I am. Disability seemed to progress pretty fast diagnosed in 2016 now I'm in a wheelchair. But I have hope I've changed my diet and my symptoms are going away substantially. I'm pushing to get out of this wheelchair and I will!
I am. Diagnosed 03 at age 21. Got on DMT right away. (Rebif) stayed on Rebif till 2020. Now on Ocrevus. Doing great. Got a limp and right side 50% strength of left. Only use motorized chair when walking long distances (save energy) I contribute my lack of progress (that's a good thing) to getting on DMT ASAP after getting diagnosed. First time I heard men have it progress quicker. Thanks for the vid. Love your content
DX’d at 44 with PPMS with only some balance issues and a bum ankle. Started Ocrevus ( only drug approved in Canada ) almost immediately. Within 2 years I was using a cane. Now almost 4 years later I am using a walker more and am struggling at that. Doing all the things needed but feel the progression is moving quickly. Here’s to hoping it plateaus soon. Great video. Thanks.
Ocrevus ® was the ONLY DMT offered in Toronto.Ocrevus exacerbated my MS so I stopped after the first 2 half-doses and later had HSCT in SEPTEMBER 2023 in Mexico. It is too soon to assess what effect HSCT had. I would say exercise has been by far the best treatment over pharmacological (point at 7:50 )
I had a neurostim unit. I tried for 2 year's to referral. To have removed for the MRI. He said " you're a 54 year old with the body of an 80 year old deal with it. I had been falling alot leg heavy, numb face. Fired him. Got unit out and went to UCSF after 3 months of pt. Tagged with ppms. Quite the adventure of learning new ways to live. Be strong 💪
Thanks for watching. So sorry you had such a long road to diagnosis and so glad you decided to not take the advice of just dealing with the body of an 80 year old! 💪
Hi Vicky Great video! Quite informative and insightful. I am a 34 year old male. I got diagnosed with RRMS on October 2023. I was on methylprednisone on both relapses which sent me to the hospital. I started right away with Ocrevus and PT. I am doing very well now as unlike most cases, I did not fell into depression but rather dealt with it in a stoic manner and had been determined and disciplined with my exercises and medications, eat a healthy diet 98% of the time, and occasionally use a cane when going out on the street, but I walk without a cane at home and in my flat complex. I am very determined and I also have autism, so having something is not new for me. Regards
Coming up on 4 years post-DX. Once I understood Swank diet and adding daily exercise to lifestyle, the flares went away. Sexual ED problems are the most depressing symptom
Thanks for watching. So glad the flares went away. That is great news. ED problems sometimes come with MS. Look up Dr. Boster’s advice on then”down there’s”.
I am a guy. Diagnosed late in life (51). 54 now. I have tried diet and lifestyle changes along with ocrevus and did well initially but then my ocrevus stopped working and my dr was on 11 months mat leave with poor coverage so i had flare after flare for 6 months and went from a 3 to a 6.5 on EDS scale. I have a lots of emotional stress with family issues and i have pain sometimes 9/10 pain so have a bad habit of feeding these issues with sugar and are having a hard time breaking the habit. Thank you for the report as sad as it was. I am on Kesimpta now lets hope it works and that i can get of sugar.
Thanks for watching Rob. I am sorry about the progression, that stinks. Try to focus on what you can control like diet and stress reduction. I hope,the Kesimpta can arrest the progression.
Yea brother - stress factors in big I'd say. PPMS here at 59. I have somewhat (maybe 80% mastered) being happy and reducing stress... I don't think my MS would have manifested if I had these life skills 15 years ago. Live and learn I guess... I'm happy with what I've got anyway, in spite of the fact that MS sucks!
Nice video as always and all but if i may, what is a Talking Therapy where you list several stress management techniques ? Is it psycho-analysis stuff ? Like shrinks 'n all that ?
@@EvenSoItIsWellPleasure. Now look, you have talked about the importance of physical activity (Exercise) and another list with several stress relief techniques addressing the importance of stress management. Now if i'm not mistaken you have a playful dog always eager to venture out and about. So maybe, just maybe having a pet would be another way to be on both lists (exercise plus stress management) at the same time. Two in One. Right ? I don't have a pet. Mine died like almost 20 years ago. Now I've been struggling to convince a feral stray cat to become an indoors one for the last 14 months to no avail. Thats ok cause Even So, All is Well ! 😉😸
@@GenerationX_GR absolutely! Having pets is a great way to relieve stress and increase activity. Did you see my video with Bunji the Blue Heeler? th-cam.com/video/kaoYDQLkNEA/w-d-xo.html
Was diagnosed at 59 years fitness as a fiddle before balance not great now can’t stand for long can’t walk that far use to play golf 3 times a week carried a full set of clubs around the course now nearly 67 hate ms
I don't know if it's harder on men in general, but last year was terrible for me. I had two relapses within 3 months (I was off meds) and it really wrecked me, it left my right hand completely numb and stiff, and left me with permanent neuropathic pain. It started with the usual weakness and numbness(for both relapses), and I had double vision for quite a while. The double vision and weakness went away after steroids . My hand has gone numb multiple times before and it always recovered, but not this time. I also feel that my balance is quite bad after the relapses. I've had MS since I was 16 (I'm 24 now) and it's never been this bad.
Both of my hands and feet were completely numb. But eating correctly has helped alot I have feelings back in my hands and feet with very little numbness and it gets less and less daily.
I am so sorry you are dealing with such troubling symptoms. Please try to take exquisite care of your health with diet, exercise, sleep & mindfulness. All of these may help to ease the symptoms.
@@EvenSoItIsWell Thanks for the kind words. I am trying my best it's just that sometimes things don't go the way I want them to, no matter how hard I try.
Yes, and I am sorry I use you as a unpaid advisor. Stretching has been my go to just so I remember the reps and the time that pass to stretch again my balance is my first goal.
Thanks for watching. I am honored that you find value in my videos! I have to admit, I don’t always stretch as much as I could. Let’s make a pact to do it more regularly, ok?
The audio sounds a bit less high quality than usual, for some reason - only by way of helpful feedback 🙂 Neuroplasticity 😊 And thank you for reminding about psychotherapy 👍
Thanks. Yes, I am sorry about the audio. I did not hook up my mic correctly. I did my best to correct it in editing but it is still a bit garbled and off. I will,do better next time! 😉
Thanks for watching. I do not have experience with heavy metal detoxification but would suggest Whole Foods instead of juicing as the fiber in foods is so important to a healthy gut. Focus on foods with lots of colors like berries and dark green leafy vegetables like kale, spinach, and Swiss chard. Also try to eat organic when you can.
As a guy that has to work to provide for my family and going through this, it's to late for me and what's funny is being told that MS is a woman's disease so get over it. I can barely walk now and can't hold anything in my left hand anymore. My arms and legs are numb and tingly all the time. But hey us guys don't matter so why even try right.
I am sorry you have had the experience that MS is just a woman’s disease and that guys don’t matter. You absolutely do matter!! Please keep,trying to take exquisite care of yourself to help manage your symptoms.
@@EvenSoItIsWell what's even worse is when my wife or should I say soon to be ex wife was diagnosed I stood by her side, but when it came to me she ran. Show's how much guys are worth right there. 😞
Are you a man with MS?
I am. Disability seemed to progress pretty fast diagnosed in 2016 now I'm in a wheelchair. But I have hope I've changed my diet and my symptoms are going away substantially. I'm pushing to get out of this wheelchair and I will!
@@nathanmorris9413 Hi Nathan. Thanks so much for watching. Good on you for making changes and I so glad you seeing improvements!
Yeap. Count me in as well.
Yes, btw.
I am. Diagnosed 03 at age 21. Got on DMT right away. (Rebif) stayed on Rebif till 2020. Now on Ocrevus. Doing great. Got a limp and right side 50% strength of left. Only use motorized chair when walking long distances (save energy) I contribute my lack of progress (that's a good thing) to getting on DMT ASAP after getting diagnosed. First time I heard men have it progress quicker. Thanks for the vid. Love your content
DX’d at 44 with PPMS with only some balance issues and a bum ankle. Started Ocrevus ( only drug approved in Canada ) almost immediately. Within 2 years I was using a cane. Now almost 4 years later I am using a walker more and am struggling at that. Doing all the things needed but feel the progression is moving quickly. Here’s to hoping it plateaus soon. Great video. Thanks.
Thanks for watching Jim. I hope it plateaus soon too! Keep taking exquisite care of yourself.
Diagnosed at age 58. Now age 69 and walking with a walker. I have PPMS.
Thanks for watching. I hope the progression is slow and you can continue to be mobile.
Ocrevus ® was the ONLY DMT offered in Toronto.Ocrevus exacerbated my MS so I stopped after the first 2 half-doses and later had HSCT in SEPTEMBER 2023 in Mexico. It is too soon to assess what effect HSCT had. I would say exercise has been by far the best treatment over pharmacological (point at 7:50 )
Thanks for sharing your story. I hope the HSCT halts it.
I had a neurostim unit. I tried for 2 year's to referral. To have removed for the MRI. He said " you're a 54 year old with the body of an 80 year old deal with it. I had been falling alot leg heavy, numb face. Fired him.
Got unit out and went to UCSF after 3 months of pt.
Tagged with ppms. Quite the adventure of learning new ways to live.
Be strong 💪
Thanks for watching. So sorry you had such a long road to diagnosis and so glad you decided to not take the advice of just dealing with the body of an 80 year old! 💪
Hi Vicky
Great video! Quite informative and insightful.
I am a 34 year old male. I got diagnosed with RRMS on October 2023. I was on methylprednisone on both relapses which sent me to the hospital. I started right away with Ocrevus and PT.
I am doing very well now as unlike most cases, I did not fell into depression but rather dealt with it in a stoic manner and had been determined and disciplined with my exercises and medications, eat a healthy diet 98% of the time, and occasionally use a cane when going out on the street, but I walk without a cane at home and in my flat complex.
I am very determined and I also have autism, so having something is not new for me.
Regards
Thanks so much for watching and sharing your story. I am glad you are doing well! Taking exquisite care of ourselves can be so helpful!
Discovered your videos not long ago, and really appreciate your info, no-nonsense delivery and pleasant demeanor. Love these, and really helpful.
Thanks so much!!
yes to inflam-aging video!
I'm 59, have had PPMS since somtime in my 50's though diagnosis was 2 years ago.
Inflammaging video comes out tomorrow!
Coming up on 4 years post-DX. Once I understood Swank diet and adding daily exercise to lifestyle, the flares went away. Sexual ED problems are the most depressing symptom
Thanks for watching. So glad the flares went away. That is great news. ED problems sometimes come with MS. Look up Dr. Boster’s advice on then”down there’s”.
I am a guy. Diagnosed late in life (51). 54 now. I have tried diet and lifestyle changes along with ocrevus and did well initially but then my ocrevus stopped working and my dr was on 11 months mat leave with poor coverage so i had flare after flare for 6 months and went from a 3 to a 6.5 on EDS scale. I have a lots of emotional stress with family issues and i have pain sometimes 9/10 pain so have a bad habit of feeding these issues with sugar and are having a hard time breaking the habit. Thank you for the report as sad as it was. I am on Kesimpta now lets hope it works and that i can get of sugar.
Thanks for watching Rob. I am sorry about the progression, that stinks. Try to focus on what you can control like diet and stress reduction. I hope,the Kesimpta can arrest the progression.
Yea brother - stress factors in big I'd say. PPMS here at 59. I have somewhat (maybe 80% mastered) being happy and reducing stress... I don't think my MS would have manifested if I had these life skills 15 years ago. Live and learn I guess... I'm happy with what I've got anyway, in spite of the fact that MS sucks!
Nice video as always and all but if i may, what is a Talking Therapy where you list several stress management techniques ? Is it psycho-analysis stuff ? Like shrinks 'n all that ?
Thanks for watching. Yes, talk therapy is talking with a therapist. I have been seeing mine since diagnosis. She helps me in all areas of life.
@@EvenSoItIsWellPleasure. Now look, you have talked about the importance of physical activity (Exercise) and another list with several stress relief techniques addressing the importance of stress management. Now if i'm not mistaken you have a playful dog always eager to venture out and about. So maybe, just maybe having a pet would be another way to be on both lists (exercise plus stress management) at the same time. Two in One. Right ? I don't have a pet. Mine died like almost 20 years ago. Now I've been struggling to convince a feral stray cat to become an indoors one for the last 14 months to no avail. Thats ok cause Even So, All is Well ! 😉😸
@@GenerationX_GR absolutely! Having pets is a great way to relieve stress and increase activity. Did you see my video with Bunji the Blue Heeler?
th-cam.com/video/kaoYDQLkNEA/w-d-xo.html
Was diagnosed at 59 years fitness as a fiddle before balance not great now can’t stand for long can’t walk that far use to play golf 3 times a week carried a full set of clubs around the course now nearly 67 hate ms
Thanks for watching David. It is definitely harder on the guys. Are you able to still golf with a cart?
@@EvenSoItIsWell no love i wish balance is not great wish you really need for golf
@davidgabbitas9288 bummer. I am sorry MS took that from you.
@@EvenSoItIsWell thank you you stay well
I don't know if it's harder on men in general, but last year was terrible for me. I had two relapses within 3 months (I was off meds) and it really wrecked me, it left my right hand completely numb and stiff, and left me with permanent neuropathic pain. It started with the usual weakness and numbness(for both relapses), and I had double vision for quite a while. The double vision and weakness went away after steroids . My hand has gone numb multiple times before and it always recovered, but not this time. I also feel that my balance is quite bad after the relapses. I've had MS since I was 16 (I'm 24 now) and it's never been this bad.
Both of my hands and feet were completely numb. But eating correctly has helped alot I have feelings back in my hands and feet with very little numbness and it gets less and less daily.
I am so sorry you are dealing with such troubling symptoms. Please try to take exquisite care of your health with diet, exercise, sleep & mindfulness. All of these may help to ease the symptoms.
@@EvenSoItIsWell Thanks for the kind words. I am trying my best it's just that sometimes things don't go the way I want them to, no matter how hard I try.
Yes, and I am sorry I use you as a unpaid advisor. Stretching has been my go to just so I remember the reps and the time that pass to stretch again my balance is my first goal.
Thanks for watching. I am honored that you find value in my videos! I have to admit, I don’t always stretch as much as I could. Let’s make a pact to do it more regularly, ok?
The audio sounds a bit less high quality than usual, for some reason - only by way of helpful feedback 🙂
Neuroplasticity 😊
And thank you for reminding about psychotherapy 👍
Thanks. Yes, I am sorry about the audio. I did not hook up my mic correctly. I did my best to correct it in editing but it is still a bit garbled and off. I will,do better next time! 😉
@@EvenSoItIsWell
Ah, I didn’t want to come across as critical but guessed you’d like to be told if you didn’t know 👍🙂🙏
I'll be your Huckleberry yes I have extremely bad at Ms confined to a chair
@@vancebatson thanks for watching. I am sorry your Ms is bad. Keep trying to take care of yourself!
@@EvenSoItIsWell I just do the best I can every day and that's all I can promise to do
@@vancebatson that is all we can do! Good on you.
Yes please to inflamaging video 👍🙂
Please
Ok!
🙂
Yes please
Here you go! th-cam.com/video/HOFR6FUVTOQ/w-d-xo.html
Madam lam from india lam having multiple sclerosis which all juices and food will help to detox heavy metal detoxity kindly give a replay
Thanks for watching. I do not have experience with heavy metal detoxification but would suggest Whole Foods instead of juicing as the fiber in foods is so important to a healthy gut. Focus on foods with lots of colors like berries and dark green leafy vegetables like kale, spinach, and Swiss chard.
Also try to eat organic when you can.
@@EvenSoItIsWell thank you madam🙏
Multiple sclerosis in men is actually called multiple sclerobro.
Ha! That is awesome. 😆
As a guy that has to work to provide for my family and going through this, it's to late for me and what's funny is being told that MS is a woman's disease so get over it. I can barely walk now and can't hold anything in my left hand anymore. My arms and legs are numb and tingly all the time. But hey us guys don't matter so why even try right.
I am sorry you have had the experience that MS is just a woman’s disease and that guys don’t matter. You absolutely do matter!! Please keep,trying to take exquisite care of yourself to help manage your symptoms.
@@EvenSoItIsWell what's even worse is when my wife or should I say soon to be ex wife was diagnosed I stood by her side, but when it came to me she ran. Show's how much guys are worth right there. 😞
@@Damien_D1977 oh, I am so sorry that happened.
@@EvenSoItIsWell it's alright I guess after 22 years I can do whatever I want now with what time I have left.
Could I get too much. Because I know I sleep
Too much sleep? Yes, if we are sleeping above average it might be worth a talk with your doctor.
@@EvenSoItIsWell ima make sure I bring it up on my next appointment👍🏾. I had to ask to see if I was the only one