time and being willing to share your experiences. It is reassuring to know someone's personal experience since, as you know, being hit with a cancer diagnosis is scary and unlike anything one has had to deal with before. Thanks again!
Great information! I am going through just about the same thing you have gone through. I will also have the surgery on my liver in the next 3 weeks and I am terrified. Your story has helped me somewhat get through it all. It's not easy. So are you now cancer free?
I just subscribed ☺️, Will have to tell you about my journey soon. THANK YOU for doing this video.
I would love to hear your journey as well.
Your so brave.
Thank you for explaining everything.
Im having one removed in 3 weeks..
😊😮😊
I have my surgery Feb 2nd and I am thankful for some type of information of what might be expected!!
How did you do ?
You are so brave, kind, smart, and informative! You touch my heart. ♥
Very helpful!!
Thank you!!
Sending it to my family, too!
This video was very informative, and I know it will help many. Congratulations on your successful surgery. It’s wonderful that you were able to find a doctor willing to do the surgery. Will you require any further treatment, or are you considered cancer free and in remission?
If you are diagnosed with stage 4, you will always be stage 4 even if you are NED, No evidence of disease.
Thank you so very much for your thorough and detailed video. I am just at the beginning of my journey, so lots of questions, concerns, and yes, fear of the unknown. Your videos give me hope. For me it’s a nephrectomy of my left kidney. No observable metastases, but additional scans of chest and bones have been scheduled. I’m in late stage 1, almost 2. I am 68 years old and otherwise in great health. All of this is a bit overwhelming but your videos are helping me cope, plan, and prepare. God
Bless you!
@Boho Chic I had surgery to remove my left kidney in early October. The procedure took two and a half hours. Pathology revealed a stage 1 tumor with no metastasis. Yay! Recovery at home: the first few days were understandably rough but I was walking every day and did my breathing exercises with the incentive spirometer. By the 2nd week, I was feeling much better, still had pain but my step count was improving. It was important to me to see daily progress in my step count. By week three I was almost back ti normal and by week four all restrictions were lifted. My post op labs showed creatinine above my normal and lower GFR, but overall I feel great, except for some mild dizziness when I stand up after sitting a while. I had my first post-op chest CT this week and it came back “normal”. Yay! Results of an abdomen MRI are still pending. If both tests are normal, I will see the doctor in 12 months! I go in for lab work today to see how the creatinine and GFR levels look. I have been learning a lot about which foods are kidney friendly so I can give the one I have the best chance of optimal function. My physical activities are pretty much back to normal. I have been hiking near home - yesterday was 6 miles! Last week I rode my bike 12 miles on a paved trail, and two weeks ago I paddled my kayak about 4 miles. I feel like I need to push myself to see where my limitations are. Not knowing if cancer is gone completely or if it will return can be haunting, so all this activity provides a good distraction. Need to keep moving so I can keep moving! The next follow up with my urologist is in 3 weeks at which point we will discuss my recent CT, MRI and lab work. My faith is strong and I give much thanks to God for creating a sense of urgency, aligning me with the medical care I needed, and for the care and support of friends and family, especially those who have shared similar experiences. Thank you for allowing me to share mine! 💕
@@raamosjr Great to hear of your successful surgery and recovery. You've inspired me to do some exercise!
So brave and strong 💯
You are so sweet and beautiful. You are a fighter.
This was so helpful!!! Thank you!!! I have an open wedge resection next month; section 6 and my gallbladder are coming out and I'm scared 🥺
Sending all the best your way for surgery! You're going to do great. Take recovery at your own pace, listen to your body and if you can get one for recovery at home, a wedge pillow will become your new best friend!
Thank you! I've read about that in recent days, but I won't have time to get one. Will a regular pillow work?
I'm so happy to hear you're doing well and almost completely recovered! Has anyone ever told you that you look like a younger version of Tati the beauty TH-camr? So gorgeous! ❤️❤️❤️
I have liver lesions and a rare cancer I am thinking of NIH how did you feel about them and how are you today?..
Thank you for all the information!,
Marie 💜
Thank you for sharing your experience. I’m so happy to hear of your continued health success. You’re very articulate. And your sharing your story has helped me tremendously. I had a liver resection at the University of Virginia medical center to remove a tumor (11 x 10 x 18cm) attached to it. The surgery was very successful but I was not prepared for this surgery , nor it’s recovery. I’ve looked all over for information, but not in TH-cam. I’m so relieved to hear your story. It’s been 11 weeks now and I have pain. Mostly muscle spasms. I’m wondering if you or anyone have had spasms … and what did you do? Did they eventually stop?
Thank u so much for the video u made about a kidney biopsy, it really help me , and it didn’t hurt at all … God bless u 👍👮🚔👮♂️🇺🇸
Hi Kate, thanks for sharing. I just had liver surgery a few weeks ago to remove some abnormal growth in the upper-rear area of the liver. Won't know what it is until pathology responds with some information. I'm still in recovery at home and it has just passed the 3 week mark. Very tired still.
Week three was one of the most difficult weeks for me. I felt like I made a lot of progress in weeks one and two, then it felt like it slowed down in week three. I started feeling more like myself around week 6 or 7. Sending you the best for a speedy recovery!
@@katiekickscancer_kidney I can agree with that six to seven week mark. I just started the sixth week a couple of days ago and started getting out of the house to visit family, so yes, I'm at an almost normal state. The progress in weeks one and two is what you and doctors want to see. I was out of the hospital on day 8, but could have left on day 5 or 6, but doctors wanted to be sure. Good to hear your better!
So glad you were able to have the surgery you fought so hard for!
Do you have to take any post surgery chemo?
All the best wishes
Everyone heals differently. Some heal faster than others.
Great info! Interesting to hear you have POTS. That's gonna be what my next science channel. Would be curious to hear if POTS influenced the Docs treatment in anyway, or if your symptoms changed at all before/after surgery.
Perfect timing I actually am uploading a video as we speaking talking about my diagnostic process and touching on that. My symptoms greatly improved after surgery
Thank you for sharing your story. I had a kidney operation (not cancer) a few years ago and was fortunate to get the epidural the first 3 days. I also didn't want pain killers because they make me extremely nauseous. However, it's important to manage pain as part of the recovery process. I'm having issues with my kidney again and was wondering what your labs looked like before you were diagnosed?
How are you doing now? Now that you’ve had surgery, are you still taking any kind of systemic treatment?
On earlier video I thought you said you had high platelets
Thank you for sharing your experience. I wanted to ask if you also experienced a high resting heart rate (100-120 bpm) right after surgery?
I did when I was standing and walking around. Standing and walking until about 2 months after surgery would typically get heart rate to about 135
I have to get a liver resection soon!
Wishing you a speedy recovery!! If I can help provide any other tips or feedback from mine, happy to connect!!
As it turned out, the liver resection was taken off the table! My last mri showed the cancer has spread into my lymphnodes, so I don't qualify for resection or transplant! I have no idea what's in store for me! They're going to try immunotherapy!
So with the surgery are you no evidence of cancer or did it cure? I don't know of any stage 4 that has been completely cured. Most of the time it just goes into remission for short times. Sending prayers
How many stage 4 patients do you know? I know 7 people (3men4 woman). To date all 7 are recovered and all were stage 4 before the op. Medicine has move on at a phenomenal rate. Please try and be positive. Cancer patients don’t need comments (even well meaning)from non qualified medical staff and the general public.
Hipocondreact , high maintenance, silver spoon, I'm exhausted. 😩