Eric and Amanda Stevens Are Looking to Axe ALS | FOX Sports West
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- เผยแพร่เมื่อ 24 มี.ค. 2020
- Palos Verdes Peninsula High School alum, former Cal Berkley & Rams Fullback, and current Los Angeles firefighter Eric Stevens was diagnosed with ALS in August of last year at the age of 29 - one month after marrying his college sweetheart Amanda.
Eric and Amanda sat down with Taylor Felix to share their story with us, and most importantly, how they're fighting every day to save the lives of Eric and the thousands of other ALS patients without any access to treatment.
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My father in law passed in 2019 he was in his 70’s. He lived 5 yrs 3months from the moment of diagnosis. He was very active and stayed positive throughout. His last moments he could whisper that he needed to go and just couldn’t hold on anymore. He was a wonderful caring generous man. Please stop allowing people to suffer like this it is agonizing to see and even more so living it. Let these people have this drug and let them have a life.
Here here Sharon. Those that are h affected are the victim. And the families and then the victim suffers more seeing the family in such a way. It can be such a mentally. Physically and socially cruel torturous journey. Which has a huge impact especially if isolated from others .
I know this is a tough time for you and your wife. I noticed my son wearing your T’shirt Axe Als and I just teared up!!! He is a LA Fire Fighter who never speaks about how his father’s struggle with ALS and died soon after he graduated from High School. You’ve inspired him while staying strong. God Bless you and your family!
My dad has been diagnosed. He was my big fabulous dad. He weighs 154 lbs now. I don't get to see him. I'm scared. You are a gentle soul. Bless your heart. ❤️
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They should give NurOwn to every ALS patient willing to sign all legal waivers and who wants it.
This dude was a BEAST at cal.... tremendously gifted athlete
Please do a follow-up story on Eric. He was able to get access to the NurOwn trial and it helped him just like that Navy pilot Matt Bellina. Eric stabilized when in the Phase 3 trial but then he couldnt get any more and he declined again. Just recently, he got 3 more doses via a Compassionate Use program and he stabilized once again, and even improved in other areas. Eric is still walking, talking and now playing with his 9 month old daugher, Peyton. He & several others who got access to NurOwn are living today because of NurOwn. The FDA still continues to believe it needs more clinical trials, saying that evidence of it working in "some" is not "enough." We believe Eric is Living Proof that NurOwn works.
segundo auguns estudiosos a nuoron e deu certo sim
mas tem que ser usado as células troco mas a ganância do homem está deixando o próximo morre sofre
^^^ This should be the featured comment. People with terminal disease should be given every access to anything that might help them, whether it is in a clinical trial stage or not.
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I agree.@@deirdrekiely6187
I would say my goodbyes and take my own life.i would not put my family thru this.
My mother was diagnosed with ALS about 2yrs ago. Watching her suffer is the hardest part. Through each stage everything gets harder and harder and it hurts k owing that theres nothing you can do but watching them die slowly. 💔
Enjoy the time you have together !!
Look up jason becker.. anyone that needs hope , Jason was one of the best guitarists in the world and was diagnosed with als in like 1990... hes still alive!! And composing music ..
Keep fighting Eric and Amanda. Come on ! You both inspire! 👍🏾💫💕💎
Any updates on this? This is great news.
💖From the bottom of my heart, a big thank you to you who took on this important struggle, despite your difficult situation. ALS is a hidden nightmare that no one wants to face. Despite this, few are fighting for a cure. Happiness and love to you, ALS-Super Heroes💖.
Seen him on the Ellen show today . Praying for you. 🙏🙏🙏
Love 💘 how your wife is by your side .
Literally cried
God bless you i'll pray for you and your family!
It really feels like no one gives a crap! Thanks for fighting for those who feel there voice isn't herd!
What a winner that doctor.
Approve NurOwn.
GOD BLESS YOU BOTH AND FAMILY.. BEYOND DIFFICULT
My 🙏 are with you and your family
Praise God for these advances in ALS.they need to move quickly I lost my father in 2005 I miss him so much
Keep fighting. America has to get this done and now. It hit my family, again, this summer.
Again? Get a Lyme expert for an evaluation. Having more than 1 ALS patient in a family is unheard of.
@@lucyterrier7905 familial ALS is the only way
@@lucyterrier7905 It's not unheard of if you carry the gene.
What a joke. He is blessed. With what? I think this remark is insulting.
Stay safe and strong 🙏 and anything u take is better than what u have so I will pray lots from NZ for you 🌼💛🌼
My father passed from ALS in May 2015.
I hope they find a cure soon. I know they're getting closer.
I just wish they'd found a cure long ago.
Hi Eric,
Like you, my husband too has diagnosed with ALS. I am wondering can our government or FDA makes Nurown into compassionate drug or investigational drug for now, since it has passed the first clinical trial or studies, while the FDA can approve the NurOwn later, because the ALS patients do not have the time to wait in their lives. They will use the compassionate drug or investigational drug at their own risks. However, if there is no medical treatments, ALS patients will die within a few years. How many ALS patients have to die in order for us, as the world/society to act fast. Take care. Thanks.
Exactly Nina! What do they have to lose?!?
It’s scary to even read about it. I need the drug and so many like me do for their loved ones.
Thoughts and prayers go out to Eric and Stevens' Nation.
Me gustaría conocer a esa familia en verdad tenemos tanto en común
no no..we have to be more concerned about LGBTQ+ people..how many bathrooms we need..and what about the Dads that may get pregnant..and birthing people that want to kill their babies!! ..i lost my wife of 30 years to ALS in 2014..not a word in congress or main steam media about this or other diseases!
I was just diagnosed yesterday. I’m scared.
Your in are hearts. Ill hope for yu both.
Where do I sign? I'd be more than happy to join your fight, because at the end of the day you never know when it could become your fight!
God gonna make a way for y'all Steve's. Cause u not selfish and u care about others and not just urself. Be bless and remember the most important thing about a race it's not starting but finishing. Peace bruh
Why is this taking so long to be approved... 😡
Cuz the FDA system is all messed up
Please look into the Deanna Protocol. It could be very helpful.
People should be able to make their own decisions regarding treatment and if he wants to try the meds being tested he should be able to.
Go for it ,I can't believe the length of time that is taken for the drugs to become available.As you say ALS should be in the same category as cancer medicines etc. This is an injustice to the people who fighting this terminal disease with all they have.
OMG! Where can I go to sign a petition for this? I can't believe Eric is excluded from an important drug like this. It's not the first time I've heard of this type of "drug manipulation". They know this drug will save him! I would write a letter to the president. He has pulled strings before...
Were all dying... in 5 years if you come back to this video and go through these comments, alot of the people in the comments will be dead... we never know when our time is, every day is a blessing, but alot of us never realize that til its too late, and most never get the chance period... i can't imagine being told i had a disease like this, although ive tried to put myself in someones shoes that has... its not a good feeling too even pretend to feel
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Eric is truly blessed by God. Keep up the fight against ALS.
Jesus Christ our lord the saviour was very clear about this. As from book of Jobs: "He stoically accepts what happens as God's will. It is God who gives and, therefore, God can take away." So, we have to leave to god's hands and do good in this life.
@@AK-tx1vg ignorance is bliss
@@AK-tx1vg Not everyone believes in God, you m*o*r*o*n.
Blessed?!?!? Blessed to be given a death sentence and taken away from his family at such a young age? And he and his family are "blessed" to watch him decline for 5 years. You're mentally ill.
For God’s sake. Everyone call your congress people!!! Let’s not make them fight this alone. They need us.
Call. Call. Call.
Letters. Letters. Letters.
These two need us.
There’s something for him.
Like wise come on people let's all step up and lobby parliament for more priority support to be given to the MNDA so that more can be done towards positive outcome for families affected and those who are slowly dying from such a cruel merciless disease.
I just got news that one of my family friends has ALS. I can't even process this.. and don't have the words.
i am one of the chosen I suppose. Each day i wake with the knowledge that my risk for MND or what you call ALS is extremely high. So the fight you fight is for me. In my family i have lost 5 people to ALS in the past 20 years and i have to say that is a lot because i have a extremely small family. In genetic testing which i chose to go through they found i have a Malformation of the SOD1 gene which like my other family members makes me predisposed to the disease. So this sits quietly on a shelf and when you get that twitch, cramp or just feel a little weak or tired you wonder. is it? Please AXE ALS for you and me. thank you. Dont let go of your fight. You are in my prayers.
Hey how r u doing ? Are u getting muscle twitching ?
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@@peacemaker710jakie to zioła?
Is there anything I can sign to help get the ALS
Another heartbreaking story from Eric and Amanda. I click into those stories on you tube or whatever, but before the story opens, I've got a hunch that this has something to do with sport or competitiveness. I've got the disease for 43 years and I have watched famous people waste away. I could produce a list as long as my arm of victims of all sports who have contacted this disease and passed on. But it's not just the person who contacts the disease that is suffering. The family goes through hell as well. The video proves that. It's like a ghost that invades our body and bit a bit takes from us every movement. Until such time that the WHO gets behind research, the same way as it got behind the coronavirus, then there is no hope for us. The virus is not a terminal disease. MND is. "It's an underfunded disease, not an incurable disease.". Keep well Eric & Amanda.
Government keep dishing out billions for questionable cases instead of helping to cure devastating diseases
what a sad story. Why doesn't someone speak out against too much competitive sport and over exercise. Even the army forces people over the limit. I'm the longest living survivor of MND in the world at the moment. Diagnosed in 1977. 47 years ago. They tell me now that I've got the slow type. It would have been great if I had known this at the start. I went through hell and back. When I could not eat properly and everything I touched fell to the ground. I am grateful for my remaining abilities. And I credit acceptance as the key to my survival. I wish Eric & Amanda all the best. Have respect for your remaining abilities. Andy.
How is he holding up?
How is now in september 2022
A beautiful couple. I hope Eric is still kicking ass
He is they welcomed a baby girl and he was able to get neurone and responded well I heard
Here's hoping she stay supporting him as time goes on
Isn't there a connection between (chronic) strenuous exercise and ALS? Perhaps anything that overheats the body/brain for long periods can kickstart ALS?
Not quite because cases of ALS would be infinitely higher if so but their is a connection between concussions, brain trauma and ALS.
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💙💙💙🙏🏾
Why no access to care? Is it because there really isn't a know protocol for this? And why is there no protocol?
Please contact me , my sister passed away from ALS last April My husband passed away about 6 weeks before her. my children and I cared my husband that had a rare neurological disease that didn’t have funding to study anything about it. I was grateful for being able to keep my husband home and that was only because of God. I was given minimal help and any treatment that could potentially work we could no longer afford.We exhausted all financial resources. He lived for 19 years,which was a blessing! Longer than neurologists thought. But I feel so strongly to fight for other people who suffer with diseases and their families. Please let me know how I can get involved with Washington in helping this fight. I now have so much time , I didn’t go back to work and have been praying to the Lord what’s next? My name is Diane . 🙏
Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments.
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How had this horrific disease gonna 80 years with such little progress in the way of treatment or cures
Because it’s better to spend money propagating questionable causes around the world . Billions of dollars….instead of helping people
@@andreiotraskin475 Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments.
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Is Eric getting NurOwn? Gotta get it approved.
Eric received Nurown in their Phase 3 clinical trial in 2020 and it worked for him. He will now receive another round of it in 2021 as a part of their Expanded Access program. The drug is still not FDA approved unfortunately.
@@archdogg879 THIS IS SO GOOD TO HEAR EVEN IF THIS IS A RARE DISEASE IT MIGHT NOT BE A DEATH SENTENCE SOON!! LETS HOPE
Release the drug immediately right now.
What drug?
@@marshaboody9069 the one that shows potential to save lives that were thought to be sentenced to death. It was mentioned in the video
FDA APROVE THE TREATMENT RIGHT NOW!!!!!!! IMMEDIATELY THAT IS AN ORDER.
Please if fda has the medicine please im form us my brother is suffering from als
@@syedaaqsafasu3702 my dad is going through the final times and we need it now too😭
How did u know this please tell me i need the help 🙏
How is he now?
Rip
I just watched a video of a Canadian man who is taking part in the clinical trials yet their healthcare system sucks according to our government here in the US. The trial meds are helping that man and it is so sad that this poor young man is wasting away for nothing.
I'm telling you that Europe and Canada are leading the way for treatment against ALS. If I got diagnosed I would seek medical attention in either Europe or maybe even Canada.
I just lost my wife from als in December 11 2022 and i couldnt believe we could not get any hope for a treatment of any this is so sad she didnt want to die yet from this ugly disease
At least you got to have a wife
Are you suffering from ALS AND MS, I have the Herb medication that will cure you completely.Visit my page for Order and Inquiry.
We'll be closing 2022 soon and still no access to Nurown for these brave brave patients who wither away by the day. This gotta be one of the most disgusting and unethical thing I've seen. Money always wins.
Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments.
Visit @DrChala1 on TH-cam channel and get this done ..
My mother die with ALS before 9yr ago.... Its painful you see your lovones dying infornt of you. And you cant do anything...
They dont want to approve this drug because it didn't bring expected effect. They were hoping it's going to be breakthrough for ALS - but studies show it didn't help much. There are other drugs on shelfs, and those need to be approved. This video is not updated.
Also add cbd oil full spectrum
What are they waiting for!???? These people need this medication right now!
The FDA IS UNDER RULING BY THE PRESIDENT OF THE UNITED STATES
What ever happened to all for one and one for all? I think it is PURE GREED! No one should suffer this We need to make drastic Changes no matter the cost!
Is Eric still with us?
I don’t think we need a law that prohibits placebos. Placebos still have an important role in determining if a medication or treatments actually makes a difference. Of course no one wants to take a placebo. Then again, perhaps not. Perhaps there are people who would be willing to serve as a control group. So perhaps that, allow anyone with a terminal illness to try something, but if someone is willing to take a placebo, or ideally, blindly possibly taking a placebo, they shouldn’t be prohibited by a law that says you must be able to take a study med. tough situation because you want to give people hope, but you also don’t want to approve a new med everyone thinks is going to be amazing, only to realize it doesn’t really work.
Get rid of that infection permanently with our Blend of natural roots & herb's to permanently cure all ailments & rebalance the immune system. Our Aim: powering permanent solutions to all ailments.
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Its BMAAs found in seafood and drinking water scientists are currently working on a form of rapid test that would allow us to test water supplies for this neuro toxin.
If there is any chance, GIVE TO Them
And when we FINALLY get access, then people cant afford it. Healthcare is a human right, anyone arguing that is lost.
Release nuron now!
you know very well the answer to this, THESE PHARMACEUTICALS and POLITICIANS are caching in with this drug.. more demand - lesser supply ---> increase price tag & profit..
True and it’s absolutely BULLSHIT!
What have these neurologists done till date.shame for them.
Nothing they are completely useless. Go to Europe they are leading the world in ALS treatment
Shame? Get real.
Sorry to say this but nothing will be done, my husband has adult myotonic dystrophy and we've exhausted all Avenues and on top of this we were using limited services frm MDA, then a few yrs ago received a letter frm them telling us they were cutting further services....where is all that money going???? I'll tell u, into making other people extremely rich on the backs of the sick....
Money going overseas to propagate globalists agendas
God come on
Approve this drug please save lives !!!!!!!
Common we all can do this....
let put it on global level
All thanks to Dr maduka who brought me back to life from ALS that I have been suffering for the past four years back please help me to appreciate him
Talk to VICE correspondent Hamilton Morris who has experience going to Chinese pharmaceutical trade show (for another medicine) and try to get the active ingredient of Neurown once you know what that is. Don’t wait for your government. Write to avaaz.org to gain even more awareness. Wish I could do more. Take care
The idea that you would try to go around Brainstorm is pretty messed up. They have spent years and millions of dollars creating this new treatment and have been tirelessly trying to get Neurown approved. If you essentially steal the product, then you end up destroying the Bio-medical industry and future innovations...who are you going to steal from next if there are no companies left to create new medicines and treatments?
And also, the 'active ingredient' is the patient's own stem cells. They are extracted, then processed, and then reinjected into patient's spine.
@@FM-nm4ng hi, my siz just died of this horrible disease als.fighting for four years ,after the doctor diagnosed. So there is no known cure .we pray,that God inspires his pple to reveal the medicine for this disease.
Give the drug why wait it can’t hurt!! WTF the drug works. Give it!!
Just let them have the drug you heartless bureaucrats!!!
✨💫🌟🌹
Just because there are trial medications doesn't mean you want them.
proof there is NO GOD!!! NO GOOD GOD WOULD ALLOW THIS TO HAPPEN
Such a very bad story😢
Is this drug not available under Trump’s “Right to Try” Bill?
That interviewers accent is horrific
you can be sure nothing wil happen if you vote rep
Can you try chocolate pudding? It definitely does something to you. I think vitamin a deficiency caused this. Best way to treat it is first eat chocolate pudding, then sweet carrots. These are direct injections for a. Definitely returns you back to your normal self.
Stop talking out the side of your neck. Disrespectful.
WTH
He chose not to share his symptoms until after marriage. That is straight up selfish.
Selfish? You are straight up stupid .
Wow. What on earth made you feel the need to say that? I don’t even have words for you. He did not know what was wrong. They discovered that TOGETHER. It was selfLESS of him. Maybe you have never had a selfless person in your life. I don’t know. What I DO know is that you could have just scrolled on by without putting your two cents in. I’d bet anything that she would have married him no matter what. He wanted her to have a beautiful time. Are you incapable of recognizing love? They don’t need your opinion. They are madly in love. Didn’t your mom ever teach you to not say anything if you didn’t have something nice to say? Your comment says nothing about him and everything about YOU.
What a horrible and misinformed thing to say!
So sad there's no cure for this ALS disease is 2022 still no cure