I have had it for one year after a bad motorcycle accident ton of nerve damage in my body. I’m pretty much healed through 25+ surgeries and different parts of my body. I still have a paralyzed right hand, paralyzed left foot foot is where the CRPS is, I woke up with it after my first surgery. I was on opiates for six months and I can’t stand them extremely addictive and just end up taking more and more went through withdrawals. Now I I just do the best I can keep it elevated and that’s tolerable. I have a boot I can put on medical boot that allows me a little bit periodically my day our total I have started to look into amputation conditions, paralyzation, and CRPS thank you for all you do for this. God bless you
💔 😪 was working struggling 💔 so much finally after so many years of this I was diagnosed with CRPS it's the worst painful thing to deal with u don't know how you will wake up the next day and how it effects ur daily life
I have had this for six months now and everything in this video describes what has happened and is still happening to me , this is the first time i have felt related to and not alone , i really am so grateful for how well you were aboe to explain this crps It affects every single second of ky daily life , i am so fristrated and have been so emotional and felt alone so many times and this made me feel alot more knoledgeble and heard
Wow. I was made believe this was not real or that I was making up all my pain. My pain is not being managed because doctors don’t believe me. I’m going crazy with all this pain, swelling, tremors and no mobility on my right arm
Hello, thank you for all your information, what you just told it’s so true, cause after my rotator cuff surgery was done In January, they had diagnosed me CRPS and not one understands my pain
Thank you Alissa for your insight, this is the most horrible experience I've ever dealt with. I go to sleep in pain and wake up in pain, I've found out nerve blocks help.
Hi Alissa Very informative video thank you! I broke my left wrist 3 years ago falling from my bike and after 5 weeks of cast, I was in so much pain and had all the typical symptoms, i.e. swelling, bluish skin, peeling skin and abnormal pain considering that my bone fracture had healed. That's when I was diagnosed with CRPS and had to go through 3-months physiotherapy. I have to see that it took a whole year for my hand to regain complete mobility. Unfortunately for me, I got mugged on vacation in Barcelona. My attacker pushed me to the ground to steal my watch and I broke my right wrist. My arm was put in a cast for 6 weeks. Needless to say that I was dreading being afflicted with CRPS again as doctors told me it could happen to me again. Well the last week before my cast was removed I knew that it came back in my right hand as I had all the telltale signs again. Sure enough, I removed the cast yesterday and CRPS is back with a vengeance in my right hand. As I am right handed, it is very important that I recover full mobility quickly and any advice that you can provide would be very much appreciated. Thank you very much! Nicole
Thank you for explaining with a good balance of simple talk and technical explanation. I am really looking forward to watching part 2. CRPS is so confusing and ‘unfair’.
Thank you for this information. I was diagnosed in March 2024 after a traumatic injury to my right hand in January 2024. I still have more surgeries in my future but they are on “hold” until they get a handle on crps. Big concern for surgeon, and me is that the crps will be back full blown. I am undergoing ganglion blocks, therapy and meds now with better then it was before I started the treatments, but it is still in control of my life it seems.
A nerve problem witha visit to doctor visit for a prp infection and and pain so bad when he injection I, couldn't walk can you imagine 4am you fall on your face😢. The 2 day zip couldn't walk!! We to the doctor had MRI it didn't show the nerve damage. But I find out it unseen you have a test to see how bad it is. When to Cleveland Clinic! It's bad!! Thank you!
If you have crps,does it automatically mean that you have overactive sympathetic nervous system? What is the relation..how about parasympathetic nervous system.?
Sympathetic nervous system coordinates fight or flight functions and parasympathetic coordinates rest and digest functions. They’re like the gas and the breaks. Often, with pain, because of these nervous system changes, the nervous system ramps up it’s defense mechanisms and activates it’s survival response (fight or flight). So sympathetic NS is typically overactive.
I’m 67 yrs old. Fractured my ankle summer 2023. Developed cellulitis about 1 1/2 weeks later. Had to change my immobilization from air cast to soft brace in order to treat cellulitis & watch it. Had swelling and used compression socks to minimize the swelling which worked. After months noticed my pain continued even fracture supposedly healed & swelling gone. Been diagnosed 8 months later with CRPS. Have many symptoms (swelling mostly not issue now). Stabbing, numbness, color change, calf muscle constriction, etc. also travelled to opposite good leg & up injured ankle to knee. Do u Alissa take calls from Canada? Will listen to podcast 2 & 3 as well. Thank u & hope u r able to reply 🇨🇦 ❤
I have it and it spread up in my lower part of my body but I guess I did it all right I got hit by a car and it crushed me question my legs and crushed my arms. I have I used to call it RSD But you change the name but I have complete RSD that’s what I’ve been tired I know what it feels like when people think that you’re going crazy and think it’s all in your head I know the feeling it I had my husband and he passed away, so I’m bout my wine myself, but I can handle any.
So sounds like I should start walking with my tennis shoe with my drop foot brace instead of my medical boot because it’s not allowing enough movement during the walking process, is that correct?
Have you done any work with people with Asperger's add etc I now no I had SPD as a child and I had a fall decades ago trigger ed pelvic pain now fybromyalgia then now find out I have Asperger's add hypomobility after my son's diagnosis I've read Asperger's brain is less plastic
As you mentioned, there is a link between ADHD and chronic pain, as well as a link between Autism and chronic pain. So yes, because of that, many of my clients have been diagnosed/suspect ADHD, and/or are on the spectrum.
@@paincrusaderofficial sure my father has ADHD he had CFS my mum surely as Asperger's and has severe ms.ocd linked with this to and I may have eds they sent sure
I woke from my 3rd spinal surgery in 18 months whn I was 29yo in 1979 with a bright red, swollen, burning, massively overly sensitive, foot. Clearly a nerve was damaged during surgery. Surgery by the head of neurosurgery at Brigham and Womens hospital in Boston, good surgeon, and he diagnosed me day one. No internet. Just told me I would never walk again. I was on crutches for 25 years, went into a sort of remission for a while and now at 69 I'm trying to figure out how to afford to become wheelchair bound. Most don't know its thousands and thousands of dollars in the US. Medicare pays for a huge wc only. They dont care if you never leave?the house again. If we could get insurance to listen, not dangerously cut people off of pain meds and confine them to bed till they die. Because of insurance companies, this is easily a fatal disease - beyond the spread to vital organs. Thank you for this. I don't take pain meds but my life is tiny.
I have I have I have it right now. I had it for 16 years you call the Sabrina county CPS what happened to me was if anybody’s listening you got so bad I started throwing up and couldn’t move my hands and turned all different colors and even got lotta spots and they did mini bucks on me for about 300 or more I could buy a strap. There was a light on it wonderful doctor he took it in his hands and he made me a whole island where is stimulator on me and it is on my legs is up in my upper body. Do you have it and someone give you the chance you have to go to in Rogers are the only one that understands hey, my
Your discription about the nerve pathways are accurate. However I never disassociated from it. I did and still do think it may be better amputated. I do have hashimotos which is an autoimmune desease that attacks the central nervous system. The surgeon found a massive amount of scar tissue on the ulnar nerve during a relocation. That actually fused the nerve to the bone. He cut the nerve from the bone and scraped the scar tisshe from the nerve. I did not keep it immobile. I was extremely worried about losing function. All that to say maybe immobilized limbs may be more likely to aquire it however it doesn't have to be immobilized. That is important because the cause theory may need to be reevaluated. Mine has spread the the opposite limb down to both legs and my neck. If i sound aggressive i appologize. I am a very happy person and have respect for you. However this pain makes it hard to communicate effectively.
![[PART 2] Understanding CRPS: The Truth About it’s Neurobiology and Effective Treatments](http://i.ytimg.com/vi/Wl-Te2u3KHg/mqdefault.jpg)
![[PART 2] Understanding CRPS: The Truth About it’s Neurobiology and Effective Treatments](/img/tr.png)
![[Part 3] Understanding CRPS: The Truth About it’s Neurobiology and Effective Treatments](http://i.ytimg.com/vi/8Pg7OIm4lXE/mqdefault.jpg)
I have had it for one year after a bad motorcycle accident ton of nerve damage in my body. I’m pretty much healed through 25+ surgeries and different parts of my body. I still have a paralyzed right hand, paralyzed left foot foot is where the CRPS is, I woke up with it after my first surgery. I was on opiates for six months and I can’t stand them extremely addictive and just end up taking more and more went through withdrawals. Now I I just do the best I can keep it elevated and that’s tolerable. I have a boot I can put on medical boot that allows me a little bit periodically my day our total I have started to look into amputation conditions, paralyzation, and CRPS thank you for all you do for this. God bless you
@@ronniebaker7782 so sorry 😞
💔 😪 was working struggling 💔 so much finally after so many years of this I was diagnosed with CRPS it's the worst painful thing to deal with u don't know how you will wake up the next day and how it effects ur daily life
I feel you 100%, you go to sleep in pain and wake up in pain, day after day
I have had this for six months now and everything in this video describes what has happened and is still happening to me , this is the first time i have felt related to and not alone , i really am so grateful for how well you were aboe to explain this crps
It affects every single second of ky daily life , i am so fristrated and have been so emotional and felt alone so many times and this made me feel alot more knoledgeble and heard
I have had this for over 20 years and I’m now permanently disabled this has been the most frustrating and painful thing.
Yeah it ruined my life too!
@@ja_lil 🥹I’m sorry thx for your reply
Thank you so much for this. 4 years in this hell and you finally made it make sense. Thank you
you are sooo welcome my friend!
Wow. I was made believe this was not real or that I was making up all my pain. My pain is not being managed because doctors don’t believe me. I’m going crazy with all this pain, swelling, tremors and no mobility on my right arm
Praying for you that God will send you to someone that listens and helps you recover. God bless
Hello, thank you for all your information, what you just told it’s so true, cause after my rotator cuff surgery was done In January, they had diagnosed me CRPS and not one understands my pain
Thank you Alissa for your insight, this is the most horrible experience I've ever dealt with. I go to sleep in pain and wake up in pain, I've found out nerve blocks help.
Hi Alissa Very informative video thank you! I broke my left wrist 3 years ago falling from my bike and after 5 weeks of cast, I was in so much pain and had all the typical symptoms, i.e. swelling, bluish skin, peeling skin and abnormal pain considering that my bone fracture had healed. That's when I was diagnosed with CRPS and had to go through 3-months physiotherapy. I have to see that it took a whole year for my hand to regain complete mobility. Unfortunately for me, I got mugged on vacation in Barcelona. My attacker pushed me to the ground to steal my watch and I broke my right wrist. My arm was put in a cast for 6 weeks. Needless to say that I was dreading being afflicted with CRPS again as doctors told me it could happen to me again. Well the last week before my cast was removed I knew that it came back in my right hand as I had all the telltale signs again. Sure enough, I removed the cast yesterday and CRPS is back with a vengeance in my right hand. As I am right handed, it is very important that I recover full mobility quickly and any advice that you can provide would be very much appreciated. Thank you very much! Nicole
Great information, and so helpful. Thank you!!!!!!
You are so welcome!
Thank you for explaining with a good balance of simple talk and technical explanation. I am really looking forward to watching part 2. CRPS is so confusing and ‘unfair’.
Thank you for your lecture. Your descriptions are spot on. ❤
This is really good
YOU NAILED THIS!!!
Thank you for this information.
I was diagnosed in March 2024 after a traumatic injury to my right hand in January 2024.
I still have more surgeries in my future but they are on “hold” until they get a handle on crps.
Big concern for surgeon, and me is that the crps will be back full blown.
I am undergoing ganglion blocks, therapy and meds now with better then it was before I started the treatments, but it is still in control of my life it seems.
Super interesting. Could a large, "non-obstructing" kidney stone cause CPRS?
A nerve problem witha visit to doctor visit for a prp infection and and pain so bad when he injection I, couldn't walk can you imagine 4am you fall on your face😢. The 2 day zip couldn't walk!! We to the doctor had MRI it didn't show the nerve damage. But I find out it unseen you have a test to see how bad it is. When to Cleveland Clinic! It's bad!! Thank you!
I’m having trouble trying to schedule an appointment. The format won’t let me complete the information. Please advise.
If you have crps,does it automatically mean that you have overactive sympathetic nervous system? What is the relation..how about parasympathetic nervous system.?
Sympathetic nervous system coordinates fight or flight functions and parasympathetic coordinates rest and digest functions. They’re like the gas and the breaks. Often, with pain, because of these nervous system changes, the nervous system ramps up it’s defense mechanisms and activates it’s survival response (fight or flight). So sympathetic NS is typically overactive.
I’m 67 yrs old. Fractured my ankle summer 2023. Developed cellulitis about 1 1/2 weeks later. Had to change my immobilization from air cast to soft brace in order to treat cellulitis & watch it. Had swelling and used compression socks to minimize the swelling which worked. After months noticed my pain continued even fracture supposedly healed & swelling gone. Been diagnosed 8 months later with CRPS. Have many symptoms (swelling mostly not issue now). Stabbing, numbness, color change, calf muscle constriction, etc. also travelled to opposite good leg & up injured ankle to knee. Do u Alissa take calls from Canada? Will listen to podcast 2 & 3 as well. Thank u & hope u r able to reply 🇨🇦 ❤
I do take calls from Canada. I'd love to chat!!! ==> www.alissawolfe.com/book-call
I have it and it spread up in my lower part of my body but I guess I did it all right I got hit by a car and it crushed me question my legs and crushed my arms. I have I used to call it RSD But you change the name but I have complete RSD that’s what I’ve been tired I know what it feels like when people think that you’re going crazy and think it’s all in your head I know the feeling it I had my husband and he passed away, so I’m bout my wine myself, but I can handle any.
So sounds like I should start walking with my tennis shoe with my drop foot brace instead of my medical boot because it’s not allowing enough movement during the walking process, is that correct?
Is it destroying my bones in the area?
How do I get on your calendar?
head right here: www.alissawolfe.com/book-call
By the way, this is my husbands youtube account and therefore it's his pic Lol!!
Have you done any work with people with Asperger's add etc I now no I had SPD as a child and I had a fall decades ago trigger ed pelvic pain now fybromyalgia then now find out I have Asperger's add hypomobility after my son's diagnosis I've read Asperger's brain is less plastic
As you mentioned, there is a link between ADHD and chronic pain, as well as a link between Autism and chronic pain. So yes, because of that, many of my clients have been diagnosed/suspect ADHD, and/or are on the spectrum.
@@paincrusaderofficial sure my father has ADHD he had CFS my mum surely as Asperger's and has severe ms.ocd linked with this to and I may have eds they sent sure
@@Truerealism747 and for so many it can be very challenging to get that official diagnosis :/
I woke from my 3rd spinal surgery in 18 months whn I was 29yo in 1979 with a bright red, swollen, burning, massively overly sensitive, foot. Clearly a nerve was damaged during surgery. Surgery by the head of neurosurgery at Brigham and Womens hospital in Boston, good surgeon, and he diagnosed me day one. No internet. Just told me I would never walk again. I was on crutches for 25 years, went into a sort of remission for a while and now at 69 I'm trying to figure out how to afford to become wheelchair bound. Most don't know its thousands and thousands of dollars in the US. Medicare pays for a huge wc only. They dont care if you never leave?the house again. If we could get insurance to listen, not dangerously cut people off of pain meds and confine them to bed till they die. Because of insurance companies, this is easily a fatal disease - beyond the spread to vital organs. Thank you for this. I don't take pain meds but my life is tiny.
I have I have I have it right now. I had it for 16 years you call the Sabrina county CPS what happened to me was if anybody’s listening you got so bad I started throwing up and couldn’t move my hands and turned all different colors and even got lotta spots and they did mini bucks on me for about 300 or more I could buy a strap. There was a light on it wonderful doctor he took it in his hands and he made me a whole island where is stimulator on me and it is on my legs is up in my upper body. Do you have it and someone give you the chance you have to go to in Rogers are the only one that understands hey, my
0:19 they ignore and people suffer because of it
Your discription about the nerve pathways are accurate. However I never disassociated from it. I did and still do think it may be better amputated. I do have hashimotos which is an autoimmune desease that attacks the central nervous system. The surgeon found a massive amount of scar tissue on the ulnar nerve during a relocation. That actually fused the nerve to the bone. He cut the nerve from the bone and scraped the scar tisshe from the nerve. I did not keep it immobile. I was extremely worried about losing function. All that to say maybe immobilized limbs may be more likely to aquire it however it doesn't have to be immobilized. That is important because the cause theory may need to be reevaluated.
Mine has spread the the opposite limb down to both legs and my neck.
If i sound aggressive i appologize. I am a very happy person and have respect for you. However this pain makes it hard to communicate effectively.
Thank you so much for the link to this series