My Face: Waardenburg Syndrome
ฝัง
- เผยแพร่เมื่อ 31 ม.ค. 2015
- Hi everyone! Thank you for visiting my video - I no longer do work like this but wanted to let you know I now stream on Twitch and make TH-cam videos about gaming!
You can find me live on Twitch here: / thestefsanjati
And you can find my new TH-cam videos here: / @stephaniepeloza5450
I no longer produce content about beauty or fashion, or produce educational content around my own transness or traumas, as I have learned I need boundaries for my own well-being. However, my new work is dedicated to creating safe, inclusive, cozy spaces for folks of all backgrounds with a zero tolerance policy towards bigotry.
Please join me in my new work if you like gaming, stories, game development, game history, sci-fi or fantasy, or you just want to hang out in a cozy place with cozy folks. It would mean the world to me.
Thank you!
------------ ORIGINAL DESCRIPTION BELOW -----------
I've been getting so many questions about my face, I felt it was time to give you some answers!
Watch part two here!: • My Face: Waardenburg S...
THIS VIDEO CAME OUT IN 2015. I AM A WOMAN AND STREAM ON TWITCH NOW LMAO:
/ thestefsanjati
More information on Waardenburg Syndrome:
ghr.nlm.nih.gov/condition/waar...
ghr.nlm.nih.gov/condition/waar...
For business inquiries, email : ssanjatimanagement@gmail.com
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MUSIC:
Mismer by SineRider
(www.newgrounds.com/audio/liste...) - บันเทิง
![Why My Eyes Are So Far Apart | #IWillNotBeDeleted [CC]](http://i.ytimg.com/vi/Cz58T-yuFtU/mqdefault.jpg)
I just want to clarify that at the time of uploading this, I still misunderstood who I was and thought I was a man - which is WHY I have stubble and a deepish voice here. To be honest, I don't think those things are exclusively male - women can have stubble and a deep voice just like men can have smooth skin and a high voice - but I am seeing a lot of people misunderstand my appearance BEYOND my syndrome here. AGAIN TO CLARIFY - I AM A TRANS WOMAN BUT AT THE TIME OF RECORDING THIS VIDEO, I STILL THOUGHT I WAS A MAN. Thank you.
+Stef Sanjati YOU ARE BEAUTIFUL!!!!!!!!! I love how u don't care what others think about you! so inspirational!! fwaaaaaaaaa love you !!! ABSOLUTLEY STUNNING
+Stef Sanjati Not only are you quite beautiful, you seem like a genuinely lovely person! I kinda want to give you a big hug right now :)
You don't owe anyone any explanation for anything. You just do you, boo. :)
+Stef Sanjati MY GOODNESS you are absolutely stunning!!! Thank you for sharing, I loved learning about Waardenburg Syndrome, I have never heard about it before- BRAVO.
You actually do look like a majestic elven queen! In a good way
So, You have Blue glowing eyes,hair that grows real fast, A cool white patch of hair in the front and a great personality and people make fun of this????? I don't understand humans! ❤
I know right, this is an amazingly rare and beautiful individual right here
sham wow It seriously boggles my mind!!. People pay a lot of money on contacts,hair extensions,hair dye etc. Just 2 have what SHE HAS naturally! Plus,shes has a great outlook on life,especially in the other video, That,u can't buy in any store!
everyone has opinions, just let them think what they want, its so unnecessary to even make your first comment
So, ur saying everyone has a right to an opinion and to think what they want(wich is true)Then you finish off the sentence by saying it was unnecessary for my comment tho?? Ok.👍😒
hmm... Is my comment unnecessary too, because it's basically along the same lines as Melissa's... Your comment on opinions doesn't really even stem from anything, it's just...there...
you know that awkward moment when one of the most beautiful people you've ever seen tells you that they used to be extremely self conscious about the way they look...?
Sechari That's everyone. Literally every person. When you feel self conscious about yourself, always know that the most wonderful and beautiful people you know of feel that way sometimes too. You're never alone in how you feel, even if it seems impossible. Our feelings sometimes have a way of isolating us, which is unfortunate because they're the biggest thing we all have in common.
This is not me being rude at all but you would so suit a fairy tale main character or something
My immediate reaction was, "What a beautiful woman!" By the end of the video I was thinking, "What an incredibly, astonishingly beautiful woman!" And I love your nose. I am so sorry about the deafness: that must be a challenge. How clearly you express yourself. You are a gifted public speaker.
It's a man
"It" is not a thing, she's a person, and she is a woman. Not all women look female at birth or youth.
Yeah ummmm not a …..never mind….🫤
Deafness isn't inherently bad or something to pity, but a lack of accomodations and ignorance makes it hard for sure.
You remind me of an amazingly beautiful avatar c:
+Laura Laas yes!! so cool
Yes! I agree!
May I say that this person is stunningly beautiful?
Not in the "Oh honey, you look pretty despite your disorder, it just makes you soooo special" kind of way, it's more like "I'm so fascinated, I can't take my eyes off you".
It's not even about the outward appearance, it's about the gentle, honest and lively personality. The physical beauty is just a bonus :D
I totally agree!! I find these people to be absolutely stunning
Yes! Absolutely agree!
+DieGinny I couldn't agree more.
I came to the comments to say exactly this but you did all the words already. I thoroughly agree, and find Stef entrancing. Handsome man, beautiful woman, gorgeous human.
I also came down here to say the same thing. Such a captivating appearance and I am super jealous :)
When I first saw you it didn't register that you were "different." I still don't. I just thought it was normal variation we all have. Your eyes are beautiful, really.
I met someone with Waardenburg syndrome when I was at college, and I'm really chocked with the similar appearance. Your beauty is unique, and you are an amazing person. Good luck in your channel! ❤️
"I'm part of the X-Men that's all u need to know"I died😂😂😂😂
Caylin Trahan I was crying on the floor that was so so soooooo funny
Tyler Joseph's Biggest fan yasssss😂👌
Caylin Trahan she have the blue girl's power, lololol
Adlan Kacak I think that would fit well actually😂
I've never seen any of your other videos and I don't know how I got here, but I am so impressed by you. You seem to be such a genuine and incredibly intelligent individual.
Yeah same !
Same!
Camila Styles same!
Same
Also same.
I was in a Sign Language Interpreter training program and my teacher is one of 2 hearing children. The other 6 had Waardenberg’s Syndrome and all those affected by Waardenberg’s were deaf. Of the children in her family she is the only interpreter. So dinners usually get cold because someone is speaking or signing.
Well, I'm glad YT recommended your video, even if it's a bit late. Your advice about embracing your personal uniqueness, especially if you stand out, touched me. I would've loved hearing that as a child or teen, but I'm going to take it to heart now. I hope your journey over the past 5 years has brought you much, especially joy.
Mahalo💜
Your eyes are fucking beautiful
+Jordyn Hason I agree - you are beautiful - and you are loved. Thank you for this video. XOXOXOXO!
"I'm part of the X-Men that's all you needed to know" I love you
I was always appalled by the blatant sexism in the group's name. X-Men? *Men*? The point is, our group will be forward-thinking. Gender neutral. From now on, we'll be known as... X-Force.
Thanks for the beauty explanation. Your ability to put words together, describing beauty., a thing so esoteric, and do so with humor and flagrant self acceptance is joy inducing! Looking forward to getting to know you better. 🦋
Crazy thing is that people go to plastic surgeons requesting your facial features. You're beautiful and I hope you know it! Wishing you all the best! Thanks for sharing.
Are you kidding me!? You're gorgeous!!!
Ikr!!
Elven Goddess. Enough said.
+Sephiria Valenten i think you mean gods LOL!!!
Lethal_bacon 24 Nope. I meant Goddess, just as I said. Male or not Stef looks like an Elven Goddess. You can't prove someones option wrong.
steph as for stephen? LOL
+Lethal_bacon 24 stfu you weeb
+Sephiria Valenten God* No one cares about your opinion i just proved your "option" wrong
You have a great character. Thank you for sharing this personal information about yourself. It really shows a good heart how you are willing to open up and share how important it is to love yourself
Im 53. Hetero. White. Libertarian. My thoughts> You are beautiful & you look amazing. Very unique. You're a living anime. Amazing eyes. Thank God for people like you.
Chasers are creepy lol
@@metatron6066 what
Sounds gay to me
"Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.” - Tyrion Lannister.
Paul Pfeiffer I love you for quoting Tyrion! ( technically GRRM) but this quote is everything.
yes yes, embrace it!
Paul Pfeiffer 😱😭 YES!!!!
am i the only one in love with the eyes?
SAME THOSE EYES ON FLEEK
I am also in love with those eyes i literally showed my husband because i was shocked with those eyes
+Bea Valentine lenses?
No
+Bea Valentine Nope, Love the blue eyes. I heard nothing he said. Just mesmerized by the eye.
You are beautiful and I learnt so much from you about this syndrome, that I knew nothing about! Thank you for educating us. The first video of you I'm watching and you are super gorgeous!
Greetings from Florida. You are beautiful, inside and out. I'm a Mother and I'm so proud of your maturity and self care. Abundant blessings.
I am a neurosurgeon (MD) with two PhD's, one in Physiological Psychology and the other in Biological Anthropology. I applaud the way that you were able to briefly describe your syndrome for those who aren't aware of it, and I am proud that you own who you are. Everyone is unique, and should celebrate their differences as well as their similarities; but remember that we are all ONE SPECIES: Homo sapiens - HUMAN. We should look beyond appearance, and judge individuals by their own merits, not lump them into groups. Congratulations on all that you are. 👍🏼👏🏼
One more comment: You are beautiful!! I can tell that you still carry internal/mental scars from your youth, but you seem to have gotten through them, and are thriving. I wish you the best in all you do. 💓✨💫
+Stephanie Desiderio I am the Pope, and also the President of the Moon.
+Stephanie Desiderio I am Satan, King of the under word. I applaud your desire to boast online. I will enjoy your presence in the after life.
Oh hey, doc! I feel the same but I am a GP. I am impressed with your Ph.D.s!
Stephanie, perfectly said! This is an awesome video by a beautiful person. Knowledge and celebration of the variations in humanity make us all better and stronger, cheers to this lovely lady.
Omg I'm actually in love with your eyes
right!
You know that is objectification, right.
But he's beautiful! Just look at him! Where's the lie?!
+Leilani Iona um shesva "she"
+memekodd You know she wasn't being literal, right?
I don’t know why anyone would say anything negative about your eyes - they’re absolutely stunning. Your face is fascinating so we can be sure that people are just jealous of you.
imagine,,such a beautiful being,,for one to negatively comment on,,,i think such people are just angry at life for no reason..
Thank you for this. I have profound, irreversible single side deafness from a brain tumor. Your description of what it's like was perfect.
So much beauty in this video.
I didn't even notice anything. This is my first video and I immediately thought "I like this person's eyes o.o they have nice eyes."
I didn't see anything wrong either until it was pointed out to me. The one thing I did notice was those gorgeous blue eyes.
yeah i think she looks great! Her eyes are beautiful :)
I'm a boy and I like his eyes is that bad lol
+JETz x King Haha no it's not! her eyes are awesome
+Frozen Mango lol cool
"I'm part of the Xmen and that's all you need to know" haha 😂 omg I looooove you
You’re beautifully and wonderfully made! Thank you for your video!
My first husband was death on his left side and I always walked, sat on his right and now even though he is not with me anymore I still automatically stay on anyone's right. Your eyes are beautiful and so is everything about you.
Just wanted you to know that not being able to hear is called "deaf" honey, not death. Death is what happens after life.
@@hcrawford79 😊 I love the humble and respectful correction of spelling with no shade. ❤ Just wanted to point this out. Many blessings to you
#EachOneTeachOne
@@lindsaycommodore6801 I can't tell if you're being sarcastic or not, but she needed to know the difference!
she looks 100% normal to me
yess
Same!
Normal is boring she is not boring
I knowww😍 her eyes😭
Right!? Omg I didn't even know she had a genetic mutation, she's gorgeous.
Who in their right mind would insult your appearance? Along with being beautiful, your personality is amazing!
I wish I had such bright blue eyes like yours!
+Nephyra Youkai "Who in their right mind would insult your appearance?"
You do know you live in a planet where people believe in stupid shit like gods, right?
Expecting something from the human specie is stupid.
ummmmmm...
ummmmmm...
ikr? the only bad side about this syndrome looks like is the hearing problem, the physique is normal, people have so many different eyes lips nose shape and sizes you can't really tell weather you're strange looking or not .. the only really noticeable thing may be the eyes , but again there is people with eyes very close to each others, which isnt even that uncommon so, if people would tell me I look like an alien ild love it who doesn't love aliens! and he looks gorgeous by the way, who tells him different or pokes fun must be jealous
ikr? the only bad side about this syndrome looks like is the hearing problem, the physique is normal, people have so many different eyes lips nose shape and sizes you can't really tell weather you're strange looking or not .. the only really noticeable thing may be the eyes , but again there is people with eyes very close to each others, which isnt even that uncommon so, if people would tell me I look like an alien ild love it who doesn't love aliens! and he looks gorgeous by the way, who tells him different or pokes fun must be jealous
I think you are beautiful, inside and out. I love the message you are putting out there. I will be playing this for my child who is having confidence issues. Hopefully this will help. Thank you!
I have waardenburg and so does my 2 year old daughter. I hope you know I will be showing her this video when she's older. I wish I had someone like you when I was growing up.
The voice change from this video to the '10 months on estrogen' is just ... Wow.
I knooooow.
true
SluttMonkeys estrogen doesn't change your voice, she just speaks in a higher pitch and tone now :)
Educate yourself dear Estrogen DOES change the voice .....
You popped up in my suggested videos and I honestly never would have thought that there was something genetically "wrong" with you. Everyone of us are made unique, and you're probably one of the most beautiful people I've ever seen.
I agree with you
+NikkisorousRex DITTO. First impress......gorgeous. Didnt even know that there might have been a "problem".
+Sarah Grant Clearly the people that give hate are dumb as shit.
+NikkisorousRex same here. she's so pretty
+NikkisorousRex agree agree agree! ^ ^
Aside from the hearing loss, everything else seems like a bonus! You are absolutely beautiful.
Not the hair growth where body hair is visible. Kids are heavily influenced by their peers and even at preteen stage, talk about leg hair removal..even arm hair. I personally wouldn't care about the brows but it's a personal thing as one gets older. The hearing loss sucks of course so the mum is lucky.
Hearing loss doesn't inherently suck, it can be quite fun actually.
I wish everyone at every school could see this. So many people at school are so insecure when they actually look perfectly fine. 😢
This is the first videos of yours I've watched. Your earned a new viewer.
Same! ! 😁
+Missy Vee Yepp
Same!
+Missy Vee Same here. :3
Same here!
I honestly didn't notice anything strange in your face
+Mortician's Daughter except those amazing eyes
+Mortician's Daughter same here. Just noticed the beautiful eyes.
me neither just thought it was genetics or something...just different and are her eyes naturally that big?
+Mortician's Daughter Beautiful eyes, only thing unusual I noticed was the eyebrows and he explained that
Same. She's actually really pretty. I thought her face was just really round or something I never realized it was a syndrome.
Are you kidding? your eyes are GORGEOUS!!!! I dunno how your video came to be in my youtube feed, but I'm so glad it did! New subscriber going to binge watch to get to know you better!
I genuinely believe Waardenburg syndrome makes beautiful faces. Like so uniquely beautiful. I can’t stop looking at how beautiful your eyes are ❤️
Anyone else jealous the color of her eyes? 😩👌🏻👏🏻
I am- her i think her eyes are beautiful!
omg yessss
jealous of blue eyes?
sorry, no
what's wrong with blue eyes?
They are really beautiful! I want such blue eyes too!
lol. "I'm part of the X-Men, that's all you need to know."
i wiiishhh
Love it
This is the first video of yours I've seen and I think your a kick in the ass!
I love your sense of humor and your openness about your life.
I think your beautiful!
We all are in our own way,God makes no mistakes only one of a kinds,even others with the same Syndrome as you are not you..
Your strong and talented is what I get from this video and will be watching more of your videos for sure 😻❤️
Gosh, your reaction with "alien face" and a click is priceless🤣🤣 💜💚💛
Not sure why this popped up in my feed but I'm so glad it did. You are so beautiful and your spirit is amazing. Thank you so much for sharing and taking the time to explain what Waardenburg syndrome is.
...same here!
+Janet Mickley same here i love this!!!
Exact same situation here :)
Same happened to me! great that you share this it's so great
Same here, you are beautiful!
They should change the name to Super Awesome Badass Syndrome
yasss
+Jsuis14 Otherwise known as I-have-prettier-eyes-than-you Syndrome
+Jsuis14 Alien Syndrome*
The dude is jealous that he has prettier eyes :3
SevereOtaku Namikaze His eyes are too far apart.
Beautiful person whichever way you present yourself. Thank you for educating us. Great heart, great smile. Intelligent, Articulate you have it all. You are an excellent ambassador for humanity. Top job. Cheers from Michael. Australia.
Your positivity is inspiring and love the confidence! Your beautiful inside and out! Stay blessed and never lose that confidence!
Omg you're a Targaryen, that's sweet.
I was drawn to your video by your eyes, they are mesmerizing lol.
KillrCook I watched this for the thumbnail! Thought you were a very pretty girl with STRIKING eyes!!! I'm a staight guy,no curiosity, but you are gorgeous! Good luck with you continuing transformation! And yeah you look like every Tolkien elf should look!!!
Your stunning.
KillrCook holy fuck. same
KillrCook yes! They are!
IKRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR
I think you are a beautiful and poised young person who is making a difference for other young people that need answers and support. Thank you for caring and for sharing. Good fortune!
I kept seeing this video in my recommended and I couldn't figure out what Waardenburg Syndrome was from just the picture. Watching the video with you pointing out all the things I notice them with a 'oh' because I just thought those were gorgeous features of yours. Thank you for making this video for all the young (and possibly older) people looking for people like them, it's needed and you are an angel for doing it!
I can see the galaxy in your eyes
omg same
I love those eyes😍
YES OMG
i like drugs too
i can see it between her eyes.
K stupid joke it actually doesn't look bad xD
Very well done presentation. Done with clarity and compassion. And I do agree with several of the others, your appearance is alluring.
Additionally.....I've just watched your "Good-Bye" video.....you are brilliant! From your description it sounds as if arriving at that brilliance was a hard fought journey, but you did it! And the resulting....YOU....seems to be a rare, precious and amazing person of wit and intellect. Good to see! Best wishes!
Have you ever cosplayed as link? You would nail it!
your eyes are beautiful
you are beautiful
Ikr her eyes are stunning
+Aniyah Stevenson it*
+Pelon Rosales original comment
+Pelon Rosales It is for objects and people aren't objects
You are absolutely gorgeous!!
And just from watching your video I can tell you have a very beautiful soul as well!! I do not have warrdenburg syndrome myself but I think it's great you are making videos to help people who do have it and might be struggling!! Or even if someone doesn't have any genetic reasons to have confidence issues your video speaks to everyone and I really like that about you!! Bc I have always struggled with my self confidence and it's a very hard road to battle!! So I appreciate people like you who take time out of your day to help others😉😊😁🥰
THANK YOU!! I wish you the best☺️
None of the things that you mentioned were the things that stuck out to me. You are absolutely, stunningly gorgeous and this was totally captivating in the thumbnail and when I was watching the video. The best part of this video was discovering that you as a person 100% match your stunning outward appearance. Thank you so much for your honesty and openness!
"You look like an alien"
They probably said that because your beauty is out of this world ❤
I think they say it because of the eyes
KneGurZ Unite! Wth
Sᴘɪᴄʏ SᴜCC lmfao
Bitch no
Is she women or man
she's actually really beautiful
she's actually a dude, and she's actually pretty fucking weird looking. it's funhouse mirror shit going on right there.
Randy Fartbutter shes actually a totally valid trans woman who i honestly think is really pretty and ur backward ass views need to be put through a funhouse mirror to maybe fix them up
Randy Fartbutter ... Why would you care about someone else's gender/sexuality? Have you got some psychological issues in that direction?
*****
you would think he looks beautiful, you look like the business end of a tampon yourself.
Lorna: yeah, sure: man, woman, gay, straight... all the same...
Thank you for sharing your story and educating others. You are beautiful. We all have stories and by sharing our own, you can fund support and empower yourself while empowering others and that’s an awesome thing! Thank you for the education! ❤️
I honestly think your face is really beautiful. Thanks being you and demonstrating how to stay true to yourself despite negative comments
You have really beautiful eyes.
AluminumDragon she had contact lenses on
no she doesn't
intriguing watch this she doesn't, and she even says that in the video.
Yeah, she does, I love the shape of it.
I'd die for my eyes to look like that without contacts, she's lucky in her own way!
YOUR EYES ARE OUT OF THIS WORLD HOLY SHIT THEY'RE BEAUTIFUL.
I know! Incredible, aren't they? Her eyes are amazing 😍
I know right! She's so gorgeous
"She" is a man,
amyruulz SHE is transgender. So please respect that.
your profile photo is amazing
absolutely bonkers to go from your newest video back to this one! the pre-e voice rly gave me whiplash for a second
I think you are a wonderful person. Have only watched five minutes so far (never watched another video of yours before) and...wow... You grew on me quickly from neutral to greeeeeatly like. sending hugs, respect and love
the way you talk is very soothing. i could listen to you talk for hours.
+Nani Pu Same
SAMe
+Nani Pu I was thinking that too, but I didn't know how to word it! haha
SAME
I know I love it. I could fall asleep listening to theses videos lol
YOU DO LOOK LIKE A FUCKING ELVEN PRINCE OMFG
a super good looking one
he is a walking angel
+Ginger the TimeLord *she
+Luana Adriano ikr
+Løvely Stars stef embraced the positive comments saying she looked like an eleven Prince, which is a male pronoun so I don't think she is offended
I saw you in a BE AMAZED video so I wanted to look your channel up! You are beautiful. I love your looks and appearance. You are a great person!
I understand the importance of the feeling of a beautiful face and appreciate you explaining this and happy you have the self confidence now and yes you are beautiful - but just to tell ya, I’m more impressed with your beautiful and thoughtful heart! Thanks for sending good vibes into the atmosphere. Hugs!
The spacing of your eyes is of no concern. Some people have nothing in between the space of their ears.
Damn, where's the upvote comment button in the YT app ??? Brilliant !
Randy snap
I didn't even notice it. Face looks fine to me. SO many people have "normal" faces with differences. Big nose, little nose, etc. You are pretty.
You have awesome eyes & you look perfect just the way you are
Best comment, of kindness and truth ever.
I have no idea who you are and no idea why this video was recommended to me on TH-cam, but I just wanted to say I think you're so beautiful. I will be watching more videos. Thank you for letting people know that being different is actually amazing.
+Rhiannon DeLuna literally same!
Same it was recommended and this is the most beautiful person I have ever seen
Same! Beautiful!
TH-cam purposely advertises vides that are educational like this one
Same here! Just watching and think she is so beautiful. Very educational :)
Beautiful love your confidence always ❤ I always come back to this video now and again you are one gorgeous woman!
You are absolutely gorgeous! I ran across your story on Pinterest and looked up your TH-cam channel. I found it enlightening and educational! Once again, thank you 😊
Your attitude towards yourself is such an inspiration. When you said 'Unique', it totally made me realize I should look at my own features that way instead of 'substandard'. You are so accepting and loving of yourself, yet you do not come off as self-absorbed, elitist etc. Anyway, I really like that. And you will have an effect on the world by exhibiting that and inspiring others. Thank you for being you!!
+J Carter Its always those people with symptoms, disorders, or out-of-this-world health conditions that are so accepting, loving, and outgoing. Many of us who came on this planet with no such issues should really learn a thing or two
When I first saw your picture I just thought you were and are very beautiful. I didn’t notice anything different than anyone else except your beauty, perfect skin, and beautiful eyes. I love your happy down to earth bubbly personality.
Thank you do much you made you made my fsy
I think you are as Beautiful a woman as any I've ever seen ! MAY GOD BLESS YOU AND YOUR FAMILY ALWAYS 💝😊
I just want to say you have beautiful eyes. :) I came here for "Waardenburg" (because I recognized it as Dutch and immediately clicked on it), but I'm staying for the content and positivity.
Very cool. I'm glad this video came up in my feed. I loved hearing you explain how you've come to know who you are and how you've come to love who you are. No reason not to do so. On a broader spectrum, I think the world would benefit tremendously if everyone were to do the same. I know that's an obvious statement, but maybe not to everyone.
Very inspiring video and I thank you for being so open.
Im actually really jealous of those extremely gorgeous blue eyes of yours -__- the light.... it sparkles so bright..
Your confidence, positivity and sense of humor are incredibly inspiring
+Danna Ann I know right! To be quite honest im a bit envious x3 (in a good way, Stef is beautiful)
I think you are F’ING stunning. Truly. And you’re so open and warm. You add beauty to this world just by being here and being you. Inside and out. I love it!! 💞
Lovely video, your candor is warm and your confidence is evident.
Re: loss of hearing and overwhelm/anxiety- brains have to work overtime to compensate for hearing loss. This long term overworking leads to memory issues now, and early dementia-like issues later. Consider hearing aids, please. 😇
Hope this didn't spike any anxiety, xoxo.
I respect you so much, you're so beautiful and your eyes are gorgeous :) I loved this video!
oh my hes adorable
Marina Joyce when I saw this vid, the reason I watched this was because of the eyes.( so beautiful)
marina aww
Banana Leach She's just saying he doesn't have to hate himself by how he looks.
+Marina Joyce Aw, Marina
In my opinion you have the prettiest eyes I've ever seen ^.^
And pretty everything
ikr
gorgeous eyes
You could actually get lost in them.. It's gorgeous
Such pretty eyes❤️❤️
I love you. Thank you for sharing your personal life. I think this matters. Being open, and sharing will hopefully help everyone understand and come together in love. Your eyes are beautiful. I think you have a great attitude, and I sense an awesome sense of humor. I wish you wellness, love, joy, and peace, all the way around. Thank you so much for giving me the opportunity to get to know you! Love and hugs Chrissti Palm Bay FL
I just found out today that my nephew has this genetic disorder . I came across this video years ago & to find out today that this is what he has as well I never would have connected the dots . You are beautiful ! My nephew has very similar eyes , nose , bridge & brow shape .He is four now but he was born completely deaf & also has severe developmental delays as well as severely bad eyesight & had to wear braces on his legs when he was younger . He still has to wear diapers as well . He is still not able to communicate with us but my family is slowly trying to teach him sign language . I feel like it may take him a little longer but he is his own very special person & goes at his own special pace . We love him so much & he is the world to us .
Thanks for posting this video so I could hear firsthand how this genetic disorder has affected you & to learn more about it & how best to interact & learn what works best for him . Thank you !
I watched this after your 4 month on Estrogen video and was amazed because your voice has changed a lot!
saaaaaame
+Rosa Hetsen Yes, yes, I, as well, just watched the April 2016 4 month video and then this one. What a transformation. Absolutely wonderful.
+Rosa Hetsen I was JUST about to make this comment !!
estrogen doesn't change the pitch of your voice, but he rvoice has gotten higher 😍
+karla hernandez Haha me too!
TH-cam recommended this video. Now I'm subscribing. Good job youtube and thanks.
Okay you're so beautiful the way you are. Omg I'm sooooo so glad that youtube this vid. Ok i love you bye
same
me too thanks youtube *subs*
omg same
Same
Good you are giving information that may someone who has this condition get diagnosed. You are unique and some people cannot handle that. Well, at least you will never be boring.
You're face looks so unique in the best way. Your eyes are sooo beautiful.
I didn't even know there was something 'wrong' with you. you're very beautiful ^-^
@Sidney Smith yeah me neither. she looks more like a model rather than someone with a condition
Sidney Smith yeah right
Sidney Smith "He" has some issues ...
L.lawliet And you're the one with the problem. Get over it.
Mikey R He's a white Transsexual with Waardenburg Syndrome. Now who has a problem here?
When I saw you I thought, "she's gorgeous. I wish I had eyes like that" :) Mine are small and deep set ( they are pretty bright blue though) I'm so happy you've gotten self acceptance already. At your age many don't. You are a good role model
Kelly Creasey Omg I was thinking the same thing. My eyes are small, deep set, and bright blue as well. :)
Kelly Creasey But it's a boy? or isn't it
yES
I can't discern ANYTHING WRONG with you! YOU GO GIRL! BEAUTIFUL!
wowowow!! so so pretty! never heard of this, thank you for sharing!