How I Became Paralyzed Overnight
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- เผยแพร่เมื่อ 21 ก.ค. 2020
- I know this video was long but i hope that you can hear my story and hopefully get something out of it.
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I’m 15 years old and paralyzed from a staph infection a year ago. Just trying to have some fun. I love make it videos and editing. I also love beauty, fashion, hair and so much more. I hope my channel can show you a little bit about my life. I hope that videos inspire you and just really help you get through your day, one day at a time. I love you guys and hope to see you in the next video!!
If you guys have anymore questions... i’m going to do a q&a. so please leave some questions down below! Also thank you for all the support on this video. I love hearing your story and can’t wait to keep posting videos so you can see a little more into my life!
Thanks for sharing your story.. Last month I lost my right leg and trying to adjust.. but, I can identify with having the worst pain in my my life
I’m so sorry! I wish you the best!
Look mom
Hi can you make a video of how you get from your wheelchair to car, bed, couch, floor ect
@@brett4511 yes!
As a doctor, your story has made me hyperalert to any patient who presents with vague pain like this. I can see how easily it was missed. I am so sorry this happened to you, but you are so mature and positive. I wish you the best.
Can she ask for a spinal tap? Sounds like Guillain Barre Syndrome to me.
I have GBS. Sounds like my case.
Its interesting because yt have many videos about similar issues and the kids all were handled poorly. They were sent home with a painkiller and were paralized by next day. Seems like common mistreating.
@@kathrynhill6452 didn't the girl explain that they were going to do a spinal tap but changed their minds and it was a good thing they did or it would of caused more major issues? Or did I hear that wrong? She also said it was a staph infection that spread to her spine that caused the issue. Unless I heard her wrong and that was just one of the doctors guesses?
Sounds like gbs ( nurse a few over 35 years as itu nurse) or transverse mylitis which is even more rare snd easy to miss.
My friend had it after a lot of hard work she is back working as a nurse but it is tough , she has neurological effects still..
My mother-in-law got staph and went to the ER 7 different times and they said her back pain was due to age and she passed away at home. During the autopsy they said she got a staph infection in her back and went up her spine and into her brain. You are truly a one in a million and I'm so thankful for you to be here to share your story.
Oh that’s horrible! I’m so sorry 😞
Oh my goodness. I am so so sorry. And I’m so sorry to her for being mistreated.
❤️
I’m so sorry to hear that 💛
Hospital records are notorious for inadequate and erroneous information! It’s gotten so bad that at times it seems they’re making things up just to cover their ass and/or not work too hard. Healthcare in the USA has become frightening!
Unfortunately this medical staff dropped the ball big time. Not running a spine MRI first thing when a 13 year old is in extreme back pain is malpractice. Wishing you a planet-sized hug and strength to keep being the beautiful brilliant girl you are❤
😔😔😔
I don't understand how they kept diagnosing lung and heart disease without checking the back when she kept having so much back pain
@@kumikooo2 they weren’t wrong to associate heart disease with lombalgya, but in the medical practice to stablish a diagnosis you first start ruling out the most obvious symptom causing conditions (differential diagnosis). They didn’t think her back bain could actually be her spine. 😞
EMTs don't order or run MRIs you id e ot...
They call it "Practicing medicine" for a reason. I'm 62 yrs old and when I remember when we had great medical care in 60s 70s and 80s. Nurse practitioners are killing people. Their training is not adequate to be making decisions they make. This is a quote from a doctor of 35 yrs that has seen the mistakes that are happening in our Dr offices and emergency room. My brother went to emergency room for chest pains and a nurse practitioner read his ekg and said well not your heart and sent him home while he was having a heart attack!!!! 2hrs later he had a massive heart attack!!! Affordable care act has destroyed our Healthcare system!!! No need to argue with me because everything I've said here was told to me by good Dr's that I'm personal friends with. I could tell you my own personal story that lingered for 2 yrs with 4 disc in my neck were pressing on my spinal cord causing intermittent paralysis. Went to nurse practitioners who said your spine is ok!!! When my insurance finally approved me seeing a neurologist I was immediately diagnosed properly and operated on immediately. The neurologist was amazed that 3 practitioners missed my problem. I have no faith in the system!!!!
Hi Sydney, I went through what you have been through, but I'm lucky I wasn't paralyzed. But I've lost so much strength in my legs. I had a surgery on my toes and ended up going septic. The staff infection lodged in my spine. I've never experienced pain that bad. I couldn't walk sit up go to the bathroom, turn over in bed, nothing. I could only lay flat on my back and hope nobody touched me. My infection was healed with six weeks of IV antibiotics . I went to a nursing home for four weeks of rehab. I couldn't make it up the three stairs on my front porch. I think you are such a a brave girl, and I will be praying that you regain the use of your legs. You have a wonderful attitude. Thank you for sharing your story with us. 🥰
How are you doing now?
Whenever I hear stories like this I always notice one common factor, that the medical professionals sound incompetent and like they just want to slap a quick-fix diagnosis on the patient and send them off rather than run comprehensive tests and really dig into the problem. It's disturbing the medical system is like that.
There should be certain checks that are routine, surely. Sepsis kills a huge number of people per year yet often it isn't routinely checked for; so many people aren't even aware of what it is and how common it is, how much devastation it causes. Collective incompetence ruins the lives of a huge number of people per year.
It's horrible angers me so much
They really write ppl off and don't listen to them.
The healthcare system failed her and her family. So very sad! I have heard of poorer country providing much better service and investigation of a diagnosis than people here in the US. I was born and lived in Europe for 17.5 years so I do have personal experience to compare it against. It’s so ghastly expensive and yet you have to constantly advocate for yourself when the level of indifference and bandaid fixes is definitely frustrating. It’s utter negligence and other patients would have sued the hospital for wrong diagnosis and not discharging someone who is in critical condition.
@@blerinapsota2447 yep, and it’s insurance and government limiting these practitioners from doing well by each patient because they have to do so much paperwork and proof to the insurance agencies just to get the tests done what they need! They would run more tests for patients if more patients fought and advocated for themselves and even call their own insurance while in hospital. We all need to start fighting for better care and not let them get away with this. So many people just take whatever the doc says and believe it and don’t ask enough questions and demand thorough answers and detailed explanations of how their provider came to their diagnosis.
They don’t take women or young people seriously! Sad 😢 I have been accused of drug seeking, even though I never asked for any drugs, just answers! Was so frustrated, I just let them do prolotherapy injections in my ribs & they collapsed my lung. It happened after I got home & no one was there to help me. I called the dr office & they said I can come back in, “WHAT!?” Should have called 911 but I was confused , scared & in pain.
For everyone out there: If you have a gut feeling something is wrong, fight with all you have to advocate for yourself. Yes, you might be annoying to people, but it can save your life! I'm an RN, and I've been in a spinal cord injury spot as well!!!
How can you get your Dr or nurse to understand just how sick you really are? I feel like my Dr looks at me like I’m just a problem
@@RaccoonNation Have a heart to heart with them.....I acknowledge to them that I know I'm annoying, but that you are advocating for yourself. Ask them to refer you to someone else, just because you really would like some further investigation. When you are straight forward with them and say the word 'advocate', this will get their attention, and let them know how serious you are. If they won't listen, find another doctor. Tell the new doctor that maybe it looks like your 'doctor shopping', but be 100% honest with them as well. "I know in my gut something is wrong, and I really need some further investigation, and I am trying to advocate for myself, because xyz is happening and this is how it's affecting my life". Before you go, write down all the ways it is affecting you and why this is important to you. That way you are prepared.
Ditto..from this ICU NURSE.. yes, mistakes happen..but you were sent home 3 times..THREE
I've been trying to tell doctors somethings not right for over a year! I don't get why they won't listen to people!
I had bacterial meningitis and was brushed off in the ER as having a sinus infection and sent home with antibiotics. I felt insanely awful in the days leading up to that and was brushed off as having anxiety or the flu each time and no blood work was done. I had to go back agggaaain and beg them to do more tests and dealt with dismissive hospital staff who didn't treat me right. I knew it was something more and because I didn't have every single textbook symptom, it took them longer to figure out as they continued to dismiss it. Thank god I kept advocating and fighting for myself or I might not be here today.
Being a 13 year old, having your legs stop working on the fly, and being concerned about how your family and doctors would feel seeing you panic is so crazy. The amount of care and love you must have for others, I’m so grateful that you are still here to shine so bright. Your family and peers and support systems growing up must’ve been incredible people, and sound like a wonderful person. Thank you for sharing your story ❤
As a paediatric neurologist, hearing your story so eloquently told is heartbreaking, fascinating and awe inspiring all at the same time. Getting such a detailed description of what you experienced and how it felt is worth so much, for both patients and doctors dealing with these issues. I am so so sorry for what happened to you. Your spirit is unbelievable, you are amazing and I hope you continue to see progress with the movement in your legs so you can live the life you want and dream of. Thank you for sharing your story so bravely. I hope you are also getting some psychological support, cause this is enormously important, please don’t just brave it out. I see you are a tough cookie, but it is exactly those kind of people who can get hit hard with psychological problems many years after the event. Much love to you ❤
What speciality is 'paediatric'? I've never heard of it and am really curious
@@cindi8318haha…I didn’t even catch that.
@@cindi8318It's a difference between British English and American English. If you were actually curious you could have looked it up instead of harassing someone.
@@cindi8318children. Typically anyone under 18
@@MinOfForestthey asked one question? That’s not harassment unless they deleted a bunch of comments I didn’t see.
Don’t give up. I’ve been paralyzed twice and through surgeries and hard work I’ve gotten some function back both times. I proved the doctors wrong. I became paralyzed from a combination of injury and a small spinal canal closing up on me that made 100% nerve block in both my lower back and neck. Try to keep positive. I don’t know if you believe in God but prayer helped me stay positive. It takes a lot of hard work, a good doctor and a good therapist who works with neurological patients. Keep up the fight. You sound like a brave young lady. Life in a wheelchair is not the end of the world. You can still have a great life. I can get around my house on a 4 wheeled walker around our house and my wife uses crutches ( she was born with cerebral palsy) and we both use wheelchairs outside of our house. We enjoy our lives and our children, grandchildren and great grandchild. Try not to be bitter about being disabled, it will be easier to stay positive. I will pray for you. There are no guarantees but keep working and hopefully things will improve. Don’t let anyone put you down for being disabled. If you do believe in God, pray and don’t let anyone tell you that if you don’t have a miracle healing it’s because your faith isn’t strong enough. Good luck and God bless you! Stay strong.
@@morgancalvi6675 I don't believe he was being cocky, I think he was being supportive & trying to inspire her, while being able to relate similarly. I see u relate as well, but u seem jaded. I'm sorry that happened to u, & getting put back in the chair after everything. I wish u well, I wish all 3 of u well.
@@morgancalvi6675 Yes I know the difference, I've been helping care for my best friend who is quad after a neck break 11yrs ago. Ur reply is under the person "Dennis" comment. There is no comment from another female on this thread at all, she must have deleted it. So it appears that ur replying directly to the initial commenter, in regard to the female in the video. That's where the confusion was on my part. My apologies, & regardless, all of u be well.
@@Missperidoteyes11 how can I seem jaded when she is mislabeling herself? Broken necks are quadriplegics...not paraplegics.
@@morgancalvi6675 U literally thanked & left me a nice sentiment just 2 WEEKS AGO, after I explained a misunderstanding between us. 3 DAYS ago u leave me ANOTHER crappy reply to the SAME msg u were all good about! Wth happened?? 🤔
@@morgancalvi6675 I see, it can be frustrating how this site works sometimes! No problem, thx.
The dismissal, gas lighting, and flagrant malpractice of Emergency Departments when it comes to treating young female patients with complex and occult problems is absolutely appalling. I am so sorry.
I was just thinking this... this girl went there with killing back pain and legs barely moving, they saw her having trouble to walk, yet they still sent her home? Wtf is wrong with them??
"shes overreacting/she just has a low pain tolerance/its probably just period cramps" meanwhile girls be dying from organ failure. it can happen to men too but Ive heard way more stories from young women about doctors explaining away their pain and they end up convincing themselves that they ARE just feeble and overreacting. horrible stuff.
Your story is amazing. You are such a beautiful soul. I will be praying for a miracle. Thanks for sharing.
The dismissal gas lighting and flagrant malpractice of emergency rooms when it comes to treating young females........... just females? Why just females, are you trying to tell me that there is a problem with emergency rooms all across this country discriminating against female patients?!?
They did the same thing to me! I became paralyzed overnight also. I had to be carried in and out of the ER. They marked me a seeker and didn't believe I couldn't walk. I went to another hospital and they recognized what was happening. Thank God!
It’s so wild to me that they thought you have a heart infection and sent you home.. that seems like something that they would hospitalize you for. I’m so sorry you went through this and the doctors didn’t do more.
Walking pneumonia, or pleurisy can cause that type of pain and they sometimes give dose peaks for them.
Pericarditis should have absolutely been admitted
I work in a hospital. Pain is the most important messenger we have, if it hurts, scream. There is no good from ignoring it, even though we are told to. Being able to put words to things that have never happened to us before is extremely difficult but the most important thing ever.
The first thing we are taught to do is to listen, because all the science inn the world doesn’t help if we haven’t heard the whole story and all the descriptions.
this reminds me of when I dislocated my knee cap and i was in so much pain. I told my doctor, as soon as I got wheeled in from the ambulance, to not attempt to place it back in until he knocks me out because it was the second time I have dislocated my knee cap in a short amount of time. I was already in such immense pain and I knew it was not smart because of how much scar tissue I already had in my knee from only 6 months prior. immediately without asking my name or introducing himself anything let alone looking at my chart or for me to even explain why I needed to be knocked out. he then was like i’m just going to look at it and tried to place it back in and I screamed bloody murder for him to stop and he did. I then laid there for over 2.5 hours with it dislocated before they knocked me out with meds and placed it back in. the whole time i was crying and trying to contain myself because they only gave me tylenol for the pain. my mom proceeded to tell me cry and scream all you can, show them you are in pain and maybe they will finally listen to you and they did. they gave me morphine and knocked me out and placed it back in. but due to it being out of place and being the second time in less than 6 months my recovery time was 12 weeks which is almost double of a normal dislocation of a kneecap.
❤
I have a different illness and experiences but was in and out of E.R., urgent cares, primary, and specialists for 7 years, am still unveiling all the damage done, and ongoing systemically from not being controlled sooner. I was in my late 20's and early 30's, very aware and familiar with my body and descriptive with symptoms. Paralysis, seizures, swelling, neurological, NC issues, a world of varying flares and seasons of problems. The biggest problems and hindrances for me and many are being dismissed, doubted, not believed, biases, and punted around. Without it being a common disease or disorder TOO MANY doctors are unwilling (spread to thin, etc, etc) and/or honestly have little experience and training of all that is possible and the pathways/direction to go to truly fight to get there for their patients. One invested medical professional makes such a world of difference in the puzzle medical journey for the extremely increasing number of people sick and struggling for correct diagnosis, treatment, and root causes targeted instead of medicine and symptom relief, surgeries, etc that are ALL known and encouraged first and most. I know how rough medical professionals have it now and how strained and unsupported the whole system and individuals are within it are but the effects it has had on how patients are treated medical and personally is quite ugly and out of control as well! It can be very difficult and discouraging for the sick on the other end of this with their bodies and lives suffering and fear and confusion they are left with while healthy individuals and many professionals are slow to see or unwilling to see the reality of these things and BELIEVE it is and should be completely different and the system is all knowing, powerful, and runs perfect. So if it's not working out for you, something is NOT wrong or literally WRONG with you. We all should be hoping and fighting to radically change what's been going on. Within ourselves first and foremost and bringing it into the world for others!!! We all need better, deserve better, and each other. Not silence, ignorance, fear, or pride. ❤️🩹
A Dr. Who didn’t know me at all decided I was drug seeking when he then found out I was having to go into the hospital every 4-6 hours from horrific cycling vomiting syndrome that started as son as my 34 rounds of radiation had just ended, triple chemotherapy cocktail 6 rounds and double mastectomy. If I am being told I’m drug seeking for that well, it just continues to get worse. I was only 38 with the gene as well. So tired of constantly being judged. My pain management Dr. is one of the strictest know so what he says go. Oh and my 4 neck surgeries back then hadn’t been done. 2 anterior; add now 2 exterior C2-T1. That’s all just some stuff but drs will ignore. It’s unacceptable and we have a right to have our pain mgmt. my pain mgmt Dr. Put me on a patch, lowering my overall meds by 5/6 and I’ve never felt better!!!
I hope you become a neurologist ❤
This happened to my sister-in-law. She went to the hospital and the doctors told her she was drug seeking and sent her home. When she got home, she collapsed and had to be med flighted to MCV hospital in Richmond, Va. She was paralyzed, on a breathing and feeding tube and ended up dying. She left behind a 13 year old son.
Did you sue the crap out of them?
So sad🙏🏻🙏🏻🙏🏻❤️
Oh no, I am heartbroken for her at such a young age and being a mom. I truly am sorry for your loss.
It is alleged that we have an "Opioid Crisis". No, No we don't. We have a fentanyl crisis!!! Now people in pain are all being classified as drug seekers. We all suffer because of the few!
Did u guys go to the doctor who dismissed her? He should be sued and fired to prevent further deaths
I just came upon this by chance. My son, 30 years ago had almost the exact same thing, however he was an infant. He had staph in that area too. The pediatrician kept saying that there was nothing wrong with him - sent us home 3 x's. He never stopped screaming and they kept labeling it as just a crying 4 month old. We had a friend who made a call to an infectious disease dr., as a last ditch effort, who ran the scan, and found the infection immediately. He wouldn't have survived, literally, even one more day. It was a long recovery as he couldn't talk and it was hard to figure out if he was progressing or not. Today, he is a healthy 30 year old and has no after effects of what happened to him. I'll keep you in our prayers, and hopefully even now, a year and a half after this was posted, you are even further along in your recovery.
God Bless.
It really bothers me how little doctors care and don’t think outside the box. As a person with a one in a million injury, I’ve developed medical PTSD. It really, REALLY sucks and there’s so much pain that could’ve been prevented.
Your amazing I can’t believe what you have been going through I couldn’t bare too feel that pain it’s so miserable what happens to some people but it is chosen by god and it’s not because god doesn’t love you we don’t know why it happens but it can be hard god bless you for being so brave ❤️
I took my son 3 times to emergency as he had extreme pain in his upper back and chest only to be sent home. 4th time ambulance took him and 5 days went past in hospital with me being told it was all in his head. I had to be seen be hospital psychologist as well as my poor son who was screaming now in agony. They wouldn't listen to me when I said my son wouldn't be screaming for help for attention. He actually thought he was dying.....he said to me that he loved me and this was going to be it for him. I was now screaming at the doctor to please take him seriously, that something was very wrong. Days went by, and on Christmas day a undergraduate doctor found my son's lung had collapsed and he ended up in ICU with 2 surgeries. They said it was the worst case they had seen in a kid. Absolutely traumatic for my son which could of all been prevented.
I can't even imagine what you went through and this girl and her family. ×
@@bellab8412 how's your son now?
@@zaig.s5329 He is going pretty great right now, however he was diagnosed with bladder cancer in 2020 which was such a horrible shock as he was as only 20yrs. He had his 3 month then 9 month scan last year which was clear and he has gotten his strength back and is working and studying 6 days a week now. Thank you for asking ×
Wow! I’m blown away! This young lady is incredibly intelligent, genuine, insightful, empathetic, articulate, brave and beautiful! And her ability to remember and recount her story is impressive. She’s already proven herself to be an outstanding person and the potential for greatness is clearly within her reach. May she know abundant blessings for all the days of her life. ❤
I was listening to her thinking she was much older. When she mentioned recess at school I stopped to discover her age!
That happened to me when I was 25. I am not paralyzed - but it did get to my blood and began to shut down my organs. It was a long way back and the reason for the extreme sickness was because the medical professionals missed it. Even when they finally admitted me to the hospital when I couldn't walk - they still had no idea what it was. You are a brave young lady. That was the absolute worst pain I have ever had. When I had my baby, that pain to me was not even close to the staph pain. Praying you get full motion in your legs
Nurse for 34 yrs. here. 22 yrs. on the neurology unit in a 900+ bed hospital. Never witnessed this diagnosis. You are amazing, informative and so brave! Much love to you! Looking forward to your recovery story! Subscribed.
This sounds like a vaccine injury, I bet she got Gardisil.
@@christinateresabrown And you sound like an uninformed idiot.
@@lucicleI’m very informed and far from an idiot; you seem threatened by my comment and it’s probably because you are uninformed and projecting on me. Have you never heard of paralyzation due to vaccine injury? Not uncommon.
@@christinateresabrown you're not informed. You're an idiot.
@@lucicle Intelligent response, thanks.
"I was naive" girl you are literally still a minor!! It would have been 100% okay and expected if you DID freak out! It shows your strength and social awareness that you were able to keep calm in that situation. Im so happy you had an awesome surgeon, and I wish you the absolute best in your medical journey and recovery 💕💕
I heard that... so brave for 15!!!
@@carriethompson84 And it happened when she was 13, I would have been freaking out really bad
@@audreyhogan8285 I know.. she reminds me alot of myself, being strong for the people around me.. not so much, so they don't freak out but so they don't feel bad for how I feel. I knew that's what she really means... you just wanna be strong and she def is. She's accomplished so much. Such a beautiful girl inside and out!
I’m
@@sarahdueck1161 ?
Sydney, you are a brave warrior.
I was diagnosed with Hodgkins lymphoma about your age, and now being 57 years old and recently recovering from breast cancer, I want to make sure people know how critical it is to advocate for sick family members. Medical advocates, you are not there to make friends. You are there to demand and insure the best possible care and support the medical community can provide. Too often you will receive the least of your expectations.
It is tragic Sydney was misdiagnosed, delayed diagnostic care, and the like . Do not be afraid to demand immediate and excellent care. There must always be an advocate present for any of your family members in a hospital. Doctors and nurses are amazing , and yes, they are human; however, they are professionals and they should be held to behavior and actions which fall under those standards. We are lucky in this country to have such extraordinary medical care, but in a country which"big insurance" has more power and influence than medically trained doctors, nurses, and staff, you must be willing to fight and advocate for the care your doctor is ordering
And finally...Sydney, you have a brave heart and a kind soul. Keep your face towards the sunshine, noticed the little, precious things, and know you are worthy.
From one survivor to another, my best to you, my darling. Downing
Yeaaaa not reading all that.
Yeah umm, a 57 year old?
Girl, your story is SO similar to mine!!! I was misdiagnosed for months and was in the MOST extreme pain. Like i can't even describe it. It got to the point where my legs started giving out. I went to the hospital and they treated me like absolute shit. Im a recovering addict, so they didn't believe me for a sec. They didn't give me 1 drop of pain medication either. I went in to at 10p on a Tuesday and went into Emergency sugery the next evening. I had a spinal infection and a broken back. By the time i went to surgery, i couldn't move my legs and couldn't feel my chest. My surgeon told me that the paralysis may be permanent, they weren't sure. The next day, my legs and chest tingled, like they were falling asleep/waking up, it was a weird feeling but not a pain, perse. Thank God, that after months of physical and occupational therapy i can walk. I still use a cane, sometimes a walker, but it's a process, for sure. Im so happy i came across your story. Keep up the great outlook! 🙏💞
Wow, I hope she reads your post, because spot on the same!!!!
I would have sued for malpractice. They mixed you up with someone with a heart condition, as a very young girl? Sent you home while you were still in extreme pain? What? Our medical system is so awful. I'm sorry ):
I hate to break it to you- but women in general are ignored, gas lighted, misdiagnosed and treated like we're drug seeking liars pretty much every time we go to deal with doctors. She's actually gotten much better treatment than almost any seriously ill person I've met with the sole exception of people with cancer, who seem to be the only sick people who are treated well in the system.
Yeah... crafty is right. Unless your medical condition is externally obvious, you will get NO HELP. EVER. I count myself incredibly lucky every day that I am only in 7/10 pain at all times, only sometimes pass out for no reason, only sometimes can't eat anything all day because my stomach freezes up. Docs don't give a shit.
I am speechless. So much malpractice and ignorance.
Everyone involved should be held accountable!
@@penelopewilliamselliott7353 Medical malpractice cases are extremely difficult to win due to what we call CYA charting. I have been an RN for 25 yrs. In the early 2000s, a hospital had been taking care of my grandfather who was there with 3rd degree burns on his legs, and he was cognitively fine when he had called the ambulance and my aunt prior to entering the hospital. They placed him on a ventilator, and per charting, he was "found on the floor disconnected from the vent for an undetermined amount of time". He was never the same cognitively, and was placed in a nursing home and required a tube feeding until he died several months later of aspiration pneumonia (because that nursing home kept trying to feed him despite a nothing by mouth doctor's order). Multiple attorneys told my grandmother she had no case against the hospital. If that wasn't a case for negligence, then I don't know what was, because you darn well should have known a patient was disconnected from a vent - it alarms - and you should know how long it was since you last checked a patient in ICU. Diagnoses are missed all the time. If we sued doctors for every little thing, our medical costs would be through the roof. This is why we need to be proactive with our medical care, and insist that doctors take us seriously, and if they don't, find a different doctor who will.
I am very confident that you could re-learn to walk. The fact that you are able to almost stand up is incredible. Keep up the hard work!
Yesss! I agree and hope that happens. Nerves regenerate slowly, but they seem to be growing and repairing for her 💖
You're going to walk again. I know it. A friend of ours was paraplegic from an adverse reaction to a flu vaccine (it was removed from the market many years ago.) He was about 26 yo and in a wheelchair for about 4-5 years. Today, he is fully mobile. He still carries a cane sometimes but he never gave up hope! You have a such a wonderful, positive outlook and your experience gives you a special sort of empathy that will help you in life. God bless and good luck!
I think you might be on to something.... Remember the last one?
In my daily prayers I always pray for the 36:56 sick and suffering since I realize how debilitating pain can be. So you are included in my prayers. God bless you and thanks for sharing❤
That's a known side effect of almost every vaccine. Guillain Barre syndrome. There are other autoimmune reactions that can happen after a vaccine that may cause temporary or chronic paralysis. There are lots of potential bad reactions after anything you put in your body. Food. Medications. Supplements.
Sydney, beyond stoked you are moving right toes, left toes, bend straighten the right leg, move both legs side to side, can partially stand! Wow! You are young and nerves regenerate, ayk. Glad all of the staff infection is out, and you may very well regain full use of your entire body, again. Like you'd said, every spinal cord issue is individual, complex, and different. I believe you'll regain full use due to your ability now to move portions of your body now! You go, girl! YOU ROCK SYDNEY! Hope you'll keep us all posted here.
IF YOUR POOR WITH OTHER DISABLED AND HEAD INJURYS FROM 1997: THE HOSPITALS AND ER DOCTORS HATE PEOPLE TRYING BROKE MY BACK AND NECK INJURES AND FRACTURED THOSE SPINAL DAMAGE IN MY BODY.
Staph infection. , not staff.
I am so glad you are making progress with mobility! Sounds as tho you might have complete healing eventually! Hope you keep up your positive attitude , you are an inspiration to others who have had catastrophic injuries as well. God bless you and your healing journey ❤❤❤
To the ppl n kids watching this. ALWAYS TELL ALL YOUR SYMPTOMS AS THEY HAPPEN. Don't hide things because I don't wanna scare someone or cause I don't think it's a big deal. The sooner u get help can in some cases make a BIG difference
Yes! Even if you feel like you're annoying others by telling them what's wrong, or you're afraid of not being believed, tell your symptoms as they happen. It's also helpful, if possible, to keep a journal or digital log of symptoms and the times and dates they happened. Both for your parents and any & all medical professionals you might see about your issues.
Your level of insight, maturity, introspection and strength is astonishing - most especially in a 14 (?) year old…as a registered nurse who worked in an acute inpatient rehabilitation hospital, I feel compelled to comment on your strength, can-do attitude, and survivor perspective as opposed to victim….you are going places, you are an inspiration to both young and old. Your story is one of the most powerful, impactful narratives I have ever come across. And I have read and seen and experienced a lot over the years (worked in healthcare over 40 years)…you are truly special and a role model…I have a difficult time believing how young you are! May you continue to inspire and motivate and strengthen others on many levels, with your uncanny intelligence and wisdom.
Here is advise for everyone who goes to the doctor/hospital with unusual symptoms.
Ask for a lot and you will receive little.
Meaning don’t downplay your symptoms play them up, stand your ground with a firm and serious tone and if necessary scream or moan to get your pain across.
Trust me otherwise you will be shuffled home with a false diagnosis cause most doctors choose the easy, time saving way, that hides their incompetence.
Excellent advise. A family friend had a tad of heartbur and a bit of difficulty swallowing but it was barely bothersome, it went for many months so she worried but had to exagerate her symptoms for the Dr to send her for an endoscopy. Turns out she had some pre-cancerous growth in her esophagus.
Dumb atheists for putting their lives into human's hands, it's judgement. Why do you think the whole health system anywhere uses the fiery serpent as their symbol..? Think about it 2 minutes.
We shouldn’t have to. We shouldn’t have to moan loudly if we have a high pain tolerance because doctors won’t listen to us simply by us explaining how bad the pain really is and explaining the symptoms.
But there was a time I went the ER in so much pain I was moaning and groaning in pain and couldn’t help it. The nurse abused me physically and mentally. She told me shut up and to stop faking. She would grab me hard and rough handle me anytime she needed to help me with anything. If she needed to put meds in my IV she’s pull on it really hard and tug it around until my arm was dripping blood. I was too sick to do much about it. She hid her name tag from me so I couldn’t report her. She kept telling me it was time for me to go before I even saw the doctor and before getting any discharge paper work. I was so sick though it took me a long time to be able to move and get up to get dressed and leave. Luckily the doctor came by as I was getting ready to go and stopped me and said it wasn’t time for me to go and told me to get back in the bed.
My daughter was seventeen when she was in a car accident, resulting in a T-5 spinal chord injury and permanent optic nerve damage. She went from being a cheer leader to being confined to a wheel chair, finishing her senior year through home schooling. She has always been such an inspiration to others and has been determined to make the best of a bad situation. Never feeling sorry for herself. Everyone loves being around her. She lost her ability to walk, but she has never lost her smile. She is married to a wonderful man and carried all three of her children while in her manual wheel chair. So proud of her. She is now forty two years of age and thanks God every day for sparing her life, her family and for all the blessings he has bestowed upon her. I am also glad that the Dr's found the correct diagnosis for you and wish you the best in life. You're attitude is wonderful. It also sounds like you have wonderful parents. Family and friends being supportive is very important.
nobody is _confined_ to a wheelchair. they _use_ a wheelchair. wheelchairs give disabled people freedom
-a wheelchair user
@@livewellwitheds6885 Maybe if you'd looked up the definition and meaning under the Collins English Dictionary, it might have given you more of an understanding of what " confined" means. It is: "Someone who is confined to a "wheelchair", bed or house, because they are disabled or ill.
@@lauramichael4958 if we are being pedantic, you're missing out fundamental parts of the entry into that particular dictionary.
"If something is confined to a particular place, it exists *only in that place*. If it is confined to a particular group, only members of that group have it."
Unless your daughter never gets out of the wheelchair, she never sleeps in a bed, she never bathes or showers externally to the wheelchair, she isn't confined to it, she *uses* a wheelchair. You also missed off a line from the part of the definition you cherry picked:
"If someone is confined to a wheelchair, bed, or house, they have to stay there, because they have a disability or are ill. *This use could cause offence*".
Wow I had no idea a paralyzed woman could carry children let alone three that's a miracle!
@@meghanferrari6501 nothing wrong with their reproductive system unless it was affected by the accident 🤷♀️ disabled people can lead normal lives! 😊
Hi Sydney, I too went through something so similar to you. I had a Cavernous Malformation Tumor on my spinal cord at my C5-C7 and was paralyzed from the neck down on my left side. I had less than a 5% chance of walking and the tumor was hemorrhaging. I now have 2 rods, 6 screws, and a bone fusion and my life is forever changed. Don't give up, I went through aggressive rehab and through my own will and determination, and friends and family by my side, I am walking again.
I'm so sorry to hear what you're going through, it sounds like malpractice. When I was a teen I had an experience, not nearly as serious as you - But I had collapsed lungs for 2 weeks before it was properly diagnosed. You're very strong and brave.
I'm hoping you are doing good now. Stay strong.
I did two years on my back as a kid, meckles diverticulum. (Intestines went kablooey.) I remember the terror to this day, getting sliced open in the ER without anaesthesia. You are an inspiration, such good cheer and humor after agonizing pain. What a role model. I bet you'll be dancing, someday soon. We are all rooting for you. Keep us posted.
I had a C-section in 1998 with my 2nd daughter. My anesthesia didn’t work, I felt when the dr sliced my abdomen. The dr yelled general, they knocked me out immediately.
OMG! Sounds like medieval times when people were drawn and quartered. How barbaric!
God Bless you Sweetheart. I wish you the best. Get well soon.
Of the many words you said, one thing that's struck me is how "you didn't want to freak out because you didn't want those around you to freak out." What a brave, sensitive and thoughtful of you to stay calm despite your discomfort for the sake of those around you. God bless you, Sydney. Thanks for sharing your story.
Yes- I so agree! So funny though because as a 19 yr old, I had a bad accident where I suffered a large depressed skull fractures and the same thoughts went through my head!!! Was so bizarre! 20 yrs later, the people there at the time still talk of how calm I was and how I didn’t cry etc….not so sure I’d be able to do the same today, tho!!!
@@kecrn4132 you may have been in shock too though 😢 bless your heart. I'm glad you're still here to tell your story too ❤
Absolutely! Not many 13yos have that kind of sensitivity, emotional maturity, and common sense.
My friend’s daughter Cienna was about 11yrs old when she got a spinal infection that wasn’t discovered immediately. She went to bed before dinner, woke up and literally could not walk. She was rushed to hospital and then sent to a major hospital. Long story short she is now 16yrs old. Has been in a wheel chair since that day, spent months and months in hospital and still has physio therapy regularly. I think the diagnosis was Transverse Myelitis. She is like you a beautiful girl in many ways and has a positive outlook on life. Best wishes from Wollongong Australia 🇦🇺.
I was diagnosed with Transverse Myelitis in 2014, because most of my MDs took my symptoms very seriously, and kept investigating and consulting others until a proper diagnosis was made. I feel quite fortunate , because many people are treated with the disinterest, disbelief, & judgement that you were….it breaks my heart and makes me mad ! After Working as a Critical Care RN for 35+ years, I was suddenly on the other side of the bed, full of tubes, wires, and it goes without saying that I did not like it 😢. We must respectfully ask questions of our MDs and caregivers, push them for answers, and insist upon being included in the “daily rounds” …it is our right, and it just may save our lives .😊
Good fortune to my fellow travelers, may you be blessed with all the best ! ❤
I'm so sorry to hear that. Your daughter sounds like a beautiful warrior. I'm from somewhere quite close to wollongong lol. Best wishes xx
I'm not even a doctor but as soon as she said back pain I immediately thought of an MRI, let alone the tingling and loss of strength. And what's worse is the unhealthy amount of painkillers she got. I'm surprised at how strong you are, truly wishing a fast recovery.
I have never witnessed SUCH a clued up intelligent level headed brave individual in my life! Fact! The fact youre a child and this clued up up is mind boggling xxxx
Right?? I think of my 23 year old daughter and she would be FREAKING out. This girl is so inspirational 🤍
Your right about the MRI they should have taken you way before 9:00pm at night. Again sorry for the way you were treated
Hopefully they can learn from my experience and grow! Im just blessed they saved my life!
I agree! That was definitely a bad call by the ER doctor, who could easily have overridden any “official policy.” I can’t believe that the first hospital ER didn’t do an MRI or C-scan! Same thing with me, I can’t believe that the first ER i went to (and my parents) let me sign myself out (they didn’t notice that i was in a semi-coma and acting strange!)
I can’t believe you went through this at 13!! I had a VERY similar experience at 30. Took myself to the hospital after a week of HORRENDOUS back pain, they diagnosed me with pluracy (an infection in the lining of the lungs), but I had a medical background and argued the diagnosis. It didn’t matter, they still sent me home. The next night I explained away the “drunk legs” feeling, and by the next morning couldn’t feel anything below my ribcage. Turns out they missed a MASSIVE staph infection along my spinal cord, which ruptured, and had been compressing my spinal cord for more than 15hrs. I was a single mom with far more life experience than you at 13, and was surprised by my own strength. The fact that you survived that trauma is so so incredible!!!
Also, do you have a neuromuscular recovery network where you live? I went through the NRN program and it was LIFE CHANGING, and has tremendous results! Let me know if you want info…hell, I’ll even do what I can to get you plugged in if it’s something you’re interested in.
Your attitude is absolutely incredible for any one, let alone a teenager! Your resilience and strength shines so bright.
If your parents are reading comments, please chat to a medicsl attorney to check for any medical negligence.
Blessed girl to have such a smart neurologist. So sorry for all you had to endure 😢
Sydney - My son survived spinal compression at the C1 level, in 1999, when he was 8 years old due to a congenital birth defect of his spinal bone. His symptoms were exactly as you described and I had chills watching your video where you describe your symptoms and no one could come up with an answer, because I said to myself -- keep watching---she is going to be found to have spinal compression. By some miracle I kept taking my son to doctors before he became totally paralyzed and a MRI led to emergency neurosurgery which saved him. He still has lasting nerve damage that he has to live with in his arms and legs where he can't feel them so if he gets a cut, he can't feel pain or infection so he has to be very careful, but he can walk. This is indeed VERY rare and I am so glad that you are telling your story. All the best to you!
I watched couple other girls' video about some sort of similar nerve and inflamation and mass issue and all were handled poorly, they were sent home and only took them serious after came back fully paralized....
eow....I have to tell you keep going you have something "that spark" you do wonderful things...
Best to you mom. I am glad your son has such a devoted mother. More power to you both.
@@Angelaius I watched a documentary about this. (Hopefully not at all connected to Sydney's situation.) All the paralyzed girls in that one had had that vaccine for cervical cancer. A boy who also had the same vaccine also became paralyzed.
I have just been diagnosed with osteoporosis, or at least a hospital report arrived, and no followup or guidance whatsoever. I have risk of compression of lower vertebrae. Did they explain this? NO! I had to do my own research! Then manage my GPs ego who constantly wants to talk about irrelevant stuff. Then he blames me because he hasn't managed his time well. I had to correct him today and say, well you insisted on trying to give me legal advice, when I am a qualified lawyer and the situation you were worried about didn't apply. Yet you took 10 minutes asking me questions. Don't blame me if the time blows out on the consultation! I mean seriously! He's ticking me off? Then he's missing the most serious bits and I have to steer. him back. And specifically ask: what are the risks? What should I be doing? No I can't walk every day because I can't digest food.
I could scream with frustration. It's socially isolating. Glad I asked because I need to move heavy stuff and I won't do it now. I routinely lift and move heavy stuff and now I have to stop! GREAT!! But the report was made in early November and I only got it this week. My GP doesn't have it, it fell into limbo.
Sorry for complaining but watching this is making me realise how risky it is for me to do stuff. I'm annoyed and I have to manage my quite justifiable feelings and go and see this GP and try yet again, to get referred to the expert rhematologist in the field of lupus which affects the liver and digestion. But this is my idea not his and they don't like that, so the GP is going to take a really long time about it. I've told and retold my story so many times I could scream.
I hope I can control my anger.
When you went to the emergency room the first two times, did they do a spinal tap or any imaging at all? As an RN, when I heard you talking about how much pain you were in my first thought was meningitis, a hematoma (blood clot), or some sort of mass or tumor on/in your spine. Did they just base their diagnoses on your symptoms? Was the bloodwork they did general or focused on any specific things they were thinking could be wrong with you?
With that cardiologist saying he never saw you when you were diagnosed with pericarditis, I'm pretty sure you can sue for medical malpractice if you hadn't already. People make mistakes, yes, but the mistakes that were made cost you your independence and your freedom. You're paralyzed because of those mistakes. Those doctors need to be held accountable.
You are awesome!
Brave. Beautiful & beautifully articulate. You have my full respect & admiration.
Thank you for sharing your journey thus far w us in this way.
Wishing you utmost joy, peace & continued physical & emotional growth, healing & mental stability.
right?! like.. presenting w/sudden c/o of severe rib/back pain.. at minimum, where's the CT chest at!?
Totally agree!!! I’m not a lawsuit type of person, and I realize a lawsuit won’t make her legs work again, but every single medical person who was involved with her care needs to be included in a lawsuit.
@@eloiselogue exactly!!!! The way she told her story, it appears there was no radiology until she lost the use of her legs!!! This very likely could have been prevented if they had performed the proper testing initially
My first thought was meningitis as well
Sydney, i admire your courage and your acceptance of that situation ..I have a friend with trauamatic C5 fracture, it happened w a dive into a pond, pulled out by his cousins and rushed to hospital...fast forward to today, he has a truss business where he supervises to his relatives to construct trusses for buildings out of two by fours treated wood with metal crimps. He is very siccessfu! ive worked for him driving him and his family and employees of his. He is Amish.
I don't care if you spent 37 minutes on this video. you absolutely POURED you heart out and you deserved it one million percent. To hear what you’ve been through is mind-boggling. As for I have not been through something this big (who am I kidding the worst I’ve had is six stitches in my chin) it’s fascinating to hear and understand you while watching this. I can’t even IMAGINE what this experience felt like for you and my eyes started watering because of how detailed you were. How specific you were made me feel like I was living in that moment, I could picture you, your mom, and all those doctors who helped you overcome that paralyzation. It’s amazing that you lived, and it’s even more amazing that from only a year and a half you can wiggle toes, move you legs side to side, and so much more! Honestly it takes some people four or five years to do as much as you can do right now. Some people never will be able to after being paralyzed. You should know how lucky and special you are Sydney, you are one in a million and it’s awesome. Never let people tell you you can’t do something, it may feel like it now, but I’m sure you’ll be able to walk again because you are so kind, tough, smart, and awesome, and you are overcoming being paralyzed Sydney. You can do this!
Only stitches in your chin? Damn, i have had 3rd degree burns on 4/5 fingers on my left hand and had severe itching for weeks. ( joke )
@@SunnySlays101 i also pretty recently broke two bones at once
@@Madi_On_Paws oof that would hurt
@@SunnySlays101 yea
It’s amazing that you are starting to get the feeling back. It’s been a year, I’d love to know how you’re doing now!
she has a update video :)
@@anonuser92838 your kidding
@@anonuser92838 thank you! I’ll watch it next!!:))
I admire how mature you are about the misdiagnosis. I’m an RN and my eyes were wide O.O I would have been so mad and I can imagine you might have been, but you are so young and so mature for your age to recognize that it’s bad for your mental health to dwell on that. I am SO sorry this happened to you.
It might be shock/dissociation too. Lord knows when i talk about my extreme medical trauma i do it with a smile on my face in public/on camera but sob when im alone if i can feel safe enough
Trauma manifests v different in everyone but this not have given her trauma is simply not possible*
@@ThirrinDiamond Definitely.
You have our best wishes for a FULL recovery!
My heart breaks to hear the amount of pain you were in at such a young age 😢 I’m very touched by your story. Keep shining, angel! Your life is going to be amazing ❤
I know the exact feeling you're describing with the pins and needles, numbness, and a buzzing feeling. I fell off my horse when I was about 13, and fell on a rock and broke my tailbone. The doctors told me and my mother,. that if they operated, then I had a 50/50 chance of being paralyzed, so no surgery for me. Fortunately, I didn't become paralyzed, but my whole first year of high school, I had to carry around a round pool floatie to sit on. Here I am, at 60 years old, and I still can't sit on a chair for any length of time, without having to move often. If I don't move, then there's intense pain getting up. I wish the best for you, and I hope the future, has you dancing with your future husband. Peace
My MIL (RIP) fell on stairs while pregnant and broke her tailbone.
I shattered my tailbone at 14, but the hospital didn't catch it. I had a pinched nerve in my lower back for 2 years. Went to almost every chiropractor in town. They were very gentle and I had to keep going back for the SAME issue. Then someone recommended a traditional snap-crackle-pop chiropractor. $20. He adjusted me one time in August 1996 and I've never had another problem with it since.
@@newlycreated1864 Those doctors scare the hell out of me. I also have a permanent whiplash injury, and I go into spasm very easily(I can just by sleeping). If they cracked anything on my spine, I'd be down for at least a week.
It's not for everyone, and I wouldn't go to one that wasn't recommended to me. My dad went to a chiropractor after an accident. He had fractured ribs and didn't know it. Not good. He'll never go again.
@@newlycreated1864 an adjustment after rib fracture sounds painful!
I had a spinal stroke on the t4 , about 4 years ago .mine happened at 9 o'clock in the morning and lasted for about an hour. But the pain, oh my god I nearly passed out , it was that horrendous . When you were describing your pain I could feel it all again . Im 38 now and I have the same attitude as you honey. Im glad to be alive . Im very sorry this happened to you so young tho . But you are incredible . your gorgeous, smart and so very strong. Never change young woman . You are a credit to your parents . Lots of love from Ireland 🇮🇪
I wish you all the best 🥰
This made my day! Thank you!
@@_sydney.fowler_ your very welcome. Your video made my day ❤
Hi what caused your spinal stroke? Glad to hear you’re better now!!❤
I amm standing here in the kitchen drinking my coffee doing laundry listening to how you conduct yourself as you speak about your story and I can not believe you are only a young teen. I thought you were in your early 20's and when you said you were 14 I had to do a double take. You are such a strong beautiful young woman. The way you were worried about everyone else freaking out so you kept calm and didn't exaggerated your pain or condition just amazing. I pray for you and your recovery. You are such an incredible person and very inspiring . A friend of mine had gotten paralyzed after a staf infection that turned out to be meningitis and he was in his late 20's , unfortunately he gave up and let the depression take over. He refuses to see anyone and refuses to get any help except for his pain management and medication. I pray for him to be like you. You make a beautiful video and please keep up your strength and peace. Your a beautiful woman and Blessing to you positive energy and strength and happiness for you always.
My son raced dirt bikes and sadly had many friends who were paralyzed from racing. Some of them only had a curved spinal injury and eventually learned to walk again. I know everyone is different but please don’t ever give up just keep working hard. I had a stroke a lost movement on my left side and through a lot of occupational therapy I gained all movement back. I cried when I watched other patients tie their shoes and I couldn’t. Then one day I was them. Keep trying I will forever keep you and your family in my prayers. Please keep us updated on your progress sweetheart
Wow, thank you TH-cam for your crazy algorithms! Young lady, you are a true inspiration!
I do want to say this: as a paralegal specializing in Medical Malpractice, Wrongful Death, and Personal injury, I truly believe you and your parents should seek out professional legal advice to discuss potential legal action against certain providers in your initial treatment. I understand, and respect, your wish to put things aside and focus on being positive. And that’s exactly why you should get a good attorney to take the “what if’s” away. They take care of making things right on paper, while you focus on getting better.
I say this for your long term health, both mental and physical. Since you have no promises you’ll be up and playing soccer a year from now, you need to consider long term. And finances play a very big part of EVERYONE’s life. Your parents help is awesome, and their having great insurance is one thing. But what about when you turn 18? Perhaps you want to go to college. You may need a car or van with special medical equipment. Perhaps you’ll need a home with special construction. What about medicines and medical supplies like multiple wheelchairs over the years, etc.? These things are expensive and if it’s possible your condition could have been diagnosed and treated correctly right away, it would be a crime for you to suffer for years just because you don’t want to ruffle anyone’s feathers now. Trust me, this is EXACTLY why doctors buy medical malpractice insurance. They won’t suffer a moment, while you and your family could suffer financially for years. You deserve nothing less than the best care, as does the next young girl. So, if the physician(s) that sent you home with a “heart infection” diagnosis are still out there treating kids, what if the next kid isn’t as “lucky” as you were? What if something could, and SHOULD, be done about that physician(s)?
Something to think about.
If that were a serious consideration (not my or *your* call to make), most states have a 2 year statute of limitations. Establishing a date of occurrence could be vague. The legal systems grinds so very slow. The defense attorneys are working for the insurance company and would like to see it go on and on forever. But, that is what they are paid to do. Also, perhaps, the burden of proof of 'who' screwed up, would be a long involved process. It appears the MRI was the smoking gun that identified what was going on. So, would it be fair to say that *everyone* prior to the MRI was negligent and a potential defendant due to medical malpractice?
On the other hand, Sydney seems to carry such a positive attitude towards what happened and the future, the stress of litigation (it's no joke the emotional pain they will inflict on everyone.....ever been subject to a deposition?), she might just be OK and accepting with hope that time alone may allow this wonderful woman a second chance of being OK down the road. Lawsuits eliminate emotion from the picture and the attorney fees are racking up like crazy. The defense attorneys are being paid for by their medical malpractice insurance carrier - all in a days work for them.
Unfortunately, people are not like a car... can't just plug in a cable and wait for the computer to spit out a diagnosis.
@@avflyguyMy opinions are based on 25 years of facts, not TV dramas. Yes, most states now have a two year SOL. However, those two years only start to run when the injury is realized. That is, if I woke up from surgery on June 3, 2000, and didn’t know the surgeon left a sponge in my abdomen until April 12, 2007, the two years would expire on April 12, 2009.
And just to clear up a point of confusion: attorneys for insurance companies do NOT EVER offer any amount for settlement without getting approval from the claims adjuster first. Further, in the 10 years I worked for the insurance company, not once did a plaintiff ever sue a defendant beyond the policy limits. I’m not saying it couldn’t be done, but I am saying it never happened (So, no. No plaintiff ever “took someone for everything they had.” That’s TV.).
Regarding whether I’ve been deposed - no, I have not. But I certainly have coordinated them, scheduled them, subpoenaed them, videoed them, and sat in. It is the job of the attorney to prepare the client for the deposition. If the client is nervous to the point they are unable to respond, the attorney has not done their job by properly preparing the client. Furthermore, if a client is so stressed out they are experiencing negative medical symptoms, something bigger than a simple deposition is going on and medical treatment should be sought immediately. Before you ask, yes, I have been on standby for this very reason while plaintiff’s attorney was deposing a witness. The plaintiff chose to sit in on the deposition of the defendant (as was her right). At the very outset, her attorney clearly had zero control over the plaintiff. Almost every time the defendant responded to plaintiff’s attorney’s questions, the plaintiff herself would gasp, cluck, and tsk disapprovingly while she’d frantically paw through a Bible she had brought with her. She refused to behave, regardless of the number of objections by defense counsel due to her disruption and distracting behavior. The deposition had to be stopped several times while plaintiff’s attorney would excuse himself and plaintiff from the room and retreat to another room where she was (once again) reprimanded. Long story short, the plaintiff got herself so worked up, she began to experience legitimate heart palpitations. At this time, I was contacted to evaluate her fitness to continue. Of course, I immediately administered first aid and called 911 for an ambulance whereupon she was taken to the hospital. Later, her attorney sent us a lovely gift basket and a card of appreciation for having treated plaintiff with dignity and respect.
In any event, no, lawsuits do NOT eliminate all emotion from the picture. However, if you have found the right attorney, that person and their staff should act like your very own Knight in Shining Armor. That law office is obliged to protect your rights and advocate for you. If they do not, it’s time you move on.
In this case, while I do appreciate anyone’s desire for peace after such a traumatic injury, I cannot help but be concerned for her future. While the less-is-more approach currently is working for her now, I worry what will happen later. Perhaps one day she’ll need all those expensive items and she can’t buy them. If she’s on her parent’s insurance, what happens when that insurance runs out, be it due to age, graduation, etc. Who then will be able to afford the wheelchairs, running blades, modified automobiles, etc.? Winning or settling a lawsuit now, then putting the cash into a savings account or other financial device to assure her future? Now that’s to me a “second chance of being OK down the road.”
@@floofypurplefluff9924 Beautifully said. 💜
@@floofypurplefluff9924 very very well said
I hope she sees this!
This is such a good lesson for people….don’t downplay your pain or symptoms….the only person who will advocate for you is you!!!! Best of luck going forward….you have a great attitude! Thanks for sharing your story….it will help people.
Listening to you describe the pain breaks my heart. No child should ever go through this 😔
The fact that you kept yourself outwardly calm because you didn’t want people around you to panic, that was such a kind thing for you to do despite your pain and concern. You’re truly one of a kind. I’m sorry this has happened to you.
Maybe you should have been screaming & hysterical with pain - might hv imparted seriousness of your situation.
I’m a neurosurgery resident don’t ever give up hope. I wish you the best Ms. Fowler.
I had the exact same thing happen to me. the pain in the week leading up to it was UNREAL. the first time I went to the hospital, I got sent home after 10 hours and told it was a muscle spasm and to try and excercise! well I was back in an ambulance the next day (all this by myself just to put it in context, I was in my 30's), where again I was made to wait about 12 hours in agony and almost got sent home but then I begged the doctor to watch me walk.... which I barely could. so he agreed to give me an MRI "to cover his bases tho nothing is wrong I'm sure". well I never saw that doctor again about 3 hours after the MRI I was transported to the best neurology hospital in the city and underwent emergency surgery for an epidural (just the location on my spine) abscess (staph infection) that was 8 inches long and compressing my spinal cord. I thankfully woke up with no serious permanent damage but was in the hospital for 2 months on insane antibiotics via PIC line. I hope since posting this video maybe you found more people who have been through it (not as rare as you think, but not nearly enough awareness) that you can relate to! you are so brave for going through that so young!
You are very positive,never give up.The fact you have feelings is a very good sign you can be normal again.I feel you are on you way just need sometime to heal,Bless you 🙏🙏
I am so glad you are doing well! I hope you stay healthy and happy! ❤️
This is the state of medical care today: vacant diagnosticians with no medical instincts. I’ve experienced this with these people, it’s terrifying that they are in charge of the life and death of others. I believe you can recover, Sydney, this doesn’t have to be the last word. You’re like an Angel, so sweet and good of heart, I will pray for you.
I can't imagine how frightening that would be. Staph infections can be so incredibly dangerous, and I'm glad you're here to tell your story! Your resilience and insight are inspiring -- my heart dropped when you started to talk about the what-ifs and then explained how it's not worth it to agonize over things that already happened. I struggle with "what-ifs" myself sometimes, so to hear you speak about it, and on an event so devastatingly life-changing, is a reminder I will keep with me.
Thank you for sharing. I'm sure it's not easy to recount such intense memories. It's clear that you are a genuine, kind, and wise person, and the world is better for your presence in it.
i’m definitely a hypochondriac and it takes so much of my mental energy it’s hard to just live my life while being healthy. so to come across symptoms that severe and still be rational, is honestly something to be proud of. your bravery is inspiring and i want to be like you when i grow up (even though i’m 25 already) 😂 sending you all the healing energy you need to achieve your goals!!
I am hypochondriac too, i tought, "well, you never know, maybe i will need this information at some point, just in case".
I’m a hypochondriac too and I shouldn’t be watching this video because it’ll feed the paranoia I’ve been dealing with for the last 2 years and trigger my anxiety. But this girl is so amazing it’s hard not to. For someone to go through something like that with such maturity and strength, especially at that age...What an amazing, beautiful girl. I wish her the very best.
It seems that everyone is a hypochondriac. That is a problem.
screw you, ive struggled with it my whole life, it can be debilitating. Don’t invalidate people’s struggles.
Same I will get one tiny little insignificant pain and thinks it’s some deadly disease
I feel like this girl is going to have a great life and happiness whether she walks again or not!
The way she appreciated her surgeon was so touching!
This was a year ago and I’m wondering how she’s doing…
I agree.
I’d love to know how Sydney is going. Such an amazing young lady. 💖
Y’all can watch her other videos of her on her channel
Hearing this story sounds like an episode of House MD where there's every type of Dr and department trying to run every available test to find out the root cause of the symptom. This goes to show it takes several second if not third opinions when it comes to pain. As someone who had to see several doctors for one diagnosis of EDS, this resonates with me. I am not paralyzed but because of my elasticity i have chronic pain and am prone to breaking bones or sprains easily and having heart issues along with it i have to use a wheelchair because walking is difficult. Many people don't understand that if you can walk why are you use a wheelchair. I can't imagine ever not being able to walk though i am one break or muscle strain away from not being able to. Thank you for your story. You're positively is inspiring. It makes me feel like I shouldn't beat myself up about my health and syndrome and that I shouldn't let it prevent me from living my life either.
Hi Sydney. I just saw your video but it's two years later. I hope alot of positive changes for you since the creation of this video. "You can't give up. I can relate to your experience but different disease. I had brain cancer that paralyzed me in 2016. I couldn't walk less run but I was determined after chemo and survived. Long story short: Through hard work and my doctors approval, I ran 7 endurance runs in 2022. Training to run a marathon in 2023. My encouragement for you: Continue to have a vision to walk again, keep fighting, and keep being positive as you are now. I'm sorry that you have to go through this but there is light at the end of the tunnel.💪 Stay strong."
All these doctors sound so negligent. I am so sorry for you and your parents. I have 4 daughters and there is nothing worse than having one of your kids sick and not knowing what’s wrong and how to fix it. You are so brave and strong, thank you for sharing your story. Praying for your complete recovery 🙏🏻
Personal experience they are so negligent, particularly to women. Such a misogynistic group with massive egos, more so now in general. Female doctors get so bullied.
You are so right. They're quick to give like but try getting a cure and a real diagnosis and that's difficult. In this day and age it's hard to believe it is so hard for them to figure things out.
@@annabell3385 You would think that the best and the brightest would actually be the best and the brightest. And yes, the Attitude so many have towards us mere mortals! 😠
You're spot on about how every brain/spinal cord injury is different, as is the healing. My dad went in for spinal stenosis surgery (that he put off for too long). His neurosurgeon is one of the best in Texas. She trained at a level 1 trauma hospital, where she was the one to operate on gunshot wounds to the head, brain, and spinal cord. BUT, when they released the pressure on my dad's spinal cord, blood rushed back into the previously compressed area at an unexpectedly rapid rate, causing cervical spine damage and, somewhere during that time, an ischemic stroke somewhere in the cord. When I finally saw him in the NeuroICU more than 12 hours later (the surgery usually takes 3 hours at the most), he was basically a quadriplegic. His arms were frozen against his chest. I'll never forget it. Instead of completely closing the wound, the surgeon artificially raised his blood pressure, keeping the cord engorged with blood. Of course this was at the height of COVID restrictions, so I only got to see him maybe 4 times out of the 54 days he was there. He then spent a month doing intensive inpatient physical therapy. And he walked out the doors of that damn hospital without any aid. I still can't believe what we've been through in the last year and a half, and there are obviously still deficits, especially in his hands, which are apparently the last to come back, but each spine and brain is amazingly complex and different. And people heal at different rates. Your story blew me away. Your attitude is absolutely amazing, and I'm rooting for you to keep improving! I also agree that neurologists and neurosurgeons are a special breed. My dad's surgeon has been amazing checking in and cheering him on every time she sees him. And my neurologist caught a condition I didn't know I had without it being in his specialty. I don't know how they fit all of that stuff in their brains!
So gl a d ur dadsok
That is incredible! Praying for continued healing!
This girl is a champ. The fact that she stayed quiet all night while In such pain to help her mom sleep, and she wouldn’t give her story’s in FULL detail to not worry her mom, and she stayed calm in the car when she knew her legs were going to not freak everyone out is just crazy. She’s incredible. To go through something like this at 13 is somebody I look up to when I’m older
It’s so interesting how most humans idolize people who don’t express full range of feelings, as if having them are bad.
Omfg no. Literally the opposite of what you should do. You want to advocate for yourself at all times and NEVER EVER minimize your pain or suffering. People cannot read your mind and only you can express the reality of your situation. By keeping quiet to “protect her mom” she just ended up hurting herself and hurting her mom in the end.
Your such a brave girl. I think hopefully you will walk proper again. Please God. 10 yra ago, I had bad situation too dnt no what caused it . But it was like I was in a Crash Trauma. I was attending a consultant for full year . I was getting worst. I asked to go to another consultant nuro Surgeon. I had pre -Cauda Equina. Then full blown Cauda Equina. I went to Emergency 3 times my pain was unbearable. Eventually they done a scan mri. Made me wait couple a weeks. But the young doctors were at fault . I lost the power of my bowel and bladder. I can walk now but had alot surgery since. Including a Colostomy bag. What makes me so sad for you you were so young . I was in my early fifties . It didn't happen to my family. I'm on alot pain meds. MRI, I got from 1st consultant. Attending a year. Had done Mri scan. When nuroconsultant had seen the mri I had a year before why did he not do Emergency Surgery. Wish you well. So sorry it happen to you . 😢❤
@@Wow-673 exactly what I was thinking throughout her story. Sweet child, if you were screaming the anguish you felt they wouldn't have ignored you so easily. I'm not suggesting she is at fault or holds any blame, doctors and hospital staff have a duty of care. But somewhere along the line she had picked up on the misguided attitude that she shouldn't be an inconvenience to authority figures or that it is admirable to minimise your own adversity for the comfort of others (like that of the OG comment). It's just devastating.
Bless your heart sweetie. Prayers for you! 🙏❤️🤗🙏
Back in my volleyball days (the 80’s), we didn’t have practice in the mornings. We did it after school. I can’t imagine going in the am!
This somehow popped up on my feed and I'm so glad it did! What a beautiful person you are! Your attitude about your struggle is incredible! Congratulations to your mom and dad for being blessed with such a great super kid!
Just popped up on my feed, too. I felt it happened to allow me to pray for her. What an incredible young lady. She'll get back to normal in time. ♡
@@MissFancyClancy Amen!
Wow, what a crazy story! But the fact that you’re gaining some function back is pretty amazing! Our bodies are so miraculous.
You’re so positive about the whole situation! It’s so refreshing. I can’t imagine.
For someone who has only been paralysed for 18 months you are incredibly positive! “It wasn’t a car crash or anything like that, it was a one in a million so that’s kinda cool” Your positive attitude will ensure you have an amazing life!
I was thinking meningitis from the first minute. ... we dont have a lot of control over what happens to us on this journey but what we can control is how we deal with it. This is a very unfair thing for you to deal with but you have a very mature and inspiring outlook. Thanks for your story! Keep enjoying your journey. 🥰
I said the same thing
I was thinking the same.
I thought it would end up being meningitis too.
That's what I was thinking too.
Yeah long story bless her 💕
It’s great that you’re keeping a positive attitude. I had the same thing - a large staph (MRSA) abscess on my spine , out of the blue! Mine was on my upper (cervical) spine, so my right arm was completely paralyzed. But I got my arm back, and I believe it’s possible for you to get your legs back. Keep doing physical therapy!
Same with me!!! Huge cervical MRSA abscess. So scary.
@@kristi.kervin wow I had no idea that was even possible! so scary
Ostiomolistis and an internal abscess. Lost my L1-S1. I've got 42 screws 4 bars and two plates.
You are all young women. Did you have that vaccine for cervical cancer? I saw a documentary showing how dangerous it has turned out to be and so many young people lost the use of their legs and sometimes arms.
@@kristi.kervin Wow,, hope you’re doing ok now! People think MRSA is rare, but apparently it’s becoming more common with antibiotic overuse, particularly in animal agriculture (factory farms,) where they’re run by big corporations that continuously pump up cows with antibiotics to keep them alive in spite of their horrible food and horrific environment. Even though I’ve been a vegetarian my whole life, that practice results in MRSA colonies that communicate with one another and spread.
Prayers for continued improvements with your mobility 🙏
13 yr old, back pain, legs weak and tingly...No spinal tap or MRI on the first er visit. I am not a nurse or doctor but i know those 3 symptoms need immediate attention/
10 years ago I was 18 years old and had just graduated from high school. I spent months in extreme back and leg pain and in and out of the ER. Doctors ran tests and couldn’t find anything wrong. They finally told my family that nothing was wrong with me and that I was drug seeking. Then one day I collapsed at home and was completely paralyzed from the rib cage down with it affecting in arms and vocal cords. They did a spinal tap (worst headache ever) and finally diagnosed me with a rare autoimmune disease (GBS.) They gave me IVIG treatments to stop the paralysis, then I spent months in the hospital and rehab learning to walk again. Nine months after my diagnosis it progressed into CIDP which is the chronic version of the rare autoimmune disease (Chronic Inflammatory Demyelinating Polyneuropathy) I had to get IVIG treatments every two weeks for many years and I continued to have severe muscle and bone pain and back pain. Then in 2017 my CIDP relapsed and I was paralyzed again and spent 10 days in hospital getting plasma exchange treatments which stopped the paralysis. After that I was in bad shape, I had zero quality of life and I was basically waiting to die. After some research I asked my neurologist to try Rituxan chemo treatments. He was hesitant at first but he agreed to try it as long as I didn’t get my hopes up. I’ve been on Rituxan chemo treatments for over three years and it’s the best decision I’ve ever made for my health and my life. I have been able to walk assistance free. I don’t need a cane, or walker, or wheelchair right now. My legs are pretty strong considering. I have gotten some quality of life back. I still can’t work or drive, I still have severe chronic pain. I have since gotten more autoimmune diseases like RA, IC, IBS, Fibromyalgia, and dysautonomia. I also have hand tremors, muscle spasms, ruptured and bulging discs and spinal stenosis. My life is not the best but the treatments and medications and family and friends have made it somewhat bearable. I’m so thankful for my Rituxan treatments and for my doctors. I continue the Rituxan treatments so that I won’t become paralyzed again but there is always a chance that a flare up or some kind of trigger can cause me to be paralyzed again but continuing treatments help to maintain and manage my disease. Don’t give up, always keep fighting, and good luck to you. Thank you for sharing your story because one day it will be someone else’s survival guide.
That is inspiring! Wish you the best with your treatments!!
Would stem cell therapy not help? Or bone marrow transplant?
@@miriamchalmovianska863 stem cell transplant would help tremendously but insurance does not cover stem cell transplants. It’s upwards or $350,000. And also the thing with stem cell transplants is that remission is not guarantee. There is a chance that you would only get 2-6 years of remission and then the disease could relapse again.
The very best of luck to you Chelsey.
Thanks for sharing your story. I had GBS as well. Luckily it was nowhere as severe as your but no one believed me. I was never paralyzed completely but could barely hold my arms up to type or do anything and my legs and feet felt like severe pins and needles. I felt like I was walking though water all of the time. I was told repeatedly to take some ibuprofen by doctors or that it was my anxiety or even then I didn’t eat enough. I had deep, aching, full body pain for 2 years. Luckily things improved and I have only weakness on the left side of my body and have to ask my elderly mother to open jars for me.
This was randomly suggested and I'm half way through, so captivating. As a mom, this is terrifying.
I can't believe how young you are. The way you speak, the way you present yourself. It's unbelievable.
So sorry this happened to you, but you should know you're an inspiration. Not just those who are paralyzed, for everyone.
Your outlook and positivity are something to envy. You are amazing. And so beautiful!
Keep strong girl! You are something special.
Sepsis survivor my son and I as it ate my spine during my delivery. Keep striving you will get more and more mobile everyday if you do this. I couldn’t walk at all and now I can. It’s a long road but you have your family and you got this. You are inspiring others to do the same and keep going x
I have sepsis for the fifth time right now and I was reminded of this video, so I’m watching it again. As you described things, I thought to myself she’s gonna have a blood-borne somehow big internal infection, and sure enough you did. It’s shocking how many people including in hospitals have no idea what sepsis is
The insight you possess is incredible for your age. From you wanting to hide pain so not to freak out your momma to the way you Express yourself. You are an old soul. Ppl are lucky when they meet you. 💜💜
I've had 4 spinal surgeries, from a repetitive injury, and after my 3rd surgery I had a complication. A hematoma, a sac of blood and fluid, formed at my surgical site of L3-L4. My amazing post op nurse was not pleased with the amount of pain I was in and the amount of drainage from my surgical site. She insisted I get an MRI to see what was happening as at that point I had lost the use of my left leg as well. Luckily my hospital bumped me in front of everyone that day and got me in for imaging immediately. I was put on strict bed rest and then rushed to emergency surgery bumping about a half dozen other people out of their surgical slots that day. I had drop foot in my left foot for about 3 months and not have permanent numbness and some weakness but am able to walk, run albeit poorly and get on my tip toes. My nurse literally saved my ability to walk and my family nominated her for a special award that gives them a pin to wear to show that they went above and beyond for a patient. My nurse of course said she was just doing her job. I had other nurses during my lengthy stay there and none were ever as amazing as her. I saw her one last time the day I was discharged and thanked her for saving my life.
You are an amazing young girl, and I'm sorry the system failed you. You have a great attitude and the progress you have made so far is incredible. The body does amazing things and heals beyond out wildest expectations. I can still ride my horse and drive a manual transmission car. I don't know if your experience was in the US, but I am in Canada and am so grateful for the amazing healthcare I receive. I continue to live in chronic pain but even still I work with an amazing pain management clinic that has me able to work and ski and rise when I never thought I could again. I wish you all the best and look forward to seeing you walk again in the neat future.
Gosh you’re so well spoken. As the story continues I can hear your breath get quick, i know reliving this isn’t easy.
You have such a great outlook on life, I hope you know that you have a big influence on others, seeing your optimism and spirit is such a great light in this world.
Im just so amazed by how well spoken you are, the class and grace you carry yourself with.
Also good lord how could our healthcare system fail you so many times in a row??
I’m so glad you’re doing well!
Edit to say:
I know we all have a lot we could learn from you, and I’m so happy to see you have such a good support system.
I have a disease I had as a child and it went undiagnosed for five years, i lost all my hair and my health declined. I had no energy to do anything, even closing my eyes to go to bed or holding my jaw shit as I fell asleep felt like a chore. Trying to appear happy to my parents or pretend to have fun was the most challenging part. I would go to my parents and tell them something was wrong but they had their own stuff going on. Eventually I believed them and thought that I was fine and what I was experiencing was normal but I was just weak and couldn’t handle life the way others could.
It wasn’t nearly this serious and is actually very easily treated but it got so bad to a point where if I wasn’t finally diagnosed when I was I very well could have fallen into a coma.
I sympathize a lot with how you describe being a kid and not knowing how to describe what you’re feeling, and not knowing how to advocate for yourself.
Thank you for sharing.
You are so strong. You are just as important as anyone else in those hospitals! Dont sell yourself short bc you dont want to bother people. You deserve the same level of care anyone else is entitled to. Being himble is great but dont let humility get you killed. Youre in my prayers.
Wow thank you for sharing your personal story.I am a registered nurse and honestly I would ask that your story is shown to every level of the health care team ( at the hospital's where you were seen) as part of reflective learning on their practice. You're a mature , beautiful young lady and I wish you all the best.❤️
I agree wholeheartedly
RN here. I agree. Her experience should be shared.
There is a part of the video where the young lady said she didn't want to scare her mom so she didn't tell her about a symptom. Don't ever do that, always tell your parents any symptoms or any danger you might be in, always!
This is so scary- I have a 16 year old daughter and I can’t imagine. You’ve totally rocked it since this happened. Just subbed after watching a few vids. You’re amazing. Hope you’re feeling better now also- after the recent surgery. Hope you have the best 2024 girl
You are so brave little sister, I can't see myself in your situation being so calm and positive.
I pray to God for your speedy recovery.
You look like Lindsay Lohan in her teen years!! With that being said, the way you just talk about it and the positivity you have, the strength to stand that... (I hate pain. It just gets me mad..) is just amazing. You ll get far, girl. Greetings from Spain!
I was thinking exact same thing.. she *does* look like her (in her *early* years, yes) ~HA~
KLR Drawings Yes yes yes like in the parent trap😁😁😁
I don't see that at all
If you pause it at 21:01 you can't even tell the difference between them. I paused it as I was reading your comment and was shocked I didn't notice sooner.
I disagree 100percent. She’s far prettier than Lohan ! She is more natural looking,but can not tell her story adequately!
You’re so mature it’s crazy! The way you tell your story sounds like you’re 27! You’re an inspiration and I admire your positive attitude ❤️
It’s Not crazy, she’s intelligent. Northeast Good schools. Happy my daughter is also
That’s my story .. I had staph sepsis that followed 4 years of trying to kick Lyme’s ass .. so 5 weeks in the hospital, I check myself out because they won’t help me with my back pain … they knew I had a abscess in my lower back but the kept reassuring me that it was stable … the numbness and muscle spasms in my legs kept getting worse I’d go back to the ER , I’d get an mri , get admitted be told it hadn’t changed … after 6 weeks , I spent the weekend on the floor of my apartment , tha .. any movement produced waves of agony and muscle spasm .. finally I remember thinking this can’t be right.. I dragged myself over to the apt door and unlocked it and I called my daughter in Massachusetts and told her I needed help .. so the emts show up and take me back to the hospital in Maine … they conclude that I’m back looking for drugs and tell me they will send PT to teach me to walk and then I can go home … so all night I am just laying there .. finally pt comes in and I told him my story and after looking things over for less than minute tells me you have a huge problem .. finally neurosurgery shows up and things start happening it turns out that the staph from the abscess has eaten my holes lumbar spine and the spine had slid forward, crushing my spinal cord … I was still on antibiotics for the sepsis so they added a few more, iv , and finally tell me they can send me to a rehab for 3 months of bed rest or they can try to fix my back in the or .. I made my decision a few days later, they fuse 3 levels of the lumbar spine and I can move my legs a bit .. so back to the rehab where I am labeled paraplegic … I keep asking about removing my staples but the rehab guy says they aren’t ready to come out …. Every time I ask ! A month later I get discharged , my back is leaking slime .. the ass hole rehab guy takes out the staples and tries to hold the edges together..with steri strips but they keep sliding off because of the slime … I got home, got my phone and took pictures of my back , I send them to the nurse navigator .. back I went for 3 more hours of surgery to clean out the infection , install drains back on iv meds and this time I skipped the rehab .. went home and over the last five years have learned how to walk with a walker … .. so don’t give up, keep trying , you will get there
I am 39 and admire you so much. You are so amazingly articulate as you speak and genuine. Your challenges at such a young age is clearly turning you into an amazing young woman. I am sorry you have had to be part of mistakes and that you are what you are today because life is full of what-ifs. It's amazing that you openly express going through that psychological acceptance process. If I could give you a hug, I would.
I totally get the high pain tolerance thing. The first time my lung collapsed, I was in denial something was wrong. I slowly went into a hunched position through the day because it was the only way the pain would go away. But it still didn’t occur to me that it was serious. All I wanted to do was go to sleep but we were busy that day running errands. I was trying not to be a complainer though, because we were with his family and I didn’t want to be a burden. If it weren’t for my husband making me go to the ER 8 hours later when I suddenly started dry coughing, the doctor said I would have died in my sleep. My lung collapse pushed my heart to the other side of my chest. Even while we were in the ER , I thought I was wasting their time. It wasn’t until they rolled me into a room with a bunch of huge tool boxes, it hit me how serious it was.
Ive had another serious collapse since the first, but that time, I KNEW I had to go to the ER. Turns out I get spontaneous pneumothorax due to numerous blebs(air pockets) caused by cpr when I was a baby. They pop and cause air fluid to fill my lung cavity,
dang, what was the cause?
Ahh, yes at the point where they realised it was paralysis and not a coordination (neurological from infection) issue, all the departments rushed in because often ascending paralysis (the type which starts in your legs and goes upwards) can kill you when it reaches your lungs or heart, so it became extremely urgent. It sounds like such a scary experience, you're very brave for making it through that staying so calm and your parents obviously love you so much. You may feel like you were naïve for thinking it would all work out totally fine but hindsight is 20/20 and everybody else there thought the same thing, you were no more naïve than the adults and professionals there were, it was just one of those things. That's another what-if that I think you deserve to forgive yourself for, you weren't a dumb teen you were a clearly bright girl going through an extremely murky situation. Don't forget to make sure the voice in your head is kind to yourself as often as possible X
Praying for your total healing. I’m so glad you are so brave.
Just now came across this video and have to say that you are extremely articulate and I am so sorry that this happened to you. Despite the challenges you are facing and faced at such a young age, you exude positivity and maturity beyond your years. I will be looking for more videos to see your journey and your progress. I have no doubt you have found a way to overcome this. God bless you!
Sydney - I'm so sorry you went through all this. Someone dropped the ball in your care. I heard an interesting quote today, "the world will not meet you halfway, if you want it you have to take it". So keep working and don't take no for an answer. Healing prayers to you and your family!
You got a great attitude towards life, never lose that shine :) you have a glow about you, such a strong person. An inspiration to say the least. Give me a bit of a reality check here! Don’t stop being you girl.
this comment made my night! thank you!
I bet Doctors run when they feel a law sue coming on.
Oh my dear girl. I'm just now watching your video...I know it was 3 years ago and I'm praying you've had miraculous healing. You are stronger and braver than I would have ever been. Once again..sending prayers your way.