My sister would be 68 now. She was diagnosed with this and a second form of cancer at 36. She was told six weeks, six months maybe one year. She lived cancer free for 22 more years!!! ❤
@@Bujji0423 I used 10% iodine on mine nightly before bed. This is like my 3 rd cancer the 1st was nail cancer was so scared I kept pouring iodine over my whole hand for 3 months. Last time I was to confident for symptoms of ovarian cancer scan was in one month so I went 7 days on 7 days off then another 3 days and stopped before scan all symptoms were gone scan came back clean.that was 9 months ago. Symptoms are back bleeding at age 54 bloating pain. My insurance was dropped so having a hard time just getting a diagnosis. But once I do I will start with applying iodine into my V. Nightly before bed doing a enema with some in water and applying from breast down to groin,also doing a oral dose of potassium iodine. There's research on the NIH website about molecular iodine kills cancer but I have talked to others and myself have to use different types of iodine so I would say all iodine cures cancer just has to be strong enough and long enough on you. I slow taking it if I get a racing heart. Lay off a few days and start again. This time I will go the 3 months. And then I will start keeping 500mcg iodine in my body daily. They lowered the recommended amount from 500 micrograms to 150 micrograms daily and they took most of it out of salt. So we are all getting cancer. Their plan is to end us. Even our children. So eggs eggs eggs seaweed anything we can to get in the recommended amount from 1924. And salt lots of salt we need it.
@@Bujji0423 She is likely trolling, like lots of people claiming miracle healings by typing 5 lines on TH-cam's comment sections ,with an heart or flower emoji at the end. The common pattern is no information at all. That's manipulation
Hi Brandie, I am a Nurse from Australia and was also diagnosed with a rare Sarcoma last November year of 2023. I am still going through Chemo sessions. ( Doxu) I am Inoperable as it metastasized to my lungs. I only had 1 Radiation. I surrender all to God as I find this cancer overwhelming. Your story inspired me to keep fighting. I know you have too much on your plate but would love to keep in touch once in a while to see where you're at. Let's continue to fight this Brandie😘🥰😍
All that shit happened to you in just ONE year. And already you're reaching out and helping strangers with this kick ass talk? You're amazing. And THANK YOU. May you find welcome at every place you travel.
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You are a brave kid. God bless you! I had a sarcoma tumor removed from my armpit in 1988 and I’m still here: ) My life changed completely. I appreciate God and my wife and my life and the smallest things so much more. Life is a miracle and a wonderful gift from God. Enjoy!
Amen; I am post 3weeks amputation due to leiomyosarcoma on ankle. I'm thru with it all. This year nothing but Dr's. Hopefully I can get fitted with a prosthetic. But as far as cancer goes. Not going back. If it comes back somewhere so be it. There was nothing anywhere in my body right before surgery. Gonna live my life until I can't.
@@PatriciaAShelton-no6cq Please consider listening to Thomas Seyfried yt videos about cancer as a metabolic disease. His approach and a carnivore diet could prevent it from recurring. This is serious science, not some miracle cure.
Sounds like you have had good care, all in all! I have entered into this mad race to survive! My Leiomyosarcoma is attached to the top of my left femoral artery! Inoperable, because of all of the veins, arteries, and other vital organs in the area! I had radiation first! I did get a second opinion at MD Anderson, hoping they could recommend or have someone on board who would know how to treat this beast! My current worry is the metastasis to the liver! Did not shrink with radiation or chemo? So, I guess we go back to the drawing board to look at other options? Take care my dear, I will keep you in my prayers! Keep in touch if you can rest is best! Keep hydrated! Be good to yourself!
Brandi, I’m praying for you. 23 years ago my mother fought this. They had no idea what to do other than surgery. Hers started on the uterus too. Back then everything was experimental. I hope in some way her treatments gave doctors new insight of what to do. She had been exposed to chemicals that are banned now. We lived on a farm and our fields were sprayed with different herbicides. I’m sure that had something to do with it. I’m praying that your cancer is kept at bay and new treatments become available. May God watch over you and your life.
My grandmother also had leiomyosarcoma (spelling ?).Hers was found on stomach. She lived in Oakridge, Tennessee for some time. My mother and her sister also had rare cancers as well. ❤️🙏 for you! Stay positive and strong!
Brandi's story is so sadly common - we want to believe the person in charge of our care is giving the best advice possible, and it may not be true. You know who saved Brandi's life? She did. Here she is, recovering from surgery and multiple rounds of chemotherapy - and she's also having to research better options. And no one wants to hear that - because it's terrifying. I'm not sure I would have had the strength to go through all this extraordinary woman has. And many people would have stopped long before she did, and died, never knowing there were better options. This woman's ability to smile & laugh and look forward to "girls' trips" while still acknowledging the many disabilities she has - and addressing the reality of check-up anxiety - is truly inspiring.
Your story is an incredible story. I for one could not go through the treatments as you have once. I did one bout of radiation and my cancer didn't change because sarcoma is a buzzard of a cancer. I decided I would prefer. Do not be sick going through treatments that were never going to work. The cancers on my bonesit's in my spine. I have 7 lesions in my lungs. This is very hard. I'm struggling this week. It hit me like a freight train and I felt I was losing my mind. But then on the 4th day I was able to breathe again. My family is lacking. I don't think they fully understandpartly denial. Partly uneducated I can't beg people to be here with me. I think because I put on a brave face. They don't see the cancerbecause I don't want to walk around sad and crying all the time. I keep that part to myself. Cause I don't wanna be a burdenbut like I said, 3 days ago I lost it. But I am back ontract. I don't want this cancer to take my smile. My happy-go-lucky attitude. I am going to stay happy. Go lucky. I don't want. To be down Trodden, Put mostly I don't wanna die alone
You’re doing great work. Thank you for being an inspiration. I turned 40 and got clear scans the same day. I’ve been telling folks I lost the thigh to a shark…cancers just too scary of a story. UCSF Sarcoma Center, Stage 2 LMS, grade 3. Spent my life as a commercial fisherman in AK then a wildland firefighter in CO. Turns out I never met a real bad asses until now. Thank you for being a nurse. Thank you for leading by example. Thank you for trying to help the rest of us get through the confusing mess. With any luck our paths will cross.
Lost my leg 3 weeks ago after several months of radiation and tests. Had a tumor in my ankle. It was LMS. Tried reconstruction surgery but it failed. But all is good. Getting around in my wheelchair already got a ramp. Not going back for any more scans . I'm thru. Maybe a prosthetic in a few months. Gonna live my life until I can't. Life being cut on,and in treatment centers, more surgery. No! I'm too old. I want to live the best life I can for now. It's hard when you have to depend on others for everything. A month of that did it for me. I had no one but my son who tried he really did. Still takes me to Dr appointments, until I can drive. I just can't get wheelchair in an out of car. But I can cook. Thank God I can make my own coffee and cook.
My sarcoma was treated at Northwestern Medicine in Chicago. I was first told the tumor was too large to remove. My surgeon, Dr. Chawla was a sarcoma specialist. I was treated with proton radiation in order to shrink the tumor for surgical removal and it was successful. It made hash of my bladder too. In fact, in many ways the radiation damage has lasted almost a year. I'm thankful that you made it through your journey. I just celebrated my one year after surgery and tests showed no more cancer so far.
I was scrolling through you tube and your video showed up. Thank you for sharing your story. I was diagnosed with stage 2a Leiomyosarmo in 2013. I had a 5 centimeter mass in my ascending colon. I was blessed to have an amazing colorectal surgeon who removed it along with the entire length of my ascending colon. I did 5 weeks of radiation. I did not have to do chemo, my oncologist said it was not responsive to it. I just passed my 10 yr mark of being cancer free last October.
Thank you so much for sharing. Would you be interested in sharing your story on our platform? If so, are you able to fill out our intro survey: thepatientstory.com/share-your-story/
Great to hear thar people do survive this cancer. I have leiomyosarcoma in my left ankle. Amputation was recommended but I just couldn't knowing thar would not guarantee anything. So I chose limb sparing surgery instead. Radiation I took for almost 5 weeks, the last 4 I couldn't take anymore. The pain was unbearable. Third degree radiation burns. I talk to the oncologist Friday. Of they wanted me to continue they could have helped with the pain but I was told go to ER. I feel a failure, but that area is so thin I probably got more than enough. The tumor is right below the surface. After surgery to remove the tumor,trying to get a clear margin, I will have a plastic surgeon to reconstruct my ankle right after. Don't know how long this surgery will take. 😢
If someone has a rare or difficult to treat cancer, it is absolutely critical that they go to a cancer center . Surgical oncologists and medical oncologists will not turn away Business and will try to treat you. I am an oncology nurse at a cancer hospital and it’s so difficult to try to clean up another hospitals failed treatments. it seems that a person is in their best position to go into remission when they have not been previously treated because their body is in the best shape to fight, the kidneys, liver function lungs and heart are performing at their best.
I started off at a well known cancer center and experienced the following: (1) Doctor never ordered the follow up biopsy so that he could create a custom chemo for me. (2) Doctor never wrote a scrip for necessary lab work need before a biopsy and never told me I needed a script. (3) Navigation nurse never returned an important call. I went for a second opinion. The new oncologist obtained my records and said she would give the same treatment as he indicated in his records. (4) By the time the first center called me for treatment ...6 weeks later...I had already had two treatments with the new oncologist. I'm sure cancer centers do good work but for some reason it was not for me.
@@deva190 so sorry to hear that. I have been an oncology nurse at a cancer center for 15 years, and worked in cancer care at regular hospitals also. Mistakes are happening everywhere because insurance reimbursements and payment for pharmaceutical treatments are driving care. Both are requiring doctors and hospitals to see as many patients as possible and turn them over as quickly as possible. When people tell me how much they love being treated at my cancer hospital., I thank them but also say mistakes can and will be made, and I hope it doesn’t happen here, but we try our best and our heart is in the care we give. People who work at my hospital select cancer as their specialty and want to take care of these types of patients. I feel like That makes a positive impact. This broken healthcare system does not allow us (Drs, Pa’s, Np’s, nurses, etc) to succeed to the best of our ability. We are frustrated and exhausted by having more patients than we can properly take care of. This sounds like what you experienced. Likely not intentional neglect, just a result of a terrible system We are trying to navigate.
You are quite the amazing young woman, Brandi : Beautiful, courageous, resilient, and SO rational ! I am a retired RN and recognize all these diagnoses and treatments but wasn’t an oncology nurse and have never known anyone with leiomyosarcoma. What a journey you’re still on. You have a beautiful outlook - we just have to live each day with appreciation and take nothing for granted. Thank you for helping me understand what my husband goes through each time he gets the tumor markers drawn (he has a very aggressive type of prostate CA) - the cycle of relief, then limbo for a bit until the fear and uncertainty of the next draw. Brandi you have my best wishes, my admiration and respect. You are a fierce warrior!
Our neighbour growing up had colon cancer operation in late 1950’s. She ended up with a colostomy bag, which she successfully lived with for over thirty years. She lived to be late 70’s. Long life.
Brandie, thank you for this video - raising awareness for this very rare and aggressive sarcoma cancer. I am currently fighting stage IV non-uterine pelvic Leiomyosarcoma. I was diagnosed in November 2022, 8 months after my then-husband left our kids and I. Had surgery, did 33 radiation sessions and am currently a part of the doxorubicin/lurbectedin trial at the Sarcoma Oncology Center in Santa Monica with Dr. Chawla. Due to disease progression I am no longer able to be a part of the trial and am meeting with my medical team next week to discuss next steps. Prayers to you, Brandie! 🙏🏼
Many people getting cancer from the shot...it lowered our immune system...praying for you❤hey everybody please ask Jesus into your heart today while you still have time ❤
Brandie, thank you for sharing. I just completed 18 months of treatment for a large metastatic leiomyosarcoma on my spine and a large Chianti carcinoma in my liver. I too have a femoral nerve injury. You have been so much more than I have. You have an amazing attitude. I noticed a BD logo behind you in one of your photos. I worked for BD for several years. We have a lot in common. Take care Brandie…I’ll be thinking of you!
I had Leiomyasarcomas in my blather when i was twenty seven years old. Back than they had no treatment for it, i was lucky that they could remove them. Im fifty six now, so do t give up!
I was diagnosed with leiomyosarcoma in Sept. 2019. I had a lump in my leg for 5 years prior. My PCP told me it was a fatty cyst and not worry about it. When I switched PCPs she took me more seriously and turns out it was cancer. Thankfully it was low grade. Surgery was the only treatment it needed. My heart goes out to you. I am always afraid it will reappear. Stay strong and great that you are your own advocate. It pays to knows your own body and when something isn't normal.
Hi! I too have this lump on my calf, have had ultrasounds for this and nothing shows up. The area has decreased sensation. May I ask if u had any symptoms other than the lump and how it was diagnosed?
@@crystaljackson0120 Of course. I had no symptoms other than the lump prior to all the testing. From the initial xray thru to ultra sound to MRI mine was showing on testing and odd enough I guess for them to want further testing. They finally did a biopsy after the MRI and that is when they said it was a low grade sarcoma. It was surgically removed and that has caused loss of sensation somewhat. The scary part is that my initial PCP told me it was nothing to worry about. I went for like 5 years before getting a 2nd opinion. My mom died at 60 from non Hodgkins lymphoma which started as a lump on her neck. So of course that makes me somewhat hyper vigilant. But I trusted my PcP at the time. Besides just wanting to believe it was nothing. Luckily mine was low grade and surgery got it all. I have to go yearly and get checked though for reoccurence. My advise would be you know your body best and if something doesn't feel right or normal, be an advocate and seek to find closure if you can. Your life may depend on it. Take care!
Hi honey. I've been following a girl from UK who had,a very radical cancer surgery. Her name is Tiffany thinks. She's on you tube. Many similarities. I pray for her and I will have u in my prayers also. God bless u. I am also a 3x cancer survivor. God is great
Bless your heart! I know it’s hard. My husband was diagnosed with Chondro sarcoma. It attacks cartridge. His was in his larynx and you are right it doesn’t respond to chemo or radiation. He was at MD Anderson and his cancer kept coming back and they kept doing surgery but finally had to remove his larynx. So he breathes through a hole in his neck. It still came back (they assured him it wouldn’t). So he had radiation and, as you well know, that’s the gift that keeps on giving. My complaint would be they just don’t tell you everything. You have to find out later that there will always be a repercussion for that procedure. The good news is he is still with us and he has a great attitude toward life. His journey started in 2016. I wish you the very best. Hang in there! Love from Texas ❤
Brandie great story and positive outlook to survive and conquer your life and fears. Prayers and healing this day and keep traveling. Jimmy the Juiceman 27 years LMS surviver NJ born/bred
Omg, what a nightmare, but I am so happy for you that you came through it and are now clear. I know exactly what you’re talking about when you describe your anxiety waiting for your scan results, it is excruciating .You look amazing, by the way, super healthy.
I’m so sorry that you have to go through all this! My take away is that you must go to someone who specializes in your cancer. Also, get several opinions. Praying that you stay well and continue to get wonderful care.
I am so impressed with you. I am much older than you and have lived a good life but developed a uterine sarcoma in 2017. MSK was my hospital and I had a wonderful team. 3 tumors, so stage 3 I think, although my dr didn’t want to tell me that. Chemo. Red devil and olaratomab, surgery and then radiation. But I’m more than 5 yrs out now. So if an old gal like me can get through this. you sure can too. You are so optimistic and you should be. Stay strong young lady.
Thank you for sharing your story. I was diagnosed with Stage 4 leiomyosarcoma. Still navigating the stages of getting second opinions. This was very reassuring.
I was diagnosed with high grade pleomorphic sarcoma in January of 2023. It was in my left forearm. A hospital in my city has a sarcoma center so I got good care. In February I had surgery with clean margins and 30 fractions of radiation. I had a lot of PT for my hand and regained a good amount of function. Your attitude after all you’ve been through is inspiring. ❤
I lost my 69 year old mom to leiomyosarcoma. The first clue was that she would gag on food and couldn't swallow properly. A biopsy showed she had a large tumor growing near and around her esophagus. She couldn't retain weight and wasted away. She was gone in five months. Love you, Mum.
You, my dear, are a gladiator. What a strong, beautiful person you are. Your laughter in between the painful explanation of what you lived through made me smile. But it's your spirit that makes you phenomenal. Take good care, and thank you for showing us what grace and courage look like in real-time.
Brandie, i am in awe of your strength and resilience. Your so open and honest, and i want to thank you for your bravery. You are a bright bright star my dear.
Some of these cancers are genetic, many from HPV - but on the FB support pages there are 5+ new woman a week of all ages joining. There is so much awareness for Breast Cancer and not enough for Uterine/Endometrial "Below The Belt" cancers. You look beautiful through it all Brandi! Sending Love Prayers Support 💐💐🙏🏻🙏🏻💗💗💗💗🙏🏻🙏🏻💐💐
I pray that you're cancer free for the rest of your life. My husband has been in remission for 15 months from stage 4 colorectal adenocarcinoma metastasized to his liver and lung. His neuropathy is pretty terrible but gabapentin helps. Your attitude is amazing! God bless you!
Wow, you have been through so much. I pray you stay cured and every scan remains all clear. You have endured and are enduring more than one person ever should. You speak with such grace and have a lovely spirit, thank you for sharing this and helping others. This is a great video to teach people to advocate for themselves!
I was diagnosed with ulms in October 21. I am happy to see you doing well. I have had some of the same things that you went through. I too am now clear. Very important to go to a cancer center to see a sarcomaspecialist, other oncologist don't have the same knowledge on this cancer.
My Mum passed away with this in 1969 she was 39. She always had terrible periods lost a lot of blood and fibroids. She had an hysterectomy but it had spread. Leiomyosarcoma. She never got any treatment as they told her she only had months to live. I was 10 years old. 😢 Sorry you’re going through this.
I’m so sorry. My sister is fighting this now. She just got sent home with hospice just to see if we can get her stronger and round the corner to keep going. She’s still fighting so hard to stay here with me. 😢
Thank you for sharing Brandi. I have been battling breast cancer for a year now and getting towards the end of all my treatments. I have never heard of your type of cancer before. I'm very happy that you are bringing awareness to your cancer, so we can all learn and so folks won't feel so alone that get diagnosed with this. You are a very strong and beautiful lady!! Thanks again ❤
Just wow! You are a fighter!! Cancer tried its best to beat you, and you WON! I love your spirit! Thank you for sharing your journey. YOU HAVE MADE A POSITIVE MARK FOR CANCER PATIENTS!
I had surgery for this cancer in January. Mine was 14cm at its widest. I declined chemo/radiation because I researched and read that both were ineffective for this cancer. Two, 4-month followups so far. Both clear.
My mom got 10 cm initially and had surgery but it grew to 20 cm in 2-3months. Got multiple chemos but nothing worked so we thought she must get surgery again but after one month from surgery she lost her all senses and couldn't see her children in her last moment. May God bless me again with she as my mother
Hi Brandie, thank you for sharing your story. I was diagnosed the high grade unditterentiated Pleomorphic sarcoma Aug 2023. I went through the misdiagnosed for 7 months. Couldn't get my biopsy results for another month. I did online reacherch, found a hospital where they have sarcoma center and had surgery removed the sarcoma. B and had 33 radiation s,badly burned,but there are many unanswered the questions. I felt I was left in a dark hole without help. After every day research, I found Dr. Tseng from City Of Hope. I flew cross the country to see him. He is a wonderful doctor. He took one hour to answer my questions and explained my situation. I decided to move to CA near City of Hope for future care. I am so glad we both are Dr. Tseng' patients. You are right about sarcoma does not respond the chemotherapy well.
Brandie, you are absolutely an impressive lady! Strong, courageous, optimistic, beautiful….an angel. Thank you for sharing your story. You have had a tough road. Love your spirit💕.
❤Brandie, sending you my prayers and love. I work in a hospital and I see my nurses as angels. You will be OK. Thank you for being a part of helping all of us and sharing your story. 🙏❤️
Thank you for sharing and I'm so happy I found you! I'm a breast cancer warrior of 5 years but recently the same breast changed quite substantially. I'm waiting on testing & scans to be done so I can move on or go to war. I was feeling defeated but seeing your fight and drive and then overcome so many setbacks, I know I can do this too! 💪🏼 I'm sending you all the best wishes and my prayers 🙏🏼 for you to live the life you love until you are elderly and you're living an amazing full life! ❤❤❤
You have such a unbelievable upbeat and positive attitude! You can still laugh and talk like this is no big deal. God bless you, I hope you completely recover.
I’d read that one should always go to a sarcoma specialist/center for treatment if diagnosed with a sarcoma. Thank you for this interview. I wish you good health and happiness.
Brandie this is the best advise to share with those fighting cancer. See the Oncologist that specializes in your type of cancer. And make sure its in a cancer hospital. Hope your doing well.
Brandie, thank you for this very informative, necessary video. You present it in such an intelligent, direct way that's easy to understand. You are helping many people, really doing a service here. I'm sending you strength, peace and healing, positive energy from NYC. ❤
Brandi, you are a warrior and my hero. Hearing your journey has given me the strength to make a decision regarding my vulva cancer. You are an inspiration and an incredibly strong woman. 💪 Thank you for sharing your journey. You will be in my prayers, beautiful. Hugs to you. ❤
Hi Brandi, I am a nurse RN and APRN. I was diagnosed with leiomyosarcoma on March 7th 2024. I had a large cyst on my right ovary. It was removed and they found a nodule. Pet Scan later showed mets to the spleen. I am on chemo now. Getting a Pet Scan next week after three treatments. We will see.
I just found your video. You are such a strong lady. No one deserves to have to go through that, but you are so positive. I'm sure you have helped so many with your positivity.
Thankyou Brandie for sharing your story. I had similar symptoms back when I was 32, but alot of clots. My surgeon told me the entire fibroid was atypical and a leiomyosarcoma. I had a guiding force tell me to have the surgery right away and I am so grateful I did!! Sending you lots of hugs and wishes for successful surgery!!
So good of you to share your story in such a relatable, articulate manner. It’s awesome to hear from someone who so fearlessly accepts these hard facts and continues down whatever road is ahead with so much inner strength. God bless you. You deserve a break. May all your future scans come back clean🙏
A huge heartfelt thank you for sharing your adventure. The more we know the more lives can be saved. I'm sure you saved many lives. Our prayers are with you.
Bless you for sharing your story to make a positive difference for others. Your straight talk with laughter interspersed was serious AND hopeful and I am sending my prayers and good vibes and light and love to you for your best life forward. 💗
I am just so impressed by your strength. I’m sure you had your days, but you really are such an inspiration. I will keep you in my heart and pray for a life of good health moving forward ❤️
Thanks for sharing your story, Brandie. I admire your strength and courage. I have a high risk prostate cancer and surgery scheduled for late March. Listening to you has given me a little bit more courage to face this thing. I’ll be thinking about you and hope you’re doing well.
You are such a strong person. Thank you for sharing your story. If this saves only one person, you are the hero that's responsible for that. I'm praying you have better health and live a long joy-filled life. God bless you. 🙏
All the love and light in the world to you Brandie. You’re amazingly strong to have endured what you did and stay so positive. I find it so distressing that I’m constantly hearing stories about seriously ill patients having to muster the strength to become their own advocates during the most challenging time of their life. Even so much for you being a medical professional. All the best,,,,❤️❤️
DC vaginal adenoscaroma in 2021 tumor excision immediate recurrence 6 weeks later. Radical hysterectomy, external rads followed by internal brachy. Rad side effects were brutal but at least I was done... or so I thought... now the from the hormone blocker I take is damaging by bones in addition to neuropathy and joint pain and I'm currently being monitored for a small brain cyst. But am technically NED and for that I am greatful. Sending 💛 💙 💜 Sarcoma, Gyno cancer and Survivor love to you.
Your story is very informative and very detailed of all that you've went through, thank you for sharing. It can help others to know their not alone and your advice on the options for second opinions and specialist, definitely worth knowing, thank you so much! Prayers for you continue dear sister.
How brave and articulate you are! I had Hodgkins 39 yrs ago, became an oncology nurse. When I was diagnosed I just graduated from nursing school. My kids were young and I just took care of a patient with end stage Hodgkins. I was not a particularly strong patient and was kinda neurotic. Look at you educating others. You have a beautiful smile. I wish you-the best. Thank you!
Hi Brandi, thank you for sharing your story, really give all hope. I was diagnosed with stage 4 leiomyosarcoma cancer Jan 2024, currently undergoing treatment but would love to know the name of the surgeon that you attended treatment if possible for this type of cancer. God bless you, so glad you got through this. I am full of tears here. Thank You
I was also diagnosed on Jan 2424. I had total hysterectomy, radiation on my lungs but I still have more nodules. I will start chemotherapy but now I wonder if it will work.
Brandi, you are a champion and an angel. Your video will give people hope and educate them on how to tackle sarcoma. I have a close friend who died from sarcoma and she was so young and tried so hard to beat it. So, you’re saving lives, whether they get better or they learn there are ways to live after being free of sarcoma too. Thank you! You will be in my thoughts from this point on. I wish you the best. You so deserve it.
My sister would be 68 now. She was diagnosed with this and a second form of cancer at 36. She was told six weeks, six months maybe one year. She lived cancer free for 22 more years!!! ❤
So delighted to hear that 🤍🙏🤍
how come go from one year to 22 ? you provide no detail
Can you please provide her treatment plan and what helped her to keep going? I am sure this information would help lot of us..thanks
@@Bujji0423 I used 10% iodine on mine nightly before bed. This is like my 3 rd cancer the 1st was nail cancer was so scared I kept pouring iodine over my whole hand for 3 months. Last time I was to confident for symptoms of ovarian cancer scan was in one month so I went 7 days on 7 days off then another 3 days and stopped before scan all symptoms were gone scan came back clean.that was 9 months ago. Symptoms are back bleeding at age 54 bloating pain. My insurance was dropped so having a hard time just getting a diagnosis. But once I do I will start with applying iodine into my V. Nightly before bed doing a enema with some in water and applying from breast down to groin,also doing a oral dose of potassium iodine. There's research on the NIH website about molecular iodine kills cancer but I have talked to others and myself have to use different types of iodine so I would say all iodine cures cancer just has to be strong enough and long enough on you. I slow taking it if I get a racing heart. Lay off a few days and start again. This time I will go the 3 months. And then I will start keeping 500mcg iodine in my body daily. They lowered the recommended amount from 500 micrograms to 150 micrograms daily and they took most of it out of salt. So we are all getting cancer. Their plan is to end us. Even our children. So eggs eggs eggs seaweed anything we can to get in the recommended amount from 1924. And salt lots of salt we need it.
@@Bujji0423 She is likely trolling, like lots of people claiming miracle healings by typing 5 lines on TH-cam's comment sections ,with an heart or flower emoji at the end. The common pattern is no information at all. That's manipulation
Hi Brandie, I am a Nurse from Australia and was also diagnosed with a rare Sarcoma last November year of 2023.
I am still going through Chemo sessions. ( Doxu) I am Inoperable as it metastasized to my lungs. I only had 1 Radiation. I surrender all to God as I find this cancer overwhelming. Your story inspired me to keep fighting. I know you have too much on your plate but would love to keep in touch once in a while to see where you're at. Let's continue to fight this Brandie😘🥰😍
🙏🤍🙏
Sending good wishes & prayers… 🙏🏻🙏🏻🙏🏻
🙏🏻🙏🏻🙏🏻
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Keep me posted I'm a heme/ONC nurse
All that shit happened to you in just ONE year. And already you're reaching out and helping strangers with this kick ass talk? You're amazing. And THANK YOU. May you find welcome at every place you travel.
You are an amazing person. You are so special to share this with others. Thank you.❤
Yes indeed!💪
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You are a brave kid. God bless you! I had a sarcoma tumor removed from my armpit in 1988 and I’m still here: ) My life changed completely. I appreciate God and my wife and my life and the smallest things so much more. Life is a miracle and a wonderful gift from God. Enjoy!
❤🙏🏿🙏🏿🙏🏿
💜
Amen; I am post 3weeks amputation due to leiomyosarcoma on ankle. I'm thru with it all. This year nothing but Dr's. Hopefully I can get fitted with a prosthetic. But as far as cancer goes. Not going back. If it comes back somewhere so be it. There was nothing anywhere in my body right before surgery. Gonna live my life until I can't.
@@PatriciaAShelton-no6cq Please consider listening to Thomas Seyfried yt videos about cancer as a metabolic disease. His approach and a carnivore diet could prevent it from recurring. This is serious science, not some miracle cure.
💟 Brandie you are a natural at public speaking . Thank you for sharing.
Sounds like you have had good care, all in all! I have entered into this mad race to survive! My Leiomyosarcoma is attached to the top of my left femoral artery! Inoperable, because of all of the veins, arteries, and other vital organs in the area! I had radiation first! I did get a second opinion at MD Anderson, hoping they could recommend or have someone on board who would know how to treat this beast! My current worry is the metastasis to the liver! Did not shrink with radiation or chemo? So, I guess we go back to the drawing board to look at other options? Take care my dear, I will keep you in my prayers! Keep in touch if you can rest is best! Keep hydrated! Be good to yourself!
Brandi, I’m praying for you. 23 years ago my mother fought this. They had no idea what to do other than surgery. Hers started on the uterus too. Back then everything was experimental. I hope in some way her treatments gave doctors new insight of what to do. She had been exposed to chemicals that are banned now. We lived on a farm and our fields were sprayed with different herbicides. I’m sure that had something to do with it. I’m praying that your cancer is kept at bay and new treatments become available. May God watch over you and your life.
Sorry to hear this. My condolences. If I may ask, what are the harmful substances? Is it still present in non-organic food nowadays?❤
🙏
My mother fought this 5 years ago. For our moms💜💜and for Brandi 💜
My grandmother also had leiomyosarcoma (spelling ?).Hers was found on stomach. She lived in Oakridge, Tennessee for some time. My mother and her sister also had rare cancers as well. ❤️🙏 for you! Stay positive and strong!
@@Bsra8691 My mom had Retroperotoneal Leiomyosarcoma
I lost my Mom to this cancer 13 years ago. She lived 1 year fr diagnosis. Miss her. You are beautiful and strong. Keep fighting ❤️🌺🙏
Brandi's story is so sadly common - we want to believe the person in charge of our care is giving the best advice possible, and it may not be true. You know who saved Brandi's life? She did. Here she is, recovering from surgery and multiple rounds of chemotherapy - and she's also having to research better options. And no one wants to hear that - because it's terrifying.
I'm not sure I would have had the strength to go through all this extraordinary woman has. And many people would have stopped long before she did, and died, never knowing there were better options. This woman's ability to smile & laugh and look forward to "girls' trips" while still acknowledging the many disabilities she has - and addressing the reality of check-up anxiety - is truly inspiring.
Well said.
Your story is an incredible story. I for one could not go through the treatments as you have once. I did one bout of radiation and my cancer didn't change because sarcoma is a buzzard of a cancer. I decided I would prefer. Do not be sick going through treatments that were never going to work. The cancers on my bonesit's in my spine. I have 7 lesions in my lungs. This is very hard. I'm struggling this week. It hit me like a freight train and I felt I was losing my mind. But then on the 4th day I was able to breathe again. My family is lacking. I don't think they fully understandpartly denial. Partly uneducated I can't beg people to be here with me. I think because I put on a brave face. They don't see the cancerbecause I don't want to walk around sad and crying all the time. I keep that part to myself. Cause I don't wanna be a burdenbut like I said, 3 days ago I lost it. But I am back ontract. I don't want this cancer to take my smile. My happy-go-lucky attitude.
I am going to stay happy. Go lucky.
I don't want. To be down
Trodden, Put mostly I don't wanna die alone
Dear precious lady, you are a courageous warrior. My heart and prayers are with you.
Yes. I. Agree. A. True warrior. Cancer. Has no chance. She will win!!!♥️🌷🌺🌺🙏🏻. Amen
I heard City of Hope and immediately thought of Jenny Apple❤
So did I.
Yes..❤❤❤sweet Jenny.
Me too 😢
I did as well. I followed Jenny and her story.
Me too. 🙏🏻
You’re doing great work. Thank you for being an inspiration. I turned 40 and got clear scans the same day. I’ve been telling folks I lost the thigh to a shark…cancers just too scary of a story.
UCSF Sarcoma Center, Stage 2 LMS, grade 3. Spent my life as a commercial fisherman in AK then a wildland firefighter in CO. Turns out I never met a real bad asses until now.
Thank you for being a nurse. Thank you for leading by example. Thank you for trying to help the rest of us get through the confusing mess. With any luck our paths will cross.
Lost my leg 3 weeks ago after several months of radiation and tests. Had a tumor in my ankle. It was LMS. Tried reconstruction surgery but it failed. But all is good. Getting around in my wheelchair already got a ramp. Not going back for any more scans . I'm thru. Maybe a prosthetic in a few months. Gonna live my life until I can't. Life being cut on,and in treatment centers, more surgery. No! I'm too old. I want to live the best life I can for now. It's hard when you have to depend on others for everything. A month of that did it for me. I had no one but my son who tried he really did. Still takes me to Dr appointments, until I can drive. I just can't get wheelchair in an out of car. But I can cook. Thank God I can make my own coffee and cook.
My sarcoma was treated at Northwestern Medicine in Chicago. I was first told the tumor was too large to remove. My surgeon, Dr. Chawla was a sarcoma specialist. I was treated with proton radiation in order to shrink the tumor for surgical removal and it was successful. It made hash of my bladder too. In fact, in many ways the radiation damage has lasted almost a year. I'm thankful that you made it through your journey. I just celebrated my one year after surgery and tests showed no more cancer so far.
Glory to god ❤🙏🏿🙏🏿🙏🏿
❤❤🙏
Did you bladder heal?
Hash of your bladder? Did your bladder ever heal?
❤🙏❤
I was scrolling through you tube and your video showed up. Thank you for sharing your story. I was diagnosed with stage 2a Leiomyosarmo in 2013. I had a 5 centimeter mass in my ascending colon. I was blessed to have an amazing colorectal surgeon who removed it along with the entire length of my ascending colon. I did 5 weeks of radiation. I did not have to do chemo, my oncologist said it was not responsive to it. I just passed my 10 yr mark of being cancer free last October.
Thank you so much for sharing. Would you be interested in sharing your story on our platform? If so, are you able to fill out our intro survey: thepatientstory.com/share-your-story/
Great to hear thar people do survive this cancer. I have leiomyosarcoma in my left ankle. Amputation was recommended but I just couldn't knowing thar would not guarantee anything. So I chose limb sparing surgery instead. Radiation I took for almost 5 weeks, the last 4 I couldn't take anymore. The pain was unbearable. Third degree radiation burns. I talk to the oncologist Friday. Of they wanted me to continue they could have helped with the pain but I was told go to ER. I feel a failure, but that area is so thin I probably got more than enough. The tumor is right below the surface. After surgery to remove the tumor,trying to get a clear margin, I will have a plastic surgeon to reconstruct my ankle right after. Don't know how long this surgery will take. 😢
If someone has a rare or difficult to treat cancer, it is absolutely critical that they go to a cancer center . Surgical oncologists and medical oncologists will not turn away Business and will try to treat you. I am an oncology nurse at a cancer hospital and it’s so difficult to try to clean up another hospitals failed treatments. it seems that a person is in their best position to go into remission when they have not been previously treated because their body is in the best shape to fight, the kidneys, liver function lungs and heart are performing at their best.
I started off at a well known cancer center and experienced the following: (1) Doctor never ordered the follow up biopsy so that he could create a custom chemo for me. (2) Doctor never wrote a scrip for necessary lab work need before a biopsy and never told me I needed a script. (3) Navigation nurse never returned an important call. I went for a second opinion. The new oncologist obtained my records and said she would give the same treatment as he indicated in his records. (4) By the time the first center called me for treatment ...6 weeks later...I had already had two treatments with the new oncologist. I'm sure cancer centers do good work but for some reason it was not for me.
@@deva190 so sorry to hear that. I have been an oncology nurse at a cancer center for 15 years, and worked in cancer care at regular hospitals also. Mistakes are happening everywhere because insurance reimbursements and payment for pharmaceutical treatments are driving care. Both are requiring doctors and hospitals to see as many patients as possible and turn them over as quickly as possible. When people tell me how much they love being treated at my cancer hospital., I thank them but also say mistakes can and will be made, and I hope it doesn’t happen here, but we try our best and our heart is in the care we give. People who work at my hospital select cancer as their specialty and want to take care of these types of patients. I feel like That makes a positive impact. This broken healthcare system does not allow us (Drs, Pa’s, Np’s, nurses, etc) to succeed to the best of our ability. We are frustrated and exhausted by having more patients than we can properly take care of. This sounds like what you experienced. Likely not intentional neglect, just a result of a terrible system We are trying to navigate.
You are quite the amazing young woman, Brandi : Beautiful, courageous, resilient, and SO rational ! I am a retired RN and recognize all these diagnoses and treatments but wasn’t an oncology nurse and have never known anyone with leiomyosarcoma. What a journey you’re still on. You have a beautiful outlook - we just have to live each day with appreciation and take nothing for granted.
Thank you for helping me understand what my husband goes through each time he gets the tumor markers drawn (he has a very aggressive type of prostate CA) - the cycle of relief, then limbo for a bit until the fear and uncertainty of the next draw.
Brandi you have my best wishes, my admiration and respect. You are a fierce warrior!
She is a very optimistic personality. She is an excellent health care consumer. She is so positive too.
RS, MD FRCS
Our neighbour growing up had colon cancer operation in late 1950’s. She ended up with a colostomy bag, which she successfully lived with for over thirty years. She lived to be late 70’s. Long life.
Brandie, thank you for this video - raising awareness for this very rare and aggressive sarcoma cancer. I am currently fighting stage IV non-uterine pelvic Leiomyosarcoma. I was diagnosed in November 2022, 8 months after my then-husband left our kids and I. Had surgery, did 33 radiation sessions and am currently a part of the doxorubicin/lurbectedin trial at the Sarcoma Oncology Center in Santa Monica with Dr. Chawla. Due to disease progression I am no longer able to be a part of the trial and am meeting with my medical team next week to discuss next steps. Prayers to you, Brandie! 🙏🏼
Many people getting cancer from the shot...it lowered our immune system...praying for you❤hey everybody please ask Jesus into your heart today while you still have time ❤
@@lovesJesus448 🤡
Praying 🙏 for you ❤
@@lovesJesus448🤡
@@lovesJesus448 Many people getting cancer from Jesus, please ask the shot into your heart amen 🙏 ❤️ 🤡
Fascinating. Humane. Inspirational. What a brilliant communicator she is. ❤❤❤❤❤
Brandie, thank you for sharing. I just completed 18 months of treatment for a large metastatic leiomyosarcoma on my spine and a large Chianti carcinoma in my liver. I too have a femoral nerve injury. You have been so much more than I have. You have an amazing attitude. I noticed a BD logo behind you in one of your photos. I worked for BD for several years. We have a lot in common. Take care Brandie…I’ll be thinking of you!
I had Leiomyasarcomas in my blather when i was twenty seven years old. Back than they had no treatment for it, i was lucky that they could remove them. Im fifty six now, so do t give up!
I was diagnosed with leiomyosarcoma in Sept. 2019. I had a lump in my leg for 5 years prior. My PCP told me it was a fatty cyst and not worry about it. When I switched PCPs she took me more seriously and turns out it was cancer. Thankfully it was low grade. Surgery was the only treatment it needed. My heart goes out to you. I am always afraid it will reappear. Stay strong and great that you are your own advocate. It pays to knows your own body and when something isn't normal.
Hi! I too have this lump on my calf, have had ultrasounds for this and nothing shows up. The area has decreased sensation. May I ask if u had any symptoms other than the lump and how it was diagnosed?
@@crystaljackson0120 Of course. I had no symptoms other than the lump prior to all the testing. From the initial xray thru to ultra sound to MRI mine was showing on testing and odd enough I guess for them to want further testing. They finally did a biopsy after the MRI and that is when they said it was a low grade sarcoma. It was surgically removed and that has caused loss of sensation somewhat. The scary part is that my initial PCP told me it was nothing to worry about. I went for like 5 years before getting a 2nd opinion. My mom died at 60 from non Hodgkins lymphoma which started as a lump on her neck. So of course that makes me somewhat hyper vigilant. But I trusted my PcP at the time. Besides just wanting to believe it was nothing. Luckily mine was low grade and surgery got it all. I have to go yearly and get checked though for reoccurence. My advise would be you know your body best and if something doesn't feel right or normal, be an advocate and seek to find closure if you can. Your life may depend on it. Take care!
Hi honey. I've been following a girl from UK who had,a very radical cancer surgery. Her name is Tiffany thinks. She's on you tube. Many similarities. I pray for her and I will have u in my prayers also. God bless u. I am also a 3x cancer survivor. God is great
Brandie, you are a warrior and a survivor. May God continue to watch over you. 🕊🙏🏻💫💞
Bless your heart! I know it’s hard. My husband was diagnosed with Chondro sarcoma. It attacks cartridge. His was in his larynx and you are right it doesn’t respond to chemo or radiation. He was at MD Anderson and his cancer kept coming back and they kept doing surgery but finally had to remove his larynx. So he breathes through a hole in his neck. It still came back (they assured him it wouldn’t). So he had radiation and, as you well know, that’s the gift that keeps on giving. My complaint would be they just don’t tell you everything. You have to find out later that there will always be a repercussion for that procedure. The good news is he is still with us and he has a great attitude toward life. His journey started in 2016. I wish you the very best. Hang in there! Love from Texas ❤
Brandie great story and positive outlook to survive and conquer your life and fears. Prayers and healing this day and keep traveling. Jimmy the Juiceman 27 years LMS surviver NJ born/bred
Omg, what a nightmare, but I am so happy for you that you came through it and are now clear. I know exactly what you’re talking about when you describe your anxiety waiting for your scan results, it is excruciating .You look amazing, by the way, super healthy.
I’m so sorry that you have to go through all this! My take away is that you must go to someone who specializes in your cancer. Also, get several opinions. Praying that you stay well and continue to get wonderful care.
Wow! What a strong, honest and articulate woman.❤
I am so impressed with you. I am much older than you and have lived a good life but developed a uterine sarcoma in 2017. MSK was my hospital and I had a wonderful team. 3 tumors, so stage 3 I think, although my dr didn’t want to tell me that. Chemo. Red devil and olaratomab, surgery and then radiation. But I’m more than 5 yrs out now. So if an old gal like me can get through this. you sure can too. You are so optimistic and you should be. Stay strong young lady.
What were your symptoms? Did you have hysterectomy?
Thank you for sharing your story. I was diagnosed with Stage 4 leiomyosarcoma. Still navigating the stages of getting second opinions. This was very reassuring.
I was diagnosed with high grade pleomorphic sarcoma in January of 2023. It was in my left forearm. A hospital in my city has a sarcoma center so I got good care. In February I had surgery with clean margins and 30 fractions of radiation. I had a lot of PT for my hand and regained a good amount of function. Your attitude after all you’ve been through is inspiring. ❤
I worked for the top upper extremity orthopedic surgeon at Sloan-Kettering. I loved him and our patients!
I lost my 69 year old mom to leiomyosarcoma. The first clue was that she would gag on food and couldn't swallow properly. A biopsy showed she had a large tumor growing near and around her esophagus. She couldn't retain weight and wasted away. She was gone in five months. Love you, Mum.
So sorry for your loss. It's a dreadful illness.
Just diagnosed with carincosarcoma 2 weeks ago. Thank you for sharing this.
I’m so sorry. You can do this.
I pray that you will continue to be cured. 🙏🏼❤
You, my dear, are a gladiator. What a strong, beautiful person you are. Your laughter in between the painful explanation of what you lived through made me smile. But it's your spirit that makes you phenomenal. Take good care, and thank you for showing us what grace and courage look like in real-time.
I'm so grateful that you kept looking for the right doctors. Wishing you the very best! My 22 year old grandson had mediastinal sarcoma.
Brandie, i am in awe of your strength and resilience. Your so open and honest, and i want to thank you for your bravery. You are a bright bright star my dear.
Some of these cancers are genetic, many from HPV - but on the FB support pages there are 5+ new woman a week of all ages joining. There is so much awareness for Breast Cancer and not enough for Uterine/Endometrial "Below The Belt" cancers. You look beautiful through it all Brandi! Sending Love Prayers Support 💐💐🙏🏻🙏🏻💗💗💗💗🙏🏻🙏🏻💐💐
Sarcoma isn’t specific to below the belt. It can be anywhere in the body. It’s a whole other beast than ovarian or uterine cancer…
I pray that you're cancer free for the rest of your life. My husband has been in remission for 15 months from stage 4 colorectal adenocarcinoma metastasized to his liver and lung. His neuropathy is pretty terrible but gabapentin helps. Your attitude is amazing! God bless you!
You are such a strong, positive person. Totally amazing. Keep up the fight. Prayers for you. May God bless you.
It amazes me how everyone is wearing a smile in these thumbnails for such a serious matter.
Wow, you have been through so much. I pray you stay cured and every scan remains all clear. You have endured and are enduring more than one person ever should. You speak with such grace and have a lovely spirit, thank you for sharing this and helping others. This is a great video to teach people to advocate for themselves!
I really admire how you have handled this. I know you had no choice but you are so very brave. You are an inspiration to others struggling with this.
I was diagnosed with ulms in October 21. I am happy to see you doing well. I have had some of the same things that you went through. I too am now clear.
Very important to go to a cancer center to see a sarcomaspecialist, other oncologist don't have the same knowledge on this cancer.
Brandi your attitude is so amazing! May God continue to give you clean scans! Keep taking life one day at a time! ❤
Praying for you ,all the way from Australia 🇦🇺, 🙏
My Mum passed away with this in 1969 she was 39. She always had terrible periods lost a lot of blood and fibroids. She had an hysterectomy but it had spread. Leiomyosarcoma. She never got any treatment as they told her she only had months to live. I was 10 years old. 😢 Sorry you’re going through this.
So sad to read that you lost your mum at 10 years old.
I am so sorry for what you have gone through. What a special and positive person you are ❤️. I truly wish you nothing but the absolute best.
My sister passedaway in 2022,she had liomasarcoma. Miss her very much😢.Good bless you Brandi 😊
Ho paura che siano questi vaccini che abbiamo fatto
I'm so sorry for your loss. ❤
So sorry , sisters are precious.
I’m so sorry. My sister is fighting this now. She just got sent home with hospice just to see if we can get her stronger and round the corner to keep going. She’s still fighting so hard to stay here with me. 😢
@@panda_bean7 I'm very sorry,IT must be so hard,Your sister is a Big Faighter.God bless You and your belover Sister 😪
Thank you for sharing Brandi. I have been battling breast cancer for a year now and getting towards the end of all my treatments. I have never heard of your type of cancer before. I'm very happy that you are bringing awareness to your cancer, so we can all learn and so folks won't feel so alone that get diagnosed with this. You are a very strong and beautiful lady!! Thanks again ❤
❤🙏🤍
Just wow! You are a fighter!! Cancer tried its best to beat you, and you WON!
I love your spirit! Thank you for sharing your journey. YOU HAVE MADE A POSITIVE MARK FOR CANCER PATIENTS!
what a wild ride you have been on. may God continue to watch over you. ❤️
I had surgery for this cancer in January. Mine was 14cm at its widest. I declined chemo/radiation because I researched and read that both were ineffective for this cancer.
Two, 4-month followups so far. Both clear.
My mom got 10 cm initially and had surgery but it grew to 20 cm in 2-3months. Got multiple chemos but nothing worked so we thought she must get surgery again but after one month from surgery she lost her all senses and couldn't see her children in her last moment. May God bless me again with she as my mother
Hi Brandie, thank you for sharing your story. I was diagnosed the high grade unditterentiated Pleomorphic sarcoma Aug 2023. I went through the misdiagnosed for 7 months. Couldn't get my biopsy results for another month. I did online reacherch, found a hospital where they have sarcoma center and had surgery removed the sarcoma. B and had 33 radiation s,badly burned,but there are many unanswered the questions. I felt I was left in a dark hole without help. After every day research, I found Dr. Tseng from City Of Hope. I flew cross the country to see him. He is a wonderful doctor. He took one hour to answer my questions and explained my situation. I decided to move to CA near City of Hope for future care. I am so glad we both are Dr. Tseng' patients. You are right about sarcoma does not respond the chemotherapy well.
Brandie, you are absolutely an impressive lady! Strong, courageous, optimistic, beautiful….an angel. Thank you for sharing your story. You have had a tough road. Love your spirit💕.
Thank you for sharing your cancer journey, Brandie.
❤Brandie, sending you my prayers and love. I work in a hospital and I see my nurses as angels. You will be OK. Thank you for being a part of helping all of us and sharing your story. 🙏❤️
Thank you for sharing and I'm so happy I found you! I'm a breast cancer warrior of 5 years but recently the same breast changed quite substantially. I'm waiting on testing & scans to be done so I can move on or go to war. I was feeling defeated but seeing your fight and drive and then overcome so many setbacks, I know I can do this too! 💪🏼 I'm sending you all the best wishes and my prayers 🙏🏼 for you to live the life you love until you are elderly and you're living an amazing full life! ❤❤❤
You have such a unbelievable upbeat and positive attitude! You can still laugh and talk like this is no big deal. God bless you, I hope you completely recover.
I’d read that one should always go to a sarcoma specialist/center for treatment if diagnosed with a sarcoma. Thank you for this interview. I wish you good health and happiness.
Brandie this is the best advise to share with those fighting cancer. See the Oncologist that specializes in your type of cancer. And make sure its in a cancer hospital. Hope your doing well.
Definitely sarcoma specialist!
@@sallymccoy6286 It’s especially true with sarcoma.
@@Serenitynow958 Yes!
Brandie is a true fighter. Mad respect and all the best to her!
You are a blessing. My wife was just diagnosed and this video has really helped both of us. Bless you and your family ❤❤❤❤🙏🏿🙏🏿🙏🏿
Brandie, thank you for this very informative, necessary video. You present it in such an intelligent, direct way that's easy to understand. You are helping many people, really doing a service here.
I'm sending you strength, peace and healing, positive energy from NYC. ❤
Brandi, you are a warrior and my hero. Hearing your journey has given me the strength to make a decision regarding my vulva cancer. You are an inspiration and an incredibly strong woman. 💪 Thank you for sharing your journey. You will be in my prayers, beautiful. Hugs to you. ❤
I'm jealous of your strength in dealing with your cancer. God bless you.
what a brave, articulate woman. Wishing you a complete recovery and long, fun life.
Cheering for you!! What a brave, beautiful young woman!
Thank you for sharing your very difficult journey! Praying for healing and blessings!
Hi Brandi, I am a nurse RN and APRN. I was diagnosed with leiomyosarcoma on March 7th 2024. I had a large cyst on my right ovary. It was removed and they found a nodule. Pet Scan later showed mets to the spleen. I am on chemo now. Getting a Pet Scan next week after three treatments. We will see.
How are you?
❤🙏❤
Girl!! What you have done for me today! Thank you and Bless you!❤
I just found your video. You are such a strong lady. No one deserves to have to go through that, but you are so positive. I'm sure you have helped so many with your positivity.
💖🕊️ What a fabulous person you are, Brandie! So glad you're with us!
You continue to make such a lovely difference in this world.
Thankyou Brandie for sharing your story. I had similar symptoms back when I was 32, but alot of clots. My surgeon told me the entire fibroid was atypical and a leiomyosarcoma. I had a guiding force tell me to have the surgery right away and I am so grateful I did!! Sending you lots of hugs and wishes for successful surgery!!
You are amazing! I could never be as strong and upbeat like you! I pray you have a long healthy life!! God bless you and your support system!!🙌🙌🙌🙌🙌
So good of you to share your story in such a relatable, articulate manner. It’s awesome to hear from someone who so fearlessly accepts these hard facts and continues down whatever road is ahead with so much inner strength. God bless you. You deserve a break. May all your future scans come back clean🙏
This is an inspiring story. If I were confronted with this, I have no idea how hard I would fight it. This lady is so tough and brave.
Praying for your Brandi. I hope you are still cancer free and living your best life.❤
At the moment…still cancer free 😊
A huge heartfelt thank you for sharing your adventure. The more we know the more lives can be saved. I'm sure you saved many lives. Our prayers are with you.
You are a Real Warrior!!❤ i will still keep you in my prayer list🙏🙏
Bless you for sharing your story to make a positive difference for others. Your straight talk with laughter interspersed was serious AND hopeful and I am sending my prayers and good vibes and light and love to you for your best life forward. 💗
I am just so impressed by your strength. I’m sure you had your days, but you really are such an inspiration. I will keep you in my heart and pray for a life of good health moving forward ❤️
Prayers for your journey You are a lovely person who deserves Gods blessings 🙏🙏🙏
Thanks for sharing your story, Brandie. I admire your strength and courage. I have a high risk prostate cancer and surgery scheduled for late March. Listening to you has given me a little bit more courage to face this thing. I’ll be thinking about you and hope you’re doing well.
You have gone through an awful lot to be here. But like you said, you’re alive. Wishing for continued good health!
You are such a strong person. Thank you for sharing your story. If this saves only one person, you are the hero that's responsible for that. I'm praying you have better health and live a long joy-filled life. God bless you. 🙏
All the love and light in the world to you Brandie. You’re amazingly strong to have endured what you did and stay so positive.
I find it so distressing that I’m constantly hearing stories about seriously ill patients having to muster the strength to become their own advocates during the most challenging time of their life. Even so much for you being a medical professional.
All the best,,,,❤️❤️
I dont know what to say but you are a truly amazing woman! Wish you the best!!
DC vaginal adenoscaroma in 2021 tumor excision immediate recurrence 6 weeks later. Radical hysterectomy, external rads followed by internal brachy. Rad side effects were brutal but at least I was done... or so I thought... now the from the hormone blocker I take is damaging by bones in addition to neuropathy and joint pain and I'm currently being monitored for a small brain cyst. But am technically NED and for that I am greatful.
Sending 💛 💙 💜 Sarcoma, Gyno cancer and Survivor love to you.
God Bless you and Keep You!
Your story is very informative and very detailed of all that you've went through, thank you for sharing. It can help others to know their not alone and your advice on the options for second opinions and specialist, definitely worth knowing, thank you so much! Prayers for you continue dear sister.
Bless you girlie. You have been through hell and back. Prayers for a healthy life from here on out ❤
U are a very strong woman well done Brandie , sending u all my best wishes for the future hun 💖🇬🇧
How brave and articulate you are! I had Hodgkins 39 yrs ago, became an oncology nurse. When I was diagnosed I just graduated from nursing school. My kids were young and I just took care of a patient with end stage Hodgkins. I was not a particularly strong patient and was kinda neurotic. Look at you educating others. You have a beautiful smile. I wish you-the best. Thank you!
I had Ewing Sarcoma and sarcoma cancers need so much more research!
Wishing you the best, focus on the important things.
Hi Brandi, thank you for sharing your story, really give all hope. I was diagnosed with stage 4 leiomyosarcoma cancer Jan 2024, currently undergoing treatment but would love to know the name of the surgeon that you attended treatment if possible for this type of cancer. God bless you, so glad you got through this. I am full of tears here. Thank You
I was also diagnosed on Jan 2424. I had total hysterectomy, radiation on my lungs but I still have more nodules. I will start chemotherapy but now I wonder if it will work.
“We got this….” You’re my hero ❤❤❤❤
Brandi, you are a champion and an angel. Your video will give people hope and educate them on how to tackle sarcoma. I have a close friend who died from sarcoma and she was so young and tried so hard to beat it. So, you’re saving lives, whether they get better or they learn there are ways to live after being free of sarcoma too. Thank you! You will be in my thoughts from this point on. I wish you the best. You so deserve it.
Your an amazing person and it took a lot of courage and passion to share this with all of us. I am a doctor bless you.