@@yellowmoon9308 But like the video - said - you have to have the signs plus you have to have a good doctor - some doctors today - just ship over things -
@@realemonful I wish the Roger the best. I work with doctors for 40 years....one nearly killed by daughter recently..."let's check it in 3 months"....I called her back...demanded surgery....she had ovarian cancer in her 30s....yes I'm a doc.
Thank you for this video. I'm a retired nurse. My husband had his complete yearly physical and got the A OK " you're in great health" from his primary. He took off his shirt to change into his work clothes and I immediately called his Dr and had to demand a recheck. He literally had EVERY sign of breast cancer. They acted as if I was a nut but scheduled him for another appointment. A week later the biopsy showed an aggressive form of cancer that had spread to lungs, thyroid etc. After surgeries, radiation and chemo he then had 2 heart attacks. He is doing great now but I accompany him to every appointment much to the irritation of the Dr's. If left to the Healthcare system,he'd be dead.
Oh Denise, how terrifying. Kudos to you for being such a sharp clinician. You're 100% right - we kid ourselves that we "passed the physical with flying colours," when it's merely a snapshot in time - and one that tests for a limited number of things. You sound like a loving couple who've been through a lot together!
I was in real bad shape when I went to emergency five years ago. They knew it was pancreatic, but were puzzled about something. They kept me there for 45 days, doing all sorts of tests. Finally, they released me into hospice, 56 years old. After 3 months, I was still here. They asked to see me again, and decided on 3 months chemo, then surgery to remove the affected area, then 3 more months of chemo. Next week, a CT scan, and if clear, it will be five years. Feeling very strong, and very fortunate.
@marlenegold280 Apologies for not being very clear about some of the details. The reason the oncologist originally kept me for 45 days was that they knew it was pancreatic, but they weren't sure if it had metastasized into the liver. Some tests showed that it had, but other tests like biopsies were confusing. They recommended that I not go through chemo because it would just make my last days more difficult. They released me into hospice, and about 20 days in, I was feeling so bad that I knew I would not live to see the morning. Fortunately, I did. After another 60 days, I called the oncologist. Her team couldn't believe it. They ran tests, and there was no longer evidence of metastasizing into the liver. (Misdiagnosis?). They then were eager to treat the pancreatic cancer. I am now diabetic, but after 5 years, free of cancer. I sincerely wish the best for all of you and your loved ones.
My husband’s niece was diagnosed with pancreatic cancer, stage 3. She faithfully did all the treatments, the radiation series, the chemo 9 rounds. It’s about 9 months now, she’s in a coma and in hospice. **edited later to add - she died this weekend. Never came out of coma.
Stage 2 diagnosis is really rare. It is usually an accident... but not in this case. Most people I've heard of don't know until Stage 4. Stage 3 is still quite uncommon. This man's curiosity and stubborness saved his own life.
@@echogl correct. but recall the MD.initially said "it's normal". To which he pushed back "NFW iis this normal...why now?" To which MD.said, reluctantly "OK, let's check in 3. months". The patient insisted, it wasn't the Dr's idea to come back in 3 months. If he hadn't gone back in 3 months, instead in a year, as was normal, he's dead. That's the WHOLE FRIGGIN POINT of this vid. You know your body, insist upon follow up tests. Well, the (implied) second point is if you're not rich, you can't afford the follow up tests, (standard of care) so again you're dead.
He left out what made him exceptional: he evidently has enormous financial resources that not only afforded him the ability to travel and to handle just any out of pocket expense, but apparently the control of vast stretches of free time to endlessly explore all options, and on his own timetable, be it an MRI the very next day or whatever. Few salaried full-time working people would be at liberty to mobilize such limitless time unless they quit their jobs.
Yup,that's what I'm taking away from this. It seems as though the more affluent the better chances of survival . He even mentioned "standard of care". To me that's scarier than the disease itself.
I should add that a close friend just died of what had been, pre-posthumously, undiagnosed pancreatic cancer. He coincidentally had severe heart disease that masked what was insidiously killing him. His doctor put the picture together only in his final days. I'm not sure my friend was even told he had the disease before he slipped into a coma caused by a cerebral blood clot that resulted from a deep vein thrombosis in his leg (a cardinal sign of pancreatic cancer) traveling to his brain.
@nickbardan3867 It wasn't a question of money, it was Jobs' own bad decision. Jobs had a form of operable pancreatic cancer that was caught early but he declined to have the surgery that was recommended to him. Whether or not such a timely operation would have saved his life cannot be known with certainty, but it would have afforded him a better chance at survival.
My dad had Pancreatic Cancer and was treated in Boston, MA. He had the Whiffle Procedure at the age of 83 and lived 8 years cancer free when he passed away in 2021. I hope your future is bright and your life long!
Which hospital did he go to? I knew someone that went to Dana Farber for pancreatic cancer. They screwed around deciding whether or not to do chemo and surgery until he died at the hospital. Six months from diagnosis to death.
My mom same thing but died 3 months later at 70 . In Boston with a very good surgeon but it was not cured it spread to her diodum how ever you spell it.
@@maryreardon6512 they did it on my mom did no good. The doctor thought he got it all off the head of her pancreas, but it spread to her diodum . Complete failure.
My Mom’s pancreatic cancer was found during a CT scan for something else back in 2006 and found a spot on the tail.very early stages. Had the tail removed, no other treatment needed. She followed up with oncologist for 5 years. All clear. In 2014 she started experiencing symptoms. Cancer returned. This time on the head by her bile duct and was inoperable because the mass invaded blood vessels. We lost her in Oct. 2016. What truly killed her was the chemo. Cancer never spread to other organs. What we did learn is that pancreatic cancer is not curable. If I knew then what I know now I’d had encouraged her to continue f/u and scans. With that said tho, we still got 10 years which is not the norm. For this gentleman and anyone else who caught this beast early, continue your f/u with oncologist for the rest of your blessed life. I wish you many years of good health and embrace your blessings.
My daughter refused chemo. She knew it was terminal, so she just carried on as usual until she entered hospice care. A terrible way to die. Here’s hoping they find a cure. People are so brave.❤
As someone who had Whipple Surgery 16 years ago for very early stage of Pancreatic cancer, it is nice to read someone else's journey. I went through most of your thought processes and it worked for me. Like you, I took ownership and responsibility of my prognosis and all of the good and bad consequences. There have been times when my journey has been challenging, 3 bouts of bladder cancer surgery and treatment, surgery to place a stent in the resect portion of my liver duct to open, a hugely compromised immune system and recently confirmed diagnosis of Non Celiac Gluten Insensitivity. In March, I celebrated another birthday ( mid-70's) and like I tell most people, I LIVE EVERYDAY as IF IT WERE MY LAST.
I had my Whipple 3 weeks after my PC diagnosis. Terrifying at age 62 with my first grandchild on the way. Post surgery pathology showed it was any early stage, non cancerous neoplasm. My GI doctor dragged his feet until I asked to be referred to a teaching hospital. I’m 78 now with “manageable” symptoms that require very expensive medication because of everything they took from my digestive system. I can’t say I survived it because I never actually had it. But, I’m glad to be here.
@@janetmyers3729 Albeit I know it can be rough at times, it warms my heart to read of another person who has survived this intense dramatic surgery. Hope you've be able to enjoy times with your first grandchild
jimsba1951 Surgeons didn't even want to risk Whipple surgery on my late dad (age 71 at the time) because of his age & that it was already a softball size tumor) but Dad was very fit prior to, so they tried Whipple as a "last ditch" effort. I still remember the surgeon coming out to us, his "footies" covering his shoes, stained with Dad's blood, he said Dad would survive the surgery but the tumor was "non-resectable".
@@shanew.williams Thanks for sharing. That had to be gut wrenching. The Whipple is such a TOUGH surgery. I'm still amazed that is done done, how it is done and how the body is able to survive this surgery. I think most people do not understand how vital that area of the body is so crucial to our very existence.
I just had my thyroid removed due to cancer. This is my 2nd rodeo with cancer. I've also been battling metastatic breast cancer. No one could believe that I reached 24 years with breast cancer. So many doctors have told me I should've been gone within 3 months. We DO know our own bodies. I love your spirit!
Me too with a very advanced thyroid cancer. I’m watch carefully for breast cancer since my sister had premenopausal breast cancer. She just passed of PC like my Dad at age 65.
@@MisguidedMeMissguidedCall it having money. Not everyone is a lawyer. Not everyone can afford to do what he did. Not everyone has the education, intelligence, and confidence to tell doctors what tests they want. Doctors might be more inclined to listen to certain types of patients over other types.
Poor person, rich person, everybody dies. This person was given a chance to push the boundaries for the rest of us. We will see where we are in 3-4 years! It is rare to be given this chance to be an advocate and not just a subject. I hope he will report back in 5 years cancer-free!
@@Lendingyourlight Steve Jobs refused treatment because he thought that a vegan diet would be enough. If being poor makes no difference, then why do some people start GoFundMe campaigns to get money to pay for their $200,000 cancer vaccine?
This guy’s intelligence is what saved his life. I’m a pretty successful person but I can honestly tell you that If I were in his shoes I would be toast.
Hs intelligence and money saved his life. You can be smart as hell but like he pointed out he had to fly to Japan at one point for treatment. Under the US Capitalist system, you pay or die. Often they care far more about the pay than your life. That is the norm, not the exception.
@@gettothepoint_already3858bingo, but even then... Plenty of big money people go through spending a ton to save their lives and still go from the illness like the rest of us. Then you got people like my grandfather and great uncle, brothers, both had colon cancer, both broke af, pretty much state benefits is how they got their medical care, both beat the cancer somehow. My grandpa, has also had a heart attack and a stroke, somehow can still walk around and talk just fine. Just depends on the person.
I don’t want any luxurious cars or a super big house, the only thing I want when I grow up is to have this kind of resources to detect different type of cancers in a simple way for me and my family. I’m genuinely glad that you detected your cancer in an early stage with almost no symptoms.
People have gone bankrupt while being treated for their ailments. What's the point of being cancer free when you have no money for food & shelter for your family?? I'm not talking about choosing between cancer tx vs luxuries.
There are people who can't afford BASIC health care and then there are people who have every test done in the world because they fear that they might have some health problem (The Kardashians had full body CT scans). In this instance, the man just happened to have pancreatic cancer. Most people who experience an elevated blood glucose along with some weight loss will NOT be dx'd with pancreatic cancer. I agree you should advocate for yourself but within reason. I would not recommend every person who has an elevated glucose and some weight loss get tested for cancer. That's insane. There would be year long waiting lists for CT and MRI machines.
If you have the money and want to spend it having yearly scans at private facilities, what's the problem? It's not affecting those "without basic healthcare." To be accurate? No one would knowingly opt for repeat full-body CT scans - if you didn't have cancer at the time of the first annual CT, you might after a few years! They'd be paying for MRIs, not CTs which expose you to tremendous radiation. Finally? ANY unintentional weight-loss in someone over the age of 40 is cancer until proven otherwise. It might not warrant an immediate full-body MRI, but it at least merits a detailed history to draw-out any other signs/symptoms, along with some screening labwork.
I learned a lot from your video, I am a primary care doctor from Denmark, thank you so much. I am so impressed by your calm and balanced presentation. I wish all the best for you. Jakob Holm MD
I knew I had cancer, I was a text book example. Yet my gyno was irritated with me and blew me off. I knew I had uterine cancer but she thought because my pap smear (for cervical) was clear that I was wasting her time. I found another doctor but the notes from the first doctor followed me. Doctors write things about you that influence others. The deck is stacked against you. As soon as I realized this doctor wasnt listening to me, I quit her. Meanwhile Im having almost constant bleeding and its taking its toll. I found a doctor, went to the appt and spit it right out and why I believed I had cancer. Something got her attention because she took a sample of my uterus. A simple procedure that took less than five minutes. I came back a week later for the results. She held my hands and said YOU HAVE CANCER. I said NO SHIT. I was so mad. I left her office, googled specialists in womens reproductive cancers. Luckily for me the only one in my state was 45 miles away. Ive had radiation and D&C with hormone therapy. No clue if Im cured, but Im alive. Since 2005.
When the time comes my self advocacy will be one last solo deep sea fishing trip. I even have a plan to ensure my boat is retrieved so that my boys can continue to use it.
My husband went through the SAME thing. They ran SO many tests, and said nothing was wrong. A week before he passed, a doctor came in the room and just like he was ordering a hamburger or something said” you have pancreatic cancer and we can do nothing for you, just go home and get comfortable”. NO kind of emotion at all. Turned around and walked out of the room. And, a week later my husband passed away in our home. It’s been 3 years and I’m still ANGRY!
The doctors said you won't make it to the end of the year, what did you say, screw them, well okay, you will still be dead in three months. Bravado does not cure pancreatic cancer.
So very true. You need to pay attention to your body, learn about diseases, get different opinions and ask questions. Like he said his doctor was brushing it off and said he was wasting his time. That is when you need to get a new physician.
@@echogl You can get all the doctors you want. You can take charge, blah, blah. But, with pancreatic cancer, you are still dead in 3 months. It also cycles so you get a bit better, then much worse, then a bit better, then much worse. So you can attribute all sorts of things to the improvement cycles as your body struggles to reset and survive.
To be in the medical field, you have to actually HAVE a Calling to it, AND that you actually like 'people'. Am very close to 70. The quality of 'doctors' have gone down (with so many 'good ones' having retired). There's a doctor shortage in my State. Political party has sucked 'so much money' OUT of social programs that were designated to care for the Elderly (who live 'alone', no family, and way under the poverty line). AT times I feel just "TOO sick" to do as you've implied-- everybody "help your OWN self" coz 'no one else is gonna care' (especially politicians, who view Elderly as "Cost Centers' when they are older. -- In my experience, 'doctors' were more educated, and intuitive. They used to be much MUCH MORE interested in the welfare of their patients than the 'Modern Contemporary' doctor NOW. The docs were MORE holistic, actually 'touched' you body and looked at your eyes when talking. It's cold rushed meat-factory lines now. Had one doc rush in, took to the computer, 'missed' looking at my human face... I just silently watched as he scrolled the machine; asked me how I was but was TOO MUCH in a hurry and asked the question *without* giving time to _answer the question_ ?! LOL "These" hurried-persons have had NO experience with my geriatric body (that experiences more complications than the usual). My "primary" is actually a level short of being full nurse? Hurry hurry hurry. Update on vaccinations, checks blood pressure (IF they remembered or had time to: or by logic maybe that's not a 'typical problem' seen in me?). There's just 'not' enough *time* available for ALL the patients needing to be helped in one day. No one in this region is into geriatrics --- and I've learned they've 'changed' what a geriatrician is about now. So, at ~70 yrs old, "I'm too young" for having a geriatrician see me? (okay..) At least in modern times, children still see a pediatrician, orrrr do they? .. LOL After USA 9-11, Medical field changed how medical records are kept. They can become hijacked, or hacked. You can miss an appointment because they need to Pay Ransom or your life's info goes Poof, while your identity can get stolen and passed around the dark web?! 😳It's all virtual, (and when I briefly actually 'saw' mine, there were important BIG mistakes!!!!). For the "LAST" test I will ever take of its kind, the doc gave me a drug class specifically reported NOT to give me. That *wrong drug* caused my whole body to feel extremely cold, chin and body periodically observably SHIVERING out of control for HOURS. It affected my brain scan, and was misdiagnosed BY side-effects of that-drug only. It was painful, and scary. ... Doc kept "apologizing" --- dude, you didn't properly read the chart!! too late!!! ... When I was a 4 yr old child getting operation to remove tonsils and adenoids, they botched the anesthesia!! Thought I was unconscious. Suddenly I noticed I was looking down at 'my body' on the operating table, as I floated and peered from behind the doctor's left shoulder. I saw my mouth being held open with the steely contraption. Wound up that I hemorrhaged-- and could "feel" the horrible things they were doing to my face and nose!! (All the while, they they 'thought' I was unconscious, OR that I was too little, so it didn't matter-- I wouldn't remember anything? ~1950s). Mark, thanks so much for reading (if you did)... I'm just 'nervous' and kind of scared being in my circumstance. I hope YOU are faring WELL... you and your loved ones. *ROGER* is and was very very Brave, and Brilliant in your Managing everyone-- including ignoring bad advice!! I admire him VERY much!!!! He should be proud of HIM self, for sure. He deserves an award 🏅for his research and for what he TAUGHT all those doctors (whom he paid? LOL 😂). Others in the future will be benefiting for what YOU learned in all this! Kudos You are a special man, Roger. And I noticed that you have a beautiful family...... Live Long and Prosper. ❤ 🤟 ... 🙏
As a retired RN with 50 years' experience in the US, Australia, and the UK, I endorse this message: your health is too important to trust to doctors. 72 yrs, in perfect health, thanks to staying away from docs. I just go to them once a year for blood tests. They don't particularly like it, but I'm in charge of my body - and you are too!
You took the words out of my mouth; I do the same and demand a copy of my blood tests. I told my son he should do the same as bloodwork tells you the story of what is happening inside. Always be super proactive! Prevention is the key! Eat well, sleep well, breathe well, hydrate well, balance your body, mind, spirit to be well.
As a retired RN with 50 years worth of experience, you probably know that allopathic medicine is not all that. Too bad my mother didn't. She was a cancer research nurse who died at 63....of cancer. How ironic is that!?
Yes, keep blood test copies. I let the doc prescribe, but sometimes I do not fill the prescription or take the drug prescribed, because they mis-diagnose. The older I get, the fewer times I need a doc.
@@sweetbeep I discovered that test in 1991 plus HemoCode food sensitivities test. There isn’t much I am not aware of in the long list of integrative and holistic alternatives
My dad was diagnosed at 78 yrs and had the whipple procedure and he lived for 11 yrs after. What got him was a infection with cdiff and waited too long to go to the hospital. I miss him every day.
@@NoodlesEaton He had developed an infection after his surgery and they had him on strong antibiotics for some time. Years later he was dealing with other issues as bladder cancer and that’s when he was back on the antibiotics.
My brother was told by three surgeons in Austin, Texas he had pancreas cancer and only 2% chance of living 2-years with a Whipple. We flew him up to Dr Charles Yeo who specializes in pancreas problems and Dr Yeo took care of him with zero surgical complications. That was 23 years ago and my bro is healthy as can be today! we all still keep in touch with Dr Yeo who not only is a super surgeon, but also a warm and wonderful person who is now Chairman of Surgery at Thomas Jefferson Hospital in Phili. Kudos to Dr Yeo!
A person I knew for 18 years just died of pancreatic cancer aged 57. She never complained about pains .She went for blood tests every three months she wasn't told anything from the Doctors. We had a great day on her 57 birthday . I saw her again in April 4 weeks after her 57th birthday. May came she said Doctor wanted her to get special tests. Next she was moved to the big city I didn't know why. I get a call she had Pancreatic Cancer She didn't have pain then either. They worked on her for months but told her family 6 months at most. She died 14th November 2023. Miss you my friend. ❤😂
I agree with this lovely man, I don't trust doctors, I'm going for an appointment in 2 hours to show him pictures of my stools, which are white with undigested food in it. I am 51 years old 7 and a half stone, with 3 years of headaches, 1 year of abdominal pain, back pain, nausea, vomiting and random rashes. I don't drink I don't smoke. I have spent 2 to 3 years begging them to listen to me. I am from Scotland UK 🇬🇧
ADVOCATE! Tell them all of your symptoms and write them down. Keep a log. You know your body. Good doctors listen and they have been overwhelmed in recent years with COVID, underfunding of NHS, etc. I wish you well and I understand. It's useful to have a person with you who can help advocate and listen too.
My father was diagnosed with pancreatic cancer in September 1997. He died in April 1998. They couldn’t do anything for him. It was a nightmare. I had liver cancer in 2019, had surgery in August that was followed up with Trans Arterial Chemo Embolization, over the next couple of years with no side effects. I’m still cancer free. I hope and pray something can be found to finally rid humanity of this horrible cancer that is so resistant to treatment. God bless you and keep you cancer free.
I love this story. I have been waiting for a Pancreatic cancer patient story for a long time. I'm so happy he was able to share this amazing story. I myself got the Galleri test, I also advocated for myself when I got sick, I studied so much about genetic testing, I did the prenuvo scan. These are great things I did about 7 months ago :) I am so happy Im alive :) I also used a timeline website to keep all bloodwork, pictures of my symptoms, and scans and it was super easy to share with my doctors to piece together everything. You have to fight for your life to get diagnosed.
The Galleria test is $949. There are different options for Prenuvo. For example, you can just get an MRI scan of your lower body with a full body scan being the most expensive, I believe in the $2k range.
Bless you for this brilliant video. People are so ignorant about the longterm chemo side effects and the fact the cancer is just dormant. The doctors don't explain things until it's too late. Everything is after the fact. Thanks for being specific on what you've learned. Please do more of these.
Your Doctors are members of your team. You are the captain of your team. Stay informed. This doesn’t mean that you can be an asshole, it means that you have a responsibility to learn what is going on and what you can do about it. I really appreciate this man’s dedication to his own understanding of his own body.
I've heard in Social research studies, that in the USA patients who DON'T have an advocate beside them when in treatment, are more likely to be treated 'badly' or ignored, or receive bare minimum 'needed for biological life only' kind of nursing-type care (done by only 1 of the 3 shifts in 24 hrs). It makes me sooo nervous, the older I get. I have NO one to call or rely-on IF I were to get sick. Have been scared of the 'maybe' question, and the 'what IF'? .. Over the years I've managed to tough things out, including times of 'being too sick' to go to a doctor appointment, or pharmacy. This world has severely changed, especially after USA 9-ll. Like people are saying, if you can't care for your own self, nobody's gonna. Every soul for its OWN self. I've REALLY been blessed, in that I've been able to stay away from medical-type visits (except for yearly compulsories, for my yearly 'scripts). There's a shortage in medical people in my State, (and the State I relocated from a few years ago now). MANY local doctors here have been retiring. The politicians have worked with zeal to gouge life resources that used to help people (elders) via social agencies. And some have ceased to exist-- ones that used to be able to help (ones in my particular situation and circumstance), are fewer with less-funding for 'more' people. (I'm grateful to say that I have relied on God as my Helper, and Hope with all sincerity that I would pass suddenly without realizing it: no pain, no medical drama. ... smile). Wishing you Wellness.
I had to keep pressing and finally found a doctor that listened. He ran a blood test and found VIPoma a very rare Pancreatic cancer. Had the Whipple Oct. 2022 and did not have to have Chemo or Radiation! So very blessed to have found it early and a doctor that listened!!!! YOU are your own advocate!!!!
My cousin died of pancreatic cancer, he lived for a couple of years. A couple of people I knew also died of it and I know one of them only lived about a year. I think they both had quite late diagnosis. I'm in the UK and our health service is collapsing. We do have some brilliant oncologists but our referral system is dreadful. People think it's free but we pay for this care. Thank you for your story. Trust your instinct, it's been good for you and kept you alive.
UK too. We have great doctors, but the time from a referral from GP (PCP in US) to see a specialist to intervention procedure is utterly dreadful. You are right. Our health system is collapsing.
Honestly as an American, your guy's healthcare systems sounds like our VA system (veterans affairs) that's the medical system we have over here that only veterans can use (mostly) and it's technically considered "universal healthcare" and it's mostly terrible. So I feel you, as that's the only system I use/can use.
I finger prick and test my blood sugar regularly as I’m hypoglycaemic. My endocrinologist told me if the levels go the other way do something about it and get pancreas mri scan etc.
Thanks mate, very interesting, I reversed Type 2 diabetes and like you it took research and no help from the doctors. I appreciated your comments on the doctors, very reasonable, gave me a better view/prospective. Your presentation was compelling, educated and sensible. Thank you Bob Australia
Our grandparents called it "SUGAR diabetes" and sugar is the key. We sapiens are not designed to consume 300 pounds of refined sugar per year (the U.S. average)!
I'm so happy you DID! As a nurse, I always tell people "Your health is YOUR responsibility" Doctors work within the confines of the insurance companies, and what THEY will allow, OR they sometimes try to talk you out of tests that you want. I do NOT knock physicians, but like anything else, you have some really good docs and some...not so much. You and your family are your biggest advocates. I tell people take CHARGE, research, find out things...tell the DOCTOR what you want...for YOU. While getting everything to flow like you did, is a dream for most of us, it does not mean people can't make some noise. Dr's aren't taught to prevent diaease, they are taught to treat it...BUT sometime by the time treatment is needed it is TOO LATE. I have fired several physicians, and I'd do it again if I need to. My mother passed from pancreatic Cancer when I was 15. I am now 64. That was the most devastaing period of my life. They didn't know nearly as much as they know now. Kudos to you! Good stuff, and thanks for telling all of us!
You are fortunate to have the financial means for this specialized care. Going to Japan is not an option for most. We must make this process mainstream in USA . Thank you for sharing your battle !! Keep going. I learned a lot👍🏼👍🏼👍🏼
A big thank you for this video. I took care of 3 cancer patients and learned the hard way that you advocate for yourself if you don't have someone who is really informed to talk to the doctors. Doctors often will dismiss symptoms and it is often too late when something is discovered. I hope you continue your health journey.
i live in a first world country that has health care, like most and i got early testing for bowel cancer. Saved my life and many of my fellow citizens, I am self employed, blue collar, no insurance. Glad Roger made it too!
Not available because time, testing, and current approved cancer treatments are big $$ money makers. Roger, what a gift this video is to the world. Bless you.
The VA should offer this immediately to all our veterans nationwide through the VA hospitals. They'll say "no budget," but then Biden will say "another $100 billion for Ukraine and Israel."
My son was gone so quickly in the middle of covid.he was fine but stomach issue off and on but one day it was nonstop pain he went to dr.4 weeks later gone. Your lucky you have resources and your smart enough to jump on health issues. Wishing you good health .ty for sharing your story. It's important to help people know what's available
Thank you for sharing your experience. My father passed from pancreatic cancer & was doing sauna’s prior. His Dr. told him NOT to go to the internet. Hopefully your sharing will save lives.
Thank you for this pragmatic approach of cancer, and as you say " we " are not statictics but individuals. Cheers from Belgium, as we are blessed with top medicine. Fair winds.
Thanks for sharing your story. I share your pain. Just before xmas 2021, I started having extreme nausea. Went to the ER after the 4th day, CT found a mass on the head of my pancreas. Cleveland Clinic Hillcrest Hospital. wound up developing jaundice, etc ... the mass had actually pinched off my bile duct. The righted that endoscopically, and the oncology team immediately got involved. You always wonder how you'd react, learning you have something life-threatening like this. I was actually suprosed by my response ... very little fear, lots of anger. Took it personally. Somewhere between stage II and III, based on the number of lymph nodes involved. PET and MRI found that it had not metastasized ... was still central to the pancreas. Discussed with the oncologist and told them that if it would give me 1/2 a chance, I intended to klick its ass. Told them to go as aggressive as they wanted with the treatment ... pull out all the stops. 6 rounds of vicious chemo, which shrunk the mass by >50%. A whipple procedure followed to remove the affected area and biopsy all surrounding areas. Then 6 more rounds of the vicious chemo. Like you, some lasting effects, especially neuropathy. But, also like you, am still cancer-free now, going on a year out from the surgery. Oncologist has rolled back my surveillance interval from 3 to 6 months now. I was totally unaware of the testing protocols you describe, and am happy to know about that now. Will definitely share your story with my family and begin researching those options for ourselves. Very happy you had such a great outcome. My main takeaway from this challenge is that attitude is everything. Commit fully to the fight. Hold nothing back, look under every rock, keep beating the bushes. There are solutions out there. Wishing you continued good health in the future. 😊
Grateful for this presentation and all the comments. My dad, who was never sick, died of pancreatic cancer at 67. The only thing that had a cloud on his health was that he took high blood medication for 25 years. Medication that was never adjusted or changed. My 2 brothers and I have outlived our dad by12, 14, 15 years. However, this type of cancer diagnosis is never far from our minds.
Been there, done that 21 years ago, as a misdiagnosed breast cancer patient. I appreciate your words of wisdom on self health advocacy. Wish you continued health and wellness 🎉
I hear you as I was very sick for one year during Covid! It took my doctor just shy of one year to finally listen to me. The healthcare system was overwhelmed with Covid during my cancer journey. I relented with my quest to find out what was wrong. If I hadn’t of been my own advocate; I wouldn’t be here. 💯🇨🇦
This video is a blessing, so many things you said are so true. It was very interesting. The one thing I wanted to add is that so many people die, or the cancer progresses to the point of no return while they are waiting on insurance approval. I know you know this. You’re fortunate you had the personal resources. Yes…out of pocket expenses that probably a lot of people can’t afford.I’m an RN, worked oncology for 5 years, and have seen and know the process. One thing you said that really hit home is that you said something to the effect that the medical world is overwhelmed, that’s so true and it is a hot mess out here.Thank you for doing this video and thank God you were such a good self advocate.
Roger, you hit the nail on the head when you mentioned climbing A1C and weight loss. A friend who was a healthy eater started to have climbing A1C. She told me she was pre-diabetic and I could not believe it given her size and diet. Then, this 110 pound woman dropped about 15 pounds. A well known hospital in the DC area totally disregarded the A1C- weight loss connection. She had Stage 4 and passed a year later (my cousin is a 5 year survivor). I just hope the medical community will begin to acknowledge this combo as possible pancreatic cancer. As a side, I have always disliked the term 'cancer free'. It should not be used as we all likely have some cancer cells lurking about. Perhaps 'cancer undetectable' is more on point. Best to you and good for you to take charge with your own health.
Cancer feeds off sugar, specifically glucose. Certain brain cancers they have you do carnivore during treatment. Since having 2 cancers, high risk for getting pancreatic cancer and having had a brain bleed, I’ve turned to carnivore burning keytones for fuel rather than glucose that cancer can thrive on. Thanks for this video. I think you’re right that so many would not have been able to go your route due to expenses. Glad you were able to. Your a success I needed to here!!
Amino acids also feed cancer, especially one called glutamine. In fact, cancer cells have a high demand for glutamine. So going on a keto/carnivore diet is not the miracle cure for everything including cancer people claim it is.
You are SO my hero!!! I too am very proactive about my health and I don't care that I am annoying to my doctors! This is an excellent message to everyone everywhere.
Very sobering view of the importance of 'personal responsibility'. To be effective, that quality seems to involve incredible determination and a sense of self-worth bordering on arrogance. I have never had a cancer diagnosis, but I am glad I watched this in the event I ever do.
Well said. If everyone talked to a dozen oncologists, the system would break. I live in Canada where the distribution of health care is more equitable than in the US. My sister is a burnt out oncology nurse. There is a limited amount of help to go around. Also, "do your own research" is fine if you're a discerning self- educator. That phrase is also bandied about by ignorant conspiracy theorists, so it's loaded.
My aunt had pancreatic cancer for over 20 years. Her situation was different: she was sick for a couple years starting end of 1970s. They scanned her and did blood tests and found nothing. She lost weight and felt bad for a few years till they were finally able to diagnose her with what they called a "super slow growing" pancreatic cancer. She had a tiny tumor for a very long time. Underwent chemo several times which made her sicker. I remember visiting her and she was in bed the whole time feeling awful. She suffered so much for 20 years and how I wish that she had modern medicine back then that may have helped her in better ways. RIP my beautiful dear Auntie. Bless you, Roger. I'm praying for you and your journey.
Doctors don't know everything. I always have had to push my doctors to give me the care that I need. You have to be your own advocate. Thank you for sharing your story.
Fantastic material! With a group of doctors, who are so frustrated about the healthcare system I have just started a new startup company Agenox to fill the gap described in this great material. What I hear here is just confirming our worries about the system failing us all. Thank you!
Hi Roger. Thank you so much for taking the time to share your journey and valuable information and new potential preventative measures. I'm a 2-time cancer patient with a predisposed genetic condition that makes me susceptible to a variety of cancers. Although I may not have the financial means to replicate what you do, being well informed and be the CEO of my own health is one big lesson I learned from you today. I wish you all the best in your health!
Roger is a very intelligent and inquisitive man and probably VERY RICH . Most of us are not . We rely on doctors. This gentleman decided to take his fate into his own hands. Well done !!
My late Son told me "I tried to tell them that there was something wrong with my stomach, but they wouldn't listen". His words haunt me to this day. He died in 2018 from stomach cancer. Way too young.
Thank you. Veteran here and the V A will not even entertain thoughts about liquid biopsies. I have no other medical insurance and only disability coverage. Both sister, brother and mom had pancreatic cancer. Some of us are sentenced to die by our doctors. I’m happy for you and wish you a long life.😊
Thank you for your service and look up Dr Berg. Bottom line - cut out processed foods and carbs - eat meat and vegetables and do intermittent fasting. Food truly IS medicine. You can beat this girl, don’t give up! You can take the steps so you don’t even need our crappy healthcare. Love and prayers my friend!
"Stop bugging me about this?" WTF? Best wishes to you and your family and thank you so much for sharing your story. You have undoubtedly saved lives. Assuming they have the out of money to try to save their own life.
Such a great video. Over the last dozen years, I’ve changed my diet, exercise a lot, sauna, looking now for infra red lights, supplements. Last year I had a dexa scan showed some bone loss. Refused medications just did my research. I watch Dr Attia and many others daily. Yes Drs are there for tests that you request but they don’t know much…it’s only the beginning.
I’m so happy you are cancer free! And that you had the insurance and the means to get the needed treatment. We lost my brother-in-law to pancreatic cancer but he was one of the unfortunate low income patients relying on state Medicaid Insurance. That dramatically reduces the quality of care in most cases.
Thank you for this video and I wish you to stay healthy. I am a nurse and so many people don't ask questions or stay with a physician that they don't even like. Being informed, knowing your body, getting information so you can make the best decisions is so important.
Some doctors tell you To EAT ANYTHING YOU WANT when my mom had colon cancer And Dad had prostate cancer They'd eat barbecue and other things😢 Both died at 79 8 years apart
Hi pancreatic cancer is really hard to diagnose. My husband has inoperable pancreatic cancer but hes never had any changes in his blood sugar levels. The GP was concerned about his weight loss. We live in England and the NHS organised scans , PET scans bloods .biopsies and within two weeks chemotharapy. Who knows what the future will hold , but under the NHS the future is equal and thats so important when you face such a serious diagnosis. I wish you every luck for the future.
I would like tp wish you the best in your venture. You are exactly what we need. An intelligent, eager, courageous.pwrson who can take the challenge and demand more than the FDA allows. I will pray for you. I am 4 yrs.out from breast cancer. My husband died of his Leukemia. I have always wondered wht they can't take the pancreas out. My younger brother lived 5 yrs. With stage IV kidney cancer using immunotherapy. He was their geuni pig. Would've turned 60. We will get to the cure...I hope before too long. God Speed!
Thank you 🙏 My father died a horrible death of pancreatic cancer. Because his children were scattered around the world, we didn’t realize how bad it was until the end. He downplayed it during our telephone calls.
My brother in law was in great pain but when he spoke to his children on the phone he changed his voice instantly to sound cheerful and strong and then went to his painful self as soon as he put the phone down. I had to tell them about it.
Hi Roger - from Australia here. I've been watching your channel for a bit. You are SO informative- the data you provide i am sure will save lives. Bless you thank you & glad you're here.
To Learn More About Pancreatic Cancer → tinyurl.com/ycy5wfx3
ultrasound .....would of found it....super cheap test
@@yellowmoon9308 But like the video - said - you have to have the signs plus you have to have a good doctor - some doctors today - just ship over things -
Why bother. You have been diagnosed you have three months. You are over 70 they recommend against chemo and tell you it buys you two weeks anyway.
@@yellowmoon9308 Not necessarily. Trust me, I had one done today and asked that very question!
@@realemonful I wish the Roger the best. I work with doctors for 40 years....one nearly killed by daughter recently..."let's check it in 3 months"....I called her back...demanded surgery....she had ovarian cancer in her 30s....yes I'm a doc.
Thank you for this video. I'm a retired nurse. My husband had his complete yearly physical and got the A OK " you're in great health" from his primary. He took off his shirt to change into his work clothes and I immediately called his Dr and had to demand a recheck. He literally had EVERY sign of breast cancer. They acted as if I was a nut but scheduled him for another appointment. A week later the biopsy showed an aggressive form of cancer that had spread to lungs, thyroid etc. After surgeries, radiation and chemo he then had 2 heart attacks. He is doing great now but I accompany him to every appointment much to the irritation of the Dr's. If left to the Healthcare system,he'd be dead.
True words, indeed.
Scary that we all get physicals, but they never routinely look at our skin or bodies… Heart auscultation is only for 10 seconds
Your a very good wife and person. Your husband is a blessed man with you !
They want us to go to specialists for everything. Regular dr is not going to address everything..they are called general for a reason.
Oh Denise, how terrifying. Kudos to you for being such a sharp clinician. You're 100% right - we kid ourselves that we "passed the physical with flying colours," when it's merely a snapshot in time - and one that tests for a limited number of things. You sound like a loving couple who've been through a lot together!
"Your health is too important to leave to a doctor." Very wise words.
Yes, that’s my motto!
Yeah, let’s leave it to a “lawyer “.😂😂😂😂😂😂
❤
But they say the insurance companies won't pay for the tests unless there's a real symptom to check for
YES! It took me MANY years to figure out most are all just greedy business people.
I was in real bad shape when I went to emergency five years ago. They knew it was pancreatic, but were puzzled about something. They kept me there for 45 days, doing all sorts of tests. Finally, they released me into hospice, 56 years old. After 3 months, I was still here. They asked to see me again, and decided on 3 months chemo, then surgery to remove the affected area, then 3 more months of chemo. Next week, a CT scan, and if clear, it will be five years. Feeling very strong, and very fortunate.
Praise God! Keep living! Live strong 💪
Did they actually correctly diagnose you ?
Bless you. Thank you for helping everyone and with all the important info.
@marlenegold280 Apologies for not being very clear about some of the details. The reason the oncologist originally kept me for 45 days was that they knew it was pancreatic, but they weren't sure if it had metastasized into the liver. Some tests showed that it had, but other tests like biopsies were confusing. They recommended that I not go through chemo because it would just make my last days more difficult.
They released me into hospice, and about 20 days in, I was feeling so bad that I knew I would not live to see the morning. Fortunately, I did. After another 60 days, I called the oncologist. Her team couldn't believe it. They ran tests, and there was no longer evidence of metastasizing into the liver. (Misdiagnosis?). They then were eager to treat the pancreatic cancer. I am now diabetic, but after 5 years, free of cancer. I sincerely wish the best for all of you and your loved ones.
@@cmlmaintenance2497
What a good outcome… considering the alternative.
I wish you a good quality life!
'' Your health is too important to entrust to a doctor.'' Excellent!
AMEN ❤❤❤❤
I trust doctors
100%
My friend was diagnosed with stage 4 pancreatic cancer. She was told she had 9 months or less to live and ended up living another 7 years
Praise the Lord!
My husband’s niece was diagnosed with pancreatic cancer, stage 3. She faithfully did all the treatments, the radiation series, the chemo 9 rounds. It’s about 9 months now, she’s in a coma and in hospice.
**edited later to add - she died this weekend. Never came out of coma.
Did she have treatment? (7 year survivor)
That’s EXTREMELY rare even with the horrific Whipple procedure.
@@barbarabrown9269condolences .
My brother was diagnosed with Pancreatic c and survived 17 years. Keep the faith!!
Caught it early?
Mine was stage 2. I'm alive after 20 years. Some day it's incurable but that's not true. Some are lucky enough like me.
I think most catch it too late.
@@Veronica-tn2xcfantastic
Good work Roger! I’m glad you were able to afford the things that have made a difference
Stage 2 diagnosis is really rare. It is usually an accident... but not in this case. Most people I've heard of don't know until Stage 4. Stage 3 is still quite uncommon. This man's curiosity and stubborness saved his own life.
He knows his body and lost weight and his blood sugar was slightly elevated, so he requested the Galleri test which was positive for cancer.
@@echogl correct. but recall the MD.initially said "it's normal". To which he pushed back "NFW iis this normal...why now?" To which MD.said, reluctantly "OK, let's check in 3. months". The patient insisted, it wasn't the Dr's idea to come back in 3 months.
If he hadn't gone back in 3 months, instead in a year, as was normal, he's dead. That's the WHOLE FRIGGIN POINT of this vid. You know your body, insist upon follow up tests. Well, the (implied) second point is if you're not rich, you can't afford the follow up tests, (standard of care) so again you're dead.
100%. Good for him.
He didn't gat a Colonoscopy at 50 which might have caught it.
@@shlby69m how would a colonoscopy find Pancreatic cancer prior to stage 4? I've never heard of a Pancreatic picked up at a routine colonoscopy.
He left out what made him exceptional: he evidently has enormous financial resources that not only afforded him the ability to travel and to handle just any out of pocket expense, but apparently the control of vast stretches of
free time to endlessly explore all options, and on his own timetable, be it an MRI the very next day or whatever. Few salaried full-time working people would be at liberty to mobilize such limitless time unless they quit their jobs.
Yup,that's what I'm taking away from this. It seems as though the more affluent the better chances of survival . He even mentioned "standard of care". To me that's scarier than the disease itself.
He’s a venture capitalist lawyer, and he sounds smart. He’d be on the top of his game.
I should add that a close friend just died of what had been, pre-posthumously, undiagnosed pancreatic cancer. He coincidentally had severe heart disease that masked what was insidiously killing him. His doctor put the picture together only in his final days. I'm not sure my friend was even told he had the disease before he slipped into a coma caused by a cerebral blood clot that resulted from a deep vein thrombosis in his leg (a cardinal sign of pancreatic cancer) traveling to his brain.
Steve Jobs had all the financial resources in the world. So ?
@nickbardan3867 It wasn't a question of money, it was Jobs' own bad decision. Jobs had a form of operable pancreatic cancer that was caught early but he declined to have the surgery that was recommended to him. Whether or not such a timely operation would have saved his life cannot be known with certainty, but it would have afforded him a better chance at survival.
I'm a retired nurse. There is no better Doctor than a well inform, educated patient. You must advocate for yourself and your loved ones.
My dad had Pancreatic Cancer and was treated in Boston, MA. He had the Whiffle Procedure at the age of 83 and lived 8 years cancer free when he passed away in 2021. I hope your future is bright and your life long!
Which hospital did he go to? I knew someone that went to Dana Farber for pancreatic cancer. They screwed around deciding whether or not to do chemo and surgery until he died at the hospital. Six months from diagnosis to death.
Beth Israel-Dr. Tara Kent
My mom same thing but died 3 months later at 70 . In Boston with a very good surgeon but it was not cured it spread to her diodum how ever you spell it.
If my memory is correct, a "WHIPPLE" is taking out parts of 5 organs.
@@maryreardon6512 they did it on my mom did no good. The doctor thought he got it all off the head of her pancreas, but it spread to her diodum . Complete failure.
I survived pancreadic Cancer FIVE years ago.
Did you have the Whipple? Chemo/radiation?
I had the Whipple a year ago and did not have to have Chemo or radiation.
You certainly had a journey. Thank You for sharing this information.
There is a cure for a lot of cancers. However, Big Pharma would go out of business.
What is the Whipple??
As a 2x cancer patient at 44 this was the most informative Patient Story I’ve watched. Roger, I wish you all the very best in your health!
So informative. F those doctors yadda yadda. Still dead in three months.
My Mom’s pancreatic cancer was found during a CT scan for something else back in 2006 and found a spot on the tail.very early stages. Had the tail removed, no other treatment needed. She followed up with oncologist for 5 years. All clear. In 2014 she started experiencing symptoms. Cancer returned. This time on the head by her bile duct and was inoperable because the mass invaded blood vessels. We lost her in Oct. 2016. What truly killed her was the chemo. Cancer never spread to other organs. What we did learn is that pancreatic cancer is not curable. If I knew then what I know now I’d had encouraged her to continue f/u and scans. With that said tho, we still got 10 years which is not the norm. For this gentleman and anyone else who caught this beast early, continue your f/u with oncologist for the rest of your blessed life. I wish you many years of good health and embrace your blessings.
What is f/u?
@@chadbosko8935 Follow-up
Follow up
My daughter refused chemo. She knew it was terminal, so she just carried on as usual until she entered hospice care. A terrible way to die. Here’s hoping they find a cure. People are so brave.❤
@@anitastanley8986
💜🤝🙏 I've lost my daughter to covid!
As someone who had Whipple Surgery 16 years ago for very early stage of Pancreatic cancer, it is nice to read someone else's journey. I went through most of your thought processes and it worked for me. Like you, I took ownership and responsibility of my prognosis and all of the good and bad consequences. There have been times when my journey has been challenging, 3 bouts of bladder cancer surgery and treatment, surgery to place a stent in the resect portion of my liver duct to open, a hugely compromised immune system and recently confirmed diagnosis of Non Celiac Gluten Insensitivity. In March, I celebrated another birthday ( mid-70's) and like I tell most people, I LIVE EVERYDAY as IF IT WERE MY LAST.
I had my Whipple 3 weeks after my PC diagnosis. Terrifying at age 62 with my first grandchild on the way. Post surgery pathology showed it was any early stage, non cancerous neoplasm. My GI doctor dragged his feet until I asked to be referred to a teaching hospital. I’m 78 now with “manageable” symptoms that require very expensive medication because of everything they took from my digestive system. I can’t say I survived it because I never actually had it. But, I’m glad to be here.
@@janetmyers3729 Albeit I know it can be rough at times, it warms my heart to read of another person who has survived this intense dramatic surgery. Hope you've be able to enjoy times with your first grandchild
jimsba1951 Surgeons didn't even want to risk Whipple surgery on my late dad (age 71 at the time) because of his age & that it was already a softball size tumor) but Dad was very fit prior to, so they tried Whipple as a "last ditch" effort. I still remember the surgeon coming out to us, his "footies" covering his shoes, stained with Dad's blood, he said Dad would survive the surgery but the tumor was "non-resectable".
@@shanew.williams Thanks for sharing. That had to be gut wrenching. The Whipple is such a TOUGH surgery. I'm still amazed that is done done, how it is done and how the body is able to survive this surgery. I think most people do not understand how vital that area of the body is so crucial to our very existence.
@@jimsba1951 Absolutely. Back then i had no idea that the pancreas is almost totally inaccessible, thus, as you said, a very "tough" surgery.
I just had my thyroid removed due to cancer. This is my 2nd rodeo with cancer. I've also been battling metastatic breast cancer. No one could believe that I reached 24 years with breast cancer. So many doctors have told me I should've been gone within 3 months. We DO know our own bodies.
I love your spirit!
God bless you 🙏🏽
Me too with a very advanced thyroid cancer. I’m watch carefully for breast cancer since my sister had premenopausal breast cancer. She just passed of PC like my Dad at age 65.
I'm so sorry 🙏 GOD bless you and your family ❤❤❤❤
Warrior. You are awesome! We do know our bodies.
You are so lucky to be able to afford the liquid biopsy, next day scan, and hire/fire of doctors as needed.
@@MisguidedMeMissguidedthanks Boomer
@@MisguidedMeMissguidedCall it having money. Not everyone is a lawyer. Not everyone can afford to do what he did. Not everyone has the education, intelligence, and confidence to tell doctors what tests they want. Doctors might be more inclined to listen to certain types of patients over other types.
@@CharlieRomeoKiloSix5ok groomer
Came here to say the same thing. Sadly, most will never have access to this level of treatment, no matter how hard they work.
Poverty can kill u...they will not listen to u. I wish his advice was for everyone...sadly it's not... believe me!!!!
A poor person will definitely die from this. You are fortunate to have the means and mind to do this. All the best to you.
Poor person, rich person, everybody dies. This person was given a chance to push the boundaries for the rest of us. We will see where we are in 3-4 years! It is rare to be given this chance to be an advocate and not just a subject. I hope he will report back in 5 years cancer-free!
Agreed.
Pancreatic cancer kills most people, rich or poor. Patrick Swayze died from it for example.
Poor has nothing to do with it. Steve Jobs died from pancreatic cancer so your statement was ignorant
@@Lendingyourlight Steve Jobs refused treatment because he thought that a vegan diet would be enough. If being poor makes no difference, then why do some people start GoFundMe campaigns to get money to pay for their $200,000 cancer vaccine?
This guy’s intelligence is what saved his life. I’m a pretty successful person but I can honestly tell you that If I were in his shoes I would be toast.
No I believe if you had reason to suspect a problem, you’d be diligent also.a
Hs intelligence and money saved his life. You can be smart as hell but like he pointed out he had to fly to Japan at one point for treatment. Under the US Capitalist system, you pay or die. Often they care far more about the pay than your life. That is the norm, not the exception.
I love your reply.
@@gettothepoint_already3858bingo, but even then... Plenty of big money people go through spending a ton to save their lives and still go from the illness like the rest of us. Then you got people like my grandfather and great uncle, brothers, both had colon cancer, both broke af, pretty much state benefits is how they got their medical care, both beat the cancer somehow. My grandpa, has also had a heart attack and a stroke, somehow can still walk around and talk just fine. Just depends on the person.
Thanks for the motivation. I am going to the nature trail for a run this morning.
My brother is an anesthesiologist and he would wholeheartedly agree with you about not trusting docs.
"Health is too important to trust to a doctor." Truer words have rarely been spoken!!!
I don’t want any luxurious cars or a super big house, the only thing I want when I grow up is to have this kind of resources to detect different type of cancers in a simple way for me and my family.
I’m genuinely glad that you detected your cancer in an early stage with almost no symptoms.
People have gone bankrupt while being treated for their ailments.
What's the point of being cancer free when you have no money for food & shelter for your family??
I'm not talking about choosing between cancer tx vs luxuries.
There are people who can't afford BASIC health care and then there are people who have every test done in the world because they fear that they might have some health problem (The Kardashians had full body CT scans).
In this instance, the man just happened to have pancreatic cancer.
Most people who experience an elevated blood glucose along with some weight loss will NOT be dx'd with pancreatic cancer.
I agree you should advocate for yourself but within reason.
I would not recommend every person who has an elevated glucose and some weight loss get tested for cancer.
That's insane.
There would be year long waiting lists for CT and MRI machines.
@@mollymelena6104I
If you have the money and want to spend it having yearly scans at private facilities, what's the problem? It's not affecting those "without basic healthcare."
To be accurate? No one would knowingly opt for repeat full-body CT scans - if you didn't have cancer at the time of the first annual CT, you might after a few years! They'd be paying for MRIs, not CTs which expose you to tremendous radiation.
Finally? ANY unintentional weight-loss in someone over the age of 40 is cancer until proven otherwise. It might not warrant an immediate full-body MRI, but it at least merits a detailed history to draw-out any other signs/symptoms, along with some screening labwork.
@mollymelena6104
Well good thing he did get get tested. He found his cancer fairly early
I learned a lot from your video, I am a primary care doctor from Denmark, thank you so much. I am so impressed by your calm and balanced presentation. I wish all the best for you. Jakob Holm MD
I love how he promotes self advocacy.. I did that in an aggressive manner, my cancer is inactive at this point, it’s the best advice you can take!!
Lol, he seems like a competent lawyer so he'd know about self-advocacy more than most.
I knew I had cancer, I was a text book example. Yet my gyno was irritated with me and blew me off. I knew I had uterine cancer but she thought because my pap smear (for cervical) was clear that I was wasting her time. I found another doctor but the notes from the first doctor followed me. Doctors write things about you that influence others. The deck is stacked against you. As soon as I realized this doctor wasnt listening to me, I quit her. Meanwhile Im having almost constant bleeding and its taking its toll. I found a doctor, went to the appt and spit it right out and why I believed I had cancer. Something got her attention because she took a sample of my uterus. A simple procedure that took less than five minutes. I came back a week later for the results. She held my hands and said YOU HAVE CANCER. I said NO SHIT. I was so mad. I left her office, googled specialists in womens reproductive cancers. Luckily for me the only one in my state was 45 miles away. Ive had radiation and D&C with hormone therapy. No clue if Im cured, but Im alive. Since 2005.
When the time comes my self advocacy will be one last solo deep sea fishing trip. I even have a plan to ensure my boat is retrieved so that my boys can continue to use it.
Imagine being this confident. How many lives would be saved, by themselves!
My husband went through the SAME thing. They ran SO many tests, and said nothing was wrong. A week before he passed, a doctor came in the room and just like he was ordering a hamburger or something said” you have pancreatic cancer and we can do nothing for you, just go home and get comfortable”. NO kind of emotion at all. Turned around and walked out of the room. And, a week later my husband passed away in our home. It’s been 3 years and I’m still ANGRY!
Linda, I'm so sorry. May your husband rest in peace.🙏🕊❤️
Im sorry to hear that
I’m so sorry you were treated this way. There is no excuse for such horrible treatment. Some people can be so cold.
You are the ONLY person responsible for your healthcare. What a great video.
The doctors said you won't make it to the end of the year, what did you say, screw them, well okay, you will still be dead in three months. Bravado does not cure pancreatic cancer.
So what. You still have three months.
So very true. You need to pay attention to your body, learn about diseases, get different opinions and ask questions. Like he said his doctor was brushing it off and said he was wasting his time. That is when you need to get a new physician.
@@echogl You can get all the doctors you want. You can take charge, blah, blah. But, with pancreatic cancer, you are still dead in 3 months. It also cycles so you get a bit better, then much worse, then a bit better, then much worse. So you can attribute all sorts of things to the improvement cycles as your body struggles to reset and survive.
To be in the medical field, you have to actually HAVE a Calling to it, AND that you actually like 'people'. Am very close to 70. The quality of 'doctors' have gone down (with so many 'good ones' having retired). There's a doctor shortage in my State. Political party has sucked 'so much money' OUT of social programs that were designated to care for the Elderly (who live 'alone', no family, and way under the poverty line).
AT times I feel just "TOO sick" to do as you've implied-- everybody "help your OWN self" coz 'no one else is gonna care' (especially politicians, who view Elderly as "Cost Centers' when they are older. -- In my experience, 'doctors' were more educated, and intuitive. They used to be much MUCH MORE interested in the welfare of their patients than the 'Modern Contemporary' doctor NOW. The docs were MORE holistic, actually 'touched' you body and looked at your eyes when talking. It's cold rushed meat-factory lines now. Had one doc rush in, took to the computer, 'missed' looking at my human face... I just silently watched as he scrolled the machine; asked me how I was but was TOO MUCH in a hurry and asked the question *without* giving time to _answer the question_ ?! LOL
"These" hurried-persons have had NO experience with my geriatric body (that experiences more complications than the usual).
My "primary" is actually a level short of being full nurse? Hurry hurry hurry. Update on vaccinations, checks blood pressure (IF they remembered or had time to: or by logic maybe that's not a 'typical problem' seen in me?). There's just 'not' enough *time* available for ALL the patients needing to be helped in one day.
No one in this region is into geriatrics --- and I've learned they've 'changed' what a geriatrician is about now. So, at ~70 yrs old, "I'm too young" for having a geriatrician see me? (okay..) At least in modern times, children still see a pediatrician, orrrr do they? .. LOL
After USA 9-11,
Medical field changed how medical records are kept. They can become hijacked, or hacked. You can miss an appointment because they need to Pay Ransom or your life's info goes Poof, while your identity can get stolen and passed around the dark web?! 😳It's all virtual, (and when I briefly actually 'saw' mine, there were important BIG mistakes!!!!). For the "LAST" test I will ever take of its kind, the doc gave me a drug class specifically reported NOT to give me. That *wrong drug* caused my whole body to feel extremely cold, chin and body periodically observably SHIVERING out of control for HOURS. It affected my brain scan, and was misdiagnosed BY side-effects of that-drug only. It was painful, and scary. ... Doc kept "apologizing" --- dude, you didn't properly read the chart!! too late!!!
...
When I was a 4 yr old child getting operation to remove tonsils and adenoids, they botched the anesthesia!!
Thought I was unconscious. Suddenly I noticed I was looking down at 'my body' on the operating table, as I floated and peered from behind the doctor's left shoulder. I saw my mouth being held open with the steely contraption. Wound up that I hemorrhaged-- and could "feel" the horrible things they were doing to my face and nose!! (All the while, they they 'thought' I was unconscious, OR that I was too little, so it didn't matter-- I wouldn't remember anything? ~1950s).
Mark, thanks so much for reading (if you did)... I'm just 'nervous' and kind of scared being in my circumstance.
I hope YOU are faring WELL... you and your loved ones.
*ROGER* is and was very very Brave, and Brilliant in your Managing everyone-- including ignoring bad advice!!
I admire him VERY much!!!! He should be proud of HIM self, for sure.
He deserves an award 🏅for his research and for what he TAUGHT all those doctors (whom he paid? LOL 😂). Others in the future will be benefiting for what YOU learned in all this! Kudos
You are a special man, Roger. And I noticed that you have a beautiful family......
Live Long and Prosper. ❤ 🤟 ... 🙏
As a retired RN with 50 years' experience in the US, Australia, and the UK, I endorse this message: your health is too important to trust to doctors. 72 yrs, in perfect health, thanks to staying away from docs. I just go to them once a year for blood tests. They don't particularly like it, but I'm in charge of my body - and you are too!
You took the words out of my mouth; I do the same and demand a copy of my blood tests. I told my son he should do the same as bloodwork tells you the story of what is happening inside. Always be super proactive! Prevention is the key! Eat well, sleep well, breathe well, hydrate well, balance your body, mind, spirit to be well.
As a retired RN with 50 years worth of experience, you probably know that allopathic medicine is not all that. Too bad my mother didn't. She was a cancer research nurse who died at 63....of cancer.
How ironic is that!?
Yes, keep blood test copies. I let the doc prescribe, but sometimes I do not fill the prescription or take the drug prescribed, because they mis-diagnose. The older I get, the fewer times I need a doc.
Yes. And a hair mineral/heavy metal test might help too
@@sweetbeep I discovered that test in 1991 plus HemoCode food sensitivities test. There isn’t much I am not aware of in the long list of integrative and holistic alternatives
My dad was diagnosed at 78 yrs and had the whipple procedure and he lived for 11 yrs after. What got him was a infection with cdiff and waited too long to go to the hospital. I miss him every day.
He lived a full life shouldn’t be that sad honestly
He was lucky!
CD. Had he been taking antibiotics prior to his hospitalization?
@@NoodlesEaton He had developed an infection after his surgery and they had him on strong antibiotics for some time. Years later he was dealing with other issues as bladder cancer and that’s when he was back on the antibiotics.
My brother was told by three surgeons in Austin, Texas he had pancreas cancer and only 2% chance of living 2-years with a Whipple. We flew him up to Dr Charles Yeo who specializes in pancreas problems and Dr Yeo took care of him with zero surgical complications. That was 23 years ago and my bro is healthy as can be today! we all still keep in touch with Dr Yeo who not only is a super surgeon, but also a warm and wonderful person who is now Chairman of Surgery at Thomas Jefferson Hospital in Phili. Kudos to Dr Yeo!
A person I knew for 18 years just died of pancreatic cancer aged 57. She never complained about pains .She went for blood tests every three months she wasn't told anything from the Doctors. We had a great day on her 57 birthday . I saw her again in April 4 weeks after her 57th birthday. May came she said Doctor wanted her to get special tests. Next she was moved to the big city I didn't know why. I get a call she had Pancreatic Cancer She didn't have pain then either. They worked on her for months but told her family 6 months at most. She died 14th November 2023. Miss you my friend. ❤😂
Was your friend vaxxed?
@@nevadaoakie6551I’m starting to wonder about this too why are so many young people getting cancer
I’m sorry for your loss.
I agree with this lovely man, I don't trust doctors, I'm going for an appointment in 2 hours to show him pictures of my stools, which are white with undigested food in it.
I am 51 years old 7 and a half stone, with 3 years of headaches, 1 year of abdominal pain, back pain, nausea, vomiting and random rashes.
I don't drink I don't smoke.
I have spent 2 to 3 years begging them to listen to me.
I am from Scotland UK 🇬🇧
That's terrible! I hope you are OK again now, God Bless
ADVOCATE! Tell them all of your symptoms and write them down. Keep a log. You know your body. Good doctors listen and they have been overwhelmed in recent years with COVID, underfunding of NHS, etc. I wish you well and I understand. It's useful to have a person with you who can help advocate and listen too.
My father was diagnosed with pancreatic cancer in September 1997. He died in April 1998. They couldn’t do anything for him. It was a nightmare. I had liver cancer in 2019, had surgery in August that was followed up with Trans Arterial Chemo Embolization, over the next couple of years with no side effects. I’m still cancer free. I hope and pray something can be found to finally rid humanity of this horrible cancer that is so resistant to treatment. God bless you and keep you cancer free.
I’m so sorry. Must have been horrible watching your dad leave earth 😢 I am not looking forward to the day I have to as well
I love this story. I have been waiting for a Pancreatic cancer patient story for a long time. I'm so happy he was able to share this amazing story. I myself got the Galleri test, I also advocated for myself when I got sick, I studied so much about genetic testing, I did the prenuvo scan. These are great things I did about 7 months ago :) I am so happy Im alive :) I also used a timeline website to keep all bloodwork, pictures of my symptoms, and scans and it was super easy to share with my doctors to piece together everything. You have to fight for your life to get diagnosed.
How much was the Galleri test and prenuvo scan?
The Galleria test is $949. There are different options for Prenuvo. For example, you can just get an MRI scan of your lower body with a full body scan being the most expensive, I believe in the $2k range.
It was worth every penny. You only get 1 chance to catch things early.
@@JuanDiazSilvermyst if only people beyond the top earning people in this country could afford it.
It's a good story, but it is still early days yet to be confident the enemy has been completely eliminated.
Thank you for this video. I agree with everything you said. No one is as interested in your survival as much as you are.
Bless you for this brilliant video. People are so ignorant about the longterm chemo side effects and the fact the cancer is just dormant. The doctors don't explain things until it's too late. Everything is after the fact. Thanks for being specific on what you've learned. Please do more of these.
Your Doctors are members of your team. You are the captain of your team. Stay informed. This doesn’t mean that you can be an asshole, it means that you have a responsibility to learn what is going on and what you can do about it.
I really appreciate this man’s dedication to his own understanding of his own body.
Patients MUST be their own advocate. This is true. Thank you for this message.
A positive of social media, is Checking things yourself
I've heard in Social research studies, that in the USA patients who DON'T have an advocate beside them when in treatment, are more likely to be treated 'badly' or ignored, or receive bare minimum 'needed for biological life only' kind of nursing-type care (done by only 1 of the 3 shifts in 24 hrs). It makes me sooo nervous, the older I get. I have NO one to call or rely-on IF I were to get sick. Have been scared of the 'maybe' question, and the 'what IF'? ..
Over the years I've managed to tough things out, including times of 'being too sick' to go to a doctor appointment, or pharmacy.
This world has severely changed, especially after USA 9-ll.
Like people are saying, if you can't care for your own self, nobody's gonna. Every soul for its OWN self.
I've REALLY been blessed, in that I've been able to stay away from medical-type visits (except for yearly compulsories, for my yearly 'scripts).
There's a shortage in medical people in my State, (and the State I relocated from a few years ago now). MANY local doctors here have been retiring. The politicians have worked with zeal to gouge life resources that used to help people (elders) via social agencies. And some have ceased to exist-- ones that used to be able to help (ones in my particular situation and circumstance), are fewer with less-funding for 'more' people.
(I'm grateful to say that I have relied on God as my Helper, and Hope with all sincerity that I would pass suddenly without realizing it: no pain, no medical drama. ... smile).
Wishing you Wellness.
I had to keep pressing and finally found a doctor that listened. He ran a blood test and found VIPoma a very rare Pancreatic cancer. Had the Whipple Oct. 2022 and did not have to have Chemo or Radiation! So very blessed to have found it early and a doctor that listened!!!! YOU are your own advocate!!!!
My cousin died of pancreatic cancer, he lived for a couple of years. A couple of people I knew also died of it and I know one of them only lived about a year. I think they both had quite late diagnosis. I'm in the UK and our health service is collapsing. We do have some brilliant oncologists but our referral system is dreadful. People think it's free but we pay for this care. Thank you for your story. Trust your instinct, it's been good for you and kept you alive.
UK too. We have great doctors, but the time from a referral from GP (PCP in US) to see a specialist to intervention procedure is utterly dreadful. You are right. Our health system is collapsing.
Honestly as an American, your guy's healthcare systems sounds like our VA system (veterans affairs) that's the medical system we have over here that only veterans can use (mostly) and it's technically considered "universal healthcare" and it's mostly terrible. So I feel you, as that's the only system I use/can use.
I don't understand why screening for pancreatic cancer is not a standard protocol after 45 ?..this is a silent killer...
Because they don't have a screen for it, supposedly.
Same with calcium scores
Because the insurance company won't pay for it.
I finger prick and test my blood sugar regularly as I’m hypoglycaemic. My endocrinologist told me if the levels go the other way do something about it and get pancreas mri scan etc.
because the insurance companies don't want to pay for it
Thanks mate, very interesting, I reversed Type 2 diabetes and like you it took research and no help from the doctors. I appreciated your comments on the doctors, very reasonable, gave me a better view/prospective. Your presentation was compelling, educated and sensible. Thank you Bob Australia
Our grandparents called it "SUGAR diabetes" and sugar is the key. We sapiens are not designed to consume 300 pounds of refined sugar per year (the U.S. average)!
This was so different from normal cancer patient stories. It was fascinating. What a guy!
cancer is such a huge, booming business for the medical industrial complex. Good job of bucking the system as best you've been able.
I'm so happy you DID! As a nurse, I always tell people "Your health is YOUR responsibility" Doctors work within the confines of the insurance companies, and what THEY will allow, OR they sometimes try to talk you out of tests that you want. I do NOT knock physicians, but like anything else, you have some really good docs and some...not so much. You and your family are your biggest advocates. I tell people take CHARGE, research, find out things...tell the DOCTOR what you want...for YOU. While getting everything to flow like you did, is a dream for most of us, it does not mean people can't make some noise. Dr's aren't taught to prevent diaease, they are taught to treat it...BUT sometime by the time treatment is needed it is TOO LATE. I have fired several physicians, and I'd do it again if I need to. My mother passed from pancreatic Cancer when I was 15. I am now 64. That was the most devastaing period of my life. They didn't know nearly as much as they know now. Kudos to you! Good stuff, and thanks for telling all of us!
You are fortunate to have the financial means for this specialized care. Going to Japan is not an option for most. We must make this process mainstream in USA . Thank you for sharing your battle !! Keep going. I learned a lot👍🏼👍🏼👍🏼
A big thank you for this video. I took care of 3 cancer patients and learned the hard way that you advocate for yourself if you don't have someone who is really informed to talk to the doctors. Doctors often will dismiss symptoms and it is often too late when something is discovered. I hope you continue your health journey.
I watched this video about 7 months after it came out. I truly hope for you and your family that you are still cancer free and stay cancer free.
i live in a first world country that has health care, like most and i got early testing for bowel cancer. Saved my life and many of my fellow citizens, I am self employed, blue collar, no insurance. Glad Roger made it too!
Not available because time, testing, and current approved cancer treatments are big $$ money makers. Roger, what a gift this video is to the world. Bless you.
I had the Galleri test, also. It cost $1250 for the 50 tests, or about $25/test. Worth it! I plan to do it about every 18 months.
Thank you for mentioning these tests. I took notes!
The VA should offer this immediately to all our veterans nationwide through the VA hospitals. They'll say "no budget," but then Biden will say "another $100 billion for Ukraine and Israel."
@@davidb2206 honestly every primary care doctor should do it annually for people over 75, and symptomatic people under that age.
@@davidb2206
EXACTLY and Free Healthcare to illegal immigrants!😠😒
@@danielanderson204 Who would do this to your country?
My son was gone so quickly in the middle of covid.he was fine but stomach issue off and on but one day it was nonstop pain he went to dr.4 weeks later gone. Your lucky you have resources and your smart enough to jump on health issues. Wishing you good health .ty for sharing your story. It's important to help people know what's available
Thank you for sharing your experience. My father passed from pancreatic cancer & was doing sauna’s prior. His Dr. told him NOT to go to the internet. Hopefully your sharing will save lives.
Thank you for this pragmatic approach of cancer, and as you say " we " are not statictics but individuals. Cheers from Belgium, as we are blessed with top medicine. Fair winds.
Thanks for sharing your story. I share your pain. Just before xmas 2021, I started having extreme nausea. Went to the ER after the 4th day, CT found a mass on the head of my pancreas. Cleveland Clinic Hillcrest Hospital. wound up developing jaundice, etc ... the mass had actually pinched off my bile duct. The righted that endoscopically, and the oncology team immediately got involved. You always wonder how you'd react, learning you have something life-threatening like this. I was actually suprosed by my response ... very little fear, lots of anger. Took it personally. Somewhere between stage II and III, based on the number of lymph nodes involved. PET and MRI found that it had not metastasized ... was still central to the pancreas. Discussed with the oncologist and told them that if it would give me 1/2 a chance, I intended to klick its ass. Told them to go as aggressive as they wanted with the treatment ... pull out all the stops. 6 rounds of vicious chemo, which shrunk the mass by >50%. A whipple procedure followed to remove the affected area and biopsy all surrounding areas. Then 6 more rounds of the vicious chemo. Like you, some lasting effects, especially neuropathy. But, also like you, am still cancer-free now, going on a year out from the surgery. Oncologist has rolled back my surveillance interval from 3 to 6 months now. I was totally unaware of the testing protocols you describe, and am happy to know about that now. Will definitely share your story with my family and begin researching those options for ourselves. Very happy you had such a great outcome. My main takeaway from this challenge is that attitude is everything. Commit fully to the fight. Hold nothing back, look under every rock, keep beating the bushes. There are solutions out there. Wishing you continued good health in the future. 😊
Grateful for this presentation and all the comments. My dad, who was never sick, died of pancreatic cancer at 67. The only thing that had a cloud on his health was that he took high blood medication for 25 years. Medication that was never adjusted or changed. My 2 brothers and I have outlived our dad by12, 14, 15 years. However, this type of cancer diagnosis is never far from our minds.
No statins...actually you should not be taking anything produced by big pharma...
YOU are your only advocate when it comes to your health! No doctor knows your body like you do!
Been there, done that 21 years ago, as a misdiagnosed breast cancer patient. I appreciate your words of wisdom on self health advocacy. Wish you continued health and wellness 🎉
I hear you as I was very sick for one year during Covid! It took my doctor just shy of one year to finally listen to me. The healthcare system was overwhelmed with Covid during my cancer journey. I relented with my quest to find out what was wrong. If I hadn’t of been my own advocate; I wouldn’t be here. 💯🇨🇦
This video is a blessing, so many things you said are so true. It was very interesting. The one thing I wanted to add is that so many people die, or the cancer progresses to the point of no return
while they are waiting on insurance approval. I know you know this. You’re fortunate you had the personal resources. Yes…out of pocket expenses that probably a lot of people can’t afford.I’m an RN, worked oncology for 5 years, and have seen and know the process. One thing you said that really hit home is that you said something to the effect that the medical world is overwhelmed, that’s so true and it is a hot mess out here.Thank you for doing this video and thank God you were such a good self advocate.
I feel like you’re on the right track to overcome this horrible situation with pancreatic cancer. I’m wishing you the very best.
Roger, you hit the nail on the head when you mentioned climbing A1C and weight loss. A friend who was a healthy eater started to have climbing A1C. She told me she was pre-diabetic and I could not believe it given her size and diet. Then, this 110 pound woman dropped about 15 pounds. A well known hospital in the DC area totally disregarded the A1C- weight loss connection. She had Stage 4 and passed a year later (my cousin is a 5 year survivor). I just hope the medical community will begin to acknowledge this combo as possible pancreatic cancer. As a side, I have always disliked the term 'cancer free'. It should not be used as we all likely have some cancer cells lurking about. Perhaps 'cancer undetectable' is more on point. Best to you and good for you to take charge with your own health.
Roger, your cancer story was unbelievable. May you have a special life with your family and keep exercising..stay happy always!
Cancer feeds off sugar, specifically glucose. Certain brain cancers they have you do carnivore during treatment. Since having 2 cancers, high risk for getting pancreatic cancer and having had a brain bleed, I’ve turned to carnivore burning keytones for fuel rather than glucose that cancer can thrive on. Thanks for this video. I think you’re right that so many would not have been able to go your route due to expenses. Glad you were able to. Your a success I needed to here!!
That's real interesting as my mother didn't eat sugar and died young of brain cancer. Nice thought though.
@@catsanddogs8983it’s so much more than just not eating sugar. Was she in therapeutic ketosis?
@@catsanddogs8983 they mean absolutely no bread, no fruits, no potatoes. Nothing that breaks down to be burnt as glucose.
@@catsanddogs8983your mother at sugar. Unless she was a native Alaskan living in the woods hunting and gathering, she’s eating sugar
Amino acids also feed cancer, especially one called glutamine. In fact, cancer cells have a high demand for glutamine. So going on a keto/carnivore diet is not the miracle cure for everything including cancer people claim it is.
You are SO my hero!!! I too am very proactive about my health and I don't care that I am annoying to my doctors! This is an excellent message to everyone everywhere.
Very sobering view of the importance of 'personal responsibility'. To be effective, that quality seems to involve incredible determination and a sense of self-worth bordering on arrogance. I have never had a cancer diagnosis, but I am glad I watched this in the event I ever do.
Well said. If everyone talked to a dozen oncologists, the system would break. I live in Canada where the distribution of health care is more equitable than in the US. My sister is a burnt out oncology nurse. There is a limited amount of help to go around. Also, "do your own research" is fine if you're a discerning self- educator. That phrase is also bandied about by ignorant conspiracy theorists, so it's loaded.
Your penchant for "checking out every little thing" served you well.💖
The majority of us can only afford the standard of care. Glad you were blessed to do it.
My aunt had pancreatic cancer for over 20 years. Her situation was different: she was sick for a couple years starting end of 1970s. They scanned her and did blood tests and found nothing. She lost weight and felt bad for a few years till they were finally able to diagnose her with what they called a "super slow growing" pancreatic cancer. She had a tiny tumor for a very long time. Underwent chemo several times which made her sicker. I remember visiting her and she was in bed the whole time feeling awful. She suffered so much for 20 years and how I wish that she had modern medicine back then that may have helped her in better ways. RIP my beautiful dear Auntie. Bless you, Roger. I'm praying for you and your journey.
Sounds like she had a neuroendocrine tumor. Surprised that she wasn't given hormone therapy as first line treatment.
@pdrey 100
Why does it sound neuroendocrine?
@@astromob1 Because the OP said it's a "super slow growing" pancreatic cancer.
RIP Auntie and my recent sister and father.
Thank You for this video. My dad told me people have died because they wouldn't think. I wish more people could/would think like you.
You are your best advocate...get informed and be vigilent
You are an inspiration for taking charge of your own health and beating this. I wish you all the best and that you continue to remain Cancer free.
10000% be your own advocate!! 🙏🙏🙏
Doctors don't know everything. I always have had to push my doctors to give me the care that I need. You have to be your own advocate. Thank you for sharing your story.
Fantastic material! With a group of doctors, who are so frustrated about the healthcare system I have just started a new startup company Agenox to fill the gap described in this great material. What I hear here is just confirming our worries about the system failing us all. Thank you!
Thank you for sharing your story. My sister died of pancreatic cancer. So glad you are well.
Hi Roger. Thank you so much for taking the time to share your journey and valuable information and new potential preventative measures. I'm a 2-time cancer patient with a predisposed genetic condition that makes me susceptible to a variety of cancers. Although I may not have the financial means to replicate what you do, being well informed and be the CEO of my own health is one big lesson I learned from you today. I wish you all the best in your health!
Roger is a very intelligent and inquisitive man and probably VERY RICH . Most of us are not . We rely on doctors. This gentleman decided to take his fate into his own hands. Well done !!
To be preventative is not being hypochondriac.
Thank you so much for sharing!
Best regards and best wishes from Brittany (Europe)
My late Son told me "I tried to tell them that there was something wrong with my stomach, but they wouldn't listen". His words haunt me to this day. He died in 2018 from stomach cancer. Way too young.
Amazing story that all doctors should listen to carefully
RS, MD FRCS
Roger, THANK YOU for taking the time to make this video! It opened my eyes!
"Your health is just too important to trust to a doctor" -is 100% right!! Good for you sir! 👊
Prayer sent for your complete healing and health!!
Wow what a fascinating story..may God keep you cancer free and healthy!
Congratulations on your success in saving your own life! You’re amazing & I pray you enjoy a happy, healthy & long life!
Thank you. Veteran here and the V A will not even entertain thoughts about liquid biopsies. I have no other medical insurance and only disability coverage. Both sister, brother and mom had pancreatic cancer. Some of us are sentenced to die by our doctors. I’m happy for you and wish you a long life.😊
Thank you for your service and look up Dr Berg.
Bottom line - cut out processed foods and carbs - eat meat and vegetables and do intermittent fasting. Food truly IS medicine. You can beat this girl, don’t give up! You can take the steps so you don’t even need our crappy healthcare. Love and prayers my friend!
Berg is great...
Thank you for your service brother
"Stop bugging me about this?" WTF? Best wishes to you and your family and thank you so much for sharing your story. You have undoubtedly saved lives. Assuming they have the out of money to try to save their own life.
Such a great video. Over the last dozen years, I’ve changed my diet, exercise a lot, sauna, looking now for infra red lights, supplements. Last year I had a dexa scan showed some bone loss. Refused medications just did my research. I watch Dr Attia and many others daily. Yes Drs are there for tests that you request but they don’t know much…it’s only the beginning.
Best explanation of the Cancer fight. Roger keep us posted on the numerous way beat Cancer…like the peptides and vaccines etc. God Bless you.
Very kind of you to share your wisdom in order to help people with cancer. Wishing you all the best.
Phenomenal testimony. He should write a book about his battle and his findings.
I’m so happy you are cancer free! And that you had the insurance and the means to get the needed treatment. We lost my brother-in-law to pancreatic cancer but he was one of the unfortunate low income patients relying on state Medicaid Insurance. That dramatically reduces the quality of care in most cases.
Thank you for this video and I wish you to stay healthy. I am a nurse and so many people don't ask questions or stay with a physician that they don't even like. Being informed, knowing your body, getting information so you can make the best decisions is so important.
I admire the fact that you pushed ahead. I have had Cancer and none of my Doctors really care. Every time I ask I get told no or gaslighting.
Some doctors tell you
To EAT ANYTHING YOU WANT
when my mom had colon cancer
And Dad had prostate cancer
They'd eat barbecue and other things😢
Both died at 79
8 years apart
Roger, you are an inspiration.
We admire your self-discipline and research.
Thank you so much.
Hi pancreatic cancer is really hard to diagnose. My husband has inoperable pancreatic cancer but hes never had any changes in his blood sugar levels. The GP was concerned about his weight loss. We live in England and the NHS organised scans , PET scans bloods .biopsies and within two weeks chemotharapy. Who knows what the future will hold , but under the NHS the future is equal and thats so important when you face such a serious diagnosis. I wish you every luck for the future.
You should give a class twice a year. This is amazing information.
I would like tp wish you the best in your venture. You are exactly what we need.
An intelligent, eager, courageous.pwrson who can take the challenge and demand more than the FDA allows.
I will pray for you. I am 4 yrs.out from breast cancer. My husband died of his Leukemia. I have always wondered wht they can't take the pancreas out.
My younger brother lived 5 yrs. With stage IV kidney cancer using immunotherapy. He was their geuni pig. Would've turned 60.
We will get to the cure...I hope before too long.
God Speed!
Thank you 🙏 My father died a horrible death of pancreatic cancer. Because his children were scattered around the world, we didn’t realize how bad it was until the end. He downplayed it during our telephone calls.
my sister was also asking how long my father had before she was going to come see him dye. she almost missed his dying hour
A very painful cancer
Ttyttttttttt
My brother in law was in great pain but when he spoke to his children on the phone he changed his voice instantly to sound cheerful and strong and then went to his painful self as soon as he put the phone down. I had to tell them about it.
Not blaming, but the family could have researched this on the internet.
Hi Roger - from Australia here. I've been watching your channel for a bit. You are SO informative- the data you provide i am sure will save lives. Bless you thank you & glad you're here.
Please roger we need your book with all the names of locations doctors, treatments details etc.🙏🏻