Loop Phase 1 -Setting up my 'Artificial Pancreas'
ฝัง
- เผยแพร่เมื่อ 5 ก.ย. 2024
- Yes, it happened and I'm now on Loop. If you don't know what loop is: It is an app template for building an automated insulin delivery system. It is a stone resting on the boulders of work done by many others. This system has been created by a number of very intelligent individuals in our community who just got tired of lack of innovation in the commercial space or regulation stopping some amazing technologies being introduced into our daily ups and down. And so, loop was created. It's an open source and its constantly being modified and upgraded and new pumps, new cgms are being added as you are reading this.
In this video, I show the process of setting up loop. It is a DIY automated system, so you need to do a lot of things on your own, but you don't. Because we are a community. So, there is lots of support on amazing websites like Loop Docs:
loopkit.github...
or Facebook groups and million other places.
This is just a first video about loop but there is more ...
PHASE 1 is building it. My next video will be about PHASE 2 which is using it in Open Loop mode, so you still need to authorise the system to make basal corrections and then PHASE 3 is when system automatically does basal adjustments (sort of like Medtronic 670G).
And I will be doing ever more videos about loop after those 3.
So, subscribe if you want to follow my journey and follow me on Instagram for daily updates about LOOP.
So here we are, let me know what you think about Loop. Are you using it? Would you use it? What's stopping you?
Check out Eriks Channel:
/ @erikdouds
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My email address: nerdabetic@gmail.com
My Instagram: / nerdabetic
My Twitter: / nerdabetic
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LOOP IS NOT APPROVED BY THE FDA and IT IS NOT CE CERTIFIED.
I AM NOT A HEALTHCARE PROFFESIONAL SO PLEASE
CONTACT YOUR MEDICAL PROVIDER BEFORE MAKING
ANY MEDICAL DECISIONS
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My pancreas went on vacation 11 years ago. I am making myself a new one like you have.
Welcome to Looping! It is the most life-changing leap in T1D technology. Thank you, thank you, thank you to everyone who made it possible. Can't wait for part 2 & 3
I’m so happy to be part of Looping squad. I’m officially a Looper now. 😃👋🏻
So happy for you to get this up and running. I can't wait for the feeling of being on a Loop system. The freedom must be like having a weight lifted off your shoulders. After 26 years of injections, finger pricks and now bolusing, I'm done!!
having blood sugars correct themselves while you sleep is so fricken life changing. Bolusing from the phone is a nice perk too ;)
Your excitement in this video is so sweet! It's amazing how far we've come in just 5 years!!
hahahah you so sweet!!!
@@Nerdabetic are you still looping now or using another system?
Thank you for this video, about a month ago, I built the closed-loop system for my 17y/o daughter, but she is afraid to use it. I'm going to watch your videos a couple of times with her. The directions to build the loop were extremely thorough; however, USING the loop - not so easy. It's perfect timing too, since we're in lock-down due to this virus! #silverlining
Kamil - thank you so much for making and publishing this video. Looping is something I'm really interested in, although I'm not yet a pump user (so it's a case of one step at a time for me!) The amazement and joy in your face as it started is awesome. I can only speak for myself, but randomly coming across your videos is the reason I now have a bluecon, and by extension, the reason I'm using Spike, and the same for my sister, who's also a T1 and so I got her into the same set up. Can't thanks you enough mate - and I'm looking forward to stages 2 and 3.
Thanks so much. I hope that you will be able to get your pump soon. And im so happy that i could help a little bit. I wish you and your sister well 😁😀
Congratulations and thank you for sharing your experience!
Congratulations! Happened to read an article about Loop on Flipboard and found your video
How exciting! Honestly tears came to my eyes when the pump started to bolus. I know NO ONE, personally, who is on your journey, and my Kaiser HMO endo today poo-pooed the closed loop concept. Manual bolus. Period. I wish I could get him to watch you! You are the future! Bravo, Diabetic Energetic!
Joyce #wearenotwaiting
It’s very exciting and I was so emotional that day. And I’m just a unfortunate face of work of many incredible people 😆😊. This just shows what can be done when community gets together 🙈😊
Fantastic! Can't wait to see how you do with this!
I can’t wait to see how it works out in the long run 😃
Wow!! thanks for doing these videos, I would have no idea all this tech exists if it wouldn´t be for you!! I am amazed by the Loop appp and everything it can do all together!! I am currently not wearing a pump, but this is something I would definetly consider using if I did.
Wow. Thanks so much 🙈😊 I am so happy that you found my videos useful and helpful 😊
A LOT :D! I am very grateful with you for doing them!
OMG Kamil this is so exciting!!! Thank you for sharing your whole journey! It was really interesting watching you set it up and having your first meal with the loop! I have a loop-compatible pump, so this is always an option for me in the future :)
this is so exciting. I was so emotional that day. But i hope it was at least a little bit informative. And i think you would love looping. 😅🤩
Kamil, huge well done. Thanks so much for sharing your loop journey with us and I hope you are continuing to love it. Just watched phase 1 & 2, so will be turning in for 3 & 4. 😁
You explain things in such a straight forward way, you’ve no idea how much your videos have inspired me when previously I didn’t think I had the ability to try anything remotely techie!
I remember reading your posts on the libre page last year, excited about the nightrider coming to market and everyone shot you down in flames on there.
Then I found your ambrosia group and haven’t looked back.
Thanks to you, I totally grasped the concept of nightscout/Xdrip iOS reader - now spike and my son’s rockin the MiaoMiao now. (After an unsuccessful attempt with Blucon)
I joined the loop group but again felt a bit overwhelmed by it all, until I saw you were setting it up. 😊 knew you’d help break it all down and demonstrate just how straight forward it actually is.
You’re a star and I really, really appreciate the time and energy (pun intended) you put into sharing your experiences with others.
I wasn’t sure looping would be right for my son yet (he’s a teen, looks after himself ok but still relies on me a lot to make decisions) but I can see already that it would be a great solution for him.
Just need to research sourcing/financing the right pump as he’s also on the 640G.
Thanks so much 🙏🏼 and keep up the amazing work for our community!
Janice thank you so much. You have made my year. I'm so happy that my videos helped you undertand libre, miaomiao and now Loop. You are the reason why i put time and the energy into making those videos.I really hope you manage to sort out Looping for him if he wants it. I'm so happy to be a part of it. Have a great day 😁😀
Aw, you’re very welcome 😊 Hope it’s all going well.
Can I ask a couple of quick questions? I’m working out upfront and ongoing costs....
Are you able to use the infusion sets/reservoirs that you have for your 640G with the old pump?
I don’t think you mentioned in your video or perhaps I’ve missed it but Do I need a Mac? I read that I needed access to one with Xcode.
Thank you Kamil. Happy looping ! 👌🏼😎
Thanks and yes infusion sets and reservoirs are exaclty the same and im using them. And yes , you need a MAC computer to build the app. Also, i should have mentioned that in order to build the app ones a year, you need to get apple developer account which is about 99$ or 79£.
Ah ok 👍🏼 I read that too. Great thank you Kamil. Looks like the Mac will be our biggest expense haha. Might need to wait a little longer now 😢
No problem and you only need it ones every 12 months to set it up so you can go to a friend or to Loop build event. Search on Looped Facebook Group
Congrats! I just got ahold of an old Medtronic 515 and I’m so excited to start looping in the near future. This video was VERY helpful because I couldn’t make any sense of what they were saying in forums and online. Thanks!
Thank you for your content. Super helpful to someone like me who has no diabetic friends or family.
Well done! That’s so exciting! It makes me think about trying it too. I’ve never had a pump though...
Thanks so much😃 and Pump is not for everyone 😃
Got my pump yesterday, specifically to do something similar.
You need one! Life changing!!!
Wow this is so incredibly awesome and inventive! This video made me so excited to try looping as well! :)
Thank you so much 😆😊
Coooooolest thing ever! If possible I would love a more detailed video about installing the app/ adding ratio's etc.
Thanks so much. And it changes every so often as app is updates regularly also its a bit complicated and trust me im not expert in it. But im sure you will be able to set it up with loopdocs.com
Great video! very helpful! congratulations on getting set up and all working! I'm just setting up for the first time myself with a RileyLink 433MHz (OmniPod) to BLE Bridge Complete Kit and Omnipod on an Android phone, but need a little help on calculation for my basal rates due to never doing it before! I've also only two pumps to test with until the NHS allow me them! :-(
OMG! That's so awesome! I use a freestyle libre and omnipod! Definitely need it :)
They are currently working on reverse engineering the OmniPod protocol. Should be done soon and then they can program the Rileylink to directly communicate with the pods. Once this happens, I'm looping since I can't find an old Medtronic pump.
Omnipod is the only thing ive ever had! I cant wait!
Yeah omnipod progress is very exciting. I’m sure number of loop users will skyrocket when omnipod is loopable 😃
I love my omnipod! This will definitely make me love it even more though! Congrats :)
@@Nerdabetic is it available now that it's been a year? For the omnipod?
What a shame that this has to be done by each patient on their own. How companies haven't set something up like this, given the technology available to us today, is simply astonishing. Thanks for the video though, DE.
Yeah I’m shocked too. But there is lots of build together events where T1 rent a conference room or just in someone’s house and they all build together with people that have done it before. It’s like a tiny artificial pancreas factory 🙈😆 you should have a look if you are interested
Where should you look for these “events”?
Btw loved this video! That’s literally how I felt the first time I blouses using a pump instead of an injection approx 7-8yrs ago!
Awesome video really love the info about which pumps you can and can’t use!
Thanks so much. Full details on loopdocs.com 😄 and compatible pumps on loopkit.github.io/loopdocs/setup/requirements/pump/
I’ve been a diabetic for 10 years now and nothing has worked. I really want to try this. Many thanks to you and @danamlewis for giving me hope!
This is so sweet. I am just talking about it. Others like Dana did all the hard work :)
Can’t believe haven’t heard of this. Feel like I have been lost. I currently have the 670. Will try to do this with my old pump. What I’m wondering is the g6 Dexcom is compatible ?
I haven’t for years, it is compatible with G6. I am using it with G6 😅😊🥳😝😏
Loop looks so much nicer than AndroidAPS.
But I guess DanaRS + AAPS is still the better option, as the pump can talk back. You see in your app if the insulin was properly delivered etc.
Also, I don't need to carry a riley link.
But damn the app looks so nice...
I totally agree. I love how Loop app looks. Also personally I can fully understand it and I know what is happening. Just hope that we will be able to loop with Dana pump 🤓😃😅
Hi, It could be useful to somehow warn people they need Spike + Spike branch version of Loop to communicate with Libre + MiaoMiao... My friend showed me this video and we had a pretty hard time to realize it's not that easy as your flowchart might suggest (pumpRileyLinkiPhoneLibre+MiaoMiao) and regular Loop is useless.
I do not understand what you mean
Man ........the smile i had on my face when i delivered 12.8 from mobile damn
Hahah that first bolus 😂😂😂
hah！nice job，enjoy your Loop journey
Thanks so much 😅
Guys, how are the safety aspects handled? What controls do we have to guard against malfunction or bugs -- for example, erroneous overdose? I am reading docs, but thought I will ask here if anyone cares to answer. Thank you in advance!
how about Androidaps with Medtronic minimal 712 and libre 1?
Are you still using this system?
Does anybody know if you need an iPhone for looping..or is Samsung compatible as well? I'm going to be getting a brand new phone soon and I wanna know what to buy 🤔
Bonjour
Est ce que vous utilisez encore ce système ,
Merci pour votre vidéo qui m aide beaucoup
Hello, I’ve been a T1D for 40 years. I’ve have the Riley link but I’m a bit lost on how to link my libre, bubble to finalize the looping process. Any direction would be most helpful.
heyyyy I would reallly receive that medtronic pump that you disposed, as my insurance has rejected to give me one
hey, so that is impossible. Good luck with your pump. I am sure that you will succeed.
@@Nerdabetic Lol. Anyways i love tour channel
Awesome stuff! I was wondering how you connected a MaioMaio to loop, did you use Nightscout?
Hi. No, so there is a special version of Loop ( special branch) made for Spike integration. Spike is the software I used. Hope this helps
To apply the coding for creating the app do you need a apple laptop or it can be done with windows
Seems like the next step would be to write a piece of software that triggers off of the cgm to administer insulin in real time based on the intensity and rise of the rate in a predictive way to cover eating meals, that way one would not have to calculate their meal time insulins either, :) Great video Thank You, :)
Thanks for your comment
Would it work with freestyle libre?
I want to try this but idk if I can afford these and I’m also scared it’s gonna over dose on insulin like the one person that it happend to Idk
Hi Kamil! I am designing my system Libre+MM+Spike+Loop(SpikeOfflineVersion)+RL... I am a bit confused, what App should upload my info to Nightscout? I want to be able to see my glucose on my AppleWatch or Pebble/Fitbit and I think you said Nightscout is the most reliable way, right?. THANKS!
Hi. Great and your loop does as well as spike.
Can I use the loop app with an omnipod and manually enter the recommendations from loop? I'm waiting for the omnipod to be loopable.
You can’t use loop yet but MAKE SURE YOU HAVE NOTIFICATIONS TURNED ON. that’s all I am going or say for now 😀🤓😏
Yes, I see openomni is getting really close to looping, can't wait!
Could you explain eversense cgm?
How did you connect this to the Libre and miao miao?
Closed loop Insulin pump, Finally, an Easy life..... no more endless measuring your carbs and pricking your finger....
as long as you stay fit and skinny til middle age (to avoid type 2 diabetic onset) , you'll be golden !
just always keep those 2 devices charged with power and always have a supply of insulin ready....
I have rileylink to be setup with a pixel xl , medtronic 754 and dexcom5 question is how? thanks.
Not at the moment.
How do u do a DIY bluetooth for the libre
Hello, where I can find list of compatible pumps for loop.
Are there any options for looping on iOS without a RileyLink or box-thing? Or is that only possible on Android with a Dana R pump?
Currently, you can only use old Medtronic and rileylink ( box thing ) ☺️
Awesome! Will my minimed paradigm 754 work with the Rileylink?
I got a new firmware version... Nog looking for an older model at the attic
I just checked and 754 compability depends on your firmware. Check it in your pump menu and verify at loop docs website: loopkit.github.io/loopdocs/setup/requirements/pump/
Diabetic Energetic bummer, I have 3.1E 1.1 0B 0B. So the software won't allow me to do what I want! Now, I will try to get a Dana RS, and get it working on AndroidAPS. Or find my old minimed and Rileylink for the time being
I see. And Dana RS is a great device
Diabetic Energetic I'm still a little allergic for apples, so try to stick to android... Now I have to go and fight for an dana. I'm not sure if I can get one over here in the Netherlands
Hey there! I live in Canada (moving to Scotland in August though) and am wanting to start looping. I have the Medtronic 630G but need to buy an older version to loop. Do you know where I could buy one? Thanks!!
Also, this might be a dumb question but with the loop/miaomiao do you still get high/low alarms like you would with the Medtronic Enlight sensor? Thanks so much :)
Hey there. So the hardest part of looping is finding that old medtornic pump. I would suggest checking out facebook groups like pay forward diabetes. Or just check online or ask your nurse. They might have some old pumps. Lots of useful tips on loopdocs.com websiye. And miaomiao sends your BG values to spike which gives low/high alerts 😄😀 i hope that helps ☺️
I enjoyed watching this a lot I am type 1 diabetic patient for 20 yrs and I have the old medtronic pump and i am very excited to be on the loop. But wanna ask you :
1- if I am on the closed loop system, does it mean that I do not have to blous for the food I eating?? I do not have to do the carb counting any more or calculate my insulin doses??
2- I am an android user, so do i need to change it to iphone or now it is compatible with android?
3- How can I get the app on android If it is available? And how can I get this device to start?
Thx a million in advance dear 🙏
Hi Kamil, just curious if you can get me one of the minimed pumps. I am trying to buy/get one for years and not able to find. Please can you detail how to get one in UK? i would really appreciate some help. Regards.
Hi . I got mine from a friend. I can't help you with finding them directly, but check loopers facebook group. People post pumps for sale there
THANK YOU . I mean it.for the all info you have given to us.As i understand i need a mac computer to install the app to the iphone and then a developer`s account if i don't have to reinstall it every week.my question is that do i need a mac computer after the initial installation.Sorry if i am asking a stupid question but i am kind a bombarded myself with this new info and maybe i confused myself . I can get an iphone but i dont think I can afford a mac comp/book for sake of the sustainability of my loop.
Hi. so if you have developers account, you do not need it for 1 year. As this app will work for 356 days. However, it is recommended to update your app ones in a while to get new features, improved performance, fixed bugs etc. Hope this makes sense. But overall only ones a year
Two questions: 1. Can you loop with an Android phone? and 2. Where can one purchase a compatible pump. I've seen old Medtronic pumps on eBay at $1,000.
There's a parallel project called AndroidAPS.
Hi! Is there a way to use the Medtronic enlite G640 that Health Care provides me every month?
Hi, No this pump does not work with Loop
Great vid, if only some genius could make more new pumps "compatible". Especially the ones you can control on Bluetooth straight from the phone. Omnipod is a it uncomfortable with the big patch that is non removable.
There is lots of geniuses and I thought it’s that simple but it really isn’t. They are working really hard and we should all thank them. And I’m very happy that you enjoyed my video 🙈😆
Are you still doing the Loop?
Where to buy RileyLink?
getrileylink.org All the best
are you still using loop?
hello I need to know which IPHONE will work with Riley Link. an App that I must download for Riley Link. Thanks
App needs to be build using Mac computer just like i have done. And iphone compatibality is available on loop docs website ( link above )Also sorry for late reply but i was on a 2 week holiday 😅
can you add link for the clear Tape your using for the MiaoMiao to hold it in place thanks
Hey. What is the name of the program you use in your smartphone?
Loop loopkit.github.io/loopdocs/
With our system you have your own personal pump. No need hacking either
Hi! I'm a high school student with T1D doing a research project on islet cell transplantations, hypoglycemic unawareness, and closed-loop systems. I have a few questions on this, is there any way I could reach you by email? Thanks!
Yes absolutely. nerdabetic@gmail.com
Nice work.
Is a Mac essential for setup?
Yes, for this DIY system. Yes.
hello, sorry but I'm new I'm trying to go to the get relai link system, wondering if there's a way to get the app directly without having to work on the programming code, it's omnipod + dexom g6 italia thank you so much for the Help
Can the loop be done using an android device?
There is OpenAPS which is the android version.
Help me..... libre....blucon and.. rileylink...and.... pump 715... is????? Loop
anyone have a spare pump (or knows someone) that i can buy and loop? i cant seem to find one anywhere and have no idea what to do now.
Hi does it work with type 2 diabetes patient? Thanks
This loop tech is so confusing... I have a hard time to setting it up, because there is no step by step guide. I am advanced computer user, but this does not help at all. There is just a fractions of information across internet. You have to be a developer to set this up? Do I have to pay someone to do this loop? If this loop uses special algorithms to calculate insulin doses, why do you have to do so many manual setups?