@islamicreminders3648 Having a disease is not a test from any God. It means we all got shitty genes lol. It's all genetic, like having red hair or epilepsy. I saw a documentary on here a year or so ago about these girls who can't feel pain at all. It's definitely important to remember that other people have it worse, and we should be grateful. It could always be worse
Oh my goodness, you hit the nail on the head! That’s the exact pain I feel! It’s hard to explain how after hikes, I have two pains. The normal soreness pain, that sometimes hurts but also feels good when you stretch it out. And then that tooth ache feel, like the bones and nerves have been hit by a hammer. I have both after a long day of physical activity, and people have a hard time when I say “I hurt, but more than just sore hurt.”
@@antoniotiberi1569I just take edibles, honestly they’re the only thing that really helps me. Took gab for a while, but they kept having to increase the dose till the side effects sort of make me feel sick 24/7. I’ve only had my medical med. card for around half a year now, it’s honestly the biggest blessing I could’ve asked for.
Yes this is what I say exactly to my husband. Unless you have this you just don't really know. I never knew what it truly was till I was diagnosed. Prayers for better days for everyone. 🙏
If you ask me go to a neurologist and take a SSRI drug which increases the serotonin in your brain. People like us with fibromyalgia have serotonin deficiency. I have used a pregabalin(gabawin 25) and eslopam 5 which have helped me…..
@@misanthropic_shithead7438it's literally not, but ok. They've recently been able to see this and chronic fatigue syndrome (usually people have both & they have very similar symptoms) on MRIs now. And they even have a new blood test for chronic fatigue syndrome. How do you explain the MRI results? What else is causing their pain? Fibromyalgia is a medically acknowledged illness by many health organizations around the world. I hope you're not a doctor, nurse, or in the healthcare field in any way, shape, or form because this is a terrible, harm causing attribute to have to patients & people suffering with the illness in general. As someone who has had this since I was young (I'm 29 now), this is extremely disheartening & frustrating to read. I'm curious what your motivation to gaslight fibromyalgia sufferers is. What is your purpose of invalidating a medically recognized illness?
I have it too. Sucks on weather changing days for me. Luckily I have a great team of doctors. Mine really flares up with stress. It isn’t fun. I so understand how you feel ❤❤❤.
Totally agree with the weather changing says, but studies and doctors tell me there is no evidence to prove this. I’m like - I’m your evidence. I can forecast the weather! I live in North Queensland Australia which gets very humid and the build up to rain I feel as though my body is being pushed into the ground, I’m in whole body pain, fatigue etc but as soon as that first rain drop falls the relief is instant.
I've had it for over 20 years and it has gotten worse over the years. Then 6 years ago I caught Lyme disease and all symptoms have doubled. It has completely removed me from everyday life. The pain I feel 24/7, 365 has me screaming and crying quite often, begging for relief. Some days I think of checking ending it all but then my two wonderful dogs would be alone.
I've been up all night with a migraine 😩. No matter what I take it wasn't working so I gave up on sleep and made some coffee. It helped quite a bit along with advil i had to take 3x through the night. I'm so glad this question was asked and answered well! I'm in pain all the time and I can't stand loud noises. Chronic fatigue, pain, insomnia and joint stiffness etc etc gets exhausting.
I totally agree! Sometimes it feels like my pain sensors are on overdrive. Small stimuli for normal ppl are amplified for me. 3 requirements are in my world: adequate sleep; consistent low impact exercise regimen & stress avoidance. The latter is difficult of course but I try to avoid it if possible.
I too have this horrible fibro and also rheumatoid arthritis for years. I experience so many different symptoms and I have recently been experiencing really bad anger and crying episodes.
I have a friend who has it. I want to understand better how they feel. This explanation makes it a bit more clear to me. Two days ago I woke up with pain all over my body. Laying down was painful, or even sitting. It turned out that I caught a smash bug. Huge headache. I wonder if my friend feels that generalized body aches every single day. This is a very shitty illness. 😢
Yes that's exactly how it feels but ten times as bad. Some days I wonder why go on, when being able to participate in everyday life is never going to be possible.
I think i do have this! i have skin problems, urinary problems and wherever i pinch myself on the body i have pain there! I wake up pain in my back, arms and legs! Cant on one side for too long cuz then it hurts and i never wake up with a good mood! I wanna sleep more but my body has to change positions.. I feeo terrible! The people in my life has wrecked me mentally.. 😣
EXACTLY!! Weather has been great, had a few good days in a row. Today...not so much. Energy drained. I hate that I sound so negative much of the time- even "I" get tired of ME! 😔 Guess I should just focus on being GREATFUL for those 3 days. Focus on more good days to come. ☆ You're so right-- I've explained fibromyalgia as having my volume button turned up FULL VOLUME, with the button broke.
I'm miserable to the point I'm not able to do many everyday things. I pray everyday for one day a week that I may function enough to go shopping with my friend. All but one friend have deserted me because I can no longer participate in normal everyday happenings. 😢
@@patriciahogan4705 Boy do I relate. Friends? So few people even understand what we live with everyday...Friends are no different. Even family has no interest in learning about my illness. My sister prefers to compare her NORMAL back pain as equal or worse than mine. It's NOT THE SAME and it's NOT A COMPETION!! She is A TRIGGER & TOXIC to me. I HAD to CUT her off, which made her want MORE of my attention. I DO NOT have the energy to put up with THOSE who refuse to even TRY to understand what I'm living with/ how I CANT meet their needs for attention. It's an isolating disease. But people who WONT acknowledge my inability are TOXIC and NOT worth being around. I can be miserable by myself, and not care about them as much as they won't reciprocate. I'm done being a "people pleaser"!! Take care of YOU!! ❤️ Give yourself CREDIT even for the smallest things you achieve....like getting out of bed, washing your hair, ANYTHING that others take for granted is a BIG DEAL!! We are WARRIORS that fight EVERY damn day!! I'm PROUD of you for sharing. I HEAR YOU. I FEEL YOU. I UNDERSTAND what you're saying!! And I THANK YOU for relating to a Stanger.🌹🫂👍🏻💯
@@olly8 Thanks for the encouragement. Thank God I have one good friend and my brother who understand I do the best I can. Our mother at 95 started going down hill and for two years I drug myself over to sit with her 6 hours a day while my brother went to the store, did yard work, anything needed around the house they shared. He had retired early ten earlier years to care for her when she was diagnosed legally blind and I just didn't have enough energy. She passed away at 97 a year ago but the previous two years took a lot out of me, all my symptoms worsened but I'd do it again. Our sister in LA wouldn't even come to visit mother even though mother had always favored her so I told her she would never be part of my life again and haven't spoken to her since. Who ever said life aint easy, was absolutely right.
I have found that controlling emotional stress is key, boundary setting really helps. Keeping oneself safe from abusers is so important. The body keeps score. Nutrition is also huge, sugar reduction is really helpful.
The weird thing is that I can bust my chin open, get up and feel perfectly fine. Then a bad fibro day comes and my legs literally feel like they’re about to snap in half. Broke my nose, didn’t bother to see a doctor. Didn’t see a doctor till I developed fluid buildup in my lungs, and didn’t see the doctor till my double ear I faction caused permeant damage visible on my scans to this day. While I can say that only around 5% of my fibro pain reaches the level of massive ear infection, it does honestly feel like a toothache all acrossed my body. Worst in my rips, cheekbone area, lower limbs, and wrists. There have been days where I was in so much pain that I was bed ridden for over a week. The worst part is how bad it feels to act like “such a baby” when you know it’s just your pain system overreacting. Spent most of my teens in deep pain, only for my family and school to treat me like I was making it up. “Get over it, stop being lazy”, that fun stuff.
I’m really sensitive to light and noise. It’s exactly like listening to the radio turned up way too loud. Everyone else says it’s fine, but you just keep reaching your limits. It doesn’t matter what anyone else says, if it’s all you can take, then it’s all you can take.
Everyday ia a struggle....Sleep pattern is off the wall. Only relief for me is laying in a dark room with the air conditioner on 😢 it is draining, exhausting 😢
I wish my family member understood this. I am in bed a lot because of the pain, fatigue, little sleep, almost constant nausea(on odd symptom), dizziness, so I don't drive. Said family member says all my friends are enabling me, if I just got out of bed, it will get better. I have worked up until the past 3 weeks, but it got too much for me. So aggravating!!
Even when my daughter screams my ears hurt soo badly like a screwdriver in my ear ! I wake up with a stiff body and my whole body legitimately feels like it’s been ran over and filled up with air till point of popping 😭😭
I wonder if fibromyalgia can be linked to child trauma with an over active fight or flight 🤔 I was just diagnosed with fibromyalgia literally today but have lived the last 25 years in constant pain due to endometriosis that led to a hysterectomy everything was always blamed on endo but now that my uterus is gone the Dr diagnosed me with this new condition and I'm not sure how I feel about it
trauma is a predisposing factor for sure, but it does not *cause* chronic pain. It can cause your nervous system to feel like it needs to protect you because it learned that the world is not safe at a young age. The nervous system side of things however, causes your body to be in an overly protective state, activating pain as the alarm and then activating your other fight or flight responses, thus the increased muscle tone, decreased gut and reproductive functions (hence the endo you mentioned), increased inflammation, sleep difficulty, and brain fog. We address the underlying factor of the nervous system, and we see those symptoms all improve, pain, gut and reproductive symptoms, immune system symptoms and inflammation, sleep improves, anxiety and depression improves, ability to function and quality of life improves.
@@paincrusaderofficialbut how do we address those underlying factors? Especially once were economical F'd and have no support systems? I am in fear of being homeless it's gotten so bad and so isolating. I don't have resources to get the help that I know I need.
@@jopainting1668 Firstly, I hear you, and your struggles are real. I wish I could snap my fingers and fix it all, but this is a bit more complicated than that, right? Because everyone's pain and circumstances are different, this approach requires a personalized plan that incorporates a whole system of knowledge, drills, and strategies. We can't really condense it into a simple TH-cam video and expect transformational results. In fact, making generalized recommendations could actually harm some people, and doing so would be professionally irresponsible of me. To date, I haven't found a way to teach this approach without providing 1:1 support and/or a structured container to ensure success. Unfortunately for both of us, insurance companies would rather cover temporary, passive, retroactive, expensive solutions that grow less effective over time (like injections, ablations, medications, and surgeries) than cover care that teaches you what you can do to treat your pain on your own with no nasty side-effects or complications. My program costs far less than ongoing 1:1 sessions and is far more valuable and effective. The struggles you're facing are a systemic issue that I know I can't solve as one person. I do offer scholarship opportunities where I work with those in the most need. The next cycle of applications kicks off next week (Sep 11 - Sep 17). You are more than welcome to apply and I hope you do!
My daughter suffers from severe fibromyalgia.. Previously she suffered from severe endometriosis.. The endometriosis has not been an issue since she has had the fibromyalgia (in the last 18 months) I feel she had a good childhood & upbringing.. We lived in the country and she had good friends and she danced, she had pet rabbits, cats, dogs, chickens and pony’s. She seemed to be a happy child. I feel that I was a good mum. What am I missing. What has caused this .. As a child she did get sick with colds, she was allergic to horses, and sh also had exma when she was very young. When she was 14 she developed severe psoriasis and was given methotrexate to control it. She also has been diagnosed with psoriatic arthritis. Acupuncture has not helped, float therapy didn’t help, Myotherapy gives her some relief for a day or 2.. As does a remedial massage now and then. I would give y life to help my daughter..She lives in Victoria Australia & she is 30 yo
I've had 3 or 4 trips to the doctor to do an out patient procedure, where they've been burning the nerve endings next to my spine. The pain goes away for about 20 mins. Then the pain starts hurting again. In 3 day's I'm screaming in pain and crying all day. I want to be fixed so I can work. I'm tired of this pain.
I've had it for twenty years. It never gets better it increases with age. Now I can't tolerate temperatures over 80°, all my symptoms intensify to where I nearly lose it.
@@patriciahogan4705 I can't be in temperature below in the 50°F or above 85°F. My body has become very hypersensitive to weather changes. Having arthritis doesn't help either. I'm going to have surgery and hope that helps. Like I tell everyone. Do you know how I know I've lived a great life? Because my body hurts. I lived life with NO fear. As I've gotten older my body reminds me how I treated it when I was young.
The worst part is going to doctor after doctor for over 20 years explaining these symptoms and issues having none of the doctors have any knowledge or understanding about what is going on and being dismissed time after time.
@@peacefulpath222 Sorry for that. I hope medical professionals become more educated on conditions like ours, and refer cases they aren't familiar with.
I’m so sorry I’ve had it since I was 8 and didn’t get diagnosed till I was 19 and they won’t give me any pain meds that worked I literally resorted at times to buying codeine and percs off dealers just to walk pain free on important occasions
I have got fibromyalgia wake up this morning and the sun is shining just want to enjoy it and I cant because at this moment I am feeling drain need to have a power nap living with this thing misery it takeaway all you renergy !!
Oversleeping absolutely kills me. I guess it’s the lack of movement or something? Anything around 7 hours is agonizing, I quite literal fear sleeping for that reason.
It’s been ten years since I started having fibromyalgia couples with brain fog. I had to collect enough energy to get through my classes. Now it’s so bad that I have been on bed rest for two years due to this and multiple health issues I can just barely get out of bed
I think I have this condition. Wow, I totally didn't know about this. My whole life I've always felt too much pain, even small cuts and scratches hurt sooo much... And my family members think I'm overdramatic😅
I know your pain. I'm a 43yo father of two girls, it is a terrible burden, sometimes it gets too much. Only other sufferers understand it. Hope you can recover. .
After 5 years of Drs I was diagnosed with fibromyalgia. That was in 1991. It's still hard to explain what it is but all of a sudden everyone seems to have it. The pain is over every inch of my body but some people say they have it in their knee or wrist etc. I'm pretty sure that's not fibro. It's widespread pain
Finally a medical professional who is accurately and plainly explaining the mechanism of fibromyalgia. I have lived with this chronic illness for over six years and not a single day has passed since the car accident that triggered this illness, where I am not in pain. It sucks a**.
Feels as though each and every cell in your body is being chipped or chewed upon or twisted by tiny trolls sent by all the abusive, sadistic men from your past...whom you left to protect yourself.
I have lived with every symtom that is ever explained about fibromyalgia for over 30 years. I made a big mistake having a total knee replacement. Now after going thru another procedure under anesthesia. I am left a complete wreck. My knee hurts constantly like my body hates it. It has been 4 months and a neighbor looked at me as I used a cane to try to get in the neighborhood pool and said I can't believe how long it is taking you to recover. I hurt everywhere and PT is a nightmare. The insurance decided that I was not going to get a good range of motion and cut off my PT. At this point I don't even care I can't take anymore added pain. My life is so much more of a nightmare now!!!!
Hi, I feel like I’m getting some symptoms of fibro. Too but I believe in God who heals the sick. I’m gonna pray for you throughout of the next few days and you can comment back how you feel. The world is suffering because of sin, but the Lord heals.
Benzos get rid of all my symptoms. The pain the burning the stiffness tightness the sharp pain the joint pain muscle pain migraines .....etc. Gets rid of every single problem. But no one will prescribe these anymore. What will work like a benzo but isnt one that doctors wont have a hissy fit about?
One thing that I think helps is to work on your mental health, and reduce sugar. It sounds dumb, but I think it could be worsened by inflammation from sugar, and the physiological response to stress. My weird theory is that the body sort of feels under addressed, and so it turns up the alarms, because it thinks you don’t listen
@@qs-ii1872 I'm a vegan, eating lots of raw fruits and vegetables and still got fibromyalgia (for over16 years now). For me it feels like it was caused by to much and to long physical and emotionel stress and overworking (trauma's). I know a woman who got it just after a difficult child delivery (witch I didn't have). Morgan Freeman has got it after a car accident.
any kind of infection can sort of "trigger" the nervous system to make these overprotective changes where it ramps up its defense mechanisms. Or, in many cases, an infection can absolutely flare symptoms or sensitize the nervous system further. Same goes with allergens or food insensitivities, things like that. Basically, anything the body wants to protect you from. Make sense?
@@paincrusaderofficialThat makes sense. Would it be safe to say that the problem is how the brain sends signals to the body wether 1.signals (neural pathways) fire too fast and/or 2.signals are somehow disrupted during transmission? And if this is true, slowing down or calming those signals would be key, correct.
@@joser83111 Not how the brain sends signals to the body... but, more of, 1. how easily the body picks up stimuli (nerves become more reactive to smaller stimuli), 2. how messages from the body are interpreted in the sensory cortex. There is a 'disruption' of sorts like you mentioned and it has to do with the processing ability of the brain, where its like the brain and the body are no longer speaking the same language. So the brain can't understand the messages from the body and is forced to assume every message it gets means you're potentially injured, and must activate it's protective response (pain + fight or flight activated) just in case. Keys to solving this are 1. reducing reactivity of peripheral nerves, 2. getting the brain and body speaking the same language again, 3. reducing strength of pain pathways. If you'd like more info on all this, I'd recommend my Breakthrough Chronic Pain Course. It's 3 parts and you can listen to the first part here >> th-cam.com/video/lu5SbuCsBas/w-d-xo.html. There's a link in the description on how to access all three parts. But this course dives deep into the science, like we're talking about here, and more importantly, the solution!
@@paincrusaderofficial Very interesting and makes alot of sense, thank you so much for all the great info. I will look into the chronic pain course later today. I have a final question which may or may no be in your course. Now that I have a better understanding about how chronic pain works, where does the chronic fatigue or severe exhaustion takes place in all this? Are they 2 separate illness because they seem to almost go together. Can the NS also create severe exhaustion or do you think it is a completely different system, assuming that all blood work and test are normal? Thanks for your time!
@@joser83111 theres a few ways to look at it. Could be two different conditions with a similar root cause... or two different SYMPTOMS with the same root cause. Fatigue is generally a very common symptom with nervous system sensitivity. So is gut dysfunction, sleep dysfunction, reproductive dysfunction, so is immune dysfunction... different people present with varying degrees of symptoms in each category. People who present with fatigue as their primary symptom end up with a diagnosis of CFS. People with pain as the primary symptom end up with a diagnosis of fibro. People with gut symptoms as the primary symptom end up with the diagnosis of IBS. People with reproductive dysfunction end up with a diagnosis of endometriosis. People with immune dysfuncion as the primary symptom end up with the diagnosis of lupus or rheumatoid arthritis. This can go many ways, but these are just some examples. There are differences and nuances to each diagnosis, but the thing they all have in common is the nervous system sensitivity issue. Does that make sense?
So like 2 months again I started getting pains out of no where like numbness everywhere tingling,burning,aching,stabbing, pins and needles sensations you name it pain in the wrists ankles hips buttocks and in the muscles neck pain shoulder pain and the worst headaches I couldn’t sleep at night for weeks I started having anxiety attacks out of no where depression and I went to the er a couple times because I felt like I was dying like literally i went to the hospital and my heart rate was at 145! They said nothing was wrong with me but I had to stay there until my heart rate went down to normal I’m 22 and a female btw. I never experienced anxiety in my life until recently and I went to my pcp he said I’m fine and that it looks like it’s fibromyalgia (bloodwork came back fine ct scan of my brain also came back fine) I told him I get pains in my head specifically in one spot so he ordered an mri but these pains are so annoying and they actually hurt I really was losing my mind not knowing what it was and happened so suddenly I really felt like I was going crazy I had break downs after break downs I couldn’t work because I was so scared there was something wrong with me i feel better now mentally lol
I felt like I was having heart attack in end of February. I think i pulled a muscle and something else. But now I’m just feeling fibromyalgia. So now I don’t know exactly physically. But I do believe in the spirit world and God. So I’m saying that i think it’s because of fear. There is a spirit of fear real fear. And that could cause it cause it came out of nowhere when i got afraid of someone being in the house alone with a unaliver to attack me but it’s a spirit of fear that comes from the devil. Again this world we live is not even close to what people think it is. It’s an illusion from the spirit world. God is real and the devil is real. The. Bible is the truth. Hope all goes well.
@@lightoftheworld5455I love this i believe you 100% when all this started happening to me it was right after i had the worst sleep paralysis and meeting my sisters boyfriend who worships death (we don’t like him) bcuz he carries a negative energy around him but my point it that u started going back to church and getting closer to go and then this happened I believe I’m going thru a spiritual battle but I have faith in god also I’m still going through all of those pains and everything I hope all goes well for you as well thank you for sharing I appreciate it you can always reach out if you would to speak about it more
@@lightoftheworld5455I believe this 100% I been going through a spiritual battle it all started when I went back to church after years of not going and creating a stronger bond with god an as soon as I got sleep paralysis and met my sister boyfriend who worships death (he carries a negative energy) all this started happened to me i still get pains everyday it’s been going on 6 months already but i hope all works out for you as well feel free to send me a message if you would like to speak on it more good luck with everything 🫶🏼
It’s like having the flu for me, and usually is chronic reoccurring. I can go a week or two with out a flare up but then I’m down and out again before long and it sucks
They kept dosing my gab (pain meds) higher and higher till I was near constantly on the brink of vomiting, couldn’t even walk straight and I still felt horrible pain. I gave up and started using CBD drops for a while, then started THC gummies shortly afterwards that my mother used to use for stress. Turns out weed is super helpful at preventing pain and bringing it much much lower. Not saying it’s a cure, but I’d probably off myself if it stopped working one day, ngl. I’m actually happy now, I can keep a job for more then a few months, and I can go out to movies and hang out with friends again. Which might I add, I haven’t been able to do since I was 14. For context, I’m 25 now and have only been taking edibles for half a year or so.
Can you help us, my daughter has fibromyalgia and needs to go on disability and the doctor is doing nothing to help! Please help steer me in the right direction ❤
What is that caused by. I was punched really hard by a friend (flat handed) right on my back last august and I only today talked to sum1 that had it that describes the same symptoms as I have had since that incident (they have came and went some periods it’s better some periods it’s worse)
Fibro is believed to come from intense and often repetitive trauma onto somebody, both emotionally and physically. There’s something called Neuroplastic pain, which isn’t exactly the same as fibromyalgia but pretty similar. Basically, it’s pain that’s in your head that’s triggered by an painful event, which can be physical or emotional and doesn’t need to be traumatizing. Say, you play football and got tackled, suddenly you get really bad back pain and your doctors have zero clue why you have it when all the X-rays look perfectly normal and there’s no signs of inflammation. Or maybe your mother passed away and suddenly your neck starts hurting horribly that you swear was due to a traffic accident you had ten years back, all without any physical proof. It’s pain that vents stress, just like fibro, but is focused onto specific parts and validated by constant reaffirming. I’d recommend looking into it since that sorta thing can be helped or even sometimes go away fully.
@@paincrusaderofficial Then why did they. I'm seeing different doctors now. They want to do surgery. But the first group of doctors said searing the nerve endings is all they can do for me. I'm still trying to find out why? They're supposed to be the top doctors in this area. Even people outside this state come here to visit these doctors or so I'm told. I'm glad I found better doctors.
Get off all breads, sugars, processed foods and vegetables that are root and leaf edible. I was diagnosed in 1998 and suffered for 12 years before finally realizing that it’s, in large part, food we are putting in our bodies and the medications that impede absorption of nutrients. I eat animal food sources, berries, veggies that have seeds inside and are considered fruit along with some other fruits. I’ve been cured for 13 years now. Many people who have been diagnosed with fibro have many nutrient deficiencies which animal based diet can correct. I’m Living proof that the standard American diet and medication keeps you sick. Give it a try. What do you have to lose?
Having to cut off leaches who claimed to care & understand. Yet, they still call upon you relentlessly while making suggestions for my betterment. Oh really 🤔 so I can better serve you as I once did? I don't think so.
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It's like living with a full body toothache
Or wake-up all beaten up
@@parallellatepole1237true no energy but it is a test from god allah we still have to try harder.
MAN this is exactly how it feels.
@islamicreminders3648 Having a disease is not a test from any God. It means we all got shitty genes lol. It's all genetic, like having red hair or epilepsy. I saw a documentary on here a year or so ago about these girls who can't feel pain at all. It's definitely important to remember that other people have it worse, and we should be grateful. It could always be worse
Oh my goodness, you hit the nail on the head! That’s the exact pain I feel!
It’s hard to explain how after hikes, I have two pains. The normal soreness pain, that sometimes hurts but also feels good when you stretch it out.
And then that tooth ache feel, like the bones and nerves have been hit by a hammer.
I have both after a long day of physical activity, and people have a hard time when I say “I hurt, but more than just sore hurt.”
Even lying in bed is painful. 😢 I usually say I wake up feeling like I've been run over by a bus in the night 😢😢
I sleep in a recliner because if I sleep on my side I will have intense pain throughout the day. This disease really stinks.
@@antoniotiberi1569I just take edibles, honestly they’re the only thing that really helps me.
Took gab for a while, but they kept having to increase the dose till the side effects sort of make me feel sick 24/7.
I’ve only had my medical med. card for around half a year now, it’s honestly the biggest blessing I could’ve asked for.
I NEVER wake up feeling 'refreshed'. It's such a bummer. I feel ya.
Yes this is what I say exactly to my husband. Unless you have this you just don't really know. I never knew what it truly was till I was diagnosed. Prayers for better days for everyone. 🙏
I use the say , when I wake up , I feel like I was hit by a freight train. I suffered alone for years and had no clue what was going on
It’s like having the flu with body aches & fatigue 24/7. And having a full body sunburn.
I have never seen a more accurate description! I literally feel like I’m sick everyday 😭 I hate having fibromyalgia
Its like not wanting to work but still wanting money
Sometimes the breeze from a fan feels like tiny knives slicing my skin.
True 😢😢😢
... Or walking through the chilled section in the supermarket feels like walking thru Siberia! 😢
“ Oh my god” yes , no wonder I can’t stand the fan on …..😮
I have it too 😔 But my family doesn't understand. They think that I'm being lazy and overdramatic. I too want to have a normal life.
@@shaijumundakkal4397 Is that really helpful
If you ask me go to a neurologist and take a SSRI drug which increases the serotonin in your brain. People like us with fibromyalgia have serotonin deficiency. I have used a pregabalin(gabawin 25) and eslopam 5 which have helped me…..
th-cam.com/video/cTL8PStGoD8/w-d-xo.html
@@ravimoganti2293pregab doesn't help me
My nerves are more sensitive even when using it
I have fibromyalgia too
Me too
Looking at me I look fine but weuh the pain... so yes they think all those about me too
This is the best way I’ve ever heard the symptoms to described correctly- thank u 🙏🏼
It's hell is what it is. Then, you have little pharmacy techs looking down their nose at you
I wouldn’t wish it on my worst enemy.. Peoples ignorance is terrible. I feel for you. 🥰
Because its BS and anybody with a medical degree knows that 😂
@@misanthropic_shithead7438 your address name explains you accurately.
It’s pure torture !
@@misanthropic_shithead7438it's literally not, but ok. They've recently been able to see this and chronic fatigue syndrome (usually people have both & they have very similar symptoms) on MRIs now. And they even have a new blood test for chronic fatigue syndrome. How do you explain the MRI results? What else is causing their pain? Fibromyalgia is a medically acknowledged illness by many health organizations around the world. I hope you're not a doctor, nurse, or in the healthcare field in any way, shape, or form because this is a terrible, harm causing attribute to have to patients & people suffering with the illness in general. As someone who has had this since I was young (I'm 29 now), this is extremely disheartening & frustrating to read. I'm curious what your motivation to gaslight fibromyalgia sufferers is. What is your purpose of invalidating a medically recognized illness?
I have it too. Sucks on weather changing days for me. Luckily I have a great team of doctors. Mine really flares up with stress. It isn’t fun. I so understand how you feel ❤❤❤.
Totally agree with the weather changing says, but studies and doctors tell me there is no evidence to prove this. I’m like - I’m your evidence. I can forecast the weather! I live in North Queensland Australia which gets very humid and the build up to rain I feel as though my body is being pushed into the ground, I’m in whole body pain, fatigue etc but as soon as that first rain drop falls the relief is instant.
I've had it for over 20 years and it has gotten worse over the years. Then 6 years ago I caught Lyme disease and all symptoms have doubled. It has completely removed me from everyday life. The pain I feel 24/7, 365 has me screaming and crying quite often, begging for relief. Some days I think of checking ending it all but then my two wonderful dogs would be alone.
I’m hoping that you find relief soon.
I have lived with fibromyalgia for 8 years, I am tired of life, but I never give up hope, I managed to recover.
@@hamzemohamed3581 same here, but i change my diet, or i do not eat too much sweet foods and did exercise too..
I've been up all night with a migraine 😩. No matter what I take it wasn't working so I gave up on sleep and made some coffee. It helped quite a bit along with advil i had to take 3x through the night. I'm so glad this question was asked and answered well! I'm in pain all the time and I can't stand loud noises. Chronic fatigue, pain, insomnia and joint stiffness etc etc gets exhausting.
Ugh this with migraine sucks, been dealing with it and loud noises sometimes make my heart ache and head burst from pain
It’s like being beaten with a whip every single day till your too exhausted to function or think straight. 😢
Exactly
Thank you so much it is so good to hear someone explaining what happens to you Thank you
THIS MYSTERIOUS FIBROMYALGIA THING..THIS IS BEGINNING TO BE RELATED TO MY EXTREAMLY SENSETIVE/OVERLY REACTIVE IMMUNE RESPONSE SYSTEM
HEY THANKS
THIS IS THE BEST PRESENATION AND MOST HELPFUL UNDERSTSNDING OF THE HOW AND WHY
Well said!! I've had it for about 8 years, and it feels worse. Misunderstood as an imaginary pain 💔
I totally agree! Sometimes it feels like my pain sensors are on overdrive. Small stimuli for normal ppl are amplified for me. 3 requirements are in my world: adequate sleep; consistent low impact exercise regimen & stress avoidance. The latter is difficult of course but I try to avoid it if possible.
I too have this horrible fibro and also rheumatoid arthritis for years. I experience so many different symptoms and I have recently been experiencing really bad anger and crying episodes.
I'm so sorry.... I pray for you
I have a friend who has it. I want to understand better how they feel. This explanation makes it a bit more clear to me.
Two days ago I woke up with pain all over my body. Laying down was painful, or even sitting. It turned out that I caught a smash bug. Huge headache. I wonder if my friend feels that generalized body aches every single day. This is a very shitty illness. 😢
Your are an amazing friend for caring enough to understand how it feels 💜💜💜
Yes that's exactly how it feels but ten times as bad. Some days I wonder why go on, when being able to participate in everyday life is never going to be possible.
😢It's absolutely horrendous. Gosh, I just want to be well😢
Yeah me too been suffer almost six months😢 still wish im getting well kind of illness
I think i do have this! i have skin problems, urinary problems and wherever i pinch myself on the body i have pain there! I wake up pain in my back, arms and legs! Cant on one side for too long cuz then it hurts and i never wake up with a good mood! I wanna sleep more but my body has to change positions.. I feeo terrible! The people in my life has wrecked me mentally.. 😣
Just opening the door to colder temp can trigger pain
Best explanation I have heard, thank you.
Thank you for this it definitely describes fibromyalgia perfectly
@connerhowe2 What does that even mean??
I have recently had a fibromyalgia flair. My Dr's will not listen to me. I was almost unable to walk.
Excellent explanation. 😊
3 days of this rain has put me straight into a flare-up
I've never heard anyone explain it better than you!
Excellent explanation 👍
EXACTLY!! Weather has been great, had a few good days in a row. Today...not so much. Energy drained. I hate that I sound so negative much of the time- even "I" get tired of ME! 😔 Guess I should just focus on being GREATFUL for those 3 days. Focus on more good days to come.
☆ You're so right-- I've explained fibromyalgia as having my volume button turned up FULL VOLUME, with the button broke.
I'm miserable to the point I'm not able to do many everyday things. I pray everyday for one day a week that I may function enough to go shopping with my friend. All but one friend have deserted me because I can no longer participate in normal everyday happenings. 😢
@@patriciahogan4705 Boy do I relate. Friends? So few people even understand what we live with everyday...Friends are no different. Even family has no interest in learning about my illness. My sister prefers to compare her NORMAL back pain as equal or worse than mine. It's NOT THE SAME and it's NOT A COMPETION!! She is A TRIGGER & TOXIC to me. I HAD to CUT her off, which made her want MORE of my attention. I DO NOT have the energy to put up with THOSE who refuse to even TRY to understand what I'm living with/ how I CANT meet their needs for attention. It's an isolating disease. But people who WONT acknowledge my inability are TOXIC and NOT worth being around. I can be miserable by myself, and not care about them as much as they won't reciprocate. I'm done being a "people pleaser"!! Take care of YOU!! ❤️
Give yourself CREDIT even for the smallest things you achieve....like getting out of bed, washing your hair, ANYTHING that others take for granted is a BIG DEAL!! We are WARRIORS that fight EVERY damn day!! I'm PROUD of you for sharing. I HEAR YOU. I FEEL YOU. I UNDERSTAND what you're saying!! And I THANK YOU for relating to a Stanger.🌹🫂👍🏻💯
@@olly8 Thanks for the encouragement. Thank God I have one good friend and my brother who understand I do the best I can. Our mother at 95 started going down hill and for two years I drug myself over to sit with her 6 hours a day while my brother went to the store, did yard work, anything needed around the house they shared. He had retired early ten earlier years to care for her when she was diagnosed legally blind and I just didn't have enough energy. She passed away at 97 a year ago but the previous two years took a lot out of me, all my symptoms worsened but I'd do it again. Our sister in LA wouldn't even come to visit mother even though mother had always favored her so I told her she would never be part of my life again and haven't spoken to her since. Who ever said life aint easy, was absolutely right.
I have found that controlling emotional stress is key, boundary setting really helps. Keeping oneself safe from abusers is so important. The body keeps score. Nutrition is also huge, sugar reduction is really helpful.
Yeah true.. sugar reduction.. im also suffering fibromyalgia.. its really so pain 😢
The weird thing is that I can bust my chin open, get up and feel perfectly fine. Then a bad fibro day comes and my legs literally feel like they’re about to snap in half.
Broke my nose, didn’t bother to see a doctor. Didn’t see a doctor till I developed fluid buildup in my lungs, and didn’t see the doctor till my double ear I faction caused permeant damage visible on my scans to this day.
While I can say that only around 5% of my fibro pain reaches the level of massive ear infection, it does honestly feel like a toothache all acrossed my body. Worst in my rips, cheekbone area, lower limbs, and wrists.
There have been days where I was in so much pain that I was bed ridden for over a week. The worst part is how bad it feels to act like “such a baby” when you know it’s just your pain system overreacting.
Spent most of my teens in deep pain, only for my family and school to treat me like I was making it up. “Get over it, stop being lazy”, that fun stuff.
I completely understand going through that. You are not alone.
@connerhowe2 Hm?
So much pain my entire life 😢it’s soooo hard ! I pray for all of us 🙏🏼💜
I’m really sensitive to light and noise. It’s exactly like listening to the radio turned up way too loud. Everyone else says it’s fine, but you just keep reaching your limits. It doesn’t matter what anyone else says, if it’s all you can take, then it’s all you can take.
❤❤ Thank you for saying what I was taught!!! M
Everyday ia a struggle....Sleep pattern is off the wall. Only relief for me is laying in a dark room with the air conditioner on 😢 it is draining, exhausting 😢
I wish my family member understood this. I am in bed a lot because of the pain, fatigue, little sleep, almost constant nausea(on odd symptom), dizziness, so I don't drive. Said family member says all my friends are enabling me, if I just got out of bed, it will get better. I have worked up until the past 3 weeks, but it got too much for me. So aggravating!!
THIS. Thank you for this explanation 🙏🏻
Even when my daughter screams my ears hurt soo badly like a screwdriver in my ear ! I wake up with a stiff body and my whole body legitimately feels like it’s been ran over and filled up with air till point of popping 😭😭
Got it from EMFs(germany is very dense with new towers). If you go out in the woods, it stops
I wonder if fibromyalgia can be linked to child trauma with an over active fight or flight 🤔 I was just diagnosed with fibromyalgia literally today but have lived the last 25 years in constant pain due to endometriosis that led to a hysterectomy everything was always blamed on endo but now that my uterus is gone the Dr diagnosed me with this new condition and I'm not sure how I feel about it
trauma is a predisposing factor for sure, but it does not *cause* chronic pain. It can cause your nervous system to feel like it needs to protect you because it learned that the world is not safe at a young age. The nervous system side of things however, causes your body to be in an overly protective state, activating pain as the alarm and then activating your other fight or flight responses, thus the increased muscle tone, decreased gut and reproductive functions (hence the endo you mentioned), increased inflammation, sleep difficulty, and brain fog. We address the underlying factor of the nervous system, and we see those symptoms all improve, pain, gut and reproductive symptoms, immune system symptoms and inflammation, sleep improves, anxiety and depression improves, ability to function and quality of life improves.
My sister has been diagnosed, I have not. We both have PTSD from childhood trauma. I occaisionally have good days, wish I knew why.
@@paincrusaderofficialbut how do we address those underlying factors? Especially once were economical F'd and have no support systems?
I am in fear of being homeless it's gotten so bad and so isolating. I don't have resources to get the help that I know I need.
@@jopainting1668 Firstly, I hear you, and your struggles are real. I wish I could snap my fingers and fix it all, but this is a bit more complicated than that, right? Because everyone's pain and circumstances are different, this approach requires a personalized plan that incorporates a whole system of knowledge, drills, and strategies. We can't really condense it into a simple TH-cam video and expect transformational results. In fact, making generalized recommendations could actually harm some people, and doing so would be professionally irresponsible of me.
To date, I haven't found a way to teach this approach without providing 1:1 support and/or a structured container to ensure success. Unfortunately for both of us, insurance companies would rather cover temporary, passive, retroactive, expensive solutions that grow less effective over time (like injections, ablations, medications, and surgeries) than cover care that teaches you what you can do to treat your pain on your own with no nasty side-effects or complications. My program costs far less than ongoing 1:1 sessions and is far more valuable and effective.
The struggles you're facing are a systemic issue that I know I can't solve as one person. I do offer scholarship opportunities where I work with those in the most need. The next cycle of applications kicks off next week (Sep 11 - Sep 17). You are more than welcome to apply and I hope you do!
My daughter suffers from severe fibromyalgia.. Previously she suffered from severe endometriosis.. The endometriosis has not been an issue since she has had the fibromyalgia (in the last 18 months)
I feel she had a good childhood & upbringing.. We lived in the country and she had good friends and she danced, she had pet rabbits, cats, dogs, chickens and pony’s. She seemed to be a happy child. I feel that I was a good mum. What am I missing. What has caused this ..
As a child she did get sick with colds, she was allergic to horses, and sh also had exma when she was very young. When she was 14 she developed severe psoriasis and was given methotrexate to control it. She also has been diagnosed with psoriatic arthritis.
Acupuncture has not helped, float therapy didn’t help, Myotherapy gives her some relief for a day or 2.. As does a remedial massage now and then.
I would give y life to help my daughter..She lives in Victoria Australia & she is 30 yo
I was diagnosed with fibromyalgia a year ago(I'm 17 currently)
It's like my body is fragile "Handle with care."
I've had 3 or 4 trips to the doctor to do an out patient procedure, where they've been burning the nerve endings next to my spine. The pain goes away for about 20 mins. Then the pain starts hurting again. In 3 day's I'm screaming in pain and crying all day.
I want to be fixed so I can work. I'm tired of this pain.
I've had it for twenty years. It never gets better it increases with age. Now I can't tolerate temperatures over 80°, all my symptoms intensify to where I nearly lose it.
@@patriciahogan4705
I can't be in temperature below in the 50°F or above 85°F.
My body has become very hypersensitive to weather changes. Having arthritis doesn't help either.
I'm going to have surgery and hope that helps.
Like I tell everyone. Do you know how I know I've lived a great life? Because my body hurts. I lived life with NO fear.
As I've gotten older my body reminds me how I treated it when I was young.
The worst part is going to doctor after doctor for over 20 years explaining these symptoms and issues having none of the doctors have any knowledge or understanding about what is going on and being dismissed time after time.
Studies across Europe have linked fibromyalgia directly to early childhood malnourishment and or repeates traumas
This is what my personal trainer didn't understand. I felt like someone just beat me with a bat .
Bad flare-up today. I’m afraid to go to sleep because I don’t want to wake up to another day of this 😭.
😢😢😢 i feel you
A diagnosis given when all other physical tests show up negative. Essentially a label of "can't find anything wrong" from medical professionals.
I suffer everyday of my life
why you don't take medicine
It's like having the flu or COVID and I severe body aching and exhaustion to where I never want to get out of bed. That's how I feel almost every day.
I just got diagnosed 6 days ago. It's the worst thing ever. I've been in severe chronic pain for almost 9 months straight.
You’re lucky to get diagnosed so quickly. It’s taken 25 years for me 🤯
@@peacefulpath222 Sorry for that. I hope medical professionals become more educated on conditions like ours, and refer cases they aren't familiar with.
I’m so sorry I’ve had it since I was 8 and didn’t get diagnosed till I was 19 and they won’t give me any pain meds that worked I literally resorted at times to buying codeine and percs off dealers just to walk pain free on important occasions
@@peacefulpath222SAME HERE!! And still nothing really works. WORST THING EVER!
@@indigolash4650 Man, I just smoke weed.
Perfect explanation of the pain
I have got fibromyalgia wake up this morning and the sun is shining just want to enjoy it and I cant because at this moment I am feeling drain need to have a power nap living with this thing misery it takeaway all you renergy !!
Oversleeping absolutely kills me. I guess it’s the lack of movement or something?
Anything around 7 hours is agonizing, I quite literal fear sleeping for that reason.
Good answer said exactly like my Brazilian doctor here in Brazil she explained me same way
It’s been ten years since I started having fibromyalgia couples with brain fog. I had to collect enough energy to get through my classes. Now it’s so bad that I have been on bed rest for two years due to this and multiple health issues I can just barely get out of bed
I think I have this condition. Wow, I totally didn't know about this. My whole life I've always felt too much pain, even small cuts and scratches hurt sooo much... And my family members think I'm overdramatic😅
Its ruining my life !!!!
I know your pain. I'm a 43yo father of two girls, it is a terrible burden, sometimes it gets too much. Only other sufferers understand it. Hope you can recover.
.
@@mywellnessjourney-kk3sx thank you .just keep getting told there no cure and deal with it basically im a mother of 3 so i know how u feel take care x
AMEN!!! Lost friends, family don't TRY to understand. It's a LONELY LIFE.. and the total OPPOSITE of WHO I used to be. 😢
If i hear loud sounds i literally get pain and twitching
I make my own Comfrey balm, when I wake up I cover my body in comfrey balm which stops the pain straight away and lasts a couple of hours
After 5 years of Drs I was diagnosed with fibromyalgia. That was in 1991. It's still hard to explain what it is but all of a sudden everyone seems to have it. The pain is over every inch of my body but some people say they have it in their knee or wrist etc. I'm pretty sure that's not fibro. It's widespread pain
Finally a medical professional who is accurately and plainly explaining the mechanism of fibromyalgia. I have lived with this chronic illness for over six years and not a single day has passed since the car accident that triggered this illness, where I am not in pain. It sucks a**.
Feels as though each and every cell in your body is being chipped or chewed upon or twisted by tiny trolls sent by all the abusive, sadistic men from your past...whom you left to protect yourself.
I have lived with every symtom that is ever explained about fibromyalgia for over 30 years. I made a big mistake having a total knee replacement. Now after going thru another procedure under anesthesia. I am left a complete wreck. My knee hurts constantly like my body hates it. It has been 4 months and a neighbor looked at me as I used a cane to try to get in the neighborhood pool and said I can't believe how long it is taking you to recover. I hurt everywhere and PT is a nightmare. The insurance decided that I was not going to get a good range of motion and cut off my PT. At this point I don't even care I can't take anymore added pain. My life is so much more of a nightmare now!!!!
Hi, I feel like I’m getting some symptoms of fibro. Too but I believe in God who heals the sick.
I’m gonna pray for you throughout of the next few days and you can comment back how you feel.
The world is suffering because of sin, but the Lord heals.
We know how it feels... how to fix it would be an advantage..
Dr emuakhe is an epitome of good treatment,the doc has every criteria to human health..
I'm on a journey to figure out my pain, and I think this exactly what I have!!! really hope I get answers
Any tips Doc?
Yes!!!!!!❤❤❤ Thank You!!!
I have had it for 30 years. My symptoms change hour to hour
When i wake up it feels like a building fell on me and im getting no blood flow
Benzos get rid of all my symptoms. The pain the burning the stiffness tightness the sharp pain the joint pain muscle pain migraines .....etc. Gets rid of every single problem. But no one will prescribe these anymore. What will work like a benzo but isnt one that doctors wont have a hissy fit about?
I have Reynauds especially during the winter Omg
When I have to back off from my teenage son hugging me bcos it hurts so much😢
Immediate follow! Thank you 🙏🏽
I have both 😢ugh
Fibromyalgia runs in both sides of my family so I am worried I may get it :(
One thing that I think helps is to work on your mental health, and reduce sugar.
It sounds dumb, but I think it could be worsened by inflammation from sugar, and the physiological response to stress.
My weird theory is that the body sort of feels under addressed, and so it turns up the alarms, because it thinks you don’t listen
@@rayesafan9628 I would add Processed foods to that list. So many factors to this illness.
@@olly8 Don’t forget red meat, taste heavenly but fucks you up.
@@qs-ii1872 I'm a vegan, eating lots of raw fruits and vegetables and still got fibromyalgia (for over16 years now). For me it feels like it was caused by to much and to long physical and emotionel stress and overworking (trauma's). I know a woman who got it just after a difficult child delivery (witch I didn't have). Morgan Freeman has got it after a car accident.
I been suffering so much with these pains 😢😢 terrible
Like listening to my 84 yr old mom's TV volume.
My sister every thing you are saying is true !!
Has anyone find a cure yet?
No and no cause has ever been found.
How do I make it stop?
It never does plus it gets worse over the years. I've had it 20 years.
Is there a connection/correlation with bacterial/viral infections in causing fibro or making it worse?
any kind of infection can sort of "trigger" the nervous system to make these overprotective changes where it ramps up its defense mechanisms. Or, in many cases, an infection can absolutely flare symptoms or sensitize the nervous system further. Same goes with allergens or food insensitivities, things like that. Basically, anything the body wants to protect you from. Make sense?
@@paincrusaderofficialThat makes sense. Would it be safe to say that the problem is how the brain sends signals to the body wether 1.signals (neural pathways) fire too fast and/or 2.signals are somehow disrupted during transmission? And if this is true, slowing down or calming those signals would be key, correct.
@@joser83111 Not how the brain sends signals to the body... but, more of, 1. how easily the body picks up stimuli (nerves become more reactive to smaller stimuli), 2. how messages from the body are interpreted in the sensory cortex. There is a 'disruption' of sorts like you mentioned and it has to do with the processing ability of the brain, where its like the brain and the body are no longer speaking the same language. So the brain can't understand the messages from the body and is forced to assume every message it gets means you're potentially injured, and must activate it's protective response (pain + fight or flight activated) just in case. Keys to solving this are 1. reducing reactivity of peripheral nerves, 2. getting the brain and body speaking the same language again, 3. reducing strength of pain pathways. If you'd like more info on all this, I'd recommend my Breakthrough Chronic Pain Course. It's 3 parts and you can listen to the first part here >> th-cam.com/video/lu5SbuCsBas/w-d-xo.html. There's a link in the description on how to access all three parts. But this course dives deep into the science, like we're talking about here, and more importantly, the solution!
@@paincrusaderofficial Very interesting and makes alot of sense, thank you so much for all the great info. I will look into the chronic pain course later today. I have a final question which may or may no be in your course. Now that I have a better understanding about how chronic pain works, where does the chronic fatigue or severe exhaustion takes place in all this? Are they 2 separate illness because they seem to almost go together. Can the NS also create severe exhaustion or do you think it is a completely different system, assuming that all blood work and test are normal? Thanks for your time!
@@joser83111 theres a few ways to look at it. Could be two different conditions with a similar root cause... or two different SYMPTOMS with the same root cause. Fatigue is generally a very common symptom with nervous system sensitivity. So is gut dysfunction, sleep dysfunction, reproductive dysfunction, so is immune dysfunction... different people present with varying degrees of symptoms in each category. People who present with fatigue as their primary symptom end up with a diagnosis of CFS. People with pain as the primary symptom end up with a diagnosis of fibro. People with gut symptoms as the primary symptom end up with the diagnosis of IBS. People with reproductive dysfunction end up with a diagnosis of endometriosis. People with immune dysfuncion as the primary symptom end up with the diagnosis of lupus or rheumatoid arthritis. This can go many ways, but these are just some examples. There are differences and nuances to each diagnosis, but the thing they all have in common is the nervous system sensitivity issue. Does that make sense?
Sorry to break it to y’all but it’s a bucket for “I don’t know”
I have I'm so tired with this always pain alover the body
So like 2 months again I started getting pains out of no where like numbness everywhere tingling,burning,aching,stabbing, pins and needles sensations you name it pain in the wrists ankles hips buttocks and in the muscles neck pain shoulder pain and the worst headaches I couldn’t sleep at night for weeks I started having anxiety attacks out of no where depression and I went to the er a couple times because I felt like I was dying like literally i went to the hospital and my heart rate was at 145! They said nothing was wrong with me but I had to stay there until my heart rate went down to normal I’m 22 and a female btw. I never experienced anxiety in my life until recently and I went to my pcp he said I’m fine and that it looks like it’s fibromyalgia (bloodwork came back fine ct scan of my brain also came back fine) I told him I get pains in my head specifically in one spot so he ordered an mri but these pains are so annoying and they actually hurt I really was losing my mind not knowing what it was and happened so suddenly I really felt like I was going crazy I had break downs after break downs I couldn’t work because I was so scared there was something wrong with me i feel better now mentally lol
I felt like I was having heart attack in end of February. I think i pulled a muscle and something else. But now I’m just feeling fibromyalgia.
So now I don’t know exactly physically. But I do believe in the spirit world and God. So I’m saying that i think it’s because of fear. There is a spirit of fear real fear.
And that could cause it cause it came out of nowhere when i got afraid of someone being in the house alone with a unaliver to attack me but it’s a spirit of fear that comes from the devil.
Again this world we live is not even close to what people think it is. It’s an illusion from the spirit world.
God is real and the devil is real. The. Bible is the truth. Hope all goes well.
@@lightoftheworld5455I love this i believe you 100% when all this started happening to me it was right after i had the worst sleep paralysis and meeting my sisters boyfriend who worships death (we don’t like him) bcuz he carries a negative energy around him but my point it that u started going back to church and getting closer to go and then this happened I believe I’m going thru a spiritual battle but I have faith in god also I’m still going through all of those pains and everything I hope all goes well for you as well thank you for sharing I appreciate it you can always reach out if you would to speak about it more
@@lightoftheworld5455I believe this 100% I been going through a spiritual battle it all started when I went back to church after years of not going and creating a stronger bond with god an as soon as I got sleep paralysis and met my sister boyfriend who worships death (he carries a negative energy) all this started happened to me i still get pains everyday it’s been going on 6 months already but i hope all works out for you as well feel free to send me a message if you would like to speak on it more good luck with everything 🫶🏼
It’s like having the flu for me, and usually is chronic reoccurring. I can go a week or two with out a flare up but then I’m down and out again before long and it sucks
This is exactly me and this has been going on with me too, just like flu and it goes and comes back
Hows CBD or Kava Kava should calm the nerves
They kept dosing my gab (pain meds) higher and higher till I was near constantly on the brink of vomiting, couldn’t even walk straight and I still felt horrible pain.
I gave up and started using CBD drops for a while, then started THC gummies shortly afterwards that my mother used to use for stress. Turns out weed is super helpful at preventing pain and bringing it much much lower.
Not saying it’s a cure, but I’d probably off myself if it stopped working one day, ngl. I’m actually happy now, I can keep a job for more then a few months, and I can go out to movies and hang out with friends again.
Which might I add, I haven’t been able to do since I was 14. For context, I’m 25 now and have only been taking edibles for half a year or so.
Isnt pain subjective. As a car mechanic my entire body judt hurts because of what i do for money
Can you help us, my daughter has fibromyalgia and needs to go on disability and the doctor is doing nothing to help! Please help steer me in the right direction ❤
plzz visit my doctor
What is that caused by. I was punched really hard by a friend (flat handed) right on my back last august and I only today talked to sum1 that had it that describes the same symptoms as I have had since that incident (they have came and went some periods it’s better some periods it’s worse)
Fibro is believed to come from intense and often repetitive trauma onto somebody, both emotionally and physically.
There’s something called Neuroplastic pain, which isn’t exactly the same as fibromyalgia but pretty similar. Basically, it’s pain that’s in your head that’s triggered by an painful event, which can be physical or emotional and doesn’t need to be traumatizing.
Say, you play football and got tackled, suddenly you get really bad back pain and your doctors have zero clue why you have it when all the X-rays look perfectly normal and there’s no signs of inflammation. Or maybe your mother passed away and suddenly your neck starts hurting horribly that you swear was due to a traffic accident you had ten years back, all without any physical proof.
It’s pain that vents stress, just like fibro, but is focused onto specific parts and validated by constant reaffirming. I’d recommend looking into it since that sorta thing can be helped or even sometimes go away fully.
No cause has ever been found.
Doctor excessive sweating and sensitivity are also symptoms of fibromyalgia ?
Do osteopath treatment for fibromyalgia
Why do they need to sear the nerve ends in your back?
They don't need to...
@@paincrusaderofficial
Then why did they.
I'm seeing different doctors now. They want to do surgery. But the first group of doctors said searing the nerve endings is all they can do for me. I'm still trying to find out why?
They're supposed to be the top doctors in this area. Even people outside this state come here to visit these doctors or so I'm told.
I'm glad I found better doctors.
@@Istandby666 th-cam.com/video/uyLtj5UXUhI/w-d-xo.html
it's a metabolic problem
No cause has ever been found.
As I’m watching this this my body is buzzing and not in a good way 🙏🏻😅
That sure exsplains it well. Its a horrible disease
Am gonna go ahead and call myself "Woman of Steel " 😅 Earth, including this body suit is too noisy for my nervous system
How can this be treated please
It can't!! I started with it in 1986. Horrible times.
Get off all breads, sugars, processed foods and vegetables that are root and leaf edible.
I was diagnosed in 1998 and suffered for 12 years before finally realizing that it’s, in large part, food we are putting in our bodies and the medications that impede absorption of nutrients.
I eat animal food sources, berries, veggies that have seeds inside and are considered fruit along with some other fruits. I’ve been cured for 13 years now.
Many people who have been diagnosed with fibro have many nutrient deficiencies which animal based diet can correct. I’m
Living proof that the standard American diet and medication keeps you sick. Give it a try. What do you have to lose?
Having to cut off leaches who claimed to care & understand. Yet, they still call upon you relentlessly while making suggestions for my betterment. Oh really 🤔 so I can better serve you as I once did? I don't think so.
Oxalates