hiii everyone! I wanted to share the story on how I got diagnosed with crohn's and all the symptoms/warning signs I had leading up to my diagnosis :) ♡WHERE TO FOLLOW ME♡ Instagram: @isabela_sala Tik Tok: @be11a99
So glad you're doing better and fought doctors to get diagnosed. It took my sister dying for me to get diagnosed. Her doctor thought she was lying about her pain and then her obgyn decided to do exploratory surgery to make sure it wasn't endometriosis (it wasn't). 10 days later, a blood clot traveled to her lungs and she passed away. It wasn't til after her death that they finally figured it out (Crohn's runs in our family). Fast forward 3 years and I started having health issues. I lost 60 pounds in a few months and was told I looked like a bobblehead. I got scared to eat because I would get sick then be up all night in terrible pain and with my job at the time, I couldn't miss much work. Thankfully my doctor knew about my sister and jumped into gear to get me help but if he didn't, I don't know if I would have ever gotten diagnosed. That was 14 years ago and I promise you, it gets better as you learn. Foods that first triggered a flare up now don't and I'm uber careful with what I eat to keep the mini ninjas that live in my intestines calm. My family and friends have been great but my husband has been amazing through it as well (he was a medic in the Navy so that helps sometimes too). Any high stress situation, he tries to take the stress from me so I don't get sick. I'm happy to see you have such a grasp on it because it took me awhile to and still learning.
I wasn't anorexic but I lost 25 lbs in 3 weeks when I had my 1st serious flare up and my family thought it was stress due to my parent's divorce, years later after dealing with disability fatigue while being a mother of 3, I am finally getting the correct diagnosis
Hi, I’m glad I came upon this video. I’ve been doing a bunch of research in regards to my pain. Let me state that I’ve have had issues with Canker Sores and strep throat growing up as well. (I currently have 3 Canker Sores as I’m typing this now lol) I’m 22 years old and I’ve been dealing with belly button pain for YEARS. Sometimes if I were to move, I would get tightness dead center of my belly button with is HORRIBLE pain…. I can’t breath, can’t move. Sometimes it would make me laugh cause it’s ridiculous how often this happens. Of course it’s hard to laugh because the pain clearly gets worse. It’s sudden and severe pain that I have to wait out 30secs to 1 minute for it to go away. Now mind you I’ve had abdominal surgery at a very young age at the age of 10 to have an ovary removed. So my doctor assumed it may be abdominal adhesion and didn’t really address what to do next. Fast forward a few weeks later I started having suspected gallbladder pain. I had an ultrasound done for this and no gallstones were found so they are referring me to a GI doctor because there’s obviously something deeper in there going on. All of a sudden to “gallbladder pain” has gone away and now I have general discomfort and radiating, intermittent pain in the are right of my lower belly button followed by the current belly button pain. It’s sad to say, but I am honestly hoping it’s Crohns. I was tested for it when I was 4 because I was showing symptoms of it at the time as well, but of course since I was so young nothing was actually found. I’m always tried and genuinely do not feel good and the discomfort is getting worse by the day. ☹️ Hoping I can find a diagnosis soon! Thank you for this video!
Amazing video, am currently in the middle of getting ready to have a colonoscopy in a week, plus multiple tests as the doctors think I have crohns. This video brings me hope.
Wow I finish watching your video..like you I have all the symptoms except of tummy pain I have burning sensation on my lower right tummy .I'm still watching for the result of my MRI but in my blood confirm that I have already Crohn's desease
I had that stuff that makes you feel like you're going to pee yourself and it was such a strange feeling! I'm pleased they warned me as I would have panicked! I had it last year and they found blood clots on both lungs. I'm watching this video because I have a suspicion that I may have Crohns. I've had issues since I was aprox 13 and did have some investigations when I was aprox 18. I think I was checked for endimetriosis (can't spell) and celiac etc but when they suggested a colonoscopy I was too anxious so didn't go back and just assumed I had IBS. I'm now 39 and recently I lost 5 stone due to nausea etc and have been trying to force myself to eat but I can't cope with the pain and cramps so struggling to eat again after managing to stabilize my weight (I'm not underweight). The doctors usually don't take me seriously as they blamed past health issues on anxiety. It turned out my heart was stopping (needed emergency pacemaker) and then the clots were found on both lungs. I've got a second phone call with my Doctor on Wednesday about my stomach and guy issues but I don't know that they will believe it needs looking into because they just blame the other medications I'm on for the symptoms. I guess like you said I need to advocate for myself and pursue the help and possible diagnosis!! Im terrified of docs and hospitals also. Thank you for sharing your story and I hope you are doing well xx
Ugh that is awful! It always shocks me to hear how much agony people have to go through before they finally get a IBD diagnosis. So sorry you have had to go through all of that :( It will always be a battle, even once you have a diagnosis but like you said the most important thing is to advocate and fight for what you feel. It is super easy for our symptoms to be waved off as just anxiety or a side effect of something else but most of the time it's not. We shouldn't have to become deathly sick before doctors take our symptoms seriously. Im am sending all the love your way and hope you get your answer and some relief soon!
@@bellasala Thank you, I am gradually learning to advocate for myself but it's difficult due to Autism and ADHD to even know or explain how I feel at the best of time! Xx
i’m not going to the gi until april but i’m having a lot of trouble, some days are better then others but i’m like it makes me feel like i’m making it up. crohns is something the doctor mentioned me having and i’m really nervous
it is so easy to feel like what we are feeling is all in our head but if you know something isn't right keep pushing for answers. I am glad your doctor is taking all precautions and checking out the possibility of it being Crohns. Crohns was never something mentioned to me in the months of me being sick prior to my diagnosis so I never really had time to be scared lol. It is scary and it is hard but you can get through it, whether it ends up being Crohns or not! Best of luck and I hope you get your answer soon ❤
@@bellasala thank you:) i have a lot of these symptoms but i don’t know if i’ve technically had a “flare up” it’s really really hard so i hope they can figure out what it is. i’m wishing you the best too❤️
I’m going through the same thing right now. I feel like this is in my head. I’ve lost 15 pounds in a mouth, everyday is constant nausea, vomiting, diarrhea, fatigue, boils etc
Pretty sure I have chrons , deal with nausea and constipation , ended up with infection in my small bowel & large they took piece out plus my appendix and they think it’s chrons but I have to do a colonoscopy but I’m so scared because I heard the prep was AWFUL & I already deal with nausea every day
Yeh I think I have it too and was put off colonoscopy because of the prep when I was younger (aprox 18) but I'm 39 now and it's just getting worse. I feel like I'm totally out of energy to fight the system as they usually blame everything on anxiety or medication side effects xx
Thats true. I went to the doctor for a little belly aches, and I ended with a colonscopy, if I would have been woman there would have been so many option to just say is your this and that . I had high infection indicator in my blood
So glad you're doing better and fought doctors to get diagnosed. It took my sister dying for me to get diagnosed. Her doctor thought she was lying about her pain and then her obgyn decided to do exploratory surgery to make sure it wasn't endometriosis (it wasn't). 10 days later, a blood clot traveled to her lungs and she passed away. It wasn't til after her death that they finally figured it out (Crohn's runs in our family). Fast forward 3 years and I started having health issues. I lost 60 pounds in a few months and was told I looked like a bobblehead. I got scared to eat because I would get sick then be up all night in terrible pain and with my job at the time, I couldn't miss much work. Thankfully my doctor knew about my sister and jumped into gear to get me help but if he didn't, I don't know if I would have ever gotten diagnosed. That was 14 years ago and I promise you, it gets better as you learn. Foods that first triggered a flare up now don't and I'm uber careful with what I eat to keep the mini ninjas that live in my intestines calm. My family and friends have been great but my husband has been amazing through it as well (he was a medic in the Navy so that helps sometimes too). Any high stress situation, he tries to take the stress from me so I don't get sick. I'm happy to see you have such a grasp on it because it took me awhile to and still learning.
I wasn't anorexic but I lost 25 lbs in 3 weeks when I had my 1st serious flare up and my family thought it was stress due to my parent's divorce, years later after dealing with disability fatigue while being a mother of 3, I am finally getting the correct diagnosis
Well done for getting through all that Bella! I spent some months in a hospital in Paris and the nurses there... it was like waking up in the army...!
Hi, I’m glad I came upon this video. I’ve been doing a bunch of research in regards to my pain. Let me state that I’ve have had issues with Canker Sores and strep throat growing up as well. (I currently have 3 Canker Sores as I’m typing this now lol) I’m 22 years old and I’ve been dealing with belly button pain for YEARS. Sometimes if I were to move, I would get tightness dead center of my belly button with is HORRIBLE pain…. I can’t breath, can’t move. Sometimes it would make me laugh cause it’s ridiculous how often this happens. Of course it’s hard to laugh because the pain clearly gets worse. It’s sudden and severe pain that I have to wait out 30secs to 1 minute for it to go away. Now mind you I’ve had abdominal surgery at a very young age at the age of 10 to have an ovary removed. So my doctor assumed it may be abdominal adhesion and didn’t really address what to do next. Fast forward a few weeks later I started having suspected gallbladder pain. I had an ultrasound done for this and no gallstones were found so they are referring me to a GI doctor because there’s obviously something deeper in there going on. All of a sudden to “gallbladder pain” has gone away and now I have general discomfort and radiating, intermittent pain in the are right of my lower belly button followed by the current belly button pain. It’s sad to say, but I am honestly hoping it’s Crohns. I was tested for it when I was 4 because I was showing symptoms of it at the time as well, but of course since I was so young nothing was actually found. I’m always tried and genuinely do not feel good and the discomfort is getting worse by the day. ☹️ Hoping I can find a diagnosis soon! Thank you for this video!
Amazing video, am currently in the middle of getting ready to have a colonoscopy in a week, plus multiple tests as the doctors think I have crohns. This video brings me hope.
Hi Bella! I just got diagnosed and would love it if you shared specifically what diet changes you made to stay in remission for so long?
Watching this on June 14 because I’m nervous for my colonoscopy
same thing with me as the start with stomach and strep!!!!😢 i just got my second colonoscopy thank u for this video its helped me alot
I have the opposite problem. Im diagnosed with crohn , but i never had problem exept last week and so i dont know if its really true
Wow I finish watching your video..like you I have all the symptoms except of tummy pain I have burning sensation on my lower right tummy .I'm still watching for the result of my MRI but in my blood confirm that I have already Crohn's desease
I had that stuff that makes you feel like you're going to pee yourself and it was such a strange feeling! I'm pleased they warned me as I would have panicked! I had it last year and they found blood clots on both lungs. I'm watching this video because I have a suspicion that I may have Crohns. I've had issues since I was aprox 13 and did have some investigations when I was aprox 18. I think I was checked for endimetriosis (can't spell) and celiac etc but when they suggested a colonoscopy I was too anxious so didn't go back and just assumed I had IBS. I'm now 39 and recently I lost 5 stone due to nausea etc and have been trying to force myself to eat but I can't cope with the pain and cramps so struggling to eat again after managing to stabilize my weight (I'm not underweight). The doctors usually don't take me seriously as they blamed past health issues on anxiety. It turned out my heart was stopping (needed emergency pacemaker) and then the clots were found on both lungs. I've got a second phone call with my Doctor on Wednesday about my stomach and guy issues but I don't know that they will believe it needs looking into because they just blame the other medications I'm on for the symptoms. I guess like you said I need to advocate for myself and pursue the help and possible diagnosis!! Im terrified of docs and hospitals also. Thank you for sharing your story and I hope you are doing well xx
Ugh that is awful! It always shocks me to hear how much agony people have to go through before they finally get a IBD diagnosis. So sorry you have had to go through all of that :( It will always be a battle, even once you have a diagnosis but like you said the most important thing is to advocate and fight for what you feel. It is super easy for our symptoms to be waved off as just anxiety or a side effect of something else but most of the time it's not. We shouldn't have to become deathly sick before doctors take our symptoms seriously. Im am sending all the love your way and hope you get your answer and some relief soon!
@@bellasala Thank you, I am gradually learning to advocate for myself but it's difficult due to Autism and ADHD to even know or explain how I feel at the best of time! Xx
i’m not going to the gi until april but i’m having a lot of trouble, some days are better then others but i’m like it makes me feel like i’m making it up. crohns is something the doctor mentioned me having and i’m really nervous
it is so easy to feel like what we are feeling is all in our head but if you know something isn't right keep pushing for answers. I am glad your doctor is taking all precautions and checking out the possibility of it being Crohns. Crohns was never something mentioned to me in the months of me being sick prior to my diagnosis so I never really had time to be scared lol. It is scary and it is hard but you can get through it, whether it ends up being Crohns or not! Best of luck and I hope you get your answer soon ❤
@@bellasala thank you:) i have a lot of these symptoms but i don’t know if i’ve technically had a “flare up” it’s really really hard so i hope they can figure out what it is. i’m wishing you the best too❤️
I’m going through the same thing right now. I feel like this is in my head. I’ve lost 15 pounds in a mouth, everyday is constant nausea, vomiting, diarrhea, fatigue, boils etc
Pretty sure I have chrons , deal with nausea and constipation , ended up with infection in my small bowel & large they took piece out plus my appendix and they think it’s chrons but I have to do a colonoscopy but I’m so scared because I heard the prep was AWFUL & I already deal with nausea every day
Prep is ok not awful..did it a week ago 😉
Yeh I think I have it too and was put off colonoscopy because of the prep when I was younger (aprox 18) but I'm 39 now and it's just getting worse. I feel like I'm totally out of energy to fight the system as they usually blame everything on anxiety or medication side effects xx
Why do they always tell sick females that it's in their heads? It's so misogynistic !!
Thats true. I went to the doctor for a little belly aches, and I ended with a colonscopy, if I would have been woman there would have been so many option to just say is your this and that . I had high infection indicator in my blood