It's as such a terrible and scary disease... The people that go through it with dignity and bravery are something else.. I don't think I could ever do it
Brought so many tears and memories I lost my father in 2005 to ALS.It is so difficult to se what he went through and knowing what was to come I love you Dad
I hope this comment does not offend but my little dog lost the myelin sheath of her body and displayed many symptoms like ALS. The vet wanted me to put my dog to sleep but she was only two and I was a nurse. I took her to a Human doctor and he put her on steroids and a slow acting antibiotic. The dramatic improvement was unbelievable. She could walk and move and stopped not being able sit down or feed herself. The vet could not believe it. Sadly I was so pleased with the improvement that I stopped the medication and within a couple of days all the symptoms returned. I have not nursed for a long time so I don't know the treatment to day but I just wondered if my story was worth noting. Bless you for your story and I pray for a cure for those who are suffering.
God bless this family with their loss and their future! What a tragic loss of a great man! I just lost my twin sister to ALS 3 months ago. We are fraternal and both of us in great health prior to this taking hold of her. She hiked 10 mile hikes, was an avid photographer, ran her own real estate company, started websites online and several facebook groups even while she was dying she posted on them! She ate organic foods and the only risk in her environment was the moldy house she lived in for 4 years. The landlord didn't fix it as he represented when it was treated for mold but not finished. She chose homeopathic means to get better from what she was convinced was mold and candida refusing all of our families insistence she see a DR. She was diagnosed finally 6 weeks prior to dying. She opted for no assistance with breathing or intravenous feeding. She cut alot of time off her life by refusing to see a real Doctor and getting treatments that are available. Being a twin only means I have the ability to help research by supplying both of our hair samples. I did clean out her hair brush to enable me to do this. If I do not develop ALS my hair sample next to hers will allow them to determine markers present in hers that I don't have. Of course I don't know yet if I will get this! Our Father died of a neurological disease but was never diagnosed. He did not display the same symptoms at all or even close. We just have no way of knowing if it is hereditary.
I watch the video with Drew Miller who dealt with ALS. I cried through the whole video as my brother Donald Coulter also dealt with ALS and passed away May 21st 2013 approximately 1 year after he was diagnosed. He left behind a wife of 30 years, a son Justin who now devote a lot of his time trying to figure out what is AlS and how can it be cured, a daughter Lindsay who had his first grandchild grandson 3 months after his passing. In addition there were four girls and 2 boys in our family. one of our sisters died in 1981 from an aneurysm and both of our parents passed away 5 years ago 6 months apart. My brother often asked me do you think mom had ALS and what do you think they would think if they were alive. I could only answer was I don't know if mom had ALS and I know they would be devastated right now to find out that you have it. I also wanted to comment that my brothers passion was football he was the coach for the Aberdeen bulldogs for 15 years. he was known as coach Bay and the kids Were called Bay Bays kids. this video about drew reminded me so much of our family and was an exact replica of what we went through and the whole time my brother kept the best spirit and seemed happy knowing he had this disease while we cried inside. I just want to send you my sympathy and to let you know you're not alone. god bless you
I'm crying 😢 I pray for a Miricle my brother has als and has been aproved for clinical trial noo1 let's pray this will be a cure and take this criuel disease away..
It's a shame in a country like the USA with so much wealth that people who have to deal with the stress of a terminal or debilitating illness also have to worry about the money part of their illness as well.
szqsk8: I saw where this new drug (Radicava)costs $900/month...shocking! The medical system in the U.S. is TOTALLY BROKEN! The life expectancy is going DOWN and the infant morbidity/mortality rate is going UP. I blame the toxic virus-containing VACCINES.
I know the NHS in the UK is flawed in some ways. But the concept of free health care from cradle to grave is reassuring and important. To not survive because of an inability to pay is scary and unacceptable.
Why is there no cure yet?? It's such a relentless disease and so many people have no clue what it is.. I hate this disease but it's what I have been given I got to fight to the end.. ALS always beats us.. so sad
Jais la meme maladie je ne connais pas l,anglais je conais quelque chose qui guerisse mais je n,ais pas de quoi acheter si maider je vous derais mais contacter moi a watssapp je parle pas 0668842677 maroc
I think it has more to do with the personality type/traits of the people who go public with their illness/seek more awareness/funding into research. The same personality traits make them more active/sport loving/extroverted etc.
@@michaelkensington2494 how many have you watched? 100?200? out of 30k people with this illness currently in the US. The only association there is, is that army veterans have double the likelihood of being affected by ALS than other people. No one knows why
@@michaelkensington2494 Actually I've been reading on it and there seems to be a link with competitive contact sports. 'A recent meta-analysis of 16 studies found that some competitive sports may be linked to an increased risk of ALS. Professional sports prone to repetitive concussive head and neck trauma, such as American football and soccer, were linked to an 8.5 times higher incidence of ALS compared with controls'
I hate ALS. We need a cure.
Drew was clearly a very special person. I just want to hug his daughters.
Rest in peace Drew
It's as such a terrible and scary disease... The people that go through it with dignity and bravery are something else.. I don't think I could ever do it
Brought so many tears and memories I lost my father in 2005 to ALS.It is so difficult to se what he went through and knowing what was to come I love you Dad
Wow! What a beautiful tribute! Love his family! How brave he was. He left a mark! My heart hurts to know of his suffering. So courageous...
I hope this comment does not offend but my little dog lost the myelin sheath of her body and displayed many symptoms like ALS. The vet wanted me to put my dog to sleep but she was only two and I was a nurse. I took her to a Human doctor and he put her on steroids and a slow acting antibiotic. The dramatic improvement was unbelievable. She could walk and move and stopped not being able sit down or feed herself. The vet could not believe it. Sadly I was so pleased with the improvement that I stopped the medication and within a couple of days all the symptoms returned. I have not nursed for a long time so I don't know the treatment to day but I just wondered if my story was worth noting. Bless you for your story and I pray for a cure for those who are suffering.
Once the myelin sheath is gone, it never recovers.
Saying that your dad is an Amazing person is beautiful
My goodness. Listening to the dad telling the big wheel story and that it's not raining was just perfect ☔💞 RIP.....and that smile at 21.40 💕
Awesome! Your awesome! Your my new hero that I truly look up to your family is beautiful but your heart is what guides it
What a lovely man and he worked for HTS I remember watching that as a little kid go Orioles
God bless this family with their loss and their future! What a tragic loss of a great man! I just lost my twin sister to ALS 3 months ago. We are fraternal and both of us in great health prior to this taking hold of her. She hiked 10 mile hikes, was an avid photographer, ran her own real estate company, started websites online and several facebook groups even while she was dying she posted on them! She ate organic foods and the only risk in her environment was the moldy house she lived in for 4 years. The landlord didn't fix it as he represented when it was treated for mold but not finished. She chose homeopathic means to get better from what she was convinced was mold and candida refusing all of our families insistence she see a DR. She was diagnosed finally 6 weeks prior to dying. She opted for no assistance with breathing or intravenous feeding. She cut alot of time off her life by refusing to see a real Doctor and getting treatments that are available. Being a twin only means I have the ability to help research by supplying both of our hair samples. I did clean out her hair brush to enable me to do this. If I do not develop ALS my hair sample next to hers will allow them to determine markers present in hers that I don't have. Of course I don't know yet if I will get this! Our Father died of a neurological disease but was never diagnosed. He did not display the same symptoms at all or even close. We just have no way of knowing if it is hereditary.
Lovely family and so sorry for your loss. You had a lovely daddy. Love and so many hugs from England.
This was a beautiful video! RIP Drew! ❤
I watch the video with Drew Miller who dealt with ALS. I cried through the whole video as my brother Donald Coulter also dealt with ALS and passed away May 21st 2013 approximately 1 year after he was diagnosed. He left behind a wife of 30 years, a son Justin who now devote a lot of his time trying to figure out what is AlS and how can it be cured, a daughter Lindsay who had his first grandchild grandson 3 months after his passing. In addition there were four girls and 2 boys in our family. one of our sisters died in 1981 from an aneurysm and both of our parents passed away 5 years ago 6 months apart. My brother often asked me do you think mom had ALS and what do you think they would think if they were alive. I could only answer was I don't know if mom had ALS and I know they would be devastated right now to find out that you have it. I also wanted to comment that my brothers passion was football he was the coach for the Aberdeen bulldogs for 15 years. he was known as coach Bay and the kids Were called Bay Bays kids. this video about drew reminded me so much of our family and was an exact replica of what we went through and the whole time my brother kept the best spirit and seemed happy knowing he had this disease while we cried inside. I just want to send you my sympathy and to let you know you're not alone. god bless you
What a brave strong wonderful man
God bless you and your family Drew 🙏
I'm crying 😢 I pray for a Miricle my brother has als and has been aproved for clinical trial noo1 let's pray this will be a cure and take this criuel disease away..
Veronica Caram You mean miracle and cruel? Smh.
@@Goodie2ShoezGirl piss off karen
Alicia Anne wow. Really? Remember to be kind.
@@Goodie2ShoezGirl please don't bring negativity here
Thanks so much for sharing❤️
🙏🏾🙏🏾🙏🏾🙏🏾😭😭😢😢May god bless you and your family
What an Awesome Spirit!! Earth's Lost is Heaven's Gain...R.I.P. Drew Miller...
R.I.P. Drew 💐
Prayers you & your family.
You are a legend sir! Thank you for sharing this video it was awesome!! Michigan xoxox
Rest in peace my friend....
Amazing man...
this is very sad, I feel so bad for Drew and his family. Hope there is a cure for this horrible disease soon.
It's a shame in a country like the USA with so
much wealth that people who have to deal with the stress of a terminal or debilitating illness also have to worry about the money part of their illness as well.
szqsk8: I saw where this new drug (Radicava)costs $900/month...shocking! The medical system in the U.S. is TOTALLY BROKEN! The life expectancy is going DOWN and the infant morbidity/mortality rate is going UP. I blame the toxic virus-containing VACCINES.
Valerie Griner it has nothing to do with vaccines. It is a mutation with an unknown cause.
szqsk8 Umm...all countries.
True... so sad
I know the NHS in the UK is flawed in some ways. But the concept of free health care from cradle to grave is reassuring and important. To not survive because of an inability to pay is scary and unacceptable.
Sorry for you loss i yes los my brother yesteday ALS its a moster
💔😔 we need a cure
Sorry
In Australia we call the same dreadful disease, MND, Motor Neur
one Disease. x
and in the UK
Why is there no cure yet??
It's such a relentless disease and so many people have no clue what it is..
I hate this disease but it's what I have been given I got to fight to the end.. ALS always beats us.. so sad
Rip :(
Crappy Disease! RIP Drew😢
Why is it that a disproportionate number of athletic people get this disease ?
Jais la meme maladie je ne connais pas l,anglais je conais quelque chose qui guerisse mais je n,ais pas de quoi acheter si maider je vous derais mais contacter moi a watssapp je parle pas 0668842677 maroc
I think it has more to do with the personality type/traits of the people who go public with their illness/seek more awareness/funding into research. The same personality traits make them more active/sport loving/extroverted etc.
@@dorotak6280 ive watched many testimonials the one thing they all have in common is that they all work out are athletic or into sports.
@@michaelkensington2494 how many have you watched? 100?200? out of 30k people with this illness currently in the US. The only association there is, is that army veterans have double the likelihood of being affected by ALS than other people. No one knows why
@@michaelkensington2494 Actually I've been reading on it and there seems to be a link with competitive contact sports. 'A recent meta-analysis of 16 studies found that some competitive sports may be linked to an increased risk of ALS. Professional sports prone to repetitive concussive head and neck trauma, such as American football and soccer, were linked to an 8.5 times higher incidence of ALS compared with controls'
😭 😭 😭 😭
Chelsea uses the word ‘like’ three times in every sentence.