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- เผยแพร่เมื่อ 28 พ.ค. 2024
- Looking for everything you need to know about fibromyalgia? You've found it! In this video, we'll cover:
1️⃣symptoms
2️⃣diagnosis
3️⃣treatment options
Fibromyalgia is more than just physical pain; it's an invisible battle that impacts every aspect of life. Join us as we uncover the mysteries surrounding fibromyalgia and provide invaluable insights into its complexities.
Discover the latest research findings, treatment options, and practical tips for coping with fibromyalgia on a day-to-day basis. Whether you're newly diagnosed, a caregiver, or simply seeking knowledge about this often misunderstood condition, this video is your ultimate resource. Fibromyalgia can be a challenging condition to deal with, but with the right information, you can better understand and manage your symptoms.
Stay Healthy and Lucid 💡🧠
Danielle
Music used in video:
Roie Shpigler: Wag The Tail (Artlist)
Research:
Non-invasive brain stimulation: www.ncbi.nlm.nih.gov/pmc/arti...
Sleep and Pain:
pubmed.ncbi.nlm.nih.gov/31992...
Growth Hormone and Fibromyalgia:
www.sciencedirect.com/science....
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✅ IVIG:
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• Mastering IV Catheter Insertion: Prov...
00:00 Introduction
00:29 Spoon theory
02:16 Fibromyalgia symptoms
02:41 Fibromyalgia trigger points
04:04 Fibromyalgia and sleep
04:17 Sleep stages
06:13 Restless Leg Syndrome (RLS)
08:59 Fibromyalgia and depression
09:58 Perceived Danger Pain (PDP)
10:43 Fibromyalgia treatments
11:00 Brain stimulation
11:49 Fibromyalgia treatment side effects
12:56 Biofeedback for fibromyalgia
13:33 Fibromyalgia and gaslighting
In Germany, they founded at a lot People with Fibromyalgie or CFS, Antibodys against Serotonin
I've been gaslighted so much trough the years that I don't believe myself when the pain is low. Tomorrow I have a rheumatologist appointment for the first time and I'm so afraid I will be told it's nothing without even lookin at me or listening me again.
Hi Pauline! I just saw your comment and I'm with you in spirit tomorrow at your appt. I know the anticipation and fear you have of not being taken seriously. I hope to see an update that the visit went better than expected and you receive answers.
Danielle
Been doing spoon theory for a long time
First time I see a video about this that I relate to, and that makes me feel hopeful about being taken seriously on day. Thank you❤
PS: love the bloopers😅
Biofeedback therapy is so amazing i thought about getting my license 😊. I may still. I'm 43 and no kids and single. So, yeah we need more of that type of therapeutic. And psychedelics.
I don't sell or get incentivized for saying this, but with leg cramps, spasms, burning, the “Doctor’s best” high absorption (lysinate glycinate) magnesium from Amazon works well. It is an easy absorption of magnesium. It's a lot different than regular magnesium pills. I've tried it all. Thanks. Cindee from Tallahassee Fl.😊
I'm in Jacksonville. Fellow spoonie here. 20 plus years
I'm 43 and menopause is making it really wild.
I take 2 tablets a day. I need to get my levels checked
But I found out I was on the wrong b12 for 20 years 😂
I finally take the methy type and I think it's helping. My name is Dani or Danielle
But OMG Danielle here is amazing.
Great overview Danielle! Thanks as always for making sense out of such a complicated and misunderstood condition. I’ve been experiencing some relief from taking a very low dose of Naltrexone 4.5mg is a typical dose for most patients. There’s lots of research on the benefits for pain and inflammation, hope this helps others. I too hate the wind ugh - what’s up Mother Nature?
Hi Mark! Thank you as always for commenting and lifting me up :) LDN is yet another topic that's on my list to potentially cover. I have adults as well as kids who are taking this for various conditions and it's making a notable difference. Most of the kids I have on it are taking it to help with PANS/PANDAS (pediatric autoimmune neuropsychiatric associated strep infections). Hope to see you on the live this Wednesday. Now that I say that I hope to see myself on the live this week lol. Kids home from college seriously throws a wrench (in the best way) in my schedule lol.
Danielle
@@lucidmed3343 LOL your healing world can wait - enjoy your kids!
😅 enjoyed the bloopers at the end 😀. I have fully body burning 🔥. It's been 15 yrs and I don't know if its small fiber neuropathy from platinum chemo 15 yrs ago, or if it's fibro. I have no pain management, because nothing has helped. I haven't tried biofeedback, so perhaps I should.
Ketamine therapy? I am in COLORADO. I have been thinking about it. I have fibromyalgia, Sleep Apnea, Chiari type 1 malformation, 3 bulging discs in spine, and several other diagnoses. I decided in 2019 to get the gastric bypass surgery to help the fibromyalgia and sleep apnea. Did not work. My fibromyalgia and sleep apnea are worse and have high blood pressure ( which is not being treated because they think it related to the pain).
Hi tiffany! I'm on the east coast so unfortunately I'm not familiar with pain clinics that might be available in your area. That said, I'd start with asking your primary for a recommendation and go from there. I did a video on ketamine which may help:
Ketamine: th-cam.com/video/PKe3UrLKHeg/w-d-xo.htmlsi=KKx9d3pz5smF82mu
Hello,
What do you think are the most effective physical therapy devices for stimulating nerve cells in the feet damaged by diabetes. This is considering that supplements and minerals alone cannot repair nerve damage.
I was diagnosed with fibromyalgia a few years back buy my rheumatologist but it seems that no one knows how to treat it I'm drained and exhausted every day I'm not sure of what to do anymore 🙏
Hello dear 2 year ago I was diagnosed with fibromyalgia.medications, physical exercise , diet , yoga, meditation. Now I can't say pain free but 90 % recovered and stopped medication 6 months ago. My Rheumatologist There will be remission after 2 to 3 years. Still working on it.
@@gannojukeerthi1498 I kind of gave up a little but I am going to get back to the doctors and try something new. Thanks for the info and keep going it sounds like your on to something 👍
The best advice is to manage your sleep and stress
I went to Pain Rehab years ago at Brooks rehab. I cannot tell you how much learning about pain and stress helped so much. Stress and trauma can make us sick. I would love to talk to any fibro folks
We need to talk more and it's almost our day. May 5th I believe.
You may want to visit “doctor patient forum .”
I take melatonin for my sleep. Yes i get groggy sometimes. But if i don't have 6-8 hours I'm a mess
Eff pain free you!
Hi Kavita! I actually spoke with Dan Buglio yesterday for about 2 hours. Interesting conversation....
D
@@lucidmed3343 I would really love to hear about that conversation from your perspective. All I know is in a comment I cannot express how many different levels and the insidiousness of what he is teaching can be dangerous I don't mean dangerous as in you're going to be stabbed no I mean emotionally dangerous because when things don't work you're going to blame yourself because that is the outcome of what he's teaching you are in charge and so if you're in charge and you don't heal then that's actually your fault. We could go on and on about this all the levels that actually get touched when you follow somebody that says you have manifested this therefore you can unmanifest this that's a big burden for something that isn't true. PLEASE DANIELLE FORGIVE ME BECAUSE MY PHONE WILL NOT ALLOW ME TO GO BACK AND GRAMMATICALLY CLEAN UP THIS REPLY TO YOU. I HOPE YOU CAN UNDERSTAND AND FIGURE OUT WHERE PERIODS SHOULD BE AND, SHOULD BE.
I love the winds. Florida on the east side, Jacksonville Florida was not windy. Now we get winds 😂 i love this video
I am thinking of starting a channel on pain and menopause plus psych and trauma. We should talk
Hi! And that's FANTASTIC! I love your proactivity and yes, that is an awesome idea for a channel. I'd be up for a chat anytime. danielle@lucid-med.com.
Danielle
@lucidmed3343 I'll definitely reach out to you
I try to be good and stay proactive with my health. It all started back at 17. And my dad is an engineer, so we're big on self education. Especially when it's something important. 😊