Hi Julie...my mom passed on February 1st this year from alzheimers.....she was put into hospice care in late January. After listening to ur videos I was able to stay with my mom until she passed away in my arms. She took her last breath and she was calm and peaceful. I was less scared....and I was more emotionally prepared to deal with this. As much as I miss her....I'm glad I did a DNR on her. I let nature/God take its course. Watching her pass. was peaceful, and she looked beautiful. I miss her so much. Thank u Julie ❤❤
So sorry for such a huge loss. I love hospice. They were around the last month of my grandads life. I stayed with him 24 hours a day except for necessities 😊. I talked to him, I sang to him, talked about my grandma who had I had watch him take care of til she passed. On the last day my sister told me that I needed to go outside because a friend had brought us dinner and I was being rude. When I left for 10 minutes, my grandad had passed without me there with him. I was so upset. I was mad at him!! I didn’t want him to pass alone!! He was 100, had a great life, married to my grandma for 68 years. I’m not mad anymore,this happened in 2013. I just never understood why he waited. He was my hero. I had the pleasure of taking care of him from his age 97 to 99. God bless you, just thought I’d share. 😊❤️🙏
@@lisatingley8953 Your Grandfather passed away when you left his room for a short time because he couldn't bear to leave you. He loves/loved you a lot.
Weight loss is a BIG RED FLAG…. I lost 130lbs random in 6 months from thyroid n parathyroid cancer,,my husband has esophageal cancer had surgery on 1/17 is at home on hospice on a feeding tube 20 hrs a day ,,he lost over 130lbs random 😭😭😭 Unexplained weight loss ☹️
Excellent advice Julie! My husband was told his scope showed no signs of cancer and suggested he needed to take breaks from his computer and stretch. He lost weight, a lot of weight. Still insisting he was fine, i took him to specialist who found stomach cancer on the outside of his stomach (iron stomach) - it was devasting. He lasted a few months. 17 years later I still cry for him.
@janetm830 Please accept my deepest condolences for the loss of your husband. Did you end up making your own traditions for birthday and deathday observances? 💜🥀
Oh dear, I'm sorry. This happened to me, too. My husband was healthy, then had leg swelling. He was told to wear compression Sox and not work so hard. Months later, a simple chest Xray revealed a large mass pressing on his heart. Clearly why his legs swelled. He died 5 Mos later of GIST. I WAS SHATTERED. And still am. Just like you.
@@auberjean6873 Yes my children and I randomly help a stranger without being found out. We honor his memory also by giving of our time and resources to Veterans and Law Enforcement.
Yep. I had unexplained weight loss at 35. It was ulcerative colitis. Not fatal but serious. Forty years later with care it is in remission so no meds and no pain. Can't be luckier than that. Early detection..yes.
Just shared my story and mine was lymphatic colitis..after 80 weight loss we are still trying to get me in remission.. so glad they got yours in remission ❤🦋
I developed strange GI symptoms when I was 29 (2019). I was practically sleeping in the bathroom because of insane diarrhea. I had a colonoscopy-- they removed some polyps. My GI stated that because of my age, they were of no concern. Two weeks later, I received a call from his nurse saying they were precancerous (tubulovillous adenomas). My GI was stunned. As it turns out, those weren't the cause of my symptoms. I very quickly developed POTS/dysautonomia, gastroparesis, and a ton of other strange symptoms. My colon completely quit working in 2020 and was removed in 2021, after testing proved I have a lot of nerve issues. It's worth saying-- if you have symptoms, get it checked out, REGARDLESS of age. Never let anyone invalidate the way you feel, or your symptoms. You know your body better than anyone.
Just one idea. Because of a bunch of symptoms like yours, I was dx’d with mitochondrial myopathy. There is no cure, but you can take supplements, one is by Rx. Progression is usually slow, but can be the opposite. Varies from person to person. 99.9% is inherited from the mother’s side. Good luck. You have been through so much. I had friends online ( AdultMito) who had exact situation as yours. Colon removal. Gastroparesis. Seizures. Migraines. Some appeared to have no relationship whatsoever. If your Mom, her Mom, even aunts on female side. I had a first cousin who was diagnosed with Cerebral Palsy, but docs in NYC said it was mitochondrial encephalomyopathy. Please forgive me if I am intruding. I wish you the best of luck. God bless.❤🙏
One more fact. The mitochondria are the power plants of the cells. They are organelles and are shaped a bit like cotton candy, with all of these folds with many membranes. Red blood cells don’t have mitochondria, from hundreds to thousands. Their goal is to to produce energy, adenosine tri- phosphate or ATP. So, an energy crisis develops, causing less activity in the colon, e.g. in muscles. Hearing. Of course, you can tire easily. All days are usually not the same. Lactic acidosis. Rhabdomyolisys. That almost killed me in 2016, a year to the day that my beloved husband died in the same hospital. I don’t know why the Lord wants me here, but he does.
@@maryshanley329 Thanks so much! I see my neurologist today, I'll be sure to ask him about this. The symptoms suck, but I'm so glad you got your answers! I'll be praying for you!
@@tonic.1917 Some neurologists don’t even know that much, and some feel threatened if you show up with info. I had to kiss a lot of 🐸. I think you can go to an MDA Clinic without a referral, I may be wrong. This was in 1998. There are usually good docs there. A biopsy is always scheduled, from a muscle, in arm or leg. Pick a clinic at a major teaching hospital. East Podunk, not a good choice. Good residents are curious. A doctor friend says, “ After 40, many docs just coast “ Best of luck. If you don’t mind, please keep me posted. You are living with such dreadful conditions. There is a non-profit, the United Mitochondrial Disease Foundation. You can find out a lot there. They are very helpful on the phone.They are located in Pittsburgh.
My mom entered hospice this last Friday, in her home. Mom has had all the symptoms for the past year. She has been progressively diagnosed with a patchwork of health problems. The hospice nurse came to meet her, had she not seen her medical history, would have thought her ability to carry a conversation, she had 12 months to live. I then showed her the photo of her sudden diagnosis for Metastatic HERS2 breast cancer, she literally was taken aback and said she would be lucky to have weeks, maybe 1-2. Three months ago it was 1.7cm. It is now the size of a softball. It is suspected her leg pain is bone cancer. A week ago mom was playing playdough with her great granddaughter. Today she is in bed, hasn’t eaten in 4 days, on meds and maybe 80-85#. She was 115 just three months ago. She is taking her diagnosis poorly, sometimes remembers her Dr visit, other times not. Two days ago, she didn’t recognize me. I’ve watched your videos now for awhile and thank you for being so forthcoming with symptoms. It has absolutely prepared me for our visit with hospice. Thank you!
I am so sorry for your mother’s health diagnosis. I too am a stage 3 triple positive breast cancer patient that went to the lymphatic system. My career was in oncology research. The cancer has most likely metastasized to her brain. May her days be comfortable & peaceful.
@@cavgrey8 thank you so very much. Earlier tonight I heard her dreaming, “if you can get it, it won’t be long”. I think her logical mind understands but she is fighting the process. And yes, I agree it’s probably gone to her brain.
So sorry hon...hope your mom is comfortable...in 2011 my mom was on hospice for a couple days and passed as comfortably as possible under circumstances.
I have a friend with bile duct cancer. She is only 41, and she had all these symptoms except for cough (another friend had that when her breast cancer metasticized to her lungs; she passed away a few months later, at 43 years old). Definitely don't ignore these. If you can, please also pray for my friend. She has a husband and a four year old daughter. They all need it!❤
Oh, Julie, you have been so helpful these past few months.. I wish I would have found you earlier. My mom passed on the 27th of November from complications of pancreatic cancer we didn't see coming, except for the unexplained weight loss, and... ... Gastro things! She couldn't go to the bathroom and that was NOT normal for her. Be aware of your normal, people! Colonoscopies are SO important!! One this summer could have saved her. You're doing such important work. Thank you, Miss Julie.
I hate to say to you this, but it might have saved her -- or, it might not have. There's always the "Wishing This, Wishing That", but what has happened, did happen and nothing going back. For me, I lost my Mom over Christmas, and I wish that I would have taken her when she said she had a stomach pain. But, I suspected it was her eating too much of a cake, because she was diabetic and would do that often. But, it was probably something more, and she passed a few days later with a very, very mild stomach pain. So, if I would have only known to do something more, but she always had an ache or pain (here or there), so it's nothing I can do now. But, yes, I wish I could go back in time and do something different. I can't, and I hate that. But, Doctors said that (probably) nothing would have changed the outcome, since she passed so quickly. So, maybe, that's some solace for you too. Sometimes, it just happens that way that it happens.
No, please do your research. Colonoscopies often give false hope that everything is okay, as it misses so very much. Plus, the complications from the actual colonoscopy take many out. They are a scam, just like the mammogram. Chemo doesn't work, either.
My husband had a radical change in stool and rectal bleeding. He was fatigued and loss of appetite/weight loss. Strong history of colon cancer. He got very sick and I was trying to brace for a colon cancer diagnosis. After a colonoscopy, endoscopy and Full body CT scan turns out it is ulcerative colitis, a very treatable disease. So, don’t panic but get checked 🙂
Hi Have him get a colonoscopy about twice a year. I was . Yet, UC can become cancer! Mine did. My gastroenterologist spotted it during a routine colonoscopy. I was between stage 0 and stage 1 .
My dad started with an on and off cough for about 2 months and he was just taking cough medicine until it became persistent. He asked me to get an appointment to see his doctor bec he felt very tired and had hard time breathing. He peacefully passed in the ICU in 2 months after being diagnosed with tuberculosis and stage 4 lung cancer at the same time. I totally agree with Nurse Julie if we experience symptoms see a doctor so it can be addressed right away
Lost my dad to colorectal cancer so I had my first colonoscopy last month even though I'm only in my 40s. Caught 4 polyps with high grade dysplasia. Preventative care is SO IMPORTANT.
I had an uncle who was obese but thrilled with what he thought was his effortless weightloss. Before long he was diagnosed with inoperable pancreatic cancer. Two years earlier, another uncle went yellow with jaundice. He also died with pancreatic cancer. It's in my family, so I'll be looking out for the signs. Thanks, Julie.
You can get your own bloodwork run by paying for it yourself at request-a-test. If you study up on it find out what bloodwork might be a marker. Just add addational testing yourself.
I had a friend/coworker who was the nicest person you'd ever meet. She started losing weight unexpectedly so she went to the doctor. I feel that because she was overweight that they didn't take it seriously. She kept losing weight and rapidly lost half her weight. She was at the doctors (again) when the new to her doctor asked if they did a blood test. No, they hadn't done one yet, so he did it and got the results while she was in the office (office was at the hospital), She told me that the doc came back in the office and walked her across the hall to the oncologist. She had bone cancer and died within weeks. If that first doc had just heard her and followed up with labs she might still be alive today.
That’s a shame!!! 😢💔 Doctors don’t care, we’re run in & out like cattle, they don’t listen to the patient’s concerns, & talk over them. Who knows your body, what you feel, better than you do, but they think they know better than you. Welcome to my world!!! My doctors mentioned Hospice to me several times, I refused for a while, finally gave in because I was suffering, lost more than half my body weight in a very short time, weak & had no strength to the point I began falling; several times extremely hard falls, & eventually became bedridden. I found out today by my Hospice nurse that since my oxygen level returned to normal, that they were discharging me in 30 days! Now, I’m too weak to repeat the process of finding new doctors, because after listening to them & getting on hospice care; my doctors released me & refuse to take me back as their patient! I’m too weak to go through tests that I physically cannot handle,to get a proper diagnosis of what is going on inside my body & getting the small amount of medication because of the DEA; it’s a nightmare!! I have never felt so helpless in my life. I’m 70 years old & suffer 24/7 & was in Pain Management for 28 years, & if it wasn’t for Jesus; I would have already died!! I’m so sorry about your friend. I pray she didn’t suffer. I also learned that if a hospice patient doesn’t die in ‘their’ timeframe; they don’t need hospice & with me being on oxygen day & night my level is going to be normal. Along with internal problems, & my entire spine, neck & shoulders being fractured & broken that hospice doesn’t view that as a hospice issue, I was also diagnosed with COPD, but since I went down completely, I started using the oxygen pretty much constantly as they told me to do, so since my level is better; they’re going to toss me out! They don’t consider acute chronic pain as a necessary reason for them to help me! Take care of yourself, Love & Prayers, Sister Patricia 💓👏🙌🕊🌷
I'm a retired nurse. In May of 2019, I noticed weight loss in my sister. She assured me it was because she wasn't eating by September she was jaundice, and was diagnosed with terminal adenocarcinoma of the pancreas. Please listen to Julie!!!!
Julie, Former GYN/ONC chemo coordinator here. Just a clarification regarding something you said. A PAP smear will not detect ovarian cancer. It can and does detect cervical cancer. However, seeing your OB/GYN annually for a PAP smear can assist in getting checked for ovarian cancer based on the abdominal and pelvic exam your MD will do, and any health history you share. It's often confused by women that a clear PAP smear means they do not have ovarian cancer. But this is not true. A PAP smear checks the cellular structure of the cervix, which is also assessed visually during the exam. But the ovaries cannot be either visually assessed or tested by the cellular scrapings of the cervix in a PAP smear. So yes, absolutely go annually to get a PAP smear. And be absolutely open about any symptoms you are having regarding anything ovarian related. Ovarian cancer is a silent killer. Women usually are not diagnosed until it is at a later stage and often metastasized. Hope this helps. Thanks for you videos. They do so much for so many.
I know. It varies by MD protocol here in the States/and or insurance coverage here in the US. So, yes please absolutely go when you are able as to the coverage plan you have. I know someone who is now on an annual PAP smear protocol for the next 20 years due to her former husband's "allergy to monogamy". However, if you have tested positive for HPV, have changes in either you menstrual flow, breakthrough bleeding, pain during intercourse, abnormal watery discharge, and/or other symptoms of cervical abnormality, do not wait for the three year period to pass. Be proactive. Schedule a PAP screening as soon as possible. Know your body, so you can recognize when things are off. No one knows your body as well as you do. Best wishes.
My Dad started with a bit of a throat tickle about 2 years ago and last year it turned into a cough even though it was infrequent it was noticeable and the family urged him to get checked out. Turns out his prostate cancer which had been treated with radiation 15 years prior had returned and is now metastatic prostate cancer. He has it in his spine, rib cage and lungs and since he is now 86 he doesn't want to do any biopsies or further treatment so we have no idea how advanced it truly is or how long he has left. He is the picture of health on the outside and is quite active and mobile but I assume the coughing will only get worse as time goes on and other more serious symptoms will emerge. We are respecting his wishes to carry on as though nothing is wrong however you can't help but worry can you. I couldn't agree with you more that the warning signs you mentioned should never be ignored.
Yes, it is very common. When our current technologies only make us continue the suffering, many of us wish and long for the "Long Quiet" where we won't have pain nor suffering.
I have gastroparesis and after vomiting for hours one night I knew I needed an IV and meds. I went to the ER and was asked “so what do you want us to do about it”. Now I have to be severely sick to go.
Describes me perfectly. I have multiple chronic issues. Doctors have no cures, just a laundry list of pills to take. At this point, I think I'd feel more relief than dread if I were diagnosed with some terminal illness.
I'm looking forward to seeing my mom again. What I've figured out is that there is no prize at the end for whomever lives the longest. No trophies, no prize, no recognition. I love reading deathbed vision and "takeaway vision" stories, there is just something about them that seems "real" to me, and when it comes my turn to go I hope that I'm able to do it as gracefully as possible and I hope that it's my mom who comes to meet me and help guide me into the Light.
I had sudden weight loss and enlarged lymph nodes...I was screened for lymphoma immediately and thank God I didn't have it. I ended up being diagnosed with lupus but I keep an eye on these things closely now. Thank you for this video.
I was diagnosed with cancer last year and they thought my cancer spread everywhere because I had enlarged lymph nodes, inflammation, lung nodules and liver tumours in the PET scan. Turns out I probably have some autoimmune disease. My doctor thinks I have lupus so I am now waiting to see a rheumatologist which is about a 12-18 month wait. I have so many symptoms of lupus including the butterfly rash which my old doctor ignored for years, along with my cancer symptoms. My new doctor saved my life, I am almost in remission! Make sure you keep your inflammation down and your lupus under control because you now have an increased risk of developing cancer. This is not to scare you though, it may never happen. Just make sure you go for regular checkups and don’t ignore any symptoms. A good doctor makes all the difference as well. ❤
So true. At 77, just got another all clear on my mammogram. With no family history or symptoms, my doctor is not sending me for a colonoscopy. I do the home tests regularly. I firmly believe we are our own advocates for our health.
You should be getting colonoscopies regardless of family history. Most colon cancer is found in people without a family history with only 1 in 3 people that have a family history. I am not sure what kind of doctor you are seeing but that doctor is doing you a great disservice if he believes that not having a family history is an indicator. It's not. Thank goodness you are doing home testing, although I am not sure if it is as good as getting an actual colonoscopy.
@@edie4321 I was thinking the same. Here in Canada I get my last mammogram this year at the age of 70. After that they don’t consider it a major concern.
@@Shirleygirley, They are proven to cause more problems than they prevent. They hide that information. It's only about profit these days. Things won't change until we say something, so I'm trying. I wish you great health.
Great advice! Years ago I coughed non stop for a month. My Dad said to go to a doctor and a doctor friend got an appointment with a pulmonologist. It turned out I had a rare lung disease that is treatable but not curable called Sarcoidosis which is mainly a hardening of the lungs. It can also be found in the central nervous system which is painful but I have one the lungs. I took a steroid Prednisone as a way to reduce the inflammation and have 50% lung capacity. Yet, I lived with Sarcoidosis for 20 years and still get out live my life.
Thank you Julie for all that you do. But a lot of us have to make the choice between paying rent or paying doctor bills. I have Medicare but it’s useless because I can’t afford the copays and deductibles. I have never had a mammogram or colonoscopy nor do I get yearly checkups. This unfortunately the reality for lots of Americans.
Q: if you have Medicare do you qualify for Medicaid? Then you wouldn’t have copays and could get your tests. I was a single mom for quite a few years and I understand your situation 💗
Preventative screenings such as mammograms and colonoscopies are covered at 100% by Medicare. Also there is a yearly full health “Medicare annual checkup” again at 100% coverage with no copay or deductible. Call and get them scheduled!
I had unexplained weight loss and bruising when I was diagnosed with Leukemia. Those didn’t bring me to the doctor. Fatigue and shortness of breath did. I thought I had a heart problem. Nope. (10 years remission)
I lost 50 pounds in a two year period. Got a blood test & i was extremely anemic. Had a colonoscopy and upper GI. They found a hiatal hernia that was seeping blood. It was so small that they assumed it had been doing it for ten years or more. I've been on iron for 2 years, & not anemic anymore. I also have gained back the weight i lost & feel great !!
Had the identical situation with a sliding stomach from a hiatal hernia. The stomach scraping through the diaphragm ended up with severe anemia. Upped the ferritin level & hemoglobin with oral iron supplements under the care of a hematologist. Had a Nissen Fundoplication & new diaphragm. Check your ferritin level. You can have a normal hemoglobin but the ferritin level not be within normal parameters.
Julie! Thanks for teaching me about end of life scenarios. I have stage 4 nsc lung cancer and am supposed to be dead by February 23 ( 6 mos after dr told me how long I have to live) I still have no symptoms 2 years after having my lower right lung removed. Absolutely no chemo (never will) just keto and exercise. My sobriety date is June 30,2015 so I feel a kinship with you! ❤
I bet that, through your mental toughness and clarity on deciding to become more clean & sober, that your body has chosen to fight the cancer and has decided to beat it.
Curious if you eat apricot pips? I eat 2 a day since a cat scan found 4 nodules on my lungs. The pips destroy lung cancer cells. I hope & pray you beat this!
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!
Yes, dr.sporessss I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.
Thank you for your videos. I learned do much and they helped me with my daddy and dementia. He died peacefully on Friday at my home. I got to be with him until the end.
I agree with @AntiPrincess0. In addition, research online your symptoms on websites like WebMD. Have an idea of what you have when you speak to your doctor. Then, if they think it’s something else, ask them why they think that. Make them go into detail about the symptoms. Any good doctor will explain their reasoning based on your symptoms and their case experience/knowledge. If they get offended, then run because they probably don’t know what they’re doing. P.S. My mom was a nurse and my dad was a doctor and they were the first ones to tell us that not all doctors know what they are doing. But when you find one that is confident enough in their knowledge to let you challenge them, then they have a keeper and for god’s sake, follow that doctor’s orders! Good luck and God bless.
My pops had all of these I regret so much not talking him to another doctor his doctor said he needed to stop smoking I literally took and begged for help and even after losing 40 pounds they did not listen .i will be an advocate now but my knowledge had changed I feel heartbroken 😢 Thank you for you sharing ❤❤❤it matters
I had a persistent cough starting in 2019 it was not bad, but did not go away. I ignored it until 2022 and found out in 2023 that I have pulmonary sarcoidosis (rare autoimmune disease)in my lungs. Thankfully, there has been no progression of the disease.
I agree with the unexplained weight loss, but sometimes it’s hard to identify “unexplained.” I retired from a very high stress job in late 2018 after undergoing hip replacement surgery. I thought that would be a good time to begin a weight loss plan. I did some research and decided to try the keto diet. Boy did it work. I was consistently losing 15 pounds per month, month after month, despite being a 68 year old female couch potato. I was so smug about my results…right up to the point my cancer was diagnosed. It was not that keto is a bad diet. I think it is a great diet and I still follow a low carb diet 4 years later. It is just that I was losing toooo much weight. However, because I was trying to lose weight, I didn’t recognize I was losing too much weight.
My mother just went into hospice yesterday. Your channel and the education you provide has helped me so much. I understand why she’s doing certain things and I didn’t get upset like other family members. Thank you for what you do, julie. It’s making a difference.
Julie, as a retired oncology nurse I appreciate all of your videos, they are invaluable! However, please clarify that a Pap smear itself does NOT detect ovarian cancer. Having a gynecological examination (during which a Pap smear is done) is imperative to potentially discovering an issue with your ovaries. Thanks again for your videos!
NO JULIE!!!! This was the first sign I saw in my husband, he wouldn't go to a doctor, then his throat closed up over a time, after weeks of this, he finally went to doctor, biopsy was positive. Now in last stage of Esophageal, Stomach Cancer, lymph nodes also. It's like I'm in a bad dream, he's in denial Julie!!!!
Well, maybe if he prays and thinkings of a Healing, then God almighty will look at his situation, feel pity for him, and will give him a miraculous healing. Call to Jesus, no one else.
Wonderful video!!!! Thank you, Nurse Julie. I am a retired RN, currently licensed massage therapist. I have been in the medical field in some capacity for 51 years. I am also a 2 time breast cancer survivor because both cancers were picked up early by mammograms.(last cancer was 2007 and still here.) I find many people that kinda put their head in the sand and try alternative only means to help with their symptoms I have a client now who is fighting some invasive diagnostic work after they found a mass in his back. Of course, we had the scarey nurse talk. I have seen way too mny cases like this, very often with poor outcomes.I see massage as a WONDERFUL integrative, possibly prevative, complimentary care in many cases. There is certainly proof of restorive circumstances too...however...PLEASE listen to Nurse Julie. She knows what she is talking about.Early detection and medical intervention is everything in most cases and saves many lives.She has proof from her beloved hospice patients. Please be kind to all medical professionals. They work so hard, and most are passionate about their work and try to do the right thing in almost all cases.❤❤❤
The only indication anything was wrong with my late wife was the jaundice. A year and a half later she died from pancreatic cancer. She had the Whipple procedure, radiation, and chemo all to no avail. PC sucks because by the time it's diagnosed it's usually too late.
100% true. Just lost bad husband due to treatable heart valve + heart failure due to not going to doctor, found stage 4 metastasis. Nothing could be done. Guys, tell your family when you feel short of breath! Go get physicals. Watch for unexplained weight loss, and take it seriously.
Sir, please find an Acupuncturist/Herbologist who understands 5 element theory (Traditional Chinese Medicine). I promise a good practitioner might make an amazing difference for you! I know for a fact.
@@kkirsch3583 I paid $1000 for acupuncture and was very painful. Didn’t help at all. Even massage therapy was so painful I had to stop. There is no hope. This is my life. I’m pretty happy most of the time. Lol My poor wife. (She’s a quad. I’m her caregiver. Married 24 years. Cool!)
Have you ever had a patient that was depressed from the time they found out they were dying or do all people get use to the idea & push along? Thanks to your videos I'm more comfortable with the thought of needing Hospice one day. Part of me just doesn't want to know the earth is moving & another part of me wants to go & do what I can as long as I can. I'm afraid of the pain of whatever illness I may find out I have some day. Your videos really help! Thank you!
If you are well now (sounds like it:)😊 get your regular check ups and blood work like nurse Julie said and my dad was diagnosed 6 years ago with stage 4 prostate cancer, he unfortunately never went to a doctor until he ended up in the hospital...after he was diagnosed and told 15 months by the oncologist...he said "I'm going to live my life the way I am used to" he went to a weekly cancer day away program for the terminally I'll when a new person came he said tell us about your cancer or illness today and after that we don't sit here and dwell...he lived another 5 and half years after diagnosis giving him 15 months maximum. We all have a number and live every day the best you can❤
Good topic. It’s a little off topic but I wish health care professionals would alert parents to the symptoms of spinal meningitis. It’s so easier to treat during early stages but devastating if not caught soon enough. Point tenderness at base of the skull, a fever that doesn’t respond to OTC medicines.
Exactly what my doctor said. Unexplained weight loss is a huge red flag. The things we have good screenings for (mammograms and pelvic exams, blood tests colonoscopy even sigmoidoscopy) we do all of those. But many things we don’t have easy, safe screenings for. So we have to pay attention to our own bodies and be in contact with our physicians.
I've lost 40 lbs this last year with no effort whatsoever. I've had every screening available, except a mole check and an abdominal CT. I feel like shit and am so sick and tired of being sick and tired. I had a biopsy on a thyroid nodule and that came back ok. A month ago I felt a lump in my ribs above my right breast. Then two more in the weeks that followed. Saw my primary a week ago and she could feel them also. Having a mammogram, ultrasound Monday. Just since seeing her last week I've found another lump in my left breast. I don't want cancer in any way shape or form, but answers to why I feel so unhealthy would be really nice.
If mammo, etc. are inconclusive, please ask for a referral to an oncologist. Something is wrong and it most likely is not cancer. But better safe than sorry.
I've had a persistent cough for 8or 9 months. As it turned out after a Bronchoscopy and CT Scan they found a patch of fungus in my left lobe. They put me on a 10 course of antibiotics and steroids. The set me up for a biopsy to verify the kind of fungus. They ran me through the CT Scan again to pinpoint the exact spot and doctor cancelled it. When he looked at my lung with the 2nd CT, the fungus was gone. Don't think I didn't breathe easier. My Lung Doctor will order CT Scans every 4 months to be safe.😥😅
Thanks for your post, I had an x-ray that turned into "we need to do a CT scan" when my doctor saw something suspicious during x-ray, it ended up being scar tissue on my lungs from pneumonia...what a scare..I'm so happy you are ok too
I have scaring in my lungs too from the multiple times I've had pneumonia. The funny thing about my situation. My regular Doctor finally put his foot down and sent me to the Pulmonary Specialist against my wishes. I'd always told him I was fine with him treating my asthma, COPD, and reoccurring respiratory infections. Right off the bat, during his screenings and workup to get my baseline, the fungus was found. I guess my doctor was smart to send me to the Specialist 😂 Glad everything turned out well for you. I hope you've gotten your pneumonia vaccines 😇
Keep following up. Some of those fungi are very resistant to treatment, so you want to treat early. I have latent TB, so I will also be on the lookout for trouble.
I was diagnosed with A fungal infection in my lungs Aspergillosis, begged the Drs. For help for nearly a year, not found on a cat scan, found on a broncoscapy, along with a friable right lung, put on Voriconazole for 2 months, then it just stopped working, breathing went away again, so now I’m off to a lung specialist & infectious disease specialist, the Medical system is a nightmare, advocating for yourself is exhausting. It shouldn’t be this hard to get the right help!😢
Such good advice, I ignored a change in bowel habits for around a year, I was eventually diagnosed with stg2 colon cancer, I had quite radical surgery and I’m now classed as cured, that may or may not turn out to be the case but I do wish I’d gotten checked out sooner, listen to this lady she knows what she’s talking about! 🙂
Thank you for all of these. Your #5 Persistent cough could be even higher. Do not ignore this, and get after someone if they have it to get to a doctor ASAP
I’ve had a persistent cough for fifteen years! Not telling others not to worry, but mine is allergies due to living in the Central Valley of California. Agricultural Capital of the country.
I also had a persistent cough and then it would magically go away. Hasn’t returned for a few years and never figured out why. Tried different prescribed medication that had no effect. I personally think it was anxiety or stress, but that has never been verified.
@@AnteaterOneof course, that's not enough to diagnose, but possibly could be an inflammatory auto immune condition or latent TB. Keep you eyes open for pink or bloody phlegm.
Unfortunately my husband had a list of health issues that ended up masking his cancer. He had serious, life long asthma. Anxiety, hypochondria, I think a little OCD. He self medicated with beer and fast food so he was overweight too. So when complained about his knee hurting or trouble breathing or being tired? It was all more of the same. Regular tests didn't show anything. Turns out it was a tumor in his upper femur making his knee hurt. Tumor in his rib making his back hurt. But mostly the tumor in his throat making it hard for him to breath. The weight loss started after he was diagnosed. We were planning a trip for our 40th Anniversary in June and took him to get seen by an GI doctor because he had trouble swallowing, also something that had happened on and off for over 20 years. He only had the aches and pains at that time. By August he wasn't eating much and needed a walker to get around. By September he could hardly talk. He died in October. He lost 60 to 70 pounds in 3 months.
In Australia we have a high incidence of skin cancer so yearly skin checks are a must if you have fair skin or have had a lot of sun exposure exposure.
I guess it is via Google AI, I came across your channel recently. I found it very informative and helpful. Being involved in the healthcare system, I know and understand fully what you mean. You are God sent. Appreciate you. Blessings from LA.
Question for clarification: Does a Pap smear detect “Ovarian Cancer”? It is my understanding that a Pap smear detects cervical cancer only. My daughter passed away from uterine cancer that had also spread to her ovaries. A Pap smear did not detect her cancer. It was an ultra sound that detected the tumors and a biopsy that confirmed the tumors were malignant. Many women falsely believe that an annual Pap smear will detect cancer in the female organs. It is my experience and understanding that this is wrong. Yet, I think zi heard you say, Julie, that a Pap smear detects cervical and ovarian cancer. Please clarify…. Thanks!
A paper smear is for the cervix only it cannot detect uterine or ovarian cancer. Uterine and ovarian cancers are found through abdominal and transvaginal scans, hysteroscopies and biopsies
@@imonka100 I’m from the UK and this is not an option. Smear tests are every 5 years unless symptoms need investigation similarly a tvu will not be offered unless symptoms require investigation. Just shows the difference when private health care is involved it’s a different ball game to nationalised health care.
@@cj705 I am from the Czech rep. We have national healthcare. Pap smears together with ultrasound once a year. Should there be a problem the check ups are every 6 months. It is interesting to see what differences are in other countries. These check ups are a nuisance but I guess I should be grateful for what our healthcare system provides.
@@imonka100 yes very different but I think there has to be a balance between too much screening and not enough. We have something called the cancer two week pathway that means if there is anything remotely worrying you are seen by a consultant within two weeks.
My husband's aunt (by marriage) found out she had stomach cancer and of course lost weight quickly. I don't know if her weight loss began prior to her diagnosis, but I wouldn't be surprised. Unexplained weight loss is generally an indication of cancer. Never ignore it.
Weight loss was the sign she had colon cancer. She passed away from it. Doctors were worried that it might be depression or dementia. It was her 4th round of cancer.
I was diagnosed with HOCM. The Cardiologist stated, needs will manage it. No, they did not. I went through Cardiologists until they properly diagnosed me and I ended up with surgery to relieve the obstruction. It did not restore me to 90% capacity as I was told, I'm at 30%, still symptoms and I have an ICD. I found an MDPhd who specializes in Cardiomyopathy and I'm comfy with her. My PCP always jumps to other conclusions when I complain of symptoms and it frustrates the heck out of me. I tire easily, my feet swell at times, my Palpitations drive me nuts, keep me up at night. So much fun.
My husband and I told every Dr. We went to that he was losing weight but not one thought it was a problem.This went on for over a year….when my husband died ,he weighed 93 lbs.and both lungs were full of cancerous fluid. It was so obvious,but no one would address it😢
BE PERSISTENT!!! Hospice nurse for 17 years. I know several friends whose dermatologists said they didn’t have anything wrong. It may take THREE drs to get your melanoma or other diagnosis, but keep trying. (Derms seem particularly bad about missing things.) My former derm was watching spots on himself and his wife that he was sure were nothing and they both had cancer. NAILS- clubbing- round, bulging fingernails are a sign of serious lung disease. Bluish nail beds also ominous. Thanks, Julie!
In January 2012 my older brother was on his last weeks of hospice. He had cancer of the liver brain and lungs. I returned home before he died but had scene some of the signs. The hospice care was a blessing.
I had to take off of work for almost a year to care for my father on hospice. When I went back to work at the first of the year I noticed one of my guys had lost a lot of weight. I asked him if he was trying to lose weight and he said no. I told him later that he needs to see a Dr. because one does not lose weight for no reason. Unfortunately, him being from El Salvador, I guess he is too proud to go to the Dr..
Or, he probably doesn't have insurance and can't afford what it is going to cost to treat it. It's quite expensive, like into thousands and thousands of dollars.
@@LisaChung-tz9lw None. She was 91 and just ran out of gas. Kidneys quit, heart quit, quit eating and drinking. It was just time. Hospice nurses were great.
My cough started with an illness qt the end of September of 2023. It didn't go away. After a few tests, by January, the pulmonologist had diagnosed me with sarcoidosis. This is the same disease that Bernie Mac had. Of all of the things that it could have been, this was the best diagnosis.
I had a knee replacement 2019 with seems like extra pain so I went to a different ortho doctor for a second opinion ... he said " I wouldn't want another person to question my surgeries "... that was it ...
You are so correct Julie! Honestly, if you aren’t sure you are being taken seriously just ask well, what else could it be? How do we check? Could you be mistaken? If they bluster get another doctor. Don’t let your youth, age, history or any other good or bad thing dissuade your doctor from being YOUR advocate! 👍
I caught cancer very early twice because I listened to my body. First, unintentional weight loss and stomach pains/change of bowel habits. Sent for a colonoscopy and found a massive pre cancerous polyp. Then years later I went for a Pap smear for concerns of painful intercourse and they found pre cervical cancer cells. Had two unsuccessful LEEPS so I had a hysterectomy.
Thank you for sharing this,I was dropping weight last year&I am Chek2 positive &I kept reporting month after months to my Dr along with diarrhea,no appetite, nauseous, vomiting,the Dr actually was applauding the weight loss even though I kept telling her how sick I was.finally I got in to see my gastroenterologist who was so angry the gp didn't mark it as urgent, diagnosis lymphatic colitis, lifelong diagnosis.i lost 80lbs before I was able to switch Drs and the whole time I kept telling the Dr I wasn't supposed to take Tylenol or ibuprofen but they ignored me and said it was fine and prescribed it anyways for 3years 💔
Fascinating. I've lost 40 lbs. My dr said same thing. Keep it up. But I can't explain why. I haven't done anything different. About a year ago it started. My family and everyone just keeps saying how great it is. But I'm experiencing tiredness more lately also. Like every day almost I'm just tired. I may need to find a new dr then. Most seem to think weight loss is great no matter what. This is all pretty alarming
@SheHerThey ... You are sure lucky that you didn't die. You were sure in a situation / condition that what you were doing, could have sure ended your life -- much faster than that original PCP would have believed.
@@jessmcafee2557 @Jess ... You really should get an appointment to see another PCP and get a doctor that will listen. To be honest, I fear it could be something more serious, if you are not trying to diet, working out hard, and are not really attempting to lose weight. Honestly, it is probably something pretty serious.
@@PoeLemic agreed, my current Dr is still trying to get me In remission,I'm still dropping weight although not as quickly but now we are aware and I supplement with liquid nutrition versus having a Dr who just lets it happen 😬
I always hear colonoscopy is the great tool for catching colon cancer while treatable. Here is a better tool! Stool occult testing twice a year. Safer and cheaper than an invasive test!! I miss mom who passed September 16, 2023!! She recieved comfort care like hospice uses; but in the hospital. She had a DNR and left very peacefully❤ You are doing a wonderful service!!
Ask your primary care provider if a stool test is appropriate for you. My sibling had colon cancer at 40 and his oncologist insisted the family go for colonoscopies. Sure enough, two of us had lots of precancerous polyps that were removed while we were under. I had 16 the first time, a dozen the next year, and just a few the third time. In our case, stool tests would have been inadequate.
@@michah321 I would agree, except that stool testing can cost less than 1/10th the cost of a colonoscopy; and if done regularly can give an early heads-up about needing to figure out a way to get a colonoscopy. My colonoscopy last month cost $1,638.20 US dollars. I'd had an earlier colonoscopy just a few years ago yet this one found & removed a large precancerous polyp. I got lucky it was still benign; regular stool testing would have motivated me to get on it sooner.
A lot of false positives with stool occult tests, my brother called me hysterical one day because his doctor told him he had cancer, he had hemorrhoids.
@kristensorensen just read your comment do you really think cologuard is just as good as a colonoscopy? I’m so scared of that test because I know someone who recently passed away after having complications from the test. I recently did the home test after 11 years of a colonoscopy and it came back negative and I’m praying it’s accurate.
Unexplained weight loss in older individuals is cancer until proven otherwise. In younger people, is frequently autoimmune, like Crohn's, lupus, etc. Great comments about preventive care.
Have a colonoscopy next week. If there is no polyps, I don’t have another one for 10 years! That sounds crazy to me to wait so long. No wonder people are constantly diagnosed with colon cancer.
My husband's leukemia started with itching and night sweats, then diarrhea over and over that was only contained by taking a lot of Colestipol. Shortness of breath after that til he was finally diagnosed. I hadn't realized til afterward that diarrhea could be a sign of cancer. Definitely heed any drastic change in bowel habits.
My mum had colon cancer. She first thought she had a tummy bug, but i noticed she was loosing weight too fast. She was always a big lady, but she went down to 10 dress sizes in a month. I noticed yellow in her eyes and under her eyelids. I kept telling her to go to the doctor. Finally she went to the doctor, who referred her to hospital tests ASAP. Thank goodness it was caught in time before it spread around her body. She had an operation. It wasn't heeling properly. She got sepsis. Sadly in April 2020, my mum passed away 😢.
A year ago at age 77 I got a routine mammogram and commented to the tech that my doctor had told me no need for Pap tests after age 65. She said, “Oh no, you do need them.” I was having no symptoms whatsoever but it turned out I had serous carcinoma of the uterus which is very likely to metastasize. After a total hysterectomy it was found to be limited to one polyp within the uterus. I had a series of radiation treatments and need to see a gynecologist every 3 months for 5 years but all tests indicate I’m cancer free. Routine tests are so much more important than I ever imagined.
I think because I was young I was overlooked. They kept telling me that it was depression and fibromyalgia. Never had depression in my entire life, and I knew it wasn't fibromyalgia. I kept asking them to check my stomach and to keep an eye on my thyroid. Turns out I had thyroid cancer and they later diagnosed me with crohn's disease. This is all 5 years of suffering before a final diagnosis.
Nurse Julie why is the pancreas the last place Drs seem to check when you have symptoms that others have mentioned. Unexplained weight loss. Loss of appetite? Lucky for me my Dr did check and caught the cancer on my pancreas early. Thank you for doing what you do.❤
Thank you for all your help. I have learned more from you than any doctor. I do have a question I can't get answers to. My mom was just put on hospice iam her only caregiver from day to day I don't know what to expect no one will tell me anything. Ever morning I wake up wondering if she is still alive. Very stressful. Her doctor told me she had severe pulmonary cachexia has developed and severe emphysema. Please help on what to expect.
I kept going to my doctor with a persistent cough - and, because I also had asthma, it was misdiagnosed as my asthma getting worse for NINE YEARS before I eventually went with private healthcare and they discovered a 5cm hiatus hernia and bronchiectasis. I'll have to have surgery on the hiatus hernia at some point, but I've been told the bronchiectasis is a lifelong thing now - the best I can hope for is to manage it, as the damage to my lungs can't be reversed.
I knew unexplained weight loss would be the first one. I was 165-170 a few years ago, but with some ongoing chronic anemia issues the past few years I am down to 141 pounds at 5'11. Doctors have no idea. I have to go in for weekly iron infusions with pre-meds and had an ablation last year, but unfortunately will have to have a partial hysterectomy at thirty-seven soon. I have other ongoing health issues as well. They have mentioned cancer, but I don't think it's that. The only thing they haven't done is a bone marrow biopsy. Eeeek! I'm just exhausted. 😢
Nurses are the heart and soul of healthcare. Hospice nurses are the absolute strongest on earth.
Hi Julie...my mom passed on February 1st this year from alzheimers.....she was put into hospice care in late January. After listening to ur videos I was able to stay with my mom until she passed away in my arms. She took her last breath and she was calm and peaceful. I was less scared....and I was more emotionally prepared to deal with this. As much as I miss her....I'm glad I did a DNR on her. I let nature/God take its course. Watching her pass. was peaceful, and she looked beautiful. I miss her so much.
Thank u Julie ❤❤
Much Love to you!❤
So sorry for such a huge loss. I love hospice. They were around the last month of my grandads life. I stayed with him 24 hours a day except for necessities 😊. I talked to him, I sang to him, talked about my grandma who had I had watch him take care of til she passed. On the last day my sister told me that I needed to go outside because a friend had brought us dinner and I was being rude. When I left for 10 minutes, my grandad had passed without me there with him. I was so upset. I was mad at him!! I didn’t want him to pass alone!! He was 100, had a great life, married to my grandma for 68 years. I’m not mad anymore,this happened in 2013. I just never understood why he waited. He was my hero. I had the pleasure of taking care of him from his age 97 to 99. God bless you, just thought I’d share. 😊❤️🙏
@@lisatingley8953Your love for your grandfather is beautiful!❤
What a blessing that you got to hold your Mom in your arms as she left for the next life. ❤️
@@lisatingley8953 Your Grandfather passed away when you left his room for a short time because he couldn't bear to leave you. He loves/loved you a lot.
5. Persistent cough
4. Jaundice
3. Change of stools
2. Preventative health measures
1. Unexplained weight loss
Thank you for this.
Weight loss is a BIG RED FLAG…. I lost 130lbs random in 6 months from thyroid n parathyroid cancer,,my husband has esophageal cancer had surgery on 1/17 is at home on hospice on a feeding tube 20 hrs a day ,,he lost over 130lbs random 😭😭😭 Unexplained weight loss ☹️
@@SSsmith24
🙏🏽Praying for you, your husband and your family! ✨May peace and comfort be bestowed upon you all.💫
These are good warnings. I think I would add chest pain, also.
Excellent advice Julie! My husband was told his scope showed no signs of cancer and suggested he needed to take breaks from his computer and stretch. He lost weight, a lot of weight. Still insisting he was fine, i took him to specialist who found stomach cancer on the outside of his stomach (iron stomach) - it was devasting. He lasted a few months. 17 years later I still cry for him.
@janetm830
Please accept my deepest condolences for the loss of your husband. Did you end up making your own traditions for birthday and deathday observances? 💜🥀
Yep, medical gaslighting!
Oh dear, I'm sorry. This happened to me, too. My husband was healthy, then had leg swelling. He was told to wear compression Sox and not work so hard. Months later, a simple chest Xray revealed a large mass pressing on his heart. Clearly why his legs swelled.
He died 5 Mos later of GIST.
I WAS SHATTERED. And still am.
Just like you.
@@meninagreen5704 I am so sorry for your loss 😔 I hurt for you - we are in a club nobody should be in - sending hugs and love
@@auberjean6873 Yes my children and I randomly help a stranger without being found out. We honor his memory also by giving of our time and resources to Veterans and Law Enforcement.
God knows how many peoples lives you might save. Great content and presentation. 🇦🇺 😊
I had jaundice and discovered that my gall bladder was infected and that had infected my liver. My gall bladder was removed and I am ok.
@@pamphlet3560 no it's not about terminal illness. She specifically said watch out for these symptoms to stay healthy
I'm so sorry that happened to you. My mother is 85 and you're right they don't care. Take care
Yep. I had unexplained weight loss at 35. It was ulcerative colitis. Not fatal but serious. Forty years later with care it is in remission so no meds and no pain. Can't be luckier than that. Early detection..yes.
All the best to you. My auntie has ulcerative colitis, and it can be a debilitating disease, as I've seen from her.
Just shared my story and mine was lymphatic colitis..after 80 weight loss we are still trying to get me in remission.. so glad they got yours in remission ❤🦋
@@spreest9537 my friend had it, then he got shingles, the medication he took for shingles made his UC go away
I developed strange GI symptoms when I was 29 (2019). I was practically sleeping in the bathroom because of insane diarrhea. I had a colonoscopy-- they removed some polyps. My GI stated that because of my age, they were of no concern. Two weeks later, I received a call from his nurse saying they were precancerous (tubulovillous adenomas). My GI was stunned.
As it turns out, those weren't the cause of my symptoms. I very quickly developed POTS/dysautonomia, gastroparesis, and a ton of other strange symptoms. My colon completely quit working in 2020 and was removed in 2021, after testing proved I have a lot of nerve issues.
It's worth saying-- if you have symptoms, get it checked out, REGARDLESS of age. Never let anyone invalidate the way you feel, or your symptoms. You know your body better than anyone.
Just one idea. Because of a bunch of symptoms like yours, I was dx’d with mitochondrial myopathy. There is no cure, but you can take supplements, one is by Rx. Progression is usually slow, but can be the opposite. Varies from person to person.
99.9% is inherited from the mother’s side. Good luck. You have been through so much.
I had friends online
( AdultMito) who had exact situation as yours. Colon removal.
Gastroparesis. Seizures. Migraines.
Some appeared to have no relationship whatsoever.
If your Mom, her Mom, even aunts on female side.
I had a first cousin who was diagnosed with Cerebral Palsy, but docs in NYC said it was mitochondrial
encephalomyopathy.
Please forgive me if I am intruding.
I wish you the best of luck. God bless.❤🙏
One more fact. The mitochondria are the power plants of the cells. They are organelles and are shaped a bit like cotton candy, with all of these folds with many membranes.
Red blood cells don’t have mitochondria, from hundreds to thousands. Their goal is to to produce energy, adenosine tri-
phosphate or ATP.
So, an energy crisis develops, causing less activity in the colon, e.g. in muscles.
Hearing. Of course, you can tire easily.
All days are usually not the same.
Lactic acidosis. Rhabdomyolisys. That almost killed me in 2016, a year to the day that my beloved husband died in the same hospital.
I don’t know why the Lord wants me here, but he does.
@@maryshanley329 Thanks so much! I see my neurologist today, I'll be sure to ask him about this.
The symptoms suck, but I'm so glad you got your answers! I'll be praying for you!
@@tonic.1917 Some neurologists don’t even know that much, and some feel threatened if you show up with info.
I had to kiss a lot of 🐸.
I think you can go to an
MDA Clinic without a referral,
I may be wrong. This was in 1998. There are usually good docs there.
A biopsy is always scheduled, from a muscle, in arm or leg.
Pick a clinic at a major teaching hospital.
East Podunk, not a good choice.
Good residents are curious.
A doctor friend says, “ After 40, many docs just coast “
Best of luck. If you don’t mind, please keep me posted.
You are living with such dreadful conditions.
There is a non-profit, the United Mitochondrial Disease Foundation.
You can find out a lot there.
They are very helpful on the phone.They are located in
Pittsburgh.
That group of symptoms sounds like our family, with Ehlers-Danlos Syndrome & Chiari Malformation. Hope you're doing well.
My mom entered hospice this last Friday, in her home. Mom has had all the symptoms for the past year. She has been progressively diagnosed with a patchwork of health problems. The hospice nurse came to meet her, had she not seen her medical history, would have thought her ability to carry a conversation, she had 12 months to live. I then showed her the photo of her sudden diagnosis for Metastatic HERS2 breast cancer, she literally was taken aback and said she would be lucky to have weeks, maybe 1-2. Three months ago it was 1.7cm. It is now the size of a softball. It is suspected her leg pain is bone cancer. A week ago mom was playing playdough with her great granddaughter. Today she is in bed, hasn’t eaten in 4 days, on meds and maybe 80-85#. She was 115 just three months ago. She is taking her diagnosis poorly, sometimes remembers her Dr visit, other times not. Two days ago, she didn’t recognize me. I’ve watched your videos now for awhile and thank you for being so forthcoming with symptoms. It has absolutely prepared me for our visit with hospice. Thank you!
I am so sorry for your mother’s health diagnosis. I too am a stage 3 triple positive breast cancer patient that went to the lymphatic system. My career was in oncology research. The cancer has most likely metastasized to her brain. May her days be comfortable & peaceful.
@@cavgrey8 thank you so very much. Earlier tonight I heard her dreaming, “if you can get it, it won’t be long”. I think her logical mind understands but she is fighting the process. And yes, I agree it’s probably gone to her brain.
@diane_24 I'm sorry to read this. What a quick change. Sending positive & healing thoughts to you and your mom from NC. 💜
So sorry hon...hope your mom is comfortable...in 2011 my mom was on hospice for a couple days and passed as comfortably as possible under circumstances.
Turbo cancer?
I have a friend with bile duct cancer. She is only 41, and she had all these symptoms except for cough (another friend had that when her breast cancer metasticized to her lungs; she passed away a few months later, at 43 years old). Definitely don't ignore these. If you can, please also pray for my friend. She has a husband and a four year old daughter. They all need it!❤
Oh, Julie, you have been so helpful these past few months.. I wish I would have found you earlier. My mom passed on the 27th of November from complications of pancreatic cancer we didn't see coming, except for the unexplained weight loss, and...
... Gastro things! She couldn't go to the bathroom and that was NOT normal for her. Be aware of your normal, people! Colonoscopies are SO important!! One this summer could have saved her.
You're doing such important work. Thank you, Miss Julie.
I hate to say to you this, but it might have saved her -- or, it might not have. There's always the "Wishing This, Wishing That", but what has happened, did happen and nothing going back. For me, I lost my Mom over Christmas, and I wish that I would have taken her when she said she had a stomach pain. But, I suspected it was her eating too much of a cake, because she was diabetic and would do that often. But, it was probably something more, and she passed a few days later with a very, very mild stomach pain. So, if I would have only known to do something more, but she always had an ache or pain (here or there), so it's nothing I can do now. But, yes, I wish I could go back in time and do something different. I can't, and I hate that. But, Doctors said that (probably) nothing would have changed the outcome, since she passed so quickly. So, maybe, that's some solace for you too. Sometimes, it just happens that way that it happens.
No, please do your research. Colonoscopies often give false hope that everything is okay, as it misses so very much. Plus, the complications from the actual colonoscopy take many out. They are a scam, just like the mammogram. Chemo doesn't work, either.
My husband had a radical change in stool and rectal bleeding. He was fatigued and loss of appetite/weight loss. Strong history of colon cancer. He got very sick and I was trying to brace for a colon cancer diagnosis. After a colonoscopy, endoscopy and Full body CT scan turns out it is ulcerative colitis, a very treatable disease. So, don’t panic but get checked 🙂
Hi
Have him get a colonoscopy about twice a year.
I was .
Yet, UC can become cancer!
Mine did.
My gastroenterologist spotted it during a routine colonoscopy. I was between stage 0 and stage 1 .
My dad started with an on and off cough for about 2 months and he was just taking cough medicine until it became persistent. He asked me to get an appointment to see his doctor bec he felt very tired and had hard time breathing. He peacefully passed in the ICU in 2 months after being diagnosed with tuberculosis and stage 4 lung cancer at the same time. I totally agree with Nurse Julie if we experience symptoms see a doctor so it can be addressed right away
Lost my dad to colorectal cancer so I had my first colonoscopy last month even though I'm only in my 40s. Caught 4 polyps with high grade dysplasia. Preventative care is SO IMPORTANT.
I had an uncle who was obese but thrilled with what he thought was his effortless weightloss. Before long he was diagnosed with inoperable pancreatic cancer. Two years earlier, another uncle went yellow with jaundice. He also died with pancreatic cancer. It's in my family, so I'll be looking out for the signs. Thanks, Julie.
You can get your own bloodwork run by paying for it yourself at request-a-test. If you study up on it find out what bloodwork might be a marker. Just add addational testing yourself.
I had a friend/coworker who was the nicest person you'd ever meet. She started losing weight unexpectedly so she went to the doctor. I feel that because she was overweight that they didn't take it seriously. She kept losing weight and rapidly lost half her weight. She was at the doctors (again) when the new to her doctor asked if they did a blood test. No, they hadn't done one yet, so he did it and got the results while she was in the office (office was at the hospital), She told me that the doc came back in the office and walked her across the hall to the oncologist. She had bone cancer and died within weeks. If that first doc had just heard her and followed up with labs she might still be alive today.
So sorry for your loss .
Thank you! @@CryMeARiver63
I’m so sorry
That’s a shame!!! 😢💔 Doctors don’t care, we’re run in & out like cattle, they don’t listen to the patient’s concerns, & talk over them. Who knows your body, what you feel, better than you do, but they think they know better than you. Welcome to my world!!! My doctors mentioned Hospice to me several times, I refused for a while, finally gave in because I was suffering, lost more than half my body weight in a very short time, weak & had no strength to the point I began falling; several times extremely hard falls, & eventually became bedridden. I found out today by my Hospice nurse that since my oxygen level returned to normal, that they were discharging me in 30 days! Now, I’m too weak to repeat the process of finding new doctors, because after listening to them & getting on hospice care; my doctors released me & refuse to take me back as their patient! I’m too weak to go through tests that I physically cannot handle,to get a proper diagnosis of what is going on inside my body &
getting the small amount of medication because of the DEA; it’s a nightmare!! I have never felt so helpless in my life. I’m 70 years old & suffer 24/7 & was in Pain Management for 28 years, & if it wasn’t for Jesus; I would have already died!!
I’m so sorry about your friend. I pray she didn’t suffer.
I also learned that if a hospice patient doesn’t die in ‘their’ timeframe; they don’t need hospice & with me being on oxygen day & night my level is going to be normal. Along with internal problems, & my entire spine, neck & shoulders being fractured & broken that hospice doesn’t view that as a hospice issue, I was also diagnosed with COPD, but since I went down completely, I started using the oxygen pretty much constantly as they told me to do, so since my level is better; they’re going to toss me out! They don’t consider acute chronic pain as a necessary reason for them to help me!
Take care of yourself, Love & Prayers, Sister Patricia 💓👏🙌🕊🌷
I’m so sorry my comment is so long! 😢
I'm a retired nurse. In May of 2019, I noticed weight loss in my sister. She assured me it was because she wasn't eating by September she was jaundice, and was diagnosed with terminal adenocarcinoma of the pancreas. Please listen to Julie!!!!
Julie,
Former GYN/ONC chemo coordinator here. Just a clarification regarding something you said. A PAP smear will not detect ovarian cancer. It can and does detect cervical cancer. However, seeing your OB/GYN annually for a PAP smear can assist in getting checked for ovarian cancer based on the abdominal and pelvic exam your MD will do, and any health history you share. It's often confused by women that a clear PAP smear means they do not have ovarian cancer. But this is not true. A PAP smear checks the cellular structure of the cervix, which is also assessed visually during the exam. But the ovaries cannot be either visually assessed or tested by the cellular scrapings of the cervix in a PAP smear. So yes, absolutely go annually to get a PAP smear. And be absolutely open about any symptoms you are having regarding anything ovarian related. Ovarian cancer is a silent killer. Women usually are not diagnosed until it is at a later stage and often metastasized. Hope this helps. Thanks for you videos. They do so much for so many.
They’ve changed. My gyno only does Pap smears every 3 years.
I know. It varies by MD protocol here in the States/and or insurance coverage here in the US. So, yes please absolutely go when you are able as to the coverage plan you have. I know someone who is now on an annual PAP smear protocol for the next 20 years due to her former husband's "allergy to monogamy". However, if you have tested positive for HPV, have changes in either you menstrual flow, breakthrough bleeding, pain during intercourse, abnormal watery discharge, and/or other symptoms of cervical abnormality, do not wait for the three year period to pass. Be proactive. Schedule a PAP screening as soon as possible. Know your body, so you can recognize when things are off. No one knows your body as well as you do. Best wishes.
Thank you so much for adding this!
My Dad started with a bit of a throat tickle about 2 years ago and last year it turned into a cough even though it was infrequent it was noticeable and the family urged him to get checked out. Turns out his prostate cancer which had been treated with radiation 15 years prior had returned and is now metastatic prostate cancer. He has it in his spine, rib cage and lungs and since he is now 86 he doesn't want to do any biopsies or further treatment so we have no idea how advanced it truly is or how long he has left. He is the picture of health on the outside and is quite active and mobile but I assume the coughing will only get worse as time goes on and other more serious symptoms will emerge. We are respecting his wishes to carry on as though nothing is wrong however you can't help but worry can you. I couldn't agree with you more that the warning signs you mentioned should never be ignored.
Some of us with chronic disease are just tired of going to doctors. It’s terrible, I know, but I can’t help but think it’s fairly common.
Yes, it is very common. When our current technologies only make us continue the suffering, many of us wish and long for the "Long Quiet" where we won't have pain nor suffering.
I have gastroparesis and after vomiting for hours one night I knew I needed an IV and meds. I went to the ER and was asked “so what do you want us to do about it”. Now I have to be severely sick to go.
Especially since the pandemic.
Referrals from 1 Dr to the other and no real answers or help.
Describes me perfectly. I have multiple chronic issues. Doctors have no cures, just a laundry list of pills to take. At this point, I think I'd feel more relief than dread if I were diagnosed with some terminal illness.
I'm looking forward to seeing my mom again. What I've figured out is that there is no prize at the end for whomever lives the longest. No trophies, no prize, no recognition. I love reading deathbed vision and "takeaway vision" stories, there is just something about them that seems "real" to me, and when it comes my turn to go I hope that I'm able to do it as gracefully as possible and I hope that it's my mom who comes to meet me and help guide me into the Light.
❤️
I had sudden weight loss and enlarged lymph nodes...I was screened for lymphoma immediately and thank God I didn't have it. I ended up being diagnosed with lupus but I keep an eye on these things closely now. Thank you for this video.
I was diagnosed with cancer last year and they thought my cancer spread everywhere because I had enlarged lymph nodes, inflammation, lung nodules and liver tumours in the PET scan. Turns out I probably have some autoimmune disease. My doctor thinks I have lupus so I am now waiting to see a rheumatologist which is about a 12-18 month wait. I have so many symptoms of lupus including the butterfly rash which my old doctor ignored for years, along with my cancer symptoms. My new doctor saved my life, I am almost in remission! Make sure you keep your inflammation down and your lupus under control because you now have an increased risk of developing cancer. This is not to scare you though, it may never happen. Just make sure you go for regular checkups and don’t ignore any symptoms. A good doctor makes all the difference as well. ❤
So true. At 77, just got another all clear on my mammogram. With no family history or symptoms, my doctor is not sending me for a colonoscopy. I do the home tests regularly. I firmly believe we are our own advocates for our health.
You should be getting colonoscopies regardless of family history. Most colon cancer is found in people without a family history with only 1 in 3 people that have a family history. I am not sure what kind of doctor you are seeing but that doctor is doing you a great disservice if he believes that not having a family history is an indicator. It's not. Thank goodness you are doing home testing, although I am not sure if it is as good as getting an actual colonoscopy.
You're still doing that??? They probably wouldn't even treat you at your age. What a scam those mammograms are.
@@edie4321 I was thinking the same. Here in Canada I get my last mammogram this year at the age of 70. After that they don’t consider it a major concern.
@@Shirleygirley, They are proven to cause more problems than they prevent. They hide that information. It's only about profit these days. Things won't change until we say something, so I'm trying. I wish you great health.
Great advice! Years ago I coughed non stop for a month. My Dad said to go to a doctor and a doctor friend got an appointment with a pulmonologist. It turned out I had a rare lung disease that is treatable but not curable called Sarcoidosis which is mainly a hardening of the lungs. It can also be found in the central nervous system which is painful but I have one the lungs. I took a steroid Prednisone as a way to reduce the inflammation and have 50% lung capacity. Yet, I lived with Sarcoidosis for 20 years and still get out live my life.
Thank you Julie for all that you do. But a lot of us have to make the choice between paying rent or paying doctor bills. I have Medicare but it’s useless because I can’t afford the copays and deductibles. I have never had a mammogram or colonoscopy nor do I get yearly checkups. This unfortunately the reality for lots of Americans.
There are quite a few organizations including planned Parenthood that helps with mammograms so you can get them for free ❤
Q: if you have Medicare do you qualify for Medicaid? Then you wouldn’t have copays and could get your tests. I was a single mom for quite a few years and I understand your situation 💗
Preventative screenings such as mammograms and colonoscopies are covered at 100% by Medicare. Also there is a yearly full health “Medicare annual checkup” again at 100% coverage with no copay or deductible. Call and get them scheduled!
This is sad.
@@ThePossumladyNO!
Julie's the Queen of the health care system. Best presentations on the good ole you tube.
I had unexplained weight loss and bruising when I was diagnosed with Leukemia. Those didn’t bring me to the doctor. Fatigue and shortness of breath did. I thought I had a heart problem. Nope. (10 years remission)
I lost 50 pounds in a two year period. Got a blood test & i was extremely anemic. Had a colonoscopy and upper GI. They found a hiatal hernia that was seeping blood. It was so small that they assumed it had been doing it for ten years or more. I've been on iron for 2 years, & not anemic anymore. I also have gained back the weight i lost & feel great !!
Had the identical situation with a sliding stomach from a hiatal hernia. The stomach scraping through the diaphragm ended up with severe anemia. Upped the ferritin level & hemoglobin with oral iron supplements under the care of a hematologist. Had a Nissen Fundoplication & new diaphragm. Check your ferritin level. You can have a normal hemoglobin but the ferritin level not be within normal parameters.
@@cavgrey8 ... Oh yes, the Doc checked that as well. I'm good, thank you ! 🌹
Julie! Thanks for teaching me about end of life scenarios. I have stage 4 nsc lung cancer and am supposed to be dead by February 23 ( 6 mos after dr told me how long I have to live)
I still have no symptoms 2 years after having my lower right lung removed. Absolutely no chemo (never will) just keto and exercise. My sobriety date is June 30,2015 so I feel a kinship with you! ❤
I bet that, through your mental toughness and clarity on deciding to become more clean & sober, that your body has chosen to fight the cancer and has decided to beat it.
Keep going and have courage and faith in your higher power
@@arungogna3749
Very encouraging! Thank you! I will.🙏🏻
Curious if you eat apricot pips? I eat 2 a day since a cat scan found 4 nodules on my lungs. The pips destroy lung cancer cells.
I hope & pray you beat this!
You are beautiful--inside and out. Thank you for this channel, Nurse Julie!
Julie, you are saving lives with this information. Thank you.
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!
Yes, dr.sporessss I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.
Is he on instagram?
Yes he is. dr.sporessss
Can Dr. sporessss send to me in UK?
Thank you for your videos. I learned do much and they helped me with my daddy and dementia. He died peacefully on Friday at my home. I got to be with him until the end.
We can pay attention to these symptoms all we want but if our doctors won’t take us seriously what are we supposed to do?
Find a doctor that does. You know yourself. Stick with that and find someone who believes you.
I agree with @AntiPrincess0.
In addition, research online your symptoms on websites like WebMD. Have an idea of what you have when you speak to your doctor. Then, if they think it’s something else, ask them why they think that. Make them go into detail about the symptoms. Any good doctor will explain their reasoning based on your symptoms and their case experience/knowledge. If they get offended, then run because they probably don’t know what they’re doing.
P.S. My mom was a nurse and my dad was a doctor and they were the first ones to tell us that not all doctors know what they are doing. But when you find one that is confident enough in their knowledge to let you challenge them, then they have a keeper and for god’s sake, follow that doctor’s orders! Good luck and God bless.
Exactly
Excellent question.
@@AntiPrincess0 doctors cost money. tests cost money. time is money.
My pops had all of these I regret so much not talking him to another doctor his doctor said he needed to stop smoking I literally took and begged for help and even after losing 40 pounds they did not listen .i will be an advocate now but my knowledge had changed I feel heartbroken 😢 Thank you for you sharing ❤❤❤it matters
I had a persistent cough starting in 2019 it was not bad, but did not go away. I ignored it until 2022 and found out in 2023 that I have pulmonary sarcoidosis (rare autoimmune disease)in my lungs. Thankfully, there has been no progression of the disease.
I agree with the unexplained weight loss, but sometimes it’s hard to identify “unexplained.” I retired from a very high stress job in late 2018 after undergoing hip replacement surgery. I thought that would be a good time to begin a weight loss plan. I did some research and decided to try the keto diet. Boy did it work. I was consistently losing 15 pounds per month, month after month, despite being a 68 year old female couch potato. I was so smug about my results…right up to the point my cancer was diagnosed. It was not that keto is a bad diet. I think it is a great diet and I still follow a low carb diet 4 years later. It is just that I was losing toooo much weight. However, because I was trying to lose weight, I didn’t recognize I was losing too much weight.
So true about the cough. My husband had a persistent cough and it was stage 4 non Hodgkin lymphoma B cell. He is now 6 years into remission
That's very encouraging. I hope he continues to stay well. ❤
My mother just went into hospice yesterday. Your channel and the education you provide has helped me so much. I understand why she’s doing certain things and I didn’t get upset like other family members. Thank you for what you do, julie. It’s making a difference.
Julie, as a retired oncology nurse I appreciate all of your videos, they are invaluable! However, please clarify that a Pap smear itself does NOT detect ovarian cancer. Having a gynecological examination (during which a Pap smear is done) is imperative to potentially discovering an issue with your ovaries. Thanks again for your videos!
NO JULIE!!!! This was the first sign I saw in my husband, he wouldn't go to a doctor, then his throat closed up over a time, after weeks of this, he finally went to doctor, biopsy was positive. Now in last stage of Esophageal, Stomach Cancer, lymph nodes also. It's like I'm in a bad dream, he's in denial Julie!!!!
Well, maybe if he prays and thinkings of a Healing, then God almighty will look at his situation, feel pity for him, and will give him a miraculous healing. Call to Jesus, no one else.
So sorry to hear! Sadly, denial is often just their coping mechanism 🤷🏼♀️
Wonderful video!!!! Thank you, Nurse Julie. I am a retired RN, currently licensed massage therapist. I have been in the medical field in some capacity for 51 years. I am also a 2 time breast cancer survivor because both cancers were picked up early by mammograms.(last cancer was 2007 and still here.) I find many people that kinda put their head in the sand and try alternative only means to help with their symptoms
I have a client now who is fighting some invasive diagnostic work after they found a mass in his back. Of course, we had the scarey nurse talk. I have seen way too mny cases like this, very often with poor outcomes.I see massage as a WONDERFUL integrative, possibly prevative, complimentary care in many cases. There is certainly proof of restorive circumstances too...however...PLEASE listen to Nurse Julie. She knows what she is talking about.Early detection and medical intervention is everything in most cases and saves many lives.She has proof from her beloved hospice patients. Please be kind to all medical professionals. They work so hard, and most are passionate about their work and try to do the right thing in almost all cases.❤❤❤
The only indication anything was wrong with my late wife was the jaundice. A year and a half later she died from pancreatic cancer. She had the Whipple procedure, radiation, and chemo all to no avail. PC sucks because by the time it's diagnosed it's usually too late.
100% true. Just lost bad husband due to treatable heart valve + heart failure due to not going to doctor, found stage 4 metastasis. Nothing could be done. Guys, tell your family when you feel short of breath! Go get physicals. Watch for unexplained weight loss, and take it seriously.
It's a good reminder to do what we all know we should be doing. Yearly physicals. ❤ I'm passed due so I'm making appointment tomorrow morning!
I don’t think doctors today give a crap about you. I’m 70yrs old and am in chronic pain. Have been for over 30 years. Oh, here’s a pill.
Sir, please find an Acupuncturist/Herbologist who understands 5 element theory (Traditional Chinese Medicine). I promise a good practitioner might make an amazing difference for you! I know for a fact.
@@kkirsch3583 I paid $1000 for acupuncture and was very painful. Didn’t help at all. Even massage therapy was so painful I had to stop. There is no hope. This is my life. I’m pretty happy most of the time. Lol My poor wife. (She’s a quad. I’m her caregiver. Married 24 years. Cool!)
@@kkirsch3583 Thanks for caring, btw.
I just turned 60 and I agree ... they don't care AT ALL . SELF CARE & EDUCATING yourself is key.
$ure they care.
Edit: sarcasm
Have you ever had a patient that was depressed from the time they found out they were dying or do all people get use to the idea & push along?
Thanks to your videos I'm more comfortable with the thought of needing Hospice one day. Part of me just doesn't want to know the earth is moving & another part of me wants to go & do what I can as long as I can. I'm afraid of the pain of whatever illness I may find out I have some day. Your videos really help! Thank you!
If you are well now (sounds like it:)😊 get your regular check ups and blood work like nurse Julie said and my dad was diagnosed 6 years ago with stage 4 prostate cancer, he unfortunately never went to a doctor until he ended up in the hospital...after he was diagnosed and told 15 months by the oncologist...he said "I'm going to live my life the way I am used to" he went to a weekly cancer day away program for the terminally I'll when a new person came he said tell us about your cancer or illness today and after that we don't sit here and dwell...he lived another 5 and half years after diagnosis giving him 15 months maximum. We all have a number and live every day the best you can❤
Well, that might be me. I hope I go fast if I get such a diagnosis.
Thank you just for being here for us.
Good topic. It’s a little off topic but I wish health care professionals would alert parents to the symptoms of spinal meningitis. It’s so easier to treat during early stages but devastating if not caught soon enough. Point tenderness at base of the skull, a fever that doesn’t respond to OTC medicines.
Exactly what my doctor said. Unexplained weight loss is a huge red flag. The things we have good screenings for (mammograms and pelvic exams, blood tests colonoscopy even sigmoidoscopy) we do all of those. But many things we don’t have easy, safe screenings for. So we have to pay attention to our own bodies and be in contact with our physicians.
Listen to your body and don’t ignore it and don’t rely on one doctor to tell you that what you are feeling cannot possibly be something more serious.
I've lost 40 lbs this last year with no effort whatsoever. I've had every screening available, except a mole check and an abdominal CT. I feel like shit and am so sick and tired of being sick and tired. I had a biopsy on a thyroid nodule and that came back ok. A month ago I felt a lump in my ribs above my right breast. Then two more in the weeks that followed. Saw my primary a week ago and she could feel them also. Having a mammogram, ultrasound Monday. Just since seeing her last week I've found another lump in my left breast. I don't want cancer in any way shape or form, but answers to why I feel so unhealthy would be really nice.
🙏💙🙏💙🙏
If mammo, etc. are inconclusive, please ask for a referral to an oncologist. Something is wrong and it most likely is not cancer. But better safe than sorry.
I've had a persistent cough for 8or 9 months. As it turned out after a Bronchoscopy and CT Scan they found a patch of fungus in my left lobe. They put me on a 10 course of antibiotics and steroids. The set me up for a biopsy to verify the kind of fungus. They ran me through the CT Scan again to pinpoint the exact spot and doctor cancelled it. When he looked at my lung with the 2nd CT, the fungus was gone. Don't think I didn't breathe easier. My Lung Doctor will order CT Scans every 4 months to be safe.😥😅
Thanks for your post, I had an x-ray that turned into "we need to do a CT scan" when my doctor saw something suspicious during x-ray, it ended up being scar tissue on my lungs from pneumonia...what a scare..I'm so happy you are ok too
I have scaring in my lungs too from the multiple times I've had pneumonia.
The funny thing about my situation. My regular Doctor finally put his foot down and sent me to the Pulmonary Specialist against my wishes. I'd always told him I was fine with him treating my asthma, COPD, and reoccurring respiratory infections. Right off the bat, during his screenings and workup to get my baseline, the fungus was found. I guess my doctor was smart to send me to the Specialist 😂
Glad everything turned out well for you. I hope you've gotten your pneumonia vaccines 😇
Keep following up. Some of those fungi are very resistant to treatment, so you want to treat early. I have latent TB, so I will also be on the lookout for trouble.
I was diagnosed with A fungal infection in my lungs Aspergillosis, begged the Drs. For help for nearly a year, not found on a cat scan, found on a broncoscapy, along with a friable right lung, put on Voriconazole for 2 months, then it just stopped working, breathing went away again, so now I’m off to a lung specialist & infectious disease specialist, the Medical system is a nightmare, advocating for yourself is exhausting. It shouldn’t be this hard to get the right help!😢
Such good advice, I ignored a change in bowel habits for around a year, I was eventually diagnosed with stg2 colon cancer, I had quite radical surgery and I’m now classed as cured, that may or may not turn out to be the case but I do wish I’d gotten checked out sooner, listen to this lady she knows what she’s talking about! 🙂
Thank you for all of these. Your #5 Persistent cough could be even higher. Do not ignore this, and get after someone if they have it to get to a doctor ASAP
I’ve had a persistent cough for fifteen years! Not telling others not to worry, but mine is allergies due to living in the Central Valley of California. Agricultural Capital of the country.
So it’s not unexplained, yes?
@@JaimeMesChiens My bad! You are RIGHT!!
I also had a persistent cough and then it would magically go away. Hasn’t returned for a few years and never figured out why. Tried different prescribed medication that had no effect.
I personally think it was anxiety or stress, but that has never been verified.
Right, so that's fine if you've checked and excluded serious conditions.
@@AnteaterOneof course, that's not enough to diagnose, but possibly could be an inflammatory auto immune condition or latent TB. Keep you eyes open for pink or bloody phlegm.
Your recommendations are spot on and I wish more people would take care of themselves to be able to spend more time with love ones.
You are the best friend to many of us Julie. Thank you so much for all you do!!❤❤❤
You are so welcome
Unfortunately my husband had a list of health issues that ended up masking his cancer. He had serious, life long asthma. Anxiety, hypochondria, I think a little OCD. He self medicated with beer and fast food so he was overweight too. So when complained about his knee hurting or trouble breathing or being tired? It was all more of the same. Regular tests didn't show anything. Turns out it was a tumor in his upper femur making his knee hurt. Tumor in his rib making his back hurt. But mostly the tumor in his throat making it hard for him to breath. The weight loss started after he was diagnosed. We were planning a trip for our 40th Anniversary in June and took him to get seen by an GI doctor because he had trouble swallowing, also something that had happened on and off for over 20 years. He only had the aches and pains at that time. By August he wasn't eating much and needed a walker to get around. By September he could hardly talk. He died in October. He lost 60 to 70 pounds in 3 months.
In Australia we have a high incidence of skin cancer so yearly skin checks are a must if you have fair skin or have had a lot of sun exposure exposure.
I go every 6 months- I live in AZ
I'd add a yearly digital prostate exam with PSA to establish a baseline.❤ your videos! 🥰
I guess it is via Google AI, I came across your channel recently.
I found it very informative and helpful.
Being involved in the healthcare system, I know and understand fully what you mean.
You are God sent.
Appreciate you.
Blessings from LA.
Question for clarification: Does a Pap smear detect “Ovarian Cancer”? It is my understanding that a Pap smear detects cervical cancer only. My daughter passed away from uterine cancer that had also spread to her ovaries. A Pap smear did not detect her cancer. It was an ultra sound that detected the tumors and a biopsy that confirmed the tumors were malignant. Many women falsely believe that an annual Pap smear will detect cancer in the female organs. It is my experience and understanding that this is wrong. Yet, I think zi heard you say, Julie, that a Pap smear detects cervical and ovarian cancer. Please clarify…. Thanks!
A paper smear is for the cervix only it cannot detect uterine or ovarian cancer. Uterine and ovarian cancers are found through abdominal and transvaginal scans, hysteroscopies and biopsies
The vaginal ultrasound together with pap smear should be both part of a yearly check up.
@@imonka100 I’m from the UK and this is not an option. Smear tests are every 5 years unless symptoms need investigation similarly a tvu will not be offered unless symptoms require investigation. Just shows the difference when private health care is involved it’s a different ball game to nationalised health care.
@@cj705 I am from the Czech rep. We have national healthcare. Pap smears together with ultrasound once a year. Should there be a problem the check ups are every 6 months. It is interesting to see what differences are in other countries. These check ups are a nuisance but I guess I should be grateful for what our healthcare system provides.
@@imonka100 yes very different but I think there has to be a balance between too much screening and not enough. We have something called the cancer two week pathway that means if there is anything remotely worrying you are seen by a consultant within two weeks.
My husband's aunt (by marriage) found out she had stomach cancer and of course lost weight quickly. I don't know if her weight loss began prior to her diagnosis, but I wouldn't be surprised. Unexplained weight loss is generally an indication of cancer. Never ignore it.
Weight loss was the sign she had colon cancer. She passed away from it. Doctors were worried that it might be depression or dementia. It was her 4th round of cancer.
I was diagnosed with HOCM. The Cardiologist stated, needs will manage it. No, they did not. I went through Cardiologists until they properly diagnosed me and I ended up with surgery to relieve the obstruction. It did not restore me to 90% capacity as I was told, I'm at 30%, still symptoms and I have an ICD. I found an MDPhd who specializes in Cardiomyopathy and I'm comfy with her. My PCP always jumps to other conclusions when I complain of symptoms and it frustrates the heck out of me. I tire easily, my feet swell at times, my Palpitations drive me nuts, keep me up at night. So much fun.
My husband and I told every Dr. We went to that he was losing weight but not one thought it was a problem.This went on for over a year….when my husband died ,he weighed 93 lbs.and both lungs were full of cancerous fluid. It was so obvious,but no one would address it😢
You helped me, help my sister when my mom went on comfort care and passed away last month. Thank you! ❤
BE PERSISTENT!!! Hospice nurse for 17 years. I know several friends whose dermatologists said they didn’t have anything wrong. It may take THREE drs to get your melanoma or other diagnosis, but keep trying. (Derms seem particularly bad about missing things.) My former derm was watching spots on himself and his wife that he was sure were nothing and they both had cancer. NAILS- clubbing- round, bulging fingernails are a sign of serious lung disease. Bluish nail beds also ominous. Thanks, Julie!
In January 2012 my older brother was on his last weeks of hospice. He had cancer of the liver brain and lungs. I returned home before he died but had scene some of the signs. The hospice care was a blessing.
🇨🇦 forgetting that you ate lots of beets can be scary as well 🫣🤣
Yes! The red poop effect!!😄
True! I get scared the day after, until I remember eating beets.
@@cindykq8086 , I did that, too, after eating some delicious, fresh beets from our local farmers market. I was like, “Holy crap!”😱🤣
😂 yep
I had to take off of work for almost a year to care for my father on hospice. When I went back to work at the first of the year I noticed one of my guys had lost a lot of weight. I asked him if he was trying to lose weight and he said no. I told him later that he needs to see a Dr. because one does not lose weight for no reason. Unfortunately, him being from El Salvador, I guess he is too proud to go to the Dr..
Or, he probably doesn't have insurance and can't afford what it is going to cost to treat it. It's quite expensive, like into thousands and thousands of dollars.
You are right about the coughing. My mom started coughing on a Wednesday and was dead eight days later.
💕💕💕
I'm so sorry to hear this. What was the underlying illness?
@@LisaChung-tz9lw None. She was 91 and just ran out of gas. Kidneys quit, heart quit, quit eating and drinking. It was just time. Hospice nurses were great.
@@jsldj Thanks for the reply. She lived a full life. I will not take coughing lightly anymore.
My cough started with an illness qt the end of September of 2023. It didn't go away. After a few tests, by January, the pulmonologist had diagnosed me with sarcoidosis. This is the same disease that Bernie Mac had. Of all of the things that it could have been, this was the best diagnosis.
I had a knee replacement 2019 with seems like extra pain so I went to a different ortho doctor for a second opinion ... he said " I wouldn't want another person to question my surgeries "... that was it ...
Have you gone to an oncologist? That is something that you should really think about doing. It could be something really, really serious.
Excellent work...❤. God bless you for the lives, even if only one, is saved after watching this vid.❤
I love all of your videos! They are so informative and interesting!!😊❤
You are so correct Julie! Honestly, if you aren’t sure you are being taken seriously just ask well, what else could it be? How do we check? Could you be mistaken? If they bluster get another doctor. Don’t let your youth, age, history or any other good or bad thing dissuade your doctor from being YOUR advocate! 👍
I’ve had a persistent cough for 3 months. My doctor’s first and only reaction was to prescribe narcotic cough syrup and hope it goes away.
I caught cancer very early twice because I listened to my body. First, unintentional weight loss and stomach pains/change of bowel habits. Sent for a colonoscopy and found a massive pre cancerous polyp. Then years later I went for a Pap smear for concerns of painful intercourse and they found pre cervical cancer cells. Had two unsuccessful LEEPS so I had a hysterectomy.
I lost 185 lbs overnight. Got a divorce.
You're awesome Julie, the world needs more like you.
Thank you for sharing this,I was dropping weight last year&I am Chek2 positive &I kept reporting month after months to my Dr along with diarrhea,no appetite, nauseous, vomiting,the Dr actually was applauding the weight loss even though I kept telling her how sick I was.finally I got in to see my gastroenterologist who was so angry the gp didn't mark it as urgent, diagnosis lymphatic colitis, lifelong diagnosis.i lost 80lbs before I was able to switch Drs and the whole time I kept telling the Dr I wasn't supposed to take Tylenol or ibuprofen but they ignored me and said it was fine and prescribed it anyways for 3years 💔
Fascinating. I've lost 40 lbs. My dr said same thing. Keep it up. But I can't explain why. I haven't done anything different. About a year ago it started. My family and everyone just keeps saying how great it is. But I'm experiencing tiredness more lately also. Like every day almost I'm just tired. I may need to find a new dr then. Most seem to think weight loss is great no matter what. This is all pretty alarming
@jessmcafee2557 have your thyroid checked, among the other things.
@SheHerThey ... You are sure lucky that you didn't die. You were sure in a situation / condition that what you were doing, could have sure ended your life -- much faster than that original PCP would have believed.
@@jessmcafee2557 @Jess ... You really should get an appointment to see another PCP and get a doctor that will listen. To be honest, I fear it could be something more serious, if you are not trying to diet, working out hard, and are not really attempting to lose weight. Honestly, it is probably something pretty serious.
@@PoeLemic agreed, my current Dr is still trying to get me In remission,I'm still dropping weight although not as quickly but now we are aware and I supplement with liquid nutrition versus having a Dr who just lets it happen 😬
I always hear colonoscopy is the great tool for catching colon cancer while treatable. Here is a better tool! Stool occult testing twice a year. Safer and cheaper than an invasive test!! I miss mom who passed September 16, 2023!! She recieved comfort care like hospice uses; but in the hospital. She had a DNR and left very peacefully❤
You are doing a wonderful service!!
Ask your primary care provider if a stool test is appropriate for you. My sibling had colon cancer at 40 and his oncologist insisted the family go for colonoscopies. Sure enough, two of us had lots of precancerous polyps that were removed while we were under. I had 16 the first time, a dozen the next year, and just a few the third time. In our case, stool tests would have been inadequate.
Colonoscopy is enormously better!! It treats and removes polyps while testing. What's better than that?? Mailing out your poop?? Primitive
@@michah321 I would agree, except that stool testing can cost less than 1/10th the cost of a colonoscopy; and if done regularly can give an early heads-up about needing to figure out a way to get a colonoscopy. My colonoscopy last month cost $1,638.20 US dollars. I'd had an earlier colonoscopy just a few years ago yet this one found & removed a large precancerous polyp. I got lucky it was still benign; regular stool testing would have motivated me to get on it sooner.
A lot of false positives with stool occult tests, my brother called me hysterical one day because his doctor told him he had cancer, he had hemorrhoids.
@kristensorensen just read your comment do you really think cologuard is just as good as a colonoscopy? I’m so scared of that test because I know someone who recently passed away after having complications from the test. I recently did the home test after 11 years of a colonoscopy and it came back negative and I’m praying it’s accurate.
Very good advice....spot on from one RN to another!
Thank you very much for your valuable videos, Nurse Julie. They're very illustrative, wise and sober. Keep up your good work, please
Unexplained weight loss in older individuals is cancer until proven otherwise. In younger people, is frequently autoimmune, like Crohn's, lupus, etc. Great comments about preventive care.
Or type 1 diabetes
Excellent advice! Jaundiced eyes are so freaky. My husband had them!
Have a colonoscopy next week. If there is no polyps, I don’t have another one for 10 years! That sounds crazy to me to wait so long. No wonder people are constantly diagnosed with colon cancer.
I presume your risk factors are being considered? I went every year twice. Then two years, then three. Each time i have fewer polyps, thank goodness.
I asked for one but my doctor said we are too young for insurance to cover it
@@Texaslady1845 at what age is it covered? Do you know your risk factors?
My husband's leukemia started with itching and night sweats, then diarrhea over and over that was only contained by taking a lot of Colestipol. Shortness of breath after that til he was finally diagnosed. I hadn't realized til afterward that diarrhea could be a sign of cancer. Definitely heed any drastic change in bowel habits.
My mum had colon cancer. She first thought she had a tummy bug, but i noticed she was loosing weight too fast. She was always a big lady, but she went down to 10 dress sizes in a month. I noticed yellow in her eyes and under her eyelids. I kept telling her to go to the doctor. Finally she went to the doctor, who referred her to hospital tests ASAP. Thank goodness it was caught in time before it spread around her body. She had an operation. It wasn't heeling properly. She got sepsis. Sadly in April 2020, my mum passed away 😢.
Hello, you are AMAZING. I am an RN and really enjoy the information you share. Thanks for this channel.
Thank you Nurse Julie🙏 Your videos are very informative & helpful💜
You are so welcome
A year ago at age 77 I got a routine mammogram and commented to the tech that my doctor had told me no need for Pap tests after age 65. She said, “Oh no, you do need them.” I was having no symptoms whatsoever but it turned out I had serous carcinoma of the uterus which is very likely to metastasize. After a total hysterectomy it was found to be limited to one polyp within the uterus. I had a series of radiation treatments and need to see a gynecologist every 3 months for 5 years but all tests indicate I’m cancer free. Routine tests are so much more important than I ever imagined.
I think because I was young I was overlooked. They kept telling me that it was depression and fibromyalgia. Never had depression in my entire life, and I knew it wasn't fibromyalgia. I kept asking them to check my stomach and to keep an eye on my thyroid. Turns out I had thyroid cancer and they later diagnosed me with crohn's disease. This is all 5 years of suffering before a final diagnosis.
Nurse Julie why is the pancreas the last place Drs seem to check when you have symptoms that others have mentioned. Unexplained weight loss. Loss of appetite?
Lucky for me my Dr did check and caught the cancer on my pancreas early.
Thank you for doing what you do.❤
Thank you for all your help. I have learned more from you than any doctor. I do have a question I can't get answers to. My mom was just put on hospice iam her only caregiver from day to day I don't know what to expect no one will tell me anything. Ever morning I wake up wondering if she is still alive.
Very stressful. Her doctor told me she had severe pulmonary cachexia has developed and severe emphysema. Please help on what to expect.
Family had kidney and prostate cancer. I didn't get screened had both advanced.
I kept going to my doctor with a persistent cough - and, because I also had asthma, it was misdiagnosed as my asthma getting worse for NINE YEARS before I eventually went with private healthcare and they discovered a 5cm hiatus hernia and bronchiectasis. I'll have to have surgery on the hiatus hernia at some point, but I've been told the bronchiectasis is a lifelong thing now - the best I can hope for is to manage it, as the damage to my lungs can't be reversed.
I knew unexplained weight loss would be the first one. I was 165-170 a few years ago, but with some ongoing chronic anemia issues the past few years I am down to 141 pounds at 5'11. Doctors have no idea. I have to go in for weekly iron infusions with pre-meds and had an ablation last year, but unfortunately will have to have a partial hysterectomy at thirty-seven soon. I have other ongoing health issues as well. They have mentioned cancer, but I don't think it's that. The only thing they haven't done is a bone marrow biopsy. Eeeek! I'm just exhausted. 😢