What having a stroke *actually* felt like

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  • เผยแพร่เมื่อ 22 ธ.ค. 2024

ความคิดเห็น • 3K

  • @cheea5
    @cheea5 7 หลายเดือนก่อน +4154

    It's so scary to me that no one called an ambulance for you after the initial incident. Obviously, you were disoriented and have a distorted frame of reference for emergency visits due to your disability (same here, so I get it). However, if you ever notice a substantial shift in cognition, ALWAYS call an ambulance. I wish more people knew that. I'm glad you've been able to recover well.

    • @cheea5
      @cheea5 7 หลายเดือนก่อน +448

      PSA for strokes remember FAST! Face (any asymmetrical drooping? Especially when they try smiling). Arms (can they raise both arms equally high?).
      Speech (Any slurring words? Are they coherent?). Time (what time did this start? This is helpful for medical staff). Catching it early is important!

    • @bridgetc7640
      @bridgetc7640 7 หลายเดือนก่อน +71

      Yes, seems crazy!

    • @lydiakies9053
      @lydiakies9053 7 หลายเดือนก่อน +428

      Same. I'm pissed at the gym for not calling 911.

    • @usmub
      @usmub 7 หลายเดือนก่อน +73

      This, very much this.

    • @d.rim.4275
      @d.rim.4275 7 หลายเดือนก่อน +302

      Agreed. Especially since neck injuries (including damage to the blood vessels) are a known danger of jiu jitsu.
      But in general the symptoms she described are so severe, I'm baffled that no one called 911 immediately.
      I had a situation with a family member in March where the symptoms were a bit unusual, 3hours of the evenening missing, eye lids droopy and she couldn't recognize our faces (thought we were strangers, standing in her home), no problems with balance or speech, or arms or legs ... I still knew immediately that this was an emergency and called 112 (our 911). She was so not happy about that...
      Luckily it wasn't a full blown stroke, "just" a TIA, but still. I just had this saying in the back of my mind "time is brain".

  • @danielleshanti
    @danielleshanti 7 หลายเดือนก่อน +1827

    Getting hit by a baseball bat is exactly how my dad described his stroke as well. He also did not get help right away and did not know he'd had a stroke. He only realized many hours later that he was having trouble swallowing and couldn't speak. So, lesson is--if you suddenly feel like a baseball bat has hit you in the head, please go to the hospital.

    • @therewillbecatswithgwenhwyfar
      @therewillbecatswithgwenhwyfar 7 หลายเดือนก่อน +33

      Seems like good advice!

    • @lisastenzel5713
      @lisastenzel5713 7 หลายเดือนก่อน +13

      Oh wow. How is he today?

    • @M13C7
      @M13C7 7 หลายเดือนก่อน +43

      I totally understand what you mean, and in her context as she was doing a sport it would also really make sense
      but as someone with chronic migraines, a heavy migraine can feel a lot like that too (fair enough i never been hit by a bat either). So i do at least remotely understand why you dont go to the ER everytime you have an intense migraine.
      im also chronically sick in terms of my muscles and i collapse sometimes for no reason with significantly impaired muscles. I understand why some people may be hesitant to call for help
      If you re otherwise healthy tho and this happens im 100% with you
      And in her case the dojo should have called someone asap.

    • @WitchesandNature
      @WitchesandNature 7 หลายเดือนก่อน +33

      The only way I could describe mine was once the extreme confusion started to settle down and I was turning pretty still and the head pain started, all I could explain was the it felt like Babe Ruth cracked a bat on the back of my head and and elephant was slowly trying to finish me off by putting all of it weight on my brain😭 Most painful thing I have ever been through. Even beat child Labor for me. Couldn’t even cry from the pain because it would make the pain even more excruciating. I had mine at 33, July 22’

    • @jacklandismusic
      @jacklandismusic 7 หลายเดือนก่อน +26

      If you feel like you got hit in the back of the head with a baseball bat, go to the hospital no matter what. Either it’s a stroke, or you literally got hit with a bat. Either way, you’re probably gonna want medical help.

  • @Jay-Niner
    @Jay-Niner 7 หลายเดือนก่อน +717

    Imagine running a combat sports school and not having even the most basic protocols in place for medical emergencies. Absolutely shocking

    • @albinoorca
      @albinoorca 6 หลายเดือนก่อน +4

      That's how you get Ju-Jit-SUED. Seriously though, I'm glad she didn't die due to that place's stupidity.

    • @manfredconnor3194
      @manfredconnor3194 5 หลายเดือนก่อน +11

      GOOD POINT!!!

    • @flappycelery
      @flappycelery 4 หลายเดือนก่อน +19

      They should have immediately taken her to the E.R. !! Come oooon. Wobbly? Couldn't walk? Couldn't talk? WTH!

    • @NDY-c8y
      @NDY-c8y 3 หลายเดือนก่อน +1

      This is not a thing that happened often in a gym. You can`t be prepared for everything.

    • @Spacemonkeymojo
      @Spacemonkeymojo 3 หลายเดือนก่อน +1

      Arterial dissection in BJJ gyms isn't super common and I would guess that most people who train BJJ don't even know it can happen to them. But yes gym owners should be aware.

  • @feuilletoniste
    @feuilletoniste 7 หลายเดือนก่อน +2743

    The idea that someone could be on the floor, unable to sit up or form words FOR AN HOUR and no-one called an ambulance or took you to the hospital is horrifying. Where is the duty of care of the dojo teachers? Shouldn’t they have even the most basic of first aid qualifications so that they can recognise when something is *not* just a walk-it-off injury? They need to take a good hard look at themselves and do some serious retraining, as well as putting proper health and safety procedures in place at the dojo so that if something does go wrong, they have a clear protocol to follow. I’m so glad you’re doing better, Jo!

    • @myriamh.2182
      @myriamh.2182 7 หลายเดือนก่อน +212

      We we're a bunch of Teenage Girls riding horses and we took more Care when someone fell off a horse.... Im pretty Sure If someone couldnt sit Up after 5min they would have ended Up in the Hospital at our stable even with No adults around. But in the other Hand i live in a country where the emergency Services are covered by insurance.

    • @mayah2397
      @mayah2397 7 หลายเดือนก่อน +275

      Right! I go to a martial arts dojo that once had a similar incident; someone got chopped right in the carotid by another person on accident and collapsed. When the head instructor saw it, he immediately sprinted to the office and called 911. Turned out to be a stroke and time was of the essence. That's the kind of urgency any dojo should have when dealing with a potential injury like that!

    • @queenannsrevenge100
      @queenannsrevenge100 7 หลายเดือนก่อน +54

      Jo, so glad you are able to produce videos again! Also glad to hear you were able to find a second passion as a dancer. You have obviously come so far after such a tragic accident, I hope you can continue to remember how far you’ve come if you ever get discouraged. Bless you and be strong.

    • @kosherpenguin
      @kosherpenguin 7 หลายเดือนก่อน +110

      They didn't want their liability insurance to take a hit. I hope she sues.

    • @elvinhaak
      @elvinhaak 7 หลายเดือนก่อน +11

      Well, I guess it is still up to the person and when you get an answer in the direction like 'it will be okay with me', you cannot force someone to get help. A pretty hard descicion to make over someone else in such cases. You also know the 'patient' will get probably a hughe bill, even if it is just the transport in the ambulance.

  • @Mx-Alba
    @Mx-Alba 7 หลายเดือนก่อน +1672

    As a civilian first responder, if I had witnessed that incident on the mat, I would have called an ambulance immediately. I mean I don't want to criticize this dojo that you obviously love to bits, but them not calling you an ambulance at that moment strikes me as gross negligence.
    Anyway, it's great to see that you're on the mend and I hope you will recover your fine motor skills so you can relax by making some art again soon!

    • @advena996
      @advena996 7 หลายเดือนก่อน +134

      Yeah, it's super crazy that they were ok with just sending her home. All I can think is that perhaps they thought it was a panic attack/extremely bad migraine? Or a horrendous case of the bystander effect?
      But yeah, bonkers that they didn't call an ambulance.

    • @feuilletoniste
      @feuilletoniste 7 หลายเดือนก่อน +174

      I am quite happy to criticise the dojo! Having policies in place so that there is a clear protocol to follow in case of serious injury or any other major incident should be a basic responsibility for any venue or business where the public interact. Not having any of that in a martial arts studio is unbelievably negligent.

    • @AccidentallyOnPurpose
      @AccidentallyOnPurpose 7 หลายเดือนก่อน +59

      My thought is they probably thought they would get sued. Which is a stupid reason not to call an ambulance, but it happens far too often.

    • @briereckersley8823
      @briereckersley8823 7 หลายเดือนก่อน +105

      ​@AccidentallyOnPurpose ironically not calling now puts them in a position where they are possibly liable

    • @thenopedetective
      @thenopedetective 7 หลายเดือนก่อน +44

      Yeah, my partner used to work at a gym as a personal trainer and a huge part is always getting ready to action something given the frequent health emergencies in fitness settings.

  • @user-sx9hq7qwert
    @user-sx9hq7qwert 5 หลายเดือนก่อน +53

    I have MS, and your symptoms are similar to mine. We really felt it when you talked about how life was going to change permanently for you. You sound wide awake to that with the changes you are accepting. We love you. YHWH loves you too. You never need to doubt that. Sometimes healing takes a minute. Wishing you a blessed healing journey, whatever it ends up looking like. GRM

  • @ZrJiri
    @ZrJiri 7 หลายเดือนก่อน +875

    Honestly, your opinion of hospital visits nothwithstanding, this was a failure of everyone involved around the incident. You should have been taken to ER, by force if necessary, within minutes of that happening. Promptness of treatment is a huge factor in stroke recovery and more people should be taught to recognize the signs.

    • @evercuriousmichelle
      @evercuriousmichelle 7 หลายเดือนก่อน +73

      Agreed! Sometimes when folks are in an altered state they need someone else to make them get help.

    • @md-vq8sp
      @md-vq8sp 7 หลายเดือนก่อน +35

      @@evercuriousmichelle Ive actually had to have the police to talk me into going to hospital when I had a concussion, because I thought I was going to be fine. Basically they refused to leave me alone until I had sorted out a doctors appointment or agreed to go with them.

    • @sprouting_lady
      @sprouting_lady 7 หลายเดือนก่อน +35

      I dunno about by force, but she absolutely should have had to refuse treatment to EMS directly. The idea she was left to just sit around and be driven home is absurd.

    • @DrewNorthup
      @DrewNorthup 7 หลายเดือนก่อน +25

      ​@@sprouting_lady One of the things you learn in First Responder classes is that you cannot force a patient or potential patient to do anything. You learn that you must reach concordance and get to the "destination" together. It can be really hard to do sometimes, but it is essential to protect the autonomy, safety, cooperation, and physical integrity of your patients. If you meet them where they are and know how to help them help themselves then the outcome is far better and you'll keep both them and yourself in a safe situation.

    • @Kevin_Underhill
      @Kevin_Underhill 7 หลายเดือนก่อน +22

      I'm not an expert and maybe where you live things are different, but from my time practicing martial arts (20-ish years ago, mind you), my understanding is the gym or club or wherever you were when the incident happened should have had insurance, and that insurance agreement probably said something to this effect. Their failure to call 911 or for you to be otherwise taken for treatment immediately could result in that entity no longer having insurance, perhaps even regardless of whether any claim is made against them. And for a lot physical sport businesses, no insurance means they can't rent any space and/or can't get operating permits, etc.

  • @annalorree
    @annalorree 7 หลายเดือนก่อน +900

    Hi Jo. I was a firefighter for 23 years. It wasn’t just a job, it was a calling, it was part of my identity. I experienced an injury to my knee, and shortly after a surgery to repair that, I was in a traffic accident where my back was broken. Basically, if the affected vertebrae moves another millimeter I probably end up on a ventilator, or dead. From the knee injury, I can no longer run. From the back injury, I can no longer lift weights greater than 25 pounds. Like your loss of jiu jitsu, I lost a part of “who I am”. Based upon the loss of use of your foot, and then the physical loss of your foot, I’m pretty sure you know this, but you will need to mourn this new loss. That said, there IS still life on the other side of this. I wish you well, and hope for your steady recovery toward a new normal. ❤

    • @wendyannh
      @wendyannh 7 หลายเดือนก่อน +23

      I so feel your pain about the loss of who you were. I was a paramedic, also sidelined by a back injury, although on the job and thankfully nowhere near as bad as yours. Forty years later, it still plagues me, though, and it’s part of why I now use a power wheelchair part time.
      The injury was difficult enough, but that loss of identity was so much harder. I was working a paid job at the time, but I came from the volunteer system, and my entire life had revolved around EMS - and so did my social life. And then it was suddenly just over.
      Thankfully I learned that I am not my job, and how important it is to always maintain a life and relationships unrelated to work. It was ultimately well worth the effort I had to put in, but it wasn’t an easy path.
      And yes, these are huge losses, and whenever there’s a setback or a new diagnosis, we do have to mourn those losses each and every time.

    • @torib8677
      @torib8677 7 หลายเดือนก่อน +2

      🤍

    • @jakethedog4397
      @jakethedog4397 6 หลายเดือนก่อน +6

      I’m in same boat. Massive brain bleeds in ten places. I was sent to icu deemed inoperable. But the night dr on call did the surgery. I’m happy to be alive but I did lose myself.

    • @tinamarie2121
      @tinamarie2121 6 หลายเดือนก่อน +4

      Along similar lines but a lot slower developing, I was dx'ed with rheumatoid arthritis in 2006. I have (had) been a medical coder/coding auditor since 1996 and absolutely loved my job. I was also a huge fitness nut and worked out at least 4 to 6 times a week depending on my schedule (I had a little one to take care of, so I would fit it around my schedule with his stuff and work, too). Well, came into work one day and both my ankles were hurting like I had sprained them - all I could think was "weird...what the crap did I DO differently on the elliptical machine?!" I hadn't used it longer than normal, nor incorrectly. By the time I had been at work a few more hours, it looked like I had two tennis balls emerging from each ankle. I had gone to my employee health nurse to get an ice pack earlier, and she had told me if it got worse to call my Dr. They saw me that afternoon and immediately got me in to see a rheumatologist. In all honesty, things just steadily progressed up until the point that a ton of stressful things in life hit all at once ... It's like my body no longer knew how to process stress anymore when I didn't have the added benefit of extreme workouts backing it up (by then, I had a reaction to an antibiotic that I found out was not a good med to take if you have RA or similar issues. It wrecked my knees & ankles even further 😢).
      I was lucky enough that medical coding was one of the "original" work from home jobs, or else I would have had to go out on disability a lot sooner than I did. I managed to hang in there until 2015. I absolutely miss it every single day still, but I was struggling so hard at the end. Being in pain from the previous day meant I would literally wrap myself in an entire electric blanket each morning at my desk bc everything hurt. I would eat lunch while I worked, just so I could take my actual lunch break and take a nap just to make it through the rest of my day, but that part of my day was actually spent mostly in tears because I was in so much pain. My productivity tanked. I went from knowing coding guidelines verbatim to having to look them up each time that I needed to quote them. 😢 I would forget how to look up certain codes, how to SPELL things. Even now, there are times I forget what I'm saying halfway through a sentence...because brain fog is just a beast and hits you out of nowhere.

    • @ImogenC-rt3fm
      @ImogenC-rt3fm 5 หลายเดือนก่อน

      🎯 left knee

  • @CheshirelySmiles
    @CheshirelySmiles 7 หลายเดือนก่อน +112

    the fact that you are able to speak let alone use your body is a God damn miracle since you werent rushed to the hospital. from what i know about strokes is the longer youre away from medical care the worse the prognosis is so the fact youre still (for lack of a better word) standing is a miracle. glad youre doing better

  • @liisaking1247
    @liisaking1247 7 หลายเดือนก่อน +849

    The dojo absolutely should have called an ambulance for you as soon as they saw you couldn't move properly or speak coherently. I'm stunned that they just drove you home (and that they waited so long before taking any kind of action at all). I'm glad you're recovering well and hope it continues until you are all better. Luckily, brains are remarkably resilient and can often "reroute" around damaged areas to replace lost abilities. I'm happy to see you back, posting a video, and to get your update.

    • @joandehnert1115
      @joandehnert1115 7 หลายเดือนก่อน +38

      Especially if she lives alone, that is dangerous, at the very least someone should have stayed with her.

    • @ankhadelarux
      @ankhadelarux 7 หลายเดือนก่อน +23

      I thought the same thing! I’m shocked no one called 911!

    • @md-vq8sp
      @md-vq8sp 7 หลายเดือนก่อน +27

      even in my hobby sports like hockey, any head injury you get benched until someone checks you out for concussion. I can imagine at my club if someone just collapses thats sessions done we are getting an ambulance in unless there was a known reason like diabetic issues.

    • @teijaflink2226
      @teijaflink2226 7 หลายเดือนก่อน +17

      I'm extremely surprised that they didn't at least suspect head injury and at least get her check, it's obvious her symptoms where from injury from fighting the much bigger guy.

    • @yianna147
      @yianna147 4 หลายเดือนก่อน +1

      honestly I think they could be held liable

  • @TheWriterOnFire
    @TheWriterOnFire 7 หลายเดือนก่อน +906

    I cant imagine watching someone collapse, full body shaking, unable to sit up or speak, completely unable to process whats going on arlund them for A WHOLE HOUR and no one calls an ambulance. Thats scarily negligent. I hope i am never in a situation like that. I am so sorry that everyone at that dojo failed you so terribly. Minutes matter when it comes to a stroke, and you would be in a much different place right now if someone had just called 911 at the very beginning.

    • @jj-if6it
      @jj-if6it 7 หลายเดือนก่อน +31

      Yes she could have died?!

    • @Bxu021
      @Bxu021 6 หลายเดือนก่อน +34

      Not just that, she also slept with the stroke, which is extremely dangerous, and could have added to the severity of the trauma.

    • @bellaluce7088
      @bellaluce7088 6 หลายเดือนก่อน +32

      @@jj-if6it She sure as heck shouldn't blame herself because she'd just had a STROKE that affected her cognition!!! 🙄🧐 Plenty of other health emergencies also affect cognition. That's why bystanders need to do the right thing by calling emergency services whenever someone has serious symptoms!

    • @eponamom1
      @eponamom1 6 หลายเดือนก่อน +17

      That was my thought as well. I cannot imagine letting someone lay on the floor for an hour, without calling an ambulance, and then sending them home. Mind boggling.

    • @teijaflink2226
      @teijaflink2226 5 หลายเดือนก่อน +2

      Really scary honestly how it was handled.

  • @cortster12
    @cortster12 7 หลายเดือนก่อน +230

    For those who haven't had terrible experiences with doctors, it's very difficult to convey just how much I relates to her putting off the ER visit. Something needs to be done to make the hospital a safe space, a place of healing, and not somewhere a huge chunk of people fear going.

    • @jenniferw1595
      @jenniferw1595 7 หลายเดือนก่อน +9

      Amen! I feel the same.

    • @aboutfeddy
      @aboutfeddy 7 หลายเดือนก่อน +36

      I understand her point of view, once she recovered enough to be able to sit up, cos of previous bad experiences she didn't want to go. Understandable.
      The problem is the hour she spent on the floor shaking, with no balance, not able to think straight or talk.
      People around her should have called 911 immediately.

    • @cortster12
      @cortster12 7 หลายเดือนก่อน +11

      @@aboutfeddy
      100%. I was only referring to her perspective.

    • @ivamccann5112
      @ivamccann5112 7 หลายเดือนก่อน +12

      Really for women if the hospital was a relationship everyone would tell us to drop 'em and block 'em! Nothing more worse than a narcissist that gaslights you into believing that you are a whiny little wuss that's looking for attention. And I missed you jo I was worried about you.

    • @hannahbrown5465
      @hannahbrown5465 6 หลายเดือนก่อน

      It’s like they do it on purpose so disabled people don’t come back for help.

  • @lydiakies9053
    @lydiakies9053 7 หลายเดือนก่อน +545

    I don't know how people watched what happened to you and didn't call 911. Maybe because I'm fresh off a cpr/first aid class, or because I've had people step in when I said I was fine....
    I'm so glad you're healing, and have found a new outlet.

    • @waffles3629
      @waffles3629 7 หลายเดือนก่อน +31

      Yep, it's shameful no one called, or at the very least drove her to the ER. And I say that as a CPR instructor whose had friends have to step in to stop someone calling an ambulance for me (I'd already taken the meds I needed so there wasn't anything they could do anyway, I'm just naturally very pale so they thought I was gonna pass out).

    • @MeiosisMaster
      @MeiosisMaster 7 หลายเดือนก่อน +25

      As a medical student who just had an exam from first aid last semester and has been learning neuroanatomy, this is the thing that really shocked me. There should be more education on prevention and how to recognize and respond when someone is having a stroke since it can be so devastating.

    • @mcrchickenluvr
      @mcrchickenluvr 7 หลายเดือนก่อน +8

      One of the things you’re taught about is implied consent. It was clear that she wasn’t okay. Even paramedics would’ve said so and heavily insisted on taking her in.

  • @architecturaldefect
    @architecturaldefect 7 หลายเดือนก่อน +342

    The fact that no one at the gym called 911 blows my mind.

    • @paulwoodford1984
      @paulwoodford1984 7 หลายเดือนก่อน +1

      People don’t have to help if they don’t want to.

    • @architecturaldefect
      @architecturaldefect 7 หลายเดือนก่อน +57

      @@paulwoodford1984 well I hope you are never in a situation where you require help from someone because that is a very shitty way to view the world. Especially for something as easy as grabbing your phone and dialing 3 digits.

    • @CocoLicious
      @CocoLicious 7 หลายเดือนก่อน +34

      ​@@paulwoodford1984 this is factually not true, a lot of countries have a law about failure to provide assistance/duty to rescue (and also some US states). Also, to avoid liability as a company, being diligent with these things is advisable.

    • @paulwoodford1984
      @paulwoodford1984 7 หลายเดือนก่อน +1

      @@CocoLicious Depend what mood people are in really. i always hope no one has an accident when i’m out and about so i do t have to have the hassle of helping. i will pretend i didn’t see anything

    • @paulwoodford1984
      @paulwoodford1984 7 หลายเดือนก่อน +1

      @@architecturaldefect i won’t be. i’m very cautious.

  • @justinhovis3803
    @justinhovis3803 5 หลายเดือนก่อน +28

    I needed you!!! I’m 49, Stroke day+44. I’m a retired fireman, now corporate safety guy. I’ve been so inspired by you to keep fighting and developing the brain path. My co-worker (cancer arm amputee) sent me your page after expressing my frustrations with my dead arm. My movement is coming back. Ty for guiding me with how to cope. Pontine strokes are no good to start. The fact that I’m walking and moving my arm is a huge step. Your page just gave me the confidence to keep pushing.💪🏻💪🏻💪🏻🚒❤️‍🩹 Much love for you.
    J., York, PA

  • @TheGallicWitch
    @TheGallicWitch 7 หลายเดือนก่อน +456

    I am so sorry about Jiu Jitsu, Jo. I can confidently say I can empathise fully and completely with you. I understand how it feels, profoundly. For nearly 15 years, I was a semi-pro, competitive synchronised swimmer. I started synchro when I was like 6 or 7 and it became my everything. When I went competitive, I was training 25-30 hours per week while also going through middle school and then high school. My best friends were my teammates, my parents and sister would drive me to competitions, training, I was preparing to pass the test to become a judge myself for junior competitors, my team was getting very good.
    We won a couple of championships on the regional level, placed really well in others, until we got to the point where my coach started to talk to us about sponsors, about the national team, about European Championships. This was my entire life. In France, we have this thing called sport-étude (sport-study) which is a special kind of high school where you train for a specific sport half the week and then do normal high school studying the rest of the time. You sleep at the school, you live there, it's to basically make you pro faster than by doing normal training only. We were looking into signing me up with my parents. But I had an accident when I was 13, a stupid domestic accident on a trampoline at my uncle's house. I ripped three ligaments, shredded muscle and shattered a bone, sending bone shards flying throughout my ankle and destroying it all in its wake.
    The ER we went to refused to do proper imaging, told me I had a sprain. I walked on that injury, untreated, for nearly 8 months before my pain was finally taken seriously, and by that point it was too late. My joint was completely clogged up by soft tissue where my ligaments had tried to stitch themselves back together and miserably failed, completely freezing my joint in place. I had nerve damage, soft tissue and bone damage, internal bleeding and clots throughout my ankle. I had surgery, got every single complication that surgery could cause and spent years trying to heal from that.
    All the while, I kept training, swimming, ignoring the pain from sheer stubbornness alone. It didn't work. The surgeon was sloppy and cut some of my nerves meaning I lost control of my toes and the front half of my foot. In my sport, pointing your feet is an essential part of perfoming and you can be disqualified for a flexed foot or your toes not pointing straight enough. I was in so much pain, all the time. I was walking with a limp for years which destroyed my back, and I had so many weird symptoms and pains.
    Turns out I also had Ehlers-Danlos Syndrome and MCAS. I had to stop synchro for good in my last year of high school when I was eventually recognised as disabled by the government. I couldn't walk anymore, I had to start taking oxycodone for the pain because the dozens of different pain meds they had been feeding me since I was 14 were not working anymore. Having to quit my sport ruined me emotionally, finishing what the disability diagnosis had started. I entered university suicidal and feeling like I had lost the only thing keeping me alive, the one thing I had loved fully and completely since I was 6 years old.
    It's been years and I still wake up from dreams where I'm at the pool practicing for my next championships, dreams where I'm fitting into a new colourful swimming suit, dreams where I get to join the French National Team and compete at a high level. I'm doing better mentally, though physically I have only gotten worse from EDS and 13 years of botched surgeries, failed healing and terrible experiences with the medical field and its professionals. I may have commented it before, but the reason I started watching you is because I am discussing amputating my ankle with my doctors.
    So I get it. Dear gods do I get it, and I am so, so sorry. This is a horrible thing to have to contend with and I'm so sorry you were dealt that hand. I know how crushing this is. I hope you have a support system, I hope you'll find new joys, but I know this is no easy fix. I wish you the very best. You deserve it.

    • @mars4697
      @mars4697 7 หลายเดือนก่อน +48

      Oh this is heart breaking!! I am sorry for all you are going through!

    • @thewisepowerchair2369
      @thewisepowerchair2369 7 หลายเดือนก่อน +3

      I understand the pain you are in. Just so you know, there are risks with any surgery

    • @lightworthy
      @lightworthy 7 หลายเดือนก่อน +40

      had a similar experience, just minus the injury. 15, competitive cheerleader, felt amazing & was getting really good and confident in my ability. my life basically shattered around me. extreme migraine 24/7, dizzy and nearly passing out when tumbling, injuring joints often, in too much pain to even practice, missing so much school. became disabled all of a sudden. i had been saying something was wrong for years, but no one believed me. suspected hEDS, POTS, migraines, etc. i went from an athlete to not even a person in basically a day. at least i felt vindicated when i dislocated my hip two times in two days (competition, couldn’t not do the move) and my parents didn’t believe me that something was wrong even though i couldn’t walk for a week & they forced me to go to school after 3 days & were upset when i asked to get the crutches😂 but now my hip is my worst joint

    • @Tardisntimbits
      @Tardisntimbits 7 หลายเดือนก่อน +46

      I went through a workplace accident where they did the same thing "it's a sprain, you'll be better in three days". I was not. I had an inversion injury, my ankle was the size of a grapefruit for almost a year. I was forced to back to work...eventually they started implying I was faking it, to the point where I started wondering if I was imagining the pain... I went back to pushing 100lb carts of food, grinding through the pain until finally someone begrudgingly sent me for an mri...and then people weren't sneering at me anymore. I had ligaments and tendons torn on both sides of my foot, something in the joint that they never really addressed, and permanent nerve damage. I laughed when the surgeon told me, because it was real! It wasn't just in my head! I've spent years after dealing with pain being a new norm, not being able to run, or jump. I used to be the fast walker, the runner...and that's all gone. I'm still adjusting to using a cane sometimes, and the looks I get from people as a younger person with an assistive device. Even with all of that, I can't imagine how you felt, but I am so proud of you for fighting the dread and depression, and I am so glad you're still here to tell your story. Keep fighting, the world is better with you in it.

    • @wsiur
      @wsiur 7 หลายเดือนก่อน +10

      I am so sorry! Thank you for sharing this story, though it is truly heartbreaking 💔

  • @pianotm
    @pianotm 7 หลายเดือนก่อน +241

    After describing that, I'm horrified that nobody thought to call an ambulance for you. I have been really worried, and you are looking so much better. I'm so relieved you're doing better.

  • @edgarmezavids
    @edgarmezavids 6 หลายเดือนก่อน +13

    Amazed how well you’re doing! My dad had a stroke at 54. He was at work remodeling a home and he dropped his nail gun and slipped off a ladder and vomited. Luckily his coworkers called my mom and she told them to call him an ambulance and he was rushed to the medical center within minutes. That was 13 years ago, he had a difficult recovery and continues to have issues but he’s managed to keep doing the things he loved.

  • @mem518
    @mem518 7 หลายเดือนก่อน +371

    You say you’re in denial, but I suspect you’re also grieving the state of “ normalcy” you had prior to the stroke. Whenever there are catastrophic changes in our lives, financial loss, emotional turmoil, loss of a loved one, birth of a child or a divorce, our life becomes different. We have to grieve the loss of life as we knew it and gradually acceptance and moving forward follows. But we all grieve differently and in our own time. Prayers for you Jo, that you continue to improve on all levels of your life. In your time. And we will wait for and support you. ❤️

    • @anthonyjsalcido
      @anthonyjsalcido 2 หลายเดือนก่อน

      I know exactly what you mean. Its a heartbreaking and devastating realization. Mourning your previous life is like mourning a person.

  • @antti-karhu
    @antti-karhu 7 หลายเดือนก่อน +316

    Slightly over 4 mins in, and it hit me. The similarities of what happened to a friend a bit under 4 years ago. So she fell, there was apparently a sort of whiplash effect. When she later went to the hospital, it was written off as just migraine - which was a common problem for her. A couple of weeks later she collapsed at home and was taken to the hospital. She did not come back.
    It's such a precious and fragile thing, this one life we have. I'm glad you're still with us, Jo.

    • @tammyC1971
      @tammyC1971 6 หลายเดือนก่อน +7

      😢 I’m sorry for your loss. I Pray for God to Bless you and her family with Peace and Comfort and Closure. In Jesus’ name. Amen Amen

    • @Mo-nd8lp
      @Mo-nd8lp 6 หลายเดือนก่อน +2

      Did they do a CT scan on her?

    • @linvi_chemutai
      @linvi_chemutai 5 หลายเดือนก่อน

      ​@@tammyC1971amen..Knowing Jesus is knowing peace, protection and provision ❤️
      Jesus saves, Jesus heals, Jesus grants peace ❤️

    • @isaackvasager9957
      @isaackvasager9957 5 หลายเดือนก่อน

      ​@@linvi_chemutai fuck Jesus for letting it happen.

  • @Brittoxo
    @Brittoxo 3 หลายเดือนก่อน +15

    I hope she’s okay she hasn’t posted in a long time 😢 prayers for you jo ❤

    • @stephie640
      @stephie640 3 หลายเดือนก่อน

      I was thinking that too 😢

    • @anthonyjsalcido
      @anthonyjsalcido 2 หลายเดือนก่อน

      She posted on Instagram last month on the 19th ❤️

  • @Saurles
    @Saurles 7 หลายเดือนก่อน +216

    My late mother took up ballroom dancing after her husband had a massive stroke. She danced all over the country and even the world. I'm glad that you have taken up dancing, Jo. You look great girl, keep going.

    • @HANZELVANDERLAAY
      @HANZELVANDERLAAY 7 หลายเดือนก่อน

      She looks healthy...that makes me happy🎉❤

    • @toericabaker
      @toericabaker 7 หลายเดือนก่อน +2

      How is this applicable to Joe? She's the one with a stroke

    • @HANZELVANDERLAAY
      @HANZELVANDERLAAY 7 หลายเดือนก่อน +2

      @@toericabaker did u watch the video? She says she took up dancing..after ju jitsu...ended

    • @toericabaker
      @toericabaker 7 หลายเดือนก่อน +2

      @@HANZELVANDERLAAY i guess i dont get it or am over thinking it

  • @stephie640
    @stephie640 7 หลายเดือนก่อน +186

    SOOOO many adults that failed to make you go to the hospital...how scary! Share this video everyone. People truly need to be aware of the signs of a stroke and the importance of acting fast.

    • @paulwoodford1984
      @paulwoodford1984 7 หลายเดือนก่อน +1

      she’s rich so who cares

    • @thishandleisntalreadytaken
      @thishandleisntalreadytaken 7 หลายเดือนก่อน

      @@paulwoodford1984 anyone with basic human empathy, jerk

    • @sdennen
      @sdennen 7 หลายเดือนก่อน +18

      ​@@paulwoodford19841) what a terrible thing to say, and 2) why would you say she's rich? Making a living and rich are two very different things.

    • @WhiteWolf-lm7gj
      @WhiteWolf-lm7gj 7 หลายเดือนก่อน +9

      ​@@paulwoodford1984You wanna go over the logic behind that?

    • @esmeraldagreengate4354
      @esmeraldagreengate4354 7 หลายเดือนก่อน +3

      ​@@paulwoodford1984 um what?

  • @dvf4550
    @dvf4550 7 หลายเดือนก่อน +9

    I wish you well. My daughter had a terrible brain hemorrhage/stroke at age 37. It took much time, but she miraculously survived and eventually recovered quite well. She didn't get help for hours, either. But I believe in a higher power and miracles, and saw them. May God bless you.

  • @mdunbar008
    @mdunbar008 7 หลายเดือนก่อน +143

    I'm very glad you are recovering. On a lighter note: I saw your Nurtec commercial a couple weeks ago. My wife was confused when I glanced at the TV and yelled, "THAT'S JO!". Then rewound the commercial to watch it again. It was really cool seeing you on TV. Apparently Lady Gaga was in it too, but you are the only person I recognized.

    • @redhatpat9387
      @redhatpat9387 7 หลายเดือนก่อน +15

      I just found the commercial. Jo looks good. Glad she was able to make an income during this time.

    • @sarahwatson3192
      @sarahwatson3192 7 หลายเดือนก่อน +3

      lol I did the same. But it was my mom who just gave me a confused look and refused to rewind for me. Because it was an add.

    • @bkitteh6295
      @bkitteh6295 7 หลายเดือนก่อน

      😁😁😁

    • @deanpettikas4631
      @deanpettikas4631 7 หลายเดือนก่อน +1

      You did the exact same thing as I did with my wife! Glad to know I'm not the only one.

    • @sarahpounds6064
      @sarahpounds6064 7 หลายเดือนก่อน +1

      I saw the commercial too. I was like, “That’s foot less Jo!” My cat looked at me like was insane.

  • @MoonFairy929
    @MoonFairy929 7 หลายเดือนก่อน +177

    The way you waited… my boyfriend did the same thing for FOUR DAYS before he finally gave in and went in. Huge stroke in cerebellum. He is so lucky to be here.

    • @bigthunder7002
      @bigthunder7002 หลายเดือนก่อน +1

      How was he acting for those 4 days?

    • @MoonFairy929
      @MoonFairy929 หลายเดือนก่อน +1

      @bigthunder7002 he was miserable. He had a migraine problem. And occasional vertigo. So he just assumed it was that. But he couldn’t get around on his own, vomiting, general agony.
      Since the stroke, hardly any headaches…

  • @raimeyewens7518
    @raimeyewens7518 7 หลายเดือนก่อน +12

    My 24 year old daughter had a stroke less than a year ago. She was a perfectly normal/healthy person until her fender bender several years ago. Very minor damage to both cars but somehow it tore her miniscus. Over 3 years she had 4 surgeries that didn’t work. The 5th surgery they cut a pie shaped piece of bone out of her thigh bone. During this recovery she was getting sick. Nausea, dizziness, rapid heartbeat. Started passing out constantly. Somehow she developed POTS syndrome. And it’s a weird syndrome with scary side effects. She would pass out 3 times in a row for 2-4 minutes each time. And while she was passed out she would stop breathing and shake like she was having seizures (she wasn’t). She was hospitalized several times. One day she had just passed out and came back around I was talking to her and she went out again but this one looked different. When she woke up I asked her if she could move her arm. She looked down at it and started screaming. She couldn’t move her entire right side. I called an ambulance and they took her to the emergency room and they gave her some stroke medication that was supposed to help. In about 30 minutes she started getting feeling back. She was in the icu for 4 days and they sent her home. She was on blood thinners so she couldn’t bump into anything. I never would have thought a fender bender would lead us to this. It’s horrible to watch your once healthy child have so many medical issues. But it is what it is so we just adapt to it. Hang in there.

  • @rosannebarnes6302
    @rosannebarnes6302 7 หลายเดือนก่อน +233

    As a person who has had a painful, debilitating illness for 40 years, you are one of my heroes. I was feeling depressed, due to a setback. Listening to this video brought me back to the reality that I needed to push forward. Thanks.

    • @PlutosAsleep
      @PlutosAsleep 7 หลายเดือนก่อน +7

      You are so resilient, and i know you have no other choice, but continuing on when being in so much pain feels impossible at times, but you haven’t let it become impossible. ❤

    • @DawnShipley1977
      @DawnShipley1977 7 หลายเดือนก่อน +5

      I can empathize with the pain. I also hurt every day and sometimes it is worse than others, and I have dealt with it for many years. Many times I was told that I was to young to hurt...at 47 it is really annoying to hear this. Everyone deals with pain differently. I hope you can be out of pain at times.

    • @cinnamoslut
      @cinnamoslut 7 หลายเดือนก่อน

      Hey I'm there with you. I have been struggling a lot lately to keep up with my daily healthy habits, due to increased symptoms of pain and fatigue (also have a debilitating illness). But I need to do those things to feel better long-term. It's hard but we can do it, we can push forward. Hang in there

    • @hannahbrown5465
      @hannahbrown5465 6 หลายเดือนก่อน +1

      I am only 4 years into fighting my illness. I can only imagine what 10x does. You are incredible.

  • @CCalamity-dv1ll
    @CCalamity-dv1ll 7 หลายเดือนก่อน +78

    Stroke survivor too. I kept nodding and saying "yep" for most of your video. Besides the big challenges Its all the little things like.. "Well, you look ok now", symptoms coming back at random, the emotions, etc. It takes time and there are good days and there are deficit days. Over time you heal... You've got this!

    • @wonsyad
      @wonsyad 7 หลายเดือนก่อน +4

      Or my personal favorites
      “You’re too young to have had a stroke.”
      Or
      “At least you didn’t die.”

  • @texasjohnjatrading691
    @texasjohnjatrading691 6 หลายเดือนก่อน +6

    Hope you are feeling better. My wife, Jane, has had decades of struggle with multiple conditions. The hardest thing was when she was 55 (20 years ago) and realized things would not improve. But her positive attitude has been an inspiration for me.

  • @myrillya
    @myrillya 7 หลายเดือนก่อน +81

    Hearing this story just shows, how important it is that people know the symptoms of a stroke. If I were in this situation and I saw you and your symptoms, I would've probably known right away since I know the symptoms of a stroke. This is why first aid classes are soooo freaking important, for everyone!
    Always remember, if someone has suddenly trouble speaking, finding words, talking utter nonsense, combined with balance issues, plus the fact that the person has trouble moving one body side compared to the other (FAST-test, google it!: ask them to smile, if only one side of the mouth goes up, it's probably a stroke, also ask them to lift both arms in front of them, palms up, if one arm doesn't go up or twists, it's most likely a stroke), don't waste any time, call an ambulance immediately! The earlier a stroke is treated, the better, not only to prevent deaths, but also to prevent long-term complications and brain damage!
    Stay safe out there everyone, and Jo, I wish you a good recovery

  • @KyLoxoxo
    @KyLoxoxo 7 หลายเดือนก่อน +121

    BEFAST!!! I grew up with my grandparents they were older and taught me from a very young age how to call 911, knew our address and phone number. I could never be more thankful for them for teaching me the warning signs and Ill never forget them! I’m glad ur ok Jo and still here with us. My biggest hope with this story is that all gyms will start having a sign with the acronym on the wall and all trainers working in gyms getting basic training in stroke, cardiac arrest, and seizures!
    B - Balance
    E - Eyes
    F - Face dropping
    A - Arm weakness
    S - Speech difficulty
    T - Time to Call 911

    • @stephanieswilley-arnold6886
      @stephanieswilley-arnold6886 7 หลายเดือนก่อน +6

      My Mom had ESRD and DDD and my Dad had Alzheimer's before they passed. I cared for them at home until the end. I'll NEVER forget that acronym.

  • @ljfinger
    @ljfinger 5 หลายเดือนก่อน +2

    Please get better!😊

  • @kp74952
    @kp74952 7 หลายเดือนก่อน +50

    I hope this can serve as as lesson to everyone…always go to the hospital when in doubt. It is better to go there and not need it than the other way around. Bystanders…take the lead! If no one else is calling, do it! Don’t rely on the patient to do it when they are in an altered state themselves. Especially if there is ANY concern for stroke! As they say, “time is brain” - the faster you get help, the better your chances for recovery. In some types of stroke, you only have a window of a few hours to get the treatment you need. Jo - thanks for sharing your story, I wish someone had intervened better on your behalf but I’m so glad you’re doing better.

    • @evercuriousmichelle
      @evercuriousmichelle 7 หลายเดือนก่อน +12

      Yes, it’s not her fault, she wasn’t thinking straight but at the very least a classmate or coach should have called the EMTs just as a precaution. The EMTs would have been better at assessing how serious it was.

  • @Enn-
    @Enn- 7 หลายเดือนก่อน +84

    Giving up martial arts was hard for me too. Time passes, and other interests grow. My life is richer for the time I spent in the dojo, and my life is also richer for experiences I've had since then. Change is hard, growth is hard, life is hard, but this is the ride we're on. Stay amazing!

    • @ernie39
      @ernie39 7 หลายเดือนก่อน +1

      well-said!!

  • @filker0
    @filker0 7 หลายเดือนก่อน +9

    I had a stroke out of the blue in 2017. I was lucky; my wife recognized what was happening and drove me to the hospital, I was into the CT scan and then on the clot buster within 45 minutes.
    Seconds are brain cells.
    I lost the ability to speak and proprioception of my right hand.
    I recovered quickly - a few months - but it took years before I was back to full speed, and even today I have verbalization problems. Often I didn't realize something had been missing until it returned. It took 4 years before I could sing again. I still can't draw, or even doodle; I have trouble speaking when tired, and I can't write on a whiteboard in a way that anyone (including me) can decipher, but I have hopes that this will slowly recover, too.
    It gets better. Every day, I get bits and pieces of my memory and verbal abilities back.
    Keep strong. Keep working on regaining what you've lost.
    My thoughts go with you.

  • @feargalledwidge806
    @feargalledwidge806 7 หลายเดือนก่อน +102

    Even after just these few months, your recovery is very noticeable. Since you last video, your arm and head movements are so much better and seem natural and normal. The same goes for your speaking.

  • @TheEDFLegacy
    @TheEDFLegacy 7 หลายเดือนก่อน +153

    I'm happy to hear you're a lot better! Strokes are really scary, and I'm glad your recovery is going well! 😊 You're also sounding better too!

  • @TheKatiness
    @TheKatiness 7 หลายเดือนก่อน +2

    The book "the brain that changes itself" helped me so much after my tbi. "My stroke of insight" also helped tremendously. Sending you so much love and healing ❤️

  • @GrowingonVancouverIsland
    @GrowingonVancouverIsland 7 หลายเดือนก่อน +68

    I've been a stroke rehabilitation nurse for 17 years. Typical stroke recovery takes about 2 years. But the initial recovery happens in about 3 months, for the biggest part of recovery but it continues for years

    • @Josh-y4r
      @Josh-y4r 7 หลายเดือนก่อน +6

      It varies greatly. I'll probably never fully recover but atleast I'm functioning

  • @rebekah3483
    @rebekah3483 7 หลายเดือนก่อน +55

    I'm sickened that you were that bad for over an hour and it wasn't someone else's priority to take over for you when you were struggling so obviously! I hope that others that were there now know the seriousness of such a situation and in the future make better decisions! I'm so sorry this happened to you!
    Ps. I can hear you now replying to me saying, "but I didn't want to go, I don't like hospitals and doctors, I was telling them I was fine, etc"... and to that I still stand behind my saying someone else should have recognized and taken over the situation for you! Maybe you could do a safety training on stroke symptoms for the dojo?! It sounds like they might need something like this!
    I'm so glad you're doing better than you were and I hope you can make a full recovery! I say all if this with respect, but it's just common courtesy to look out for others in their most dire times of need!
    Edit: after I became disabled I too couldn't do the things I lived for and couldn't even teach anymore which was my livelihood... I am still, 10 yrs later, struggling to find my identity now and where I fit in the world so I am SO GLAD to hear you've taken up dancing and you're working toward improving more and more! You're such a role model Jo and such an inspiration!

    • @scifigrl23
      @scifigrl23 6 หลายเดือนก่อน +1

      She should sue them. It's a miracle she is even alive!

  • @kimcunningham4880
    @kimcunningham4880 5 หลายเดือนก่อน +7

    Jo, wasn't sure how else to get ahold of you. It was so incredibly amazing today to see you in a commercial for migraine medicine on Paramount+ while I was streaming a show. So so happy for you!!

  • @amammaof2
    @amammaof2 7 หลายเดือนก่อน +40

    My heart aches for you. I was in a car accident that left me unable to play soccer. As a single mom, soccer was not just something I loved, but so much more. I played for my team, plus often played up for others. It was my stress relief, it was my social life, it was my break as a mom because my kids stayed with my parents so I could just focus on resetting and being a great mom the rest of the week. I also coached and giving back to the world is a massive part of my identity. When I got injured, I felt like part of me died. It’s been 13 yrs and I can’t say that I miss it any less now than I did then. I think it’s very much like any grief, that you just find better ways to live with it, but the grief isn’t ever gone. I actually did some counselling which I did over the phone and that helped me a lot in those early months. But will never run again, I’ll never kick a ball, and honestly, even going to the games to see the team was too hard. I’m sending you so much love and hope that you can find something new that brings you some joy. I’ve walked a similar road and it sucks, but you’ve got this. ❤️

  • @justnell6916
    @justnell6916 7 หลายเดือนก่อน +161

    I’m an amputee and had a stroke to …big hugs 💕xxx

    • @daveogarf
      @daveogarf 7 หลายเดือนก่อน +2

      (*too)

    • @bridgetc7640
      @bridgetc7640 7 หลายเดือนก่อน +17

      @@daveogarf Seriously?? "I had a stroke to(o)" doesn't make you feel generous?

    • @PataPtichou
      @PataPtichou 7 หลายเดือนก่อน +14

      ​@@daveogarfwhat a massive AH wow

    • @mwernli2886
      @mwernli2886 7 หลายเดือนก่อน +5

      @@daveogarf 😮‍💨 People like you… Incredible!

    • @1234cheerful
      @1234cheerful 7 หลายเดือนก่อน +5

      @@daveogarf Dave, oh, Dave. That's a comment you can hit Cancel on instead of Reply. I appreciate your concealing parentheses, amusing.

  • @markeverhart7254
    @markeverhart7254 3 หลายเดือนก่อน +2

    Amputee myself, have had 3 strokes in 2023. Know what your going through, Godspeed on your recovery 🙏🙏🙏

  • @GodSponge
    @GodSponge 7 หลายเดือนก่อน +51

    I had a stroke at 37. Thankfully (as much as that can be true when having a stroke) I had first responders within a few miles of my house and my stroke presented with all of the classic symptoms. I was at the hospital and treated quickly so my side effects are relatively minimal. I have known several people who didn't make it through a stroke, so even though you've had some damage done, it's still a miracle you are here. I'm so glad you're doing as well as you are and I pray for continued and quick healing. (please forgive me if i said anything stupid. I'm terrible with words.)

  • @niknoks6387
    @niknoks6387 7 หลายเดือนก่อน +89

    Welcome back Jo. I’m so glad you are back and looking better than you did last time we saw you. ❤️🇬🇧

  • @Patricia-_-.-_0220
    @Patricia-_-.-_0220 6 หลายเดือนก่อน +3

    Jo OMG I'm so sorry this happened to you. I'm so glad you have something new ( the dancing ). I'm glad you survived your stroke. ❤ Please get to the hospital even if you have a bad headache. I recently have been having extreme migraines with severe vertigo. It is starting to scare me now because I can't think when I'm having them. My last one was the day before yesterday and I was having a physical. I tried to tell the doctor I couldn't think..... I even drew my clock wrong. They gave me a circle and said make a clock and have it say 8:20. I got it wrong tried to explain the severity of my headache, and she said, "oh look you did it wrong ". I said , " I can't think " I had forgotten the 2. Luckily I see my regular doctor on the 18 th. I'm now thinking I had a TIA something was very wrong with me that day.

  • @johnkladis4266
    @johnkladis4266 7 หลายเดือนก่อน +71

    We're with you Jo! Much love❤

  • @lightworthy
    @lightworthy 7 หลายเดือนก่อน +43

    i was a cheerleader my whole life before i became disabled & unable to continue. i completely understand that crushing heartbreak of knowing you’ll never be able to do it again, and how it can be so awful on your mental health when it was your identity. it’s 10 years for me in a few months, and i have found other things! it’s definitely hard, but i promise you will find something that can fill that void, even if it doesn’t quite feel the same

  • @franksemmes1633
    @franksemmes1633 6 หลายเดือนก่อน +1

    Much admiration. Prayers and fervent best wishes

  • @TheRockInnRobin
    @TheRockInnRobin 7 หลายเดือนก่อน +61

    As someone who has suffered with hemiplegic migraine forever, I can totally relate to not wanting to go to the hospital. I shocked myself on a wall socket and I walked it off because it was just an intense migraine sensory aura. Thank you for sharing your story to keep us all aware of what can happen.

    • @katfoster845
      @katfoster845 7 หลายเดือนก่อน +12

      I have hemiplegic migraines and migraines with aura too. With my first hemiplegic one, I went to A&E and had a lot of doctors running around because I had stroke symptoms. They kept me in for a couple of days to figure out wtf was wrong. I have other neurological stuff going on that is medically unexplained and I'm considered very high risk for stroke anyway so I think they wanted to be absolutely certain I wasn't about to die on them.
      I still have to get checked every time I have one because mine so closely mimic stroke symptoms, so that's fun. I hate it, but the one time I don't get checked will be the time I have a stroke for real.

    • @TheRockInnRobin
      @TheRockInnRobin 7 หลายเดือนก่อน +1

      @@katfoster845 sounds very familiar. I was hospitalized for a week with my first one.

    • @DepartmentOfYouth0
      @DepartmentOfYouth0 7 หลายเดือนก่อน +4

      Huh, I have just learnt the word for the migraines I used to get! Never heard the term "hemiplegic" before but looks like that's what I used to get, I didn't realize it's a specific type of migraine aura. I had them occasionally from age 12 to 17, haven't had one in over a decade and I've thought about what to do if I start getting them again considering the symptoms I get are VERY similar to a stroke. It was always very normal to me because my mother and grandmother get the same kinds of migraines so I've never even been officially diagnosed or anything, was always just told to grab some paracetamol and sleep it off

    • @whitekl
      @whitekl 7 หลายเดือนก่อน +4

      I definitely identified with "I have lots of neurological stuff so 🤷🏻." But also with "I have medical trauma, so 🤷🏻." It's a really tough scenario, especially if you're not cognitively intact

    • @SamirCCat
      @SamirCCat 7 หลายเดือนก่อน +7

      I had a blod clot in my leg, but I didn't go to the hospital for 1,5 weeks. It could've travelled to my lungs and killed me. Reason I didn't go is because I have decades of medical trauma due to being disabled. I was certain the doctor would say everything was fine, I was exaggerating and I was too sensitive. Especially when they see my 20 years of history in the psychiatric care, they NEVER take me seriously.
      Once I did go in I got to do an ultra-sound, and it was a blod clot. I'm still very emotionally affected by it, 6 months later.

  • @lizkimber
    @lizkimber 7 หลายเดือนก่อน +47

    Good to see you back. A friend had a stroke earlier in life than generally we think of happening to people. He was no where near old and as fit as the butchers dog. Its been a few years now and he is pretty normal. But he isnt 100% what he was. Nothing big. Nothing most people would know but i know he feels bad about it.
    Obviously strokes are different depending on where exactly its all going on in there.
    But the more you do mentally to stimulate yourself the better you will do

  • @johnbeasley8420
    @johnbeasley8420 7 หลายเดือนก่อน +8

    Fellow stroke survivor here - I really appreciate you putting words to some of the feelings I've also had. Recovery work is arduous and often frustrating: I remember having to go to physical therapy after school as a kid and working so hard just to regain a little function. I remember feeling angry that so many things I loved required two-handed proficiency (playing an instrument, playing sports, etc.). It's so tricky to manage the balancing act of grieving your loss and not letting it hold you back from doing what you love. It's easy to teeter to one side or the other - inability to accept loss can cause you to overextend yourself, while inability to make peace with that loss and find creative ways to do things leaves you isolated and depressed.
    I also loved how you pointed out the difference between what is seen by others and what you feel. Sometimes I get really emotional or tired and it can be hard for other people to understand. I think the easiest way for people to understand something like that is to deem a person "lazy." For a long time, that was a part of my identity and it tanked my self esteem/confidence.
    So yeah, thanks for sharing. I never met anybody like me when I was in school and hearing you share your story is really powerful to me.

  • @Willow76ny
    @Willow76ny 7 หลายเดือนก่อน +66

    Been thinking about you. Glad to hear you are doing better. Wishing you a smooth and complete recovery. ❤

  • @waitingandlearning
    @waitingandlearning 7 หลายเดือนก่อน +25

    I've had brain injuries and from that damage, I have functional neurological disorder and functional seizures. Your story reminds me of my last fall and the damage I sustained. The grief is real, and so is the healing; though you will never be the same again, you will find your new you. Give yourself grace and love. It takes time to be able to process everything.
    My light sensitivity has been massive, and I now wear grey/green contacts from my medical eye dr that have allowed me to be in light again. I also used prism glasses to be able to retrain my brain with my balance. Hope and recovery is always in our future. ❤

  • @Kompressor594
    @Kompressor594 6 หลายเดือนก่อน +1

    Danke!

  • @borkbork4124
    @borkbork4124 7 หลายเดือนก่อน +33

    At 16 I broke my arm, but it took 5 more years for a nerve damage diagnosis. To this day, I have pain in my arm doing ANYTHING. The medical system not taking women seriously can be summed up with this: I have only ever been prescribed to take antiinflammatory pills for my pain, even after they fixed my diagnosis from tendon/muscle pain to nerve. And breaking news, it doesnt help my nerve pain. Your journey with nerve pain and now your stroke…my heart goes out to you. Your honesty and respect for yourself and your audience blows me away with what you face.
    I broke my arm playing the sport I love, and did return to it (no longer competitive) but it was not the same. However, I also took up dancing! I am now a group fitness and dance instructor. I have been trying to strength train for years, and finally there is visual progress in the strength in my arms. Partner dancing has given me great communities of people to ralk and lean on, I hope you find the same support from your dance buddies❤

    • @tubester4567
      @tubester4567 6 หลายเดือนก่อน

      Sometimes theres not much they can do. If they give you too many pain pills, you'll get a huge addiction problem that will cause more pain.

    • @lucianaromulus1408
      @lucianaromulus1408 4 หลายเดือนก่อน

      ​@tubester4567 pain meds help millions of people with chronic struggles. It should be prescribed to only chronic diseased or disabled people. I was on pain meds for years, only thing besides kratom that let me function. I never got addicted nor did it worsen my pain...it lessened it so I had a real quality of life

    • @tubester4567
      @tubester4567 4 หลายเดือนก่อน

      @@lucianaromulus1408 They were doing that, but so many people shared their supply and used it recreationally. Others sold pills, then we had the opiate epidemic that addicted and killed a lot of people. This is why we cant have nice things, some people always ruin it for others. Like when you go in a shop and all the products is behind glass, because of idiots who steal stuff. Now many stores are closing because they cant deal with rampant robberies and looting. Dont blame the system, blame the idiots who ruin it for everyone.

  • @StephaninasAmputeeAdventures
    @StephaninasAmputeeAdventures 7 หลายเดือนก่อน +30

    I earned my black belt before amputation and was determined to get back on the mat after amputation, but a series of setbacks have made that difficult. Each time I try, something new forces me to stop. Being a martial artist was part of my identity, pre-amputation. I've experienced a lot of grief and deep loss, not being able to embrace that part of myself. I'm sorry that you're going through the same thing, only worse, without the possibility of returning. Even though it'll never be the same, I hope you're able to find something new, like dancing, that can bring sunshine into your life on the hard days. 💙

  • @briandeschene8424
    @briandeschene8424 3 หลายเดือนก่อน

    I’ve never watched your postings before and did not know of them at all. No idea why YT added this to my recommendations. But watched it all. In case there was some purpose behind it, I feel that I need to do two things.
    1) Give you financial support since you commented that this support gave you peace of mind and allowed you to concentrate on healing. This is most important since you are most important.
    2) Tell you that I had to give up my running because of a knee injury. I was told that the impact of numerous footfalls would cause it to recur because of my knee’s particular configuration, Eventually disability/surgery. I always “knew” I wasn’t “normal” but sheesh! :-)
    It’s ten years later and I’ve replaced it with mountain biking which is now essential to my mental and physical wellbeing. Best of luck on your alternative journey.

  • @vanlepthien6768
    @vanlepthien6768 7 หลายเดือนก่อน +18

    I'm glad to see you back!
    I had a heart attack followed by a TIA a couple years ago. The heart attack was minor, and the main symptoms of the TIA (at the time) were aphasia (I remember that I couldn't remember the word 'malaria') and an inability to type. Like you, I didn't go to the doctor for a couple days. I called my GP and he told me to go to the ER. Perhaps foolishly, I drove the 30 miles to get there. (Oh, the joy of living in the mountains.) I am still working to get back to doing some of the things I did before, but now I can do the things that matter.
    Be gentle on yourself. Well, push yourself, but gently.

  • @leilalineberger995
    @leilalineberger995 7 หลายเดือนก่อน +18

    I’ve seen you on the migraine commercial, it must have been filmed before this event. I’m so glad you’re back and feeling better. It had to have been terrifying.

    • @gingersnapjudy
      @gingersnapjudy 7 หลายเดือนก่อน +4

      Yes! I noticed her in that commercial as well!

  • @tracywestby2231
    @tracywestby2231 7 หลายเดือนก่อน +11

    When my mom had a stroke it took almost a year before she was at your level of recovery. You are doing so well, and don't forget it can take a very long time to recover from just a concision and what your brain has gone trough is soo much more than that.

  • @quinlynnschultz6954
    @quinlynnschultz6954 7 หลายเดือนก่อน +10

    Your acknowledgment of not being ok, needing time to heal, and needing to greive are so valuable . Those of us with chronic illness can forget so easily that we are experiencing similar things. Thank you for normalizing physical challenges. You're helping to challenge so much of our internalized ableism.

  • @lmena5696
    @lmena5696 7 หลายเดือนก่อน +1

    Just seeing you for the first time! Very nice chat! We know no matter how bad we have it, that there are others who have it much worse and yet are still caring for their kids, elderly parents, working just to put food on the table, or whatever. You speak with that humility that is inspiring.

  • @leiafortygin1155
    @leiafortygin1155 7 หลายเดือนก่อน +12

    I know that feeling of losing a sport that was a lifeline for you. I grew up as a professional dancer. And I was GOOD. It was my first love, and my safety and freedom for 18 years of my life. I had to stop due to an injury, and I still miss it every day. In the beginning, it was HARD. I didn’t feel like me. My body missed the feeling of that muscle memory and the smoothness of my body moving perfectly in time to the music. It’s such a hard feeling to explain… and it’s still hard. But I hold those memories so dear and I am so grateful I got to express myself in such a cathartic way for so many years. It made me who I am today.

  • @almaboneconstable2539
    @almaboneconstable2539 7 หลายเดือนก่อน +10

    I'm 5 years post stroke. Don't rush yourself. It truly is 2 steps forward 1 step back. It does take time, continued day by day. Thank you for putting words to it so others understand our journey. We pray for you. And continue to love you.

  • @Imjustacatlady
    @Imjustacatlady 7 หลายเดือนก่อน +1

    I'm glad you are alive and here with us after such an incident. 🙏

  • @CanonShooter1861
    @CanonShooter1861 7 หลายเดือนก่อน +16

    It’s good to hear your voice again! Don’t rush things; physically or emotionally. We’re rooting for you. #rockon

  • @Faesharlyn
    @Faesharlyn 7 หลายเดือนก่อน +148

    I was married to a 10th dan instructor for many years and taught many, many classes in our Kempo studio...
    *ANY* loss of consciousness or altered mental state was an instant call to 911
    *THERE IS NO EXCUSE FOR THEM NOT CALLING HELP FOR YOU*
    Please call a lawyer.

    • @SoulDelSol
      @SoulDelSol 5 หลายเดือนก่อน +2

      She said she couldn't even sit up or speak for an hour

    • @Faesharlyn
      @Faesharlyn 5 หลายเดือนก่อน

      @@SoulDelSol yeah, that's fuckìng *CRIMINAL*

    • @manfredconnor3194
      @manfredconnor3194 5 หลายเดือนก่อน

      Whew, when I think about how many times Inlost consciousness after getting hit, having a blood choke applied or getting a heart punch. I don't think I ever had a stroke though. I think I or someone would have noticed that. I was tested for brain rebound injuries and was lucky.

    • @livelongandprospermary8796
      @livelongandprospermary8796 5 หลายเดือนก่อน

      People are saying bc she said she chose not to call and went home, she can't sue bc she was capable

    • @Faesharlyn
      @Faesharlyn 5 หลายเดือนก่อน +5

      @@livelongandprospermary8796 she was not capable, obviously.
      I've had a stroke. It's *very* obvious that something is wrong

  • @melbeeez
    @melbeeez 5 หลายเดือนก่อน +2

    Heart goes out to you Jo. Life has thrown so many painful challenges your way and you have soldiered on through, but you so so very much deserve a break from life lifing so hard. Rooting for you on this long journey. Lots of love and warm wishes.
    Also side note: Watching an ad for a running prosthetic with Jo in it on Jo's channel. love.

  • @scarlamackey1031
    @scarlamackey1031 7 หลายเดือนก่อน +29

    Welcome back 😊

  • @kmscheid3303
    @kmscheid3303 7 หลายเดือนก่อน +11

    Head injuries are crazy! I'm so glad you're getting back up. (also this weird internet thing, crowd-funded emotional support where a complete stranger makes me realize we're all in this together. Cheers!)

  • @The_King_Of_Leeches
    @The_King_Of_Leeches 13 วันที่ผ่านมา

    The amount of insane courage that has come out of this video baffles me. You are a warrior

  • @karenkeith4606
    @karenkeith4606 7 หลายเดือนก่อน +9

    Two or three weeks ago i was watching a program when a commercial came on. It was for a migraine medicine. At the end of the commercial there was a whole line of people sitting and standing representing people who use the medicine. All of a sudden I said out loud, " That looks like Footless Jo." If it was not you it was your twin. I am so glad you are doing better. And starting to cope with what has happened.

  • @Graceandhope777
    @Graceandhope777 7 หลายเดือนก่อน +21

    Glad to hear you’re doing somewhat better 🙂🙂

  • @maggiemayhem5079
    @maggiemayhem5079 6 หลายเดือนก่อน +1

    You are the incarnation of the quote, " Where there's a will there's a way." Thank you for sharing your profound journey with us. I pray for your continuing physical and spiritual strength and enlightenment.

  • @corinnekenny8401
    @corinnekenny8401 7 หลายเดือนก่อน +20

    I’m glad you’re feeling better, I’ve missed you. It’s been a long journey you’ve been on. I’m rooting for you!

  • @qaphqa
    @qaphqa 7 หลายเดือนก่อน +20

    May dancing and so much more bring you joy and help you heal. ❤

  • @ScoobyWandersAround
    @ScoobyWandersAround 3 หลายเดือนก่อน +1

    You are so uplifting after a traumatic event, Hang in there girl! I'm sorry this has happened to you at such a young age!❤❤❤🎉🎉🎉🎉😢

  • @amyhull754
    @amyhull754 7 หลายเดือนก่อน +5

    It's so good to see you. Your vocal cadence sounds like you again. I'm so sorry about the permanent losses; TBIs SUCK. It's just....I'm so glad you're still here with us, that you're able to begin to have moments of feeling like you. So many super good wishes.

  • @juanretuerto8203
    @juanretuerto8203 7 หลายเดือนก่อน +21

    We miss you Jo!! ❤
    Love from Spain!

  • @kimmygt5938
    @kimmygt5938 4 หลายเดือนก่อน +2

    Acquired brain injury. This sounds so much like my tbi. I'm so glad you're doing better-ish.
    It gets better.

  • @RachelWolfe
    @RachelWolfe 7 หลายเดือนก่อน +10

    Only just starting out with this video but I'm so relieved that you're sounding like yourself again

  • @aliupleger8117
    @aliupleger8117 7 หลายเดือนก่อน +6

    It’s so nice to see you back! We ran into each other in line at a show in Denver about a month ago, it was surreal to meet you in real life. You are everything that you show on screen: unbelievably strong, persevering, inspiring and motivating! Keep putting the rest of us to shame and keep getting better 🩷 you’ve proven that you can do ANYTHING

  • @EBThisThat
    @EBThisThat 7 หลายเดือนก่อน +3

    You had me hooked the moment you began talking. I was drawn by your lovely energy !

  • @graciesugarbee
    @graciesugarbee 7 หลายเดือนก่อน +4

    I have a seizure disorder caused by brain damage. I have migraines often and February-April this year were horrible. I was in the ER multiple times because we thought i was having a stroke. Thankfully it wasnt and the drs ended up giving me moee seizure meds and i have finally stabilized. I'm so glad you're on the road to recovery 💜

  • @duncanworley4802
    @duncanworley4802 7 หลายเดือนก่อน +6

    I'm disable an I know you can do what you want as people in the UK that have had strokes are doing art change the way you do art .
    Art is what you make it an want it to be .WELCOME BACK.

  • @warpdrivefueledbyinsomnia8165
    @warpdrivefueledbyinsomnia8165 5 หลายเดือนก่อน

    7:00 As you're retelling this, for some reason this part hit me pretty hard. Through no fault of your own or you dog's, you temporarily lose one of your best friends when you need them most, meanwhile your dog is now separated from you with no understanding of why this is happening. I'm so glad you found someone who could pitch in and help with both of you. Thank you for all the work you've put in to get back as far as you have so far. Keep on keeping on.

  • @ec4981
    @ec4981 7 หลายเดือนก่อน +5

    As a person that went through a severe neurological episode in the last year (7 month-long non-stop vestibular migraine), I’m so glad you’re finding new things to bring you joy! I also suffer from PTSD from interactions with medical staff, etc, and anxiety from months of not knowing why my brain wasn’t working as it should be. I just want to say that following your journey of healing has been healing for me, too, and that I hope you continue to improve! It’s been over a year now since I couldn’t get out of bed and nearly lost my job, but now it feels like I’m getting my life back-it’s different, but it’s mine. I know you’ll get yours back too.

  • @laneborden5663
    @laneborden5663 7 หลายเดือนก่อน +11

    I was just thinking about you, hoping you’re ok, this video made my day ! Hope your situation improves !! Keep up the amazing work

  • @teeyaz567
    @teeyaz567 6 หลายเดือนก่อน +2

    From one b/k amputee to another, I am a stroke survivor with a strong desire to stay alive and thrive. I follow you for inspiration and motivation, thank you for sharing your journey with everyone. I wish and pray for you a full recovery, I believe you will fully recover and find your purpose for life will be even more meaningful. You are beautiful and strong, you inspire me. Thanks again. ❤

  • @a.wilcox5690
    @a.wilcox5690 7 หลายเดือนก่อน +8

    It is critical for those around you to know the signs of a stroke and insist on getting you to the hospital immediately. Best to call an ambulance. You were so lucky that you have recovered so well. What a blessing!

    • @DrewNorthup
      @DrewNorthup 7 หลายเดือนก่อน

      It is also essential to know how to assess a patient. Due to a neurological condition I have I often have a left-size Bell's Palsy. If somebody who didn't communicate with me and attempt to assess my situation properly were to jump to conclusions it could cause a huge amount of trouble and possibly actual damage.

  • @simbanala79
    @simbanala79 7 หลายเดือนก่อน +13

    Your stroke symptoms match almost exactly to what I’m going through with my severe concussion. I’m so sorry this happened to you, I know how scary it is to all of a sudden not be yourself and how lost you feel when you can’t remember things or find words. It sucks. I hope your healing continues to go well.

    • @anisvadjian5142
      @anisvadjian5142 7 หลายเดือนก่อน +1

      I had the most minor of concussions and I was miserable for weeks- I can’t imagine how impacted your life has been, and I can’t imagine how painful everyday tasks are. I wish you as swift a recovery as is safe for you ❤

  • @apgraysr9954
    @apgraysr9954 หลายเดือนก่อน

    So glad you are doing well, I’m a new (1 year) LBKA it’s you and your videos that got me off the couch and back into my life. Thanks you for being you and thank you for returning to us via video, keep ‘em coming!!! BTW, loved you in the commercial.

  • @runexheart
    @runexheart 7 หลายเดือนก่อน +11

    Theres a mnemonic that the NHS teaches over here in the UK for the most common symptoms of stroke - FAST. F is for face, is there muscle weakness, problems seeing etc; A is for arms, can you lift and move them properly; S is for speech, is there slurring, stuttering or struggling; T is the letter stuck on there to make it memorable, time to call for help, but its super useful if you're not familiar with the symptoms.
    I'm so glad you're doing so well, and I hope your recovery continues as well as it can do

    • @chibiyumeusa
      @chibiyumeusa 7 หลายเดือนก่อน +1

      US uses the same mnemonic but here the T is to tell you to both act fast in getting to the hospital and to record the time the symptoms first appeared (if possible) so medical staff can make the best decision on treatments since some avenues of care are dependent on the amount of time elapsed

  • @babasooze678
    @babasooze678 7 หลายเดือนก่อน +5

    You have been on my mind this past week wondering how you are doing. Thanks for the update. I am glad you are on the pathway to healing & acceptance of the lengthy time line involved. Glad to see your progress.

  • @MichaelRedding-z9o
    @MichaelRedding-z9o 2 หลายเดือนก่อน

    Hi Jo, I am so pleased your recovering, your doing all the right things
    , listen to your Dr’s, take it easy, listen to what your body is telling you. I didn’t and paying the price now, I hope people see this and follow your example. Bless You 🙏🏻🙏🏻

  • @eddiehritz8785
    @eddiehritz8785 7 หลายเดือนก่อน +6

    Welcome back! We all are happy to see you happy and feeling so much better!! Much love to you.

  • @Gemelli2906
    @Gemelli2906 7 หลายเดือนก่อน +5

    Here I am feeling sorry for myself 😢 lost my dad and we were not on good terms at the end. But to watch you overcome the literal hell life has thrown at you is amazing.

    • @pinstripesuitandheels
      @pinstripesuitandheels 7 หลายเดือนก่อน +3

      You are allowed to feel sorry for yourself. Feelings are feelings.