My First Multiple Sclerosis Symptoms

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  • My First Multiple Sclerosis Symptoms
    I started to notice that something was wrong in October, 2012. This is a brief introduction to my experience with MS and the first symptoms that led to my diagnosis.
    If you are feeling generous please donate to my Patreon. It helps me to continue making these videos.
    www.patreon.com/MyJourneyWithMS
    For further information about Multiple Sclerosis please contact The MS Trust or the MS Society.
    www.mstrust.org.uk/
    www.mssociety.org.uk/
    This video could not have been made without the help of Martyn Greswolde at Fresh Mint Films.
    Thank you Martyn.
    For all of your Corporate Video and Commercial needs.
    freshmintfilms.co.uk

ความคิดเห็น • 660

  • @kB5TVP
    @kB5TVP 7 หลายเดือนก่อน +10

    Well, bless you hunny. My father was diagnosed when i was 6. Within a year he went to cane, to walker, to wheelchair 100% disabled. I became his caregiver at age 8. He passed away after suffering for YEAAAAARS when i was 24. 10 years ago this year. Its a terrible thing. So terrible... i need therapy to cope with the memories of my poor dad suffering... ❤❤❤❤❤❤

  • @mrbleak9873
    @mrbleak9873 ปีที่แล้ว +17

    I’m 39 and just got diagnosed. Late stage. I thought I was dying. It’s treatable.

  • @andreameeuwsen6060
    @andreameeuwsen6060 3 ปีที่แล้ว +140

    My dad has been living with MS since he was 45. He is currently 89. Keep up the faith! My dad did a special diet (low fat--The Swank Diet) and took Cod Liver Oil supplements and that is one of the reasons we think that he has done so well. Cheers!

    • @sarahplain6287
      @sarahplain6287 3 ปีที่แล้ว +9

      Special hug x
      My aunt had it for 5years, until she apply herbal remedy for her cure
      Indeed herbal medicine is the best

    • @mr.crighton9491
      @mr.crighton9491 3 ปีที่แล้ว +8

      Give it up for Dr. Swank. We live in Portland, and saw him within weeks of my wife's diagnosis 32 years ago. She's still getting around on her walker, and has good days/not so good days, but what a wonderful attitude she has. Attitude has been a major part in her approach to MS.

    • @andreameeuwsen6060
      @andreameeuwsen6060 3 ปีที่แล้ว +3

      @@mr.crighton9491 He was so dedicated! Weren't we all so lucky to have him in Portland! My dad passed away in Aug of 2020 at 89 (and almost a half)--he was a real trooper. Dad had a great attitude as well:)

    • @Ane127
      @Ane127 3 ปีที่แล้ว +3

      Yep, that’s right, diet reverses and heals MS. We can live normal lives as long as we stay on a diet. Also, naturopathic doctors cure people and are replacing the medical doctors. Naturopathic.org

    • @TheRenegadeStarr
      @TheRenegadeStarr 3 ปีที่แล้ว +4

      My mother has had it since her early 20s and has always had a shitty diet and she won’t even walk a block. I know both of those together just didn’t help her in the long run at all

  • @CheapCheerful
    @CheapCheerful 3 ปีที่แล้ว +76

    I hope you're doing OK now mate. You should update us, a comment, or short hello video.

  • @veronicasaran9417
    @veronicasaran9417 3 ปีที่แล้ว +61

    I’m 22 & I was diagnosed with multiple sclerosis back in June of 2017. I know every feeling & I know every pain. It’s difficult for me but I’m still getting use to things til this day. 🙏🏽🙏🏽

    • @directioner2870
      @directioner2870 3 ปีที่แล้ว

      Is it painful ? How ?

    • @yogeshkumar-up4bj
      @yogeshkumar-up4bj 3 ปีที่แล้ว

      @@directioner2870 inside the body

    • @psithurismique
      @psithurismique 3 ปีที่แล้ว +1

      Hello. How are you doing? And what were your early signs?

    • @raypurchase801
      @raypurchase801 3 ปีที่แล้ว +1

      @@psithurismique It's hard to know what's MS and what's a "normal" tingling or weakness.

    • @barraqaalim7459
      @barraqaalim7459 3 ปีที่แล้ว +1

      I will recommend you to use Dr Okolo herbal medicine formula which we use to improve my Dad from ALS.. is herbal medicine is based on Roots and herbs

  • @chy42079
    @chy42079 3 ปีที่แล้ว +23

    Balance and fatigue are my biggest issues. I was diagnosed in 2005. I went to my dentist because I felt tingling on the left side of my mouth. I thought it was a toothache of some kind. 15+ years later, the thing I miss the most is the feeling of dignity of being able to walk in a straight line without tripping and falling over myself in public

  • @donnamacfarlane8655
    @donnamacfarlane8655 ปีที่แล้ว +7

    I motivated myself by reading the Bible every day. I keep pushing myself to be strong and happy 😊

  • @margiemargiel7524
    @margiemargiel7524 7 ปีที่แล้ว +22

    Thank you, Paul, for sharing your story. I was recently diagnosed with MS. I was totally ignorant and attributed my symptoms with aging. I'm 64, and have noticed a big decline in my balance and cognitive capabilities over the past three years. Your videos have offered me hope. I understand this is a lifetime condition, but being able to communicate with others going thru this same journey, is quite therapeutic. Again, thank you so much!

    • @bensadeghipour2269
      @bensadeghipour2269 2 ปีที่แล้ว

      My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
      He can also cured
      Herpes virus
      Alzheimer's
      Cold
      Brain tumor
      Etc
      Or E-mail: nativehealthclinic@gmail.com
      th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
      ....

    • @cathyholcombe4674
      @cathyholcombe4674 9 หลายเดือนก่อน

      If you haven't done so, please have your Dr. order bloodwork to check your B12 level. A severe deficiency can mimick MS as well as dementia. Before being diagnosed, I had pins and needles sensation in my feet, my balance was terrible and my memory was getting really bad. Once I was diagnosed with a B12 deficiancy, I was started on 1ml cyanocobolimin injections once a month for the rest of my life. The symptoms improved greatly.

  • @markbrown5117
    @markbrown5117 5 ปีที่แล้ว +13

    Good luck to you sir and many blessings to you and your family.

  • @tomspurling4358
    @tomspurling4358 3 ปีที่แล้ว +223

    I was absolutely convinced I had this. I was absolutely wrong! To anyone watching this who, like myself, has a past history of health anxiety, get off the internet and stop googling symptoms! You honestly will NOT find the answers you’re looking for! The brain is unbelievably powerful and if you read a set of symptoms and you’re wound up enough, you will get them symptoms!

    • @ajsjdhsjsiw9w955
      @ajsjdhsjsiw9w955 3 ปีที่แล้ว +28

      I really needed to see this. I have terrible anxiety and after stumbling upon this stuff, I have been freaking out all day assuring myself I have this. I even have a test next week to get tested for MS. I need to get off the internet until then for sure.

    • @tomspurling4358
      @tomspurling4358 3 ปีที่แล้ว +14

      @@ajsjdhsjsiw9w955 You’ve not got MS. This will melt away when you find a new focus. Stuff that’s out of your comfort zone like work challenges or new hobbies will shift your focus and you’ll not think about MS for a minute or so, then an hour and so on. You’ll be fine. Just takes time, but until then. STAY OFF IF GOOGLE 😀

    • @ajsjdhsjsiw9w955
      @ajsjdhsjsiw9w955 3 ปีที่แล้ว +8

      @@tomspurling4358 already feeling better today. Health anxiety sucks, the mind really is powerful like you said

    • @mailtofirozahmed
      @mailtofirozahmed 2 ปีที่แล้ว +1

      hello sir , sir did you get symptoms even when you didnt feel anxious is that possible? ...

    • @tomspurling4358
      @tomspurling4358 2 ปีที่แล้ว +4

      @@mailtofirozahmed Anxiety is a subconscious state. I was always anxious. In fact I’d blame the symptoms for making me anxious but the reality was, I was making the symptoms. Even if I didn’t think about it, it would start.

  • @lollipopsland
    @lollipopsland 5 ปีที่แล้ว +10

    Thank you for making these videos. You're amazing, its just so great to hear first hand points of view and especially early symptoms

    • @kimdelrosario886
      @kimdelrosario886 3 ปีที่แล้ว

      Cheers for the Video clip! Forgive me for chiming in, I would appreciate your opinion. Have you researched - Dinanlinson Taking Peace Approach (should be on google have a look)? It is an awesome one off guide for overcoming your Multiple Sclerosis symptoms without the hard work. Ive heard some pretty good things about it and my close friend Aubrey at last got amazing results with it.

    • @bensadeghipour2269
      @bensadeghipour2269 2 ปีที่แล้ว

      My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
      He can also cured
      Herpes virus
      Alzheimer's
      Cold
      Brain tumor
      Etc
      Or E-mail: nativehealthclinic@gmail.com
      th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
      ....

  • @klaytonlacey2027
    @klaytonlacey2027 4 ปีที่แล้ว +4

    Thank you for your video. I have m.s as well it's good to learn about what I have been experiencing were symptoms that no one could find. And not me being crazy. I'm thankful that you are creating a community.

    • @sarahplain6287
      @sarahplain6287 3 ปีที่แล้ว

      Special hug x
      My aunt had it for 5years, until she apply herbal remedy for her cure
      Indeed herbal medicine is the best

  • @sineadtbc3338
    @sineadtbc3338 7 ปีที่แล้ว +17

    Good on you for sharing your story.

  • @RobinVerne
    @RobinVerne 5 ปีที่แล้ว +12

    My husband was diagnosed with MS in Feb. 1999. We went through traditional treatment for 10 yrs....The treatment made him very ill, flu like symptoms...then he decided to try cannabis oil....ingested daily for 30 days....no visual issues, no mobility issues, no lesion increases on MRI, his cognitive deficits have decreased since 2009, no pain or muscle shortening or atrophy....this has helped him tremendously....I thank God every day for pointing him in the cannabis oil...I don't know why or how it helped him...I don't know if it will help you....for him it was his last option.

  • @monsteramn88
    @monsteramn88 3 ปีที่แล้ว +2

    Best of luck, friend. Hope you find peace in life with haste

  • @victoriakanouse8794
    @victoriakanouse8794 4 ปีที่แล้ว +7

    I know it for a year and the doctors have been ignoring me. Thank you 🙏 much love to you and stay safe ❣️

    • @Eloise_Please
      @Eloise_Please 3 ปีที่แล้ว +1

      It's so awful! Hope you've managed to get diagnosis or at least some help by now but I know how ridiculous they can be. Took me 8 years of trying really hard to get diagnosed for one of my major conditions because they said I was too young (which was incorrect) and always having to do the work for the doctors to this day. I honestly don't get it. Spoonie solidarity 🥄❤

  • @n.r.s5534
    @n.r.s5534 7 ปีที่แล้ว +114

    you are a great brave man I suffer from ulcerative colitis it's an autoimmune disorder illness
    may God heal and help you

    • @alabamatrixie7379
      @alabamatrixie7379 7 ปีที่แล้ว +3

      Noora Salti God bless you 💕

    • @n.r.s5534
      @n.r.s5534 7 ปีที่แล้ว +1

      🌹🌹🌹 you too darling

    • @ashleynicole8041
      @ashleynicole8041 7 ปีที่แล้ว

      Noora Salti what is that?

    • @lowerf0_rtyei8ht92
      @lowerf0_rtyei8ht92 6 ปีที่แล้ว +1

      Ashley Nicole Google it.

    • @lovesilk1
      @lovesilk1 6 ปีที่แล้ว +1

      Noora Salti, please look into CBD oil to treat and cure colitis/chrones. Research it and see for yourself. People are curing lifelong Chrones and colitis with CBD oil.

  • @keely9750
    @keely9750 4 ปีที่แล้ว +12

    What a cliffhanger!! Paul please tell me, how are you now? I need to know if you are OK. Thank you for these videos x

  • @MickeyDs14
    @MickeyDs14 6 ปีที่แล้ว +6

    I was diagnosed with double vision at 8 years old, then when I was around 15/16 I had a random episode where my feet felt like I was walking on pins and needles. It was so bad I had to go to the ER and the doctors couldn’t explain why it happened, either. Over the years, I would also have abnormal menstrual cycles that caused the joints in my fingers to lock leaving me unable to bend my fingers. Over the last few months I’ve had tremors in my legs, face, and fingers. Along with tingling sensations in my hands, legs, and arms. I suddenly also have had urinary leakage and it always feels like I’m going to pee on myself. Not to mention losing balance after standing in a single spot for a minute or two and even slight slurring of some words. The latest thing is stiffness in my right thumb. I keep feeling like I’m a hypochondriac, but after reading comments I’m glad to see I’m not alone. Hopefully I will be able to have some answers soon. Thank you for this!

    • @Iamharryparker
      @Iamharryparker 11 วันที่ผ่านมา

      Hi Mickey, do you get any answers to this in the end? I've had some similar symptoms. Hope everything's okay.

  • @akishaparker7976
    @akishaparker7976 3 ปีที่แล้ว +28

    I was diagnosed yesterday with MS, I had never even heard of it prior to that. Knowing the symptoms made of lot of things make sense, but now I'm scared because I don't know how bad and when/if it will get worse.

    • @sheenashearer129
      @sheenashearer129 3 ปีที่แล้ว +9

      I hope you are feeling alright and coping well. I am almost convinced that's what is wrong with me, but no diagnosis yet. I have an MRI soon, and appt with neurologist. I started with numbness & till in my toes, then my legs (both), the progressively went about my whole body. I've went to the dr for numerous tests & appts. They kept saying it was my lower back, 2 MRI's just showed a small bulging disks. Then I experienced the crushing, squeezing in my stomach/chest. Went to the er, followed up with a cardiologist. They diagnosed it as stress. I have days when I can't hardly walk, coordination is off, extremely fatigued I'm usually a VERY active person. I drop things all day and stumble around. My face, legs, abdomen, and mist of my body stays numb and tingly most of the time, for 8 months now. I've seem a hematologist, chiropractor, family physician, cardiologist, with still no answers. I finially went to my family Dr last week with a List of my symptoms, and demanded some real help or answers. MS terrifies me... BUT not knowing what is happening to me is even more scarier. 😕

    • @raypurchase801
      @raypurchase801 3 ปีที่แล้ว +4

      I'm waiting to see my GP. Nobody answered the phone. I went to the surgery (big place). Spoke through the intercom. They'll give me a phone-back after eleven days. That was a week ago. At this rate I might actually see a GP later this year and go on a waiting list.
      And we're supposed to clap for the NHS.

    • @EE-ie9gm
      @EE-ie9gm 3 ปีที่แล้ว +2

      How u hey diagnosed

    • @Eloise_Please
      @Eloise_Please 3 ปีที่แล้ว +5

      I have multiple progressive chronic illnesses including neurological ones with symptoms very similar to MS. It is hard not knowing. I'm 24 and have become more and more disabled since I was 14, and doctors haven't been able to help much, but I'm always finding ways to adapt. Know that it's totally okay to get sad and/or angry sometimes and you don't always have to "stay positive!" Know that you're not alone and the chronic illness community online is very supportive (I've got many wonderful in-person friends who I initially bonded with over chronic illness/disability stuff too). It's not easy and I respect that. We are much stronger than we often realise. I'm not giving advice since you didn't ask, but just want to offer reassurance and solidarity🥄❤

    • @sheenashearer129
      @sheenashearer129 3 ปีที่แล้ว +2

      @@Eloise_Please Thank you so much! I wish you the best as well! So sorry!

  • @bf774
    @bf774 6 ปีที่แล้ว +8

    Thank you so much for sharing your story! I'm an infusion nurse and I help treat MS patients regularly, but am looking for a much better understanding of the condition and most definitely the patient perspective. Definitely subscribing! :)

    • @Ane127
      @Ane127 4 ปีที่แล้ว

      Bambi Fegley It’s just diet. MS is a lipid metabolism disorder. Look up diets by Roy Swank, George Jelinek, and Terry Wahls.

  • @zan1158
    @zan1158 7 ปีที่แล้ว +27

    Very conversational and informative. Thank you for sharing.

    • @bensadeghipour2269
      @bensadeghipour2269 2 ปีที่แล้ว

      My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
      He can also cured
      Herpes virus
      Alzheimer's
      Cold
      Brain tumor
      Etc
      Or E-mail: nativehealthclinic@gmail.com
      th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
      ....

  • @ovelesha
    @ovelesha 5 ปีที่แล้ว +13

    Wow what a fantastic GP you have👍I started to feel off in summer 2016 with aches and pains in my feet, legs, hands, arms, shoulders, up the back of my neck running upto the crown of my head and very fatigued. I battled through until October 2016 and wen't to my GP but got nothing but fob off's and i think i must have visited 6 times throughout Oct and November but just got fobbed off time and time again. On boxing day 2016 i had my 1st dizzy spell. In January 2017 all my symptoms got much, much worse and all through March, April, May and June 2017 i had severe pains in my legs and the dizziness and off balance was also getting more and more intense. I had to stop working and all throughout those months from March i was going to my GP atleast every other week but got fobbed off. At the end of July all my symptoms were constant and also my dizziness/unbalance was non stop plus my arms were totally dead and lots of muscle twitching. August my feet wen't dead, my face was tingling and wen't dead, so off balance i couldn't stand up so my Partner phoned an ambulance they took me straight to A&E as they thought i'd had a stroke. I spent all evening in A&E and discharged at 6am being told it could be a vascular problem and my GP would be told to do an urgent referral to see a vascular consultant. It took my GP 2 weeks to do this and when he did he did a choose and book non urgent referral with the 1st available appt mid December which was nearly 4 months. I had to fight and push and finally got my vascular appt after 10 weeks, how can that be urgent?! I had some tests befor i met the vascular consultant and it was all normal so i was told by the vascular consultant to tell my GP to do a neurology refferal. When i spoke to my GP and told him he said shall i do an ENT refferal because of your dizziness and off balance and i said NO do the neurology appt as the vascular consultant said so my GP was still ignoring my aches, pains and all my other symptoms. The referral was done at the end of Oct and i waited for 30+ weeks and during my wait i spoke to my GP 19 times begging for help. In the end i even had to complain and my a nuisance of myself or it was going to be 38 weeks. The neurologist was a very blasay and got much of what i told him wrong from what i told him on the letter i got after the consultation. He ordered an MRI of my head and neck which i had 2 weeks later and got the results yesterday which was 5 weeks after the scan and to add insult to injury it was dated 2 weeks ago.
    Anyway they have found something on my brain which was all written in medical jargon and looking it up it's consistent with MS and the letter states i will be seen again but no indication of when or anything.
    Thanks for the video and i will be watching your others👍👍

    • @kimberlyagee7338
      @kimberlyagee7338 5 ปีที่แล้ว

      Hi.How are u doing?Did you get an answer about your mri?

    • @traceytansley1659
      @traceytansley1659 12 วันที่ผ่านมา

      Horrible GP! Allowing you to suffer so long!

  • @th4305
    @th4305 3 ปีที่แล้ว +10

    I was the same way in that I kinda ignored symptoms, especially since they went away and never came back after about a week. Just left me saying, "well, that was weird". I wish I would've taken it more seriously as well. But I guess I never imagined it could've been anything like MS

  • @SeventhSamurai72
    @SeventhSamurai72 5 ปีที่แล้ว +5

    Thank you, this video was helpful to me.

  • @missdoglover1644
    @missdoglover1644 7 ปีที่แล้ว +36

    As you say, the symptoms are so subtle to begin with. I thought it was in my head and took a massive relapse for me to realise something was very wrong. Symptoms since 2010, diagnosed in 2012 when I woke up one morning numb from the waist down. No major relapses like that since (now in 2017) and under control with daily Copaxone injections. It's a bumpy ride though. Love to anyone going through this.

    • @ashleysmith6574
      @ashleysmith6574 3 ปีที่แล้ว +1

      Were you able to reverse the numbness from the waist down? My dad has the same symptoms and was just diagnosed with MS. He just started his first round of infusions and nothing has changed so hoping we still have some hope for him. He will be starting copaxone injections soon as well. Any input would be soo much appreciated!

    • @missdoglover1644
      @missdoglover1644 3 ปีที่แล้ว +1

      Ashley Smith yes the symptoms reversed but it was a very gradual process over a few months.

    • @ashleysmith6574
      @ashleysmith6574 3 ปีที่แล้ว +2

      Miss Dog Lover oh good, thank you! I am hoping and praying this happens for my dad too. I hope you are still doing well now! Best of wishes to you!

    • @missdoglover1644
      @missdoglover1644 3 ปีที่แล้ว +2

      Ashley Smith wishing your Dad all the best.

    • @ashleysmith6574
      @ashleysmith6574 3 ปีที่แล้ว

      Miss Dog Lover thank you! ❤️

  • @rockykoast7065
    @rockykoast7065 4 ปีที่แล้ว +3

    Hope you're still coping.Good GP!

  • @stemcelltreatment
    @stemcelltreatment 6 ปีที่แล้ว +1

    Hi Martyn thanks for sharing your story with us. This video was published a while back. Any updates?

  • @ruthrobel3498
    @ruthrobel3498 7 ปีที่แล้ว +1

    Big hugs Brother Paul😘

  • @Takano102
    @Takano102 6 ปีที่แล้ว +52

    Love the Twin Peaks shirt dude

    • @Dr1MaR
      @Dr1MaR 3 ปีที่แล้ว

      damn fine shirt!

    • @novaknovakovic1585
      @novaknovakovic1585 3 ปีที่แล้ว

      Kudos for the Video clip! Apologies for chiming in, I would appreciate your thoughts. Have you thought about - Seyrooklyn Salient Supremacy (search on google)? It is an awesome exclusive product for overcoming the symptoms of multiple sclerosis without the hard work. Ive heard some unbelievable things about it and my buddy after many years got astronomical success with it.

  • @YNergy
    @YNergy 5 ปีที่แล้ว +2

    Thank you for putting this video up!

  • @angelasmith7891
    @angelasmith7891 7 ปีที่แล้ว +6

    Hi Paul! I have more or less the same symptoms as you and only now understand that it's 99.9% definitely ms and that I've had it for many years without realising!The problem is, the doctors I've been to don't take me seriously at all and I've run out of energy to fight with them anymore. I simply can't understand their attitude, I had one basic mri that didn't show any thing so now they just say that there's nothing wrong with me. After I recently saw my main GP and told him I had no balance now at all he suggested I go to dance classes to "cheer " myself up !!Please can you put me in touch with your GP, I don't care how far I have to travel I desperately need help while I still have enough function and motivation to be able to do so. Thank you for your honest videos, I hope you are still doing well!

    • @vanessabaker6448
      @vanessabaker6448 6 ปีที่แล้ว +1

      Vanessa Smith I was told the exact thing. 99.9, failed 2 tests but passed spinal tap. Then told I was too old to have it even though I had symptoms 20 years ago. Got lesions on brain but dr thinks I'm crazy. Tired of trying to get a diagnosis anymore.

    • @amanwithmorals3278
      @amanwithmorals3278 หลายเดือนก่อน

      How are you now?

  • @thegreendank1
    @thegreendank1 5 ปีที่แล้ว +1

    I had the optic neuritis but he didn't find any lesions but I'm pretty sure I have it anyway because of the eye issue and I have all the other syptoms that go with it. I need to go back in for an MRI because I blew off the last year of scans due to work and lack of time but I really need to go get checked again. Good luck buddy and heres to many happy and healthy years to all of us affected by ms

  • @lynnholman2227
    @lynnholman2227 7 ปีที่แล้ว +2

    Aloha Paul, Thanks so much for your postings. I have watched up thru your " More MS Symptoms". Your information is all so helpful. I am not yet diagnosed with MS but after doing some research think it is a possibility. I am waiting to get an appointment with a neurologist. My symptoms are very similar to what you have experienced. The symptoms that made me concerned started with the tingling in the right toe to complete foot, then started traveling up my lower leg with tingling varying in intensity sometimes to the point of pain. It now has traveled up my thigh to my groin. I also have areas that are cold at times but my right foot is always cold (it usually isn't cold to the touch but feels cold). This has happened in the past 2 months. I have had 3 episodes in the past week 2 1/2 weeks. As you were discussing as I look back I wonder if thing in the past couple years were also precursors. Up until this past year I would consider I was a healthy person walking 2-6 miles a day and lots of snorkeling. Just yesterday I had an experience like you described when running for the train. Your description of the weakness, fatigue etc was spot on how I felt trying to walk back to car. That was the point when I decided I couldn't go back to work that day. I have a few questions if you get a chance to respond I would love to get your perspective.
    Have you had any difficulty with your eyes? I don't have any symptoms in my eyes.
    Are you able to drive?
    Are you to the point where you can walk ok most days?
    Are you able to work now?
    I live in Hawaii and am having trouble getting a neurologist appointment. Only one on our island and can't get in till May. If Oahu doesn't have appointment soon considering flying to mainland US. How critical do you think it is to get in soon? I am thinking a month or less is reasonable.
    My best wishes to you. I hope you keep posting, the info provided has been the most helpful information I have found.
    Lynn

    • @springfield-videos
      @springfield-videos 5 ปีที่แล้ว

      How are you now? Are you diagnosed with ms? What tests have you been going through?

  • @pinky5097
    @pinky5097 3 ปีที่แล้ว

    Thanks for sharing your video.

  • @williamfouques8238
    @williamfouques8238 4 ปีที่แล้ว

    Thank you for making these videos, I was diagnosed in 2018 and had all the minor problems you have mentioned. I ended up having a massive seizure and spending a few weeks in hospital. Still had to wait another year and a half to get diagnosed. I hope your well my man.

    • @iam1ronmom967
      @iam1ronmom967 3 ปีที่แล้ว

      I’m having what seem like semi conscious seizures for hours at a time now. I seem to be the only person who finds this disturbing. Did yours get worse?

  • @candy4428
    @candy4428 6 ปีที่แล้ว +1

    I can say you are doing really good so far considering you have MS :) I dont want to bring the vibe down but my mom died of MS and my aunte has MS and I just went in for a MRI without contrast but now I need contrast because of my cancer and chemotherapy and radiation treatments they see white matter in my brain which could be from chemotherapy or lupus or MS . My mother went completely blind at 29 and died at 34 but in today we some treatment to live better lives unlike 20 years ago :)

  • @rosieb5265
    @rosieb5265 4 ปีที่แล้ว +7

    Thanks for this calm and reassuring video. I was diagnosed yesterday. I hope you’re okay x

    • @JeffWrestledABearOnce
      @JeffWrestledABearOnce 4 ปีที่แล้ว

      Just randomly passing through cause I'm experiencing burning and numbing sensations that move around.
      Have you been feeling well? How are you doing?

    • @sarahplain6287
      @sarahplain6287 3 ปีที่แล้ว

      Special hug x
      My aunt had it for 5years, until she apply herbal remedy for her cure
      Indeed herbal medicine is the best

    • @Iamharryparker
      @Iamharryparker 11 วันที่ผ่านมา

      ​@@sarahplain6287what kind of things specifically?

  • @ginettedimanche9173
    @ginettedimanche9173 4 ปีที่แล้ว +3

    Thank you for sharing your story, I'm just studying for my Nclex in a few days ahead.

  • @southpawprincess7362
    @southpawprincess7362 5 ปีที่แล้ว +1

    Good luck 💕

  • @spandanpate
    @spandanpate 3 ปีที่แล้ว +1

    I feel you are a seriously an Inspiration you mister are working really hard and to remember. Make edit put out videos prepare for videos reminising your bad phase of life so others benifit. That's a lot you do not for urself for world to know I subscribed you deserve views ads and GBU.

  • @adminamzn4282
    @adminamzn4282 7 ปีที่แล้ว +6

    Wow what an eye opener, I am so sorry this guy is going through this, one of those things you just deal through it best you can.
    I have a question up here for anyone who could answer it I'd be very thankful.
    So here is the thing: I have been having recurring ER Visits as far back as 2010. I can best describe it as AN ARRAY OF SYMPTOMS THAT MAKE ME FEEL VERY ILL AND THEN I END UP IN THE EMERGENCY ROOM, out of all the symptoms I have I would have to say that the most alarming to me is:
    1)- Inability to (or sensation that) I cant breathe properly or labored breathing, similar to Hypoxia
    2)- Blurry Vision.
    3)- Loss of sensation along with tingles in whole leg also arms and sometimes face and head as well.
    4)- Mental Fog or confusion. I feel very "slowed down" and confused.
    **************************** So these are the most concerning to me out of all my symptoms *******************************
    The rest of these symptoms include:
    5)- Clumsiness, I may keep dropping my phone or keys and such.
    6)- Anxiety, because this shit is very scary to me while it occurs and every time it does it feels as though I may die literally.
    7)- Frequent urination.
    8)- Sensation of having to go do a "#2" in the restroom but then suddenly not being able to.
    9)- Hot and cold sensations very unstable and usually in my hands and feet.
    10)- Shivering or shaking.
    11)- Tremors or twitches, spasms in my neck, jaw, hands.
    ***************************** So this is what I have been dealing with AND IGNORING MOSTLY WHEN IT HAPPENS for a pretty long time I would agree, and the worse thing is everyone seems to immediately say "Its Just Anxiety". I myself am not ruling out anything ! however I must say that I have had numerous Emergency room visits and the Staff there have not even suggested an exam to determine MS or not and as of lately very recently my symptoms seem to have got worse very rapidly, I wake up with numbness and tingling and dizziness. Can anyone drop a suggestion or enlighten me here ? (No one in my family I know of has had MS)
    Thank you to the people of YTube here =D and I wish everyone great health and success I HOPE AND WISH FOR NO ONE to undergo this kind of disease it is a very scary proposition to think that you may have or have MS and the people who do have them seem to be real fighters !!! Thanks everyone now.

    • @Marleysmom
      @Marleysmom 6 ปีที่แล้ว

      Admin Amzn I have RA which is also autoimmune. I constantly have the bladder issue. Autoimmune issues are horrible. 90 percent of out immune system is in our gut. Its very important to eat many greens, fruits and veggies to help combat inflammation which is a huge issue for autoimmune problems.

    • @juliewake4585
      @juliewake4585 5 ปีที่แล้ว

      Admin Amzn a lot of this looks very familiar. Keep going until you see a neurologist.

    • @Skybluewindcool
      @Skybluewindcool 2 ปีที่แล้ว

      Dear, How are you now ?

  • @lugaiyabidin8727
    @lugaiyabidin8727 4 ปีที่แล้ว +8

    you are a brave man .with so much respect here..May Allah give you more self motivation to keep fighting and be strong and an inspiration to others..salute to you sir🙏🙏🙏🙏

  • @sarahcleary6951
    @sarahcleary6951 7 ปีที่แล้ว +8

    Thank you for this, it feels like you're describing my last few months in such a weirdly specific way, its really nice to hear this.
    I wish you best of luck through the rest of your many years!

  • @kody0
    @kody0 6 ปีที่แล้ว +2

    Much respect.

  • @mikeboggs1479
    @mikeboggs1479 3 ปีที่แล้ว +4

    This is a lot of what I'm dealing with at the moment. I originally went to my PCP to talk about my vertigo but through MRI testing they found a lesion on my spine. I can actually feel the pins and needles in my feet as I type!

  • @gymnast2890
    @gymnast2890 5 ปีที่แล้ว +9

    Every person is different. My X was misdiagnosed with optic neuritius 3x and then with a lesion INSIDE his spinal cord....but that's US medicine for you!

  • @lauraironstalksms
    @lauraironstalksms 4 ปีที่แล้ว

    I have really bad fatigue and lassitude with extremely bad vertigo. Thanks for your video, I'm also sharing my story with my MS

    • @sarahplain6287
      @sarahplain6287 3 ปีที่แล้ว +1

      Special hug x
      My aunt had it for 5years, until she apply herbal remedy for her cure
      Indeed herbal medicine is the best

    • @lauraironstalksms
      @lauraironstalksms 3 ปีที่แล้ว

      @@sarahplain6287 Thank you Sarah ❤️

  • @sherylengle3628
    @sherylengle3628 3 ปีที่แล้ว +2

    Iim 47 today and was diagnosed in late September early October of last year with MS so I’m still trying to relearn my body and how it now wants to function. Symptoms hit me all at once. Went to bed just fine and woke up not so fine. Any additional information about MS would greatly be appreciated. My dr to this day blows me off so I’m currently seeking another Dr.

    • @missp8373
      @missp8373 2 ปีที่แล้ว

      Dont know if this will help but in countries close to equator hardly any ms but in northern ones like scandinavia it is highest rate. There has been some talk about vit D as without enough we do not get to REM stage of sleep and that is when the body heals itself somithing to do with growth hormone. So it might be worth taking this vitamin. Also antioxidents help especially the purple coloured ones like blackcurrents etc. as they help reduce inflamation. Also worth mentioning turmeric and corriander too.

  • @candywandy5591
    @candywandy5591 7 ปีที่แล้ว +1

    Starting and finishing projects is a complete nightmare it really gets me down, I feel like I have to pluck up the courage in a sense to even start a new task. At the moment my ex husband has left me in loads of debt so for the past 8 weeks it's in my to do list to sort out all my bills out etc.... but I haven't done it yet.

  • @suju_svt_skz_gidle_snsd
    @suju_svt_skz_gidle_snsd ปีที่แล้ว +1

    I'm 25 and I've been diagnosed with multiple sclerosis after being in the hospital for 2 weeks. I'd developed the syndrome two years ago but just ignored it because I thought it was a normal thing. But suddenly my left side went numb from head to toe, and I couldn't walk normally. My leg just feels weak, and that's when I start thinking of going to the clinic. From the clinic, I was referred to the hospital, where I did a MRI brain scan and later proceeded to do a lumbar puncture to find the problem. At the end, I was told that I have multiple sclerosis and am now on steroids.

    • @user-nv6zf8du7r
      @user-nv6zf8du7r 11 หลายเดือนก่อน +1

      Did you find out through the MRI or Lumbar puncture or both??

  • @_IVXX
    @_IVXX 3 ปีที่แล้ว

    I actually came across this while sitting in the hospital. Been here for the past few days running many tests and scams, right now all the signs are pointing to Ms but I'm still waiting on the results of a lumbar puncture as well as my last few lab test. And all honesty I kind of ignored the signs until function of my right arm started to go, and I realized I was no longer able to take my car out of park without using all the strength of my left hand.

  • @johnnyguitar7921
    @johnnyguitar7921 2 ปีที่แล้ว +1

    my Journey with MicroSoft,,, thanks for the video, i have a lot of the symptoms, been feeling liek this for the last 10 years, of course it didnt start as bad but now its horrible,,, very hard to commit to things/persons/myself,,, im not diagnosed yet,,, im getting an appointment with a neurologists for next week cheers

  • @angiekereakes6551
    @angiekereakes6551 ปีที่แล้ว +1

    God bless and keep you

  • @stevenlee7992
    @stevenlee7992 ปีที่แล้ว +2

    I thought MS until I was diagnosed with chronic fatigue syndrome, a lot of the symptoms overlap with similar autoimmune diseases.

  • @ravenfeathesDVM
    @ravenfeathesDVM 5 ปีที่แล้ว +1

    I'm going to my dr this Thursday for testing, I've been off balance and had tingling/ electric shocks in my legs for a few months. I rarely drop things, but have been now also, so I thought it best that I go in to get tested. Thank you for your info. I hope the best for you.

    • @sparth1989
      @sparth1989 5 ปีที่แล้ว

      OZZY LVR what was ur diagnosis?

    • @JahoSelamaj
      @JahoSelamaj 9 หลายเดือนก่อน

      What did you have?

  • @oneconciousness2248
    @oneconciousness2248 7 ปีที่แล้ว

    Thank you for sharing your story. It's good to hear the experiences of other ppl with the condition. I had the tingling thing early on down one whole Leg and foot. It was sooo annoying!! I hope ur in a period of remission and feeling well. 😊

  • @JacquelineZMusic
    @JacquelineZMusic 6 ปีที่แล้ว +12

    Can you please describe the pains in your leg you'd feel early on?

  • @aSChubbz
    @aSChubbz 6 ปีที่แล้ว +2

    I was diagnosed In 2010 at the age of 16 i am now 24 I’m 8 years in. I don’t get all of those other things. I still have energy and no brain fog. Just have to stay focused. Also going to try lemtrada. Head up, you’ll get through this.

    • @aSChubbz
      @aSChubbz 6 ปีที่แล้ว

      Oh and the first symptoms for me was bells pausy....

  • @asweetlove91
    @asweetlove91 6 ปีที่แล้ว +2

    a couple months ago i went to the emergency room because ive been have like tingly sensationson the left side of my face and i had a mri done and it came back that i had several brain lesions and the doctor said it look like MS. so now im seeing a neuroligist and i go and a have a lumbar puncture done next wednesday and to see exactly whats going on. my speech slurs and when im doing something with my right hand i mess up.

  • @GSmithkayakangling
    @GSmithkayakangling 7 ปีที่แล้ว +11

    Well done you. Good video.

    • @myjourneywithms8903
      @myjourneywithms8903  7 ปีที่แล้ว

      Thank you. I'm happy that you can tolerate my annoying cartoon character voice!

    • @khinhtoo8349
      @khinhtoo8349 7 ปีที่แล้ว

      My Journey with MS

  • @stephanieb7311
    @stephanieb7311 6 ปีที่แล้ว +3

    Hello I'm so sry for you having to deal with ms. I'm currently being tested with mri and am scared. I already have small fiber neuropathy which can be a horrible condition to live with anyways I was wondering if you've had any bladder issues? Like not feeling as if your bladder is ever empty. Always a lot of pressure even after I empty. I certainly understand if you don't want to answer Thank you for your video.

  • @mswarriorandautoimmunepodcast
    @mswarriorandautoimmunepodcast 5 ปีที่แล้ว

    Very similar to my story, I was diagnosed in 2014 but my early symptoms date back as far as 2002 in much the same way you describe, only now are they taking it seriously with DMT etc, probably because I was still actively training with combat sports etc. I haven't been on any medication previously btw but this will change this year
    Thanks for sharing your video

    • @Ane127
      @Ane127 4 ปีที่แล้ว

      Lee Barber It’s just diet. MS is a lipid metabolism disorder. Look up diets by Roy Swank, George Jelinek, and Terry Wahls.

  • @juliewake4585
    @juliewake4585 5 ปีที่แล้ว +1

    Thanks for this. I was diagnosed in June 2018 but have probably had it for years. In retrospect I can remember problems as far back as 2010 or even earlier. I have been tripping and losing balance for some time but thought it was maybe something to do with a weird recovery from breaking my leg way back in 2006.
    I have started to follow the OMS programme (overcoming MS) started by Professor George Jelinek - look it up: it may be just what we all need. It’s early days for me but even now it feels like things are starting to improve.

    • @Ane127
      @Ane127 4 ปีที่แล้ว +1

      Julie Wake Good for you. That’s my diet as well. Diet is the only way to reverse and heal MS. I wish the medical system would tell people instead of letting them suffer and die.

    • @juliewake4585
      @juliewake4585 4 ปีที่แล้ว

      Ane127 it’s incredible that the medical profession don’t jump on this. I attended a meeting for MS sufferers this morning and I was shocked that they had never heard of OMS. It may be too soon but I’m hoping for great things.

    • @Ane127
      @Ane127 4 ปีที่แล้ว +1

      Julie Wake We have always had cures, but the allopathic doctors/MDs are trained to sell drugs. In other words, MDs manage our diseases using pharmaceuticals as opposed to curing us. The pharmaceutical industry hijacked the medical system over 100 years ago and has been suppressing cures ever since. Natural cures cannot be patented, which means the pharmaceutical industry cannot profit off of them. Conventional medical system is just a business. The conventional medical system is not going to jump on this because they will go out of business, which is what is happening anyway.
      Also, keep in mind that societies such as the MS Society are just front organizations for the pharmaceutical industry. They also help to suppress the cures.
      Long story short: The conventional medical system is a fraud. Go outside of the system to the complementary and alternative “quackery” for which there is allegedly “no evidence” in order to be cured.

    • @hrvojebozanovic
      @hrvojebozanovic ปีที่แล้ว

      @@juliewake4585 hello how are you now?

  • @clarkewi
    @clarkewi 3 ปีที่แล้ว

    Thank you.

  • @thesupermom1975
    @thesupermom1975 4 ปีที่แล้ว

    Just read from a person in one of my social media groups that they put their MS into remission with a strict keto diet. My husband's & son's IBS has been completely alleviated with keto. My other son's mild Aspberger's becomes completely unnoticeable while on keto. My severe GERD goes completely away while on keto.

  • @darkmoon6829
    @darkmoon6829 6 ปีที่แล้ว +1

    hi really great to see your video . I'm in present waiting for results on a brain mri snd neck. I have had tingling in my leg for about 10 years which over the last year has got worse and now pain. I also have slight tingling in my right foot . but it's not as bad. my balance is slightly affected. but nothing major. I also have had restless legs got years aswell so I just put it down to that. burning sensations sporadically all over my body that started in my scalp
    and ..I've been told I have fibro. but not for definite. I havnt been took very seriously at all as I kn.ow there is something going on .
    your symptoms are very similar to what I have in my leg . I hope I find out soon what is wrong!
    I have subcribed to your channel aswell

  • @aurktman1106
    @aurktman1106 2 ปีที่แล้ว +3

    I'm planning on getting tested soon. I have so many of these symptoms and they have all been treated independently, not as a common cause. The "constant voltage" feeling through the body, I have horrible Restless Leg Synd. at night and its starting to creep into normal daytime, and many of the other symptoms described here. I just hope my Doc takes it serious and will send me for tests.

    • @visi7891
      @visi7891 ปีที่แล้ว

      update?

    • @aurktman1106
      @aurktman1106 ปีที่แล้ว +1

      @@visi7891 yes, big update that I forgot to post. My family doc said it sounded like MS but wanted to send me to a neurologist for evaluation. Did that and he ordered an MRI. Neurologist was very doubtful about MS and he was correct! Turns out my disc between C3 and C4 in my neck was completely blown out and was bruising and pinching off my spinal column. I was scheduled quickly for fusion surgery and had it fused. It’s a massive difference! The leg problems didn’t go away, but from another MRI discovered my L3/4 are bad as the vertebrae are out of place and have been for probably 30 years. That surgery I’m waiting of for a while, don’t really need it yet. I strongly encourage all with the MS symptoms to see the neurologist about the possibility of bad discs in the cervical region of the spine.

  • @Harry-mm1sj
    @Harry-mm1sj 6 ปีที่แล้ว +5

    I had a brain tumour in 2014 and 2012, as it was on the right side it caused a shake on the left side of my body (mainly hand) and it has really affected me still all these years later. I know I do not have ms but I feel it is similar. I’ve also tried multiple medications and none have had any affect on me, I just hope it will eventually get better so I can live my life to it’s full potential and not have something stopping me from doing certain things

    • @mhcollectors13
      @mhcollectors13 5 หลายเดือนก่อน

      Update? I hope you are well.

  • @estherortiz7411
    @estherortiz7411 3 ปีที่แล้ว +1

    Thank you for sharing! I have MS and I have my mother living with me, but she does not understand. It is lonely.

    • @seemagayadin5199
      @seemagayadin5199 3 ปีที่แล้ว

      Esther Ortiz, this is a new day God given us. Take care. I send you blessings.

  • @quietcorner293
    @quietcorner293 5 ปีที่แล้ว +6

    I'm with you man! I've had it since 2009. I'm 10 years late on starting my vlog.

    • @Ane127
      @Ane127 4 ปีที่แล้ว

      Quiet Corner It’s just diet. Look up Roy Swank, George Jelinek, and Terry Wahls. Big Pharma suppresses natural cures.

    • @jameswilliam9160
      @jameswilliam9160 4 ปีที่แล้ว

      Ane127 what are the cures man?

    • @Ane127
      @Ane127 4 ปีที่แล้ว

      James William It’s just diet, but MDs don’t study nutrition, and Big Pharma can’t make money off of it. There are several diets for MS. Look up Swank, Jelinek, and Wahls.
      The cure is diet. SwankMSdiet.org
      OvercomingMS.org
      TerryWahls.com
      Naturopathic.org if you want to see a real doctor. The naturopathic doctors are replacing the medical doctors.

  • @melissalong8491
    @melissalong8491 5 ปีที่แล้ว +2

    Thanks for the video, I found it on my feed today. I think I had MS for at least a couple of years and didn't realize it until my doctor sent me to see a specialist for my left knee not bending when I walked. Now I see that when I got my tattoo on the left leg and it wouldn't stop twitching, (thank goodness the artist was able to complete it and it looks great) that was a symptom.

    • @bensadeghipour2269
      @bensadeghipour2269 2 ปีที่แล้ว

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  • @zerdda
    @zerdda 7 ปีที่แล้ว +1

    thanks!

  • @proffesorjuji4567
    @proffesorjuji4567 6 ปีที่แล้ว +11

    I got ms at the age of 12
    I’m 15 today and I still don’t know how to control my laugh :)

    • @Ane127
      @Ane127 4 ปีที่แล้ว +2

      proffesor juji It’s just diet. MS is a lipid metabolism disorder. Look up diets by Roy Swank, George Jelinek, and Terry Wahls.

    • @tbrownflee3124
      @tbrownflee3124 3 ปีที่แล้ว

      I heard the Wahls diet helps a lot, try DNRS program too by Annie Hopper

  • @ronnir5142
    @ronnir5142 3 ปีที่แล้ว +6

    I've got MS about 15 yrs old. I'm from the Midlands you sound local

  • @ebenburger111
    @ebenburger111 3 ปีที่แล้ว +1

    Thanks for for sharing this bro. MS AND diabetes type 1, and ALS have have much in common from a neurological perspective. See my other comment below.

    • @jobrownsmith116
      @jobrownsmith116 3 ปีที่แล้ว

      I know cervical stenosis also shares of lot of the same symptoms as MS. The Lhermitte's sign can happen in both. Mine went away after decompression surgery. Came back after a whiplash/head injury 3yrs ago with new stenois above the fusion. My lesions seem to correlate with my injuries.

  • @Sarah-vi4bn
    @Sarah-vi4bn 6 ปีที่แล้ว +30

    Recently I went to the ER because I was complaining of feeling numbness in my fingers and tingling pain shooting down my right arm when I twisted it the wrong way or when someone grabbed it. And the pain/tingles started going down my right leg. Also I noticed when my doctor was doing the little check up where they tap your knees to see your reflexes, both my legs shot out unusually far and fast. Alsoooo, I’ve noticed I’ve been having trouble urinating- or feeling the need to go but not being able to, and it’s really annoying. And then there’s my eyesight, I don’t really know if I can tell much of a difference w it because my vision has always been bad, but my far sighted vision has just been terrible. Like I have trouble reading from the textbook at school because the print is so small, and I never had trouble with that before. I noticed as well that I’ve been extremely fatigued but figured it was because I was in high school. But even when I go to sleep early, I wake up feeling deprived. And I don’t know if this would contribute to dizziness, but I felt wobbly when trying to do that heel to toe walking test... I don’t know. I’m going to a neurologist soon so please keep me in your prayers.

    • @SamahLama
      @SamahLama 6 ปีที่แล้ว

      Sarah Woodham out of everyone with ms your symptoms match mine the most... But I have hyper sensitive hearing and both of my arms have reduced sensations

    • @user-ci3xc5bz5h
      @user-ci3xc5bz5h 5 ปีที่แล้ว +6

      How did it go??? What was the diagnosis. I hope you're OK!

    • @monicagomezc.5213
      @monicagomezc.5213 5 ปีที่แล้ว +2

      Hi, could you tell me your diagnosis? I have similar symptoms

    • @sherryblatt4459
      @sherryblatt4459 4 ปีที่แล้ว +1

      Sending prayers to you! Stay strong and pray!! 🙏👍💖

    • @blackpeterose
      @blackpeterose 4 ปีที่แล้ว +1

      Don't worry God has you. I am praying for you now🙏🏿

  • @NightAngels
    @NightAngels 5 ปีที่แล้ว +20

    Hey, i'm on high dose vitamin d3 (20.000iu/day) for 6 year, i started taking it right after my first and only ms atack, and since then i didnt had any relapses for 6 years, im just normal no symptoms. Hope it helps other to know that if you start this vit d3 treatment immediate you will put ms to sleep, the sooner the better

    • @user-ci3xc5bz5h
      @user-ci3xc5bz5h 5 ปีที่แล้ว +2

      Thanks for the information!!!!!
      I have symptoms. Have had every test, ct and mri, but not a lumbar puncture or mri of spine (only head).
      Awaiting heavy metal results but will also arrange ms test tomorrow.
      Funny, I have been D deficient, and last week had a 50,000IU vial with 3000IU spray daily from doc.
      Hopefully will see how my results go for ms. Dad mentioned it to me today, he's a doc too, hopefully I don't have it.
      God bless you bro.

    • @Cobramp4
      @Cobramp4 5 ปีที่แล้ว +1

      @@user-ci3xc5bz5h any results?

    • @im_deandre5633
      @im_deandre5633 5 ปีที่แล้ว +1

      The Won what were the results

    • @user-ci3xc5bz5h
      @user-ci3xc5bz5h 5 ปีที่แล้ว +3

      @@Cobramp4 Hey both. Thank the Lord, lumbar puncture and spinal mri all clear, as were heavy metals, and all MS tests.
      Sometimes, a total body reset may be needed, as I believe I must do. Just removing stress, thinking positive, dealing with any deficiencies and overall having faith.
      I've read too many cases of people far worse off with doctors saying we can't help you, eventually healing through prayer, positivity and out-muscling their issues themselves.
      Wish you all well.

    • @Cobramp4
      @Cobramp4 5 ปีที่แล้ว +1

      damn, at least you dont have ms. i'm going through my own shit rn, and i totally get how unreliable MDs can be. I also need a sort of "body reset" as well, and a cleanse in due time. Take care bro, and keep your chin up. :)

  • @natgenesis5038
    @natgenesis5038 4 ปีที่แล้ว +1

    What was the first symptoms that you experienced?

  • @vermontvermont9292
    @vermontvermont9292 3 ปีที่แล้ว +4

    Tingling in my feet since March. Neurologist test were all fine. Now ive noticed my hands are numb and tingly when I wake up. Takes over an hour for feeling to come back %100 . The feet are constant , im really wondering since there are other things going on as well .

    • @psithurismique
      @psithurismique 3 ปีที่แล้ว

      Hello... Were you able to have your symptoms checked ny a doctor? :(

  • @cheriecarpenter3529
    @cheriecarpenter3529 5 ปีที่แล้ว +3

    I just found your channel, I hope you are doing well♥️♥️

  • @andreawheatley5528
    @andreawheatley5528 4 ปีที่แล้ว +2

    Are you still looking for MS Stories?

  • @Death_Networks
    @Death_Networks 6 ปีที่แล้ว

    Just back from hospital yesterday, confirmed transverse myelitis and suspected MS. I've had symptoms for almost 10 years... best I got was MIGHT be sciatica, had all your mild symptoms. Didn't get to go to A & E til about a week and a half ago when the majority of my right side went numb and they thought I might have had a stroke 0.0
    My back is killing from the lumbar puncture... Just waiting for the protein test to come back in like 6 weeks to see

  • @lizmo4242
    @lizmo4242 4 ปีที่แล้ว +4

    I wish my doctor's were as proactive as this guys.. I've had stroke type symptoms since dec 18(whole right sided numbness, tingling, slurred speech, can't talk at times, dizzy, confused, can't write for very long with a pen which is terrible considering I'm an artist like why couldn't this affect my left side?? I also have decreased sensation on my right side among a lot of other symptoms) mid to post viral infection, possibly encephalitis according to my doc. I was extremely ill and had a fever of 103 for 5 days and horrible head and neck pain, I felt like I was going to die. Anyway, all I get is negative tests besides a high sed rate and shrug. Ugh. The only test they did was an MRI at the very start of my symptoms back in Jan and they even said at the ER themselves if it were a stroke it could take days to show up. Possibly myelitis according to the ER doc but recommended I see my primary. Primary thinks it's seizures and sends me to a neurologist..I had an EEG with normal brain function and EMG done and it showed abnormalities in my leg muscle but again I got a shrug from the neurologist and said maybe I should go to the Mayo clinic. Why am I posting this on an MS video? Well I found out that a viral infection could aggravate an MS flare and often times symptoms are bilateral meaning they start initially in a foot or an arm on one side and eventually progress like mine did. My only hope is to find a doctor who won't look at me like I'm crazy, say I'm "too young" or that it's "just anxiety". Sigh

    • @daviddavis4640
      @daviddavis4640 4 ปีที่แล้ว

      www.gofundme.com/f/help-pay-danids-medical-bills?fbclid=IwAR3mzQ_8r51t8e6DxPm1l7ugrPVO_sW8Gx6jcBHsWdjmyFHNfR8lG8D-VXU

    • @Ane127
      @Ane127 4 ปีที่แล้ว +1

      SEE A NATUROPATHIC DOCTOR. Medical/allopathic doctors are purposely not trained properly by their pharmaceutical sponsored medical schools. Allopathy was never even supposed to exist.
      The cure for MS is diet.
      Diet can’t be patented, which means the pharmaceutical industry can’t make money off of it, which means it’s suppressed. This is why all of the cures are suppressed. Natural cures cannot be patented.
      SwankMSdiet.org
      OvercomingMS.org
      TerryWahls.com
      NATUROPATHIC doctors are replacing the allopathic/medical doctors.
      Naturopathic.org for a real doctor.

    • @wormwood6424
      @wormwood6424 3 ปีที่แล้ว

      @@Ane127 definitely diet heals many ailments. People tend to brush this off soooooo many times but truth is, much healing has come from proper diet and understanding how your body works.

  • @luvfitall
    @luvfitall 3 ปีที่แล้ว

    Did you ever experience the back sides of your skull (behind ears as if you were cradling your head) tingling and having a rumbling sensation. This occurs with me often and especially at night when I am laying down.

  • @Jefff72
    @Jefff72 6 ปีที่แล้ว +8

    I’m with you Paul! I have been living with MS for 9 years. I just got my first relapse in 7 years. I’m going to be switching from Aubagio to Gilenya.

    • @Ane127
      @Ane127 4 ปีที่แล้ว +2

      Jefff It’s just diet. MS is a lipid metabolism disorder. Look up diets by Roy Swank, George Jelinek, and Terry Wahls.

    • @StephDespiteMS
      @StephDespiteMS 4 ปีที่แล้ว

      Jefff
      I tried to comment on your coffee video but I think you have comments turned off, not sure if you know so I wanted to tell you :)

    • @Ane127
      @Ane127 4 ปีที่แล้ว

      The cure is diet.
      Diet can’t be patented, which means the pharmaceutical industry can’t make money off of it, which means it’s suppressed. This is why all of the cures are suppressed. Natural cures cannot be patented.
      SwankMSdiet.org
      OvercomingMS.org
      TerryWahls.com
      NATUROPATHIC doctors are replacing the allopathic/medical doctors.
      Naturopathic.org for a real doctor.

    • @Jefff72
      @Jefff72 4 ปีที่แล้ว

      @@StephDespiteMS I can't figure out how to turn them on. I'm new at this. When I up loaded it, I didn't set for comments to be off.

    • @StephDespiteMS
      @StephDespiteMS 4 ปีที่แล้ว

      Jefff one min

  • @Healthscience101
    @Healthscience101 ปีที่แล้ว +1

    I have all of the symptoms. I was very active. All of a sudden, have pain in my legs, arms and jaw, numbness, tingling, losing balance, difficulty walking. I cannot jump nor run. Had Brain MRI and it shows some lesion. But my doctor said it’s normal. There is nothing wrong. I’m so disappointed. Have to dig by myself to find out what is wrong with me and my doctor even refuse to treat.

    • @traceytansley1659
      @traceytansley1659 12 วันที่ผ่านมา

      Find a new dr. Contrasting Scans should be repeated at least once per year to see if more lesions have developed thus diagnosis of MS or not.

  • @almor2445
    @almor2445 4 ปีที่แล้ว +8

    Thank you for this video. I've been having some issues for the last few years involving my muscles not doing what my brain has been telling them. Recently though, it has been all day every day. It feels as though I'm really weakand tired all the time but can't sleep because it's uncomfortable in every position. I wouldn't call it pain as such but it is never releived enough to allow me proper sleep. Typing or using any fine motor skill feels incredibly difficult but possible as long as I concetnrate. You'll notice a few typos here even though I cleaned up about 12 so far. I'm shaky and feel weak in all 4 limbs and doing anything feels like an enromous chore, even using a mouse or keyboard. When I've been to GPs regarding much shorter episodes over the years, they've claimed it's just anxiety without ever testing me for anything. Do you think it's possible this is what I have?

    • @gregfier9524
      @gregfier9524 4 ปีที่แล้ว +2

      Definitely sounds like my early MS symptoms. I hope you've gotten to a neurologist. Best of luck

    • @psithurismique
      @psithurismique 3 ปีที่แล้ว

      Hello. Were you able to get a diagnosis?

    • @susanadams4290
      @susanadams4290 3 ปีที่แล้ว

      Check thyroid first..ask doctor

    • @erikhaveron1416
      @erikhaveron1416 3 ปีที่แล้ว

      Get your testosterone checked. Life saver for me literally. I was at my wits end at 36 yrs old. I fell like a new man.

    • @bonnierobinson8684
      @bonnierobinson8684 ปีที่แล้ว +1

      Don't stop! Get a second and third opinion.

  • @rahmainestout4765
    @rahmainestout4765 4 ปีที่แล้ว

    Hey did the symptoms worsen as the days goes by because I’m a 18 year old living in Jamaica and since last week Tuesday, I’ve felt this tingling feeling in my upper arms and thighs. I’ve went to the doctor and explained what’s wrong and told him about my prehistoric anxiety attack since the covid thingy. He’s assuming it’s symptoms of anxiety but he told me to get a blood test done, (CBC and ESR) to be exact. I’m still awaiting the results but what I’ve realized is that after two or three days of the symptoms, it only affects me about 40 minutes or maybe less after waking and some days it don’t affect me at all, not even riding a bicycle does. Oh and also I have this weird feeling in my head that moves from on side to the other at times. I’m just curious because I’ve been reading a lot of posts on the internet and I saw the MS diagnosis and went to do a further research so I’m asking for your knowledge.

  • @rebeccaclarke4764
    @rebeccaclarke4764 3 ปีที่แล้ว

    I'm watching your show now as I think I'm having minor symptoms of MS. I don't really know who to turn to. It started when my face drooped and my speech went. I ended up in the hospital and they said it was a silent migraine, with aura. But I've been off balance recently and I've had a numbness in my face. I can't do anything without forgetting what I'm doing even though it's something I know how to do.

    • @sarahplain6287
      @sarahplain6287 3 ปีที่แล้ว

      Special hug x
      My aunt had it for 5years, until she apply herbal remedy for her cure
      Indeed herbal medicine is the best

  • @MsShellybell12
    @MsShellybell12 5 ปีที่แล้ว +2

    What was the first test given to check for Me

  • @ramonawilliams2518
    @ramonawilliams2518 ปีที่แล้ว +1

    It's very HARD" STANDING BALANCE " AND WALKING",AND CONTROLING MY WIGHT",I WAS WONDERING" IS IT SAFE TOO DRINK APPLES CIDAR VINEGAR " !

  • @danielalandaverde
    @danielalandaverde 5 ปีที่แล้ว +2

    I’m here Bc I might have MS. Yesterday, I began to feel numb on my fingers and it went throughout my whole left arm. I felt really weak and tired and my head was killing me. I couldn’t walk right, I felt dizzy and unbalanced. In addition I couldn’t see, I had blurry vision. I fainted Bc I couldn’t even walk. I went to the hospital and they couldn’t run any tests without the approval of my doctor who was out of office. I am scared that I might be diagnosed with this. I’ve never experienced something like this until yesterday.

    • @goddessvibes08
      @goddessvibes08 5 ปีที่แล้ว

      Did you get the tests done?

    • @danielalandaverde
      @danielalandaverde 5 ปีที่แล้ว

      That Girl I’m on the waiting list to see a neurologist which takes about a year... I’m also on the waitlist for genetics Bc I might have ehlers Danlos syndrome Bc my dad had it.

  • @walt2580
    @walt2580 6 ปีที่แล้ว +1

    My husband was diagnosed a year ago. He's on no medication..trying to eat properly and take vitamins etc. We went to 3 different doctors and when each was asked the question "if you had MS, which medicine would you take?" they each gave a different answer. We're not happy about the side effects of the prescribed medications, but we know that at some point we will have to chose one. Which one? Who knows.

    • @EatHealLove
      @EatHealLove 5 ปีที่แล้ว +1

      I was diagnosed in 2001 but only took medication for one year because I had such a poor reaction to it. But I've been relapse-free for the last 11 years now. An anti-inflammatory diet is SO important!

    • @franciellenunes8552
      @franciellenunes8552 3 ปีที่แล้ว

      The coimbra protocol is the cure for multiple sclerosis and all autoimmune diseases. I have been fortunate enough to see thousands of successful cases of people who no longer even saw or walked back to having a totally normal life. This treatment was developed by the doctor PH.D. Cícero Galli Coimbra who is a neurologist and professor at the Federal University of São Paulo, Brazil.
      therapeutic dosages of vitamin D
      generally superior to what the pharmaceutical industries recommend
      this is a medical treatment that must always be carried out under the supervision of a qualified doctor
      Vitamin D is actually a D3 hormone
      Its main function in the human body is to regulate and enhance innate immunity
      So it is able to silence autoimmune diseases.
      This protocol also corrects levels of other vitamins and minerals such as magnesium
      to avoid kidney overload
      Drink at least 2.5 liters of water per day
      Restrictive calcium diet
      Do not consume foods such as: all dairy products (milk, yoghurts, cheeses), as well as chestnuts, dried fruits, canned sardines, orange juice, açaí, etc.
      Thousands of academic publications provide the efficacy of vitamin D in autoimmune diseases such as multiple sclerosis, Crohn's disease, Vitiligo, Psoriasis, Type 1 diabetes, Sjögren's syndrome, Hashimoto's thyroiditis, autism ...
      Vitamin D has about 80 functions in our body
      Vitamin D is the largest regulator of activity in the immune system
      When vitamin D is deficient, the patient is unable to regulate, which means stimulating or reducing the activity of thousands of biological functions within the cells of the immune system.
      You only need to go on a calcium-free diet if you are going to take more than 20,000 ui a day of vitamin d3, if you want to take that 20,000 ui dose every day you do not need medical monitoring or diet, this will help a lot to reverse symptoms. In more serious cases, I recommend monitoring with the doctors associated with Coimbra, they prescribe many times more than 100,000 units a day, but this is done with monitoring, exams and a calcium-free diet.

  • @Bum_Cuddle
    @Bum_Cuddle 7 ปีที่แล้ว +1

    Thanks for the video, I was diagnosed with MS today after scan results. Would like to know what diet tips you have and if you have looked into LDN (Low Dose Naltrexone)?

    • @myjourneywithms8903
      @myjourneywithms8903  7 ปีที่แล้ว +5

      LDN was one of many drugs mentioned to me by my previous neurologist. I had to try Gabbapentin and Baclofen before they would consider anything else. It's a slow process to find what works as most of these meds need to build up in your system before they become effective. I never made it as far as trying LDN before I ditched meds completely. Thanks to diet and exercise I no longer need meds at all. All I have now is B12 injections. As for diet I have gone 90% vegan. Lots of protein from Chickpeas, Iron and Vitamins from dark greens such as Kale and Spinach. I do eat fish still. Not very often. The biggest piece of dietary advice I can give is to eliminate dairy. Cutting out milk and cheese helps the system so much. My energy levels definitely improved after this. I will cover a lot of this in future videos too. Thanks for watching.

    • @roychaplin6471
      @roychaplin6471 7 ปีที่แล้ว

      Hi Paul, Thank you for sharing your MS journey with us all. My wife has just been diagnosed with MS. She has been B12 deficient for 6 years and gets injections every 3 months. I have read that B12 injections for people with neurological disorders should have injections every 2 months. Can I ask if you get yours every 2 or 3 months.

  • @shannalae3907
    @shannalae3907 3 ปีที่แล้ว

    Hi.I just stumbled upon your video.How are you doing lately?

  • @petersymons7817
    @petersymons7817 2 ปีที่แล้ว

    May Jahovah and his son bless u some more

  • @jonroberts6518
    @jonroberts6518 3 ปีที่แล้ว +5

    This makes me wonder? Been living with constant pain throughout my back and legs and fighting constant fatigue for about since 2008 coming back from my deployment from Iraq. Had MRI done on the back it is showed mild hypertrophic changes to the vertebrae and discs then they diagnosed me with intervertebral disc degeneration and Facet Joint Syndrome. Over these years feels like I've been getting worse, not no simple arthritis as the Army and VA doctors keep saying. Well I couldn't stay in the service was causing so much pain, becoming extremely difficult to pick up and carry heavy objects, I don't have any tingling or numbness in the legs, just a stinging burning like pain and tightness, especially that I've been standing and walking around bending and twisting all day. The only tingling and numbness I experience where my arms, around my shoulder blades my right side of face and right side of tongue. Experience some balance and or coordination issues, walking down the hall one day my mother was asking what was wrong with me she thought I was drunk just because the way I was walking I barely could. My older brother when I work with him he make those comments don't throw yourself on the floor John, cuz it looks like I'm tripping or stumbling but there's nothing there for me do trip or stumble on. then about a month-and-a-half ago I experienced and unexplained blackout while I was driving resulting in a crash. All I remember with getting in my truck not cranking it not putting into drive I have no knowledge of driving, or should I say no awareness. then waking up in ambulance EMTs telling me that I was involved in an accident, then suffering a head injury result of the crash a concussion with loss of consciousness. Had CT scans done no red flags according to the doctors. now it's just a waiting game to see the neurologist

    • @sukirinaa
      @sukirinaa 3 ปีที่แล้ว

      Did u get ur results back?

    • @jonroberts6518
      @jonroberts6518 3 ปีที่แล้ว +1

      @@sukirinaa pretty much they said healthy as a Clydesdale, everything is showing normal including EEG. So now just trying to figure out how I'm all the sudden having one-off seizures that seems to show up every 4 months

    • @niceguy4u1000
      @niceguy4u1000 2 ปีที่แล้ว

      @@jonroberts6518 Have you been tested for small fiber neuropathy? Small fiber neuropathy has a lot of the same symptoms as MS.

    • @jonroberts6518
      @jonroberts6518 2 ปีที่แล้ว +2

      @@niceguy4u1000 already have peripheral neuropathy claimed and radiculopathy. I don't think I can get anything else there may be a higher rating, but what else is new for me after nine years released from the Army started having seizures up and out of the blue since May 2020 and these last fourteen months or so I've had at least seven seizures so far. Not sure why have you having such things don't even have any history seizures are you in epilepsy in that matter. Was trying to look into that hole toxic exposures from Burn pits.

    • @ecb1979
      @ecb1979 2 ปีที่แล้ว

      @@jonroberts6518 yeah thats pretty messed up. The older I get the more I realise that doctors either don't know a whole lot when it comes to these kind of issues- or they just don't trust that patients know their own bodies. I feel like its the latter.

  • @TotalRookie_LV
    @TotalRookie_LV 3 ปีที่แล้ว +1

    Maybe there were some minor simptoms before, but I didn't notice them until my hands got weak right before my 40th birthday. I mean, how do you fatigue, when you are at a meeting at 22:00 to plan your work for the next day? And no, I'm not really a workaholic, on contrary, I'm "hard to move", slow, lazy, which turns out to be one of the things common for people with MS, that could be noticed since childhood, when no other simptoms show up yet.

  • @fredaragusi4393
    @fredaragusi4393 5 ปีที่แล้ว +8

    Are Intractable Migraines and high protein levels in my spinal fluid a symptom of MS.