How I Got Sarcoma - Brandie | Stage 4 Leiomyosarcoma | The Patient Story

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  • เผยแพร่เมื่อ 1 ก.พ. 2024
  • Brandie always had painful menstrual periods and a family history of fibroids and endometriosis, but her symptoms eventually got must worse! She then underwent ovary removal surgery and an elective hysterectomy. She then learned she had leiomyosarcoma, a rare cancer of the smooth muscle.
    Leiomyosarcoma is a rare, aggressive cancer that grows in the smooth muscles, like those found in your stomach, bladder, uterus, intestines and blood vessels.
    #cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #leiomyosarcomadiagnosis #rarecancer #stage4cancer #radiationtreatment #cancersymptoms #sarcoma #cancervlog
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    How I Got Sarcoma - Brandie | Stage 4 Leiomyosarcoma | The Patient Story
    • How I Got Sarcoma - Br...
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ความคิดเห็น • 483

  • @cindyingram4072
    @cindyingram4072 2 หลายเดือนก่อน +39

    My sister would be 68 now. She was diagnosed with this and a second form of cancer at 36. She was told six weeks, six months maybe one year. She lived cancer free for 22 more years!!! ❤

    • @lesleymaclennan7899
      @lesleymaclennan7899 หลายเดือนก่อน +2

      So delighted to hear that 🤍🙏🤍

  • @ae2948
    @ae2948 3 หลายเดือนก่อน +183

    All that shit happened to you in just ONE year. And already you're reaching out and helping strangers with this kick ass talk? You're amazing. And THANK YOU. May you find welcome at every place you travel.

    • @user-yw9vm9gv9e
      @user-yw9vm9gv9e 2 หลายเดือนก่อน +5

      You are an amazing person. You are so special to share this with others. Thank you.❤

    • @ingeborgswieten3710
      @ingeborgswieten3710 2 หลายเดือนก่อน +1

      Yes indeed!💪

  • @dabawenya25
    @dabawenya25 2 หลายเดือนก่อน +55

    Hi Brandie, I am a Nurse from Australia and was also diagnosed with a rare Sarcoma last November year of 2023.
    I am still going through Chemo sessions. ( Doxu) I am Inoperable as it metastasized to my lungs. I only had 1 Radiation. I surrender all to God as I find this cancer overwhelming. Your story inspired me to keep fighting. I know you have too much on your plate but would love to keep in touch once in a while to see where you're at. Let's continue to fight this Brandie😘🥰😍

    • @lesleymaclennan7899
      @lesleymaclennan7899 2 หลายเดือนก่อน +3

      🙏🤍🙏

    • @fifilafleur5555
      @fifilafleur5555 2 หลายเดือนก่อน +1

      Sending good wishes & prayers… 🙏🏻🙏🏻🙏🏻

    • @manmansikla
      @manmansikla หลายเดือนก่อน +1

      🙏🏻🙏🏻🙏🏻

    • @user-et2wi5et8e
      @user-et2wi5et8e หลายเดือนก่อน

      🙏🙏🙏

    • @user-et2wi5et8e
      @user-et2wi5et8e หลายเดือนก่อน

      Keep me posted I'm a heme/ONC nurse

  • @michelles9897
    @michelles9897 3 หลายเดือนก่อน +176

    💟 Brandie you are a natural at public speaking . Thank you for sharing.

    • @WeezerPort
      @WeezerPort 2 หลายเดือนก่อน +1

      Sounds like you have had good care, all in all! I have entered into this mad race to survive! My Leiomyosarcoma is attached to the top of my left femoral artery! Inoperable, because of all of the veins, arteries, and other vital organs in the area! I had radiation first! I did get a second opinion at MD Anderson, hoping they could recommend or have someone on board who would know how to treat this beast! My current worry is the metastasis to the liver! Did not shrink with radiation or chemo? So, I guess we go back to the drawing board to look at other options? Take care my dear, I will keep you in my prayers! Keep in touch if you can rest is best! Keep hydrated! Be good to yourself!

  • @markg1531
    @markg1531 3 หลายเดือนก่อน +25

    You are a brave kid. God bless you! I had a sarcoma tumor removed from my armpit in 1988 and I’m still here: ) My life changed completely. I appreciate God and my wife and my life and the smallest things so much more. Life is a miracle and a wonderful gift from God. Enjoy!

  • @Bennyeca
    @Bennyeca 3 หลายเดือนก่อน +101

    I heard City of Hope and immediately thought of Jenny Apple❤

    • @karenanderson717
      @karenanderson717 3 หลายเดือนก่อน +14

      So did I.

    • @blucky1250
      @blucky1250 3 หลายเดือนก่อน +13

      Yes..❤❤❤sweet Jenny.

    • @JustJennie147
      @JustJennie147 3 หลายเดือนก่อน +8

      Me too 😢

    • @oletabaker408
      @oletabaker408 3 หลายเดือนก่อน +6

      I did as well. I followed Jenny and her story.

    • @fifilafleur5555
      @fifilafleur5555 2 หลายเดือนก่อน +4

      Me too. 🙏🏻

  • @dv3498
    @dv3498 3 หลายเดือนก่อน +191

    Brandi, I’m praying for you. 23 years ago my mother fought this. They had no idea what to do other than surgery. Hers started on the uterus too. Back then everything was experimental. I hope in some way her treatments gave doctors new insight of what to do. She had been exposed to chemicals that are banned now. We lived on a farm and our fields were sprayed with different herbicides. I’m sure that had something to do with it. I’m praying that your cancer is kept at bay and new treatments become available. May God watch over you and your life.

    • @Amandaaaaaa123
      @Amandaaaaaa123 3 หลายเดือนก่อน +3

      Sorry to hear this. My condolences. If I may ask, what are the harmful substances? Is it still present in non-organic food nowadays?❤

    • @angelbasham6631
      @angelbasham6631 3 หลายเดือนก่อน

      🙏

    • @michellefrench6617
      @michellefrench6617 3 หลายเดือนก่อน +5

      My mother fought this 5 years ago. For our moms💜💜and for Brandi 💜

    • @angelablocker1439
      @angelablocker1439 3 หลายเดือนก่อน +6

      My grandmother also had leiomyosarcoma (spelling ?).Hers was found on stomach. She lived in Oakridge, Tennessee for some time. My mother and her sister also had rare cancers as well. ❤️🙏 for you! Stay positive and strong!

    • @michellefrench6617
      @michellefrench6617 3 หลายเดือนก่อน

      @@angelablocker1439 My mom had Retroperotoneal Leiomyosarcoma

  • @adelehagen7684
    @adelehagen7684 3 หลายเดือนก่อน +79

    Dear precious lady, you are a courageous warrior. My heart and prayers are with you.

    • @sandradalessandro2935
      @sandradalessandro2935 หลายเดือนก่อน +2

      Yes. I. Agree. A. True warrior. Cancer. Has no chance. She will win!!!♥️🌷🌺🌺🙏🏻. Amen

  • @dlennington8187
    @dlennington8187 2 หลายเดือนก่อน +35

    My sarcoma was treated at Northwestern Medicine in Chicago. I was first told the tumor was too large to remove. My surgeon, Dr. Chawla was a sarcoma specialist. I was treated with proton radiation in order to shrink the tumor for surgical removal and it was successful. It made hash of my bladder too. In fact, in many ways the radiation damage has lasted almost a year. I'm thankful that you made it through your journey. I just celebrated my one year after surgery and tests showed no more cancer so far.

    • @andrathomas9728
      @andrathomas9728 2 หลายเดือนก่อน +4

      Glory to god ❤🙏🏿🙏🏿🙏🏿

    • @lesleymaclennan7899
      @lesleymaclennan7899 2 หลายเดือนก่อน +3

      ❤❤🙏

    • @davenport164
      @davenport164 หลายเดือนก่อน +1

      Did you bladder heal?

    • @davenport164
      @davenport164 หลายเดือนก่อน +1

      Hash of your bladder? Did your bladder ever heal?

  • @Lionforaday
    @Lionforaday 3 หลายเดือนก่อน +16

    Brandi's story is so sadly common - we want to believe the person in charge of our care is giving the best advice possible, and it may not be true. You know who saved Brandi's life? She did. Here she is, recovering from surgery and multiple rounds of chemotherapy - and she's also having to research better options. And no one wants to hear that - because it's terrifying.
    I'm not sure I would have had the strength to go through all this extraordinary woman has. And many people would have stopped long before she did, and died, never knowing there were better options. This woman's ability to smile & laugh and look forward to "girls' trips" while still acknowledging the many disabilities she has - and addressing the reality of check-up anxiety - is truly inspiring.

  • @mesenteria
    @mesenteria 2 หลายเดือนก่อน +5

    I lost my 69 year old mom to leiomyosarcoma. The first clue was that she would gag on food and couldn't swallow properly. A biopsy showed she had a large tumor growing near and around her esophagus. She couldn't retain weight and wasted away. She was gone in five months. Love you, Mum.

  • @jude4247
    @jude4247 3 หลายเดือนก่อน +26

    I was diagnosed with leiomyosarcoma in Sept. 2019. I had a lump in my leg for 5 years prior. My PCP told me it was a fatty cyst and not worry about it. When I switched PCPs she took me more seriously and turns out it was cancer. Thankfully it was low grade. Surgery was the only treatment it needed. My heart goes out to you. I am always afraid it will reappear. Stay strong and great that you are your own advocate. It pays to knows your own body and when something isn't normal.

    • @crystaljackson3529
      @crystaljackson3529 2 หลายเดือนก่อน

      Hi! I too have this lump on my calf, have had ultrasounds for this and nothing shows up. The area has decreased sensation. May I ask if u had any symptoms other than the lump and how it was diagnosed?

    • @jude4247
      @jude4247 2 หลายเดือนก่อน +3

      @@crystaljackson3529 Of course. I had no symptoms other than the lump prior to all the testing. From the initial xray thru to ultra sound to MRI mine was showing on testing and odd enough I guess for them to want further testing. They finally did a biopsy after the MRI and that is when they said it was a low grade sarcoma. It was surgically removed and that has caused loss of sensation somewhat. The scary part is that my initial PCP told me it was nothing to worry about. I went for like 5 years before getting a 2nd opinion. My mom died at 60 from non Hodgkins lymphoma which started as a lump on her neck. So of course that makes me somewhat hyper vigilant. But I trusted my PcP at the time. Besides just wanting to believe it was nothing. Luckily mine was low grade and surgery got it all. I have to go yearly and get checked though for reoccurence. My advise would be you know your body best and if something doesn't feel right or normal, be an advocate and seek to find closure if you can. Your life may depend on it. Take care!

  • @LadyS3268
    @LadyS3268 3 หลายเดือนก่อน +12

    I was scrolling through you tube and your video showed up. Thank you for sharing your story. I was diagnosed with stage 2a Leiomyosarmo in 2013. I had a 5 centimeter mass in my ascending colon. I was blessed to have an amazing colorectal surgeon who removed it along with the entire length of my ascending colon. I did 5 weeks of radiation. I did not have to do chemo, my oncologist said it was not responsive to it. I just passed my 10 yr mark of being cancer free last October.

    • @ThePatientStory
      @ThePatientStory  3 หลายเดือนก่อน +1

      Thank you so much for sharing. Would you be interested in sharing your story on our platform? If so, are you able to fill out our intro survey: thepatientstory.com/share-your-story/

    • @PatriciaAShelton-no6cq
      @PatriciaAShelton-no6cq 5 วันที่ผ่านมา

      Great to hear thar people do survive this cancer. I have leiomyosarcoma in my left ankle. Amputation was recommended but I just couldn't knowing thar would not guarantee anything. So I chose limb sparing surgery instead. Radiation I took for almost 5 weeks, the last 4 I couldn't take anymore. The pain was unbearable. Third degree radiation burns. I talk to the oncologist Friday. Of they wanted me to continue they could have helped with the pain but I was told go to ER. I feel a failure, but that area is so thin I probably got more than enough. The tumor is right below the surface. After surgery to remove the tumor,trying to get a clear margin, I will have a plastic surgeon to reconstruct my ankle right after. Don't know how long this surgery will take. 😢

  • @lorifoy5268
    @lorifoy5268 3 หลายเดือนก่อน +24

    I was diagnosed with high grade pleomorphic sarcoma in January of 2023. It was in my left forearm. A hospital in my city has a sarcoma center so I got good care. In February I had surgery with clean margins and 30 fractions of radiation. I had a lot of PT for my hand and regained a good amount of function. Your attitude after all you’ve been through is inspiring. ❤

  • @ny_njtrailrunnert926
    @ny_njtrailrunnert926 3 หลายเดือนก่อน +46

    If someone has a rare or difficult to treat cancer, it is absolutely critical that they go to a cancer center . Surgical oncologists and medical oncologists will not turn away Business and will try to treat you. I am an oncology nurse at a cancer hospital and it’s so difficult to try to clean up another hospitals failed treatments. it seems that a person is in their best position to go into remission when they have not been previously treated because their body is in the best shape to fight, the kidneys, liver function lungs and heart are performing at their best.

    • @deva190
      @deva190 3 หลายเดือนก่อน +6

      I started off at a well known cancer center and experienced the following: (1) Doctor never ordered the follow up biopsy so that he could create a custom chemo for me. (2) Doctor never wrote a scrip for necessary lab work need before a biopsy and never told me I needed a script. (3) Navigation nurse never returned an important call. I went for a second opinion. The new oncologist obtained my records and said she would give the same treatment as he indicated in his records. (4) By the time the first center called me for treatment ...6 weeks later...I had already had two treatments with the new oncologist. I'm sure cancer centers do good work but for some reason it was not for me.

    • @ny_njtrailrunnert926
      @ny_njtrailrunnert926 3 หลายเดือนก่อน +7

      @@deva190 so sorry to hear that. I have been an oncology nurse at a cancer center for 15 years, and worked in cancer care at regular hospitals also. Mistakes are happening everywhere because insurance reimbursements and payment for pharmaceutical treatments are driving care. Both are requiring doctors and hospitals to see as many patients as possible and turn them over as quickly as possible. When people tell me how much they love being treated at my cancer hospital., I thank them but also say mistakes can and will be made, and I hope it doesn’t happen here, but we try our best and our heart is in the care we give. People who work at my hospital select cancer as their specialty and want to take care of these types of patients. I feel like That makes a positive impact. This broken healthcare system does not allow us (Drs, Pa’s, Np’s, nurses, etc) to succeed to the best of our ability. We are frustrated and exhausted by having more patients than we can properly take care of. This sounds like what you experienced. Likely not intentional neglect, just a result of a terrible system We are trying to navigate.

    • @B6east
      @B6east 3 หลายเดือนก่อน +8

      You are quite the amazing young woman, Brandi : Beautiful, courageous, resilient, and SO rational ! I am a retired RN and recognize all these diagnoses and treatments but wasn’t an oncology nurse and have never known anyone with leiomyosarcoma. What a journey you’re still on. You have a beautiful outlook - we just have to live each day with appreciation and take nothing for granted.
      Thank you for helping me understand what my husband goes through each time he gets the tumor markers drawn (he has a very aggressive type of prostate CA) - the cycle of relief, then limbo for a bit until the fear and uncertainty of the next draw.
      Brandi you have my best wishes, my admiration and respect. You are a fierce warrior!

  • @janeb305
    @janeb305 3 หลายเดือนก่อน +14

    Fascinating. Humane. Inspirational. What a brilliant communicator she is. ❤❤❤❤❤

  • @user-sh8hb3sn6i
    @user-sh8hb3sn6i 3 หลายเดือนก่อน +48

    Brandie, thank you for sharing. I just completed 18 months of treatment for a large metastatic leiomyosarcoma on my spine and a large Chianti carcinoma in my liver. I too have a femoral nerve injury. You have been so much more than I have. You have an amazing attitude. I noticed a BD logo behind you in one of your photos. I worked for BD for several years. We have a lot in common. Take care Brandie…I’ll be thinking of you!

  • @carolbruno7731
    @carolbruno7731 3 หลายเดือนก่อน +29

    Some of these cancers are genetic, many from HPV - but on the FB support pages there are 5+ new woman a week of all ages joining. There is so much awareness for Breast Cancer and not enough for Uterine/Endometrial "Below The Belt" cancers. You look beautiful through it all Brandi! Sending Love Prayers Support 💐💐🙏🏻🙏🏻💗💗💗💗🙏🏻🙏🏻💐💐

  • @jacccaro
    @jacccaro 3 หลายเดือนก่อน +13

    Brandie, you are a warrior and a survivor. May God continue to watch over you. 🕊🙏🏻💫💞

  • @yvonnepeirce1467
    @yvonnepeirce1467 3 หลายเดือนก่อน +14

    You are such a strong, positive person. Totally amazing. Keep up the fight. Prayers for you. May God bless you.

  • @mamacampbell
    @mamacampbell 3 หลายเดือนก่อน +53

    Brandie, thank you for this video - raising awareness for this very rare and aggressive sarcoma cancer. I am currently fighting stage IV non-uterine pelvic Leiomyosarcoma. I was diagnosed in November 2022, 8 months after my then-husband left our kids and I. Had surgery, did 33 radiation sessions and am currently a part of the doxorubicin/lurbectedin trial at the Sarcoma Oncology Center in Santa Monica with Dr. Chawla. Due to disease progression I am no longer able to be a part of the trial and am meeting with my medical team next week to discuss next steps. Prayers to you, Brandie! 🙏🏼

    • @lovesJesus448
      @lovesJesus448 3 หลายเดือนก่อน +10

      Many people getting cancer from the shot...it lowered our immune system...praying for you❤hey everybody please ask Jesus into your heart today while you still have time ❤

    • @Rayman30
      @Rayman30 3 หลายเดือนก่อน

      ​@@lovesJesus448 🤡

    • @Vegannan
      @Vegannan 3 หลายเดือนก่อน +4

      Praying 🙏 for you ❤

    • @Rayman30
      @Rayman30 3 หลายเดือนก่อน

      @@lovesJesus448🤡

    • @Rayman30
      @Rayman30 3 หลายเดือนก่อน +1

      @@lovesJesus448 Many people getting cancer from Jesus, please ask the shot into your heart amen 🙏 ❤️ 🤡

  • @blueraven2345
    @blueraven2345 3 หลายเดือนก่อน +12

    Omg, what a nightmare, but I am so happy for you that you came through it and are now clear. I know exactly what you’re talking about when you describe your anxiety waiting for your scan results, it is excruciating .You look amazing, by the way, super healthy.

  • @richardsimms251
    @richardsimms251 2 หลายเดือนก่อน +4

    She is a very optimistic personality. She is an excellent health care consumer. She is so positive too.
    RS, MD FRCS

  • @lovespirit888
    @lovespirit888 หลายเดือนก่อน +2

    I lost my Mom to this cancer 13 years ago. She lived 1 year fr diagnosis. Miss her. You are beautiful and strong. Keep fighting ❤️🌺🙏

  • @badge2045
    @badge2045 3 หลายเดือนก่อน +6

    Hi honey. I've been following a girl from UK who had,a very radical cancer surgery. Her name is Tiffany thinks. She's on you tube. Many similarities. I pray for her and I will have u in my prayers also. God bless u. I am also a 3x cancer survivor. God is great

  • @brooks6348
    @brooks6348 3 หลายเดือนก่อน +33

    I’m so sorry that you have to go through all this! My take away is that you must go to someone who specializes in your cancer. Also, get several opinions. Praying that you stay well and continue to get wonderful care.

  • @AviyahAbides
    @AviyahAbides 3 หลายเดือนก่อน +41

    It amazes me how everyone is wearing a smile in these thumbnails for such a serious matter.

  • @beataspinda6144
    @beataspinda6144 3 หลายเดือนก่อน +17

    My sister passedaway in 2022,she had liomasarcoma. Miss her very much😢.Good bless you Brandi 😊

    • @giuliachiarella4055
      @giuliachiarella4055 3 หลายเดือนก่อน

      Ho paura che siano questi vaccini che abbiamo fatto

    • @janetheteach
      @janetheteach 3 หลายเดือนก่อน +2

      I'm so sorry for your loss. ❤

    • @virgierutledge3004
      @virgierutledge3004 3 หลายเดือนก่อน +3

      So sorry , sisters are precious.

    • @panda_bean7
      @panda_bean7 หลายเดือนก่อน +1

      I’m so sorry. My sister is fighting this now. She just got sent home with hospice just to see if we can get her stronger and round the corner to keep going. She’s still fighting so hard to stay here with me. 😢

    • @beataspinda6144
      @beataspinda6144 หลายเดือนก่อน +1

      @@panda_bean7 I'm very sorry,IT must be so hard,Your sister is a Big Faighter.God bless You and your belover Sister 😪

  • @Beepinsqueekin
    @Beepinsqueekin 3 หลายเดือนก่อน +32

    I'm so grateful that you kept looking for the right doctors. Wishing you the very best! My 22 year old grandson had mediastinal sarcoma.

  • @somewhereinthemidwest9827
    @somewhereinthemidwest9827 3 หลายเดือนก่อน +17

    I pray that you will continue to be cured. 🙏🏼❤

  • @melissapoole8580
    @melissapoole8580 3 หลายเดือนก่อน +17

    Wow, you have been through so much. I pray you stay cured and every scan remains all clear. You have endured and are enduring more than one person ever should. You speak with such grace and have a lovely spirit, thank you for sharing this and helping others. This is a great video to teach people to advocate for themselves!

  • @randivester6949
    @randivester6949 3 หลายเดือนก่อน +10

    You, my dear, are a gladiator. What a strong, beautiful person you are. Your laughter in between the painful explanation of what you lived through made me smile. But it's your spirit that makes you phenomenal. Take good care, and thank you for showing us what grace and courage look like in real-time.

  • @CarolePronti-dy1hs
    @CarolePronti-dy1hs 3 หลายเดือนก่อน +5

    I am so impressed with you. I am much older than you and have lived a good life but developed a uterine sarcoma in 2017. MSK was my hospital and I had a wonderful team. 3 tumors, so stage 3 I think, although my dr didn’t want to tell me that. Chemo. Red devil and olaratomab, surgery and then radiation. But I’m more than 5 yrs out now. So if an old gal like me can get through this. you sure can too. You are so optimistic and you should be. Stay strong young lady.

  • @JOHNHMATTHEWS1
    @JOHNHMATTHEWS1 2 หลายเดือนก่อน +2

    Brandie great story and positive outlook to survive and conquer your life and fears. Prayers and healing this day and keep traveling. Jimmy the Juiceman 27 years LMS surviver NJ born/bred

  • @TattedTara
    @TattedTara 3 หลายเดือนก่อน +11

    I am so sorry for what you have gone through. What a special and positive person you are ❤️. I truly wish you nothing but the absolute best.

  • @carolbradley4845
    @carolbradley4845 3 หลายเดือนก่อน +16

    Bless your heart! I know it’s hard. My husband was diagnosed with Chondro sarcoma. It attacks cartridge. His was in his larynx and you are right it doesn’t respond to chemo or radiation. He was at MD Anderson and his cancer kept coming back and they kept doing surgery but finally had to remove his larynx. So he breathes through a hole in his neck. It still came back (they assured him it wouldn’t). So he had radiation and, as you well know, that’s the gift that keeps on giving. My complaint would be they just don’t tell you everything. You have to find out later that there will always be a repercussion for that procedure. The good news is he is still with us and he has a great attitude toward life. His journey started in 2016. I wish you the very best. Hang in there! Love from Texas ❤

  • @Laura-hy6bu
    @Laura-hy6bu 3 หลายเดือนก่อน +18

    I really admire how you have handled this. I know you had no choice but you are so very brave. You are an inspiration to others struggling with this.

  • @carolbraswell4488
    @carolbraswell4488 3 หลายเดือนก่อน +13

    Thank you for sharing Brandi. I have been battling breast cancer for a year now and getting towards the end of all my treatments. I have never heard of your type of cancer before. I'm very happy that you are bringing awareness to your cancer, so we can all learn and so folks won't feel so alone that get diagnosed with this. You are a very strong and beautiful lady!! Thanks again ❤

  • @HeidiM-pf1lv
    @HeidiM-pf1lv 3 หลายเดือนก่อน +4

    I was diagnosed with ulms in October 21. I am happy to see you doing well. I have had some of the same things that you went through. I too am now clear.
    Very important to go to a cancer center to see a sarcomaspecialist, other oncologist don't have the same knowledge on this cancer.

  • @Stanley_Furley
    @Stanley_Furley 3 หลายเดือนก่อน +4

    Wow! What a strong, honest and articulate woman.❤

  • @mariannemcguff1296
    @mariannemcguff1296 2 หลายเดือนก่อน +3

    Brandi your attitude is so amazing! May God continue to give you clean scans! Keep taking life one day at a time! ❤

  • @ApostleOfZeus
    @ApostleOfZeus 3 หลายเดือนก่อน +21

    A remarkable woman and a true beacon of hope under adversity, thank you for sharing

  • @orscrub3161
    @orscrub3161 3 หลายเดือนก่อน +6

    what a wild ride you have been on. may God continue to watch over you. ❤️

  • @elisedunstan2080
    @elisedunstan2080 2 หลายเดือนก่อน +2

    Your deadlifts at the first are inspiring!

  • @casperasthebest
    @casperasthebest 9 วันที่ผ่านมา +1

    I had Leiomyasarcomas in my blather when i was twenty seven years old. Back than they had no treatment for it, i was lucky that they could remove them. Im fifty six now, so do t give up!

  • @user-sh8hb3sn6i
    @user-sh8hb3sn6i 3 หลายเดือนก่อน +10

    Brandie, thank you for sharing. I just completed 18 months of treatment for a large metastatic leiomyosarcoma on my spine and a large Chianti carcinoma in my liver. I too have a femoral nerve injury. You have been so much more than I have. You have an amazing attitude. I noticed a BD logo behind you in one of your photos. I worked for BD for several years. We have a lot in common. Take care Brandie…I’ll be thinking of you! ❤

  • @cindyjones3216
    @cindyjones3216 3 หลายเดือนก่อน +6

    My father passed away in 1970 at age 54. He had sarcoma but I don't know what kind since the VA said all of the records got lost in a fire. He got really sick in October of 1969 and had a lot of pain and lost a lot of weight and looked bad. He was just given pain meds and Mylanta as I recall. He died in February of 1970. I wish I knew more about what happened but I was just a teenager so no one told me anything. I have thought about it a lot over the years like why he wasn't given any options other than palliative care.

  • @Cyndy101
    @Cyndy101 3 หลายเดือนก่อน +5

    Thank you for sharing and I'm so happy I found you! I'm a breast cancer warrior of 5 years but recently the same breast changed quite substantially. I'm waiting on testing & scans to be done so I can move on or go to war. I was feeling defeated but seeing your fight and drive and then overcome so many setbacks, I know I can do this too! 💪🏼 I'm sending you all the best wishes and my prayers 🙏🏼 for you to live the life you love until you are elderly and you're living an amazing full life! ❤❤❤

  • @patriciasmith8501
    @patriciasmith8501 3 หลายเดือนก่อน +3

    Girl!! What you have done for me today! Thank you and Bless you!❤

  • @alexisw6764
    @alexisw6764 3 หลายเดือนก่อน +3

    DC vaginal adenoscaroma in 2021 tumor excision immediate recurrence 6 weeks later. Radical hysterectomy, external rads followed by internal brachy. Rad side effects were brutal but at least I was done... or so I thought... now the from the hormone blocker I take is damaging by bones in addition to neuropathy and joint pain and I'm currently being monitored for a small brain cyst. But am technically NED and for that I am greatful.
    Sending 💛 💙 💜 Sarcoma, Gyno cancer and Survivor love to you.

  • @Ceerads
    @Ceerads 3 หลายเดือนก่อน +11

    I’d read that one should always go to a sarcoma specialist/center for treatment if diagnosed with a sarcoma. Thank you for this interview. I wish you good health and happiness.

    • @sallymccoy6286
      @sallymccoy6286 3 หลายเดือนก่อน +7

      Brandie this is the best advise to share with those fighting cancer. See the Oncologist that specializes in your type of cancer. And make sure its in a cancer hospital. Hope your doing well.

    • @Serenitynow958
      @Serenitynow958 2 หลายเดือนก่อน +1

      Definitely sarcoma specialist!

    • @Ceerads
      @Ceerads 2 หลายเดือนก่อน

      @@sallymccoy6286 It’s especially true with sarcoma.

    • @Ceerads
      @Ceerads 2 หลายเดือนก่อน

      @@Serenitynow958 Yes!

  • @graceotoole2467
    @graceotoole2467 3 หลายเดือนก่อน +2

    Praying for you ,all the way from Australia 🇦🇺, 🙏

  • @sandilobianco6734
    @sandilobianco6734 3 หลายเดือนก่อน +14

    Thank you for sharing your cancer journey, Brandie.

  • @joanswanson5508
    @joanswanson5508 3 หลายเดือนก่อน +9

    Thankyou Brandie for sharing your story. I had similar symptoms back when I was 32, but alot of clots. My surgeon told me the entire fibroid was atypical and a leiomyosarcoma. I had a guiding force tell me to have the surgery right away and I am so grateful I did!! Sending you lots of hugs and wishes for successful surgery!!

  • @evascheuble9273
    @evascheuble9273 20 วันที่ผ่านมา

    A good friend of ours that lives in Roseville CA was just diagnosed with LMS. The Dr in the ER gave her the news by saying you have LMS it's a rare aggressive incurable cancer, LMS. I'm late to taking my kids to Disney Land, good bye. Your video has helped so much! Thank you so much!

  • @EJavierPaniaguaLaconich
    @EJavierPaniaguaLaconich 3 หลายเดือนก่อน +2

    Brandie is a true fighter. Mad respect and all the best to her!

  • @jillkivioja7638
    @jillkivioja7638 3 หลายเดือนก่อน +12

    God Bless you and Keep You!

  • @jamesjones-sw9gl
    @jamesjones-sw9gl 3 หลายเดือนก่อน +11

    Hello, I am praying for you. I have been diagnosis with sarcoma also about a year and half ago. The sarcoma is called myxofibrosarcoma and it has metastasis to the lungs. I had a wedge Video-assisted thoracic surgery (VATS) on my left lung. My oncologist suggested immunotherapy if this doesn't worked I am going to a sarcoma specialist. Thanks for your story.

    • @gillianmellin8315
      @gillianmellin8315 3 หลายเดือนก่อน +4

      Thinking of you

    • @anglophils645
      @anglophils645 3 หลายเดือนก่อน +4

      Good luck to you!

    • @brandiebaranowski7384
      @brandiebaranowski7384 3 หลายเดือนก่อน +1

      It sounds like you are on the right track, but please don’t wait to see a sarcoma specialist.

  • @suebell7281
    @suebell7281 3 หลายเดือนก่อน +11

    Thank you for sharing your very difficult journey! Praying for healing and blessings!

  • @gregwilvert
    @gregwilvert 3 หลายเดือนก่อน +4

    Thanks for sharing your story, Brandie. I admire your strength and courage. I have a high risk prostate cancer and surgery scheduled for late March. Listening to you has given me a little bit more courage to face this thing. I’ll be thinking about you and hope you’re doing well.

  • @Mamma-Tex
    @Mamma-Tex 2 หลายเดือนก่อน

    My 75 year old mother struggled with stage 4 colon cancer for years. Painful adhesions and blockages. Once the colostomy was done her quality of life improved greatly!!!!! Ostomy is nothing to be feared.

  • @darrellhicks360
    @darrellhicks360 3 วันที่ผ่านมา

    “We got this….” You’re my hero ❤❤❤❤

  • @dustyjones9874
    @dustyjones9874 3 หลายเดือนก่อน +7

    Wishing you the best, focus on the important things.

  • @chayamiriamweisman3733
    @chayamiriamweisman3733 6 วันที่ผ่านมา

    I worked with sarcoma patients at Sloan-Kettering. I began studying sarcoma at 14 and was hellbent on curing it. I got sick so med school was out of the question. I did what I could to help my patients anyway!

  • @chayamiriamweisman3733
    @chayamiriamweisman3733 6 วันที่ผ่านมา

    You are a very strong woman. Go kick cancer's ASS!! Praying for you.

  • @whitsax
    @whitsax 3 หลายเดือนก่อน +10

    Bless you for sharing your story to make a positive difference for others. Your straight talk with laughter interspersed was serious AND hopeful and I am sending my prayers and good vibes and light and love to you for your best life forward. 💗

  • @beckymunro2071
    @beckymunro2071 3 หลายเดือนก่อน +1

    I just found your video. You are such a strong lady. No one deserves to have to go through that, but you are so positive. I'm sure you have helped so many with your positivity.

  • @sylviarogier1
    @sylviarogier1 3 หลายเดือนก่อน +6

    Wow. You have a great attitude. Amazing story!

    • @deva190
      @deva190 3 หลายเดือนก่อน +1

      Attitude means so much! I think it is the first step in the healing process.

  • @lenaturner5842
    @lenaturner5842 3 หลายเดือนก่อน +3

    Will pray for you. I understand the Scan anxiety. My sister had stage 4 B cell lymphoma. I get it when waiting for her scan results.

  • @saraseelig6390
    @saraseelig6390 2 หลายเดือนก่อน +2

    Brandie, thank you for this very informative, necessary video. You present it in such an intelligent, direct way that's easy to understand. You are helping many people, really doing a service here.
    I'm sending you strength, peace and healing, positive energy from NYC. ❤

  • @sandra4710
    @sandra4710 2 หลายเดือนก่อน +1

    Cheering for you!! What a brave, beautiful young woman!

  • @DeborahLebel-si9ib
    @DeborahLebel-si9ib 3 หลายเดือนก่อน +2

    Oh my goodness little girl.. you are so brave and have the best attitude… I’m so proud of you… what state are you in? I just want you to know how loved you are…. I am praying for you… please stay in touch and let us know how you are ok? I love you…❤🙏🌈

  • @mistyrhodes1033
    @mistyrhodes1033 3 หลายเดือนก่อน +1

    Brandi, you are a warrior and my hero. Hearing your journey has given me the strength to make a decision regarding my vulva cancer. You are an inspiration and an incredibly strong woman. 💪 Thank you for sharing your journey. You will be in my prayers, beautiful. Hugs to you. ❤

  • @ruthannpickett6150
    @ruthannpickett6150 28 วันที่ผ่านมา +1

    Thank you so much for this video. I was just diagnosed today with uterine sarcoma. This has helped me understand more the rocky road ahead.

  • @rhondaseitz2634
    @rhondaseitz2634 3 หลายเดือนก่อน +4

    I am just so impressed by your strength. I’m sure you had your days, but you really are such an inspiration. I will keep you in my heart and pray for a life of good health moving forward ❤️

  • @bettyconnearney7943
    @bettyconnearney7943 3 หลายเดือนก่อน +4

    You are a Real Warrior!!❤ i will still keep you in my prayer list🙏🙏

  • @rebeccaprimeaux7882
    @rebeccaprimeaux7882 วันที่ผ่านมา

    God Bless You Brandi! You are Beautiful & You are a Survivor Thank God!! Praying for Gods Miraculous Healing Hands Upon You for Complete Healing!🙏✝️🙏✝️
    Thank You for Sharing Your Story!

  • @Mark_Ocain
    @Mark_Ocain 2 หลายเดือนก่อน

    This is an inspiring story. If I were confronted with this, I have no idea how hard I would fight it. This lady is so tough and brave.

  • @karynmoore5094
    @karynmoore5094 2 หลายเดือนก่อน +1

    So good of you to share your story in such a relatable, articulate manner. It’s awesome to hear from someone who so fearlessly accepts these hard facts and continues down whatever road is ahead with so much inner strength. God bless you. You deserve a break. May all your future scans come back clean🙏

  • @BinaryReader
    @BinaryReader 3 หลายเดือนก่อน +3

    Thank you for sharing your story

  • @fernemcallister6774
    @fernemcallister6774 3 หลายเดือนก่อน +2

    Brandi, you’re wonderful! Keep us posted!

  • @brendaaucoin67
    @brendaaucoin67 3 หลายเดือนก่อน +1

    You are the pure definition of a warrior.❤

  • @mdr1833
    @mdr1833 3 หลายเดือนก่อน +2

    You are amazing! I could never be as strong and upbeat like you! I pray you have a long healthy life!! God bless you and your support system!!🙌🙌🙌🙌🙌

  • @fernemcallister6774
    @fernemcallister6774 3 หลายเดือนก่อน +4

    We’d love to hear an update! Hoping this patient is doing well.

  • @deborahbizzell1989
    @deborahbizzell1989 3 หลายเดือนก่อน +1

    So happy for you,knowing you were a warrior in your fight!

  • @mattthomas1430
    @mattthomas1430 2 หลายเดือนก่อน

    Such a rock star. So glad you’re still with us.

  • @yanasosnovskaya864
    @yanasosnovskaya864 3 หลายเดือนก่อน

    thank you for sharing your story! You are a true hero and strong person!

  • @TH-xx9cn
    @TH-xx9cn 3 หลายเดือนก่อน

    I'm sorry to hear of all you've been through. Thanks for sharing.

  • @smileytow1925
    @smileytow1925 3 หลายเดือนก่อน

    Thank you for sharing your story, you are an amazing young lady! ❤️

  • @conniehowe5421
    @conniehowe5421 2 หลายเดือนก่อน

    I’m so sorry you have gone through sooooo much !!! Your a amazing beautiful lady !!

  • @Dmcsw-xg9cq
    @Dmcsw-xg9cq 3 หลายเดือนก่อน +4

    Thank you for sharing your story! Wishing you the best ❤

  • @jenniferaddison3829
    @jenniferaddison3829 3 หลายเดือนก่อน

    Wonderful video! Great speaker.

  • @michelegawrys7286
    @michelegawrys7286 3 หลายเดือนก่อน +3

    I dont know what to say but you are a truly amazing woman! Wish you the best!!

  • @wendykelcey1246
    @wendykelcey1246 3 หลายเดือนก่อน

    Thank you so much for sharing. Knowledge is power! It’s unreal to hear all that you have been through and yet you have the most positive attitude! Lots of hugs are sent your way for a smoother sail ahead!

  • @pamfogarty3087
    @pamfogarty3087 3 หลายเดือนก่อน +4

    Thank you for sharing! Wishing you the very best for the future x

  • @cristywyndham-shaw5111
    @cristywyndham-shaw5111 3 หลายเดือนก่อน

    You are an inspiration. Thank you for sharing your story. ❤ I'll keep you in my prayers.

  • @brooks6348
    @brooks6348 3 หลายเดือนก่อน +2

    I’m so sorry!

  • @lholder1104
    @lholder1104 3 หลายเดือนก่อน +1

    You are a rockstar, girl. All the love. ❤❤❤

  • @toniscaglione7451
    @toniscaglione7451 3 หลายเดือนก่อน +1

    Brandie, blessings and prayers for you ❤️🙏🏻

  • @lizzijansen6527
    @lizzijansen6527 3 หลายเดือนก่อน

    Attitude is everything! You go girl. Hugs.